#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag.
().
See #GynCSM Influencers/Analytics.

ProfileTweet
GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Dee Sparacio @womenofteal
Join us now #gyncsm ! https://t.co/CqKkSyH6LP
GYN Cancer | #GYNCSM @gyncsm
Our co-moderators are @womenofteal @btrfly12 #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
GYN Cancer | #GYNCSM @gyncsm
We start out with 10 min of intro's - Please take a moment to introduce yourselves. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm
Christina Lizaso @btrfly12
@garmischgirl welcome :) #gyncsm
Dee Sparacio @womenofteal
@garmischgirl Welcome Linda. Glad you are joining us. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm
Erica Bednar @EMBOSU
Hi all! I'm Erica, a (Certified) Genetic Counselor at @MDAndersonNews focusing on hereditary gyn cancers #gyncsm https://t.co/8BfryL6Pbq
Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham
Hi #gyncsm friends - I'm a medical oncologist at @UFHealthCancer.
GYN Cancer | #GYNCSM @gyncsm
Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm
Rick Boulay,MD @journeycancer
Hey everyone! Rick Boulay Gyn Onc I seem to be a little heavy in the Y chromosomes for the discussion tonight. I may lurk and learn #gyncsm
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
Dee Sparacio @womenofteal
@EMBOSU @MDAndersonNews and @DrMarkham @journeycancer Hi! Good to see you all #gyncsm
Dee Sparacio @womenofteal
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm
Dee Sparacio @womenofteal
Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm
Robin Martinez @RobinSmrtPtient
Good to see you all! Robin here from https://t.co/Vn6IUq0QAi. Come talk #gyncsm with us!
GYN Cancer | #GYNCSM @gyncsm
#gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
Tobey @BRCAinfo
Hi Dee Christina & Limda 🙌 #gyncsm chat time
Dee Sparacio @womenofteal
#gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest
GYN Cancer | #GYNCSM @gyncsm
We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm
Dee Sparacio @womenofteal
@BRCAinfo Waving back. so glad to see you here #gyncsm
Suzie Siegel @SuzieSiegel
I'm a 14+ survivor of vaginal #leiomyosarcoma and longtime #sarcoma advocate. #gyncsm
Dee Sparacio @womenofteal
A special thanks to everyone who tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat
Dee Sparacio @womenofteal
@SuzieSiegel Hello Suzie. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
Dee Sparacio @womenofteal
RT @gyncsm: Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
Jamie Holloway, PhD @jamienholloway
Hi, I'm Jamie, joining tonight from #bcsm, 4yrs NED after early stage triple negative breast cancer. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
GYN Cancer | #GYNCSM @gyncsm
As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm
Tobey @BRCAinfo
Hi Erica Dr Markham & Dr Boulay #gyncsm
🇭🇹🇺🇸Raindrops on roses 🇭🇹🇺🇸 @Pippilotta08
#gyncsm Super tired and crampy tonight but I’m here for as long as I last tonight. Hope everyone is well.
Erica Bednar @EMBOSU
RT @gyncsm: Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
Rick Boulay,MD @journeycancer
RT @gyncsm: Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
Dee Sparacio @womenofteal
@jamienholloway Hello - Thanks for join g us tonight. Saw your question re living with cancer. Will get back to you with my ideas #gyncsm
Christina Lizaso @btrfly12
@Pippilotta08 good to see you - sending love and light #gyncsm
GYN Cancer | #GYNCSM @gyncsm
See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/ityuepE8wv
Jamie Holloway, PhD @jamienholloway
@womenofteal Great, thanks! Would appreciate any insight! #gyncsm
Dee Sparacio @womenofteal
@Pippilotta08 Feel better and thanks for joining us. #gyncsm
Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham
@BRCAinfo Hello again! #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/ityuepE8wv
Dee Sparacio @womenofteal
MT @gyncsm link #gyncsm topic questions that will be coming up: https://t.co/93ClsvZDSf
GYN Cancer | #GYNCSM @gyncsm
There are several studies on the impact breast cancer and mastectomies have on femininity... #gyncsm
GYN Cancer | #GYNCSM @gyncsm
On today's gyn cancer community chat, we'll discuss how many cancer related diagnoses, surgeries and treatments impact femininity. #gyncsm
Jolyn Taylor @TaylorJolyn
#gyncsm looking forward to the tweetchat! I'm a gyn onc fellow at MDACC.
