#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Ann Becker-Schutte @DrBeckerSchutte @womenofteal I am so thrilled to be here. Dealing with tough conversations is my jam. ;-) #gyncsm |
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Christina Lizaso @btrfly12 Hi #gyncsm - I'm behind the @gyncsm handle during the chat. I'm a cancer previvor and passionate about patient communities. |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: Hi #gyncsm - I'm behind the @gyncsm handle during the chat. I'm a cancer previvor and passionate about patient communities. |
| Christina Lizaso @btrfly12 RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: Ready to join #GYNCSM Chat right now to talk about how to engage with friends and family about cancer. |
 | Tobey @BRCAinfo Hi #gyncsm @DrBeckerSchutte !!! It’s been soooo long. Waving a big hello 👋 |
| Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Ann Becker-Schutte @DrBeckerSchutte Hi all, I’m Ann Becker-Schutte, a licensed psychologist who has spent the last 15 years supporting patients and families impacted by health challenges. #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo @DrBeckerSchutte Waving right back at you Tobey. So Happy to see you here. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
 | IamCervivor @IamCervivor Hi everyone! Morgan here on behalf of Cervivor. Looking forward to this chat. #GYNCSM |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: Hi all, I’m Ann Becker-Schutte, a licensed psychologist who has spent the last 15 years supporting patients and families impacted by health challenges. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Dee Sparacio @womenofteal RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Chats are an open discussion and all are welcome to share from their experiences and perspectives. |
 | Chase Wasson @chase_wasson Profile…Profile…Profile…Never Miss a BioMarker & Press The ✉️in #PrecisionMedicine to give patients best chance to #WintheDay #GYMCSM 🎯 🧬 |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm TwitterNote fyi - If you are participating from your phone, for some people the “Latest” hashtag feed this week hasn’t been showing the tweets in chronological order - which can get confusing. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: TwitterNote fyi - If you are participating from your phone, for some people the “Latest” hashtag feed this week hasn’t been showing the tweets in chronological order - which can get confusing. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: TwitterNote fyi - If you are participating from your phone, for some people the “Latest” hashtag feed this week hasn’t been showing the tweets in chronological order - which can get confusing. #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: The next #GYNCSM tweetchat is tonight, Wed Nov 10th at 8pmET | 7pmCT | 5pmPT. The topic will be "Talking to Family and Friends about Cancer and Cancer Risk" with guest @DrBeckerSchutte https://t.co/GcVkESzh5W https://t.co/e2WFxIhBxX |
| Chase Wasson @chase_wasson Profile…Profile…Profile…Never Miss a BioMarker & Press The ✉️in #PrecisionMedicine to give patients best chance to #WintheDay #GYNCSM 🎯 🧬 |
| GYN Cancer | #GYNCSM @gyncsm We also welcome all those “listening in”. We'd love you to tweet #gyncsm so we know you are here. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG |
 | Michele E. Collins @Michele_w_1_L Michele from NJ👋 High Grade Serous Ovarian Cancer Survivor since 2015 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing Talking to Family and Friends about Cancer and Cancer Risk and we are pleased to have health care moderator @DrBeckerSchutte as our special guest. |
| Dee Sparacio @womenofteal @Michele_w_1_L Hi there Michele, Great to see you tonight. #gyncsm |
| Tobey @BRCAinfo RT @gyncsm: Tonight on #gyncsm we’ll be discussing Talking to Family and Friends about Cancer and Cancer Risk and we are pleased to have health care moderator @DrBeckerSchutte as our special guest. |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm we’ll be discussing Talking to Family and Friends about Cancer and Cancer Risk and we are pleased to have health care moderator @DrBeckerSchutte as our special guest. |
| Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat. |
 | Lisa M Guzzardi, RN @LguzzardiM Warm greeting from NY #gyncsm !! |
| GYN Cancer | #GYNCSM @gyncsm We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: Tonight on #gyncsm we’ll be discussing Talking to Family and Friends about Cancer and Cancer Risk and we are pleased to have health care moderator @DrBeckerSchutte as our special guest. |
| Dee Sparacio @womenofteal @LguzzardiM Great to have you join us Lisa! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte Hi Lisa, Hi Michele! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/BkW9PPPliP Here comes Topic 1 (T1:)... |
| Christina Lizaso @btrfly12 RT @gyncsm: You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/BkW9PPPliP Here comes Topic 1 (T1:)... |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/BkW9PPPliP Here comes Topic 1 (T1:)... |
| Dee Sparacio @womenofteal RT @gyncsm: You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 topic areas we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/BkW9PPPliP Here comes Topic 1 (T1:)... |
| GYN Cancer | #GYNCSM @gyncsm T1: After a diagnosis, telling family and friends can be overwhelming . What are some considerations for deciding what information to share, with whom to share it, and when? What are some tips for those early discussions? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: After a diagnosis, telling family and friends can be overwhelming . What are some considerations for deciding what information to share, with whom to share it, and when? What are some tips for those early discussions? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: T1: After a diagnosis, telling family and friends can be overwhelming . What are some considerations for deciding what information to share, with whom to share it, and when? What are some tips for those early discussions? #gyncsm |
 | Tanya Temkin @tanyaltee Living with HGSOC x 4 years. Spent a Lot of time talking w/extended fam about OvCa dx and genetic test results #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A1: I recommend that, whenever possible, a patient facing a new cancer diagnosis have at least one trusted person with them at the first appointment, so they have extra ears & a note-taker. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A1: A1: I recommend that, whenever possible, a patient facing a new cancer diagnosis have at least one trusted person with them at the first appointment, so they have extra ears & a note-taker. #gyncsm |
| Dee Sparacio @womenofteal @tanyaltee So glad you were able to join us Tanya. #gyncsm |
 | Sevtap Savas, PhD @savaslab RT @DrBeckerSchutte: A1: A1: I recommend that, whenever possible, a patient facing a new cancer diagnosis have at least one trusted person with them at the first appointment, so they have extra ears & a note-taker. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A1: A1: I recommend that, whenever possible, a patient facing a new cancer diagnosis have at least one trusted person with them at the first appointment, so they have extra ears & a note-taker. #gyncsm |
| Tobey @BRCAinfo @gyncsm T1 Very difficult discussion. You have to “hold it together” & definitely know what you want to say. Important to share with family. It’s their medical history too. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A1: After you take a moment to breathe and digest the information, I encourage direct communication (phone, video, in person) with your most important support people. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A1: A1: After you take a moment to breathe and digest the information, I encourage direct communication (phone, video, in person) with your most important support people. #gyncsm |
| IamCervivor @IamCervivor A1: Ultimately, it is your decision to share how little or as much as you would like. People generally mean well but may not know how to process the unexpected nature of a cancer diagnosis. It is important to know it's your story to share & no one can take that from you. #GYNCSM |
| Dee Sparacio @womenofteal RT @IamCervivor: A1: A1: Ultimately, it is your decision to share how little or as much as you would like. People generally mean well but may not know how to process the unexpected nature of a cancer diagnosis. It is important to know it's your story to share & no one can take that from you. #GYNCSM |
| Christina Lizaso @btrfly12 RT @IamCervivor: A1: A1: Ultimately, it is your decision to share how little or as much as you would like. People generally mean well but may not know how to process the unexpected nature of a cancer diagnosis. It is important to know it's your story to share & no one can take that from you. #GYNCSM |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A1: A1: After you take a moment to breathe and digest the information, I encourage direct communication (phone, video, in person) with your most important support people. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A1: A1: I recommend that, whenever possible, a patient facing a new cancer diagnosis have at least one trusted person with them at the first appointment, so they have extra ears & a note-taker. #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @gyncsm T1 Very difficult discussion. You have to “hold it together” & definitely know what you want to say. Important to share with family. It’s their medical history too. #gyncsm |
