#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag. (). See #GynCSM Influencers.

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GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Dee Sparacio @womenofteal
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm community co-moderators are @womenofteal @btrfly12
GYN Cancer | #GYNCSM @gyncsm
Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gync
GYN Cancer | #GYNCSM @gyncsm
We start out with 10 minutes of introductions - Please take a moment to introduce yourself. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: We start out with 10 minutes of introductions - Please take a moment to introduce yourself. #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm
Dee Sparacio @womenofteal
Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger, author & co-moderator #gyncsm
Ann Becker-Schutte @drbeckerschutte
Ready to have an open mic night at #gyncsm chat.
GYN Cancer | #GYNCSM @gyncsm
If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm
Dee Sparacio @womenofteal
@DrBeckerSchutte Hi Anne - So glad to see you here tonight. Hope your summer is going well. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm
Erica Bednar @embosu
Good evening everyone! I'm Erica, genetic counselor at @MDAndersonNews with a focus on hereditary gyn cancers #gyncsm #endcancer #gencsm https://t.co/GQae8lEwWz
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
Suzie Siegel @suziesiegel
I'm a #sarcoma survivor & volunteer. #gyncsm
Dee Sparacio @womenofteal
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm
Dee Sparacio @womenofteal
@SuzieSiegel Hi Suzie . I just read that July is sarcoma awareness month. Thanks for joining us. #gyncsm
Dee Sparacio @womenofteal
Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm
Ann Becker-Schutte @drbeckerschutte
Hi, I'm Ann, KC psychologist, long-time #gyncsm fan and ready to chat.
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & his…
Ann Becker-Schutte @drbeckerschutte
RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
GYN Cancer | #GYNCSM @gyncsm
#gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
Jillosopher @jillosopher
Jill, dx'ed in January grade 1, stage 3a endometrioid endometrial cancer. #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @gyncsm: #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
GYN Cancer | #GYNCSM @gyncsm
We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm
Ann Becker-Schutte @drbeckerschutte
Hi everyone!! So excited to be spending the hour with you. #gyncsm
Dee Sparacio @womenofteal
#gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest . Tonight we welcome all
Dee Sparacio @womenofteal
@jillosopher Hi Jill. Glad to see you #gyncsm
Dee Sparacio @womenofteal
Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat
GYN Cancer | #GYNCSM @gyncsm
Tonight on #gyncsm we'll discuss... Whatever is on your mind! Research, Side Effects, Survivorship, Targeted therapies? Let’s chat!
GYN Cancer | #GYNCSM @gyncsm
We’re offering you, our participants, the “mic”. Feel free to ask questions, make comments or share your story. #gyncsm
Matthew Katz, MD @subatomicdoc
Good evening! Matt Katz, radiation oncologist joining from Massachusetts. I hope everyone is well #gyncsm
Dee Sparacio @womenofteal
We'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm
ShereeseM, MS/MBA @shereesepubhlth
Hello, all. Sheree here. Glad to join in #gyncsm https://t.co/Au5JIpGDiL
Buy Followrs :nruivn @darmientomaris
RT @womenofteal: We'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
As moderator, I'll help guide the discussion along as needed but no official T1: (Topic 1), T2: (Topic 2), etc. tonight. #gyncsm
Dee Sparacio @womenofteal
@subatomicdoc Hi Matt I'm doing well. How are you? #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @gyncsm: Tonight on #gyncsm we'll discuss... Whatever is on your mind! Research, Side Effects, Survivorship, Targeted therapies? Let’s c…
Dee Sparacio @womenofteal
@ShereesePubHlth Hi Sheree Welcome back. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Welcome to all joining along :) #gyncsm
GYN Cancer | #GYNCSM @gyncsm
It's time for our open discussion on topics of ur choice. Open Mic starts now! What do u want to chat about? https://t.co/rhMH5BeHIr #gyncsm
Matthew Katz, MD @subatomicdoc
@womenofteal I'm well Dee, thanks! How are you? #gyncsm
Ann Becker-Schutte @drbeckerschutte
@subatomicdoc Hi Matt! #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: Tonight on #gyncsm we'll discuss... Whatever is on your mind! Research, Side Effects, Survivorship, Targeted therapies? Let’s c…
Dee Sparacio @womenofteal
@subatomicdoc Great! enjoying my summer with my grandsons. #gyncsm
VirginiaLee MSW, MS @vleelcsw
#gyncsm LCSW Am strong support of SwimacrossAmerica listening in 😊
Matthew Katz, MD @subatomicdoc
RT @gyncsm: It's time for our open discussion on topics of ur choice. Open Mic starts now! What do u want to chat about? https://t.co/rhMH5…
Matthew Katz, MD @subatomicdoc
@DrBeckerSchutte Hi Ann! Good to see you :-) #gyncsm
GYN Cancer | #GYNCSM @gyncsm
@EMBOSU @MDAndersonNews welcome @EMBOSU #gyncsm
Dee Sparacio @womenofteal
@vleeyoung Thanks for joining us for our Open Mic chat. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Feel free to jump on in with your own question for the group or something you want to share. :) #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Feel free to jump on in with your own question for the group or something you want to share. :) #gyncsm
