#AlzChat Transcript
Healthcare social media transcript of the #AlzChat hashtag.
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See #AlzChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Hilgos Foundation @IRememberBetter It's time for #AlzChat Topic today: Tips to support & help dementia caregivers @creativitycare @TommyTommytee18 @ZkidooKreativ @nursesKidONE @AlzJoyThruTears @derekfisher2907 @SrCareCorner Also be sure to check out tips from #CarersWeek |
 | ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @AlzChat @synantisch @goodsam @fam6 @nchadborn @Glorias_Touch Come on in #alzchat the water is warm today.. natrice, still feeling a heat wave but entering the chat from warm northern Ontario, retired caregiver :) hi all! First seat ๐บ taken !! |
| Hilgos Foundation @IRememberBetter RT @creativitycare: Hi and welcome to #AlzChat following a busy caregivers week (UK) today's topic is: |
 | nursesKidONE @nursesKidONE RT @IRememberBetter: It's time for #AlzChat Topic today: It's time for #AlzChat Topic today: Tips to support & help dementia caregivers @creativitycare @TommyTommytee18 @ZkidooKreativ @nursesKidONE @AlzJoyThruTears @derekfisher2907 @SrCareCorner Also be sure to check out tips from #CarersWeek |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| nursesKidONE @nursesKidONE RT @creativitycare: Hi and welcome to #AlzChat following a busy caregivers week (UK) today's topic is: |
| nursesKidONE @nursesKidONE Hello everyone! #AlzChat |
| Hilgos Foundation @IRememberBetter @NatriceR Hi :-) #alzchat @creativitycare |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @creativitycare @willow_lodge @bikerwise @IRememberBetter Feel better @willow_lodge - see u next time #alzchat https://t.co/2G0Lb3Mdv4 |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @TommyTommytee18: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @TommyTommytee18: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @TommyTommytee18 Hi @TommyTommytee18 lots of great tips already :) #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
 | Bikerwise @bikerwise #AlzChat My first tip is to learn how to use YouTube! You are going to need to do all sorts of things you never imagined without the help you thought you would have. YouTube has a video on it! |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
 | TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ Hello! I care for my mom w ALZ #AlzChat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @carolfish32 @WendyPMitchell Totally agree! You are welcome to stop by #alzchat happening now if you can - talking about everything to do with #caregiving #dementia etc |
 | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Tuning into #alzchat for the first time! Am hosting a related online event during #AAIC18 next month. Already seeing a familiar face! ๐ @NatriceR! https://t.co/LKpTFe3X0v |
| Hilgos Foundation @IRememberBetter @nursesKidONE Hi :) #alzchat @creativitycare |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat My first tip is to learn how to use YouTube! You are going to need to do all sorts of things you never imagined without the help you thought you would have. YouTube has a video on it! |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @wareFLO: Tuning into #alzchat for the first time! Am hosting a related online event during #AAIC18 next month. Already seeing a familiar face! ๐ @NatriceR! https://t.co/LKpTFe3X0v |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @wareFLO Welcome Chuck! #alzchat |
| Hilgos Foundation @IRememberBetter @senior_moment_ Happy Monday :) #alzchat @creativitycare |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Thank you Natrice! #alzchat https://t.co/oAxiatbwdt |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR Such nice people hang around here :) #alzchat https://t.co/tEdiOTZ5WE |
| Bikerwise @bikerwise #AlzChat My second tip is to declutter as soon as you can. The caregiver needs to not be cleaning clutter and it needs sorting while there is still some memory of what it is/was. |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Can already tell! #alzchat https://t.co/EsM5T3VGeH |
 | billshankly๐ @williamshankly RT @TommyTommytee18: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @SrCareCorner Hi Kathy :) so far so good ๐ #Alzchat |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ #Caregiving Tip: Besides practicing patience with your caree, #selfcare is invaluable. And not selfish! #AlzChat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @wareFLO: Can already tell! #alzchat https://t.co/EsM5T3VGeH |
| billshankly๐ @williamshankly RT @TommyTommytee18: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @butalzis4oldppl: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @senior_moment_: #Caregiving Tip: #Caregiving Tip: Besides practicing patience with your caree, #selfcare is invaluable. And not selfish! #AlzChat |
| Hilgos Foundation @IRememberBetter #alzchat https://t.co/6dGn9kCALj |
| Bikerwise @bikerwise #AlzChat My third tip is remember no-one is perfect. We all get tired. We all forget. We all want to scream occasionally. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @senior_moment_ So true but hard to fight the guilt of self caring #alzchat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @IRememberBetter: #alzchat https://t.co/6dGn9kCALj |