| Tobey @BRCAinfo RT @DrBeckerSchutte: A1: A1: After you take a moment to breathe and digest the information, I encourage direct communication (phone, video, in person) with your most important support people. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A1: If you are a person who processes well in writing, make some notes and consider using a tool like a social media group or CaringBridge page to distribute general information to a larger group (if you have someone who can be in charge of that job, that can be great). #gyncsm |
| Tobey @BRCAinfo RT @DrBeckerSchutte: A1: A1: I recommend that, whenever possible, a patient facing a new cancer diagnosis have at least one trusted person with them at the first appointment, so they have extra ears & a note-taker. #gyncsm |
| Dee Sparacio @womenofteal A1 When it comes to children -when and how you talk to them depends on their age and maturity. How many others you tell many times will depend on your personality. How much of other personal topics do you share? #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A1: A1: If you are a person who processes well in writing, make some notes and consider using a tool like a social media group or CaringBridge page to distribute general information to a larger group (if you have someone who can be in charge of that job, that can be great). #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: A1: A1: Ultimately, it is your decision to share how little or as much as you would like. People generally mean well but may not know how to process the unexpected nature of a cancer diagnosis. It is important to know it's your story to share & no one can take that from you. #GYNCSM |
| Ann Becker-Schutte @DrBeckerSchutte 100% this. You are the expert on your support system. You can share with the grocery clerk or with a very limited circle. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A1: A1: If you are a person who processes well in writing, make some notes and consider using a tool like a social media group or CaringBridge page to distribute general information to a larger group (if you have someone who can be in charge of that job, that can be great). #gyncsm |
| Christina Lizaso @btrfly12 @DrBeckerSchutte Also keep in mind that the people you are sharing with may also need a moment to breathe and digest before having a longer conversation. #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: A1 When it comes to children -when and how you talk to them depends on their age and maturity. How many others you tell many times will depend on your personality. How much of other personal topics do you share? #gyncsm |
| Tanya Temkin @tanyaltee I needed to re-connect with relatives I hadn’t talked to in YEARS. when I contacted them, I asked first what was going on in their own lives before approaching discussion of my cancer issues #gyncsm |
| Christina Lizaso @btrfly12 RT @tanyaltee: I needed to re-connect with relatives I hadn’t talked to in YEARS. when I contacted them, I asked first what was going on in their own lives before approaching discussion of my cancer issues #gyncsm |
| Tobey @BRCAinfo @btrfly12 @DrBeckerSchutte Yes! Listening is very important too #gyncsm |
| Dee Sparacio @womenofteal Exactly this! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: What are some ways to handle the variety of responses and reactions when sharing about one's cancer diagnosis, treatments, and/or experiences? #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A1: And with kids, you know them best. Most kids will ask for more information if they can handle more. But don’t try to hide it—kids are perceptive. #gyncsm |
 | Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T1: T1: After a diagnosis, telling family and friends can be overwhelming . What are some considerations for deciding what information to share, with whom to share it, and when? What are some tips for those early discussions? #gyncsm |
| Dee Sparacio @womenofteal Good Approach. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A1: A1: And with kids, you know them best. Most kids will ask for more information if they can handle more. But don’t try to hide it—kids are perceptive. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A1: A1: And with kids, you know them best. Most kids will ask for more information if they can handle more. But don’t try to hide it—kids are perceptive. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @DrBeckerSchutte: A1: A1: And with kids, you know them best. Most kids will ask for more information if they can handle more. But don’t try to hide it—kids are perceptive. #gyncsm |
| Michele E. Collins @Michele_w_1_L t1: All of the important ppl were in the know from Day 1. Word started to travel fast around town as my kids were still in elementary school so I put out a “statement” on FB for World Ovarian Cancer Day & outted myself. Made me feel like I had some control. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A1: It is likely that you will have some shock. Ideally, you will have at least one key support person who can help you hold space and sort out the “who needs to know what” logistics. If not, there are always professional helpers. #gyncsm |
| IamCervivor @IamCervivor A2: Everyone processes things differently. It's easy to take things personally, however, their response may have nothing to do w/you. If you find it too difficult w/certain people, limit your interactions/information shared. Talk to a therapist to help with processing too.#GYNCSM |
| Dee Sparacio @womenofteal @DrBeckerSchutte Yes , kids are very perceptive and they would rather hear from you than hear it or overhear it in a conversation from others. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @Michele_w_1_L: t1: t1: All of the important ppl were in the know from Day 1. Word started to travel fast around town as my kids were still in elementary school so I put out a “statement” on FB for World Ovarian Cancer Day & outted myself. Made me feel like I had some control. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: @DrBeckerSchutte Yes , kids are very perceptive and they would rather hear from you than hear it or overhear it in a conversation from others. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A1: A1: It is likely that you will have some shock. Ideally, you will have at least one key support person who can help you hold space and sort out the “who needs to know what” logistics. If not, there are always professional helpers. #gyncsm |
| Tobey @BRCAinfo @gyncsm T2 sometimes that was tough too. Well meaning people offer an opinion & after my treatment decision I didn’t want to be second guessed #gyncsm |
| Christina Lizaso @btrfly12 T2: A sad reality is that some who were very close will react by pulling away from the diagnosed person. This is so hard, but know that this is common and others will often step in and surprise you. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A2: A2: Everyone processes things differently. It's easy to take things personally, however, their response may have nothing to do w/you. If you find it too difficult w/certain people, limit your interactions/information shared. Talk to a therapist to help with processing too.#GYNCSM |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: A2: A2: Everyone processes things differently. It's easy to take things personally, however, their response may have nothing to do w/you. If you find it too difficult w/certain people, limit your interactions/information shared. Talk to a therapist to help with processing too.#GYNCSM |
| IamCervivor @IamCervivor RT @btrfly12: T2: T2: A sad reality is that some who were very close will react by pulling away from the diagnosed person. This is so hard, but know that this is common and others will often step in and surprise you. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A1: A1: It is likely that you will have some shock. Ideally, you will have at least one key support person who can help you hold space and sort out the “who needs to know what” logistics. If not, there are always professional helpers. #gyncsm |
| Tobey @BRCAinfo RT @womenofteal: @DrBeckerSchutte Yes , kids are very perceptive and they would rather hear from you than hear it or overhear it in a conversation from others. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A2: I often talk with clients who are struggling with the reactions of others. Some folks pull away. Some folks say insensitive things. Some folks appear to expect you to solve their discomfort over your diagnosis. #gyncsm |
| Dee Sparacio @womenofteal T1 I was teaching in a boys high school when I was diagnosed. I was not able to return to school in September. I told the admins first and then I wrote an article for the school newspaper about why I wasn't going to be there. The students and parents were very supportive #gyncsm |
