#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Alicia C. Staley @stales Good evening #BCSM |
 | Dr. Deanna Attai @DrAttai Good evening everyone! #bcsm |
 | Howard Karpoff @doctorkarpoff Evening all. Breast Surgeon from slightly upstate Multitasking listening and learning (and registered for the ASBrS) #bcsm |
 | Inspire @InspireIsHealth @stales Hi Alicia and the #bcsm community, John Novack from Inspire checking in. |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Current situation. Not water. Bombay London Dry. Been a day. Good, but busy AF. Annual mammo tmrw. 11+ yrs NED, Stage IIa IDC, dx Xmas '07. Onward. #bcsm https://t.co/Jybl1x1bEH |
| Alicia C. Staley @stales @teaminspire Hi there! nice to see you! #BCSM |
| Dr. Deanna Attai @DrAttai hello all, Deanna Attai, breast surgeon in LA #bcsm |
 | Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins Hi #bcsm - Becca from @LombardiCancer, breast cancer researcher. Looking forward to this chat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @itsthebunk @stales @DrAttai @LisaDTRice @itsnot_pink @jamienholloway @tmprowell @Leslieks @Maimah @stage4kelly @DrSGraff @DrSusanLove @SusanRuddick1 @HillStirSci @Stickit2Stage4 Will miss you!! #bcsm |
 | Jamie Holloway, PhD @jamienholloway Hi #bcsm friends— Jamie in NoVA. 7+ years NED after stage 2 TNBC. Scientist and advocate. |
| Alicia C. Staley @stales @SusanRuddick1 Hi there! nice to see you. #BCSM |
| Dr. Deanna Attai @DrAttai @doctorkarpoff hi Howard, thanks for joining tonight and will see you soon in Vegas! #bcsm |
| Alicia C. Staley @stales @doctorkarpoff Hi there! Nice to see you! #BCSM |
| Alicia C. Staley @stales @DrAttai Hello, hello! #BCSM |
| Dr. Deanna Attai @DrAttai @stales good evening, my friend #bcsm |
 | Mary L Gorden @marylgorden Hi, all Mary from the California foothills here Dx in 2017 now NED #bcsm |
| Alicia C. Staley @stales Tonight on #BCSM - we're chatting about "How to talk about cancer" - What to say, not to say. We will get started in a moment |
 | Beverly A. Zavaleta MD @BZavaletaMD Hi all- I’m a physician and 4 yr survivor, stage 2, currently NED. #bcsm |
| Alicia C. Staley @stales @marylgorden Hi there! #bcsm |
| Alicia C. Staley @stales @BZavaletaMD Welcome! #bcsm |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff Hello #BCSM Great topic tonight! |
| Alicia C. Staley @stales Please take a moment to introduce yourself! Say hello! #bcsm |
| Inspire @InspireIsHealth RT @stales: Tonight on #BCSM - we're chatting about "How to talk about cancer" - What to say, not to say. We will get started in a moment |
| Alicia C. Staley @stales @DrSGraff hi there! #bcsm |
 | IBC Research Fdn @IBCResearch Hi #bcsm peeps! Ginny here, RN, dx with TN #IBC in 1994. Getting back to work after surgery 2 wk ago today for stage 1A endometrial ca. Happy new year! |
 | Lex @Lex_in_CO Cranky in Colorado. Aches and pains but thriver Dx Stage 4 MBC in June 2013 PSF since 2015 Stable Mabel #BCSM |
| Howard Karpoff @doctorkarpoff @stales Hi Alicia @DrAttai Deanna - always enjoy meeting up and the meeting. Then back to Vegas for 2022 (the TBA now is A) #bcsm |
| Alicia C. Staley @stales @Lex_in_CO Hi there! #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci @stales This is such an important topic! Hi everyone 👋🏼 I’m Hillary, a research scientist turned advocate. #bcsm |
| Alicia C. Staley @stales @IBCResearch Hi there. How are you? #bcsm |
| Beverly A. Zavaleta MD @BZavaletaMD @IBCResearch Yuck a second primary 😡 #bcsm |
 | Dennis Keim @denniskeim Happy 2020, #bcsm peeps. Stage 1 breast cancer in 2013. With ITCs. Mastectomy, 6x TC chemo and now Tamoxifen. Still NED in NE. |
 | NCI Cancer Stats @NCICancerStats 5-year relative survival is substantially higher when breast cancer is diagnosed in the localized stage. More info can be found here: https://t.co/wUKAVg2gqh #BCSM https://t.co/LWC6gTRfGv |
| Alicia C. Staley @stales @BraveBosom Hi there hacker nerd #bcsm |
| Alicia C. Staley @stales @denniskeim hey! nice to see you! #bcsm |
| Alicia C. Staley @stales Welcome everyone! #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @IBCResearch DAG! Recover well, my friend! #bcsm |
| IBC Research Fdn @IBCResearch @stales Doing well...robotic surgery makes for easier recovery. Only a couple days of pain meds. Already driving & back to nearly normal! See gyn onc this week. #bcsm |
 | Christina Lizaso @btrfly12 RT @stales: Tonight on #BCSM - Join us for "Talking about Cancer" - what do you say to family, friends .... and What NOT to say to someone with cancer. Should be informative tonight at 9 pm ET. See you soon! @DrAttai @LisaDTRice @itsnot_pink @itsthebunk @jamienholloway @MightyCasey https://t.co/Uah5dUvAUq |
| Jamie Holloway, PhD @jamienholloway @IBCResearch Oh Ginny— I hadn’t heard! Glad it sounds like you’re on the road to recovery. #bcsm |
 | Dr. Kelly Shanahan @stage4kelly Kelly, former OBGYN current person living with #MBC, checking in from very windy, might be snowy later Lake Tahoe #bcsm |
 | Julia Maués @itsnot_pink Hi #bcsm! Julia here, in DC, living with MBC since 2013 and with a whole list of things people should and shouldn’t say to people with cancer! |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @BraveBosom NERDIMUS MAXIMUS! #bcsm https://t.co/er90k8LE4F |
 | SPECFORD59 @SPECFORD59 #21GeneScore #DrillingDown #NewUses |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy A quick #bcsm "hello" & big hugs of gratitude from Northern California. I'm a patient, research and policy advocate who is thankfully NOT tweeting from a hospital bed this week. Planning a Happy New Year do over. 💗 |
| Alicia C. Staley @stales @coffeemommy hi there. how are you doing? #bcsm |
 | Double Whammy @double_whammied Hey peeps! Diane Mapes from Seattle here. Dx'd stage 3 #BC (lobular) in Feb 2011. Been writing about it ever since. #bcsm |
| Alicia C. Staley @stales @jamienholloway hey there! nice to see you! #bcsm |
| Alicia C. Staley @stales @double_whammied hi there. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @IBCResearch Happy healing & recovery Ginny! #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales Glad to be here! #Bcsm |
