#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Christina Lizaso @btrfly12 Hi All - I'm passionate about community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Hi All - I'm passionate about community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
 | Tobey @BRCAinfo Just came by to say hi & support #gyncsm Very appropriate chat tonight ~ unfortunately I will be missing it. Uncle just taken into ICU. Can only communicate via iPad at mercy of hospital staff. Tough times. Covid sucks. Be well everyone 🙏♥️ |
| Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger & co-moderator #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
 | Debra Hallisey @advocatemomdad Hi Deb here from Advocate for Mom and Dad. I'm passionate about patient and caregiver engagement. #gyncsm |
 | IamCervivor @IamCervivor We’re here! #gyncsm |
| Dee Sparacio @womenofteal @advocatemomdad Hi Friends and fellow Jerseyan. Glad you could join us. #gyncsm |
 | Uterine Cancer Awareness Network @ucan2020 #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: The next #GYNCSM tweetchat is tonight, Feb 10th at 8pmET | 7pmCT | 5pmPT (new time). The topic will be Communicating with your Health Care Team and Asking for Supportive Care. https://t.co/oBAaZv51ln https://t.co/gPkMyHQCZz |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
 | Cancer Girl @cancergirl730 @gyncsm Hey everyone! I'm an AYA thyroid cancer survivor & am so happy to join you again tonight. Just here to watch and learn. You ladies are AMAZING! #gyncsm |
| Dee Sparacio @womenofteal @IamCervivor Hi Morgan! Thanks for joining us #gyncsm |
 | Michele E. Collins @Michele_w_1_L Michele from NJ. Celebrating 6 Years NED on Saturday. Stage 2B HGS #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: Hi All - I'm passionate about community engagement and cancer care. I’ll be moderating as @gyncsm today. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal @cancergirl730 @gyncsm Thanks , Glad you could stop by at our earlier hour. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Don't forget to add #gyncsm to each tweet :) So glad you are here. |
| Dee Sparacio @womenofteal @Michele_w_1_L And another Jerseyan. Great to see you Michele. #gyncsm |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
 | OncLive.com @OncLive .@US_FDA Approval Sought for Tisotumab Vedotin in Recurrent or Metastatic Cervical Cancer #gyncsm https://t.co/rc0dvBIsCG |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information. #gyncsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi all. I'm Shereese from Maryland. #gyncsm https://t.co/cKkmqi0LMB |
| Christina Lizaso @btrfly12 @Michele_w_1_L Happy 6th. Glad to have you here :) #gyncsm |
| Dee Sparacio @womenofteal @ShereeseMayMba Great to see you Shereese! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We welcome all those joining as well as those “listening in”. Be sure to tweet #gyncsm so we know you are here. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG |
| Dee Sparacio @womenofteal @AckertKathleen @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi Dr Ackert Glad you could join us tonight! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing Communicating with Your Health Care Team and Asking for Supportive Care. |
| Dee Sparacio @womenofteal RT @gyncsm: We welcome all those joining as well as those “listening in”. Be sure to tweet #gyncsm so we know you are here. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG |
| Sarah Temkin @temkins RT @gyncsm: Tonight on #gyncsm we’ll be discussing Communicating with Your Health Care Team and Asking for Supportive Care. |
 | Meredith GTrinidad, MD @DrMeredithGT Hi! Meredith here, a medical oncologist from 🇵🇭 First time to join a #gyncsm tweetchat! Pleased to e-meet all of you! 😊 |
| GYN Cancer | #GYNCSM @gyncsm We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat sharing Today I Learned (TIL:). #gyncsm |
| Dee Sparacio @womenofteal @DrMeredithGT Welcome! happy to have you join our community. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find the 6 topics we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/oBAaZv51ln |
| Dee Sparacio @womenofteal RT @gyncsm: We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat sharing Today I Learned (TIL:). #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Here comes Topic 1 (T1:)... #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: You can find the 6 topics we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 topics we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/oBAaZv51ln |
| GYN Cancer | #GYNCSM @gyncsm T1: How would you describe what constitutes good communication with your health care team? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: T1: How would you describe what constitutes good communication with your health care team? #gyncsm |
| Cancer Girl @cancergirl730 RT @gyncsm: T1: T1: How would you describe what constitutes good communication with your health care team? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: How would you describe what constitutes good communication with your health care team? #gyncsm |
 | Inspire @InspireIsHealth Hello to all at #gyncsm, John Novack here on behalf of Inspire, listening and learning. |
