#BTSM Transcript
Healthcare social media transcript of the #BTSM hashtag.
– ().
See #BTSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Learn about the different types of brain and other nervous system cancers that affect children and adults by watching our Did You Know? video: https://t.co/3YkHMI26en #BTSM https://t.co/RxNcQNTmOl |
 | Sean Sachdev, MD @SeanSachdevMD @BTSMchat Hi all, happy to join you all tonight!! #btsm |
 | Wes Wilson @WesleyWilson @SeanSachdevMD @BTSMchat Thank for taking the time #BTSM |
 | I Live Now Rachel 💎 @KickBrainTumors Hello,everyone! 🧠👩🏽💻I will be listening in ~ Rachel #BTSM |
 | Liz Salmi @TheLizArmy @SeanSachdevMD @BTSMchat Woo hoo! Tonight's going to be a great chat. Thanks for joining us @SeanSachdevMD! #btsm |
 | OurBrainBank @ourbrainbank Join the monthly brain tumor chat #btsm starting now, with@SeanSachdev, leading radiation oncologist #Glioblastoma #patientpower |
 | planBEVents @thisloveilove Listening #BTSM |
 | Lisa O'Leary @lisaoleary524 Hi all, Lisa here, former care partner to my late husband Patrick who passed from complications of #GBM in 7/2015. I'm proud to be an advocate for the BT community. #BTSM |
 | Erica Robinson @eleighrobs @BTSMchat Hello everyone! Obi Wan Erica here. I'm from Boston and an @NBTStweets advocate, team captain, patient/survivor. #BTSM |
| Liz Salmi @TheLizArmy @BTSMchat Liz here from Sacramento, CA. Living with grade 2 astrocytoma. 2 surgeries. 24 months Temodar. I have never had radiation so I am really interested in tonight's topic! #BTSM |
| Wes Wilson @WesleyWilson Hey everyone, just a warning about all the brain #tumour tweets going to be coming out of my account in the next hour as I do the monty #BTSM , lots of cool #radiotherapy topics today if you want to join. |
 | Lurie Cancer Center @LurieCancer RT @TheLizArmy: @SeanSachdevMD @BTSMchat Woo hoo! Tonight's going to be a great chat. Thanks for joining us @SeanSachdevMD! #btsm |
 | St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat Hi! Molly. 38. Metro Detroit. Diagnosed October 2016 w/(Grade III) Anaplastic Astrocytoma. Radiation/Chemo Nov-Dec ‘16, chemo Jan-Dec ‘17. Currently stable. Love my @HenryFordNeuro folks. Hope @SalimSiddiquiMD sees chat today! #BTSM |
 | Salim Siddiqui MD PhD @SalimSiddiquiMD Listening #BTSM |
| OurBrainBank @ourbrainbank @BTSMchat Evening! It's @jessicamorris from @ourbrainbank here. Keen to take part in an off-overlooked aspect of brain tumor treatment #btsm |
 | Sabin Motwani @sabinbmotwanimd Sabin Motwani, radiation oncologist, here to support my friend and #radonc colleague @SeanSachdevMD #BTSM #radonc |
 | I CANcer @hawktober4bt @BTSMchat NFP raising awareness of the disease and the awesome folks fighting it. Here to listen & soak up inspiration. #btsm |
| Liz Salmi @TheLizArmy @thisloveilove Thanks for joining us. Jump in anytime. #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @SalimSiddiquiMD (Yay! #BTSM) |
| Liz Salmi @TheLizArmy @lisaoleary524 Great to see you Lisa! Will you be at Head to the Hill? #BTSM |
 | Claire Snyman @clairehsnyman @BTSMchat Claire signing in from Vancouver 🇨🇦- 7 years post #braintumor surgery #btsm |
| Wes Wilson @WesleyWilson Morning from Australia #BTSM crew, joining in from Perth. Cancer researcher with previous work in both childhood brain tumour epigenetics and brain tumour radiotherapy treatment with adjunct therapy. |
| Lisa O'Leary @lisaoleary524 @TheLizArmy I will. Still have to buy my ticket, but I'll definitely be there. 3rd year in a row! #BTSM |
| Erica Robinson @eleighrobs @TheLizArmy @BTSMchat I haven't had radiation either, although it is typically recommended with a Grade 2 meningioma. I weighed my options and decided against it. 8 years later...#BTSM |
 | KateWhy @KattyBatty1 @BTSMchat #BTSM. Parent of a teen living with a juvenile pilocytic astrocytoma. Lots to decide lately so very interested in this topic. Thx. |
| St_Molly_AgentofChaos @Lifeiskitsch @Marillenbluete @SeanSachdevMD @BTSMchat Hi! You guys! It’s my @ImermanAngels mentee!!! 💫🥰🥰🥰 #BTSM |
 | Guy Lipof - גיא @Project2Program @TheLizArmy @BTSMchat I'm Guy, partner to Susie who is a longterm brain cancer survivor (G3 OA 1999, GBM IDH1 2013) via @MDABrainSpine. I also work for @IBMWatsonHealth specifically focusing on #AI solutions related to Oncology and Genomics. #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @lisaoleary524 @TheLizArmy Yes!!!! I am so excited!!! #BTSM |
 | Alejandro RDZ @AlexRadioneuro RT @ErinMurphyMD: Blessed to work with fantastic colleagues @SamuelChaoMD @DrJohnSuh @BrainTumorDoc who make these trials successful and take great care of our patients #CleClinicCancer |
| Liz Salmi @TheLizArmy @WesleyWilson Welcome, Wes! #btsm |
| Erica Robinson @eleighrobs @adamhayden @BTSMchat @NBTStweets 😂 Thank you! No Yoda emoji for you, unfortunately. #BTSM |
 | Victoria @V_BBurns @BTSMchat Victoria here! Diagnosed with a PiloAstrocyctoma in 2009 (grade 1.5-the half being bc of some interesting pathology). No treatment, just craniotomy (total resection) and now I am in that followup life of MRIs forever at @NIHBrainTumor (currently every 9 months) #BTSM |
 | Kendra K @KMJtravels @BTSMchat Kendra in Seattle, #Glioblastoma dx in June 2017. Solo parenting tonight so participation may be spotty 🤪 #btsm |
| Lisa O'Leary @lisaoleary524 @Lifeiskitsch @TheLizArmy Are you coming this year @Lifeiskitsch? #BTSM |
| I Live Now Rachel 💎 @KickBrainTumors #BTSM All the way LIVE 🙌🏾 |
| Lisa O'Leary @lisaoleary524 @BTSMchat @SeanSachdevMD We are all truly fortunate to have @SeanSachdevMD join us and be willing to answer questions. A brilliant physician and a great human. Thanks, Dr. Sachdev! #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @lisaoleary524 @TheLizArmy Yes! And @tiffnotes & other folks from Henry Ford. Can’t wait! #BTSM |
 | mary @zebrafinch Brain trauma chat. |
| OurBrainBank @ourbrainbank @BTSMchat Hoping to! One year free of treatment MRI due this week. #FingersCrossed #btsm |
| Lisa O'Leary @lisaoleary524 @Lifeiskitsch @TheLizArmy @tiffnotes Looking forward to seeing you again! #BTSM |
| Liz Salmi @TheLizArmy @KattyBatty1 @BTSMchat So glad you are here, Katty! #btsm |
 | Thomas J Reid MD PhD @thomasreid3md RT @NCICancerStats: Learn about the different types of brain and other nervous system cancers that affect children and adults by watching our Did You Know? video: https://t.co/3YkHMI26en #BTSM https://t.co/RxNcQNTmOl |