| Christina Lizaso @btrfly12 I love that card about "When life gives you lemons, I will not tell you about my friend that died of lemons". Others often don't know what to say and go in weird and hurtful directions. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A2: A2: I often talk with clients who are struggling with the reactions of others. Some folks pull away. Some folks say insensitive things. Some folks appear to expect you to solve their discomfort over your diagnosis. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A2: A2: I often talk with clients who are struggling with the reactions of others. Some folks pull away. Some folks say insensitive things. Some folks appear to expect you to solve their discomfort over your diagnosis. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: What are some ways to handle the variety of responses and reactions when sharing about one's cancer diagnosis, treatments, and/or experiences? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @DrBeckerSchutte: A2: A2: I often talk with clients who are struggling with the reactions of others. Some folks pull away. Some folks say insensitive things. Some folks appear to expect you to solve their discomfort over your diagnosis. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A2: I second the suggestion to remember that others are responding to their own issues, even if it feels like responding to you. During diagnosis and treatment, you need to center your energy on your health and your family. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: I love that card about "When life gives you lemons, I will not tell you about my friend that died of lemons". Others often don't know what to say and go in weird and hurtful directions. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A2: A2: I second the suggestion to remember that others are responding to their own issues, even if it feels like responding to you. During diagnosis and treatment, you need to center your energy on your health and your family. #gyncsm |
| Tobey @BRCAinfo @gyncsm T2 sometimes it’s easier to talk to strangers in a support group who are going thru or have gone thru your journey #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A2: A2: I often talk with clients who are struggling with the reactions of others. Some folks pull away. Some folks say insensitive things. Some folks appear to expect you to solve their discomfort over your diagnosis. #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @gyncsm T2 sometimes it’s easier to talk to strangers in a support group who are going thru or have gone thru your journey #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: I love that card about "When life gives you lemons, I will not tell you about my friend that died of lemons". Others often don't know what to say and go in weird and hurtful directions. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A2: A2: I second the suggestion to remember that others are responding to their own issues, even if it feels like responding to you. During diagnosis and treatment, you need to center your energy on your health and your family. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A2: I love that card, too! And yes, it can help to remember that fear and past history can lead some folks to be pretty unhelpful. #gyncsm |
| IamCervivor @IamCervivor RT @BRCAinfo: @gyncsm T2 sometimes it’s easier to talk to strangers in a support group who are going thru or have gone thru your journey #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A2: A2: I second the suggestion to remember that others are responding to their own issues, even if it feels like responding to you. During diagnosis and treatment, you need to center your energy on your health and your family. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @DrBeckerSchutte @btrfly12 Matt Latz, joining late. There also those friends or acquaintances pre-diagnosis that step to the fore as true support. Listening, validating, helping how you need it #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo @gyncsm Agree 100%. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: What advice would you offer to friends and family when talking to their loved one about cancer? What have you found MOST helpful? What tends to be NOT helpful at all? #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A2: Yes! A well-run support group (or a space like #gyncsm) can be a huge support because you have that shared experience. |
| Lisa M Guzzardi, RN @LguzzardiM #Cancer diaries: Her novel way of sharing her journey. #gyncsm #sharingiscaring #patientexperience Via @uchealth https://t.co/zXJcpYPPML |
| Ann Becker-Schutte @DrBeckerSchutte A3: The first thing I encourage family and friends to do is to avoid trying to say the exact right thing. #gyncsm |
| Tobey @BRCAinfo RT @DrBeckerSchutte: A2: A2: Yes! A well-run support group (or a space like #gyncsm) can be a huge support because you have that shared experience. |
| Christina Lizaso @btrfly12 RT @gyncsm: T3: T3: What advice would you offer to friends and family when talking to their loved one about cancer? What have you found MOST helpful? What tends to be NOT helpful at all? #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A2: A2: I love that card, too! And yes, it can help to remember that fear and past history can lead some folks to be pretty unhelpful. #gyncsm |
| IamCervivor @IamCervivor A3: Support is everything. Please don't listen to respond. Listen to listen and provide advice only when asked. Most of us just need someone to hear us. If you are unable to support us, encourage support groups either virtually or at a local infusion center. #GYNCSM |
| Ann Becker-Schutte @DrBeckerSchutte A3: In fact, I think that one of the most connecting, caring things you can say if someone shares a diagnosis is, “I am so sorry to hear that. I don’t know exactly what to say, but I want you to know that I am here.” #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T3: T3: What advice would you offer to friends and family when talking to their loved one about cancer? What have you found MOST helpful? What tends to be NOT helpful at all? #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A3: A3: In fact, I think that one of the most connecting, caring things you can say if someone shares a diagnosis is, “I am so sorry to hear that. I don’t know exactly what to say, but I want you to know that I am here.” #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A3: A3: In fact, I think that one of the most connecting, caring things you can say if someone shares a diagnosis is, “I am so sorry to hear that. I don’t know exactly what to say, but I want you to know that I am here.” #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A3: I also encourage folks to offer a specific type of help. “I will come over on Tuesdays to take the kids to the park. I will walk your dog. I will be there Thursday to run some laundry.” Asking a person who is in treatment what they need can actually create a burden. #gyncsm |
| Christina Lizaso @btrfly12 I feel something like "I don't know what to say. This is hard." can go a long way vs. trying to say the perfect thing and making it worse and/or not saying anything because so worried. #gyncsm |
| Dee Sparacio @womenofteal T3 My advice would be to listen, offer to help with anything ( laundry, vacuuming, watching the kids, trips to treatment ) and be a shoulder to cry on. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: A3: A3: Support is everything. Please don't listen to respond. Listen to listen and provide advice only when asked. Most of us just need someone to hear us. If you are unable to support us, encourage support groups either virtually or at a local infusion center. #GYNCSM |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A3: A3: I also encourage folks to offer a specific type of help. “I will come over on Tuesdays to take the kids to the park. I will walk your dog. I will be there Thursday to run some laundry.” Asking a person who is in treatment what they need can actually create a burden. #gyncsm |
| Tobey @BRCAinfo T3 listen. Ask if you can do errands or chores. Drive to treatment. Wash their hair! #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A3: A3: Support is everything. Please don't listen to respond. Listen to listen and provide advice only when asked. Most of us just need someone to hear us. If you are unable to support us, encourage support groups either virtually or at a local infusion center. #GYNCSM |
| Dee Sparacio @womenofteal Exactly this. |
| Tanya Temkin @tanyaltee A2: I had to be very clear about my main agenda in contacting family members. It wasn’t for support or validation. I’d just tested + for BRCA2 and getting word out to fam was my overriding concern. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A3: A3: I also encourage folks to offer a specific type of help. “I will come over on Tuesdays to take the kids to the park. I will walk your dog. I will be there Thursday to run some laundry.” Asking a person who is in treatment what they need can actually create a burden. #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM @DrBeckerSchutte I am here for you is Perfect! #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: I feel something like "I don't know what to say. This is hard." can go a long way vs. trying to say the perfect thing and making it worse and/or not saying anything because so worried. #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: T3 My advice would be to listen, offer to help with anything ( laundry, vacuuming, watching the kids, trips to treatment ) and be a shoulder to cry on. #gyncsm |
| Dee Sparacio @womenofteal RT @LguzzardiM: @DrBeckerSchutte I am here for you is Perfect! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A3: Another suggestion I offer to friends and family is to just say, “Tell me if you need me to be cheerful or to just be with you and share the sadness together.” No feeling needs to be solved. Feelings just need acknowledgment & space. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @BRCAinfo: T3 listen. Ask if you can do errands or chores. Drive to treatment. Wash their hair! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @tanyaltee: A2: A2: I had to be very clear about my main agenda in contacting family members. It wasn’t for support or validation. I’d just tested + for BRCA2 and getting word out to fam was my overriding concern. #gyncsm |
