#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm |
 | Georgia @_GeorgiaHurst RT @gyncsm: Pls Join & Share: Pls Join & Share: Save the Date: #gyncsm Chat on #Immunotherapy Wed March 14, 2018 9pm ET with Guests @CSHinrichsMD @mandmsportsmom @SurvivorSueWDC https://t.co/roA5yneeNa |
| GYN Cancer | #GYNCSM @gyncsm We start out with 10 min of intro's - Please take a moment to introduce yourself. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We start out with 10 min of intro's - Please take a moment to introduce yourself. #gyncsm |
 | Robin Martinez @RobinSmrtPtient Hi, everyone, Robin inviting you all to Smart Patients for further discussions on immuno-oncology in #gyncsm |
 | Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham Hello #gyncsm group. I'm MJ Markham - gynecologic medical oncologist @UFHealthCancer in FL. |
| Dee Sparacio @womenofteal Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger, author & co-moderator #gyncsm |
| Dee Sparacio @womenofteal @RobinSmrtPtient Hi Robin! #gyncsm |
| Dee Sparacio @womenofteal @DrMarkham @UFHealthCancer Waving Hello Merry ! #gyncsm |
 | Erica Bednar @EMBOSU Hi friends! I'm Erica, Genetic Counselor at @MDAndersonNews focusing on hereditary gynecologic cancers -- excited to learn more about immunotherapy this evening! #gyncsm #endcancer #BRCA #Lynchsyndrome #gencsm https://t.co/ryFsAQBvL7 |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham @womenofteal Hello Dee! #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Pls continue intro's and welcomes - we'll start in w/ the "ground rules" :) #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU @MDAndersonNews So glad you are joining us tonight Erica. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy #gyncsm |
| Dee Sparacio @womenofteal Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm |
| Dee Sparacio @womenofteal Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal information #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm @SurvivorSueWDC Hi Sue - Be sure to put #gyncsm in your tweet so others can follow along. |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm https://t.co/yObRQ7OrMd |
 | Amanda Crowell Itliong @MIShouldTalk @gyncsm Hi! I’m Amanda, living with ovarian cancer 4th time in 9.5 years, currently in MEK inhibitor clinical trial. Had a crappy day at the GynOnc. Excited to learn from y’all! #gyncsm |
| Georgia @_GeorgiaHurst @gyncsm Good evening, everyone. I’m a Lynch syndrome previvor and am interested in immunotherapy because it seems to be highly effective in those with Ls related cancers. Want to learn the latest...#gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience. |
 | Lynda Banzi @lbanzi Hello #gyncsm. Lynda in MA #hcom student & affected family member. |
| Dee Sparacio @womenofteal @SurvivorSueWDC So glad you are joining us tonight and congratulations on 5 years since your rec'd your TIL cells. #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk @gyncsm So happy you are joining us #gyncsm |
 | NCI Cancer Stats @NCICancerStats Check out our map story on #CervicalCancer incidence, mortality, and screening by state: https://t.co/pOp8iT2WBk #GynCSM https://t.co/UZJHqWgwU7 |
| GYN Cancer | #GYNCSM @gyncsm We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm |
| Dee Sparacio @womenofteal @IAmGeorgiaHurst @gyncsm Hello Georgia my friend. Thanks for joining us #gyncsm |
| Dee Sparacio @womenofteal #gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest |
| GYN Cancer | #GYNCSM @gyncsm Tonight we will discuss Immunotherapy. #gyncsm |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and RT'd about this chat |
| GYN Cancer | #GYNCSM @gyncsm Immunotherapy is “A type of therapy that uses substances to stimulate or suppress the immune system to help the body fight cancer, infection, and other diseases.” via @theNCI #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight we will discuss Immunotherapy. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Immunotherapy is “A type of therapy that uses substances to stimulate or suppress the immune system to help the body fight cancer, infection, and other diseases.” via @theNCI #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We're pleased to welcome to #gyncsm NIH researcher @CSHinrichsMD and patients Aricca Wallace @mandmsportsmom and Sue Scott @SurvivorSueWDC #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We're pleased to welcome to #gyncsm NIH researcher @CSHinrichsMD and patients Aricca Wallace @mandmsportsmom and Sue Scott @SurvivorSueWDC #gyncsm |
| Erica Bednar @EMBOSU RT @gyncsm: Immunotherapy is “A type of therapy that uses substances to stimulate or suppress the immune system to help the body fight cancer, infection, and other diseases.” via @theNCI #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @gyncsm @CSHinrichsMD @mandmsportsmom @SurvivorSueWDC #gyncsm https://t.co/Lh7HR0e7IZ |
| GYN Cancer | #GYNCSM @gyncsm You can find links to read more about our guests, along with a listing of all the #gyncsm topic questions that will be coming up, here: https://t.co/2ut6pkfuxF #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As we do each month, we'll have an open discussion with participants responding from their unique perspective. We'll also direct some questions specifically to our guests. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As we do each month, we'll have an open discussion with participants responding from their unique perspective. We'll also direct some questions specifically to our guests. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: Immunotherapy is “A type of therapy that uses substances to stimulate or suppress the immune system to help the body fight cancer, infection, and other diseases.” via @theNCI #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: You can find links to read more about our guests, along with a listing of all the #gyncsm topic questions that will be coming up, here: https://t.co/2ut6pkfuxF #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello all. I'm Shereese in Maryland. What a day! #gyncsm https://t.co/WPD3r91Byg |
| Georgia @_GeorgiaHurst RT @gyncsm: Immunotherapy is “A type of therapy that uses substances to stimulate or suppress the immune system to help the body fight cancer, infection, and other diseases.” via @theNCI #gyncsm |
| Dee Sparacio @womenofteal @lbanzi Hi again Lynda! #gyncsm |
| Dee Sparacio @womenofteal @ShereesePubHlth We do appreciate you joining us. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topics coming right up. Twitter is running slow for me today. Be sure to include the hashtag with the # next to the letters in your comments :) " #gyncsm " |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: As we do each month, we'll have an open discussion with participants responding from their unique perspective. We'll also direct some questions specifically to our guests. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Topics coming right up. Twitter is running slow for me today. Be sure to include the hashtag with the # next to the letters in your comments :) " #gyncsm " |
