#BCSM Transcript

Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.

ProfileTweet
Angela Alexander PhD @thecancergeek
Howdy #bcsm friends
Jamie Holloway, PhD @jamienholloway
Hi Angela and Liza! #bcsm
Howard Karpoff @doctorkarpoff
hi all Breast surgeon from slightly upstate NY lurking around #bcsm
Alicia C. Staley @stales
Good evening everyone! #bcsm
Dr_Dana @Dr_Dana
Hello everyone! Breast surgeon in Little Rock.Hope everyone is well! #bcsm
Alicia C. Staley @stales
Please take a moment to say hello #bcsm
Alicia C. Staley @stales
@itsthebunk POLO #BCSM
Dear Dr. Researcher, PhD @corrie_painter
Hi #bcsm multitasking, multilurking?
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Greetings from Florida! Dx March 2014 stage Ia, bcs/chemo/rads, now on anastrazole and NED. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
Taking a break from policy research to join #bcsm. Hi all; I'm Shereese here in Maryland. https://t.co/dV2FxPbQS3
Jamie Holloway, PhD @jamienholloway
I'm Jamie, 4yrs NED after TNBC. Scientist and advocate. #bcsm
Alicia C. Staley @stales
@corrie_painter Hello, hello! #bcsm
Alicia C. Staley @stales
@jamienholloway Hey there! #bcsm
Alicia C. Staley @stales
@ShereesePubHlth Good evening! #bcsm
Alicia C. Staley @stales
@Elissa_Malcohn Hi there! #bcsm
Living Like A Lady @LivingLikeLady
Greetings from St. Louis...her+ bc, 6 year survivor...now author, speaker and volunteer #BCSM
Rachel Webb @raychwrites
Hi, survivor here in St. Louis. Here to learn. #bcsm
Dear Dr. Researcher, PhD @corrie_painter
@stales Hello! #bcsm
Alicia C. Staley @stales
@raychwrites Hi there! #bcsm
Alicia C. Staley @stales
@DrAttai hey! #bcsm
Alicia C. Staley @stales
@Dr_Dana hello #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@jamienholloway I had a sidebar Q 4 U. I'm working on a partner conference initiative.Would bring together advocates, Drs, and disruptors. Interested? #BCSM
Alicia C. Staley @stales
I'm sure I'm missing a few of you! Please say hello and we will get started in a moment #bcsm
mary @zebrafinch
#bcsm is the Breast Cancer Social Media tag for a weekly chat with phenomenal doctors and patients. Supportive and informative. 👏🏻 https://t.co/wAcuoQ4wHW
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@stales I had a sidebar Q 4 U. I'm working on a partner conference initiative.Would bring together advocates, Drs, and disruptors. Interested? #BCSM
Alicia C. Staley @stales
As a reminder, you can read more about #BCSM https://t.co/0KzBtOpPgz
Dennis Keim @denniskeim
Hello, #bcsm folks. Stage 1 BC with ITCs in 2013. Surgery, 6x TC chemo and now tamoxifen. Still NED in NE.
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @stales: As a reminder, you can read more about #BCSM https://t.co/0KzBtOpPgz
Alicia C. Staley @stales
And you can read more about #BCSM here: https://t.co/rUD9nLTZe4
Rod Ritchie @malefitness
Hi Folks. #bcsm
Smith-Brooks @Brooksx2
Hello--just a humble survivor to date... #BCSM
Howard Karpoff @doctorkarpoff
RT @stales: As a reminder, you can read more about #BCSM https://t.co/0KzBtOpPgz
Alicia C. Staley @stales
As always, you can reach out to #BCSM here: https://t.co/FGFUlXLPZq
The IBC Network Foundation @TalkIBC
howdy, just sitting here draining waiting to start! #bcsm
Alicia C. Staley @stales
We will get started in a moment! #bcsm
Alicia C. Staley @stales
@TalkIBC hey there! how are you? #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
Hey all! Packing for BFFs cancelorette party this weekend so I'll be in and out! #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@jamienholloway I'll DM you my email and phone #BCSM
Alicia C. Staley @stales
@Brooksx2 hey there! #bcsm
Dennis Keim @denniskeim
RT @MommysCancer: In a couple of minute talking tumor boards on #bcsm chat. #breastcancer https://t.co/sMZiqDXIij
Alicia C. Staley @stales
@malefitness Hi Rod! #bcsm
Alicia C. Staley @stales
@denniskeim Hi Dennis! #bcsm
Alicia C. Staley @stales
@ShereesePubHlth Yes, please DM me! Thanks! #BCSM
The IBC Network Foundation @TalkIBC
@stales good! sorry I missed you in Boston. Now I have to come back! #bcsm
Inspire @InspireIsHealth
RT @stales: As a reminder, you can read more about #BCSM https://t.co/0KzBtOpPgz
IBC Research Fdn @IBCResearch
Tweeting in while arguing with Comcast about my bill...grrrrr #bcsm
Inspire @InspireIsHealth
Hello to #BCSM, John Novack here from Inspire.
