#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.

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NCI Cancer Stats @NCICancerStats
The earlier uterine #cancer is caught, the better chance a woman has of surviving five years after diagnosis. Uterine cancer has an 81.1% 5-year relative survival rate: https://t.co/cdRhE4DJRd #GynCSM https://t.co/fB65RBMKD0
GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@womenofteal Hi. Thanks for the warm welcome. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
Patient Empowerment Network @power4patients
Hi all, it’s Andrea joining from snowy Boulder, CO ❄️ #GYNCSM
Dee Sparacio @womenofteal
@power4patients Hi Andrea! Snow already? It still feels like warm and muggy in NJ. #gyncsm
Christina Lizaso @btrfly12
@ShereesePubHlth @HCNow Pretty good. Not loving that homework season is back for the kiddos. a little tired from Gyn Cancer Awareness Month content curation, but doing well. Thanks #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@power4patients Snow? I'm so jealous. We're still seeing temps in the 80s here. #GYNCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: @ShereesePubHlth @HCNow Pretty good. Not loving that homework season is back for the kiddos. a little tired from Gyn Cancer Awareness Month content curation, but doing well. Thanks #gyncsm
Ebony Hoskins @drebonyhoskins
Let’s learn and chat #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Our co-moderators are @womenofteal @btrfly12 #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
GYN Cancer | #GYNCSM @gyncsm
We start out with brief intro’s - Please take a moment to introduce yourself. :) #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: We start out with brief intro’s - Please take a moment to introduce yourself. :) #gyncsm
Dee Sparacio @womenofteal
Dee here! Dx #ovca Stage3B 2005, OC research advocate, author, blogger & co-moderator #gyncsm
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@gyncsm Hi all. #palliativecare onc doc in Houston. My primary practice is symptom management and #supportivecare in persons w #cancer and #caregivers. #hpm #endcancer #gyncsm
Christina Lizaso @btrfly12
A huge THANK YOU to everyone who took steps during Gynecologic Cancer Awareness Month / #OvarianCancer Awareness Month to advocate for yourself and others in ways from small to big. Every action matters. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
Intro: I'm Shereese, healthcare strategist, advocate (Ca➡️SDOH), speaker, and writer from Maryland's eastern shore #gyncsm https://t.co/NHM4Ai14ts
Inspire @InspireIsHealth
Hello to #gyncsm, John Novack from Inspire checking in.
Dee Sparacio @womenofteal
@IshwariaMD @gyncsm So glad you are able to join us! #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: A huge THANK YOU to everyone who took steps during Gynecologic Cancer Awareness Month / #OvarianCancer Awareness Month to advocate for yourself and others in ways from small to big. Every action matters. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here.
Dee Sparacio @womenofteal
RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here.
GYN Cancer | #GYNCSM @gyncsm
Thanks so much for participating in our chats @IshwariaMD and for sharing information to #gyncsm. Especially grateful you can join tonight.
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here.
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: Thanks so much for participating in our chats @IshwariaMD and for sharing information to #gyncsm. Especially grateful you can join tonight.
Dee Sparacio @womenofteal
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
@drebonyhoskins Thanks so much for joining in Dr. Hoskins #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
Hello all! Gyn Onc from @mdandersonnews - excited to be here tonight! #gyncsm
Ebony Hoskins @drebonyhoskins
Hi all! Gyn onc in the Washington DC area👋🏾 #gyncsm
GYN Cancer | #GYNCSM @gyncsm
#gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
Dee Sparacio @womenofteal
@ShannonWestin @MDAndersonNews Hi Shannon! Hope you are doing well. You sure have had a busy few weeks. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
Dee Sparacio @womenofteal
#gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@womenofteal @MDAndersonNews Hi Dee! It's all good!!! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Tonight we will discuss “Managing Cancer Pain”. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Tonight we will discuss “Managing Cancer Pain”. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: Tonight we will discuss “Managing Cancer Pain”. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/qwS05OLITM
Patient Empowerment Network @power4patients
@womenofteal We went from summer to winter in 2 days! #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/qwS05OLITM
Christina Lizaso @btrfly12
RT @gyncsm: Tonight we will discuss “Managing Cancer Pain”. #gyncsm
Georgia @_GeorgiaHurst
RT @gyncsm: Tonight we will discuss “Managing Cancer Pain”. #gyncsm
Patient Empowerment Network @power4patients
RT @gyncsm: Tonight we will discuss “Managing Cancer Pain”. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/qwS05OLITM
Inspire @InspireIsHealth
RT @gyncsm: Tonight we will discuss “Managing Cancer Pain”. #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@drebonyhoskins Welcome Ebony!! #gyncsm
Dee Sparacio @womenofteal
