#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Howard Karpoff @doctorkarpoff RT @OncLive: BREAKING: BREAKING: @US_FDA Approves Neratinib for HER2+ Breast Cancer #bcsm https://t.co/qw4fkJMWKw |
 | Alicia C. Staley @stales Hi everyone! Happy Monday. #bcsm |
| Howard Karpoff @doctorkarpoff hi all Breast surgeon from slightly upstate NY will be lurking and doing chart prep for surgeries tomorrow. #bcsm |
| Alicia C. Staley @stales @doctorkarpoff hi there. how are you? #bcsm |
| Alicia C. Staley @stales Tonight - we're checking in on everyone. #bcsm |
| Alicia C. Staley @stales How is your summer going? #bcsm |
| Howard Karpoff @doctorkarpoff @stales Well, Alicia. Busy day tomorrow. Otherwise hanging in. Working summer until kids get shuffled to college #bcsm |
 | Kathy Gori @kathygori 2x bc'er here...checking in from hot hot hot https://t.co/bCskNB4vgG country #bcsm |
 | Jamie Holloway, PhD @jamienholloway Hi, Jamie in Northern VA. 4yrs NED after early stage TNBC. Scientist, now advocate. #bcsm |
 | Cactus Cancer Society (Lacuna Loft) @cactuscancersoc Hello! Mallory from Lacuna Loft, providing online young adult cancer support programs! #bcsm #ayacsm |
| Alicia C. Staley @stales @jamienholloway hey, hey! How are you? #bcsm |
 | Dennis Keim @denniskeim Hi, Alicia and fellow #bcsm folks. Happy Monday! Diagnosis in 2013. Stage 1 with ITCs. Surgery, 6x TC chemo and tamoxifen. Still NED in NE. |
 | Angela Alexander PhD @thecancergeek @akknowles1 not sure on cost. The major toxicity everyone is discussing=diarrhea. Supposedly manageable w/ loperamide. #bcsm |
| Alicia C. Staley @stales @LacunaLoft good evening #bcsm |
| Alicia C. Staley @stales @denniskeim hey there! #bcsm |
| Alicia C. Staley @stales @kathygori hello, hello! how are you? #bcsm |
 | Dr. Kelly Shanahan @stage4kelly Hi all, former ob/gyn current MBC patient checking in from beautiful (but summer crowded) Lake Tahoe #BCSM |
 | Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Greetings from FL! Dx Mar 2014 Stage Ia bcs/chemo/rads. Now on anastrazole + NED. Have been making a bunch of calls to fight BCRA. #bcsm |
| Alicia C. Staley @stales @stage4kelly hi there! nice to see you #bcsm |
 | Shelley Fuld Nasso @sfuldnasso @stales Hi Alicia! Hope you are well. Summer in D.C. has been hot and busy. #BCSM |
| Alicia C. Staley @stales @Elissa_Malcohn hello there! #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales Hanging in there-- no such thing as lazy days of summer with all the kiddo activities! #BCSM |
| Alicia C. Staley @stales @sfuldnasso hi there! Just got back from a long weekend in Maine. It was awesome. #bcsm |
| Alicia C. Staley @stales @jamienholloway so true! You are having a busy summer :-) #bcsm |
| Jamie Holloway, PhD @jamienholloway @stage4kelly Hi Kelly! #BCSM |
| Alicia C. Staley @stales @itsthebunk what's up LA?! #bcsm |
| Howard Karpoff @doctorkarpoff 166 days until vacation..... #bcsm |
| Jamie Holloway, PhD @jamienholloway @itsthebunk @stales Hi Liza! Happy to see you! #BCSM |
| Kathy Gori @kathygori Hi there everybody... hope you're all a little cooler than we are here #bcsm |
 | FollowHeidi @FollowHeidi hello my team! #bcsm |
| Dr. Kelly Shanahan @stage4kelly I'm trying to enjoy the outdoors between reading DOD grants as a consumer reviewer. Will be in steamy D.C. early August. #BCSM |
| Kathy Gori @kathygori @stales So far so good....n.e.d had a really great onc visit and prolia for dessert #bcsm |
| Dennis Keim @denniskeim @kathygori Only a little cooler, Kathy. We've been warming up out here on the Great Plains. #bcsm |
| Alicia C. Staley @stales @FollowHeidi hello, hello! #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci Hey all! Hillary here - post doc at @LombardiCancer studying hormones and breast cancer with a bff prepping for radiation. 💕 #bcsm |
| Jamie Holloway, PhD @jamienholloway @stage4kelly Had to skip this one as we'll be in even steamier Louisiana! Hate that I'll be missing so many friends there! #BCSM |
| Alicia C. Staley @stales @DrAttai hi there! #bcsm |
| Kathy Gori @kathygori @denniskeim Yeah my bro in law is in Iowa... guess you guys have a bunch of thunderstorms heading your way #bcsm |
 | Matthew Katz, MD 🟦 @subatomicdoc Good evening #bcsm - I hope you're all well. Matt Katz, radiation oncologist in Massachusetts here. |