Suzie Siegel @suziesiegel
@womenofteal It would be great if #gyncsm women would sign the petition to make it official: https://t.co/HVPjyABNiI
Christina Lizaso @btrfly12
@SuzieSiegel are there some key facts / info that we can share about sarcoma this month? #gyncsm
VirginiaLee MSW, MS @vleelcsw
RT @womenofteal: @vleeyoung Thanks for joining us for our Open Mic chat. #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @SuzieSiegel: @womenofteal It would be great if #gyncsm women would sign the petition to make it official: https://t.co/HVPjyABNiI
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @SuzieSiegel are there some key facts / info that we can share about sarcoma this month? #gyncsm
Christina Lizaso @btrfly12
@SuzieSiegel will do! :) happy to support #gyncsm
Dee Sparacio @womenofteal
@SuzieSiegel I'd be happy to. A close friend has sarcoma. #gyncsm
Ann Becker-Schutte @drbeckerschutte
@SuzieSiegel @womenofteal Done and done. #gyncsm
Dee Sparacio @womenofteal
@SuzieSiegel What is sarcoma? are there risk factors? #gyncsm
Christina Lizaso @btrfly12
@ShereesePubHlth Thanks for chatting along with us. You have any projects or chats coming up you'd like to share about? #gyncsm
GYN Cancer | #GYNCSM @gyncsm
MT @LindaHalsey2 #gyncsm As a nonprofit for HPV/Cervical Cancer awareness what suggestions do you have to improve delivery #gyncsm
Suzie Siegel @suziesiegel
@womenofteal Y'all are too fast for me! Sarcoma is a cancer of connective tissues. The main types of gyn sarcoma are leiomyosarcoma, #gyncsm
Christina Lizaso @btrfly12
@LindaHalsey2 Hi Linda - be sure to use #gyncsm so we can see your tweets :)
ShereeseM, MS/MBA @shereesepubhlth
@btrfly12 Thanks for asking. I was asked to enter the C3 prize for Cancer care competition again this year. I'm also hosting #PWchat on 9/13 #gyncsm
Christina Lizaso @btrfly12
@SuzieSiegel no worries - tonight we'll try to go at an easy pace :) #gyncsm
Dee Sparacio @womenofteal
@gyncsm @LindaHalsey2 Are you talking about reaching women with HPV information? Or just cervical cancer awareness? #gyncsm
Christina Lizaso @btrfly12
@jillosopher hope things are going well for you - always nice to see you here :) #gyncsm
Suzie Siegel @suziesiegel
@womenofteal low- & high-grade endometrial stromal sarcoma, & undifferentiated uterine sarcoma. Some include carcinosarcoma. #gyncsm
Linda Girgis, MD @drlindamd
RT @ShereesePubHlth: @btrfly12 Thanks for asking. I was asked to enter the C3 prize for Cancer care competition again this year. I'm als…
Erica Bednar @embosu
Something "new" in hereditary cancer world: the @nccn guidelines for "Hereditary Colorectal Cancer" was recently updated #gyncsm #gencsm
Dee Sparacio @womenofteal
RT @btrfly12: @SuzieSiegel no worries - tonight we'll try to go at an easy pace :) #gyncsm
Dee Sparacio @womenofteal
RT @SuzieSiegel: @womenofteal low- & high-grade endometrial stromal sarcoma, & undifferentiated uterine sarcoma. Some include carcinosarcom…
Dee Sparacio @womenofteal
RT @SuzieSiegel: @womenofteal Y'all are too fast for me! Sarcoma is a cancer of connective tissues. The main types of gyn sarcoma are leiom…
Christina Lizaso @btrfly12
@LindaHalsey2 are you focusing on vaccine or screening or post-diagnosis - or everything? :) edu needed in all areas-makes it hard #gyncsm
Dee Sparacio @womenofteal
RT @EMBOSU: Something "new" in hereditary cancer world: the @nccn guidelines for "Hereditary Colorectal Cancer" was recently updated #gyncs
Suzie Siegel @suziesiegel
@womenofteal Risk factors include exposure to radiation & use of Tamoxifen, plus genetic issues such as Li-Fraumeni Syndrome. #gyncsm
Christina Lizaso @btrfly12
@EMBOSU that's good to hear! are lynch and other things more clearly laid out? #gyncsm
Dee Sparacio @womenofteal
@EMBOSU @nccn Welcome Erica. Thanks for sharing this info . #gyncsm
Erica Bednar @embosu
@nccn There is now more detail about Lynch-syndrome related ovarian cancer risk (also shows how little we know)! #gyncsm #gencsm https://t.co/CUS0Vy4YoI
Dee Sparacio @womenofteal
RT @SuzieSiegel: @womenofteal Risk factors include exposure to radiation & use of Tamoxifen, plus genetic issues such as Li-Fraumeni Syndro…
Jillosopher @jillosopher
@btrfly12 thanks, Christina. Good to see you, too. I'm struggling in post treatment life. Unknowns, grief, plus effects from chemo, rads. :/ #gyncsm
Matthew Katz, MD @subatomicdoc
RT @SuzieSiegel: @womenofteal Risk factors include exposure to radiation & use of Tamoxifen, plus genetic issues such as Li-Fraumeni Syndro…
Ann Becker-Schutte @drbeckerschutte
RT @SuzieSiegel: @womenofteal Y'all are too fast for me! Sarcoma is a cancer of connective tissues. The main types of gyn sarcoma are leiom…
Christina Lizaso @btrfly12
RT @ShereesePubHlth: @btrfly12 Thanks for asking. I was asked to enter the C3 prize for Cancer care competition again this year. I'm als…
Ann Becker-Schutte @drbeckerschutte
RT @SuzieSiegel: @womenofteal low- & high-grade endometrial stromal sarcoma, & undifferentiated uterine sarcoma. Some include carcinosarcom…
Ann Becker-Schutte @drbeckerschutte
RT @EMBOSU: Something "new" in hereditary cancer world: the @nccn guidelines for "Hereditary Colorectal Cancer" was recently updated #gyncs
