#BCSM Transcript

Healthcare social media transcript of the #BCSM hashtag.
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NCI Cancer Stats @NCICancerStats
Approximately 12.8% of women will be diagnosed with female breast cancer at some point during their lifetime, based on 2014-2016 data. Learn more about this #cancer type here: https://t.co/wUKAVg2gqh #bcsm https://t.co/GfKEWxWQPy
Ishwaria Subbiah, MD MS @IshwariaMD
ICYMI- CCing the #oncology Twitter-verse! #lcsm #bcsm #blcsm #btsm #crcsm #gyncsm #mmsm #amsm #pancsm #pcsm #pedonc #pallonc #gerionc #hcsm #kcsm #blcsm #caregiver #ayacancer #melsm #hpm #pcsm #ayacsm #Leusm #lymsm #melsm #thycsm @washingtonpost https://t.co/HBrx7EwkOU
Alicia C. Staley @stales
Good evening #BCSM
Danny Sanders MD @DannySandersMD2
So true!! Had a partner criticize for salvaging an 88 yo’s breast!! Must treat everyone as individuals and respect their wishes!!
Howard Karpoff @doctorkarpoff
Evening all breast surgeon from slightly upstate NY listening and learning #bcsm
Howard Karpoff @doctorkarpoff
RT @stales: Join us at 9 pm ET tonight to discuss: "Rebuilding self confidence after a cancer diagnosis - what does it mean and what to do"…
Marci Alegant @MarciAlegant
@stales Hello from Ohio #bcsm.
Dr. Kelly Shanahan @stage4kelly
Kelly, former ob/gyn, current MBC patient & advocate, checking in from (looks out the window) snowy Lake Tahoe #bcsm
Alicia C. Staley @stales
Welcome everyone! Please say hello and we will get started shortly #bcsm
Hillary Stires, PhD @HillStirSci
@stales Hi everyone! 👋🏼 I’m Hillary, a postdoc at @Lombardi! #bcsm
Alicia C. Staley @stales
Tonight, we're talking about "Rebuilding self confidence after a cancer diagnosis - what does it mean and what to do" #bcsm
Roy Kim @drroykim
RT @BreastAdvocate: How and why the Breast Advocate app empowers patients to have a voice in their #BreastCancer and #BreastReconstruction
Alicia C. Staley @stales
@HillStirSci @Lombardi hello, hello! #BCSM
Alicia C. Staley @stales
@MarciAlegant Hi there! Welcome. #BCSM
Julia Maues @itsnot_pink
@stales Hi #bcsm! Julia in DC with my foot up after surgery for ingrown nail. Still dealing with taxol side effects 5 years later...
Kathy Gori @kathygori
Hey there, 2x bc’er checking in from once again cold and rainy Nor Ca 🍷 country #bcsm
Alicia C. Staley @stales
@doctorkarpoff Hi there! #BCSM
Liza Bernstein @itsthebunk
Hi to all on the #bcsm chat from LA! Liza here - had 3 primary dxs of #breastcancer. Still (crosses fingers) NED. Advocacy and art make me smile.
Alicia C. Staley @stales
@stage4kelly Hi there! #BCSM
Alexis S @Lex_in_CO
Alexis in Colorado Stage IV de novo 2013 and still raising hell ... she turns 16 next month 🤪🤪💕 #bcsm
patty spears @paspears88
Hi @stales from NC.. #bcsm
Inspire @teaminspire
Hello to #bcsm, John Novack from Inspire here.
Brave Bosom @BraveBosom
Nursing a sick kiddo back to health but just wanted to drop in to say hi #BCSM!
