#GynCSM Transcript

Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.

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Karen North @mzunrs
I’m ready!
GYN Cancer | #GYNCSM @gyncsm
Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers.
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm
Dee Sparacio @womenofteal
#gyncsm https://t.co/Qru4qfNJNO
GYN Cancer | #GYNCSM @gyncsm
If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips!
Dee Sparacio @womenofteal
RT @btrfly12: Christina Lizaso – passionate re: Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm
Karen North @mzunrs
Karen, #CervicalCancer #Cervivor for 6 years. Also a 7.5 year breast cancer survivor.
Dee Sparacio @womenofteal
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips!
Dee Sparacio @womenofteal
Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Welcome Karen - be sure to include #gyncsm in each tweet so everyone can see your participation :)
Uterine Cancer Awareness Network @ucan2020
My name is Shakeya Founder of Uterine Cancer Awareness Network. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUuJIrY
Dee Sparacio @womenofteal
@ucan2020 Hi Shakeya , Glad to have you join us! #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: The #gyncsm chat promotes community in a public forum. Chats are an open discussion and all are welcome to share from their experiences and perspectives. Learn more about risks/benefits: https://t.co/TipZUuJIrY
GYN Cancer | #GYNCSM @gyncsm
#gyncsm is not a forum for individual medical advice. Resources and referrals and provided solely for information and convenience.
Dee Sparacio @womenofteal
#gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. #gyncsm
Sid Vasey @backsideofforty
Click on the link below and contact your congressional representative. Let's get this bill passed. There is so much more we can do, so many more lives we can save. Pls RT. #stopthesilentkiller #tealaction #OvarianCancer #begonelileffers @ThanksCancer #moretealplease
GYN Cancer | #GYNCSM @gyncsm
Are you new to tweet chats? Follow hashtag #gyncsm under Explore - Latest and include the hashtag in every tweet during the next hour to engage with others about this topic. You may need to refresh to see new tweets as they are added.
Christina Lizaso @btrfly12
RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm under Explore - Latest and include the hashtag in every tweet during the next hour to engage with others about this topic. You may need to refresh to see new tweets as they are added.
Dee Sparacio @womenofteal
Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
We welcome all those joining in as well as those here to “listen in”. We'd love you to tweet #gyncsm so we know you are here and you can always tweet, DM or email us with questions/comments after the chat is over if you like. See out blog for info: https://t.co/nDbbZmXoxF
GYN Cancer | #GYNCSM @gyncsm
Interested in what might come next for #GYNCSM in a post-Twitter situation? Keep in touch by joining the #gyncsm mailing list: https://t.co/y5S5QkoKAe
Dee Sparacio @womenofteal
Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat.
Dee Sparacio @womenofteal
RT @gyncsm: Interested in what might come next for #GYNCSM in a post-Twitter situation? Keep in touch by joining the #gyncsm mailing list: https://t.co/y5S5QkoKAe
GYN Cancer | #GYNCSM @gyncsm
Tonight on #gyncsm we’ll be “Looking Back, Looking Forward” as we reflect on 2022 and think about 2023 for ourselves, gyn cancer advocacy, and the #gyncsm community.
Dee Sparacio @womenofteal
RT @gyncsm: Tonight on #gyncsm we’ll be “Looking Back, Looking Forward” as we reflect on 2022 and think about 2023 for ourselves, gyn cancer advocacy, and the #gyncsm community.
Christina Lizaso @btrfly12
RT @gyncsm: Tonight on #gyncsm we’ll be “Looking Back, Looking Forward” as we reflect on 2022 and think about 2023 for ourselves, gyn cancer advocacy, and the #gyncsm community.
Uterine Cancer Awareness Network @ucan2020
RT @gyncsm: Tonight on #gyncsm we’ll be “Looking Back, Looking Forward” as we reflect on 2022 and think about 2023 for ourselves, gyn cancer advocacy, and the #gyncsm community.
GYN Cancer | #GYNCSM @gyncsm
You can find the 6 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/FK1EoUrepW
Tobey @BRCAinfo
#gyncsm just stopped in to wish everybody a happy and healthy, holiday, season, and new year🙏❤️🌹
Dee Sparacio @womenofteal
@BRCAinfo Happy Holidays to you too! May the New Year bring only good things your way. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: You can find the 6 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: You can find the 6 Topic Questions we’ll cover on today’s chat on our #gyncsm blog: https://t.co/FK1EoUrepW
GYN Cancer | #GYNCSM @gyncsm
We’ll use a Topic format with T1:; T2: etc. Please include the corresponding T#: at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. Here comes #gyncsm Topic 1 (T1:)...
