#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Dr. Kelly Shanahan @stage4kelly Hi all. After almost 10 days of snow or rain, the sun finally appeared at Lake Tahoe!! A happy Kelly, former ob/gyn current MBC patient checking in. #bcsm |
| Dr. Kelly Shanahan @stage4kelly The $5 billion to build a wall could fund a hell of a lot of #research #bcsm |
 | Howard Karpoff @doctorkarpoff Hi braest surgeon from slightly upstate NY lurking... #bcsm |
 | Dr. Deanna Attai @DrAttai @doctorkarpoff Howard thanks for all your meeting tweets over the weekend - was following along! #bcsm |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff Hello friends. Breast med onc in KC. #bcsm |
| Howard Karpoff @doctorkarpoff That's breast surgeon...after 12 hours at the keyboard....transposing way to much #bcsm |
 | IBC Research Fdn @IBCResearch You got that right @stage4kelly !! So much research is needed that will benefit people rather than separate them. #bcsm |
 | Mary L Gorden @marylgorden Mary in the Sierra foothills and glad to see the snow melting joining the conversation Finished TX for bc in October #BCSM |
 | Alicia C. Staley @stales Good evening #bcsm |
 | Dr_Dana @Dr_Dana Hello all👋🏻 Breast surgeon in Little Rock.Listening and learning. #bcsm |
| Howard Karpoff @doctorkarpoff @DrAttai Deanna - hope my tweets didn't make you too crazy ; was just warming up for the ASBrS tweet-fest #bcsm |
| Dr. Deanna Attai @DrAttai @doctorkarpoff I found it helpful, looked like a good conference #bcsm |
 | Emily Garnett @emrgarnett Emily here, 33yo, living with MBC since 11/2017, baker of fantastic chocolate chip cookies, mom to a 3yo, and lover of cats, extensive mets to bones, currently on a clinical trial for ER+ MBC (2nd line of trent) #bcsm |
 | Jamie Holloway, PhD @jamienholloway Hi #bcsm friends, Jamie in NoVA. 6+yrs NED after early stage TNBC. Scientist and advocate. |
| IBC Research Fdn @IBCResearch Saying hi from Indiana. TN #IBC dx 1994, will mark 25 yr from dx next month. RN involved in 24/7 #breastcancer advocacy #bcsm |
| Jamie Holloway, PhD @jamienholloway @itsthebunk Hi friend, good to see you here again! #bcsm |
| IBC Research Fdn @IBCResearch @itsthebunk Howdy Ms Liza! Good to 'see' you 😀#bcsm |
| Alicia C. Staley @stales KNOCK KNOCK ... is this thing on? #bcsm |
| Alicia C. Staley @stales @DrAttai hi there! #bcsm |
| Howard Karpoff @doctorkarpoff @DrAttai nice meeting Smallish, multidisciplinary Nice location #bcsm |
| Alicia C. Staley @stales @doctorkarpoff hello, hello! #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci @stales Hi friends! 👋🏼 I’m Hillary, a postdoc at @Lombardi coming down off a high of a weekend at the #AAASMtg. And knitting because @itsnot_pink tweeted about it earlier and it got me thinking... 🧶 🤗 #bcsm |
| Alicia C. Staley @stales @lindafrembes welcome back! #bcsm |
| Alicia C. Staley @stales @itsthebunk hello, do I know you? LOL #bcsm |
 | Rod Ritchie @malefitness Now five years since the start of treatment. Five years wiser about this disease that I now know men can get too. NED. #bcsm |
| Alicia C. Staley @stales @jamienholloway HEY #bcsm |
| Alicia C. Staley @stales @IBCResearch HI !! how are you? #bcsm |
| Alicia C. Staley @stales @malefitness hey Rod, nice to see you! #bcsm |
 | NCI Cancer Stats @NCICancerStats In 2015, there were an estimated 3,418,124 women living with female #BreastCancer in the US. Find more statistics on this cancer type here: https://t.co/JNI015e0Zq #BCSM https://t.co/kIg65NvQ4T |
| Alicia C. Staley @stales It's open mic night on #BCSM --- that means, anything goes! |
| Alicia C. Staley @stales What's on your mind? What would YOU like to talk about? #bcsm |
| Alicia C. Staley @stales @lindafrembes Stay tuned into #BCSM - it's all good here. |
| Dr. Deanna Attai @DrAttai RT @stales: It's open mic night on #BCSM --- that means, anything goes! |
 | Daniel Stover, MD, FASCO @StoverLab Hey all - I’m Dan, a med onc from Ohio back for part of tonight after missing too many weeks! #bcsm |
| Alicia C. Staley @stales Head's up #BCSM --- I'm at #SCOPE2019 all week. If there is something on the agenda that you'd like to learn about, let me know! |
| Dr. Deanna Attai @DrAttai @stales what's the conf about? #bcsm |
 | Aleksandra Popadich @alexpopadich RT @ETSshow: I’m so proud of this #MedThread about Explore The Space ep w/ my wife talking about #breastcancer Please read, please listen, please share. Thank you @DrAttai for putting this forward! https://t.co/F5x55vjmwD |