Dr. Kelly Shanahan @stage4kelly
@itsnot_pink @stales Yikes! Hope it heals well and quickly! #bcsm
Social✽Fly @socflyny
RT @stales: Join us at 9 pm ET tonight to discuss: "Rebuilding self confidence after a cancer diagnosis - what does it mean and what to do"…
Kathy Gori @kathygori
@IshwariaMD One of my doctors ( a young woman) did the same for me back in ‘90 the first time I was dx’ed..l paid it forward doing the same thing later as a volunteer #bcsm
Alicia C. Staley @stales
@itsnot_pink hey there. hang in there. #bcsm
Alicia C. Staley @stales
@Lex_in_CO hi there! #bcsm
Alicia C. Staley @stales
@paspears88 how are you? #bcsm
Alicia C. Staley @stales
@teaminspire hello, hello! #bcsm
Alicia C. Staley @stales
@BraveBosom hi #bcsm
Alicia C. Staley @stales
We will get started in a moment #bcsm
Alicia C. Staley @stales
@itsthebunk hey #bcsm
Alicia C. Staley @stales
@kathygori hello, hello! #bcsm
Liza Bernstein @itsthebunk
@itsnot_pink @stales Oh no! Feel better! #bcsm
Liza Bernstein @itsthebunk
@stales Polo #bcsm
Alicia C. Staley @stales
Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4
Emily Garnett @emrgarnett
RT @LivingBeyondBC: Living Beyond Breast Cancer’s Young Advocate Program offers tools & training to help #young women use their personal #b
Jamil Kali @jamilkali
*Waving* Hey! In PA living with MBC #bcsm
Alicia C. Staley @stales
And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz #bcsm
Alicia C. Staley @stales
If you ever want to suggest a topic for #BCSM, send me a DM, our contact us here: https://t.co/mZtUOmyB6n #bcsm
Alicia C. Staley @stales
@jamilkali hi there! #bcsm
Alicia C. Staley @stales
@DrAttai is taking tonight off. She covered for me last week while I was in Switzerland! #bcsm
Dr. Rebecca B. Riggins @Prof_Riggins
Hi #bcsm, Becca from @LombardiCancer
Alicia C. Staley @stales
Glad to see you all behaved yourselves last week :-) #bcsm
Alicia C. Staley @stales
@Prof_Riggins @LombardiCancer Hi there! #bcsm
Alexis S @Lex_in_CO
For anyone wondering why my feed is full of #bcsm tweets #becauseitmatters #support #community
Alicia C. Staley @stales
RT @Lex_in_CO: For anyone wondering why my feed is full of #bcsm tweets #becauseitmatters #support #community https://t.co/qBAubZ9NaK
Alicia C. Staley @stales
T1 coming up..... #bcsm
Dr_Dana @Dr_Dana
Good evening from Arkansas👋🏻 Breast surgeon listening and learning. #bcsm
Alicia C. Staley @stales
T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm
Alicia C. Staley @stales
@Dr_Dana hi there! Thanks for joining us. #bcsm
Inspire @teaminspire
RT @stales: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm
Rebecca Pine @breastandsea
@stales Everything changes with a cancer diagnosis, like the rug is ripped out from under us. Rebuilding self confidence is a process of patience, experimentation, and compassion. Exploring what works and what doesn’t work takes time & can change/evolve. #bcsm
Liza Bernstein @itsthebunk
RT @stales: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm
Liza Bernstein @itsthebunk
@stales T1. After cancer dx, I felt like an evil enemy had invaded my body (sorry, war metaphors, I know - argh)... also felt betrayed, disillusioned, terrified, vulnerable.... #bcsm
Linda Holden @lpholden
Trying to join in. Not good with twitter. Caregiver for my husband Bob, metastatic breast cancer advocate. #bcsm
Lisa Rice @LisaDTRice
@stales Lurking from DC. Howdy! #BCSM
Tina @LatinaStarling
Hello everyone, checking in from North Houston, TX. Diagnosed w/BC, NED since 2009. #bcsm
Alicia C. Staley @stales
@LatinaStarling hi there! #bcsm
Alicia C. Staley @stales
@lpholden hi there. Thanks for joining us. you can try using https://t.co/reZgZVsLnl too #bcsm
Betsy Mullen @betsymullen
RT @BreastAdvocate: Nipple-sparing #Mastectomy appears to be a safe option for women seeking to reduce their risk of developing #BreastCanc
Uppity Cancer Pt @UppityCancerP
@stales I didn't feel like my body let me down, it was my gynecologist who had knocked me down to mammograms every two years, giving the cancer extra time. That still pisses me off. Cancer was just something I got. #bcsm
Alicia C. Staley @stales
@LisaDTRice Hey!!! I will text you after the chat #bcsm
Kathy Gori @kathygori
@stales T1: I didn’t feel that way after dx, but when I finished chemo I felt that I could never trust my body again. I was young and fit and yet I saw my body as a ‘78 lime green gremlin with transmission trouble and now I was supposed to drive it across Death Valley along. #bcsm
Alexis S @Lex_in_CO
A1 - Sadly ashamed at how much a missed - still miss - long thick hair that strangers would comment on. 🤷‍♀️ took time #bcsm
Dr. Kelly Shanahan @stage4kelly
@lpholden Hi Linda! ❤️ to you and Bob #bcsm
Social✽Fly @socflyny
@stales "Said the ringleader ..." 😂 #shenanigans #bcsm https://t.co/H6WvYCAH79
Alicia C. Staley @stales
@socflyny LOL #bcsm
Marci Alegant @MarciAlegant
@stales T1 I wasn’t aware of those things at the time, but at the end of treatment I realized I didn’t have the confidence to make toast. So I totally lost faith in myself in my entirety. It’s been a long road back #bcsm.
