#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
– ().
See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Alicia C. Staley @stales Good evening #bcsm |
 | Lung Cancer #1 cancer killer of women @VirginiaMByrne I hope you will out these sneaky cowards on Twitter, so we'll know who they really are. #lcsm #bcsm #hcsm |
 | Danielle Karber @danielle_dk Hi from SoDak!! #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci @stales Hey hey! 👋🏼 #bcsm |
 | Minas Chrysopoulo MD FACS @drchrysopoulo RT @BreastAdvocate: 8 ways to be there for YOURSELF after a #BreastCancer diagnosis. #bcsm https://t.co/8fd1EdZJDQ |
| Minas Chrysopoulo MD FACS @drchrysopoulo RT @SHAREing: "We receive a lot of information about recovery from breast surgery and treatment side effects. But nothing or nothing memorable about metastatic breast cancer." Important info from @SpiveySandra on "taking #MBC out of the closet" https://t.co/SuFNBfChOU #bcsm |
 | Dr. Deanna Attai @DrAttai good evening #bcsm, Deanna Attai, breast surgeon in LA |
 | Inspire @InspireIsHealth @stales Hey Alicia and the #bcsm community, John Novack here from Inspire. |
| Inspire @InspireIsHealth RT @stales: Tonight on #bcsm - join us as we talk about being stronger advocates for the metastatic breast cancer community. Tune in at 9 pm ET |
 | Katherine OBrien @ihatebreastcanc RT @stales: Tonight on #bcsm - join us as we talk about being stronger advocates for the metastatic breast cancer community. Tune in at 9 pm ET |
 | Jamie Holloway, PhD @jamienholloway Hi #bcsm friends! I’m actually not late!! |
| Alicia C. Staley @stales @HillStirSci hey there! #bcsm |
| Alicia C. Staley @stales @thebreastofus hey girl! #bcsm |
| Alicia C. Staley @stales @teaminspire hey there! nice to see you #bcsm |
 | Howard Karpoff @doctorkarpoff hi all Breast surgeon from a bit north of NYC learning and listening #bcsm |
| Katherine OBrien @ihatebreastcanc @stales Hi it’s me, KOB, living with Stage IV breast cancer for 10 years....hello from Chicago https://t.co/BNJabZ2rGI #bcsm |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Stacey from Northern California. Six years ago TODAY I was waking up from a propofol/versed haze after my first mastectomy. Feeling good (after scary bone scan this week) and I've got 30 minutes before Mom's Taxi is active so... joining #bcsm to give virtual hugs & love. |
 | Lisa Rice #MaskUp (she/her) @LisaDTRice @stales #BCSM Good evening! Lisa from #DC. Cancer patient advocate: daughter of 2x bc survivor. June 6 was the 5 yr anniversary of my bff's death from metastatic IBC. |
 | Dr. Kelly Shanahan @stage4kelly Hi all! Former ob/gyn current #MBC patient checking in from gorgeous Lake Tahoe (and keeping an eye out for the bear who was contemplating entering our garage earlier) #bcsm |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff Hello #bcsm Excited for tonight’s topic! #advocacy |
| Katherine OBrien @ihatebreastcanc RT @chemobrainfog: This means more to me than I can put into words. Thank you for honoring the memories, the legacies and the beautiful lives of Lori, Mandi and Susan. They are sorely missed. #bcsm |
| Alicia C. Staley @stales You can learn more about the #BCSM Community here: https://t.co/rUD9nMbA5C |
 | Gustavo Socorro @GSocorroMD RT @BreastAdvocate: Don't forget to perform your monthly self-breast exam! #FridayFeeling #bcsm #breastcancer https://t.co/T1YfLdYXpo |
| Alicia C. Staley @stales And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOHq87 |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @stage4kelly Eek! 🐻 #bcsm |
 | NCI Cancer Stats @NCICancerStats Did you know that the 5-year relative survival rate for localized female breast cancer is 98.8%? Learn more here: https://t.co/wUKAVg2gqh #BCSM https://t.co/MieZW0IzQv |
| Alicia C. Staley @stales If you ever want to suggest a topic for #BCSM, send me a DM, our contact us here: https://t.co/mZtUOmgZHN |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @jamienholloway #BCSM So ... it's gonna be that kind of night. I wasn't late either. Hee hee ... watch out @stales. |
| Alicia C. Staley @stales @ihatebreastcanc Hey hey!! #BCSM |
 | forthebreastofus @thebreastofus RT @stales: Tonight on #bcsm - join us as we talk about being stronger advocates for the metastatic breast cancer community. Tune in at 9 pm ET - 5 minutes from now cc @itsnot_pink @stage4kelly @MBCNbuzz @mbcalliance |
| Alicia C. Staley @stales @LisaDTRice @jamienholloway LOL - hello ladies! #BCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @LisaDTRice @stales 💗💗💗 Big hugs! Hope to give them in person next week #bcsm |
| Inspire @InspireIsHealth RT @stales: You can learn more about the #BCSM Community here: You can learn more about the #BCSM Community here: https://t.co/rUD9nMbA5C |
| forthebreastofus @thebreastofus Hey, ladies! We’re For the Breast of Us, a blossoming breast cancer community for women of color started by two young Breast Cancer Baddies @marissadt28 and @BraveBeauty26 https://t.co/OowZF3tMj8 #bcsm #forthebreastofus |
| Alicia C. Staley @stales @danielle_dk Hello, hello! #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @coffeemommy @stales #BCSM Whaaaaaaaaaat?? You're going to be here? In #DC? |
| Alicia C. Staley @stales @jamienholloway Hello, hello! #bcsm |
| Katherine OBrien @ihatebreastcanc @stales https://t.co/o5NjdXFWrY #bcsm |
| Alicia C. Staley @stales We will get started in a moment. #bcsm |
 | Julia Maués @itsnot_pink @stales @stage4kelly @MBCNbuzz @mbcalliance Hi #bcsm! Almost forgot to join! Thank you @stage4kelly for the text 🙏 Julia in DC living w MBC for 6+ years |
| Alicia C. Staley @stales Please make sure to tag your tweets with #BCSM so we can see you! |
| Alicia C. Staley @stales @itsthebunk YO #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @LisaDTRice @stales Ya Ya - will text you details! #bcsm |
| Alicia C. Staley @stales Tonight - let's take time to learn how we can be better advocates for the metastatic breast cancer community. #bcsm |
| Alicia C. Staley @stales T1 coming up! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @thebreastofus: Hey, ladies! We’re For the Breast of Us, a blossoming breast cancer community for women of color started by two young Breast Cancer Baddies @marissadt28 and @BraveBeauty26 https://t.co/OowZF3tMj8 #bcsm #forthebreastofus |
 | Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins Hi #bcsm sorry to be late. Becca, breast cancer research @LombardiCancer |
 | Kathy Gori @kathygori 2x bc’er checking in from sunny and hot Ca 🍷 country.. Joining late as our power just came back on after a sudden outage #bcsm |
 | Liza B @itsthebunk @itsnot_pink @LisaDTRice @coffeemommy @stales Are we talking #cpat19? :-) Yay! #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @coffeemommy @stales #BCSM coffeemommy and me: 😍😍 stales: 😅 |
| Kathy Gori @kathygori RT @thebreastofus: Hey, ladies! We’re For the Breast of Us, a blossoming breast cancer community for women of color started by two young Breast Cancer Baddies @marissadt28 and @BraveBeauty26 https://t.co/OowZF3tMj8 #bcsm #forthebreastofus |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne This is why we need more $ for research on Stage 4 cancers & patients #BusyLivingWithMets #lcsm #bcsm #hcsm |
| forthebreastofus @thebreastofus RT @stales: Tonight - let's take time to learn how we can be better advocates for the metastatic breast cancer community. #bcsm |
| Liza B @itsthebunk @LisaDTRice @coffeemommy @stales Lisa - you're also coming to #cpat19, right????? :-) @HillStirSci — you will be there too, yes?!! #bcsm |
| Alicia C. Staley @stales T1: The #BCSM community has grown so much since it started in 2011. As we grow, we're learning more and more about different aspects of advocacy. How might we be better advocates for the metastatic breast cancer community? |
| Kathy Gori @kathygori @stage4kelly !!! #bcsm |
| Julia Maués @itsnot_pink RT @stales: T1: T1: The #BCSM community has grown so much since it started in 2011. As we grow, we're learning more and more about different aspects of advocacy. How might we be better advocates for the metastatic breast cancer community? |
| Alicia C. Staley @stales T1: The #BCSM community has grown so much since it started in 2011. As we continue to grow, how might we be better advocates for the metastatic breast cancer community? cc: @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project |
