#AlzChat Transcript
Healthcare social media transcript of the #AlzChat hashtag.
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See #AlzChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Hilgos Foundation @IRememberBetter It's time for #AlzChat Topic today: Human rights based approach in dementia care @creativitycare @TommyTommytee18 @AlzJoyThruTears @nursesKidONE @SrCareCorner @derekfisher2907 |
 | Total Legacy Care @TotalLegacyCare Good Evening #AlzChat 👋🏼 |
| Hilgos Foundation @IRememberBetter RT @juliagapowell Subject close to heart. After years as #HumanRights campaigner hated seeing mum’s rights denied while she was in care home. She felt imprisoned but didn’t know why. Ppl w/ dementia have right to excellent care that makes them feel safe, loved & at home. #AlzChat |
| Hilgos Foundation @IRememberBetter RT @learnhospice #AlzChat apologies will miss tonight as on a Twitter break- but human rights key to living with dementia |
 | nursesKidONE @nursesKidONE RT @IRememberBetter: It's time for #AlzChat Topic today: It's time for #AlzChat Topic today: Human rights based approach in dementia care @creativitycare @TommyTommytee18 @AlzJoyThruTears @nursesKidONE @SrCareCorner @derekfisher2907 |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: Good Evening #AlzChat 👋🏼 |
| Hilgos Foundation @IRememberBetter #alzchat RT @Mycarematters RT @Innov_Dementia here are links to reports where you can find more examples of #dementia stigma, stereotyping & #humanrights: https://t.co/BdCESvwhMB https://t.co/ojUcZQFFig https://t.co/4677VDbZqI |
| nursesKidONE @nursesKidONE RT @IRememberBetter: RT @juliagapowell Subject close to heart. After years as #HumanRights campaigner hated seeing mum’s rights denied while she was in care home. She felt imprisoned but didn’t know why. Ppl w/ dementia have right to excellent care that makes them feel safe, loved & at home. #AlzChat |
 | @brifrischu Britta Schulte @brifrischu @creativitycare @IRememberBetter Hello #Alzchat Happy to listen in and learn. My PhD work is related to monitoring & dementia care which touches on some basic human rights, so I am very interested in your views |
| Hilgos Foundation @IRememberBetter Happy Monday @derekfisher2907 @Shedfieldlodge @goodsam @nursesKidONE @journeyofcareM @TotalLegacyCare @juliagapowell @ThatVDOVault @RebeccaFuller07 #alzchat @creativitycare |
| Total Legacy Care @TotalLegacyCare RT @IRememberBetter: Happy Monday @derekfisher2907 @Shedfieldlodge @goodsam @nursesKidONE @journeyofcareM @TotalLegacyCare @juliagapowell @ThatVDOVault @RebeccaFuller07 #alzchat @creativitycare |
| nursesKidONE @nursesKidONE RT @IRememberBetter: #alzchat RT @Mycarematters RT @Innov_Dementia here are links to reports where you can find more examples of #dementia stigma, stereotyping & #humanrights: https://t.co/BdCESvwhMB https://t.co/ojUcZQFFig https://t.co/4677VDbZqI |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @fam6 #AlzChat so vital to include consideration of human rights. Should be the underlying principles that guide all our work. Also links to relevant legislation. In UK Deprivation of Liberty rules sometimes not adhered to - carers and advocates need to know to ask. |
| Hilgos Foundation @IRememberBetter RT @brifrischu: @creativitycare @IRememberBetter Hello #Alzchat Happy to listen in and learn. My PhD work is related to monitoring & dementia care which touches on some basic human rights, so I am very interested in your views |
| Total Legacy Care @TotalLegacyCare Definitely!! #AlzChat |
| nursesKidONE @nursesKidONE RT @IRememberBetter: RT @fam6 #AlzChat so vital to include consideration of human rights. Should be the underlying principles that guide all our work. Also links to relevant legislation. In UK Deprivation of Liberty rules sometimes not adhered to - carers and advocates need to know to ask. |
| Total Legacy Care @TotalLegacyCare And Bedfordshire too! 😆 #AlzChat |
| Hilgos Foundation @IRememberBetter #alzchat RT @shirleypearceot As with justice that needs to be done and also seen to be done, people with dementia not only need to *be* safe and have their rights respected, but they need to *feel* safe, respected and loved |
| Hilgos Foundation @IRememberBetter #alzchat On the bookshelf: "A randomised controlled trial to evaluate the impact of a human rights based approach to dementia care in inpatient ward and care home settings" via @NCBI @OfficialNIHR |
| Hilgos Foundation @IRememberBetter #alzchat Dementia care activist @KateSwaffer is known worldwide for her advocacy on behalf of people who live with dementia... she says use a human-rights-based approach https://t.co/WdxEMwn40M via @MyAlzStory |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @DementiaView: |