Linda Holden @lpholden
Hi @stage4kelley! XOXO #bcsm
Inspire @teaminspire
RT @itsthebunk: @stales T1. After cancer dx, I felt like an evil enemy had invaded my body (sorry, war metaphors, I know - argh)... also fe…
Linda Holden @lpholden
@stales much easier for me now. Thanks! #bcsm
Alicia C. Staley @stales
RT @kathygori: @stales T1: I didn’t feel that way after dx, but when I finished chemo I felt that I could never trust my body again. I was…
patty spears @paspears88
A1 - Felt like I aged 10 years in that year of treatment... went from pre-meno to post-meno after first chemo at 40... then everything followed - thin bones, thyroid, loss of muscles, etc.. #bcsm
Alexis S @Lex_in_CO
T1-Felt very betrayed - with bone mets day one remember telling daughter like a fans of thugs invaded my body and tagged graffiti up my spine 😡 #bcsm
Howard Karpoff @doctorkarpoff
RT @stales: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm
Linda Holden @lpholden
Neuropathy for Bob #bcsm
Uppity Cancer Pt @UppityCancerP
Lately just tired of all this health & cancer crap. I love most doctors, but would like to see fewer of them. Wears me down. Can't we all just go for drinks instead? Fer cripes sake. #BCSM
Alexis S @Lex_in_CO
@paspears88 So relate. Menopause on hyperdrive is the pits. #bcsm
Dennis Keim @denniskeim
A bit late tonight. Howdy, friends. Stage 1 breast cancer in 2013. Still NED in NE. #bcsm
Tina @LatinaStarling
T1: after my cancer diagnosis I felt self-conscious about my body. Each day that passed, I started to feel a little better about my body, just adapting to the changes. #bcsm
Dennis Keim @denniskeim
T1: I feel more like I've let down my body. So many folks are getting with the gym and have lots worse issues than I have. #bcsm
Uppity Cancer Pt @UppityCancerP
Or how about we go sky diving? In Tahiti. I'll buy the drink umbrellas. Different color for everyone. #BCSM
Alicia C. Staley @stales
RT @MarciAlegant: @stales T1 I wasn’t aware of those things at the time, but at the end of treatment I realized I didn’t have the confidenc…
Liza Bernstein @itsthebunk
@UppityCancerP I am so with you! #bcsm
Kathy Gori @kathygori
@socflyny @stales I could use one of those #bcsm
Alicia C. Staley @stales
RT @UppityCancerP: @stales I didn't feel like my body let me down, it was my gynecologist who had knocked me down to mammograms every two y…
Alicia C. Staley @stales
RT @denniskeim: T1: I feel more like I've let down my body. So many folks are getting w/ the gym + have lots worse issues than I have #bcsm
Alicia C. Staley @stales
@denniskeim Hello, hello! #bcsm
Stef Woods @citygirlblogs
RT @stales: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm
Kathy Gori @kathygori
@UppityCancerP I wondered what it would be like to go to the hospital for a happy reason ... like those car ads with the new baby coming home. #bcsm
Alicia C. Staley @stales
T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #bcsm
Liza Bernstein @itsthebunk
RT @stales: T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #b
Liza Bernstein @itsthebunk
RT @kathygori: @UppityCancerP I wondered what it would be like to go to the hospital for a happy reason ... like those car ads with the new…
Kathy Gori @kathygori
@UppityCancerP Oh yeah!! I think I’m about ready for that. #bcsm
Alexis S @Lex_in_CO
Decided against mastectomy - tried to move forward with humor. Kept the “Killer boobs” in lieu of dealing with reconstruction. That and the closing the barn door after the fact thing 🤷‍♀️ #bcsm
Liza Bernstein @itsthebunk
@kathygori @UppityCancerP Wow, what a thought! I have never experienced the hospital like that! #bcsm
Uppity Cancer Pt @UppityCancerP
@kathygori Exactly. Now I'm going to cry. Used to ask doctor reception what they would do if we all just ran away. See you later, alligator. #bcsm
Inspire @teaminspire
RT @stales: T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #b
Kathy Gori @kathygori
@UppityCancerP In a while crocodile... I watched waaaay too many happy days #bcsm
Ishwaria Subbiah, MD MS @IshwariaMD
@kathygori Survivors making the difference!! 👏🙏 Brava, @kathygori! #bcsm #payitforward