| forthebreastofus @thebreastofus RT @stales: T1: T1: The #BCSM community has grown so much since it started in 2011. As we continue to grow, how might we be better advocates for the metastatic breast cancer community? cc: @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Allowing people to experience cancer in whatever way works best for them but also providing a reality check that while breast cancer doesn't kill people - metastatic breast cancer takes out 117 EVERY SINGLE DAY. We must do better. T1 #bcsm #bccww |
| Danielle Karber @danielle_dk T1: Talk openly about it. I feel like MBC is like BC in the 50s. Don’t speak of it, and if you do, speak only in hushed tones. #bcsm |
 | IBC Research Fdn @IBCResearch Saying hello from Indiana where we saw the sun for a bit today! Dx TN #IBC in 1994, RN 24/7 advocate for advanced breast cancers. #bcsm |
| Katherine OBrien @ihatebreastcanc RT @thebreastofus: Hey, ladies! We’re For the Breast of Us, a blossoming breast cancer community for women of color started by two young Breast Cancer Baddies @marissadt28 and @BraveBeauty26 https://t.co/OowZF3tMj8 #bcsm #forthebreastofus |
| Inspire @InspireIsHealth RT @stales: T1: T1: The #BCSM community has grown so much since it started in 2011. As we grow, we're learning more and more about different aspects of advocacy. How might we be better advocates for the metastatic breast cancer community? |
 | swaggsheila @swaggsheila1 RT @thebreastofus: Hey, ladies! We’re For the Breast of Us, a blossoming breast cancer community for women of color started by two young Breast Cancer Baddies @marissadt28 and @BraveBeauty26 https://t.co/OowZF3tMj8 #bcsm #forthebreastofus |
 | Andrea @BraveBosom RT @stales: T1: T1: The #BCSM community has grown so much since it started in 2011. As we grow, we're learning more and more about different aspects of advocacy. How might we be better advocates for the metastatic breast cancer community? |
| Andrea @BraveBosom RT @stales: Tonight on #bcsm - join us as we talk about being stronger advocates for the metastatic breast cancer community. Tune in at 9 pm ET |
| Dr. Kelly Shanahan @stage4kelly T1. It is in the best interest of early stagers to support us because you could become one of us. Speak out for more metastatic focused research on the national, international, and pink organization level because research is the one area where trickle down theory works, #bcsm |
| Andrea @BraveBosom Hi #BCSM! This is such an important topic! Fantastic chat tonight. Helloooo! |
 | CancerDotNet @CancerDotNet RT @stales: You can learn more about the #BCSM Community here: You can learn more about the #BCSM Community here: https://t.co/rUD9nMbA5C |
| IBC Research Fdn @IBCResearch @LisaDTRice @stales So sorry about the loss of your BFF to #IBC....it continues to steal so many lives. #bcsm |
| Alicia C. Staley @stales RT @BraveBosom: Hi #BCSM! This is such an important topic! Fantastic chat tonight. Helloooo! |
| Alicia C. Staley @stales @BraveBosom Thank you! #BCSM |
| Alicia C. Staley @stales RT @coffeemommy: Allowing people to experience cancer in whatever way works best for them but also providing a reality check that while breast cancer doesn't kill people - metastatic breast cancer takes out 117 EVERY SINGLE DAY. We must do better. T1 #bcsm #bccww |
 | Social✽Fly @socflyny RT @stales: Tonight on #bcsm - join us as we talk about being stronger advocates for the metastatic breast cancer community. Tune in at 9 pm ET |
| IBC Research Fdn @IBCResearch RT @coffeemommy: Allowing people to experience cancer in whatever way works best for them but also providing a reality check that while breast cancer doesn't kill people - metastatic breast cancer takes out 117 EVERY SINGLE DAY. We must do better. T1 #bcsm #bccww |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @stage4kelly: T1. It is in the best interest of early stagers to support us because you could become one of us. Speak out for more metastatic focused research on the national, international, and pink organization level because research is the one area where trickle down theory works, #bcsm |
| Alicia C. Staley @stales @IBCResearch hi there! #bcsm |
| forthebreastofus @thebreastofus T1: Absolutely! We were surprised by the number of metavivors of color who’ve shared their story on our site. We’ve been intentional about creating a space to elevate their journeys https://t.co/MKMSGlHuiF #bcsm #forthebreastofus |
| Alicia C. Staley @stales Good point RT @danielle_dk: T1: Talk openly about it. I feel like MBC is like BC in the 50s. Don’t speak of it, and if you do, speak only in hushed tones. #bcsm |
| Julia Maués @itsnot_pink @stales A1: The #bcsm community is such a big support for MBC community. Yes, people behind #bcsm are great, but the main thing is that they are knowledgeable. Advocates that are well-informed about the realities of BC (& MBC since it follows BC for many) don’t propagate inaccuracies |
| Howard Karpoff @doctorkarpoff RT @stales: T1: T1: The #BCSM community has grown so much since it started in 2011. As we grow, we're learning more and more about different aspects of advocacy. How might we be better advocates for the metastatic breast cancer community? |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @thebreastofus: T1: T1: Absolutely! We were surprised by the number of metavivors of color who’ve shared their story on our site. We’ve been intentional about creating a space to elevate their journeys https://t.co/MKMSGlHuiF #bcsm #forthebreastofus |
| Kathy Gori @kathygori RT @stage4kelly: T1. It is in the best interest of early stagers to support us because you could become one of us. Speak out for more metastatic focused research on the national, international, and pink organization level because research is the one area where trickle down theory works, #bcsm |
| Alicia C. Staley @stales RT @itsnot_pink: @stales A1: The #bcsm community is such a big support for MBC community. Yes, people behind #bcsm are great, but the main thing is that they are knowledgeable. Advocates that are well-informed about the realities of BC (& MBC since it follows BC for many) don’t propagate inaccuracies |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @IBCResearch @stales Thank you. This anniversary was especially rough. It's the first since my mother died (January). The two of them had a funny, special relationship. She'd been my friend since 5th grade. We'd planned to someday be the old geezers at our favorite bar. Anniversaries are tough. #BCSM |
| Social✽Fly @socflyny @stales @danielle_dk Nailed it! #bcsm |
| IBC Research Fdn @IBCResearch @stales Hi Alicia! Glad to be home and hop on tonight! #bcsm |
| Julia Maués @itsnot_pink RT @thebreastofus: T1: T1: Absolutely! We were surprised by the number of metavivors of color who’ve shared their story on our site. We’ve been intentional about creating a space to elevate their journeys https://t.co/MKMSGlHuiF #bcsm #forthebreastofus |
| Dr. Kelly Shanahan @stage4kelly T1. Support legislation that will help us, like the bills to allow those with #MBC on SSDI to get Medicare immediately (although I think all people with diseases that allow them to get SSDI should benefit from this). Call your members of congress #bcsm |
| Alicia C. Staley @stales T1: How might we be better advocates for the metastatic breast cancer community? #BCSM |
| Hillary (Stires) Andrews, PhD @HillStirSci @LisaDTRice @IBCResearch @stales Hugs!! #bcsm |
| Alicia C. Staley @stales T2 coming up... #BCSM |
| Alicia C. Staley @stales RT @danielle_dk: T1: T1: Talk openly about it. I feel like MBC is like BC in the 50s. Don’t speak of it, and if you do, speak only in hushed tones. #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: T1. Support legislation that will help us, like the bills to allow those with #MBC on SSDI to get Medicare immediately (although I think all people with diseases that allow them to get SSDI should benefit from this). Call your members of congress #bcsm |
| IBC Research Fdn @IBCResearch RT @stage4kelly: T1. Support legislation that will help us, like the bills to allow those with #MBC on SSDI to get Medicare immediately (although I think all people with diseases that allow them to get SSDI should benefit from this). Call your members of congress #bcsm |
| Kathy Gori @kathygori @stage4kelly No just a blip... two blips actually..a bit scary Pg&e said they’d send a warning before they pull any plugs. It’s gonna be a long summer #bcsm |
| Dr. Kelly Shanahan @stage4kelly T1. Don’t pity us. Whatever you don’t don’t pity us #bcsm |
| Julia Maués @itsnot_pink RT @stage4kelly: T1. Support legislation that will help us, like the bills to allow those with #MBC on SSDI to get Medicare immediately (although I think all people with diseases that allow them to get SSDI should benefit from this). Call your members of congress #bcsm |
