#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Must Stop MS! @MustStopMS Happy Monday everyone! #ChatMS starts now!!! Who's chatting tonight? Where are you chatting from? |
| Must Stop MS! @MustStopMS For those who do not know me, I am Randy and I am chatting from the lovely state of Maryland. #ChatMS |
 | Keisha Hester @keisha_maree @MustStopMS I’m here! 🙋🏼♀️ chatting from chilly Pennsylvania. #ChatMS |
| Must Stop MS! @MustStopMS @keisha_maree What part of PA?? #ChatMS |
 | Aleyna @AleynaMoreHuman I may not be contributing that much tonight but WILL be listening. #ChatMS 🙂 https://t.co/J1IvOhrcO8 |
| Must Stop MS! @MustStopMS For those new to #ChatMS all you have to do is search the hashtag to follow along. Also be sure to include the hashtag in your posts so everyone can see :) |
| Must Stop MS! @MustStopMS @luansills hahaha Hi there #ChatMS |
 | Patty Long @MSenIt4life I’m in SC with weather as flip floppy as me right now 🤣😁 #ChatMS https://t.co/IODn3r6kww |
| Must Stop MS! @MustStopMS @keisha_maree You guys got a little snow this year huh? #ChatMS |
 | Heather Davis @HtuffsDavis @MustStopMS Saratoga Springs #ChatMS |
| Must Stop MS! @MustStopMS Tonight we are talking about Confidence and Self-Esteem. We will also be talking about what you've found to help boost those. Question 1 coming up shortly! #ChatMS |
| Patty Long @MSenIt4life @luansills @MustStopMS LMAO! I guess I’m really coming to y’all from bed! #ChatMS |
| Patty Long @MSenIt4life RT @MustStopMS: For those new to #ChatMS all you have to do is search the hashtag to follow along. Also be sure to include the hashtag in your posts so everyone can see :) |
| Must Stop MS! @MustStopMS @magskiss Awesome! Always said i was gonna visit there one day. #ChatMS |
| Patty Long @MSenIt4life RT @MustStopMS: Tonight we are talking about Confidence and Self-Esteem. We will also be talking about what you've found to help boost those. Question 1 coming up shortly! #ChatMS |
| Must Stop MS! @MustStopMS Q1 – Many aspects of MS can take a toll on our self-esteem or confidence. Would you say #MultipleSclerosis affected your confidence? #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS Oh you know, just some. #ChatMS #ineedmildweather https://t.co/RQVRhNliAe |
| Patty Long @MSenIt4life @magskiss @MustStopMS Nice! #ChatMS |
| Must Stop MS! @MustStopMS @keisha_maree wow! Thats an awesome pic though. Except for the steelers hat. just sayin... #ChatMS |
 | Canes Fan 🇺🇸 @hcanes100 @MustStopMS @keisha_maree I believe the last time we get snow in Miami was 1979. :) #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS A1: to be honest, I’d always had terrible self-esteem. Just awful. But having a “permanent problem” like MS only made that worse. #ChatMS |
 | Modern Day MS @moderndayms Hi Everyone! #ChatMS #ModernDayMS https://t.co/IQtwnMBj5N |
| Modern Day MS @moderndayms RT @MustStopMS: Tonight’s #ChatMS is about boosting confidence and/or self-esteem. MS can take a toll on these due to many reasons. Let’s talk about what has helped you tonight at 7pm EST! |
| Patty Long @MSenIt4life Of course. It’s always difficult to start all over, especially when you didn’t choose too! #ChatMS https://t.co/syqa9RFvVB |
| Must Stop MS! @MustStopMS @moderndayms Hey there! #ChatMS |
 | iConquerMS @iConquerMS @MustStopMS A1 - I have always been somewhat OVER-confident but #MultipleSclerosis has definitely knocked that down a notch or two... mostly because of the physical deficits it has caused me as well as the overall unpredictable nature of the disease... #ChatMS |
| Modern Day MS @moderndayms Definitely. #ModernDayMS #ChatMS https://t.co/wIOX8iSkCQ |
| Aleyna @AleynaMoreHuman A1: Yes. Losing the ability to work, drive, etc was a real blow #ChatMS |
 | MSandMeMedia @MSandMeRadio @MustStopMS A1 - Definitely did for many years. I slowly got it back, but took a hit again when I became a quad. I had to adjust once again. #ChatMS |