| GYN Cancer | #GYNCSM @gyncsm T1A: What is immunotherapy? How is it different from other gyn cancer treatments (surgery, chemo, radiation)? #gyncsm |
 | Inspire @InspireIsHealth RT @gyncsm: Immunotherapy is “A type of therapy that uses substances to stimulate or suppress the immune system to help the body fight cancer, infection, and other diseases.” via @theNCI #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1A: T1A: What is immunotherapy? How is it different from other gyn cancer treatments (surgery, chemo, radiation)? #gyncsm |
 | TalkAboutHealth @talkabouthealth How is uterine cancer diagnosed?@healthandcaner https://t.co/PhW8BS3Ngd #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm https://t.co/0rBk5KlvOU |
 | aricca wallace @mandmsportsmom T1A...After 18 rounds of chemo and 32 rounds of radiation...immunotherapy was a God send! #gyncsm |
| Robin Martinez @RobinSmrtPtient T1: Immunotherapy stimulates immune response or modifies it so that immune cells can recognize and kill cancer cells. #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: T1: T1: Immunotherapy stimulates immune response or modifies it so that immune cells can recognize and kill cancer cells. #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: T1A...After 18 rounds of chemo and 32 rounds of radiation...immunotherapy was a God send! #gyncsm |
| Georgia @_GeorgiaHurst RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Christian Hinrichs @CSHinrichsMD @gyncsm @mandmsportsmom @SurvivorSueWDC Christian Hinrichs. Cancer doctor and cancer scientist. I specialize in T-cell-based cancer treatments. Main focus is cancers caused by HPV. #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm @mandmsportsmom @SurvivorSueWDC Christian Hinrichs. Cancer doctor and cancer scientist. I specialize in T-cell-based cancer treatments. Main focus is cancers caused by HPV. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Unlike other treatments, immunotherapy uses the body's own immune system to help fight the disease #gyncsm https://t.co/tD6yIJ9u8F |
| Christian Hinrichs @CSHinrichsMD @gyncsm T1A: Immunotherapy is a type of treatment that uses the patient’s own immune system to fight the cancer. The immunotherapies that we are discussing today are based on T cells, a type of immune cell that specializes in killing abnormal cells (1/5) #gyncsm |
| Christina Lizaso @btrfly12 T1: So immunotherapy is helping your own body fight the cancer vs. sending in cell killing chemicals or radiation. #gyncsm |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: T1 Unlike other treatments, immunotherapy uses the body's own immune system to help fight the disease #gyncsm https://t.co/tD6yIJ9u8F |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham RT @RobinSmrtPtient: T1: T1: Immunotherapy stimulates immune response or modifies it so that immune cells can recognize and kill cancer cells. #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: Immunotherapy is a type of treatment that uses the patient’s own immune system to fight the cancer. The immunotherapies that we are discussing today are based on T cells, a type of immune cell that specializes in killing abnormal cells (1/5) #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T1A: There are two types of immunotherapy that have received a lot of attention lately. One is checkpoint inhibitors. These drugs block inhibitory signals sent to T cells by other cells. This is “releases the brakes” so the T cells can attack the cancer cells. (2/5) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: There are two types of immunotherapy that have received a lot of attention lately. One is checkpoint inhibitors. These drugs block inhibitory signals sent to T cells by other cells. This is “releases the brakes” so the T cells can attack the cancer cells. (2/5) #gyncsm |
| aricca wallace @mandmsportsmom T1A...Your white blood cells are trained to attack your t cells.teach your immune system that the cancer cells are foreign & attack #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: There are two types of immunotherapy that have received a lot of attention lately. One is checkpoint inhibitors. These drugs block inhibitory signals sent to T cells by other cells. This is “releases the brakes” so the T cells can attack the cancer cells. (2/5) #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T1A: The other is adoptive T-cell therapy (ACT). For this, the patient’s T cells are grown in the lab and then infused back to the patient to treat the cancer. This is what @mandmsportsmom and @SurvivorSueWDC received. (3/5) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @mandmsportsmom: T1A...Your white blood cells are trained to attack your t cells.teach your immune system that the cancer cells are foreign & attack #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: The other is adoptive T-cell therapy (ACT). For this, the patient’s T cells are grown in the lab and then infused back to the patient to treat the cancer. This is what @mandmsportsmom and @SurvivorSueWDC received. (3/5) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If known, what type of immunotherapy was @CSHinrichsMD trial for HPV-related gyn cancers? T-cell related? #gyncsm |
| Erica Bednar @EMBOSU T1A: immunotherapy works with your immune system to target cancer cells. For gyn cancers, this type of treatment is primarily being studied through clinical trials and our knowledge is advancing rapidly #gyncsm https://t.co/yEcrxfMhKT |
| GYN Cancer | #GYNCSM @gyncsm RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: There are two types of immunotherapy that have received a lot of attention lately. One is checkpoint inhibitors. These drugs block inhibitory signals sent to T cells by other cells. This is “releases the brakes” so the T cells can attack the cancer cells. (2/5) #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: T1A: T1A: immunotherapy works with your immune system to target cancer cells. For gyn cancers, this type of treatment is primarily being studied through clinical trials and our knowledge is advancing rapidly #gyncsm https://t.co/yEcrxfMhKT |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: If known, what type of immunotherapy was @CSHinrichsMD trial for HPV-related gyn cancers? T-cell related? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T1B: @CSHinrichsMD - What did your immunotherapy trial for HPV-related gyn cancers entail? #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T1A: The T cells for ACT can be grown from a tumor that is removed by surgery. These are called tumor-infiltrating T cells (TIL). (4/5) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: The other is adoptive T-cell therapy (ACT). For this, the patient’s T cells are grown in the lab and then infused back to the patient to treat the cancer. This is what @mandmsportsmom and @SurvivorSueWDC received. (3/5) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: The T cells for ACT can be grown from a tumor that is removed by surgery. These are called tumor-infiltrating T cells (TIL). (4/5) #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T1A: T cells from ACT can also be grown from blood and genetically engineered to have receptors that let them target the tumor. One type of receptor is called a CAR. Another is called a TCR. (5/5) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T1B: T1B: @CSHinrichsMD - What did your immunotherapy trial for HPV-related gyn cancers entail? #gyncsm |