| Liz Salmi @TheLizArmy @adamhayden THIS IS THE BEST THING EVER 🤣🤣🤣🤣 #BTSM |
| Lisa O'Leary @lisaoleary524 T1: During my husband's tx, radiation wasn't really discussed as an option. It was a necessity. Bc he suffered from postictal psychosis and radiation can cause increased seizure activity, he had to spend his entire radiation course as inpatient. So hard on both of us. #BTSM |
 | Emily McIntosh @mcintose @BTSMchat Emily (from Ontario, Canada) - had gr 3 anaplastic astrocytoma removed almost 2 years ago. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat Hi all! hoping I can shed some light on modern radiotherapy for brain tumors and why it's an important and powerful tool against brain malignancies – whether for primary tumors (that arise from the brain) such as gliomas as well as metastatic lesions that come from outside #btsm |
| Liz Salmi @TheLizArmy @adentistforyou @BTSMchat Hey Michael: Remember to us the hashtag so everyone can see your tweets in the feed. #BTSM 👍 |
| Victoria @V_BBurns @SeanSachdevMD @BTSMchat T1: I have never had radiation and am looking forward to sitting back on this question to hear from you on modern radiotherapy! #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat T1// Radiation started so fast after diagnosis. I didn’t really make choices. I just did what they recommended? I’m sure I had a choice, but diagnosis was so overwhelming & scary... I would’ve done whatever I was told to do. Fortunately, I’m glad I had a good team. #BTSM |
| Claire Snyman @clairehsnyman Learning tonight with #BTSM. |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat T1: People wonder if radiotherapy is needed for glioblastomas or high grade gliomas. The answer is that: it has been used for decades as an effective way to improve survival and outcomes from these lesions. The stupp protocol asked the question of whether TMZ addition helps #btsm |
| Sabin Motwani @sabinbmotwanimd @SeanSachdevMD @BTSMchat Important to note that radiation treatments for primary brain tumors (that arise from the brain) are very different than treating metastatic lesions that spread to the brain. Side effects are also different. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @adentistforyou @BTSMchat T1: I will address protons ahead #btsm |
| Kendra K @KMJtravels @BTSMchat I joined a clinical trial right away for photons vs protons, got slotted into protons which was great since it was less than a mile from my house. #btsm #Glioblastoma |
| Wes Wilson @WesleyWilson T1 - is it safe? It's highly controlled and safe treatment delivered by a specialist team. In the past it was less possible for precisely targeted Tx. Modern equipment, regulations, calibration, and expert training make a much less scary modality than in the past. #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat T1 (part deuce)// Also, putting baby eggs on layaway, making choices, having so little time between getting a scary diagnosis & having to make choices... radiation/chemo... i felt like I was saying goodbye to the expected life, & howdy to a more abrupt, fast-moving kind. #BTSM |
 | Matt Cotcher @MLCotcher T1: After both initial diagnosis/surgery and recurrence/surgery, the question re: radiation was "can we safely remove enough tumor or do we need to perform radiotherapy also?" #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat ...however since decades RT has been considered standard of care for glioblastomas and most high grade gliomas. In certain scenarios we can give it in a quicker fasion (i.e. much older adults) but generally considered a standard part of treatment #btsm |
| OurBrainBank @ourbrainbank @BTSMchat T1/ Many w #GBM tell us it presented so quickly they didn't feel able to make decisions, and choices not offered/explained #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat *i had the totes “regular” radiation. #btsm |
| Wes Wilson @WesleyWilson @SeanSachdevMD @adentistforyou @BTSMchat Love me some protons!! #BTSM |
| I Live Now Rachel 💎 @KickBrainTumors T1 #BTSM There are many myths pertaining to radiation therapy, such as being the same for any brain tumor🧠 |
| OurBrainBank @ourbrainbank @BTSMchat T1/ Common q we get is how damaging is radiation? Have we had life time dose for #GBM? what if it recurs? Can we have it again? #btsm |
| Wes Wilson @WesleyWilson RT @SeanSachdevMD: @BTSMchat ...however since decades RT has been considered standard of care for glioblastomas and most high grade gliomas. In certain scenarios we can give it in a quicker fasion (i.e. much older adults) but generally considered a standard part of treatment #btsm |
| Emily McIntosh @mcintose @BTSMchat #BTSM T1 - I had a really tough time going for radiation therapy. I was able to have a supramarginal resection as a surgery...so choosing to go for chemorad "preventatively" was tough. Especially since my (non-dominant) hippocampus was in the field. |
| Erica Robinson @eleighrobs @Lifeiskitsch @BTSMchat Yes, this. I was in a similar situation.❤️#BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @sabinbmotwanimd @SeanSachdevMD @BTSMchat @GuyWithFatCat thought of you during tonight’s chat. #btsm |
| Sean Sachdev, MD @SeanSachdevMD @MLCotcher Generally in the case of certain low/lower grade gliomas if there is a complete resection that may lead to initial observation - however these are extremely carefully selected patients (for whom molecular data is now commonly examined). For GBMs, RT even in case of... #btsm |
 | Meg Louise Kelly @megankelly217 @BTSMchat Didn’t know there are different types of radiation until treatments were well underway. #btsm |
| Sabin Motwani @sabinbmotwanimd Radiation therapy has doubled survival compared to supportive care alone, since the late 70s and early 80s and that's why we (#radonc) strongly recommend radiation therapy after surgery in high grade gliomas (Grades 3 and 4) #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @MLCotcher "complete" (no tumor seen on MRI), radiotherapy is used. Here the purpose is to treat microscopic disease that cannot be seen. #btsm |