| Alicia C. Staley @stales Here is the link to the @SCOPESummit https://t.co/KoVOAJmhiO #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: Here is the link to the @SCOPESummit https://t.co/KoVOAJmhiO #bcsm |
 | Dr. Alison Obr @AlisonObrPhD @HillStirSci @stales @Lombardi @itsnot_pink Hello everyone! 👋🏼 I'm Alison, a postdoc @RutgersBHS decompressing from a day full of experimental setup to learn more about tyrosine kinase signaling and metastasis. And watching basketball, because it's my second love. 😊 #bcsm |
| Alicia C. Staley @stales @DrAttai clinical trials, clinical operations... With a nice focus on how to educate PATIENTS about clinical research #bcsm |
| Dr. Kelly Shanahan @stage4kelly @StoverLab Hi Dan!! #bcsm |
 | Frank Ingram, MD @Chucktowndoc Hi! I’m Frank, a community pathologist in Charlotte, NC. I sign out breast biopsies, lumpectomies and mastectomies almost every day. #BCSM |
| Alicia C. Staley @stales @bridienixon @bridienixon check with @6state - she would be the best resource ---- #BCSM Terri - please see this question from @bridienixon |
| Dr. Kelly Shanahan @stage4kelly @stales @DrAttai Hope to get the opportunity to educate the researchers, trial sponsors, etc about the importance of involving patients/advocates from the earliest stages - conception through inception and beyond #bcsm |
 | Kathy Gori @kathygori Hey there all! 2x bc’er here checking in from cold cold cold Northern Ca 🍷country. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @AlisonObrPhD @stales @Lombardi @itsnot_pink @RutgersBHS Hi friend!!! #bcsm |
| Alicia C. Staley @stales @lindafrembes Any thoughts here? Need help with new onc --->>>> RT @lindafrembes: My onco recently left the state to join a private practice. Any tips on searching for a new one after almost 5 years with my 1st doc? #bcsm |
| Alicia C. Staley @stales @AlisonObrPhD @HillStirSci @Lombardi @itsnot_pink @RutgersBHS Welcome! #BCSM |
 | Julia Maués @itsnot_pink @stales Hi #bcsm! Julia in DC living with MBC. I’ll try to join in a little bit, still have an awake kid! |
| Dr. Deanna Attai @DrAttai @lindafrembes you could check w/your surgeon or rad onc (if you did radiation) for suggestions, also breast imaging center if there is a nurse navigator might be of help #bcsm |
 | @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @stales: What are the first words that come to mind when you think of a clinical trial? Any thoughts? #BCSM #LCSM #GYNSCM #MMSM #BTSM #scope2019 |
 | Social✽Fly @socflyny @DrAttai @ESchattner @NPR Great job Elaine -- very powerful. #bcsm |
| Emily Garnett @emrgarnett @itsnot_pink @stales So do I! #bcsm (although he's *supposed* to be in bed...) |
| Social✽Fly @socflyny Powerful. #StageIVNeedsMore #bcsm #MetsMonday |
 | Linda Frembes @lindafrembes @DrAttai Thank you! #bcsm |
| Alicia C. Staley @stales @emrgarnett @itsnot_pink Stop by anytime! good luck! #BCSM |
| Dr. Deanna Attai @DrAttai RT @stage4kelly: @stales @DrAttai Hope to get the opportunity to educate the researchers, trial sponsors, etc about the importance of involving patients/advocates from the earliest stages - conception through inception and beyond #bcsm |
 | Janice Radak @jantrad RT @annepeledmd: Wondering where your #lumpectomy scars will be? In nearly all cases (and for removal of benign lumps too!), scars can be hidden so that they can barely be seen once they’ve fully healed. #OncoplasticSurgery #bcsm #hiddenscar https://t.co/9OdL9tJ1e7 https://t.co/OwFnVmDxdE |
| Social✽Fly @socflyny @stales "Try the veal, I'll be here all week ..." ~ Alicia Staley 😁#bcsm https://t.co/r2ZI3ImVlN |
| Emily Garnett @emrgarnett @socflyny @DrAttai @ESchattner @NPR Agreed - such an incredible piece. It was a huge honor to be a part of it. #bcsm |
| Emily Garnett @emrgarnett RT @socflyny: Powerful. #StageIVNeedsMore #bcsm #MetsMonday |
| Dr. Kelly Shanahan @stage4kelly I’m packing for my trip to India with @afreshchapter, cancer patients and caregivers volunteering with a cancer support organization in Delhi - just hope the snow stays away long enough for me to get to SF for my flight Thursday! #bcsm |
| Kathy Gori @kathygori @socflyny @stales Don’t forget to tip your waiter #bcsm |
 | Tori Geib @ChefGeib Hi all! This is Tori from Ohio! #MBC Patient and Advocate #bcsm |
 | Caregiver ✝️💞🙏🇵🇸 @stevecripe57 RT @findlungcancer: Primary Care Docs Ambivalent About Cancer Decisions | Medpage Today #bcsm @coffeemommy @MightyCasey https://t.co/esy7RNBa2h |
| Emily Garnett @emrgarnett anyone had a MBC tumor mutation from HR+ to way less hormone sensitive? #BCSM |
| Dr. Kelly Shanahan @stage4kelly @emrgarnett @socflyny @DrAttai @ESchattner @NPR Were you one of the models Emily? Absolutely amazing and powerful!! #bcsm |