| Inspire @InspireIsHealth RT @gyncsm: T1: T1: How would you describe what constitutes good communication with your health care team? #gyncsm |
| Dee Sparacio @womenofteal @teaminspire Hi there John! Hope you are doing well. #gyncsm |
| Christina Lizaso @btrfly12 T1: A sign of good health care communication is when I get home from an appointment and feel clearer on things and have some action items. A sign of poor communication is when I am more confused. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Good communication means multi-discipline coordination, collaboration, and decision making to include the patient, innovation, and caregivers. #gyncsm |
| Michele E. Collins @Michele_w_1_L t1: Allowing time for questions & being responsive to questions. Getting results in a timely manner. #gyncsm |
 | Onyinye Balogun MD, MSc @GlobalRadOnc Hello everyone. #Radonc signing in for #gyncsm🙋🏿♀️ |
| Dee Sparacio @womenofteal T1 For me it is when I feel my team knows who I am , responds to my questions and is willing to explains reasons for treating or not treating an issue I may have. And doesn't make me wait to hear results. #gyncsm |
| Christina Lizaso @btrfly12 T1: Feeling heard and seen. Feeling understood. Would be amazing to feel that coordination would happen between different doctors/specialists/pharmacies with burden not all on patient for care coordination. #gyncsm |
 | Kathleen Ackert, DO @AckertKathleen RT @gyncsm: The #gyncsm (GYNecologic Cancer Social Media) chat will get started in a few minutes! You can read about tonight’s chat and preview the topic questions on our #gyncsm blog: https://t.co/oBAaZv51ln https://t.co/rVqqhghGYE |
| Dee Sparacio @womenofteal @GlobalRadOnc Welcome - So glad you are with us tonight! #gyncsm |
| Dee Sparacio @womenofteal Oh coordination . So important. Wish those EMRs communicated with each other. #gyncsm |
| Christina Lizaso @btrfly12 T1: Good communication definitely includes knowing how to follow up and also having agreed upon how results will be shared. I have a doc I like but waiting too long for MRI results impacts my ability to function. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2a: How has communicating with your team changed during your cancer experience? #gyncsm |
 | Gabri.El Vid.Al @VidalRadOnc Good evening folks! #radonc resident. Here to learn from tonight’s discussion. #gyncsm |
| Kathleen Ackert, DO @AckertKathleen @gyncsm From physician perspective, overall goals are explained at a patient centered level, daily goals are discussed with nursing staff, residents have clear idea of plan, and most important the patient feels heard and at the center of it all #gyncsm |
| Dee Sparacio @womenofteal So right need to include caregivers in the communication. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2a: T2a: How has communicating with your team changed during your cancer experience? #gyncsm |
| Cancer Girl @cancergirl730 RT @gyncsm: T2a: T2a: How has communicating with your team changed during your cancer experience? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2a: T2a: How has communicating with your team changed during your cancer experience? #gyncsm |
| Cancer Girl @cancergirl730 RT @womenofteal: So right need to include caregivers in the communication. #gyncsm |
| Dee Sparacio @womenofteal @gabriel_vidal Great to have you join us Dr Vidal. #gyncsm |
| Sarah Temkin @temkins RT @womenofteal: T1 For me it is when I feel my team knows who I am , responds to my questions and is willing to explains reasons for treating or not treating an issue I may have. And doesn't make me wait to hear results. #gyncsm |
| IamCervivor @IamCervivor RT @ShereeseMayMba: T1 Good communication means multi-discipline coordination, collaboration, and decision making to include the patient, innovation, and caregivers. #gyncsm |
| Dee Sparacio @womenofteal RT @AckertKathleen: @gyncsm From physician perspective, overall goals are explained at a patient centered level, daily goals are discussed with nursing staff, residents have clear idea of plan, and most important the patient feels heard and at the center of it all #gyncsm |
| Michele E. Collins @Michele_w_1_L t2: It’s been less frequent. I recently transitioned to the Nurse Practitioner. Feeling a little disconnected. Grateful to be where I am though. #gyncsm |
 | Nita Lee @NitaKarnikLee This is an important goal for us to keep in mind! #gyncsm T1 @btrfly12 thanks for this insight! |
| Dee Sparacio @womenofteal T2 A I learned to not be shy and speak up and ask for things and that helped my team know what I needed help with. #gyncsm |
| Meredith GTrinidad, MD @DrMeredithGT T1: Good communication involves not just listening but also taking nonverbal cues from patients during the conversation. It's also very important for patients to feel comfortable asking questions to their attending and go home with a clear understanding of the situation. #gyncsm |
| Christina Lizaso @btrfly12 T2: Despite being a pretty "empower patient", it took a while after learning of my genetic mutation before I felt like I was getting more active in my care and appointments vs. just trying to take it in and listen. #gyncsm |