| Alicia C. Staley @stales As a reminder, here's information on #BCSM https://t.co/rUD9nLTZe4 |
| Alicia C. Staley @stales And here's more information about the Tweet chat: https://t.co/0KzBtOpPgz #bcsm |
| Dr. Kelly Shanahan @stage4kelly @kathygori Here is Tahoe it's mid-upper 80s and we're dying!! Not supposed to be this hot in the 🏔🏔. Yes, we are wimps when it comes to heat! #bcsm |
| Alicia C. Staley @stales @subatomicdoc hi there! How are you? #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @stales Hi Alicia! I'm well, and you? #bcsm |
| Alicia C. Staley @stales @HillStirSci @LombardiCancer Hi there! Great to see you #bcsm |
| Jamie Holloway, PhD @jamienholloway @HillStirSci @LombardiCancer Hi Hillary, glad your BFF is doing well! Good to "see" you here! #bcsm |
 | Nikhil Wagle, MD (he/him) @Nikhilwagle Hi everyone - Nick Wagle from Boston popping in for a quick hello #BCSM |
| Kathy Gori @kathygori @DrAttai So many young people who had childhood cancers... now healthy but unable to buy insurance at any price. #bcsm |
| Alicia C. Staley @stales @Nikhilwagle hello to you! #bcsm |
| Alicia C. Staley @stales @kathygori @DrAttai it's so upsetting #bcsm |
| Dr. Kelly Shanahan @stage4kelly @DrAttai Which is why I call senators every day! This & annual/lifetime caps. And humanity. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @jamienholloway She went back to work after surgery today! A week early. 🙄 hahaha. #bcsm |
| Alicia C. Staley @stales Alright - let's get started! #bcsm |
| Kathy Gori @kathygori @stage4kelly Yikes! We used to go up to the north shore in summer when I was a kid it was never that hot up there!!!! #bcsm |
| Cactus Cancer Society (Lacuna Loft) @cactuscancersoc @kathygori @DrAttai But until the law changes, pre-existing conditions do not apply any longer! What is keeping them from insurance? #bcsm |
| Alicia C. Staley @stales T1: What's on your mind? Share with the group! Questions? Let's us know! #bcsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello all. I'm Shereese, healthcare strategist in Maryland. #bcsm https://t.co/knxAWdPtFa |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn THIS. I've also done phone banking MT @stage4kelly: @DrAttai Why I call senators every day! This & annual/lifetime caps. And humanity. #bcsm |
| Alicia C. Staley @stales @ShereesePubHlth Welcome! #bcsm |
 | Rebecca Alleyne, MD FACS @BeckyAlleyneMD Hello all! Breast surgeon in LA here to lurk and learn #bcsm |
| Alicia C. Staley @stales @BeckyAlleyneMD Nice to see you! #bcsm |
| Kathy Gori @kathygori @LacunaLoft @DrAttai This was pre ACA I had cancer the first time in 1990 so I had a front row seat at that goat roping #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @itsthebunk Hi Liza! #bcsm |
| Cactus Cancer Society (Lacuna Loft) @cactuscancersoc @DrAttai @kathygori aahh yes. Thank you for the added context. Calling Senators helps! Great point! #bcsm |
| Dennis Keim @denniskeim @kathygori Looks like something is brewing in the middle of Nebraska and headed east tonight. Hopefully no hail or tornadoes. :) #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @denniskeim @kathygori Good evening to you both! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @Nikhilwagle Going through @corrie_painter & @Nikhilwagle withdrawal- when's the next conference where we'll see you? SABCS? #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @DrAttai Hi Deanna! #bcsm |
| Rebecca Alleyne, MD FACS @BeckyAlleyneMD @stales Thanks glad to be here and glad to see you too #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @stales: As a reminder, here's information on #BCSM https://t.co/rUD9nLTZe4 |
 | Anjali Malik, MD @AnjaliMalikMD Had a pt decline bx of likely br ca due to fear of pre existing condition since she is changing jobs. #bcsm |
| Kathy Gori @kathygori @denniskeim Stay safe ..out there on the plains! #bcsm |
| Kathy Gori @kathygori @itsthebunk @subatomicdoc @denniskeim Hello hello hello!! #bcsm |
| FollowHeidi @FollowHeidi struggling with a few of the ever-undiscussed side effects of living with #bc. anyone else? T1 #bcsm |
| Dennis Keim @denniskeim @kathygori No worries. We mostly know when to duck. :) #bcsm |