 | Dennis Keim @denniskeim Sorry I'm late again. Dxed in 2013 with Stage 1 breast cancer.Still No Evidence of Disease (NED) in NE. #bcsm |
| Julia Maués @itsnot_pink RT @stage4kelly: T1. Don’t pity us. Whatever you don’t don’t pity us #bcsm |
| Alicia C. Staley @stales T2: What's one thing you've learned about metastatic breast cancer that you want the entire breast cancer community to know? #bcsm |
| Alicia C. Staley @stales --- this......----- RT @stage4kelly: T1. Don’t pity us. Whatever you don’t don’t pity us #bcsm |
| Alicia C. Staley @stales @denniskeim hey hey hey!! #bcsm |
 | SFDiva @SFDiva2 @itsnot_pink @stales What inaccuracies, if you don't mind my asking?T1 #bcsm @itsnot_pink ? |
| Alicia C. Staley @stales @Prof_Riggins @LombardiCancer Hi there! welcome. #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy First rule of advocating for any community that you are not part of: LISTEN. Important for early stagers to listen to the needs & realities of those with metastatic cancer b4 & while advocating. Sometimes you want to help but the "help" you're giving may not be helpful. T1 #bcsm |
 | patty spears @paspears88 @danielle_dk I agree... unfortunately.... so many are still afraid of saying the word ... #METASTATIC... it still needs to be vocalized by the entire bc community to amplify and make #METASTATIC THE topic of research conversations. #bcsm |
 | Violet Kuchar, Crazy Colorectal Cancer Cat Lady @ViolentKuchar @stales A1: #bcsm...hello 👋🏼 from the other side: #crcsm. Collaboration across #metastatic cancer types has so much untapped potential. We’re all #livingwithmets. |
| Danielle Karber @danielle_dk Also support those with a need for painkillers with MBC. Many are being harassed by their pharmacies due to the “opioid crises”. I (thankfully) don’t need them, but if I ever do, I don’t need that! #bcsm |
 | Lex @Lex_in_CO Logging on late but here to yell ENOUGH with pink awareness Dx stage 4 de novo in 2013 #pinkisnotacure #bcsm #metsmonday |
| Howard Karpoff @doctorkarpoff RT @stales: T2: T2: What's one thing you've learned about metastatic breast cancer that you want the entire breast cancer community to know? #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @coffeemommy: First rule of advocating for any community that you are not part of: First rule of advocating for any community that you are not part of: LISTEN. Important for early stagers to listen to the needs & realities of those with metastatic cancer b4 & while advocating. Sometimes you want to help but the "help" you're giving may not be helpful. T1 #bcsm |
| Lex @Lex_in_CO RT @stage4kelly: T1. It is in the best interest of early stagers to support us because you could become one of us. Speak out for more metastatic focused research on the national, international, and pink organization level because research is the one area where trickle down theory works, #bcsm |
| SFDiva @SFDiva2 @stales @danielle_dk I run a 15K Breast Cancer Group on FB and that is not my experience at all. We are two years old and have members who started out early stage and are now Stage 4. No sugar coating in my group or many FB groups for that matter. #bcsm T1 |
| Dr. Kelly Shanahan @stage4kelly T2. Most of the people who are in the community are AMAZING (but there are a few a-holes because cancer doesn’t change a zebra’s stripes). I wish it hadn’t taken #MBC to bring us together. #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stage4kelly #BCSM Won't pity you but *will* have a good, hard cry for all of you from time to time. If tears aren't released, my head will explode. That's just how I roll. ((HUGS)) |
| Hillary (Stires) Andrews, PhD @HillStirSci @ViolentKuchar @stales Hey hey!! Welcome! ❤️❤️ #bcsm |
| Alicia C. Staley @stales @ViolentKuchar hi there! #bcsm |
| Liza B @itsthebunk RT @Lex_in_CO: Logging on late but here to yell ENOUGH with pink awareness Dx stage 4 de novo in 2013 #pinkisnotacure #bcsm #metsmonday |
| Dennis Keim @denniskeim T1: Amplify the signal of those advocates with MBC. At least, that's what I try to do. #bcsm |
| Jamie Holloway, PhD @jamienholloway My number one rule. LISTEN more than you talk. #bcsm |
| Alicia C. Staley @stales T2: What's one thing you've learned about metastatic breast cancer that you want the entire breast cancer community to know? #bcsm |
| Liza B @itsthebunk RT @paspears88: @danielle_dk I agree... unfortunately.... so many are still afraid of saying the word ... #METASTATIC... it still needs to be vocalized by the entire bc community to amplify and make #METASTATIC THE topic of research conversations. #bcsm |
| Alicia C. Staley @stales RT @LisaDTRice: @stage4kelly #BCSM Won't pity you but *will* have a good, hard cry for all of you from time to time. If tears aren't released, my head will explode. That's just how I roll. ((HUGS)) |
| Alicia C. Staley @stales RT @stage4kelly: T2. Most of the people who are in the community are AMAZING (but there are a few a-holes because cancer doesn’t change a zebra’s stripes). I wish it hadn’t taken #MBC to bring us together. #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: My number one rule. LISTEN more than you talk. #bcsm |
| forthebreastofus @thebreastofus A1. What are good resources for learning more about cancer legislation @stage4kelly? We’re looking to create a space for women to learn about advocacy opportunities. #bcsm #forthebreastofus |
| Alicia C. Staley @stales RT @coffeemommy: First rule of advocating for any community that you are not part of: First rule of advocating for any community that you are not part of: LISTEN. Important for early stagers to listen to the needs & realities of those with metastatic cancer b4 & while advocating. Sometimes you want to help but the "help" you're giving may not be helpful. T1 #bcsm |
| IBC Research Fdn @IBCResearch @ViolentKuchar @stales Hey friend! We saw the obvious benefit of working together...so much in common across #metastatic cancers. Research that could benefit many #livingwithmets #bcsm |
| Dr. Kelly Shanahan @stage4kelly @SFDiva2 @itsnot_pink @stales How about the “early detection saves lives” or “surgery got it all, you’re cured!” or “you’re 5+ years out, you’re cured” inaccuracies? #bcsm |
| Dr. Kelly Shanahan @stage4kelly @coffeemommy You are the master of this my friend #bcsm |
| Alicia C. Staley @stales @coffeemommy Can you expand on this please for the new advocates? #BCSM |
| Jamie Holloway, PhD @jamienholloway Yes. Every time I hear about the opioid crisis, I think of those with cancer who struggle to get the pain control they need. Such a terrible situation. #bcsm |
| CancerDotNet @CancerDotNet T1: Advocates have a big impact on cancer research. Understanding the advocate's role in research is so important: https://t.co/5XSBYEv5VT #cancer #advocacy #advocate #patientadvocate #research #cancerresearch #clinicaltrials #ASCO19 |
 | Living Beyond Breast Cancer @LivingBeyondBC Breast cancer and its treatments may change how you feel about your body. Join us on July 18 to reflect on #BodyImage After a #BreastCancer Diagnosis. Find more details and register: https://t.co/3mghUhjFaK #bcsm https://t.co/jCYFcMit6N |
| patty spears @paspears88 @stage4kelly Agree... having so many friends think they are 'done' with cancer become metastatic...we all need to make this a priority and learn as much as we can from those with #METASTATIC breast cancer...pay attention to what is going on... especially when talking research! #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: @SFDiva2 @itsnot_pink @stales How about the “early detection saves lives” or “surgery got it all, you’re cured!” or “you’re 5+ years out, you’re cured” inaccuracies? #bcsm |
| Katherine OBrien @ihatebreastcanc @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project T1: People often take credit for what amounts to happy biological circumstances. They successfully completed their cancer Tx and are fine. The implication is someone with a metastatic recurrence must have done something wrong....or (contd) #bcsm |
| Alicia C. Staley @stales RT @IBCResearch: @ViolentKuchar @stales Hey friend! We saw the obvious benefit of working together...so much in common across #metastatic cancers. Research that could benefit many #livingwithmets #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @stage4kelly Love you #bcsm |
| Alicia C. Staley @stales RT @ihatebreastcanc: @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project T1: @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project T1: People often take credit for what amounts to happy biological circumstances. They successfully completed their cancer Tx and are fine. The implication is someone with a metastatic recurrence must have done something wrong....or (contd) #bcsm |