Alexis S @Lex_in_CO
Trusting myself or my body? Probably no to both or only partial. Balance between hyper vigilance and the I don’t give a flying ~~~ days 🤭 #bcsm
Tina @LatinaStarling
T1a: I walked everyday. Changed my diet completely. A lot of self care mostly. Throwing away lotions and products that were not friendly to my skin.#bcsm
Uppity Cancer Pt @UppityCancerP
@kathygori I think the happiest hospital visit I've ever had was having a bunion removed. Everything else has just been sad or terrifying. #bcsm
Gail Zahtz @GailZahtz
Signing in for the first time in too long to the rockstars at #bcsm
Tina @LatinaStarling
T1a: I almost trust myself self but with a side eye. #bcsm https://t.co/JYdz6YX5Ik
Tina @LatinaStarling
RT @stales: T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #b
Kathy Gori @kathygori
@IshwariaMD So glad she did that for me. And then there was the nurse at Cedars who threw herself into my arms and wept about the breast cancer that she had when she was 22! She was about 30 a bit younger than me and I guess seeing a young patient loosened something #bcsm
Gail Zahtz @GailZahtz
T1- Cancer changed everything. First after diagnosis was a roller coaster of just keeping up with the onslaught of treatments and symptoms. I'd say that my relationship with cancer and the world has evolved from dx to treatments to NED treatments to living again. #bcsm
Kathy Gori @kathygori
@UppityCancerP I can see where that would feel great. #bcsm
Gail Zahtz @GailZahtz
T1a- on the topic of trust, I'd say I trust myself much more now. The hospital wanted to send me to hospice. I trusted myself and refused, and now I've had 3.5 amazing years of joyful moments I would have missed if I hadn't trusted myself. #bcsm
Alexis S @Lex_in_CO
a more positive move forward for me was ATTEMPTING to be more mindful, present Live more and worry less. Still working on it though #bcsm
Rachel Webb @raychwrites
Hi #bcsm. Late tonight but wanted to say hi. NED in St. Louis.
Alicia C. Staley @stales
@raychwrites hi there! #bcsm
Alicia C. Staley @stales
@Lex_in_CO that's always a good plan! #bcsm
Rachel Webb @raychwrites
@LatinaStarling Best answer ever! #bcsm
Merey @MereyGnome
Hi from Queens, New York. 4 1/2 years NED. #bcsm
Alicia C. Staley @stales
@GailZahtz nice to see you! #bcsm
Alicia C. Staley @stales
@LatinaStarling :-) #bcsm
Social✽Fly @socflyny
@stales T1: Due to extensive family history (and no #BRCA) I always felt it was a question of "when" vs "if" ... but having lived such a healthy lifestyle, I felt like it was all for nothing and maybe the dx was wrong. #bcsm
Rebecca Pine @breastandsea
Comparing myself to where I was b4 cancer was setting myself up for major disappointment. Had to focus on simple basics. Checking in regularly about how I was REALLY feeling & learning to tolerate & eventually accept as much of the raw and uncomfortable as possible helped. #bcsm
Alicia C. Staley @stales
@MereyGnome hi there! welcome #bcsm
Gail Zahtz @GailZahtz
T1- on the question of feeling like our bodies have let us down- In my experience, my relationship with my body has changed through dx, diagnosis and NED and it's constantly evolving. Today I went suit shopping for the 1st time since dx and it was a really positive exp. #bcsm
Alicia C. Staley @stales
Nice to see many old and new faces tonight! #bcsm
Dennis Keim @denniskeim
@Lex_in_CO Also trying to work on the mindfulness with mixed results. Should really be into Cognitive Behavioral Therapy (CBT) more. #bcsm
Liza Bernstein @itsthebunk
RT @stales: Nice to see many old and new faces tonight! #bcsm
Alicia C. Staley @stales
T2: How do you rebuild self-confidence? What's worked for you? #bcsm
Social✽Fly @socflyny
@kathygori @stales Omg, that analogy!!! (pretend the GIF is green) #bcsm https://t.co/SIrXMVFOBc
Gail Zahtz @GailZahtz
It's great to be seen, TYSM @stales for keeping this going all of this time! I would "listen" sometimes when it was particularly bad and #bcsm gave me strength. Now I hope I can share some hope, since I'm happy to say I'm NED 2 years May 5 after my nursing home nightmare.