| Dr. Deanna Attai @DrAttai @lindafrembes also if onc was in a group practice may want to try one of his/her partners first. It may take a while to find the right fit #bcsm |
 | Dr. Aimee Sanchez-Zadak @DrAimeeZadak RT @BreastAdvocate: What factors helped you decide preventative #mastectomy was the best choice for you? #breastcancer #bcsm #BRCA https://t.co/mPuq3qKh4D |
 | wwLeslie @wwleslie Sorry to be late I’ve got a kiddo with ear infection. I’m a 3 yr Her2 positive IDC and DCIS survivor. Hello all! #bcsm |
| Alicia C. Staley @stales @wwleslie hi there #bcsm |
| Alicia C. Staley @stales @ChefGeib hello, hello #bcsm |
| Emily Garnett @emrgarnett @stage4kelly @socflyny @DrAttai @ESchattner @NPR I was!!! It was just unbelievably incredible and empowering. #bcsm (I was in the @empowerhausco 1 in 3 tee) |
| Alicia C. Staley @stales @kathygori @socflyny LOLOLOLOLOLOL #BCSM |
| wwLeslie @wwleslie Btw you usually know me on my other account. I offered to buy the 1st round of drinks today! #bcsm |
| Alicia C. Staley @stales Can anyone provide some insights here? @MBC_Project @MBCNbuzz #BCSM |
| IBC Research Fdn @IBCResearch @stage4kelly @afreshchapter Will be thinking of you and all the others going to India! Want to hear all about it when you return ❤️ Give a hug to @terriwingham @afreshchapter #bcsm |
| Emily Garnett @emrgarnett @stage4kelly @afreshchapter Fingers crossed for you, that sounds like an amazing, and much needed refresh after such intense advocacy #bcsm |
| Dr. Deanna Attai @DrAttai @emrgarnett that's not uncommon - tumor essentially "loses" the receptor - important that mets be tested as they may be different subtype from the original lesion #bcsm |
| Emily Garnett @emrgarnett @ChefGeib hi Tori! Thank you for all of the fantastic advocacy work you do. #bcsm |
| IBC Research Fdn @IBCResearch @itsnot_pink @stales Big hug to you Julia! Looking forward to seeing you before too long!! #bcsm |
| wwLeslie @wwleslie @DrAttai @emrgarnett I never knew this. #bcsm |
| Alicia C. Staley @stales @wwleslie LOLOL drinks for everyone #bcsm |
| Tori Geib @ChefGeib @emrgarnett Thank you @emrgarnett 💙 You rocked the #NYFW Show! #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales @MBC_Project @MBCNbuzz Unfortunately, endocrine resistance is a big problem in HR+ MBC. So the "good" news is that your onc should have some experience there... #BCSM |
| Emily Garnett @emrgarnett @stage4kelly @DrAttai @stales I've been working on this as well. Possibly giving a talk in April to a group of Radiologists, and looking forward to being able to bridge the gap between the patient and medical communities #bcsm |
| wwLeslie @wwleslie Question...do we ever “grow out of” our long term chemo side effects? #bcsm |
| IBC Research Fdn @IBCResearch Anyone going to @YSCBuzz Summit in Austin March 8-10? We'll be exhibiting there, so stop by and say hi if you're there! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @stales @MBC_Project @MBCNbuzz Certainly lots of people have their receptor status change with mets, just not me personally. I do have one friend who has each of the 3 major subtypes in 3 different organs. #bcsm |
| Alicia C. Staley @stales RT @emrgarnett: @stage4kelly @DrAttai @stales I've been working on this as well. Possibly giving a talk in April to a group of Radiologists, and looking forward to being able to bridge the gap between the patient and medical communities #bcsm |
| Dr. Deanna Attai @DrAttai @wwleslie @emrgarnett When it happens usually goes ER+ -> neg or Her2+ -> neg - obviously can have big implications for treatment #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: @stales @MBC_Project @MBCNbuzz Certainly lots of people have their receptor status change with mets, just not me personally. I do have one friend who has each of the 3 major subtypes in 3 different organs. #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: @stales @MBC_Project @MBCNbuzz Unfortunately, endocrine resistance is a big problem in HR+ MBC. So the "good" news is that your onc should have some experience there... #BCSM |
| Emily Garnett @emrgarnett @stales possible placebo. Although I'm currently in a trial and there's no placebo trial (its stage Ib and a dosing stage). So much to learn about how trials work. #bcsm |
| Alicia C. Staley @stales RT @emrgarnett: @stales possible placebo. Although I'm currently in a trial and there's no placebo trial (its stage Ib and a dosing stage). So much to learn about how trials work. #bcsm |