 | Leslie @Leslieks @stales I'm SO tired. #bcsm. Can't get through a day without a nap. Someone recommended a different brand of vitamins I may try. |
| Angela Alexander PhD @thecancergeek Tragic! RT @AnjaliMalikMD: Had a pt decline bx of likely br ca due to fear of pre existing condition since she is changing jobs. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @kathygori @LacunaLoft @DrAttai My early stage dx was pre-ACA. We spun my husband and 9 year old daughter off my policy immediately so caps wouldn't f- them over. #bcsm |
| Kathy Gori @kathygori @denniskeim Ha! So I hear! #bcsm |
| Rebecca Alleyne, MD FACS @BeckyAlleyneMD @DrAttai Hi!! (Waving and smiling ear to ear) out of clinic earlier so I thought I'd check in #bcsm |
| Angela Alexander PhD @thecancergeek @itsthebunk @AnjaliMalikMD biopsy I would presume #bcsm |
| Dennis Keim @denniskeim @subatomicdoc Hey, Matt! :) #bcsm |
| Alicia C. Staley @stales Lots of questions and comments on possible changes to healthcare laws. #bcsm |
| Dennis Keim @denniskeim @itsthebunk Howdy, Liza! :) #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk @AnjaliMalikMD Biopsy? Terrible, however you look at it. Criminal that we need to make these "choices." #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @DrAttai On the whole, it is going well, thanks! I hope your summer has been good too #bcsm |
| Dr. Kelly Shanahan @stage4kelly @kathygori @LacunaLoft @DrAttai Daughter is homozygous for MTFHR (as am I) so she's probably screwed too if BCRA passes. She's only 18. #bcsm |
| Shelley Fuld Nasso @sfuldnasso @AnjaliMalikMD That's horrible! We can't go back to the way things were before ACA #bcsm |
| Alicia C. Staley @stales For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: https://t.co/9PvUE66155 #BCSM |
| Alicia C. Staley @stales RT @FollowHeidi: struggling with a few of the ever-undiscussed side effects of living with #bc. anyone else? T1 #bcsm |
| Kathy Gori @kathygori @stage4kelly @LacunaLoft @DrAttai Well I have always had WGA insurance so I've been lucky , we worked all through my chemo back in 90 so as not to lose coverage #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @DrAttai Sounds excellent! #bcsm |
| Cactus Cancer Society (Lacuna Loft) @cactuscancersoc @stales @CancerAdvocacy Agreed! Great source of updated information along with @TriageCancer #bcsm |
| Dennis Keim @denniskeim @Leslieks @stales I'm a sleepy head on far too many days too, Leslie. More work required on my sleep hygiene. :) #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Good info from @ASlavitt @TopherSpiro RT @stales: Lots of questions and comments on possible changes to healthcare laws. #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @stales: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: https://t.co/9PvUE66155 #BCSM |
| Jamie Holloway, PhD @jamienholloway T1: I'm hung up on the "noeadjuvant chemo causes mets" paper. (btw, don't think it's practice changing, but can't shake the headline) #bcsm |
 | Social✽Fly @socflyny @AnjaliMalikMD That is frightening, and the proposed bill definitely would allow employers to decline coverage. #bcsm |
 | Lisa Rice #MaskUp (she/her) @LisaDTRice #BCSM Hi! Daughter, navigator for my mother, 2x breast cancer survivor with advanced #Alzheimers. Advocate for all #cancer survivors. |
| Kathy Gori @kathygori RT @stales: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: https://t.co/9PvUE66155 #BCSM |
| Alicia C. Staley @stales RT @Elissa_Malcohn: Good info from @ASlavitt @TopherSpiro RT @stales: Good info from @ASlavitt @TopherSpiro RT @stales: Lots of questions and comments on possible changes to healthcare laws. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @DrAttai @jamienholloway Would love to get the take of some of the MDs/PhDs on this study. #bcsm |
| Alicia C. Staley @stales @LAmourAngelique Open forum tonight - what's on your mind? #bcsm |
| FollowHeidi @FollowHeidi yes maam...and meds like femara, tamoxifin, etc keep us around but have some issues as well. worth it, for sure - but hard some days. #bcsm https://t.co/i5rjwhpUW6 |
| Social✽Fly @socflyny RT @stales: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: https://t.co/9PvUE66155 #BCSM |
| Alicia C. Staley @stales RT @DrAttai collateral damage - treatment related side effects can persist long after done with therapy #bcsm |
