#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
– ().
See #GynCSM Influencers/Analytics.
Profile | Tweet |
---|---|
GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. | |
Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. | |
GYN Cancer | #GYNCSM @gyncsm Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. | |
Dee Sparacio @womenofteal RT @gyncsm: Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. | |
Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, author, blogger & co-moderator and I love dogs and dog agility #gyncsm | |
IamCervivor @IamCervivor Hey Everyone! Morgan here - I serve as the community manager here at Cervivor. Looking forward to tonight's chat! #GYNCSM | |
Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. Also super excited to have signed up my 13yr old for his Covid vaccine today. #gyncsm | |
Dee Sparacio @womenofteal @IamCervivor So glad you are able to join us tonight, Morgan! #gyncsm | |
Tobey @BRCAinfo Hi there. Nice to join you all again tonight. How are you?#gyncsm | |
John Novack @J2Novack RT @gyncsm: The #gyncsm (GYNecologic Cancer Social Media) chat will get started in a few minutes! You can read about tonight’s chat and preview the topic questions on our #gyncsm blog: https://t.co/KdRlCBvx4P | |
GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. :) | |
KD Richardson @KDRichardson924 @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Kimberly from Chicago #gyncsm | |
Lum Lab @lum_lab RT @NatRevClinOncol: | |
Dee Sparacio @womenofteal @BRCAinfo Great to see you Tobey #gyncsm | |
Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. :) | |
GYN Cancer | #GYNCSM @gyncsm Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #gyncsm | |
Dee Sparacio @womenofteal @KDRichardson924 @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi there Kim, Thanks for joining us. #gyncsm | |
Elixir Fund @elixirfund Meg from Elixir Fund. A nonprofit that provides comfort care to cancer patients and their caregivers "#gyncsm" | |
John Novack @J2Novack Hello to the #gyncsm family, John Novack following along. | |
Tobey @BRCAinfo @womenofteal Thank you ~ likewise #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy | |
Dee Sparacio @womenofteal @elixirfund Hi Meg, Welcome. Might be time to meet for lunch! #gyncsm | |
Dee Sparacio @womenofteal @J2Novack Hi John, Great to see you here. #gyncsm | |
Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy | |
GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. | |
Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. | |
Dee Sparacio @womenofteal RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. | |
Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information and to reach out to us #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm We welcome those joining along and those “listening in”. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG #gyncsm | |
Michele E. Collins @Michele_w_1_L Michele from Jersey. Stage 2B High Grade Serous dx 2.13.15. Grateful to still be NED 🤞 #gyncsm | |
Dee Sparacio @womenofteal RT @gyncsm: We welcome those joining along and those “listening in”. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing "Risk of Recurrence, Second Cancers, and Other Diseases". | |
Dee Sparacio @womenofteal @Michele_w_1_L Hi there Michele , So glad you can join us tonight! #gyncsm | |
Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat. | |
IamCervivor @IamCervivor RT @gyncsm: Tonight on #gyncsm we’ll be discussing "Risk of Recurrence, Second Cancers, and Other Diseases". | |
GYN Cancer | #GYNCSM @gyncsm We’ll use a Topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. #gyncsm | |
Christina Lizaso @btrfly12 RT @gyncsm: Tonight on #gyncsm we’ll be discussing "Risk of Recurrence, Second Cancers, and Other Diseases". | |
GYN Cancer | #GYNCSM @gyncsm You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/KdRlCBvx4P | |
Dee Sparacio @womenofteal RT @gyncsm: You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/KdRlCBvx4P | |