GYN Cancer | #GYNCSM @gyncsm
Here comes Topic 1 (T1:)... #gyncsm
Rick Boulay,MD @journeycancer
RT @gyncsm: On today's gyn cancer community chat, we'll discuss how many cancer related diagnoses, surgeries and treatments impact femininity. #gyncsm
Dee Sparacio @womenofteal
@TaylorJolyn Hello and Welcome! Do you work with Shannon Westin? #gyncsm
Christina Lizaso @btrfly12
For those used to seeing our topics well in advance, apologies I didn't get them posted much in advance this time around. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
Rick Boulay,MD @journeycancer
RT @gyncsm: T1: T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
Jolyn Taylor @TaylorJolyn
@womenofteal Yes, I'm fortunate enough to work with Dr. Westin! #gyncsm
Christina Lizaso @btrfly12
T1: I've always struggled with femininity to begin with. Now that I work from home I never even wear make-up. #gyncsm
Suzie Siegel @SuzieSiegel
T1. I was a feminist when I was growing up and didn't strive to be feminine although some see me that way. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T1: T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
Christina Lizaso @btrfly12
T1: I grew up in a Mr. Mom household so I definitely had some strong gender related experiences growing up. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
Woo-hoo. Actually made it to a #gyncsm chat before 2017 is over.
Tobey @BRCAinfo
T1. Womanhood / femininity = watching mom makeup high heels pretty clothes #gyncsm
Dee Sparacio @womenofteal
T1 I grew up loving math and science and and though I learned to sew wasn't into frilly dresses. #gyncsm
Jamie Holloway, PhD @jamienholloway
T1: I always liked girly things, but never felt limited as a girl. Math/science were always my favorite. But love a good lipstick! #gyncsm
Dee Sparacio @womenofteal
@DrBeckerSchutte Hurrah! Hello there Anne. So glad you are joining us. #gyncsm
Christina Lizaso @btrfly12
T1: So I guess I didn't relate to the femininity I was seeing in most other families, community. I related to pushing boundaries. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Topic 2 (T2:) coming up... https://t.co/ityuepE8wv #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
Ann from KC, psychologist, mom, #gyncsm mental health mod and recent resistor of #AHCA.
Ann Becker-Schutte @DrBeckerSchutte
RT @gyncsm: #gyncsm Community: Womanhood, Femininity and Cancer Chat - May 10th 9pmET. See Topics: #gyncsm Community: Womanhood, Femininity and Cancer Chat - May 10th 9pmET. See Topics: https://t.co/Xidn7k41hq
Ann Becker-Schutte @DrBeckerSchutte
@btrfly12 I'm with you there--except that I work in my office and I don't wear makeup. I hate the way it feels. #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
Good evening! Matt Katz, radiation oncologist in Massachusetts. Sorry to join late! Getting kids to bed #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed? #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @gyncsm: T2: T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed? #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
T1: I was never a traditionally"girly" girl--largely because I associated being a girl with being limited/different rules. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @gyncsm: T2: T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed? #gyncsm
Dee Sparacio @womenofteal
@subatomicdoc Hi Matt! #gyncsm
Dee Sparacio @womenofteal
@garmischgirl My aunt was the same way - ahead of her time. #gyncsm
Annie Ellis @Stigetta
Hello! Sorry to be late. Annie Ellis, ovarian cancer survivor and research advocate. #gyncsm
Dee Sparacio @womenofteal
T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed? #gyncsm
Robin Martinez @RobinSmrtPtient
T1: @DrBeckerSchutte Yes! Boys got to do things, girls got to cheer. I envied the do-ers. #gyncsm
Dee Sparacio @womenofteal
@Stigetta Hi friend . Thanks for joining us. #gyncsm
Christina Lizaso @btrfly12
T2: found out I was CHEK2, my doc immediately said go see a breast surgeon for consultation. A lot to take in. Overwhelmed I'd say. #gyncsm
Dee Sparacio @womenofteal
@RobinSmrtPtient @DrBeckerSchutte That makes 3 of us. #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
@womenofteal Hi Dee! How are you? #gyncsm
Suzie Siegel @SuzieSiegel
T2. I had friends who didn't understand how part of my vagina could be removed b/c they thought of it as a space, not an organ. #gyncsm
Erica Bednar @EMBOSU
It seems to vary from person to person...some women "want everything out/I don't need these organs" to preferring no/minimal surgery #gyncsm https://t.co/1pSE0vgQ9X
Dee Sparacio @womenofteal
@subatomicdoc Doing well. Busy with family. #gyncsm