| IBC Research Fdn @IBCResearch Agree @denniskeim We can retweet, repost on FB and share information for and about #metastatic #breastcancer to reach a wider audience. We truly are #strongertogether #bcsm |
| Alicia C. Staley @stales Listen more, talk less.... RT @jamienholloway: My number one rule. LISTEN more than you talk. #bcsm |
| Julia Maués @itsnot_pink @SFDiva2 @stales Not enough room! That there is such thing as BC prevention (impossible to prevent BC, best one can do is reduce risk), that patient is at fault (drank, smoked, took pill, had kids, didn’t have kids, etc), discounting MBC pp as almost dead, discounting MBC pp as too healthy #bcsm |
| Dr. Kelly Shanahan @stage4kelly What she said 👇🏻👇🏻 👏🏻👏🏻 I have more in common with @ViolentKuchar a stage 4 colorectal cancer patient than I do with an early stage BC patient. #MetsUnite #StrongerTogether |
| forthebreastofus @thebreastofus RT @jamienholloway: My number one rule. LISTEN more than you talk. #bcsm |
| Kathy Gori @kathygori RT @jamienholloway: My number one rule. LISTEN more than you talk. #bcsm |
| Liza B @itsthebunk @thebreastofus @stage4kelly Check out @CancerAdvocacy! Next week is #cpat19! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @LisaDTRice Sadness and compassion aren’t pity. You get it. #bcsm |
| Liza B @itsthebunk RT @IBCResearch: @ViolentKuchar @stales Hey friend! We saw the obvious benefit of working together...so much in common across #metastatic cancers. Research that could benefit many #livingwithmets #bcsm |
| Julia Maués @itsnot_pink RT @stage4kelly: @SFDiva2 @itsnot_pink @stales How about the “early detection saves lives” or “surgery got it all, you’re cured!” or “you’re 5+ years out, you’re cured” inaccuracies? #bcsm |
| Katherine OBrien @ihatebreastcanc @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project T1: ....or sometimes someone with early stage disease will regard you as their testing ground....they are only interested in your story in so far as it gives them assurance metastatic recurrence won’t happen to them. ...You feel like a zoo animal as they poke thru your hx #bcsm |
| Julia Maués @itsnot_pink RT @paspears88: @stage4kelly Agree... having so many friends think they are 'done' with cancer become metastatic...we all need to make this a priority and learn as much as we can from those with #METASTATIC breast cancer...pay attention to what is going on... especially when talking research! #bcsm |
| Alicia C. Staley @stales #BCSM -----> |
| forthebreastofus @thebreastofus @itsthebunk @stage4kelly @CancerAdvocacy Thank you! #bcsm #forthebreastofus |
| Liza B @itsthebunk RT @paspears88: @stage4kelly Agree... having so many friends think they are 'done' with cancer become metastatic...we all need to make this a priority and learn as much as we can from those with #METASTATIC breast cancer...pay attention to what is going on... especially when talking research! #bcsm |
| Liza B @itsthebunk RT @IBCResearch: Agree @denniskeim We can retweet, repost on FB and share information for and about #metastatic #breastcancer to reach a wider audience. We truly are #strongertogether #bcsm |
| Julia Maués @itsnot_pink RT @stales: Listen more, talk less.... RT @jamienholloway: Listen more, talk less.... RT @jamienholloway: My number one rule. LISTEN more than you talk. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @itsnot_pink: @SFDiva2 @stales Not enough room! That there is such thing as BC prevention (impossible to prevent BC, best one can do is reduce risk), that patient is at fault (drank, smoked, took pill, had kids, didn’t have kids, etc), discounting MBC pp as almost dead, discounting MBC pp as too healthy #bcsm |
| Social✽Fly @socflyny T1: One of my passions continues to be a focus on creating a more inclusive narrative and language -- along with education efforts for companies that continue to hijack and exploit the pink ribbon. #bcsm |
| Alicia C. Staley @stales RT @itsnot_pink: @SFDiva2 @stales Not enough room! That there is such thing as BC prevention (impossible to prevent BC, best one can do is reduce risk), that patient is at fault (drank, smoked, took pill, had kids, didn’t have kids, etc), discounting MBC pp as almost dead, discounting MBC pp as too healthy #bcsm |
| Dr. Kelly Shanahan @stage4kelly @thebreastofus Some good resources: @KomenAdvocacy (don’t bite my head off other #MBC folks - they have a really good advocacy and policy team). @CancerAdvocacy @TriageCancer #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @stales YOUR biases and YOUR experiences out of the way. Instead you need to sit and listen. Ask. Don't be defensive when someone with metastatic disease is angry at the early stagers reality. Develop some thick skin and some sensitive ears. We are indeed stronger together 2/2 #bcsm |
| Danielle Karber @danielle_dk T2: Signs and symptoms. I was blissfully unaware. Thought I had lymphedema (clear check), Cancer was in lymph nodes. Thought I had stomachaches due to hard workouts, it was cancer that had almost engulfed the left lobe of my liver. #bcsm |
| Alicia C. Staley @stales RT @socflyny: T1: T1: One of my passions continues to be a focus on creating a more inclusive narrative and language -- along with education efforts for companies that continue to hijack and exploit the pink ribbon. #bcsm |
 | Terrie @TerrieSnowRN RT @double_whammied: "If your mom was facing #breastcancer or your son had #braincancer, do you want a pharmacy benefit manager determining their care, or their doctor?" #BCSM #BTSM #LCSM #PBMs https://t.co/bFEJnzjuyq" |
| forthebreastofus @thebreastofus @stage4kelly @KomenAdvocacy @CancerAdvocacy @TriageCancer Thanks! 😘 #bcsm #forthebreastofus |
| Alicia C. Staley @stales RT @coffeemommy: @stales YOUR biases and YOUR experiences out of the way. Instead you need to sit and listen. Ask. Don't be defensive when someone with metastatic disease is angry at the early stagers reality. Develop some thick skin and some sensitive ears. We are indeed stronger together 2/2 #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy My driving talents are now required to get my son to swim practice. Sending love, light & gratitude to each of you. Six years ago. TODAY. What a difference each of you & the #bcsm #bccww #lcsm communities have made in my cancer experience, my role in advocacy & my WHOLE life. 💗 |
| Social✽Fly @socflyny @coffeemommy @stales Very, very well stated, Stacey. #bcsm |
 | CancerPatient POV @CancrPatientPOV RT @stage4kelly: T1. It is in the best interest of early stagers to support us because you could become one of us. Speak out for more metastatic focused research on the national, international, and pink organization level because research is the one area where trickle down theory works, #bcsm |
 | Medscape Oncology @MedscapeOnc Despite extensive research, the debate over the optimal duration of systemic therapy for early HER2-positive breast cancer shows no signs of being resolved any time soon. https://t.co/7OqR45JPTy #bcsm |
| Alicia C. Staley @stales RT @ihatebreastcanc: @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project T1: @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project T1: ....or sometimes someone with early stage disease will regard you as their testing ground....they are only interested in your story in so far as it gives them assurance metastatic recurrence won’t happen to them. ...You feel like a zoo animal as they poke thru your hx #bcsm |
| Dr. Kelly Shanahan @stage4kelly @coffeemommy Love you lady!! Get your butt up to Tahoe this summer, ok? #bcsm |
 | Tamyka N Crockett👩🏾🏫 @LoveTeachinAtVP RT @danielle_dk: T1: T1: Talk openly about it. I feel like MBC is like BC in the 50s. Don’t speak of it, and if you do, speak only in hushed tones. #bcsm |
| Lex @Lex_in_CO A2 In 2004 when I still thought mammos and self exams would keep me safe - 9 years later Reality is MBC still killing us - I was clueless and low risk - now I’m terminal #bcsm https://t.co/kPH9GOR83o |
| CancerPatient POV @CancrPatientPOV RT @coffeemommy: Allowing people to experience cancer in whatever way works best for them but also providing a reality check that while breast cancer doesn't kill people - metastatic breast cancer takes out 117 EVERY SINGLE DAY. We must do better. T1 #bcsm #bccww |
| patty spears @paspears88 I also think the graphic that @abcdiagnosis has on #secondarybreast cancer needs to go viral. I retweet every time I see it. It is something every bc patient needs to know... what happens when your bc goes to other parts of your body? How will you know? #METASTATIC #bcsm |