| wwLeslie @wwleslie @DrAttai @emrgarnett For sure! That would be very different. #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales @MBC_Project @MBCNbuzz And while sometimes different lesions will have different HR expression, sometimes even with ER expression tumors can become resistant to hormonal therapy. #BCSM |
| IBC Research Fdn @IBCResearch @wwleslie I'm coming up on 25 yr from diagnosis and continue to have #chemobrain issues, have developed #cardiac problems and bones are a mess. Grateful to be here but living with #colateraldamage for sure #bcsm |
| Tori Geib @ChefGeib @IBCResearch @YSCBuzz I wish! It’s actually the same weekend as @KomenNEOhio ‘s MBC Symposium. These next couple months are going to be crazy busy #bcsm |
| Dr. Deanna Attai @DrAttai RT @jamienholloway: @stales @MBC_Project @MBCNbuzz And while sometimes different lesions will have different HR expression, sometimes even with ER expression tumors can become resistant to hormonal therapy. #BCSM |
| Dr. Kelly Shanahan @stage4kelly @emrgarnett @stales In oncology trials no one gets only a placebo - always get SOC at least. Can be SOC + new drug or SOC with placebo or comparison of SOC vs new drug. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @DrAttai @emrgarnett It’s about 20-25% of ER+ breast cancer. Mutations are largely random. We think the ones that “stick” help the cancer grow. When an anti-estrogen is on board, cells with normal ER don’t grow, so if there is a mutation, they grow out instead. #bcsm https://t.co/ff6VyAHefa |
 | Liza B @itsthebunk RT @IBCResearch: @wwleslie I'm coming up on 25 yr from diagnosis and continue to have #chemobrain issues, have developed #cardiac problems and bones are a mess. Grateful to be here but living with #colateraldamage for sure #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: @emrgarnett @stales In oncology trials no one gets only a placebo - always get SOC at least. Can be SOC + new drug or SOC with placebo or comparison of SOC vs new drug. #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: @stales @MBC_Project @MBCNbuzz And while sometimes different lesions will have different HR expression, sometimes even with ER expression tumors can become resistant to hormonal therapy. #BCSM |
 | Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara RT @matteolambe: |
| Mary L Gorden @marylgorden @wwleslie #bcsm probably never lose the tendency to have scanxiety |
| Alicia C. Staley @stales Anyone going? RT @IBCResearch: Anyone going to @YSCBuzz Summit in Austin March 8-10? We'll be exhibiting there, stop by and say hi #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @DrAttai @emrgarnett P.S. ESR1 and ER are both estrogen receptor. ESR1 is the code for the gene while ER designates the protein. #bcsm |
| wwLeslie @wwleslie @IBCResearch So 2 yrs post chemo I shouldn’t expect this to be gone yet. #bcsm |
| Tori Geib @ChefGeib RT @stage4kelly: @emrgarnett @stales In oncology trials no one gets only a placebo - always get SOC at least. Can be SOC + new drug or SOC with placebo or comparison of SOC vs new drug. #bcsm |
| wwLeslie @wwleslie @itsthebunk @IBCResearch Yes that really defines it. And friends who were there during the initial crisis aren’t always there for the #collateraldamage. #bcsm |
 | Gary L. Thompson @garyleethompson Checking in late #bcsm friends. Our vestry meeting just ended. 🙏🏻🙏🏻 |
| Howard Karpoff @doctorkarpoff RT @HillStirSci: @DrAttai @emrgarnett P.S. ESR1 and ER are both estrogen receptor. ESR1 is the code for the gene while ER designates the protein. #bcsm |
| wwLeslie @wwleslie @itsthebunk I want my old digestive system back. I have not been able to eat my normal menu since chemo. Most things I got back, but some cause terrible problems ever since. If I could magically change things-that’s the side effect I’d get rid of. (First) #bcsm |
 | patty spears @paspears88 @StoverLab Hi @StoverLab been wanting to ask... re PANACEA... small study... 15% OR in PD-L1pos... doesn't look that great (to me).... I saw lots of positive tweets about it though... is the bar for br ca IO really that low? Educate us!! #bcsm |
| Jamie Holloway, PhD @jamienholloway @wwleslie @IBCResearch Some lessen with time. Some don't. Always worth asking your oncologist if there is away to help. #BCSM |
| Rod Ritchie @malefitness Interesting read. #bcsm |
| Jamie Holloway, PhD @jamienholloway @wwleslie @IBCResearch (i.e., working with a speech pathologist can really help with chemo brain!) #bcsm |
| Gary L. Thompson @garyleethompson I’ll be there!! This one is close. Like backyard!! #bcsm |
