#ChatMS Transcript

Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.

ProfileTweet
Must Stop MS! @MustStopMS
Hey Hey Hey!!! It's #ChatMS time!
Must Stop MS! @MustStopMS
We are one week away from Easter. Is everyone ready for the Easter bunny? #ChatMS
Must Stop MS! @MustStopMS
Speaking of Easter, I just wanted to say its is heartbreaking to see the fires at Notre Dame in Paris today. #ChatMS
John Yellowcard @jyellowcard
I think that I just really need to process it... #chatms
TruthBeTold @truthbetoldms
@MustStopMS #chatms, hi Randy, what's tonights topic?
Must Stop MS! @MustStopMS
@truthbetoldms Hey there Marie! #ChatMS
Must Stop MS! @MustStopMS
Tonight during #ChatMS we will be talking about filing for disability. People with MS can have trouble with this because they "Don't look sick". #ChatMS
Jennie Narraway @jennarraway
RT @MustStopMS: Tonight during #ChatMS we will be talking about filing for disability. People with MS can have trouble with this because they "Don't look sick". #ChatMS
Must Stop MS! @MustStopMS
@luansills It's so sad. Though I did just read the 2 iconic towers will be OK. #ChatMS
Must Stop MS! @MustStopMS
I will be honest though, this is an area I do not know too much about so please if you have any questions after the chat you think i should have asked please let me know and I will retweet! #ChatMS
Must Stop MS! @MustStopMS
Question 1 coming right up! #ChatMS
TruthBeTold @truthbetoldms
@MustStopMS #chatms In Canada you can go back as far as 10 years. I just fund out about this. I had to have a form filled out by my doctor and they reassed my taxes going back to 2013.
Must Stop MS! @MustStopMS
RT @truthbetoldms: @MustStopMS #chatms In Canada you can go back as far as 10 years. I just fund out about this. I had to have a form filled out by my doctor and they reassed my taxes going back to 2013.
Must Stop MS! @MustStopMS
@truthbetoldms oh wow! #ChatMS
Must Stop MS! @MustStopMS
Q1 – We know that #MultipleSclerosis can unfortunately stop someone from being able to work. The next step for many is to try to get disability pay. If you are unable to work, do you currently get disability? #ChatMS
TruthBeTold @truthbetoldms
@MustStopMS #chatms I actually just did a commercial for it. If I can I will post and send the link. M
Lynne 🇺🇸 @Indy_Lynne
@MustStopMS #ChatMS A1 - Yes, spouse.
christian . @dearest_monster
@MustStopMS A1 #chatMS I do but I also work a little to not go crazy at home
Must Stop MS! @MustStopMS
Q2 – Getting approved for disability is not always an easy task for people with MS. Have you applied for disability, but have been denied? What was the reason for being denied? #ChatMS
Lynne 🇺🇸 @Indy_Lynne
@MustStopMS #ChatMS A2 - No. I talked with a previous employee of SS. No special guidance, just emphasis on process and information.
Must Stop MS! @MustStopMS
Q3 – How did you go about applying for disability? Did you speak to a lawyer? #ChatMS
MightyStrongMS @MightyStrongMS
RT @MustStopMS: Q1 – We know that #MultipleSclerosis can unfortunately stop someone from being able to work. The next step for many is to try to get disability pay. If you are unable to work, do you currently get disability? #ChatMS
Lynne 🇺🇸 @Indy_Lynne
@MustStopMS #ChatMS A3 - NO lawyer! Start with gathering ALL health information, job history information and then start the online process. No sugarcoating! You'll do all this for the attorney while being charged!
Must Stop MS! @MustStopMS
@anasou63 don't forget the hashtag :) #CHatMS
Must Stop MS! @MustStopMS
@dearest_monster @Indy_Lynne don't forget the hashtag :) #CHatMS
Must Stop MS! @MustStopMS
@MightyStrongMS don't forget the hashtag :) #CHatMS
TruthBeTold @truthbetoldms
@Indy_Lynne @MustStopMS #chatms Agreed no Lawyer.
Must Stop MS! @MustStopMS
@truthbetoldms @Indy_Lynne This is interesting. I would have though a lawyer would help. #ChatMS
Must Stop MS! @MustStopMS
Q4 – If you were denied initially, but then later approved, what did you have to do in order to get that approval? #ChatMS
John Yellowcard @jyellowcard
#chatms The first person you make contact with is not your friend, only well trained.
Can’t wait for 8/9/23 #RWT 🐝🍋🪩🪩🪩 @jenny_rasch
@MustStopMS @truthbetoldms @Indy_Lynne A3 I’m using a lawyer after getting denied the first round in my one. I’m using a lawyer for the appeal (and presumable hearing) This is too much to handle in my own and the fees are capped by law at 25% of backpay. #ChatMS
Must Stop MS! @MustStopMS
@epleshe don't forget to use the hashtag so everyone can see :) #ChatMS
MySageAdvice @mysageadvice
It’s usually just a game and you have to keep. Playing until they are absolutely sure you can’t work now or probably ever again. Must show specific proof of not being able to sustain the day.