Dennis Keim @denniskeim
@stales I need to remind myself to get some proper perspective now and then. Sometimes I can get out there with anxiety at times. #bcsm
Social✽Fly @socflyny
RT @stales: T2: How do you rebuild self-confidence? What's worked for you? #bcsm
Alicia C. Staley @stales
RT @breastandsea: Comparing myself to where I was b4 cancer was setting myself up for major disappointment. Had to focus on simple basics.…
Alicia C. Staley @stales
RT @socflyny: @stales T1: Due to extensive family history (and no #BRCA) I always felt it was a question of "when" vs "if" ... but having l…
Radha @radhachitale
@stales @teaminspire Hi #bcsm, just popping my head in :)
Gail Zahtz @GailZahtz
T2- I think that rather than viewing it as rebuilding self confidence post cancer dx, it's a matter of creating a new relationship with my "self" and the world. For me, it's ended up positive, but it was a rough journey to get here. #bcsm
Liza Bernstein @itsthebunk
T2 - it is a process with ups and downs... one step forward two (or 10) steps back... requires self-compassion, lots of patience, and baby steps, especially in the beginning. #bcsm
Alicia C. Staley @stales
@radhachitale @teaminspire hello, hello! #bcsm
Liza Bernstein @itsthebunk
RT @GailZahtz: T2- I think that rather than viewing it as rebuilding self confidence post cancer dx, it's a matter of creating a new relati…
Alicia C. Staley @stales
@denniskeim understandable, to say the very least. I know it. #bcsm
Liza Bernstein @itsthebunk
RT @denniskeim: @stales I need to remind myself to get some proper perspective now and then. Sometimes I can get out there with anxiety at…
Stephanie Graff, MD, FACP @DrSGraff
Thwarted by kid bedtime. Apparently the 3 year found an old jar of Aquaphor—things are very greasy. 😬😩 Belated hello to all! #bcsm
Alicia C. Staley @stales
T2: How do you rebuild self-confidence? What's worked for you? How do you start moving forward again? #bcsm
Inspire @teaminspire
RT @breastandsea: Comparing myself to where I was b4 cancer was setting myself up for major disappointment. Had to focus on simple basics.…
Alicia C. Staley @stales
@DrSGraff Oh no! that's not good. #bcsm
Dennis Keim @denniskeim
The more I read about Cognitive Behavioral Therapy (CBT) the more I think it should be part of continuing cancer treatment. #bcsm
Inspire @teaminspire
RT @stales: T2: How do you rebuild self-confidence? What's worked for you? How do you start moving forward again? #bcsm
Gail Zahtz @GailZahtz
@itsthebunk I like this analogy (waving hi Liza!) It's like a dance in which no-one could have given us the steps and we're learning them as we go. That means stepping on our own (and others) toes for awhile before it can become joyful. #bcsm
Rachel Webb @raychwrites
T1: It’s really hard to sum up how I felt. I felt a little of everything and a whole bunch of nothing else. That’s the closest I can come to describing it. #bcsm
Liza Bernstein @itsthebunk
RT @GailZahtz: @itsthebunk I like this analogy (waving hi Liza!) It's like a dance in which no-one could have given us the steps and we're…
Lisa M Guzzardi, RN @LguzzardiM
Decoding #Cancer’s DNA : New algorithm IDs patients harboring a tumor-causing defect found in multiple cancers ⁦@harvardmed#cancerresearch #genetics #PARP #bcsm https://t.co/fFoOxBNBIK
Liza Bernstein @itsthebunk
@GailZahtz Hi Gail! Yes, love the way you put it! :-) #bcsm
Uppity Cancer Pt @UppityCancerP
@DrSGraff Okay. That's the best thing I've heard all day. 3 year old, jar of aquaphor. Was there also a puppy involved? Thank you for that moment. #bcsm
Gail Zahtz @GailZahtz
@denniskeim Oh, therapy has been a part of my treatment at my cancer clinic and I highly recommend it to all programs/ patients. In our case, it's a palliative care social worker who's done weekly therapy for years now. She's been there through it all. Invaluable!! #bcsm
University Hospitals Breast Imaging @UHbreastimaging
RT @DrIanWeissman: "Screening only women ages 50-74 every other year, as now recommended the ACP, may result in up to 10,000 unnecessary, b…
Alicia C. Staley @stales
@denniskeim That's an interesting idea! #bcsm
Alicia C. Staley @stales
RT @Lex_in_CO: Trusting myself or my body? Probably no to both or only partial. Balance between hyper vigilance and the I don’t give a flyi…
Social✽Fly @socflyny
@stales T2: For me, working out has been a godsend ... at first it was simply restoring mobility, but when I was able to resume my regular classes, it became about building strength, and ultimately feeling like a badass again. Everyone has to find what works for them. #bcsm
Alexis S @Lex_in_CO
T2 for me it was work. Could see success there. Big help was also great team - my onc the nurses and admin supportive family friends and faith Really needed every single piece ❤️ #bcsm
Dennis Keim @denniskeim
RT @stales: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm
Dr. Kelly Shanahan @stage4kelly
T2: with a mets diagnosis I know that my body and the cancer will inevitably betray me, but until that day I live as best I can with all the collateral damage of neuropathy, stiffness, and chemo brain. #bcsm
Alicia C. Staley @stales
RT @socflyny: @stales T2: For me, working out has been a godsend ... at first it was simply restoring mobility, but when I was able to resu…
Alicia C. Staley @stales
@socflyny love this! #bcsm