Christina Lizaso @btrfly12
T2: I'm more concerned with being around for my kids, but I certainly feel the weight of what body change may mean. #gyncsm
Suzie Siegel @SuzieSiegel
T2. Also, many people think the word "vagina" includes the vulva. #gyncsm
Jamie Holloway, PhD @jamienholloway
T2: Still have reproductive organs, but haven't had any upsetting comments re: bilateral mastectomy. Most supportive/understanding #gyncsm
Dee Sparacio @womenofteal
T2 Even though I was in my late 40's when dx . It saddened me to loose what had nurtured my 2 children. #gyncsm
Christina Lizaso @btrfly12
T2: My mom and aunt have had mastectomies but it isn't something we have ever talked about. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
A2: I know that I have worked with clients who struggle with losing body parts that are so identified as "female." #gyncsm
Tobey @BRCAinfo
#gyncsm depends on age of patient too. Childbearing? Near menopause? https://t.co/jvSgzh9TVT
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: T2: T2: My mom and aunt have had mastectomies but it isn't something we have ever talked about. #gyncsm
Dee Sparacio @womenofteal
@SuzieSiegel lots of misunderstanding . Many don't know where they are located. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @womenofteal: T2 Even though I was in my late 40's when dx . It saddened me to loose what had nurtured my 2 children. #gyncsm
Christina Lizaso @btrfly12
RT @EMBOSU: It seems to vary from person to person...some women "want everything out/I don't need these organs" to preferring no/minimal surgery #gyncsm https://t.co/1pSE0vgQ9X
Ann Becker-Schutte @DrBeckerSchutte
RT @jamienholloway: T2: Still have reproductive organs, but haven't had any upsetting comments re: T2: Still have reproductive organs, but haven't had any upsetting comments re: bilateral mastectomy. Most supportive/understanding #gyncsm
Suzie Siegel @SuzieSiegel
T2. In general, everyone I know is horrified by my story. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: T2: T2: I'm more concerned with being around for my kids, but I certainly feel the weight of what body change may mean. #gyncsm
Annie Ellis @Stigetta
T2 pt 1: I bargained 4 body parts while signing consent forms 4 initial ovca surgery. Wanted 2 keep cervix. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
@Stigetta Always glad to have folks join in--at any time! #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
@SuzieSiegel T2 It still surprises me how little we talk about intimacy+our bodies when we're healthy. It makes it harder to discuss if we're not #gyncsm
Annie Ellis @Stigetta
T2 pt 2: Doc didn't think it was cancer. Went under not knowing how many organs I'd wake up with. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Topic 3 (T3:) coming up... https://t.co/ityuepE8wv #gyncsm
Tobey @BRCAinfo
@DrBeckerSchutte Yes. When everything is removed it's tough to feel female. Took awhile for that feeling to pass for me as well #gyncsm
Suzie Siegel @SuzieSiegel
T2. I should add that I got a radical hysterectomy that included the rest of my "lady parts." #gyncsm
Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham
RT @subatomicdoc: @SuzieSiegel T2 It still surprises me how little we talk about intimacy+our bodies when we're healthy. It makes it harder to discuss if we're not #gyncsm
Jamie Holloway, PhD @jamienholloway
wow, must have been awful MT @Stigetta: T2 Doc didn't think it was cancer. Went under not knowing how many organs I'd wake up with #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
@subatomicdoc @SuzieSiegel : This is huge. If we set a standard of taking about intimacy, sex, and our bodies early, it might help. #gyncsm
Dee Sparacio @womenofteal
@Stigetta My docs didn't think it would be the extensive surgery it was either. #gyncsm
Annie Ellis @Stigetta
T2 pt 3: saw clock in recovery rm and knew there was much less of me #GYNCSM
Matthew Katz, MD 🟦 @subatomicdoc
@DrBeckerSchutte @SuzieSiegel Thanks Ann! How are you BTW? #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up? #gyncsm
Dee Sparacio @womenofteal
@Stigetta My first thought was - lunch time - it wasn't supposed to take that long. #gyncsm
Erica Bednar @EMBOSU
@DrBeckerSchutte @subatomicdoc @SuzieSiegel Agreed! Awareness & familiarity with our own bodies is important! Makes a huge difference when knowing your family history of cancer #gyncsm
Dee Sparacio @womenofteal
T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up? #gyncsm
Suzie Siegel @SuzieSiegel
My tumor was large enough to poke out of my body. I told my gyn onc that I was OK with a vaginectomy if that was what was needed. #gyncsm https://t.co/lbXDiLmEk1
Christina Lizaso @btrfly12
