#ChatMS Transcript

Healthcare social media transcript of the #ChatMS hashtag.
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See #ChatMS Influencers/Analytics.

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Must Stop MS! @MustStopMS
Hello everyone! That's right...It's Monday and its 7pm here on the east coast. and it's time for #ChatMS! That's right. We are back home in our normal time slot. Who else is excited???
Must Stop MS! @MustStopMS
Let's start off by telling me your name and what the best part of your day has been :) #ChatMS
Rick Lorentson @rickejk
@MustStopMS Rick here. Best part of the day was finally getting the Mrs. computer back up again. 4 hour effort that paid off in the end. 😀 Lame I know but the celebration was worth it. #chatms.
Coach Rusty @rusty_coach
@MustStopMS Russell and the best part of my day was dinner #chatMS
Must Stop MS! @MustStopMS
@Lexicolatry Hey there Eddie! #ChatMS
Must Stop MS! @MustStopMS
To follow along with #ChatMS all you have to do is search the hashtag. I'll post questions starting with Q1, Q2, etc. Please answer starting with A1, A2, etc. for the appropriate question. And of course use the hashtag so everyone can see!
Must Stop MS! @MustStopMS
@rusty_coach Hey there! Glad you could make it! #ChatMS
Must Stop MS! @MustStopMS
@luansills Happy Anniversary to you!! Enjoy!! #ChatMS
Must Stop MS! @MustStopMS
@cl3me Wow...hitting the wine reference early! woot! #ChatMS
Michelle @wordsbymj
@MustStopMS Michelle here. Rough day. Best part was probably scratching pup’s head. #ChatMS
Must Stop MS! @MustStopMS
@wordsbymj Well lets hope for a better evening! #ChatMS
Must Stop MS! @MustStopMS
It feels so good to finally be back on Monday evenings. Thank you again for adjusting and working with me the past few months. #ChatMS
Must Stop MS! @MustStopMS
For those who do not know me, my name is Randy, I was diagnosed 7 years ago last month, and we have been doing these weekly #ChatMS sessions for over 4 years now. Welcome all!
Must Stop MS! @MustStopMS
This week's topic is emotions/moodiness. MS can play a role in this too. Our emotions can change at the drop of a dime. Do you experience any of this? Let's talk about it. Question 1 coming right up! #ChatMS
Must Stop MS! @MustStopMS
@MyNieceTorpel awwww #ChatMS
Must Stop MS! @MustStopMS
@cl3me Sweet! #ChatMS
Must Stop MS! @MustStopMS
Here comes Q1! #ChatMS https://t.co/B6VOKhLHjo
Rick Lorentson @rickejk
@MyNieceTorpel @MustStopMS I'll have at least one answer w/o that tag. Drives me crazy. #chatms
Must Stop MS! @MustStopMS
Q1 – #MultipleSclerosis can wreak havoc on our emotions. One minute we may be just fine, but then they can change the next. Have you noticed any change in your emotions since diagnosis? #ChatMS
Rick Lorentson @rickejk
@MustStopMS A1. Not really, but to be honest life had smacked me around so much before DX that it was just one more thing. I learned eventually to let things slide off this ducks back. 😀 #chatms
Rick Lorentson @rickejk
@luansills @MyNieceTorpel @MustStopMS I try but just sometimes get into the answer and forget. #chatms
Must Stop MS! @MustStopMS
Question 2 coming up! #ChatMS https://t.co/C8Goo2JiWi
Must Stop MS! @MustStopMS
Q2 – How would you describe the change in emotions you may experience? For example, short tempered, crying for no reason, etc. #ChatMS