| Double Whammy @double_whammied @coffeemommy You poor kid! You've been through the mill lately! #bcsm |
 | Andrea @BraveBosom @itsnot_pink Hi Julia!!! #bcsm |
| Alicia C. Staley @stales Alright, let's get started! #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @stales Much better, thank you. A ridonkulous week to be sure. #bcsm |
| Alicia C. Staley @stales T1: Let's talk about... "talking about Cancer" #bcsm |
| Andrea @BraveBosom @coffeemommy Hope you are feeling better! #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @IBCResearch @stales My sister had endometrial dx late Sept., surgery Nov., all clear by Thanksgiving. Hoping all clear for you, too! #bcsm |
| Double Whammy @double_whammied RT @stales: T1: T1: Let's talk about... "talking about Cancer" #bcsm |
 | Erika Hamilton, MD @ErikaHamilton9 Hi all! Happy to join! Erika, Medical oncologist, in Nashville, TN. #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T1: T1: Let's talk about... "talking about Cancer" #bcsm |
| Double Whammy @double_whammied @stales Where to start? 😁#bcsm |
| Andrea @BraveBosom @BZavaletaMD @MightyCasey #nerdpower #bcsm 🙌👊 https://t.co/OIu4RvBiRM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @stales We're so meta. 🙃 #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @BZavaletaMD @BraveBosom #bcsm https://t.co/aDaQoscRUR |
| Beverly A. Zavaleta MD @BZavaletaMD @MightyCasey @BraveBosom 😂 #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @BraveBosom @BZavaletaMD We're on a Colbert roll here, then #bcsm |
| Dennis Keim @denniskeim RT @stales: 10 minutes until #BCSM - Join us for "Talking about Cancer" - what do you say to family, friends .... and What NOT to say to someone with cancer. Should be informative tonight at 9 pm ET. See you soon! https://t.co/NHJDQHz1Qj |
| Andrea @BraveBosom RT @itsnot_pink: Hi #bcsm! Julia here, in DC, living with MBC since 2013 and with a whole list of things people should and shouldn’t say to people with cancer! |
 | Liz 🌊 🌊 🌊 🌊 @lizard817 Hi all sorry I’m late #bcsm |
| Alicia C. Staley @stales T1: There's so many article on how to talk to someone dealing with cancer. Let's start with the articles on "What NOT to say" #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @coffeemommy @stales I laughed out loud. #bcsm |
| Alicia C. Staley @stales T1: What's the most ridiculous thing you've heard from friends/family about your cancer #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T1: T1: There's so many article on how to talk to someone dealing with cancer. Let's start with the articles on "What NOT to say" #bcsm |
| Beverly A. Zavaleta MD @BZavaletaMD @stales How about this? The best thing anyone ever said to me: “I’m here.” Just unconditional support. #bcsm. |
 | Danielle Karber @danielle_dk T1: You’re so brave or you’re a hero. Ugh. Not brave, just doing what I have to do to stay alive. #bcsm |
| Alicia C. Staley @stales RT @BZavaletaMD: @stales How about this? The best thing anyone ever said to me: @stales How about this? The best thing anyone ever said to me: “I’m here.” Just unconditional support. #bcsm. |
| Alicia C. Staley @stales T1: What's the most ridiculous thing you've heard from friends/family about your cancer? #bcsm |
 | Lisa Rice #MaskUp (she/her) @LisaDTRice @stales Hey there! Sorry to be tardy. I see we're talking about talking. 😉 #bcsm |
| Alicia C. Staley @stales Boom! exactly RT @danielle_dk: T1: You’re so brave or you’re a hero. Ugh. Not brave, just doing what I have to do to stay alive. #bcsm |
| Double Whammy @double_whammied @stales I've written a couple of those articles. Here's one, from early on. #bcsm https://t.co/zX1trAYLBs |
 | Strong Heart Now @StrongHeartNow1 @stales I kid you not: "It's so wonderful you will get to see Jesus before the rest of us!" That was in 1984... Somehow I need to find out if the woman who said that is still here. Perhaps she got to me him before me afterall.... #bcsm |
| Alicia C. Staley @stales @lizard817 Hi, nice to see you! #bcsm |
| Double Whammy @double_whammied RT @stales: T1: T1: What's the most ridiculous thing you've heard from friends/family about your cancer #bcsm |
| Alicia C. Staley @stales @LisaDTRice LOL. yes indeed. #BCSM |
| Dennis Keim @denniskeim T1: I must have blocked some stuff out. I can't recall anything too ridiculous that friends or family have said. Mostly it's been ok. #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 T1: For me it’s always been that I could get hit by a bus #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales I always think of @UzmaMD and her bouquet of Kale when I start thinking about the ridiculous stuff people say to persons living with cancer. #bcsm https://t.co/6GM7WlcTmb |
| Beverly A. Zavaleta MD @BZavaletaMD @LT_Lymphomie @stales Outrageous! #bcsm. |
| Dr. Kelly Shanahan @stage4kelly T1. You mean besides a member of the medical staff, at the holiday staff party the year after I was diagnosed with #MBC, saying to me “wow, you look good. I thought you were dead”? #bcsm |
| Double Whammy @double_whammied @DrAttai @stales Timely topic! #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 @LT_Lymphomie @stales No ma’am. Are you kidding me? #bcsm |
| Alicia C. Staley @stales @DrSGraff @coffeemommy HA HA. I'm so meta that the flux capacitor fired up after that tweet. #bcsm |
| Mary L Gorden @marylgorden @stales #bcsm You are handling this so well is both ridiculous and encouraging |
| Andrea @BraveBosom T1: “But you don’t have cancer yet why are you choosing to remove body parts?” #bcsm #brca #brca1 #previvor |
| Double Whammy @double_whammied RT @BZavaletaMD: @stales How about this? The best thing anyone ever said to me: @stales How about this? The best thing anyone ever said to me: “I’m here.” Just unconditional support. #bcsm. |
| Alicia C. Staley @stales @ErikaHamilton9 @LT_Lymphomie oh my gosh. BRUTAL #BCSM |
| Double Whammy @double_whammied RT @stales: T1: T1: What's the most ridiculous thing you've heard from friends/family about your cancer? #bcsm |