| Jamie Holloway, PhD @jamienholloway @DrAttai I studied that paper- I know in my head I should't worry. Yet everytime I see it re-posted I panic for a second again. #bcsm |
| Alicia C. Staley @stales @LisaDTRice hi there! so nice to see you! #bcsm |
| Kathy Gori @kathygori @DrAttai @jamienholloway Yeah my onc agreed #bcsm |
| Social✽Fly @socflyny @stales My feelings are well known on this topic!!! #bcsm |
| Alicia C. Staley @stales @socflyny hi there! #bcsm |
| Jamie Holloway, PhD @jamienholloway @stage4kelly @DrAttai We should chat sometime-- I have lots of thoughts! #BCSM |
| Dennis Keim @denniskeim @jamienholloway That report and headline caught a lot of our attentions. #bcsm |
| Angela Alexander PhD @thecancergeek Mice are not humans! #bcsm |
| FollowHeidi @FollowHeidi BUT every day,there is someone else who could use a helping hand, an uplifting voice, a supporting shoulder;Worth it. #bcsm T1 #breastcancer |
| Dr. Kelly Shanahan @stage4kelly @sfuldnasso 8/5 late -8/8. Have some time 8/6 AM. Will be in Reston.#bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn -----> RT @thecancergeek: Mice are not humans! #bcsm |
| Jamie Holloway, PhD @jamienholloway I love Bert Vogelstein talking about how it's a great time to be a mouse with cancer! ;) #bcsm https://t.co/YKVNAgMwcT |
 | JediPD @JediPD @jamienholloway It's a risk based on tumor microenvironment (TMEM) in mice. AND there is Rebastinib, a TIE2 Inhibitor that shuts down the TMEM. #bcsm |
| Kathy Gori @kathygori @denniskeim @jamienholloway That is putting it mildly #bcsm |
| Dennis Keim @denniskeim RT @jamienholloway: I love Bert Vogelstein talking about how it's a great time to be a mouse with cancer! ;) #bcsm https://t.co/YKVNAgMwcT |
| Social✽Fly @socflyny @DrAttai @jamienholloway @ASCO @hoosierdfh Had read that a week or so ago. Didn't have a chance to ask you for your thoughts. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @jamienholloway @DrAttai Maybe we can grab a coffee (or wine!) when I'm out there for DOD BCRP 8/5-8/8 - will be in Reston. #bcsm |
| Angela Alexander PhD @thecancergeek I think if anything the paper helps the field of CTCs 2 make the case that baseline & post-NACT testing may be helpful in guiding tx #bcsm |
| Jamie Holloway, PhD @jamienholloway @stage4kelly @DrAttai Would LOVE to-- but the reason I won't be in Reston with you is that I'll be out of town. But could google chat or email. #BCSM |
 | Beth Caldwell @CultPerfectMoms @stales Hey, just popping in for a minute to see what's going on with healthcare, very relieved about the two new no votes! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @jamienholloway @DrAttai Sounds good! #bcsm |
| Jamie Holloway, PhD @jamienholloway @thecancergeek There was also a good paper on that in the last week or so... Using liquid bx to predict recurrence in TNBC #BCSM |
| Alicia C. Staley @stales @CultPerfectMoms yes! i just saw the breaking news. Very good to see that. Hugs to you! #bcsm |
| JediPD @JediPD Hello all at #bcsm & @DrAttai @stales @subatomicdoc -good people! |
| Kathy Gori @kathygori @CultPerfectMoms @stales Yes husband is eating popcorn!#bcsm |
| Alicia C. Staley @stales @JediPD hi there! #bcsm |
| Beth Caldwell @CultPerfectMoms @kathygori @DrAttai @jamienholloway My onc called the press coverage of it "idiotic." #bcsm |
| Social✽Fly @socflyny @DrAttai @jamienholloway There were others. The headline in the one I saw suggested poorer outcomes. Not sure it cited mets in the headline #bcsm |
| Kathy Gori @kathygori @CultPerfectMoms @DrAttai @jamienholloway It was a real eye roller! #bcsm |
| Dennis Keim @denniskeim @CultPerfectMoms Good news indeed. Let's hope they all stay in the "no" zone. #bcsm |
| Angela Alexander PhD @thecancergeek @jamienholloway Yes I saw! Eventually much value in tailoring FU I think. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @CultPerfectMoms @stales I'm still going to call Dean Heller of NV every day! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @stales @CultPerfectMoms There's a WH meeting tonight w/BCRA gang https://t.co/jL8T0zUPUg Taking nothing 4 granted. #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @JediPD @DrAttai @stales Hi Parvez! I hope you're well tonight #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk @denniskeim @CultPerfectMoms We have to keep pressure up - otherwise they'll cave. #bcsm |