T2: as Susan Gubar writes about - the word and the act of "debulking" is just awful #gyncsm
Jamie Holloway, PhD @jamienholloway
T3: Doc discussed loss of sensation w/mastectomy but didn't really consider what that meant. Just wanted the cancer out. #gyncsm
Suzie Siegel @SuzieSiegel
And health-care professionals need to keep the conversation going. #gyncsm https://t.co/2YigxORLuw
Ann Becker-Schutte @DrBeckerSchutte
@BRCAinfo This is huge. We need tools to help women identify femininity that isn't tied to body parts. #gyncsm
Christina Lizaso @btrfly12
T3: I was surprised to see so little written outside of the breast cancer space on the topic if femininity and cancer... (1/2) #gyncsm
Dee Sparacio @womenofteal
@btrfly12 I agree with Ms Gubar on that. #gyncsm
Christina Lizaso @btrfly12
T3: (2/2...) maybe breast cancer has broken enough taboos for women to feel comfortable being open about it #gyncsm
Tobey @BRCAinfo
In my case it was: my life or my body parts #gyncsm https://t.co/Qst5kigjHw
Matthew Katz, MD 🟦 @subatomicdoc
RT @womenofteal: T3: T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up? #gyncsm
Tobey @BRCAinfo
RT @DrBeckerSchutte: @BRCAinfo This is huge. We need tools to help women identify femininity that isn't tied to body parts. #gyncsm
Erica Bednar @EMBOSU
T3: young women w/ high risk to develop cancer face these questions when considering risk reducing surgeries @BeBrightPink #gyncsm #gencsm https://t.co/oKZXRvYQd7
Suzie Siegel @SuzieSiegel
T3. I had just finished a master's in women's studies. So, I didn't question whether I was still a woman or not.#gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @SuzieSiegel: T3. I had just finished a master's in women's studies. So, I didn't question whether I was still a woman or not.#gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @EMBOSU: T3: T3: young women w/ high risk to develop cancer face these questions when considering risk reducing surgeries @BeBrightPink #gyncsm #gencsm https://t.co/oKZXRvYQd7
Christina Lizaso @btrfly12
After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @btrfly12: T3: T3: I was surprised to see so little written outside of the breast cancer space on the topic if femininity and cancer... (1/2) #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @btrfly12: T3: T3: (2/2...) maybe breast cancer has broken enough taboos for women to feel comfortable being open about it #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @jamienholloway: T3: T3: Doc discussed loss of sensation w/mastectomy but didn't really consider what that meant. Just wanted the cancer out. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @EMBOSU: @DrBeckerSchutte @subatomicdoc @SuzieSiegel Agreed! Awareness & familiarity with our own bodies is important! Makes a huge difference when knowing your family history of cancer #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @gyncsm: T3: T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up? #gyncsm
Dee Sparacio @womenofteal
T3 The very large scar - now that bothered me for a long time. Bothered me more than loosing my hair #gyncsm
Jamie Holloway, PhD @jamienholloway
THIS. RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
Alicia C. Staley @stales
RT @jamienholloway: T3: T3: Doc discussed loss of sensation w/mastectomy but didn't really consider what that meant. Just wanted the cancer out. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Topic 4 (T4:) coming up... https://t.co/ityuepE8wv #gyncsm
Alicia C. Staley @stales
lurking and waving. #gyncsm
Alicia C. Staley @stales
RT @DrBeckerSchutte: @subatomicdoc @SuzieSiegel : @subatomicdoc @SuzieSiegel : This is huge. If we set a standard of taking about intimacy, sex, and our bodies early, it might help. #gyncsm
Alicia C. Staley @stales
RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
Jamie Holloway, PhD @jamienholloway
@stales Hi Alicia! #gyncsm
Alicia C. Staley @stales
RT @gyncsm: Topic 4 (T4:) coming up... https://t.co/ityuepE8wv #gyncsm
Christina Lizaso @btrfly12
@stales helloooo :) #gyncsm
Suzie Siegel @SuzieSiegel
T3. There is so little about women who have had vaginectomies. For me, it's about sexual function, not appearance. #gyncsm
Alicia C. Staley @stales
RT @jamienholloway: THIS. RT @btrfly12: THIS. RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
Alicia C. Staley @stales
RT @womenofteal: T3 The very large scar - now that bothered me for a long time. Bothered me more than loosing my hair #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
Dee Sparacio @womenofteal
T3 Found1 study : Altered Sexuality and Body Image after Gynecological Cancer Treatment https://t.co/45nm6ibpVw #gyncsm
Dee Sparacio @womenofteal