Dee Sparacio @womenofteal
RT @gyncsm: We’ll use a Topic format with T1:; T2: etc. Please include the corresponding T#: We’ll use a Topic format with T1:; T2: etc. Please include the corresponding T#: at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. Here comes #gyncsm Topic 1 (T1:)...
Christina Lizaso @btrfly12
@womenofteal #gyncsm https://t.co/iIX0omZ0bZ
GYN Cancer | #GYNCSM @gyncsm
T1: What are some things you did in 2022 that brought you satisfaction? What steps have improved your overall quality of life? #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T1: T1: What are some things you did in 2022 that brought you satisfaction? What steps have improved your overall quality of life? #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T1: T1: What are some things you did in 2022 that brought you satisfaction? What steps have improved your overall quality of life? #gyncsm
Christina Lizaso @btrfly12
T1: Got back to doing some family traveling this year and really cherish this time as both of my kids are now teens. #gyncsm
Dee Sparacio @womenofteal
@gyncsm T1: I learned how to play pickleball. Not sure if it improved my QOL but it did make me laugh a lot. On the Advocacy front - Attending the @SGO_org annual meeting in person was very exciting for me. #gyncsm
Uterine Cancer Awareness Network @ucan2020
T-1 In 2022 we made a lot of progress with our free awareness poster program for Gynecologist we are now expanding to include Retirement Centers. #gyncsm
Morgan Newman @MiSs_SuE22
A1: I got organized and I asked for help. That has helped tremendously! I've also made time for meditation and breathing exercises. #GYNCSM
Christina Lizaso @btrfly12
T1: I ALMOST got back into reading books for fun. I got a couple books in and lost steam, but would really like to pick that back up as it did bring joy. #gyncsm
Karen North @mzunrs
A1: Family, fur-kids, friends and lake time. Reminding myself to keep my self-care a priority. #Cervivor #gyncsm
Christina Lizaso @btrfly12
RT @MiSs_SuE22: A1: A1: I got organized and I asked for help. That has helped tremendously! I've also made time for meditation and breathing exercises. #GYNCSM
Christina Lizaso @btrfly12
RT @ucan2020: T-1 In 2022 we made a lot of progress with our free awareness poster program for Gynecologist we are now expanding to include Retirement Centers. #gyncsm
Dee Sparacio @womenofteal
@ucan2020 Retirement Centers - great idea ! #gyncsm
Dee Sparacio @womenofteal
RT @MiSs_SuE22: A1: A1: I got organized and I asked for help. That has helped tremendously! I've also made time for meditation and breathing exercises. #GYNCSM
Dee Sparacio @womenofteal
RT @ucan2020: T-1 In 2022 we made a lot of progress with our free awareness poster program for Gynecologist we are now expanding to include Retirement Centers. #gyncsm
Christina Lizaso @btrfly12
@womenofteal @gyncsm @SGO_org #gyncsm love this. my family keeps talking about pickle ball but we haven't don it yet. there are places to do it popping up all over town.
Uterine Cancer Awareness Network @ucan2020
T1: I am learning that I must take care of me so that I'm healthy to take care of others. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2023? #gyncsm
Dee Sparacio @womenofteal
@mzunrs Fur kids are fun! I would love lake time too. Here is Jersey we only think of the shore. #gyncsm
Dee Sparacio @womenofteal
RT @ucan2020: T1: T1: I am learning that I must take care of me so that I'm healthy to take care of others. #gyncsm
Christina Lizaso @btrfly12
@mzunrs part of our family travel included lake time - i had forgotten how nice it is to be on lake time :) #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2023? #gyncsm
Dee Sparacio @womenofteal
@btrfly12 @gyncsm @SGO_org Although it started in 55+ communities it is catching on at all age levels. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2023? #gyncsm
Morgan Newman @MiSs_SuE22
A1.2: Our CCAM theme this year was "Take Care of You in 2022." Self-care is a crucial part of our work in the cancer advocacy space. @IamCervivor #GYNCSM #Cervivor
GYN Cancer | #GYNCSM @gyncsm
RT @MiSs_SuE22: A1.2: A1.2: Our CCAM theme this year was "Take Care of You in 2022." Self-care is a crucial part of our work in the cancer advocacy space. @IamCervivor #GYNCSM #Cervivor
Dee Sparacio @womenofteal
RT @MiSs_SuE22: A1.2: A1.2: Our CCAM theme this year was "Take Care of You in 2022." Self-care is a crucial part of our work in the cancer advocacy space. @IamCervivor #GYNCSM #Cervivor
Christina Lizaso @btrfly12
T2: I guess I got ahead of myself with T1 but reading books for sure in the new year. I think I mostly want to keep moving forward and not give in to "analysis paralysis" as many areas of life are up in the air it seems. #gyncsm
Uterine Cancer Awareness Network @ucan2020
