#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
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NCI Cancer Stats @NCICancerStats Female breast #cancer is the most common invasive cancer in the United States. Find more statistics on this disease here: https://t.co/Ru6H32vLrq #BCSM https://t.co/mxSQCY6YQx | |
Ginger Riley ~Eternal Optimist~ @gingerly21 RT @NCICancerStats: Female breast #cancer is the most common invasive cancer in the United States. Find more statistics on this disease here: https://t.co/Ru6H32vLrq #BCSM https://t.co/mxSQCY6YQx | |
Alicia C. Staley @stales Good evening everyone! Welcome to #BCSM | |
Dr. Deanna Attai @DrAttai hi everyone - happy Monday evening, breast surgeon in LA #bcsm | |
Alicia C. Staley @stales Welcome to #BCSM - How are you this week? | |
Alicia C. Staley @stales Please take a moment to say hello! #bcsm | |
Alicia C. Staley @stales We will get started in a moment #bcsm | |
Danielle Karber @danielle_dk Hello from SoDak!! #BCSM | |
Alicia C. Staley @stales We're competing with the #Emmys tonight, I know! #bcsm | |
Alicia C. Staley @stales @danielle_dk Hi, How are you? #bcsm | |
Alicia C. Staley @stales Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 | |
Hillary (Stires) Andrews, PhD @HillStirSci @stales Hi everyone! I’m Hillary, a postdoc at @LombardiCancer studying endocrine resistance in breast cancer. #BCSM | |
Jamie Holloway, PhD @jamienholloway Hi #bcsm friends-- Jamie here in swampy DC, almost 6 yrs NED after stage 2 TNBC dx. Scientist and advocate. | |
Jamie Holloway, PhD @jamienholloway @HillStirSci @stales @LombardiCancer Hi Hillary, happy national postdoc day! #bcsm | |
Alicia C. Staley @stales And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz | |
Alicia C. Staley @stales @HillStirSci @LombardiCancer Welcome, great to see you! #bcsm | |
Inspire @InspireIsHealth @stales Hello Alicia and to all the to #BCSM community, John Novack from Inspire checking in. | |
Dennis Keim @denniskeim Hey, Alicia and #bcsm peeps! Just got done with my second consecutive day of yoga. It's working me over. Stage 1 in 2013. Still NED in NE. | |
Alicia C. Staley @stales @itsthebunk hi there! #bcsm | |
Jamie Holloway, PhD @jamienholloway @itsthebunk @stales Happy happy birthday, friend! Hugs to you! #BCSM | |
Dr. Deanna Attai @DrAttai @itsthebunk @stales oh good luck! xoxoxoxo #bcsm | |
Alicia C. Staley @stales @jamienholloway Hi jamie! How are you? #bcsm | |
Alicia C. Staley @stales @denniskeim Hi there! #bcsm | |
Hillary (Stires) Andrews, PhD @HillStirSci @itsthebunk @stales Miss you!! Happy birthday my friend, best of luck with surgery! I’ll be thinking about you. ❤️❤️ #BCSM | |
Jamie Holloway, PhD @jamienholloway @stales Great, thanks-- what about you? Hope all is well with you! #bcsm | |
Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins Hi #bcsm - Becca from @LombardiCancer, breast cancer research (#lobular and more). | |
Hillary (Stires) Andrews, PhD @HillStirSci @jamienholloway @stales @LombardiCancer Thank you!! #BCSM | |
Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @itsthebunk @stales Take care!! #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff Hello #bcsm - breast med onc joining! | |
Alicia C. Staley @stales @DrSGraff hi there! #bcsm | |
Alicia C. Staley @stales @Prof_Riggins @LombardiCancer Hello! #bcsm | |
Dennis Keim @denniskeim @itsthebunk Good luck with it all! Good thoughts as always! :) #bcsm | |
Alicia C. Staley @stales @jamienholloway Doing well, in Palo Alto this week! #bcsm | |
Kathy Gori @kathygori 2x bc’er currently going steady with NED...Checking in from Nor Ca 🍷 country #bcsm | |
Jamie Holloway, PhD @jamienholloway @stales You're always somewhere exciting! (I almost asked how Boston was treating you but figured you weren't there!) #bcsm | |
Kathy Gori @kathygori @itsthebunk @stales Take care!♥️♥️#bcsm | |
Shanna Marzilli @Shanna_Marzilli Hello from RI! 🌊 ☀️ #bcsm | |
Kathy Gori @kathygori Oh and also it’s my latest cancerversary 4 yrs 2day #bcsm | |