| Gabri.El Vid.Al @VidalRadOnc @womenofteal Thank you! A dear friend of mine was recently diagnosed with recurrent endometrial CA. Here to learn from you all on how to best support her through this new chapter of our friendship. #gyncsm |
| Dee Sparacio @womenofteal RT @DrMeredithGT: T1: T1: Good communication involves not just listening but also taking nonverbal cues from patients during the conversation. It's also very important for patients to feel comfortable asking questions to their attending and go home with a clear understanding of the situation. #gyncsm |
| Debra Hallisey @advocatemomdad T1 COVID has added such a layer of complexity to good communication! Everyone is so stretched when you call it's hard to get to the right person and if someone calls back you're repeating your story over and over or clearing up misunderstandings. #gyncsm |
 | Cancer Hope Network @CancerHopeNet An ongoing conversation where both parties feel respected, where patients are comfortable asking questions and making suggestions. |
| Dee Sparacio @womenofteal RT @btrfly12: T2: T2: Despite being a pretty "empower patient", it took a while after learning of my genetic mutation before I felt like I was getting more active in my care and appointments vs. just trying to take it in and listen. #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: T1: T1: A sign of good health care communication is when I get home from an appointment and feel clearer on things and have some action items. A sign of poor communication is when I am more confused. #gyncsm |
| Debra Hallisey @advocatemomdad RT @Michele_w_1_L: t1: t1: Allowing time for questions & being responsive to questions. Getting results in a timely manner. #gyncsm |
| Sarah Temkin @temkins And that patients come to appointments with questions and don't keep their fears or concerns to themselves. #gyncsm |
| Christina Lizaso @btrfly12 @gabriel_vidal @womenofteal How wonderful of you. You can find info to learn more on the #gyncsm resource page as well. https://t.co/LRawOmxMsN |
| Dee Sparacio @womenofteal RT @temkins: And that patients come to appointments with questions and don't keep their fears or concerns to themselves. #gyncsm |
| Christina Lizaso @btrfly12 T2: I think at first you don't know what questions to ask. I think that is when hearing from your doctor about patient organizations and peer support might best help. Many have a "list of questions" and FAQs. Getting that info early can help guide what to ask dr. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2b: Has communication between you and your healthcare team been impacted by the Covid-19 pandemic? #gyncsm |
| IamCervivor @IamCervivor RT @btrfly12: T2: T2: I think at first you don't know what questions to ask. I think that is when hearing from your doctor about patient organizations and peer support might best help. Many have a "list of questions" and FAQs. Getting that info early can help guide what to ask dr. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2b: T2b: Has communication between you and your healthcare team been impacted by the Covid-19 pandemic? #gyncsm |
 | Sarah Cassidy @CassidyFish2 Our @CancerHopeNet survivors often tell me that it's critical they're communicating WITH their team, not just being dictated to (intentionally or unintentionally). Respect for personalities, beliefs and cultures is critical. #gyncsm |
| Dee Sparacio @womenofteal RT @CassidyFish2: Our @CancerHopeNet survivors often tell me that it's critical they're communicating WITH their team, not just being dictated to (intentionally or unintentionally). Respect for personalities, beliefs and cultures is critical. #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: So right need to include caregivers in the communication. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba That said, I also feel that innovation played a big role in how carefully my care was coordinated, to include my input. The fact that all patients aren't tech-savvy was not lost on me. I wondered, if I hadn't been a pro in this field, would navigation have been as easy. #gyncsm https://t.co/xH1F8HfjxA |
| Christina Lizaso @btrfly12 T2: I haven't tried any telehealth appointments yet, but I hope they are here to stay where they make sense. i.e. that insurance will keep covering... #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereeseMayMba: That said, I also feel that innovation played a big role in how carefully my care was coordinated, to include my input. The fact that all patients aren't tech-savvy was not lost on me. I wondered, if I hadn't been a pro in this field, would navigation have been as easy. #gyncsm https://t.co/xH1F8HfjxA |
| Michele E. Collins @Michele_w_1_L t2b: I don’t think so in my situation as I’m on yearly surveillance. #gyncsm |
| Debra Hallisey @advocatemomdad RT @DrMeredithGT: T1: T1: Good communication involves not just listening but also taking nonverbal cues from patients during the conversation. It's also very important for patients to feel comfortable asking questions to their attending and go home with a clear understanding of the situation. #gyncsm |
