#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Breast cancer is least common among women of American Indian and Alaska Native descent. Learn more here: https://t.co/YvNRoeQmwg #BCSM https://t.co/5M2Rd74K5k |
 | OncLive.com @OncLive HER2+ Breast Cancer: Neratinib Patient Selection @UPMCnews @bswhealth @UCSFCancer #bcsm https://t.co/qcLVNBvwbj |
 | Alicia C. Staley @stales Good evening everyone #bcsm |
| Alicia C. Staley @stales Welcome to #BCSM |
| Alicia C. Staley @stales Please say hello, and we will get started shortly. #bcsm |
 | Angela Alexander PhD @thecancergeek Hello #bcsm. What's the topic tonight? #bcsm |
| Alicia C. Staley @stales @itsthebunk POLO #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci Hi everyone!! Hillary here. Postdoc from @LombardiCancer studying hormone signaling in breast cancer. Loving this cooler weather! #bcsm |
 | Jamie Holloway, PhD @jamienholloway Hi all! Will try to keep up while waiting on dinner on the river walk!#bcsm https://t.co/maHgCW9bDi |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff Hello! Breast med onc. #bcsm |
 | Howard Karpoff @doctorkarpoff Evening all Breast surgeon from slighty upstate NY trying to catch up on today's work, but peeking in #bcsm |
 | JSDavis @jscdavis RT @NCICancerStats: Breast cancer is least common among women of American Indian and Alaska Native descent. Learn more here: https://t.co/YvNRoeQmwg #BCSM https://t.co/5M2Rd74K5k |
| Angela Alexander PhD @thecancergeek @jamienholloway you coming to SA next month too? #bcsm |
| Alicia C. Staley @stales Hello everyone. Tonight we are taking a moment to mourn the loss of @CultPerfectMoms who died last week. #bcsm |
| Alicia C. Staley @stales @doctorkarpoff Hi! #bcsm |
 | Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Greetings from Florida and Hugs to all! Dx March 2014, Stage Ia, bcs/chemo/rads. Now on anastrazole and NED. #bcsm |
| Alicia C. Staley @stales @DrSGraff Hi! Welcome, how are you? #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @jamienholloway You are a month early 😉 #bcsm |
| Alicia C. Staley @stales @jamienholloway hey there! #bcsm |
 | Mary L Gorden @marylgorden #bcsm Mary here. HER2+ bc IIB and thyroid c |
| Alicia C. Staley @stales @HillStirSci @LombardiCancer Good evening! Nice to see you! #bcsm |
| Alicia C. Staley @stales @zmadak Hi there! #bcsm |
| Jamie Holloway, PhD @jamienholloway @DrSGraff I decided to beat the crowds! #bcsm |
| Smith-Brooks @Brooksx2 Hello from near San Diego! #bcsm | |
| Alicia C. Staley @stales @thecancergeek We are talking about grief, death, dying in the breast cancer community. #bcsm |
| Alicia C. Staley @stales @zmadak We are talking about grief, death, dying in the breast cancer community. #bcsm |
| Alicia C. Staley @stales @Brooksx2 Hello from LA! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff . @CultPerfectMoms was a force for change. She is imprinted on me, on all of us. #bcsm |
| Alicia C. Staley @stales @marylgorden Hi Mary! #bcsm |
| Alicia C. Staley @stales @Elissa_Malcohn Hello Florida! #bcsm |
 | CatTravelsAgain!!🐋🐠🐙 @catbrennan @thecancergeek @jamienholloway I'll be there! Reunion! #BCSM |
 | IBC Research Fdn @IBCResearch @jamienholloway Looking forward to River Walk dinners next month! Enjoy! #bcsm |
 | Dennis Keim @denniskeim Howdy from Huskerland. Stage 1 breast cancer in 2013. Still NED. #bcsm |
| CatTravelsAgain!!🐋🐠🐙 @catbrennan Checking in from my self-made hovel I've been in for the past week. Slowly but surely emerged. Too much work to be done for @METUPorg #bcsm |
| IBC Research Fdn @IBCResearch Hi from Indiana. #IBC dx 1994. RN spending my days in #IBC research & advocacy. Just home from #ABClisbon...awesome conf. #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: Hello everyone. Tonight we are taking a moment to mourn the loss of @CultPerfectMoms who died last week. #bcsm |
 | Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins Hi #bcsm - Becca @LombardiCancer, breast cancer research. In/out tonight - need to prep a lecture |
| Hillary (Stires) Andrews, PhD @HillStirSci @DrSGraff @CultPerfectMoms She sure did. She was such a strong, prominent advocate. Such a good example for all of us. #bcsm |
 | Inspire @InspireIsHealth Hello to #bcsm, John Novack here from Inspire. |
 | Kathy Gori @kathygori Hey there everybody! 2x bc’er checking in from chilly Nor Ca 🍷country #bcsm |
