#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
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See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day wherever you are. #diversealz here to chat about dementia and care homes in a convo to be led by you. |
| Diverse Alzheimers @DiverseAlz First off, our #a2zdementia icebreaker. What letter beginning with h is symbolic of dementia(s) tonyou and why? Please introduce self (optional) together with why you’re interested in tonight’s convo. #diversealz. |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: Good day wherever you are. #diversealz here to chat about dementia and care homes in a convo to be led by you. |
| nursesKidONE @nursesKidONE Hello everyone! #diversealz |
| Diverse Alzheimers @DiverseAlz We’re a friendly on #diversealz. Many of us have been chatting 4 years and hours! Lots of networks & imp associations formed. All welcome. Pls Treat everyone with respect. Individually, we might not agree with everything but we can disagree with grace. |
| Diverse Alzheimers @DiverseAlz Hello, happy....h for dementia proving to be a nice word on the horizon so far! #diversealz |
 | Caroline @journeyofcareM @DiverseAlz #diversealz Humanity, hope and happiness, and because I have to go soon and won't be back until the chat is over, haste. so for the topic, I would like to see the drugging of people in care homes to stop. Hope here today in B.C. Canada https://t.co/Sd5ffbNqaF #health #dementia |
| Diverse Alzheimers @DiverseAlz Please keep H words continuing throughout chat as you do. Meanwhile, here is question 1 #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1: what is the first word that you think of when somebody mentions care homes. Please tweet first word that comes to mind #diversealz |
| Caroline @journeyofcareM @DiverseAlz #diverseAlz desolation |
| nursesKidONE @nursesKidONE Honesty:an issue that arises frequently in dementia care: between PWD & care partner or family member; between a professional or institutional provider & their patient; in clinical trial research requiring informed consent by participant; in contracts of care homes. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE A1 Contracts ☺️ #diversealz https://t.co/s4THnvurzi |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: A1 Contracts ☺️ #diversealz https://t.co/s4THnvurzi |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
 | Chuck @OrangeChuck Unknown! Mom and dad feared one for her because they heard nothing but negatives from news and people they spoke with but I have spoken with some who say care is not always as bad as you sometimes hear. #diversealz https://t.co/KU2YlRoqbZ |
| Diverse Alzheimers @DiverseAlz Question 2: what can one hope from care homes? Hope (#a2zdementia) mentioned by @helenfindlay #diversealz |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Unknown! Mom and dad feared one for her because they heard nothing but negatives from news and people they spoke with but I have spoken with some who say care is not always as bad as you sometimes hear. #diversealz https://t.co/KU2YlRoqbZ |
| Chuck @OrangeChuck @MAREP_UW Yeah! You rarely hear a news story about good care sadly. Even see stories of people being cared for at home that have sad endings with abuse or stealing from patients. :( #diversealz |
| Diverse Alzheimers @DiverseAlz Thank you everyone. Such good one worded answers coming from question 1. Seems aim is going to be to frame questions around all of them. Stay tuned #diversealz. Going to be long night here but not for y’all! We pioneered 24 hour dementia chat |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Diverse Alzheimers @DiverseAlz so significant that we are starting conversation with a word from H our #a2zdementia letter and the powerful word Hope. Thanks @helenfindlay for starting us off #diversealz |
| nursesKidONE @nursesKidONE I think it's a mistake to base any relationship with a care home on hope. One must recognize that it is a business. Businesses are operated with varying ethical standards. Therefore caveat emptor and get any promises in writing in clear language as a start. #diversealz https://t.co/INbk4LMYYF |
| Diverse Alzheimers @DiverseAlz @Shedfieldlodge Have you given us your one word? It could be significant. #diversealz Will come back to experiences and the b word |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: I think it's a mistake to base any relationship with a care home on hope. One must recognize that it is a business. Businesses are operated with varying ethical standards. Therefore caveat emptor and get any promises in writing in clear language as a start. #diversealz https://t.co/INbk4LMYYF |
| Diverse Alzheimers @DiverseAlz There are two perspectives with the word hope and care homes. we have @nursesKidONE reminding us of practicalities, important and then seeing on timeline wishes,which can be equally important. Thoughts? #diversealz |
| Diverse Alzheimers @DiverseAlz Referred to wishes earlier and on reading @Shedfieldlodge and mention of "bad" experiences of many, there can also be hope for example that good homes can retain/maintan those standards. seen in past via @Minghowriter @helenfindlay tweets #diversealz |
| Diverse Alzheimers @DiverseAlz Question 3: how important is the concept of home? #diversealz |