 | BruceGreyInfo @BruceGreyInfo RT @DrBeckerSchutte: A3: A3: I also encourage folks to offer a specific type of help. “I will come over on Tuesdays to take the kids to the park. I will walk your dog. I will be there Thursday to run some laundry.” Asking a person who is in treatment what they need can actually create a burden. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A3: A3: Another suggestion I offer to friends and family is to just say, “Tell me if you need me to be cheerful or to just be with you and share the sadness together.” No feeling needs to be solved. Feelings just need acknowledgment & space. #gyncsm |
| Michele E. Collins @Michele_w_1_L t3: Show Up. #gyncsm |
| Christina Lizaso @btrfly12 Love the asking what they are looking for. Sometimes want to talk cancer. Sometimes want to talk anything but cancer. #gyncsm |
 | Cristiane D Bergerot @crisbergerot @gyncsm To be honest, delicate and supportive #gyncsm @gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: Many of us struggle with how to ask for and accept help and support. How can we best communicate what we need to friends and family when feeling overwhelmed? #gyncsm |
 | Chelsea Valerie @ChelseaValerie3 RT @gyncsm: T4: T4: Many of us struggle with how to ask for and accept help and support. How can we best communicate what we need to friends and family when feeling overwhelmed? #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: Comfort in (towards the person who is ill). Dump (your fear, etc) out—to the rest of your support network. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: T4: T4: Many of us struggle with how to ask for and accept help and support. How can we best communicate what we need to friends and family when feeling overwhelmed? #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: Comfort in (towards the person who is ill). Dump (your fear, etc) out—to the rest of your support network. #gyncsm |
| Dee Sparacio @womenofteal T3 NOT helpful. "So do you trust what the doctor is telling you? "or " So what caused the cancer?" ( heck if I knew that I'd get the Nobel Prize.) " Oh that's a bad one my Aunt... Sister..., Neighbor had that ." #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Love the asking what they are looking for. Sometimes want to talk cancer. Sometimes want to talk anything but cancer. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: Many of us struggle with how to ask for and accept help and support. How can we best communicate what we need to friends and family when feeling overwhelmed? #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A4: For some of my clients, it helps to have a list of the stuff that needs to be done (housework, kids, doctor visits), and allow people who offer help to just choose from the list. #gyncsm |
| IamCervivor @IamCervivor A4: The best advice: keep a journal. Write down anything & everything. If you want to talk to someone, ask for a referral from your provider's office. Sometimes you don't know you need help until you're in the process. Remember, healing is not linear. #GYNCSM |
| Dee Sparacio @womenofteal I like this advice. #gyncsm |
 | Gillian Godsell @gilliangodsell RT @DrBeckerSchutte: A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: Comfort in (towards the person who is ill). Dump (your fear, etc) out—to the rest of your support network. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A4: A4: For some of my clients, it helps to have a list of the stuff that needs to be done (housework, kids, doctor visits), and allow people who offer help to just choose from the list. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A4: I also remind patients that friends and family members can’t take away the cancer, but often are desperate to do something. Offering a concrete need is actually helping the helper. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A4: The best advice: A4: The best advice: keep a journal. Write down anything & everything. If you want to talk to someone, ask for a referral from your provider's office. Sometimes you don't know you need help until you're in the process. Remember, healing is not linear. #GYNCSM |
| Gillian Godsell @gilliangodsell RT @DrBeckerSchutte: A3: A3: Another suggestion I offer to friends and family is to just say, “Tell me if you need me to be cheerful or to just be with you and share the sadness together.” No feeling needs to be solved. Feelings just need acknowledgment & space. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: A4: The best advice: A4: The best advice: keep a journal. Write down anything & everything. If you want to talk to someone, ask for a referral from your provider's office. Sometimes you don't know you need help until you're in the process. Remember, healing is not linear. #GYNCSM |
| Christina Lizaso @btrfly12 RT @womenofteal: T3 NOT helpful. "So do you trust what the doctor is telling you? "or " So what caused the cancer?" ( heck if I knew that I'd get the Nobel Prize.) " Oh that's a bad one my Aunt... Sister..., Neighbor had that ." #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: A4: The best advice: A4: The best advice: keep a journal. Write down anything & everything. If you want to talk to someone, ask for a referral from your provider's office. Sometimes you don't know you need help until you're in the process. Remember, healing is not linear. #GYNCSM |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A4: A4: I also remind patients that friends and family members can’t take away the cancer, but often are desperate to do something. Offering a concrete need is actually helping the helper. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: T3 NOT helpful. "So do you trust what the doctor is telling you? "or " So what caused the cancer?" ( heck if I knew that I'd get the Nobel Prize.) " Oh that's a bad one my Aunt... Sister..., Neighbor had that ." #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A4: A4: I also remind patients that friends and family members can’t take away the cancer, but often are desperate to do something. Offering a concrete need is actually helping the helper. #gyncsm |
| Gillian Godsell @gilliangodsell RT @DrBeckerSchutte: A2: A2: I second the suggestion to remember that others are responding to their own issues, even if it feels like responding to you. During diagnosis and treatment, you need to center your energy on your health and your family. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @DrBeckerSchutte: A4: A4: I also remind patients that friends and family members can’t take away the cancer, but often are desperate to do something. Offering a concrete need is actually helping the helper. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: I like this advice. #gyncsm |
| Gillian Godsell @gilliangodsell Listen to listen, not to respond. |
 | Amanda Crowell Itliong @MIShouldTalk RT @IamCervivor: A3: A3: Support is everything. Please don't listen to respond. Listen to listen and provide advice only when asked. Most of us just need someone to hear us. If you are unable to support us, encourage support groups either virtually or at a local infusion center. #GYNCSM |
| GYN Cancer | #GYNCSM @gyncsm T5: For genetic testing, what are some considerations when it comes to sharing the results with family? Are there resources for how to reach out - and for handling their reactions and questions? #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A4: And sometimes we all need the reminder that accepting help is not a failure. It is part of the human experience. I suspect my aunt may have lived longer if she had been able to rest and accept help. #gyncsm |
| Dee Sparacio @womenofteal T4 Asking for help was always tough for me . Eventually though I didn't hesitate when people asked what they could do I would say - go food shopping, pick up gifts / cards for people. Sometimes I wanted to give my husband a break and I would ask them to take him to lunch #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: A4: A4: And sometimes we all need the reminder that accepting help is not a failure. It is part of the human experience. I suspect my aunt may have lived longer if she had been able to rest and accept help. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A4: A4: And sometimes we all need the reminder that accepting help is not a failure. It is part of the human experience. I suspect my aunt may have lived longer if she had been able to rest and accept help. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: T5: T5: For genetic testing, what are some considerations when it comes to sharing the results with family? Are there resources for how to reach out - and for handling their reactions and questions? #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A4: A4: And sometimes we all need the reminder that accepting help is not a failure. It is part of the human experience. I suspect my aunt may have lived longer if she had been able to rest and accept help. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: For genetic testing, what are some considerations when it comes to sharing the results with family? Are there resources for how to reach out - and for handling their reactions and questions? #gyncsm |
