#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag.
().
See #GynCSM Influencers/Analytics.

ProfileTweet
NCI Cancer Stats @NCICancerStats
In 2019, there will be an estimated 61,880 cases of #UterineCancer, representing 3.5% of all new cancer cases in the US. Check out our fact sheet to learn more about this disease: https://t.co/V9433PjGI5 #GynCSM https://t.co/J0Br0L3xBF
GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
@stacykennedyrd So glad you are able to join us! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm
Dee Sparacio @womenofteal
Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger, author & co-moderator #gyncsm
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm
Rick Boulay,MD @journeycancer
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Carlos Lever @drleverrosas
RT @NCICancerStats: In 2019, there will be an estimated 61,880 cases of #UterineCancer, representing 3.5% of all new cancer cases in the US. Check out our fact sheet to learn more about this disease: https://t.co/V9433PjGI5 #GynCSM https://t.co/J0Br0L3xBF
GYN Cancer | #GYNCSM @gyncsm
If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here.
Rick Boulay,MD @journeycancer
Rick Boulay. Gyn Oncologist. Hello everyone! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
Dee Sparacio @womenofteal
@journeycancer Hi Rick , Glad to have you here tonight! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic.
Christina Lizaso @btrfly12
RT @gyncsm: You can read over tonight’s #gyncsm topics on our blog here: https://t.co/DcxRyF7lhn
GYN Cancer | #GYNCSM @gyncsm
We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm
Dee Sparacio @womenofteal
#gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history.
Dee Sparacio @womenofteal
Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info #gyncsm
Dee Sparacio @womenofteal
Thank you to all who have tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat
Rick Boulay,MD @journeycancer
RT @gyncsm: We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Tonight on #gyncsm we are discussing “Supplements/Vitamins - Are they helpful?” You can find a list of the upcoming topic questions on our blog page: https://t.co/DcxRyF7lhn
Dee Sparacio @womenofteal
RT @gyncsm: Tonight on #gyncsm we are discussing “Supplements/Vitamins - Are they helpful?” You can find a list of the upcoming topic questions on our blog page: https://t.co/DcxRyF7lhn
Nadia Hillier @NadiaHillier
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: Tonight on #gyncsm we are discussing “Supplements/Vitamins - Are they helpful?” You can find a list of the upcoming topic questions on our blog page: https://t.co/DcxRyF7lhn
GYN Cancer | #GYNCSM @gyncsm
We’ll use a Topic format with T1:, T2:, etc. posed from this handle. Include the corresponding T1:, T2:, etc. at the front of your answer/comment. There are 5 Topic questions tonight followed by a Today I Learned (TIL) segment #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: We’ll use a Topic format with T1:, T2:, etc. posed from this handle. Include the corresponding T1:, T2:, etc. at the front of your answer/comment. There are 5 Topic questions tonight followed by a Today I Learned (TIL) segment #gyncsm
Dee Sparacio @womenofteal
Definition of vitamin by @theNCI - “A nutrient that the body needs in small amounts to function and stay healthy. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Definitions: Vitamins - a nutrient that the body needs in small amounts to function and stay healthy. Supplement - a substance taken to remedy the deficiencies in a person's diet. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Definitions: Vitamins - a nutrient that the body needs in small amounts to function and stay healthy. Supplement - a substance taken to remedy the deficiencies in a person's diet. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Here comes Topic 1 (T1:)... #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T1: Can vitamins be helpful to a woman diagnosed with a cancer at each point in her cancer experience - before, during and after treatment? Are there vitamin studies related to gynecologic cancers specifically? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T1: Can vitamins be helpful to a woman diagnosed with a cancer at each point in her cancer experience - before, during and after treatment? Are there vitamin studies related to gynecologic cancers specifically? #gyncsm
Christina Lizaso @btrfly12
T1: Here is some information about vitamins and cancer from Chemo Care https://t.co/7Kera9FYvn #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T1: T1: Here is some information about vitamins and cancer from Chemo Care https://t.co/7Kera9FYvn #gyncsm
Dee Sparacio @womenofteal
T1: Recent article in @conquermagazine on What Should People With Cancer Eat https://t.co/S3LIvFkXZI #gyncsm
Rick Boulay,MD @journeycancer
RT @womenofteal: T1: T1: Recent article in @conquermagazine on What Should People With Cancer Eat https://t.co/S3LIvFkXZI #gyncsm
Christina Lizaso @btrfly12
T1: Finding a nutritionist experienced with cancer patients can be very helpful. During cancer, you sometimes need to just eat what you can tolerate but a specialist may have tips to help get in what your body needs. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T1: T1: Finding a nutritionist experienced with cancer patients can be very helpful. During cancer, you sometimes need to just eat what you can tolerate but a specialist may have tips to help get in what your body needs. #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T1: T1: Finding a nutritionist experienced with cancer patients can be very helpful. During cancer, you sometimes need to just eat what you can tolerate but a specialist may have tips to help get in what your body needs. #gyncsm
Christina Lizaso @btrfly12
T1: I know that there have been a few studies on nutrition and exercise for #ovariancancer Not sure if there is specific vitamin research or additional studies on nutrition in gyn cancers. Would love to learn more. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Topic 2 (T2:) coming up... #gyncsm
Dee Sparacio @womenofteal
Lots of helpful info on the @DanaFarber site.
