#ChatMS Transcript
Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Must Stop MS! @MustStopMS It's #ChatMS time!! Woot Woot! Who's ready for some fun? |
 | Luis @lte66 Hello everyone!!! #ChatMS https://t.co/D1OnVGUTpe |
| Must Stop MS! @MustStopMS Let’s see your best dance moves!!!#ChatMS https://t.co/Xb7MXOtCuM |
| Must Stop MS! @MustStopMS @luansills OK Luan....whats your name for the MRI machine??? #ChatMS |
| Must Stop MS! @MustStopMS Today's #ChatMS is about MRIs. We all love the big noisy magnet don't we? Question 1 coming right up! |
| Must Stop MS! @MustStopMS Put on your gowns...it’s MRI #ChatMS time! https://t.co/OQQIy34A5t |
| Must Stop MS! @MustStopMS Q1 – MRI’s can become a normal part of life for those with #MultipleSclerosis. They are done to track disease progression and results can be used to make decisions on treatment as well. How often do you get an MRI? #ChatMS |
| Must Stop MS! @MustStopMS A1 - typically its once per year. #ChatMS |
| Luis @lte66 A1. I usually get an MRI every 3-4 months #ChatMS But I only get MRI w/ contrast once a year. https://t.co/flraLLOENO |
 | christian . @dearest_monster @MustStopMS A1 #chatMS once a year, this year though I had two because the switching of medications |
| Must Stop MS! @MustStopMS Q2 – Do your MRIs get done with or without contrast? #ChatMS |
| Must Stop MS! @MustStopMS A2 - both actually lol. Every one I've had they inject the contrast dye about half way though #ChatMS |
| christian . @dearest_monster @MustStopMS A2 #chatMS both |
| Luis @lte66 A2. Most of my MRI's are w/o contrast. I only get w/ contrast about once a year #ChatMS https://t.co/CGDxVEq7iM |
 | Mad Skillz @BowerMelisa @lte66 I get them about every two years since I have always been stable with contrast #ChatMS if I were to have any issues I would probably have to have one otherwise. |
| Must Stop MS! @MustStopMS Q3 – Are your MRIs usually brain only or do you get brain and spinal cord imaged too? How long do they typically take? #ChatMS |
| Must Stop MS! @MustStopMS A3 - Usually brain only, but my doc said every 2-3 years he likes to do everything #ChatMS |
 | PBW @Hawks50_2 @MustStopMS A1- once a year #ChatMS |
| PBW @Hawks50_2 @MustStopMS A2- both #ChatMS |
| Luis @lte66 A3. I only get MRI of the brain. My Dr. doesn't want me stay stuck in machine for too long. So scans are usually only 20 min. #ChatMS Dr just wants to see if there is any MS activity at all https://t.co/aqjDj8u3rh |
| Mad Skillz @BowerMelisa @MustStopMS We usually only do the brain.. the second one I had was everything, it showed no spine or cervical spine lesions. My next one will be my fourth and we will probably do it all again. #chatMS |
 | Kevin A @Big_in_VA RT @MustStopMS: Let’s see your best dance moves!!!#ChatMS https://t.co/Xb7MXOtCuM |
| PBW @Hawks50_2 @MustStopMS A3- Brain and neck. About an hour and change #ChatMS |
| Must Stop MS! @MustStopMS A2 - brain only usually takes 30-40 minutes. When I had everything last time I was in there for over 2 hours! I had to pee so bad haha #ChatMS https://t.co/hfIfJHh4Qj |
| Must Stop MS! @MustStopMS @B_hurdis don't forget to use the hashtag so others can see too :) #ChatMS |
| Must Stop MS! @MustStopMS Q4 – How comfortable are you when it comes to getting MRIs? Do you get anxious or claustrophobic or anything like that? #ChatMS |
| Must Stop MS! @MustStopMS A4 - I am pretty comfortable with them. I usually fall asleep actually. then get yelled at for twitching! #chatMS |
| Luis @lte66 A4. I usually just close my eye & take a nap lol #ChatMS Very comfortable. I have my PJ's on, take my shoes off. Very comfortable! https://t.co/fxrQmVb7Ik |
| PBW @Hawks50_2 @MustStopMS A4- nope I'm ok with them. I even fell asleep once! To be fair I was a little sleep deprived. #chatms |
| Mad Skillz @BowerMelisa @MustStopMS I don’t mind them to much... I get antsy though having to lay still. My doctor gives me something to keep me from ADD-ing out.. plus it makes my back hurt the hard table. #chatMS |