| Liz Salmi @TheLizArmy @SeanSachdevMD @BTSMchat Have you ever had anyone w/a malignant tumor refuse or significantly delay radiation treatment? #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @eleighrobs @BTSMchat I decided NOT to put baby eggs on layaway, turns out. I was 36 then. At the time, I wasn’t sure I’d survive two years & thought terminal meant I was dying soon... sooooo... I was not in a Head space to think about procreatung. Luckily, my bf supported that. #BTSM |
 | Christine Choan, PhD 🧬🧠 @preopticarea @BTSMchat We decided not to do radiation T1 #btsm because my astrocytoma is grade 2 and they put me on Temodar. They were worried about cognition! That’s really my question: how much does radiation affect cognition? My tumor is in right temporal lobe and Insular cortex |
 | #BTSM chat @BTSMchat RT @sabinbmotwanimd: Radiation therapy has doubled survival compared to supportive care alone, since the late 70s and early 80s and that's why we (#radonc) strongly recommend radiation therapy after surgery in high grade gliomas (Grades 3 and 4) #BTSM |
| Kendra K @KMJtravels @adamhayden @BTSMchat I’m a huge supporter of #clinicaltrials so it was a major bummer when I failed out of the TMZ portion of the trial. #btsm |
| Victoria @V_BBurns @BTSMchat T2: again, I’m interested and listening as a patient who has never had radiation. #BTSM https://t.co/4gnKSjjNRa |
| Sabin Motwani @sabinbmotwanimd @ourbrainbank @BTSMchat T1 Radiation therapy can sometimes be given again. It depends on many factors, including timing between 1st and 2nd time, proximity to critical structures in the brain and how much radiation has been given previously. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat T2: Radiation dose is very focally and precisely delivered commonly using 3D planning on computer with daily sophisticated setups and often image guidance/verification. Important to note that like surgery it is a "focal" treatment #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @ourbrainbank @BTSMchat Yes! Good question... can we only get radiated again if Tumor starts partying again, but in a new spot? #btsm |
| OurBrainBank @ourbrainbank @BTSMchat T2/ personally, fatigue is big problem. Is that rx or chemo (2 years temodar)? How can we tell which is main cause? @ourbrainbank App shows fatigue BIG issue #btsm |
| Christine Choan, PhD 🧬🧠 @preopticarea @BTSMchat That’s exactly my question knowing that at if my current astrocytoma starts acting up, radiation is next T2 #btsm (I became seriously allergic to Temodar) |
| #BTSM chat @BTSMchat Heads up to our friends in #BCSM #LCSM #MMSM #PANCSM #GYNCSM #AYACSM. ❤️ - #BTSM |
| Erica Robinson @eleighrobs @Lifeiskitsch @BTSMchat Glad you had the support! I had been going through fertility treatments when they discovered the tumor. #BTSM |
| Lisa O'Leary @lisaoleary524 T2 Short term Patrick experienced increased swelling and seizures which made his aphasia worse as tumor was next to the language center in his brain. Long term worsened memory issues, behavioral problems - docs couldn't say for sure it was from rad, but that was best idea #BTSM |
| Claire Snyman @clairehsnyman RT @ourbrainbank: @BTSMchat T2/ personally, fatigue is big problem. Is that rx or chemo (2 years temodar)? How can we tell which is main cause? @ourbrainbank App shows fatigue BIG issue #btsm |
| OurBrainBank @ourbrainbank @sabinbmotwanimd This fact often not known or communicated effectively. Thanks for raising. #btsm |
 | Alex Kalogeropoulos @AkalStation @Marillenbluete @Lifeiskitsch @BTSMchat My wife was originally told the same thing from her original neuro-oncologist. #btsm |
| Wes Wilson @WesleyWilson @preopticarea @BTSMchat There are a variety of factors, including what you have hinted at being location, dose, age of #PT (developing brains in infants for example are far more sensitive) , and other medication that might act as a radiosentive agent, like some #immunotherapies or DNA repair drugs #BTSM |
| Christine Choan, PhD 🧬🧠 @preopticarea RT @lisaoleary524: T2 Short term Patrick experienced increased swelling and seizures which made his aphasia worse as tumor was next to the language center in his brain. Long term worsened memory issues, behavioral problems - docs couldn't say for sure it was from rad, but that was best idea #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat So if you experience a rash on your leg it is likely not related to radiation as there is no dose circulating through the blood (like a medicine). Like a powerful and very focused flashlight it targeting a specific area. It is turned on and off so it... #btsm |
| Wes Wilson @WesleyWilson RT @sabinbmotwanimd: @SeanSachdevMD @BTSMchat Important to note that radiation treatments for primary brain tumors (that arise from the brain) are very different than treating metastatic lesions that spread to the brain. Side effects are also different. #BTSM |
| Victoria @V_BBurns @Lifeiskitsch @BTSMchat I have a good friend who had Ewing’s Sarcoma (same time I was dx with brain tumor). She had 2 recurrences and several rounds of chemo + radiation to her spine. She had to make the decision of egg retrieval at 18 (so hard) She’s in remission now 🙏🏼 #BTSM |
| Emily McIntosh @mcintose @SeanSachdevMD @BTSMchat What are the thoughts/concerns/rational for re-radiation with IMRT. Would it be last resort? Since it is so precise would risks be low if recurrence occured not in the previous margins? #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat T2// Short term? The fun hair loss & extreme tiredness for next few weeks. The long term? I don’t know what’s chemo & what’s radiation long term side effects... from rad—I’m supposed to look out for hearing loss in left ear, glaucoma in left eye... #BTSM https://t.co/QNBMhswlu9 |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat is not really "absorbed" or carried in the body. A patient does not become "radioactive" using an external beam treatment #btsm |
| Liz Salmi @TheLizArmy @preopticarea @BTSMchat You, me and @VictoriaBBurns are in the same boat (i.e., waiting for tumor growth, and then radiation is the next step). 😳 #BTSM |
| Matt Cotcher @MLCotcher T2 (1/2): I tolerated the ~7 weeks of radiation very well. The 15-16 months after treatment I was fatigued, had low stamina (for any/all activities) and generally did not feel like myself. 18 months after treatment, those side effects are gone. #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @eleighrobs @BTSMchat Apologies for typos... #BTSM |