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: @gyncsm @LindaHalsey2 Are you talking about reaching women with HPV information? Or just cervical cancer awareness? #gync
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @LindaHalsey2 are you focusing on vaccine or screening or post-diagnosis - or everything? :) edu needed in all areas-makes it…
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @EMBOSU that's good to hear! are lynch and other things more clearly laid out? #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm we focus on educating the communities on the importance of the vaccine and what parents should know
Christina Lizaso @btrfly12
@jillosopher #gyncsm - there is a growing effort to focus more resources and attn to post-treatment life - good to see but hard for those "in it" now
Erica Bednar @embosu
@nccn However, no major changes to risk management or screening for endometrial and ovarian cancer for women with Lynch syndrome #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm as well as facts about Cervical Cancer and fact sheets for men
Angela Hemans @angelahemans
RT @ShereesePubHlth: @btrfly12 Thanks for asking. I was asked to enter the C3 prize for Cancer care competition again this year. I'm als…
Dee Sparacio @womenofteal
RT @LindaHalsey2: @btrfly12 #gyncsm we focus on educating the communities on the importance of the vaccine and what parents should know
Christina Lizaso @btrfly12
@LindaHalsey2 that's great because it is pretty amazing that we can actually prevent a cancer - we have the science for cervical #gyncsm
Suzie Siegel @suziesiegel
Most gyn sarcomas start in the uterus. Symptoms are similar to carcinomas: bleeding & feeling bloated. #gyncsm
Dee Sparacio @womenofteal
@LindaHalsey2 @btrfly12 Can you reach out to Girls Scouts, Boy Scouts, school nurses? #gyncsm
Dee Sparacio @womenofteal
RT @SuzieSiegel: Most gyn sarcomas start in the uterus. Symptoms are similar to carcinomas: bleeding & feeling bloated. #gyncsm
Dee Sparacio @womenofteal
RT @LindaHalsey2: @btrfly12 #gyncsm as well as facts about Cervical Cancer and fact sheets for men
Ann Becker-Schutte @drbeckerschutte
@jillosopher @btrfly12 So sorry to hear about the post-treatment struggles. I think that is more common than we often hear. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: @LindaHalsey2 that's great because it is pretty amazing that we can actually prevent a cancer - we have the science for cervi…
Linda Halsey @lindahalsey2
@womenofteal @btrfly12 #gyncsm I am in Brooklyn we go wherever we are invited to share information/literature on the subject matter
Suzie Siegel @suziesiegel
MRIs & endometrial biopsies can raise red flags, but there's no foolproof way to determine a gyn sarcoma before surgery. #gyncsm
Christina Lizaso @btrfly12
@LindaHalsey2 studies show pediatricians have a huge influence on whether kids get vaccinated - parents do listen to doc rec #gyncsm
Matthew Katz, MD @subatomicdoc
RT @btrfly12: @LindaHalsey2 studies show pediatricians have a huge influence on whether kids get vaccinated - parents do listen to doc rec…
Christina Lizaso @btrfly12
@LindaHalsey2 I think it is always going to be tough, but good to focus on doc's and then community influencers - churches, centers, #gyncsm
Jillosopher @jillosopher
@DrBeckerSchutte @btrfly12 Also hard to hear "I don't know, we only know for breast cancer" or fill-in-the-blank-cancer when I ask about post tx meds. :/ #gyncsm
Matthew Katz, MD @subatomicdoc
@SuzieSiegel Agreed. It's rare as a diagnosis and may not be apparent until surgery. #gyncsm
Dee Sparacio @womenofteal
I didn't know MT @SuzieSiegel: MRIs & endometrial biopsies raise red flags,no foolproof way to determine a gyn sarcoma b4surgery. #gyncsm
Suzie Siegel @suziesiegel
Rare sarcoma types that can occur in gyn include adenosarcoma & PEComa. #gyncsm
Christina Lizaso @btrfly12
@SuzieSiegel that is so tough with GYN cancers - ovarian also really isn't diagnosed until after surgery #gyncsm
Jillosopher @jillosopher
@DrBeckerSchutte @btrfly12 Seems to me there isn't enough research being done to prevent recurrence for such a common cancer like endometrial. #gyncsm
Ann Becker-Schutte @drbeckerschutte
Post-treatment is really tough for so many people. It's tough to go from the intensity of treatment to the uncertainty of after. #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @jillosopher: @DrBeckerSchutte @btrfly12 Seems to me there isn't enough research being done to prevent recurrence for such a comm…
VirginiaLee MSW, MS @vleelcsw
@btrfly12 @LindaHalsey2 #gyncsm unless it's a religious or cultural conflict
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm I have found that many doctors don't have time to answer all the questions hoping to sponsor forums in future
ShereeseM, MS/MBA @shereesepubhlth
@jillosopher @DrBeckerSchutte @btrfly12 The #CuresAct was supposed to help w/ this issue but I can't say its been realized just yet #gyncsm
Christina Lizaso @btrfly12
@LindaHalsey2 love focus on men as well - so important for both boys and girls to be vaccinated. also anal/throat cancers on rise #gyncsm
Dee Sparacio @womenofteal
@LindaHalsey2 You could also try local health fairs, or other public events like the library. #gyncsm
Suzie Siegel @suziesiegel
Because #gyncsm sarcomas are not as responsive to chemo as some other cancers, there's a misconception that chemo is useless.