| Tobey @BRCAinfo I’m doing the chat on my phone & its sooo wonky. Looking forward to reading the transcript. #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: T4 Asking for help was always tough for me . Eventually though I didn't hesitate when people asked what they could do I would say - go food shopping, pick up gifts / cards for people. Sometimes I wanted to give my husband a break and I would ask them to take him to lunch #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk Hi #gyncsm friends! Just listening in mostly and appreciating all your shares so much! #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A5: My first consideration would be to think about what I hope others would share with me. I want to know if I have elevated genetic risk. It’s why I pay attention to my cardiac health. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: T4 Asking for help was always tough for me . Eventually though I didn't hesitate when people asked what they could do I would say - go food shopping, pick up gifts / cards for people. Sometimes I wanted to give my husband a break and I would ask them to take him to lunch #gyncsm |
| Christina Lizaso @btrfly12 T5: My aunt called me and then sent a follow-up email with information from her genetic counselor. It was good to have things to look at and research when I was ready after that initial conversation. #gyncsm |
 | Erica Bednar @EMBOSU Ah running late tonight! Hi #gyncsm -- genetic testing results have implications for you & your medical care, but also the cancer risk & medical recommendations for relatives ... #HereditaryCancer |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: T5: T5: My aunt called me and then sent a follow-up email with information from her genetic counselor. It was good to have things to look at and research when I was ready after that initial conversation. #gyncsm |
| Dee Sparacio @womenofteal T5 I made sure to ask first before I shared my results with close family members. Some relatives didn’t want to talk about it. When they were ready we did have the discussion. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A5: A5: My first consideration would be to think about what I hope others would share with me. I want to know if I have elevated genetic risk. It’s why I pay attention to my cardiac health. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @EMBOSU: Ah running late tonight! Hi #gyncsm -- genetic testing results have implications for you & your medical care, but also the cancer risk & medical recommendations for relatives ... #HereditaryCancer |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: T5 I made sure to ask first before I shared my results with close family members. Some relatives didn’t want to talk about it. When they were ready we did have the discussion. #gyncsm |
| IamCervivor @IamCervivor RT @EMBOSU: Ah running late tonight! Hi #gyncsm -- genetic testing results have implications for you & your medical care, but also the cancer risk & medical recommendations for relatives ... #HereditaryCancer |
| Christina Lizaso @btrfly12 @BRCAinfo I don't know why Twitter picked this week to mess about with the feed on phones - boo. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: T5 I made sure to ask first before I shared my results with close family members. Some relatives didn’t want to talk about it. When they were ready we did have the discussion. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 Asking for help was always tough for me . Eventually though I didn't hesitate when people asked what they could do I would say - go food shopping, pick up gifts / cards for people. Sometimes I wanted to give my husband a break and I would ask them to take him to lunch #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A5: A5: My first consideration would be to think about what I hope others would share with me. I want to know if I have elevated genetic risk. It’s why I pay attention to my cardiac health. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T5 I made sure to ask first before I shared my results with close family members. Some relatives didn’t want to talk about it. When they were ready we did have the discussion. #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU Hi Erica , Thanks so much for dropping in on the chat and sharing your insights as a genetics counselor. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: Ah running late tonight! Hi #gyncsm -- genetic testing results have implications for you & your medical care, but also the cancer risk & medical recommendations for relatives ... #HereditaryCancer |
| Ann Becker-Schutte @DrBeckerSchutte RT @subatomicdoc: @DrBeckerSchutte @btrfly12 Matt Latz, joining late. There also those friends or acquaintances pre-diagnosis that step to the fore as true support. Listening, validating, helping how you need it #gyncsm |
| Christina Lizaso @btrfly12 Organizations like @FacingOurRisk @CancerDotNet @GeneticCouns have resources for sharing genetic results with relatives. #gyncsm |
| Cristiane D Bergerot @crisbergerot @gyncsm A1: follow your heart. Let people know what you are comfortable talking about. Talk with your partner about what you are willing to let others do for you #gyncsm @gyncsm |
| Erica Bednar @EMBOSU Every family dynamic is different, so what works in one family might not in another - across the board, we recommend that genetic test results are shared with family members, especially if a gene mutation is detected, as relatives may have inherited higher cancer risks #gyncsm |
| Christina Lizaso @btrfly12 RT @crisbergerot: @gyncsm A1: @gyncsm A1: follow your heart. Let people know what you are comfortable talking about. Talk with your partner about what you are willing to let others do for you #gyncsm @gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Organizations like @FacingOurRisk @CancerDotNet @GeneticCouns have resources for sharing genetic results with relatives. #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: Every family dynamic is different, so what works in one family might not in another - across the board, we recommend that genetic test results are shared with family members, especially if a gene mutation is detected, as relatives may have inherited higher cancer risks #gyncsm |
| Tobey @BRCAinfo #gyncsm T5. I felt it was so important to share with my family. My doctor helped me with the info to share |
| IamCervivor @IamCervivor RT @btrfly12: Organizations like @FacingOurRisk @CancerDotNet @GeneticCouns have resources for sharing genetic results with relatives. #gyncsm |
| Dee Sparacio @womenofteal T5 Here is an article from @CancerDotNet https://t.co/407OMGAt4e #gyncsm |
| Dee Sparacio @womenofteal RT @crisbergerot: @gyncsm A1: @gyncsm A1: follow your heart. Let people know what you are comfortable talking about. Talk with your partner about what you are willing to let others do for you #gyncsm @gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @BRCAinfo: #gyncsm T5. I felt it was so important to share with my family. My doctor helped me with the info to share |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: T5 Here is an article from @CancerDotNet https://t.co/407OMGAt4e #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: Every family dynamic is different, so what works in one family might not in another - across the board, we recommend that genetic test results are shared with family members, especially if a gene mutation is detected, as relatives may have inherited higher cancer risks #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: T5 Here is an article from @CancerDotNet https://t.co/407OMGAt4e #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: #gyncsm T5. I felt it was so important to share with my family. My doctor helped me with the info to share |
| Christina Lizaso @btrfly12 T5: There are some good books for different age children about sharing genetic results. There are more resources now than even a few years ago. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T5 Here is an article from @CancerDotNet https://t.co/407OMGAt4e #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @btrfly12: T5: T5: There are some good books for different age children about sharing genetic results. There are more resources now than even a few years ago. #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM Cancer is often about the presence of loved ones when facing a diagnosis early on. We have to make every effort to connect and sincerely ask how the family member and/or friend is doing. We need to take the time to acknowledge and show we care about the answer. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk T5 One other issue that a lot of us faced with genetic testing was being told by family and others that it’s “so good you couldn’t have kids to pass that on.” Goes along with the it’s less sad when we die without kids. ☺️🤮🥲 #gyncsm |
| Dee Sparacio @womenofteal T4 I found this article on accepting help from @OncoLinkTeam https://t.co/wOXm31KH0s #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @LguzzardiM: Cancer is often about the presence of loved ones when facing a diagnosis early on. We have to make every effort to connect and sincerely ask how the family member and/or friend is doing. We need to take the time to acknowledge and show we care about the answer. #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM @btrfly12 @BRCAinfo Ditto on the delays @Twitter #gyncsm |
| Erica Bednar @EMBOSU Some families will share genetic test results w/ relatives at gatherings (holidays/reunions), some have phone calls, send information to relatives by letter, or invite relatives to join them in a genetic counseling visit #gyncsm Getting the info out is a huge & important 1st step |
