#AlzChat Transcript
Healthcare social media transcript of the #AlzChat hashtag.
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See #AlzChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Hilgos Foundation @IRememberBetter It's time for #AlzChat Topic today: Tips to support & help dementia care partners @creativitycare @TommyTommytee18 @nursesKidONE @AlzJoyThruTears @SrCareCorner |
 | Chuck @OrangeChuck RT @creativitycare: Hi and Welcome to #AlzChat Happy Monday. Today's topic: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: Hi and Welcome to #AlzChat Happy Monday. Today's topic: |
| Hilgos Foundation @IRememberBetter @juliagapowell @creativitycare @TommyTommytee18 @nursesKidONE @AlzJoyThruTears @SrCareCorner Hi :) #AlzChat |
 | Mary Margaret @AlzJoyThruTears #alzchat GRATITUDE FOR AMAZING FRIENDS with no close connection to Alzheimer’s but know how important it is to reach out, include and distract me, in so many loving ways: lunch, laughter, coffee, laughter, movies, laughter, “thinking of you”texts, laughter! #LIFEGIVING 💜 |
 | Barbara Ivey @alzbarbie #AlzChat Hello to everyone #AlzChat - ting today! |
| Mary Margaret @AlzJoyThruTears RT @IRememberBetter: @juliagapowell @creativitycare @TommyTommytee18 @nursesKidONE @AlzJoyThruTears @SrCareCorner Hi :) #AlzChat |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #alzchat GRATITUDE FOR AMAZING FRIENDS with no close connection to Alzheimer’s but know how important it is to reach out, include and distract me, in so many loving ways: lunch, laughter, coffee, laughter, movies, laughter, “thinking of you”texts, laughter! #LIFEGIVING 💜 |
| Hilgos Foundation @IRememberBetter RT @ClarissaGiebel: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: Hi @alzbarbie and thanks for being here at #AlzChat for today's topic: |
| Hilgos Foundation @IRememberBetter Hi :-) #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Barbara Ivey @alzbarbie @creativitycare #AlzChat Thanks for expanding on the implications that come with the term 'care partner'. This is new to me. |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
 | Total Legacy Care @TotalLegacyCare Good Evening #AlzChat 👋🏼 |
| Mary Margaret @AlzJoyThruTears #Alzchat For our precious children and grandchildren who include us for big and small events, for “field trips”, for pet therapy hugs, for caring and sharing in their incredibly busy lives. 💜 #LIFEGIVING |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: Tip: |
 | loo blackburn @LooBlackburn RT @alzbarbie: #AlzChat Hello to everyone #AlzChat - ting today! |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #Alzchat For our precious children and grandchildren who include us for big and small events, for “field trips”, for pet therapy hugs, for caring and sharing in their incredibly busy lives. 💜 #LIFEGIVING |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Mary Margaret @AlzJoyThruTears #alzchat For the @alzassociation being a #LIFELINE throughput our journey of going on 10 years. 💜 |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #alzchat For the @alzassociation being a #LIFELINE throughput our journey of going on 10 years. 💜 |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Total Legacy Care @TotalLegacyCare RT @creativitycare: |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare #AlzChat Asking for help requires effort for everyone. In her book REINFORCEMENTS: How to Get People to Help you, Heidi Grant says that asking for help opens the possibility that that you will experience 5 kinds of social pain at the same time. |
| Total Legacy Care @TotalLegacyCare @creativitycare @IRememberBetter It is so important to remember that not only are care partners often reluctant to ask for help but knowing where to find help can also be a major hurdle! Helping with signposting and guidance or a point in the right direction can often be invaluable 😊 #AlzChat #Dementia |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare #AlzChat When you get past the pain of asking, great things await! |
| Mary Margaret @AlzJoyThruTears #alzchat For the gift of resilience. I cannot imagine this journey without it. For mindfulness strategies. For my FAITH, HOPE and LOVE for my LOVE. 💜 |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare #Alzchat “People are roughly twice as likely to want to help us as we think they are.” plus... “Helpers…tend to like the people whom they help MORE, not less, after helping them.” |
| Mary Margaret @AlzJoyThruTears FOR #ALZCHAT, every Monday! Incredible, caring, loving, compassionate, knowledgeable, treasured friends! 💜💜💜💜💜 |
 | Gloria's Loving Touch, Inc. @Glorias_Touch RT @creativitycare: Hi and Welcome to #AlzChat Happy Monday. Today's topic: |
| Total Legacy Care @TotalLegacyCare RT @alzbarbie: @juliagapowell @creativitycare #Alzchat “People are roughly twice as likely to want to help us as we think they are.” plus... “Helpers…tend to like the people whom they help MORE, not less, after helping them.” |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare #alzchat https://t.co/MZ11EN3CXs |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare #AlzChat https://t.co/LP3cfLu91T |
