#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
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NCI Cancer Stats @NCICancerStats Approximately 12.8% of women will be diagnosed with female breast cancer at some point during their lifetime, based on 2014-2016 data. Learn more about this #cancer type here: https://t.co/wUKAVg2gqh #bcsm https://t.co/GfKEWxWQPy | |
Ishwaria Subbiah, MD MS FASCO @IshwariaMD ICYMI- CCing the #oncology Twitter-verse! #lcsm #bcsm #blcsm #btsm #crcsm #gyncsm #mmsm #amsm #pancsm #pcsm #pedonc #pallonc #gerionc #hcsm #kcsm #blcsm #caregiver #ayacancer #melsm #hpm #pcsm #ayacsm #Leusm #lymsm #melsm #thycsm @washingtonpost https://t.co/HBrx7EwkOU | |
Alicia C. Staley @stales Good evening #BCSM | |
Danny Sanders MD @DannySandersMD2 So true!! Had a partner criticize for salvaging an 88 yo’s breast!! Must treat everyone as individuals and respect their wishes!! | |
Howard Karpoff @doctorkarpoff Evening all breast surgeon from slightly upstate NY listening and learning #bcsm | |
Howard Karpoff @doctorkarpoff RT @stales: Join us at 9 pm ET tonight to discuss: Join us at 9 pm ET tonight to discuss: "Rebuilding self confidence after a cancer diagnosis - what does it mean and what to do" #bcsm | |
Dr. Kelly Shanahan @stage4kelly Kelly, former ob/gyn, current MBC patient & advocate, checking in from (looks out the window) snowy Lake Tahoe #bcsm | |
Alicia C. Staley @stales Welcome everyone! Please say hello and we will get started shortly #bcsm | |
Hillary (Stires) Andrews, PhD @HillStirSci @stales Hi everyone! 👋🏼 I’m Hillary, a postdoc at @Lombardi! #bcsm | |
Alicia C. Staley @stales Tonight, we're talking about "Rebuilding self confidence after a cancer diagnosis - what does it mean and what to do" #bcsm | |
Roy Kim 🇺🇸 @drroykim RT @BreastAdvocate: How and why the Breast Advocate app empowers patients to have a voice in their #BreastCancer and #BreastReconstruction treatment planning. #YourTreatmentYourVoice #bcsm #SharedDecisionMaking https://t.co/prs0scsv7H | |
Alicia C. Staley @stales @HillStirSci @Lombardi hello, hello! #BCSM | |
Alicia C. Staley @stales @MarciAlegant Hi there! Welcome. #BCSM | |
Julia Maués @itsnot_pink @stales Hi #bcsm! Julia in DC with my foot up after surgery for ingrown nail. Still dealing with taxol side effects 5 years later... | |
Kathy Gori @kathygori Hey there, 2x bc’er checking in from once again cold and rainy Nor Ca 🍷 country #bcsm | |
Alicia C. Staley @stales @doctorkarpoff Hi there! #BCSM | |
Alicia C. Staley @stales @stage4kelly Hi there! #BCSM | |
Lex @Lex_in_CO Alexis in Colorado Stage IV de novo 2013 and still raising hell ... she turns 16 next month 🤪🤪💕 #bcsm | |
patty spears @paspears88 Hi @stales from NC.. #bcsm | |
Inspire @InspireIsHealth Hello to #bcsm, John Novack from Inspire here. | |
Andrea @BraveBosom Nursing a sick kiddo back to health but just wanted to drop in to say hi #BCSM! | |
Dr. Kelly Shanahan @stage4kelly @itsnot_pink @stales Yikes! Hope it heals well and quickly! #bcsm | |
Social✽Fly @socflyny RT @stales: Join us at 9 pm ET tonight to discuss: Join us at 9 pm ET tonight to discuss: "Rebuilding self confidence after a cancer diagnosis - what does it mean and what to do" #bcsm | |
Kathy Gori @kathygori @IshwariaMD One of my doctors ( a young woman) did the same for me back in ‘90 the first time I was dx’ed..l paid it forward doing the same thing later as a volunteer #bcsm | |
Alicia C. Staley @stales @itsnot_pink hey there. hang in there. #bcsm | |
Alicia C. Staley @stales @Lex_in_CO hi there! #bcsm | |
Alicia C. Staley @stales @paspears88 how are you? #bcsm | |
Alicia C. Staley @stales @teaminspire hello, hello! #bcsm | |
Alicia C. Staley @stales @BraveBosom hi #bcsm | |
Alicia C. Staley @stales We will get started in a moment #bcsm | |