| Modern Day MS @moderndayms RT @Aleynamorehuman: A1: A1: Yes. Losing the ability to work, drive, etc was a real blow #ChatMS |
| Must Stop MS! @MustStopMS @keisha_maree haha. being a Ravens fan I just can't do that #ChatMS |
| Patty Long @MSenIt4life @moderndayms Hey!!! 👋🏼 #ChatMS |
 | rocky raccoon @raccoonrock @MustStopMS A1 #chatms Hard to explain. Not better or worse, but it is different. MS reduces the number of F#@s you give and that can be oddly freeing. |
| Must Stop MS! @MustStopMS Q1b - Do you also have days where it feels like you take one step forward, then 2 steps back? #ChatMS |
| Modern Day MS @moderndayms Me too - BUT it also has give me a new confidence in not sweating the small stuff. #ChatMS #ModernDayMS https://t.co/8z68r3be5C |
| Must Stop MS! @MustStopMS @hughes__em @keisha_maree Thats why i thought you were from LA! haha #ChatMS |
| Modern Day MS @moderndayms This 👇 #ChatMS #ModernDayMS https://t.co/B8TqZeXSsf |
| Modern Day MS @moderndayms RT @raccoonrock: @MustStopMS A1 #chatms Hard to explain. Not better or worse, but it is different. MS reduces the number of F#@s you give and that can be oddly freeing. |
| Must Stop MS! @MustStopMS Q2 – Would you say this confidence change happened suddenly after diagnosis? Or was it a slower process over time/ #ChatMS |
 | Mary P. Pettigrew @pettigrew66 Yes!!!! That’s been my relief too. #chatMS https://t.co/glHsOez5Je |
| iConquerMS @iConquerMS @MustStopMS Q1 B - Many days are 1 step forward then 2 wobbly steps back in attempt to NOT fall on my face. #ChatMS |
| Modern Day MS @moderndayms RT @pettigrew66: Yes!!!! That’s been my relief too. #chatMS https://t.co/glHsOez5Je |
| Patty Long @MSenIt4life @raccoonrock @MustStopMS This is true. The difficult part is getting to where you really don’t give a flip. #ChatMS |
| Modern Day MS @moderndayms An evolving process. #ChatMS https://t.co/UbEyyzl07u |
| Must Stop MS! @MustStopMS There seems to be a common theme where MS has taught us not to sweat little things. #ChatMS |
| Canes Fan 🇺🇸 @hcanes100 @MustStopMS A1 - I would say this one is weird for me; however, I think that MS has improved my self-esteem and confidence. It took so long to explain WHY what was happening was happening; and finally gave me confidence to know what's next, what can I expect. I became more confident #ChatMS |
| Patty Long @MSenIt4life Not anymore! I’m only moving forward! #ChatMS https://t.co/aiYJDBYPaG |
| Mary P. Pettigrew @pettigrew66 A1b: Um... yes, the last couple days? Lol! I’m unfortunately good at scolding myself too. #chatms https://t.co/WHw9Cf8yb7 |
| Must Stop MS! @MustStopMS RT @MSenIt4life: Not anymore! I’m only moving forward! #ChatMS https://t.co/aiYJDBYPaG |
| Mary P. Pettigrew @pettigrew66 RT @MustStopMS: There seems to be a common theme where MS has taught us not to sweat little things. #ChatMS |
| Patty Long @MSenIt4life @moderndayms So true! #ChatMS |
| Modern Day MS @moderndayms RT @hcanes100: @MustStopMS A1 - I would say this one is weird for me; however, I think that MS has improved my self-esteem and confidence. It took so long to explain WHY what was happening was happening; and finally gave me confidence to know what's next, what can I expect. I became more confident #ChatMS |
| Modern Day MS @moderndayms RT @MustStopMS: There seems to be a common theme where MS has taught us not to sweat little things. #ChatMS |
| Canes Fan 🇺🇸 @hcanes100 @MustStopMS A2 - In understanding what was going on, I found I could prepare more for what was previously unknown. Once I had a good year or two under my belt, things became much more clear. #ChatMS |
| MSandMeMedia @MSandMeRadio @MustStopMS A1b - Most defintely. Living with so many chronic illnesses, just as I am adjusted to one situation I get a gut punch from another. It has gotten easier to adjust over the years. #ChatMS |