| Dr. Deanna Attai @DrAttai @LT_Lymphomie @stales wow... #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: My biggest bullet point here (which I remember daily in my advocacy) is how sh**ty some breastcancer-dot-org forum folx were to me btwn surgery (lumpectomy) + adjuvant decision(s) re my exploration of MY values/decision tree. DON'T BE THAT GUY. #bcsm |
| Jamie Holloway, PhD @jamienholloway When it comes to what not to say, I always think of this @emilymcdowell_ empathy card #bcsm https://t.co/D4AAVxgu80 |
| Lex @Lex_in_CO @stales A1: Don’t invite me to your MLM program that has the “Cure” big pharma is hiding 🤦♀️ PLEASE DO NOT #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 @lizard817 Nice positive thought. #bcsm https://t.co/4mvOV2CdyE |
| Double Whammy @double_whammied This! 👇👇👇👇👇👇👇#bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @stage4kelly Just sayin' #bcsm https://t.co/UfBmPTT6Rl |
| Beverly A. Zavaleta MD @BZavaletaMD @stage4kelly Holy sh&t! #bcsm |
| Strong Heart Now @StrongHeartNow1 @stales @ErikaHamilton9 It was said in complete religious sincerity. #bcsm |
| Howard Karpoff @doctorkarpoff RT @jamienholloway: When it comes to what not to say, I always think of this @emilymcdowell_ empathy card #bcsm https://t.co/D4AAVxgu80 |
| Double Whammy @double_whammied @LT_Lymphomie @stales Good lord! What a frigging idiot! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @jamienholloway: When it comes to what not to say, I always think of this @emilymcdowell_ empathy card #bcsm https://t.co/D4AAVxgu80 |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @BraveBosom That is terrible #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @LT_Lymphomie @stales #bcsm https://t.co/wUTRN5SP5u |
| Alicia C. Staley @stales T1: Sometimes people just don't know what to say! #BCSM |
| Double Whammy @double_whammied @lizard817 I heard about that bus too!!! #bcsm |
| Inspire @InspireIsHealth RT @stales: Boom! exactly RT @danielle_dk: T1: Boom! exactly RT @danielle_dk: T1: You’re so brave or you’re a hero. Ugh. Not brave, just doing what I have to do to stay alive. #bcsm |
| Danielle Karber @danielle_dk Or how about positivity shaming? People with terminal cancer (or any cancer) are ALLOWED to have bad days. #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @BraveBosom #bcsm https://t.co/4subEf9hZB |
| IBC Research Fdn @IBCResearch First thing I was asked “weren’t you getting your mammograms?” As if getting a mammogram prevents cancer. BTW, I was 40 so no, I wasn’t getting mammograms. #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T1: T1: Sometimes people just don't know what to say! #BCSM |
| Double Whammy @double_whammied @stage4kelly Oh Kelly that is so awful. Hope you gave 'em a black eye! They are dead to me! #bcsm |
| Alicia C. Staley @stales T1: The NY Times just posted this: https://t.co/qb8IWv1xFP - What to say to someone with cancer. #bcsm |
| Alicia C. Staley @stales RT @danielle_dk: Or how about positivity shaming? People with terminal cancer (or any cancer) are ALLOWED to have bad days. #bcsm |
 | Diana M @diana78967 RT @stales: Boom! exactly RT @danielle_dk: T1: Boom! exactly RT @danielle_dk: T1: You’re so brave or you’re a hero. Ugh. Not brave, just doing what I have to do to stay alive. #bcsm |
 | Marina @4RiseUp Hi #bcsm community! 5+ years MBC, Washington DC. |
| Beverly A. Zavaleta MD @BZavaletaMD T1: How about this, The Denier. “You’ll be fine!!” (said by many acquaintances when confronted with my baldness and deathly pale face) #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @stales: T1: The NY Times just posted this: T1: The NY Times just posted this: https://t.co/qb8IWv1xFP - What to say to someone with cancer. #bcsm |
| Alicia C. Staley @stales T1: Advice on talking about cancer - "Don’t tell bad-news stories or be falsely optimistic." https://t.co/qb8IWv1xFP Thoughts? #bcsm |
| Double Whammy @double_whammied RT @MightyCasey: @stage4kelly Just sayin' #bcsm https://t.co/UfBmPTT6Rl |
| Alicia C. Staley @stales RT @DrAttai: T1 ALWAYS safe to say "I'm so sorry to hear" and then just sit there and listen! #bcsm |
| Marina @4RiseUp RT @stales: T1: T1: What's the most ridiculous thing you've heard from friends/family about your cancer? #bcsm |
| Alicia C. Staley @stales T2 coming up! #bcsm |
| Inspire @InspireIsHealth RT @stales: T1: The NY Times just posted this: T1: The NY Times just posted this: https://t.co/qb8IWv1xFP - What to say to someone with cancer. #bcsm |
| Double Whammy @double_whammied @LT_Lymphomie @stales @ErikaHamilton9 Ugh. #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 @IBCResearch Right, the automatic....”so what did you do wrong so I can falsely reassure myself I’ll never be in your shoes?” track of thinking. This happens all the time to people. If it’s not this it’s diet, or exercise, or meat, or something else. #bcsm |
 | Dr. Priya Jadeja @drpriyajadeja T1: Hi 👋 #bcsm crew! Checking in from #NewJersey |
| Howard Karpoff @doctorkarpoff RT @stales: T1: Sometimes people just don't know what to say! #BCSM The corollary - people can be well-meaning & stupid at the same time! |
| Alicia C. Staley @stales T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? #bcsm |
| Beverly A. Zavaleta MD @BZavaletaMD @IBCResearch I had a few women who were acquaintances ask about my diagnosis story in a way that felt voyeuristic. It was weird. #bcsm |
 | Coping with Cancer @Coping_Cancer RT @BZavaletaMD: @stales How about this? The best thing anyone ever said to me: @stales How about this? The best thing anyone ever said to me: “I’m here.” Just unconditional support. #bcsm. |
| Alicia C. Staley @stales @PJadeja16 hello there! #bcsm |
| Double Whammy @double_whammied @IBCResearch That is ridiculous! #bcsm🤯🤯 |
| Danielle Karber @danielle_dk What not to say... - free boob job - “good” kind of cancer - you have a good shaped head 🤦♀️#bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @MightyCasey @BraveBosom Awww Casey, how'd you snap a pic of me navigating the healthcare system recently?! #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @BZavaletaMD SO HELPFUL AMIRITE? 🙄 #bcsm |
| Inspire @InspireIsHealth RT @stales: T2: T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @BZavaletaMD This one I hear all the time. No I’m dying is what I want to say but I just nod #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 RT @stales: T2: T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? #bcsm |
