#BTSM Transcript
Healthcare social media transcript of the #BTSM hashtag.
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See #BTSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | NCI Cancer Stats @NCICancerStats Glioblastoma is a type of tumor that causes 56% of adult brain cancers. Our video: https://t.co/4fP91BfaLs #BTSM |
 | Matt Cotcher @MLCotcher For the next 60 minutes, I will be participating in a monthly chat about brain tumors & cancer. Please expect increased activity... #BTSM |
 | Lacey Horta @Lacey6685 RT @EK_Drake: #AYACSM tweet chat THIS TUESDAY @ 8pm ET!! ALL welcome! Topic via #HCSMCA #BTSM #BCSM #AMSM #MAYACC #GYNCSM #LCSM #HCSM #BLOGGING #HEALTH https://t.co/KYxBagfZZ7 |
 | Lisa O'Leary @lisaoleary524 Hi all! Hope everyone is well. I've been looking forward to this all week. :) #btsm |
 | Liz Salmi @TheLizArmy @BTSMchat Liz here. 9yrs living w/grade 2 astrocytoma. 2 surgeries, 24mo Temodar. Blogger. Board member for @NBTStweets. #btsm |
 | Charlie Blotner @CBlotner_ @BTSMchat The graphic for this week was really neat (as always) - thanks, @thelizarmy. I pictured someone singing karaoke tbh. #btsm |
| Liz Salmi @TheLizArmy @lisaoleary524 So glad you are here! A perspective we need to keep hearing from! #btsm |
 | Melanie Kabo @MelanieKabo Dx almost 6 years ago with AA2, and after my 5th surgery last July it is now AA3. Just finished 33 rads treatments and 42 temador days #btsm |
| Lisa O'Leary @lisaoleary524 Lisa here. Former caregiver for my husband Patrick who passed from GBM on 7/11/15. Proud NBTS volunteer and advocate for the cause! #btsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci @BTSMchat Hi! I’m Hillary. A postdoc studying breast cancer in a lab that also studies GBM. i also have a loved one with GBM. #btsm |
| Charlie Blotner @CBlotner_ @BTSMchat Charlie here. 5+ years out post awake cranio for grade II astrocytoma. MSW student recently relocated to Seattle. #btsm |
| Liz Salmi @TheLizArmy @MelanieKabo 3 surgeries? Holy crap. I think the reigning champ is Sabine, but I could be wrong. #btsm |
| Liz Salmi @TheLizArmy @HillStirSci Welcome Hillary! Thanks for joining us. Sorry to hear about the loved on with GBM. We're hear to help! #btsm |
| Matt Cotcher @MLCotcher Went 10 years w/o a recurrence of ependymoma after surgery. Scan in 5/17 showed a new tumor. Just finished 6.5 weeks of daily RT. #btsm |
| Liz Salmi @TheLizArmy @the_sdawg Glad you are here Serena! Did you un-lock your tweets for the night? #btsm |
| Charlie Blotner @CBlotner_ @HillStirSci Welcome, Hillary! Curious to hear how often your breast cancer research crosses over with brain re: lepto and the like! #btsm |
| Lisa O'Leary @lisaoleary524 @adamhayden Hiiii!!! Love your face! Hug that lady of yours for me. #btsm |
 | Lorna Davis @DavisLorna RT @sttrcancer: #STTRSunday @EndBrainCancer connects patients with best possible treatments & resources. Read more here: https://t.co/EcQHaCIfbf #BTSM https://t.co/KIpnfZ8IAb |
 | Sabin Motwani @sabinbmotwanimd Sabin Motwani ,radiation oncologist. Glad to be here. #btsm |
| Liz Salmi @TheLizArmy @lisaoleary524 @adamhayden I really love that you guys know each other. #btsm |
| Charlie Blotner @CBlotner_ @sabinbmotwanimd Great to have you joining us tonight, Sabin! #btsm |
 | Heather 🇺🇸 @ZHeatherChamp Trying to participate! Between #hcsm & #90DayFiance it's a busy Sunday. #btsm |
| Liz Salmi @TheLizArmy @sabinbmotwanimd Great to see a #radonc in the house! Best hashtag, ever. #btsm |
| Lisa O'Leary @lisaoleary524 @TheLizArmy @lisaoleary524 @adamhayden I also love YOUR face. #btsm |
| Charlie Blotner @CBlotner_ @MLCotcher Argh at the recurrence. Glad you're here tonight, Matt. #btsm |
| Sabin Motwani @sabinbmotwanimd @adamhayden Just doing whatever I can to help anyone in the #btsm community out. |
 | Guy Lipof - גיא @Project2Program Glad to join @BTSMChat. I'm Guy, spouse of Susie who is a 18+ year survivor (G3 OA & G4 Secondary GBM, #IDH1). I work on #IBMWatson. #BTSM |
 | Erica Robinson @eleighrobs @BTSMchat Here, and listening! #BTSM |
| Liz Salmi @TheLizArmy @MLCotcher What was brain radiation like? I have no had it. Does it hurt? #btsm |
| Melanie Kabo @MelanieKabo My 6 year cancerversary will be 11/20 #btsm |
| Liz Salmi @TheLizArmy @Project2Program Hey Guy! I added Susie's name to my "In honor of" sign at the Sacramento Brain Freeze yesterday. #btsm |
 | Jeff Cee @jeff_ccc @BTSMchat Jeff here in Canada with grade 4 glioblastoma. Starting cycle 4 of 6 of temozolomide / Temodar this coming Tuesday. #BTSM |