| Dr. Deanna Attai @DrAttai RT @HillStirSci: @DrAttai @emrgarnett It’s about 20-25% of ER+ breast cancer. Mutations are largely random. We think the ones that “stick” help the cancer grow. When an anti-estrogen is on board, cells with normal ER don’t grow, so if there is a mutation, they grow out instead. #bcsm https://t.co/ff6VyAHefa |
| Social✽Fly @socflyny @emrgarnett @DrAttai @ESchattner @NPR I'd love to connect with you offline about some of the details/sponsors if you'd be open to that, Emily. #bcsm |
| wwLeslie @wwleslie @jamienholloway @IBCResearch He says no. He also thinks Tamoxifen doesn’t cause fatigue or sexual side effects, so.... He’s good at treating the cancer, but not the side effects of hormone treatment. #bcsm |
 | Katherine OBrien @ihatebreastcanc @stales @IBCResearch @YSCBuzz @mbcnbuzz and @christeeny513 will be there on behalf of the @mbcalliance @MetastaticOdds will be there too #bcsm #mbcconnect |
| Jamie Holloway, PhD @jamienholloway @itsthebunk @wwleslie @IBCResearch Several friends have found it SO helpful. Simple steps have made a big difference. #bcsm |
| Alicia C. Staley @stales RT @ihatebreastcanc: @stales @IBCResearch @YSCBuzz @mbcnbuzz and @christeeny513 will be there on behalf of the @mbcalliance @MetastaticOdds will be there too #bcsm #mbcconnect |
| wwLeslie @wwleslie @itsthebunk One support group I’m on someone else posted about it and so many women chimed in! It’s like we all thought we were alone but really we were united with this. We all had different things we could no longer eat but the pattern was the same for all of us. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @HillStirSci @DrAttai @emrgarnett I would add that a decrease in number (ER 99% to ER 38%) is still ER+ breast cancer and treatment may continue to focus on ER pathways like PI3K or mTOR to overcome emerging resistance. #bcsm |
| Emily Garnett @emrgarnett @HillStirSci @DrAttai This is so helpful and interesting. Although still frustrating to think about from a treatment/longetivity standpoint. We still have such a long ways to go, research-wise. #bcsm |
| wwLeslie @wwleslie @jamienholloway @itsthebunk @IBCResearch This is why I love support groups-and online support. Only those of us who have been through it know what it’s all like. We have ideas to share and support to give. The club no one ever wanted to be part of! #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @emrgarnett @DrAttai Working on it! ❤️❤️ #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher Really??? I think I'll schedule an appointment in the morning! #BCSM #MMSM |
| wwLeslie @wwleslie @itsthebunk @jamienholloway @IBCResearch Yeah. That’s my point. Love my onc, but sometimes as to the management of side effects, he’s just wrong. I have a great onc therapist though who is very helpful. #bcsm |
| Julia Maués @itsnot_pink @stales @emrgarnett Made it! What are we talking about? #bcsm |
| Alicia C. Staley @stales RT @IBCResearch: @wwleslie I'm coming up on 25 yr from diagnosis and continue to have #chemobrain issues, have developed #cardiac problems and bones are a mess. Grateful to be here but living with #colateraldamage for sure #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: @wwleslie @IBCResearch (i.e., working with a speech pathologist can really help with chemo brain!) #bcsm |
| Emily Garnett @emrgarnett @DrAttai agreed - I'm currently in a clinical trial, and as part of the trial they are doing a bone biopsy - I had one in dec. 2017, one in jan. 2019, and a third last week. #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: @itsthebunk @wwleslie @IBCResearch Several friends have found it SO helpful. Simple steps have made a big difference. #bcsm |
| Alicia C. Staley @stales RT @wwleslie: @jamienholloway @itsthebunk @IBCResearch This is why I love support groups-and online support. Only those of us who have been through it know what it’s all like. We have ideas to share and support to give. The club no one ever wanted to be part of! #bcsm |
| Alicia C. Staley @stales @jamienholloway @itsthebunk @wwleslie @IBCResearch Never heard of this !! #bcsm |
| Emily Garnett @emrgarnett @DrSGraff @HillStirSci @DrAttai yes - Although mine dropped to 2% which is not a lot of estrogen receptors. I'm going to hopefully talk to my oncologist this/next week and game plan. #bcsm |
| Alicia C. Staley @stales @itsnot_pink @emrgarnett It's open mic night - topic is anything you want to talk about. Question for #BCSM - just send it out! |
 | SPECFORD59 @SPECFORD59 @jamienholloway @wwleslie @IBCResearch Fascinating idea. Not to doubt you one bit but has this been studied? #BCSM |