| Christina Lizaso @btrfly12 RT @CassidyFish2: Our @CancerHopeNet survivors often tell me that it's critical they're communicating WITH their team, not just being dictated to (intentionally or unintentionally). Respect for personalities, beliefs and cultures is critical. #gyncsm |
| Dee Sparacio @womenofteal RT @ShereeseMayMba: That said, I also feel that innovation played a big role in how carefully my care was coordinated, to include my input. The fact that all patients aren't tech-savvy was not lost on me. I wondered, if I hadn't been a pro in this field, would navigation have been as easy. #gyncsm https://t.co/xH1F8HfjxA |
| Debra Hallisey @advocatemomdad RT @CassidyFish2: Our @CancerHopeNet survivors often tell me that it's critical they're communicating WITH their team, not just being dictated to (intentionally or unintentionally). Respect for personalities, beliefs and cultures is critical. #gyncsm |
| Cancer Girl @cancergirl730 @btrfly12 T2. I can't get telehealth appts because I'm a T1D - which also makes me high risk. So stupid, but I have to go in Every. Single. Time. #GynCSM |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm : |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm - |
| Dee Sparacio @womenofteal T2b I am not in active treatment so I only see my gyn onc once per year. But my communication with my dermatologist was harder and appt was postponed for 6 months. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: Have you discussed clinical trials with your provider? How was that information communicated? Did you bring up trials or did your provider? #gyncsm |
| Sarah Temkin @temkins RT @CassidyFish2: Our @CancerHopeNet survivors often tell me that it's critical they're communicating WITH their team, not just being dictated to (intentionally or unintentionally). Respect for personalities, beliefs and cultures is critical. #gyncsm |
| Cancer Girl @cancergirl730 RT @gyncsm: T3: T3: Have you discussed clinical trials with your provider? How was that information communicated? Did you bring up trials or did your provider? #gyncsm |
| Dee Sparacio @womenofteal @cancergirl730 @btrfly12 I could see that would certainly add to your stress level. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm - |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: Have you discussed clinical trials with your provider? How was that information communicated? Did you bring up trials or did your provider? #gyncsm |
| Christina Lizaso @btrfly12 T2b: The timing on my scans and appointments worked out pretty well between case surges. The only delay I had was my and my daughter's annual skin checks. #gyncsm |
| Sarah Cassidy @CassidyFish2 @ShereeseMayMba And even as a pro in this field, there are landmines. And it's somehow different when it's personal. (Glad your experience has been so psoitive!) #gyncsm |
| Michele E. Collins @Michele_w_1_L t3: I haven’t needed further treatment after frontline🤞so we have not discussed clinical trials. #gyncsm |
| Sarah Temkin @temkins Physician recommendation is the most important factor in patients decisions to enroll onto a #clinicaltrial. If your doctor doesn't discuss this option consider asking and/or getting a second opinion. |
| Christina Lizaso @btrfly12 T3: My ob/gyn discussed one patient registry with me. Trials are not a regular part of any of my appointment discussions to-date. #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 RT @gyncsm: T2b: T2b: Has communication between you and your healthcare team been impacted by the Covid-19 pandemic? #gyncsm |
| Sarah Temkin @temkins T3 Physician recommendation is the most important factor in patients decisions to enroll onto a #clinicaltrial. If your doctor doesn't discuss this option consider asking and/or getting a second opinion. #gyncsm |
| Christina Lizaso @btrfly12 @CassidyFish2 @ShereeseMayMba I really do find it to be different with me vs. mom or other family or anyone else. #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: T3 Physician recommendation is the most important factor in patients decisions to enroll onto a #clinicaltrial. If your doctor doesn't discuss this option consider asking and/or getting a second opinion. #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: T3 Physician recommendation is the most important factor in patients decisions to enroll onto a #clinicaltrial. If your doctor doesn't discuss this option consider asking and/or getting a second opinion. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @AckertKathleen: @gyncsm From physician perspective, overall goals are explained at a patient centered level, daily goals are discussed with nursing staff, residents have clear idea of plan, and most important the patient feels heard and at the center of it all #gyncsm |
| Dee Sparacio @womenofteal T3 At initial dx and at recurrence, I was offered a clinical trial by my gyn onc. I chose to enroll in one on initial dx and turned down the other. I wonder if being treated at an NCI center / Academic/ research center made my experience different than others. #gyncsm |
| Meredith GTrinidad, MD @DrMeredithGT T2b: I think that telemedicine now plays a bigger role in patient consultations, but where I come from it's not readily accessible to all. And now, you have to be extra observant with patients' eye expressions since that's all you can see. 😅 #gyncsm |