| Liz Salmi @TheLizArmy @eleighrobs Thanks for joining us, Erica! Nice to see you in Boston at the walk! #btsm |
| Melanie Kabo @MelanieKabo @jeff_ccc @BTSMchat Good luck with this round #btsm |
| Liz Salmi @TheLizArmy @BTSMchat No anniversaries for me. Next scan and appointment w/the NO is later this month. #btsm |
| Heather 🇺🇸 @ZHeatherChamp @MelanieKabo 🙌🏻 #btsm |
 | STELLAR Study @StellarStudy @StellarStudy is joining the BTSM chat! #BTSM |
| Liz Salmi @TheLizArmy @jeff_ccc Where are you receiving treatment in Canada? #btsm |
| Liz Salmi @TheLizArmy @StellarStudy Thanks for being here. How goes the study? #btsm |
 | Choi-Fong Cho, PhD @DrFongCho @BTSMchat Hi, Fong Cho here - I am a neuroscientist working on brain cancer research at Harvard Medical School and Brigham & Women's Hospital #btsm |
| Jeff Cee @jeff_ccc @TheLizArmy in Vancouver with @BCCancer_Agency . So grateful for their help..! 😍 @bccancer 😍👍🏻👍🏻 #BTSM |
| Lisa O'Leary @lisaoleary524 @adamhayden I am going to try very hard not to bother you tomorrow... but I will be awaiting your results when you're ready to share #btsm |
| Erica Robinson @eleighrobs @adamhayden You'll be in my thoughts tomorrow morning. #BTSM |
| Heather 🇺🇸 @ZHeatherChamp A1: My anniversaries are July but I do have my next scan December. #btsm #gangliocytoma |
| Melanie Kabo @MelanieKabo @adamhayden Good luck. You'll be in my thoughts and prayers #btsm |
 | Ashley Love Sumrall, MD, FACP, FASCO @AshleySumrallMD Listening to #btsm @BTSMchat |
| Heather 🇺🇸 @ZHeatherChamp @HeatherVcu @BTSMchat HIIIIIIIIIIIIIIII! 🤗 #btsm |
| Charlie Blotner @CBlotner_ @the_sdawg It took a few years, but I can nap through them if they're early enough in the morning now as well! #btsm |
 | Kendra K @KMJtravels @BTSMchat Kendra, 44, Seattle, GBM dx in June Happy to finally join a #BTSM chat |
| Liz Salmi @TheLizArmy @BTSMchat T1: Attended a brain tumor event on Sat & met family of woman w/same dx as me. She lived 15yrs after dx. Died few mo ago. :( #btsm |
| Melanie Kabo @MelanieKabo Next scan is November 27, but I'm not totally sure how it works now that I have finally gotten radiation. #btsm |
| Liz Salmi @TheLizArmy @HeatherVcu Thanks for joining us! #btsm |
| Liz Salmi @TheLizArmy @KMJtravels Glad you are here! #btsm |
| Heather 🇺🇸 @ZHeatherChamp @TheLizArmy @BTSMchat 🙏🏻💔 #btsm |
| Erica Robinson @eleighrobs @TheLizArmy @BTSMchat @Project2Program I loved that post #BTSM |
| Choi-Fong Cho, PhD @DrFongCho @jeff_ccc @BTSMchat Sending positive thoughts your way! #btsm |
| Melanie Kabo @MelanieKabo @adamhayden @lisaoleary524 I can't handle any delays, scanxiety kicks in big time. That's why I drive 2 hours to see my NO. #btsm |
| Heather 🇺🇸 @ZHeatherChamp @the_sdawg @CBlotner_ I love my MRI tech too. It's the same one who's seen me since Day 1. #btsm |
| Charlie Blotner @CBlotner_ @KMJtravels Hey Kendra! Glad you could join us tonight. How did you find us? I'm here in Seattle as well. #btsm |
| Heather 🇺🇸 @ZHeatherChamp @srajabi @BTSMchat Ugh. 10X and you're my hero. #btsm |
| Liz Salmi @TheLizArmy @MelanieKabo Maybe at @sabinbmotwanimd knows how scans work post-radiation? #btsm |
| Heather 🇺🇸 @ZHeatherChamp @HeatherVcu Don't forget #btsm if you're not using tweetchat. Tired. Good. You? |
| Heather 🇺🇸 @ZHeatherChamp @HeatherVcu @BTSMchat Yah. Stupid twitter algorithm. #btsm |
 | Debi Cirasole @DebiCasserole RT @TheLizArmy: Great opportunity for newly diagnosed to pose questions for long-term survivors of benign & malignant tumors! Long-term is relative. #btsm https://t.co/SLyehEJkxN |
| Liz Salmi @TheLizArmy @WDMunn Thanks for joining us! I have a similar dx as your husband. Send him my best! #btsm |
| Melanie Kabo @MelanieKabo T2- ABC2 will be in San Diego raising money at their annual "Over the Edge" repelling event. I won't be participating this year. #btsm |
| Lisa O'Leary @lisaoleary524 T2 If you're interested in policy/advocacy on behalf of the BT community, highly recommend Head to the Hill with NBTS in May! #btsm |
| Matt Cotcher @MLCotcher RT @lisaoleary524: T2 If you're interested in policy/advocacy on behalf of the BT community, highly recommend Head to the Hill with NBTS in May! #btsm |
 | Dr. rer. pol.Sabine Schwab @Sabine_NJ Hi All! I'm a little late to the party!Sabine from Germany, living in NJ.AA3, 3.5 years out.ABTA volunteer and fan of the #btsm tweet chat! |
| Debi Cirasole @DebiCasserole @BTSMchat #btsm |
| Erica Robinson @eleighrobs @lisaoleary524 Life changing event for me! #BTSM |
| Heather 🇺🇸 @ZHeatherChamp @BTSMchat Is that a question? #btsm |