| Tanya Temkin @tanyaltee I discussed outreach strategy with my genetic counselor and a peer navigator at FORCE. I knew that, for myself, receiving a form letter about my genetic test results would have turned me off. I would prefer a more personal, one-on-one approach, so that’s what I used #gyncsm |
| Dee Sparacio @womenofteal RT @LguzzardiM: Cancer is often about the presence of loved ones when facing a diagnosis early on. We have to make every effort to connect and sincerely ask how the family member and/or friend is doing. We need to take the time to acknowledge and show we care about the answer. #gyncsm |
| Christina Lizaso @btrfly12 @MIShouldTalk ewwww... :( #gyncsm |
| Christina Lizaso @btrfly12 RT @tanyaltee: I discussed outreach strategy with my genetic counselor and a peer navigator at FORCE. I knew that, for myself, receiving a form letter about my genetic test results would have turned me off. I would prefer a more personal, one-on-one approach, so that’s what I used #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte Okay, I can’t “like” that tweet. I am so, so sorry that anyone would say such a heartless thing to you! Ugh. #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: Some families will share genetic test results w/ relatives at gatherings (holidays/reunions), some have phone calls, send information to relatives by letter, or invite relatives to join them in a genetic counseling visit #gyncsm Getting the info out is a huge & important 1st step |
| IamCervivor @IamCervivor RT @EMBOSU: Some families will share genetic test results w/ relatives at gatherings (holidays/reunions), some have phone calls, send information to relatives by letter, or invite relatives to join them in a genetic counseling visit #gyncsm Getting the info out is a huge & important 1st step |
| Ann Becker-Schutte @DrBeckerSchutte RT @tanyaltee: I discussed outreach strategy with my genetic counselor and a peer navigator at FORCE. I knew that, for myself, receiving a form letter about my genetic test results would have turned me off. I would prefer a more personal, one-on-one approach, so that’s what I used #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T6: What are some tips and resources for guiding end of life discussions and planning with friends and family? #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM @MIShouldTalk Unacceptable in every way #gyncsm |
| IamCervivor @IamCervivor RT @tanyaltee: I discussed outreach strategy with my genetic counselor and a peer navigator at FORCE. I knew that, for myself, receiving a form letter about my genetic test results would have turned me off. I would prefer a more personal, one-on-one approach, so that’s what I used #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @EMBOSU: Some families will share genetic test results w/ relatives at gatherings (holidays/reunions), some have phone calls, send information to relatives by letter, or invite relatives to join them in a genetic counseling visit #gyncsm Getting the info out is a huge & important 1st step |
| Dee Sparacio @womenofteal @MIShouldTalk Two things you should NOT say - in answer to T3. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: Some families will share genetic test results w/ relatives at gatherings (holidays/reunions), some have phone calls, send information to relatives by letter, or invite relatives to join them in a genetic counseling visit #gyncsm Getting the info out is a huge & important 1st step |
| Ann Becker-Schutte @DrBeckerSchutte A6: I like encouraging folks to explore tools like National Healthcare Decision Day or the toolkit at the Center for Practical Bioethics to begin thinking about how to have these conversations. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T6: T6: What are some tips and resources for guiding end of life discussions and planning with friends and family? #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A6: A6: I like encouraging folks to explore tools like National Healthcare Decision Day or the toolkit at the Center for Practical Bioethics to begin thinking about how to have these conversations. #gyncsm |
| Christina Lizaso @btrfly12 I love that there are resources out there because these are tough conversations! #gyncsm |
| IamCervivor @IamCervivor When I worked as a hospital social worker, we shared resources like Death With Dignity: https://t.co/hKeThbf5bL. #GYNCSM |
| Christina Lizaso @btrfly12 RT @IamCervivor: When I worked as a hospital social worker, we shared resources like Death With Dignity: When I worked as a hospital social worker, we shared resources like Death With Dignity: https://t.co/hKeThbf5bL. #GYNCSM |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A6: A6: I like encouraging folks to explore tools like National Healthcare Decision Day or the toolkit at the Center for Practical Bioethics to begin thinking about how to have these conversations. #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: When I worked as a hospital social worker, we shared resources like Death With Dignity: When I worked as a hospital social worker, we shared resources like Death With Dignity: https://t.co/hKeThbf5bL. #GYNCSM |
| Ann Becker-Schutte @DrBeckerSchutte A6: I remind my clients that their discussions and decisions are ultimately their own. These can be guided by family values, religious/spiritual values, etc. but should ultimately reflect your values. #gyncsm |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: A6: A6: I remind my clients that their discussions and decisions are ultimately their own. These can be guided by family values, religious/spiritual values, etc. but should ultimately reflect your values. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A6: A6: I remind my clients that their discussions and decisions are ultimately their own. These can be guided by family values, religious/spiritual values, etc. but should ultimately reflect your values. #gyncsm |
| Cristiane D Bergerot @crisbergerot @gyncsm A4 1/2: When people w cancer seek & receive help from others, they often find it easier to cope. When you accept help from your loved ones you are allowing them to feel connected to you during a time that they really need to express how much they care about you #gyncsm @gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte They are tough conversations, which is why I have advocated for folks to have these conversations with loved ones long before there is any diagnosis. It’s a regular discussion at my house. #gyncsm |
| Christina Lizaso @btrfly12 RT @crisbergerot: @gyncsm A4 1/2: @gyncsm A4 1/2: When people w cancer seek & receive help from others, they often find it easier to cope. When you accept help from your loved ones you are allowing them to feel connected to you during a time that they really need to express how much they care about you #gyncsm @gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @IamCervivor: When I worked as a hospital social worker, we shared resources like Death With Dignity: When I worked as a hospital social worker, we shared resources like Death With Dignity: https://t.co/hKeThbf5bL. #GYNCSM |
| Dee Sparacio @womenofteal RT @DrBeckerSchutte: They are tough conversations, which is why I have advocated for folks to have these conversations with loved ones long before there is any diagnosis. It’s a regular discussion at my house. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @crisbergerot: @gyncsm A4 1/2: @gyncsm A4 1/2: When people w cancer seek & receive help from others, they often find it easier to cope. When you accept help from your loved ones you are allowing them to feel connected to you during a time that they really need to express how much they care about you #gyncsm @gyncsm |
| Tobey @BRCAinfo RT @crisbergerot: @gyncsm A4 1/2: @gyncsm A4 1/2: When people w cancer seek & receive help from others, they often find it easier to cope. When you accept help from your loved ones you are allowing them to feel connected to you during a time that they really need to express how much they care about you #gyncsm @gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @DrBeckerSchutte Definitely not just me, heard similar from many AYA gyn cancer patients over the years. You know it’s just that weird thing where people are so desperate to find a bright side so much that they say really hurtful things.#gyncsm |
| Cristiane D Bergerot @crisbergerot @gyncsm A4 2/2: Those who care about you won’t know how to best support you & may say “let me know how I can help”. This is a great opportunity to tell them in specific way what they can do to be helpful. It’s important for you and it’s important for them to allow this to happen #gyncsm |
| Dee Sparacio @womenofteal RT @crisbergerot: @gyncsm A4 1/2: @gyncsm A4 1/2: When people w cancer seek & receive help from others, they often find it easier to cope. When you accept help from your loved ones you are allowing them to feel connected to you during a time that they really need to express how much they care about you #gyncsm @gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte A6: I also remind clients that making clear plans about your desired end of life healthcare decisions, burial/cremation arrangements, ceremony or celebration is a gift to those left behind. (Also, having a central location for key paperwork). #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Greatly enjoyed our discussion and appreciate all who shared. We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