#PAM2018 Pain Awareness Month was last month - September #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: You can find a listing of all the #gyncsm topic questions that will be coming up here: You can find a listing of all the #gyncsm topic questions that will be coming up here: https://t.co/qwS05OLITM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T1: What are some of the causes of pain in cancer patients? How is cancer-related pain diagnosed? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T1: T1: What are some of the causes of pain in cancer patients? How is cancer-related pain diagnosed? #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: T1: T1: What are some of the causes of pain in cancer patients? How is cancer-related pain diagnosed? #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T1: T1: What are some of the causes of pain in cancer patients? How is cancer-related pain diagnosed? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
Approximately 25% to 50% of people w/ cancer complain of pain at time of dx, and up to 75% of people with cancer complain of pain as the cancer progresses. It can be caused by stage of Ca, even the tx type #Gyncsm
Dee Sparacio @womenofteal
RT @ShereesePubHlth: Approximately 25% to 50% of people w/ cancer complain of pain at time of dx, and up to 75% of people with cancer complain of pain as the cancer progresses. It can be caused by stage of Ca, even the tx type #Gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
forgot to put T1 #Gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
A1: Cancer-related pain is complex. Causes can include direct involvement of nerves, blockage of the bowels or constipation. #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: A1: A1: Cancer-related pain is complex. Causes can include direct involvement of nerves, blockage of the bowels or constipation. #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: Approximately 25% to 50% of people w/ cancer complain of pain at time of dx, and up to 75% of people with cancer complain of pain as the cancer progresses. It can be caused by stage of Ca, even the tx type #Gyncsm
Dee Sparacio @womenofteal
T1 - treatments cause pain too - surgery,radiation therapy, chemo,hormone therapy #gyncsm
Christina Lizaso @btrfly12
@ShereesePubHlth I, myself, am the worst with the T's and Qs :) #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
Absolutely true. RT @womenofteal T1 - treatments cause pain too - surgery,radiation therapy, chemo,hormone therapy #gyncsm
Dee Sparacio @womenofteal
@ShereesePubHlth I forgot #gyncsm once already.
Patient Empowerment Network @power4patients
T1: Cancer pain can come from various sources. It can come from the tumor pressing on bone, nerves or organs and sometimes pain comes from the treatment. #GYNCSM
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @power4patients: T1: T1: Cancer pain can come from various sources. It can come from the tumor pressing on bone, nerves or organs and sometimes pain comes from the treatment. #GYNCSM
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @power4patients: T1: T1: Cancer pain can come from various sources. It can come from the tumor pressing on bone, nerves or organs and sometimes pain comes from the treatment. #GYNCSM
GYN Cancer | #GYNCSM @gyncsm
Topic 2 coming up... (T2:) #gyncsm
Dee Sparacio @womenofteal
RT @power4patients: T1: T1: Cancer pain can come from various sources. It can come from the tumor pressing on bone, nerves or organs and sometimes pain comes from the treatment. #GYNCSM
Christina Lizaso @btrfly12
Is it hard to discern what is cancer-related vs. treatment related vs. not related? #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: Is it hard to discern what is cancer-related vs. treatment related vs. not related? #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T2: What pain medications are available for cancer patients? What is recommended? #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@btrfly12 Super tricky - but often treated similarly, so we don't have to completely determine before we start to help #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: T2: T2: What pain medications are available for cancer patients? What is recommended? #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: T2: T2: What pain medications are available for cancer patients? What is recommended? #gyncsm
Patient Empowerment Network @power4patients
@btrfly12 That’s what makes it so complex. Difficult to pinpoint origin making it difficult to effectively treat and manage #gyncsm
Dee Sparacio @womenofteal
@btrfly12 It is. I had pain from Neulasta which stimulated my white blood cells so I wouldn't become neutropenic and could continue chemo. #gyncsm
Inspire @InspireIsHealth
RT @gyncsm: T2: T2: What pain medications are available for cancer patients? What is recommended? #gyncsm
Patient Empowerment Network @power4patients
RT @ShannonWestin: @btrfly12 Super tricky - but often treated similarly, so we don't have to completely determine before we start to help #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T2: T2: What pain medications are available for cancer patients? What is recommended? #gyncsm
Christina Lizaso @btrfly12