Alicia C. Staley @stales
Okay - Tonight, we're talking about Tumor Boards. #bcsm
Alicia C. Staley @stales
Before we get started on tonight's topic, I wanted to take a moment to remember @jodyms #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
RT @stales: Okay - Tonight, we're talking about Tumor Boards. #bcsm
Alicia C. Staley @stales
It's been a year since @JodyMS passed - and we miss her every day. #bcsm
Alicia C. Staley @stales
@LAmourAngelique Yes, we will. #bcsm
The IBC Network Foundation @TalkIBC
@stales @jodyms We will never forget. #bcsm
Alicia C. Staley @stales
RT @TalkIBC: @stales @jodyms We will never forget. #bcsm
Angela Alexander PhD @thecancergeek
Feels like longer! RT @stales: It's been a year since @JodyMS passed - and we miss her every day. #bcsm
Dennis Keim @denniskeim
RT @stales: Okay - Tonight, we're talking about Tumor Boards. #bcsm
IBC Research Fdn @IBCResearch
@malefitness Hi @malefitness ...how goes it? #bcsm
Dennis Keim @denniskeim
RT @stales: It's been a year since @JodyMS passed - and we miss her every day. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@LAmourAngelique For Manchester #bcsm https://t.co/MySrXXo245
Jamie Holloway, PhD @jamienholloway
Was just thinking of her too. Can't believe it's been a year. RT @stales:It's been a year since @JodyMS passed- miss her every day. #bcsm
Alicia C. Staley @stales
Very hard to comprehend that @JodyMS has been gone for over a year. #bcsm
Alicia C. Staley @stales
RT @DrAttai for those who don't know, @stales and @jodyms co-founded #bcsm https://t.co/rUD9nLTZe4
IBC Research Fdn @IBCResearch
Such an amazing & caring person. Always worried about someone else. 💓 #bcsm https://t.co/64AWufmCzG
Alicia C. Staley @stales
Tonight's topic is one I discussed with @JodyMS a number of times... So, in her honor, let's kick off tonight's chat on Tumor Boards. #bcsm
Kathy Gori @kathygori
Bc 2x 'er Checking in late from Nor Cal #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @stales: Tonight's topic is one I discussed with @JodyMS a number of times... So, in her honor, let's kick off tonight's chat on Tumor Boards. #bcsm
Alicia C. Staley @stales
T1: What is a Tumor Board? Have you heard of a Tumor Board? #bcsm
Alicia C. Staley @stales
@Jpete008 hey there #bcsm
Angela Alexander PhD @thecancergeek
My definition of "tumor board". Multidisciplinary oncology team meeting to discuss cases 2 make decisions collectively/validate them #bcsm
Alicia C. Staley @stales
@kathygori yo! #bcsm
Alicia C. Staley @stales
A great resource on Tumor Boards: https://t.co/qzAgPuwLf7 #bcsm
Dennis Keim @denniskeim
@kathygori Just in time, Kathy. Nice to see your pixels as always. #bcsm
Jamie Holloway, PhD @jamienholloway
As a researcher, lurking in a tumor board was transformative for me- could see how research affected pt decisions #bcsm
Alicia C. Staley @stales
T1: A Tumor Board is.... "A treatment planning approach in which a number of doctors who are experts in different specialties review" #bcsm
The IBC Network Foundation @TalkIBC
My definition of "tumor board" as a lay person b/4 cancer, was folks in white coats deciding it it was cost effective to treat you. #bcsm
Alicia C. Staley @stales
T1: the medical condition and treatment options of a patient. #bcsm
Kathy Gori @kathygori
@denniskeim Hey there Dennis! #bcsm
Jamie Holloway, PhD @jamienholloway
T1: In a tumor board, all of a pt's docs discuss the case together to come up with the best treatment plan on a very individual basis #bcsm
Dennis Keim @denniskeim
I had my 6 month checkup today (everything is fine pending some blood work) and forgot to ask about tumor boards. Even with a list. :/ #bcsm
Rod Ritchie @malefitness
heard of a TB never been before one #bcsm
Alicia C. Staley @stales
T1: More Tumor Board Resources: Definition is here --- https://t.co/uZwg1NU9eM #bcsm
Living Like A Lady @LivingLikeLady
Are patients typically informed if their tumors are taken to a tumor board? #BCSM
Rachel Webb @raychwrites
@stales I have, but wasn't sure if they were universal or specific to certain treatment centers. #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
RT @jamienholloway: As a researcher, lurking in a tumor board was transformative for me- could see how research affected pt decisions #bcsm
Angela Alexander PhD @thecancergeek
@malefitness usually the patient isn't there. You may not even have known about it - can't promise they happen everywhere though. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
T1 I've heard of tumor boards & they're not unique to rare cancers. Boards are also seen in REM cases. I've consulted on a few. #BCSM
Alicia C. Staley @stales
T1: Nice article from @Cure_Magazine https://t.co/ke18zPnAe3 #bcsm
Kathy Gori @kathygori
@itsthebunk T1 I had dueling tumor boards UCSF and cedars in LA ... I wound up going w/ UCSF' s more aggressive plan #bcsm
Alicia C. Staley @stales
T1..... RT @DrAttai Usually cases are discussed at time of diagnosis #bcsm
The IBC Network Foundation @TalkIBC
RT @stales: T1: T1: Nice article from @Cure_Magazine https://t.co/ke18zPnAe3 #bcsm