| Marina @4RiseUp @stales I have an opposite experience. Never even asking how I am. Just going about their own business #bcsm |
| Strong Heart Now @StrongHeartNow1 RT @jamienholloway: When it comes to what not to say, I always think of this @emilymcdowell_ empathy card #bcsm https://t.co/D4AAVxgu80 |
 | liz @liz_liz_t RT @ErikaHamilton9: I find this fascinating - which drugs most of our 💰is spent on. I certainly expected the new #immunotherapy drugs on this list, but was surprised to see trastuzumab still on there, etc. @OncoAlert #bcsm #gyncsm https://t.co/TwxxdZpWXb |
| Alicia C. Staley @stales T2: Here's my favorite article on this topic when @double_whammied interviewed me in 2008!!!! before #bcsm "Is my cancer upsetting you?" https://t.co/q4xUJCdLvG |
| Howard Karpoff @doctorkarpoff RT @stales: T2: T2: Here's my favorite article on this topic when @double_whammied interviewed me in 2008!!!! before #bcsm "Is my cancer upsetting you?" https://t.co/q4xUJCdLvG |
| Dennis Keim @denniskeim @BZavaletaMD @IBCResearch I'm a blabber mouth when it comes to questions about my diagnosis and treatment. The teacher in me. #bcsm |
| Beverly A. Zavaleta MD @BZavaletaMD @DrAttai Second BEST thing anyone said when encountering my chemo& cancer-ridden self: “Oh Beverly I just don’t know what to say!” (And then she hugged me) I prefer honesty! #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T2: T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: I led w/humor in my own story-tell, but that's my natural state. I'm also full-disclosure person since I work freelance/solopreneur, needed to manage expectations. Blessedly, I live alone, so no one in my grill 24/7/365. That was ... good for me. #bcsm |
| Inspire @InspireIsHealth RT @stales: T2: T2: Here's my favorite article on this topic when @double_whammied interviewed me in 2008!!!! before #bcsm "Is my cancer upsetting you?" https://t.co/q4xUJCdLvG |
| Dr. Deanna Attai @DrAttai @stales @double_whammied great article! I didn't know there was a "before" #bcsm... |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stales: T2: T2: Here's my favorite article on this topic when @double_whammied interviewed me in 2008!!!! before #bcsm "Is my cancer upsetting you?" https://t.co/q4xUJCdLvG |
| Beverly A. Zavaleta MD @BZavaletaMD @PJadeja16 #bcsm Hi Doc! |
| Alicia C. Staley @stales @DrAttai @stales @double_whammied Can you believe it? She interviewed me before #BCSM was even born! |
| Danielle Karber @danielle_dk #bcsm https://t.co/lsAYg74Jy9 |
 | Cheryl White @LadyScorcher @BZavaletaMD Oh yeah. This one really sucked. The only person I want to hear this from is my oncologist. #bcsm |
| Lex @Lex_in_CO T1: Still get the occasional “ you don’t look sick” or “ I thought you BEAT it” when I mention Rx side effects or scans 🤦♀️ #bcsm |
| Alicia C. Staley @stales T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? Tweet your ideas #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales A few off the top of my head: 1. I am here to listen if you want to talk, sit silently if you don’t, or give you space. 2. Is there any concrete action I can do to help or support you? (Then do it). 3. Check in again—cancer is never just a single moment. #bcsm |
 | healincomfort.com @healincomfort RT @DiepFlapBreast: PRMA experts weigh in on Google's new #BreastCancer screening technology here... #AI #Mammogram #bcsm https://t.co/gNmYUypCFz |
| Inspire @InspireIsHealth RT @DrSGraff: @stales A few off the top of my head: 1. I am here to listen if you want to talk, sit silently if you don’t, or give you space. 2. Is there any concrete action I can do to help or support you? (Then do it). 3. Check in again—cancer is never just a single moment. #bcsm |
 | Betsey Guzior @betseyguzior @BZavaletaMD @DrAttai My friend called and said she didn’t know what to say. I thanked her later for caring enough to call. #bcsm |
| Danielle Karber @danielle_dk T2: I feel that straightforward honesty is best. No sugar coating. #bcsm |
| Alicia C. Staley @stales Great suggestion RT @danielle_dk: T2: I feel that straightforward honesty is best. No sugar coating. #bcsm |
| Alicia C. Staley @stales Nice RT @betseyguzior: My friend called and said she didn’t know what to say. I thanked her later for caring enough to call. #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 : Tell them the truth. I know we all want to make it soft but tell the truth. It’s what I would want. Put yourself in their place #bcsm |
| Julia Maués @itsnot_pink @stales Assign a communicator, don’t deal with everyone yourself #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @dammadbrstcancr @stales Oh I answered as the rest of the world...is that what we meant? #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @stales Took me eleventy hundred minutes to find this post to answer T1 but here are my "Five Things NOT to Say and a Few to Share" (circa 2013, 3 months after diagnosis) #bcsm My personal fave? “You’re strong, you’ll be fine” https://t.co/ay234QyAr1 |
 | Missy🌸Ryan @meoryan @stales My favorite is “Oh I am so glad you are over that!” #bcsm |
| Alicia C. Staley @stales RT @coffeemommy: @stales Took me eleventy hundred minutes to find this post to answer T1 but here are my "Five Things NOT to Say and a Few to Share" (circa 2013, 3 months after diagnosis) #bcsm My personal fave? “You’re strong, you’ll be fine” https://t.co/ay234QyAr1 |
| Dr. Priya Jadeja @drpriyajadeja T2: T2 1) I’m so sorry you’re going through this 2) My goal is to give you all of the information so you can be comfortable to make informed decisions 3) Please feel free to call me with any questions. #bcsm |
| Alicia C. Staley @stales @coffeemommy 111000 minutes. hee hee. #bcsm |
| Alicia C. Staley @stales RT @meoryan: @stales My favorite is “Oh I am so glad you are over that!” #bcsm |
| Inspire @InspireIsHealth RT @coffeemommy: @stales Took me eleventy hundred minutes to find this post to answer T1 but here are my "Five Things NOT to Say and a Few to Share" (circa 2013, 3 months after diagnosis) #bcsm My personal fave? “You’re strong, you’ll be fine” https://t.co/ay234QyAr1 |