Nikhil Wagle, MD (he/him) @Nikhilwagle Hello #BCSM - sorry it’s been a while since I’ve been able to join. Nick Wagle, medical oncologist and cancer researcher from Boston here | |
Alicia C. Staley @stales @kathygori Congrats! #bcsm | |
Alicia C. Staley @stales @Nikhilwagle Welcome! nice to see you! #bcsm | |
Alicia C. Staley @stales @Shanna_Marzilli Hello! #bcsm | |
Alicia C. Staley @stales @jamienholloway LOL, I need a handler #bcsm | |
Alicia C. Staley @stales Alright - let's get started! #bcsm | |
MacCocktail (Mastodon: @MacCocktail@zirk.us) @MacCocktail RT @kathygori: Oh and also it’s my latest cancerversary 4 yrs 2day #bcsm | |
Sarah @2013BCSarah Hello from central Illinois. Lurking and learning. #bcsm | |
Dr_Dana @Dr_Dana Happy Monday👋🏻👋🏻 Breast surgeon in Little Rock listening and learning. #bcsm | |
Jamie Holloway, PhD @jamienholloway @2013BCSarah Hi Sarah! Welcome! #bcsm | |
Alicia C. Staley @stales @robmart437 Welcome! nice to see you #bcsm | |
Alicia C. Staley @stales @2013BCSarah Welcome! #bcsm | |
Alicia C. Staley @stales @MommysCancer Hey there! #bcsm | |
Alicia C. Staley @stales @Dr_Dana hello, hello! #bcsm | |
Alicia C. Staley @stales @robmart437 Congrats! #bcsm | |
Inspire @InspireIsHealth RT @coffeemommy: Compelled to share this. Hope you are compelled to watch it. Smiles & tears. ❤️Jason's wife is dying of metastatic breast cancer. MBC kills 114 EVERY day. It's killed my friends. It's killed my friends' friends. We must do better. #cancerblowsdonkeys #Stageivneedsmore #bcsm | |
Alicia C. Staley @stales T1 - October is coming up. And the #BCSM crew knows what that means! Pinktober is here. | |
Alicia C. Staley @stales T1: We want to make this October's awareness month something meaningful and actionable this year. #bcsm | |
Danielle Karber @danielle_dk 🤢 #BCSM | |
Alicia C. Staley @stales T1: Tell us, what do you want #BCSM to do this October? What topics do you want us to address and offer solutions for? | |
Sarah @2013BCSarah RT @stales: Reminder: You can learn more about the #BCSM Community here: Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 | |
Alicia C. Staley @stales Don't forget to tag your tweets with #BCSM so we can see them | |
Danielle Karber @danielle_dk Brainstorming on how to get the word out that BC is not the “good” cancer, that it’s not all pink tutus and rainbows, and that 113 people die DAILY from this disease. (In a nice way.) 😂#BCSM | |
Kathy Gori @kathygori @stales Pinkwashing and the constant marketing of everything breast cancer plus the bullshit false security it’s marketed under as “prevention” when it’s really about Mets research. That’s the name of the game! #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales I would love to see the lay-public better understand clinical trials. Interpretation vs headlines; but also value of participating at all levels of (cancer) care. #bcsm | |
Alicia C. Staley @stales Some other topics of interest that we will cover ---- Clinical Trials, Male Breast Cancer, Metastatic Breast Cancer....... #bcsm | |
Alicia C. Staley @stales @DrSGraff Great point - we need to find a better way to share information about trials with the community #bcsm | |
Alicia C. Staley @stales @kathygori Great point! #bcsm | |
Alicia C. Staley @stales @danielle_dk Yes, it's a constant Challenge #bcsm | |
Julia Maués @itsnot_pink Hello #bcsm! I’ve never done this before. I’ve been living with MBC for 5.5 years and live in DC | |
Kathy Gori @kathygori @jumauba Welcome! #bcsm | |
Alicia C. Staley @stales @jumauba Welcome! Thanks for joining us #bcsm | |
Dr. Kelly Shanahan @stage4kelly @stales T1. Fight the pinkwashing. Educate how slapping pink ribbons on crap rarely does anything (except for those few products that donate substantially to orgs like @BCRFcure) #bcsm | |
Alicia C. Staley @stales @stage4kelly hey there! #bcsm | |
Alicia C. Staley @stales Twitter is slow right now, bear with us! #bcsm | |