Alicia C. Staley @stales
RT @Lex_in_CO: T2 for me it was work. Could see success there. Big help was also great team - my onc the nurses and admin supportive famil…
Alicia C. Staley @stales
RT @stage4kelly: T2: with a mets diagnosis I know that my body and the cancer will inevitably betray me, but until that day I live as best…
Rebecca Pine @breastandsea
T2: Learning to listen more deeply to myself. Identifying and turning down the volume of inner criticism. Learning to make peace with whatever arises and lean into discomfort. Also recognizing that I could help others through advocacy or support helped me as well. #bcsm
Alicia C. Staley @stales
Some great thoughts and insights tonight!! #bcsm
Alicia C. Staley @stales
Time is flying by tonight........ #bcsm
Alicia C. Staley @stales
Last thoughts for tonight on this topic? #bcsm
Liza Bernstein @itsthebunk
@denniskeim Hi Dennis - I had TERRIBLE experience w/this specific methodology at a fancy cancer center at my 1st dx, where, among other things, a therapist told me to "just tell the bad thoughts to stop" every time I had them. Glad it's working for you & others, but it's not for all! #bcsm
Liza Bernstein @itsthebunk
RT @stage4kelly: T2: with a mets diagnosis I know that my body and the cancer will inevitably betray me, but until that day I live as best…
Alicia C. Staley @stales
Recap: How do you learn to trust/regain self confidence after a cancer dx? GO! #bcsm
Alicia C. Staley @stales
RT @breastandsea: T2: Learning to listen more deeply to myself. Identifying and turning down the volume of inner criticism. Learning to mak…
Uppity Cancer Pt @UppityCancerP
@GailZahtz @denniskeim I've seen a counselor off and on since diagnosis. Fired two who kept focusing on me dying. I'm here to deal with living with this, not dying of it. In words of Valerie Harper, don't want to attend the funeral until the funeral. #bcsm
Rachel Webb @raychwrites
I’ve had to accept that I’m not the same person in many ways but I’m still the same person in other ways. Mostly, it’s just taken time. #bcsm
Alicia C. Staley @stales
@breastandsea These are some great thoughts and wonderful advice for all of us. #BCSM
Gail Zahtz @GailZahtz
Thank you! My journey has led me to a place of real joy. I'm hesitant to share that, because I'm respectful of the fact that people are all over the spectrum. But for me, coming so close to dying...every moment is a gift. #bcsm
Stephanie Graff, MD, FACP @DrSGraff
@UppityCancerP No puppy. But the outside of said child’s pull-up, the carpet, and many toys are very well moisturized. Hard to imagine the scope of damage a few unsupervised moments can inflict. #bcsm
Leigh Harrison Helberg @LeighHelberg
@raychwrites NED an in chronic pain from Los Angeles. #Bcsm I have no idea how to do this but always watch.
Liza Bernstein @itsthebunk
RT @raychwrites: I’ve had to accept that I’m not the same person in many ways but I’m still the same person in other ways. Mostly, it’s jus…
Liza Bernstein @itsthebunk
RT @UppityCancerP: @GailZahtz @denniskeim I've seen a counselor off and on since diagnosis. Fired two who kept focusing on me dying. I'm he…
Liza Bernstein @itsthebunk
RT @GailZahtz: Thank you! My journey has led me to a place of real joy. I'm hesitant to share that, because I'm respectful of the fact that…
Gail Zahtz @GailZahtz
I think that working with a therapist can be the most personal decision on the members of your cancer team. Mine says that at our first meeting I said, "You need to accept that I'm going to live, if you can then we can start work." She's supported me ever since. #bcsm
Rachel Webb @raychwrites
@LeighHelberg Sorry about the chronic pain! Just watch for the hashtag and remember to add #bcsm tag to your tweets.
Dennis Keim @denniskeim
@GailZahtz One of the side effects of cancer treatment can be sleep issues. I was surprised to find that CBT has also been used for treating insomnia. It's like a medical Swiss Army knife. Lots of uses. #bcsm https://t.co/tdcLgDLthK
Tina @LatinaStarling
T2: I started right away turning the focus off of me and looking for ways to volunteer at my kids school, with other cancer support organizations. Laughter got me through of lot of it. Strong family support team and friends. I always kept doing my favorite things. #BCSM
Tina @LatinaStarling
RT @stales: T2: How do you rebuild self-confidence? What's worked for you? How do you start moving forward again? #bcsm
Leigh Harrison Helberg @LeighHelberg
@raychwrites It’s been 7 yrs. stabbing in my armpit. Doctors have no clue. I’m barely living. #bcsm
Social✽Fly @socflyny
@stales (Of course it serves an additional stress-reducing purpose now ... I have taken to "naming" the sandbag we use during slams -- think Monica Seles without a racquet) 😉 #bcsm
Liza Bernstein @itsthebunk
RT @GailZahtz: I think that working with a therapist can be the most personal decision on the members of your cancer team. Mine says that a…
Lisa M Guzzardi, RN @LguzzardiM
#BreastCancer in Young Women: The disease comes with unique challenges when you're diagnosed before age 40. #bcsm #cancerresearch #PatientExperience Via ⁦@USNewsHealthhttps://t.co/NdTvMUziMM
Liza Bernstein @itsthebunk
RT @raychwrites: @LeighHelberg Sorry about the chronic pain! Just watch for the hashtag and remember to add #bcsm tag to your tweets.