Sarah Temkin @temkins
T1: Individualize your vitamin and supplement use while being treated for cancer. What's right for one person may not be right for another. #gyncsm
Dee Sparacio @womenofteal
RT @temkins: T1: T1: Individualize your vitamin and supplement use while being treated for cancer. What's right for one person may not be right for another. #gyncsm
Christina Lizaso @btrfly12
RT @temkins: T1: T1: Individualize your vitamin and supplement use while being treated for cancer. What's right for one person may not be right for another. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T2: Are there vitamins and supplements a gynecologic cancer patient should avoid during treatment - surgery/chemo/radiation/immunotherapy? What about concerns that some vitamins and supplements help cancer grow? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T2: Are there vitamins and supplements a gynecologic cancer patient should avoid during treatment - surgery/chemo/radiation/immunotherapy? What about concerns that some vitamins and supplements help cancer grow? #gyncsm
Sarah Temkin @temkins
And for some - eating a balanced diet with fruits and vegetables might be enough.
𝖉𝖆𝖛𝖊 𝖋𝖚𝖑𝖑𝖊𝖗 @cd_fuller@med-mastodon.com @cd_fuller
RT @btrfly12: T1: T1: Finding a nutritionist experienced with cancer patients can be very helpful. During cancer, you sometimes need to just eat what you can tolerate but a specialist may have tips to help get in what your body needs. #gyncsm
Dee Sparacio @womenofteal
T2 this article in @ASCOPost talks about avoiding antioxidant use during cancer treatments. https://t.co/bz4XDV6lgS #gyncsm
Christina Lizaso @btrfly12
T2: Just like with what TO take, what not to take is very individualized. Get help from your cancer pharmacy, gyn/onc, primary doc, nutritionists and/or others to be sure everything that you are taking works with your treatment. #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: T2 this article in @ASCOPost talks about avoiding antioxidant use during cancer treatments. https://t.co/bz4XDV6lgS #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Topic 3 (T3:) coming up... #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T2: T2: Just like with what TO take, what not to take is very individualized. Get help from your cancer pharmacy, gyn/onc, primary doc, nutritionists and/or others to be sure everything that you are taking works with your treatment. #gyncsm
Rick Boulay,MD @journeycancer
It’s also important to avoid high dose antioxidant vitamins such as vitamin A C and E during chemo such as platinum.#gyncsm
Dee Sparacio @womenofteal
@btrfly12 Yes talking to a pharmacist can insure your medications are not conflicting with your treatments. #gyncsm
Rick Boulay,MD @journeycancer
RT @womenofteal: T2 this article in @ASCOPost talks about avoiding antioxidant use during cancer treatments. https://t.co/bz4XDV6lgS #gyncsm
Christina Lizaso @btrfly12
RT @journeycancer: It’s also important to avoid high dose antioxidant vitamins such as vitamin A C and E during chemo such as platinum.#gyncsm
GYN Cancer | #GYNCSM @gyncsm
T3: Which supplements are most helpful for cancer patients and are shown to boost the immune system? Where can reliable information about supplements be found? #gyncsm
Dee Sparacio @womenofteal
T2 good blog post from @DanaFarber https://t.co/EvTppbgBrq "“An apple a day” is still the best advice. " #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T3: Which supplements are most helpful for cancer patients and are shown to boost the immune system? Where can reliable information about supplements be found? #gyncsm