Social✽Fly @socflyny @stales Not enough lead time, but I'd love to get some major companies marketing products with a pink ribbons to attend a BC education and sensitivity seminar and some of our AGs holding their feet to the fire for not providing transparency on their pink ribbon merchandise. #bcsm | |
Alicia C. Staley @stales RT @kathygori: @stales Pinkwashing and the constant marketing of everything breast cancer plus the bullshit false security it’s marketed under as “prevention” when it’s really about Mets research. That’s the name of the game! #bcsm | |
@MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @stage4kelly: @stales T1. Fight the pinkwashing. Educate how slapping pink ribbons on crap rarely does anything (except for those few products that donate substantially to orgs like @BCRFcure) #bcsm | |
patty spears @paspears88 @DrSGraff @stales Clinical Trials are changing (eligibility broadening, PROs, placebo, blinding).... lots of new guidances.... we need to get the information out... it is important... love this idea for an October Message #bcsm | |
Dr. Kelly Shanahan @stage4kelly @jumauba Hi Julia!! #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @paspears88: @DrSGraff @stales Clinical Trials are changing (eligibility broadening, PROs, placebo, blinding).... lots of new guidances.... we need to get the information out... it is important... love this idea for an October Message #bcsm | |
Jamie Holloway, PhD @jamienholloway @stage4kelly @jumauba Hi Kelly and Julia! I missed you popping in, Julia! Good to see you both! #bcsm | |
swaggsheila @swaggsheila1 @double_whammied AA women have a higher mortality rate of breast cancer than any other race. #BCSM | |
Social✽Fly @socflyny @stales Especially those who continue to use ingredients that are known phytoestrogens (@LeanCuisine @WeightWatchers #ProgressoSoup), or on products that are known risk factors (alcohol) ... you get the drift. #bcsm | |
Dr. Kelly Shanahan @stage4kelly @Nikhilwagle You’ve been a little busy. #bcsm | |
swaggsheila @swaggsheila1 @stales Racial disparities #BCSM | |
Alicia C. Staley @stales RT @swaggsheila1 @double_whammied AA women have a higher mortality rate of breast cancer than any other race. #BCSM | |
Shanna Marzilli @Shanna_Marzilli On the topic of cause marketing, trying to bring the corporations under the tent. Some will want to tell the right story of equipped with why and how. There’s an opportunity for corps to lead here. #BCSM | |
Alicia C. Staley @stales @swaggsheila1 @double_whammied We need to discuss that. #bcsm | |
Julia Maués @itsnot_pink @stales Oh Pinktober! So dreaded by the MBC community. I’m sure there are good things that come from it, but maybe there could be a website to keep track of all the pink stuff and where the money goes... #bcsm | |
Dr. Kelly Shanahan @stage4kelly @itsthebunk @stales Happy birthday Liza and I’ll be sending easy surgery thoughts to you Friday #bcsm | |
Alicia C. Staley @stales Yes - we need to discuss! Thank you for bringing this up! RT @swaggsheila1 @stales Racial disparities #BCSM | |
Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @jumauba Hi Julia!! #bcsm | |
patty spears @paspears88 Pink is not the enemy .... CANCER is the enemy. With all the misinformation out there, educating the public with the facts will make more of an impact. Just my 2 cents... #cancerkills #pinkisjustacolor #clinicaltrials #bcsm | |
swaggsheila @swaggsheila1 @stales @double_whammied 42 percent higher. #bcsm | |
Alicia C. Staley @stales RT @Shanna_Marzilli: On the topic of cause marketing, trying to bring the corporations under the tent. Some will want to tell the right story of equipped with why and how. There’s an opportunity for corps to lead here. #BCSM | |
Alicia C. Staley @stales RT @DrSGraff: @stales I would love to see the lay-public better understand clinical trials. Interpretation vs headlines; but also value of participating at all levels of (cancer) care. #bcsm | |
Kathy Gori @kathygori @stage4kelly @stales @BCRFcure Hey Kelly 👋🏻 #bcsm | |