| Liz Salmi @TheLizArmy @MelanieKabo My friend Monika used to participate in that @BrainCancerCure event! Did you know her? #btsm |
| Heather 🇺🇸 @ZHeatherChamp @lisaoleary524 Sure wish I could! #btsm |
| Lisa O'Leary @lisaoleary524 T2 It's pretty easy to become an advocate. You learn the asks for the BT community and reach out to reps. I met mine at Starbucks. :) #btsm |
| Melanie Kabo @MelanieKabo @TheLizArmy @MelanieKabo @BrainCancerCure Yes, we were great friends. RIP #btsm |
| Liz Salmi @TheLizArmy @srajabi Let me know when you are ready to get into policy. ;) #btsm |
| Charlie Blotner @CBlotner_ @WDMunn Hey Doug, thanks for joining us! Glad you found us. Hi to you and your husband. How are you two feeling with treatment? #btsm |
| Heather 🇺🇸 @ZHeatherChamp @Sabine_NJ Love that. I'm a fan of @BTSMchat too! #btsm |
| Lisa O'Leary @lisaoleary524 T2 I'm an 8th year attorney. Just quit my litigation job. Hoping to pursue policy advocacy as a full-time gig. Nothing matters more. #btsm |
| Liz Salmi @TheLizArmy @MelanieKabo I am sorry for your loss. I met her a few times, and DM's a bit on FB. She was amazing. @BrainCancerCure #btsm |
| Liz Salmi @TheLizArmy @DrFongCho Thanks for tagging us, and listening in! #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ I'm a member of the ABTA Volunteer Advisory Council.Do you want to learn more about the American Brain Tumor Association-I'm ur girl! #btsm |
| Melanie Kabo @MelanieKabo T2- I want more in San Diego. #btsm |
| Heather 🇺🇸 @ZHeatherChamp @HeatherVcu Mine is too. Huge stop gaps on my words and speaking ---- #btsm 👍🏻👍🏻😉 |
| Lisa O'Leary @lisaoleary524 @srajabi I went to law school in SD. Decent chance I may move back there. I'll bring policy your way! #btsm |
| Liz Salmi @TheLizArmy @BTSMchat T2: I've had many people ask me about how to get involved in BT advocacy/policy work. It takes time, but so worth it. #btsm |
 | Sheriff Tennant @brianatennant I was DX with DIPG 3-2010 when the smoke cleared I decided to get involved to make a difference, I ran for political office. #btsm https://t.co/BqVZCPIeWu |
| Guy Lipof - גיא @Project2Program Susie was recovering 4 yrs ago @MDABrainSpine from surgery w/ Halloween costumed nurses. Joyous superheroes, all of them! @BTSMchat #BTSM |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ RT @TheLizArmy: @BTSMchat T2: @BTSMchat T2: I've had many people ask me about how to get involved in BT advocacy/policy work. It takes time, but so worth it. #btsm |
| Liz Salmi @TheLizArmy @Sabine_NJ The @theABTA conference always looks so cool! Will you promote when it comes up again? #btsm |
| Melanie Kabo @MelanieKabo @lisaoleary524 @srajabi I would LOVE that!! #btsm |
| Heather 🇺🇸 @ZHeatherChamp @BTSMchat A2: I don't know what you're asking here but I know that awareness is the first step to advocacy. At least to me. #btsm |
| Charlie Blotner @CBlotner_ @KMJtravels @adamhayden I'm always here to get coffee if you'd like to meet up! So many #btsm and other cancer hashtag-ers do. |
| Heather 🇺🇸 @ZHeatherChamp @brianatennant WOW! Im terrified to try to find/apply/interview for a job and WOW! #btsm |
| Liz Salmi @TheLizArmy @ZHeatherChamp That is a first step! You are ready for the next step. ;) Let's get you in! #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @TheLizArmy I sure will do. Do you know they host mini-conferences, too? #btsm |
| Heather 🇺🇸 @ZHeatherChamp @TheLizArmy Yas. But you need $ and that's my issue 🤢 #btsm |
| Liz Salmi @TheLizArmy @Sabine_NJ I didn't know that! Do they have patient scholarships? #btsm |
| Sheriff Tennant @brianatennant @BTSMchat #btsm |
| Charlie Blotner @CBlotner_ @BTSMchat A2: I've learned a ton from the advocacy events and projects that @NBTStweets puts together! #btsm |
| Liz Salmi @TheLizArmy @ZHeatherChamp There are patient travel scholarships. I saw them last year... A number of us applied. #btsm |
| Melanie Kabo @MelanieKabo @adamhayden @the_sdawg His daughter @MeghanMcCain seems to be bringing som awareness to this disease, but I wish more would be done. #btsm |
| Lisa O'Leary @lisaoleary524 @adamhayden @the_sdawg I think that McCain's dx brought attn to GBM, but most focus on his toughness and not the community #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @TheLizArmy The next date for the big conference is the weekend of August 4th, 2018. I won't be able to go - my sis is getting married.#btsm |
| Liz Salmi @TheLizArmy @ZHeatherChamp I will do a better job at scholarships when I see them! #btsm |
| Liz Salmi @TheLizArmy @brianatennant Thanks for the tag, and for listening! #btsm |