| Cancer Hope Network @CancerHopeNet Our #survivor and #caregiver volunteers can help provide that peer support. #gyncsm |
| Christina Lizaso @btrfly12 T3: It is tough to squeeze lots of stuff into appointments and small communication outside of appointments. Clinical trials and supportive care and side effects - so much beyond treatment to ask about and plan out. #gyncsm |
| Cancer Girl @cancergirl730 RT @CancerHopeNet: Our #survivor and #caregiver volunteers can help provide that peer support. #gyncsm |
| Dee Sparacio @womenofteal RT @CancerHopeNet: Our #survivor and #caregiver volunteers can help provide that peer support. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: What would you suggest to your health care team or health care system that would improve communication? What would you suggest to patients to improve communication? #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: Our #survivor and #caregiver volunteers can help provide that peer support. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: What would you suggest to your health care team or health care system that would improve communication? What would you suggest to patients to improve communication? #gyncsm |
| Dee Sparacio @womenofteal T3 @cure_magazine shared some insight into Why it is never too soon to ask about trials . https://t.co/8gzHxMqA8u #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: What would you suggest to your health care team or health care system that would improve communication? What would you suggest to patients to improve communication? #gyncsm |
| IamCervivor @IamCervivor RT @womenofteal: T3 @cure_magazine shared some insight into Why it is never too soon to ask about trials . https://t.co/8gzHxMqA8u #gyncsm |
| Cancer Hope Network @CancerHopeNet @womenofteal Too often, where you're treated can make a difference. Services like @Clara_Health can help people find #clinicaltrial options their teams may not be aware of. And connecting with a volunteer (like you, Dee!) who's been through a trial may make it less daunting. #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: @womenofteal Too often, where you're treated can make a difference. Services like @Clara_Health can help people find #clinicaltrial options their teams may not be aware of. And connecting with a volunteer (like you, Dee!) who's been through a trial may make it less daunting. #gyncsm |
 | Dr. Heidi Donovan @HeidiSDonovan RT @btrfly12: T1: T1: Feeling heard and seen. Feeling understood. Would be amazing to feel that coordination would happen between different doctors/specialists/pharmacies with burden not all on patient for care coordination. #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: T4: T4: What would you suggest to your health care team or health care system that would improve communication? What would you suggest to patients to improve communication? #gyncsm |
| Dr. Heidi Donovan @HeidiSDonovan RT @btrfly12: T2: T2: I think at first you don't know what questions to ask. I think that is when hearing from your doctor about patient organizations and peer support might best help. Many have a "list of questions" and FAQs. Getting that info early can help guide what to ask dr. #gyncsm |
| Michele E. Collins @Michele_w_1_L t4: to improve communication I would recommend that there is frequent communication between the gyn onc & med onc. I would recommend that doctors not be intimidated by patients who like to ask questions. #gyncsm |
| Sarah Temkin @temkins RT @womenofteal: T3 @cure_magazine shared some insight into Why it is never too soon to ask about trials . https://t.co/8gzHxMqA8u #gyncsm |
| Christina Lizaso @btrfly12 T4: I'll raise my hand and say I don't always "do my homework" and go into a medical encounter with clear goals about what I want to discuss or walk away with. I need to block some time between appts to focus. #gyncsm |
| Christina Lizaso @btrfly12 RT @Michele_w_1_L: t4: t4: to improve communication I would recommend that there is frequent communication between the gyn onc & med onc. I would recommend that doctors not be intimidated by patients who like to ask questions. #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t4: t4: to improve communication I would recommend that there is frequent communication between the gyn onc & med onc. I would recommend that doctors not be intimidated by patients who like to ask questions. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T4. Timely updates to patient records and a patient survey immediately after a visit. I'd also ask that teams not see innovation as the enemy of coordination. #gyncsm |
| Dee Sparacio @womenofteal T4 Pet peeve of mine: Please don't make the patient/caregiver go through 4 prompts on the phone to get to a person or leave a message. #gyncsm |
| Debra Hallisey @advocatemomdad RT @CancerHopeNet: Our #survivor and #caregiver volunteers can help provide that peer support. #gyncsm |
 | Christine (Cissy) White @healWRITEnow #gyncsm I’m late as well but glad to be here. Cissy from MA. |