Alicia C. Staley @stales RT @paspears88: @DrSGraff @stales Clinical Trials are changing (eligibility broadening, PROs, placebo, blinding).... lots of new guidances.... we need to get the information out... it is important... love this idea for an October Message #bcsm | |
Social✽Fly @socflyny @stales @LeanCuisine @WeightWatchers And don't get me started on the #breastcancercoin which appears to have ties to @BCRFcure -- they of all BC organizations know better. ZERO transparency on the breakdown on what % of purchase price is going to the organization or to research. #bcsm | |
Alicia C. Staley @stales RT @swaggsheila1: @stales @double_whammied 42 percent higher. #bcsm | |
Alicia C. Staley @stales RT @socflyny: @stales @LeanCuisine @WeightWatchers And don't get me started on the #breastcancercoin which appears to have ties to @BCRFcure -- they of all BC organizations know better. ZERO transparency on the breakdown on what % of purchase price is going to the organization or to research. #bcsm | |
Shanna Marzilli @Shanna_Marzilli RT @swaggsheila1: @double_whammied AA women have a higher mortality rate of breast cancer than any other race. #BCSM | |
Dr. Kelly Shanahan @stage4kelly @kathygori @stales @BCRFcure Hello from east of you - no smoke and gorgeous weather here in Tahoe #bcsm | |
Dr. Kelly Shanahan @stage4kelly @socflyny @stales @LeanCuisine @WeightWatchers @BCRFcure We all need to #ThinkBeforeYouPink #bcsm | |
Danielle Karber @danielle_dk Could someonecome up with a infographic or something that we could post in comments or email to EVERY company marketing the pink ribbon? If everyone did the exact same thing we could possibly make some impact... #BCSM | |
Alicia C. Staley @stales T2 coming up #bcsm | |
patty spears @paspears88 @stales @swaggsheila1 @double_whammied And AA women are underrepresented in clinical trials - need to address all issues around health disparities in breast cancer #bcsm | |
Social✽Fly @socflyny @Shanna_Marzilli I'd love to find a role leading this effort for a corporate philanthropy team. No one is doing it right. #bcsm | |
Alicia C. Staley @stales T2: What's one collective action we can take as a community to enhance the awareness message next month? #bcsm | |
Kathy Gori @kathygori @swaggsheila1 @stales @double_whammied And more TNBC in AA women also which is harder to treat . The first time I was dx’ed the only women in my support group that had triple neg cancer besides myself were AA women. #bcsm | |
Alicia C. Staley @stales RT @stage4kelly: @socflyny @stales @LeanCuisine @WeightWatchers @BCRFcure We all need to #ThinkBeforeYouPink #bcsm | |
Alicia C. Staley @stales RT @kathygori: @swaggsheila1 @stales @double_whammied And more TNBC in AA women also which is harder to treat . The first time I was dx’ed the only women in my support group that had triple neg cancer besides myself were AA women. #bcsm | |
swaggsheila @swaggsheila1 @kathygori @stales @double_whammied Yes #BCSM | |
Alicia C. Staley @stales RT @paspears88: @stales @swaggsheila1 @double_whammied And AA women are underrepresented in clinical trials - need to address all issues around health disparities in breast cancer #bcsm | |
Dr. Kelly Shanahan @stage4kelly @stales T2. Emphasize that we’re plenty aware of BC and we need ACTION: more research, especially for killer MBC #bcsm | |
Social✽Fly @socflyny @kathygori @stales I'd like to eliminate "prevention" from the discussion >>> Risk Reduction! #bcsm | |
Danielle Karber @danielle_dk T2: Same idea as my previous comment. Someone create an infographic or something that we can post in comments, or email to companies about pinkwashing, etc. But we all need to have the same message.#BCSM | |
Dr. Deanna Attai @DrAttai @paspears88 There are many patients (and families) who wear pink like a badge of courage for what they went thru #bcsm | |
Julia Maués @itsnot_pink @paspears88 I agree is not the enemy. But if so much money is given to pink campaigns marketed as saving lives, we should make sure people are aware where their money is actually going. #bcsm | |