| Alicia C. Staley @stales T2: What's one thing you've learned about metastatic breast cancer that you want the entire breast cancer community to know? #bcsm |
| Alicia C. Staley @stales T3 coming up! #bcsm |
| Katherine OBrien @ihatebreastcanc RT @danielle_dk: T2: T2: Signs and symptoms. I was blissfully unaware. Thought I had lymphedema (clear check), Cancer was in lymph nodes. Thought I had stomachaches due to hard workouts, it was cancer that had almost engulfed the left lobe of my liver. #bcsm |
 | Erika Hamilton, MD @ErikaHamilton9 @ihatebreastcanc @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project Really? I find this horrifying. #bcsm |
| Tamyka N Crockett👩🏾🏫 @LoveTeachinAtVP RT @coffeemommy: Allowing people to experience cancer in whatever way works best for them but also providing a reality check that while breast cancer doesn't kill people - metastatic breast cancer takes out 117 EVERY SINGLE DAY. We must do better. T1 #bcsm #bccww |
| IBC Research Fdn @IBCResearch So very important, @itsthebunk! To advocate WITH as a partner is how we need to proceed. Listening, sharing, following rather than needing to take the lead will help make a difference. #bcsm |
| Liza B @itsthebunk RT @paspears88: I also think the graphic that @abcdiagnosis has on #secondarybreast cancer needs to go viral. I retweet every time I see it. It is something every bc patient needs to know... what happens when your bc goes to other parts of your body? How will you know? #METASTATIC #bcsm |
| Katherine OBrien @ihatebreastcanc RT @stage4kelly: T1. Don’t pity us. Whatever you don’t don’t pity us #bcsm |
 | Irving Amukasa @iamukasa RT @VirginiaMByrne: This is why we need more $ for research on Stage 4 cancers & patients #BusyLivingWithMets #lcsm #bcsm #hcsm |
| Irving Amukasa @iamukasa RT @VirginiaMByrne: I hope you will out these sneaky cowards on Twitter, so we'll know who they really are. #lcsm #bcsm #hcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @itsnot_pink @coffeemommy @stales @itsthebunk #BCSM I'll be there. I'm not sure about my exact schedule. Look forward to meeting you! |
 | Ian Pereira @IanJPereira @stales Hi #bcsm! I feel that Stage IV or Metastatic Cancers often get a bad rep. Commonly hear words like “terminal” thrown around when many facing these cancers live +++longer now more than ever before. I struggle with balancing peer/patient & family education vs stepping on toes. T1 |
| Dr. Kelly Shanahan @stage4kelly T2. No one who has had breast cancer in the past is immune from mets. Especially those with ER+ disease. Metastatic breast cancer is never, ever your fault.#bcsm |
| Alicia C. Staley @stales T3: What's one thing you'll personally do to be a better advocate for those with metastatic breast cancer? #bcsm |
| Social✽Fly @socflyny RT @stales: #BCSM -----> |
| IBC Research Fdn @IBCResearch RT @stage4kelly: T2. No one who has had breast cancer in the past is immune from mets. Especially those with ER+ disease. Metastatic breast cancer is never, ever your fault.#bcsm |
| Inspire @InspireIsHealth RT @stales: T3: T3: What's one thing you'll personally do to be a better advocate for those with metastatic breast cancer? #bcsm |
| Social✽Fly @socflyny @stage4kelly @thebreastofus @KomenAdvocacy @CancerAdvocacy @TriageCancer Interesting, Kelly -- a few people who I respect a lot have also noted that Komen Advocacy is doing some good work. This is good to hear. #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T3: T3: What's one thing you'll personally do to be a better advocate for those with metastatic breast cancer? #bcsm |
| Alicia C. Staley @stales RT @IanJPereira: @stales Hi #bcsm! I feel that Stage IV or Metastatic Cancers often get a bad rep. Commonly hear words like “terminal” thrown around when many facing these cancers live +++longer now more than ever before. I struggle with balancing peer/patient & family education vs stepping on toes. T1 |
 | Andres Ossa @tumastologo1 RT @theNCI: What's happening in breast cancer research? Here's an update on some of the latest findings on how to prevent, detect, and treat #breastcancer: https://t.co/WXPSd434K2 #bcsm https://t.co/Vreo1s7br4 |
| Erika Hamilton, MD @ErikaHamilton9 @stales That people with metastatic BrCa didn’t “do anything wrong”. They didn’t not take their medicine, or not get mammograms, or eat wrong, or drink wrong, or not exercise or every other insane thing people say to “blame” advanced patients to try to make themselves feel safe. #bcsm |
| Danielle Karber @danielle_dk MBC can happen to anyone. All the positive thinking in the world won’t make it go away, so please don’t shame our sadness or anger. Frozen lemon peels and turmeric and weed WILL NOT cure me, so STOP sending me BS woo cures. Help us get the word out!! #BCSM |
| Alicia C. Staley @stales RT @ErikaHamilton9: @stales That people with metastatic BrCa didn’t “do anything wrong”. They didn’t not take their medicine, or not get mammograms, or eat wrong, or drink wrong, or not exercise or every other insane thing people say to “blame” advanced patients to try to make themselves feel safe. #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 RT @stage4kelly: T2. No one who has had breast cancer in the past is immune from mets. Especially those with ER+ disease. Metastatic breast cancer is never, ever your fault.#bcsm |
| Andrea @BraveBosom A3: I will listen with the goal of understanding how I can help, especially when relating to #BRCA. #BCSM |
| Julia Maués @itsnot_pink RT @ErikaHamilton9: @stales That people with metastatic BrCa didn’t “do anything wrong”. They didn’t not take their medicine, or not get mammograms, or eat wrong, or drink wrong, or not exercise or every other insane thing people say to “blame” advanced patients to try to make themselves feel safe. #bcsm |
| Katherine OBrien @ihatebreastcanc @danielle_dk Oh yeah...I assumed cancer was an old person’s disease... I was 43 and tho median age is 61, young people can get breast cancer #bcsm |
| Ian Pereira @IanJPereira @itsnot_pink @stales Great communities (like #bcsm) can curate trusted knowledge, cultivate their members, and I think effect positive (real-world) change. T1 |
| Julia Maués @itsnot_pink RT @danielle_dk: MBC can happen to anyone. All the positive thinking in the world won’t make it go away, so please don’t shame our sadness or anger. Frozen lemon peels and turmeric and weed WILL NOT cure me, so STOP sending me BS woo cures. Help us get the word out!! #BCSM |
| Social✽Fly @socflyny @ihatebreastcanc @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project That's repugnant. I'm sorry that metastatic patients have encountered such poor behavior. #bcsm |
| Julia Maués @itsnot_pink RT @stage4kelly: T2. No one who has had breast cancer in the past is immune from mets. Especially those with ER+ disease. Metastatic breast cancer is never, ever your fault.#bcsm |
| Erika Hamilton, MD @ErikaHamilton9 @stage4kelly My comment, too. So important. It amazes and shocks me how much cancer blaming is out there. #bcsm |
| Andrea @BraveBosom RT @coffeemommy: First rule of advocating for any community that you are not part of: First rule of advocating for any community that you are not part of: LISTEN. Important for early stagers to listen to the needs & realities of those with metastatic cancer b4 & while advocating. Sometimes you want to help but the "help" you're giving may not be helpful. T1 #bcsm |
| Dr. Kelly Shanahan @stage4kelly @ErikaHamilton9 @ihatebreastcanc @stales @itsnot_pink @Stickit2Stage4 @METUPorg @MBC_Project Happens all. the. time. If you tell me what you did (or didn’t) do, & I don’t do (or do) that then I’m safe because clearly you’re metastatic because you drank/ate sugar/didn’t pray/weren’t vegan/didn’t exercise/hated your kindergarten teacher (and that’s not me) #bcsm |
| Andrea @BraveBosom RT @stage4kelly: T1. Don’t pity us. Whatever you don’t don’t pity us #bcsm |
| Liza B @itsthebunk RT @BraveBosom: A3: A3: I will listen with the goal of understanding how I can help, especially when relating to #BRCA. #BCSM |
| Alicia C. Staley @stales ----- RT @BraveBosom: A3: I will listen with the goal of understanding how I can help, especially when relating to #BRCA. #BCSM |
| forthebreastofus @thebreastofus A1. When advocates have the opportunity to speak, they should speak on the truth about early detection and the need for funding research for the MBC community. It’s the “happily ever after” narrative drowning out the harsh reality of thousands of ppl #bcsm #forthebreastofus |
