#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
– ().
See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day wherever you are and welcome to #diversealz here to chat dementia and health inequalities |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: #Diversealz thurs on hour is dementia and health inequalties. We are being joined by Dr @ClarissaGiebel, researcher in dementia, who we've followed/ interacted with before she became a doctor! Tune in! |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Good day wherever you are and welcome to #diversealz here to chat dementia and health inequalities |
| Diverse Alzheimers @DiverseAlz Today, we are happy to welcome a co-host Dr @ClarissaGiebel, a researcher in dementia care, runner too as exercise is going to come up but more about that later! #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Today, we are happy to welcome a co-host Dr @ClarissaGiebel, a researcher in dementia care, runner too as exercise is going to come up but more about that later! #diversealz |
| Diverse Alzheimers @DiverseAlz We say hi @ClarissaGiebel and look forward to your questions that we'll be prefacing as Q1, Q2 etc #diversealz |
| Diverse Alzheimers @DiverseAlz Lots to chat about but before we do, our icebreaker....what do you think about when you hear the words health inequalities and do you or can you relate it to dementia? #diversealz |
| Diverse Alzheimers @DiverseAlz We're going to look at three themes, not necessarily in this order: location , groups and risk reduction but also know that your tweets will help inform the discussion and take it in directions we don't know about yet! As you know, we do chat! #diversealz |
| Diverse Alzheimers @DiverseAlz Looking out for you ideas or thoughts on health inequalities and also, please think about dementia on this and then, we'll ask @ClarissaGiebel to ask the first question...this is host to guest hospitality #diversealz |
 | Bikerwise @bikerwise @ClarissaGiebel #diversealz intermittently with you tonight. |
| Diverse Alzheimers @DiverseAlz Let's get the conversation started and see where we go. @ClarissaGiebel over to you #diversealz |
| Diverse Alzheimers @DiverseAlz So, to formalise our icebreaker, we have Q1 What do you think when you hear the word health inequalities? #diversealz |
| nursesKidONE @nursesKidONE A1. One concern is inequality of access to accurate and complete assessments. This also affects quality of research on prevalence of dementia in groups when it is based on a review of medical records & billing codes. #diversealz |
| Diverse Alzheimers @DiverseAlz Health Matters: Health inequalities and dementia published by Public Health England (2016): https://t.co/5MHarmw86u #diversealz |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz County Officials Announce Plans to Tackle Health Inequalities via ARL Now: https://t.co/ibvOFgQ1zt #diversealz #USA |
| nursesKidONE @nursesKidONE RT @ClarissaGiebel: |
| nursesKidONE @nursesKidONE RT @ClarissaGiebel: |
| Bikerwise @bikerwise @ClarissaGiebel @nursesKidONE #diversealz A diagnosis of dementia is considered enough, insufficient attention is given to refining the diagnosis or providing ongoing support. |
| Diverse Alzheimers @DiverseAlz Question 2: Where you live can determine the care you receive even the information. Why should this matter? Do you have any experience/knowledge of this? #diversealz |
| Bikerwise @bikerwise @TommyTommytee18 #diversealz Totally agree with you Tommy. Just told it is a foregone conclusion of dementia rather than given support to fight it. |
 | Claudia @ClaudiaACooper1 RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz @TommyTommytee18 Hold that thought or rather, we will and tweet around this soon. #diversealz |
| Bikerwise @bikerwise @DiverseAlz #diversealz This has become very obvious to us since husband's diagnosis. We get no health support other than through our GP from our health authority, no specialist support. Fortunately I found out about national level support. |
| Diverse Alzheimers @DiverseAlz Question 2 touches on the notion of postcode or zip code and how treatment can vary greatly. Any thoughts on this? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @bikerwise: @DiverseAlz #diversealz This has become very obvious to us since husband's diagnosis. We get no health support other than through our GP from our health authority, no specialist support. Fortunately I found out about national level support. |
| Diverse Alzheimers @DiverseAlz RT @bikerwise #diversealz This has become very obvious to us since husband's diagnosis. We get no health support other than through our GP from our health authority, no specialist support. Fortunately I found out about national level support. |
| Diverse Alzheimers @DiverseAlz We're going to tweet question 3 and this is via @ClarissaGiebel #diversealz |
| nursesKidONE @nursesKidONE @ClarissaGiebel @WHO This graphic suggests to me a possible causal relation between access to public school education and health inequalities. Could access to employment/economic opportunities be a factor in persistence of health inequalities? #diversealz |
| nursesKidONE @nursesKidONE RT @bikerwise: @ClarissaGiebel @nursesKidONE #diversealz A diagnosis of dementia is considered enough, insufficient attention is given to refining the diagnosis or providing ongoing support. |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 2: Question 2: Where you live can determine the care you receive even the information. Why should this matter? Do you have any experience/knowledge of this? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel I'm glad to be looking into health inequalities in dementia at @clahrc_nwc #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Q3! Thinking about groups in particular (any groups!) - are there any health inequalities in dementia you can think of/ have experiences with? #diversealz via @ClarissaGiebel |
| Diverse Alzheimers @DiverseAlz We turn to groups via question 3 and health inequalities. We are aware of minority groups (and think globally); people of colour, lesbian, gay, bisexual, transgender. Also think people with learning disabilities, people who are deaf/blind. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
 | DETERMINED @willibenext RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz Good point from @helenfindlay about why location and access to services matter and where she mentions side of the road. Think boundaries. Can literally be one road. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| nursesKidONE @nursesKidONE @DiverseAlz A2. I’d like to understand why discussion on dementias among African Americans seems limited to Alzheimer’s & vascular dementias. Is anyone researching FTD in African Americans? Is differential Dx important in all groups? Lack thereof affected support for my mom. #diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Glad you mentioned dementias as on our list of questions @ClarissaGiebel so going to make it our question four and please fill us in with they why and maybe how when you see it! #diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 2 touches on the notion of postcode or zip code and how treatment can vary greatly. Any thoughts on this? #diversealz |