Alicia C. Staley @stales @itsthebunk hey #bcsm | |
Alicia C. Staley @stales @kathygori hello, hello! #bcsm | |
Alicia C. Staley @stales Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 | |
Emily Garnett @emrgarnett RT @LivingBeyondBC: Living Beyond Breast Cancer’s Young Advocate Program offers tools & training to help #young women use their personal #breastcancer experiences to make a difference in their communities. Training will be July 18-20 in Philadelphia. Apply by May 10: https://t.co/duzsChvHUB #bcsm https://t.co/UC5AL4fKd6 | |
Jamil Kali @jamilkali *Waving* Hey! In PA living with MBC #bcsm | |
Alicia C. Staley @stales And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz #bcsm | |
Alicia C. Staley @stales If you ever want to suggest a topic for #BCSM, send me a DM, our contact us here: https://t.co/mZtUOmyB6n #bcsm | |
Alicia C. Staley @stales @jamilkali hi there! #bcsm | |
Alicia C. Staley @stales @DrAttai is taking tonight off. She covered for me last week while I was in Switzerland! #bcsm | |
Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins Hi #bcsm, Becca from @LombardiCancer | |
Alicia C. Staley @stales Glad to see you all behaved yourselves last week :-) #bcsm | |
Alicia C. Staley @stales @Prof_Riggins @LombardiCancer Hi there! #bcsm | |
Lex @Lex_in_CO For anyone wondering why my feed is full of #bcsm tweets #becauseitmatters #support #community | |
Alicia C. Staley @stales RT @Lex_in_CO: For anyone wondering why my feed is full of #bcsm tweets #becauseitmatters #support #community | |
Alicia C. Staley @stales T1 coming up..... #bcsm | |
Dr_Dana @Dr_Dana Good evening from Arkansas👋🏻 Breast surgeon listening and learning. #bcsm | |
Alicia C. Staley @stales T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm | |
Alicia C. Staley @stales @Dr_Dana hi there! Thanks for joining us. #bcsm | |
Inspire @InspireIsHealth RT @stales: T1: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm | |
Rebecca Pine @breastandsea @stales Everything changes with a cancer diagnosis, like the rug is ripped out from under us. Rebuilding self confidence is a process of patience, experimentation, and compassion. Exploring what works and what doesn’t work takes time & can change/evolve. #bcsm | |
Linda Holden @lpholden Trying to join in. Not good with twitter. Caregiver for my husband Bob, metastatic breast cancer advocate. #bcsm | |
Lisa Rice #MaskUp (she/her) @LisaDTRice @stales Lurking from DC. Howdy! #BCSM | |
LaTina Starling @latinastarling Hello everyone, checking in from North Houston, TX. Diagnosed w/BC, NED since 2009. #bcsm | |
Alicia C. Staley @stales @LatinaStarling hi there! #bcsm | |
Alicia C. Staley @stales @lpholden hi there. Thanks for joining us. you can try using https://t.co/reZgZVsLnl too #bcsm | |
Betsy Mullen @betsymullen RT @BreastAdvocate: Nipple-sparing #Mastectomy appears to be a safe option for women seeking to reduce their risk of developing #BreastCancer, according to latest report. #bcsm #BreastReconstruction https://t.co/6w7OrA4CW2 | |
Alicia C. Staley @stales @LisaDTRice Hey!!! I will text you after the chat #bcsm | |
Lex @Lex_in_CO A1 - Sadly ashamed at how much a missed - still miss - long thick hair that strangers would comment on. 🤷♀️ took time #bcsm | |
Kathy Gori @kathygori @stales T1: I didn’t feel that way after dx, but when I finished chemo I felt that I could never trust my body again. I was young and fit and yet I saw my body as a ‘78 lime green gremlin with transmission trouble and now I was supposed to drive it across Death Valley along. #bcsm | |
Dr. Kelly Shanahan @stage4kelly @lpholden Hi Linda! ❤️ to you and Bob #bcsm | |
Social✽Fly @socflyny @stales "Said the ringleader ..." 😂 #shenanigans #bcsm https://t.co/H6WvYCAH79 | |
Alicia C. Staley @stales @socflyny LOL #bcsm | |