| Guy Lipof - גיא @Project2Program @BTSMchat T1: At recurrence as GBM, 14 yrs after initial G3 OA diagnosis, whether to undertake RX treatment again. Proton was not yet an option. Still here, but with increased neurological challenges. Wonder if Proton would have been better. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat The common side effects that patients are warned about during focal radiotherapy for brain tumors is fatigue and hair-loss. #btsm |
| Emily McIntosh @mcintose @BTSMchat T2- short term - fatigue and hair loss. Long term - hoping none 🤞 #BTSM |
| Liz Salmi @TheLizArmy @Marillenbluete @BTSMchat How many days did you receive radiation? Around what day did you begin to feel tired? Could you work while receiving radiation? #BTSM |
| Meg Louise Kelly @megankelly217 @BTSMchat #btsm |
 | Lorraine Landau 🇮🇱🇨🇦 עַם יִשְׂרָאֵל חַי @369raindrops #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @mcintose @BTSMchat Recurrent gliomas are managed typically in a multi-disciplinary fashion and it all depends on multiple factors, unifocality, extent - whether there is need for surgery etc. #btsm |
| Sabin Motwani @sabinbmotwanimd T2 It's important to remember, when your radiation stops, it doesn't mean all the side effects of radiation therapy stop that day too. Some side effects can persist for several weeks after RT is over. We also usually classify side effects into 2 categories: 1/2 #BTSM |
| Matt Cotcher @MLCotcher T2: (2/2): For me, the lasting side effect(s) from radiation was a marginal decrease in functions that were impacted by my initial brain surgery (speech, swallow, hearing, etc) #btsm |
| I Live Now Rachel 💎 @KickBrainTumors T2 #BTSM Interesting! Not good. That is where research comes in... how many more cases with similar issues? |
| Victoria @V_BBurns @TheLizArmy @preopticarea @BTSMchat Yep! I was also told based on my tumor’s genetic testing that should I have a recurrence radiation would be the go-to bc my specific tumor cells/genetics wouldn’t respond to Temodar. So interesting what they can find out with tumor genetic testing (tailored treatment). #BTSM |
 | Manmeet Ahluwalia, MD, MBA, FASCO @BrainTumorDoc RT @ErinMurphyMD: Blessed to work with fantastic colleagues @SamuelChaoMD @DrJohnSuh @BrainTumorDoc who make these trials successful and take great care of our patients #CleClinicCancer |
| Sean Sachdev, MD @SeanSachdevMD @TheLizArmy @Marillenbluete @BTSMchat Typically the fatigue effects builds up after many doses, couple of weeks but is really multifactorial. Chemotherapy could be playing a role in fatigue and or simply the daily task of having to come in, wait, get checked in for treatment #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @preopticarea @BTSMchat It isn’t so bad in the doing of radiation. Kinda fun, really. But it hits you over time. The fatigue. Oooooo it hits ya good. Doozy. #btsm |
| OurBrainBank @ourbrainbank @SeanSachdevMD @BTSMchat Hey forgot about hair loss! Life as a baldy is good. I don't miss having to look after it. Hats off to hats! #btsm |
| Sabin Motwani @sabinbmotwanimd T2: 1. acute (side effects that happen while receiving treatment and within 90 days of treatment). 2. Late term side effects: These generally happen months to even possibly years after treatment. #BTSM |
| OurBrainBank @ourbrainbank @SeanSachdevMD @mcintose @BTSMchat @SeanSachdevMD do u find disparities of approaches w colleagues? Or is there generally consensus? #btsm |
| Sean Sachdev, MD @SeanSachdevMD @TheLizArmy @Marillenbluete @BTSMchat Many patients work through treatment and are able to carry out the tasks/activities they enjoyed and did before. Usually no restrictions. Of course it depends on how one is doing, tumor burden, health etc. A radiation oncologist typically evaluates once a week during RT #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @Marillenbluete @BTSMchat I remember my tiredness lasting about 2-3 weeks. Then the Temodar only stuff started & it felt like a new & different kick in the butt. But not as exhausted as the post-radiation part. #btsm |
| OurBrainBank @ourbrainbank @sabinbmotwanimd T2/ Can u expand on late term side effects and if any preventive action is possible? #btsm part. interested in #GBM |
| Erica Robinson @eleighrobs @VictoriaBBurns @BTSMchat They did. It was just such a mess because I began having symptoms when I began the fertility meds. The tumor was likely already there, but hormones do a number to your body. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @ourbrainbank @BTSMchat Sometimes hair loss can be minimal/temporary depending on where the lesion is located - i.e. a deep seated pituitary tumor with minimal dose going to the scalp/superficially. Radiation oncologist can weigh in based on anatomy. #btsm |
| Christine Choan, PhD 🧬🧠 @preopticarea @Lifeiskitsch @BTSMchat Yes i heard about the extreme fatigue! #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat T3: Radiation therapy or “radiotherapy” is a very effective tool in the arsenal against brain tumors. And now, using modern technologies, it is better planned and delivered than it could ever be before. #btsm |
| Kendra K @KMJtravels @BTSMchat Lots of hats and bandannas for the big bald spot that won’t go away... #protons #Glioblastoma #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat T3: It is a “local” or “regional” modality that is delivered very focally and has focal effects. In someways it is a little bit like surgery. #btsm |
| Lurie Cancer Center @LurieCancer RT @SeanSachdevMD: @TheLizArmy @Marillenbluete @BTSMchat Many patients work through treatment and are able to carry out the tasks/activities they enjoyed and did before. Usually no restrictions. Of course it depends on how one is doing, tumor burden, health etc. A radiation oncologist typically evaluates once a week during RT #btsm |
| Lisa O'Leary @lisaoleary524 T3 we were told that even though they resected everything visible in surgery, there would always be left over tumor cells that couldn't be seen, and the best way to combat them was with radiation since chemo not as effective vs brain tumors as it is for other cancers #BTSM |