| Jamie Holloway, PhD @jamienholloway @thecancergeek This nature paper-- #bcsm https://t.co/YTgq0UbK35 |
 | Alan Brewington @abrewi3010 @itsthebunk It's just a bad day but not a bad life! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @stage4kelly @CultPerfectMoms @stales Calling here as well. Made 20+ to @marcorubio alone on BCRA, along w/calls farther afield. #bcsm |
 | UCSF Helen Diller Family Comprehensive Cancer Ctr @UCSFCancer RT @theNCI: Testing new approaches to #breastcancer screening https://t.co/YHDoCF1lNo via @UCSFCancer #bcsm https://t.co/UhvKBi5fvV |
 | Christina Lizaso @btrfly12 RT @stales: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: https://t.co/9PvUE66155 #BCSM |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk Look at the senate- this is directly related to hearing from constituents. Our constituents are other cancer patients. We are needed. #bcsm |
| Shelley Fuld Nasso @sfuldnasso @CultPerfectMoms @stales This was good news, but I'm still worried and we have to keep the pressure up! Who knows what kind of deals they will try to strike. #bcsm |
 | National Foundation for Cancer Research @NFCR RT @stales: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: For those looking for more information on what's going on with healthcare policy - see @CancerAdvocacy's blog: https://t.co/9PvUE66155 #BCSM |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk Hope this thread helps: https://t.co/Dy0tFLJJ5Z #bcsm |
| Dennis Keim @denniskeim @itsthebunk One explanation of why so few nays on the unpopular GOP health care bill. https://t.co/JVJBDrkvW0 #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk I think of my dead friends, and that reminds me why I advocate: I'm still here and I can honor them by being their voice. #bcsm |
| Alan Brewington @abrewi3010 @itsthebunk Big hug right back to you! #bcsm |
| Kathy Gori @kathygori @itsthebunk Stay hopeful. People who have had insurance for the first time know what they will lose when it's gone #bcsm |
 | Blue Short Film @BlueShortFilm The latest Blue Short Film: Cancer on Twitter! https://t.co/v0fZZeUF90 Thanks to @WinshipAtEmory @LUNGevity @cancer_connect #oncology #bcsm |
| Leslie @Leslieks @denniskeim @stales My neurologist gave me a clean bill of heath (other than my migraines) today. That was exciting. Don't be jealous. #bcsm |
| Social✽Fly @socflyny BREAKING: @nytimes reporting healthcare proposal is dead!!! Two more GOP senators are refusing to support it. YAY! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk I LOVE this post on self care from @inspiredjen https://t.co/w9ZKtdp8Sr #bcsm |
| Dr. Kelly Shanahan @stage4kelly @DrAttai I go see a movie with my daughter, or have a glass of wine (not with her, she's only 18, altho she did drink my mojito last week!) #bcsm |
| Social✽Fly @socflyny cc #BCSM 👇👇👇👇👇 https://t.co/ookuFLQeyB |
| Alicia C. Staley @stales @abrewi3010 Nice to see you! #bcsm |
| Cactus Cancer Society (Lacuna Loft) @cactuscancersoc RT @Elissa_Malcohn: @itsthebunk I LOVE this post on self care from @inspiredjen https://t.co/w9ZKtdp8Sr #bcsm |
| Alicia C. Staley @stales @zmadak hi there! #bcsm |
 | 🅚🅡🅘🅢 🌊 @NYKrisL RT @socflyny: BREAKING: BREAKING: @nytimes reporting healthcare proposal is dead!!! Two more GOP senators are refusing to support it. YAY! #bcsm |
| Shelley Fuld Nasso @sfuldnasso @stage4kelly @itsthebunk That's right - we thought the ACA would be repealed in January. It's mid-July and they haven't been able to do it because of advocacy! #bcsm |
| Kathy Gori @kathygori @itsthebunk Ooooo in general??? I get frustrated every day #bcsm |
| Jamie Holloway, PhD @jamienholloway @itsthebunk Hard question, Liza. Some days are hard. Mostly keep trudging ahead searching another bright patch! #BCSM |
 | GYN Cancer | #GYNCSM @gyncsm RT @ASCOPost: Study Estimates Risks of Breast and Ovarian Cancers in BRCA1/2-Mutation Carriers https://t.co/mr2DKzHEVD #BCSM #gyncsm #oncology |
| Alicia C. Staley @stales RT @sfuldnasso: @CultPerfectMoms @stales This was good news, but I'm still worried and we have to keep the pressure up! Who knows what kind of deals they will try to strike. #bcsm |