 | Tamika Felder @tamikafelder RT @LguzzardiM: Cancer is often about the presence of loved ones when facing a diagnosis early on. We have to make every effort to connect and sincerely ask how the family member and/or friend is doing. We need to take the time to acknowledge and show we care about the answer. #gyncsm |
| Dee Sparacio @womenofteal T6 It can start when making out an advanced directive and health proxy. Be honest with loved ones about our wishes. As family members, we have to be willing to listen to what our loved one wishes and not place our ideas on how they should be coping. #gyncsm |
| Dee Sparacio @womenofteal RT @crisbergerot: @gyncsm A4 2/2: @gyncsm A4 2/2: Those who care about you won’t know how to best support you & may say “let me know how I can help”. This is a great opportunity to tell them in specific way what they can do to be helpful. It’s important for you and it’s important for them to allow this to happen #gyncsm |
| Christina Lizaso @btrfly12 RT @MIShouldTalk: @DrBeckerSchutte Definitely not just me, heard similar from many AYA gyn cancer patients over the years. You know it’s just that weird thing where people are so desperate to find a bright side so much that they say really hurtful things.#gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte Oh, I am _very_ familiar with that dynamic. Lots of therapy time goes into processing those kinds of responses. Nonetheless, I hate that so many of you who have had to live through it. #gyncsm |
| IamCervivor @IamCervivor RT @DrBeckerSchutte: A6: A6: I also remind clients that making clear plans about your desired end of life healthcare decisions, burial/cremation arrangements, ceremony or celebration is a gift to those left behind. (Also, having a central location for key paperwork). #gyncsm |
| Erica Bednar @EMBOSU Resources to help w/ sharing genetic test results are available through orgs like @FacingOurRisk & others. A genetic counselor can also help you think though different strategies & answer questions that you may get from relatives.@GeneticCouns has info & how to find a GC #Gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T6 It can start when making out an advanced directive and health proxy. Be honest with loved ones about our wishes. As family members, we have to be willing to listen to what our loved one wishes and not place our ideas on how they should be coping. #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @IamCervivor on another note, I listened to all of the Cervivor podcasts and they were so super great! That’s you, right? #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: Resources to help w/ sharing genetic test results are available through orgs like @FacingOurRisk & others. A genetic counselor can also help you think though different strategies & answer questions that you may get from relatives.@GeneticCouns has info & how to find a GC #Gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte So important. If you are having a hard time with a loved one who is facing death, make sure you get your own support, don’t try to talk them out of dealing with their needs. #gyncsm |
| Cristiane D Bergerot @crisbergerot @gyncsm T6 1/3: talking about end of life can be difficult but having open and honest communication with your family will create emotional connection at a time when it is needed most. It is natural to want to protect your loved one and yourself #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Greatly enjoyed our discussion and appreciate all who shared. We use the last few minutes of the chat to wrap up and share with each other what you learned or were reminded of during this chat. You can start your tweet with TIL: standing for “Today I Learned”. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrBeckerSchutte: So important. If you are having a hard time with a loved one who is facing death, make sure you get your own support, don’t try to talk them out of dealing with their needs. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: Resources to help w/ sharing genetic test results are available through orgs like @FacingOurRisk & others. A genetic counselor can also help you think though different strategies & answer questions that you may get from relatives.@GeneticCouns has info & how to find a GC #Gyncsm |
| Cristiane D Bergerot @crisbergerot @gyncsm T6 2/3: Some people may feel that talking about end of life communicates giving up. In fact, most couples report that sharing their deepest concerns, especially about end of life, brings them closer together and helps them feel less fear #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @crisbergerot: @gyncsm T6 1/3: @gyncsm T6 1/3: talking about end of life can be difficult but having open and honest communication with your family will create emotional connection at a time when it is needed most. It is natural to want to protect your loved one and yourself #gyncsm |
| Dee Sparacio @womenofteal RT @crisbergerot: @gyncsm T6 1/3: @gyncsm T6 1/3: talking about end of life can be difficult but having open and honest communication with your family will create emotional connection at a time when it is needed most. It is natural to want to protect your loved one and yourself #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thank you so much @DrBeckerSchutte for sharing of yourself tonight and for all that you do for patients and families! #gyncsm |
| IamCervivor @IamCervivor @MIShouldTalk Oh, that's wonderful! Yes, that is us! Was there one that spoke to you the most? #GYNCSM |
| Ann Becker-Schutte @DrBeckerSchutte TIL: I have missed you all so much! #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: Understanding Cervical Changes- Publications Page https://t.co/P89oECjc0F #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks all. We look forward to you joining us at the next #gyncsm chat on Wednesday, December 8th at 8pmET when we’ll discuss "Surviving Holiday Stress". Hope to see you then. |
 | PF Anderson @pfanderson@disabled.social @pfanderson RT @crisbergerot: @gyncsm A4 2/2: @gyncsm A4 2/2: Those who care about you won’t know how to best support you & may say “let me know how I can help”. This is a great opportunity to tell them in specific way what they can do to be helpful. It’s important for you and it’s important for them to allow this to happen #gyncsm |
| Dee Sparacio @womenofteal TIL Some conversations may be difficult but they are important to have with our loved ones. Let people have time to react to news of our diagnosis. #gyncsm |
| Dee Sparacio @womenofteal RT @crisbergerot: @gyncsm T6 2/3: @gyncsm T6 2/3: Some people may feel that talking about end of life communicates giving up. In fact, most couples report that sharing their deepest concerns, especially about end of life, brings them closer together and helps them feel less fear #gyncsm |
| Christina Lizaso @btrfly12 RT @crisbergerot: @gyncsm T6 2/3: @gyncsm T6 2/3: Some people may feel that talking about end of life communicates giving up. In fact, most couples report that sharing their deepest concerns, especially about end of life, brings them closer together and helps them feel less fear #gyncsm |
| Cristiane D Bergerot @crisbergerot @gyncsm T6 3/3: It is hard to hide fears related to EOL. Not sharing your thoughts may only add to their concerns & sense of being alone. Being deeply honest w them shows courage & commitment & gives them the opportunity to talk w you in a way that may not possible w anyone else #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: Thanks all. We look forward to you joining us at the next #gyncsm chat on Wednesday, December 8th at 8pmET when we’ll discuss "Surviving Holiday Stress". Hope to see you then. |
| Dee Sparacio @womenofteal Adding my thanks too! #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: TIL Some conversations may be difficult but they are important to have with our loved ones. Let people have time to react to news of our diagnosis. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: TIL Some conversations may be difficult but they are important to have with our loved ones. Let people have time to react to news of our diagnosis. #gyncsm |
| Tobey @BRCAinfo Thank you #gyncsm. Stay well everyone & Hapoy & safe holidays |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks all. We look forward to you joining us at the next #gyncsm chat on Wednesday, December 8th at 8pmET when we’ll discuss "Surviving Holiday Stress". Hope to see you then. |
| Dee Sparacio @womenofteal RT @crisbergerot: @gyncsm T6 3/3: @gyncsm T6 3/3: It is hard to hide fears related to EOL. Not sharing your thoughts may only add to their concerns & sense of being alone. Being deeply honest w them shows courage & commitment & gives them the opportunity to talk w you in a way that may not possible w anyone else #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson @crisbergerot @womenofteal @gyncsm This is so hard to do when you are tired, overwhelmed, brainfogged. It’s good to make a list, like in Google docs or something, and share it #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. For more info on Communicating about Cancer and other topics, visit the Resources https://t.co/VyXkdaQU8h and Chat Topics https://t.co/wiuBkTp49E page on our blog. |
| Dee Sparacio @womenofteal Wishing all a very Happy Thanksgiving. We are thankful for our moderators, supporters, and all participants.#gyncsm https://t.co/bJ8fLElN7V |