Christine (Cissy) White @healWRITEnow @womenofteal Of course! Great resource people need to learn about!!#gyncsm | |
Christina Lizaso @btrfly12 RT @gyncsm: You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/KdRlCBvx4P | |
GYN Cancer | #GYNCSM @gyncsm T1: What is the risk of recurrence for the main types of gynecologic cancer? Which gyn cancers have the highest recurrence risk? #gyncsm | |
Patsy Hinson @patsyhinson @gyncsm Hi! Patsy here from NC. OVCA survivor and research advocate. Happy to be here fir the first time participating. #gyncsm | |
Christine (Cissy) White @healWRITEnow Cissy here from the northeast. Dx in 2019 & recurrence in 2020 & on treatment again. Recurrence fear & reality quite real. #gyncsm | |
IamCervivor @IamCervivor A1: According to @CancerCenter "An est. 35% of patients w/invasive #cervicalcancer develop persistent/recurrent disease following treatment. The recurrent cervical cancer rate is lower for those w/ early-stage disease. Most recurrences occur within 2 years of treatment." #GYNCSM | |
Dee Sparacio @womenofteal @patsyhinson @gyncsm Hi Patsy - great to see you join us on Twitter. Welcome to our community. #gyncsm | |
Christina Lizaso @btrfly12 RT @IamCervivor: A1: A1: According to @CancerCenter "An est. 35% of patients w/invasive #cervicalcancer develop persistent/recurrent disease following treatment. The recurrent cervical cancer rate is lower for those w/ early-stage disease. Most recurrences occur within 2 years of treatment." #GYNCSM | |
Dee Sparacio @womenofteal RT @gyncsm: T1: T1: What is the risk of recurrence for the main types of gynecologic cancer? Which gyn cancers have the highest recurrence risk? #gyncsm | |
Dee Sparacio @womenofteal @healWRITEnow Hi Cissy Glad you could be here and thanks for using the #gyncsm hashtag during the month. | |
Dee Sparacio @womenofteal RT @IamCervivor: A1: A1: According to @CancerCenter "An est. 35% of patients w/invasive #cervicalcancer develop persistent/recurrent disease following treatment. The recurrent cervical cancer rate is lower for those w/ early-stage disease. Most recurrences occur within 2 years of treatment." #GYNCSM | |
Tobey @BRCAinfo @gyncsm I think the risk of #gyncsm cancer depends on the stage at diagnosis & the aggressiveness of the tumor | |
Christina Lizaso @btrfly12 T1: The recurrence rate for #ovariancancer is very, very high. It can be hard to talk about with patients - and some don't want to think about it - but it also surprises too many that didn't get an open discussion after initial treatment. #gyncsm | |
IamCervivor @IamCervivor RT @btrfly12: T1: T1: The recurrence rate for #ovariancancer is very, very high. It can be hard to talk about with patients - and some don't want to think about it - but it also surprises too many that didn't get an open discussion after initial treatment. #gyncsm | |
Dee Sparacio @womenofteal T1 •Ovarian cancer has the highest recurrence rate overall -85% (occurring in 25% of patients with early-stage disease and >80% of patients with advanced disease.) #gyncsm | |
Dee Sparacio @womenofteal RT @btrfly12: T1: T1: The recurrence rate for #ovariancancer is very, very high. It can be hard to talk about with patients - and some don't want to think about it - but it also surprises too many that didn't get an open discussion after initial treatment. #gyncsm | |
Christina Lizaso @btrfly12 @BRCAinfo @gyncsm yes, many factors including stage and tumor type come into play. can be very individualized. good to know the overall info but also realize that individual risk is different #gyncsm | |
IamCervivor @IamCervivor RT @womenofteal: T1 •Ovarian cancer has the highest recurrence rate overall -85% (occurring in 25% of patients with early-stage disease and >80% of patients with advanced disease.) #gyncsm | |
Tobey @BRCAinfo RT @btrfly12: @BRCAinfo @gyncsm yes, many factors including stage and tumor type come into play. can be very individualized. good to know the overall info but also realize that individual risk is different #gyncsm | |