 | Grey Genetics @GreyGenetics arriving late but listening in. Private practice telehealth genetic counselor with a focus on cancer genetics. #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T2B: Our clinical trials are for cancers caused by HPV including cervical cancer, vulvar cancer, and vaginal cancer. The trial that Sue and Aricca participated used TIL. (1/2) #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T2B: Our current clinical trials use T cells that are engineered to have TCRs. This does not require surgery, and it seems to more consistently and potently target the cancers (1/2) #gyncsm |
| Christina Lizaso @btrfly12 Resource | @FacingOurRisk new info section w/ an overview on #immunotherapy for #cancer treatment. https://t.co/GwzMNCJ018 #gyncsm |
| Dee Sparacio @womenofteal @GreyGenetics Thank you for letting us know you are listening in. #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T2B: @gyncsm T2B: Our clinical trials are for cancers caused by HPV including cervical cancer, vulvar cancer, and vaginal cancer. The trial that Sue and Aricca participated used TIL. (1/2) #gyncsm |
| Christina Lizaso @btrfly12 RT @CSHinrichsMD: @gyncsm T1A: @gyncsm T1A: Immunotherapy is a type of treatment that uses the patient’s own immune system to fight the cancer. The immunotherapies that we are discussing today are based on T cells, a type of immune cell that specializes in killing abnormal cells (1/5) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T2B: @gyncsm T2B: Our current clinical trials use T cells that are engineered to have TCRs. This does not require surgery, and it seems to more consistently and potently target the cancers (1/2) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: For the patient, what is the immunotherapy treatment experience like? What are the common side effects with immunotherapy? #gyncsm |
| Christina Lizaso @btrfly12 RT @CSHinrichsMD: @gyncsm T2B: @gyncsm T2B: Our clinical trials are for cancers caused by HPV including cervical cancer, vulvar cancer, and vaginal cancer. The trial that Sue and Aricca participated used TIL. (1/2) #gyncsm |
 | Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T1B: T1B: @CSHinrichsMD - What did your immunotherapy trial for HPV-related gyn cancers entail? #gyncsm |
| Christina Lizaso @btrfly12 RT @CSHinrichsMD: @gyncsm T2B: @gyncsm T2B: Our current clinical trials use T cells that are engineered to have TCRs. This does not require surgery, and it seems to more consistently and potently target the cancers (1/2) #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Resource | @FacingOurRisk new info section w/ an overview on #immunotherapy for #cancer treatment. https://t.co/GwzMNCJ018 #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: For the patient, what is the immunotherapy treatment experience like? What are the common side effects with immunotherapy? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: T2: For the patient, what is the immunotherapy treatment experience like? What are the common side effects with immunotherapy? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc Good evening! Matt Katz, radiation oncologist in Massachusetts. Glad to be able to join you tonight #gyncsm friends! |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T2: T2: For the patient, what is the immunotherapy treatment experience like? What are the common side effects with immunotherapy? #gyncsm |
| Dee Sparacio @womenofteal @subatomicdoc Welcome Matt! Thought you might be out shoveling snow tonight. #gyncsm |
| aricca wallace @mandmsportsmom T2. I had to have a tumor removed and the t cells grown in the lab, had aphoresis to remove white blood cells and together they #gyncsm |
| Christina Lizaso @btrfly12 Resource | What You Need to Know About Immunotherapy Side Effects via @cancerdotnet https://t.co/8I1iFhC68v #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm Checkpoint inhibitors that target PD-1 have remarkably few side effects. This has been revolutionary. #gyncsm |
| aricca wallace @mandmsportsmom T2 trained in the lab. I was given 7 days of chemo to deplete immune system.The t cells and my trained wbc were then put back in me #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal Hi Dee! Lots of shoveling yesterday. Fortunately, main issue today was safe driving :-) #gyncsm |
| Erica Bednar @EMBOSU @gyncsm @theNCI @AmirJazaeri might be interested to listen/join in later on the #gyncsm chat on immunotherapy |
| Dee Sparacio @womenofteal A2:@SITcancer released new consensus recommendations on recognition & clinical management of immune-related side effects of immunotherapy. https://t.co/JVnyZBQx9o #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: A2:@SITcancer released new consensus recommendations on recognition & clinical management of immune-related side effects of immunotherapy. https://t.co/JVnyZBQx9o #gyncsm |
| aricca wallace @mandmsportsmom T2 millions of cancer cells being injected was scary! The trained wbc immediately recognized the tumors and started attacking #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @mandmsportsmom: T2 millions of cancer cells being injected was scary! The trained wbc immediately recognized the tumors and started attacking #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @womenofteal: A2:@SITcancer released new consensus recommendations on recognition & clinical management of immune-related side effects of immunotherapy. https://t.co/JVnyZBQx9o #gyncsm |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD Apologies - joining in late! Supportive/Palliative Care & Med Onc in Houston #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham RT @btrfly12: Resource | What You Need to Know About Immunotherapy Side Effects via @cancerdotnet https://t.co/8I1iFhC68v #gyncsm |
| Dee Sparacio @womenofteal @IshwariaMD Welcome! #gyncsm |
| aricca wallace @mandmsportsmom T2. While this was happening it was like having the flu x 1000..fever, chills, etc just like fighting any other virus #gyncsm |