| Inspire @InspireIsHealth RT @stales: @zmadak We are talking about grief, death, dying in the breast cancer community. #bcsm |
| Alicia C. Staley @stales @kathygori hi there! #bcsm |
| Alicia C. Staley @stales @teaminspire Hi John! #bcsm |
| Alicia C. Staley @stales @Prof_Riggins Thanks for joining us! #bcsm |
| Jamie Holloway, PhD @jamienholloway @catbrennan @thecancergeek I think this is going to be my SA trip for 2017. Can we put 2018 on the books now?? #bcsm |
 | Beth L. Gainer @Bethlgainer Hi there all. #bcsm |
 | Dr_Dana @Dr_Dana Happy Monday everyone. Breast surgeon in Little Rock. #bcsm |
| Alicia C. Staley @stales @Bethlgainer Hi Beth! #bcsm |
| IBC Research Fdn @IBCResearch @itsthebunk Hey there! How are you feeling these days? #bcsm |
| Alicia C. Staley @stales @Dr_Dana Hi there! How are you? #bcsm |
| Jamie Holloway, PhD @jamienholloway @teaminspire Hi John! #bcsm |
| Beth L. Gainer @Bethlgainer @stales Hi Alicia, good to be here. #bcsm |
| Alicia C. Staley @stales @denniskeim Howdy! #bcsm |
| Angela Alexander PhD @thecancergeek @jamienholloway I hope I can justify going each year - ie. have something to present. #bcsm |
| Kathy Gori @kathygori @zmadak Hi Zeynep! #bcsm |
| Alicia C. Staley @stales @Bethlgainer Always wonderful to see you #bcsm |
| Alicia C. Staley @stales @kathygori How are things in CA? #bcsm |
 | Rachel Webb @raychwrites Checking in to #bcsm. https://t.co/4zz92ejZsD |
| Alicia C. Staley @stales T1: So, @CultPerfectMoms died on 11/2 https://t.co/HNs9nsUZ1C #bcsm |
| Dr_Dana @Dr_Dana @stales Doing well. just a little MNF in the background;) #bcsm |
| IBC Research Fdn @IBCResearch There was comfort in being together at #ABClisbon when we got the news about Beth @CultPerfectMoms. Lots of bourbon & bacon pics #bcsm |
| Alicia C. Staley @stales T1: How can we continue to support the metastatic community and the breast cancer community at large as we continue to mourn #bcsm |
| Jamie Holloway, PhD @jamienholloway @thecancergeek @sandisues is trying to convince me to do the @abreastcancer program next year! 😉 #bcsm |
| Alicia C. Staley @stales T1: We've lost so many people this year. As our community grows, our losses grow too :-( #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T1: T1: How can we continue to support the metastatic community and the breast cancer community at large as we continue to mourn #bcsm |
| Alicia C. Staley @stales @Dr_Dana NICE! #bcsm |
 | Social✽Fly @socflyny RT @stales: T1: T1: How can we continue to support the metastatic community and the breast cancer community at large as we continue to mourn #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T1: T1: We've lost so many people this year. As our community grows, our losses grow too :-( #bcsm |
| Social✽Fly @socflyny RT @stales: T1: T1: We've lost so many people this year. As our community grows, our losses grow too :-( #bcsm |
| Beth L. Gainer @Bethlgainer T1 What Liza said. Overwhelmed by it all. #bcsm |
| Alicia C. Staley @stales @raychwrites Hi Rachel! #bcsm |
| Inspire @InspireIsHealth RT @stales: T1: T1: How can we continue to support the metastatic community and the breast cancer community at large as we continue to mourn #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales A lot of breast onc professionals I had not seen engage the advocacy community b4 tweeted Beth's last few blogs. They were listening. #bcsm |
| Angela Alexander PhD @thecancergeek Keeping Beth's memory alive through continuing the work she did. I thought I heard her family started a research fund at FredHutch too #bcsm |
| Dennis Keim @denniskeim RT @thecancergeek: Keeping Beth's memory alive through continuing the work she did. I thought I heard her family started a research fund at FredHutch too #bcsm |
| Social✽Fly @socflyny @stales It never ends ... but worse, there is still a wide disconnect (even among early stage patients) between Mets and awareness narratives #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales T1: I guess maybe we were all thinking about that this week. Such great friends. Such great heartbreak. #bcsm |
| Alicia C. Staley @stales T1: FYI @JodyMs and I were interviewed for this article in 2013 - on death/grief https://t.co/PMYHd3LQkp Still relevant today #bcsm |