Dee Sparacio @womenofteal
RT @SuzieSiegel: Rare sarcoma types that can occur in gyn include adenosarcoma & PEComa. #gyncsm
Ann Becker-Schutte @drbeckerschutte
@jillosopher @btrfly12 It is tough that there is really such a small amount of resources and focused information. #gyncsm
ShereeseM, MS/MBA @shereesepubhlth
RT @SuzieSiegel: Because #gyncsm sarcomas are not as responsive to chemo as some other cancers, there's a misconception that chemo is usele…
ShereeseM, MS/MBA @shereesepubhlth
RT @womenofteal: @LindaHalsey2 You could also try local health fairs, or other public events like the library. #gyncsm
Dee Sparacio @womenofteal
Agree MT @DrBeckerSchutte: Post-treatment is really tough. It's tough to go from the intensity of treatment touncertainty of after. #gyncsm
Jillosopher @jillosopher
@ShereesePubHlth @DrBeckerSchutte @btrfly12 I hadn't heard of the #CuresAct. Need to look into it. Maybe it needs this future nurse to lend a hand. :) #gyncsm
Dee Sparacio @womenofteal
RT @ShereesePubHlth: @jillosopher @DrBeckerSchutte @btrfly12 The #CuresAct was supposed to help w/ this issue but I can't say its been real…
Ann Becker-Schutte @drbeckerschutte
I honestly get more clients post-treatment than during treatment. Their friends/family struggle to understand their fears. #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @LindaHalsey2 love focus on men as well - so important for both boys and girls to be vaccinated. also anal/throat cancers on…
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm https://t.co/YW8Ls3QaRX
Ann Becker-Schutte @drbeckerschutte
RT @LindaHalsey2: @btrfly12 #gyncsm I have found that many doctors don't have time to answer all the questions hoping to sponsor forums in…
Dee Sparacio @womenofteal
RT @LindaHalsey2: @btrfly12 #gyncsm https://t.co/YW8Ls3QaRX
Christina Lizaso @btrfly12
RT @jillosopher: @DrBeckerSchutte @btrfly12 Also hard to hear "I don't know, we only know for breast cancer" or fill-in-the-blank-ca…
Ann Becker-Schutte @drbeckerschutte
RT @LindaHalsey2: @btrfly12 #gyncsm https://t.co/YW8Ls3QaRX
Christina Lizaso @btrfly12
RT @jillosopher: @DrBeckerSchutte @btrfly12 Seems to me there isn't enough research being done to prevent recurrence for such a comm…
ShereeseM, MS/MBA @shereesepubhlth
@jillosopher @DrBeckerSchutte @btrfly12 #CuresAct https://t.co/wkDrnGG9qq Cancer care should benefit from this #gyncsm
Christina Lizaso @btrfly12
@LindaHalsey2 thanks for sharing your site and your work :) #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm We cover any and every event health Fair PTA invite to do presentations
Jillosopher @jillosopher
@DrBeckerSchutte Yes! I have night terrors, sometimes day terrors, and I've lost social media "friends" by discussing fears. #gyncsm
Dee Sparacio @womenofteal
@LindaHalsey2 In NJ where I am we have state county chronic disease coalitions. We ran a CME for school nurses on the HPV vac #gyncsm
Dee Sparacio @womenofteal
@jillosopher @DrBeckerSchutte You can discuss those fears with me any time. Been through that too. Tough anxiety for a while #gyncsm
Jillosopher @jillosopher
@ShereesePubHlth @DrBeckerSchutte @btrfly12 Thanks for sharing this. #gyncsm
Ann Becker-Schutte @drbeckerschutte
@jillosopher Sending all the warm thoughts your way. You definitely aren't the only one. Your fears are real. #gyncsm
Christina Lizaso @btrfly12
The @GlobalGenes site has some amazing free toolkits for health advocates. Can also check out blogs from @JBBC re: health marketing #gyncsm
Erica Bednar @embosu
Some may have heard about this at conferences recently: @SU2C study making genetic testing more accessible: https://t.co/Cep5aLxEiE #gyncsm
Dee Sparacio @womenofteal
RT @EMBOSU: Some may have heard about this at conferences recently: @SU2C study making genetic testing more accessible: https://t.co/Cep5aL…
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: The @GlobalGenes site has some amazing free toolkits for health advocates. Can also check out blogs from @JBBC re: health mar…
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: @LindaHalsey2 In NJ where I am we have state county chronic disease coalitions. We ran a CME for school nurses on the HPV…
Ann Becker-Schutte @drbeckerschutte
RT @EMBOSU: Some may have heard about this at conferences recently: @SU2C study making genetic testing more accessible: https://t.co/Cep5aL…
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm our goal is also to make impact in the LBGT community because they are underserved and feel uncomfortable @dr
Dee Sparacio @womenofteal
RT @LindaHalsey2: @btrfly12 #gyncsm our goal is also to make impact in the LBGT community because they are underserved and feel uncomfortab…
Jillosopher @jillosopher
@womenofteal @DrBeckerSchutte Thank you both!! <3 #gyncsm
Ann Becker-Schutte @drbeckerschutte
One of my personal passions is advocating for more comprehensive emotional support post-treatment. #gyncsm
Dee Sparacio @womenofteal
Me 2 RT @DrBeckerSchutte: One of my personal passions is advocating for more comprehensive emotional support post-treatment. #gyncsm