Social✽Fly @socflyny @danielle_dk An edgier campaign is needed. "Nice" is how BC became the "good" cancer. 😉 #bcsm | |
Dr. Kelly Shanahan @stage4kelly @stales I’d love to see the name changed from BC Awareness Month to BC ACTION Month!! Could be everything from corporate $ for research to driving a neighbor to chemo to calling elected reps. #bcsm | |
Barbara Jacoby @letlifehappen RT @BreastAdvocate: "The tattooing was like therapy, a surgery for the soul." #BreastCancer #bcsm https://t.co/vWVUYsayde | |
Alicia C. Staley @stales @stage4kelly We can make that change, starting with #BCSM !!! | |
Double Whammy @double_whammied RT @kathygori: @swaggsheila1 @stales @double_whammied And more TNBC in AA women also which is harder to treat . The first time I was dx’ed the only women in my support group that had triple neg cancer besides myself were AA women. #bcsm | |
Social✽Fly @socflyny @stage4kelly @stales @LeanCuisine @WeightWatchers @BCRFcure Someone started that initiative a few years ago, but haven't seen much from it in recent years. #bcsm | |
Dr. Kelly Shanahan @stage4kelly @paspears88 Pink may not be the enemy, but it can breed complacency if everyone thinks BC is pretty and pink and easy and of course no one can die from something wrapped in fluff. #bcsm | |
Social✽Fly @socflyny @danielle_dk There are many people in this community that share the frustration -- and unified front (MBC and non-MBC) would be very powerful. #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff @stales A simple thing would be a #bcsm messaging calendar for the month—facts about trials, disparities, stages, risks, worthwhile charities that the collective voice of #bcsm could tweet. | |
Dr. Kelly Shanahan @stage4kelly @socflyny @stales @LeanCuisine @WeightWatchers @BCRFcure It was Breast Cancer Action. #bcsm | |
Alicia C. Staley @stales RT @DrSGraff: @stales A simple thing would be a #bcsm messaging calendar for the month—facts about trials, disparities, stages, risks, worthwhile charities that the collective voice of #bcsm could tweet. | |
Kathy Gori @kathygori @DrAttai @paspears88 I associate the pink stuff with the idea of a false sense of security that comes along with it. The thing that annoys me is what I see as a certain attitude about BC that one gets through it and then it’s gone . No talk of recurrence, which is why we get the “good cancer” #bcsm | |
Dr. Kelly Shanahan @stage4kelly @DrSGraff @stales We in the mets community have shared 31 facts about MBC - Info from @ihatebreastcanc and graphic by Andrea Parker, who is dying as I type. #bcsm | |
Dennis Keim @denniskeim Seem to me that focusing on the fact that an early stage diagnosis is no guarantee of a cancer-free life. #bcsm | |
Alicia C. Staley @stales Good point RT @denniskeim Seem to me that focusing on the fact that an early stage diagnosis is no guarantee of a cancer-free life. #bcsm | |
Enlightening Results 💡 @GraceCordovano @itsthebunk @stales Sending you birthday love Liza & wishing you the best on Fri. #bcsm | |
Terri Coutee @6state RT @malefitness: Me? If you are a guy with a BRCA mutation, or a family history of cancers, be on the lookout for breast and prostate cancers. And spread this word to family and friends. ##bcsm | |
Alicia C. Staley @stales RT @stage4kelly: @DrSGraff @stales We in the mets community have shared 31 facts about MBC - Info from @ihatebreastcanc and graphic by Andrea Parker, who is dying as I type. #bcsm | |
Terri Coutee @6state RT @double_whammied: It's almost Pinktober, aka #breastcancer awareness month. What do YOU want women (and men) to be aware of when it comes to this disease? #bcsm #amsm #bccww Me? It's not always a lump. Mamms arent perfect. Dense breast tissue ups your risk in 2 ways; know your density! | |
Kathy Gori @kathygori @denniskeim Yes, this! #bcsm | |