| Diverse Alzheimers @DiverseAlz Question 4 coming up and going to argue the case that even health inequality in dementia and will then ask @ClarissaGiebel for the how. So to number 4 #diversealz |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz Question 4: Would you agree that there are health inqualities not only in dementia diagnosis but type and think this very important. Oops, is almost like there is no fairness in dementias #diversealz #raredementia #lewybodydementia #alzheimers |
 | IPA @IPA_Online live now on the #diversealz chat ⬇️ weigh in with your thoughts using the hashtag above Dr. @@ClarissaGiebel hosting @DiverseAlz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @nchadborn: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Seeing on timeline how getting help around dementia if from South Asian community can be more difficult. With respect, will like to add that there are several communities where this applies. Must give kudos however to researchers focusing on this area 1/2 #diversealz |
| Diverse Alzheimers @DiverseAlz 2/2 giving kudos to advocates also in South Asian communities, notably in UK, who are working hard to have their vooices heard and changing perceptions #diversealz |
| Diverse Alzheimers @DiverseAlz @Shedfieldlodge Health inequalties. There is going to be a question on risk reduction soon that should fit into your work? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| Diverse Alzheimers @DiverseAlz this |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
| Diverse Alzheimers @DiverseAlz This |
| Bikerwise @bikerwise @LynnGamble20 @DiverseAlz #diversealz Similar experience. |
 | Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @ClarissaGiebel: |
| Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @LynnGamble20: |
| nursesKidONE @nursesKidONE @ClarissaGiebel My mom was diagnosed using the MMSE, which turns out not to have been appropriate when a language deficit is the primary symptom. Probably didn’t help that most of her doctors hadn’t had any history w/ her. Her primary had retired. #diversealz |
| nursesKidONE @nursesKidONE RT @ClarissaGiebel: |
| Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Back on timeline....the "look after their own" always brings a reaction and with it assumptions. See African Caribbean mentioned. Let's add Irish community. However, let's also remember how times change and can add whole range of social, economic and cultural issues #diversealz |
| IPA @IPA_Online .@AFTDHope - invite you to check out the #diversealz chat on #healthinequalities as they relate to other forms of #dementia. Follow along with @DiverseAlz or host Dr. @ClarissaGiebel |
| Diverse Alzheimers @DiverseAlz Question 6 How do health inqualities apply to other forms of dementia and we know they do. Thinking of experiences of @charbhardy for one whose husband has a rare dementia #diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Good point from @helenfindlay about why location and access to services matter and where she mentions side of the road. Think boundaries. Can literally be one road. #diversealz |
| Diverse Alzheimers @DiverseAlz Hearing via @wordbursts about some poor services in Wales #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| IPA @IPA_Online last question on tonight's #diversealz chat: how to ensure everyone has access to @dementia care when needed? |
| nursesKidONE @nursesKidONE @ClarissaGiebel @bikerwise @alzheimerssoc @CAPHRI_UM Is anyone studying possible inequalities in “non-dementia related” health care in or out of care homes after diagnosis? My concern is that changes are mistakenly attributed to progression & not addressed, resulting in an adverse impact on quality of life of a PLWD. #diversealz |
| Diverse Alzheimers @DiverseAlz Q7 @ClarissaGiebel asks what do you think needs to be done to make sure that everyone can access #dementia care at the right time? #diversealz |
 | Denise Garth#votelabour @Denise99046990 RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Have got to ask Question 8 before forget as have seen research on the timeline and dementia and research appears to be at the forefront of most things #diversealz |
| Diverse Alzheimers @DiverseAlz Question 8: What needs to be done to encourage people to participate in research. Inequalites lie in the lack of recruitment of certain groups. Also wondering, on another matter, if gender comes into play? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nchadborn: |
 | S Olson, B.S, J.D. @ThatVDOVault @ClarissaGiebel A3 Young onset #dementia is getting unequal attention & care...saw slides from a presentation yesterday that had lifespan statistics only for people 65 & up living with #dementia #DiverseAlz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Question 9: Could notion of "they look after their own" be a barrier to accessing dementia care/information? Health inequalities often made difficult by sterotypes and perceptions. Earlier @TommyTommytee18 mentioned how some groups characterised by mental illness #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Great to see other dementias appearing on timeline and hearing about difficulties with diagnosis #diversealz |
| Diverse Alzheimers @DiverseAlz We have a co-host on tonight's chat. Dementia researcher @ClarissaGiebel. What are your thoughts on chat so far? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20 We had no formal follow up after my husband's diagnosis with Alzheimer's from anywhere - GP or Memory Clinic. Only contact from Age UK for sitting service. So frustrating #diversealz |
| Diverse Alzheimers @DiverseAlz Health inequalities, dementia and rural areas...see @YODsupporter who has tweeted eloquently and bluntly about this. She is part of several intiatives including award winning #Kiamadfc in Australia #diversealz |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz And yet, it seems that the greatest health inequalities are based on support....lack of it in several areas. Time line showing this #diversealz |
| IPA @IPA_Online starts with changing perceptions of what dementia is - and isn't. @DementiaFriends @Hilar4Charity two groups raising awareness and eliminating the stigmas that may go along with diagnosis |
| Diverse Alzheimers @DiverseAlz We haven't mentioned this but as a by the way...education is of great importance...may a discussion ensue if interested cc @nursesKidONE #diversealz |
#DiverseAlz content from Twitter.