#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
– ().
See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day wherever you are and welcome to #diversealz here to chat bout twitter and dementia. |
| Diverse Alzheimers @DiverseAlz We have a guest @CatherineTalb who is doing a PhD in this re nd has written papers. Are you here CT? #Diversealz |
| Diverse Alzheimers @DiverseAlz Let’s say Hi to @CatherineTalb when she arrives as a question is how friendly do you find Twitter engagement around dementia. Oh okay then and how friendly are we on #Diversealz. |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: Good day wherever you are and welcome to #diversealz here to chat bout twitter and dementia. |
| nursesKidONE @nursesKidONE RT @DiverseAlz: We have a guest @CatherineTalb who is doing a PhD in this re nd has written papers. Are you here CT? #Diversealz |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz @CatherineTalb Hello and welcome. Before we forget, wishing you well with your PhD. Please share becoming a doctor with us #Diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Let’s say Hi to @CatherineTalb when she arrives as a question is how friendly do you find Twitter engagement around dementia. Oh okay then and how friendly are we on #Diversealz. |
| Diverse Alzheimers @DiverseAlz We have a set of questions as per usual @CatherineTalb but would be great if you could highlight anything said that resonates with your research #diversealz |
| Diverse Alzheimers @DiverseAlz @CatherineTalb could you tell us why you are interested in this area, then we’ll push in. We chat and Chat and don’t want to lose you too early! #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Let’s push in with question one and a quick hello to everyone! #diversealz |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz Reading @CatherineTalb mentioning that twitter for chronic conditions and let’s be specific to dementia is under researched area. Question 1 is suddenly simple! Here goes #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1 How beneficial are tweetchats covering dementia such as @carechat and dementia specific chats such as #Alzchat and #diversealz. adding #diversealz has become more organic over years |
| Diverse Alzheimers @DiverseAlz Gave hashtags for #alzchat though can engage via @IRememberBetter and see archived convos via @alzchat and then @DiverseAlz organically organised mind! #diversealz. There were other specific dementia chats but no more. |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
 | Caroline @journeyofcareM @DiverseAlz @CatherineTalb I was talked in joining several yrs ago by a brother. I'd been adamant that I wasn't interested in social media, no Faceblook etc for me, but like a duck to water, I found lots of great ducks to socialise, share stories, woes with etc. A great community. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz @CatherineTalb I was talked in joining several yrs ago by a brother. I'd been adamant that I wasn't interested in social media, no Faceblook etc for me, but like a duck to water, I found lots of great ducks to socialise, share stories, woes with etc. A great community. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz There are twitter dementia communities! Some interact with each other. @journeyofcareM saying there are ducks on here. Well, with dementia one can sink or swim. Hopefully we are all swimming and becoming swans who can navigate so many issues. #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz Chats are invaluable tweets @Shedfieldlodge who mention something really key. Ideas. They can provide people/organisations with ideas. They are a resource for creatives and professionals interested in dementia #Diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz @CatherineTalb we know that twitter/tweetchats are valuable to researchers, writers, organisations,health care professional yet there appears to be a credibility/acceptability problem attached to them. Has this changed? #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18 #alzchat and #diversealz are my free weekly therapy sessions each week where people can judge me for who I truly am and are prepared to listen and learn. |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
 | Carolien Smits @Carolien_Smits RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz @CatherineTalb This was always something that @nurchat championed and @WeNurses highlight benefits of social media #Diversealz |
 | billshankly💙 @williamshankly RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| Caroline @journeyofcareM @CatherineTalb @DiverseAlz @CARECHAT I'm sure there are many ppl that are hesitant (as I was) to join in social media but would find enormous benefit if they did. Had I joined sooner I think it would've helped in the early difficult stages of mum's dementia. Do the Alz societies promote this ? #DiverseAlz |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
 | JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Question 2 is around Iona f and a word seen on timeline. Coping. Here goes...#Diversealz |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Gave hashtags for #alzchat though can engage via @IRememberBetter and see archived convos via @alzchat and then @DiverseAlz organically organised mind! #diversealz. There were other specific dementia chats but no more. |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @DiverseAlz @CatherineTalb I was talked in joining several yrs ago by a brother. I'd been adamant that I wasn't interested in social media, no Faceblook etc for me, but like a duck to water, I found lots of great ducks to socialise, share stories, woes with etc. A great community. #DiverseAlz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Question 2 How can Twitter (chats) help people cope? #Diversealz |