Social✽Fly @socflyny @stage4kelly @stales @LeanCuisine @WeightWatchers @BCRFcure You may be right. I thought they had a different hashtag. Either way, it seems the outrage has really tempered in the past few years. #bcsm | |
Enlightening Results 💡 @GraceCordovano Sliding in ever so late...hello #bcsm. Just walking in | |
Bingbing Li MD PhD @BingbingXLi RT @stales: T1: T1: Tell us, what do you want #BCSM to do this October? What topics do you want us to address and offer solutions for? | |
Dr. Kelly Shanahan @stage4kelly @DrSGraff @stales @ihatebreastcanc Here’s an example #bcsm https://t.co/TboePyiAl7 | |
Inspire @InspireIsHealth RT @kathygori: @DrAttai @paspears88 I associate the pink stuff with the idea of a false sense of security that comes along with it. The thing that annoys me is what I see as a certain attitude about BC that one gets through it and then it’s gone . No talk of recurrence, which is why we get the “good cancer” #bcsm | |
Enlightening Results 💡 @GraceCordovano RT @stage4kelly: @stales T2. Emphasize that we’re plenty aware of BC and we need ACTION: @stales T2. Emphasize that we’re plenty aware of BC and we need ACTION: more research, especially for killer MBC #bcsm | |
patty spears @paspears88 @stales MBC Alliance had a twitter toolkit with 'facts about MBC' memes.. .. I would like more active messaging about clinical trials - ask about clinical trials - Did you know - what you can do - see if we can affect accrual somehow...or at least those asking about trials #bcsm | |
Alicia C. Staley @stales @GraceCordovano hi there! #bcsm | |
Alicia C. Staley @stales @paspears88 this is great info, and a great suggestion! #bcsm | |
Enlightening Results 💡 @GraceCordovano @stales T2)Continue to share your patient expertise & life stories. Some of the most profound messages are in your lives experiences. No better awareness, inspiration, & reality check. #bcsm | |
Enlightening Results 💡 @GraceCordovano RT @stage4kelly: @stales T1. Fight the pinkwashing. Educate how slapping pink ribbons on crap rarely does anything (except for those few products that donate substantially to orgs like @BCRFcure) #bcsm | |
Enlightening Results 💡 @GraceCordovano RT @DrSGraff: @stales I would love to see the lay-public better understand clinical trials. Interpretation vs headlines; but also value of participating at all levels of (cancer) care. #bcsm | |
Enlightening Results 💡 @GraceCordovano @stales Hi Alicia! Great discussion. #bcsm | |
Dr. Kelly Shanahan @stage4kelly @paspears88 @stales We definitely need more people enrolling, which will be a challenge until more trials come to the patient rather than making the patient travel great distance to the trial center. Most of us don’t live in cities with comprehensive cancer centers. #bcsm | |
Shanna Marzilli @Shanna_Marzilli Remember the cardinal rule of communications - know our audience. I think we forget that most people we want to reach aren’t as knowledgeable and passionate . We need to start where they are + make our message compelling and simple. #bcsm | |
Danielle Karber @danielle_dk As we’re chatting, my husband handed me a catalog... #BCSM https://t.co/ezF0qdovWv | |
Alicia C. Staley @stales RT @Shanna_Marzilli: Remember the cardinal rule of communications - know our audience. I think we forget that most people we want to reach aren’t as knowledgeable and passionate . We need to start where they are + make our message compelling and simple. #bcsm | |
Alicia C. Staley @stales @danielle_dk oh wow #bcsm | |
Dr. Kelly Shanahan @stage4kelly @danielle_dk Love this in that they are transparent about how much is donated and where it goes - and @LivingBeyondBC is a worthy organization. #bcsm | |
patty spears @paspears88 @kathygori @DrAttai I think most people just like pink ... not everyone thinks the same thing about the color pink, means different things to different people... better to focus and put energy into getting information out to dispel myths not to attack the color pink IMHO #bcsm | |