| Modern Day MS @moderndayms RT @MSenIt4life: Not anymore! I’m only moving forward! #ChatMS https://t.co/aiYJDBYPaG |
| Modern Day MS @moderndayms RT @hcanes100: @MustStopMS A2 - In understanding what was going on, I found I could prepare more for what was previously unknown. Once I had a good year or two under my belt, things became much more clear. #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS A2: mine was right away. I was in college and my newfound limitations and perceived shortcomings hit me hard since there were so many new differences between myself and my peers. I felt like I was even more not enough. #ChatMS |
| Must Stop MS! @MustStopMS @hughes__em Same here. I've always been self conscious about things and critical too #ChatMS |
| Modern Day MS @moderndayms Aren’t we all? #ChatMS https://t.co/KrXQL382PK |
| Aleyna @AleynaMoreHuman A2: Slow process, as I was gradually robbed of ability to walk, then work, then drive. #ChatMS |
| MSandMeMedia @MSandMeRadio RT @MSenIt4life: Not anymore! I’m only moving forward! #ChatMS https://t.co/aiYJDBYPaG |
 | christian . @dearest_monster @MustStopMS A1 #chatMS depends on the scenario. Intimately it definitely takes a hit on the ego but out and about I tend to have the same normal bit of hubris |
| MSandMeMedia @MSandMeRadio @MustStopMS A2- Mine has definitely developed over time. It has become more lasting through adversity. #ChatMS |
| iConquerMS @iConquerMS @MustStopMS Q2 - It was a slow process, when I was first diagnosed with MS I was crazy confident to "beat this" but over the years I guess I grew tired as I gained more and more disability. #ChatMS |
| Must Stop MS! @MustStopMS Q3 – Are you able to associate confidence or self-esteem issues with a particular symptom or symptoms? If so, which one(s)? #ChatMS |
| rocky raccoon @raccoonrock @MustStopMS A2 #chatms I think you go through the stages of grief. That's not a linear thing and the stages dont necessary go in any order. How it affects you when you come out the other side of that is different for everyone I think. I don't think its done changing me. So I guess over time |
| christian . @dearest_monster @MustStopMS A1b #chatMS definitely, constantly feel like I'm doing the cha cha |
| Patty Long @MSenIt4life For me dx was immediately followed by a downward spiral into the abyss of MS. It took it’s toll on mind, body & spirit at first. #ChatMS https://t.co/K7jddm2sRC |
| Modern Day MS @moderndayms Memory and speech problems can be embarrassing. #ChatMS #ModernDayMS https://t.co/dR11zKPtiU |
 | A Life Less Traveled @mjwentink @MustStopMS Self-esteem, yes. Confidence, no. It's not a daily thing, but sometimes when I feel like I'm not giving my family the full husband & father experience...well, that stings. #chatms |
| Mary P. Pettigrew @pettigrew66 Unfortunately, I’ve easily reached the don’t give a flip stage regarding my appearance/attire. “What?!?! Pj’s & no bra aren’t appropriate for dining out? Why, that’s simply appalling!” #ChatMS https://t.co/kChLDXvc55 |
| rocky raccoon @raccoonrock @MustStopMS A3 #chatms Unable to remember a common word during a meeting really frustrates me and I worry it makes me look dumb. |
| Patty Long @MSenIt4life @MustStopMS I think this is true of anyone truly sick of injured to near death. #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS I think it’s mostly about the aspects that don’t ever go away. The fatigue and pain and the things that will always limit me - at 19 that felt earth-shattering and like I’d never be normal again, let alone extraordinary. #ChatMS |
 | Kim C Dickerson M.S. @kimcdickerson @MustStopMS This is a great question! It’s hard to feel like a bada$$ when you walk like you’re drunk or sound like one! #chatMS |
| Mary P. Pettigrew @pettigrew66 I can relate to this! #chatms https://t.co/sJxjc27Rl1 |