| Double Whammy @double_whammied One of the things that still gets to me is telling somebody you're a #breastcancer survivor & they instantly say 'Congratulations!' cutting you off from whatever you were trying to say. #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: Think of it as if you're telling a 10yo. - Pick your moment (if at all possible) - quiet time/place, IOW not on a NYC subway platform - If it's a friend-not-fam, say "I trust you, so I'm telling you this." And ask for the level of privacy you expect. 1/2 #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales I realized I answered a “how to respond when someone tells you they have been diagnosed with cancer”....which is not what you asked. Oh well. Mondays. 🤷🏼♀️😅 #bcsm |
| Alicia C. Staley @stales @dammadbrstcancr Patient telling others about a new diagnosis. #BCSM |
| Julia Maués @itsnot_pink @stales @DrAttai @double_whammied Bookmarking to read later! #bcsm |
 | Christian Sinclair, MD, FAAHPM @ctsinclair RT @stales: T2: T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? Tweet your ideas #bcsm |
| Lex @Lex_in_CO T2: balance between pretending cancer is all I am or it’s no big deal - but understand I am still finding that balance myself. DAILY -after 6 years. #bcsm |
| Double Whammy @double_whammied 👇👇👇👇👇👇👇👇👇👇 |
| Beverly A. Zavaleta MD @BZavaletaMD @stales @double_whammied So true. Even if the cancer patient doesn’t actively caretake, we/they might minimize symptoms or fears in order to “protect” loves ones or to avoid dealing with stress of loved ones’ reactions. #bcsm |
| Strong Heart Now @StrongHeartNow1 @stales @double_whammied Wow, yes, great article! #bcsm |
| Alicia C. Staley @stales T2a: What advice would you give to a newly diagnosed person on how to share news of their cancer? #BCSM |
 | Sandra Spivey @SpiveySandra @stales T2- Guidelines: -ask me if I want to/am willing to talk about it first -don’t compare your medical experience with mine -ask questions if you want to know more. Stop asking questions if you’ve had enough -remember it can be emotionally painful to relive some experiences #bcsm |
| Double Whammy @double_whammied RT @danielle_dk: What not to say... - free boob job - “good” kind of cancer - you have a good shaped head 🤦♀️#bcsm |
| Mary L Gorden @marylgorden T2 Don't have any advice on this I had the cancer caused blood clot (PE) before the cancer dx so I just added the dx to a status report. Made it easier for me #bcsm |
| Cheryl White @LadyScorcher @itsnot_pink @stales This is the best tip. A friend sent out updates and handled the Qs. It helped so much. #bcsm |
| IBC Research Fdn @IBCResearch RT @itsnot_pink: @stales Assign a communicator, don’t deal with everyone yourself #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci Endorse!! #bcsm |
| Alicia C. Staley @stales @LT_Lymphomie @stales @double_whammied We've been at this for a while! #oldguard #bcsm |
| Marina @4RiseUp RT @DrSGraff: @stales A few off the top of my head: 1. I am here to listen if you want to talk, sit silently if you don’t, or give you space. 2. Is there any concrete action I can do to help or support you? (Then do it). 3. Check in again—cancer is never just a single moment. #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: - If it's family, you might have to do it at a distance - if at all poss, do w/video (ie Facetime, Zoom, Skype, whatevs) - Know that some peeps will make it all about them ... and don't share much w/'em after initial tell - Manage YOUR feelings, not theirs. 2/2 #bcsm |
| Marina @4RiseUp #bcsm |
| Beverly A. Zavaleta MD @BZavaletaMD @Lex_in_CO Yes! Issues of side effects or ongoing maintenance & work ups are major. #bcsm |
 | Cathy Leman, MA, RD | Dietitian & ER/PR+ Survivor @dammadbrstcancr @stales Omg it was excruciatingly difficult for me to tell ANYONE. I was very private about my dx. Ha ha now look at me here on Twitter for the universe to see. Seriously sometimes still hard. Still don’t like being the #breastcancer person. #bcsm |
| Double Whammy @double_whammied @danielle_dk The free boob job line is so offensive. Actually wrote about that too. Reconstruction is so grueling. Sometimes harder than early stg Tx. #bcsm https://t.co/pzoZHejXXP |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @SpiveySandra: @stales T2- Guidelines: -ask me if I want to/am willing to talk about it first -don’t compare your medical experience with mine -ask questions if you want to know more. Stop asking questions if you’ve had enough -remember it can be emotionally painful to relive some experiences #bcsm |
| Marina @4RiseUp #bcsm * will read |
| Double Whammy @double_whammied RT @MightyCasey: T2: T2: I led w/humor in my own story-tell, but that's my natural state. I'm also full-disclosure person since I work freelance/solopreneur, needed to manage expectations. Blessedly, I live alone, so no one in my grill 24/7/365. That was ... good for me. #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T2a: Know your audience! People hear differently. Sometimes how you tell someone may clue them in to what you need. #bcsm |
| Jamie Holloway, PhD @jamienholloway T2: I was surprised by how much I had to comfort everyone else. Lots of them cried and I had to hug them. #bcsm |
| Andrea @BraveBosom RT @MightyCasey: T2: T2: I led w/humor in my own story-tell, but that's my natural state. I'm also full-disclosure person since I work freelance/solopreneur, needed to manage expectations. Blessedly, I live alone, so no one in my grill 24/7/365. That was ... good for me. #bcsm |
| Double Whammy @double_whammied @stales @DrAttai And then met you online and in person as a fellow patient / advocate after I was diagnosed. #bcsm |
| Sandra Spivey @SpiveySandra @stales T2a- ask the newly dx’d person who they are comfy telling and who not -if working, find out how they will handle with employer - learn ADA rights -let them know however they want to handle communication, it’s fine. It’s their choice #bcsm |