Jamie Holloway, PhD @jamienholloway
T1: We actually called it clinical breast cancer conference and researchers were also included, though mostly lurked #bcsm
Alicia C. Staley @stales
@raychwrites It is dependent on cancer center - I've heard from a number of patients that have never heard of them #bcsm
Dennis Keim @denniskeim
RT @thecancergeek: @malefitness usually the patient isn't there. You may not even have known about it - can't promise they happen everywhere though. #bcsm
Howard Karpoff @doctorkarpoff
RT @ShereesePubHlth: T1 I've heard of tumor boards & they're not unique to rare cancers. Boards are also seen in REM cases. I've consulted on a few. #BCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
T1 Treatment plans involve more than just treatment. IMHO, tumor boards are vital & other DX areas could benefit greatly from them #bcsm
Kathy Gori @kathygori
@itsthebunk Turns out there was another similar case and my dr in LA said that patient went w/ more aggressive plan also so...glad I did it #bcsm
Howard Karpoff @doctorkarpoff
RT @stales: T1: T1: A Tumor Board is.... "A treatment planning approach in which a number of doctors who are experts in different specialties review" #bcsm
Rod Ritchie @malefitness
T1 How on earth could there be consensus on the TB? #bcsm
Dennis Keim @denniskeim
RT @stales: @raychwrites It is dependent on cancer center - I've heard from a number of patients that have never heard of them #bcsm
Rod Ritchie @malefitness
@Jpete008 @itsthebunk Invasion of privacy? #bcsm
Dennis Keim @denniskeim
RT @jamienholloway: T1: T1: We actually called it clinical breast cancer conference and researchers were also included, though mostly lurked #bcsm
Angela Alexander PhD @thecancergeek
@malefitness sometimes there isn't consensus. But the treating physicians must make a call once its time to treat/not treat. #bcsm
Living Like A Lady @LivingLikeLady
It could be very helpful to patients to know that great minds are coming together on their behalf! #BCSM https://t.co/d7BWZR0Qyw
Dennis Keim @denniskeim
RT @LivingLikeLady: It could be very helpful to patients to know that great minds are coming together on their behalf! #BCSM https://t.co/d7BWZR0Qyw
The IBC Network Foundation @TalkIBC
@itsthebunk i was told mine did, but only because I learned one of my team fought for the treatment yes. #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
T1: From my experience, our tumor board is mostly difficult cases. #bcsm
IBC Research Fdn @IBCResearch
Local onc wasn't sure what to to do, so got NCI tumor Bd to review my case & give tx recommendation #bcsm
Dennis Keim @denniskeim
RT @kathygori: @itsthebunk T1 I had dueling tumor boards UCSF and cedars in LA ... I wound up going w/ UCSF' s more aggressive plan #bcsm
Alicia C. Staley @stales
T`1: In large hospitals or institutions, the tumor board is sometime a teaching conference #BCSM https://t.co/A2om0n13yQ
Alicia C. Staley @stales
RT @HillStirSci: T1: T1: From my experience, our tumor board is mostly difficult cases. #bcsm
Alicia C. Staley @stales
RT @jamienholloway: T1: T1: We actually called it clinical breast cancer conference and researchers were also included, though mostly lurked #bcsm
Alicia C. Staley @stales
RT @jamienholloway: T1: T1: In a tumor board, all of a pt's docs discuss the case together to come up with the best treatment plan on a very individual basis #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@itsthebunk I love the institutions that have separate tumor boards for each type of tumor; patient benefits greatly #bcsm
Alicia C. Staley @stales
RT @jamienholloway: As a researcher, lurking in a tumor board was transformative for me- could see how research affected pt decisions #bcsm
Dennis Keim @denniskeim
RT @stales: T1: More Tumor Board Resources: T1: More Tumor Board Resources: Definition is here --- https://t.co/uZwg1NU9eM #bcsm
Alicia C. Staley @stales
RT @LivingLikeLady: It could be very helpful to patients to know that great minds are coming together on their behalf! #BCSM https://t.co/d7BWZR0Qyw
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @stales: T`1: T`1: In large hospitals or institutions, the tumor board is sometime a teaching conference #BCSM https://t.co/A2om0n13yQ
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @HillStirSci: T1: T1: From my experience, our tumor board is mostly difficult cases. #bcsm
Dennis Keim @denniskeim
It's curious that there seems to be no "standard of care" when it comes to tumor boards. #bcsm
Rod Ritchie @malefitness
@HillStirSci @stales T1 Definition of difficult case? #bcsm
Social✽Fly @socflyny
@stales @jodyms Unimaginable. Hugs. #bcsm
Kathy Gori @kathygori
@itsthebunk @malefitness @Jpete008 Yes my onc in LA who treated me the first time took my stuff to the tumor board there from SF #bcsm
Alicia C. Staley @stales
RT @denniskeim It's curious that there seems to be no "standard of care" when it comes to tumor boards. #bcsm
Leslie @Leslieks
Hello #bcsm friends. I'm Leslie, IDC Lft side HER2+, DMX 9/15, TCH 1 yr. Also...DCIS RT side. Both e/p pos.