| Dee Sparacio @womenofteal @acserrao76 Hi Cristina - Happy to have you join us. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm For those just joining, we're on Topic 4 - sharing what could make communication better on all sides :) #gyncsm |
| Dee Sparacio @womenofteal RT @ShereeseMayMba: T4. Timely updates to patient records and a patient survey immediately after a visit. I'd also ask that teams not see innovation as the enemy of coordination. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 Pet peeve of mine: T4 Pet peeve of mine: Please don't make the patient/caregiver go through 4 prompts on the phone to get to a person or leave a message. #gyncsm |
| Dee Sparacio @womenofteal @healWRITEnow HI Cissy !!! Happy to have you join any time. #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereeseMayMba: T4. Timely updates to patient records and a patient survey immediately after a visit. I'd also ask that teams not see innovation as the enemy of coordination. #gyncsm |
| Debra Hallisey @advocatemomdad RT @Michele_w_1_L: t4: t4: to improve communication I would recommend that there is frequent communication between the gyn onc & med onc. I would recommend that doctors not be intimidated by patients who like to ask questions. #gyncsm |
| Dee Sparacio @womenofteal T4 And health care team members ask at the end if the patient / caregiver has any questions or what they should do if they have a question after they leave. #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @gyncsm: For those just joining, we're on Topic 4 - sharing what could make communication better on all sides :) #gyncsm |
| Meredith GTrinidad, MD @DrMeredithGT T4: I think spacing out appointments has helped me give enough time for each patient consult so that I can still answer questions. I also tell my patients to list down things they forgot to ask and tell me on the next visit. #gyncsm |
| Sarah Temkin @temkins Agree! If your doctor works for a hospital they are unlikely to have control over this. 🤯 Let the hospital system, patient care representative know. #gyncsm. |
| Dee Sparacio @womenofteal Excellent advice for the patient. #gyncsm |
| Christina Lizaso @btrfly12 T4: I think framing the appointment around the patient's goals is always a good start. Helping patients define those and really understanding how those goals impact treatment decisions and needs. #gyncsm |
| Cancer Hope Network @CancerHopeNet @DrMeredithGT What a thoughtful, practical way to meet their needs - and to demonstrate your openness. #gyncsm |
| Christina Lizaso @btrfly12 RT @acserrao76: |
| GYN Cancer | #GYNCSM @gyncsm T5: What is the best advice you have received to communicate your need for support - emotional or physical - with your health care team? #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: So right need to include caregivers in the communication. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T5: T5: What is the best advice you have received to communicate your need for support - emotional or physical - with your health care team? #gyncsm |
| Inspire @InspireIsHealth RT @gyncsm: T5: T5: What is the best advice you have received to communicate your need for support - emotional or physical - with your health care team? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: What is the best advice you have received to communicate your need for support - emotional or physical - with your health care team? #gyncsm |
| Debra Hallisey @advocatemomdad RT @acserrao76: |
| Cancer Girl @cancergirl730 RT @gyncsm: T5: T5: What is the best advice you have received to communicate your need for support - emotional or physical - with your health care team? #gyncsm |
 | Azeen Sadeghian, MD, FAAD @SkinChickMD RT @ShereeseMayMba: T1 Good communication means multi-discipline coordination, collaboration, and decision making to include the patient, innovation, and caregivers. #gyncsm |
| Christina Lizaso @btrfly12 T5: I really appreciate those practices that make mental wellness and other topics a part of the routine - like a mental health checklist as part of intake. So much for all to remember. Having prompts as part of process I think helps get to those quality of life items. #gyncsm |
| Meredith GTrinidad, MD @DrMeredithGT T4: Also, I appreciate it when patients ask me about what they find on Google rather than acting on these info directly and possibly getting into harm's way. More and more patients are on the Internet and doctors should be prepared to handle these "external" info. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm : |
| Michele E. Collins @Michele_w_1_L t5: That’s a tough one. I think in life, I’ve always been a fighter. And I also want to understand things. I’ve always advocated for myself and I think the best advice is to continue to always advocate for yourself. #gyncsm |
| Christina Lizaso @btrfly12 RT @DrMeredithGT: T4: T4: Also, I appreciate it when patients ask me about what they find on Google rather than acting on these info directly and possibly getting into harm's way. More and more patients are on the Internet and doctors should be prepared to handle these "external" info. #gyncsm |
| Christina Lizaso @btrfly12 RT @Michele_w_1_L: t5: t5: That’s a tough one. I think in life, I’ve always been a fighter. And I also want to understand things. I’ve always advocated for myself and I think the best advice is to continue to always advocate for yourself. #gyncsm |