Rick Lorentson @rickejk
@luansills @MustStopMS It is that noticing part that gets hard sometimes. #ChatMS
John Yellowcard @jyellowcard
@MustStopMS A1: I read that and laughed. #chatms
Must Stop MS! @MustStopMS
@rusty_coach Don't forget to include hashtag #ChatMS so others can see too :)
Must Stop MS! @MustStopMS
A2 - I'll find myself starting to tear up at the weirdest things. Like TV commercials haha. Its weird! #ChatMS
Rick Lorentson @rickejk
@MustStopMS A2 Does frustration count? I have discovered I get frustrated quickly at little things. #ChatMS
Must Stop MS! @MustStopMS
@rickejk I would think that definitely counts! #ChatMS
Must Stop MS! @MustStopMS
@notronffej I hear you on the anxiety...ugh! #ChatMS
Salvatore @bulldog92711
@MustStopMS A1 - My wife tells me I have mood swings but I see it as a change in thought process. 😂 #chatms
Must Stop MS! @MustStopMS
Question 3 here we go! #ChatMS https://t.co/TSRzGSmRcg
Must Stop MS! @MustStopMS
Q3 – Have you heard of the pseudobulbar affect? In which you can cry and/or laugh uncontrollably. Even in inappropriate times? Do you have experience with this? #ChatMS
$Spooka6 @Spooka77
RT @MustStopMS: Q3 – Have you heard of the pseudobulbar affect? In which you can cry and/or laugh uncontrollably. Even in inappropriate times? Do you have experience with this? #ChatMS
Rick Lorentson @rickejk
@MustStopMS I has been a laud back guy, and then the little things would frustrate me. I just chalked up to having kids. But they are adults now and I still have times when it flares up. #ChatMS
PBW @Hawks50_2
@MustStopMS The best part of my day was when my daughter said Mommy Mommy!!! When she came home from school. #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A2: definitely quick tempered at times. Other times just clam up and get lost in my own head. #chatMS
Must Stop MS! @MustStopMS
@Spooka77 Have you had an issue with things happening at a time they shouldn't? #ChatMS
Must Stop MS! @MustStopMS
@Hawks50_2 awwww #ChatMS
Must Stop MS! @MustStopMS
@rusty_coach Oh yeah...been there too. Like you can't process things. #ChatMS
Rick Lorentson @rickejk
@MustStopMS A3 I read about that, never experienced it. #ChatMS
Coach Rusty @rusty_coach
@MustStopMS Yes exactly - or processing too much of the things #chatMS
Must Stop MS! @MustStopMS
Question 4 knocking at the door! #ChatMS https://t.co/W2Pxp9Utpc
PBW @Hawks50_2
@luansills @MustStopMS Happy Anniversary woohoo 🙌🏻 what number #ChatMS
Must Stop MS! @MustStopMS
Q4 – Do you notice if your changes in emotions seem to be more vulnerable or all over the place after certain times or situations? #ChatMS
PBW @Hawks50_2
@MustStopMS She's not a snuggly mushy kid so it's really special when she does it. #ChatMS
Salvatore @bulldog92711
@MustStopMS A3 - No experience with this #chatms
Rick Lorentson @rickejk
@MustStopMS A4 No not really. They seem to be unrelated. #ChatMS
regularASSnae 💋 @MarieNique_
RT @MustStopMS: Q1 – #MultipleSclerosis can wreak havoc on our emotions. One minute we may be just fine, but then they can change the next. Have you noticed any change in your emotions since diagnosis? #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A4: when I’m around others with MS it’s sometimes too much. Seeing everyone’s different disease progression and connecting over our shared experience just overwhelms me. Even my infusions are tough for this reason. #chatMS