Linda Holden @lpholden Hi @stage4kelley! XOXO #bcsm | |
Linda Holden @lpholden @stales much easier for me now. Thanks! #bcsm | |
Alicia C. Staley @stales RT @kathygori: @stales T1: @stales T1: I didn’t feel that way after dx, but when I finished chemo I felt that I could never trust my body again. I was young and fit and yet I saw my body as a ‘78 lime green gremlin with transmission trouble and now I was supposed to drive it across Death Valley along. #bcsm | |
patty spears @paspears88 A1 - Felt like I aged 10 years in that year of treatment... went from pre-meno to post-meno after first chemo at 40... then everything followed - thin bones, thyroid, loss of muscles, etc.. #bcsm | |
Lex @Lex_in_CO T1-Felt very betrayed - with bone mets day one remember telling daughter like a fans of thugs invaded my body and tagged graffiti up my spine 😡 #bcsm | |
Howard Karpoff @doctorkarpoff RT @stales: T1: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm | |
Linda Holden @lpholden Neuropathy for Bob #bcsm | |
Lex @Lex_in_CO @paspears88 So relate. Menopause on hyperdrive is the pits. #bcsm | |
Dennis Keim @denniskeim A bit late tonight. Howdy, friends. Stage 1 breast cancer in 2013. Still NED in NE. #bcsm | |
LaTina Starling @latinastarling T1: after my cancer diagnosis I felt self-conscious about my body. Each day that passed, I started to feel a little better about my body, just adapting to the changes. #bcsm | |
Dennis Keim @denniskeim T1: I feel more like I've let down my body. So many folks are getting with the gym and have lots worse issues than I have. #bcsm | |
Kathy Gori @kathygori @socflyny @stales I could use one of those #bcsm | |
Alicia C. Staley @stales RT @denniskeim: T1: I feel more like I've let down my body. So many folks are getting w/ the gym + have lots worse issues than I have #bcsm | |
Alicia C. Staley @stales @denniskeim Hello, hello! #bcsm | |
Stef Woods @citygirlblogs RT @stales: T1: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm | |
Kathy Gori @kathygori @UppityCancerP I wondered what it would be like to go to the hospital for a happy reason ... like those car ads with the new baby coming home. #bcsm | |
Alicia C. Staley @stales T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #bcsm | |
Kathy Gori @kathygori @UppityCancerP Oh yeah!! I think I’m about ready for that. #bcsm | |
Lex @Lex_in_CO Decided against mastectomy - tried to move forward with humor. Kept the “Killer boobs” in lieu of dealing with reconstruction. That and the closing the barn door after the fact thing 🤷♀️ #bcsm | |
Inspire @InspireIsHealth RT @stales: T1a: T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #bcsm | |
Kathy Gori @kathygori @UppityCancerP In a while crocodile... I watched waaaay too many happy days #bcsm | |
Ishwaria Subbiah, MD MS FASCO @IshwariaMD @kathygori Survivors making the difference!! 👏🙏 Brava, @kathygori! #bcsm #payitforward | |
Lex @Lex_in_CO Trusting myself or my body? Probably no to both or only partial. Balance between hyper vigilance and the I don’t give a flying ~~~ days 🤭 #bcsm | |
LaTina Starling @latinastarling T1a: I walked everyday. Changed my diet completely. A lot of self care mostly. Throwing away lotions and products that were not friendly to my skin.#bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz Signing in for the first time in too long to the rockstars at #bcsm | |
LaTina Starling @latinastarling T1a: I almost trust myself self but with a side eye. #bcsm https://t.co/JYdz6YX5Ik | |
LaTina Starling @latinastarling RT @stales: T1a: T1a: What steps did you take to regain your footing/bearings after a cancer dx? Do you ever really "trust" yourself again? #bcsm | |