T2: I wish I could have done more fundraising we are deciding to stay located in Dallas and next year we plan on getting connected so we are able to get the funding we need to take care of our patients, survivors, and caregivers. #gyncsm
Dee Sparacio @womenofteal
@gyncsm T2 I wish I had taken more long walks with my dog in the local parks. And spent more time painting. Which makes me think I need to prioritize my time differently . #gyncsm
Karen North @mzunrs
A1: Giving myself permission to use my anxiety medication (before I’m already in an attack). Plans are for better sleep habits. #Cervivor #gyncsm
Morgan Newman @MiSs_SuE22
A2: I wish I would have worked on my anxiety sooner or was more aware of some of the feelings I was going through. I am bringing the Taking Care of You theme into 2023 and doing an even better job of what I learned this year. #GYNCSM
Dee Sparacio @womenofteal
RT @ucan2020: T2: T2: I wish I could have done more fundraising we are deciding to stay located in Dallas and next year we plan on getting connected so we are able to get the funding we need to take care of our patients, survivors, and caregivers. #gyncsm
Jayden @dutchmonaco
RT @womenofteal: @gyncsm T2 I wish I had taken more long walks with my dog in the local parks. And spent more time painting. Which makes me think I need to prioritize my time differently . #gyncsm
Dee Sparacio @womenofteal
RT @MiSs_SuE22: A2: A2: I wish I would have worked on my anxiety sooner or was more aware of some of the feelings I was going through. I am bringing the Taking Care of You theme into 2023 and doing an even better job of what I learned this year. #GYNCSM
Dee Sparacio @womenofteal
RT @mzunrs: A1: A1: Giving myself permission to use my anxiety medication (before I’m already in an attack). Plans are for better sleep habits. #Cervivor #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Loving the T2 answers - keep them coming in as we go ahead and post T3 :) #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T3: What are some of the "wins" for gynecologic cancer advocacy/treatment/care over the past year or so? Where are we seeing progress? #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T3: T3: What are some of the "wins" for gynecologic cancer advocacy/treatment/care over the past year or so? Where are we seeing progress? #gyncsm
Dee Sparacio @womenofteal
T2 For 2023 I want to learn how to use alcohol paints to create art work. And I want to ride my bike more- it has to get warmer for me to do that. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: T3: T3: What are some of the "wins" for gynecologic cancer advocacy/treatment/care over the past year or so? Where are we seeing progress? #gyncsm
Christina Lizaso @btrfly12
T3: It has been great to see all the global collaboration around #cervicalcancer and #ovariancancer. Also was pleased to see @ocrahope expand a bit beyond the ovary in its focus. And always love how @IamCervivor embraces all areas of gyn cancer and women's health. #gyncsm
Morgan Newman @MiSs_SuE22
A3: I know we're beyond thankful to have been a part of the launch of the National Breast and Cervical Cancer Roundtables! Super grateful @tamikafelder was able to represent @IamCervivor and our community with the opening remarks for @FLOTUS. #GYNCSM #Cervivor
Dee Sparacio @womenofteal
@gyncsm T3: 1st thing that came to mind was what I wrote about in my blog today - The approval of mirvetuximab soravtansine-gynx (Elahere) for women with recurrent OC . #gyncsm
Karen North @mzunrs
A3: Patients are advocating for better treatment. More research is being conducted. Talking about gynecological cancer. We still have more work to do. @IamCervivor #Cervivor #gyncsm
Christina Lizaso @btrfly12
RT @mzunrs: A3: A3: Patients are advocating for better treatment. More research is being conducted. Talking about gynecological cancer. We still have more work to do. @IamCervivor #Cervivor #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T3: T3: It has been great to see all the global collaboration around #cervicalcancer and #ovariancancer. Also was pleased to see @ocrahope expand a bit beyond the ovary in its focus. And always love how @IamCervivor embraces all areas of gyn cancer and women's health. #gyncsm
Dee Sparacio @womenofteal
RT @MiSs_SuE22: A3: A3: I know we're beyond thankful to have been a part of the launch of the National Breast and Cervical Cancer Roundtables! Super grateful @tamikafelder was able to represent @IamCervivor and our community with the opening remarks for @FLOTUS. #GYNCSM #Cervivor
Dee Sparacio @womenofteal
RT @mzunrs: A3: A3: Patients are advocating for better treatment. More research is being conducted. Talking about gynecological cancer. We still have more work to do. @IamCervivor #Cervivor #gyncsm
GYN Cancer | #GYNCSM @gyncsm
T4: #gyncsm What are some areas within the gynecologic cancer space that you want to see more progress made over the next year? Any projects/action steps you already have planned?