| Hillary (Stires) Andrews, PhD @HillStirSci @DrSGraff @DrAttai @emrgarnett Thanks @DrSGraff, good call! Moving between endocrine therapies can help too. There’s some work on better ER targeted therapies including oral biosimilars to Faslodex. And we can’t forget the ciclibs aka the CDK4/6 inhibitors! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @emrgarnett @HillStirSci @DrAttai Markers can also be unreliable on bone biopsies FWIW. #Bcsm |
 | Jack Warner @JackWarner16 RT @malefitness: Now five years since the start of treatment. Five years wiser about this disease that I now know men can get too. NED. #bcsm |
| wwLeslie @wwleslie @stales @itsnot_pink @emrgarnett Someone reached out a grabbed my “foobs” last week. Without asking. In public. Didn’t believe they were fake. On the bright side-she told me they felt real to her, so.... 😂 #bcsm |
| Jamie Holloway, PhD @jamienholloway @SPECFORD59 @wwleslie @IBCResearch That I don't know. But several people in my group have gone-- one in our community hospital, one in the military medical system. They had an initial assessment followed by an intervention plan. #bcsm |
| Dr. Deanna Attai @DrAttai @wwleslie @stales @itsnot_pink @emrgarnett what the... #bcsm |
 | Joan Mancuso @2020VisionGirl RT @tmprowell: Looking forward to chairing a session at upcoming FDA-NBTS public workshop on drug dev for #brainmets & LMD. Ambitious agenda & outstanding lineup of speakers. Registration open now. Join us in person or online 3/22/19. #bcsm #lcsm #kcsm #btsm #melsm |
| wwLeslie @wwleslie @marylgorden @itsthebunk @jamienholloway @IBCResearch Therapist who specializes with cancer patients and survivors. My cancer center offeres it. #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @jamienholloway @wwleslie @IBCResearch This makes sense. Many of the symptoms I am experiencing r the same as the LD students I taught. Speech therapy was always part of the IEP- for language processing, not articulation #BCSM #MMSM |
| wwLeslie @wwleslie @DrAttai @stales @itsnot_pink @emrgarnett Gotta laugh it off. Laugh or cry seem to be my options to deal with things that bother me. I choose laugh for this one. #bcsm |
 | YAG Foundation @FoundationYag RT @CDC_Cancer: Breast cancer screenings can find breast cancer early, when it is easier to treat. When you need to get a mammogram: Breast cancer screenings can find breast cancer early, when it is easier to treat. When you need to get a mammogram: https://t.co/39ZZpiSSvC #BCSM https://t.co/DyuFI4ztbh |
| Emily Garnett @emrgarnett @DrSGraff @HillStirSci @DrAttai that is good to know! *retreats from downward panic spiral* #bcsm |
| Gary L. Thompson @garyleethompson @stage4kelly This makes me happy to know you will soon be with dear friend @terriwingham and @afreshchapter in India!! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @jamienholloway @wwleslie @IBCResearch I refer for this regularly. Also PT/OT. I get resistance from patients—they think I’m dismissing them—but then it gets better and they are all “wow that worked!” #bcsm |
| wwLeslie @wwleslie @itsthebunk @marylgorden @jamienholloway @IBCResearch Yes #bcsm |
| Mary L Gorden @marylgorden @itsthebunk @wwleslie @jamienholloway @IBCResearch #bcsm Thanks sounds like help I could have used |
| SPECFORD59 @SPECFORD59 @itsthebunk @marylgorden @wwleslie @jamienholloway @IBCResearch I asked on an earlier chat if there was an organization of oncology trained psychology/ counselor peoples. Is there such? #bcsm |
| Liza B @itsthebunk @DrSGraff @jamienholloway @wwleslie @IBCResearch Sounds good! What types of symptoms do you refer patients to PT/OT for? #bcsm |
| Emily Garnett @emrgarnett @HillStirSci @DrSGraff @DrAttai I'm on a trial for that right now! It's been a dream drug - zero side effects. Honestly amazing. I progressed off Palbo in december, and scans for the clinical trial are next week so fingers crossed it's working. #bcsm |
| Julia Maués @itsnot_pink How awesome is it that the NYFW show by @AnaOnoIntimates with just MBC patients as models made it to @NPR with a great article by @ESchattner?! Plus all proceeds went to @metavivor, totaling over $100k! https://t.co/z47Uqt8WzC #bcsm |
| Gary L. Thompson @garyleethompson Not sure if I have shared #TheLoveofMyLife | From The Heart with #bcsm but with some new folks here and it being open mic night, seems appropriate. Recorded less than 6 months after Maureen's passing on 10.21.2014 https://t.co/m7ZHrL4z9S |