Dee Sparacio @womenofteal T1 Endometrial - recurrence rates for patients with early-stage disease range from 2–15% and reach as high as 50% in advanced stages or in patients with aggressive histologic condition. (70-100%) recurrences occur within 3 years after primary treatment from a 2011 study #gyncsm | |
John Novack @J2Novack RT @womenofteal: T1 •Ovarian cancer has the highest recurrence rate overall -85% (occurring in 25% of patients with early-stage disease and >80% of patients with advanced disease.) #gyncsm | |
IamCervivor @IamCervivor RT @womenofteal: T1 Endometrial - recurrence rates for patients with early-stage disease range from 2–15% and reach as high as 50% in advanced stages or in patients with aggressive histologic condition. (70-100%) recurrences occur within 3 years after primary treatment from a 2011 study #gyncsm | |
Morgan Newman @MiSs_SuE22 RT @IamCervivor: A1: A1: According to @CancerCenter "An est. 35% of patients w/invasive #cervicalcancer develop persistent/recurrent disease following treatment. The recurrent cervical cancer rate is lower for those w/ early-stage disease. Most recurrences occur within 2 years of treatment." #GYNCSM | |
Dee Sparacio @womenofteal @btrfly12 You are so right - tough conversation when you are just finishing up treatment but it should be included in the survivorship care plan as part of the follow-up plan. #gyncsm | |
Morgan Newman @MiSs_SuE22 RT @btrfly12: T1: T1: The recurrence rate for #ovariancancer is very, very high. It can be hard to talk about with patients - and some don't want to think about it - but it also surprises too many that didn't get an open discussion after initial treatment. #gyncsm | |
Morgan Newman @MiSs_SuE22 RT @womenofteal: T1 •Ovarian cancer has the highest recurrence rate overall -85% (occurring in 25% of patients with early-stage disease and >80% of patients with advanced disease.) #gyncsm | |
Morgan Newman @MiSs_SuE22 RT @womenofteal: T1 Endometrial - recurrence rates for patients with early-stage disease range from 2–15% and reach as high as 50% in advanced stages or in patients with aggressive histologic condition. (70-100%) recurrences occur within 3 years after primary treatment from a 2011 study #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm T2: What is known about reducing one's risk of recurrence? How are cancer survivors monitored for gyn cancer recurrence? #gyncsm | |
Onyinye Balogun MD, MSc @GlobalRadOnc Hi everyone, glad to join #gyncsm chat tonight. Tobey is correct. There are many variables to consider (tumor stage & subtype, initial treatment, if there were tx breaks). For instance, cervical cancer is more likely to not recur if chemoRT is completed within 8 wks of starting. | |
John Novack @J2Novack RT @gyncsm: T2: T2: What is known about reducing one's risk of recurrence? How are cancer survivors monitored for gyn cancer recurrence? #gyncsm | |
Dee Sparacio @womenofteal T1 vulvar cancer - Most recurrence occurs 2 years after treatment in women with inguinal lymph node involvement (32.7%) versus those without (5.1%). #gyncsm | |
Dee Sparacio @womenofteal RT @GlobalRadOnc: Hi everyone, glad to join #gyncsm chat tonight. Tobey is correct. There are many variables to consider (tumor stage & subtype, initial treatment, if there were tx breaks). For instance, cervical cancer is more likely to not recur if chemoRT is completed within 8 wks of starting. | |
IamCervivor @IamCervivor A2: Follow-up care is imperative for preventing recurrence of #cervicalcancer. That includes exams, imaging, and blood work. Exercise and diet may help along with smoking cessation. #GYNCSM #Cervivor | |
Dee Sparacio @womenofteal RT @gyncsm: T2: T2: What is known about reducing one's risk of recurrence? How are cancer survivors monitored for gyn cancer recurrence? #gyncsm | |
Dee Sparacio @womenofteal #gyncsm | |