| nursesKidONE @nursesKidONE Important for people to be realistic & prepared. Then, if things go as "hoped," it's a bonus. If not, be prepared to take action. Care home choices should not be based on marketing but on actual operations. And recognize that there could be a change of management. #diversealz https://t.co/lkNAi4BgqM |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: Important for people to be realistic & prepared. Then, if things go as "hoped," it's a bonus. If not, be prepared to take action. Care home choices should not be based on marketing but on actual operations. And recognize that there could be a change of management. #diversealz https://t.co/lkNAi4BgqM |
| nursesKidONE @nursesKidONE RT @dr_shibley: |
| Chuck @OrangeChuck Very for many I would imagine. I think we all want the desire for wherever we are to feel like home & to feel comfortable. #DiverseAlz https://t.co/hGAHMbgm7y |
| nursesKidONE @nursesKidONE But not a dysfunctional home. You want a home where each individual is respected and has appropriate freedom of self-expression as well as optimal support and care. #diversealz https://t.co/cFsA30iI9q |
| Diverse Alzheimers @DiverseAlz Along with the question on home has to be hope/wish/desire that the care home becomes a home/home from home (repetitions intentional) to person with dementia? #diversealz possible? some good experiences on timeline @Shedfieldlodge |
| nursesKidONE @nursesKidONE RT @dr_shibley: |
| Diverse Alzheimers @DiverseAlz RT @journeyofcareM: @DiverseAlz #diversealz Humanity, hope and happiness, and because I have to go soon and won't be back until the chat is over, haste. so for the topic, I would like to see the drugging of people in care homes to stop. Hope here today in B.C. Canada https://t.co/Sd5ffbNqaF #health #dementia |
| nursesKidONE @nursesKidONE RT @dr_shibley: |
| Diverse Alzheimers @DiverseAlz Two fold answer from @journeyofcareM including hope that use of meds not needed would stop #diversealz #carehomes |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
 | Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz question 4: care homes deeply associated with words fear, scary and yet relief. Why fear and scary, why relief? #diversealz |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Question 4 can also draw on how care homes have been portrayed over the years, media reports even notion people in care homes are old(er) #diversealz #stereotypes |
| Diverse Alzheimers @DiverseAlz RT @DeeDavies12: |
| Diverse Alzheimers @DiverseAlz Home is about security see @DeeDavies12 says much #diversealz |
| nursesKidONE @nursesKidONE RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Very for many I would imagine. I think we all want the desire for wherever we are to feel like home & to feel comfortable. #DiverseAlz https://t.co/hGAHMbgm7y |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Unknown! Mom and dad feared one for her because they heard nothing but negatives from news and people they spoke with but I have spoken with some who say care is not always as bad as you sometimes hear. #diversealz https://t.co/KU2YlRoqbZ |
| Diverse Alzheimers @DiverseAlz unknown from @OrangeChuck sums up so much about care homes and on timeline he speaks of how only the negatives came to the fore #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Chuck @OrangeChuck Here is the problem: I bet if I Google about care homes, my guess would be the I would find negative news stories about bad experiences and only good articles are PR from the homes themselves. This creates fear or at least the unknown. #diversealz https://t.co/oL65ZC9dFG |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @OrangeChuck: Here is the problem: Here is the problem: I bet if I Google about care homes, my guess would be the I would find negative news stories about bad experiences and only good articles are PR from the homes themselves. This creates fear or at least the unknown. #diversealz https://t.co/oL65ZC9dFG |
| Chuck @OrangeChuck I want to also add that I am sure there are some great homes out there and staff/people who love and care for PLWD but we rarely if ever hear these stories except in our chats. #diversealz https://t.co/Jq7aji6wy6 |
| nursesKidONE @nursesKidONE And placed in physical restraints to keep you under control in lieu of being assisted to use the bathroom as you've requested. #diversealz https://t.co/GSid3H9A9n |
| Diverse Alzheimers @DiverseAlz Media roles. media stories mentioned by @OrangeChuck and negative stories. Sadly, he is right and of course, we've researched lots of times. Ask often for good stories and examples. Makes difference #diversealz |
| Chuck @OrangeChuck Mom was diagnosed almost 10 years ago and I have only seen one positive news story since on care homes and that was about a cool idea for a dementia village in Europe. Yet far too often I see viral videos or stories of crimes/abuse that occurs. #diversealz https://t.co/Z7AFD7pNst |
 | Laura Wares @LauraWares RT @dr_shibley: |
| Diverse Alzheimers @DiverseAlz Question 5: you have been singled out as somebody who would know how to choose a good care home for a person with dementia How would you respond? #diversealz BTW you could be a person with dementia or have a link/association |
| nursesKidONE @nursesKidONE Many people also fear completing the legal documents which would give someone else control. Control is the key; people don't want to lose control of their lives. Isn't that why Alzheimer's is feared: it is associated with loss of control? #diversealz https://t.co/VMTqcQlZyx |