Living Like A Lady @LivingLikeLady
I can only imagine the confidence in your treatment approach this must have provided! #BCSM https://t.co/3BLG5D5ZjL
Howard Karpoff @doctorkarpoff
For us, all cases are discussed at tumor board, including atypia. Cases are discussed pre and post and non op. #bcsm
Alicia C. Staley @stales
T1a: Tumor Boards are not standard, nor required. #bcsm
SPECFORD59 @SPECFORD59
Committees can add ideas,But treatment by committee may remove personal commitment.When I've been a patient I want my Doctor's opinion #bcsm
Social✽Fly @socflyny
RT @LivingLikeLady: It could be very helpful to patients to know that great minds are coming together on their behalf! #BCSM https://t.co/d7BWZR0Qyw
Angela Alexander PhD @thecancergeek
@malefitness unusual, complicated other medical hx (e.g. prior cancer), patient very different from the norm all count as difficult #bcsm
Alicia C. Staley @stales
T1 - Tumor Boards are usually a meeting of specialists #bcsm
Leslie @Leslieks
I've never heard of it. #bcsm https://t.co/mVkXyi7evg
Howard Karpoff @doctorkarpoff
And we get a chance to re-review films with radiology. Also a way to make sure all practitioners are on the same page #bcsm
Social✽Fly @socflyny
RT @stales: T1: T1: Nice article from @Cure_Magazine https://t.co/ke18zPnAe3 #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@itsthebunk @malefitness @Jpete008 Let me disagree just a bit; all participants are not nec. Drs of the pt; they're different experts commenting on PCP's case (UofM) #BCSM
Alicia C. Staley @stales
T1: The Goal of the tumor board is to come to a consensus on diagnosis and treatment for the patient #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@DrAttai @SPECFORD59 I've always thought it a good idea if Pts could just see, at least once, how tumor boards work #bcsm
Alicia C. Staley @stales
T2: Question for the docs on tonight's chat: Have you participated in a Tumor Board? #bcsm
Dennis Keim @denniskeim
RT @stales: T1: T1: The Goal of the tumor board is to come to a consensus on diagnosis and treatment for the patient #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @stales: T2: Question for the docs on tonight's chat: T2: Question for the docs on tonight's chat: Have you participated in a Tumor Board? #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
@malefitness @stales Mostly cases that are out of the "norm"/ don't have an obvious standard of care based on previous clinical trial data. #bcsm
Living Like A Lady @LivingLikeLady
Especially empowering when dealing with no-chemo second time around! A scary recommendation I bet...#BCSM https://t.co/c6nEU8vGqT
Hillary (Stires) Andrews, PhD @HillStirSci
RT @stales: T1: T1: The Goal of the tumor board is to come to a consensus on diagnosis and treatment for the patient #bcsm
NCI Cancer Stats @NCICancerStats
Sometimes breast cancer occurs in women who are pregnant or have just given birth. Find more information here: https://t.co/k3Izh9YhjK #BCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @NCICancerStats: Sometimes breast cancer occurs in women who are pregnant or have just given birth. Find more information here: Sometimes breast cancer occurs in women who are pregnant or have just given birth. Find more information here: https://t.co/k3Izh9YhjK #BCSM
Social✽Fly @socflyny
RT @HillStirSci: @malefitness @stales Mostly cases that are out of the "norm"/ don't have an obvious standard of care based on previous clinical trial data. #bcsm
Dr_Dana @Dr_Dana
T2:I attend one every week.Great to get input from all specialties.I learn about other types of cancers as well. #bcsm
Dennis Keim @denniskeim
RT @Dr_Dana: T2:I attend one every week.Great to get input from all specialties.I learn about other types of cancers as well. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@Dr_Dana once a week? That's encouraging. I love to think that multi-disciplines are sharing for greater outcomes #BCSM
Living Like A Lady @LivingLikeLady
@itsthebunk Wonderful that you had this opportunity for treatment and support in the decision...#bcsm
The IBC Network Foundation @TalkIBC
@Dr_Dana I wish there was a place for an advocate. Great learning experience. #bcsm
Rod Ritchie @malefitness
T@ Question for docs: Have you ever had a BC guy to deal with? #bcsm
Inspire @InspireIsHealth
RT @stales: T1: T1: The Goal of the tumor board is to come to a consensus on diagnosis and treatment for the patient #bcsm
Howard Karpoff @doctorkarpoff
I run our breast-only tumor board; My NP colates and tracks the cases Every Wednesday AM #bcsm
Dennis Keim @denniskeim
RT @doctorkarpoff: I run our breast-only tumor board; My NP colates and tracks the cases Every Wednesday AM #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@SPECFORD59 @itsthebunk @malefitness @Jpete008 Yeah but, wouldn't the input of your colleague(s), who may have a specialty in certain type of tumor be helpful? #bcsm
Kathy Gori @kathygori
@DrAttai @HillStirSci Yes because it happened again I wanted to hear from the guys who treated me the first time thus calling on LA #BCSM
Alicia C. Staley @stales
Good to know RT @doctorkarpoff I run our breast-only tumor board; My NP colates and tracks the cases Every Wednesday AM #bcsm
Dennis Keim @denniskeim
RT @kathygori: @DrAttai @HillStirSci Yes because it happened again I wanted to hear from the guys who treated me the first time thus calling on LA #BCSM
Alicia C. Staley @stales
Good info! RT @DrAttai T2 I run our breast-only tumor board, so yes. We split from general tumor board a few years ago #bcsm
Dr_Dana @Dr_Dana
@malefitness Yes.Quite a few.Always a nice change;) #bcsm
Rod Ritchie @malefitness
@itsthebunk T2 Let's hope all patients know their case is going to a TB. #bcsm
SPECFORD59 @SPECFORD59
@UppityCancerP @stales Ideas yes, binding recommendations, no. Options yes, individual circumstances widely vary.#BCSM
Hillary (Stires) Andrews, PhD @HillStirSci
@UppityCancerP @stales Agreed! We have students and residents (and post docs!) watching the great minds talk through the best options for patients. #bcsm