Kathy Gori @kathygori @IshwariaMD So glad she did that for me. And then there was the nurse at Cedars who threw herself into my arms and wept about the breast cancer that she had when she was 22! She was about 30 a bit younger than me and I guess seeing a young patient loosened something #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz T1- Cancer changed everything. First after diagnosis was a roller coaster of just keeping up with the onslaught of treatments and symptoms. I'd say that my relationship with cancer and the world has evolved from dx to treatments to NED treatments to living again. #bcsm | |
Kathy Gori @kathygori @UppityCancerP I can see where that would feel great. #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz T1a- on the topic of trust, I'd say I trust myself much more now. The hospital wanted to send me to hospice. I trusted myself and refused, and now I've had 3.5 amazing years of joyful moments I would have missed if I hadn't trusted myself. #bcsm | |
Lex @Lex_in_CO a more positive move forward for me was ATTEMPTING to be more mindful, present Live more and worry less. Still working on it though #bcsm | |
Rachel Webb @raychwrites Hi #bcsm. Late tonight but wanted to say hi. NED in St. Louis. | |
Alicia C. Staley @stales @raychwrites hi there! #bcsm | |
Alicia C. Staley @stales @Lex_in_CO that's always a good plan! #bcsm | |
Rachel Webb @raychwrites @LatinaStarling Best answer ever! #bcsm | |
Merey @MereyGnome Hi from Queens, New York. 4 1/2 years NED. #bcsm | |
Alicia C. Staley @stales @GailZahtz nice to see you! #bcsm | |
Alicia C. Staley @stales @LatinaStarling :-) #bcsm | |
Social✽Fly @socflyny @stales T1: Due to extensive family history (and no #BRCA) I always felt it was a question of "when" vs "if" ... but having lived such a healthy lifestyle, I felt like it was all for nothing and maybe the dx was wrong. #bcsm | |
Rebecca Pine @breastandsea Comparing myself to where I was b4 cancer was setting myself up for major disappointment. Had to focus on simple basics. Checking in regularly about how I was REALLY feeling & learning to tolerate & eventually accept as much of the raw and uncomfortable as possible helped. #bcsm | |
Alicia C. Staley @stales @MereyGnome hi there! welcome #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz T1- on the question of feeling like our bodies have let us down- In my experience, my relationship with my body has changed through dx, diagnosis and NED and it's constantly evolving. Today I went suit shopping for the 1st time since dx and it was a really positive exp. #bcsm | |
Alicia C. Staley @stales Nice to see many old and new faces tonight! #bcsm | |
Dennis Keim @denniskeim @Lex_in_CO Also trying to work on the mindfulness with mixed results. Should really be into Cognitive Behavioral Therapy (CBT) more. #bcsm | |
Alicia C. Staley @stales T2: How do you rebuild self-confidence? What's worked for you? #bcsm | |
Social✽Fly @socflyny @kathygori @stales Omg, that analogy!!! (pretend the GIF is green) #bcsm https://t.co/SIrXMVFOBc | |
Gail Zahtz 🇮🇱 @GailZahtz It's great to be seen, TYSM @stales for keeping this going all of this time! I would "listen" sometimes when it was particularly bad and #bcsm gave me strength. Now I hope I can share some hope, since I'm happy to say I'm NED 2 years May 5 after my nursing home nightmare. | |
Dennis Keim @denniskeim @stales I need to remind myself to get some proper perspective now and then. Sometimes I can get out there with anxiety at times. #bcsm | |
Social✽Fly @socflyny RT @stales: T2: T2: How do you rebuild self-confidence? What's worked for you? #bcsm | |
Alicia C. Staley @stales RT @breastandsea: Comparing myself to where I was b4 cancer was setting myself up for major disappointment. Had to focus on simple basics. Checking in regularly about how I was REALLY feeling & learning to tolerate & eventually accept as much of the raw and uncomfortable as possible helped. #bcsm | |