Christina Lizaso @btrfly12
RT @gyncsm: T4: T4: #gyncsm What are some areas within the gynecologic cancer space that you want to see more progress made over the next year? Any projects/action steps you already have planned?
Dee Sparacio @womenofteal
RT @gyncsm: T4: T4: #gyncsm What are some areas within the gynecologic cancer space that you want to see more progress made over the next year? Any projects/action steps you already have planned?
Dee Sparacio @womenofteal
T4 - It's been my wish for 17 years now but I sure would love to see a detection test for ovarian cancer . I wonder if work on ctDNA might hold the key? #gyncsm
Morgan Newman @MiSs_SuE22
A4: I'd LOVE to see survivors continue to share their stories, for GYN cancer communities to join together to make a bigger impact, and for the patient voice to be included more. #GYNCSM
Christina Lizaso @btrfly12
T4: I'd love to see continued collaboration across gyn cancer and cancer groups. I'd also love to see more programs on basic anatomy and health as a starting point entry to gyn cancer awareness. #gyncsm
Christina Lizaso @btrfly12
RT @MiSs_SuE22: A4: A4: I'd LOVE to see survivors continue to share their stories, for GYN cancer communities to join together to make a bigger impact, and for the patient voice to be included more. #GYNCSM
Christina Lizaso @btrfly12
RT @womenofteal: T4 - It's been my wish for 17 years now but I sure would love to see a detection test for ovarian cancer . I wonder if work on ctDNA might hold the key? #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T4: T4: I'd love to see continued collaboration across gyn cancer and cancer groups. I'd also love to see more programs on basic anatomy and health as a starting point entry to gyn cancer awareness. #gyncsm
Karen North @mzunrs
A4: Providers to actively LISTEN to the patient and their concerns. Too many are so preoccupied that they don’t/won’t listen. Also, applies to insurance companies. #gyncsm #cervivor @IamCervivor
Morgan Newman @MiSs_SuE22
RT @btrfly12: T4: T4: I'd love to see continued collaboration across gyn cancer and cancer groups. I'd also love to see more programs on basic anatomy and health as a starting point entry to gyn cancer awareness. #gyncsm
Morgan Newman @MiSs_SuE22
RT @mzunrs: A3: A3: Patients are advocating for better treatment. More research is being conducted. Talking about gynecological cancer. We still have more work to do. @IamCervivor #Cervivor #gyncsm
Christina Lizaso @btrfly12
RT @mzunrs: A4: A4: Providers to actively LISTEN to the patient and their concerns. Too many are so preoccupied that they don’t/won’t listen. Also, applies to insurance companies. #gyncsm #cervivor @IamCervivor
Dee Sparacio @womenofteal
RT @mzunrs: A4: A4: Providers to actively LISTEN to the patient and their concerns. Too many are so preoccupied that they don’t/won’t listen. Also, applies to insurance companies. #gyncsm #cervivor @IamCervivor
GYN Cancer | #GYNCSM @gyncsm
So far on this chat we've looked back and looked forward personally and in the gyn cancer space. We'd also like to spend a little time on #gyncsm itself. Here's our guiding mission:
Dee Sparacio @womenofteal
RT @MiSs_SuE22: A4: A4: I'd LOVE to see survivors continue to share their stories, for GYN cancer communities to join together to make a bigger impact, and for the patient voice to be included more. #GYNCSM
GYN Cancer | #GYNCSM @gyncsm
#gyncsm mission: Provide a place where - Those w/ a gyn cancer-related dx & their caregivers can find reliable information and support - and Health care providers can gain insight into the patient experience, discovering what topics/issues are most imp to gyn cancer patients.
Morgan Newman @MiSs_SuE22
RT @gyncsm: #gyncsm mission: #gyncsm mission: Provide a place where - Those w/ a gyn cancer-related dx & their caregivers can find reliable information and support - and Health care providers can gain insight into the patient experience, discovering what topics/issues are most imp to gyn cancer patients.
GYN Cancer | #GYNCSM @gyncsm
T5: What are some of the things you appreciate about the #gyncsm community being on Twitter? What do you find helpful about #gyncsm?