@stales Hi there Alicia #gyncsm
Alicia C. Staley @stales
@btrfly12 hey just wanted to say hi! #GYNCSM
Jennifer Boyd @jenrossboyd
RT @PeerView: Share your experiences with #ovariancancer by taking this 15 min survey if you are a patient or caregiver: Share your experiences with #ovariancancer by taking this 15 min survey if you are a patient or caregiver: https://t.co/cTzINkExsl #gyncsm
Annie Ellis @Stigetta
T3: although my husband and I had decided not to have more children, I struggled that the option was taken away from me #gyncsm
Christina Lizaso @btrfly12
@womenofteal link being funny - maybe post straight into twitter and add hashtag :) #gyncsm
Suzie Siegel @SuzieSiegel
T3. I should mention that I have a urostomy & colostomy. But they don't bother me nearly as much as not having a functional vagina. #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @womenofteal: T3 Found1 study : T3 Found1 study : Altered Sexuality and Body Image after Gynecological Cancer Treatment https://t.co/45nm6ibpVw #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham
RT @gyncsm: T4: T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: T4: T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
Robin Martinez @RobinSmrtPtient
@Stigetta Yes, funny how different the emotions are between "I don't want to" and "You can't!" #gyncsm
Dee Sparacio @womenofteal
@Stigetta Wish loss of fertility was something discussed more. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @womenofteal: @Stigetta Wish loss of fertility was something discussed more. #gyncsm
Christina Lizaso @btrfly12
How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSxVppYr #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
@Stigetta T3. Yes, it's very a different feeling when you have the choice, vs. having it taken from you. Another sense loss of control #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSxVppYr #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @gyncsm: T4: T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @subatomicdoc: @Stigetta T3. Yes, it's very a different feeling when you have the choice, vs. having it taken from you. Another sense loss of control #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSxVppYr #gyncsm
Dee Sparacio @womenofteal
T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSxVppYr #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSxVppYr #gyncsm
Christina Lizaso @btrfly12
via @womenofteal “I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Womens reproductive health” https://t.co/93kDttexIA #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
Yes. Even if most invasive option recommended. RT @womenofteal @Stigetta Wish loss of fertility was something discussed more. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: via @womenofteal “I Feel Different”: via @womenofteal “I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Womens reproductive health” https://t.co/93kDttexIA #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @RobinSmrtPtient: @Stigetta Yes, funny how different the emotions are between "I don't want to" and "You can't!" #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @SuzieSiegel: T3. I should mention that I have a urostomy & colostomy. But they don't bother me nearly as much as not having a functional vagina. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: via @womenofteal “I Feel Different”: via @womenofteal “I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Womens reproductive health” https://t.co/93kDttexIA #gyncsm
Dee Sparacio @womenofteal
@btrfly12 How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/45nm6ibpVw #gyncsm
Christina Lizaso @btrfly12
T4: At some point the hubs and I will have to have some discussions because at whatever point, I am not doing reconstruction. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
@Stigetta It is always difficult to feel as though we have lost choice--especially over such critical issues. #gyncsm
Christina Lizaso @btrfly12
The Hystersisters group has some resources and community for those thrown into menopause. #gyncsm
Suzie Siegel @SuzieSiegel
T4. I had sex in other ways for a while. But my body is so damaged that I have no usable orifices left. #gyncsm
Dee Sparacio @womenofteal
Altered Sexuality and Body Image after Gynecological Cancer Treatment: How Can Psychologists Help? https://t.co/d4MPBj2pH1 #gyncsm
Christopher Donley @onehandedpotter