RT @ShannonWestin: @btrfly12 Super tricky - but often treated similarly, so we don't have to completely determine before we start to help #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @power4patients: @btrfly12 That’s what makes it so complex. Difficult to pinpoint origin making it difficult to effectively treat and manage #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
T2 medicimal cannibus, alternative therapies #gyncsm https://t.co/sVk737f0NA
Dee Sparacio @womenofteal
T2 Well there are non - opiod (NSAIDS, Tylenol) , opiods ( fentanyl, morphine, oxycodone) and in some states - Cannabis? #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
T1: We tend to think of cancer pain as acute (new or rapidly worsening pain) or chronic (not new). Acute is often bc of cancer itself (organ involvement eg liver; fracture; bowel perforation) or treatment (mouth sores, esophagitis, enteritis...). Chronic is neuropathy... #GYNCSM
Shannon Westin, MD, MPH, FASCO @ShannonWestin
A2: Pain control can be achieved with narcotic meds, anti-inflammatory meds, anti-spasm meds, anti-seizure meds (for neuropathy) #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: A2: A2: Pain control can be achieved with narcotic meds, anti-inflammatory meds, anti-spasm meds, anti-seizure meds (for neuropathy) #gyncsm
Patient Empowerment Network @power4patients
RT @IshwariaMD: T1: T1: We tend to think of cancer pain as acute (new or rapidly worsening pain) or chronic (not new). Acute is often bc of cancer itself (organ involvement eg liver; fracture; bowel perforation) or treatment (mouth sores, esophagitis, enteritis...). Chronic is neuropathy... #GYNCSM
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: T1: T1: We tend to think of cancer pain as acute (new or rapidly worsening pain) or chronic (not new). Acute is often bc of cancer itself (organ involvement eg liver; fracture; bowel perforation) or treatment (mouth sores, esophagitis, enteritis...). Chronic is neuropathy... #GYNCSM
Dee Sparacio @womenofteal
@ShannonWestin How could I forget the pain of neuropathy! #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@womenofteal Such a struggle to control this type of pain #gyncsm
Christina Lizaso @btrfly12
T2: After surgery, doctors are trying out pain management strategies using varying combinations of acetaminophen, ketorolac, gabapentin and other opioid alternatives. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @btrfly12: T2: T2: After surgery, doctors are trying out pain management strategies using varying combinations of acetaminophen, ketorolac, gabapentin and other opioid alternatives. #gyncsm
Inspire @InspireIsHealth
RT @IshwariaMD: T1: T1: We tend to think of cancer pain as acute (new or rapidly worsening pain) or chronic (not new). Acute is often bc of cancer itself (organ involvement eg liver; fracture; bowel perforation) or treatment (mouth sores, esophagitis, enteritis...). Chronic is neuropathy... #GYNCSM
Christina Lizaso @btrfly12
RT @IshwariaMD: T1: T1: We tend to think of cancer pain as acute (new or rapidly worsening pain) or chronic (not new). Acute is often bc of cancer itself (organ involvement eg liver; fracture; bowel perforation) or treatment (mouth sores, esophagitis, enteritis...). Chronic is neuropathy... #GYNCSM
Dee Sparacio @womenofteal
RT @btrfly12: T2: T2: After surgery, doctors are trying out pain management strategies using varying combinations of acetaminophen, ketorolac, gabapentin and other opioid alternatives. #gyncsm
Christina Lizaso @btrfly12
RT @ShannonWestin: A2: A2: Pain control can be achieved with narcotic meds, anti-inflammatory meds, anti-spasm meds, anti-seizure meds (for neuropathy) #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: T1: T1: We tend to think of cancer pain as acute (new or rapidly worsening pain) or chronic (not new). Acute is often bc of cancer itself (organ involvement eg liver; fracture; bowel perforation) or treatment (mouth sores, esophagitis, enteritis...). Chronic is neuropathy... #GYNCSM
Dee Sparacio @womenofteal
@vleeLCSW Hi Virginia - Glad you can join us. #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
T2: Pain meds are opioids or non-opioids, which are muscle relaxants, NSAIDS, steroids, as well as antidepressants (SSRI/SNRIs/TCAs) and anticonvulsants both which help w nerve pain. #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: T2: T2: Pain meds are opioids or non-opioids, which are muscle relaxants, NSAIDS, steroids, as well as antidepressants (SSRI/SNRIs/TCAs) and anticonvulsants both which help w nerve pain. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T3: In addition to medications, what are some other ways to manage pain? What have you found helpful? #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: T3: T3: In addition to medications, what are some other ways to manage pain? What have you found helpful? #gyncsm
Christina Lizaso @btrfly12
RT @IshwariaMD: T2: T2: Pain meds are opioids or non-opioids, which are muscle relaxants, NSAIDS, steroids, as well as antidepressants (SSRI/SNRIs/TCAs) and anticonvulsants both which help w nerve pain. #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: T2: T2: Pain meds are opioids or non-opioids, which are muscle relaxants, NSAIDS, steroids, as well as antidepressants (SSRI/SNRIs/TCAs) and anticonvulsants both which help w nerve pain. #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T3: T3: In addition to medications, what are some other ways to manage pain? What have you found helpful? #gyncsm