Dee Sparacio @womenofteal
T4 I agree with all the other responses and would add - More research in rare gyn cancers like sarcomas, vulvar etc #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: So far on this chat we've looked back and looked forward personally and in the gyn cancer space. We'd also like to spend a little time on #gyncsm itself. Here's our guiding mission:
Dee Sparacio @womenofteal
RT @gyncsm: #gyncsm mission: #gyncsm mission: Provide a place where - Those w/ a gyn cancer-related dx & their caregivers can find reliable information and support - and Health care providers can gain insight into the patient experience, discovering what topics/issues are most imp to gyn cancer patients.
Dee Sparacio @womenofteal
RT @gyncsm: T5: T5: What are some of the things you appreciate about the #gyncsm community being on Twitter? What do you find helpful about #gyncsm?
Karen North @mzunrs
#gyncsm #cervivor @IamCervivor
Morgan Newman @MiSs_SuE22
RT @womenofteal: T4 I agree with all the other responses and would add - More research in rare gyn cancers like sarcomas, vulvar etc #gyncsm
Christina Lizaso @btrfly12
T5: I like that on Twitter there are so many varied groups that can pop in&out of discussions as there is interest. I also really appreciate the healthcare provider participation. Which on some patient community websites, those folks are not there - sometimes by design. #gyncsm
Dee Sparacio @womenofteal
I appreciate the researchers and gyn oncs who share the results of their studies or when they and other patient advocates tweet live from the oncology meetings they attend. #gyncsm
Christina Lizaso @btrfly12
#gyncsm: @StRogista Replying to @gyncsm T1: Continued to work on my wildlife garden and growing veggies, fruits, herbs. Expanded my efforts to raise awareness of uterine cancer by re joining Twitter.
Dee Sparacio @womenofteal
RT @btrfly12: T5: T5: I like that on Twitter there are so many varied groups that can pop in&out of discussions as there is interest. I also really appreciate the healthcare provider participation. Which on some patient community websites, those folks are not there - sometimes by design. #gyncsm
Christina Lizaso @btrfly12
@StRogista @gyncsm don't forget to include the hashtag #gyncsm in your tweets as part of the chat :)
Christina Lizaso @btrfly12
RT @womenofteal: T4 I agree with all the other responses and would add - More research in rare gyn cancers like sarcomas, vulvar etc #gyncsm
Christina Lizaso @btrfly12
RT @gyncsm: T5: T5: What are some of the things you appreciate about the #gyncsm community being on Twitter? What do you find helpful about #gyncsm?
Dee Sparacio @womenofteal
RT @btrfly12: @StRogista @gyncsm don't forget to include the hashtag #gyncsm in your tweets as part of the chat :)
Morgan Newman @MiSs_SuE22
A5: I enjoy being able to connect with other survivors, physicians, nonprofits, etc. We cannot do this work alone and we are most certainly stronger together. #GYNCSM
Christina Lizaso @btrfly12
RT @womenofteal: I appreciate the researchers and gyn oncs who share the results of their studies or when they and other patient advocates tweet live from the oncology meetings they attend. #gyncsm
Christina Lizaso @btrfly12
RT @MiSs_SuE22: A5: A5: I enjoy being able to connect with other survivors, physicians, nonprofits, etc. We cannot do this work alone and we are most certainly stronger together. #GYNCSM
Christina Lizaso @btrfly12
T5: Ah yes! Those who live-tweet from conferences do such a great service. So many also include slide pic's. That is a great aspect of #gyncsm (and other healthcare hashtags) on Twitter.
Dee Sparacio @womenofteal
Yes! we are stronger together. And learn from each other. #gyncsm
Karen North @mzunrs
A5: Providers sharing knowledge. The sharing of support for gynecology oncology. #gyncsm #cervivor @IamCervivor
Christina Lizaso @btrfly12
T5: Twitter seems to allow for silo-busting if you work at it and that is a great benefit. #gyncsm
Dee Sparacio @womenofteal
RT @mzunrs: A5: A5: Providers sharing knowledge. The sharing of support for gynecology oncology. #gyncsm #cervivor @IamCervivor
GYN Cancer | #GYNCSM @gyncsm
#gyncsm @StRogista Replying to @gyncsm T2: I wish I had gotten to travel more. In 2023 I hope to increase my efforts to raise awareness of uterine cancer.
Dee Sparacio @womenofteal
RT @gyncsm: #gyncsm @StRogista Replying to @gyncsm T2: I wish I had gotten to travel more. In 2023 I hope to increase my efforts to raise awareness of uterine cancer.
GYN Cancer | #GYNCSM @gyncsm
T6: What are your plans for staying or leaving Twitter? Which other platforms have you tried or are you considering? Any thoughts on the future of #gyncsm and what you'd like to see?