| Melanie Kabo @MelanieKabo @the_sdawg @CBlotner_ I completely agree!! #btsm |
| Heather 🇺🇸 @ZHeatherChamp A SIDE NOTE: I'm fumbling w my words and speaking coherently. Frustrated and ticked beyond belief. Anyone else struggle w this? Halp #btsm |
| Lisa O'Leary @lisaoleary524 @ZHeatherChamp My husband had aphasia associated with focal seizures. Struggled with it constantly, even when seizures were quiet. #btsm |
 | Hold Your Head Up 💎 @HYHUTriangle @BTSMchat Here, and listening! Informative information being shared. @KickBrainTumors #BTSM |
| Heather 🇺🇸 @ZHeatherChamp @TheLizArmy Nono. That's not your job but thx. 💟Why can't an advocate be one w/o $ tho? Thoughts? #btsm |
| Liz Salmi @TheLizArmy @lisaoleary524 My mom took care of my dad at the end w/his GBM. When she sees McCain on TV, she swears she can see him "slipping" : \ #btsm |
| Liz Salmi @TheLizArmy @ZHeatherChamp You can. I am an advocate w/o money. Everything I do is volunteer. I do not get paid money to be an advocate. #btsm |
 | Brooke Laws @bohlaws Listening to #btsm @BTSMchat |
| Melanie Kabo @MelanieKabo @adamhayden @the_sdawg @MeghanMcCain @Lifeiskitsch I would love for @MeghanMcCain to get the word out about those of us dx under 40 with families or just getting our start in life #btsm |
| Lisa O'Leary @lisaoleary524 @adamhayden @lisaoleary524 @the_sdawg Exactly. As if everyone isn't tough as nails in the fight. This dx doesn't care. #btsm |
| Liz Salmi @TheLizArmy @DrFongCho I'll take you up on that! Are you in Boston? My work w/ @myopennotes brings me to town a few times a year. #btsm |
| Lisa O'Leary @lisaoleary524 @TheLizArmy @ZHeatherChamp Same. I'm the brokest lawyer there ever was haha. #btsm |
| Heather 🇺🇸 @ZHeatherChamp @TheLizArmy Nono, i don't mean I expect to be paid. I mean I can't afford to go to all those places to advocate. Shouldn't be a barrier IMO #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @TheLizArmy The mini conferences are FREE! They are usually posted over here: https://t.co/DghBRxVaHS #btsm |
| Charlie Blotner @CBlotner_ @TheLizArmy @ZHeatherChamp I think there's a hugeeeeee misconception that we get paid for the work that we do. It's 99% volunteer. #btsm |
| Liz Salmi @TheLizArmy @vickyyyf VICKY! Is your TED Talk live yet?! #btsm |
| Melanie Kabo @MelanieKabo @DrFongCho What can you tell me about Keytruda and hypermutated cells? #btsm |
| Heather 🇺🇸 @ZHeatherChamp @DrFongCho May I ask? Any research in rare brain Tumors anywhere in the future? #btsm |
| Liz Salmi @TheLizArmy @bohlaws Thanks for the tag! Jump in any time. #btsm |
| Heather 🇺🇸 @ZHeatherChamp @CBlotner_ @TheLizArmy Nope. I don't think any advocate gets paid. #btsm |
| Guy Lipof - גיא @Project2Program Not everyone has money nor passion/ dedication to contribute time. It takes both for successful advocacy. @TheLizArmy @ZHeatherChamp #BTSM |
| Liz Salmi @TheLizArmy @DrFongCho Also, check out my @PCORI-funded project: https://t.co/xJhTnqeRQW #btsm |
| Heather 🇺🇸 @ZHeatherChamp @lisaoleary524 LOL #BTSM |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ t3: Def. Liz's blog! https://t.co/zEVuoQc6N0 #btsm |
| Matt Cotcher @MLCotcher A3: Jim Rendon's "Upside" - book is a fascinating look at post-traumatic growth (opposite of PTSD). #btsm |
| Erica Robinson @eleighrobs @Crystal_McPhee @BTSMchat @JoshPerryBMX #btsm |
| Charlie Blotner @CBlotner_ @srajabi No! (please share dog videos..) #btsm |
| Heather 🇺🇸 @ZHeatherChamp @Project2Program @TheLizArmy I have both. Yet I'm not "advocate" bc I can't afford to go to all these places. I only can bring "awareness". #btsm |
| Liz Salmi @TheLizArmy @BTSMchat T3: Best blog out there RN is https://t.co/f9z0LIylEN by @adamhayden. #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ t3: And Rick Franzo's (@braintumortalk)'s book "How horseshoes saved my life!" #btsm |
| Lisa O'Leary @lisaoleary524 RT @TheLizArmy: @BTSMchat T3: @BTSMchat T3: Best blog out there RN is https://t.co/f9z0LIylEN by @adamhayden. #btsm |
| Sheriff Tennant @brianatennant T3 I don't know about anyone else but after my dx things seemed to revolve around brian tumors tv shows, jokes, it came up all the time https://t.co/rhMjypGdby |
| Sabin Motwani @sabinbmotwanimd @TheLizArmy @MelanieKabo Depends on the brain tumor but typically first one is 4-8 weeks out and typically about every 2-3 months in the first yr after tx #btsm |
| Charlie Blotner @CBlotner_ @MLCotcher I absolutely love the concept of post-traumatic growth. I heard it for the first time in 2015 - it shifted something in me. #btsm |