Dee Sparacio @womenofteal
@IshwariaMD So somen antidepressants can also help with pain? I didn't know that. #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@ShannonWestin @womenofteal plus neuropathic pain is the one that tends to linger around the longest post-treatment. Definitely a need for more research into prevention of nerve damage as well as treatment after the fact #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T3: T3: In addition to medications, what are some other ways to manage pain? What have you found helpful? #gyncsm
Christina Lizaso @btrfly12
Sounds like pain management for cancer is definitely complicated but that there are lots of things to try. And that you should speak up and not just "grin and bear it" #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
A3: acupuncture, cognitive behavioral therapy, exercise #gyncsm
Dee Sparacio @womenofteal
@IshwariaMD @ShannonWestin I can attest to it hanging around for years after. Mine gets worse in the winter/ cold #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@IshwariaMD @womenofteal There is a cognitive behavioral therapy study @mdandersonnews that looks really interesting #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@womenofteal @IshwariaMD I wish there was a dislike button #gyncsm
Dee Sparacio @womenofteal
@ShannonWestin @IshwariaMD Me too. #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @IshwariaMD: @ShannonWestin @womenofteal plus neuropathic pain is the one that tends to linger around the longest post-treatment. Definitely a need for more research into prevention of nerve damage as well as treatment after the fact #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@womenofteal You bet. Here are some of the antidepressants with data to support their use to manage neuropathic pain syndromes: 1. Tricyclic antidepressants: e.g. nortriptyline, amytriptyline, desipramine 2. SNRIs - duloxetine, venlafaxine #gyncsm
Dee Sparacio @womenofteal
T3 I found meditation helped when the pain wasn't too intense. #gyncsm
Sarah Temkin @temkins
Keep your feet warm! #Neuropathy #gyncsm
Patient Empowerment Network @power4patients
RT @IshwariaMD: T2: T2: Pain meds are opioids or non-opioids, which are muscle relaxants, NSAIDS, steroids, as well as antidepressants (SSRI/SNRIs/TCAs) and anticonvulsants both which help w nerve pain. #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: @womenofteal You bet. Here are some of the antidepressants with data to support their use to manage neuropathic pain syndromes: 1. Tricyclic antidepressants: e.g. nortriptyline, amytriptyline, desipramine 2. SNRIs - duloxetine, venlafaxine #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: @womenofteal You bet. Here are some of the antidepressants with data to support their use to manage neuropathic pain syndromes: 1. Tricyclic antidepressants: e.g. nortriptyline, amytriptyline, desipramine 2. SNRIs - duloxetine, venlafaxine #gyncsm
Patient Empowerment Network @power4patients
RT @IshwariaMD: @womenofteal You bet. Here are some of the antidepressants with data to support their use to manage neuropathic pain syndromes: 1. Tricyclic antidepressants: e.g. nortriptyline, amytriptyline, desipramine 2. SNRIs - duloxetine, venlafaxine #gyncsm
Christina Lizaso @btrfly12
Are pain meds like anti-nasea meds - keep to a schedule and take before you need because it is harder to catch up once it starts? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
I've been writing about C.A.T.S. for years; complimentary & alternative treatment strategies for pain management. We don't always have to throw drugs at a problem as the only strategy #gyncsm https://t.co/fhWgzaqguI
Dee Sparacio @womenofteal
@temkins Yes. I bought those fuzzy boots - they are not always the most fashionable but it helps keep warm #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: I've been writing about C.A.T.S. for years; complimentary & alternative treatment strategies for pain management. We don't always have to throw drugs at a problem as the only strategy #gyncsm https://t.co/fhWgzaqguI
Dee Sparacio @womenofteal
Good question. #gyncsm
Christina Lizaso @btrfly12
@temkins :) We actually do use all T's unlike other chats that go Q/A - so you are all good either way :) #gyncsm
Patient Empowerment Network @power4patients
@vleeLCSW Agreed! All of these can be a huge help in conjunction with meds when pain dictates necessity #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T4: How has the legislation regarding opioid use impacted the care of patients with cancer? What alternatives and guidelines are in place? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: T4: T4: How has the legislation regarding opioid use impacted the care of patients with cancer? What alternatives and guidelines are in place? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T4: T4: How has the legislation regarding opioid use impacted the care of patients with cancer? What alternatives and guidelines are in place? #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T4: T4: How has the legislation regarding opioid use impacted the care of patients with cancer? What alternatives and guidelines are in place? #gyncsm
Patient Empowerment Network @power4patients