| Dee Sparacio @womenofteal @mandmsportsmom Were you hospitalized for a long time ? #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: T2. While this was happening it was like having the flu x 1000..fever, chills, etc just like fighting any other virus #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm Cell therapy is a more intense, often inpatient, treatment that can have many side effects. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3A: Is immunotherapy common in treating gynecologic cancers? Is it only offered through trials? #gyncsm |
| aricca wallace @mandmsportsmom @womenofteal @mandmsportsmom initially after the surgery, about 7 days. Then 28 days during injection & then getting immune sys back #gyncsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @gyncsm T2: Side effects tend to be different from chemo - no hair loss, counts usually fine, etc. but immune system on hyper drive can feel like a major flu! #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T3A: T3A: Is immunotherapy common in treating gynecologic cancers? Is it only offered through trials? #gyncsm |
 | Geska Lima @Geskalima RT @btrfly12: Resource | What You Need to Know About Immunotherapy Side Effects via @cancerdotnet https://t.co/8I1iFhC68v #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T3A: There are emerging data for immunotherapy in some gyn cancers, and patients can receive some treatments outside of clinical trials. Nonetheless participation in clinical trials is best whenever possible as we are still learning about these treatments. #gyncsm |
 | Sue Scott @SurvivorSueWDC T2 I always say that Dr. H took out my immune cells and sent them to 5 weeks of KUNG FU school (genetically altered them in his lab) and then put 74.5 BILLION of them back in me! #gyncsm |
| Dee Sparacio @womenofteal @mandmsportsmom That is a long time but worth it if you were able to get the great results you did. #gyncsm |
| aricca wallace @mandmsportsmom T2. I feel the side effects were easier to handle than the ongoing side effects of chemo and radiation #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba There's an enlightening conversation going on in #gyncsm chat. Actual patients from #immunotherapy trials and their #oncologist are discussing their actual cases #patientchat #opennotes https://t.co/CIS0ABf5L9 |
| Dee Sparacio @womenofteal RT @IshwariaMD: @gyncsm T2: @gyncsm T2: Side effects tend to be different from chemo - no hair loss, counts usually fine, etc. but immune system on hyper drive can feel like a major flu! #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T3A: @gyncsm T3A: There are emerging data for immunotherapy in some gyn cancers, and patients can receive some treatments outside of clinical trials. Nonetheless participation in clinical trials is best whenever possible as we are still learning about these treatments. #gyncsm |
| Dee Sparacio @womenofteal RT @SurvivorSueWDC: T2 I always say that Dr. H took out my immune cells and sent them to 5 weeks of KUNG FU school (genetically altered them in his lab) and then put 74.5 BILLION of them back in me! #gyncsm |
| Erica Bednar @EMBOSU RT @CSHinrichsMD: @gyncsm T3A: @gyncsm T3A: There are emerging data for immunotherapy in some gyn cancers, and patients can receive some treatments outside of clinical trials. Nonetheless participation in clinical trials is best whenever possible as we are still learning about these treatments. #gyncsm |
| aricca wallace @mandmsportsmom T2. The interluken 2 that you are given after injection, I call it gatorade for the cells. Would just ramp them back up again and #gyncsm |
 | Mike Thompson, MD, PhD, FASCO @mtmdphd RT @womenofteal: The #gyncsm community is pleased to see our supporter and Health Moderator (2013-2015) @drdonsdizon named a Fellow of @ASCO. Congratulations! https://t.co/ou2vVVNZGt |
| Matthew Katz, MD 🟦 @subatomicdoc RT @CSHinrichsMD: @gyncsm T3A: @gyncsm T3A: There are emerging data for immunotherapy in some gyn cancers, and patients can receive some treatments outside of clinical trials. Nonetheless participation in clinical trials is best whenever possible as we are still learning about these treatments. #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: T2. The interluken 2 that you are given after injection, I call it gatorade for the cells. Would just ramp them back up again and #gyncsm |
| aricca wallace @mandmsportsmom T2 symptoms of high fever, chills, etc would start again..nothing that nurses and mess couldn't help control. #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: T2 symptoms of high fever, chills, etc would start again..nothing that nurses and mess couldn't help control. #gyncsm |
| aricca wallace @mandmsportsmom @womenofteal @mandmsportsmom Absolutely! During that time, I only felt "sick" for 15 days the rest was just getting stronger #gyncsm |
| Geska Lima @Geskalima RT @SGO_org: TOMORROW: TOMORROW: Gynecologic Cancer Social Media #GYNCSM chat Wed 3/14 at 9pmET | 8pmCT | 6pmPT This month's topic: Immunotherapy https://t.co/fv3pGqzlBq https://t.co/fUdjvvsGfJ |
| GYN Cancer | #GYNCSM @gyncsm T3B: Patients - How did you find out immunotherapy was an option? What were your concerns? What led you to go forward with enrolling in a trial? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @CSHinrichsMD @gyncsm T3A: One of the issues is ensuring immunotherapy can identify tumor cells well. There's a lot of interest in radiation synergizing with immunotherapy. Example trial for cervical/endometrial cancer: https://t.co/5Bmp5gZwom #gyncsm #radonc |
| Dee Sparacio @womenofteal RT @gyncsm: T3B: T3B: Patients - How did you find out immunotherapy was an option? What were your concerns? What led you to go forward with enrolling in a trial? #gyncsm |
| Sue Scott @SurvivorSueWDC T2 because the immunotrial I was in included 7 days of chemo ( to rid my body of its current TIL cells and make space for the " new and improved ones that Dr. H had "built" in his lab) I did lose all my hair. I also was sick from the IL2 doses. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm note: Special thanks to our special guests! You can read more of their story on the pre-chat blog post https://t.co/2ut6pkfuxF #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: note: note: Special thanks to our special guests! You can read more of their story on the pre-chat blog post https://t.co/2ut6pkfuxF #gyncsm |
| Dee Sparacio @womenofteal @SurvivorSueWDC How long ago was your treatment Sue? And how do you feel now? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: note: note: Special thanks to our special guests! You can read more of their story on the pre-chat blog post https://t.co/2ut6pkfuxF #gyncsm |