Sarah Temkin @temkins
T2: also individualize what foods you eat. certain fruit like grapefruit can interfere with the metabolism of some drugs. ask! #gyncsm
Dee Sparacio @womenofteal
RT @temkins: T2: T2: also individualize what foods you eat. certain fruit like grapefruit can interfere with the metabolism of some drugs. ask! #gyncsm
Christina Lizaso @btrfly12
T2: Here is the podcast from @CancerDotNet we shared in our blog post about tonight's chat: 5 Myths about Cancer and Food, Explained by Dietitians https://t.co/ngJ6BWEAbz #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: T2 good blog post from @DanaFarber https://t.co/EvTppbgBrq "“An apple a day” is still the best advice. " #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T2: T2: Here is the podcast from @CancerDotNet we shared in our blog post about tonight's chat: 5 Myths about Cancer and Food, Explained by Dietitians https://t.co/ngJ6BWEAbz #gyncsm
Christina Lizaso @btrfly12
RT @temkins: T2: T2: also individualize what foods you eat. certain fruit like grapefruit can interfere with the metabolism of some drugs. ask! #gyncsm
Sarah Temkin @temkins
T3: Not exactly a supplement but 30 minutes of moderate exercise 5 days a week is helpful for cancer patients even during treatment #gyncsm
Rick Boulay,MD @journeycancer
RT @womenofteal: T2 good blog post from @DanaFarber https://t.co/EvTppbgBrq "“An apple a day” is still the best advice. " #gyncsm
Christina Lizaso @btrfly12
T3: @aicrtweets has some info on supplements and cancer: https://t.co/H4y5ZMopcA #gyncsm
Christina Lizaso @btrfly12
RT @temkins: T3: T3: Not exactly a supplement but 30 minutes of moderate exercise 5 days a week is helpful for cancer patients even during treatment #gyncsm
Dee Sparacio @womenofteal
RT @temkins: T3: T3: Not exactly a supplement but 30 minutes of moderate exercise 5 days a week is helpful for cancer patients even during treatment #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T3: T3: @aicrtweets has some info on supplements and cancer: https://t.co/H4y5ZMopcA #gyncsm
Dee Sparacio @womenofteal
T3 This @AmericanCancer page has info on dietary supplements including misconceptions https://t.co/6U2mjiPsWa #gyncsm
Christina Lizaso @btrfly12
T3: @AmericanCancer also has some general information on supplements: https://t.co/9KgN1RnbSO #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T3: T3: @aicrtweets has some info on supplements and cancer: https://t.co/H4y5ZMopcA #gyncsm
Sarah Temkin @temkins
RT @womenofteal: T3 This @AmericanCancer page has info on dietary supplements including misconceptions https://t.co/6U2mjiPsWa #gyncsm
Christina Lizaso @btrfly12
T3: @NIH also has general info on supplements: https://t.co/tcDbPB1DES #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T4: Studies have show than Vitamin D is beneficial for colon cancer patients. Is there potential to benefit gynecologic cancer patients as well? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T4: Studies have show than Vitamin D is beneficial for colon cancer patients. Is there potential to benefit gynecologic cancer patients as well? #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T3: @NIH also has general info on supplements: T3: @NIH also has general info on supplements: https://t.co/tcDbPB1DES #gyncsm
American Institute for Cancer Research @aicrtweets
RT @btrfly12: T3: T3: @aicrtweets has some info on supplements and cancer: https://t.co/H4y5ZMopcA #gyncsm
GYN Cancer | #GYNCSM @gyncsm
We appreciate so much the time @stacykennedyrd has spent with us sharing her knowledge on this and on past #gyncsm chats.