RT @btrfly12: Sounds like pain management for cancer is definitely complicated but that there are lots of things to try. And that you should speak up and not just "grin and bear it" #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @ShereesePubHlth: I've been writing about C.A.T.S. for years; complimentary & alternative treatment strategies for pain management. We don't always have to throw drugs at a problem as the only strategy #gyncsm https://t.co/fhWgzaqguI
Jillosopher, BSN, RN @jillosopher
Hi, joining late. Endometrial cancer survivor. #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@ShannonWestin @womenofteal @MDAndersonNews Yes! Cognitive-behavioral therapy has strong data to support its use in cancer pain management. Here are 2 of the important papers: https://t.co/Ot6OkmJelc CBT in breast ca #bcsm https://t.co/B9kCJcM5y4 in all cancers. #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: T4: T4: How has the legislation regarding opioid use impacted the care of patients with cancer? What alternatives and guidelines are in place? #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @IshwariaMD: @ShannonWestin @womenofteal @MDAndersonNews Yes! Cognitive-behavioral therapy has strong data to support its use in cancer pain management. Here are 2 of the important papers: https://t.co/Ot6OkmJelc CBT in breast ca #bcsm https://t.co/B9kCJcM5y4 in all cancers. #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: @ShannonWestin @womenofteal @MDAndersonNews Yes! Cognitive-behavioral therapy has strong data to support its use in cancer pain management. Here are 2 of the important papers: https://t.co/Ot6OkmJelc CBT in breast ca #bcsm https://t.co/B9kCJcM5y4 in all cancers. #gyncsm
Jillosopher, BSN, RN @jillosopher
A3: I have to move every day. Helps with the stiffness and aches that linger from treatment #gyncsm
Christina Lizaso @btrfly12
T4: @ASCO and other professional societies have been addressing pain management for cancer patients over the years and more so now... #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @btrfly12: T4: T4: @ASCO and other professional societies have been addressing pain management for cancer patients over the years and more so now... #gyncsm
Patient Empowerment Network @power4patients
RT @IshwariaMD: @ShannonWestin @womenofteal @MDAndersonNews Yes! Cognitive-behavioral therapy has strong data to support its use in cancer pain management. Here are 2 of the important papers: https://t.co/Ot6OkmJelc CBT in breast ca #bcsm https://t.co/B9kCJcM5y4 in all cancers. #gyncsm
Dee Sparacio @womenofteal
@jillosopher Hi Jill - so glad you are stopping by. #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: @ShannonWestin @womenofteal @MDAndersonNews Yes! Cognitive-behavioral therapy has strong data to support its use in cancer pain management. Here are 2 of the important papers: https://t.co/Ot6OkmJelc CBT in breast ca #bcsm https://t.co/B9kCJcM5y4 in all cancers. #gyncsm
Mimi @Mimiinmendon
#gyncsm
Christina Lizaso @btrfly12
T4: Article | New Strategy Almost Halves Opioid Use in Surgical Cancer Patients https://t.co/mWlewpd52j Strategy involved maximizing over-the-counter drugs and... drumroll... better communication with patients #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@btrfly12 Immediate release #opioids are often written to be taken only as needed. If you're finding yourself needing it several times (>3-4x/day), you may want to talk to your doctor about an extended release #opioid for more sustained pain relief throughout the day! #gyncsm
Dee Sparacio @womenofteal
@btrfly12 @ASCO Yes @CancerdotNet has a very helpful booklet. https://t.co/A5uadf2FVh #gyncsm
Christina Lizaso @btrfly12
RT @jillosopher: A3: A3: I have to move every day. Helps with the stiffness and aches that linger from treatment #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T4: T4: Article | New Strategy Almost Halves Opioid Use in Surgical Cancer Patients https://t.co/mWlewpd52j Strategy involved maximizing over-the-counter drugs and... drumroll... better communication with patients #gyncsm
Jillosopher, BSN, RN @jillosopher
A4: as a soon to be RN I’m concerned that regulations are making it too hard for cancer patients to get pain meds. #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: @btrfly12 Immediate release #opioids are often written to be taken only as needed. If you're finding yourself needing it several times (>3-4x/day), you may want to talk to your doctor about an extended release #opioid for more sustained pain relief throughout the day! #gyncsm
Patient Empowerment Network @power4patients
RT @btrfly12: T4: T4: Article | New Strategy Almost Halves Opioid Use in Surgical Cancer Patients https://t.co/mWlewpd52j Strategy involved maximizing over-the-counter drugs and... drumroll... better communication with patients #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: @btrfly12 @ASCO Yes @CancerdotNet has a very helpful booklet. https://t.co/A5uadf2FVh #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @jillosopher: A4: A4: as a soon to be RN I’m concerned that regulations are making it too hard for cancer patients to get pain meds. #gyncsm
Jillosopher, BSN, RN @jillosopher
RT @btrfly12: T4: T4: Article | New Strategy Almost Halves Opioid Use in Surgical Cancer Patients https://t.co/mWlewpd52j Strategy involved maximizing over-the-counter drugs and... drumroll... better communication with patients #gyncsm
Dee Sparacio @womenofteal
