#AlzChat Transcript
Healthcare social media transcript of the #AlzChat hashtag.
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See #AlzChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Hilgos Foundation @IRememberBetter It's time for #AlzChat Topic today: Dementia care tips to support identity & independence @creativitycare @TommyTommytee18 @nursesKidONE @AlzJoyThruTears @SrCareCorner |
 | nursesKidONE @nursesKidONE RT @IRememberBetter: It's time for #AlzChat Topic today: It's time for #AlzChat Topic today: Dementia care tips to support identity & independence @creativitycare @TommyTommytee18 @nursesKidONE @AlzJoyThruTears @SrCareCorner |
| nursesKidONE @nursesKidONE RT @creativitycare: Hi and welcome to #AlzChat. Today's topic: |
 | Total Legacy Care @TotalLegacyCare Good Evening 👋🏼 #AlzChat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
 | Dr Katie Paddock-Hall @KatiePaddockPhD @Dementiawho Absolutely. It can be hard not to just crack on and perform a task yourself (easier, quicker, safer), but maintaining that small amount of independence can support their identity #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @Dementiawho Absolutely. It can be hard not to just crack on and perform a task yourself (easier, quicker, safer), but maintaining that small amount of independence can support their identity #alzchat |
| Hilgos Foundation @IRememberBetter #alzchat |
| Hilgos Foundation @IRememberBetter #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter Happy Monday @sstokes5 @KatiePaddockPhD @Dementiawho @nursesKidONE #alzchat @creativitycare |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare Memories can serve as anchors to identities. My study found that ensuring an older person or care home resident has access to important anchors can support a sense of identity #Alzchat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner I’ll try to join in this eve. Here’s my paper on the subject of identity in care homes. Independence is a major theme. Small changes make a big difference! https://t.co/jRFnhQJt4G… #AlzChat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @AlzChat @RobynDowlen @mathews_orla @am_chilcote @TheSingingOsteo @journeyofcareM @weejenhen @annedegruchy @Leland_Beck @DementiaView @HCAssistance @jajickulous Hi! I’ll try to join in. Here’s my paper on the subject of identity in care homes. Independence is a major theme. Small changes make a big difference! https://t.co/0N9AlMzVn0 #AlzChat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare Memories can serve as anchors to identities. My study found that ensuring an older person or care home resident has access to important anchors can support a sense of identity #Alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Total Legacy Care @TotalLegacyCare RT @KatiePaddockPhD: @creativitycare Memories can serve as anchors to identities. My study found that ensuring an older person or care home resident has access to important anchors can support a sense of identity #Alzchat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare The balance between the caring role and supporting an identity can often be at odds. Balance can be difficult. But important to remember that even small changes make a big difference #alzchat |
| nursesKidONE @nursesKidONE RT @KatiePaddockPhD: @Dementiawho Absolutely. It can be hard not to just crack on and perform a task yourself (easier, quicker, safer), but maintaining that small amount of independence can support their identity #alzchat |
 | 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR Lurking in #AlzChat and listening |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| Dr Katie Paddock-Hall @KatiePaddockPhD @Dementiawho Can be especially difficult is someone has always had a strong sense of independence. It can be quite distressing to realise you’re not trusted to make yourself a coffee or nip to the shop alone etc. #alzchat |
| nursesKidONE @nursesKidONE RT @KatiePaddockPhD: @creativitycare Memories can serve as anchors to identities. My study found that ensuring an older person or care home resident has access to important anchors can support a sense of identity #Alzchat |
| Total Legacy Care @TotalLegacyCare RT @KatiePaddockPhD: @creativitycare The balance between the caring role and supporting an identity can often be at odds. Balance can be difficult. But important to remember that even small changes make a big difference #alzchat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare The balance between the caring role and supporting an identity can often be at odds. Balance can be difficult. But important to remember that even small changes make a big difference #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| Total Legacy Care @TotalLegacyCare Giving a person time and allowing them the time to make their own decisions and support them, rather than doing what you think is best to speed things along, can go such a long way #PatienceIsAVirtue #AlzChat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare A feeling of connection with a group is important. If in a care home, it goes beyond who you happen to be around. It isn’t enough to forge a meaningful connection and support identity #alzchat |