| OurBrainBank @ourbrainbank @BTSMchat T3 In my case, was told goal of RX was to zap as many remaining #cancer cells as poss, wking synergistically w chemo. Also I took #immunotherapy at same time #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat T3: Modern cancer care towards solid tumors can be imagined as a three headed beast. You have a (1) a surgeon (who as would be expected is important in biopsy and removal of tumors) and (2) a radiation oncologist who has expertise in the physics of delivering energy/photons #btsm |
| Liz Salmi @TheLizArmy @ourbrainbank @SeanSachdevMD @BTSMchat I am literally growing my hair long right now in anticipation of one day having radiation and needing to let it all go. I feel like "now is my chance." #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat i.e. radiation to a target and finally (3) neuro-oncologist who a lot like a medical oncologist is responsible in delivering drugs/chemotherapy – literally anything that will go in via a pill or IV. All three of these specialties are present in a tumor board. #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat The other two medical specialties that are key in a tumor board are radiology (i.e. neuroradiology) and pathology (i.e. neuropathology) – who point out important features needed in picking a diagnosis which leads to a treatment path and different modalities etc. #btsm |
| Lurie Cancer Center @LurieCancer RT @SeanSachdevMD: @BTSMchat T3: @BTSMchat T3: Modern cancer care towards solid tumors can be imagined as a three headed beast. You have a (1) a surgeon (who as would be expected is important in biopsy and removal of tumors) and (2) a radiation oncologist who has expertise in the physics of delivering energy/photons #btsm |
| OurBrainBank @ourbrainbank @SeanSachdevMD @BTSMchat T3 can u expand? how does RX zap a cell? What r main improvements in RX in last decade - and what's on your wish list going forward? #btsm |
| Emily McIntosh @mcintose @SeanSachdevMD @BTSMchat Do patients commonly report a metallic or weird taste in their mouth during the protocol? Or does that just mean it is close to the olfactory region? #BTSM |
| Kendra K @KMJtravels @lisaoleary524 Ditto- “grains of sand...”. #btsm |
| Liz Salmi @TheLizArmy @SeanSachdevMD @mcintose @BTSMchat Usually "recurrent gliomas" recur as a higher grade. My grade 2 astro recurred and was still a grade 2--but was treated more aggressively after recurrence, but with no radiation. Am I still considered "recurrent?" I feel like I need language to understand who I even am. #BTSM |
| Christine Choan, PhD 🧬🧠 @preopticarea RT @sabinbmotwanimd: @ourbrainbank @BTSMchat T1 Radiation therapy can sometimes be given again. It depends on many factors, including timing between 1st and 2nd time, proximity to critical structures in the brain and how much radiation has been given previously. #BTSM |
| OurBrainBank @ourbrainbank @Marillenbluete @BTSMchat T3 Same! #btsm |
| Sabin Motwani @sabinbmotwanimd @ourbrainbank Late term side effects also depend on where the lesion is located and how much dose was received to normal structures. #BTSM |
| Guy Lipof - גיא @Project2Program @BTSMchat T2/ Side effects from 1st RX were hair loss (ST/ LT), fatigue and skin irritation; from 2nd RX, more hair loss (ST/ LT), more fatigue, loss of hearing in one ear (LT) and weakened eye muscles/ strabismus in one eye (LT). Eye issue improved, see: https://t.co/lfmzIanDds #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat T3// I don’t remember “goals.” I remember just kind of learning that this was the next stage of dealing with a scary cancer diagnosis. It was getting at the newbie rogue astrocyte hatchlings... Right? Science. 🤷♀️ #BTSM |
| Lisa O'Leary @lisaoleary524 @mcintose @SeanSachdevMD @BTSMchat Oddly enough I had this side effect from Topamax, an anti-epileptic - I was rx'd for migraines - it's a common side effect from what I found out. Just curious if you take that. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat "focal" can be different for different lesions given purpose of treatment. In cases of metastatic lesions we are often so focused as to simply treat what is seen with a tool like the GammaKnife (or "Radiosurgery" in general) 1/2 #btsm |
| Erica Robinson @eleighrobs @VictoriaBBurns @BTSMchat The way I look at it now is that everything that I thought was working against me, was actually trying to save me. #BTSM |
| Sabin Motwani @sabinbmotwanimd @ourbrainbank Eg hearing loss, or decreased hearing is a late side effect if high dose was given to the cochlea to treat a lesion nearby. However it does NOT happen in everyone. All individualized so difficult to generalize. #BTSM |
| Wes Wilson @WesleyWilson @SeanSachdevMD @BTSMchat While I am certainly not a #RadOnc, and wouldn't claim to be as experienced. The dose planning I do for stereotactic #radiotherapy certainly feels far more precise and "surgical" strike than surgery feels sometimes. #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat for gliomas the concern is microscopic infiltrating extent of tumor away from the tumor (even in the setting of a "complete" resection - no tumor seen). Here the goal is to treat up to a few cm away from the tumor. Here typically delivered in little daily drops of energy #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch T3// oh! You guys! During radiation (like in the machine) I started getting this weird experience of tasting AND smelling at same time— but like it was a totally unique feeling allby itself. Kind of cool!!! Anyone else? #BTSM |
| Liz Salmi @TheLizArmy @adamhayden @SeanSachdevMD @BTSMchat We should host a photo contest of which hip hop group best represents the "old school @NIH crew." #BTSM |
| Christine Choan, PhD 🧬🧠 @preopticarea @lisaoleary524 They really contemplated doing radiation because my surgery resected only half of the tumor! But with grade 2, we decided to wait! #btsm |
| #BTSM chat @BTSMchat RT @WesleyWilson: @SeanSachdevMD @BTSMchat While I am certainly not a #RadOnc, and wouldn't claim to be as experienced. The dose planning I do for stereotactic #radiotherapy certainly feels far more precise and "surgical" strike than surgery feels sometimes. #btsm |