T4 this @ASCO article shows Opiod deaths less likely in cancer patients https://t.co/gTDwSQ8KgZ #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T5: Is controlling cancer pain different than controlling other types of pain - both chronic and acute? #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: @btrfly12 Immediate release #opioids are often written to be taken only as needed. If you're finding yourself needing it several times (>3-4x/day), you may want to talk to your doctor about an extended release #opioid for more sustained pain relief throughout the day! #gyncsm
Dee Sparacio @womenofteal
T4 The CDC has this fact sheet on opiods https://t.co/sVCD63IvcN #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T5: T5: Is controlling cancer pain different than controlling other types of pain - both chronic and acute? #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @womenofteal: T4 The CDC has this fact sheet on opiods https://t.co/sVCD63IvcN #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: T4 The CDC has this fact sheet on opiods https://t.co/sVCD63IvcN #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@gyncsm T4: The #opioid shortage was a very real issue earlier this year (& still is to a lesser extent). @AP picked up on this & spoke w many of us around the US who care for people w severe pain. #gyncsm US hospitals grapple w prolonged injected opioid shortage https://t.co/nM1IKlyApG
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: @gyncsm T4: @gyncsm T4: The #opioid shortage was a very real issue earlier this year (& still is to a lesser extent). @AP picked up on this & spoke w many of us around the US who care for people w severe pain. #gyncsm US hospitals grapple w prolonged injected opioid shortage https://t.co/nM1IKlyApG
Jillosopher, BSN, RN @jillosopher
RT @womenofteal: T4 this @ASCO article shows Opiod deaths less likely in cancer patients https://t.co/gTDwSQ8KgZ #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: @gyncsm T4: @gyncsm T4: The #opioid shortage was a very real issue earlier this year (& still is to a lesser extent). @AP picked up on this & spoke w many of us around the US who care for people w severe pain. #gyncsm US hospitals grapple w prolonged injected opioid shortage https://t.co/nM1IKlyApG
Christina Lizaso @btrfly12
RT @IshwariaMD: @gyncsm T4: @gyncsm T4: The #opioid shortage was a very real issue earlier this year (& still is to a lesser extent). @AP picked up on this & spoke w many of us around the US who care for people w severe pain. #gyncsm US hospitals grapple w prolonged injected opioid shortage https://t.co/nM1IKlyApG
Jillosopher, BSN, RN @jillosopher
RT @womenofteal: T4 The CDC has this fact sheet on opiods https://t.co/sVCD63IvcN #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Bonus Topic: There is a pain scale that is widely used. Patients - do you find this an accurate way to describe your pain? Would you change anything about it? #gyncsm https://t.co/dlmMvLCpps
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @gyncsm: Bonus Topic: Bonus Topic: There is a pain scale that is widely used. Patients - do you find this an accurate way to describe your pain? Would you change anything about it? #gyncsm https://t.co/dlmMvLCpps
Sarah Temkin @temkins
@jillosopher But we still worry about this. Pain control is an essential part of #cancercare #gyncsm.
Christina Lizaso @btrfly12
RT @gyncsm: Bonus Topic: Bonus Topic: There is a pain scale that is widely used. Patients - do you find this an accurate way to describe your pain? Would you change anything about it? #gyncsm https://t.co/dlmMvLCpps
Dee Sparacio @womenofteal
T5 @FDA_US issued this Opiod Blue print for health care providers https://t.co/Yw4QysPPXc] #gyncsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@temkins Agreed. Plus I'm finding myself taking care of more & more people who come to the clinic in #pain but have rightfully appropriately prescribed #opioids for #cancerpain that they are afraid to take b/c of "what they hear on the news." #opioidhysteria #gyncsm
Jillosopher, BSN, RN @jillosopher
A5: perhaps with end stage or incurable disease. The psychological aspect of the pain that isn’t going to get better. #gyncsm
Dee Sparacio @womenofteal
@jillosopher Excellent point #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
RT @IshwariaMD: @temkins Agreed. Plus I'm finding myself taking care of more & more people who come to the clinic in #pain but have rightfully appropriately prescribed #opioids for #cancerpain that they are afraid to take b/c of "what they hear on the news." #opioidhysteria #gyncsm
Christina Lizaso @btrfly12
RT @IshwariaMD: @temkins Agreed. Plus I'm finding myself taking care of more & more people who come to the clinic in #pain but have rightfully appropriately prescribed #opioids for #cancerpain that they are afraid to take b/c of "what they hear on the news." #opioidhysteria #gyncsm
Inspire @InspireIsHealth
RT @btrfly12: T4: T4: Article | New Strategy Almost Halves Opioid Use in Surgical Cancer Patients https://t.co/mWlewpd52j Strategy involved maximizing over-the-counter drugs and... drumroll... better communication with patients #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@IshwariaMD @temkins Patients are so worried about becoming addicted - we try to hammer the fact that if you are taking #opiods appropriately for control of your pain- you will not become addicted! We don't want you to suffer #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: @temkins Agreed. Plus I'm finding myself taking care of more & more people who come to the clinic in #pain but have rightfully appropriately prescribed #opioids for #cancerpain that they are afraid to take b/c of "what they hear on the news." #opioidhysteria #gyncsm