Dee Sparacio @womenofteal
T4“People with high levels of vitamin D in their bloodstream have a lower overall risk of developing colorectal cancer,” https://t.co/zcca5CVvNW #gyncsm
Sarah Temkin @temkins
RT @btrfly12: T3: @NIH also has general info on supplements: T3: @NIH also has general info on supplements: https://t.co/tcDbPB1DES #gyncsm
Christina Lizaso @btrfly12
T4: Here's an article from @CancerNetwrk with an interview about Vitamin D https://t.co/6m0yqk1d0x #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Last topic, T5:, coming up... #gyncsm
Dee Sparacio @womenofteal
T4 this @CancerCenter article - "Cancer patients who get the recommended dose of vitamin D during treatment lower their risk of osteoporosis and bone fractures, especially if their treatment regimen includes certain therapies," https://t.co/WtKAVVRAti #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T5: Are there foods patients can eat to get the vitamins they need in place of pills? What are some resources to learn more about nutrition after a cancer diagnosis? #gyncsm
Christina Lizaso @btrfly12
T5: @theNCI Nutrition In Cancer Care PDQ-Patient Version can be a good place to start. https://t.co/brDborINyC #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T5: T5: @theNCI Nutrition In Cancer Care PDQ-Patient Version can be a good place to start. https://t.co/brDborINyC #gyncsm
Dee Sparacio @womenofteal
T5 This @StanfordHealth website even include recipes https://t.co/yH1pxwGbpf #gyncsm
Christina Lizaso @btrfly12
T5: Getting vitamins from your food is preferred where possible. Some vitamins may have more food choices than others but usually there are enough options you can find what works for you. #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: T5 This @StanfordHealth website even include recipes https://t.co/yH1pxwGbpf #gyncsm
Rick Boulay,MD @journeycancer
RT @btrfly12: T5: T5: @theNCI Nutrition In Cancer Care PDQ-Patient Version can be a good place to start. https://t.co/brDborINyC #gyncsm
Rick Boulay,MD @journeycancer
RT @womenofteal: T5 This @StanfordHealth website even include recipes https://t.co/yH1pxwGbpf #gyncsm
Sarah Temkin @temkins
RT @btrfly12: T5: T5: Getting vitamins from your food is preferred where possible. Some vitamins may have more food choices than others but usually there are enough options you can find what works for you. #gyncsm
Christina Lizaso @btrfly12
T5: There are some good books about eating while on cancer. One is called Kicking Cancer in the Kitchen. @DanaFarber also has a recipie app. The @savor_health blog is another resource. #gyncsm
Dee Sparacio @womenofteal
T5 I had low platelets during chemo. I wish there was a food to eat to bring them up since it caused me to postpone treatments. Anyone have advice on ways to raise platelets? #gyncsm
Sarah Temkin @temkins
T5: And food is joy and food is life. Enjoy/savor what you put in your mouth. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks for joining along for another #gyncsm chat. Time to wrap up by sharing closing thoughts on tonight's topic. We like to use TIL: standing for "Today I Learned..."
Dee Sparacio @womenofteal
T5 Here is a link to info on the Dana Farber App https://t.co/RLMj4Lyqwj #gyncsm
Dee Sparacio @womenofteal
RT @temkins: T5: T5: And food is joy and food is life. Enjoy/savor what you put in your mouth. #gyncsm
Sarah Temkin @temkins
@womenofteal It takes time! And maybe a dose reduction with your next cycle. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
A special thanks to everyone who shared information online and offline today for #WorldOvarianCancerDay #gyncsm
Dee Sparacio @womenofteal
TIL There are a few great places to visit online for healthy eating during cancer treatment. #gyncsm
Christina Lizaso @btrfly12
Yes. Like working exercise into your life - you have to find the kind you will actually do. Nutrition takes work but it can be so helpful to find things that work for you and add to your joy and not just your physical health. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: A special thanks to everyone who shared information online and offline today for #WorldOvarianCancerDay #gyncsm
Christina Lizaso @btrfly12
I think there is a lot of room for holistic care and better integration of nutrition into cancer care to help patients support their treatment with personalized information about vitamins and supplements. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: I think there is a lot of room for holistic care and better integration of nutrition into cancer care to help patients support their treatment with personalized information about vitamins and supplements. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks for joining tonight. #gyncsm
Dee Sparacio @womenofteal
Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Note that there will be no #gyncsm chat in June. Mark your calendar for our next chat on Wed July 10th at 9pmET and stay tuned for more information.
Dee Sparacio @womenofteal
RT @gyncsm: Note that there will be no #gyncsm chat in June. Mark your calendar for our next chat on Wed July 10th at 9pmET and stay tuned for more information.
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
GYN Cancer | #GYNCSM @gyncsm
As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
Dee Sparacio @womenofteal
RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
GYN Cancer | #GYNCSM @gyncsm
A link to the transcript and a summary of the chat with the resource links shared will be available on our blog. https://t.co/oAfi7Me49e #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: T5 Here is a link to info on the Dana Farber App https://t.co/RLMj4Lyqwj #gyncsm
Dee Sparacio @womenofteal
Hope to see some of you at the #ASCO19 Annual meeting meeting May 31-June 4th. I'll be tweeting from the meeting using #gyncsm - except for the time I will be presenting on June 1st. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: A link to the transcript and a summary of the chat with the resource links shared will be available on our blog. https://t.co/oAfi7Me49e #gyncsm
Sarah Temkin @temkins
RT @womenofteal: Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm
#GynCSM content from Twitter.