| Beth L. Gainer @Bethlgainer @itsthebunk Thank you. #bcsm |
| Dennis Keim @denniskeim RT @stales: T1: T1: FYI @JodyMs and I were interviewed for this article in 2013 - on death/grief https://t.co/PMYHd3LQkp Still relevant today #bcsm |
| Alicia C. Staley @stales @socflyny Yes there is - and I think the disconnect continues to grow. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci Couldn't agree more! #bcsm https://t.co/31iSQVX66h |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T1 As a regular @WhatNext_Cancer I've been asked 2 write a blog entry 4 them on Beth. Will quote from here if OK. Let me know if not. #bcsm |
| Beth L. Gainer @Bethlgainer @stales @JodyMs Looking forward to reading it. #bcsm |
 | Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 Popping in briefly to say hi. Glad to see this subject tonight. #bcsm |
| Dennis Keim @denniskeim RT @stales: T1: T1: We've lost so many people this year. As our community grows, our losses grow too :-( #bcsm |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD @stales T1: never forget that metastatic ca is not diabetes-it's not a chronic dz. Never forgot the impact made and legacy left by one person! #bcsm |
| Alicia C. Staley @stales @curliegirlie31 hi there. #bcsm |
| Alicia C. Staley @stales RT @IshwariaMD @stales T1: never forget that metastatic ca is not diabetes-it's not a chronic dz. #bcsm |
| Mary L Gorden @marylgorden #bcsm T1 when you are recently diagnosed mets are things you pushed as far out of your mind as you can |
 | Breast Cancer Sucks @estrogenplus RT @stales: @zmadak We are talking about grief, death, dying in the breast cancer community. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales @socflyny We need to find ways to be collaborative & to amplify one another #earlydetection #stage4needsmore #bcsm |
| Dennis Keim @denniskeim RT @marylgorden: #bcsm T1 when you are recently diagnosed mets are things you pushed as far out of your mind as you can |
| Inspire @InspireIsHealth RT @stales: T1: T1: FYI @JodyMs and I were interviewed for this article in 2013 - on death/grief https://t.co/PMYHd3LQkp Still relevant today #bcsm |
| IBC Research Fdn @IBCResearch @thecancergeek Here's a link to the research at #thehutch IMO Beth. #bcsm https://t.co/sfh4k1HaMg |
| Hillary (Stires) Andrews, PhD @HillStirSci @itsthebunk I cried so much when I read that she'd passed... can only imagine what those who knew her better than I felt. She's an inspiration. #bcsm |
| Breast Cancer Sucks @estrogenplus RT @DrSGraff: Hello! Breast med onc. #bcsm |
| Beth L. Gainer @Bethlgainer RT @DrSGraff @stales @socflyny We need to find ways to be collaborative & to amplify one another #earlydetection #stage4needsmore #bcsm |
| Alicia C. Staley @stales RT @Bethlgainer: RT @DrSGraff @stales @socflyny We need to find ways to be collaborative & to amplify one another #earlydetection #stage4needsmore #bcsm |
| Alicia C. Staley @stales RT @marylgorden #bcsm T1 when you are recently diagnosed mets are things you pushed as far out of your mind as you can |
 | Leslie @Leslieks That’s exactly what Drs tell me to try to calm my fears about the potential for mets in my future. “Chronic like diabetes” 😡 #bcsm https://t.co/gP5DxQBpL2 |
| Alicia C. Staley @stales T1a: Suggestions on best ways to process grief? #bcsm |
| Beth L. Gainer @Bethlgainer T1a: I wish I knew. I don't process it very well. #bcsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @HillStirSci @itsthebunk Yes! The power of one person! A legacy and body of work! She squeezed a full lifetime of impact into a few decades of life! #bcsm |
| Social✽Fly @socflyny @DrSGraff @stales Exactly. Though having done a fair amount of outreach to newly dx'd of similar early stage, you soon realize no one has told them #bcsm |
| Kathy Gori @kathygori @stales @marylgorden Very true and the lack of discussion about it is why we have all this pinkwashing about “awareness” and 5 yrs etc . #bcsm |
| Alicia C. Staley @stales RT @kathygori: @stales @marylgorden Very true and the lack of discussion about it is why we have all this pinkwashing about “awareness” and 5 yrs etc . #bcsm |
| Dennis Keim @denniskeim @stales Time seems to deal with grief for me. The deeper the grief, the longer the time. #bcsm |