Alicia C. Staley @stales RT @socflyny: @stales T1: @stales T1: Due to extensive family history (and no #BRCA) I always felt it was a question of "when" vs "if" ... but having lived such a healthy lifestyle, I felt like it was all for nothing and maybe the dx was wrong. #bcsm | |
Radha @radhachitale @stales @teaminspire Hi #bcsm, just popping my head in :) | |
Gail Zahtz 🇮🇱 @GailZahtz T2- I think that rather than viewing it as rebuilding self confidence post cancer dx, it's a matter of creating a new relationship with my "self" and the world. For me, it's ended up positive, but it was a rough journey to get here. #bcsm | |
Alicia C. Staley @stales @radhachitale @teaminspire hello, hello! #bcsm | |
Alicia C. Staley @stales @denniskeim understandable, to say the very least. I know it. #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff Thwarted by kid bedtime. Apparently the 3 year found an old jar of Aquaphor—things are very greasy. 😬😩 Belated hello to all! #bcsm | |
Alicia C. Staley @stales T2: How do you rebuild self-confidence? What's worked for you? How do you start moving forward again? #bcsm | |
Inspire @InspireIsHealth RT @breastandsea: Comparing myself to where I was b4 cancer was setting myself up for major disappointment. Had to focus on simple basics. Checking in regularly about how I was REALLY feeling & learning to tolerate & eventually accept as much of the raw and uncomfortable as possible helped. #bcsm | |
Alicia C. Staley @stales @DrSGraff Oh no! that's not good. #bcsm | |
Dennis Keim @denniskeim The more I read about Cognitive Behavioral Therapy (CBT) the more I think it should be part of continuing cancer treatment. #bcsm | |
Inspire @InspireIsHealth RT @stales: T2: T2: How do you rebuild self-confidence? What's worked for you? How do you start moving forward again? #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz @itsthebunk I like this analogy (waving hi Liza!) It's like a dance in which no-one could have given us the steps and we're learning them as we go. That means stepping on our own (and others) toes for awhile before it can become joyful. #bcsm | |
Rachel Webb @raychwrites T1: It’s really hard to sum up how I felt. I felt a little of everything and a whole bunch of nothing else. That’s the closest I can come to describing it. #bcsm | |
Lisa M Guzzardi, RN @LguzzardiM Decoding #Cancer’s DNA : New algorithm IDs patients harboring a tumor-causing defect found in multiple cancers @harvardmed #cancerresearch #genetics #PARP #bcsm https://t.co/fFoOxBNBIK | |
Uppity Cancer Pt @UppityCancerP @DrSGraff Okay. That's the best thing I've heard all day. 3 year old, jar of aquaphor. Was there also a puppy involved? Thank you for that moment. #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz @denniskeim Oh, therapy has been a part of my treatment at my cancer clinic and I highly recommend it to all programs/ patients. In our case, it's a palliative care social worker who's done weekly therapy for years now. She's been there through it all. Invaluable!! #bcsm | |
University Hospitals Breast Imaging @UHbreastimaging RT @DrIanWeissman: "Screening only women ages 50-74 every other year, as now recommended the ACP, may result in up to 10,000 unnecessary, breast cancer deaths in the US each year." @NinaVincoffMD @amykpatel @mitvamd @RMilesMD @SHerschorn @DrGMcGinty @DrPaulaGordon @NBSaphierMD @MonicaSheth @ACRRAN | |
Alicia C. Staley @stales @denniskeim That's an interesting idea! #bcsm | |
Alicia C. Staley @stales RT @Lex_in_CO: Trusting myself or my body? Probably no to both or only partial. Balance between hyper vigilance and the I don’t give a flying ~~~ days 🤭 #bcsm | |