Christina Lizaso @btrfly12
@jillosopher in the Smart Patients community, there's a lot of discussion about post-treatment life. you'll find dee and i there #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @jillosopher in the Smart Patients community, there's a lot of discussion about post-treatment life. you'll find dee and i th…
Erica Bednar @embosu
@SU2C We hope the study will help women & family members get genetic testing in places/situations where they don't have genetic counseling #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @EMBOSU: @SU2C We hope the study will help women & family members get genetic testing in places/situations where they don't…
ShereeseM, MS/MBA @shereesepubhlth
@LindaHalsey2 @btrfly12 @dr LBGT pop is seriously underserved. I had a DC rep tell me "they get their share thru reg channels. There's no need". Not true, IMHO #gyncsm
Dee Sparacio @womenofteal
RT @ShereesePubHlth: @jillosopher @DrBeckerSchutte @btrfly12 #CuresAct https://t.co/wkDrnGG9qq Cancer care should benefit from this #gync
Christina Lizaso @btrfly12
@LindaHalsey2 YES! so important. Thank you for this work. Sounds like you are up to great things. #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm I don't want another caregiver parent or love one to experience what I did because of not knowing the facts
Ann Becker-Schutte @drbeckerschutte
RT @ShereesePubHlth: @LindaHalsey2 @btrfly12 @dr LBGT pop is seriously underserved. I had a DC rep tell me "they get their share thru re…
Ann Becker-Schutte @drbeckerschutte
RT @LindaHalsey2: @btrfly12 #gyncsm I don't want another caregiver parent or love one to experience what I did because of not knowing the f…
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @LindaHalsey2 YES! so important. Thank you for this work. Sounds like you are up to great things. #gyncsm
Christina Lizaso @btrfly12
RT @EMBOSU: Some may have heard about this at conferences recently: @SU2C study making genetic testing more accessible: https://t.co/Cep5aL…
Erica Bednar @embosu
#Powerful #endcancer #gyncsm https://t.co/rcptFs1NyU
Matthew Katz, MD @subatomicdoc
RT @btrfly12: The @GlobalGenes site has some amazing free toolkits for health advocates. Can also check out blogs from @JBBC re: health mar…
Christina Lizaso @btrfly12
On my mind - I'm in a FB group for CHEK2 and many previvors reporting getting ovaries out though science isn't there yet on that. #gyncsm
Dee Sparacio @womenofteal
@LindaHalsey2 @btrfly12 Just checked https://t.co/TYboE7qLZ8 you are doing some wonderful outreach. #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: On my mind - I'm in a FB group for CHEK2 and many previvors reporting getting ovaries out though science isn't there yet on t…
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: @LindaHalsey2 @btrfly12 Just checked https://t.co/TYboE7qLZ8 you are doing some wonderful outreach. #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm not saying they don't but dr visits are time restricted so q & a limited & parents may not research 4 theirselves
Dee Sparacio @womenofteal
RT @btrfly12: On my mind - I'm in a FB group for CHEK2 and many previvors reporting getting ovaries out though science isn't there yet on t…
Ann Becker-Schutte @drbeckerschutte
It always feels like increased education, for parents, for patients, for caregivers & families is an ongoing need. #gyncsm
Christina Lizaso @btrfly12
@LindaHalsey2 There are some free fact sheets, etc. from .gov that doctors can use to make it easier - now to get them to use them! #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: @LindaHalsey2 There are some free fact sheets, etc. from .gov that doctors can use to make it easier - now to get them to use…
Cheryl Thompson @cancerepicheryl
RT @NCICancerStats: The USPSTF recommends cervical cancer screening in women (21 to 65 yrs) every 3 years. More facts here: https://t.co/1d…
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @LindaHalsey2 There are some free fact sheets, etc. from .gov that doctors can use to make it easier - now to get them to use…
ShereeseM, MS/MBA @shereesepubhlth
@btrfly12 You know, I really want to (1 day) discuss the lack of funding 4 female researchers, tasked w/ post BrCa Dx research #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @ShereesePubHlth: @btrfly12 You know, I really want to (1 day) discuss the lack of funding 4 female researchers, tasked w/ post BrCa Dx…
ShereeseM, MS/MBA @shereesepubhlth
@btrfly12 Ovary removal is sometimes part of post BrCa Tx #gyncsm
Dee Sparacio @womenofteal
@btrfly12 There is so much discussion on genetic testing and breast/ovary removal #gyncsm
Linda Halsey @lindahalsey2
@btrfly12 #gyncsm I have everything that is available keep all info up to date and even read current scholarly articles on subject matter
Ann Becker-Schutte @drbeckerschutte
@ShereesePubHlth @btrfly12 So much this. The lack of funding for female researchers, research on issues affecting women. . . #gyncsm
Jillosopher @jillosopher
