#ChatMS Transcript

Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.

ProfileTweet
Must Stop MS! @MustStopMS
It’s #ChatMS time!!! It’s #ChatMS time!!! It’s #ChatMS TIME!!! https://t.co/2BNXPhMLZV
Must Stop MS! @MustStopMS
@TheDianeKramer Interesting! #ChatMS
Must Stop MS! @MustStopMS
How’s everyone today? Who are we chatting with today? Let’s put a face to our twitter handles shall we? Drop a #ChatMS selfie! #ChatMSSelfie https://t.co/Gz5LZ128Ir
Must Stop MS! @MustStopMS
I noticed the days are starting to get longer. Who’s ready for spring already? #ChatMS
Must Stop MS! @MustStopMS
Tonight’s #ChatMS we are discussing Trigeminal Neuralgia. This can be very painful as it deals with nerves in the face. Question 1 coming right up! https://t.co/p4rrQDFb6Z
Must Stop MS! @MustStopMS
@wtfschuster What’s going on Steve? #ChatMS
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@DanJenDig Oh man! I would have totally joined in if it wasn’t the same time as #ChatMS
Must Stop MS! @MustStopMS
Q1 – Another painful symptom of MS is known as “TN” or Trigeminal Neuralgia. This can be server pain that extends down the side of the face…from your eyes down through your jaw. Have you experienced TN? #ChatMS https://t.co/2xCfjUXJv5
Must Stop MS! @MustStopMS
@TheDianeKramer Awww look at the puppy!! Hope you’re well! #ChatMS.
Kevin A @Big_in_VA
@MustStopMS A1 - Fortunately no I haven’t. #ChatMS
Must Stop MS! @MustStopMS
A1 - I’ve had “flashes” of pain in my temples that shoot down to my cheek bone and jaw but thankfully haven’t stuck around long #ChatMS
Must Stop MS! @MustStopMS
Here comes Q2! #ChatMS https://t.co/MuIPUkTENG
Must Stop MS! @MustStopMS
Q2 – Some articles state that TN is considered the worst pain known to medicine. How would you describe your experiences with Trigeminal Neuralgia? Was it just a small nuisance? Was it extremely painful? What was it like? #ChatMS
Kevin A @Big_in_VA
@MustStopMS I think my profile pic does it the best at the moment. #ChatMS selfie!#ChatMSSelfie https://t.co/jvB32AEpk3
Must Stop MS! @MustStopMS
@Big_in_VA What’s up Kev! #ChatMS
Must Stop MS! @MustStopMS
A2 - it was severely sharp pain and made me wince. Felt@like I was being jabbed with an ice pick or something. #ChatMS
Kevin A @Big_in_VA
@MustStopMS Hey Randy just enjoying the end of a long weekend. Although a fairly cold one. How about you? #ChatMS
Must Stop MS! @MustStopMS
Here comes Q3! #ChatMS https://t.co/IRliDe7U4z
Must Stop MS! @MustStopMS
Q3 – How often do you experience Trigeminal Neuralgia? When you do experience it how long does it last? #ChatMS
Must Stop MS! @MustStopMS
@Big_in_VA Doing well thanks! #ChatMS
Must Stop MS! @MustStopMS
A3 - It’s hard for me to give a frequency because it’s been random but I would say I get flashes of it at least a couple times per month. #ChatMS
Must Stop MS! @MustStopMS
#ChatMS
Must Stop MS! @MustStopMS
#ChatMS
Must Stop MS! @MustStopMS
#ChatMS
Must Stop MS! @MustStopMS
Time for Q4! #ChatMS https://t.co/L85zVZOpx2
Must Stop MS! @MustStopMS
Q4 – Do you experience the pain or discomfort from Trigeminal Neuralgia at certain times of the day more than others? Or after certain events or situations? Maybe stress or lack of sleep? #ChatMS
Rachel Heap @RHeap_1
@MustStopMS A2 - #chatms is that the peripheral nerve pain? Or the "hug"? Or migraines? I get all these. They're all very unpleasant for me. I'm already maxed out on pregabalin... so now I have to have more meds and more investigating... The idea of going through all that again... 😢😢 .
Must Stop MS! @MustStopMS
@RVHannay TN affects the nerves around the face. #ChatMS https://t.co/VJTpTRcGMj
Rachel Heap @RHeap_1
@mznormann @MustStopMS #chatMS I get that through my chest and abdomen. My flinch and twitching is noticable... So is the little cry of pain or sharply drawn in breath... #allthemfeels #fuckMS #MSlife #livingwithMS #DisabilityAwareness #invisibleillness
Must Stop MS! @MustStopMS
Q5 here we go! #ChatMS https://t.co/cVkVBnAOPB
Must Stop MS! @MustStopMS
Q5 – Have you found anything that helps the pain and discomfort from Trigeminal Neuralgia? Or helped TN episodes from occurring as often? #ChatMS
Rachel Heap @RHeap_1
@MustStopMS Definitely stress #chatMS #kickingMSinthebutt #DisabilityAwareness #livingwithMS #mslife
Must Stop MS! @MustStopMS
@TheDianeKramer I’ve always wanted to try this! #ChatMS
Must Stop MS! @MustStopMS
Here comes Q6! #ChatMS https://t.co/iXB3gNDoal
Must Stop MS! @MustStopMS
Q6 – Has an episode of Trigeminal Neuralgia ever affected your day to day tasks? Can you elaborate? #ChatMS
Salvatore @bulldog92711
@MustStopMS It can not come quick enough🤣😂 #ChatMS
Must Stop MS! @MustStopMS
@TheDianeKramer I’ll have to look up where the closest place is. I have no idea ! #ChatMS
Must Stop MS! @MustStopMS
Question 7 is on its way! #ChatMS https://t.co/Ded7BopTmg
Must Stop MS! @MustStopMS
Q7 – What tips or advice can you offer to someone who is experiencing pain and/or discomfort from Trigeminal Neuralgia? #ChatMS
MARKfromTX @Coffinessence
Great Never experienced or even read about this (knock on wood). Something else to look forward to. Always some new fresh hell around the corner.
Must Stop MS! @MustStopMS
#ChatMS
Must Stop MS! @MustStopMS
Well all our hour has come to an end. I hope you all enjoyed this week’s chat. Not as much participation as other weeks but that’s Ok. More will come in. It’s a unique topic. #ChatMS
Must Stop MS! @MustStopMS
I hope you all have a great evening and a great week. Stay warm everyone! See you next week! #ChatMS
Kevin A @Big_in_VA
@MustStopMS As always you bring attention to topics we all need to discuss. I don’t have this symptom fortunately but it afflicts so many. Thanks for all you do sir. Have a great week. #ChatMS
#ChatMS content from Twitter.