| nursesKidONE @nursesKidONE RT @Shedfieldlodge: |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz Indeed #diversealz has found its home moving from a chat that informed tweeting lots of resources, we used to give people topic to research and repodf on to still informing but becoming more personal at times via people’ s stories/shares/interactions . This is trust. |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @CatherineTalb @DiverseAlz @CARECHAT I'm sure there are many ppl that are hesitant (as I was) to join in social media but would find enormous benefit if they did. Had I joined sooner I think it would've helped in the early difficult stages of mum's dementia. Do the Alz societies promote this ? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz We also know that friendships offline have developed/develop, online too. Networking. Via #DiverseAlz @AdelinaCoHe visited a memory clinic in Canada and used as part of research. People can put out calls when/if starting in dementia related roles #diversealz |
| Diverse Alzheimers @DiverseAlz Mushy forget researchers @ClarissaGiebel @nchadborn who are doing great work #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Question 3 Does anyone mention Twitter/tweetchats as viable? @helenfindlay does. Same here. Just asking #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz We joke here, we learn and there has been considerable (increased) learning about care homes - thanking @Shedfieldlodge for sharing and we do chat notwithstanding about Black, Asian, Minority Ethnic groups and inclusion from sight to hearing, learning disabilities #Diversealz |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz With Twitter paraphrasing @TommyTommytee18 you can just be...no pressure. #Diversealz |
 | Barbara Ivey @alzbarbie @DiverseAlz @helenfindlay (Joining late today!) I recommend Twitter chats to everyone I "meet" on Twitter who is experiencing dementia. #DiverseAlz |
| Barbara Ivey @alzbarbie RT @helenfindlay: |
| Caroline @journeyofcareM @DiverseAlz @helenfindlay I don't have a very large social circle. Actually my mum's care workers are the ppl I interact with the most. I share, verbally, all sorts of Twitter things I've come across with them. So indirectly, information, ideas, funny things, whatever, spreads further out. #DiverseAlz |
| Barbara Ivey @alzbarbie @CatherineTalb @ThatVDOVault read one of my Tweets & suggested I participate. #DiverseAlz |
| nursesKidONE @nursesKidONE @CatherineTalb @DiverseAlz Question: When @Twitter changed practices/policies regarding access to Twitter by third-party apps, was there any effect on availability or development of user-friendly interfaces that facilitate access to/participation in Twitter/chats by people w/ a dementia? #diversealz |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz Question 4 How important is trust? Aware Twitter open but think you know what is meant. Many participants have felt able to open up and even new people to timeline have sometimes felt able to share whole heartedly #Diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Indeed #diversealz has found its home moving from a chat that informed tweeting lots of resources, we used to give people topic to research and repodf on to still informing but becoming more personal at times via people’ s stories/shares/interactions . This is trust. |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Barbara Ivey @alzbarbie RT @journeyofcareM: @DiverseAlz @helenfindlay I don't have a very large social circle. Actually my mum's care workers are the ppl I interact with the most. I share, verbally, all sorts of Twitter things I've come across with them. So indirectly, information, ideas, funny things, whatever, spreads further out. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz @helenfindlay I don't have a very large social circle. Actually my mum's care workers are the ppl I interact with the most. I share, verbally, all sorts of Twitter things I've come across with them. So indirectly, information, ideas, funny things, whatever, spreads further out. #DiverseAlz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz What we have found @CatherineTalb is that we, note we, have built a network where people can call on one another at anytime. This was not envisioned when #Diversealz was set up. |
| Diverse Alzheimers @DiverseAlz Question 5 Can Twitter (chAts) be enabling? #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @alzbarbie: @DiverseAlz @helenfindlay (Joining late today!) I recommend Twitter chats to everyone I "meet" on Twitter who is experiencing dementia. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Diverse Alzheimers @DiverseAlz And like most things, we find that people come and go. Take what they need and leave when they have it. However we have super regulars. Thanks ducks! This using @journeyofcareM analogy! #Diversealz |
| nursesKidONE @nursesKidONE RT @DeeDavies12: |
| JOANNA 🐕🐈🐭🐁🐰🐴👮 @charitybegin4 RT @TommyTommytee18: |
| Barbara Ivey @alzbarbie @DiverseAlz Q4: Trust matters. I'm a Gen Xer. We're cynical. I followed this chats for weeks until I trusted the participants & the process. The conversation & connection I've built here has strengthened me. #Diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: We joke here, we learn and there has been considerable (increased) learning about care homes - thanking @Shedfieldlodge for sharing and we do chat notwithstanding about Black, Asian, Minority Ethnic groups and inclusion from sight to hearing, learning disabilities #Diversealz |
| Caroline @journeyofcareM @CatherineTalb I was really green when I joined, so started following others involved with dementia & was led me to chats that happened weekly @IRememberBetter & @creativitycare . The empathy & compassionate understanding shown really astounded me. Like a lifeline thrown. #DiverseAlz |
