#DiverseAlz Transcript
Healthcare social media transcript of the #DiverseAlz hashtag.
– ().
See #DiverseAlz Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diverse Alzheimers @DiverseAlz Good day wherever you are and welcome to #Diversealz Thurs here to chat about dementia and managing health with health care professionals. |
| Diverse Alzheimers @DiverseAlz Our #Diversealz Thurs chat comes about after asking an optician about tests for people with dementia and they were unsure saying they thought there was a special test. #diversealz |
| Diverse Alzheimers @DiverseAlz Of course we interviewed an optician a few years ago who specialised in home visits to people with dementia. Anyway, let's start. #diversealz |
| Diverse Alzheimers @DiverseAlz Our icebreaker. Anything spring to mind on thinking about communicating with health care professionals about a person living with dementia if you are in a care or supporting position or thoughts/experiences if you live with dementia? #diversealz |
| Diverse Alzheimers @DiverseAlz @ClarissaGiebel your every day (congrats) is it relevant to our chat as in communicating with health care professionals, by chance? #diversealz |
| Diverse Alzheimers @DiverseAlz This is so relevant to out chat tonight about interacting with health care professionals |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz We take to the timelines to discuss dementia and interacting with health care professionals when illness or the need for a medical, opticians/dentists visit occurs #diversealz |
| Diverse Alzheimers @DiverseAlz We have posted our icebreaker but will start the conversation with our first question. Will be monitoring ice breaker responses when they appear. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 1: Where do you begin? Seriously, where do you begin when it comes to the medical needs of a person living with dementia? Do you start with an overall medical for general health? #diversealz |
| Diverse Alzheimers @DiverseAlz As they say in the Sound of Music, let's start from the very beginning or is it at? Anyway, our first question is about general medical health - check ups #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Competence is the keyword in this discussion so far. A competent health care professional or to be precise as this coming up GP or primary health care professional #diversealz |
| Diverse Alzheimers @DiverseAlz We will return to this point |
| Diverse Alzheimers @DiverseAlz RT @ClarissaGiebel: |
| Diverse Alzheimers @DiverseAlz @ClarissaGiebel Thanks. So far competency coming up as health care professionals can be of great support. @DementiaUK Admiral Nurses sure to appear #diversealz |
 | nursesKidONE @nursesKidONE RT @DiverseAlz: Good day wherever you are and welcome to #Diversealz Thurs here to chat about dementia and managing health with health care professionals. |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Our icebreaker. Anything spring to mind on thinking about communicating with health care professionals about a person living with dementia if you are in a care or supporting position or thoughts/experiences if you live with dementia? #diversealz |
| Diverse Alzheimers @DiverseAlz Question 2: Are medical check-ups of any kind, important, if so why? #diversealz Any particular experiences to share, please |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Relevant to question 2 is a tweet from @ClarissaGiebel that some people with dementia MT have difficulty accessing anti dementia medication #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: @DiverseAlz Q2: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE @DiverseAlz Unless you can afford “concierge” care, in US system must be aware that limits on healthcare professionals’ time make it important to be well prepared w/ your questions at each visit. #diversealz |
| Diverse Alzheimers @DiverseAlz Carehomes appearing in the timeline in the context of continuing care. Clearly important to try to ensure that care homes have proper medical information about the person with dementia especially when transferring to a new home #diversealz 1/2 |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Question 1: Question 1: Where do you begin? Seriously, where do you begin when it comes to the medical needs of a person living with dementia? Do you start with an overall medical for general health? #diversealz |
| Diverse Alzheimers @DiverseAlz Where medical information is incomplete when a person with dementia is transferred to a new home , a carer, family member or supporter should see it as a new start and get everything updated. Positive from negative #diversealz 2/2 |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: @DiverseAlz Unless you can afford “concierge” care, in US system must be aware that limits on healthcare professionals’ time make it important to be well prepared w/ your questions at each visit. #diversealz |
| Diverse Alzheimers @DiverseAlz #diversealz we are going to talk about questions following a nudge (not literally) from @nursesKidONE |
| nursesKidONE @nursesKidONE @DiverseAlz A1. My preference would be to make sure that my loved one would see same team of physicians if hospitalized that s/he sees in office. Continuity of care can be valuable & facilitate decision-making. #diversealz |
| Diverse Alzheimers @DiverseAlz Several views for question 3 so will be good to hear your thoughts about preparedness and asking questions. Time is money so that can be a factor for some, time limits on consultation and, importantly, to get right answers at times, need to ask right questions #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: @DiverseAlz A1. My preference would be to make sure that my loved one would see same team of physicians if hospitalized that s/he sees in office. Continuity of care can be valuable & facilitate decision-making. #diversealz |