PBW @Hawks50_2
@MustStopMS A one. Yes #ChatMS
Rick Lorentson @rickejk
@mattalleng @cl3me @MustStopMS I have been there. Sometimes it is a huge battle just to get started. I have to keep reminding myself that it is important to get moving. #ChatMS
Must Stop MS! @MustStopMS
@rusty_coach Lots of things can hit you at once when it comes to this disease. But we learn to manage that and what to focus on. #ChatMS
Salvatore @bulldog92711
@MustStopMS A4 - I would say “all over the place”! Things I would brush off now fester in me #ChatMS
Must Stop MS! @MustStopMS
Q5 lets roll! #ChatMS https://t.co/NuQMQheSAe
Must Stop MS! @MustStopMS
Q5 – Have you found anything that has helped or prevented mood swings or emotional changes? #ChatMS
John Yellowcard @jyellowcard
@rusty_coach @MustStopMS It does that to me sometimes, but you know you are not alone. #chatms
PBW @Hawks50_2
@MustStopMS A two. Crying or laughing for no reason. Snapping or irritable without being provoked. One time I got really depressed for a few hours. That was really scary. #ChatMS
Rick Lorentson @rickejk
@MustStopMS A5 yes my Wife. She will support me in the downs and also will help me get out of the blues. #ChatMS
PBW @Hawks50_2
@MustStopMS A three. A little bit yes. #ChatMS
Must Stop MS! @MustStopMS
@luansills i like to eat Kit Kats......#ChatMS
Must Stop MS! @MustStopMS
@rickejk awesome! #CHatMS
PBW @Hawks50_2
@MustStopMS A five. Nope. #ChatMS
Must Stop MS! @MustStopMS
@luansills You miss my corny jokes! #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A5: Lexapro and cannabis #chatMS
Must Stop MS! @MustStopMS
Time for Q6 already! #ChatMS https://t.co/l1wJPADyyC
Genia💚AlwaysSmile @AlwaysSmile79
RT @MustStopMS: Q1 – #MultipleSclerosis can wreak havoc on our emotions. One minute we may be just fine, but then they can change the next. Have you noticed any change in your emotions since diagnosis? #ChatMS
Must Stop MS! @MustStopMS
Q6 – Have you ever had to change plans or purposely have not gone somewhere due to your emotions? #ChatMS
John Yellowcard @jyellowcard
@MustStopMS A5: I use CBD Gummies. They help keep me smooth during the day. #chatms
PBW @Hawks50_2
@MustStopMS A six. Yes a few times. #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A6: nope - for better or worse I can bottle it in like a pro #chatMS #nothealthy
Rick Lorentson @rickejk
@MustStopMS A6 no not really. Mostly because of my support from my family. They keep me motivated to stay involved. #ChatMS
Must Stop MS! @MustStopMS
@rickejk thats great to have that support at home. #ChatMS
Salvatore @bulldog92711
@MustStopMS A5 - Sometimes just alone time, away from everyone, sitting on the porch getting lost in the clouds in the sky, weird I know 😂 #ChatMS
Must Stop MS! @MustStopMS
Time is getting away and I have 2 questions left. Jumping to Q7! #ChatMS https://t.co/vm1IdXsAt5
$Spooka6 @Spooka77
RT @MustStopMS: Time is getting away and I have 2 questions left. Jumping to Q7! #ChatMS https://t.co/vm1IdXsAt5
Sect Away @SectAway
Q1--I get angry more quickly and intensely than before. Sometimes, I'm just angry for no reason at all (particularly when trying to fall asleep).