| Keisha Hester @keisha_maree @raccoonrock @MustStopMS I have this happen so much! Embarrassing, for sure. #ChatMS |
| Kim C Dickerson M.S. @kimcdickerson @MSenIt4life The first year was the hardest. Actually, it was brutal. #chatMS |
| Canes Fan 🇺🇸 @hcanes100 @MustStopMS A3 - only symptom 4 me "is the insurance going 2 cover this". The biggest gain -confidence in growing to the point where I would tell the docs "NO!" & not just accept their words as gospel. I am glad I say NO 2 Def medical procedures. No more mult. mri's & lps 4 no reason #ChatMS |
| Mary P. Pettigrew @pettigrew66 This is a great topic, but my eyes are blind from too much computer time. Might be hit & miss for me tonight #chatMS |
| Patty Long @MSenIt4life I had to throw out the trash (old umm friends?) before I could be happy with myself again. The constant put downs had to go! #ChatMS https://t.co/t8Lr3nnLMx |
| Must Stop MS! @MustStopMS Q4 – Would you say your current confidence level is higher, lower, or about the same as it was when diagnosed? #ChatMS |
| christian . @dearest_monster @MustStopMS It is what it is. mS has taken a lot but bitching about it all doesn't accomplish anything #chatMS |
| iConquerMS @iConquerMS @MustStopMS A3 - One thing that really gets me is my balance and poor gate because it is the most visible. My vision is next because though you can't SEE it you can see that I can't drive and I am 27... #ChatMS |
| Canes Fan 🇺🇸 @hcanes100 @MustStopMS A4 - Higher. #ChatMS |
| christian . @dearest_monster @MustStopMS A4 #chatMS hmmmm... Lower! No no higher! Uhhh, it comes in waves really |
| Patty Long @MSenIt4life @pettigrew66 That’s the easy part. I was meaning the things people say to you, about you, and loudly say behind your back. Giving up bras, easy! #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS Q4: so much higher. I’ve really been able to overcome my perceived shortcomings and find my strengths, focus on the aspects of myself that MS can’t take from me, and eliminate the toxic things and people from my life. #ChatMS |
| Kim C Dickerson M.S. @kimcdickerson @MustStopMS Higher. With time comes acceptance. #ChatMS |
| rocky raccoon @raccoonrock @MustStopMS A4 #chatms maybe a bit higher, but for work reasons that are unrelated to MS. |
| Patty Long @MSenIt4life Way higher. Happy too! 😎 #ChatMS https://t.co/QXE6ps8hdX |
| A Life Less Traveled @mjwentink @MustStopMS Not symptoms, more the lack of certain experiences. For example, not making all of my kiddos events. I don't work, so I never come home from the office to be greeted with smiles. When days w/fam r planned around my health, etc. Things like that impact my self-esteem #chatms |
| Must Stop MS! @MustStopMS Q5 – What has helped the most in building or boosting your confidence levels when they may be lower than ideal? #ChatMS |
| Kim C Dickerson M.S. @kimcdickerson @Lighty99 @MustStopMS I used to equate my limitations with self-worth and then I realized how self-defeating that was. We are more than the things we can/can’t do. #chatMS |
| Must Stop MS! @MustStopMS RT @kimcdickerson: @Lighty99 @MustStopMS I used to equate my limitations with self-worth and then I realized how self-defeating that was. We are more than the things we can/can’t do. #chatMS |
| Keisha Hester @keisha_maree @MustStopMS A5: one of the big things for me was cutting out the things and people that made me feel like I wasn’t enough. And also focusing on the things and people that made me feel like the badass princess I wish I could be. #ChatMS |
| Must Stop MS! @MustStopMS RT @keisha_maree: @MustStopMS A5: @MustStopMS A5: one of the big things for me was cutting out the things and people that made me feel like I wasn’t enough. And also focusing on the things and people that made me feel like the badass princess I wish I could be. #ChatMS |