 | Barrie @Barrie62722817 RT @BreastAdvocate: #SanAntonio #BreastCancer survivors bare their bodies and #Mastectomy scars. #bcsm https://t.co/2awX7BD0xu |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @SpiveySandra: @stales T2a- ask the newly dx’d person who they are comfy telling and who not -if working, find out how they will handle with employer - learn ADA rights -let them know however they want to handle communication, it’s fine. It’s their choice #bcsm |
| Double Whammy @double_whammied Great advice!!! |
| Alicia C. Staley @stales RT @SpiveySandra: @stales T2a- ask the newly dx’d person who they are comfy telling and who not -if working, find out how they will handle with employer - learn ADA rights -let them know however they want to handle communication, it’s fine. It’s their choice #bcsm |
| Double Whammy @double_whammied RT @itsnot_pink: @stales Assign a communicator, don’t deal with everyone yourself #bcsm |
| Double Whammy @double_whammied RT @coffeemommy: @stales Took me eleventy hundred minutes to find this post to answer T1 but here are my "Five Things NOT to Say and a Few to Share" (circa 2013, 3 months after diagnosis) #bcsm My personal fave? “You’re strong, you’ll be fine” https://t.co/ay234QyAr1 |
| Alicia C. Staley @stales @double_whammied @DrAttai Love this amazing connection #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @jamienholloway RIGHT? Kinda wild. #bcsm https://t.co/rrjKzezUqY |
| Cheryl White @LadyScorcher @dammadbrstcancr @jamienholloway Yes! A friend told me about the circle of comfort early on and encouraged me to establish boundaries. It helped a lot. #bcsm https://t.co/zMh6VDyLZs |
| Beverly A. Zavaleta MD @BZavaletaMD RT @MightyCasey: A2: A2: - If it's family, you might have to do it at a distance - if at all poss, do w/video (ie Facetime, Zoom, Skype, whatevs) - Know that some peeps will make it all about them ... and don't share much w/'em after initial tell - Manage YOUR feelings, not theirs. 2/2 #bcsm |
| Danielle Karber @danielle_dk T2a: That’s hard. Everyone has to do their own thing. I kept it very quiet. Family first, then very close friends. Nothing public until I had time to process. #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 T2: I got diagnosed MBC 6 weeks prior to my youngest sons wedding. I knew for him it was best to be up front but it was very difficult. Just tell people and deal with it. #bcsm |
| Mary L Gorden @marylgorden @jamienholloway #bcsm especially friends who had lost someone to cancer |
| Beverly A. Zavaleta MD @BZavaletaMD Gotta go - thank you! 💕 #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @LadyScorcher: @dammadbrstcancr @jamienholloway Yes! A friend told me about the circle of comfort early on and encouraged me to establish boundaries. It helped a lot. #bcsm https://t.co/zMh6VDyLZs |
| Erika Hamilton, MD @ErikaHamilton9 @MightyCasey @jamienholloway This kind of shocks me. How can people think that’s ok? #bcsm |
 | Pamela Dovbniak🌿 @DovbniakPamela RT @danielle_dk: What not to say... - free boob job - “good” kind of cancer - you have a good shaped head 🤦♀️#bcsm |
| Alicia C. Staley @stales What are the best articles/guides that you've seen on line that can help people "talk about cancer"? Please share! #bcsm |
| Sandra Spivey @SpiveySandra @jamienholloway I was surprised how I became the office “Illness Magnet.” https://t.co/uJa074O8QG #bcsm |
 | Lauren Nye @DrLaurenNye @stales #bcsm |
| Sandra Spivey @SpiveySandra @LadyScorcher @dammadbrstcancr @jamienholloway This is an awesome tool. #bcsm |
| Julia Maués @itsnot_pink @jamienholloway “😭 what am I gonna do when you die? 😭” #bcsm https://t.co/9p9t3Qdmen |
| Andrea @BraveBosom RT @stales: What are the best articles/guides that you've seen on line that can help people "talk about cancer"? Please share! #bcsm |
| Alicia C. Staley @stales Resources from @cancerdotnet on talking about cancer here: https://t.co/MQqkTFtzVh #BCSM |
| Julia Maués @itsnot_pink RT @stales: Resources from @cancerdotnet on talking about cancer here: Resources from @cancerdotnet on talking about cancer here: https://t.co/MQqkTFtzVh #BCSM |
| Howard Karpoff @doctorkarpoff RT @stales: Resources from @cancerdotnet on talking about cancer here: Resources from @cancerdotnet on talking about cancer here: https://t.co/MQqkTFtzVh #BCSM |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ErikaHamilton9 @jamienholloway It happens waaaay more than anyone thinks. Some of it due to humans being feelings beings. Some of it's not knowing how to deal w/those feelings. And a small slice of it is just straight up narcissists. #bcsm |
| Lex @Lex_in_CO @stales @dammadbrstcancr That was easy but it was such a whirlwind not sure I did it right. Blurt it whisper it email or post it My advice is really just know you are eating an elephant ... one bite at a time. And you are vegan and it is raw and POISONOUS so 🤷♀️ #bcsm |
| Double Whammy @double_whammied RT @MightyCasey: A2: A2: - If it's family, you might have to do it at a distance - if at all poss, do w/video (ie Facetime, Zoom, Skype, whatevs) - Know that some peeps will make it all about them ... and don't share much w/'em after initial tell - Manage YOUR feelings, not theirs. 2/2 #bcsm |
| Inspire @InspireIsHealth RT @stales: What are the best articles/guides that you've seen on line that can help people "talk about cancer"? Please share! #bcsm |
| Alicia C. Staley @stales Resources on telling others about a cancer diagnosis from @americancancer https://t.co/ARJBShMkxZ #BCSM |
| Dennis Keim @denniskeim T2a: Touch base with close friends & family initially but wait until you have things stable to tell others. I used Facebook then. #bcsm |
| Julia Maués @itsnot_pink @stales @AmericanCancer https://t.co/9zjsiMkRx1 |
 | Kathy Gori @kathygori Hi all, Just Checking in to let you know all’s good over here, just slammed with this script... I only just realized what time it is! be back soon #bcsm |
 | Nick Dawson @nickdawson RT @stales: T2: T2: If you had to write guidelines on how to tell someone about a cancer diagnosis, what would you suggest? #bcsm |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stales: Resources from @cancerdotnet on talking about cancer here: Resources from @cancerdotnet on talking about cancer here: https://t.co/MQqkTFtzVh #BCSM |
