#AlzChat Transcript
Healthcare social media transcript of the #AlzChat hashtag.
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See #AlzChat Influencers/Analytics.
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Hilgos Foundation @IRememberBetter It's time for #AlzChat Topic today: Tips for personhood & making life meaningful in dementia care @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @TommyTommytee18 | |
Hilgos Foundation @IRememberBetter #AlzChat RT @marneywalker Useful summary of what we mean by personhood in dementia "A person is more than their dementia diagnosis." https://t.co/CeBGfitFvo Personhood via @naomi_gallant | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @IRememberBetter: It's time for #AlzChat Topic today: It's time for #AlzChat Topic today: Tips for personhood & making life meaningful in dementia care @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @TommyTommytee18 | |
nursesKidONE @nursesKidONE RT @creativitycare: Hi and welcome to #AlzChat. Today's topic: | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #AlzChat RT @marneywalker Useful summary of what we mean by personhood in dementia "A person is more than their dementia diagnosis." https://t.co/CeBGfitFvo Personhood via @naomi_gallant | |
nursesKidONE @nursesKidONE RT @helenfindlay: | |
Caroline @journeyofcareM @creativitycare @IRememberBetter Hello everyone. Obvious things like inclusivity, acknowledgement of their presence ( if familiar, a kiss on the cheek, hand touching ) . And find out what brings them joy and try as often as possible to bring that into their lives. #Alzchat | |
Hilgos Foundation @IRememberBetter RT @journeyofcareM: @creativitycare @IRememberBetter Hello everyone. Obvious things like inclusivity, acknowledgement of their presence ( if familiar, a kiss on the cheek, hand touching ) . And find out what brings them joy and try as often as possible to bring that into their lives. #Alzchat | |
Karrie Marshall @KarrieMarshall When memory and/or cognitive functions become confused/disrupted, it is still possible to create powerful and meaningful connections, through mindful relationships and creativity, that can prevent the escalation of frustrated or distressed communication. Reframe words #AlzChat https://t.co/R5xEMQBQLp | |
nursesKidONE @nursesKidONE RT @journeyofcareM: @creativitycare @IRememberBetter Hello everyone. Obvious things like inclusivity, acknowledgement of their presence ( if familiar, a kiss on the cheek, hand touching ) . And find out what brings them joy and try as often as possible to bring that into their lives. #Alzchat | |
Hilgos Foundation @IRememberBetter Happy Monday @helenfindlay @nursesKidONE @LynnGamble20 @journeyofcareM @JulesWdr #AlzChat @creativitycare | |
Hilgos Foundation @IRememberBetter #alzchat RT @NimishaBajaj2 "Art therapy can enhance the personhood of the person living with dementia." Personhood. How often do we think about that? But how important is it? https://t.co/sAqw9uRXF1 | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
nursesKidONE @nursesKidONE Agreed. One big pressure is time. It often can take more time to support an individual’s identity than to do something for them or make a decision for them. But it is worth the time. #AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #alzchat RT @NimishaBajaj2 "Art therapy can enhance the personhood of the person living with dementia." Personhood. How often do we think about that? But how important is it? https://t.co/sAqw9uRXF1 | |
Bikerwise @bikerwise RT @IRememberBetter: #AlzChat RT @marneywalker Useful summary of what we mean by personhood in dementia "A person is more than their dementia diagnosis." https://t.co/CeBGfitFvo Personhood via @naomi_gallant | |
Hilgos Foundation @IRememberBetter RT @nursesKidONE: Agreed. One big pressure is time. It often can take more time to support an individual’s identity than to do something for them or make a decision for them. But it is worth the time. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @creativitycare: Recently, some NHS staff discussed how could show deeper understanding of personhood: | |
Karrie Marshall @KarrieMarshall RT @nursesKidONE: Agreed. One big pressure is time. It often can take more time to support an individual’s identity than to do something for them or make a decision for them. But it is worth the time. #AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: Recently, some NHS staff discussed how could show deeper understanding of personhood: | |
Caroline @journeyofcareM @IRememberBetter @marneywalker @naomi_gallant I imagine many caregivers work behind the scenes for their pwd, allowing them to 'carry on as normal ' for as long as possible. My mother's "personhood" still runs like a river through her. She's not that much different in personality, just forgotten certain skills. #AlzChat | |