| Hilgos Foundation @IRememberBetter #alzchat https://t.co/0kzqteH4Xj |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat My third tip is remember no-one is perfect. We all get tired. We all forget. We all want to scream occasionally. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @butalzis4oldppl: |
| Hilgos Foundation @IRememberBetter RT @senior_moment_: #Caregiving Tip: #Caregiving Tip: Besides practicing patience with your caree, #selfcare is invaluable. And not selfish! #AlzChat |
| nursesKidONE @nursesKidONE Actually, my father & 3 of my 4 grandparents had long periods of illnesses when I was a child. So, having observed my mother and my aunts care for their parents (with FT jobs, too), I anticipated that caring for my older family members would be part of my life, too. #AlzChat https://t.co/QlKppo519i |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat My second tip is to declutter as soon as you can. The caregiver needs to not be cleaning clutter and it needs sorting while there is still some memory of what it is/was. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: #AlzChat My second tip is to declutter as soon as you can. The caregiver needs to not be cleaning clutter and it needs sorting while there is still some memory of what it is/was. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @bikerwise Thatโs a great tip! #alzchat |
| Bikerwise @bikerwise @derekfisher2907 #AlzChat But sometimes there are no other close family. Remember close friends can be as good though. Sometimes better. |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ Guilt can be a huge stress on #carers. We can't rid ourselves entirely, but when it hits, be aware that feelings aren't always facts #AlzChat |
| Hilgos Foundation @IRememberBetter RT @NatriceR: @carolfish32 @WendyPMitchell Totally agree! You are welcome to stop by #alzchat happening now if you can - talking about everything to do with #caregiving #dementia etc |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @SrCareCorner Coffee with a friend who caregives, a walk around the block enables venting and getting support #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Bikerwise @bikerwise #AlzChat Totally agree with you Derek. Even just a coffee and watch the world go by. Good for both. https://t.co/ehqRSNM8kZ |
| Hilgos Foundation @IRememberBetter #alzchat https://t.co/dVidYtBqq3 |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @SrCareCorner Hello Kathy - we keep meeting like this... I forget how long but itโs years. Still learning and glad to share with others #AlzChat |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat Totally agree with you Derek. Even just a coffee and watch the world go by. Good for both. https://t.co/ehqRSNM8kZ |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: Indeed! RT @NatriceR: |
| nursesKidONE @nursesKidONE I think it's even more disheartening when the health care providers & caseworkers are not sources of helpful information & are not interested in your input as a care partner or caregiver. #AlzChat https://t.co/1kaYN5vBay |
| Hilgos Foundation @IRememberBetter RT @bikerwise: @derekfisher2907 #AlzChat But sometimes there are no other close family. Remember close friends can be as good though. Sometimes better. |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: Actually, my father & 3 of my 4 grandparents had long periods of illnesses when I was a child. So, having observed my mother and my aunts care for their parents (with FT jobs, too), I anticipated that caring for my older family members would be part of my life, too. #AlzChat https://t.co/QlKppo519i |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: I always learn something or meet someone new -- or friends for years like you!! RT @NatriceR: |
| nursesKidONE @nursesKidONE RT @bikerwise: #AlzChat My first tip is to learn how to use YouTube! You are going to need to do all sorts of things you never imagined without the help you thought you would have. YouTube has a video on it! |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @SrCareCorner โค๏ธโค๏ธ๐ค #alzchat |
| Bikerwise @bikerwise #AlzChat Would also be an opportunity to create an annotated memory box. https://t.co/oyfPC8Xqo8 |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @IRememberBetter: #alzchat https://t.co/0kzqteH4Xj |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: #AlzChat My third tip is remember no-one is perfect. We all get tired. We all forget. We all want to scream occasionally. |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Donโt mind if I do! (tipping my cowboy hat back, leaning on the fence post) #AAIC18 is upcoming Alzheimerโs conf in Chicago. #SocialVR is shared #VirtualReality space (via @AltspaceVR) best experienced in #VR headset like #OculusGo but non VR options too #alzchat @IRememberBetter https://t.co/RWoqwTT8ym |
| Hilgos Foundation @IRememberBetter #alzchat https://t.co/zsRc5kO1pP |
| Hilgos Foundation @IRememberBetter #alzchat https://t.co/FnzCL6wpmg |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: RT @goodsam: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @IJCCjournal New @OECD report describes policies to help countries improve diagnosis, strengthen access to care services, improve the quality of care, and support families and carers of people living with dementia: https://t.co/8IBdakrgNQ via @TobyABGreen #AlzChat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
 | Ashley Fox RPN @AshleyFoxRPN #alzchat Tips for caregivers definitely includes an open ear as I hear from caregivers on @Huddol . Each person is so individual in their needs and that includes caregivers :) |