Dee Sparacio @womenofteal
RT @gyncsm: T6: T6: What are your plans for staying or leaving Twitter? Which other platforms have you tried or are you considering? Any thoughts on the future of #gyncsm and what you'd like to see?
Christina Lizaso @btrfly12
T6: Not sure I'm ready to start over anywhere. Heard about Hive and Post as things to maybe try. I belong to a patient community @smart_patients but it isn't the same as an open forum - different goals - and of course it isn't a place for awareness/education. #gyncsm
Elizabeth Hornsey @StRogista
@gyncsm T3: I am seeing more focus on ovary preservation whenever possible and why it should be done. Hopefully that will become standard of care. Glad I was able to keep mine. #gyncsm
Morgan Newman @MiSs_SuE22
A6: I haven't really given much thought to it. My hopes is there is a platform that is easy for anyone to join in like it has been here. #GYNCSM
Dee Sparacio @womenofteal
T6 I have made the best connections as a advocate on Twitter so I'll be staying for the time being. I see some folks on Instagram, while some have moved to Mastodon and Post. #gyncsm
Dee Sparacio @womenofteal
RT @StRogista: @gyncsm T3: @gyncsm T3: I am seeing more focus on ovary preservation whenever possible and why it should be done. Hopefully that will become standard of care. Glad I was able to keep mine. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T6: T6: Not sure I'm ready to start over anywhere. Heard about Hive and Post as things to maybe try. I belong to a patient community @smart_patients but it isn't the same as an open forum - different goals - and of course it isn't a place for awareness/education. #gyncsm
Christina Lizaso @btrfly12
T6: Even though many cancer and health chats have dwindled or stopped hosting regular chats, I have seen an increase in @ThanksCancer and general cancer twitter which has been really nice to see. Communities evolve and that 's okay. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: T6: T6: Even though many cancer and health chats have dwindled or stopped hosting regular chats, I have seen an increase in @ThanksCancer and general cancer twitter which has been really nice to see. Communities evolve and that 's okay. #gyncsm
Christina Lizaso @btrfly12
RT @StRogista: @gyncsm T3: @gyncsm T3: I am seeing more focus on ovary preservation whenever possible and why it should be done. Hopefully that will become standard of care. Glad I was able to keep mine. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Reminder - Interested in what might come next for #GYNCSM in a post-Twitter situation? Keep in touch by joining the #gyncsm mailing list: https://t.co/y5S5QkoKAe
Dee Sparacio @womenofteal
RT @gyncsm: Reminder - Interested in what might come next for #GYNCSM in a post-Twitter situation? Keep in touch by joining the #gyncsm mailing list: https://t.co/y5S5QkoKAe
Karen North @mzunrs
A6: Taking it day by day with 🐦. Currently on FB, IG and TT. Does #gyncsm use TT? #gyncsm #cervivor @IamCervivor
Dee Sparacio @womenofteal
RT @mzunrs: A6: A6: Taking it day by day with 🐦. Currently on FB, IG and TT. Does #gyncsm use TT? #gyncsm #cervivor @IamCervivor
GYN Cancer | #GYNCSM @gyncsm
Here we are again - at that time for sharing any closing thoughts on our reflections and goals shared during this #gyncsm chat. You can start your tweet with TIL: standing for “Today I Learned”.
Uterine Cancer Awareness Network @ucan2020
T4: I Think uterine cancer awareness has a long way to go but we are determined to help it get there! #gyncsm
Dee Sparacio @womenofteal
@mzunrs @IamCervivor We are currently not on TT. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: Here we are again - at that time for sharing any closing thoughts on our reflections and goals shared during this #gyncsm chat. You can start your tweet with TIL: standing for “Today I Learned”.
Dee Sparacio @womenofteal
RT @ucan2020: T4: T4: I Think uterine cancer awareness has a long way to go but we are determined to help it get there! #gyncsm
Christina Lizaso @btrfly12
@mzunrs @IamCervivor We have not tried out TikTok - though I know one of our founding #gyncsm moderators @drdonsdizon is doing fabulous stuff over there.