| Alicia C. Staley @stales RT @socflyny: @DrSGraff @stales Exactly. Though having done a fair amount of outreach to newly dx'd of similar early stage, you soon realize no one has told them #bcsm |
| Alicia C. Staley @stales RT @denniskeim: @stales Time seems to deal with grief for me. The deeper the grief, the longer the time. #bcsm |
| Leslie @Leslieks Me too! Hello, all. #bcsm https://t.co/Jx2HYqJ9qj |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales I'm reading Option B by @sherylsandberg and she reviews grief quite a bit. One thing is to not feel guilty about it - just feel it. #bcsm |
| Beth L. Gainer @Bethlgainer @Jpete008 @stales @marylgorden Mets are on my mind a lot and I'm almost 17 yrs out. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T1a Remember there's no "right" or "wrong" way to process and no timetable. Be gentle with yourself and do whatever you need. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @socflyny @stales Or they haven't been able to hear it - as a doc I think it is a bit of both. Takes a while after diagnosis to process. #bcsm |
| Dennis Keim @denniskeim RT @Elissa_Malcohn: T1a Remember there's no "right" or "wrong" way to process and no timetable. Be gentle with yourself and do whatever you need. #bcsm |
| Beth L. Gainer @Bethlgainer T1a: No right way to process grief. #bcsm |
| Smith-Brooks @Brooksx2 Slowly but surely...really difficult process!!!#bcsm https://t.co/b2OBWN80Fe | |
| Howard Karpoff @doctorkarpoff RT @Elissa_Malcohn: T1a Remember there's no "right" or "wrong" way to process and no timetable. Be gentle with yourself and do whatever you need. #bcsm |
| Mary L Gorden @marylgorden @Leslieks #bcsm Does it calm your fears |
| CatTravelsAgain!!🐋🐠🐙 @catbrennan @stales @METUPorg had an active core group w/ Beth guiding 4 last yr. Will continue. We need same support & others who want 2 join us! #BCSM |
| Beth L. Gainer @Bethlgainer @Elissa_Malcohn Great advice! #bcsm |
| Kathy Gori @kathygori @Bethlgainer @Jpete008 @stales @marylgorden Can’t help it being on all our minds when we lose so many people. #bcsm |
| Social✽Fly @socflyny @stales @marylgorden On flip side, there are early stagers who genuinely don't know from their team -- and you don't want to be the one to burst the bubble #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @HillStirSci @stales @sherylsandberg Great book #bcsm |
| Leslie @Leslieks @marylgorden Absolutely not. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales @sherylsandberg P.S. The book is HIGHLY recommended. Three close friends with cancer diagnoses in the past year has influenced how I live. #bcsm |
 | Maelli🇺🇦🌻🟧 @Maelli14 .@METUPorg @MBCC_MHBT @metavivor #bcsm https://t.co/Z85CUgH2gD |
| Jamie Holloway, PhD @jamienholloway A good friend died from MBC last summer. Her husband used this inscription. It’s perfection. #bcsm https://t.co/ACfORO7EQE |
 | Robin Holmes @Majormac1 RT @catbrennan: @stales @METUPorg had an active core group w/ Beth guiding 4 last yr. Will continue. We need same support & others who want 2 join us! #BCSM |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @stales My grieving process: recognize acknowledge validate grief. Write. cry. Write some more & Repeat often that Death does not mean failure #bcsm |
| Alicia C. Staley @stales RT @IshwariaMD: @stales My grieving process: @stales My grieving process: recognize acknowledge validate grief. Write. cry. Write some more & Repeat often that Death does not mean failure #bcsm |
 | METUP @METUPorg RT @catbrennan: @stales @METUPorg had an active core group w/ Beth guiding 4 last yr. Will continue. We need same support & others who want 2 join us! #BCSM |
| Dennis Keim @denniskeim RT @jamienholloway: A good friend died from MBC last summer. Her husband used this inscription. It’s perfection. #bcsm https://t.co/ACfORO7EQE |
| Inspire @InspireIsHealth RT @jamienholloway: A good friend died from MBC last summer. Her husband used this inscription. It’s perfection. #bcsm https://t.co/ACfORO7EQE |
| Beth L. Gainer @Bethlgainer @HillStirSci @stales @sherylsandberg I'm going to check this book out. #bcsm |
| Alicia C. Staley @stales truth! RT @Bethlgainer T1a: No right way to process grief. #bcsm |
| Robin Holmes @Majormac1 Joining late. Thx everyonefor showing Beth all your love. #bcsm |