| Dr. Deanna Attai @DrAttai RT @LadyScorcher: @dammadbrstcancr @jamienholloway Yes! A friend told me about the circle of comfort early on and encouraged me to establish boundaries. It helped a lot. #bcsm https://t.co/zMh6VDyLZs |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @LadyScorcher @dammadbrstcancr @jamienholloway Love this & I share it w/ pretty much everyone. "Dump out, not in." I did have a hissy a few years ago with my husband shouting, "I'm so effin tired of being in the center of the circle. I don't WANT to be in the center of the circle, dammit." We had a good laugh later on. #bcsm |
| Lex @Lex_in_CO Yes. Had some of that too #bcsm |
| Alicia C. Staley @stales More resources on talking about a cancer diagnosis from @macmillancancer https://t.co/zq5VEqr3n7 #BCSM |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stales: Resources on telling others about a cancer diagnosis from @americancancer https://t.co/ARJBShMkxZ #BCSM |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stales: More resources on talking about a cancer diagnosis from @macmillancancer https://t.co/zq5VEqr3n7 #BCSM |
| Double Whammy @double_whammied @dammadbrstcancr @stales Totally get this. I felt very strongly abt keeping it private in the early days after diagnosis. Then bit by bit let it out. At first, tho, I practically had a spreadsheet of who knew, what they knew, when they were told, etc. #bcsm |
| Alicia C. Staley @stales How not to say the wrong thing https://t.co/NXOy9YGZV4 #BCSM |
| Andrea @BraveBosom @kathygori Hi!!! What script are you working on?! Guess what I’m going to be in a documentary with @stales !! See: @PrescriptionSM #bcsm |
| Double Whammy @double_whammied RT @SpiveySandra: @stales T2a- ask the newly dx’d person who they are comfy telling and who not -if working, find out how they will handle with employer - learn ADA rights -let them know however they want to handle communication, it’s fine. It’s their choice #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: How not to say the wrong thing https://t.co/NXOy9YGZV4 #BCSM |
| Double Whammy @double_whammied RT @stales: @double_whammied @DrAttai Love this amazing connection #bcsm |
| Andrea @BraveBosom RT @stales: How not to say the wrong thing https://t.co/NXOy9YGZV4 #BCSM |
| Howard Karpoff @doctorkarpoff RT @stales: Resources on telling others about a cancer diagnosis from @americancancer https://t.co/ARJBShMkxZ #BCSM |
| Alicia C. Staley @stales @kathygori Hi there! Thanks for checkin in. Good luck with your script! #BCSM |
| Alicia C. Staley @stales RT @denniskeim: T2a: T2a: Touch base with close friends & family initially but wait until you have things stable to tell others. I used Facebook then. #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: Yes. Had some of that too #bcsm |
| Double Whammy @double_whammied @stales @DrAttai Same. Life is funny at times, right? #bcsm |
| Double Whammy @double_whammied RT @LadyScorcher: @dammadbrstcancr @jamienholloway Yes! A friend told me about the circle of comfort early on and encouraged me to establish boundaries. It helped a lot. #bcsm https://t.co/zMh6VDyLZs |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey 'K, my tribe. I'm signing off. Officially old person (HAVE DOCUMENTS TO PROVE IT!) Gotta get up early for that mammo. 🤞🏼 Hasta la pasta! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @kathygori Writing, editing or reading for a part? #bcsm |
| Dennis Keim @denniskeim @jamienholloway I stopped telling folks I had cancer because sometimes they wanted me to keep in touch about that. I was kind of busy. :) #bcsm |
| Julia Maués @itsnot_pink RT @stales: T2: T2: Here's my favorite article on this topic when @double_whammied interviewed me in 2008!!!! before #bcsm "Is my cancer upsetting you?" https://t.co/q4xUJCdLvG |
| Jamie Holloway, PhD @jamienholloway T2: when it came to telling our neighbors, my kindergartener just ran up and announced it to everyone at the bus stop, and then ran off to play, leaving everyone staring uncomfortably at my husband. (I was at the plastic surgeon) 🤣 #bcsm |
| Double Whammy @double_whammied RT @coffeemommy: @LadyScorcher @dammadbrstcancr @jamienholloway Love this & I share it w/ pretty much everyone. "Dump out, not in." I did have a hissy a few years ago with my husband shouting, "I'm so effin tired of being in the center of the circle. I don't WANT to be in the center of the circle, dammit." We had a good laugh later on. #bcsm |
| Alicia C. Staley @stales RT @LadyScorcher: @dammadbrstcancr @jamienholloway Yes! A friend told me about the circle of comfort early on and encouraged me to establish boundaries. It helped a lot. #bcsm https://t.co/zMh6VDyLZs |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @jamienholloway So sorry #bcsm |
| Andrea @BraveBosom RT @stales: T1: The NY Times just posted this: T1: The NY Times just posted this: https://t.co/qb8IWv1xFP - What to say to someone with cancer. #bcsm |
| Cheryl White @LadyScorcher @coffeemommy @dammadbrstcancr @jamienholloway A few friends were pregnant / had newborns during chemo. They had different needs and their own circles. We worked in and out of both depending on how each of us were doing. It feelt really good when I was able to support others. #bcsm |
| Alicia C. Staley @stales Last thoughts for tonight's chat? GO! #BCSM |
| Dennis Keim @denniskeim About halfway through chemo I spilled the beans on Facebook. Kept folks interested up to speed and did some education in the process. #bcsm |
| Double Whammy @double_whammied @jamienholloway Oh no! That little sweetie! I can totally picture this. #bcsm |
| Julia Maués @itsnot_pink How to deal with OTHER PEOPLE after a cancer diagnosis THIS 👇🏼👇🏾 article is even more important one about your cancer! |
| Dennis Keim @denniskeim Lots of folks have no idea what you are going through. Heck I didn't know what i was going through! So letting folks know seems good. #bcsm |