 | Gloria's Loving Touch, Inc. @Glorias_Touch RT @creativitycare: Hi and welcome to #AlzChat following a busy caregivers week (UK) today's topic is: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @nursesKidONE: I think it's even more disheartening when the health care providers & caseworkers are not sources of helpful information & are not interested in your input as a care partner or caregiver. #AlzChat https://t.co/1kaYN5vBay |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ #Caregivingtip 3: "I can do anything but I can't do everything." For me, recognizing when it was time to move my mom to a carehome was a hard reality to accept but taking the action before it was too late saved both of us #AlzChat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: RT @goodsam: |
 | Mary Margaret @AlzJoyThruTears #AlzChat I have just signed up for the Mindfulness-Based Dementia Care Program at the Center for Memory and Aging @_HealthPartners, Regions Hospital in St Paul. Eight weeks offering two hours per week, ending with a full day retreat. #IAMREADY! |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: Informal caregivers give great support too! Yes! RT @bikerwise: |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #AlzChat I have just signed up for the Mindfulness-Based Dementia Care Program at the Center for Memory and Aging @_HealthPartners, Regions Hospital in St Paul. Eight weeks offering two hours per week, ending with a full day retreat. #IAMREADY! |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: MT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @senior_moment_: #Caregivingtip 3: #Caregivingtip 3: "I can do anything but I can't do everything." For me, recognizing when it was time to move my mom to a carehome was a hard reality to accept but taking the action before it was too late saved both of us #AlzChat |
| Hilgos Foundation @IRememberBetter RT @AshleyFox_RAH: #alzchat Tips for caregivers definitely includes an open ear as I hear from caregivers on @Huddol . Each person is so individual in their needs and that includes caregivers :) |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @LynnGamble20 @SrCareCorner The best support is even an hour break.... it feels like you can breathe, and not think about anyone except you... who deserves caregiving as much as the person you caregive for #alzchat |
| nursesKidONE @nursesKidONE I agree, but one should be aware of the differences among dementias & symptoms in PWD. Your situation may also differ in crucial ways, as mine seemed to. Important to seek support that helps w/ the particular issues of your situation, including appropriate diagnosis. #AlzChat https://t.co/BxZHQ3nfRf |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @LynnGamble20: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: #AlzChat Would also be an opportunity to create an annotated memory box. https://t.co/oyfPC8Xqo8 |
| nursesKidONE @nursesKidONE RT @bikerwise: #AlzChat My second tip is to declutter as soon as you can. The caregiver needs to not be cleaning clutter and it needs sorting while there is still some memory of what it is/was. |
| Hilgos Foundation @IRememberBetter #AlzChat https://t.co/IxXQQxQLrr |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ #Caregivingtip 4: Establishing a routine for your caree and yourself is vital. It may not always go according to plan and even that is a good lesson in learning to be flexible and roll with the endless changes #dementia brings us #AlzChat |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: RT @senior_moment_: #Caregivingtip 3: |
| Hilgos Foundation @IRememberBetter RT @senior_moment_: #Caregivingtip 4: #Caregivingtip 4: Establishing a routine for your caree and yourself is vital. It may not always go according to plan and even that is a good lesson in learning to be flexible and roll with the endless changes #dementia brings us #AlzChat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: RT @senior_moment_: #Caregivingtip 3: |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Related: I'm about to digitize 10 cans of 60-year-old eight-millimeter movie film. I'm looking forward to seeing my parents in their 20s! (Not so much two-year-old me... But most of all our legendary family #cockerspaniel: Pepper) #alzchat https://t.co/qeyupbLbjq |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @senior_moment_: #Caregivingtip 4: #Caregivingtip 4: Establishing a routine for your caree and yourself is vital. It may not always go according to plan and even that is a good lesson in learning to be flexible and roll with the endless changes #dementia brings us #AlzChat |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: I agree, but one should be aware of the differences among dementias & symptoms in PWD. Your situation may also differ in crucial ways, as mine seemed to. Important to seek support that helps w/ the particular issues of your situation, including appropriate diagnosis. #AlzChat https://t.co/BxZHQ3nfRf |
| Hilgos Foundation @IRememberBetter RT @NatriceR: @LynnGamble20 @SrCareCorner The best support is even an hour break.... it feels like you can breathe, and not think about anyone except you... who deserves caregiving as much as the person you caregive for #alzchat |