| Emily McIntosh @mcintose @lisaoleary524 @SeanSachdevMD @BTSMchat Nope! Only tasted it for about 5 seconds during the rad session, but every session. Only taste aversion was water. If i'm being super technical, instead of metal it tasted the way ozone smells. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat Treatment can be only several minutes per day. Typically the process of checking in, getting positioned perfectly using lasers etc. and checking out of the dept may take 30-40 minutes #btsm |
| Wes Wilson @WesleyWilson RT @SeanSachdevMD: @BTSMchat for gliomas the concern is microscopic infiltrating extent of tumor away from the tumor (even in the setting of a "complete" resection - no tumor seen). Here the goal is to treat up to a few cm away from the tumor. Here typically delivered in little daily drops of energy #btsm |
| Lisa O'Leary @lisaoleary524 @mcintose @SeanSachdevMD @BTSMchat So interesting. The topamax caused all liquids to taste like metal and all carbonated drinks to taste flat. Bizarre. #BTSM |
| Erica Robinson @eleighrobs @adamhayden @SeanSachdevMD @BTSMchat "Slash" is not my favorite. Although, I do like @gunsnroses #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat Treatment planning requires making sure we can precisely and reproducibly recreate the exact position of the head on a daily basis. For this, in a pre-treatment separate session (1hr) we create a mask custom fit to a patient anatomy with laser marks (1/2) #btsm |
| Sabin Motwani @sabinbmotwanimd T3 The goal of any #radonc is to maximize RT to the tumor while minimizing radiation therapy to normal structures. Depending on the type of brain tumor, we can have margins (expansions around the lesion) from 2mm (sometimes even less) to 2cm+ to eradicate microscopic dz #BTSM |
| Liz Salmi @TheLizArmy @WesleyWilson @SeanSachdevMD @BTSMchat The first time I met @SeanSachdevMD (at @ASCO in 2018), he nerded out on radiation therapy and what he needs to do to map the brain... It was so cool and fascinating. It reminded me of work I did to study 3D modeling programs---except it was for science and to save lives. #BTSM https://t.co/2EIRGvXHX4 |
| Guy Lipof - גיא @Project2Program @BTSMchat I'd like to think side effects the second time around would have been lessened with Proton Beam Therapy, but re-irradiation is not standard of care with recurrence. #BTSM https://t.co/eefiN0oqJv |
| St_Molly_AgentofChaos @Lifeiskitsch @Marillenbluete Like Star Wars Jedi’s in your brain! #btsm |
| Christine Choan, PhD 🧬🧠 @preopticarea RT @TheLizArmy: @SeanSachdevMD @mcintose @BTSMchat Usually "recurrent gliomas" recur as a higher grade. My grade 2 astro recurred and was still a grade 2--but was treated more aggressively after recurrence, but with no radiation. Am I still considered "recurrent?" I feel like I need language to understand who I even am. #BTSM |
| OurBrainBank @ourbrainbank @Marillenbluete @Lifeiskitsch T3 I found envisioning super helpful. Soldiers zapping the cancer cells.... a bit like a horrible video game! Great distration. Also music - the techies would play whatever I'd lined up on my phone. #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat Once the mask is made with the laser marks, we do a scan to recreate the anatomy in 3D -then three dimensionally custom pick the angles and shapes of the beams/beamlets that will come together to treat the target, while sparing important structures. this takes time #btsm |
| Christine Choan, PhD 🧬🧠 @preopticarea RT @SeanSachdevMD: @BTSMchat for gliomas the concern is microscopic infiltrating extent of tumor away from the tumor (even in the setting of a "complete" resection - no tumor seen). Here the goal is to treat up to a few cm away from the tumor. Here typically delivered in little daily drops of energy #btsm |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat and is computer instensive #btsm |
| OurBrainBank @ourbrainbank @BTSMchat T4 this is BIG issue... because most people w #GBM get surgery ASAP (turns out, not always nec) and then RX and chemo is matter of weeks later. Little time to find info other than from treatment center. Few think they have choice or r strong enough to ask qs #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat T4// I just use #MyChart and bother my rad doc. Or I did. But now I can basically annoy anyone on Twitter. Like @SalimSiddiquiMD . 😂 #btsm |
| Sabin Motwani @sabinbmotwanimd T4. There are lots of great resources out there. I like https://t.co/xBnyecscvQ. Here's a link: https://t.co/PfGGjDKw72 Also get second opinions! Ask about clinical trials! #BTSM |
| Lisa O'Leary @lisaoleary524 T4 Patrick's radonc was amazing. So informative, so patient. Spent tons of time with us bc Patrick was inpatient the whole course. He even visited me in the hospital when I was there for back surgery after Patrick passed. #BTSM |
| Alejandro RDZ @AlexRadioneuro RT @sabinbmotwanimd: T3 The goal of any #radonc is to maximize RT to the tumor while minimizing radiation therapy to normal structures. Depending on the type of brain tumor, we can have margins (expansions around the lesion) from 2mm (sometimes even less) to 2cm+ to eradicate microscopic dz #BTSM |
| Lisa O'Leary @lisaoleary524 @clairehsnyman I was shocked. I googled the side effect first, not anticipating it to be a drug side effect, but the third article that popped up was about Topamax and I had only been on it a few days. I chose to stop, and it went away immediately. #BTSM |
| Claire Snyman @clairehsnyman RT @SeanSachdevMD: @BTSMchat T3: @BTSMchat T3: Modern cancer care towards solid tumors can be imagined as a three headed beast. You have a (1) a surgeon (who as would be expected is important in biopsy and removal of tumors) and (2) a radiation oncologist who has expertise in the physics of delivering energy/photons #btsm |
| OurBrainBank @ourbrainbank @sabinbmotwanimd T4 great - thx for the link and YES re 2nd opinions, clinical trials, off label treatments. Watch out for @ourbrainbank clinical trial survey results launching tomorrow! #btsm #patientpower |
| KateWhy @KattyBatty1 @BTSMchat T4 – live about a 25 minute drive from a proton center in NJ. They have open houses/tours -- fortunate to be able to get the info so relatively easy. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat Protons and photons have the same intent: to deliver similar doses of energy to control the tumor (here they are similar) . Protons can minimize the dose further away from the target. Like every tool they are appropriate for certain scenarios. (1/2) #btsm |