Patient Empowerment Network @power4patients
RT @IshwariaMD: @temkins Agreed. Plus I'm finding myself taking care of more & more people who come to the clinic in #pain but have rightfully appropriately prescribed #opioids for #cancerpain that they are afraid to take b/c of "what they hear on the news." #opioidhysteria #gyncsm
Jillosopher, BSN, RN @jillosopher
@temkins Of course. Hard to express myself. On my phone. The better, less addictive, more effective pain meds are more looked down upon, harder to get. #gyncsm
Patient Empowerment Network @power4patients
RT @ShannonWestin: @IshwariaMD @temkins Patients are so worried about becoming addicted - we try to hammer the fact that if you are taking #opiods appropriately for control of your pain- you will not become addicted! We don't want you to suffer #gyncsm
Dee Sparacio @womenofteal
RT @ShannonWestin: @IshwariaMD @temkins Patients are so worried about becoming addicted - we try to hammer the fact that if you are taking #opiods appropriately for control of your pain- you will not become addicted! We don't want you to suffer #gyncsm
Christina Lizaso @btrfly12
RT @ShannonWestin: @IshwariaMD @temkins Patients are so worried about becoming addicted - we try to hammer the fact that if you are taking #opiods appropriately for control of your pain- you will not become addicted! We don't want you to suffer #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks for taking a look at Managing Cancer Pain with #gyncsm this evening. As we close out the hour, we like to share closing thoughts using "TIL:" standing for Today I Learned... #gyncsm
Aurelia Cotta @AureliaCotta
@gyncsm #gyncsm because we need more words and descriptions for pain levels. Also, lol https://t.co/4mLst4KqaL
Jillosopher, BSN, RN @jillosopher
Sorry #gyncsm folks for weird responses. Hard to follow using phone. I don’t recommend it 😄
Dee Sparacio @womenofteal
RT @AureliaCotta: @gyncsm #gyncsm because we need more words and descriptions for pain levels. Also, lol https://t.co/4mLst4KqaL
Christina Lizaso @btrfly12
@jillosopher I pretty much don't try to chat via phone on chats I participate in any more. I know some that do all the time and it boggles my mind. #gyncsm
Dee Sparacio @womenofteal
@gyncsm This is OK for intensity but really doesn't describe the pain. #gyncsm is it Dull ache, stabbing, pins and needles etc
Dee Sparacio @womenofteal
RT @gyncsm: Thanks for taking a look at Managing Cancer Pain with #gyncsm this evening. As we close out the hour, we like to share closing thoughts using "TIL:" standing for Today I Learned... #gyncsm
Christina Lizaso @btrfly12
RT @AureliaCotta: @gyncsm #gyncsm because we need more words and descriptions for pain levels. Also, lol https://t.co/4mLst4KqaL
GYN Cancer | #GYNCSM @gyncsm
#gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@womenofteal @gyncsm Absolutely - it is just one measure of a part of the pain and inadequate for all those additional details #gyncsm
Dee Sparacio @womenofteal
@jillosopher I get it . I tried it once for a #bcsm chat and no way could I keep up. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks to all who joined in and listened in. A special thank you to @IshwariaMD for your insights and all that you do for patients. #gyncsm
Dee Sparacio @womenofteal
TIL learned that antidepressants could be used for pain / neuropathy. Thanks @IshwariaMD #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Thanks to all who joined in and listened in. A special thank you to @IshwariaMD for your insights and all that you do for patients. #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @womenofteal: TIL learned that antidepressants could be used for pain / neuropathy. Thanks @IshwariaMD #gyncsm
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
Closing thought: Effective pain management requires a comprehensive approach; no one size fits all. Have the conversation w/ your care team and let that team listen w/ E.A.R.S (empathy, attentiveness, respect, & support). Goodnight all. #gyncsm https://t.co/qud791b0oX
Jillosopher, BSN, RN @jillosopher
I speak Spanish, and I’m also learning basic Portuguese and French (eventually mandarin, Farsi, Arabic) to be able to communicate re pain #gyncsm
Dee Sparacio @womenofteal
Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @ShereesePubHlth: Closing thought: Closing thought: Effective pain management requires a comprehensive approach; no one size fits all. Have the conversation w/ your care team and let that team listen w/ E.A.R.S (empathy, attentiveness, respect, & support). Goodnight all. #gyncsm https://t.co/qud791b0oX
GYN Cancer | #GYNCSM @gyncsm
We hope to see you at the next #gyncsm chat: Wednesday, November 15, 2018 at 9pmET on Cancer and Careers.
Shannon Westin, MD, MPH, FASCO @ShannonWestin
@womenofteal @btrfly12 @temkins @journeycancer @DrBeckerSchutte Thanks Dee and Christina!!! #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: We hope to see you at the next #gyncsm chat: We hope to see you at the next #gyncsm chat: Wednesday, November 15, 2018 at 9pmET on Cancer and Careers.