| Christina Lizaso @btrfly12 RT @pfanderson: @crisbergerot @womenofteal @gyncsm This is so hard to do when you are tired, overwhelmed, brainfogged. It’s good to make a list, like in Google docs or something, and share it #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: Wishing all a very Happy Thanksgiving. We are thankful for our moderators, supporters, and all participants.#gyncsm https://t.co/bJ8fLElN7V |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Wishing all a very Happy Thanksgiving. We are thankful for our moderators, supporters, and all participants.#gyncsm https://t.co/bJ8fLElN7V |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte @womenofteal and @btrfly12 thank you both so much for all that you have done to build and sustain this community. #gyncsm |
| Tanya Temkin @tanyaltee TIL: I really need to update my estate planning and advance directive. It’s not always a one-and-done process, but one that needs periodic revisiting and revision #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: Wishing all a very Happy Thanksgiving. We are thankful for our moderators, supporters, and all participants.#gyncsm https://t.co/bJ8fLElN7V |
| Ann Becker-Schutte @DrBeckerSchutte RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. For more info on Communicating about Cancer and other topics, visit the Resources https://t.co/VyXkdaQU8h and Chat Topics https://t.co/wiuBkTp49E page on our blog. |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Christina Lizaso @btrfly12 I'm so thankful for these #gyncsm conversations. Wishing you all a wonderful holiday season ahead. |
| Christina Lizaso @btrfly12 RT @tanyaltee: TIL: TIL: I really need to update my estate planning and advance directive. It’s not always a one-and-done process, but one that needs periodic revisiting and revision #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @pfanderson: @crisbergerot @womenofteal @gyncsm This is so hard to do when you are tired, overwhelmed, brainfogged. It’s good to make a list, like in Google docs or something, and share it #gyncsm |
| Dee Sparacio @womenofteal I am especially grateful for my co-moderator @btrfly12 aka @gyncsm . We have an amazing partnership even though we are thousands of miles apart. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. For more info on Communicating about Cancer and other topics, visit the Resources https://t.co/VyXkdaQU8h and Chat Topics https://t.co/wiuBkTp49E page on our blog. |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: I am especially grateful for my co-moderator @btrfly12 aka @gyncsm . We have an amazing partnership even though we are thousands of miles apart. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @tanyaltee: TIL: TIL: I really need to update my estate planning and advance directive. It’s not always a one-and-done process, but one that needs periodic revisiting and revision #gyncsm |
| Christina Lizaso @btrfly12 RT @crisbergerot: @gyncsm T6 3/3: @gyncsm T6 3/3: It is hard to hide fears related to EOL. Not sharing your thoughts may only add to their concerns & sense of being alone. Being deeply honest w them shows courage & commitment & gives them the opportunity to talk w you in a way that may not possible w anyone else #gyncsm |
| Erica Bednar @EMBOSU Thanksgiving is also National Family Health History Day... Speaking of sharing and taking with relatives! #gyncsm #HereditaryCancer https://t.co/VqnO9vqwiz |
| Ann Becker-Schutte @DrBeckerSchutte RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: Okay, I can’t “like” that tweet. I am so, so sorry that anyone would say such a heartless thing to you! Ugh. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @womenofteal: T1 I was teaching in a boys high school when I was diagnosed. I was not able to return to school in September. I told the admins first and then I wrote an article for the school newspaper about why I wasn't going to be there. The students and parents were very supportive #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: A4: A4: I also remind patients that friends and family members can’t take away the cancer, but often are desperate to do something. Offering a concrete need is actually helping the helper. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: A2: A2: I often talk with clients who are struggling with the reactions of others. Some folks pull away. Some folks say insensitive things. Some folks appear to expect you to solve their discomfort over your diagnosis. #gyncsm |
| Dee Sparacio @womenofteal @tanyaltee You are so right about that. After I recurred I changed my advance directive. #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @gyncsm: Tonight on #gyncsm we’ll be discussing Talking to Family and Friends about Cancer and Cancer Risk and we are pleased to have health care moderator @DrBeckerSchutte as our special guest. |
| GYN Cancer | #GYNCSM @gyncsm RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: Thanksgiving is also National Family Health History Day... Speaking of sharing and taking with relatives! #gyncsm #HereditaryCancer https://t.co/VqnO9vqwiz |
 | NCI Cancer Stats @NCICancerStats The median age of diagnosis for #VulvarCancer is 69. To learn more, visit the Cancer Stat Fact sheet at https://t.co/75ThX2FKfh #GynCSM https://t.co/zTg0F3wJRy |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: A3: I sometimes point friends and family members to the “ring theory” of responding to tough situations: Comfort in (towards the person who is ill). Dump (your fear, etc) out—to the rest of your support network. #gyncsm |
| Ann Becker-Schutte @DrBeckerSchutte RT @EMBOSU: Thanksgiving is also National Family Health History Day... Speaking of sharing and taking with relatives! #gyncsm #HereditaryCancer https://t.co/VqnO9vqwiz |
| Dee Sparacio @womenofteal RT @EMBOSU: Thanksgiving is also National Family Health History Day... Speaking of sharing and taking with relatives! #gyncsm #HereditaryCancer https://t.co/VqnO9vqwiz |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: A6: A6: I like encouraging folks to explore tools like National Healthcare Decision Day or the toolkit at the Center for Practical Bioethics to begin thinking about how to have these conversations. #gyncsm |
| Lisa M Guzzardi, RN @LguzzardiM @btrfly12 Gratitude is the word for the stellar moderators here & entire #gyncsm community. Happy healthy holidays to all. |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EMBOSU: Resources to help w/ sharing genetic test results are available through orgs like @FacingOurRisk & others. A genetic counselor can also help you think though different strategies & answer questions that you may get from relatives.@GeneticCouns has info & how to find a GC #Gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @btrfly12: I feel something like "I don't know what to say. This is hard." can go a long way vs. trying to say the perfect thing and making it worse and/or not saying anything because so worried. #gyncsm |
| Dee Sparacio @womenofteal RT @pfanderson: @crisbergerot @womenofteal @gyncsm This is so hard to do when you are tired, overwhelmed, brainfogged. It’s good to make a list, like in Google docs or something, and share it #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @tanyaltee: I discussed outreach strategy with my genetic counselor and a peer navigator at FORCE. I knew that, for myself, receiving a form letter about my genetic test results would have turned me off. I would prefer a more personal, one-on-one approach, so that’s what I used #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @IamCervivor I have a big research project about racial disparities in gyn cancer that’s about just listening to how Black patients have experienced racism in cancer care so just getting more familiar with cervical cancer stories helps! I appreciate y’all so much! ❤️ #gyncsm |
| Dee Sparacio @womenofteal #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @womenofteal: T3 NOT helpful. "So do you trust what the doctor is telling you? "or " So what caused the cancer?" ( heck if I knew that I'd get the Nobel Prize.) " Oh that's a bad one my Aunt... Sister..., Neighbor had that ." #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrBeckerSchutte: A1: A1: If you are a person who processes well in writing, make some notes and consider using a tool like a social media group or CaringBridge page to distribute general information to a larger group (if you have someone who can be in charge of that job, that can be great). #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk @womenofteal @btrfly12 @gyncsm So thankful for y’all too! ❤️ You’ve helped me learn so much and expand my network to help more patients too! So much appreciation! #gyncsm |
| Cristiane D Bergerot @crisbergerot @pfanderson @womenofteal @gyncsm This is a great idea. I usually suggest: When someone asks, “Is there anything I can do?” say “YES!” Then, give them a specific task/ideas: o Cook dinner next Wednesday o Pick up the kids from school Friday o Clean my house o Mow the lawn o Drive me to my doctor #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @crisbergerot: @pfanderson @womenofteal @gyncsm This is a great idea. I usually suggest: @pfanderson @womenofteal @gyncsm This is a great idea. I usually suggest: When someone asks, “Is there anything I can do?” say “YES!” Then, give them a specific task/ideas: o Cook dinner next Wednesday o Pick up the kids from school Friday o Clean my house o Mow the lawn o Drive me to my doctor #gyncsm |
| PF Anderson @pfanderson@disabled.social @pfanderson @crisbergerot @womenofteal @gyncsm It would be great to crowdsource a list of ideas like these. I usually end up saying, “I know I need help, but I can’t think of what I need right now.” Thus, making a list! #gyncsm |
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