| IBC Research Fdn @IBCResearch Dealing with grief is different for ea person. When you allow yourself 2 care there will be hurt but need 2 find a way to channel it #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @Bethlgainer @Jpete008 @stales @marylgorden Glad to hear I’m not the only one. It’s been over 20 for me, but I’m BRCA1 and lost a cousin to BC. #bcsm |
 | Ian Pereira @IanJPereira @IshwariaMD @stales A concept I wonder about. Thoughts on some of the "cancer as a chronic disease" literature? https://t.co/cUzTpLNrue #bcsm T1 |
| Social✽Fly @socflyny @DrSGraff @stales Great point. Though I have several friends who I realized genuinely didn't know. It's a lot of responsibility to be the one who tells #bcsm |
| Beth L. Gainer @Bethlgainer @curliegirlie31 @Jpete008 @stales @marylgorden Ellen, I'm so sorry. It sucks. #bcsm |
| Ian Pereira @IanJPereira RT @jamienholloway: A good friend died from MBC last summer. Her husband used this inscription. It’s perfection. #bcsm https://t.co/ACfORO7EQE |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @jamienholloway This is beautiful, Jamie! #bcsm |
| CatTravelsAgain!!🐋🐠🐙 @catbrennan @socflyny @stales @marylgorden I live in SF BAY where most ppl are very educated. I think they are MORE UPSET when they find out the pink rhetoric is so false. #bcsm |
| Social✽Fly @socflyny RT @stales: truth! RT @Bethlgainer T1a: truth! RT @Bethlgainer T1a: No right way to process grief. #bcsm |
| CatTravelsAgain!!🐋🐠🐙 @catbrennan RT @catbrennan: @stales @METUPorg had an active core group w/ Beth guiding 4 last yr. Will continue. We need same support & others who want 2 join us! #BCSM |
| Social✽Fly @socflyny RT @jamienholloway: A good friend died from MBC last summer. Her husband used this inscription. It’s perfection. #bcsm https://t.co/ACfORO7EQE |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @Bethlgainer @Jpete008 @stales @marylgorden I don’t dwell, but it pops up every now and then. #bcsm |
| Beth L. Gainer @Bethlgainer @curliegirlie31 @Jpete008 @stales @marylgorden Of course it's bound to pop up. Totally natural. #bcsm |
| Alicia C. Staley @stales Here's the link to Sandburg's book Option B: Facing Adversity, Building Resilience, and Finding Joy book https://t.co/aRkUQetNBU #bcsm |
| Alicia C. Staley @stales RT @UppityCancerP No one was made to handle that much grief. Ok to hide for a while #bcsm |
| Dennis Keim @denniskeim RT @stales: Here's the link to Sandburg's book Option B: Here's the link to Sandburg's book Option B: Facing Adversity, Building Resilience, and Finding Joy book https://t.co/aRkUQetNBU #bcsm |
| Alicia C. Staley @stales @Majormac1 Welcome! #bcsm |
| Social✽Fly @socflyny @HillStirSci @stales @sherylsandberg YES!! I have wanted to meet her ever since I read it; applied so much to BC dx's as well as what she went through. Wonderful read. #BCSM |
| CatTravelsAgain!!🐋🐠🐙 @catbrennan @jamienholloway @thecancergeek Jamie you should! It's a great program and ask @sandisues--my paper rocked the house! And my science background is PL! Do it! #bcsm |
| Rachel Webb @raychwrites @curliegirlie31 @Bethlgainer @Jpete008 @stales @marylgorden I’m a relatively recent patient but I worry about it all the time. seen too many people my age, caught it early, Best meds, etc. die. #bcsm |
| Social✽Fly @socflyny @catbrennan @stales @marylgorden It's not limited to SF -- NYC, too. Many personal friends who are also well-educated literally had no idea. #bcsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @IJohnPereira @stales I read this type of lit often but cant even for a sec imagine cancer as chronic dz right now at this point in time,Maybe in the future #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 I started boxing a few years ago. Regular boxing, not kickboxing. Hitting stuff helps me get rid of the anger. #bcsm |
| Dennis Keim @denniskeim Anxiety and grief. Not a great combination. :( #bcsm |
| Beth L. Gainer @Bethlgainer @raychwrites Rachel, it's totally normal to feel the way you do. #bcsm |
| Social✽Fly @socflyny RT @stales: Here's the link to Sandburg's book Option B: Here's the link to Sandburg's book Option B: Facing Adversity, Building Resilience, and Finding Joy book https://t.co/aRkUQetNBU #bcsm |
| Robin Holmes @Majormac1 RT @denniskeim: Anxiety and grief. Not a great combination. :( #bcsm |
| Alicia C. Staley @stales I like this idea. RT @Jpete008 @stales After crying a lot. I plant flowers in my garden for those who passed. #bcsm |