| Liz Salmi @TheLizArmy @Marillenbluete @BTSMchat I wish it was so simple! I bet there are so many unique attributes we all have that it isn't so easy. Great idea to have 3 opinions to tip the scale. #BTSM |
| Liz Salmi @TheLizArmy @lisaoleary524 Wow! What an amazing #radonc. #BTSM |
| Emily McIntosh @mcintose @BTSMchat I read "Complications of Radiotherapy" from the Handbook of Clinical Neurology. I also discussed pros/cons and QoL w/ my NS. I decided that potentially preventing a reccurence would be better to do while healthy than saving it for when I have other more complex problems #BTSM |
| Sabin Motwani @sabinbmotwanimd @SeanSachdevMD @DrMalikaSiker are great brain radiation oncologists! They are great sources of info about #radonc. There are great ones all around the country and world! I am happy to help people find one close to where they live too. #BTSM |
| Guy Lipof - גיא @Project2Program @BTSMchat T3/ The goal of RX we were told back was to try and "burn" out residual tumor and attack cancer cells that infiltrated good brain cells, i.e. arrest progression/ prevent recurrence. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @BTSMchat Especially utilized in pediatric populations. In adults especially in the setting of treating gliomas where the high dose is quite conformal and specific using technologies like IMRT, the use of protons is being studied by cancer trial groups like the NRG #btsm |
| #BTSM chat @BTSMchat RT @sabinbmotwanimd: @SeanSachdevMD @DrMalikaSiker are great brain radiation oncologists! They are great sources of info about #radonc. There are great ones all around the country and world! I am happy to help people find one close to where they live too. #BTSM |
| Erica Robinson @eleighrobs @BTSMchat 🏆 #BTSM |
| Sabin Motwani @sabinbmotwanimd T4: Use this link to find a radiation oncologist close to where you live: https://t.co/wR62SniWNA Click central nervous system tumors in the dropdown menu Information also can be found on https://t.co/nT0NWLs9CN #BTSM |
| Lisa O'Leary @lisaoleary524 Dr. Steve Braunstein @UCSFHospitals - my hero. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @VictoriaBBurns @TheLizArmy @mcintose @BTSMchat Unfortunately lower grade gliomas can "grade up" sometimes when they recur. There are no data that radiation therapy can add to this likely behavior. In fact older clinical trial data from the EORTC show that radiation does not encourage these tumors to "grade up" #btsm |
| Kendra K @KMJtravels @SeanSachdevMD @BTSMchat #Glioblastoma #hanniballecter #btsm https://t.co/6TdmxIr2YO |
| Matt Cotcher @MLCotcher T4: I, point-blank, told my neuro-oncologist that I considered the radiation oncologist, neurosurgeon, treatment modalities - everything involved to be an arrow in *her* quiver. She is at the top of the pyramid and I wanted her to feel responsible for decisions and choices.#btsm |
| OurBrainBank @ourbrainbank @BTSMchat @SeanSachdevMD Hey what's the future for RX? What r u most excited about in research, tech? What questions should patients ask of you - what would you do if you were one of us! #btsm |
| Lisa O'Leary @lisaoleary524 And to be fair - all of his doctors were wonderful. I was invited to one of their weddings and I'm still in touch with some of them many years later. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @adamhayden Our techs are amazing @LurieCancer. We are only as strong as our team's capability to push in the same direction. I am lucky to work with those that I do. They strive to amazing lengths to make pts experience better #btsm |
| OurBrainBank @ourbrainbank @adamhayden AMA Same! Clinicians - I wish i'd known from get-go I could request techs to play music loudly during the zapping... made a big difference #btsm |
| Christine Choan, PhD 🧬🧠 @preopticarea RT @SeanSachdevMD: @VictoriaBBurns @TheLizArmy @mcintose @BTSMchat Unfortunately lower grade gliomas can "grade up" sometimes when they recur. There are no data that radiation therapy can add to this likely behavior. In fact older clinical trial data from the EORTC show that radiation does not encourage these tumors to "grade up" #btsm |
| Emily McIntosh @mcintose @BTSMchat @SeanSachdevMD Can you explain the rationale for TMZ one hour before rad therapy in a tweet? No worries if it is really complex...but does alkylating cells make them more susceptible to death by rad? #BTSM |
| Guy Lipof - גיא @Project2Program @BTSMchat T4/ We look towards our medical team to guide and keep us informed. The folks @MDABrainSpine are terrific, and they are happy to coordinate with our local specialists. Can't ask for a better mashup. #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @adamhayden @LurieCancer Halloween - linear accelerator tech team from Northwestern: 😎 #btsm https://t.co/0Vxbs957ol |
| OurBrainBank @ourbrainbank @lisaoleary524 I found Joshua Silverman to be outstanding. Obv. expert, v clear communicator, great listener, outstanding comms skills. Now part of @ourbrainbank advisory cttee! #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch <aside: @SalimSiddiquiMD during end of my radiation, Dr. Shah was not available, so they sent a different doctor in... you? I think? I was scared about my diagnosis. You told me about someone with a similar diagnosis ran marathon & came in 2nd. Whatever you said? Helped. #BTSM> |
 | Alex Zafirovski @AlexZafirovski RT @SeanSachdevMD: @adamhayden @LurieCancer Halloween - linear accelerator tech team from Northwestern: @adamhayden @LurieCancer Halloween - linear accelerator tech team from Northwestern: 😎 #btsm https://t.co/0Vxbs957ol |
| Lisa O'Leary @lisaoleary524 @BTSMchat @SeanSachdevMD @NorthwesternMed @LurieCancer Thank you, Dr. Sachdev! #BTSM |
| Emily McIntosh @mcintose @BTSMchat @SeanSachdevMD @NorthwesternMed @LurieCancer Thank you @SeanSachdevMD!!! #BTSM |
 | RadLady1987 @Haleyml1987 RT @sabinbmotwanimd: Radiation therapy has doubled survival compared to supportive care alone, since the late 70s and early 80s and that's why we (#radonc) strongly recommend radiation therapy after surgery in high grade gliomas (Grades 3 and 4) #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @adentistforyou @KMJtravels @SeanSachdevMD @BTSMchat I kept mine. 🤔 I think it’s on my Instagram, too. 🤓 #btsm |