Jaime D. Lewis @JaimeDLewisMD
Joining a little late from Cincinnati! Hello #bcsm
Jamie Holloway, PhD @jamienholloway
@itsthebunk Asking docs whether they attend tumor boards... #bcsm
Alicia C. Staley @stales
T2a: Any patients on tonight's chat know that their case was presented at a Tumor Board? #bcsm
Alicia C. Staley @stales
@JaimeDLewisMD Hi! #bcsm
The IBC Network Foundation @TalkIBC
@stales yes, mine was. Learned of it months later. #bcsm
Kathy Gori @kathygori
@DrAttai @SPECFORD59 My onc in LA is chairman of the bc tumor board but I still went with what UCSF suggested #bcsm
Dennis Keim @denniskeim
A2a: I know there was talk of my case heading to the tumor board but don't know what happened after that. Four years down the road now #bcsm
Jaime D. Lewis @JaimeDLewisMD
@stales T2: I attend weekly unless out of town. #bcsm
Social✽Fly @socflyny
@stales T2a - Believe mine was. I think it's standard at MSKCC. #bcsm
Alicia C. Staley @stales
T2a: Great article on patient advocates at Tumor Boards: #BCSM https://t.co/ZzmSp6NjDc
Leslie @Leslieks
My case is going to ibm Watson genome project. I'm assuming 2nd opinion part of that is similar to tumor bd #bcsm https://t.co/MGWxMDFD7s
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@itsthebunk I'm not sure in all orgs but often PatID is withheld & case number or case code is given. PCP presents "case" #BCSM
Dennis Keim @denniskeim
RT @Leslieks: My case is going to ibm Watson genome project. I'm assuming 2nd opinion part of that is similar to tumor bd #bcsm https://t.co/MGWxMDFD7s
Alicia C. Staley @stales
RT @Leslieks: My case is going to ibm Watson genome project. I'm assuming 2nd opinion part of that is similar to tumor bd #bcsm https://t.co/MGWxMDFD7s
Alicia C. Staley @stales
RT @socflyny: @stales T2a - Believe mine was. I think it's standard at MSKCC. #bcsm
Alicia C. Staley @stales
RT @TalkIBC: @stales yes, mine was. Learned of it months later. #bcsm
Alicia C. Staley @stales
RT @HillStirSci: @UppityCancerP @stales Agreed! We have students and residents (and post docs!) watching the great minds talk through the best options for patients. #bcsm
Alicia C. Staley @stales
RT @SPECFORD59: @UppityCancerP @stales Ideas yes, binding recommendations, no. Options yes, individual circumstances widely vary.#BCSM
Dennis Keim @denniskeim
RT @ShereesePubHlth: @itsthebunk I'm not sure in all orgs but often PatID is withheld & case number or case code is given. PCP presents "case" #BCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @stales: T2a: Great article on patient advocates at Tumor Boards: T2a: Great article on patient advocates at Tumor Boards: #BCSM https://t.co/ZzmSp6NjDc
Rod Ritchie @malefitness
@denniskeim Dennis You could go back and ask the hospital/ #bcsm
Inspire @InspireIsHealth
RT @stales: T2a: Great article on patient advocates at Tumor Boards: T2a: Great article on patient advocates at Tumor Boards: #BCSM https://t.co/ZzmSp6NjDc
Howard Karpoff @doctorkarpoff
For non straightforward cases I let my patients know that we discussed their case in a multidisciplinary fashion #bcsm
Alicia C. Staley @stales
Great tweets on tonight's topic of Tumor Boards - Lots of questions - I'm trying to get to them all! #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @doctorkarpoff: For non straightforward cases I let my patients know that we discussed their case in a multidisciplinary fashion #bcsm
Alicia C. Staley @stales
@doctorkarpoff That's fantastic. #bcsm
SPECFORD59 @SPECFORD59
@ShereesePubHlth @itsthebunk @malefitness @Jpete008 Ideas, yes. I'm in Community oncology. We can refer patients to a major nccn center as needed. #BCSM
Kristie McFarling @KMcfarling
@stales T2a: since I have been treated locally through @TexasOncology as far as I know I do not have the benefits of a tumor board. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @SPECFORD59: @ShereesePubHlth @itsthebunk @malefitness @Jpete008 Ideas, yes. I'm in Community oncology. We can refer patients to a major nccn center as needed. #BCSM
Hillary (Stires) Andrews, PhD @HillStirSci
@itsthebunk We have all the docs come & explain- path projects slides through a camera on a microscope, scans by rads, surgeons, plastics, oncs... #bcsm
Jamie Holloway, PhD @jamienholloway
T2: To the docs-- are patients ever present (or permitted to be present?) #bcsm
Dennis Keim @denniskeim
RT @jamienholloway: T2: T2: To the docs-- are patients ever present (or permitted to be present?) #bcsm
Alicia C. Staley @stales
I participated :-) RT @jamienholloway T2: To the docs-- are patients ever present (or permitted to be present?) #bcsm
Living Like A Lady @LivingLikeLady
A challenge when first diagnosed....so much is thrown at the patient and sorting out what is what can be hard...#bcsm https://t.co/37sHS0G3Q0
Kathy Gori @kathygori
@DrAttai @SPECFORD59 Ha! I know! I love him but he said he knew I'd go for the full ride #bcsm
Alicia C. Staley @stales
@KMcfarling @TexasOncology You can always ask about it. #bcsm
Kristie McFarling @KMcfarling
@stales T2a: as a mom with two children under 10, traveling to a larger center for treatment is a major family and QOL obstacle #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@jamienholloway I've only seen it in PedsCa once. Parents were allowed in but I don't think that's the norm or supported #BCSM
Dr_Dana @Dr_Dana
@jamienholloway No.No reps, nurses, just MDs. #bcsm
Angela Alexander PhD @thecancergeek
@jamienholloway not at MDA from my experience. #bcsm
Jamie Holloway, PhD @jamienholloway
@stales Cool! I asked to go to mine and instead got a very long one on one consult with my med onc after she called around... #bcsm
Jaime D. Lewis @JaimeDLewisMD
@jamienholloway On rare occasion we have allowed patients to be present for their presentation. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @JaimeDLewisMD: @jamienholloway On rare occasion we have allowed patients to be present for their presentation. #bcsm