| Alicia C. Staley @stales that's a tough one RT @denniskeim Anxiety and grief. Not a great combination. :( #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn This. I experience not survivor's guilt but survivor's rage. MT @curliegirlie31: Hitting stuff helps me get rid of the anger. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @raychwrites @Bethlgainer @Jpete008 @stales @marylgorden The constant worry tends to dissipate over time. It never goes away completely, but it’s not constant. #bcsm |
| Alicia C. Staley @stales We're going just keep rolling on the grief topic for tonight. Lots of comments, lots of wonderful advice. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Channeling that energy into journaling and constructive activity works for me. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @Jpete008 @stales I love that. ❤️ #bcsm |
| Alicia C. Staley @stales For those joining in late - we're taking a moment to remember @CultPerfectMoms #bcsm |
| Beth L. Gainer @Bethlgainer RT @stales For those joining in late - we're taking a moment to remember @CultPerfectMoms #bcsm |
| Social✽Fly @socflyny @curliegirlie31 Same! The gym is always my happy place but more so post-op. Each week I could actually see my progress. Later, it became my outlet. #bcsm |
| Beth L. Gainer @Bethlgainer @Elissa_Malcohn I'm having to re-learn how to channel energy and find the joy. It's there. #bcsm |
 | Darryle Pollack @DarryleP Glad to see #bcsm honor @CultPerfectMoms I would like to help support @METUPorg. Need ppl who are not metastatic to get involved. https://t.co/vgBfqx8nts |
 | Erika Cromwell @rivereac What grief resources are there for our survivors - spouses, children, parents? #bcsm |
 | Daniel Stover, MD, FASCO @StoverLab Dan - a med onc from Ohio, joining for the last bit. #bcsm |
| Dennis Keim @denniskeim Exercise helps but sometimes the anxiety overrides the urge to do that. Need to push myself at times. #bcsm |
| CatTravelsAgain!!🐋🐠🐙 @catbrennan @stalesI wish there was a way we could identify some of these trailblazers we have lost and put some of their visions into a book #bcsm |
| Kathy Gori @kathygori @itsthebunk @Bethlgainer @raychwrites Same here #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn +1000 MT @LAmourAngelique: For me answer is action --help another survivor deal with stuff--write a letter to congress-action action #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @curliegirlie31 Science says you are right! Exercise has a big impact on emotional #wellness. A key component of self-care for docs & pts alike #bcsm |
| Kathy Gori @kathygori @catbrennan @socflyny @stales @marylgorden Me too and people just don’t seem to realize that all that over and done aware stuff is bullshit #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @catbrennan @stales Can gather blogs, chat transcripts, etc. There's raw material out there that can be made into a book. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @stales @CultPerfectMoms I posted Beth’s last 2 blog posts on Facebook. Said THIS is what people need to be aware of. Never thought she’d be gone 2 was later #bcsm |
| Robin Holmes @Majormac1 Talking about Beth hurts. I get a huge lump in my throat and tear up. I learned so much from her and miss our talks & text #bcsm |
| Ian Pereira @IanJPereira @UppityCancerP @IshwariaMD @stales Tough. I try to avoid "terminal" unless I have a clear sense of timeline. Hope exists - long term survivors? https://t.co/iFCrcVRIxr #bcsm |
| Alicia C. Staley @stales RT @curliegirlie31: @stales @CultPerfectMoms I posted Beth’s last 2 blog posts on Facebook. Said THIS is what people need to be aware of. Never thought she’d be gone 2 was later #bcsm |
| Mary L Gorden @marylgorden #bcsm my sw says part of my anger is going through the stages of grief for my lost health. Easier to grieve for others |
| Kathy Gori @kathygori @catbrennan @socflyny @stales @marylgorden Then I worry about being Debbie Downer pissing on their pink parade #bcsm |
| Social✽Fly @socflyny Don't laugh, but shattering my wrist six years post-dx stopped me from obsessing about recurrence. (Note: don't try this at home) #bcsm 😁😉 |