RT @womenofteal: T3 Found1 study : T3 Found1 study : Altered Sexuality and Body Image after Gynecological Cancer Treatment https://t.co/45nm6ibpVw #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: The Hystersisters group has some resources and community for those thrown into menopause. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @womenofteal: Altered Sexuality and Body Image after Gynecological Cancer Treatment: Altered Sexuality and Body Image after Gynecological Cancer Treatment: How Can Psychologists Help? https://t.co/d4MPBj2pH1 #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: T4: T4: At some point the hubs and I will have to have some discussions because at whatever point, I am not doing reconstruction. #gyncsm
Dee Sparacio @womenofteal
RT @DrBeckerSchutte: @Stigetta It is always difficult to feel as though we have lost choice--especially over such critical issues. #gyncsm
Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham
Good tip for women having hysterectomies/oophorectomies. https://t.co/gHIfa1yvqH
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
FYI #gyncsm https://t.co/rRjt8BVQyL
Christina Lizaso @btrfly12
T4: @cancerLGBT https://t.co/4a1RssQsJX has good resources including related to HPV, ovarian in lesbian, bi-sexual and transgender #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: FYI #gyncsm https://t.co/rRjt8BVQyL
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: T4: T4: @cancerLGBT https://t.co/4a1RssQsJX has good resources including related to HPV, ovarian in lesbian, bi-sexual and transgender #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
A4: I always hope that people facing these choices are getting good mental health support. #gyncsm
Dee Sparacio @womenofteal
Really having a hard time in tweetchat. switching to twitter directly. #gyncsm
Tobey @BRCAinfo
RT @ShereesePubHlth: FYI #gyncsm https://t.co/rRjt8BVQyL
Dee Sparacio @womenofteal
RT @btrfly12: T4: T4: @cancerLGBT https://t.co/4a1RssQsJX has good resources including related to HPV, ovarian in lesbian, bi-sexual and transgender #gyncsm
Suzie Siegel @SuzieSiegel
@subatomicdoc @Stigetta I've benefited from being OK with whatever surgery might be needed. I knew sarcoma was deadly. #gyncsm
Christina Lizaso @btrfly12
Here comes the final topic T5: #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
@garmischgirl Some don't - everyone handles a cancer dx differently. But the stress of the situation is an opportunity to refocus on what matters #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@DrBeckerSchutte That seems 2 depend on SDOH & BDOH. According 2 ACS, many doctors don't discuss MH options w/ patients, depending on socio-economics #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: T5: T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
Dee Sparacio @womenofteal
T4 : It really helped to go to a support group . Not the convo you have over coffee with friends. Needed someone to understand. #gyncsm
Christina Lizaso @btrfly12
@DrBeckerSchutte #wholepersonhealthcare I worry about that. Need teams and referrals and more doc's to bring things up I think. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T5: T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @gyncsm: T5: T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
Suzie Siegel @SuzieSiegel
T4. I don't dwell on this, but I wish I could find a nice impotent man to cuddle with. #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
@gyncsm T5. Good resource for some with pelvic radiotherapy side effects, or concerns of them https://t.co/gEQr3SS7zl #gyncsm #radonc
Dee Sparacio @womenofteal
@ShereesePubHlth @DrBeckerSchutte glad my cancer center has social worker assigned to gyn ca patients. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
@ShereesePubHlth I think you totally nailed it. And that kills me. Know it's real life, but wish all had access. #gyncsm
Christina Lizaso @btrfly12
Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
Christina Lizaso @btrfly12
Pelvic physical therapy is something I've only head about recently. #gyncsm
Annie Ellis @Stigetta
T4: 2 years before I talked abt femininity & sexuality in support grp or counseling. W/ recurrences these issues seemed secondary #gyncsm
Dee Sparacio @womenofteal
RT @subatomicdoc: @gyncsm T5. Good resource for some with pelvic radiotherapy side effects, or concerns of them https://t.co/gEQr3SS7zl #gyncsm #radonc
Suzie Siegel @SuzieSiegel
T4. I lost my online support group when an MD turned on me b/c of policy differences & orchestrated an attack campaign. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: @ShereesePubHlth @DrBeckerSchutte glad my cancer center has social worker assigned to gyn ca patients. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
Christina Lizaso @btrfly12
RT @subatomicdoc: @gyncsm T5. Good resource for some with pelvic radiotherapy side effects, or concerns of them https://t.co/gEQr3SS7zl #gyncsm #radonc