 | OpenNotes @myopennotes NEW RESEARCH in #JCOCCI: Q: Does granting patients access to their medical records have a measurable effect on clinician behavior in oncology? A: Yes, and the results might surprise you. https://t.co/Qh3qtlLeLQ #FOAMed #opennotes #bcsm #lcsm #ayacsm #btsm #pancsm #mmsm https://t.co/s2B0Nw39as |
 | Sandi Stanford @sandisues RT @NCICancerStats: Did you know that the 5-year relative survival rate for localized female breast cancer is 98.8%? Learn more here: Did you know that the 5-year relative survival rate for localized female breast cancer is 98.8%? Learn more here: https://t.co/wUKAVg2gqh #BCSM https://t.co/MieZW0IzQv |
| Katherine OBrien @ihatebreastcanc @danielle_dk Yes. I am sure such suggestions are made with good intentions but they don’t help. #bcsm |
| Katherine OBrien @ihatebreastcanc RT @stage4kelly: @ErikaHamilton9 @ihatebreastcanc @stales @itsnot_pink @Stickit2Stage4 @METUPorg @MBC_Project Happens all. the. time. If you tell me what you did (or didn’t) do, & I don’t do (or do) that then I’m safe because clearly you’re metastatic because you drank/ate sugar/didn’t pray/weren’t vegan/didn’t exercise/hated your kindergarten teacher (and that’s not me) #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stales #BCSM I'm going to learn more about that Federal legislation @stage4kelly mentioned. Then, I'll figure out what I can do from there. |
 | Hal Hinderliter, Ph.D. @HalHinderliter RT @stage4kelly: @ErikaHamilton9 @ihatebreastcanc @stales @itsnot_pink @Stickit2Stage4 @METUPorg @MBC_Project Happens all. the. time. If you tell me what you did (or didn’t) do, & I don’t do (or do) that then I’m safe because clearly you’re metastatic because you drank/ate sugar/didn’t pray/weren’t vegan/didn’t exercise/hated your kindergarten teacher (and that’s not me) #bcsm |
| Lex @Lex_in_CO This! Stop #cancershaming #bcsm when drs tell at dx “you are generally in good health but you have terminal cancer” - I drew a sh!tty hand PERIOD. |
| Dr. Kelly Shanahan @stage4kelly @IanJPereira @stales But we are terminal - the overwhelming majority of us will NOT live a normal lifespan. Not speaking that truth trivializes MBC and removes some of the urgency around finding better treatments that will allow this to become a chronic disease #bcsm |
| Kathy Gori @kathygori @stales What @stage4kelly just said below this. ⤵️⤵️⤵️#bcsm |
 | Jennifer Plichta MD (she/her) @JenniferPlichta RT @CDC_Cancer: Discussing the potential impact of #cancer treatment on future #fertility is an important aspect of patient education. This report looks at fertility-related experiences after #BreastCancer diagnosis among women diagnosed under age 45: https://t.co/r5DslyWymU #BCSM https://t.co/nI5bBd2kL0 |
| Ian Pereira @IanJPereira @stage4kelly Any experience with organized online advocacy platforms (e.g. https://t.co/FHHDBWUDRY)? #bcsm T1 |
| Julia Maués @itsnot_pink RT @stage4kelly: @IanJPereira @stales But we are terminal - the overwhelming majority of us will NOT live a normal lifespan. Not speaking that truth trivializes MBC and removes some of the urgency around finding better treatments that will allow this to become a chronic disease #bcsm |
 | Randy C. Miles MD, MPH, FSBI @RMilesMD RT @DrTedJames: Very interesting paper. Background enhancement on MRI was found to be associated with future invasive #breastcancer risk. #bcsm https://t.co/czyDEgpxkN |
| forthebreastofus @thebreastofus RT @danielle_dk: MBC can happen to anyone. All the positive thinking in the world won’t make it go away, so please don’t shame our sadness or anger. Frozen lemon peels and turmeric and weed WILL NOT cure me, so STOP sending me BS woo cures. Help us get the word out!! #BCSM |
| Dennis Keim @denniskeim RT @stage4kelly: T2. No one who has had breast cancer in the past is immune from mets. Especially those with ER+ disease. Metastatic breast cancer is never, ever your fault.#bcsm |
| Jennifer Plichta MD (she/her) @JenniferPlichta RT @DrShelleyHwang: #DCIS COMET Study just reached 300 patients enrolled! Thanks to all our sites, patients, and advocates. More info and resources for both patients and physicians: https://t.co/CGgDaiA1vd #bcsm |
| Dennis Keim @denniskeim RT @stage4kelly: T1. Support legislation that will help us, like the bills to allow those with #MBC on SSDI to get Medicare immediately (although I think all people with diseases that allow them to get SSDI should benefit from this). Call your members of congress #bcsm |
| Social✽Fly @socflyny THIS #bcsm |
| Dr. Kelly Shanahan @stage4kelly @warriormegsie @itsthebunk @itsnot_pink @stales @paspears88 Thank you! #bcsm |
 | Robin Holmes @Majormac1 RT @danielle_dk: T1: T1: Talk openly about it. I feel like MBC is like BC in the 50s. Don’t speak of it, and if you do, speak only in hushed tones. #bcsm |
| Dennis Keim @denniskeim RT @danielle_dk: MBC can happen to anyone. All the positive thinking in the world won’t make it go away, so please don’t shame our sadness or anger. Frozen lemon peels and turmeric and weed WILL NOT cure me, so STOP sending me BS woo cures. Help us get the word out!! #BCSM |
| Katherine OBrien @ihatebreastcanc T2: I am more than my disease. We don’t have to talk about cancer all the time (but please don’t never ever ask me about it because cancer talk makes you uncomfortable) Let’s find a happy medium #bcsm |
| Robin Holmes @Majormac1 Joining late. Such a great topic #bcsm |
 | Dr. Alison Bateman-House @ABatemanHouse RT @ErikaHamilton9: @stales That people with metastatic BrCa didn’t “do anything wrong”. They didn’t not take their medicine, or not get mammograms, or eat wrong, or drink wrong, or not exercise or every other insane thing people say to “blame” advanced patients to try to make themselves feel safe. #bcsm |
| Social✽Fly @socflyny @ihatebreastcanc @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project The ignorance is stunning -- and it's upsetting that not a lot has changed in the 10 years since I became part of the BC community. #bcsm |
| Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @stales Speak up for inclusion of MBC patients in our clinical trial concepts. Every time. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @LisaDTRice @stales Here’s a link to the House bill https://t.co/Eo7OjO90d4 #bcsm |
| Kathy Gori @kathygori RT @stage4kelly: @ErikaHamilton9 @ihatebreastcanc @stales @itsnot_pink @Stickit2Stage4 @METUPorg @MBC_Project Happens all. the. time. If you tell me what you did (or didn’t) do, & I don’t do (or do) that then I’m safe because clearly you’re metastatic because you drank/ate sugar/didn’t pray/weren’t vegan/didn’t exercise/hated your kindergarten teacher (and that’s not me) #bcsm |
| Robin Holmes @Majormac1 @stales Q1- The status quo has been focused on prevention research. Going against change takes a lot more effort. #bcsm |
| Lex @Lex_in_CO A3 - listen with love and do my best to communicate MY experience realizing not one of us is the same but we can still be STRONGER TOGETHER - stages be damned. 🙏 Call for one day “Cure fore one & CURE for all” 💕 #bcsm |
| Katherine OBrien @ihatebreastcanc RT @thebreastofus: A1. When advocates have the opportunity to speak, they should speak on the truth about early detection and the need for funding research for the MBC community. It’s the “happily ever after” narrative drowning out the harsh reality of thousands of ppl #bcsm #forthebreastofus |
 | Terri Coutee @6state RT @danielle_dk: T1: T1: Talk openly about it. I feel like MBC is like BC in the 50s. Don’t speak of it, and if you do, speak only in hushed tones. #bcsm |
| Jennifer Plichta MD (she/her) @JenniferPlichta RT @BreastAdvocate: The 19 Things I Always Recommend to Someone Having #BreastCancer Surgery #bcsm https://t.co/tcAH2TDCFk |
| Howard Karpoff @doctorkarpoff RT @BreastAdvocate: The 19 Things I Always Recommend to Someone Having #BreastCancer Surgery #bcsm https://t.co/tcAH2TDCFk |
| Katherine OBrien @ihatebreastcanc RT @Prof_Riggins: @stales Speak up for inclusion of MBC patients in our clinical trial concepts. Every time. #bcsm |
| Howard Karpoff @doctorkarpoff RT @Breast360: Are familiar with #BreastCancer or other breast issues, and do you speak Spanish? We need your help! We are seeking people to help review translated https://t.co/Db5ppDsnoQ articles. Please message us if you are interested. Thank you very much. #bcsm #bccww https://t.co/0KhxK8cKoT |
| Alicia C. Staley @stales RT @Majormac1: @stales Q1- The status quo has been focused on prevention research. Going against change takes a lot more effort. #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: @LisaDTRice @stales Here’s a link to the House bill https://t.co/EOxsPPamUA #bcsm #bcsm |