 | A Life Less Traveled @mjwentink @MustStopMS Usually, it's only an annual event. In the past, tho, I've had 2 in 1 year b/c of new lesion activity and changes in medication #chatms |
| Must Stop MS! @MustStopMS Q5 – Have you ever had to push the “Panic Button”? If so, what was the reason? How quick did they respond? #ChatMS |
| Must Stop MS! @MustStopMS A5 - I have always wondered what would happen. and its right there in my hand...but no i have not. #ChatMS |
| A Life Less Traveled @mjwentink @MustStopMS Both. In fact, never have had one without contrast #chatms |
| PBW @Hawks50_2 @MustStopMS A5- I've thought about it just for fun. But no I haven't. #chatMS |
| Must Stop MS! @MustStopMS @makkydoll oh yikes! Not a pleasant time huh? #ChatMS |
| Must Stop MS! @MustStopMS @makkydoll Did they like rush in? Or was it like OK we'll be there in a few? #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS they do brain brain stem and spinal cord. About 3 hours was the last one. |
| Must Stop MS! @MustStopMS @Big_in_VA Oh fun times isn't it? #ChatMS |
| Luis @lte66 A5. Luckily, I have never pushed the panic button #ChatMS One time I did fall asleep & thought I did, but maybe I was just dreaming lol https://t.co/P1ZfkHlOC4 |
| Must Stop MS! @MustStopMS Q6 – Are you given headphones to listen to music or anything to help drown out the bings, bangs, and boops? (You like those descriptions? haha) #ChatMS |
| Must Stop MS! @MustStopMS A6 - I am given headphones and asked what music I want to listen to. You can still hear the noises, but not as bad #ChatMS |
| Mad Skillz @BowerMelisa @MustStopMS Yes.. it really helps 😎 #chatms I like the music 🎶 option |
| Luis @lte66 @makkydoll No fun =( #ChatMS I hope all worked out in the end. |
| Kevin A @Big_in_VA @MustStopMS #ChatMS I get stiff and sore and generally uncomfortable. Just want to be able to move. |
| Must Stop MS! @MustStopMS @luansills They don't give it to you?? #ChatMS |
| christian . @dearest_monster @MustStopMS A6 #chatMS yes, without even asking. Help me fall asleep faster |
| Luis @lte66 A6. I stopped asking for the headphones. They suck!!! #ChatMS Never blocks the horrible sound machine makes. https://t.co/iOUITtkq3O |
| Must Stop MS! @MustStopMS Mid #ChatMS pause....I know I've had some more questions than usual the past few weeks. Are you guys OK with the speed I've been posting them? |
| Kevin A @Big_in_VA @MustStopMS #ChatMS no I haven’t |
| PBW @Hawks50_2 @MustStopMS A6- lol 😂 yup I get headphones with music #chatms |
| Luis @lte66 @MustStopMS Bring on the Q's! #ChatMS lol I have not problem with them. |
| A Life Less Traveled @mjwentink @MustStopMS Each MRI I've done has been brain and spinal cord. Usually take about 2 hours but that doesn't include the incredible dread I feel for the week or so leading up to it 😂😅🤕#chatms |
| Mad Skillz @BowerMelisa @MustStopMS I have never hit the button... 🤨 I don’t want to delay the test or have to start over. I’m guess I’m lucky I don’t have claustrophobia 🙏 #chatMS |
| Must Stop MS! @MustStopMS @makkydoll haha..i just imagine a buzzer going off each time. #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS yes something we all look forward to. 😉 |
| PBW @Hawks50_2 @MustStopMS Good for me #chatMS |
| Must Stop MS! @MustStopMS Q7 – Time to get creative! Who else drifts off into a fantasy world and starts making rhythms or games with the noises of the MRI machine? I know it is not just me…Tell your story! #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS yes and a choice of music types. Helps along with ear plugs. |
| PBW @Hawks50_2 @MustStopMS A7- I usually just worry about my daughter. Normal mom worrying. #chatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS yes since this is my first time participating. |
| christian . @dearest_monster @MustStopMS A7 #chatMS definitely, just making tracks in my head |
| Luis @lte66 A7. All the time! #ChatMS lol & i make up images from the specs I find from inside of the machine! https://t.co/SGciw2fwqd |