| aricca wallace @mandmsportsmom T3b. Another God send. @cshinrichsmd reached out to former colleagues. One that happened to be my current gyn onc. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal Lots of interest, but needs to be done carefully, also best on clinical trial. There are potential interactions to increase toxicity as well. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: note: note: Special thanks to our special guests! You can read more of their story on the pre-chat blog post https://t.co/2ut6pkfuxF #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham RT @subatomicdoc: @CSHinrichsMD @gyncsm T3A: @CSHinrichsMD @gyncsm T3A: One of the issues is ensuring immunotherapy can identify tumor cells well. There's a lot of interest in radiation synergizing with immunotherapy. Example trial for cervical/endometrial cancer: https://t.co/5Bmp5gZwom #gyncsm #radonc |
| aricca wallace @mandmsportsmom T3b. You learn you have to be an advocate for yourself. I now tell ppl to check out https://t.co/wkcCy3ErtT to see what is out there #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: What advice would you give to others considering an immunotherapy trial, or any clinical trial? #gyncsm |
| Dee Sparacio @womenofteal Great advice. #gyncsm https://t.co/ZGhlPDcRB7 |
| Matthew Katz, MD 🟦 @subatomicdoc RT @mandmsportsmom: T3b. You learn you have to be an advocate for yourself. I now tell ppl to check out https://t.co/wkcCy3ErtT to see what is out there #gyncsm |
| Sue Scott @SurvivorSueWDC I received my 74.5 billion " new and improved" TILs on March 15, 2013...5 years ago almost to the day! Still cancer free!! Still so very GOOD and GRATEFUL! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: What advice would you give to others considering an immunotherapy trial, or any clinical trial? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: What advice would you give to others considering an immunotherapy trial, or any clinical trial? #gyncsm |
| Christina Lizaso @btrfly12 RT @mandmsportsmom: T3b. You learn you have to be an advocate for yourself. I now tell ppl to check out https://t.co/wkcCy3ErtT to see what is out there #gyncsm |
| Robin Martinez @RobinSmrtPtient T4: Re clinical trials, shop around. There are lots of them, and they are not all equally good. Look at past results. #gyncsm |
| aricca wallace @mandmsportsmom T4. DO IT! Once "standard treatment" doesn't work - what do you have to lose! New breakthroughs happen daily #gyncsm |
| Christina Lizaso @btrfly12 T4: You don't need to wait for your medical team to bring up trials. You can do your own research or reach out to patient advocates or advocacy orgs. #gyncsm |
| Dee Sparacio @womenofteal RT @RobinSmrtPtient: T4: T4: Re clinical trials, shop around. There are lots of them, and they are not all equally good. Look at past results. #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: T4. DO IT! Once "standard treatment" doesn't work - what do you have to lose! New breakthroughs happen daily #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: T4: T4: You don't need to wait for your medical team to bring up trials. You can do your own research or reach out to patient advocates or advocacy orgs. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: You don't need to wait for your medical team to bring up trials. You can do your own research or reach out to patient advocates or advocacy orgs. #gyncsm |
| Christina Lizaso @btrfly12 T4: #clinicaltrials often offer the very best in care - you get standard treatment or new treatment and are very well monitored #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @RobinSmrtPtient: T4: T4: Re clinical trials, shop around. There are lots of them, and they are not all equally good. Look at past results. #gyncsm |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: T4: T4: Re clinical trials, shop around. There are lots of them, and they are not all equally good. Look at past results. #gyncsm |
| aricca wallace @mandmsportsmom T4 Don't accept that the only answer is to control not cure you may have to control for awhile there is hope given daily w/trials #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham Good advice, @btrfly12 - be your own advocate. Know your options - that you HAVE options. #gyncsm https://t.co/ixmKnYtnTM |
| Robin Martinez @RobinSmrtPtient T4: Check ASCO to see if there are interim reports on the trial you're considering. #gyncsm |
| Sue Scott @SurvivorSueWDC I have talked by phone or text to dozens of C battlers since the article was printed in WashPost about my successful treatment ... and so many doctors are not mentioning or recommending their advanced cancer patients seek immunotherapy options. #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: T4 Don't accept that the only answer is to control not cure you may have to control for awhile there is hope given daily w/trials #gyncsm |
| Lynda Banzi @lbanzi RT @SurvivorSueWDC: I have talked by phone or text to dozens of C battlers since the article was printed in WashPost about my successful treatment ... and so many doctors are not mentioning or recommending their advanced cancer patients seek immunotherapy options. #gyncsm |
| Christina Lizaso @btrfly12 T4: Do your research on how the trial will fit into your life and treatment goals. What is the schedule? Distance? Side effects? etc. #gyncsm |
| aricca wallace @mandmsportsmom @RobinSmrtPtient In my case there wasn't any past results. Sometimes you have to just continue to be brave and start a new fight #gyncsm |
| Dee Sparacio @womenofteal T4 We all have to work to change this. #gyncsm https://t.co/0Rpf8zQeRW |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @btrfly12 Absolutely. https://t.co/hmQQTeBHLA #gyncsm https://t.co/9kIR5XjbEE |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: T4: T4: Check ASCO to see if there are interim reports on the trial you're considering. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @DrMarkham: Good advice, @btrfly12 - be your own advocate. Know your options - that you HAVE options. #gyncsm https://t.co/ixmKnYtnTM |
| Dee Sparacio @womenofteal wondering about clinical trials check out this @SGO_org video https://t.co/vFjHAwUJ9s #gyncsm |
| Sue Scott @SurvivorSueWDC So true about seeking answers yourself and checking about clinical trials. NIH has a phone number you can call too to speak to someone about what trials are accepting patients/recruiting. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T5: @CSHinrichsMD - How did patients, including our guests, contribute to your immunotherapy research? What did you learn from them and where is the research now heading? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: wondering about clinical trials check out this @SGO_org video https://t.co/vFjHAwUJ9s #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: @CSHinrichsMD - How did patients, including our guests, contribute to your immunotherapy research? What did you learn from them and where is the research now heading? #gyncsm |
| Christina Lizaso @btrfly12 RT @SurvivorSueWDC: So true about seeking answers yourself and checking about clinical trials. NIH has a phone number you can call too to speak to someone about what trials are accepting patients/recruiting. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: wondering about clinical trials check out this @SGO_org video https://t.co/vFjHAwUJ9s #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: @btrfly12 Absolutely. https://t.co/hmQQTeBHLA #gyncsm https://t.co/9kIR5XjbEE |