 | 2centscorner @2centscorner @creativitycare Yes. And there’s also the #caregiver where the care might not be mutually supported. Both #carepartner, #caregiver are in service to care/support however, roles are differentiated. #Alzchat |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: Tip: |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell @creativitycare #alzchat https://t.co/MZ11EN3CXs |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: FOR #ALZCHAT, every Monday! Incredible, caring, loving, compassionate, knowledgeable, treasured friends! 💜💜💜💜💜 |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell @creativitycare #Alzchat “People are roughly twice as likely to want to help us as we think they are.” plus... “Helpers…tend to like the people whom they help MORE, not less, after helping them.” |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: Tip: |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #alzchat For the gift of resilience. I cannot imagine this journey without it. For mindfulness strategies. For my FAITH, HOPE and LOVE for my LOVE. 💜 |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell @creativitycare #AlzChat When you get past the pain of asking, great things await! |
| Total Legacy Care @TotalLegacyCare @wendymo94921768 @creativitycare @IRememberBetter What a great idea! #AlzChat |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: @creativitycare @IRememberBetter It is so important to remember that not only are care partners often reluctant to ask for help but knowing where to find help can also be a major hurdle! Helping with signposting and guidance or a point in the right direction can often be invaluable 😊 #AlzChat #Dementia |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell @creativitycare #AlzChat Asking for help requires effort for everyone. In her book REINFORCEMENTS: @juliagapowell @creativitycare #AlzChat Asking for help requires effort for everyone. In her book REINFORCEMENTS: How to Get People to Help you, Heidi Grant says that asking for help opens the possibility that that you will experience 5 kinds of social pain at the same time. |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare #AlzChat Think I heard an interview w/ the author Heidi Grant last summer. I had long believed that one big thing that stood between my Dad (Mom's care partner) & me was that it took years before he'd ask me for help. I really wanted to understand why. |
 | Caroline @journeyofcareM @creativitycare @ThatVDOVault This topic is bringing back the early days when I was caring for my mother completely without any support. I had to take a long break as I was on the verge of a breakdown, or probably in it. I was in a dark place. Support is so vitally necessary. Two lives depend on it. #Alzchat |
| Barbara Ivey @alzbarbie @journeyofcareM @creativitycare @ThatVDOVault #Alzchat Absolutely right. Getting to the place where the care partner is ready to ask takes everyone a while. What got you to that point? |
| Hilgos Foundation @IRememberBetter RT @Twomey_A: |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @journeyofcareM @creativitycare @ThatVDOVault #Alzchat Absolutely right. Getting to the place where the care partner is ready to ask takes everyone a while. What got you to that point? |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Barbara Ivey @alzbarbie @juliagapowell #AlzChat Keep experimenting with ways to get good sleep.🛌 Sleep is critical to YOUR brain health & decision making. |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @creativitycare @ThatVDOVault This topic is bringing back the early days when I was caring for my mother completely without any support. I had to take a long break as I was on the verge of a breakdown, or probably in it. I was in a dark place. Support is so vitally necessary. Two lives depend on it. #Alzchat |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell @creativitycare #AlzChat Think I heard an interview w/ the author Heidi Grant last summer. I had long believed that one big thing that stood between my Dad (Mom's care partner) & me was that it took years before he'd ask me for help. I really wanted to understand why. |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell #AlzChat Keep experimenting with ways to get good sleep.🛌 Sleep is critical to YOUR brain health & decision making. |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @2centscorner: @creativitycare Yes. And there’s also the #caregiver where the care might not be mutually supported. Both #carepartner, #caregiver are in service to care/support however, roles are differentiated. #Alzchat |
| Barbara Ivey @alzbarbie @creativitycare @IRememberBetter #AlzChat I was so inspired to learn that people are roughly twice as likely to help as we think they are. It's something EVERY carer needs to know. (I'd bet the odds are even better when asking to improve life for a PLWD.) |
 | nursesKidONE @nursesKidONE RT @AlzJoyThruTears: #alzchat GRATITUDE FOR AMAZING FRIENDS with no close connection to Alzheimer’s but know how important it is to reach out, include and distract me, in so many loving ways: lunch, laughter, coffee, laughter, movies, laughter, “thinking of you”texts, laughter! #LIFEGIVING 💜 |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @creativitycare @IRememberBetter #AlzChat I was so inspired to learn that people are roughly twice as likely to help as we think they are. It's something EVERY carer needs to know. (I'd bet the odds are even better when asking to improve life for a PLWD.) |