| Matt Cotcher @MLCotcher RT @TheLizArmy: @BTSMchat T3: @BTSMchat T3: Best blog out there RN is https://t.co/f9z0LIylEN by @adamhayden. #btsm |
| Liz Salmi @TheLizArmy My book recommendations: "Mistreated" by @RobertPearlMD https://t.co/4R6XTCA2eg #btsm |
| Lisa O'Leary @lisaoleary524 I've done a lot of reading in my grieving process. Currently reading "The Untethered Soul." Would have loved during Patrick's tx. #btsm |
| Heather 🇺🇸 @ZHeatherChamp A3: "Proof of Heaven". Most incredible book! #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ t3: Book rec: My grandmother asked me to tell you she is sorry! One of my book club's favorites! #btsm |
| Matt Cotcher @MLCotcher @CBlotner_ Rendon did an excellent job & thoroughly researched the topic. Parts of the book are very scientific/medical. #btsm |
| Liz Salmi @TheLizArmy Another book recommendation: "An American Sickness" by @RosenthalHealth https://t.co/Hc6GOOBnIU #btsm |
| Lisa O'Leary @lisaoleary524 "When Bad Things Happen to Good People" - basically saved my life when I lost my hubby. #btsm |
| Jeff Cee @jeff_ccc @BTSMchat I'm working on these books #BTSM https://t.co/Pw5jIrBOiv |
| Charlie Blotner @CBlotner_ @BTSMchat A3: I've been listening to a lot of podcasts on my commute lately. @JustTalkingPod with @iam_spartacus is a winner. #btsm |
 | Sean Sachdev, MD @SeanSachdevMD @BTSMchat #BTSM |
| Liz Salmi @TheLizArmy @Sabine_NJ Aw, shucks! I need to write more. Been focusing on so many other areas in health care! Research is next1 #btsm |
| Lisa O'Leary @lisaoleary524 @adamhayden @SenJohnMcCain @MeghanMcCain And it was AMAZING Adam. Everyone should read. #btsm |
| Liz Salmi @TheLizArmy @CBlotner_ @MLCotcher I am jumping on the post-traumatic growth train... Will read that book! Adding to list now! #btsm |
| Melanie Kabo @MelanieKabo @sabinbmotwanimd @TheLizArmy I'm getting mine a 5 weeks post rad, and every 3 mo, but don't know what to expect. Swelling? Shrinkage? Inflammation? Disappearance? #btsm |
| Liz Salmi @TheLizArmy .@jeff_ccc OMG! "The Brain That Changes Itself" was my gateway drug to neuro-science! #btsm |
| Kendra K @KMJtravels @sabinbmotwanimd Thoughts on pseudoprogression post - radiation? the ambiguity of my current scans is tough. #btsm |
| Guy Lipof - גיא @Project2Program A3 - Susie and I loved 50 First Dates, watch @NovaPBS regularly and enjoy being able to pause/ rewind TV. #BTSM @BTSMchat |
| Charlie Blotner @CBlotner_ @WDMunn Totally. How is your support system? #btsm |
| Melanie Kabo @MelanieKabo @adamhayden @SenJohnMcCain @MeghanMcCain It was a great letter, I hope they read it!! #btsm |
| Liz Salmi @TheLizArmy @sean_sachdev Thanks for tagging us! Drop in any time. #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ t4: Enroll in the International Low Grade Glioma Registry: https://t.co/rHTmV7fMnK #btsm |
| Charlie Blotner @CBlotner_ @jeff_ccc Love the visual! #btsm |
| Liz Salmi @TheLizArmy I see @Lifeiskitsch getting some great RTs from @MeghanMcCain. Awesome she is listening to the #BTSM community. |
| Charlie Blotner @CBlotner_ @sean_sachdev Thanks for letting us know you're here! #btsm |
 | Billy Paymaster @ukfann00 RT @EK_Drake: #AYACSM tweet chat THIS TUESDAY @ 8pm ET!! ALL welcome! Topic via #HCSMCA #BTSM #BCSM #AMSM #MAYACC #GYNCSM #LCSM #HCSM #BLOGGING #HEALTH https://t.co/KYxBagfZZ7 |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ RT @TheLizArmy: I see @Lifeiskitsch getting some great RTs from @MeghanMcCain. Awesome she is listening to the #BTSM community. |
| Liz Salmi @TheLizArmy @Sabine_NJ I will be talking about the @theABTA LGG registry at a talk at UC Davis next month! #btsm |
| Matt Cotcher @MLCotcher RT @TheLizArmy: I see @Lifeiskitsch getting some great RTs from @MeghanMcCain. Awesome she is listening to the #BTSM community. |
| Sabin Motwani @sabinbmotwanimd @MelanieKabo @TheLizArmy Just keep in mind the mrI is not static. You will get more and it’s important to see the trend not just one #btsm |
 | St_Molly_AgentofChaos @Lifeiskitsch @TheLizArmy @MeghanMcCain Ahh!!! I was watching mushy Scenes from tv shows & missed 3/4 of today’s #btsm chat! |
| Melanie Kabo @MelanieKabo @TheLizArmy @Lifeiskitsch @MeghanMcCain We hope so. She's a part of our community now in the caregiver role. #btsm |
 | National Brain Tumor Society @NBTStweets Thank you! https://t.co/ISi6OMjmpB |
| National Brain Tumor Society @NBTStweets RT @CBlotner_: @BTSMchat A2: @BTSMchat A2: I've learned a ton from the advocacy events and projects that @NBTStweets puts together! #btsm |
| Lisa O'Leary @lisaoleary524 Anyone attending the SNO Conference in SF 11/15-19? I imagine there will be a LOT coming from there. I'll try and live tweet. :) #btsm |