Alicia C. Staley @stales RT @stage4kelly: @danielle_dk Love this in that they are transparent about how much is donated and where it goes - and @LivingBeyondBC is a worthy organization. #bcsm | |
Hillary (Stires) Andrews, PhD @HillStirSci RT @stage4kelly: @DrSGraff @stales @ihatebreastcanc Here’s an example #bcsm https://t.co/TboePyiAl7 | |
Alicia C. Staley @stales Yikes! Time is flying tonight. Last thoughts for this week's chat? #bcsm | |
SPECFORD59 @SPECFORD59 @stales @denniskeim #BCSM #bullseye DrBernieFisher and thousands of brave trial participants have proven years ago that breast cancer is a systemic disease. Tumors 1cm or less have a significant chance of showing up as metastatic disease 10-25 years later. | |
Jamie Holloway, PhD @jamienholloway Agree. Transparency is important, and so is sending the money to a great organization. #bcsm | |
Alicia C. Staley @stales I hope everyone is hanging in there! #bcsm | |
Alicia C. Staley @stales RT @jamienholloway Agree. Transparency is important, and so is sending the money to a great organization. #bcsm | |
Dennis Keim @denniskeim I always check Charity Navigator before donating money to nonprofits. https://t.co/z2pqhLqwqs #bcsm | |
Dr. Kelly Shanahan @stage4kelly @stales I missed you guys while I was traveling and I’m glad to be here tonight - and I’ll need all of you to survive Pinktober!! #bcsm | |
Jamie Holloway, PhD @jamienholloway Last thoughts: When people are already aware, then awareness campaigns without action are empty. #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff @jumauba @stales That’s a great example: you can look for trials “too late” as many start to exclude “heavily pretreated” patients with 3 or more prior lines of therapy. #bcsm | |
Hillary (Stires) Andrews, PhD @HillStirSci RT @denniskeim: I always check Charity Navigator before donating money to nonprofits. https://t.co/z2pqhLqwqs #bcsm | |
Dr. Kelly Shanahan @stage4kelly @denniskeim .@metavivor just got a 4**** rating from them!!! #bcsm | |
SPECFORD59 @SPECFORD59 @socflyny @kathygori @stales #BCSM #bullseye | |
patty spears @paspears88 @stage4kelly @stales Agree... we need more patients at the table to change this! Talking about what needs to be done may make more patients aware and want to be involved to make decisions to drive some of the changes on the horizon..I see some changes I like...... I'm optimistic... #bcsm | |
Roberta A Albany @raalbany RT @swaggsheila1: @double_whammied AA women have a higher mortality rate of breast cancer than any other race. #BCSM | |
Alicia C. Staley @stales yes! RT @jamienholloway Last thoughts: When people are already aware, then awareness campaigns without action are empty. #bcsm | |
Dennis Keim @denniskeim @stage4kelly @metavivor Yep! METAvivor is looking good. https://t.co/xdhIVbRpRu #bcsm | |
Alicia C. Staley @stales @stage4kelly right here for you!! #bcsm | |
Alicia C. Staley @stales RT @paspears88: @stage4kelly @stales Agree... we need more patients at the table to change this! Talking about what needs to be done may make more patients aware and want to be involved to make decisions to drive some of the changes on the horizon..I see some changes I like...... I'm optimistic... #bcsm | |
Abigail Johnston, Esq (she/her) @AMJohnston1315 RT @jamienholloway: Last thoughts: Last thoughts: When people are already aware, then awareness campaigns without action are empty. #bcsm | |
Hillary (Stires) Andrews, PhD @HillStirSci @jamienholloway And when pink (awareness) is necessary, find ways to incorporate action and advocacy. 😉😉 #BCSM | |
Shanna Marzilli @Shanna_Marzilli RT @jamienholloway: Last thoughts: Last thoughts: When people are already aware, then awareness campaigns without action are empty. #bcsm | |
Dr. Kelly Shanahan @stage4kelly @stales Of course between DOD grant review, @metavivor StageIV Stampede (both in DC), and speaking at the @KomenPugetSound NW mets conference it’ll be November before I know it! #bcsm | |