| Hilgos Foundation @IRememberBetter RT @Twomey_A: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter #alzchat @nigel8812922 a former human rights lawyer who now has dementia, wants everyone affected by the condition to have their say: https://t.co/I0rQVKJPYP |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: Definitely!! #AlzChat |
 | Caroline @journeyofcareM @AlzChat @DiverseAlz @AmyGoyer @OrangeChuck @learnhospice @dragonmisery @janetmakes @CarolCasey @2ndChildishness @3SpiritUKNZ @BehrensHelen #alzchat It should be a given for everyone throughout their life that we are accorded dignity. It is very easy to bestow & the benefits are life affirming. Without it, we are diminished. We all know this, but we all know it still isn't happening. How to change this ? More action! |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @AlzChat @DiverseAlz @AmyGoyer @OrangeChuck @learnhospice @dragonmisery @janetmakes @CarolCasey @2ndChildishness @3SpiritUKNZ @BehrensHelen #alzchat It should be a given for everyone throughout their life that we are accorded dignity. It is very easy to bestow & the benefits are life affirming. Without it, we are diminished. We all know this, but we all know it still isn't happening. How to change this ? More action! |
 | R.E.A.L Human Rights @realhumanrights @creativitycare @IRememberBetter #AlzChat - week away from 70th anniversary of Universal Declaration of Human Rights - and fundamental in that #UDHR #Article1 is a call for #Dignity for all. Dignity and Mercy are foundational not only in #HumanRights for all, but especially for those with #Alzheimers, #Dementia https://t.co/KeBicGMvsH |
| Hilgos Foundation @IRememberBetter RT @TommyTommytee18: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @realhumanrights: @creativitycare @IRememberBetter #AlzChat - week away from 70th anniversary of Universal Declaration of Human Rights - and fundamental in that #UDHR #Article1 is a call for #Dignity for all. Dignity and Mercy are foundational not only in #HumanRights for all, but especially for those with #Alzheimers, #Dementia https://t.co/KeBicGMvsH |
| Hilgos Foundation @IRememberBetter RT @DementiaView: |
| R.E.A.L Human Rights @realhumanrights @juliagapowell @creativitycare This is a policy of #Mercy and #Dignity towards others. All of our #caregiving is dependent on this. We know some get overwhelmed, but it is a call for us to find time to those dependent on us. #AlzChat |
| nursesKidONE @nursesKidONE Note that the MCA begins with the presumption that the PLWD has the legal capacity to make decisions. A dementia diagnosis does not automatically diminish legal capacity of the PLWD to make decisions abt care. #AlzChat |
| Hilgos Foundation @IRememberBetter #alzchat Dementia Australia & Dementia Alliance International to globally champion rights of people living with dementia RT @FPDNAus MOU recognises both organisations are aligned in purpose to promote awareness...and human rights of people with dementia https://t.co/AqqW0FGGSG |
| Hilgos Foundation @IRememberBetter RT @DementiaView: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| R.E.A.L Human Rights @realhumanrights RT @IRememberBetter: #alzchat @nigel8812922 a former human rights lawyer who now has dementia, wants everyone affected by the condition to have their say: https://t.co/I0rQVKJPYP |
| R.E.A.L Human Rights @realhumanrights RT @creativitycare: |
| R.E.A.L Human Rights @realhumanrights RT @Twomey_A: |
 | Karrie Marshall @KarrieMarshall yes, this definitely needs addressing. Currently facilitating a programme for care staff that helps people feel #compassion for self & others, to become more aware of ways to connect 1-to-1 and promote dignity/choice/rights #AlzChat @creativitycare @IRememberBetter |
| Hilgos Foundation @IRememberBetter RT @KarrieMarshall: yes, this definitely needs addressing. Currently facilitating a programme for care staff that helps people feel #compassion for self & others, to become more aware of ways to connect 1-to-1 and promote dignity/choice/rights #AlzChat @creativitycare @IRememberBetter |
| Caroline @journeyofcareM @juliagapowell #Alzchat Once deemed incapable here in Canada, you can lose your voice altogether as I learned through the courts of law (?). My mum is only where she is through doggedness & sacrifice by 2 of her children. People are in peril in our supposed democratic countries. It's shocking. |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| nursesKidONE @nursesKidONE RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @juliagapowell #Alzchat Once deemed incapable here in Canada, you can lose your voice altogether as I learned through the courts of law (?). My mum is only where she is through doggedness & sacrifice by 2 of her children. People are in peril in our supposed democratic countries. It's shocking. |