| Liz Salmi @TheLizArmy Required (but hard) reading: "Where Is the Road Map for #Glioblastoma?" https://t.co/PTNpKvl4w9 in @JAMAonc #btsm |
| Charlie Blotner @CBlotner_ @Sabine_NJ Yes! It's easy, and so important! I wrote about the process of enrolling here: https://t.co/AhlGnl4TTy #btsm |
| Melanie Kabo @MelanieKabo RT @CBlotner_: @Sabine_NJ Yes! It's easy, and so important! I wrote about the process of enrolling here: @Sabine_NJ Yes! It's easy, and so important! I wrote about the process of enrolling here: https://t.co/AhlGnl4TTy #btsm |
| Liz Salmi @TheLizArmy @CBlotner_ @Sabine_NJ I don't agree that it is "easy"... It SHOULD be easy, but it is was difficult for me to get access to records #btsm |
| Sabin Motwani @sabinbmotwanimd @KMJtravels It’s tough for everyone, clinicians included! Important to get mutiple MRIs over time to see trend and monitor symptoms clinically #btsm |
 | eduardo cervera @emircervera RT @NCICancerStats: Glioblastoma is a type of tumor that causes 56% of adult brain cancers. Our video: Glioblastoma is a type of tumor that causes 56% of adult brain cancers. Our video: https://t.co/4fP91BfaLs #BTSM |
| Liz Salmi @TheLizArmy @CBlotner_ @Sabine_NJ ... That's not @theABTA's fault, it is the fault of my health system not giving me easy access to information #btsm |
| Guy Lipof - גיא @Project2Program @novapbs @BTSMchat A3 - We often listen to folk music and play board games, including @WordsWFriends at different intervals of the day. #BTSM |
| Liz Salmi @TheLizArmy RT @lisaoleary524: Anyone attending the SNO Conference in SF 11/15-19? I imagine there will be a LOT coming from there. I'll try and live tweet. :) #btsm |
| Melanie Kabo @MelanieKabo RT @TheLizArmy: Required (but hard) reading: Required (but hard) reading: "Where Is the Road Map for #Glioblastoma?" https://t.co/PTNpKvl4w9 in @JAMAonc #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @TheLizArmy @MeghanMcCain My fear is that I will overshare with @MeghanMcCain one too many times! I’m like JohnAdams— I don’t know how to stop talking. #btsm |
| Sheriff Tennant @brianatennant The international low grade glioma registry @theABTA https://t.co/zIiwveAocH |
| Sabin Motwani @sabinbmotwanimd T4 scientific articles by Roger Stupp are worth reading for GBM. He has contributed greatly to our understanding #btsm |
| Lisa O'Leary @lisaoleary524 @adamhayden I really need you at SNO to be my translator. What will I do without you?? #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ RT @sabinbmotwanimd: T4 scientific articles by Roger Stupp are worth reading for GBM. He has contributed greatly to our understanding #btsm |
| Melanie Kabo @MelanieKabo RT @sabinbmotwanimd: T4 scientific articles by Roger Stupp are worth reading for GBM. He has contributed greatly to our understanding #btsm |
| Charlie Blotner @CBlotner_ @WDMunn That's so tough. Hopefully you're are able to make time for self care activities and what you love to do amidst the chaos. #btsm |
| Liz Salmi @TheLizArmy PODCAST recommendation: "What The Health?" by @jrovner of @KHNews https://t.co/t9DEcqatX5 #btsm |
| Ashley Love Sumrall, MD, FACP, FASCO @AshleySumrallMD @BTSMchat T2 💕 when pts/ fams share their stories! We always need more attn on brain tumors. Not just #gbm but #lgg #meningioma #mets #btsm |
| Melanie Kabo @MelanieKabo RT @TheLizArmy: PODCAST recommendation: PODCAST recommendation: "What The Health?" by @jrovner of @KHNews https://t.co/t9DEcqatX5 #btsm |
| Liz Salmi @TheLizArmy RT @sabinbmotwanimd: T4 scientific articles by Roger Stupp are worth reading for GBM. He has contributed greatly to our understanding #btsm |
 | Claire Snyman @clairehsnyman #btsm - joining in late but happy to make it this time :) |
| Liz Salmi @TheLizArmy RT @Ashleysumrallmd: @BTSMchat T2 💕 when pts/ fams share their stories! We always need more attn on brain tumors. Not just #gbm but #lgg #meningioma #mets #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @sabinbmotwanimd Agreed! I got to sit next to him at this year's ABTA conference. He is very knowledgeable, and super honest. #btsm |
| Kendra K @KMJtravels @BTSMchat A4 my team is especially interested in the CAR T trial @cityofhope https://t.co/v5ylo0EFgv. #btsm |
| Liz Salmi @TheLizArmy @Sabine_NJ @sabinbmotwanimd Get him on Twitter! #btsm |
| Charlie Blotner @CBlotner_ @Ashleysumrallmd Agreed! I'd say the most commonly told brain tumor narrative is about GBM and can forget the stories of other tumors. #btsm |