Must Stop MS! @MustStopMS
Q7 – Has your emotions/moodiness causes any issues at home and/or work? What did you do? #ChatMS
$Spooka6 @Spooka77
RT @MustStopMS: Q7 – Has your emotions/moodiness causes any issues at home and/or work? What did you do? #ChatMS
PBW @Hawks50_2
@rusty_coach @MustStopMS Ha men. I have one of this living in my house. Claims he has no emotions and doesn't know what feelings are. 😂🙄#ChatMS
PBW @Hawks50_2
@MustStopMS A seven. Once. My mother came to help me and I kept snapping at her for no reason and I was trying to explain that it was the MS but that didn't go over so well. 😞#ChatMS
Rick Lorentson @rickejk
@MustStopMS A7 as I mentioned earlier that Frustration was my biggest concern. So when I feel that coming on, I will excuse myself and find a place to let it soothe away. #ChatMS
MS Warrior in Recovery @Inspire1daily
@MustStopMS Yes. I get irritable. I’m learning to recognize this and take a time out. Go for a walk. Deep breathe. My husband is great at letting me know in a gentle way and helps calm me down. In the past it has disrupted some friendships and relationships. #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A7: I’ve gotten feedback at home that my mood could use an adjustment #chatms 😳
Rick Lorentson @rickejk
@bulldog92711 @MustStopMS It is one of the worst things about winter. Those days are rare and far between. #ChatMS
Coach Rusty @rusty_coach
@notronffej @MustStopMS I had a similar experience with Zoloft but this one helps me hold it in the road without sleeping through it all #chatms
Must Stop MS! @MustStopMS
Q8 time! #ChatMS https://t.co/I5ovqBsjg2
Salvatore @bulldog92711
@MustStopMS A7 - Not yet #ChatMS
Must Stop MS! @MustStopMS
Q8 – What tips and/or advice would you offer to someone with MS who may be starting to experience changes in their emotions? #ChatMS
Must Stop MS! @MustStopMS
@karmabi39505804 jealous! #ChatMS
Rick Lorentson @rickejk
@MustStopMS A8 recognize that the moodiness is coming and find a quiet or a happy place. If I can't get away from an issue I remind myself of the happiness at home. #ChatMS
Must Stop MS! @MustStopMS
RT @rickejk: @MustStopMS A8 recognize that the moodiness is coming and find a quiet or a happy place. If I can't get away from an issue I remind myself of the happiness at home. #ChatMS
Coach Rusty @rusty_coach
@MustStopMS A8 tell your doctor. You won’t get in trouble. You’re not weak, you’re just a human being trying to thrive in the face of an awful disease. #chatMS
PBW @Hawks50_2
@MustStopMS A eight. Tell ur loved ones and those close to u that this is happening so they don't take it personally. They need to know that it will pass. #ChatMS
Must Stop MS! @MustStopMS
RT @Hawks50_2: @MustStopMS A eight. Tell ur loved ones and those close to u that this is happening so they don't take it personally. They need to know that it will pass. #ChatMS
Must Stop MS! @MustStopMS
RT @rusty_coach: @MustStopMS A8 tell your doctor. You won’t get in trouble. You’re not weak, you’re just a human being trying to thrive in the face of an awful disease. #chatMS
Must Stop MS! @MustStopMS
Well all....our hour has come to and end. It felt good to be back on Monday evening. I hope you all enjoyed today's #ChatMS
Must Stop MS! @MustStopMS
Remember, there is also a closed/private group on Facebook where we post questions too. Search for #ChatMS there to find it. Only members in the group can see your posts. Q's are also posted on instagram.
Must Stop MS! @MustStopMS
Would you like to host #ChatMS one week? Do you have a topic suggestion? Let me know! See you all next week. Stay awesome!
Salvatore @bulldog92711
@MustStopMS A7 - At home some issues🤫. Let it play out, go to bed and start the next day a new! 🤷‍♂️#ChatMS
John Yellowcard @jyellowcard
Thank You #chatms
PBW @Hawks50_2
@MustStopMS Thaaaaaaaaanks 😍 #ChatMS
Rick Lorentson @rickejk
@MustStopMS Thanks it was great to get involved again. Amazing how I started the hour thinking I was removed from the subject, to discover even here #MS has touched me as well. Have a great week. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A1 - I have noticed that they are more prevalent now and I can be subject to more rapid mode swings than before. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A2 - I would say short tempered is the most common thing in my case. I think I used to be slower to anger than I am since diagnosis but that is just my opinion. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A3 - No that’s not something I have heard of or can say I have experienced. #ChatMS
Kevin A @Big_in_VA
@MustStopMS A4 - Yes my emotions tend to change more rapidly depending on how much I have stressed myself out for the day or sometimes during the previous hour. #ChatMS
#ChatMS content from Twitter.