Social✽Fly @socflyny
@stales @cure_magazine Great piece -- but begs the question: Is there any downside to tumor boards (I can't think of any!) #bcsm
Dennis Keim @denniskeim
RT @JaimeDLewisMD: @jamienholloway On rare occasion we have allowed patients to be present for their presentation. #bcsm
SPECFORD59 @SPECFORD59
@itsthebunk We look at micro, molecular, genetics, but there should be a physician who "knows" the patient. Otherwise, plug in data to "Watson".#BCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@jamienholloway @stales Yes I think its generally discouraged. #bcsm
Kristie McFarling @KMcfarling
@DrAttai @stales @TexasOncology T2a: my "team" aren't all in the same practice (i.e. endocrinologist, cardiologist, surgical oncologist at different practices) #bcsm
Alicia C. Staley @stales
More resources on Tumor Boards: https://t.co/dAtyjnv2WN #bcsm
Angela Alexander PhD @thecancergeek
@jamienholloway new multi-team clinic format 4 some pts is sort of a mini-TB...Some MD talk outside room, but group consult @ end #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
No tumor board here, far as I know. Was told my case was very straightforward. Treated at local clinic (within lg network of same). #bcsm
Jamie Holloway, PhD @jamienholloway
@DrAttai @KMcfarling @stales So, are there opportunities for tumor boards at most community hospitals? #bcsm
Kristie McFarling @KMcfarling
@stales @TexasOncology Thank you, I will ask! #bcsm
Alicia C. Staley @stales
T2: Follow up questions to our docs on tonight's chat: What's the difference between a community setting and academic? #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @stales: T2: Follow up questions to our docs on tonight's chat: T2: Follow up questions to our docs on tonight's chat: What's the difference between a community setting and academic? #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @jamienholloway: @DrAttai @KMcfarling @stales So, are there opportunities for tumor boards at most community hospitals? #bcsm
Jaime D. Lewis @JaimeDLewisMD
@ShereesePubHlth @jamienholloway @stales It can be a tough discussion to take in and difficult for everyone to speak openly when the patient is present. #bcsm
Dennis Keim @denniskeim
@Elissa_Malcohn I don't think my case was super complicated either. Only rare part that I know of was being a male. #bcsm
Alicia C. Staley @stales
T2: I'm a tumor board case - hodgkins and then BC. "Let's go to the Board" #bcsm
Dr_Dana @Dr_Dana
T2:I'm in community.Not associated with a teaching hospital.I don't have residents.I do all my own work. #bcsm
SPECFORD59 @SPECFORD59
@kathygori @DrAttai Good for you. Your choice with your doc. So far, we still have that option. So far. #BCSM
Angela Alexander PhD @thecancergeek
Academic v Community - big difference to me is the availability of clinical trials & assoc research staff. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @Dr_Dana: T2:I'm in community.Not associated with a teaching hospital.I don't have residents.I do all my own work. #bcsm
Howard Karpoff @doctorkarpoff
We run the tumor in the community just the way we did at MSKCC #bcsm
Alicia C. Staley @stales
... RT @doctorkarpoff We run the tumor in the community just the way we did at MSKCC #bcsm
Rod Ritchie @malefitness
@Dr_Dana Would residents and interns not make your life more complicated :) #bcsm
Alicia C. Staley @stales
RT @DrAttai T2 although many community hospitals serve as "satellite" hospitals for academic centers & residents/students may be there #bcsm
Jamie Holloway, PhD @jamienholloway
@JaimeDLewisMD @ShereesePubHlth @stales I can definitely see that. #bcsm
Dennis Keim @denniskeim
RT @doctorkarpoff: We run the tumor in the community just the way we did at MSKCC #bcsm
Dr_Dana @Dr_Dana
@malefitness I like teaching.Just not full time. #bcsm
Rachel Webb @raychwrites
@jamienholloway @DrAttai @KMcfarling @stales When I covered healthcare in northwest Arkansas, they had a tumor board but they weren't academic centers. #bcsm
Alicia C. Staley @stales
RT @raychwrites: @jamienholloway @DrAttai @KMcfarling @stales When I covered healthcare in northwest Arkansas, they had a tumor board but they weren't academic centers. #bcsm
Alicia C. Staley @stales
More tumor board resources: https://t.co/eZjZYdETo3 #bcsm
SPECFORD59 @SPECFORD59
#BCSM https://t.co/qfj9wdEOtj
Dennis Keim @denniskeim
@itsthebunk Everybody must be thinking hard. :) #bcsm
Angela Alexander PhD @thecancergeek
@itsthebunk I wondered too. 2 whole minutes with no tweets on # #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@jamienholloway @JaimeDLewisMD @stales You can imagine, hospitals try to limit "risk" areas; this would be one. #BCSM
Alicia C. Staley @stales
How Tumor Boards help patients: https://t.co/4fajOouBxt #bcsm
Miko Hargett aka Maria Walls @mikohargett
RT @stales: How Tumor Boards help patients: How Tumor Boards help patients: https://t.co/4fajOouBxt #bcsm
Dennis Keim @denniskeim
RT @stales: How Tumor Boards help patients: How Tumor Boards help patients: https://t.co/4fajOouBxt #bcsm
Inspire @InspireIsHealth
RT @stales: How Tumor Boards help patients: How Tumor Boards help patients: https://t.co/4fajOouBxt #bcsm
Alicia C. Staley @stales
Did Twitter just totally give out? #bcsm
Howard Karpoff @doctorkarpoff
IN the community, we participate in clinical trials; Majority of us are academically trained. We often have affiliations w/ academics #bcsm
Dennis Keim @denniskeim
RT @doctorkarpoff: IN the community, we participate in clinical trials; Majority of us are academically trained. We often have affiliations w/ academics #bcsm
SPECFORD59 @SPECFORD59
@malefitness @Dr_Dana I like teaching one on one in exam room. We have FP residents rotate in our office. #BCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@thecancergeek @itsthebunk Full disclosure, I just needed to get coffee. I'm back now, lol☕ #bcsm https://t.co/XGzhsTeSaC
Ann Becker-Schutte @DrBeckerSchutte
Sliding into Twitter in time to wave and send all kinds of love to #bcsm-ers!!