| Alicia C. Staley @stales RT @Elissa_Malcohn: @stage4kelly @CultPerfectMoms @stales Calling here as well. Made 20+ to @marcorubio alone on BCRA, along w/calls farther afield. #bcsm |
| Dennis Keim @denniskeim @zmadak Hey, Zeynep! :) #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk I also follow this list of alt/rogue accounts. Great info, camaraderie, and INSPIRING! https://t.co/eWwuSbLMcr #bcsm |
| Kathy Gori @kathygori @Leslieks @denniskeim @stales Congrats.. that's so funny when I think of the stuff I used to be jealous of! Ha! #bcsm |
| Kathy Gori @kathygori @zmadak Hi there!! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk And I plan vacations!!! Hubs & I are going to Spain/Portugal around ABC4!! #bcsm. |
| Alicia C. Staley @stales @zmadak Yes! Tonight is a summer checkin chat - it's open mic night. how is your summer going? What's on your mind? #bcsm |
| Leslie @Leslieks Side effects look intense. But if it helps prevent I'd be interested in discussing it at least. I'm Her2+. #bcsm https://t.co/BU3xsN40nz |
| Dennis Keim @denniskeim @Leslieks Good to hear, Leslie. I've had some periodic neurological issues too so I can relate. Fortunately, it seems nothing major. #bcsm |
| Alicia C. Staley @stales Some many wonderful tweets tonight. So, let's keep going on this topic! #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @stales Promising that it looks like it will require bipartisan efforts to revise the ACA rather than outright repeal it. #bcsm |
| Shelley Fuld Nasso @sfuldnasso @itsthebunk @kathygori Self-care is important to avoid burnout when you're working so hard to take care of and advocate for yourself and others. #bcsm |
 | Anas Younes, M.D. @DrAnasYounes The latest Science, Health & Cancer News Daily! https://t.co/urCt0gr2kZ Thanks to @Rndubois #oncology #bcsm |
| Alicia C. Staley @stales T1: What's on your mind? Share with the group! #bcsm |
| FollowHeidi @FollowHeidi migraines are tough, aren't they? are you in chemo or on other meds? #bcsm https://t.co/AMuGtTDf5A |
| Leslie @Leslieks @FollowHeidi Oh yes! I hate Tamoxifen. Joint pain. Weight gain. Fatigue. Yet...it'll help keep my cancer away. #bcsm |
| Alicia C. Staley @stales T1: Questions for #BCSM -- Let's us know! #bcsm |
| Dennis Keim @denniskeim I had sports cars on the mind again today. Who knew Lincoln had so many Miatas. And that new Fiat Spider 124 looks tempting too. :) #bcsm |
 | IBC Research Fdn @IBCResearch Sorry to drop in late...tied up with other things. Hi all! #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @zmadak Hi Zeynep! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Fingers crossed! MT @subatomicdoc: @stales Looks like it will require bipartisan efforts to revise ACA rather than outright repeal it #bcsm |
| Leslie @Leslieks @FollowHeidi Finished my Herceptin in October. My migraines lessened during chemo but are back now. #bcsm |
| Alan Brewington @abrewi3010 @stales Good to see you too! How are you? #bcsm |
| Alicia C. Staley @stales @IBCResearch hi there! Always great to see you! #bcsm |
| Alicia C. Staley @stales @abrewi3010 doing well, enjoying some time off this summer. #bcsm |
| Leslie @Leslieks @FollowHeidi So just the Tamoxifen now. #bcsm |
| Alicia C. Staley @stales agreed! RT @DrAttai @itsthebunk @stage4kelly no guilt. if you're wiped out / burned out then time to step back for a bit #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @Elissa_Malcohn @stales Yes, and toes. A lot of improve upon, but hopefully not going in reverse. #bcsm |
| FollowHeidi @FollowHeidi mine as well. bone pain also, harder each week it seems. odd... #bcsm https://t.co/WmXCdLhGCh |
| IBC Research Fdn @IBCResearch @stales Thanks @stales! Always good to see familiar faces/names! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @subatomicdoc @stales Yep. We need to be vigilant on that. #bcsm |
 | Susan Burke Mangano @susila55 RT @Elissa_Malcohn: @itsthebunk I LOVE this post on self care from @inspiredjen https://t.co/w9ZKtdp8Sr #bcsm |
| Leslie @Leslieks @FollowHeidi Yes!! I didn't have pain like this until two days after starting Tamoxifen. Been bad ever since. It waxes and wanes...but pain daily. #bcsm |
| Jamie Holloway, PhD @jamienholloway T1: New question: Anyone in DC going to the FDA dose finding in immunotherapy workshop on Thursday? #BCSM |