Hilgos Foundation @IRememberBetter #AlzChat RT @LMVizer happy to share work using personhood and human needs to look at #mobile tech for people with dementia. Examining Mobile Technologies to Support Older Adults With Dementia Through the Lens of Personhood and Human Needs: Scoping Review https://t.co/WHjr0Ii7Sk | |
nursesKidONE @nursesKidONE RT @journeyofcareM: @IRememberBetter @marneywalker @naomi_gallant I imagine many caregivers work behind the scenes for their pwd, allowing them to 'carry on as normal ' for as long as possible. My mother's "personhood" still runs like a river through her. She's not that much different in personality, just forgotten certain skills. #AlzChat | |
Paul Presents @PaulPresents1 RT @IRememberBetter: #AlzChat RT @LMVizer happy to share work using personhood and human needs to look at #mobile tech for people with dementia. Examining Mobile Technologies to Support Older Adults With Dementia Through the Lens of Personhood and Human Needs: Scoping Review https://t.co/WHjr0Ii7Sk | |
Hilgos Foundation @IRememberBetter RT @nchadborn: | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #AlzChat RT @LMVizer happy to share work using personhood and human needs to look at #mobile tech for people with dementia. Examining Mobile Technologies to Support Older Adults With Dementia Through the Lens of Personhood and Human Needs: Scoping Review https://t.co/WHjr0Ii7Sk | |
Elbert Wilhite @diversity54 RT @IRememberBetter: #AlzChat RT @LMVizer happy to share work using personhood and human needs to look at #mobile tech for people with dementia. Examining Mobile Technologies to Support Older Adults With Dementia Through the Lens of Personhood and Human Needs: Scoping Review https://t.co/WHjr0Ii7Sk | |
Karrie Marshall @KarrieMarshall yes. Have just completed a small project showing that initial resource-intense input (that values personhood/humanity), really does increase person's sense of confidence/spirit and even abilities (thought to be 'lost'). But more importantly increased sense of enjoyment. #AlzChat | |
Hilgos Foundation @IRememberBetter @nchadborn @marneywalker @naomi_gallant this sounds promising - look forward to learning more @creativitycare #AlzChat | |
Karrie Marshall @KarrieMarshall oh how lovely!! I remember tis book from long ago... must have had a huge influence, as all my work since the 80's has been related!! Thanks for reminder :) xx #AlzChat https://t.co/4sWGECvdop | |
Hilgos Foundation @IRememberBetter RT @journeyofcareM: @IRememberBetter @marneywalker @naomi_gallant I imagine many caregivers work behind the scenes for their pwd, allowing them to 'carry on as normal ' for as long as possible. My mother's "personhood" still runs like a river through her. She's not that much different in personality, just forgotten certain skills. #AlzChat | |
Bikerwise @bikerwise #alzchat Personhood could be about allowing the person to continue experiencing new things or consolidating areas of interest eg visiting museums | |
Hilgos Foundation @IRememberBetter @journeyofcareM @marneywalker @naomi_gallant Beautifully put Caroline #alzchat @creativitycare | |
Hilgos Foundation @IRememberBetter RT @bikerwise: #alzchat Personhood could be about allowing the person to continue experiencing new things or consolidating areas of interest eg visiting museums | |
billshankly💙 @williamshankly RT @bikerwise: #alzchat Personhood could be about allowing the person to continue experiencing new things or consolidating areas of interest eg visiting museums | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: yes. Have just completed a small project showing that initial resource-intense input (that values personhood/humanity), really does increase person's sense of confidence/spirit and even abilities (thought to be 'lost'). But more importantly increased sense of enjoyment. #AlzChat | |
Emily Jones @emilyjonesmed RT @IRememberBetter: #AlzChat RT @LMVizer happy to share work using personhood and human needs to look at #mobile tech for people with dementia. Examining Mobile Technologies to Support Older Adults With Dementia Through the Lens of Personhood and Human Needs: Scoping Review https://t.co/WHjr0Ii7Sk | |
Hilgos Foundation @IRememberBetter RT @LynnGamble20: | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: oh how lovely!! I remember tis book from long ago... must have had a huge influence, as all my work since the 80's has been related!! Thanks for reminder :) xx #AlzChat https://t.co/4sWGECvdop | |
Hilgos Foundation @IRememberBetter RT @helenfindlay: | |
Karrie Marshall @KarrieMarshall That's a great idea regards memory machine. Also thinking big life questions (ancient philosophers posed) re 'What is identity?' Keep seeing it's quite complex; made up of so many facets. Have also been questioning how relevant identity is to enjoyable life/connections #AlzChat | |