Ann Becker-Schutte @DrBeckerSchutte
@SuzieSiegel So sorry to hear that. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@btrfly12 Me too. I've been wondering if there are studies showing its effectiveness. May make a deliberate attempt to find out #gyncsm
Kathleen D. Hoffman @drkdhoffman
RT @MommysCancer: #LivingWithCancer #cancertreatment #breastcancer #cervicalcancer #ovariancancer #bcsm #gyncsm #vacation #Retreat #travel #mindbody #respite https://t.co/5o49jIGIBv
Jamie Holloway, PhD @jamienholloway
@btrfly12 Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained therapist #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @Stigetta: T4: T4: 2 years before I talked abt femininity & sexuality in support grp or counseling. W/ recurrences these issues seemed secondary #gyncsm
Robin Martinez @RobinSmrtPtient
@SuzieSiegel I hate it when people play politics with cancer patients. #gyncsm
Suzie Siegel @SuzieSiegel
T4. I went to a support group @MoffittNews until they got rid of the facilitator for hugging patients & other atrocities. #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
I hate it when people play politics with people. RT @RobinSmrtPtient I hate it when people play politics with cancer patients. #gyncsm
Christina Lizaso @btrfly12
@SuzieSiegel always sad to hear of these too common situations - we seek connection but sometimes we turn on each other in cmty #gyncsm
Annie Ellis @Stigetta
RT @subatomicdoc: @garmischgirl Some don't - everyone handles a cancer dx differently. But the stress of the situation is an opportunity to refocus on what matters #gyncsm
Dee Sparacio @womenofteal
RT @jamienholloway: @btrfly12 Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained therapist #gyncsm
Suzie Siegel @SuzieSiegel
T4. @MoffittNews made it a psychosocial group & the leader yelled at me for bringing small gifts & telling others about resources. #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @jamienholloway: @btrfly12 Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained therapist #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks for all the open sharing. Already time to start sharing closing thoughts on Femininity and Cancer. TIL: (today I learned) #gyncsm
Robin Martinez @RobinSmrtPtient
TIL how fast an hour goes when a topic hits home. #gyncsm
Amanda @livingmbestlife
RT @BRCAinfo: In my case it was: In my case it was: my life or my body parts #gyncsm https://t.co/Qst5kigjHw
Dee Sparacio @womenofteal
RT @gyncsm: Thanks for all the open sharing. Already time to start sharing closing thoughts on Femininity and Cancer. TIL: Thanks for all the open sharing. Already time to start sharing closing thoughts on Femininity and Cancer. TIL: (today I learned) #gyncsm
Christina Lizaso @btrfly12
I'm in a FB group for CHEK2 but already seeing some divisions and un-welcoming behavior... #gyncsm
Suzie Siegel @SuzieSiegel
TIL ... won't know until I look at all the links shared! Thanks to everyone! #gyncsm
Dee Sparacio @womenofteal
TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical needs #gyncsm
Tobey @BRCAinfo
TIL we are not alone in our need to connect with others going thru the same as us 💕 #gyncsm
Christina Lizaso @btrfly12
This was a tough topic to work on for me, but I think it is good to shine a light on the tough things about cancer. Thanks all. #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical needs #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @BRCAinfo: TIL we are not alone in our need to connect with others going thru the same as us 💕 #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @womenofteal: TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical needs #gyncsm
Erica Bednar @EMBOSU
TIL that cancer dx impacts personal views of femininity, self esteem, function & should be remembered+part of patient-centered care #gyncsm https://t.co/PzYN68Pn8d
GYN Cancer | #GYNCSM @gyncsm
Thanks again for today's conversation. Next #gyncsm chat: Wed June 14 at 9pmET on Radiation Oncology - What is it? When is it used?
Annie Ellis @Stigetta
RT @womenofteal: TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical needs #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
@btrfly12 Thank you for moderating a very valuable session, Christina and @womenofteal #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
Jamie Holloway, PhD @jamienholloway
Thanks for welcoming me and for a very interesting chat! #gyncsm
Tobey @BRCAinfo
RT @gyncsm: Thanks again for today's conversation. Next #gyncsm chat: Thanks again for today's conversation. Next #gyncsm chat: Wed June 14 at 9pmET on Radiation Oncology - What is it? When is it used?