| Social✽Fly @socflyny @paspears88 @stage4kelly Inconvenient Cancer Truth #376: No one who has ever been diagnosed with any stage of breast cancer is ever "done". #bcsm |
| Dr. Kelly Shanahan @stage4kelly @ihatebreastcanc YES!! We are so much more than our disease! I’m still the snarky wine-loving proud mom who loves to go to concerts and movies and hike that I was before this damn disease!! #bcsm |
| Alicia C. Staley @stales Great advice from all of you! #bcsm |
| Danielle Karber @danielle_dk T3: Continue to educate, despite the backlash. I never want anyone to be as blindsided as I was. #bcsm |
| Alicia C. Staley @stales Final thoughts on T3 -- What's one thing you'll personally do to be a better advocate for those with metastatic breast cancer? #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stage4kelly @IanJPereira @stales #BCSM Not everyone wants to talk about that truth. I thought, by telling an MBC patient about a friend with metastatic #ovariancancer, who is very open about her death, it might help. I was wrong! I got the side eye and was cut short in conversation. Awkard for me ever since. |
| Howard Karpoff @doctorkarpoff RT @stales: RT @stage4kelly: RT @stage4kelly: @LisaDTRice @stales Here’s a link to the House bill https://t.co/EOxsPPamUA #bcsm #bcsm |
| patty spears @paspears88 @stage4kelly @IanJPereira @stales The metastatic voice is so important because of this--as I hear a friend tell researchers...I AM going to need the new drug you are developing.#METASTATIC bc never goes away - always needs to be 'treated'..we need better treatments that are less toxic and are active longer. #bcsm |
| Dr. Kelly Shanahan @stage4kelly If you are even thinking about doing metastatic focused research - bench, translational, or clinical - you need a disease and stage appropriate patient advocate at the table from the beginning! #bcsm #PatientIncluded |
| Alicia C. Staley @stales RT @paspears88: @stage4kelly @IanJPereira @stales The metastatic voice is so important because of this--as I hear a friend tell researchers...I AM going to need the new drug you are developing.#METASTATIC bc never goes away - always needs to be 'treated'..we need better treatments that are less toxic and are active longer. #bcsm |
| Alicia C. Staley @stales RT @LisaDTRice: @stage4kelly @IanJPereira @stales #BCSM Not everyone wants to talk about that truth. I thought, by telling an MBC patient about a friend with metastatic #ovariancancer, who is very open about her death, it might help. I was wrong! I got the side eye and was cut short in conversation. Awkard for me ever since. |
| Robin Holmes @Majormac1 When you see organizations like local Memphis Komen’ continuing to throw almost half a million at mammograms I realize our work is just beginning. #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: A3 - listen with love and do my best to communicate MY experience realizing not one of us is the same but we can still be STRONGER TOGETHER - stages be damned. 🙏 Call for one day “Cure fore one & CURE for all” 💕 #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: @LisaDTRice @stales Here’s a link to the House bill https://t.co/Eo7OjO90d4 #bcsm |
| Alicia C. Staley @stales RT @Prof_Riggins: @stales Speak up for inclusion of MBC patients in our clinical trial concepts. Every time. #bcsm |
| Alicia C. Staley @stales RT @socflyny: @ihatebreastcanc @stales @itsnot_pink @stage4kelly @Stickit2Stage4 @METUPorg @MBC_Project The ignorance is stunning -- and it's upsetting that not a lot has changed in the 10 years since I became part of the BC community. #bcsm |
| Julia Maués @itsnot_pink NO. It’s not a chronic disease if the average lifespan is 3 years. Yes, a minority of people living w MBC live much longer. Still, if I live 15 years w MBC, I’ll die at 45! Chronic? NO #bcsm |
| Social✽Fly @socflyny @denniskeim You and the other men have added so much to this community! #bcsm |
| Julia Maués @itsnot_pink RT @stales: RT @stage4kelly: RT @stage4kelly: @LisaDTRice @stales Here’s a link to the House bill https://t.co/EOxsPPamUA #bcsm #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 @Prof_Riggins @stales And..broaden eligibility criteria. Why not allow unmeasurable bone only disease? Why not allow a premenopausal woman made postmenopausal with ovarian suppression? #bcsm |
| Dennis Keim @denniskeim RT @stage4kelly: @LisaDTRice @stales Here’s a link to the House bill https://t.co/Eo7OjO90d4 #bcsm |
| Dennis Keim @denniskeim RT @Prof_Riggins: @stales Speak up for inclusion of MBC patients in our clinical trial concepts. Every time. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales Continue to listen to my MBC friends and encourage others to do the same. #bcsm |
| Liza B @itsthebunk RT @paspears88: @stage4kelly @IanJPereira @stales The metastatic voice is so important because of this--as I hear a friend tell researchers...I AM going to need the new drug you are developing.#METASTATIC bc never goes away - always needs to be 'treated'..we need better treatments that are less toxic and are active longer. #bcsm |
| Dr. Deanna Attai @DrAttai Such wisdom and support shared tonight - soaking it all in, thank you all #bcsm |
| Dr. Kelly Shanahan @stage4kelly @IanJPereira @stales Really? Tell that to my 30 year old friend who even if she gets 20 years will be dead at 50. Would you consider that “chronic” if it were you?? Chronic is when, with treatment (even ongoing tx), the majority of people can be expected to live close to a normal lifespan! #bcsm |
| Julia Maués @itsnot_pink Yes! And for the inclusion of MBC patients at every step that affects MBC patients’ lives! Because “if you’re not at the table, you’re on the menu” #bcsm |
| Alicia C. Staley @stales RT @HillStirSci: @stales Continue to listen to my MBC friends and encourage others to do the same. #bcsm |
| Robin Holmes @Majormac1 What I can’t tolerate is marketing programs that include deadlines for a cure to increase revenue that does not go towards MBC research. #deadline2020 is great example of fail. #bcsm |
| Dr. Kelly Shanahan @stage4kelly T3. I’ll try to remain #NotDeadYet so I can keep advocating! 😂 #bcsm |
| Social✽Fly @socflyny @rann5818 Right? At one point, I kept a running list of all the stupid things people say. Glad you're doing well 🥰 we have these chats every Monday, 9 p.m. ET. Just follow the #bcsm hashtag |
| Erika Hamilton, MD @ErikaHamilton9 RT @itsnot_pink: NO. It’s not a chronic disease if the average lifespan is 3 years. Yes, a minority of people living w MBC live much longer. Still, if I live 15 years w MBC, I’ll die at 45! Chronic? NO #bcsm |
 | ♏Traci Gregory @TraciGregory RT @stage4kelly: @LisaDTRice @stales Here’s a link to the House bill https://t.co/Eo7OjO90d4 #bcsm |
| patty spears @paspears88 T3 - stay engaged, be aware, learn more, have empathy, don't run away from what is scary, speak up, speak loud, don't give up being an advocate for #METASTATIC breast cancer #stage4needsmore -- #bcsm |
| forthebreastofus @thebreastofus @Lex_in_CO A3. We have to acknowledge fear may be preventing many early stagers from learning about #MBC & emphasize the importance of advocacy and research for #MBC. Because metavivors must be at the forefront of the breast cancer community for the sake of us all #bcsm #forthebreastofus |
| IBC Research Fdn @IBCResearch YEAH! What she (@itsthebunk) said!! We each have the responsibility to use our voices, advocacy & action to be a #fearlessfriend #strongertogether #bcsm |
| Julia Maués @itsnot_pink RT @ErikaHamilton9: @Prof_Riggins @stales And..broaden eligibility criteria. Why not allow unmeasurable bone only disease? Why not allow a premenopausal woman made postmenopausal with ovarian suppression? #bcsm |
| Dr. Kelly Shanahan @stage4kelly @LisaDTRice @IanJPereira @stales I’m not necessarily talking about a one on one conversation with someone with metastatic disease. I’m talking about the broader conversations with the population at large, including researchers and policymakers and the people who provide the money #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci Rinse. And. Repeat. ❤️❤️ #bcsm |
| Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @ErikaHamilton9 @stales Just did the first one of those on a pending concept 🤞🏼 #bcsm |
| Dennis Keim @denniskeim @ihatebreastcanc @danielle_dk I get angry every time someone posts something from the usual suspects of bogus cancer treatment. #bcsm |