@LindaHalsey2 @btrfly12 I wonder if drs perceive parents might object on political/relig grounds, they might be reluctant to recommend. #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: @jillosopher @DrBeckerSchutte @btrfly12 #CuresAct https://t.co/wkDrnGG9qq Cancer care should benefit from this #gync
Erica Bednar @embosu
@btrfly12 how can we provide info & support to these previvors? Resources dedicated to BRCA, less to "moderate" risk genes #gyncsm #gcchat https://t.co/YMUcWWK7E1
Ann Becker-Schutte @drbeckerschutte
RT @EMBOSU: @btrfly12 how can we provide info & support to these previvors? Resources dedicated to BRCA, less to "moderate" ris…
Dee Sparacio @womenofteal
@ShereesePubHlth I hear you . This yr at ASCO17 there was a discussions for women on mentoring and getting support for research #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: @btrfly12 You know, I really want to (1 day) discuss the lack of funding 4 female researchers, tasked w/ post BrCa Dx…
Christina Lizaso @btrfly12
@ShereesePubHlth for BRCA there is a known link btwn breast and ovarian. there's no science yet for CHEK2, just anecdotal... #gyncsm
Mozido @mozldoglobal
RT @ShereesePubHlth: @btrfly12 Thanks for asking. I was asked to enter the C3 prize for Cancer care competition again this year. I'm als…
ShereeseM, MS/MBA @shereesepubhlth
RT @btrfly12: @ShereesePubHlth for BRCA there is a known link btwn breast and ovarian. there's no science yet for CHEK2, just anecdotal...…
Matthew Katz, MD @subatomicdoc
@jillosopher @LindaHalsey2 @btrfly12 Usually the doc's obligation is to discuss/offer evidence based treatments, help people make informed choice #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: @LindaHalsey2 @btrfly12 @dr LBGT pop is seriously underserved. I had a DC rep tell me "they get their share thru re…
Dee Sparacio @womenofteal
@ShereesePubHlth I think women doing research/patient care need strong mentors. need special category 4 grants for women researchers #gyncsm
Matthew Katz, MD @subatomicdoc
@jillosopher @LindaHalsey2 @btrfly12 People can choose not to take the option, but in analogous situations I try to address gently while still raising the issue #gyncsm
Erica Bednar @embosu
@ShereesePubHlth @btrfly12 Risks to removing ovaries in these young women-->early menopause w/o known cancer risk reduction benefit #gyncsm https://t.co/4oXRwsYcer
Christina Lizaso @btrfly12
RT @womenofteal: @LindaHalsey2 @btrfly12 Just checked https://t.co/TYboE7qLZ8 you are doing some wonderful outreach. #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @subatomicdoc: @jillosopher @LindaHalsey2 @btrfly12 Usually the doc's obligation is to discuss/offer evidence based treatments, he…
Christina Lizaso @btrfly12
RT @subatomicdoc: @jillosopher @LindaHalsey2 @btrfly12 Usually the doc's obligation is to discuss/offer evidence based treatments, he…
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: @ShereesePubHlth I hear you . This yr at ASCO17 there was a discussions for women on mentoring and getting support for res…
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @ShereesePubHlth for BRCA there is a known link btwn breast and ovarian. there's no science yet for CHEK2, just anecdotal...…
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: @ShereesePubHlth I think women doing research/patient care need strong mentors. need special category 4 grants for women r…
Matthew Katz, MD @subatomicdoc
@jillosopher @LindaHalsey2 @btrfly12 I'm sure there are some situations where those conversations don't come up; it's human nature to sometimes avoid difficult convos #gyncsm
Dee Sparacio @womenofteal
@btrfly12 @ShereesePubHlth This is why research and clinical trials are so important.S hould be data somewhere on CHEK2-Myriad? #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @womenofteal: @btrfly12 @ShereesePubHlth This is why research and clinical trials are so important.S hould be data somewhere on CHEK2-My…
Cancer Hope Network @cancerhopenet
RT @theNCI: HPV vaccination could reduce global deaths from #cervicalcancer by as much as two-thirds: https://t.co/JUjmUqZFn6…
Dee Sparacio @womenofteal
RT @EMBOSU: @ShereesePubHlth @btrfly12 Risks to removing ovaries in these young women-->early menopause w/o known cancer risk…
Christina Lizaso @btrfly12
@EMBOSU I think there has to be some kind of guidance for those moderate risk genes and for genes just not much studied. #gyncsm
Christina Lizaso @btrfly12
@EMBOSU Event if it is just "you are kind of on your own to make your decisions, but here is where to learn more and discuss w/ dr." #gyncsm
ShereeseM, MS/MBA @shereesepubhlth
@womenofteal Issues affecting women's health still does receive equitable share in research dollars. It's time that changes #gyncsm
Linda Halsey @lindahalsey2
@subatomicdoc @jillosopher @btrfly12 Yes but I find that info advertising only around time for school physicals and Jan CC Awareness month #gyncsm
Christina Lizaso @btrfly12
@EMBOSU There is a study going on that is seeking to learn how best to support that I participated in the interview for. #gyncsm