| Robin Martinez @RobinSmrtPtient @mandmsportsmom Yes, sometimes a clinical trial is a leap of faith. Make your best estimate and jump! #gyncsm |
 | Rod Rocconi @rodrocconi RT @subatomicdoc: @CSHinrichsMD @gyncsm T3A: @CSHinrichsMD @gyncsm T3A: One of the issues is ensuring immunotherapy can identify tumor cells well. There's a lot of interest in radiation synergizing with immunotherapy. Example trial for cervical/endometrial cancer: https://t.co/5Bmp5gZwom #gyncsm #radonc |
| Christina Lizaso @btrfly12 Saw this just this week: @DanaFarber New Clinical Trials Test Immunotherapy for Cervical Cancer https://t.co/8TDZHd5d9w #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T5: @mandmsportsmom and @SurvivorSueWDC are the brave volunteers who first showed that this type of treatment can work. They did this when all we doctors could say was that it seemed like a good idea. (1/3) #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T5: Studies that we did on samples that they donated have shown us which patients are more likely to respond to this type of treatment. Study of @SurvivorSueWDC led to the discovery of a new treatment that we hope to test soon. (2/3) #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T5: They have enabled years of laboratory research that is still going on. (3/3) #gyncsm |
| Dee Sparacio @womenofteal Link to Sue's Post article https://t.co/MT7tL3SXpt #gyncsm https://t.co/0Rpf8zQeRW |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: Link to Sue's Post article https://t.co/MT7tL3SXpt #gyncsm https://t.co/0Rpf8zQeRW |
| Christina Lizaso @btrfly12 And here's a couple articles about #ovariancancer treatment vaccine trials https://t.co/FuB8xDsgod and https://t.co/pl2tAq0oqP #gyncsm |
| Merry-Jennifer Markham, MD, FACP, FASCO @DrMarkham Immunotherapy wouldn't be here without the courageous and generous patients who participated in clinical trials. #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T5: @gyncsm T5: @mandmsportsmom and @SurvivorSueWDC are the brave volunteers who first showed that this type of treatment can work. They did this when all we doctors could say was that it seemed like a good idea. (1/3) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: And here's a couple articles about #ovariancancer treatment vaccine trials https://t.co/FuB8xDsgod and https://t.co/pl2tAq0oqP #gyncsm |
| Robin Martinez @RobinSmrtPtient T4: Natl Comprehensive Cancer Networks recommends looking first at clinical trials at every stage of treatment. But... #gyncsm |
| Sue Scott @SurvivorSueWDC Agreed! I was at NIH hospital for 21 days straight and The care I received from the NIH nursing staff and docs was far and above any other hospital...they are experts in every way. #gyncsm https://t.co/UUmJmJtUvC |
 | Treatment for Cancer @cancer_tm RT @gyncsm: Pls Join & Share: Pls Join & Share: Save the Date: #gyncsm Chat on #Immunotherapy Wed March 14, 2018 9pm ET with Guests @CSHinrichsMD @mandmsportsmom @SurvivorSueWDC https://t.co/roA5yneeNa |
| Christina Lizaso @btrfly12 RT @CSHinrichsMD: @gyncsm T5: @gyncsm T5: @mandmsportsmom and @SurvivorSueWDC are the brave volunteers who first showed that this type of treatment can work. They did this when all we doctors could say was that it seemed like a good idea. (1/3) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T5: @gyncsm T5: Studies that we did on samples that they donated have shown us which patients are more likely to respond to this type of treatment. Study of @SurvivorSueWDC led to the discovery of a new treatment that we hope to test soon. (2/3) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T5: @gyncsm T5: They have enabled years of laboratory research that is still going on. (3/3) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @SurvivorSueWDC: Agreed! I was at NIH hospital for 21 days straight and The care I received from the NIH nursing staff and docs was far and above any other hospital...they are experts in every way. #gyncsm https://t.co/UUmJmJtUvC |
| Robin Martinez @RobinSmrtPtient T4: Many patients never hear about the option of clinical trials, even when they could really benefit. #gyncsm |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: T4: T4: Natl Comprehensive Cancer Networks recommends looking first at clinical trials at every stage of treatment. But... #gyncsm |
| Christina Lizaso @btrfly12 RT @RobinSmrtPtient: T4: T4: Many patients never hear about the option of clinical trials, even when they could really benefit. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T6: What are some resources for learning more about immunotherapy in treating cancer? For finding out what's new and what trials are open? #gyncsm |
 | Jamie Holloway, PhD @jamienholloway RT @btrfly12: T4: T4: You don't need to wait for your medical team to bring up trials. You can do your own research or reach out to patient advocates or advocacy orgs. #gyncsm |
| Christina Lizaso @btrfly12 Overview from @theNCI - Immunotherapy to Treat Cancer https://t.co/nlCiKoqPr7 #gyncsm |
| Christina Lizaso @btrfly12 Overview from @cancerdotnet – Immunotherapy and Vaccines https://t.co/aHhbaEggR6 #gyncsm |
| Dee Sparacio @womenofteal @CSHinrichsMD @gyncsm @SurvivorSueWDC So they have helped you fine tune the process of determining what will work and you have helped their immune system fight their specific disease. Love to see this progress being made. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T6: T6: What are some resources for learning more about immunotherapy in treating cancer? For finding out what's new and what trials are open? #gyncsm |
| Christian Hinrichs @CSHinrichsMD @gyncsm T6: The most comprehensive resource for clinical trials is https://t.co/GGCmNxO3b2. There is a lot of information and advice from your doctor is important. (1/3). #gyncsm |
| Sue Scott @SurvivorSueWDC Very exciting to be a part of this important work. That was my goal all along...I didn't think the treatment would actually WORK to cure my cancer...I just hoped to be a part of something that would further the possibility of a cure...#gyncsm https://t.co/79q4FUhd0M |
| Christian Hinrichs @CSHinrichsMD @gyncsm T6: The NIH Clinical Center has many immunotherapy trials. Patients are not charged for medical care at the NIH. In some cases, travel is also free. https://t.co/L3uWlSnwp0 (2/3) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @gyncsm T6: @gyncsm T6: The NIH Clinical Center has many immunotherapy trials. Patients are not charged for medical care at the NIH. In some cases, travel is also free. https://t.co/L3uWlSnwp0 (2/3) #gyncsm |
| aricca wallace @mandmsportsmom @DrMarkham Immunotherapy would also not be here w/o the foresight/determination from amazing Dr's and their lab staff @chinrichsmd #gyncsm |