GYN Cancer | #GYNCSM @gyncsm
Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
GYN Cancer | #GYNCSM @gyncsm
Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: We hope to see you at the next #gyncsm chat: We hope to see you at the next #gyncsm chat: Wednesday, November 15, 2018 at 9pmET on Cancer and Careers.
Patient Empowerment Network @power4patients
RT @gyncsm: We hope to see you at the next #gyncsm chat: We hope to see you at the next #gyncsm chat: Wednesday, November 15, 2018 at 9pmET on Cancer and Careers.
Jillosopher, BSN, RN @jillosopher
Just caution for patients with dysthymia, esp long QT, esp with tricyclics #gyncsm
Christina Lizaso @btrfly12
RT @ShereesePubHlth: Closing thought: Closing thought: Effective pain management requires a comprehensive approach; no one size fits all. Have the conversation w/ your care team and let that team listen w/ E.A.R.S (empathy, attentiveness, respect, & support). Goodnight all. #gyncsm https://t.co/qud791b0oX
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@ShannonWestin @womenofteal @gyncsm Absolutely! Every person with #cancer #pain needs a COMPREHENSIVE PAIN ASSESSMENT. Here are the components of that assessment that we cover in our #SupportiveCare clinic visit at @MDAndersonNews! #endcancer #hpm #PalliativeCare #gyncsm #pallonc https://t.co/GIsgNg2QiN
Dee Sparacio @womenofteal
Thank you so much @IshwariaMD for joining us! #gyncsm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @IshwariaMD: @ShannonWestin @womenofteal @gyncsm Absolutely! Every person with #cancer #pain needs a COMPREHENSIVE PAIN ASSESSMENT. Here are the components of that assessment that we cover in our #SupportiveCare clinic visit at @MDAndersonNews! #endcancer #hpm #PalliativeCare #gyncsm #pallonc https://t.co/GIsgNg2QiN
Shannon Westin, MD, MPH, FASCO @ShannonWestin
I second this!! You rock @IshwariaMD! RT @womenofteal Thank you so much @IshwariaMD for joining us! #gyncsm
Jillosopher, BSN, RN @jillosopher
@ShannonWestin @womenofteal @btrfly12 @temkins @journeycancer @DrBeckerSchutte Yes, thanks as always, Dee and Christina. #gyncsm
Dee Sparacio @womenofteal
RT @IshwariaMD: @ShannonWestin @womenofteal @gyncsm Absolutely! Every person with #cancer #pain needs a COMPREHENSIVE PAIN ASSESSMENT. Here are the components of that assessment that we cover in our #SupportiveCare clinic visit at @MDAndersonNews! #endcancer #hpm #PalliativeCare #gyncsm #pallonc https://t.co/GIsgNg2QiN
Christina Lizaso @btrfly12
RT @IshwariaMD: @ShannonWestin @womenofteal @gyncsm Absolutely! Every person with #cancer #pain needs a COMPREHENSIVE PAIN ASSESSMENT. Here are the components of that assessment that we cover in our #SupportiveCare clinic visit at @MDAndersonNews! #endcancer #hpm #PalliativeCare #gyncsm #pallonc https://t.co/GIsgNg2QiN
Dee Sparacio @womenofteal
@vleeLCSW So glad you joined us tonight to share your insights. #gyncsm
Jillosopher, BSN, RN @jillosopher
RT @gyncsm: We hope to see you at the next #gyncsm chat: We hope to see you at the next #gyncsm chat: Wednesday, November 15, 2018 at 9pmET on Cancer and Careers.
GYN Cancer | #GYNCSM @gyncsm
Check our blog for a summary of tonight's #gyncsm chat, links to resources shared during the chat, and links to topic related articles. https://t.co/oAfi7Me49e
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @gyncsm: Check our blog for a summary of tonight's #gyncsm chat, links to resources shared during the chat, and links to topic related articles. https://t.co/oAfi7Me49e
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@womenofteal Thanks for having me and for the lively conversation w @ShannonWestin @jillosopher @ShereesePubHlth @btrfly12 @AureliaCotta @vleeLCSW @temkins and many more! Good night all! #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Check our blog for a summary of tonight's #gyncsm chat, links to resources shared during the chat, and links to topic related articles. https://t.co/oAfi7Me49e
Shannon Westin, MD, MPH, FASCO @ShannonWestin
As always, it was a great chat! Thank you all!! #gyncsm
Dee Sparacio @womenofteal
And to my partner @btrfly12 thanks so much for keeping the conversation on track and on time and for improving those draft questions so they work so well. #gyncsm
Dee Sparacio @womenofteal
Good night all and hoping our #gyncsm friends in Florida are safe. #gyncsm
Christina Lizaso @btrfly12
@womenofteal My pleasure. Thanks for all your hard work and great areas to cover each month. We are pretty great at having each other's back. Thank you. #gyncsm
Christina Lizaso @btrfly12
RT @womenofteal: Good night all and hoping our #gyncsm friends in Florida are safe. #gyncsm
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