 | Dr. Janelle Christensen @JanelleAnthro RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: Invaluable lesson!!! RT @creativitycare: |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ I often did this during the 4 years of caring for mom in her home. I'd tell her I was going up to take a nap, and sometimes just read a novel to get "away" #alzchat https://t.co/9rgXC63qnr |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Bikerwise @bikerwise #AlzChat Tip 4 would be to accept not all brilliant ideas will work. It is nothing personal. Got lots of jigsaws done of husband on various racing bikes. Couldn't do jigsaws. But the new tap in the cloakroom works a treat (no more floods). |
| Hilgos Foundation @IRememberBetter RT @senior_moment_: I often did this during the 4 years of caring for mom in her home. I'd tell her I was going up to take a nap, and sometimes just read a novel to get "away" #alzchat https://t.co/9rgXC63qnr |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @LynnGamble20: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @senior_moment_: I often did this during the 4 years of caring for mom in her home. I'd tell her I was going up to take a nap, and sometimes just read a novel to get "away" #alzchat https://t.co/9rgXC63qnr |
| nursesKidONE @nursesKidONE I would add, because sometimes people are not into the latest technology: get a smartphone with a good data plan, so you can use it at the hospital, in doctors' offices, and en route, to look up information ( & to help stay connected with support). #AlzChat https://t.co/YH99hihflw |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: I would add, because sometimes people are not into the latest technology: I would add, because sometimes people are not into the latest technology: get a smartphone with a good data plan, so you can use it at the hospital, in doctors' offices, and en route, to look up information ( & to help stay connected with support). #AlzChat https://t.co/YH99hihflw |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat Tip 4 would be to accept not all brilliant ideas will work. It is nothing personal. Got lots of jigsaws done of husband on various racing bikes. Couldn't do jigsaws. But the new tap in the cloakroom works a treat (no more floods). |
| Bikerwise @bikerwise #AlzChat Amazing how even an hour can make a difference but it does. Nice uninterrupted shower. Chapter in a book. Letter to a friend. https://t.co/nSZCPu5Z0J |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat Amazing how even an hour can make a difference but it does. Nice uninterrupted shower. Chapter in a book. Letter to a friend. https://t.co/nSZCPu5Z0J |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: #AlzChat Tip 4 would be to accept not all brilliant ideas will work. It is nothing personal. Got lots of jigsaws done of husband on various racing bikes. Couldn't do jigsaws. But the new tap in the cloakroom works a treat (no more floods). |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: #AlzChat Amazing how even an hour can make a difference but it does. Nice uninterrupted shower. Chapter in a book. Letter to a friend. https://t.co/nSZCPu5Z0J |
 | the DAWN Method @theDAWNmethod RT @SrCareCorner: RT @senior_moment_: #Caregivingtip 3: |
| nursesKidONE @nursesKidONE But if you don't have time to do this, consider removing clutter (to be sorted later) by getting a portable storage unit brought to your home, if feasible. #AlzChat https://t.co/fLhfo8CvJI |
| Bikerwise @bikerwise #AlzChat I find the stress moments are when the routine is destroyed by the progress of the condition and it all feels too much till new routine established. https://t.co/jV1ojx5Vcc |
| nursesKidONE @nursesKidONE RT @senior_moment_: #Caregiving Tip: #Caregiving Tip: Besides practicing patience with your caree, #selfcare is invaluable. And not selfish! #AlzChat |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: But if you don't have time to do this, consider removing clutter (to be sorted later) by getting a portable storage unit brought to your home, if feasible. #AlzChat https://t.co/fLhfo8CvJI |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @bikerwise And donโt forget to introduce your fellow friends/caregivers to #AlzChat and the wonderful virtual group available to all! Support, a few minutes to share, gain insight, wisdom, and phone a friend for later (or FaceTime ) ๐ |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @nursesKidONE: But if you don't have time to do this, consider removing clutter (to be sorted later) by getting a portable storage unit brought to your home, if feasible. #AlzChat https://t.co/fLhfo8CvJI |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: #AlzChat I find the stress moments are when the routine is destroyed by the progress of the condition and it all feels too much till new routine established. https://t.co/jV1ojx5Vcc |
| Hilgos Foundation @IRememberBetter RT @bikerwise: #AlzChat I find the stress moments are when the routine is destroyed by the progress of the condition and it all feels too much till new routine established. https://t.co/jV1ojx5Vcc |
| Hilgos Foundation @IRememberBetter RT @NatriceR: @bikerwise And donโt forget to introduce your fellow friends/caregivers to #AlzChat and the wonderful virtual group available to all! Support, a few minutes to share, gain insight, wisdom, and phone a friend for later (or FaceTime ) ๐ |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| nursesKidONE @nursesKidONE But, in my experience, you may have to educate health providers & social care professionals about those rights. It's useful to be able to challenge/question authority in a respectful & knowledgeable manner. #AlzChat https://t.co/hwKPsZ5dyC |