| Hilgos Foundation @IRememberBetter #alzchat RT @Dementia_Action report from @CareQualityComm explores how focus on equality & human rights can improve care during times of financial constraint. features good practice including focussed on care for people w dementia https://t.co/WRnmo4fJPC |
| Hilgos Foundation @IRememberBetter RT @Twomey_A: |
| nursesKidONE @nursesKidONE RT @juliagapowell: |
 | Bikerwise @bikerwise RT @weejenhen: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| R.E.A.L Human Rights @realhumanrights @creativitycare @IRememberBetter We must also call for #Alzheimers and #Dementia care, research as part of #HumanRights themselves, not only #medical issue. Universal Declaration of Human Rights calls "freedom of thought" in #Article18 -therefore support #RightToThink. Few consider how precious this is. #AlzChat https://t.co/C5KEfHdOxP |
| Total Legacy Care @TotalLegacyCare So important! Carers taking the time to know and understand the person living with dementia can make a massive difference! Especially in terms of times of day/subjects/preferences that put the PLWD at ease #AlzChat |
| R.E.A.L Human Rights @realhumanrights RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @realhumanrights: @creativitycare @IRememberBetter We must also call for #Alzheimers and #Dementia care, research as part of #HumanRights themselves, not only #medical issue. Universal Declaration of Human Rights calls "freedom of thought" in #Article18 -therefore support #RightToThink. Few consider how precious this is. #AlzChat https://t.co/C5KEfHdOxP |
| Hilgos Foundation @IRememberBetter RT @Twomey_A: |
| Bikerwise @bikerwise RT @DementiaView: |
 | Sarah Butchard @sarahbutchard @TommyTommytee18 #alzchat Happy to oblige Tommy. These short films were made by people living with dementia to highlight the daily issues that can undermine #HumanRights & are based on the FREIDA (Fairness, Respect, Equality, Identity, Dognity, Autonomy) principles https://t.co/CWgJ9k6ef2 |
| Caroline @journeyofcareM @juliagapowell My mum was to be consulted regardless of being deemed incapable of managing her personal care & finances. But instead she was treated as a non entity, even by the judicial system. She was dimished as a person. Appalling. I lost my faith in our the Canadian judice system. #Alzchat |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @sarahbutchard: @TommyTommytee18 #alzchat Happy to oblige Tommy. These short films were made by people living with dementia to highlight the daily issues that can undermine #HumanRights & are based on the FREIDA (Fairness, Respect, Equality, Identity, Dognity, Autonomy) principles https://t.co/CWgJ9k6ef2 |
| Hilgos Foundation @IRememberBetter RT @TotalLegacyCare: So important! Carers taking the time to know and understand the person living with dementia can make a massive difference! Especially in terms of times of day/subjects/preferences that put the PLWD at ease #AlzChat |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @journeyofcareM: @juliagapowell My mum was to be consulted regardless of being deemed incapable of managing her personal care & finances. But instead she was treated as a non entity, even by the judicial system. She was dimished as a person. Appalling. I lost my faith in our the Canadian judice system. #Alzchat |
| Bikerwise @bikerwise RT @LynnGamble20: |
| @brifrischu Britta Schulte @brifrischu RT @creativitycare: |
| @brifrischu Britta Schulte @brifrischu RT @realhumanrights: @creativitycare @IRememberBetter We must also call for #Alzheimers and #Dementia care, research as part of #HumanRights themselves, not only #medical issue. Universal Declaration of Human Rights calls "freedom of thought" in #Article18 -therefore support #RightToThink. Few consider how precious this is. #AlzChat https://t.co/C5KEfHdOxP |
| Hilgos Foundation @IRememberBetter RT @weejenhen #AlzChat person centred care is all well & good but can still mean even though you have placed person “at centre of their care” you are still making decisions FOR them. @scottishcare @DrDMacaskill suggests person LED care instead! Human rights at their most basic |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| R.E.A.L Human Rights @realhumanrights RT @sarahbutchard: @TommyTommytee18 #alzchat Happy to oblige Tommy. These short films were made by people living with dementia to highlight the daily issues that can undermine #HumanRights & are based on the FREIDA (Fairness, Respect, Equality, Identity, Dognity, Autonomy) principles https://t.co/CWgJ9k6ef2 |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @helenfindlay: |