When BC Happens @whenBChappens RT @double_whammied: It's almost Pinktober, aka #breastcancer awareness month. What do YOU want women (and men) to be aware of when it comes to this disease? #bcsm #amsm #bccww Me? It's not always a lump. Mamms arent perfect. Dense breast tissue ups your risk in 2 ways; know your density! | |
Dennis Keim @denniskeim Have a great week everyone. Always good to keep in touch and share things. :) #bcsm | |
Roberta A Albany @raalbany RT @paspears88: @stales @swaggsheila1 @double_whammied And AA women are underrepresented in clinical trials - need to address all issues around health disparities in breast cancer #bcsm | |
Jamie Holloway, PhD @jamienholloway Last thoughts: I don't love the pink. But it's a useful tool because people know what it represents. So maybe we use it to our advantage. Use the pink to teach or support research. #bcsm | |
Minas Chrysopoulo MD FACS @drchrysopoulo @BCsurgstories @BreastAdvocate My experience = very favorable. Natural results w/ NO breast animation deformity (abnormal breast movement w/ pec muscle use). #FatGrafting routinely used to camouflage implant / rippling since less tissue covering the implant (vs placing under muscle) #BreastReconstruction #bcsm | |
swaggsheila @swaggsheila1 @stales Thank you #BCSM | |
Dr. Kelly Shanahan @stage4kelly @danielle_dk @DrSGraff @stales @ihatebreastcanc I’ll be posting again this October - and I’m going to try to also post a ‘trial-a-day” too #bcsm | |
Stephanie Graff, MD, FACP, FASCO @DrSGraff Last thought: October is a great month to pen a letter or drop a call to your elected officials about how insurance, family leave, medication costs, confidentiality, etc impacted YOU as a patient. Tell your story = make a difference. #bcsm | |
Alicia C. Staley @stales Thank you everyone! #bcsm | |
Dr. Susan Love @DrSusanLove RT @denniskeim: Seem to me that focusing on the fact that an early stage diagnosis is no guarantee of a cancer-free life. #bcsm | |
Alicia C. Staley @stales @swaggsheila1 Thank you!! #bcsm | |
Alicia C. Staley @stales Have a great night everyone! #bcsm | |
Roberta A Albany @raalbany RT @LurieCancer: Thank you for helping Dr. Horiuchi turn discoveries from his lab into novel therapies for patients with #breastcancer. #bcsm #lynnsagescholars | |
Hillary (Stires) Andrews, PhD @HillStirSci RT @jamienholloway: Last thoughts: Last thoughts: I don't love the pink. But it's a useful tool because people know what it represents. So maybe we use it to our advantage. Use the pink to teach or support research. #bcsm | |
Dr. Kelly Shanahan @stage4kelly A great action to take during October. #bcsm | |
Shaalan Beg MD MBA FASCO @ShaalanBeg RT @DrSGraff: Last thought: Last thought: October is a great month to pen a letter or drop a call to your elected officials about how insurance, family leave, medication costs, confidentiality, etc impacted YOU as a patient. Tell your story = make a difference. #bcsm | |
Dr. Kelly Shanahan @stage4kelly Have a great week everyone. Hope the Carolinas dry out! #bcsm | |
Kathy Gori @kathygori @paspears88 @DrAttai I never liked pink even before I had bc...my parents for some reason only gave me blue stuff.. my sister got all the pink stuff...actually I like green #bcsm | |
Kathy Gori @kathygori RT @stage4kelly: A great action to take during October. #bcsm | |
Kathy Gori @kathygori Good night all! stay safe, warm, or cool, and dry til next week #bcsm | |
Jamie Holloway, PhD @jamienholloway Night all, sleep well! #bcsm | |
Sarah @2013BCSarah RT @DrSGraff: Last thought: Last thought: October is a great month to pen a letter or drop a call to your elected officials about how insurance, family leave, medication costs, confidentiality, etc impacted YOU as a patient. Tell your story = make a difference. #bcsm | |
Sarah @2013BCSarah RT @stage4kelly: @stales I’d love to see the name changed from BC Awareness Month to BC ACTION Month!! Could be everything from corporate $ for research to driving a neighbor to chemo to calling elected reps. #bcsm |
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