| christian . @dearest_monster @MustStopMS A5 #chatMS therapy has helped a lot with this. Being thankful for what it is that I do have, worrying what i don't have is petty and small and just harbors ill feelings in your mind and heart. |
| Must Stop MS! @MustStopMS RT @dearest_monster: @MustStopMS A5 #chatMS therapy has helped a lot with this. Being thankful for what it is that I do have, worrying what i don't have is petty and small and just harbors ill feelings in your mind and heart. |
| Kim C Dickerson M.S. @kimcdickerson @MustStopMS Learning how to silence the negative commentary (about myself) running through my head. It takes practice! #chatMS |
| Canes Fan 🇺🇸 @hcanes100 @MustStopMS A5 - This one is the easiest. 1. God. Without God, I am and always would be nothing. 2. Family. Without Family, I would be a mess. 3. Medicine. Without Medicine, there would be much less hope. 4. Friends. Without Friends, I would be lonely & confused. #ChatMS |
 | Seelie Kay @SeelieKay @MustStopMS Q5. Prayer and meditation. Simply giving myself a break.#ChatMS |
| Must Stop MS! @MustStopMS RT @hcanes100: @MustStopMS A5 - This one is the easiest. 1. God. Without God, I am and always would be nothing. 2. Family. Without Family, I would be a mess. 3. Medicine. Without Medicine, there would be much less hope. 4. Friends. Without Friends, I would be lonely & confused. #ChatMS |
| Must Stop MS! @MustStopMS RT @SeelieKay: @MustStopMS Q5. Prayer and meditation. Simply giving myself a break.#ChatMS |
| Kim C Dickerson M.S. @kimcdickerson @luansills @MustStopMS I bet you’re pretty resilient too 👍🏻 #chatMS |
| Patty Long @MSenIt4life Saying out loud or writing down all the good things going on! Remembering where I was with MS & how far I’ve come! #ChatMS #NotBedridden https://t.co/keVBYvCuMN |
| Must Stop MS! @MustStopMS Q6 – Some have answered this already, but do you do any mental exercises or other tasks on a daily basis to help with your confidence/self-esteem? #ChatMS |
| Patty Long @MSenIt4life @luansills I guess, but it sure seemed that way 🤪 Good Riddance! #ChatMS |
| Keisha Hester @keisha_maree @MustStopMS Q6: Does hugging my dog count? Because that really helps me let go of the crap that brings my self-esteem down. #ChatMS |
| Must Stop MS! @MustStopMS @keisha_maree Of course it does! #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A5 - Thinking about where I have been and how far I have come #ChatMS |
| A Life Less Traveled @mjwentink @MustStopMS Confidence is definitely higher. For me, being diagnoed with MS cleared a path around the regular BS of life. It's a constant reminder of how precious & awesome life is #chatms |
| Canes Fan 🇺🇸 @hcanes100 This is so true. Each day is like a box of chocolates as Forest would say. 95% of the day is merely will you have the ability to get up when you wake or will the MS cement keep you in the bed. #ChatMS https://t.co/HOuLa5myiB |
| Keisha Hester @keisha_maree @mjwentink @MustStopMS Yes! It gives you some serious perspective. #ChatMS |
| rocky raccoon @raccoonrock @MustStopMS A6 #chatms saying no to things allows you to put direct your energy in a more mindful way and not stress out trying to please others. |
| Must Stop MS! @MustStopMS Q7 – Last question of the night. What tips or advice can you offer to others living with MS or even caregivers who may be struggling with confidence or self-esteem issues? #ChatMS |
| Patty Long @MSenIt4life Write & say out loud how awesomely perfect you are just the way you are each time you doubt it, even if just for a second! #ChatMS https://t.co/TiX1nYKDrl |
| Canes Fan 🇺🇸 @hcanes100 @MustStopMS A7 - Others living w/ Live every day that your body is able as if it is your birthday, as U were reborn better than other days. Caregivers\other people around MS patients - Looks are deceiving, just because someone w\ms looks ok, Looks with MS deceive. #ChatMS |