Christina Lizaso @btrfly12
RT @ucan2020: T4: T4: I Think uterine cancer awareness has a long way to go but we are determined to help it get there! #gyncsm
Christina Lizaso @btrfly12
TIL: We are passionate advocates, but we are people too. Always good to hear about each other's goals and interests. #gyncsm
Elizabeth Hornsey @StRogista
@gyncsm T4: uterine cancer is still considered an older woman’s cancer. I would like to see more focus on the issues of younger child bearing age patients like loss of fertility and in many cases childlessness due to hysterectomy. Grief/trauma/ mental health support. #gyncsm
Uterine Cancer Awareness Network @ucan2020
T5: I love that we are all able to connect and help each other be great advocates! #gyncsm
Dee Sparacio @womenofteal
RT @ucan2020: T5: T5: I love that we are all able to connect and help each other be great advocates! #gyncsm
Dee Sparacio @womenofteal
RT @StRogista: @gyncsm T4: @gyncsm T4: uterine cancer is still considered an older woman’s cancer. I would like to see more focus on the issues of younger child bearing age patients like loss of fertility and in many cases childlessness due to hysterectomy. Grief/trauma/ mental health support. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Thanks to everyone for the truly wonderful conversation. Our current plan is to hold 6 chats in 2023, meeting every other 2nd Wednesday at 8pmET. Save the date for our next chat Wed, Jan 11, 2023 at 8pmET when we’ll discuss “Survivorship”. Hope to see you then. #gyncsm
We Learned Today @welearnedtoday
RT @btrfly12: TIL: TIL: We are passionate advocates, but we are people too. Always good to hear about each other's goals and interests. #gyncsm
Dee Sparacio @womenofteal
RT @btrfly12: TIL: TIL: We are passionate advocates, but we are people too. Always good to hear about each other's goals and interests. #gyncsm
Christina Lizaso @btrfly12
RT @StRogista: @gyncsm T4: @gyncsm T4: uterine cancer is still considered an older woman’s cancer. I would like to see more focus on the issues of younger child bearing age patients like loss of fertility and in many cases childlessness due to hysterectomy. Grief/trauma/ mental health support. #gyncsm
Uterine Cancer Awareness Network @ucan2020
T6: We plan on staying on Twitter we want to inform as many people as we can about Uterine Cancer! #gyncsm
Karen North @mzunrs
TIL how to tweetchat 🤦🏼‍♀️ #gyncsm #cervivor @IamCervivor
Elizabeth Hornsey @StRogista
@gyncsm Still working on how to advocate for that and for more money for research to develop advancements in treatment. Continue to try to raise awareness. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats.
Dee Sparacio @womenofteal
TIL The Connections we make in this community are so important. #gyncsm
Dee Sparacio @womenofteal
RT @StRogista: @gyncsm Still working on how to advocate for that and for more money for research to develop advancements in treatment. Continue to try to raise awareness. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Wishing wellness and safety for all plus joy this holiday season. #gyncsm https://t.co/1YWEJ0JvRH
Dee Sparacio @womenofteal
We are grateful to all our participants and supporters and wish you all Happy Holidays and a very Happy New Year! #gyncsm https://t.co/fuZtWODloy
Christina Lizaso @btrfly12
RT @MiSs_SuE22: A3: A3: I know we're beyond thankful to have been a part of the launch of the National Breast and Cervical Cancer Roundtables! Super grateful @tamikafelder was able to represent @IamCervivor and our community with the opening remarks for @FLOTUS. #GYNCSM #Cervivor
Christina Lizaso @btrfly12
RT @gyncsm: Thanks to everyone for the truly wonderful conversation. Our current plan is to hold 6 chats in 2023, meeting every other 2nd Wednesday at 8pmET. Save the date for our next chat Wed, Jan 11, 2023 at 8pmET when we’ll discuss “Survivorship”. Hope to see you then. #gyncsm
Dee Sparacio @womenofteal
@crispyteriyaki ‘s @UHCancerCenter lab's latest project, a #research #survey for all cancer patients & past-5-yr cancer survivors in the U.S. COMPLETELY anonymous (no IP addresses or PII collected). Please share. https://t.co/mlC4CQmLeR #gyncsm https://t.co/e5rAyeKHjq
Sarah Temkin @temkins
RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm
Uterine Cancer Awareness Network @ucan2020
TIL: We must continue to be strong, take care of our own health and we all need to work together for the good of gynecologic cancers! Thank you for all you do! #gyncsm
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm
Dee Sparacio @womenofteal
RT @ucan2020: TIL: TIL: We must continue to be strong, take care of our own health and we all need to work together for the good of gynecologic cancers! Thank you for all you do! #gyncsm
Dee Sparacio @womenofteal
@ucan2020 Thanks so much for joining us and for all the work you do. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
We'll post the transcript from tonight's chat and then a blog post with a summary. You can look for that in the #gyncsm feed or pinned to our profile. Thanks @womenofteal for all your work on the blog. We also have our 2023 chat dates posted there on the side bar.