| nursesKidONE @nursesKidONE RT @butalzis4oldppl: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @howardgordon54 Good evening Howard I agree it can be challenging to find those connections.. not always is it advertised locally but if possible connectwith #Alzheimer support available cc @AlzheimerTP etc #AlzChat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @TommyTommytee18: |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @creativitycare @IRememberBetter โ๏ธMany folks I meet in #socialVR are "shut-in" for one reason or another (bedridden, social anxiety, etc) including they cannot leave someone w/#dementia alone. My post: I Spent Nine Hours In Social Virtual Reality & It Was Weird But Wonderful! https://t.co/HFyzxFUHVh #AlzChat https://t.co/GJeQw3qryw |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @wareFLO: @creativitycare @IRememberBetter โ๏ธMany folks I meet in #socialVR are "shut-in" for one reason or another (bedridden, social anxiety, etc) including they cannot leave someone w/#dementia alone. My post: I Spent Nine Hours In Social Virtual Reality & It Was Weird But Wonderful! https://t.co/HFyzxFUHVh #AlzChat https://t.co/GJeQw3qryw |
| Mary Margaret @AlzJoyThruTears #AlzChat @DrLaPook expressed his concern for caregivers, on 60Minutes interviews, over 10 years, w/a woman LWA & her caregiver husband. Caregivers, early in the disease, feel rather invincible, however, physical and emotional challenges, eventually, take their toll.๐ |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @wareFLO @creativitycare @IRememberBetter Glad you joined the #alzchat group today - seems you have great insight to share ;) |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE Museum arts programs, music concerts in parks, tea at the library's cafe are some examples of activities. Also continuing your loved one's volunteer activities with them, modified as needed. #AlzChat https://t.co/dIk3LJbXXW |
| nursesKidONE @nursesKidONE RT @bikerwise: #AlzChat My third tip is remember no-one is perfect. We all get tired. We all forget. We all want to scream occasionally. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @LynnGamble20: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: |
| nursesKidONE @nursesKidONE RT @SrCareCorner: |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: |
| Hilgos Foundation @IRememberBetter RT @butalzis4oldppl: |
| Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #AlzChat @DrLaPook expressed his concern for caregivers, on 60Minutes interviews, over 10 years, w/a woman LWA & her caregiver husband. Caregivers, early in the disease, feel rather invincible, however, physical and emotional challenges, eventually, take their toll.๐ |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @SrCareCorner #alzchat caregivers often feel unnoticed invisible and unappreciated b/c their loved one canโt reciprocate that... so any support you can offer goes far to support them โค๏ธ |
| nursesKidONE @nursesKidONE RT @bikerwise: @derekfisher2907 #AlzChat But sometimes there are no other close family. Remember close friends can be as good though. Sometimes better. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @nursesKidONE: Museum arts programs, music concerts in parks, tea at the library's cafe are some examples of activities. Also continuing your loved one's volunteer activities with them, modified as needed. #AlzChat https://t.co/dIk3LJbXXW |
 | Karrie Marshall @KarrieMarshall RT @LynnGamble20: |
| the DAWN Method @theDAWNmethod RT @AlzJoyThruTears: #AlzChat I have just signed up for the Mindfulness-Based Dementia Care Program at the Center for Memory and Aging @_HealthPartners, Regions Hospital in St Paul. Eight weeks offering two hours per week, ending with a full day retreat. #IAMREADY! |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @SrCareCorner: |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: Museum arts programs, music concerts in parks, tea at the library's cafe are some examples of activities. Also continuing your loved one's volunteer activities with them, modified as needed. #AlzChat https://t.co/dIk3LJbXXW |
 | Caroline @journeyofcareM @AlzChat @Shedfieldlodge @doryitsme @vmbannister @juliagapowell @nikkidonline @willow_lodge @LizCrumpet @ThatVDOVault @FPfende @moirahill67 @saralivadeas @LynnGamble20 #alzchat I recommend that one makes use of any and all healthcare support that the gov't provides so the caregiver can have some respite. Also do not feel you have to do everything. We are ofttimes our own worst enemies & a laissez faire attitude can reap benefits for all. |
| Hilgos Foundation @IRememberBetter RT @SrCareCorner: |