| Dee Sparacio @womenofteal RT @mandmsportsmom: @DrMarkham Immunotherapy would also not be here w/o the foresight/determination from amazing Dr's and their lab staff @chinrichsmd #gyncsm |
| aricca wallace @mandmsportsmom @mandmsportsmom @DrMarkham @cshinrichsmd #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba I would be remiss if I failed to mention this: "In Cancer Trials, Minorities Face Extra Hurdles" Researchers actually (falsely) believe people in minority groups have lower incomes & less education, & therefore less awareness of medical studies. https://t.co/ZBLN94yRgX #gyncsm https://t.co/N8EkwzuBnB |
| Christina Lizaso @btrfly12 The org @CancerResearch has an immunotherapy trials #ovariancancer page https://t.co/KNh0gEnfET and #cervicalcancer page https://t.co/lmMtDkp5nG with some basics #gyncsm |
| Christina Lizaso @btrfly12 RT @CSHinrichsMD: @gyncsm T6: @gyncsm T6: The most comprehensive resource for clinical trials is https://t.co/GGCmNxO3b2. There is a lot of information and advice from your doctor is important. (1/3). #gyncsm |
| Christina Lizaso @btrfly12 RT @SurvivorSueWDC: Very exciting to be a part of this important work. That was my goal all along...I didn't think the treatment would actually WORK to cure my cancer...I just hoped to be a part of something that would further the possibility of a cure...#gyncsm https://t.co/79q4FUhd0M |
| Dee Sparacio @womenofteal @CSHinrichsMD @gyncsm This is the patient recruitment page for the NIH https://t.co/EHCRKc91Vi #gyncsm |
| Christina Lizaso @btrfly12 RT @CSHinrichsMD: @gyncsm T6: @gyncsm T6: The NIH Clinical Center has many immunotherapy trials. Patients are not charged for medical care at the NIH. In some cases, travel is also free. https://t.co/L3uWlSnwp0 (2/3) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: The org @CancerResearch has an immunotherapy trials #ovariancancer page https://t.co/KNh0gEnfET and #cervicalcancer page https://t.co/lmMtDkp5nG with some basics #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: I would be remiss if I failed to mention this: I would be remiss if I failed to mention this: "In Cancer Trials, Minorities Face Extra Hurdles" Researchers actually (falsely) believe people in minority groups have lower incomes & less education, & therefore less awareness of medical studies. https://t.co/ZBLN94yRgX #gyncsm https://t.co/N8EkwzuBnB |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: I would be remiss if I failed to mention this: I would be remiss if I failed to mention this: "In Cancer Trials, Minorities Face Extra Hurdles" Researchers actually (falsely) believe people in minority groups have lower incomes & less education, & therefore less awareness of medical studies. https://t.co/ZBLN94yRgX #gyncsm https://t.co/N8EkwzuBnB |
| Dee Sparacio @womenofteal RT @btrfly12: The org @CancerResearch has an immunotherapy trials #ovariancancer page https://t.co/KNh0gEnfET and #cervicalcancer page https://t.co/lmMtDkp5nG with some basics #gyncsm |
| aricca wallace @mandmsportsmom RT @womenofteal: @CSHinrichsMD @gyncsm This is the patient recruitment page for the NIH https://t.co/EHCRKc91Vi #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Great discussion! Time to share closing thoughts. You can start your tweet with “TIL:” standing for Today I Learned #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @womenofteal: Link to Sue's Post article https://t.co/MT7tL3SXpt #gyncsm https://t.co/0Rpf8zQeRW |
| GYN Cancer | #GYNCSM @gyncsm So much gratitude to our special guests for taking time to share about Immunotherapy from their direct trial experience. Thanks for all you've done. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @CSHinrichsMD @gyncsm This is the patient recruitment page for the NIH https://t.co/EHCRKc91Vi #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: So much gratitude to our special guests for taking time to share about Immunotherapy from their direct trial experience. Thanks for all you've done. #gyncsm |
| aricca wallace @mandmsportsmom TIL we have to continue to spread the word and help educate about immunotherapy and clinical trials. Always Hope and Believe #gyncsm |
| Robin Martinez @RobinSmrtPtient T #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm And thanks to all who joined along and contributed. Next #gyncsm chat: Wed April 14, 2018 at 9pmET on SGO Annual Meeting Research Review and Ask the Docs #gyncsm |
| Christian Hinrichs @CSHinrichsMD @womenofteal @gyncsm Also, for patients with advanced-stage, HPV-related cancers, like cervical, vaginal, and vulvar cancers, I am easy to find. https://t.co/EW5XBho7re. (3/3) #gyncsm |
| Dee Sparacio @womenofteal RT @CSHinrichsMD: @womenofteal @gyncsm Also, for patients with advanced-stage, HPV-related cancers, like cervical, vaginal, and vulvar cancers, I am easy to find. https://t.co/EW5XBho7re. (3/3) #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: So much gratitude to our special guests for taking time to share about Immunotherapy from their direct trial experience. Thanks for all you've done. #gyncsm |
 | Randall Kimple @KimpleRandall RT @DrMarkham: Immunotherapy wouldn't be here without the courageous and generous patients who participated in clinical trials. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm RT @mandmsportsmom: TIL we have to continue to spread the word and help educate about immunotherapy and clinical trials. Always Hope and Believe #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: And thanks to all who joined along and contributed. Next #gyncsm chat: And thanks to all who joined along and contributed. Next #gyncsm chat: Wed April 14, 2018 at 9pmET on SGO Annual Meeting Research Review and Ask the Docs #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: So much gratitude to our special guests for taking time to share about Immunotherapy from their direct trial experience. Thanks for all you've done. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @gyncsm TIL: Lots of good potential trials coming. And https://t.co/Kwp99PApPT made the website easier to navigate for searches! #gyncsm |
| Dee Sparacio @womenofteal TIL We have researchers and patients working together to find cures and help others fight gyn cancers. Now we need to insure that others have the access and information on immunotherapy clinical trials #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: TIL We have researchers and patients working together to find cures and help others fight gyn cancers. Now we need to insure that others have the access and information on immunotherapy clinical trials #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Sue Scott @SurvivorSueWDC Thank you so much for this opportunity to share and learn. To fellow C battlers: Please seek out ALL your treatment options. To Oncs: please be sure to mention immunotherapy as a treatment option for your advanced cancer patients to explore. #gyncsm |