| Double Whammy @double_whammied RT @stales: Last thoughts for tonight's chat? GO! #BCSM |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @stales I’m crying thinking about that moment you got told you had MBC and those you had to tell. How they would react. I don’t cry often or at all but it’s the hardest part. I can deal it’s those I love that I just can’t #bcsm |
| Julia Maués @itsnot_pink @stales A few of us @metavivor @bethfairchildnc @chawnte3 have something in the works on this topic! Should give us all some good laughs! #bcsm |
| Jamie Holloway, PhD @jamienholloway @denniskeim That’s a great attitude! I did try to keep in mind that they didn’t have any idea how to handle this new situation any more than I did... #bcsm |
| Howard Karpoff @doctorkarpoff Have tolerance. Nod & smile when offered advice and say 'Thank you for your concern, i've got it covered" or tell them what you need #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsnot_pink @stales @metavivor @bethfairchildnc @chawnte3 I can’t wait to see the whole thing and not just the teaser clip you shared with me! #bcsm |
| Lex @Lex_in_CO Whether the cancer pt or the friend - biggest point in my head is Just STAY - don’t have to say or do anything Hold a hand For me. Just hold my hand for a bit 💕 #BCSM |
 | Beth Oliver @thatladydoctor RT @stales: How not to say the wrong thing https://t.co/NXOy9YGZV4 #BCSM |
| Julia Maués @itsnot_pink @lizard817 @stales Telling others really is the hardest part. At first, I didn’t tell a lot of people, but had to tell my dentist, whom I really liked, and he HAD TO KNOW because Zometa affects my oral health. I bawled on the phone. Poor guy! #bcsm |
| Double Whammy @double_whammied Great chat! Wanted to let my #lobularBC peeps know abt the 2nd (ever) #lobular #breastcancer Symposium in Pittsburg mid May. Scientific meeting w/a full day just for pt advocates. More info/register here. Travel scholarships available, too! #bcsm #lobmob https://t.co/VkhM4fE2xj |
| Alicia C. Staley @stales Great advice from the chat tonight, thanks everyone! #bcsm |
| Alicia C. Staley @stales Have a great week everyone!!! #bcsm |
| Alicia C. Staley @stales GROUP HUG #bcsm |
| Alicia C. Staley @stales RT @denniskeim: Lots of folks have no idea what you are going through. Heck I didn't know what i was going through! So letting folks know seems good. #bcsm |
| Julia Maués @itsnot_pink *more important than one about... #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: Whether the cancer pt or the friend - biggest point in my head is Just STAY - don’t have to say or do anything Hold a hand For me. Just hold my hand for a bit 💕 #BCSM |
| Double Whammy @double_whammied RT @stales: Great advice from the chat tonight, thanks everyone! #bcsm |
| Alicia C. Staley @stales RT @double_whammied: Great chat! Wanted to let my #lobularBC peeps know abt the 2nd (ever) #lobular #breastcancer Symposium in Pittsburg mid May. Scientific meeting w/a full day just for pt advocates. More info/register here. Travel scholarships available, too! #bcsm #lobmob https://t.co/VkhM4fE2xj |
| Strong Heart Now @StrongHeartNow1 @stales Hugs!! #bcsm |
 | Erin Hickey Zacholski, PharmD, BCOP @ErinHZPharmD It will be a lifelong journey to figure out how best to support loved ones & patients during illness or trauma, as everyone is different, but WOW I love this perspective. “Ask yourself if what you are about to say is likely to provide comfort and support” #RespectTheRing |
| Dennis Keim @denniskeim Nice to chat tonight. Thought I'd just mention that those shoulder problems I mentioned weeks ago are improving with exercise. #bcsm |
| IBC Research Fdn @IBCResearch Have a great week all...remember when you can choose to be something #BeKind. (((Hugs))) #bcsm |
| Lex @Lex_in_CO @stales Thanks for another great chat. #bcsm sending everyone love and light this week and always |
 | Camilo V @CamiloV40451270 RT @stales: T1: T1: What's the most ridiculous thing you've heard from friends/family about your cancer? #bcsm |
| Camilo V @CamiloV40451270 RT @jamienholloway: T2: T2: I was surprised by how much I had to comfort everyone else. Lots of them cried and I had to hug them. #bcsm |
| Camilo V @CamiloV40451270 RT @LobularBCA: Do you know #lobular #breastcancer patients or caregivers interested in advocacy? #LBCA is hosting an advocates day at #Lobular2020 May 14-16 in Pittsburgh. Advocate scholarships. Learn more. https://t.co/2UhallC9Kw #bcsm @double_whammied @MichelleTregear |
| Camilo V @CamiloV40451270 RT @stales: T1: T1: Let's talk about... "talking about Cancer" #bcsm |
 | Matthew Oberley @matthewoberley RT @jamienholloway: Hi #bcsm friends— Jamie in NoVA. 7+ years NED after stage 2 TNBC. Scientist and advocate. |
| Camilo V @CamiloV40451270 RT @jamienholloway: Hi #bcsm friends— Jamie in NoVA. 7+ years NED after stage 2 TNBC. Scientist and advocate. |
| Jamie Holloway, PhD @jamienholloway RT @double_whammied: Great chat! Wanted to let my #lobularBC peeps know abt the 2nd (ever) #lobular #breastcancer Symposium in Pittsburg mid May. Scientific meeting w/a full day just for pt advocates. More info/register here. Travel scholarships available, too! #bcsm #lobmob https://t.co/VkhM4fE2xj |
| IBC Research Fdn @IBCResearch @MightyCasey @stales Thank you...I’m recovering well. Good path report. Glad it was dx early stage and all the #stuff is gone! Onward in 2020! Best wishes to your sister @MightyCasey #bcsm |
| Alicia C. Staley @stales @denniskeim That's good to hear! #bcsm |
| Alicia C. Staley @stales Night night everyone! #bcsm |
| Inspire @InspireIsHealth RT @double_whammied: Great chat! Wanted to let my #lobularBC peeps know abt the 2nd (ever) #lobular #breastcancer Symposium in Pittsburg mid May. Scientific meeting w/a full day just for pt advocates. More info/register here. Travel scholarships available, too! #bcsm #lobmob https://t.co/VkhM4fE2xj |
| Jamie Holloway, PhD @jamienholloway Good night all! 💕 #bcsm |
 | OncLive.com @OncLive Martine J. Piccart, MD, PhD, of @JulesBordet discusses the 6-year follow-up of the APHINITY trial and its impact on the #breastcancer field #bcsm https://t.co/ANjwVzSnkT |
| Julia Maués @itsnot_pink @IBCResearch Always! With my role model @IBCnurse how can I choose to be anything else? #bcsm https://t.co/jLMVo8zKoM |
#BCSM content from Twitter.