Bikerwise @bikerwise #alzchat Also mustn't assume that what they were interested in when young remains their interest. Not only do interests change but they can change during the dementia journey. | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: That's a great idea regards memory machine. Also thinking big life questions (ancient philosophers posed) re 'What is identity?' Keep seeing it's quite complex; made up of so many facets. Have also been questioning how relevant identity is to enjoyable life/connections #AlzChat | |
Hilgos Foundation @IRememberBetter #AlzChat RT @MaritaHennessy Personhood & Dementia Care: A Qualitative #EvidenceSynthesis of the Perspectives of People With Dementia https://t.co/51vt4WlPGy @NiamhHennelly @houghtoncath @CESRD_NUIG | |
nursesKidONE @nursesKidONE This is an interesting concept. I often described my role as my mom’s care partner as “a walking repository of all things [about her].” Is there more information about this? #AlzChat | |
Hilgos Foundation @IRememberBetter @helenfindlay @nchadborn @marneywalker @naomi_gallant @WendyPMitchell #alzchat Thanks Helen - have bookmarked to read later https://t.co/ld9zixbxUq | |
nursesKidONE @nursesKidONE RT @KarrieMarshall: yes. Have just completed a small project showing that initial resource-intense input (that values personhood/humanity), really does increase person's sense of confidence/spirit and even abilities (thought to be 'lost'). But more importantly increased sense of enjoyment. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @nursesKidONE: This is an interesting concept. I often described my role as my mom’s care partner as “a walking repository of all things [about her].” Is there more information about this? #AlzChat | |
Hilgos Foundation @IRememberBetter RT @bikerwise: #alzchat Also mustn't assume that what they were interested in when young remains their interest. Not only do interests change but they can change during the dementia journey. | |
nursesKidONE @nursesKidONE RT @nchadborn: | |
Caroline @journeyofcareM @creativitycare The Butterfly approach seems to be spreading here in Ontario (albeit very slowly) . I didn't realise that Sally @sallyknocker has been in Canada for a recent care home implementing it. If all care homes would, they'd be happier places for all. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @helenfindlay: | |
Emily Jones @emilyjonesmed RT @IRememberBetter: #AlzChat RT @marneywalker Useful summary of what we mean by personhood in dementia "A person is more than their dementia diagnosis." https://t.co/CeBGfitFvo Personhood via @naomi_gallant | |
Emily Jones @emilyjonesmed RT @helenfindlay: | |
nursesKidONE @nursesKidONE This requires adequate and trained staffing. In my observation, nursing/care staff members often have responsibilities which don’t give them much time with individual patients. So the television is a substitute. #AlzChat | |
nursesKidONE @nursesKidONE RT @LynnGamble20: | |
nursesKidONE @nursesKidONE RT @helenfindlay: | |
nursesKidONE @nursesKidONE RT @bikerwise: #alzchat Also mustn't assume that what they were interested in when young remains their interest. Not only do interests change but they can change during the dementia journey. | |
Karrie Marshall @KarrieMarshall What a beautiful phrase. Sense of how deeply embedded #personhood is. #TomKitwood said it was something 'bestowed' or recognised by another person. Many would say personhood can be undermined, but essence is always present (even if not fully acknowledged) #AlzChat @creativitycare | |
Hilgos Foundation @IRememberBetter RT @nursesKidONE: This requires adequate and trained staffing. In my observation, nursing/care staff members often have responsibilities which don’t give them much time with individual patients. So the television is a substitute. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @nchadborn: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @journeyofcareM: @creativitycare The Butterfly approach seems to be spreading here in Ontario (albeit very slowly) . I didn't realise that Sally @sallyknocker has been in Canada for a recent care home implementing it. If all care homes would, they'd be happier places for all. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: What a beautiful phrase. Sense of how deeply embedded #personhood is. #TomKitwood said it was something 'bestowed' or recognised by another person. Many would say personhood can be undermined, but essence is always present (even if not fully acknowledged) #AlzChat @creativitycare | |