| A Life Less Traveled @mjwentink @MustStopMS To answer that question, I'll share with you a picture of me during my previous MRI #chatms https://t.co/gslJrgWqLh |
 | Paula Cherry @chadzmom Fellow MS’ers #ChatMS #MS https://t.co/oTP8csG5zk |
| Must Stop MS! @MustStopMS @Big_in_VA welcome :) #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS can’t say as I do. I start thinking about what I need to do afterwards. |
| Must Stop MS! @MustStopMS Q8 – How long do you typically have to wait before getting results? How do you feel during this waiting period? #ChatMS |
| Must Stop MS! @MustStopMS A8 - My doctor is usually pretty quick actually. I usually hear something next day. And once it was even later the same day. I am always a little anxious of there being more lesions #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS 1 to 2 weeks depends on the timing of the MRI versus Doctor appointment |
| Must Stop MS! @MustStopMS @makkydoll Yes! It's fun in a weird sort of way haha. #ChatMS |
| Luis @lte66 @faithq13 LOL no one wants to hear me singing #ChatMS =P |
| A Life Less Traveled @mjwentink @MustStopMS No, I have not. But seriously, they can't come up with a better name than "Panic Button"? Why not "Just Chillin Button" or "Driks are on the Neuro after the MRI is done" button? #chatms #JustSaying |
| Mad Skillz @BowerMelisa @MustStopMS The wait is never long except for the first one when I was being diagnosed, I usually feel pretty positive. #chatMS |
| Must Stop MS! @MustStopMS RT @mjwentink: @MustStopMS No, I have not. But seriously, they can't come up with a better name than "Panic Button"? Why not "Just Chillin Button" or "Driks are on the Neuro after the MRI is done" button? #chatms #JustSaying |
 | Amy Smith @AmySmith20014 RT @MustStopMS: Q1 – MRI’s can become a normal part of life for those with #MultipleSclerosis. They are done to track disease progression and results can be used to make decisions on treatment as well. How often do you get an MRI? #ChatMS |
| Must Stop MS! @MustStopMS Q9 – In your personal opinion, on a scale of 1-10, how important is it to get regular MRIs? Why did you choose that number? #ChatMS |
| PBW @Hawks50_2 @MustStopMS A8- 15,20 minutes. It's pretty nerve racking. #chatMS |
| Must Stop MS! @MustStopMS A9 - I say a definite 10! Even though they aren't the most pleasant experience, I'd rather know how active MS is even if I am not feeling anything different #ChatMS |
| Amy Smith @AmySmith20014 RT @MustStopMS: Q6 – Are you given headphones to listen to music or anything to help drown out the bings, bangs, and boops? (You like those descriptions? haha) #ChatMS |
| Amy Smith @AmySmith20014 RT @MustStopMS: A9 - I say a definite 10! Even though they aren't the most pleasant experience, I'd rather know how active MS is even if I am not feeling anything different #ChatMS |
| Luis @lte66 A9. I would give it a 8 #ChatMS It is very important to see if there is any activity or new lesions But the MRI is not 100%. You can find 1 lesion & feel like crap or your brain can look like a Xmas tree & feel fine. MRI doesn't tell you everything https://t.co/6jNsmk8yMF |
| Must Stop MS! @MustStopMS @makkydoll @mjwentink The "don't push it even though i really want to" button. #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS 7 would be my best estimate it’s important to track and know the progression but it should be a quicker process somehow. |
| Must Stop MS! @MustStopMS @1t0ughco0kie hey there! #ChatMS |
| A Life Less Traveled @mjwentink @MustStopMS I've had music in the past but not on the past few MRIs. My favorite musical MRI moment (because I love the dark irony) is when they piped in "All By Myself" by Celine Dion #chatms |
| PBW @Hawks50_2 @MustStopMS A9- I dunno bout numbers but I think it's pretty important to k ow what's going on in my brain. #chatMS |
| Must Stop MS! @MustStopMS Q10 – Last question of the night....What tips or advice can you offer to someone who may get anxieties when it comes to getting an MRI? #ChatMS |
| Luis @lte66 @faithq13 LOL If I sing in my head can they see that in the scan? hahaha! #ChatMS |