| Nita Lee @NitaKarnikLee @gyncsm Listening and allowing pauses ! #gyncsm |
| Christina Lizaso @btrfly12 THIS! :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Last topic... T6: How do you prepare for visits with your health care team? #gyncsm |
| Debra Hallisey @advocatemomdad RT @btrfly12: T5: T5: I really appreciate those practices that make mental wellness and other topics a part of the routine - like a mental health checklist as part of intake. So much for all to remember. Having prompts as part of process I think helps get to those quality of life items. #gyncsm |
| Cancer Girl @cancergirl730 RT @gyncsm: Last topic... T6: How do you prepare for visits with your health care team? #gyncsm |
| Michele E. Collins @Michele_w_1_L t6: I keep a running “note” in my phone for my next appointment. I list any questions that I would like answered or any issues I’ve been having so I don’t forget to mention. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T6 I keep a medical journal. My prep includes writing down questions, asking about meds, and general health questions if I've noted any adverse reactions. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm there is a TON of room for improved communication for #clinicaltrial participants - |
| Christina Lizaso @btrfly12 RT @acserrao76: |
| Sarah Cassidy @CassidyFish2 Questions! Questions! Lists of things I need to remember to ask. #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereeseMayMba: T6 I keep a medical journal. My prep includes writing down questions, asking about meds, and general health questions if I've noted any adverse reactions. #gyncsm |
| Christina Lizaso @btrfly12 RT @Michele_w_1_L: t6: t6: I keep a running “note” in my phone for my next appointment. I list any questions that I would like answered or any issues I’ve been having so I don’t forget to mention. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T5: T5: I really appreciate those practices that make mental wellness and other topics a part of the routine - like a mental health checklist as part of intake. So much for all to remember. Having prompts as part of process I think helps get to those quality of life items. #gyncsm |
| Dee Sparacio @womenofteal RT @DrMeredithGT: T4: T4: Also, I appreciate it when patients ask me about what they find on Google rather than acting on these info directly and possibly getting into harm's way. More and more patients are on the Internet and doctors should be prepared to handle these "external" info. #gyncsm |
| Dee Sparacio @womenofteal T5: Keep a notebook and write down questions in between appointments so you don't forget them. Ask who is on your team and write their info. My little notebook was filled by the time I finished 9 cycles. Ask for copies of all test results. which could lead to more ?'s. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: #gyncsm there is a TON of room for improved communication for #clinicaltrial participants - |
| Dee Sparacio @womenofteal RT @NitaKarnikLee: @gyncsm Listening and allowing pauses ! #gyncsm |
| Christina Lizaso @btrfly12 T6: My mom had a giant binder and to this day keeps an updated "one-pager" on herself listing history, current stuff and med's. Not for everyone, but even scaled down such is helpful. If you aren't the organization type - find a friend who loves to organize :) #gyncsm |
| IamCervivor @IamCervivor T5: #CervivorAmbassador Becky Wallace shared her advice in this blog post. https://t.co/5qUVsCuQvX #gyncsm |
| Debra Hallisey @advocatemomdad RT @womenofteal: T5: T5: Keep a notebook and write down questions in between appointments so you don't forget them. Ask who is on your team and write their info. My little notebook was filled by the time I finished 9 cycles. Ask for copies of all test results. which could lead to more ?'s. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: #gyncsm there is a TON of room for improved communication for #clinicaltrial participants - |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba That went by quick. Thanks for this lovely community. Have a great week everyone. #gyncsm https://t.co/VxyXLawb0t |
| Cancer Girl @cancergirl730 RT @ShereeseMayMba: That went by quick. Thanks for this lovely community. Have a great week everyone. #gyncsm https://t.co/VxyXLawb0t |
| GYN Cancer | #GYNCSM @gyncsm We use the last minutes of the chat to wrap up and share closing thoughts. What did you learn or were you reminded of during this chat? You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| Dee Sparacio @womenofteal I do the same thing . I have a one page - size 10 font I carry in my wallet. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We use the last minutes of the chat to wrap up and share closing thoughts. What did you learn or were you reminded of during this chat? You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| Michele E. Collins @Michele_w_1_L til: How doctors have been impacted by COVID & how it’s been more difficult to “read” patients & make sure they are heard. #gyncsm |