| wwLeslie @wwleslie @itsthebunk @stales @itsnot_pink @emrgarnett 🎶Reach out and touch....somebody’s..... 😂🤣😂#bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @emrgarnett @DrSGraff @DrAttai 🤞🏼🤞🏼🤞🏼 sending so many good vibes for that! ❤️❤️ #bcsm |
| wwLeslie @wwleslie @SPECFORD59 @itsthebunk @marylgorden @jamienholloway @IBCResearch I can ask her and report back. #bcsm |
| Jamie Holloway, PhD @jamienholloway @SPECFORD59 @itsthebunk @marylgorden @wwleslie @IBCResearch Many cancer centers have a social worker as part of their program. Also other centers that have services for cancer patients have them. Not sure if there is a national organization. #bcsm |
| Dr. Deanna Attai @DrAttai @SPECFORD59 @itsthebunk @marylgorden @wwleslie @jamienholloway @IBCResearch good question, don't know of one, and have a hard time finding oncology trained psychologists for pts #bcsm |
| Emily Garnett @emrgarnett @itsnot_pink @stales welcome!!!! (mine is still wandering around upstairs, but isn't yelling any more..) #bcsm Just talking about my saga of estrogen sensitivity. So much good knowledge from @HillStirSci and @DrAttai |
| wwLeslie @wwleslie @itsthebunk @marylgorden @jamienholloway @IBCResearch I think it’s incredibly helpful. I’m working on body image issues with her right now. #bcsm |
| Emily Garnett @emrgarnett @itsnot_pink @stales and @DrSGraff !!! #bcsm |
| Katherine OBrien @ihatebreastcanc @DrSGraff @emrgarnett @HillStirSci @DrAttai @mbcnbuzz Shirley Mertz had a metastatic recurrence to liver and spine in 2003...her former oncologist didn’t biopsy the new tumor(s) and treated her early stage subtype...but the recurrence was HER2+ https://t.co/DRLh3Rnce1 #secondopinionscansavelives #bcsm https://t.co/WblOklrSJk |
| Jamie Holloway, PhD @jamienholloway @itsnot_pink @AnaOnoIntimates @NPR @ESchattner @metavivor Great show! I could see @ESchattner sitting on the front row taking notes for this article! Excellent piece, Elaine! #bcsm |
| Emily Garnett @emrgarnett @HillStirSci @DrSGraff @DrAttai TY!!!!!!!! #BCSM |
 | Enlightening Results 💡 @GraceCordovano Hi #bcsm friends! Curious if anyone had any thoughts on this report on self-compression during mammograms? Thinking of trying this at my next one. https://t.co/22wrIz6QWj #bcsm |
| Emily Garnett @emrgarnett @ihatebreastcanc @DrSGraff @HillStirSci @DrAttai @MBCNbuzz I have to say, that's one of the things i love most about my onc at @sloan_kettering - she is so thorough. She was my second opinion, and pushed for a biopsy of the bone metastases. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @itsthebunk @jamienholloway @wwleslie @IBCResearch Difficulty concentrating, fatigue, drowsiness, decline in executive function, word finding, neuropathy...uh, everything actually #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @SPECFORD59 @itsthebunk @marylgorden @wwleslie @jamienholloway @IBCResearch https://t.co/2b7W49XNVj #BCSM #MMSM |
| wwLeslie @wwleslie @DrSGraff @itsthebunk @jamienholloway @IBCResearch You’ve described me right there. #bcsm |
| Emily Garnett @emrgarnett @itsnot_pink @stales @HillStirSci @DrAttai I'm not sure - going to talk to onc about it this week. I think 2% ER+ which is technically still ER+, but explains december's progression. #bcsm |
| Liza B @itsthebunk @DrSGraff @jamienholloway @wwleslie @IBCResearch Wow - I could have used the help/referral! #bcsm |
| Mary L Gorden @marylgorden @jamienholloway @SPECFORD59 @itsthebunk @wwleslie @IBCResearch #bcsm Both my med onc and rad onc had a SW that were helpful |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @DrSGraff @itsthebunk @jamienholloway @wwleslie @IBCResearch Do you know if these services are covered by Medicare? #BCSM #MMSM |
| Emily Garnett @emrgarnett RT @itsnot_pink: How awesome is it that the NYFW show by @AnaOnoIntimates with just MBC patients as models made it to @NPR with a great article by @ESchattner?! Plus all proceeds went to @metavivor, totaling over $100k! https://t.co/z47Uqt8WzC #bcsm |
| Dr. Deanna Attai @DrAttai good night everyone #bcsm |
| Emily Garnett @emrgarnett RT @jamienholloway: @itsnot_pink @AnaOnoIntimates @NPR @ESchattner @metavivor Great show! I could see @ESchattner sitting on the front row taking notes for this article! Excellent piece, Elaine! #bcsm |
| Social✽Fly @socflyny @stales @IBCResearch @YSCBuzz No, but I would love to get there! (Alicia, see your DM -- interesting timing) #bcsm |
| Jamie Holloway, PhD @jamienholloway Night, kids. Loads of laundry are calling my name. Miles to go before I sleep... ;) See you next week! #bcsm |
| Alicia C. Staley @stales Good night everyone! so nice to see you. Look forward to these chats. #bcsm |