 | Eva Landeo @eva_landeo RT @TotalLegacyCare: Giving a person time and allowing them the time to make their own decisions and support them, rather than doing what you think is best to speed things along, can go such a long way #PatienceIsAVirtue #AlzChat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @TotalLegacyCare Agree. Everyone makes mistakes or poor decisions. Isn’t always down to a condition. It’s human nature! #alzchat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare A feeling of connection with a group is important. If in a care home, it goes beyond who you happen to be around. It isn’t enough to forge a meaningful connection and support identity #alzchat |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: Giving a person time and allowing them the time to make their own decisions and support them, rather than doing what you think is best to speed things along, can go such a long way #PatienceIsAVirtue #AlzChat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @TotalLegacyCare Agree. Everyone makes mistakes or poor decisions. Isn’t always down to a condition. It’s human nature! #alzchat |
| nursesKidONE @nursesKidONE RT @KatiePaddockPhD: @creativitycare A feeling of connection with a group is important. If in a care home, it goes beyond who you happen to be around. It isn’t enough to forge a meaningful connection and support identity #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @Dementiawho Can be especially difficult is someone has always had a strong sense of independence. It can be quite distressing to realise you’re not trusted to make yourself a coffee or nip to the shop alone etc. #alzchat |
| Hilgos Foundation @IRememberBetter #alzchat |
| Total Legacy Care @TotalLegacyCare RT @KatiePaddockPhD: @TotalLegacyCare Agree. Everyone makes mistakes or poor decisions. Isn’t always down to a condition. It’s human nature! #alzchat |
| Total Legacy Care @TotalLegacyCare So true💛 #AlzChat |
| Total Legacy Care @TotalLegacyCare @Dementiawho How sad😔 And to what end, what does it achieve other than causing upset for something that is out of yours and your mum’s control 😔 #AlzChat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @Dementiawho From personal experience I can see family get frustrated/upset over seemingly minor things. But they can easily become major to that family member & signify to them the increasing severity of the dementia. “How could you forget x?!” = “Oh no are you really that bad?” #alzchat |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @TotalLegacyCare: Giving a person time and allowing them the time to make their own decisions and support them, rather than doing what you think is best to speed things along, can go such a long way #PatienceIsAVirtue #AlzChat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare Complicated further by, for some, the knowledge that you’re ill + advancing dementia, which makes it increasingly difficult to logistically and reasonably appreciate a changeable situation #alzchat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare @helenfindlay Davies and Nolan (and others) show the importance of involving family and the PLWD in decisions around all aspect of care/the move to long-term care #alzchat |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare The Open Eye Gallery at Liverpool have previously hosted 2 works related to aging and identity/community. “As and When”, and “Culture Shifts”. More info below #alzchat https://t.co/aJVjStQfDV https://t.co/RlyH5ZO0ef |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare The Open Eye Gallery at Liverpool have previously hosted 2 works related to aging and identity/community. “As and When”, and “Culture Shifts”. More info below #alzchat https://t.co/aJVjStQfDV https://t.co/RlyH5ZO0ef |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: @Dementiawho How sad😔 And to what end, what does it achieve other than causing upset for something that is out of yours and your mum’s control 😔 #AlzChat |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: So true💛 #AlzChat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare Complicated further by, for some, the knowledge that you’re ill + advancing dementia, which makes it increasingly difficult to logistically and reasonably appreciate a changeable situation #alzchat |
 | Sword⚔️&Torch🔦of God🤺🛡️📖🩺🏥 @thompsonb2569 RT @helenfindlay: |
| Sword⚔️&Torch🔦of God🤺🛡️📖🩺🏥 @thompsonb2569 RT @creativitycare: |
| Sword⚔️&Torch🔦of God🤺🛡️📖🩺🏥 @thompsonb2569 RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @Dementiawho From personal experience I can see family get frustrated/upset over seemingly minor things. But they can easily become major to that family member & signify to them the increasing severity of the dementia. “How could you forget x?!” = “Oh no are you really that bad?” #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare @helenfindlay Davies and Nolan (and others) show the importance of involving family and the PLWD in decisions around all aspect of care/the move to long-term care #alzchat |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Dr Katie Paddock-Hall @KatiePaddockPhD I quite like how some care homes have bright and interesting pieces of information about each resident on their bedroom doors eg “I’m x and I enjoy y”, but identity work is more than summarising snippets of info. It’s about using that info to actively support identity #alzchat |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Total Legacy Care @TotalLegacyCare It definitely makes a difference 😊 #AlzChat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: I quite like how some care homes have bright and interesting pieces of information about each resident on their bedroom doors eg “I’m x and I enjoy y”, but identity work is more than summarising snippets of info. It’s about using that info to actively support identity #alzchat |
 | Karrie Marshall @KarrieMarshall Just working with some organisations at the moment... yes, the unravelling of good work can be quite extensive if lots of staff changes. One hopes that we will soon reach a point where new staff already have more person-centred awareness, so less of an issue (eventually) #AlzChat |