South Shore Sharin' @LakelifeLore #alzchat @AlzChat Hello all. It's been 6 yrs this week since my Auntie passed. I wrote & shared a song back then, some of you may have heard it. There's a lyric - "I still see you"... It's very personal and sad but reflects my journey with her, a prequel to my mom. 1/3 | |
South Shore Sharin' @LakelifeLore #Alzchat Many of you understand this on a personal level, but I was grateful to maybe reach people within the system in a different way than just talking. Don't want to interrupt the chat; I'll put the link here if anyone is interested or needs a cry. 🙏 https://t.co/ncH8qSM3V9 | |
Hilgos Foundation @IRememberBetter RT @ArtandDD_Sharon: #Alzchat Many of you understand this on a personal level, but I was grateful to maybe reach people within the system in a different way than just talking. Don't want to interrupt the chat; I'll put the link here if anyone is interested or needs a cry. 🙏 https://t.co/ncH8qSM3V9 | |
nursesKidONE @nursesKidONE RT @helenfindlay: | |
billshankly💙 @williamshankly RT @KarrieMarshall: What a beautiful phrase. Sense of how deeply embedded #personhood is. #TomKitwood said it was something 'bestowed' or recognised by another person. Many would say personhood can be undermined, but essence is always present (even if not fully acknowledged) #AlzChat @creativitycare | |
Hilgos Foundation @IRememberBetter RT @ArtandDD_Sharon: #alzchat @AlzChat Hello all. It's been 6 yrs this week since my Auntie passed. I wrote & shared a song back then, some of you may have heard it. There's a lyric - "I still see you"... It's very personal and sad but reflects my journey with her, a prequel to my mom. 1/3 | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
Hilgos Foundation @IRememberBetter @ArtandDD_Sharon Thank you for sharing - it's beautiful #alzchat @creativitycare | |
Karrie Marshall @KarrieMarshall yes great work by @sallyknocker. Looking forward to reconnecting. We have slightly different approaches, but both very creative and wonderful to see people enjoying their work, as they increase person-focused, creative and meaningful experiences. :) @creativitycare #AlzChat | |
Caroline @journeyofcareM @KarrieMarshall Cultural identity is very important to attend to also. Good compassionate care can still be inadequate if one's culture (language/food/music etc) is not an aspect of that care. Personhood is very broad & needs to include the finer details of a person's life. #Alzchat | |
Hilgos Foundation @IRememberBetter RT @journeyofcareM: @KarrieMarshall Cultural identity is very important to attend to also. Good compassionate care can still be inadequate if one's culture (language/food/music etc) is not an aspect of that care. Personhood is very broad & needs to include the finer details of a person's life. #Alzchat | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: yes great work by @sallyknocker. Looking forward to reconnecting. We have slightly different approaches, but both very creative and wonderful to see people enjoying their work, as they increase person-focused, creative and meaningful experiences. :) @creativitycare #AlzChat | |
nursesKidONE @nursesKidONE RT @helenfindlay: | |
nursesKidONE @nursesKidONE RT @journeyofcareM: @KarrieMarshall Cultural identity is very important to attend to also. Good compassionate care can still be inadequate if one's culture (language/food/music etc) is not an aspect of that care. Personhood is very broad & needs to include the finer details of a person's life. #Alzchat | |
Hilgos Foundation @IRememberBetter #AlzChat soon winding down for today. Thanks to all for joining / listening in. See you next Monday 3pmEST/8pmUK @creativitycare | |
Hilgos Foundation @IRememberBetter RT @nchadborn: | |
Hilgos Foundation @IRememberBetter RT @helenfindlay: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
nursesKidONE @nursesKidONE @journeyofcareM @KarrieMarshall Is this part of the training of professionals? Supporting cultural or personal identity in various settings & interactions I had involving care of my elder family members, w/ & w/o dementia, was limited (a few belongings from home & clothing items) often for security. #AlzChat | |
millennialcaregiver @alzmillennial @creativitycare @IRememberBetter I totally agree. I can see certain core values and beliefs coming out in my dads behavior. His physical/ verbal cues are very obvious once you take the time to learn them. #AlzChat | |
nursesKidONE @nursesKidONE RT @helenfindlay: | |
Caroline @journeyofcareM @bikerwise @IRememberBetter That's very true, much is cast aside. One constant for my mum is listening to music, and not necessarily of her era. She's equally enthralled with any music that has a good rhythm & beat. She sits & taps her feet, moves her hands around and is completely absorbed. #Alzchat | |
nursesKidONE @nursesKidONE RT @helenfindlay: |
#AlzChat content from Twitter.