| Barbara Ivey @alzbarbie RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Can’t keep tabs on all follow but appreciate all. We have ‘celebrated’ marriages (@MumbytheSea births, doctorates from almost beginning to end (@ClarissaGiebel), research (@nchadborn), helped with research. Guess we are family as mentioned earlier #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz Question 6: How accessible are tweet chats? #Diversealz |
| nursesKidONE @nursesKidONE @DiverseAlz @CARECHAT A1. Also important is the international participation/perspectives. I began to learn what a proper diagnosistic evaluation should include from chatters in UK and about primary progressive aphasia from @YODsupporter in Australia. #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 1 How beneficial are tweetchats covering dementia such as @carechat and dementia specific chats such as #Alzchat and #diversealz. adding #diversealz has become more organic over years |
| Barbara Ivey @alzbarbie RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @CatherineTalb @DiverseAlz @CARECHAT I'm sure there are many ppl that are hesitant (as I was) to join in social media but would find enormous benefit if they did. Had I joined sooner I think it would've helped in the early difficult stages of mum's dementia. Do the Alz societies promote this ? #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Reminder from @DignifiedDemen1 that participation can promote one’s work #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: @DiverseAlz @CARECHAT A1. Also important is the international participation/perspectives. I began to learn what a proper diagnosistic evaluation should include from chatters in UK and about primary progressive aphasia from @YODsupporter in Australia. #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @Shedfieldlodge: |
| nursesKidONE @nursesKidONE RT @alzbarbie: @DiverseAlz @helenfindlay (Joining late today!) I recommend Twitter chats to everyone I "meet" on Twitter who is experiencing dementia. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @DiverseAlz @helenfindlay I don't have a very large social circle. Actually my mum's care workers are the ppl I interact with the most. I share, verbally, all sorts of Twitter things I've come across with them. So indirectly, information, ideas, funny things, whatever, spreads further out. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz Thanks for mention of speed re: tweetchats. Like to monitor timeline but know miss many out and try to reach out to people days later especially if it has been a busy chat #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 4 How important is trust? Aware Twitter open but think you know what is meant. Many participants have felt able to open up and even new people to timeline have sometimes felt able to share whole heartedly #Diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: What we have found @CatherineTalb is that we, note we, have built a network where people can call on one another at anytime. This was not envisioned when #Diversealz was set up. |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 5 Can Twitter (chAts) be enabling? #Diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Also introduced pick and mix tweeting out numbered questions, sometimes quickly as don’t want to forget. That said #diversealz first reliant on interview style but soon learnt to follow tweetchats (long gone) with numbered questions. Will think about speed #Diversealz |
| nursesKidONE @nursesKidONE RT @alzbarbie: @DiverseAlz Q4: @DiverseAlz Q4: Trust matters. I'm a Gen Xer. We're cynical. I followed this chats for weeks until I trusted the participants & the process. The conversation & connection I've built here has strengthened me. #Diversealz |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| nursesKidONE @nursesKidONE RT @journeyofcareM: @CatherineTalb I was really green when I joined, so started following others involved with dementia & was led me to chats that happened weekly @IRememberBetter & @creativitycare . The empathy & compassionate understanding shown really astounded me. Like a lifeline thrown. #DiverseAlz |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Can’t keep tabs on all follow but appreciate all. We have ‘celebrated’ marriages (@MumbytheSea births, doctorates from almost beginning to end (@ClarissaGiebel), research (@nchadborn), helped with research. Guess we are family as mentioned earlier #Diversealz |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
| Diverse Alzheimers @DiverseAlz @CatherineTalb Thank you Have always tried to involve everyone so one of the unique things about #diversealz is posing questions based on interactions on the day. So question could be based on your tweet! #Diversealz |
 | Hilgos Foundation @IRememberBetter RT @journeyofcareM: @CatherineTalb I was really green when I joined, so started following others involved with dementia & was led me to chats that happened weekly @IRememberBetter & @creativitycare . The empathy & compassionate understanding shown really astounded me. Like a lifeline thrown. #DiverseAlz |
| Diverse Alzheimers @DiverseAlz We also ask if anyone has any questions. @CatherineTalb the hour is up but we chat and chat. Conscious of your time. Is there anything you are burning to know/ask and could folk on chat ask you some questions? If you have spare 10 minutes? #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @alzbarbie: @DiverseAlz Q4: @DiverseAlz Q4: Trust matters. I'm a Gen Xer. We're cynical. I followed this chats for weeks until I trusted the participants & the process. The conversation & connection I've built here has strengthened me. #Diversealz |
| Diverse Alzheimers @DiverseAlz We have asked @CatherineTalb if she has time for any questions. We’ll wait and see. #Diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @CatherineTalb: |
#DiverseAlz content from Twitter.