| Christina Lizaso @btrfly12 RT @subatomicdoc: @gyncsm TIL: @gyncsm TIL: Lots of good potential trials coming. And https://t.co/Kwp99PApPT made the website easier to navigate for searches! #gyncsm |
| Erica Bednar @EMBOSU TIL how brave our #gyncsm patients and community are: signing up for clinical trials, trying a totally new and uncharted therapy in order to contribute to finding a cure for themselves and many others! That's awesome! https://t.co/frdbs7AVhN |
| Christina Lizaso @btrfly12 RT @SurvivorSueWDC: Thank you so much for this opportunity to share and learn. To fellow C battlers: Thank you so much for this opportunity to share and learn. To fellow C battlers: Please seek out ALL your treatment options. To Oncs: please be sure to mention immunotherapy as a treatment option for your advanced cancer patients to explore. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: TIL We have researchers and patients working together to find cures and help others fight gyn cancers. Now we need to insure that others have the access and information on immunotherapy clinical trials #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Dee Sparacio @womenofteal Thank you so much @CSHinrichsMD for helping our community understand immunotherapy treatments and @mandmsportsmom @SurvivorSueWDC for sharing your stories. #gyncsm |
| Dee Sparacio @womenofteal Looking forward to following the hashtag #SGOMtg for the latest from @SGO_org and others #gyncsm |
| Christina Lizaso @btrfly12 A survey on state of patients' Immunotherapy knowledge by @teaminspire - Infographic: https://t.co/hY0jBkBSs1 #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: Thank you so much @CSHinrichsMD for helping our community understand immunotherapy treatments and @mandmsportsmom @SurvivorSueWDC for sharing your stories. #gyncsm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: Thank you so much @CSHinrichsMD for helping our community understand immunotherapy treatments and @mandmsportsmom @SurvivorSueWDC for sharing your stories. #gyncsm |
 | WHATNEXT.com @WHATNEXT_Cancer RT @QUB_PIPStudy: Want to support our work into #VIN #CIN #VAIN #Dysplasia #Precancer? Help us understand your views @ https://t.co/wwS4MQqNOX Please RT #gyncsm @gyncsm @womenofteal @Elissa_Malcohn @GynaeCancerFund @eveappeal @projectpinkblue @karen_hobbs |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal @CSHinrichsMD @mandmsportsmom @SurvivorSueWDC Thank you @womenofteal and @btrfly12 for moderating! #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources we mentioned tonight. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: A survey on state of patients' Immunotherapy knowledge by @teaminspire - Infographic: A survey on state of patients' Immunotherapy knowledge by @teaminspire - Infographic: https://t.co/hY0jBkBSs1 #gyncsm |
| Christina Lizaso @btrfly12 Immunotherapy has great potential but we are still figuring out which patients will most benefit. Not all do. We also don't know much about long term side effects. Some effect being seen on heart. Have hope but do your research. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: Looking forward to following the hashtag #SGOMtg for the latest from @SGO_org and others #gyncsm |
| Erica Bednar @EMBOSU Thanks @gyncsm for coordinating a great chat this evening! Looking forward to sharing and tweeting from @SGO_org conference later this month-- stay tuned! If anyone is attending the conference; feel free to track me down to say "hi" or stop by my poster :) #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @DrMarkham @journeycancer @DrBeckerSchutte #gyncsm |
 | Jack Warner @JackWarner16 RT @btrfly12: T4: T4: You don't need to wait for your medical team to bring up trials. You can do your own research or reach out to patient advocates or advocacy orgs. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: Immunotherapy has great potential but we are still figuring out which patients will most benefit. Not all do. We also don't know much about long term side effects. Some effect being seen on heart. Have hope but do your research. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources we mentioned tonight. #gyncsm |
| Christina Lizaso @btrfly12 It is becoming less about site of origin for cancer treatment. Many trials now open to any solid tumor that expresses characteristics these new treatments like immunotherapy can target. #gyncsm |
| Sue Scott @SurvivorSueWDC @womenofteal @CSHinrichsMD @mandmsportsmom Thank you so much@womenofteal for creating this opportunity and all the important work you're doing to empower and educate patients...and doctors...and the whole cancer battling community!! Keep up the great work! #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU @gyncsm @SGO_org I look forward to you tweets! #gyncsm |
| Christina Lizaso @btrfly12 NYTimes Article - Doctors Said Immunotherapy Would Not Cure Her Cancer. They Were Wrong. https://t.co/x4T2mLqSVQ #gyncsm #ovariancancer |
| Christian Hinrichs @CSHinrichsMD RT @SurvivorSueWDC: @womenofteal @CSHinrichsMD @mandmsportsmom Thank you so much@womenofteal for creating this opportunity and all the important work you're doing to empower and educate patients...and doctors...and the whole cancer battling community!! Keep up the great work! #gyncsm |
| Sue Scott @SurvivorSueWDC RT @CSHinrichsMD: @gyncsm T5: @gyncsm T5: @mandmsportsmom and @SurvivorSueWDC are the brave volunteers who first showed that this type of treatment can work. They did this when all we doctors could say was that it seemed like a good idea. (1/3) #gyncsm |
| Christina Lizaso @btrfly12 How CAR-T Therapy, Known As A 'Living Drug,' May Help To Kill Forms Of Cancer ( #mmsm ) https://t.co/x4T2mLqSVQ #gyncsm |
| Sue Scott @SurvivorSueWDC RT @CSHinrichsMD: @gyncsm T5: @gyncsm T5: Studies that we did on samples that they donated have shown us which patients are more likely to respond to this type of treatment. Study of @SurvivorSueWDC led to the discovery of a new treatment that we hope to test soon. (2/3) #gyncsm |
| Sue Scott @SurvivorSueWDC RT @womenofteal: Link to Sue's Post article https://t.co/MT7tL3SXpt #gyncsm https://t.co/0Rpf8zQeRW |
| Christina Lizaso @btrfly12 How CAR-T Therapy, Known As A 'Living Drug,' May Help To Kill Forms Of Cancer ( #mmsm ) https://t.co/o4GCZ1pfMt #gyncsm |
| Christina Lizaso @btrfly12 PET Scans Could Identify Those Likely to Respond to PD-1-targeted Cancer Therapies https://t.co/Zp7CdwZYG0 #gyncsm |
| Dee Sparacio @womenofteal Collaboration key to identification, incorporation of biomarkers for immuno-oncology https://t.co/r3MflhOc5V #gyncsm |
 | Enlightening Results 💡 @GraceCordovano So sorry to have missed #gyncsm!😭 Will catch up on what looks like a fabulous discussion. Until next time. |
| Dee Sparacio @womenofteal Special thanks to my amazing partner @btrfly12 for crafting the best questions and for keeping us on track during each chat. You're the Best! #gyncsm |
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