| Katherine OBrien @ihatebreastcanc @emrgarnett @DrSGraff @HillStirSci @DrAttai @MBCNbuzz @sloan_kettering Shirley will tell you that her experience prompted her to urge newly diagnosed MBC patients to get checked out a comprehensive cancer center we are fortunate Chicago is home to several including two @NCCNnews facilities #bcsm |
 | Robert L. Hill, MD @harmonigenic RT @itsnot_pink: How awesome is it that the NYFW show by @AnaOnoIntimates with just MBC patients as models made it to @NPR with a great article by @ESchattner?! Plus all proceeds went to @metavivor, totaling over $100k! https://t.co/z47Uqt8WzC #bcsm |
| Alicia C. Staley @stales Good night moon! PS TOMORROW IS A SUPER MOON - get out there and look up tomorrow night #bcsm |
| Enlightening Results 💡 @GraceCordovano @DrAttai I absolutely will and will report back. Thank you! #bcsm |
| Emily Garnett @emrgarnett @ihatebreastcanc @DrSGraff @HillStirSci @DrAttai @MBCNbuzz @sloan_kettering @NCCNnews I couldn't agree more. #bcsm |
| Alicia C. Staley @stales Good night party tweeps!! xoxo #bcsm |
| SPECFORD59 @SPECFORD59 @jamienholloway @itsthebunk @marylgorden @wwleslie @IBCResearch Many patients live outside metropolitan areas. There are LMHP’s in many small towns. I could see a need for a training curriculum to augment their well established psychology knowledge. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales 🌙❤️ #bcsm |
| Social✽Fly @socflyny @stales A parting gift -- Stumbled upon a BRILLIANT (and free!) podcast hosted by @ErinLCummings on @Castbox_fm Kappa Kappa Cancer https://t.co/wsunG1diPx Subscribe now! You won't be sorry! (If anyone can make an intro, I'm on a mission to connect with Erin & Castbox!) #bcsm #OurTribe |
| Katherine OBrien @ihatebreastcanc RT @emrgarnett: @ihatebreastcanc @DrSGraff @HillStirSci @DrAttai @MBCNbuzz @sloan_kettering @NCCNnews I couldn't agree more. #bcsm |
 | Nikhil Wagle, MD (he/him) @Nikhilwagle @emrgarnett In about 10% of patients, breast cancer that was ER+ at diagnosis becomes ER- in the metastatic setting. We have a number of studies going on right now to understand why this happens & what it means. But it is an important consideration for endocrine resistance in #mbc #bcsm |
| Emily Garnett @emrgarnett @socflyny @stales @IBCResearch @YSCBuzz I'll be there! #bcsm |
| Frank Ingram, MD @Chucktowndoc Good night, all. #BCSM |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff Good night friends. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @emrgarnett @ihatebreastcanc @DrSGraff @DrAttai @MBCNbuzz @sloan_kettering @NCCNnews Same here. #bcsm |
| IBC Research Fdn @IBCResearch Nothing like that was available or even discussed 20 yr ago and even now, many of those services would be out of pocket for many limiting access, sadly #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @Nikhilwagle @emrgarnett Thanks, Nik! Do we also now call it TNBC? Or is it just that treatments change? #bcsm |
| Emily Garnett @emrgarnett @Nikhilwagle It's SO important for research. I'd love to know more about the current research, especially as I'm dealing with the start of endocrine resistance myself. #bcsm |
| Kathy Gori @kathygori Good evening all, have an almond milk latte and a scotch shortbread on me. #bcsm https://t.co/8P0IiDonHO |
| Kathy Gori @kathygori @socflyny @stales Hahahaha! #bcsm |
| Katherine OBrien @ihatebreastcanc @HillStirSci @emrgarnett @DrSGraff @DrAttai @MBCNbuzz @sloan_kettering @NCCNnews I learned the hard way.... https://t.co/mNN59nbexp #bcsm |
| IBC Research Fdn @IBCResearch Interesting conversations! Hope everyone has a good week...safe travels @stage4kelly Stay warm and cozy! #bcsm |
| Social✽Fly @socflyny @emrgarnett @stales @IBCResearch @YSCBuzz Emily, I'd love to connect with you offline re the fashion show if you have a few minutes? Let me know. 🙂#bcsm |
 | AHLAM ❤️ @missdream2424 RT @Breastcancerorg: What is hormonal therapy and is it right for you? We break down the different types, common side effects, and what to ask your doctor #breastcancer #bcsm https://t.co/RxajuFflwC https://t.co/bYZqhyLbdg |
| Rod Ritchie @malefitness @stales Tonight here in Australia for the super moon. #bcsm |
 | Dr. Aislinn Vaughan @aislinnvaughan RT @HillStirSci: @DrAttai @emrgarnett It’s about 20-25% of ER+ breast cancer. Mutations are largely random. We think the ones that “stick” help the cancer grow. When an anti-estrogen is on board, cells with normal ER don’t grow, so if there is a mutation, they grow out instead. #bcsm https://t.co/ff6VyAHefa |
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