Ann Becker-Schutte @DrBeckerSchutte
TIL: We still have work to do in terms of body acceptance, both before and after cancer diagnosis. And #gyncsm is still amazing.
Dee Sparacio @womenofteal
Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte #gyncsm
Christina Lizaso @btrfly12
@jamienholloway So glad you joined. See you around the cancer/clinical trials twitter world :) #gyncsm
Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham
Thanks @btrfly12 @womenofteal for hosting another engaging chat. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Thanks again for today's conversation. Next #gyncsm chat: Thanks again for today's conversation. Next #gyncsm chat: Wed June 14 at 9pmET on Radiation Oncology - What is it? When is it used?
Annie Ellis @Stigetta
TIL: There are some great pelvic health resources! #gyncsm
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Christina Lizaso @btrfly12
Blog post | Redefining Womanhood:. A look back at 365 days cancer free… https://t.co/EnEc7ok95X #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @btrfly12: Blog post | Redefining Womanhood:. A look back at 365 days cancer free… https://t.co/EnEc7ok95X #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Annie Ellis @Stigetta
RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
Annie Ellis @Stigetta
RT @btrfly12: Blog post | Redefining Womanhood:. A look back at 365 days cancer free… https://t.co/EnEc7ok95X #gyncsm
Annie Ellis @Stigetta
RT @DrMarkham: Thanks @btrfly12 @womenofteal for hosting another engaging chat. #gyncsm
Annie Ellis @Stigetta
RT @womenofteal: Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte #gyncsm
Christina Lizaso @btrfly12
via @ShewithLynch A Letter To My Gynecologist https://t.co/1MmSRPDbgQ #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: Blog post | Redefining Womanhood:. A look back at 365 days cancer free… https://t.co/EnEc7ok95X #gyncsm
Annie Ellis @Stigetta
RT @gyncsm: Thanks again for today's conversation. Next #gyncsm chat: Thanks again for today's conversation. Next #gyncsm chat: Wed June 14 at 9pmET on Radiation Oncology - What is it? When is it used?
Erica Bednar @EMBOSU
Thanks everyone for sharing, teaching, encouraging, & supporting! The chat is always great opportunity for me to learn from you all! #gyncsm
Dee Sparacio @womenofteal
Couldn't have asked for a better partner on these chats. Thanks so much @btrfly12 #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: via @ShewithLynch A Letter To My Gynecologist https://t.co/1MmSRPDbgQ #gyncsm
Christina Lizaso @btrfly12
Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: https://t.co/wIiaS5M3NO #gyncsm
Dee Sparacio @womenofteal
Assault on our Womanhood https://t.co/7Bwhw1o6Ws #gyncsm
Christina Lizaso @btrfly12
@garmischgirl howl at the moon :) #gyncsm
Christina Lizaso @btrfly12
@womenofteal right back at ya - the best :) #gyncsm
Dee Sparacio @womenofteal
Psychosocial adjustment in gynecologic cancer survivors:longitudinal study risk factors for maladjustment https://t.co/Vrzlu8Qvx3 #gyncsm
Ann Becker-Schutte @DrBeckerSchutte
So grateful for the leadership of @womenofteal and @btrfly12!! #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: https://t.co/wIiaS5M3NO #gyncsm
Breast Cancer Sucks @estrogenplus
RT @MommysCancer: #LivingWithCancer #cancertreatment #breastcancer #cervicalcancer #ovariancancer #bcsm #gyncsm #vacation #Retreat #travel #mindbody #respite https://t.co/5o49jIGIBv
Dee Sparacio @womenofteal
@DrBeckerSchutte Thanks Ann for joining us tonight. The larger gyn ca community needs more mental health care providers like you #gyncsm
Annie Ellis @Stigetta
RT @btrfly12: Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: https://t.co/wIiaS5M3NO #gyncsm
Annie Ellis @Stigetta
RT @womenofteal: Assault on our Womanhood https://t.co/7Bwhw1o6Ws #gyncsm
Dee Sparacio @womenofteal
Now to look at my Twitter notifications. And to get to work on summarizing this great chat. #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @btrfly12: Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: Many of Susan Gubar's Living With Cancer articles touch on femininity-related issues: https://t.co/wIiaS5M3NO #gyncsm
Matthew Katz, MD 🟦 @subatomicdoc
RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
#GynCSM content from Twitter.