Social✽Fly @socflyny @stales T2: For me, working out has been a godsend ... at first it was simply restoring mobility, but when I was able to resume my regular classes, it became about building strength, and ultimately feeling like a badass again. Everyone has to find what works for them. #bcsm | |
Lex @Lex_in_CO T2 for me it was work. Could see success there. Big help was also great team - my onc the nurses and admin supportive family friends and faith Really needed every single piece ❤️ #bcsm | |
Dennis Keim @denniskeim RT @stales: T1: T1: After a cancer diagnosis, many people feel like their bodies "let them down" - how did you feel? #bcsm | |
Dr. Kelly Shanahan @stage4kelly T2: with a mets diagnosis I know that my body and the cancer will inevitably betray me, but until that day I live as best I can with all the collateral damage of neuropathy, stiffness, and chemo brain. #bcsm | |
Alicia C. Staley @stales RT @socflyny: @stales T2: @stales T2: For me, working out has been a godsend ... at first it was simply restoring mobility, but when I was able to resume my regular classes, it became about building strength, and ultimately feeling like a badass again. Everyone has to find what works for them. #bcsm | |
Alicia C. Staley @stales @socflyny love this! #bcsm | |
Alicia C. Staley @stales RT @Lex_in_CO: T2 for me it was work. Could see success there. Big help was also great team - my onc the nurses and admin supportive family friends and faith Really needed every single piece ❤️ #bcsm | |
Alicia C. Staley @stales RT @stage4kelly: T2: T2: with a mets diagnosis I know that my body and the cancer will inevitably betray me, but until that day I live as best I can with all the collateral damage of neuropathy, stiffness, and chemo brain. #bcsm | |
Rebecca Pine @breastandsea T2: Learning to listen more deeply to myself. Identifying and turning down the volume of inner criticism. Learning to make peace with whatever arises and lean into discomfort. Also recognizing that I could help others through advocacy or support helped me as well. #bcsm | |
Alicia C. Staley @stales Some great thoughts and insights tonight!! #bcsm | |
Alicia C. Staley @stales Time is flying by tonight........ #bcsm | |
Alicia C. Staley @stales Last thoughts for tonight on this topic? #bcsm | |
Alicia C. Staley @stales Recap: How do you learn to trust/regain self confidence after a cancer dx? GO! #bcsm | |
Alicia C. Staley @stales RT @breastandsea: T2: T2: Learning to listen more deeply to myself. Identifying and turning down the volume of inner criticism. Learning to make peace with whatever arises and lean into discomfort. Also recognizing that I could help others through advocacy or support helped me as well. #bcsm | |
Rachel Webb @raychwrites I’ve had to accept that I’m not the same person in many ways but I’m still the same person in other ways. Mostly, it’s just taken time. #bcsm | |
Alicia C. Staley @stales @breastandsea These are some great thoughts and wonderful advice for all of us. #BCSM | |
Gail Zahtz 🇮🇱 @GailZahtz Thank you! My journey has led me to a place of real joy. I'm hesitant to share that, because I'm respectful of the fact that people are all over the spectrum. But for me, coming so close to dying...every moment is a gift. #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff @UppityCancerP No puppy. But the outside of said child’s pull-up, the carpet, and many toys are very well moisturized. Hard to imagine the scope of damage a few unsupervised moments can inflict. #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz I think that working with a therapist can be the most personal decision on the members of your cancer team. Mine says that at our first meeting I said, "You need to accept that I'm going to live, if you can then we can start work." She's supported me ever since. #bcsm | |