| christian . @dearest_monster @MustStopMS A7 #chatMS talking to someone is not weak. We're all doing our individual best no reason to compare yourself. Learn to laugh and to let things go. |
| Keisha Hester @keisha_maree @MustStopMS A7: You don’t need to feel bad saying no to things and you absolutely don’t need to feel bad about eliminating things from your life that stress, depress, or exhaust you. YOU ARE ENOUGH. You will still doubt yourself occasionally. But no one else should. #chatms |
| Kim C Dickerson M.S. @kimcdickerson @MustStopMS If you feel overwhelmed, reach out for help. Whether it’s a friend or therapist, have someone you can talk to. #chatMS |
| Must Stop MS! @MustStopMS RT @MSenIt4life: Write & say out loud how awesomely perfect you are just the way you are each time you doubt it, even if just for a second! #ChatMS https://t.co/TiX1nYKDrl |
| rocky raccoon @raccoonrock @MustStopMS A7 #chatms Stand tall in your own skin, stop trying to adapt to a world built for other people, and own who you are. |
| Must Stop MS! @MustStopMS RT @hcanes100: @MustStopMS A7 - Others living w/ Live every day that your body is able as if it is your birthday, as U were reborn better than other days. Caregivers\other people around MS patients - Looks are deceiving, just because someone w\ms looks ok, Looks with MS deceive. #ChatMS |
| A Life Less Traveled @mjwentink @MustStopMS Writing. Podcasting. Baking. They are each therapeutic in their own way. And, ironically, I have multiple sclerosis to thank for all 3, b/c I would have never started doing them if it wasn't for being diagnosed with MS. #chatms |
| Must Stop MS! @MustStopMS RT @kimcdickerson: @MustStopMS If you feel overwhelmed, reach out for help. Whether it’s a friend or therapist, have someone you can talk to. #chatMS |
| Must Stop MS! @MustStopMS RT @raccoonrock: @MustStopMS A7 #chatms Stand tall in your own skin, stop trying to adapt to a world built for other people, and own who you are. |
| Keisha Hester @keisha_maree @MustStopMS Basically surround yourself with love. Even if it’s just your dog there #ChatMS https://t.co/fq1ewvN7iF |
| Must Stop MS! @MustStopMS RT @keisha_maree: @MustStopMS Basically surround yourself with love. Even if it’s just your dog there #ChatMS https://t.co/fq1ewvN7iF |
| Must Stop MS! @MustStopMS I hope you enjoyed tonight's topic. I believe this was a first time topic for #ChatMS |
| Must Stop MS! @MustStopMS Next week we will be discussing accepting the diagnosis and the different steps leading to acceptance. Hope to see you all there! Invite your friends! #ChatMS |
| Patty Long @MSenIt4life @MeredithJaggard I measure good days by smiles & laughter instead of how my CNS does or doesn’t work. #ChatMS |
| Patty Long @MSenIt4life @MustStopMS Have a good rest of the night! I enjoyed it!! ❤️❤️😎#ChatMS |
| Must Stop MS! @MustStopMS @luansills @kimcdickerson Thank You :) #ChatMS |
| Must Stop MS! @MustStopMS See you all next week! #ChatMS |
| Must Stop MS! @MustStopMS If you have any ideas for future #ChatMS topics let me know :) |
| Patty Long @MSenIt4life @luansills It is ok! I like that! #ChatMS |
| A Life Less Traveled @mjwentink @Lighty99 @MustStopMS Definitely don't miss the office or all the crapola that goes with it, ha! But I do miss my wife being proud of a promotion, or my kiddos running into my arms b/c they missed me #chatms |
| A Life Less Traveled @mjwentink @MustStopMS Positive thoughts & energy. My Mom used to say, "Kill them with kindness" and Mom was right. And that includes MS, too - "Kill it with kindness". #chatms |
| Must Stop MS! @MustStopMS RT @mjwentink: @MustStopMS Positive thoughts & energy. My Mom used to say, "Kill them with kindness" and Mom was right. And that includes MS, too - "Kill it with kindness". #chatms |
#ChatMS content from Twitter.