| nursesKidONE @nursesKidONE RT @dr_shibley: |
| Diverse Alzheimers @DiverseAlz @dr_shibley a question that might interest you - how to choose a care home for a person living with dementia. Would be good to see @DementiaAllianc @3NDWG response on this. Maybe they have something to point us to #diversealz |
| Naomi Martin 🇪🇺 🇺🇦 🥤🇬🇪 @GNaomiMartin RT @TommyTommytee18: |
| Diverse Alzheimers @DiverseAlz Reports by @CareQualityComm mentioned. Perhaps good to use as guide. Also @Crouchendtiger7 Mum's test, based on would the home be good enough for your mum or other relative of course. Actually, #diversealz asks would it be good enough for you? |
| Chuck @OrangeChuck @TommyTommytee18 I agree my friend. I only switched mom over to such undergarments because the accidents were becoming more normal without saying anything. I also try to do regular bathroom visits to help reduce amount of said accidents still. #diversealz |
| Diverse Alzheimers @DiverseAlz Want to tweet question 6 just to put it out there. Here it is #diversealz |
| Diverse Alzheimers @DiverseAlz Question 6: what questions would you ask staff at a prospective care home? #diversealz With @nursesKidONE on chat who is good with important practicalities, contracts, legalaties are so key #diversealz |
| Chuck @OrangeChuck @MAREP_UW I agree 100%! But I think sometimes that also depends on the area. Here in our area, we have family friends with nothing positive to add and a care home making news often for being understaffed/unqualified & issues that rise from such care. It's sad. #diversealz |
| Diverse Alzheimers @DiverseAlz @MAREP_UW Ha...humour as well... the subject of next week's chat as we need some light relief after 2 weeks as one does with dementia...#diversealz That said, look forward to reading your post chat responses and will certainly do some recaps. |
| nursesKidONE @nursesKidONE No doubt that there are good care homes. However, in the current economic climate, care homes are targets for investors whose primary/only goal is to make money from individuals who pay privately or from government funding of long term care. 1/2 #diversealz |
| Diverse Alzheimers @DiverseAlz This is one of those #diversealz chats with gems of responses so please know that will be going through chat overtime to acknowledge you all and pick up on your tweets |
| nursesKidONE @nursesKidONE 2/2 Add to this that large segments of the care home industry are not appropriately regulated or monitored to protect the rights of individual residents. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: No doubt that there are good care homes. However, in the current economic climate, care homes are targets for investors whose primary/only goal is to make money from individuals who pay privately or from government funding of long term care. 1/2 #diversealz |
| Diverse Alzheimers @DiverseAlz RT @dr_shibley: |
| Diverse Alzheimers @DiverseAlz Rights are mentioned by @dr_shibley and must remember the rights of people residing in care homes #diversealz |
| Chuck @OrangeChuck This is true for many. One of the main reasons I will continue mom's care for a long as I can is that mom and dad both wished for her to be cared for from home due to fears of issues they heard about. #diversealz https://t.co/nMN9dDeZxM |
 | AKA. MT POKKITS. @still_les RT @nursesKidONE: Many people also fear completing the legal documents which would give someone else control. Control is the key; people don't want to lose control of their lives. Isn't that why Alzheimer's is feared: it is associated with loss of control? #diversealz https://t.co/VMTqcQlZyx |
 | Dorianne Finlay @dorianne_finlay RT @helenfindlay: |
| Dorianne Finlay @dorianne_finlay RT @DeeDavies12: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz 'Should I put my elderly relative in a care home?'(2016) The Voice ... https://t.co/hzVn1hkhe2 has a checklist., will resonate with many and has focus on African Caribbean community #bme #bame #diversealz |
| nursesKidONE @nursesKidONE RT @LynnGamble20: |
| Diverse Alzheimers @DiverseAlz Question 7 (keyword via @DeeDavies12) How important is training and education? #diversealz |
| Diverse Alzheimers @DiverseAlz Would certainly want to know what staff know about dementia and wouldn't be afraid to ask. Infact, #diversealz question would have scenarios. |
| nursesKidONE @nursesKidONE I would prefer a care home with 24/7 access so I could monitor and respond as needed. Not w/ the intent to disrupt their operations. #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: There are two perspectives with the word hope and care homes. we have @nursesKidONE reminding us of practicalities, important and then seeing on timeline wishes,which can be equally important. Thoughts? #diversealz |
| Diverse Alzheimers @DiverseAlz Finally, question 8 as have been skimming through responses to question on first thought on thinking about care homes. Does a word stick out for you? Strangely, It's loneliness here. #diversealz |
 | SGardener @sandiegardener RT @nursesKidONE: No doubt that there are good care homes. However, in the current economic climate, care homes are targets for investors whose primary/only goal is to make money from individuals who pay privately or from government funding of long term care. 1/2 #diversealz |
| Diverse Alzheimers @DiverseAlz RT @Shedfieldlodge: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
#DiverseAlz content from Twitter.