| Hilgos Foundation @IRememberBetter RT @NatriceR: @SrCareCorner #alzchat caregivers often feel unnoticed invisible and unappreciated b/c their loved one canโt reciprocate that... so any support you can offer goes far to support them โค๏ธ |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @SrCareCorner Great idea Kathy #alzchat |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @journeyofcareM: @AlzChat @Shedfieldlodge @doryitsme @vmbannister @juliagapowell @nikkidonline @willow_lodge @LizCrumpet @ThatVDOVault @FPfende @moirahill67 @saralivadeas @LynnGamble20 #alzchat I recommend that one makes use of any and all healthcare support that the gov't provides so the caregiver can have some respite. Also do not feel you have to do everything. We are ofttimes our own worst enemies & a laissez faire attitude can reap benefits for all. |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| nursesKidONE @nursesKidONE Sometimes it can be the PWD's close friends as well as the care partner's close friends. You never know until you ask or they offer. #AlzChat https://t.co/FOj5BlBMzU |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @AlzChat @Shedfieldlodge @doryitsme @vmbannister @juliagapowell @nikkidonline @willow_lodge @LizCrumpet @ThatVDOVault @FPfende @moirahill67 @saralivadeas @LynnGamble20 #alzchat I recommend that one makes use of any and all healthcare support that the gov't provides so the caregiver can have some respite. Also do not feel you have to do everything. We are ofttimes our own worst enemies & a laissez faire attitude can reap benefits for all. |
| nursesKidONE @nursesKidONE RT @LynnGamble20: |
 | Chuck @OrangeChuck Don't have my laptop today for #alzchat but heed my warning: caregiver stress and the toll it can take is real. I've only been doing it three years, a lot of it mostly alone, and for the last year my anxiety levels have caused occasional stuttering, ticks & feeling overwhelmed. |
| Bikerwise @bikerwise @DementiaView #AlzChat A friend came round and had coffee and a chat with husband. Another friend sometimes takes him out for a walk. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @nursesKidONE: Sometimes it can be the PWD's close friends as well as the care partner's close friends. You never know until you ask or they offer. #AlzChat https://t.co/FOj5BlBMzU |
| Hilgos Foundation @IRememberBetter RT @OrangeChuck: Don't have my laptop today for #alzchat but heed my warning: Don't have my laptop today for #alzchat but heed my warning: caregiver stress and the toll it can take is real. I've only been doing it three years, a lot of it mostly alone, and for the last year my anxiety levels have caused occasional stuttering, ticks & feeling overwhelmed. |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: Sometimes it can be the PWD's close friends as well as the care partner's close friends. You never know until you ask or they offer. #AlzChat https://t.co/FOj5BlBMzU |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @OrangeChuck: Don't have my laptop today for #alzchat but heed my warning: Don't have my laptop today for #alzchat but heed my warning: caregiver stress and the toll it can take is real. I've only been doing it three years, a lot of it mostly alone, and for the last year my anxiety levels have caused occasional stuttering, ticks & feeling overwhelmed. |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Working on making tweetchats & #VirtualReality synergistic: view tweets from #VR, stream #socialVR back to tweetchat via #periscope or #youtubelive (@BeckySHaruyama @AndyFidel_ at @AltspaceVR very helpful) BTW Becky, didn't you demo SVR to seniors in assisted living? #alzchat https://t.co/zx5DwOTmqI |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR @OrangeChuck Glad you said hello @OrangeChuck - you have walked the walk... good advice to take offers of help. Everyone deserves a rest including you. Hope otherwise things are well #AlzChat |
| Hilgos Foundation @IRememberBetter RT @bikerwise: @DementiaView #AlzChat A friend came round and had coffee and a chat with husband. Another friend sometimes takes him out for a walk. |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @LynnGamble20: |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @wareFLO: Working on making tweetchats & #VirtualReality synergistic: Working on making tweetchats & #VirtualReality synergistic: view tweets from #VR, stream #socialVR back to tweetchat via #periscope or #youtubelive (@BeckySHaruyama @AndyFidel_ at @AltspaceVR very helpful) BTW Becky, didn't you demo SVR to seniors in assisted living? #alzchat https://t.co/zx5DwOTmqI |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @bikerwise: @DementiaView #AlzChat A friend came round and had coffee and a chat with husband. Another friend sometimes takes him out for a walk. |
| Caroline @journeyofcareM @TommyTommytee18 I was just about to say this ( 2nd sentence of Tommy's). If you cannot get out much to socialise, bring it into your, and the person you are caring for, life . My mother is always up for company and enjoys just being a part of a happy social gathering with my friends. #Alzchat |
| nursesKidONE @nursesKidONE And if the language changes, but the change in cognition or personality seems less obvious, make sure you consult w/ your providers regarding a differential diagnosis. All dementias are not Alzheimer's dementia! #AlzChat #PrimaryProgressiveAphasia https://t.co/S4yOTvyhzA |
| Hilgos Foundation @IRememberBetter #alzchat https://t.co/Nc90R8i890 |
| Bikerwise @bikerwise @creativitycare @IRememberBetter #AlzChat We need these people to be proactive not reactive. We don't know what we don't know but they know what we need to know! |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR Nice to see you all, glad to meet on Mondays when able. Take good care of yourselves - I have to leave early, best wishes, see you next week I hope :) hugs all round #AlzChat https://t.co/0aUnnfcdJe |