| Claire Snyman @clairehsnyman Head to the Hill always catches my attention - even all the way from Canada! https://t.co/fZg7f3wtPV |
 | Josh Perry @JoshPerryBMX It changes with each and everyone one of us, individually. Can't change the world until we change ourselves. Starts with us and moves on via a ripple affect. https://t.co/3zZIWEChgA |
| St_Molly_AgentofChaos @Lifeiskitsch I’m biffing this chat right now. I have no idea what to ask or say, so just reading everyone else’s... #BTSM |
| Liz Salmi @TheLizArmy @CBlotner_ @Ashleysumrallmd But then again, it's HARD to get GBM narrative from a person while they are still able to tell own story #btsm |
| Liz Salmi @TheLizArmy @clairehsnyman Hey! Welcome home from @TEDMED! #btsm |
| Lisa O'Leary @lisaoleary524 RT @TheLizArmy: @CBlotner_ @Ashleysumrallmd But then again, it's HARD to get GBM narrative from a person while they are still able to tell own story #btsm |
| Guy Lipof - גיא @Project2Program I use @docphin to keep up with neuro-oncology journals and monitor oncogenes, biomarkers and brain cancer terms. #BTSM @BTSMchat |
| Charlie Blotner @CBlotner_ @TheLizArmy @CBlotner_ @Ashleysumrallmd A truth clap back, if I've ever heard one. #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @TheLizArmy @sabinbmotwanimd Dr. Stupp tweets under @roger_stupp. Maybe he reads this and agrees to join into one of our next chats?! #btsm |
| Liz Salmi @TheLizArmy @Lifeiskitsch 😂 That's OK! Tonight is about doing what you already do on a daily basis. #btsm |
| Erica Robinson @eleighrobs @JoshPerryBMX @BTSMchat I keep meaning to tell you about this chat @JoshPerryBMX #btsm |
| Melanie Kabo @MelanieKabo @Lifeiskitsch That's Ok, I think I've been mostly liking and retweeting most of the hour!! #btsm |
| Liz Salmi @TheLizArmy @Sabine_NJ I like the way you think! Dear @sabinbmotwanimd @roger_stupp #btsm |
| Liz Salmi @TheLizArmy @MelanieKabo @Lifeiskitsch Sharing is caring. #btsm |
| Charlie Blotner @CBlotner_ @Project2Program Guy! This is the first time your tweet has shown up in my feed all night! #btsm |
| Liz Salmi @TheLizArmy @Project2Program: Are you and @adamhayden connected? You are both sciencey-research nerds. I think you'd be friends. #btsm |
| Ashley Love Sumrall, MD, FACP, FASCO @AshleySumrallMD @BTSMchat t4. Follow me & others as we tweet during #sno2017 @NeuroOnc nov16-19 #btsm |
| Erica Robinson @eleighrobs @JoshPerryBMX @BTSMchat I'm never afraid to tag you 😎 #btsm |
| Sean Sachdev, MD @SeanSachdevMD @sabinbmotwanimd I work with him at Northwestern. We are proud to have him here. Gem in the field #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @TheLizArmy I was just watching “shipper” scenes from my favorite tv shows as if I was 17-years old & Mulder & Scully almost kisses in XF: FTF 🤓😑#btsm |
| Charlie Blotner @CBlotner_ @Ashleysumrallmd You did a fantastic job sharing info from @NeuroOnc last year in AZ! I really appreciated that. #btsm |
| Liz Salmi @TheLizArmy @BTSMchat T5: On my mind: The @PCORI-funded project I am working on with @BethanyKwan. https://t.co/xJhTnqeRQW #btsm |
| Liz Salmi @TheLizArmy @Ashleysumrallmd You MUST connect w/ @lisaoleary524! She will be at SNO. #btsm |
| Lisa O'Leary @lisaoleary524 @Ashleysumrallmd @BTSMchat @NeuroOnc I'll be there! Thanks for the info on the hashtag! #btsm |
| Josh Perry @JoshPerryBMX Heck yeah! @bulletproofexec and the @bpnutrition crew are great. Glad to connect. :) https://t.co/b8rUtjsrtb |
| Claire Snyman @clairehsnyman @jeff_ccc @BTSMchat Also a brainbook reader! Have a few more to add and reading stimulates the brain too - a win-win! #btsm https://t.co/ghjGgxrjdS |
| Melanie Kabo @MelanieKabo RT @TheLizArmy: @BTSMchat T5: On my mind: @BTSMchat T5: On my mind: The @PCORI-funded project I am working on with @BethanyKwan. https://t.co/xJhTnqeRQW #btsm |
| Charlie Blotner @CBlotner_ This #btsm https://t.co/yABWlj2Iaw |
| Guy Lipof - גיא @Project2Program @TheLizArmy @adamhayden I follow @adamhayden and read his blog, but unfortunately we have not talked or met. #BTSM |
| Lisa O'Leary @lisaoleary524 RT @Ashleysumrallmd: @BTSMchat t4. Follow me & others as we tweet during #sno2017 @NeuroOnc nov16-19 #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch Is it normal to not want stuff to “go back to normal” once my chemo is done? I think my family & bf hope I stop talking about The Canc #BTSM |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ RT @Lifeiskitsch: Is it normal to not want stuff to “go back to normal” once my chemo is done? I think my family & bf hope I stop talking about The Canc #BTSM |