| Diverse Alzheimers @DiverseAlz Continuity of care and competency dominate this conversation and yet wondering how achievable that they are #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Question 4 is around responsibility and a comment from @helenfindlay on learning about dementias and how communication between health care professionals and carers/supporters should be a two way street #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Most people on the timeline will have a story to tell here, so let's move ahead with Question 4 #diversealz |
| nursesKidONE @nursesKidONE It’s also important for care partner & person Dxed to understand when the limited available medications for some types of dementias are not appropriate for their specific type of dementia & may even be harmful to them. #diversealz |
| Diverse Alzheimers @DiverseAlz Do you think it should be a "responsibility" of a carer/supporter to learn about dementia in order to help (more) when engaging with health care professionals? We are also getting into assertiveness here...are we not? #diversealz |
 | Lisa Dedden Cooper @LDeddenCooper RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz @DementiaView @helenfindlay Thank you for comment. What do you think about carer or supporter learning more about dementia in order to facilitate discussions with health care professionals? #diversealz |
 | the DAWN Method @theDAWNmethod RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Many people on the timeline could say, and rightly so, that they know more about the particular type of dementia and the person living with it, than the healthcare professional (hcp) they come into contact with. Ideally, one hopes hcp would take up joint partnership. #diversealz |
| nursesKidONE @nursesKidONE @DiverseAlz Availability of a complete medical history is important for ALL transfers, including hospitals & emergency transport workers as well as care/nursing homes & among all providers. Should carry all contact information & records with you. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: It’s also important for care partner & person Dxed to understand when the limited available medications for some types of dementias are not appropriate for their specific type of dementia & may even be harmful to them. #diversealz |
| nursesKidONE @nursesKidONE RT @DiverseAlz: Several views for question 3 so will be good to hear your thoughts about preparedness and asking questions. Time is money so that can be a factor for some, time limits on consultation and, importantly, to get right answers at times, need to ask right questions #diversealz |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz So much to think about. This RT @nursesKidONE It’s also important for care partner & person Dxed to understand when the limited available medications for some types of dementias are not appropriate for their specific type of dementia & may even be harmful to them. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: @DiverseAlz Availability of a complete medical history is important for ALL transfers, including hospitals & emergency transport workers as well as care/nursing homes & among all providers. Should carry all contact information & records with you. #diversealz |
| Diverse Alzheimers @DiverseAlz This |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20 I'm surprised that my husband gets nothing other than an annual medication review which basically is the GM asking if he's eating and saying carry on as things are. No blood pressure, blood tests, physical check over. Things could be being missed. #diversealz |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| Diverse Alzheimers @DiverseAlz @andygeddisregan @LynnGamble20 Thanks for response. Would you agree it could be a start? BTW, we were to do a chat on dentists and dementia moons ago. Perhaps we can reschedule? #diversealz |
| nursesKidONE @nursesKidONE RT @LynnGamble20: |
| nursesKidONE @nursesKidONE RT @DiverseAlz: So much to think about. This RT @nursesKidONE It’s also important for care partner & person Dxed to understand when the limited available medications for some types of dementias are not appropriate for their specific type of dementia & may even be harmful to them. #diversealz |
| nursesKidONE @nursesKidONE RT @LynnGamble20: |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| nursesKidONE @nursesKidONE RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz Question 5 coming up has been discussed in a sub #diversealz chat but is something like to unpack and it is around health issues other than dementia. Just thinking of how to phrase #diversealz |
| Diverse Alzheimers @DiverseAlz As mentioned before, think it helps where health care professionals have experience of dementia and especially by experience. A dental hygienist was brilliant and why? Grandmother had dementia #diversealz |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| Diverse Alzheimers @DiverseAlz RT @LynnGamble20: |
| Diverse Alzheimers @DiverseAlz #diversealz RT @LynnGamble20 Check ups in care homes aren't routine in this area - residents have to be taken and most aren't. |
 | Marty Schreiber @MyTwoElaines RT @nursesKidONE: “Older adults with chronic disease taught to use networked transportation report less social isolation and increased quality of life.” #AlzChat #DiverseAlz https://t.co/XkXZEtOecG |
| Diverse Alzheimers @DiverseAlz RT @helenfindlay: |
| nursesKidONE @nursesKidONE @DiverseAlz It is challenging to learn abt dementia while being a care partner, especially abt dementias other than Alzheimer’s. Which is why INFORMED healthcare professionals are so important. #diversealz |
| Diverse Alzheimers @DiverseAlz Our question 5 still coming up as think quite a big one but first, congratulations to @andygeddisregan - a new dad! #diversealz |
| Diverse Alzheimers @DiverseAlz RT @nursesKidONE: @DiverseAlz It is challenging to learn abt dementia while being a care partner, especially abt dementias other than Alzheimer’s. Which is why INFORMED healthcare professionals are so important. #diversealz |
| Diverse Alzheimers @DiverseAlz Question 5: When you think person with dementia that you care for or support is ill...what are the steps? #diversealz. We put this in the context of one of those feelings when you feel you are going to be battling with healthcare professionals. Make sense? |
#DiverseAlz content from Twitter.