VirginiaLee MSW, MS @vleelcsw
@womenofteal @btrfly12 @ShereesePubHlth #gyncsm Explain CHEK2 Thx
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @EMBOSU Event if it is just "you are kind of on your own to make your decisions, but here is where to learn more and discuss…
Ann Becker-Schutte @drbeckerschutte
RT @ShereesePubHlth: @womenofteal Issues affecting women's health still does receive equitable share in research dollars. It's time that ch…
Ann Becker-Schutte @drbeckerschutte
RT @btrfly12: @EMBOSU There is a study going on that is seeking to learn how best to support that I participated in the interview for. #gyn
ShereeseM, MS/MBA @shereesepubhlth
Awarding rates 4 female applicants (14.9%) are systematically lower than those for male applicants (17.7%) (https://t.co/hSZopSMo1P) #gyncsm
Jillosopher @jillosopher
@subatomicdoc @LindaHalsey2 @btrfly12 Yeah, you'd hope not, but doctors are human, and with a lot of pushback in a conservative community, might be hard. Hope not. :( #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Already time for closing thoughts! You can start your tweet w/ TIL: for Today I Learned if you like. Hope you enjoyed the open mic #gyncsm
ShereeseM, MS/MBA @shereesepubhlth
RT @EMBOSU: @ShereesePubHlth @btrfly12 Risks to removing ovaries in these young women-->early menopause w/o known cancer risk…
Erica Bednar @embosu
@womenofteal @btrfly12 @ShereesePubHlth Testing labs like Myriad don't get auto-access to your medical records; (#HIPAA) so studies on cancer risk can be iffy #gyncsm
Ann Becker-Schutte @drbeckerschutte
RT @gyncsm: Already time for closing thoughts! You can start your tweet w/ TIL: for Today I Learned if you like. Hope you enjoyed the open…
GYN Cancer | #GYNCSM @gyncsm
Acronym busting: CHEK2 is a genetic mutation like BRCA or other more well known and studied. Main CHEK2 cancers: breast and colon. #gyncsm
Dee Sparacio @womenofteal
@EMBOSU @btrfly12 @ShereesePubHlth Thanks for the clarification #gyncsm
Cancer Hope Network @cancerhopenet
It's appreciated! 💙 https://t.co/RIHGIcBO4f
Ann Becker-Schutte @drbeckerschutte
RT @gyncsm: Acronym busting: CHEK2 is a genetic mutation like BRCA or other more well known and studied. Main CHEK2 cancers: breast and col…
Dee Sparacio @womenofteal
RT @ShereesePubHlth: Awarding rates 4 female applicants (14.9%) are systematically lower than those for male applicants (17.7%) (https://t.…
Erica Bednar @embosu
@btrfly12 The guidance when we dont have solid evidence is always - manage based on family history of cancers- the issue=interpretation #gyncsm
Ann Becker-Schutte @drbeckerschutte
TIL: There is still room to educate and increase support on issues faced by those post-treatment. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Acronym busting: CHEK2 is a genetic mutation like BRCA or other more well known and studied. Main CHEK2 cancers: breast and col…
VirginiaLee MSW, MS @vleelcsw
RT @gyncsm: Acronym busting: CHEK2 is a genetic mutation like BRCA or other more well known and studied. Main CHEK2 cancers: breast and col…
Ann Becker-Schutte @drbeckerschutte
RT @EMBOSU: @btrfly12 The guidance when we dont have solid evidence is always - manage based on family history of cancers- the…
Matthew Katz, MD @subatomicdoc
@jillosopher @LindaHalsey2 @btrfly12 True, we can hope. But you're right it's likely harder in different communities and settings #gyncsm
Christina Lizaso @btrfly12
RT @subatomicdoc: @jillosopher @LindaHalsey2 @btrfly12 People can choose not to take the option, but in analogous situations I try to…
Christina Lizaso @btrfly12
RT @EMBOSU: @ShereesePubHlth @btrfly12 Risks to removing ovaries in these young women-->early menopause w/o known cancer risk…
Dee Sparacio @womenofteal
Yes! MT @ShereesePubHlth:Issues affecting women's health still does receive equitable share in research dollars. #gyncsm
VirginiaLee MSW, MS @vleelcsw
@gyncsm Thanks #gyncsm
Dee Sparacio @womenofteal
Lost feed for a bit on tchat- switched to twitter #gyncsm
Slurbol @slurbol
RT @ShereesePubHlth: Awarding rates 4 female applicants (14.9%) are systematically lower than those for male applicants (17.7%) (https://t.…
Dee Sparacio @womenofteal
RT @DrBeckerSchutte: TIL: There is still room to educate and increase support on issues faced by those post-treatment. #gyncsm
Christina Lizaso @btrfly12
@womenofteal @ShereesePubHlth the Myriad CHEK2 results don't mention ovarian, the Ambry CHEK2 results do mention ovarian. just not enough science to know yet. #gyncsm
Erica Bednar @embosu
@gyncsm CHEK2 is the name of a gene...when there is an inherited change (mutation) in CHEK2 = some increased risk for specific cancers #gyncsm
Linda Halsey @lindahalsey2
@subatomicdoc @jillosopher @btrfly12 I have found that lack of knowledge and accepting myths are the main reasons for not vaccinating instead of cancer prevention vaccine#gyncsm
Christina Lizaso @btrfly12
RT @EMBOSU: @btrfly12 The guidance when we dont have solid evidence is always - manage based on family history of cancers- the…