Rachel Webb @raychwrites @LeighHelberg Sorry about the chronic pain! Just watch for the hashtag and remember to add #bcsm tag to your tweets. | |
Dennis Keim @denniskeim @GailZahtz One of the side effects of cancer treatment can be sleep issues. I was surprised to find that CBT has also been used for treating insomnia. It's like a medical Swiss Army knife. Lots of uses. #bcsm https://t.co/tdcLgDLthK | |
LaTina Starling @latinastarling T2: I started right away turning the focus off of me and looking for ways to volunteer at my kids school, with other cancer support organizations. Laughter got me through of lot of it. Strong family support team and friends. I always kept doing my favorite things. #BCSM | |
LaTina Starling @latinastarling RT @stales: T2: T2: How do you rebuild self-confidence? What's worked for you? How do you start moving forward again? #bcsm | |
Social✽Fly @socflyny @stales (Of course it serves an additional stress-reducing purpose now ... I have taken to "naming" the sandbag we use during slams -- think Monica Seles without a racquet) 😉 #bcsm | |
Lisa M Guzzardi, RN @LguzzardiM #BreastCancer in Young Women: The disease comes with unique challenges when you're diagnosed before age 40. #bcsm #cancerresearch #PatientExperience Via @USNewsHealth https://t.co/NdTvMUziMM | |
Marcelo Ceron ◤✠◢ @marceloceronMD RT @JAMAOnc: Review of the current landscape of immunotherapy in #BreastCancer covers field from immune checkpoint inhibitors to vaccines, adoptive cellular therapy, & combinations w current standards. Impressive range of trials in progress https://t.co/X20aFbjJNf #BCSM | |
Gail Zahtz 🇮🇱 @GailZahtz Much of the success I've had within my cancer and NED treatments has been how I relate to my mind and spirit. Mindfulness, refocusing, grounding, therapy, sensory, what I surround myself with physically and emotionally- all count a lot! #bcsm | |
Social✽Fly @socflyny @stales T2: Added benefit to working out -- it helps keep weight/body fat down -- one of the few "controllable" risk factors we know of. #bcsm | |
Rachel Webb @raychwrites RT @LatinaStarling: T2: T2: I started right away turning the focus off of me and looking for ways to volunteer at my kids school, with other cancer support organizations. Laughter got me through of lot of it. Strong family support team and friends. I always kept doing my favorite things. #BCSM | |
Dennis Keim @denniskeim @itsthebunk I'm sorry to hear that happened to you. Liza. I'm thinking maybe the problem there was with the therapist and not the CBT itself. I used it for OCD issues I had while doing chemo. In some ways, the OCD was worse than the chemo. Seriously. #bcsm | |
Hillary (Stires) Andrews, PhD @HillStirSci Thanks to everyone for sharing tonight! Sending hugs! #bcsm | |
Lex @Lex_in_CO Not nice but F.. it! I just gotta live - not forever I know. But for today. Try not to dwell but also allow that there are going to be bad - really suck - days But when I can tweet about it ... it really does help. Love to all 💕 #bcsm | |
Jamie Holloway, PhD @jamienholloway Time zones get me every time! My #bcsm alarm just went off, but since I'm spring breaking in central time, I missed it! Next week, friends! | |
Gail Zahtz 🇮🇱 @GailZahtz Look forward to reading this. Interested to hear what they say about the challenges of diagnosis itself when you're young. If I'd received a mammogram when I first asked rather than being told I was "too young", wouldn't have metastasized to lymph nodes & been inoperable. #bcsm | |
Alicia C. Staley @stales Great chat everyone. Thanks for joining in! Some great insights tonight. #bcsm | |