Alicia C. Staley @stales
@ShereesePubHlth @thecancergeek @itsthebunk you took out twitter too! LOL #bcsm
Angela Alexander PhD @thecancergeek
@akknowles1 just suggestions. Treating MD still in charge of what happens #bcsm
Alicia C. Staley @stales
@DrBeckerSchutte HELLO, HELLO! #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@itsthebunk @akknowles1 Help would be intuitive. The perceptions vs answers on this question should be interesting #BCSM
Alicia C. Staley @stales
Okay kids! 10 minutes to go #bcsm
Alicia C. Staley @stales
Last thoughts for tonight's chat on Tumor Boards - if you had a question that didn't get answered, Tweet ME! #bcsm
IBC Research Fdn @IBCResearch
I don't think I would have gotten new-adjuvant chemo without the NCI tb, not standard of care for #IBC in 1994 #bcsm
Dennis Keim @denniskeim
RT @IBCResearch: I don't think I would have gotten new-adjuvant chemo without the NCI tb, not standard of care for #IBC in 1994 #bcsm
Ann Becker-Schutte @DrBeckerSchutte
RT @stales: Last thoughts for tonight's chat on Tumor Boards - if you had a question that didn't get answered, Tweet ME! #bcsm
Living Like A Lady @LivingLikeLady
You got coffee, I got wine! Lol! #bcsm https://t.co/enqRm6mVGZ
Alicia C. Staley @stales
We'll reserve the last few moments of the chat for remembering @JodyMS - It's been 1 year (5/18) since the #BCSM co-founder passed away
Alicia C. Staley @stales
@DrAttai @itsthebunk yes, twitter is lagging. #bcsm
Dennis Keim @denniskeim
RT @stales: We'll reserve the last few moments of the chat for remembering @JodyMS - It's been 1 year (5/18) since the #BCSM co-founder passed away
The IBC Network Foundation @TalkIBC
Guess having time thinking TB when I see IBC pts have to fight to even get dx, to get a collection of thought seems not likely. #bcsm
Ann Becker-Schutte @DrBeckerSchutte
RT @IBCResearch: I don't think I would have gotten new-adjuvant chemo without the NCI tb, not standard of care for #IBC in 1994 #bcsm
Jaime D. Lewis @JaimeDLewisMD
@DrAttai @itsthebunk @akknowles1 Similar at my institution. Have to leave some room for the art of medicine and personalization of care #bcsm
Jamie Holloway, PhD @jamienholloway
Lurking as a scientist, I found lots of emphasis given to pt. preferences-- health and life circumstances #bcsm
Ann Becker-Schutte @DrBeckerSchutte
RT @ShereesePubHlth: @thecancergeek @itsthebunk Full disclosure, I just needed to get coffee. I'm back now, lol☕ #bcsm https://t.co/XGzhsTeSaC
IBC Research Fdn @IBCResearch
That was supposed to be neo-adjuvant chemo....darn autocorrect! #bcsm https://t.co/a2SDkTqzWC
Howard Karpoff @doctorkarpoff
RT @stales: We'll reserve the last few moments of the chat for remembering @JodyMS - It's been 1 year (5/18) since the #BCSM co-founder passed away
Dennis Keim @denniskeim
RT @jamienholloway: Lurking as a scientist, I found lots of emphasis given to pt. preferences-- health and life circumstances #bcsm
Howard Karpoff @doctorkarpoff
RT @jamienholloway: Lurking as a scientist, I found lots of emphasis given to pt. preferences-- health and life circumstances #bcsm
Ann Becker-Schutte @DrBeckerSchutte
RT @stales: We'll reserve the last few moments of the chat for remembering @JodyMS - It's been 1 year (5/18) since the #BCSM co-founder passed away
SPECFORD59 @SPECFORD59
Gotta go. Bye. #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
FT; Any time U can bring multi-disciplines together 2 focus on best Tx for 1 Pt, it's a good thing, just ensure Pt voice is considered #bcsm
Jaime D. Lewis @JaimeDLewisMD
Have a good night everyone! #bcsm
Ann Becker-Schutte @DrBeckerSchutte
@stales @jodyms was one of my first strong connections in the Twitterverse. Spending time with her was a gift I cherish. #BCSM
Living Like A Lady @LivingLikeLady
Good night all... #BCSM
Alicia C. Staley @stales
@JaimeDLewisMD Good night! #bcsm
Dennis Keim @denniskeim
RT @DrBeckerSchutte: @stales @jodyms was one of my first strong connections in the Twitterverse. Spending time with her was a gift I cherish. #BCSM
Jaime D. Lewis @JaimeDLewisMD
@DrAttai Goodnight Deanna! Always learn when I participate #bcsm
Jamie Holloway, PhD @jamienholloway