| Julia Maués @itsnot_pink RT @stage4kelly: If you are even thinking about doing metastatic focused research - bench, translational, or clinical - you need a disease and stage appropriate patient advocate at the table from the beginning! #bcsm #PatientIncluded |
 | Megan (Kearney) Slade @MeganSlade2490 What's happening in breast cancer research? Here's an update on some of the latest findings on how to prevent, detect, and treat #breastcancer: (link: https://t.co/CdadJC0dcV) https://t.co/8xCFLCGEwc… #bcsm https://t.co/Lkj0IlTyHd |
| Alicia C. Staley @stales Thank you everyone for joining in tonight! #bcsm |
| Alicia C. Staley @stales xoxoxoxo RT @stage4kelly: T3. I’ll try to remain #NotDeadYet so I can keep advocating! 😂 #bcsm |
| Danielle Karber @danielle_dk T3: Always listen and learn. #bcsm |
| Alicia C. Staley @stales Good night everyone! #bcsm |
| Alicia C. Staley @stales Great advice RT @danielle_dk: T3: Always listen and learn. #bcsm |
| Julia Maués @itsnot_pink RT @paspears88: T3 - stay engaged, be aware, learn more, have empathy, don't run away from what is scary, speak up, speak loud, don't give up being an advocate for #METASTATIC breast cancer #stage4needsmore -- #bcsm |
| Robin Holmes @Majormac1 I don’t have breast cancer, but if I get it I realize how little researchers have actually accomplished for the only BC that continues to kill us. That’s pathetic #bcsm |
| Dr. Kelly Shanahan @stage4kelly YES!! 👇🏻👏🏻👇🏻👏🏻 #bcsm |
 | @changingourmindset @changermindset I had rib pain for a yr that I reported to multiple doctors, ER, primary, neurologist, rheumatologist & most egregiously, my oncologist. Despite my history, no one considered metastasis. A radiologist finally noted a small change in a lymph node & called for a PET scan. #bcsm |
| Liza B @itsthebunk RT @paspears88: T3 - stay engaged, be aware, learn more, have empathy, don't run away from what is scary, speak up, speak loud, don't give up being an advocate for #METASTATIC breast cancer #stage4needsmore -- #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk @stales You are another awesome ally Liza ❤️ #bcsm |
| Dennis Keim @denniskeim Good night, everyone. Thanks for the conversation and thoughts, as always. #bcsm |
| Katherine OBrien @ihatebreastcanc @denniskeim @danielle_dk Yes...and then I debate the effort of responding with credible info...given the volume of misinformation is often like using a tea cup to empty the ocean.....#bcsm |
| Lex @Lex_in_CO Ditto 🤪 |
| IBC Research Fdn @IBCResearch Thanks @stales for keeping the conversation going so we all learn from one another...a plus from #bcsm! Hugs to all and happy trails this week! |
| Katherine OBrien @ihatebreastcanc RT @thebreastofus: @Lex_in_CO A3. We have to acknowledge fear may be preventing many early stagers from learning about #MBC & emphasize the importance of advocacy and research for #MBC. Because metavivors must be at the forefront of the breast cancer community for the sake of us all #bcsm #forthebreastofus |
| Danielle Karber @danielle_dk Awesome topic tonight, thank you!! #bcsm |
| Julia Maués @itsnot_pink @stales Good night and thank you for proving my first point right: #bcsm is full of wonderful advocates for those of us living with metastatic BC 🤗 |
| Dr. Kelly Shanahan @stage4kelly @IBCResearch @itsthebunk You, my friend, are another shining example of how to be an advocate for MBC. In fact, the vast majority of you here on #bcsm are wonderful allies. ❤️ |
| patty spears @paspears88 @ErikaHamilton9 @Prof_Riggins @stales I challenge every inclusion/exclusion criteria (ask for justification) and insist on using the new ASCO/FOCR guidance for those criteria. Men in all studies, brain mets in all studies, etc..https://t.co/0PvxynOHhR. #bcsm |
| Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @paspears88 @ErikaHamilton9 @stales YES! #bcsm |
 | Jean Arnold Sessions @WineScoutJAS RT @kathygori: 2x bc’er checking in from sunny and hot Ca 🍷 country.. Joining late as our power just came back on after a sudden outage #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice Goodnight, my peeps. Everyone who is coming to #CPAT19, see you next week! #bcsm |
| Alicia C. Staley @stales RT @paspears88: @ErikaHamilton9 @Prof_Riggins @stales I challenge every inclusion/exclusion criteria (ask for justification) and insist on using the new ASCO/FOCR guidance for those criteria. Men in all studies, brain mets in all studies, etc..https://t.co/0PvxynOHhR. #bcsm |
| Alicia C. Staley @stales RT @itsnot_pink: @stales Good night and thank you for proving my first point right: @stales Good night and thank you for proving my first point right: #bcsm is full of wonderful advocates for those of us living with metastatic BC 🤗 |
| IBC Research Fdn @IBCResearch @stage4kelly @itsthebunk Awwwww.TY Kelly! #MBC and the losses that result have been such a huge part of my life for my 20 yr of advocacy, I can't imagine not being a #fearlessfriend and ally. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @Majormac1 Researchers are working their asses off. Metastatic research is really, really hard because mets are so complicated. We need to support them and yes we need to get more funding for metastatic focused research. I admire everyone who dedicates their life to research. #bcsm |
| Kathy Gori @kathygori Thanks so much for doing this every week. #bcsm |
| Katherine OBrien @ihatebreastcanc @stales Every time you or a loved one takes a cancer drug remember the Stage IV men and women who participated in Phase 1 clinical trials, without whom we would have NONE of our current early stage treatments. #bcsm #werememberthem |
 | Medscape @Medscape Despite extensive research, the debate over the optimal duration of systemic therapy for early HER2-positive breast cancer shows no signs of being resolved any time soon. https://t.co/hooqnL0TsT #bcsm https://t.co/cSJ8r3aTSP |
 | Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara RT @matteolambe: |
| IBC Research Fdn @IBCResearch RT @ihatebreastcanc: @stales Every time you or a loved one takes a cancer drug remember the Stage IV men and women who participated in Phase 1 clinical trials, without whom we would have NONE of our current early stage treatments. #bcsm #werememberthem |
| Dr. Kelly Shanahan @stage4kelly Thank you fearless trial pioneers #bcsm |
| Jamie Holloway, PhD @jamienholloway My biggest soapbox lately: All eligibility criteria should be justified. If you’ve given each criteria appropriate thought, it should be easy. If it’s not easy, then you didn’t do your job. |
| Dr. Kelly Shanahan @stage4kelly Goodnight all! Thanks for a fast and fantastic hour! (We must be the @FastandFurious Twitter version!) #bcsm |
| Liza B @itsthebunk RT @LisaDTRice: Goodnight, my peeps. Everyone who is coming to #CPAT19, see you next week! #bcsm |
| Erika Hamilton, MD @ErikaHamilton9 RT @ihatebreastcanc: @stales Every time you or a loved one takes a cancer drug remember the Stage IV men and women who participated in Phase 1 clinical trials, without whom we would have NONE of our current early stage treatments. #bcsm #werememberthem |
| Alicia C. Staley @stales xoxo RT @stage4kelly: Thank you fearless trial pioneers #bcsm |
| Alicia C. Staley @stales @kathygori thank you for always joining in! #bcsm |
| Dennis Keim @denniskeim RT @paspears88: @ErikaHamilton9 @Prof_Riggins @stales I challenge every inclusion/exclusion criteria (ask for justification) and insist on using the new ASCO/FOCR guidance for those criteria. Men in all studies, brain mets in all studies, etc..https://t.co/0PvxynOHhR. #bcsm |
| forthebreastofus @thebreastofus RT @Prof_Riggins: @stales Speak up for inclusion of MBC patients in our clinical trial concepts. Every time. #bcsm |
| Dr. Kelly Shanahan @stage4kelly And for anyone in the NorCal/Northern NV area who isn’t going to #CPAT19, come up to Tahoe next Monday to help raise some $ for @metavivor Details at https://t.co/ETb20bYDRJ #bcsm |
 | Freddy Pizart @fpizart Medscape: Despite extensive research, the debate over the optimal duration of systemic therapy for early HER2-positive breast cancer shows no signs of being resolved any time soon. https://t.co/UYsU1kTeZl #bcsm https://t.co/V87pxQqgfz https://t.co/mR4l6ZxYz2 |
| Liza B @itsthebunk RT @stage4kelly: And for anyone in the NorCal/Northern NV area who isn’t going to #CPAT19, come up to Tahoe next Monday to help raise some $ for @metavivor Details at https://t.co/ETb20bYDRJ #bcsm |
| Ian Pereira @IanJPereira @itsthebunk @stales Did not intend for it to sound easy. The longer we can extend lifespans (for those who desire), the more room for more research & hopefully more (& better including less toxic) treatments. #bcsm 1/2 |
#BCSM content from Twitter.