| Leslie @Leslieks So y'all saw there are two more "no" votes on healthcare? Means this bill, in this form, is effectively dead. #bcsm |
| Alicia C. Staley @stales anyone? RT @jamienholloway T1: New question: Anyone in DC going to the FDA dose finding in immunotherapy workshop on Thursday? #BCSM |
| FollowHeidi @FollowHeidi I'm thankful for the every day. Every day. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk @DrAttai Did you feel guilty when you took a vacation from your job? Advocacy is our job and we need a vacation from it sometimes. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales @zmadak Summer is great - prepping for my TALK at the Hormone Dependent Cancers Gordon Conference. 🙈 @zmadak how's your prep coming? #bcsm |
| Dennis Keim @denniskeim RT @FollowHeidi: I'm thankful for the every day. Every day. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @Leslieks @FollowHeidi On an AI and felt like I was 102 - started exercising hard and eating clean and feel WAY better now! #bcsm |
| Beth Caldwell @CultPerfectMoms RT @sfuldnasso: @CultPerfectMoms @stales This was good news, but I'm still worried and we have to keep the pressure up! Who knows what kind of deals they will try to strike. #bcsm |
| Alicia C. Staley @stales @stage4kelly @itsthebunk @DrAttai sometimes, you need to step away to have a better perspective and renewed energy. #bcsm |
| Beth Caldwell @CultPerfectMoms RT @stage4kelly: @itsthebunk @denniskeim @CultPerfectMoms We have to keep pressure up - otherwise they'll cave. #bcsm |
| Beth Caldwell @CultPerfectMoms RT @stage4kelly: @CultPerfectMoms @stales I'm still going to call Dean Heller of NV every day! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @stage4kelly @Leslieks @FollowHeidi I swear by exercising and eating healthy; helped me through chemo; helps me through AI. #bcsm |
| Angela Alexander PhD @thecancergeek @jamienholloway Sounds like an interesting meeting. With the $ of chkpt abs, more attention needs to be placed on dose/scheduling IMO #bcsm |
| Dr. Kelly Shanahan @stage4kelly @jamienholloway Joining in off and on via livestream- starts at 5 AM my time so won't "be"there for opening. Will stream during AM cardio. #bcsm |
| IBC Research Fdn @IBCResearch @stage4kelly @itsthebunk @DrAttai I find it hard to take a vacation from advocacy. Been at it over 18 yr but do feel guilty when need to be away....sad but true #bcsm |
| Leslie @Leslieks Yes. I find exercise helps loosen the joints up & makes it better. Still painful & "cracky" though. I keep saying I feel like I'm 80. #bcsm https://t.co/UDZLCUJsxU |
| Jamie Holloway, PhD @jamienholloway @thecancergeek They're usually really good workshops. Will try to tweet during... #BCSM |
| Dr. Kelly Shanahan @stage4kelly @IBCResearch @itsthebunk @DrAttai I have to go somewhere with bad internet service to really check out. #bcsm |
| Leslie @Leslieks I'm a nutrition educator for a living. My eating is healthful. I'm exercising (which takes all my energy) but still...#bcsm https://t.co/mAiDoLRDpU |
| Cactus Cancer Society (Lacuna Loft) @cactuscancersoc @stage4kelly @IBCResearch @itsthebunk @DrAttai Yes! I often try and schedule vacations around bad internet spots ;) #bcsm |
| Dennis Keim @denniskeim So very important to take care of ourselves. Easy to let that slide far too often. #bcsm |
 | Think BEYOND Pink @ThinkBeyondPink RT @theNCI: Genomic study seeks clues to help explain breast cancer disparities https://t.co/SPMkJ13EEj #bcsm #cancerdisparities #triplenegativebc https://t.co/oUtOUDu9OB |
 | rap stars @rapstarsca ~@US_FDA approves Puma Biotech's breast cancer treatment https://t.co/4ERdDkze2G #BCSM #PHARMA |
| Alicia C. Staley @stales so true! RT @denniskeim So very important to take care of ourselves. Easy to let that slide far too often. #bcsm |
| Kathy Gori @kathygori @stage4kelly @IBCResearch @itsthebunk @DrAttai And lose my iPhone.... #bcsm |
| IBC Research Fdn @IBCResearch Yes, this! Guess I need to go to the wilderness so I can take a break and not feel guilty! #bcsm https://t.co/Sobijiwezi |
| Alicia C. Staley @stales RT @FollowHeidi: I'm thankful for the every day. Every day. #bcsm |
| Kathy Gori @kathygori @itsthebunk @denniskeim I like that... very Jason Bourne #bcsm |