Rebecca Pine @breastandsea Especially during times of trauma like a cancer diagnosis, it’s important for us to be as gentle & compassionate with ourselves as possible. We don’t need to figure out all the answers then & there. Being hard on ourselves doesn’t help us find answers sooner-usually=later #bcsm | |
Alicia C. Staley @stales GROUP HUG #bcsm | |
Rachel Webb @raychwrites Perfection. #bcsm | |
Alicia C. Staley @stales @jamienholloway LOL -- Have a nice break! #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz Thank you so much everyone at #bcsm I have to get it on my calendar again. @stales if you send a reminder tweet, please add me. I am so grateful to you and everyone in the tribe! | |
Alicia C. Staley @stales RT @LatinaStarling: T2: T2: I started right away turning the focus off of me and looking for ways to volunteer at my kids school, with other cancer support organizations. Laughter got me through of lot of it. Strong family support team and friends. I always kept doing my favorite things. #BCSM | |
Alicia C. Staley @stales RT @Lex_in_CO: Not nice but F.. it! I just gotta live - not forever I know. But for today. Try not to dwell but also allow that there are going to be bad - really suck - days But when I can tweet about it ... it really does help. Love to all 💕 #bcsm | |
Alicia C. Staley @stales RT @HillStirSci: Thanks to everyone for sharing tonight! Sending hugs! #bcsm | |
Alicia C. Staley @stales RT @breastandsea: Especially during times of trauma like a cancer diagnosis, it’s important for us to be as gentle & compassionate with ourselves as possible. We don’t need to figure out all the answers then & there. Being hard on ourselves doesn’t help us find answers sooner-usually=later #bcsm | |
Alicia C. Staley @stales @GailZahtz Will do!!! Have a nice night. #BCSM | |
Hematology & Oncology Women Physicians Group—HOWPG @HemOncWomenDocs RT @BreastTexas: #breastcancer treatment in a simple, easy to read nutshell! #medtwitter #BCSM @HemOncWomenDocs | |
Rachel Webb @raychwrites @LeighHelberg Oooh, that sounds rough. I’m so sorry. I wish I had some useful advice but I just have sympathy. #bcsm | |
Gail Zahtz 🇮🇱 @GailZahtz I'm so so sorry your experience was so negative Liza! It's all about the provider. Mine is gentle and loving and supportive and has been a top asset to my cancer team. I can't imagine having one during dx and treatment who was otherwise. Hugs. #bcsm | |
Alicia C. Staley @stales #BCSM - great comments here --> | |
LaTina Starling @latinastarling thanks for another great chat. Goodnight #bcsm | |
Social✽Fly @socflyny Important #BCSM PSA: Please check date of your measles vaccination. Many people immunized between 1963-1967 need to be re-vaccinated. This story has been EXTREMELY under-reported. https://t.co/9hDLDAxnGJ #bcsm | |
Rachel Webb @raychwrites @LeighHelberg @itsthebunk Totally! Every Monday. 9 pm eastern time. #bcsm | |
Dennis Keim @denniskeim @itsthebunk As I understand it, certified therapists in CBT are kind of hard to find & are expensive to use. My mental health therapists were grad students at the local large state university psych lab. Super cheap & helped. Stopped going to focus on the chemo. Only so much energy. #bcsm | |
Bronwyn Hilder @hilderbillies RT @drtclay: Course for people interested in what radiotherapy is and how it works #lcsm #bcsm #pcsm #gyncsm #cxca #StandUpToCancer #cancerawareness https://t.co/cnAms79ozb | |
Dennis Keim @denniskeim @itsthebunk I still need to finish the CBT for Dummies book. :) #bcsm | |
Dennis Keim @denniskeim @itsthebunk The therapy I got helped me to understand what I was dealing with and what I needed to do to stabilize and improve the situation. At that point, stabilization was what I needed and I was able to get that and a bit of improvement. Now to get more energy to improve more. #bcsm |
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