| Hilgos Foundation @IRememberBetter RT @LynnGamble20: |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter Introduction of a human-rights approach for people with dementia by @MittlerPeter https://t.co/uYYQSRiRGY via @VJHemOnc #alzchat |
| @brifrischu Britta Schulte @brifrischu Hello fellow #alzchat chatters, some of you might be interested in my newest project on the exploration of the future of carehomes. More info here: https://t.co/MdWoMiCiNQ Always happy to answer questions on the subject. |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| R.E.A.L Human Rights @realhumanrights In terms of #HumanRights on International Day of Persons with Disabilities #IDPD (today), @DementiaAllianc points out that as @WHO views #Alzheimers and #Dementia as disability, then #CRPD should apply as well. #AlzChat https://t.co/P8G959dQ4U https://t.co/rjsDjLXGIJ |
 | Diverse Alzheimers @DiverseAlz Just stopping by, reading tweets. Could be that many people do not see link between dementia and human rights, though they should. Perhaps that is a starting point - what do you understand by human rights and dementia. Just a thought. #alzchat |
 | 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR @IRememberBetter @creativitycare So very sorry I didn’t make it today - #alzchat I hope everyone has a good week ❤️👏🏻🤗 |
| R.E.A.L Human Rights @realhumanrights RT @DiverseAlz: Just stopping by, reading tweets. Could be that many people do not see link between dementia and human rights, though they should. Perhaps that is a starting point - what do you understand by human rights and dementia. Just a thought. #alzchat |
| Diverse Alzheimers @DiverseAlz @journeyofcareM @AlzChat @AmyGoyer @OrangeChuck @learnhospice @dragonmisery @janetmakes @CarolCasey @2ndChildishness @3SpiritUKNZ @BehrensHelen Also, action yes but think about training and education too. Parenting in all its forms equally important #diversealz #Alzchat |
| Hilgos Foundation @IRememberBetter #alzchat |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
| Hilgos Foundation @IRememberBetter RT @DiverseAlz: Just stopping by, reading tweets. Could be that many people do not see link between dementia and human rights, though they should. Perhaps that is a starting point - what do you understand by human rights and dementia. Just a thought. #alzchat |
| Hilgos Foundation @IRememberBetter RT @realhumanrights: In terms of #HumanRights on International Day of Persons with Disabilities #IDPD (today), @DementiaAllianc points out that as @WHO views #Alzheimers and #Dementia as disability, then #CRPD should apply as well. #AlzChat https://t.co/P8G959dQ4U https://t.co/rjsDjLXGIJ |
| Hilgos Foundation @IRememberBetter RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter #AlzChat soon winding down for today. Thanks to all for joining/listening in. See you next Monday 3pmEST/8pmUK @creativitycare |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
| Hilgos Foundation @IRememberBetter RT @DiverseAlz: @journeyofcareM @AlzChat @AmyGoyer @OrangeChuck @learnhospice @dragonmisery @janetmakes @CarolCasey @2ndChildishness @3SpiritUKNZ @BehrensHelen Also, action yes but think about training and education too. Parenting in all its forms equally important #diversealz #Alzchat |
 | Dr Sian Hughes @sianelss RT @juliagapowell: |
| Diverse Alzheimers @DiverseAlz #Alzchat overlaps with #diversealz subject this week, so happy to share this @Innov_Dementia resource Our Dementia, Our Rights: https://t.co/5u6uJm4FKl. See chapter What are these rights highlighting points made in first tweet. |
| R.E.A.L Human Rights @realhumanrights @DiverseAlz Urge public consider... what happens to #HumanRights when #dementia and #Alzheimers Disease attacks your #RightToThink, as we call for "freedom of thought" every day as part of #UniversalDeclarationOfHumanRights, #Article18? #AlzChat https://t.co/VoFEg6jdtk |
| Hilgos Foundation @IRememberBetter RT @DiverseAlz: #Alzchat overlaps with #diversealz subject this week, so happy to share this @Innov_Dementia resource Our Dementia, Our Rights: https://t.co/5u6uJm4FKl. See chapter What are these rights highlighting points made in first tweet. |
| Hilgos Foundation @IRememberBetter RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @juliagapowell: |
| Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: |
 | Pamela Earle @pearle44 RT @sarahbutchard: @TommyTommytee18 #alzchat Happy to oblige Tommy. These short films were made by people living with dementia to highlight the daily issues that can undermine #HumanRights & are based on the FREIDA (Fairness, Respect, Equality, Identity, Dognity, Autonomy) principles https://t.co/CWgJ9k6ef2 |
| Hilgos Foundation @IRememberBetter RT @creativitycare: |
#AlzChat content from Twitter.