Dee Sparacio @womenofteal
RT @gyncsm: Thanks to everyone for the truly wonderful conversation. Our current plan is to hold 6 chats in 2023, meeting every other 2nd Wednesday at 8pmET. Save the date for our next chat Wed, Jan 11, 2023 at 8pmET when we’ll discuss “Survivorship”. Hope to see you then. #gyncsm
Dee Sparacio @womenofteal
RT @gyncsm: We'll post the transcript from tonight's chat and then a blog post with a summary. You can look for that in the #gyncsm feed or pinned to our profile. Thanks @womenofteal for all your work on the blog. We also have our 2023 chat dates posted there on the side bar.
Elizabeth Hornsey @StRogista
@gyncsm T5: What I appreciate and find helpful about #gyncsm is connecting with others who care about gynecological cancers and learning from others. #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Feel free to keep answering tonight's topic questions if you are just joining or reading later :) Just include hashtag #gyncsm in your response tweets.
Uterine Cancer Awareness Network @ucan2020
@womenofteal Thank you! #gyncsm
GYN Cancer | #GYNCSM @gyncsm
RT @StRogista: @gyncsm T5: @gyncsm T5: What I appreciate and find helpful about #gyncsm is connecting with others who care about gynecological cancers and learning from others. #gyncsm
Karen North @mzunrs
RT @MiSs_SuE22: A6: A6: I haven't really given much thought to it. My hopes is there is a platform that is easy for anyone to join in like it has been here. #GYNCSM
Karen North @mzunrs
RT @MiSs_SuE22: A5: A5: I enjoy being able to connect with other survivors, physicians, nonprofits, etc. We cannot do this work alone and we are most certainly stronger together. #GYNCSM
Karen North @mzunrs
RT @MiSs_SuE22: A4: A4: I'd LOVE to see survivors continue to share their stories, for GYN cancer communities to join together to make a bigger impact, and for the patient voice to be included more. #GYNCSM
Dee Sparacio @womenofteal
Wishing Happy Holidays and all the best in 2023 to @btrfly12 and her family . This community chat works because of you! #gyncsm
Karen North @mzunrs
RT @MiSs_SuE22: A3: A3: I know we're beyond thankful to have been a part of the launch of the National Breast and Cervical Cancer Roundtables! Super grateful @tamikafelder was able to represent @IamCervivor and our community with the opening remarks for @FLOTUS. #GYNCSM #Cervivor
Karen North @mzunrs
RT @MiSs_SuE22: A2: A2: I wish I would have worked on my anxiety sooner or was more aware of some of the feelings I was going through. I am bringing the Taking Care of You theme into 2023 and doing an even better job of what I learned this year. #GYNCSM
Dee Sparacio @womenofteal
RT @StRogista: @gyncsm T5: @gyncsm T5: What I appreciate and find helpful about #gyncsm is connecting with others who care about gynecological cancers and learning from others. #gyncsm
Karen North @mzunrs
RT @MiSs_SuE22: A1.2: A1.2: Our CCAM theme this year was "Take Care of You in 2022." Self-care is a crucial part of our work in the cancer advocacy space. @IamCervivor #GYNCSM #Cervivor
Karen North @mzunrs
RT @MiSs_SuE22: A1: A1: I got organized and I asked for help. That has helped tremendously! I've also made time for meditation and breathing exercises. #GYNCSM
GYN Cancer | #GYNCSM @gyncsm
RT @ucan2020: TIL: TIL: We must continue to be strong, take care of our own health and we all need to work together for the good of gynecologic cancers! Thank you for all you do! #gyncsm
Crissy Terawaki Kawamoto @crispyteriyaki
@womenofteal @UHCancerCenter Thank you, @womenofteal -- and #gyncsm community! If you have any questions about the study, feel free to DM me.
Dee Sparacio @womenofteal
RT @crispyteriyaki: @womenofteal @UHCancerCenter Thank you, @womenofteal -- and #gyncsm community! If you have any questions about the study, feel free to DM me.
Dee Sparacio @womenofteal
RT @gyncsm: Feel free to keep answering tonight's topic questions if you are just joining or reading later :) Just include hashtag #gyncsm in your response tweets.
Elizabeth Hornsey @StRogista
@gyncsm T6: I am staying. Maybe I will consider adding other platforms or podcasting. Will see what the future holds. #gyncsm
NCI Cancer Stats @NCICancerStats
#OvarianCancer represents about 1% of all new cancer diagnoses in the US. An estimated 19,880 women will be diagnosed with the disease in 2022. Visit our Cancer Stat Facts sheet to learn more: https://t.co/HWrp6HOzTG #GynCSM https://t.co/XySMZyXLCk
Christina Lizaso @btrfly12
@StRogista @gyncsm I enjoy podcasts :) #gyncsm
#GynCSM content from Twitter.