| Must Stop MS! @MustStopMS @lte66 @faithq13 They see it all!! #ChatMS |
| Luis @lte66 A10. I don't have any direct advice. Just what I do to make things easier. #ChatMS I usually sched. my appointments very early in the morning to skip the crowds & also to take care of MRI fast. https://t.co/T2MVzSSJW3 |
| Must Stop MS! @MustStopMS RT @lte66: A10. I don't have any direct advice. Just what I do to make things easier. #ChatMS I usually sched. my appointments very early in the morning to skip the crowds & also to take care of MRI fast. https://t.co/T2MVzSSJW3 |
| Kevin A @Big_in_VA @MustStopMS #ChatMS 1 of 2 possibilities. Either ask for prescription to help keep you calm which is fairly common from what I hear or do the go to your “Happy Place” trick imagine you are someplace else. |
| Must Stop MS! @MustStopMS @makkydoll #ChatMS https://t.co/b3XlRiStrc |
| Luis @lte66 @alliej05 @faithq13 I know right!!?? lol #ChatMS |
| Must Stop MS! @MustStopMS RT @Big_in_VA: @MustStopMS #ChatMS 1 of 2 possibilities. Either ask for prescription to help keep you calm which is fairly common from what I hear or do the go to your “Happy Place” trick imagine you are someplace else. |
 | iConquerMS @iConquerMS @MustStopMS A1 - About once a year #ChatMS |
| Must Stop MS! @MustStopMS Great chat tonight! It was fun. Awesome participation too! #ChatMS |
| Luis @lte66 @faithq13 Great to chat w/ you. Have fun at the hockey practice! #ChatMS |
| A Life Less Traveled @mjwentink @MustStopMS I usually can't get past how terrible my eyebrows look in the mirror that reflects back at me #ChatMS #futureandyrooney |
| iConquerMS @iConquerMS @MustStopMS A3 - I usually just have my brain done but every now and then (like a week ago) I do brain, cervical spine (neck) and thoracic spine (upper back) #ChatMS |
| Luis @lte66 Great chatting w/ everyone! I hope u all have a great night! #ChatMS https://t.co/KLiByPCBse |
| Must Stop MS! @MustStopMS Can I ask a favor of you guys? Last year I won the #WEGOHealthAwards for "Best in Show - Twitter". I've been nominated again for Twitter and Facebook. Can you please endorse me if you feel I've done a good job? It only takes a minute. Thank you! #ChatMS https://t.co/KRR1u13ttr |
| Must Stop MS! @MustStopMS @mjwentink You see yourself? The mirrors I have show me my feet lol. #ChatMS |
| Luis @lte66 @makkydoll It was all a waste of time for me. I could never hear the music on the headphones lol #ChatMS |
| Must Stop MS! @MustStopMS @lte66 Thanks Luis!!! Have a great one as well! #chatMS |
| A Life Less Traveled @mjwentink @MustStopMS Yep, I can see both the top of my head (eyebrows) and down to my feet, depending on the angle I look! #chatms |
| iConquerMS @iConquerMS @MustStopMS A6 - Depends on the location. Sometimes I just get earplugs, sometimes ear plugs + headphones and last time I got these headphone things that had the earplugs built in? I mean they obviously had cover things to keep them sanitary but that was a first #ChatMS |
| Must Stop MS! @MustStopMS Have a great week everyone! Thank you all for joining in! If you missed it you can always scroll back through..Or we have a #chatMS Replay in 2 hours! |
| iConquerMS @iConquerMS @MustStopMS A4 - I used to be claustrophobic but now I find the experience "relaxing" haha... seriously. #ChatMS |
| Kevin A @Big_in_VA @MustStopMS #ChatMS thank you and I will try and participate again |
| iConquerMS @iConquerMS @MustStopMS A7 - I have to focus really hard on not smiling at all the funny sounds... I feel dumb... and then I start counting all the buz-buz-buz'es and click-click-clicking because I am OCD like that #ChatMS |
| iConquerMS @iConquerMS @MustStopMS A2 - I have never had one without contrast #ChatMS |
| A Life Less Traveled @mjwentink @MustStopMS In the past, my neuro has prescribed me Valium and it has certainly helped. Alternatively, you can also read my little ode to the MRI for a few laughs 😂😂 #chatms https://t.co/HaPOi1x28n |
| iConquerMS @iConquerMS @Lighty99 @MustStopMS lol! #ChatMS |
#ChatMS content from Twitter.