| Dee Sparacio @womenofteal RT @acserrao76: |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: til: til: How doctors have been impacted by COVID & how it’s been more difficult to “read” patients & make sure they are heard. #gyncsm |
| Christina Lizaso @btrfly12 Appreciate so much the healthcare professionals who listened along tonight. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Appreciate so much the healthcare professionals who listened along tonight. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T3 @cure_magazine shared some insight into Why it is never too soon to ask about trials . https://t.co/8gzHxMqA8u #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to all for joining our first chat of 2021. We look forward to seeing you at the next #gyncsm chat on Wed, March 10, 2021 at 8pmET when we’ll discuss “Disparities in Gyn Cancer Diagnosis and Treatment”. |
| Inspire @InspireIsHealth RT @gyncsm: Last topic... T6: How do you prepare for visits with your health care team? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Just joining #gyncsm? Sorry if you missed us due to our changing the chat time. #gyncsm will now be held at 8pmET | 7pmCT | 5pmPT. Look for the chat recap and resource links to be posted on our blog shortly https://t.co/oAfi7Me49e |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Wishing wellness and safety for all. |
| Dee Sparacio @womenofteal TIL that the need to communicate effectively between patients and their team is the same around the world . Thanks to our international participants tonight! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Thanks to all for joining our first chat of 2021. We look forward to seeing you at the next #gyncsm chat on Wed, March 10, 2021 at 8pmET when we’ll discuss “Disparities in Gyn Cancer Diagnosis and Treatment”. |
| Dee Sparacio @womenofteal RT @gyncsm: Just joining #gyncsm? Sorry if you missed us due to our changing the chat time. #gyncsm will now be held at 8pmET | 7pmCT | 5pmPT. Look for the chat recap and resource links to be posted on our blog shortly https://t.co/oAfi7Me49e |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Wishing wellness and safety for all. |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm - |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm - |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| Dee Sparacio @womenofteal Stay well Teal Sisters, healthcare providers and caregivers. Till next month.... #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm |
| Meredith GTrinidad, MD @DrMeredithGT TIL 🙌 Good communication between the patient and the healthcare team is one of the keys to effective care delivery and patient satisfaction. It's a crucial area that should be ✨actively✨ worked on by all stakeholders. #gyncsm |
| Dee Sparacio @womenofteal RT @DrMeredithGT: TIL 🙌 Good communication between the patient and the healthcare team is one of the keys to effective care delivery and patient satisfaction. It's a crucial area that should be ✨actively✨ worked on by all stakeholders. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm |
| Christina Lizaso @btrfly12 RT @DrMeredithGT: TIL 🙌 Good communication between the patient and the healthcare team is one of the keys to effective care delivery and patient satisfaction. It's a crucial area that should be ✨actively✨ worked on by all stakeholders. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: Thanks to all for joining our first chat of 2021. We look forward to seeing you at the next #gyncsm chat on Wed, March 10, 2021 at 8pmET when we’ll discuss “Disparities in Gyn Cancer Diagnosis and Treatment”. |
| Dee Sparacio @womenofteal RT @gyncsm: #gyncsm |
| Dee Sparacio @womenofteal RT @acserrao76: |
| Nita Lee @NitaKarnikLee Well said! #gyncsm @DrMeredithGT very important goal! |
| Christina Lizaso @btrfly12 @acserrao76 Have you participated in #Dazzle4Rare? It is a rare disease week in August. Great campaign. We'll be sharing #gyncsm information on Feb 28th as most female reproductive cancers are classified as rare disease. |
| Christina Lizaso @btrfly12 #gyncsm |
| Dee Sparacio @womenofteal Looking for the #gyncsm chat ? Sorry if you missed us due to our changing the chat time. #gyncsm will now be held at 8pmET | 7pmCT | 5pmPT. Look for the chat recap and resource links to be posted on our blog shortly https://t.co/5H9knoU2YH |
| Meredith GTrinidad, MD @DrMeredithGT @CancerHopeNet It's equally fulfilling to have patients leave the clinic saying they appreciated the discussion & understood. Always hard to discuss cancer, but when I think of how much harder it is for patients to listen about that cancer, the least I can do is to help them process it. #gyncsm |
| Dee Sparacio @womenofteal RT @DrMeredithGT: @CancerHopeNet It's equally fulfilling to have patients leave the clinic saying they appreciated the discussion & understood. Always hard to discuss cancer, but when I think of how much harder it is for patients to listen about that cancer, the least I can do is to help them process it. #gyncsm |
| Meredith GTrinidad, MD @DrMeredithGT @womenofteal That went by fast! What an insightful hour! Looking forward to the next. 🙌 #gyncsm |
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