| IBC Research Fdn @IBCResearch My org is sponsoring a free webinar on skin metastasis, 7/20/17 If interested visit https://t.co/QRpcwjZvsM to register #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @zmadak Hi Zeynep - I'm well thanks. How is your summer going? #bcsm |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Finally felt the sting of an antagonistic remark on social media but it got me thinking: https://t.co/6UBDirDxmK #bcsm #lcsm #bccww #gyncsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk @denniskeim "Self care" always legit 2 me. Friend told me during v bad caregiving yr, "If you go down, you both go down." #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @coffeemommy: Finally felt the sting of an antagonistic remark on social media but it got me thinking: Finally felt the sting of an antagonistic remark on social media but it got me thinking: https://t.co/6UBDirDxmK #bcsm #lcsm #bccww #gyncsm |
| Alicia C. Staley @stales Last few thoughts for tonight's chat? #bcsm |
| Alicia C. Staley @stales @coffeemommy wow. great post. sorry to hear that happened, but great response #bcsm |
| Angela Alexander PhD @thecancergeek @coffeemommy great answer! #bcsm |
| Alicia C. Staley @stales Good night everyone! Have a great week! #bcsm |
| Dr. Kelly Shanahan @stage4kelly Enjoy summer everyone!! #BCSM |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @coffeemommy Well put! #bcsm |
| Jamie Holloway, PhD @jamienholloway Good night all, great chat! #BCSM |
| Howard Karpoff @doctorkarpoff Final thought is always first and last : Do the best that you can. In your work. In your life. For yourself. For others. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Wishing everyone a great week! HUGS to all! #bcsm |
| Kathy Gori @kathygori @zmadak Yes, saw she was dx'ed the yr before #bcsm |
| Howard Karpoff @doctorkarpoff everyone have a terrific week #bcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @stales Thanks Alicia. And thank you for being part of that big supportive community that lifts me up on the harder days. 💖 You enrich my life #bcsm |
| Shelley Fuld Nasso @sfuldnasso good night, y'all! #bcsm |
| Angela Alexander PhD @thecancergeek RT @doctorkarpoff: Final thought is always first and last : Final thought is always first and last : Do the best that you can. In your work. In your life. For yourself. For others. #bcsm |
| Cactus Cancer Society (Lacuna Loft) @cactuscancersoc Good night, everyone! #bcsm |
| Kathy Gori @kathygori Great seeing everyone tonight... stay cool. Keep the pressure on #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn +1000 MT @doctorkarpoff: Final thought: Do the best that you can. In your work. In your life. For yourself. For others. #bcsm |
| Dennis Keim @denniskeim Have a super week everyone! :) https://t.co/fESt2zJ5ro #bcsm |
| Kathy Gori @kathygori RT @doctorkarpoff: Final thought is always first and last : Final thought is always first and last : Do the best that you can. In your work. In your life. For yourself. For others. #bcsm |
| IBC Research Fdn @IBCResearch @coffeemommy Your reply is perfect...just perfect! #bcsm |
| Alicia C. Staley @stales @sfuldnasso Good night! #bcsm |
| Alicia C. Staley @stales Take care everyone! Group hug #bcsm |
| IBC Research Fdn @IBCResearch Hugs and cookies to all until next week! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @coffeemommy Great post Stacey. As someone with MBC I'm grateful for supporters and friends like you! ❤️ #bcsm |
| Social✽Fly @socflyny @stales Congrats -- you helped topple #Trumpcare!!! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @IBCResearch I wish I could have a cookie! My health coach would smack my hand!! But I've lost 25 lbs so far so I'm going to stick with it! #bcsm |
| IBC Research Fdn @IBCResearch @stage4kelly WOW! Good on you! Obviously you have more willpower than I do but I'm working at it, knowing it's a slow process. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @stage4kelly @IBCResearch Great job! Keep on keepin' on (and takin' off)! #bcsm |
 | Wafik S. El-Deiry, MD, PhD, FACP @weldeiry The latest The Cancer Plus Daily! https://t.co/SImwkiOuFt Thanks to @LacunaLoft @PauloBergerot @RS_Flinn #bcsm #cancer |
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