| Darryle Pollack @DarryleP I discovered mosaics to deal with loss. Breaking with hammer helps with anger; putting broken pieces together is resilience. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @denniskeim Even a long walk helps sometimes, right? The hardest time to do it is when your depressed and/ or anxious. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @DrSGraff I can go into the gym in a horrible mood and it’s out of my system by the time I leave. #bcsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @rivereac Hospice provides bereavement care for family for atlst 12 months after death. I don't have personal experience w their services though #bcsm |
| Dennis Keim @denniskeim @HillStirSci Exactly. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @HillStirSci @denniskeim A walk or just sitting in nature and watching birds, squirrels, etc. Even five min. can make a difference. #bcsm |
| Kathy Gori @kathygori @Elissa_Malcohn @catbrennan @stales That’s a great idea! #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @Elissa_Malcohn @catbrennan @stales This is such a great idea. I really think it would help patients and caregivers alike. And show the true side of the pink. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @denniskeim Meditation & Mindfulness apps can help anxiety. Have you tried anything like the Headspace app? #bcsm |
| Kathy Gori @kathygori @denniskeim Same here I can go (and do) for miles when I’m stressed and worried #bcsm |
| Darryle Pollack @DarryleP Thanks; I do workshops for cancer survivors. It helps everyone and zero artistic talent needed. #bcsm https://t.co/Xz1rP9jk9B |
| Mary L Gorden @marylgorden @HillStirSci @denniskeim #bcsm developing the habit of a morning walk helps a lot |
| Social✽Fly @socflyny @kathygori @catbrennan @stales @marylgorden That was my dilemma ... did I want to be the one to tell them, or let them live in ignorance. Really depends on your relation to them. #bcsm |
| Alicia C. Staley @stales Any other advice for those grieving? #bcsm |
| Dennis Keim @denniskeim @DrSGraff I did give the Headspace app a brief try. But the service seemed too pricey for me. Maybe I should be less cheap? :) #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci May I also suggest @noraborealis's podcast @ttfapodcast? I listen regularly - reminds me that people are resilient & we are not alone. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @DarryleP @CultPerfectMoms @METUPorg I sometimes feel guilty I’m 24 years NED. Makes me want to do something. Thought @METUPorg was only for this with mets. #bcsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @IJohnPereira @UppityCancerP @stales Agreed. Terminal seems like you have a few days left. maybe "Life limiting"? Or not curable? #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 RT @jamienholloway: A good friend died from MBC last summer. Her husband used this inscription. It’s perfection. #bcsm https://t.co/ACfORO7EQE |
| Beth L. Gainer @Bethlgainer @itsthebunk @stales Good advice. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @denniskeim Meditation isn't my thing, so my recommendations stop there--but I'm sure there's millions. Good science for it too. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @itsthebunk @stales Definitely easier said than done. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn This self-care wksheet from @inspiredjen is written 4 activists; seen similar 4 caregivers. Can help here 2 https://t.co/XKHWV4qD1K #bcsm |
| Social✽Fly @socflyny @curliegirlie31 @stales @CultPerfectMoms She was truly a force. And she even embraced her imminent death. She was engaged until the end. Few could/would do that. #bcsm |
| Darryle Pollack @DarryleP I get it. Survivor's guilt. Being in this chat is doing something. Also think we can help @Metup. #bcsm https://t.co/iVm6MSGMT0 |
| Robin Holmes @Majormac1 Poor grief, fear & anger into MBC Advocacy with a sense of urgency. Let’s put a stop to the insanity. We need more treatments #bcsm #ForBeth |
| Dennis Keim @denniskeim @DrSGraff I have some of Kabat-Zinn's works but never got completely in the groove with it. Was recommended to me pre-cancer dx. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @socflyny @stales @CultPerfectMoms Beth was an amazing woman. Wish I could have met her in person. #bcsm |