Marcelo Ceron @marceloceronMD
RT @JAMAOnc: Review of the current landscape of immunotherapy in #BreastCancer covers field from immune checkpoint inhibitors to vaccines,…
Gail Zahtz @GailZahtz
Much of the success I've had within my cancer and NED treatments has been how I relate to my mind and spirit. Mindfulness, refocusing, grounding, therapy, sensory, what I surround myself with physically and emotionally- all count a lot! #bcsm
Social✽Fly @socflyny
@stales T2: Added benefit to working out -- it helps keep weight/body fat down -- one of the few "controllable" risk factors we know of. #bcsm
Liza Bernstein @itsthebunk
RT @GailZahtz: Much of the success I've had within my cancer and NED treatments has been how I relate to my mind and spirit. Mindfulness, r…
Rachel Webb @raychwrites
RT @LatinaStarling: T2: I started right away turning the focus off of me and looking for ways to volunteer at my kids school, with other ca…
Dennis Keim @denniskeim
@itsthebunk I'm sorry to hear that happened to you. Liza. I'm thinking maybe the problem there was with the therapist and not the CBT itself. I used it for OCD issues I had while doing chemo. In some ways, the OCD was worse than the chemo. Seriously. #bcsm
Uppity Cancer Pt @UppityCancerP
On a dark humor note - Could be worse, Key and Peele. https://t.co/FvxAfUE5GT #bcsm
TwitLiveEvents @TwitLiveEvents
April 15, 2019 at 10:00PM Twitter Chat - #BCSM #TwitterChat Visit https://t.co/7rW7B93fzz for more events.
Hillary Stires, PhD @HillStirSci
Thanks to everyone for sharing tonight! Sending hugs! #bcsm
Alexis S @Lex_in_CO
Not nice but F.. it! I just gotta live - not forever I know. But for today. Try not to dwell but also allow that there are going to be bad - really suck - days But when I can tweet about it ... it really does help. Love to all 💕 #bcsm
Leigh Harrison Helberg @LeighHelberg
@raychwrites Bilateral mastectomy straight in to total hysterectomy. 6 surgeries in all for genetic BC. Unfortunately, the pain is on the prophylactic side. If idve known...I would have never had the surgery. Never! #bcsm
Gail Zahtz @GailZahtz
Look forward to reading this. Interested to hear what they say about the challenges of diagnosis itself when you're young. If I'd received a mammogram when I first asked rather than being told I was "too young", wouldn't have metastasized to lymph nodes & been inoperable. #bcsm
Jamie Holloway, PhD @jamienholloway
Time zones get me every time! My #bcsm alarm just went off, but since I'm spring breaking in central time, I missed it! Next week, friends!
Alicia C. Staley @stales
Great chat everyone. Thanks for joining in! Some great insights tonight. #bcsm
Rebecca Pine @breastandsea
Especially during times of trauma like a cancer diagnosis, it’s important for us to be as gentle & compassionate with ourselves as possible. We don’t need to figure out all the answers then & there. Being hard on ourselves doesn’t help us find answers sooner-usually=later #bcsm
Alicia C. Staley @stales
GROUP HUG #bcsm
Rachel Webb @raychwrites
Perfection. #bcsm
Alicia C. Staley @stales
@jamienholloway LOL -- Have a nice break! #bcsm
Gail Zahtz @GailZahtz
Thank you so much everyone at #bcsm I have to get it on my calendar again. @stales if you send a reminder tweet, please add me. I am so grateful to you and everyone in the tribe!