| Hilgos Foundation @IRememberBetter RT @bikerwise: @creativitycare @IRememberBetter #AlzChat We need these people to be proactive not reactive. We don't know what we don't know but they know what we need to know! |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: And if the language changes, but the change in cognition or personality seems less obvious, make sure you consult w/ your providers regarding a differential diagnosis. All dementias are not Alzheimer's dementia! #AlzChat #PrimaryProgressiveAphasia https://t.co/S4yOTvyhzA |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @TommyTommytee18 I was just about to say this ( 2nd sentence of Tommy's). If you cannot get out much to socialise, bring it into your, and the person you are caring for, life . My mother is always up for company and enjoys just being a part of a happy social gathering with my friends. #Alzchat |
| Hilgos Foundation @IRememberBetter RT @NatriceR: @OrangeChuck Glad you said hello @OrangeChuck - you have walked the walk... good advice to take offers of help. Everyone deserves a rest including you. Hope otherwise things are well #AlzChat |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @NatriceR @creativitycare @IRememberBetter My own personal experience with/dementia is limited, but but did help take care of my father during last stages of metastasized CA co-occurring w/dementia likely due to diffuse microstrokes, certainly saw the toll on my caregiver mom, resonating w/many of today's #alzchat tweets |
| Chuck @OrangeChuck This too. I blame myself. I thought I could handle it all mostly by myself but the problem is, over time things change and in my case, household stuff got tougher & mom needed help with more & when we both got sick, i panicked. #alzchat https://t.co/pLyxfZn6Hm |
| ๐๐ช๐ฝ๐ป๐ฒ๐ฌ๐ฎ๐ก ๐ท๐จ๐ฆโค๏ธ ๐ฅ @NatriceR RT @wareFLO: @NatriceR @creativitycare @IRememberBetter My own personal experience with/dementia is limited, but but did help take care of my father during last stages of metastasized CA co-occurring w/dementia likely due to diffuse microstrokes, certainly saw the toll on my caregiver mom, resonating w/many of today's #alzchat tweets |
| Hilgos Foundation @IRememberBetter RT @wareFLO: @NatriceR @creativitycare @IRememberBetter My own personal experience with/dementia is limited, but but did help take care of my father during last stages of metastasized CA co-occurring w/dementia likely due to diffuse microstrokes, certainly saw the toll on my caregiver mom, resonating w/many of today's #alzchat tweets |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @OrangeChuck: This too. I blame myself. I thought I could handle it all mostly by myself but the problem is, over time things change and in my case, household stuff got tougher & mom needed help with more & when we both got sick, i panicked. #alzchat https://t.co/pLyxfZn6Hm |
| nursesKidONE @nursesKidONE I agree with this. It's also good to read things that help you to maintain a positive & innovative approach to the care partner role. #AlzChat https://t.co/NgF6aflaZ3 |
| Chuck @OrangeChuck @NatriceR True but I think part of the problem sometimes is trust too. If someone is going to help me with mom's care, I need to know if I'm away, they have her best interest in mind & not selfish intentions. #alzchat |
| nursesKidONE @nursesKidONE RT @bikerwise: #AlzChat Totally agree with you Derek. Even just a coffee and watch the world go by. Good for both. https://t.co/ehqRSNM8kZ |
| Hilgos Foundation @IRememberBetter RT @OrangeChuck: @NatriceR True but I think part of the problem sometimes is trust too. If someone is going to help me with mom's care, I need to know if I'm away, they have her best interest in mind & not selfish intentions. #alzchat |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: I agree with this. It's also good to read things that help you to maintain a positive & innovative approach to the care partner role. #AlzChat https://t.co/NgF6aflaZ3 |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @NatriceR kinda like what we tried to do with #Blab & #HCLDR! #alzchat https://t.co/FuFBzw0Wpk |
| Chuck @OrangeChuck @creativitycare Yes! A lot of factors involved too. In my case, I quit my job to care for mom so I had no income or insurance of my own. Also as she progressed, it was and is on me to adjust her care to fit her needs as peacefully as possible. #alzchat |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ #Caregivingtip 5: Financial stress is huge. Be realistic as painful as it it. You may not know how much time the caree has but budget projections for multiple care scenarios (paid carer part time; me full time & $ loss from no job; or carehome options) were a lifesaver #alzchat https://t.co/kqfG28ZUrJ |
| nursesKidONE @nursesKidONE Families should avoid using guardianship proceedings or Adult Protective Services (i.e.,the gov't) to resolve disputes related to caregiving. Many communities have mediation services available to help families resolve disputes for nominal fee. #AlzChat |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Chuck @OrangeChuck It does get harder because with mom's progression, she gets overheated/tired easily, doesn't walk well & bad weather can impact it but yes, good to find things to do within your restrictions even if its just a car ride or going for an ice cream. #alzchat https://t.co/R4SKiWgDfK |
| Hilgos Foundation @IRememberBetter RT @senior_moment_: #Caregivingtip 5: #Caregivingtip 5: Financial stress is huge. Be realistic as painful as it it. You may not know how much time the caree has but budget projections for multiple care scenarios (paid carer part time; me full time & $ loss from no job; or carehome options) were a lifesaver #alzchat https://t.co/kqfG28ZUrJ |