| Guy Lipof - גיא @Project2Program @CBlotner_ I must be in #BTSM stealth mode ;-) Nice to hear from you @CBlotner_! |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @Lifeiskitsch ABSOLUTELY NORMAL!!! #btsm |
 | ScottyBueno @heypunko #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch But I don’t think I will know how to. Or want to. I think I found my thing. #BTSM |
| Melanie Kabo @MelanieKabo @Lifeiskitsch I don't think it's possible. Cancer is our normal now, there is no going back. #btsm |
| Liz Salmi @TheLizArmy "Listen to me now because I won’t always be able to" - @adamhayden #btsm |
| Sheriff Tennant @brianatennant T5 Everyone human being is "terminal" we as BT patients just how it may happen. How you spend your time is up to you #btsm https://t.co/NcYsAO5LmO |
| Liz Salmi @TheLizArmy @heypunko Thanks for shouting out! #btsm |
| Lisa O'Leary @lisaoleary524 @Lifeiskitsch You don't have to. Be authentic. Sometimes ppl in our lives can't meet our needs but we are all here. #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ THIS!Involuntarily,but true!RT @MelanieKabo @Lifeiskitsch I don't think it's possible.Cancer is our normal now,there is no going back #btsm |
| Liz Salmi @TheLizArmy @BTSMchat Hey @lisaoleary524 and @Ashleysumrallmd: Maybe you talk about #SNO2017 in the December tweet chat? #btsm |
| Jeff Cee @jeff_ccc @clairehsnyman @BTSMchat . @clairehsnyman Oops! I totally borrowed your book as well. Here are a few others @BTSMchat #BTSM https://t.co/1KIWQvFV7a |
| Liz Salmi @TheLizArmy RT @Sabine_NJ: THIS!Involuntarily,but true!RT @MelanieKabo @Lifeiskitsch I don't think it's possible.Cancer is our normal now,there is no going back #btsm |
| Dr. rer. pol.Sabine Schwab @Sabine_NJ @Lifeiskitsch Have you signed up with @FirstDescents yet? You will love it and benefit from it!!! #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @Sabine_NJ @MelanieKabo I mean, we got the sucky diagnosis. We got some iffy timeline & whatnot. How can we just act like life is back to normal? #BTSM |
| Lisa O'Leary @lisaoleary524 @TheLizArmy @BTSMchat @lisaoleary524 @Ashleysumrallmd I'd be happy to! I'll give the layman's perspective :) #btsm |
| Liz Salmi @TheLizArmy @lisaoleary524 @Ashleysumrallmd Would be cool to get a caregiver and clinician POV on #SNO2017. #btsm |
| Melanie Kabo @MelanieKabo Good night all, time to put my 2 youngest boys to bed. Enjoy your month! #btsm |
| Erica Robinson @eleighrobs @TheLizArmy @BTSMchat @lisaoleary524 @Ashleysumrallmd Yes! #btsm |
| Kendra K @KMJtravels @MelanieKabo Ditto, kindergarten tomorrow 😉. #btsm |
| Sean Sachdev, MD @SeanSachdevMD @TheLizArmy @BTSMchat @lisaoleary524 @Ashleysumrallmd I plan on tweeting from SNO. Heartening to see this BTSM online/twitter community. #btsm |
| Lisa O'Leary @lisaoleary524 Happy early Thanksgiving everyone! #btsm |
| St_Molly_AgentofChaos @Lifeiskitsch @adamhayden I’m not smart enough for the science-y & philosopher’s stone things. But I’m good at some things. People things. Ish. #BTSM |
| Guy Lipof - גיא @Project2Program Excellent question @Lifeiskitsch! I feel often friends/ family do not realize life after treatment may never return to "normal". #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch RT @Project2Program: Excellent question @Lifeiskitsch! I feel often friends/ family do not realize life after treatment may never return to "normal". #BTSM |
| Choi-Fong Cho, PhD @DrFongCho @vickyyyf @MelanieKabo No prob! One of the authors, Dr. Reardon is a colleague and expert in this area. I'm happy to pass any questions along #btsm |
| Liz Salmi @TheLizArmy @Lifeiskitsch You will find your "thing" Molly. Let's chat about it sometime! #btsm |
| Liz Salmi @TheLizArmy @Lifeiskitsch It took me about eight years to find the right space for me. #btsm |
| Guy Lipof - גיא @Project2Program @Lifeiskitsch The key is finding a balance and cadence in life that brings you joy with passion. Friends/ family will align or go the wayside. #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @TheLizArmy Yes, please! And thank you! #BTSM |
| St_Molly_AgentofChaos @Lifeiskitsch @TheLizArmy Shiiiite I did it again. #btsm 😂 |
| Guy Lipof - גיא @Project2Program @BTSMchat Thanks @BTSMchat! Lots of good camaraderie today. I look forward to the next session in December. #BTSM |
 | Dani Taylor (She/Her) @danimarietaylor RT @EK_Drake: #AYACSM tweet chat THIS TUESDAY @ 8pm ET!! ALL welcome! Topic via #HCSMCA #BTSM #BCSM #AMSM #MAYACC #GYNCSM #LCSM #HCSM #BLOGGING #HEALTH https://t.co/KYxBagfZZ7 |
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