| Lisa O'Leary @lisaoleary524 Glad to chat with everyone! I hope everyone has a wonderful month and @adamhayden and I see some of you next Sunday for our virtual support group! #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @mcintose @BTSMchat Commonly utilized but not necessarily the only way. The neuro-oncologist may prefer another dosing scheme that is not necessarily inferior - i.e. same time every day. What is unique is that it is typically taken from first to last day of RT even when RT not given. #btsm |
| Salim Siddiqui MD PhD @SalimSiddiquiMD #BTSM Thank you all @BTSMchat @SeanSachdevMD @sabinbmotwanimd for this wonderful tweet chat! It was a privilege to listen this time. Looking forward to the next time. |
| St_Molly_AgentofChaos @Lifeiskitsch @BTSMchat @SeanSachdevMD @NorthwesternMed @LurieCancer Thanks, folks! 👏👏👏 #BTSM |
| Guy Lipof - גיא @Project2Program @BTSMchat @SeanSachdevMD @NorthwesternMed @LurieCancer Thank you @SeanSachdevMD and everyone else who joined. Nice to see there were a few folks who have experience with Proton Beam Therapy. #BTSM |
| Wes Wilson @WesleyWilson @BTSMchat @TheLizArmy @Sabine_NJ @SeanSachdevMD @adamhayden @CBlotner_ @lisaoleary524 @JeremyPivor Had a great chat everyone! See you all next time!! #BTSM |
| Sean Sachdev, MD @SeanSachdevMD @adamhayden @TheLizArmy @BTSMchat Thank you @TheLizArmy for that all you do. You have inspired a lot of us to be here in hopes of being helpful to this patient community. Your impact on this disease site/setting is tremendous. #btsm |
| Kendra K @KMJtravels @BTSMchat Hope to see #Seattle folks @seattlecenter that morning for the @NoBrainCancer walk! #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @adamhayden Found mine! 😂#BTSM https://t.co/4Cm2frjOtF |
| Liz Salmi @TheLizArmy @WesleyWilson @BTSMchat @Sabine_NJ @SeanSachdevMD @adamhayden @CBlotner_ @lisaoleary524 @JeremyPivor Absolutely! Add it to your calendar! 1st Sundays. #BTSM |
 | Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @BTSMchat T1: People wonder if radiotherapy is needed for glioblastomas or high grade gliomas. The answer is that: @BTSMchat T1: People wonder if radiotherapy is needed for glioblastomas or high grade gliomas. The answer is that: it has been used for decades as an effective way to improve survival and outcomes from these lesions. The stupp protocol asked the question of whether TMZ addition helps #btsm |
| I Live Now Rachel 💎 @KickBrainTumors T4: #BTSM Knowledge is power🧠Excellent information for radiation; American Cancer Society, American College of Radiation, National Cancer institute, Radiation Onocologist, Radiology information... so many more ....Cancer Centers.. |
| Wes Wilson @WesleyWilson @TheLizArmy @BTSMchat @Sabine_NJ @SeanSachdevMD @adamhayden @CBlotner_ @lisaoleary524 @JeremyPivor Monday mornings here 😉 #BTSM |
| Erica Robinson @eleighrobs @lisaoleary524 @adamhayden Speak to you after this @NBTStweets @NewEnglandNBTS #ribraintumorwalk #btsm #shamelessplug 👇#whywewalk https://t.co/CwnDbjhB0B |
| Sean Sachdev, MD @SeanSachdevMD @adamhayden @TheLizArmy @BTSMchat For all who participated tonight, and if we couldn't get to your question, please direct message me for any AMA questions you are really wondering about, I will try to address them over today and tomorrow. #btsm |
| Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @BTSMchat T2: @BTSMchat T2: Radiation dose is very focally and precisely delivered commonly using 3D planning on computer with daily sophisticated setups and often image guidance/verification. Important to note that like surgery it is a "focal" treatment #btsm |
| OurBrainBank @ourbrainbank @BTSMchat @SeanSachdevMD @NorthwesternMed @LurieCancer Thank you so much! Great chat - this sharing of perspectives, transfer of knowledge and experience, is so valuable. Here's to more and more collaboration. #BTSM |
| Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @BTSMchat T3: @BTSMchat T3: Modern cancer care towards solid tumors can be imagined as a three headed beast. You have a (1) a surgeon (who as would be expected is important in biopsy and removal of tumors) and (2) a radiation oncologist who has expertise in the physics of delivering energy/photons #btsm |
| Matt Cotcher @MLCotcher Unprecedented invite/access for patients. Hats off to @SeanSachdevMD |
| Sabin Motwani @sabinbmotwanimd @Project2Program @BTSMchat Proton therapy can be useful at times of recurrence especially if trying to spare normal or critical structures in brain. Not the only way to treat recurrence though. Not many proton center around the country, but more today than 10 years ago. #BTSM |
| Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @BTSMchat "focal" can be different for different lesions given purpose of treatment. In cases of metastatic lesions we are often so focused as to simply treat what is seen with a tool like the GammaKnife (or "Radiosurgery" in general) 1/2 #btsm |
| Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @BTSMchat Protons and photons have the same intent: @BTSMchat Protons and photons have the same intent: to deliver similar doses of energy to control the tumor (here they are similar) . Protons can minimize the dose further away from the target. Like every tool they are appropriate for certain scenarios. (1/2) #btsm |
| Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @adamhayden Our techs are amazing @LurieCancer. We are only as strong as our team's capability to push in the same direction. I am lucky to work with those that I do. They strive to amazing lengths to make pts experience better #btsm |
| Malnati Brain Tumor Institute at Northwestern @BrainTumorInst RT @SeanSachdevMD: @adamhayden @TheLizArmy @BTSMchat Thank you @TheLizArmy for that all you do. You have inspired a lot of us to be here in hopes of being helpful to this patient community. Your impact on this disease site/setting is tremendous. #btsm |
| Liz Salmi @TheLizArmy @Marillenbluete @Project2Program @BTSMchat @SeanSachdevMD @NorthwesternMed @LurieCancer Welcome to the gang! #BTSM |
| Sean Sachdev, MD @SeanSachdevMD RT @SeanSachdevMD: @adamhayden @TheLizArmy @BTSMchat Thank you @TheLizArmy for that all you do. You have inspired a lot of us to be here in hopes of being helpful to this patient community. Your impact on this disease site/setting is tremendous. #btsm |
#BTSM content from Twitter.