| Caroline @journeyofcareM @creativitycare Getting support can be difficult here in rural Canada. Internet access can be unavailable, or so slow & also some ppl just aren't techno savvy. Cutbacks on social services has happened here, like everywhere & I worry there are carers needed help, but not getting it. #Alzchat |
| nursesKidONE @nursesKidONE RT @AlzJoyThruTears: #Alzchat For our precious children and grandchildren who include us for big and small events, for “field trips”, for pet therapy hugs, for caring and sharing in their incredibly busy lives. 💜 #LIFEGIVING |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @creativitycare Getting support can be difficult here in rural Canada. Internet access can be unavailable, or so slow & also some ppl just aren't techno savvy. Cutbacks on social services has happened here, like everywhere & I worry there are carers needed help, but not getting it. #Alzchat |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| 2centscorner @2centscorner Starting your #carepartner, #caregiving journey. 1. Know your personal limits and expectations (mental, physical, financial) 2. Seek support from family, friends, parishioners, state, federal, organizations, etc. #AlzChat |
| nursesKidONE @nursesKidONE RT @2centscorner: Starting your #carepartner, #caregiving journey. 1. Know your personal limits and expectations (mental, physical, financial) 2. Seek support from family, friends, parishioners, state, federal, organizations, etc. #AlzChat |
| Barbara Ivey @alzbarbie @wendymo94921768 @juliagapowell @creativitycare #Alzchat Can you share 1 or 2 reasons they feel they have no support? (I'm forever curious about improvement) |
| Barbara Ivey @alzbarbie @juliagapowell #alzchat You explain the situation well. Your Mom is blessed to have a daughter with a kind & generous heart. |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| 2centscorner @2centscorner 3. Create a care plan that not only supports the #caree, but also the #carepartner, #caregiver (remember, your in this together) #Alzchat |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Barbara Ivey @alzbarbie @Kelvinbridgesue @creativitycare @IRememberBetter #alzchat Beautiful! |
| Hilgos Foundation @IRememberBetter RT @2centscorner: 3. Create a care plan that not only supports the #caree, but also the #carepartner, #caregiver (remember, your in this together) #Alzchat |
| Gloria's Loving Touch, Inc. @Glorias_Touch @alzbarbie @juliagapowell This was my biggest issue! Exhaustion! #AlzChat |
 | Carol Hargreaves @carolhar57 RT @journeyofcareM: @creativitycare @ThatVDOVault This topic is bringing back the early days when I was caring for my mother completely without any support. I had to take a long break as I was on the verge of a breakdown, or probably in it. I was in a dark place. Support is so vitally necessary. Two lives depend on it. #Alzchat |
| Gloria's Loving Touch, Inc. @Glorias_Touch RT @AlzJoyThruTears: #alzchat GRATITUDE FOR AMAZING FRIENDS with no close connection to Alzheimer’s but know how important it is to reach out, include and distract me, in so many loving ways: lunch, laughter, coffee, laughter, movies, laughter, “thinking of you”texts, laughter! #LIFEGIVING 💜 |
| Hilgos Foundation @IRememberBetter RT @creativitycare: 5 x a night is a lot. Guessing you may already be onto this organisation: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| nursesKidONE @nursesKidONE It's important for care partner to identify when the Alzheimer's memory loss emphasis is not appropriate for their loved one. #PPA #alzchat |
| Barbara Ivey @alzbarbie @Glorias_Touch @juliagapowell #AlzChat I could look at Dad's face & know he had yet to sleep. When Mom started at the adult day program, I suggested he use the time to sleep. |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Barbara Ivey @alzbarbie RT @2centscorner: 3. Create a care plan that not only supports the #caree, but also the #carepartner, #caregiver (remember, your in this together) #Alzchat |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @Glorias_Touch @juliagapowell #AlzChat I could look at Dad's face & know he had yet to sleep. When Mom started at the adult day program, I suggested he use the time to sleep. |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: It's important for care partner to identify when the Alzheimer's memory loss emphasis is not appropriate for their loved one. #PPA #alzchat |
 | Outpatient App @OutpatientApp We would like to add - check out apps like #GetOutpatient that can help making simplify caregiving and add support from family and friends and help get much needed respite. #AlzChat https://t.co/BQcg7u8eLS |
| nursesKidONE @nursesKidONE RT @2centscorner: @creativitycare Yes. And there’s also the #caregiver where the care might not be mutually supported. Both #carepartner, #caregiver are in service to care/support however, roles are differentiated. #Alzchat |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare @IRememberBetter #alzchat Everyone needs sleep to cope & make good decisions. In my opinion, since you are making decisions for 2, your sleep MUST take priority. |
| Caroline @journeyofcareM @juliagapowell @alzbarbie You and your mum must be exhausted. I think I've mentioned before, but I used to have anxiety/sleep issues. Several months ago a nurse practitioner suggested trying Mirtazapine (I take 15 mg at night) & it has worked wonders for both ailments. Maybe the GP can help.#Alzchat |