@stales This community that you created w/@jodyms is everything. I never knew her yet the group has made such an impact on me. #bcsm
Alicia C. Staley @stales
@SPECFORD59 good night! #bcsm
Kathy Gori @kathygori
Spinning off now, thanks to all who put this together every week #bcsm
Jaime D. Lewis @JaimeDLewisMD
@stales Goodnight @stales! #bcsm
Dennis Keim @denniskeim
Hope you all have a super week! Enjoy the holiday weekend. I certainly plan on it. :) #bcsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
This was a great chat. Enjoy the week everyone. #bcsm https://t.co/SQdvBRb27i
Alicia C. Staley @stales
Good night everyone!!!! #bcsm
Alicia C. Staley @stales
GROUP HUG #bcsm
Ann Becker-Schutte @DrBeckerSchutte
#bcsm is @jodyms's legacy. I believe that as long as people gather here, she lives on in the community & connections.
Dennis Keim @denniskeim
RT @DrBeckerSchutte: #bcsm is @jodyms's legacy. I believe that as long as people gather here, she lives on in the community & connections.
Alicia C. Staley @stales
@DrBeckerSchutte @jodyms absolutely #bcsm
Angela Alexander PhD @thecancergeek
RT @DrBeckerSchutte: #bcsm is @jodyms's legacy. I believe that as long as people gather here, she lives on in the community & connections.
Social✽Fly @socflyny
@stales @jodyms Not a week goes by that I don't think of Jody. And that we are all still here every Monday is a testament to her legacy. #bcsm
Dr_Dana @Dr_Dana
@stales @DrAttai So glad you and Jody put this group together. Y'all have a good week.Assuming we're off for Memorial Day. #bcsm
Alicia C. Staley @stales
Next week is a HOLIDAY - #BCSM is on vacation
Dennis Keim @denniskeim
RT @stales: Next week is a HOLIDAY - #BCSM is on vacation
Alicia C. Staley @stales
I hope everyone has a wonderful holiday next Monday. ENJOY! #bcsm
Jamie Holloway, PhD @jamienholloway
Good night all, great chat. See you all here in two weeks! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@stales was lucky to experience a few chats with @jodyms. Agree w/@jamienholloway -- extraordinary gift in community she/you created. #bcsm
IBC Research Fdn @IBCResearch
Thanks & night all...hugs & cookies for a good week! #bcsm
Ann Becker-Schutte @DrBeckerSchutte
RT @jamienholloway: @stales This community that you created w/@jodyms is everything. I never knew her yet the group has made such an impact on me. #bcsm
Alicia C. Staley @stales
Good night party tweeple #bcsm
Dennis Keim @denniskeim
So have a super two weeks everyone. :) #bcsm
Alicia C. Staley @stales
Good night moon. #bcsm
Social✽Fly @socflyny
@stales Read the articles which were great. Just curious -- are there any downsides to Tumor Boards? (I can't think of any) #bcsm
Alicia C. Staley @stales
@DrAttai SEE YOU THERE! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Wonderful chat, everyone. Wishing all a great two weeks! HUGS #bcsm
Dennis Keim @denniskeim
RT @Elissa_Malcohn: Wonderful chat, everyone. Wishing all a great two weeks! HUGS #bcsm
Howard Karpoff @doctorkarpoff
night all Be well #bcsm
Rod Ritchie @malefitness
Good day midday Tuesday. #bcsm
Ann Becker-Schutte @DrBeckerSchutte
RT @Elissa_Malcohn: @stales was lucky to experience a few chats with @jodyms. Agree w/@jamienholloway -- extraordinary gift in community she/you created. #bcsm
Dr_Dana @Dr_Dana
@malefitness lol #bcsm
Dennis Keim @denniskeim
@malefitness Kind of surreal at times ain't it. :) #bcsm
Alicia C. Staley @stales
@IBCResearch @ASCO see you there! #bcsm
Alicia C. Staley @stales
@DrBeckerSchutte good night. Great to see you #bcsm
Alicia C. Staley @stales
@Elissa_Malcohn good night! HUGS #bcsm
Alicia C. Staley @stales
@socflyny Great question - I don't believe so. I'll see if I can find an article about it. #bcsm
Alicia C. Staley @stales
RT @Elissa_Malcohn: @stales was lucky to experience a few chats with @jodyms. Agree w/@jamienholloway -- extraordinary gift in community she/you created. #bcsm
Alicia C. Staley @stales
RT @socflyny: @stales @jodyms Not a week goes by that I don't think of Jody. And that we are all still here every Monday is a testament to her legacy. #bcsm
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