| Hilgos Foundation @IRememberBetter RT @OrangeChuck: @creativitycare Yes! A lot of factors involved too. In my case, I quit my job to care for mom so I had no income or insurance of my own. Also as she progressed, it was and is on me to adjust her care to fit her needs as peacefully as possible. #alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Chuck @OrangeChuck @LynnGamble20 @NatriceR You see so many instances in media of bad caregivers or even people you know who think they know better how the care should go so that doesn't help either. #alzchat |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @creativitycare @IRememberBetter Please forward link to the #dementia #socialVR event to anyone who might be interested! Here are some of the #VR related presentations & posters during #AAIC18 next month https://t.co/3XDS8OjIt7 PS already looking forward to next week's #alzchat Cheers all, Chuck https://t.co/PsbztK6IPz |
| Karrie Marshall @KarrieMarshall that is lovely to hear and so important for all involved when ppl make time to visit. There are all sorts of ways visitors could be given roles, magazines, songhseets, (whatever connects with person) so you the carer can get some sleep or go out, or enjoy the company #AlzChat https://t.co/6k4a4uJoqn |
| nursesKidONE @nursesKidONE RT @senior_moment_: #Caregivingtip 3: #Caregivingtip 3: "I can do anything but I can't do everything." For me, recognizing when it was time to move my mom to a carehome was a hard reality to accept but taking the action before it was too late saved both of us #AlzChat |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @creativitycare: |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @NatriceR: @wareFLO @creativitycare @IRememberBetter Glad you joined the #alzchat group today - seems you have great insight to share ;) |
 | Christine Collins MBE @christinezoo RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter #AlzChat soon winding down for today. Thanks to all for joining / listening in. See you next Monday 3pmEST/8pmUK @creativitycare |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @OrangeChuck: It does get harder because with mom's progression, she gets overheated/tired easily, doesn't walk well & bad weather can impact it but yes, good to find things to do within your restrictions even if its just a car ride or going for an ice cream. #alzchat https://t.co/R4SKiWgDfK |
| Hilgos Foundation @IRememberBetter RT @nursesKidONE: Families should avoid using guardianship proceedings or Adult Protective Services (i.e.,the gov't) to resolve disputes related to caregiving. Many communities have mediation services available to help families resolve disputes for nominal fee. #AlzChat |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @creativitycare: |
| Chuck @OrangeChuck @LynnGamble20 Yes and I noticed mom struggled walking around for so long in the stores and we had an incident or two so I had to limit that as well. Those hospital visits scared me a lot too. #alzchat |
| TแผIแ แชEแฐEแTEแช แชIแดE @senior_moment_ Thank you all for sharing so many great tips! I always learn more at #AlzChat And ICYMI, the latest flash blog from This Demented Life: https://t.co/GRoStWbEdQ |
| nursesKidONE @nursesKidONE RT @creativitycare: |
 | JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Karrie Marshall @KarrieMarshall RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
 | Noah Homes @NoahHomesOrg RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Karrie Marshall @KarrieMarshall yep, always a gap between a thing that happens and our reaction if we can stay calm enough to see that gap to change the response :) #AlzChat https://t.co/BMsN0vFazB |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
 | Amy Duval โฎ๏ธ @TrekkyAmy RT @NatriceR: Nice to see you all, glad to meet on Mondays when able. Take good care of yourselves - I have to leave early, best wishes, see you next week I hope :) hugs all round #AlzChat https://t.co/0aUnnfcdJe |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| JOANNA ๐๐๐ญ๐๐ฐ๐ด๐ฎ @charitybegin4 RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
 | Mario Fernandes de Moraes Filho @MarioFe93612169 RT @butalzis4oldppl: |
| Chuck @OrangeChuck Yes! My problem was I not only thought I could manage it alone but assumed if people wanted to help, they'd come around. It is double edged sword though because I want people helping who know mom & familiar with her care & not just a generic "babysitter". #alzchat https://t.co/P9DVy7QX6J |
| Hilgos Foundation @IRememberBetter RT @KarrieMarshall: yep, always a gap between a thing that happens and our reaction if we can stay calm enough to see that gap to change the response :) #AlzChat https://t.co/BMsN0vFazB |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @OrangeChuck: Yes! My problem was I not only thought I could manage it alone but assumed if people wanted to help, they'd come around. It is double edged sword though because I want people helping who know mom & familiar with her care & not just a generic "babysitter". #alzchat https://t.co/P9DVy7QX6J |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
 | J Voyageur @jvoyageur RT @nursesKidONE: Families should avoid using guardianship proceedings or Adult Protective Services (i.e.,the gov't) to resolve disputes related to caregiving. Many communities have mediation services available to help families resolve disputes for nominal fee. #AlzChat |
#AlzChat content from Twitter.