| Dennis Keim @denniskeim RT @curliegirlie31: @socflyny @stales @CultPerfectMoms Beth was an amazing woman. Wish I could have met her in person. #bcsm |
| Robin Holmes @Majormac1 @curliegirlie31 @DarryleP @CultPerfectMoms @METUPorg I don’t have Mets and been working with METUP and Beth for years . Husband has MBC #bcsm |
| Social✽Fly @socflyny @curliegirlie31 @DarryleP @CultPerfectMoms @METUPorg That is some milestone, Ellen! #bcsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @itsthebunk @stales So true. Don't feel compelled to rush back into 'routine' life. This was a mistake I made after family loss years ago. #bcsm |
| Robin Holmes @Majormac1 RT @DarryleP: Glad to see #bcsm honor @CultPerfectMoms I would like to help support @METUPorg. Need ppl who are not metastatic to get involved. https://t.co/vgBfqx8nts |
| IBC Research Fdn @IBCResearch 1st mindless cleaning (ie:closet), a walk fussing & fuming as I do, then I have quiet time & often hear the person tell me keep going #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @lgotl1230 @noraborealis @ttfapodcast It's on my list! I can imagine it's amazing. #bcsm |
| IBC Research Fdn @IBCResearch RT @Majormac1: Poor grief, fear & anger into MBC Advocacy with a sense of urgency. Let’s put a stop to the insanity. We need more treatments #bcsm #ForBeth |
| Dennis Keim @denniskeim RT @HillStirSci: May I also suggest @noraborealis's podcast @ttfapodcast? I listen regularly - reminds me that people are resilient & we are not alone. #bcsm |
| Beth L. Gainer @Bethlgainer RT @itsthebunk This is a great one! #bcsm https://t.co/L6RfFxWacr |
| Daniel Stover, MD, FASCO @StoverLab @socflyny @curliegirlie31 @stales @CultPerfectMoms As I tweeted previously, @CultPerfectMoms gave unfiltered, unapologetic view of #MBC. Thankful for her candor & advocacy. #bcsm |
| Alicia C. Staley @stales Good night everyone #bcsm |
| Alicia C. Staley @stales This was a tough chat #bcsm |
| Dennis Keim @denniskeim @itsthebunk Good night, Liza. See you next week, I hope. :) #bcsm |
 | Rebecca Pine @breastandsea @DarryleP I love that, Darryle. #bcsm |
| Beth L. Gainer @Bethlgainer Good night all. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn (((Hugs))) and goodnight to everyone. Wishing you all a gentle and good week. #bcsm |
| Smith-Brooks @Brooksx2 Thank you❤️ #bcsm | |
| Robin Holmes @Majormac1 RT @StoverLab: @socflyny @curliegirlie31 @stales @CultPerfectMoms As I tweeted previously, @CultPerfectMoms gave unfiltered, unapologetic view of #MBC. Thankful for her candor & advocacy. #bcsm |
| Robin Holmes @Majormac1 Goodnight everyone ❤️#bcsm |
| Erika Cromwell @rivereac Good night. #bcsm |
| Dennis Keim @denniskeim Hope everyone has a good week. Take good care of yourselves. And hugs. #bcsm |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @socflyny @DarryleP @CultPerfectMoms @METUPorg Thank you. It’s been quite a journey. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales Definitely tough but good advice from everyone. Great topic, @stales. Sending so much love to all the #bcsm -ers!! ❤️❤️ |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 Good night and hugs to all of you wonderful people!! ❤️❤️ #bcsm |
 | Kathy Cook @chiphxla @stales @CultPerfectMoms Sorry I’ve joined late but wanted to say how much I appreciated Beth for her dedication, humanity & that great sense of humor #bcsm |
| Rebecca Pine @breastandsea Nature helps me regain my footing when faced with deep inner pain or loss. It speaks the language of the soul #bcsm https://t.co/eaAmxX6UpP |
| Mary L Gorden @marylgorden Love the idea of a gentle and good week #bcsm https://t.co/0E2KzYWXyS |
| Ellen Frketic 🦩☀️🦩☀️🦩 @curliegirlie31 @denniskeim Damn autocorrect #bcsm |
| IBC Research Fdn @IBCResearch Night all...good to be here. Gotta get ready to head out again on Wed. Big hugs to get you thru the week. #bcsm |
| Jamie Holloway, PhD @jamienholloway Night all. Tough topic but good reflection. #bcsm |
| Rebecca Pine @breastandsea Connecting with those who allow us to be authentic is important when mourning. We must allow difficult emotions-can’t just transform #bcsm https://t.co/eaAmxX6UpP |
| Kathy Gori @kathygori Thanks to all who gather every week. Hopefully this next week will bring more joy #bcsm |
| Leslie @Leslieks @itsthebunk Yep. Dr and therapist both. #bcsm |
#BCSM content from Twitter.