Liza Bernstein @itsthebunk
@denniskeim Thanks Dennis, I am sure you are right as i know it works for many people. Probably was not a good idea to throw it at someone in the crisis of diagnosis. Needless to say I did not see that therapist again (she was part of the center's package of services) #bcsm
Alicia C. Staley @stales
RT @LatinaStarling: T2: I started right away turning the focus off of me and looking for ways to volunteer at my kids school, with other ca…
Alicia C. Staley @stales
RT @Lex_in_CO: Not nice but F.. it! I just gotta live - not forever I know. But for today. Try not to dwell but also allow that there are g…
Alicia C. Staley @stales
RT @HillStirSci: Thanks to everyone for sharing tonight! Sending hugs! #bcsm
Liza Bernstein @itsthebunk
RT @breastandsea: Especially during times of trauma like a cancer diagnosis, it’s important for us to be as gentle & compassionate with our…
Alicia C. Staley @stales
RT @breastandsea: Especially during times of trauma like a cancer diagnosis, it’s important for us to be as gentle & compassionate with our…
Liza Bernstein @itsthebunk
@jamienholloway Enjoy your break, my friend! Big hugs! #bcsm
Alicia C. Staley @stales
@GailZahtz Will do!!! Have a nice night. #BCSM
Hematology & Oncology Women Physician Group @HemOncWomenDocs
RT @BreastTexas: #breastcancer treatment in a simple, easy to read nutshell! #medtwitter #BCSM @HemOncWomenDocs https://t.co/MV2jV27YfQ
Leigh Harrison Helberg @LeighHelberg
@stales I was a marathon runner. I am so angry and debilitated now. Probably why I picked politics to dabble in. An outlet for my rage #bcsm
Uppity Cancer Pt @UppityCancerP
Maybe key is to scare cancer away with "positivity"? #bcsm
Liza Bernstein @itsthebunk
@LeighHelberg @raychwrites Sorry you are dealing with this :( #bcsm
Kevin @Biostar41557
RT @LguzzardiM: #BreastCancer in Young Women: The disease comes with unique challenges when you're diagnosed before age 40. #bcsm #cancerr
Rachel Webb @raychwrites
@LeighHelberg Oooh, that sounds rough. I’m so sorry. I wish I had some useful advice but I just have sympathy. #bcsm
Gail Zahtz @GailZahtz
I'm so so sorry your experience was so negative Liza! It's all about the provider. Mine is gentle and loving and supportive and has been a top asset to my cancer team. I can't imagine having one during dx and treatment who was otherwise. Hugs. #bcsm
Liza Bernstein @itsthebunk
Goodnight everyone! Thanks @stales for another stellar #bcsm chat!
Leigh Harrison Helberg @LeighHelberg
@itsthebunk @raychwrites Thank you. Omg how did I not know about this?? #bcsm this disease is so lonely.
Alicia C. Staley @stales
#BCSM - great comments here -->
Tina @LatinaStarling
thanks for another great chat. Goodnight #bcsm
Social✽Fly @socflyny
Important #BCSM PSA: Please check date of your measles vaccination. Many people immunized between 1963-1967 need to be re-vaccinated. This story has been EXTREMELY under-reported. https://t.co/9hDLDAxnGJ #bcsm
Liza Bernstein @itsthebunk
RT @GailZahtz: I'm so so sorry your experience was so negative Liza! It's all about the provider. Mine is gentle and loving and supportive…
Rachel Webb @raychwrites
@LeighHelberg @itsthebunk Totally! Every Monday. 9 pm eastern time. #bcsm
Liza Bernstein @itsthebunk
@GailZahtz Thanks Gail! I found great therapists later, thankfully. But at age 29 (1st dx) it was rough and lonely. Anyway, we are here now. Onwards! Thanks for your great tweets tonight! :) #bcsm
Liza Bernstein @itsthebunk
RT @socflyny: Important #BCSM PSA: Please check date of your measles vaccination. Many people immunized between 1963-1967 need to be re-v…
Liza Bernstein @itsthebunk
@JoeMell03630545 @stales @socflyny Great tweet! #bcsm
Liza Bernstein @itsthebunk
RT @stales: #BCSM - great comments here --> https://t.co/AizIJXhA8L
Dennis Keim @denniskeim
@itsthebunk As I understand it, certified therapists in CBT are kind of hard to find & are expensive to use. My mental health therapists were grad students at the local large state university psych lab. Super cheap & helped. Stopped going to focus on the chemo. Only so much energy. #bcsm
Liza Bernstein @itsthebunk
@LeighHelberg @raychwrites Welcome to the #bcsm community! see https://t.co/j6CUJo2jeN
Bronwyn Hilder @hilderbillies
RT @drtclay: Course for people interested in what radiotherapy is and how it works #lcsm #bcsm #pcsm #gyncsm #cxca #StandUpToCancer #cance
Liza Bernstein @itsthebunk
@LeighHelberg @raychwrites Join us every Monday - and make sure to always use the hashtag in your tweets #bcsm
Dennis Keim @denniskeim
@itsthebunk I still need to finish the CBT for Dummies book. :) #bcsm
Liza Bernstein @itsthebunk
@denniskeim :-) I hear you! #bcsm
Dennis Keim @denniskeim
@itsthebunk The therapy I got helped me to understand what I was dealing with and what I needed to do to stabilize and improve the situation. At that point, stabilization was what I needed and I was able to get that and a bit of improvement. Now to get more energy to improve more. #bcsm
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