| nursesKidONE @nursesKidONE RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @KarrieMarshall: Just working with some organisations at the moment... yes, the unravelling of good work can be quite extensive if lots of staff changes. One hopes that we will soon reach a point where new staff already have more person-centred awareness, so less of an issue (eventually) #AlzChat |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: It definitely makes a difference 😊 #AlzChat |
| Dr Katie Paddock-Hall @KatiePaddockPhD This can be complicated when you have lots of residents, and an insufficient staff:resident ratio #alzchat |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
 | Caroline Bartle @3Uknz RT @creativitycare: |
| Total Legacy Care @TotalLegacyCare Wow! Sounds amazing! I bet it was enjoyable to put it together too 🧡 #AlzChat #Memories |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter #alzchat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: This can be complicated when you have lots of residents, and an insufficient staff:resident ratio #alzchat |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: Wow! Sounds amazing! I bet it was enjoyable to put it together too 🧡 #AlzChat #Memories |
| Caroline Bartle @3Uknz @creativitycare The way we treat people and ‘position’ them has a powerful cumulative affect #Alzchat think sometimes we can do more harm than good https://t.co/pkyZxmce6F |
| Caroline Bartle @3Uknz RT @creativitycare: |
| Total Legacy Care @TotalLegacyCare How lovely! 🧡 #AlzChat |
| nursesKidONE @nursesKidONE Agree that it is very tough to balance. Supporting someone to maintain identity & independence takes more of a care partner’s time, more patience, and more careful thought & planning. And sometimes dealing with criticism from others. #AlzChat |
| nursesKidONE @nursesKidONE RT @KatiePaddockPhD: @creativitycare The balance between the caring role and supporting an identity can often be at odds. Balance can be difficult. But important to remember that even small changes make a big difference #alzchat |
| Dr Katie Paddock-Hall @KatiePaddockPhD Must dash now. Great discussion! - lots of ways identity can be helped and harmed. Further complicated by the move to long-term care, but certainly not insurmountable. One final 🔌 for my PhD and paper!: https://t.co/0N9AlMRwey #alzchat |
| Dr Katie Paddock-Hall @KatiePaddockPhD @nursesKidONE Yes. Can lead to disagreements between family/carers as to what’s “worth” the effort and what isn’t #Alzchat |
| Caroline Bartle @3Uknz @creativitycare Identity is part of supporting independence but it’s so much more. I’ve been learning today about self harm in older adults and how much it’s linked to loosing control. I’m still upset by the stats that I have been reading about today - it’s so prevalent yet preventable #AlzChat https://t.co/lbAyKBbon4 |
| Dr Katie Paddock-Hall @KatiePaddockPhD @creativitycare Yes. Allowing for changeable personalities (we are all allowed a stroppy day!) as well as personalities that might not gel with your own #alzchat |
| nursesKidONE @nursesKidONE A care partner also has to be prepared to advocate to maintain identity & independence of PLWD when dealing w/ healthcare & social care professionals, unlike w/ heart patients, who are encouraged to be independent. #AlzChat |
| Hilgos Foundation @IRememberBetter #AlzChat soon winding down for today. Thanks to all for joining / listening in. see you next Monday 3pmEST/8pmUK @creativitycare |
| Karrie Marshall @KarrieMarshall yes objectification & oppression can happen unwittingly, e.g. not giving ppl credit for making choices or having opinions; assuming ppl need extra protection etc. There is such an interplay between identity & behaviours, attitudes of ppl around us #AlzChat |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @KarrieMarshall: yes objectification & oppression can happen unwittingly, e.g. not giving ppl credit for making choices or having opinions; assuming ppl need extra protection etc. There is such an interplay between identity & behaviours, attitudes of ppl around us #AlzChat |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: A care partner also has to be prepared to advocate to maintain identity & independence of PLWD when dealing w/ healthcare & social care professionals, unlike w/ heart patients, who are encouraged to be independent. #AlzChat |
| Hilgos Foundation @IRememberBetter RT @KatiePaddockPhD: @creativitycare Yes. Allowing for changeable personalities (we are all allowed a stroppy day!) as well as personalities that might not gel with your own #alzchat |
| Hilgos Foundation @IRememberBetter RT @3SpiritUKNZ: @creativitycare Identity is part of supporting independence but it’s so much more. I’ve been learning today about self harm in older adults and how much it’s linked to loosing control. I’m still upset by the stats that I have been reading about today - it’s so prevalent yet preventable #AlzChat https://t.co/lbAyKBbon4 |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: How lovely! 🧡 #AlzChat |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @3SpiritUKNZ: @creativitycare The way we treat people and ‘position’ them has a powerful cumulative affect #Alzchat think sometimes we can do more harm than good https://t.co/pkyZxmce6F |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @KatiePaddockPhD: @nursesKidONE Yes. Can lead to disagreements between family/carers as to what’s “worth” the effort and what isn’t #Alzchat |
#AlzChat content from Twitter.