| 2centscorner @2centscorner 4. Make a list of your “needs” and “wants” (yes, ‘wants,’ just because your serving a caring role doesn’t mean you don’t have ‘wants’). When someone or an organization ask how they can assist, refer to your list. #Alzchat |
| Outpatient App @OutpatientApp @creativitycare @IRememberBetter Let us know if you have any questions about #GetOutpatient and we will be happy to answer them. #AlzChat |
| Barbara Ivey @alzbarbie @juliagapowell @journeyofcareM @creativitycare @ThatVDOVault #AlzChat Hang in there. We are here for you! |
| nursesKidONE @nursesKidONE It's important to find health care professionals who consider the input from PLWD & care partner important to diagnosis & support.#alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @juliagapowell @creativitycare @IRememberBetter #alzchat Everyone needs sleep to cope & make good decisions. In my opinion, since you are making decisions for 2, your sleep MUST take priority. |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: It's important to find health care professionals who consider the input from PLWD & care partner important to diagnosis & support.#alzchat |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| nursesKidONE @nursesKidONE RT @2centscorner: 3. Create a care plan that not only supports the #caree, but also the #carepartner, #caregiver (remember, your in this together) #Alzchat |
| Hilgos Foundation @IRememberBetter RT @2centscorner: 4. Make a list of your “needs” and “wants” (yes, ‘wants,’ just because your serving a caring role doesn’t mean you don’t have ‘wants’). When someone or an organization ask how they can assist, refer to your list. #Alzchat |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @juliagapowell @alzbarbie You and your mum must be exhausted. I think I've mentioned before, but I used to have anxiety/sleep issues. Several months ago a nurse practitioner suggested trying Mirtazapine (I take 15 mg at night) & it has worked wonders for both ailments. Maybe the GP can help.#Alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter #AlzChat soon winding down for today. Thanks to all for joining / listening in. see you next Monday 3pmEST/8pmUK @creativitycare |
| Barbara Ivey @alzbarbie RT @2centscorner: 4. Make a list of your “needs” and “wants” (yes, ‘wants,’ just because your serving a caring role doesn’t mean you don’t have ‘wants’). When someone or an organization ask how they can assist, refer to your list. #Alzchat |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| Outpatient App @OutpatientApp @helenfindlay Thank you for the RT! We’re on a mission to make caring for everyone easier here at #GetOutpatient. #AlzChat You can check out more on our site and app: https://t.co/BQcg7u8eLS |
| nursesKidONE @nursesKidONE RT @2centscorner: 4. Make a list of your “needs” and “wants” (yes, ‘wants,’ just because your serving a caring role doesn’t mean you don’t have ‘wants’). When someone or an organization ask how they can assist, refer to your list. #Alzchat |
| 2centscorner @2centscorner 5. Gifts: for special occasions, birthdays, Mother’s/ Father’s Day, etc. . Massage . Pay for 2-8hrs of respid break .Tickets to theater . Dinner . Arrange for a beach day . Cook dinner for the week Etc. #Alzchat |
| Barbara Ivey @alzbarbie @2centscorner #Alzchat ...and forgive yourself each time you fail to follow your plan. Care can get intense. As with everything in life, errors happen. Forgive & move on. |
| Barbara Ivey @alzbarbie @juliagapowell @creativitycare @IRememberBetter #Alzchat Maybe go ahead & make an appointment for next week. You can cancel if things improve. |
| Hilgos Foundation @IRememberBetter RT @2centscorner: 5. Gifts: 5. Gifts: for special occasions, birthdays, Mother’s/ Father’s Day, etc. . Massage . Pay for 2-8hrs of respid break .Tickets to theater . Dinner . Arrange for a beach day . Cook dinner for the week Etc. #Alzchat |
| Hilgos Foundation @IRememberBetter RT @alzbarbie: @2centscorner #Alzchat ...and forgive yourself each time you fail to follow your plan. Care can get intense. As with everything in life, errors happen. Forgive & move on. |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Barbara Ivey @alzbarbie RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @creativitycare @ThatVDOVault This topic is bringing back the early days when I was caring for my mother completely without any support. I had to take a long break as I was on the verge of a breakdown, or probably in it. I was in a dark place. Support is so vitally necessary. Two lives depend on it. #Alzchat |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @creativitycare Getting support can be difficult here in rural Canada. Internet access can be unavailable, or so slow & also some ppl just aren't techno savvy. Cutbacks on social services has happened here, like everywhere & I worry there are carers needed help, but not getting it. #Alzchat |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| Barbara Ivey @alzbarbie RT @creativitycare: |
| Barbara Ivey @alzbarbie RT @creativitycare: |
 | 4 you I will @Tiffanys_Blog @alzbarbie @juliagapowell @creativitycare @IRememberBetter I was just about to say this. Sometimes it does take a medication review and change to make things a bit better for all involved. #AlzChat |
 | Agnes Houston MBE @agnes_houston RT @juliagapowell: Tip: |
#AlzChat content from Twitter.