TruthBeTold @truthbetoldms
@MightyStrongMS @MustStopMS #chatms. I heard that it is actual medical peronnel who review the claim. If thats true none of us should be denied. M
Can’t wait for 8/9/23 #RWT 🐝🍋🪩🪩🪩 @jenny_rasch
@MustStopMS #chatMS A4 I’ve been told it’s all about getting in front of a judge for a hearing (the 3rd round). They deny most apps and appeals because the job of those reviewers is to find a reason to deny. The judge makes a more unbiased review
Aleyna @AleynaMoreHuman
A3: I used a firm that specializes in disability. Got approved on my 1st try #ChatMS
Must Stop MS! @MustStopMS
RT @truthbetoldms: @MightyStrongMS @MustStopMS #chatms. I heard that it is actual medical peronnel who review the claim. If thats true none of us should be denied. M
TruthBeTold @truthbetoldms
@jenny_rasch @MustStopMS #chatms this is so disturbing
Must Stop MS! @MustStopMS
Q5 – How did you know it was time to apply for disability? #ChatMS
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: 30 minutes til #ChatMS!!
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q1 – We know that #MultipleSclerosis can unfortunately stop someone from being able to work. The next step for many is to try to get disability pay. If you are unable to work, do you currently get disability? #ChatMS
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q2 – Getting approved for disability is not always an easy task for people with MS. Have you applied for disability, but have been denied? What was the reason for being denied? #ChatMS
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q3 – How did you go about applying for disability? Did you speak to a lawyer? #ChatMS
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q4 – If you were denied initially, but then later approved, what did you have to do in order to get that approval? #ChatMS
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q5 – How did you know it was time to apply for disability? #ChatMS
TruthBeTold @truthbetoldms
@MustStopMS #chatms Q5. I realized that working fulltime was putting my well being at risk. I am almost 59 and been a good worker for 40 years. Thought I could finally get something good out of this beast
Aleyna @AleynaMoreHuman
A5: when I was physically unable to work #ChatMS
TruthBeTold @truthbetoldms
@MightyStrongMS @MustStopMS #chatms, Mighty Strong https://t.co/ZhvPF69wBy a great advocate.
John Yellowcard @jyellowcard
A5: I put my hand to lean on a small tree behind my workplace. I spun around it and hit the ground. #chatms
Must Stop MS! @MustStopMS
Q6 – What did you do for income before being approved for disability? #ChatMS
MySageAdvice @mysageadvice
When you simply can’t go anymore or you see that it’s getting close get a head start, especially if you have really good medical documentation. A supportive doctor is probably the number one factor in a speedy decision.
Mary Gerdt Parler:Alvarita1 @marygerdt
#ChatMS first time I applied and was denied as I went back to work after taking a leave of absence. It’s good to apply even if short term,even if it ends in denial. Next time I couldn’t work at all. You have to be very honest with yourself. Not easy to do. Write out your day.
John Yellowcard @jyellowcard
RT @truthbetoldms: @jenny_rasch @MustStopMS #chatms this is so disturbing
TruthBeTold @truthbetoldms
@MustStopMS #chatms A.6. well you have seen the commercial. Consulting work, All gig jobs. Not complaning
MySageAdvice @mysageadvice
Rough days .... try and prepare ahead ... most families don’t seem supportive, we had a help from family and friends. You do whatever you have to do and we did.
Must Stop MS! @MustStopMS
Q7 – What tips or advice can you offer to someone who is thinking about applying for disability or for someone who has been denied already? #ChatMS
John Yellowcard @jyellowcard
@truthbetoldms No, not physically, but that truly was the moment i realized it. #chatms
MySageAdvice @mysageadvice
Get an attorney after the first denial but don’t use a big disability firm ~ the state judges don’t actually like most of them. Find a good reputable small law firm that also deals in disability.
TruthBeTold @truthbetoldms
@MustStopMS #chatms A7, make sure you have all your ducks in a row. Your dates and the dr's dates and the Neurologists dates have to be in sync.
Aleyna @AleynaMoreHuman
A7: the letter from my doctor saying I couldn't work was key! #ChatMS
Must Stop MS! @MustStopMS
RT @truthbetoldms: @MustStopMS #chatms A7, make sure you have all your ducks in a row. Your dates and the dr's dates and the Neurologists dates have to be in sync.
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q6 – What did you do for income before being approved for disability? #ChatMS
Two Faces of MS 💋 @TwoFacesofMS
RT @MustStopMS: Q7 – What tips or advice can you offer to someone who is thinking about applying for disability or for someone who has been denied already? #ChatMS
Must Stop MS! @MustStopMS
RT @Aleynamorehuman: A7: A7: the letter from my doctor saying I couldn't work was key! #ChatMS
Must Stop MS! @MustStopMS
As always thanks for chatting guys. Again, this topic is something I don't have a lot of experience about, but I know its a topic thats important to us with MS. #ChatMS
John Yellowcard @jyellowcard
Yes #chatms
Must Stop MS! @MustStopMS
If I missed any question that you think I should have asked please let me know and I will post! #ChatMS
John Yellowcard @jyellowcard
Thank you, it was a great topic. #chatms
TruthBeTold @truthbetoldms
@MustStopMS #chatms I have lost weight sice that commercial. I dont look that hideous. Marie
MySageAdvice @mysageadvice
RT @truthbetoldms: @MustStopMS #chatms A7, make sure you have all your ducks in a row. Your dates and the dr's dates and the Neurologists dates have to be in sync.
Must Stop MS! @MustStopMS
@truthbetoldms stop that lol. #ChatMS
Must Stop MS! @MustStopMS
Have a great week everyone, and have a Happy Easter! #ChatMS
Aleyna @AleynaMoreHuman
Yes - this is exactly what I got! #ChatMS
TruthBeTold @truthbetoldms
@MustStopMS #chatms Same to you have a safe and healthy weekend.
#ChatMS content from Twitter.