Dee Sparacio @womenofteal
TIL need support for women post treatment, $ and mentoring support for Women researchers, & ways to reach the public on HPV vac #gyncsm
Dee Sparacio @womenofteal
RT @EMBOSU: @gyncsm CHEK2 is the name of a gene...when there is an inherited change (mutation) in CHEK2 = some increased risk f…
Dee Sparacio @womenofteal
RT @btrfly12: @womenofteal @ShereesePubHlth the Myriad CHEK2 results don't mention ovarian, the Ambry CHEK2 results do mention ov…
Erica Bednar @embosu
@gyncsm Cancer risks with a CHEK2 mutation are not as high was if someone gad a BRCA mutation. We call CHEK2 a "moderate" risk gene #gyncsm
Jillosopher @jillosopher
RT @LindaHalsey2: @subatomicdoc @jillosopher @btrfly12 I have found that lack of knowledge and accepting myths are the main reasons f…
Christina Lizaso @btrfly12
RT @LindaHalsey2: @subatomicdoc @jillosopher @btrfly12 I have found that lack of knowledge and accepting myths are the main reasons f…
Dee Sparacio @womenofteal
RT @EMBOSU: @btrfly12 The guidance when we dont have solid evidence is always - manage based on family history of cancers- the…
Dee Sparacio @womenofteal
RT @EMBOSU: @womenofteal @btrfly12 @ShereesePubHlth Testing labs like Myriad don't get auto-access to your medical records; (…
Christina Lizaso @btrfly12
CT: Loved chatting with you all tonight! Always let us know if there is an effort of yours we can support. Thanks for sharing. #gyncsm
Ann Becker-Schutte @drbeckerschutte
Always an honor to spend time with the amazing community here at #gyncsm.
Dee Sparacio @womenofteal
@LindaHalsey2 @jillosopher @btrfly12 Good to hear. #gyncsm
Overcoming Menopause @carollmorris1
RT @EMBOSU: @ShereesePubHlth @btrfly12 Risks to removing ovaries in these young women-->early menopause w/o known cancer risk…
Christina Lizaso @btrfly12
RT @womenofteal: TIL need support for women post treatment, $ and mentoring support for Women researchers, & ways to reach the public on HP…
Dee Sparacio @womenofteal
RT @btrfly12: CT: Loved chatting with you all tonight! Always let us know if there is an effort of yours we can support. Thanks for sharing…
Matthew Katz, MD @subatomicdoc
@btrfly12 Thanks for moderating! Great to see you all tonight #gyncsm
Jillosopher @jillosopher
Goodnight, and thanks #gyncsm I love these chats.
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
ShereeseM, MS/MBA @shereesepubhlth
Enjoy the week everyone #gyncsm
Erica Bednar @embosu
TIL that there are many different needs for gyn cancer education: sarcoma research, HPV vaccination, emotional support, & genetics! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks all for today's conversation. Next #gyncsm chat: Wed Aug 9th, 9pmET: You never heard of Primary Peritoneal Cancer or GTDisease?
Dee Sparacio @womenofteal
Thanks everyone. Enjoyed tonights convo - I continue to learn from all of you #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
Dee Sparacio @womenofteal
RT @gyncsm: Thanks all for today's conversation. Next #gyncsm chat: Wed Aug 9th, 9pmET: You never heard of Primary Peritoneal Cancer or GTD…
Dee Sparacio @womenofteal
RT @EMBOSU: TIL that there are many different needs for gyn cancer education: sarcoma research, HPV vaccination, emotional support, & genet…
GYN Cancer | #GYNCSM @gyncsm
Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Goodnight to all. Thanks for tweeting along with us :) #gyncsm
Erica Bednar @embosu
Thanks to everyone for another fascinating and informative chat! Have a great evening! #gyncsm
Christina Lizaso @btrfly12
RT @DrBeckerSchutte: TIL: There is still room to educate and increase support on issues faced by those post-treatment. #gyncsm
Dee Sparacio @womenofteal
Thanks @DrBeckerSchutte @EMBOSU @subatomicdoc @ShereesePubHlth for sharing your expertise with us tonight #gyncsm
Linda Halsey @lindahalsey2
@gyncsm I am learning how to tweet n share great info. Thanks for allowing me to join the discussion #gyncsm
Christina Lizaso @btrfly12
RT @EMBOSU: TIL that there are many different needs for gyn cancer education: sarcoma research, HPV vaccination, emotional support, & genet…
Christina Lizaso @btrfly12
@EMBOSU Thanks for all you do! #gyncsm
Dee Sparacio @womenofteal
@vleeyoung @LindaHalsey2 So glad you joined us. #gyncsm
Dee Sparacio @womenofteal
Thanks to my amazing chat co-moderator @btrfly12 could never do this without you. #gyncsm
Dee Sparacio @womenofteal
@ShereesePubHlth You too. See you next month #gyncsm
Christina Lizaso @btrfly12
Thanks to @womenofteal for making this month's chat work during a family vacation. Back to the magic :) #gyncsm
Matthew Katz, MD @subatomicdoc
@womenofteal @DrBeckerSchutte @EMBOSU @ShereesePubHlth My pleasure Dee, always nice to be able to join you and share with the #gyncsm community. Have a great night :-)
Christina Lizaso @btrfly12
@SuzieSiegel Would you like to submit a guest blog post for #gyncsm blog about the awareness month petition and why imp? cc @womenofteal

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