Nita Lee @NitaKarnikLee @gyncsm @womenofteal @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte Hi #gyncsm Gyn Onc in Chicago @uchicago_obgyn @UCCancerCenter @UCMOCECHE Patient Education @GYNCancer | |
Christine (Cissy) White @healWRITEnow @btrfly12 T1: #gyncsm While we all want to be in the group that never recurs, I think it's important to let people know the possibility. Nothing stops the shock of actual recurrence, & living in fear is hard - to be sure - but since it's likely with #ovariancancer, facts are important. | |
Dee Sparacio @womenofteal RT @IamCervivor: A2: A2: Follow-up care is imperative for preventing recurrence of #cervicalcancer. That includes exams, imaging, and blood work. Exercise and diet may help along with smoking cessation. #GYNCSM #Cervivor | |
Michele E. Collins @Michele_w_1_L t2: I have heard that exercise may be beneficial in lowering one’s risk of recurrence. #gyncsm | |
Christina Lizaso @btrfly12 T2: There are only so many things that one can control when trying to reduce risk. Some things we know - Find a way to be active that works for you. Stop smoking. Lots unknown. A long-term study in AZ was looking at eating, activity and more for ovarian cancer survivors. #gyncsm | |
Dee Sparacio @womenofteal @NitaKarnikLee @gyncsm @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte @uchicago_obgyn @UCCancerCenter @UCMOCECHE @GYNCancer Hi Dr Lee Thanks so much for coming tonight! #gyncsm | |
Christina Lizaso @btrfly12 RT @healWRITEnow: @btrfly12 T1: @btrfly12 T1: #gyncsm While we all want to be in the group that never recurs, I think it's important to let people know the possibility. Nothing stops the shock of actual recurrence, & living in fear is hard - to be sure - but since it's likely with #ovariancancer, facts are important. | |
Tobey @BRCAinfo @gyncsm T2: reducing cancer risk~ funny question because we are told to exercise, eat healthy, destress…. Many of us do & did b4 diagnosis but …… Monitoring: check ups every 3-4 months #gyncsm | |
Christina Lizaso @btrfly12 RT @IamCervivor: A2: A2: Follow-up care is imperative for preventing recurrence of #cervicalcancer. That includes exams, imaging, and blood work. Exercise and diet may help along with smoking cessation. #GYNCSM #Cervivor | |
Dee Sparacio @womenofteal @GlobalRadOnc Hi Dr Balogun So glad you can join us. #gyncsm | |
Christina Lizaso @btrfly12 RT @GlobalRadOnc: Hi everyone, glad to join #gyncsm chat tonight. Tobey is correct. There are many variables to consider (tumor stage & subtype, initial treatment, if there were tx breaks). For instance, cervical cancer is more likely to not recur if chemoRT is completed within 8 wks of starting. | |
Dee Sparacio @womenofteal RT @healWRITEnow: @btrfly12 T1: @btrfly12 T1: #gyncsm While we all want to be in the group that never recurs, I think it's important to let people know the possibility. Nothing stops the shock of actual recurrence, & living in fear is hard - to be sure - but since it's likely with #ovariancancer, facts are important. | |
Dee Sparacio @womenofteal RT @Michele_w_1_L: t2: t2: I have heard that exercise may be beneficial in lowering one’s risk of recurrence. #gyncsm | |
Dee Sparacio @womenofteal RT @btrfly12: T2: T2: There are only so many things that one can control when trying to reduce risk. Some things we know - Find a way to be active that works for you. Stop smoking. Lots unknown. A long-term study in AZ was looking at eating, activity and more for ovarian cancer survivors. #gyncsm | |
Christina Lizaso @btrfly12 T2: Survivorship plans are important for continued monitoring after initial diagnosis. The balance is listening to your body and getting things checked out without freaking out. #gyncsm | |
Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm T2: @gyncsm T2: reducing cancer risk~ funny question because we are told to exercise, eat healthy, destress…. Many of us do & did b4 diagnosis but …… Monitoring: check ups every 3-4 months #gyncsm | |
Amanda Crowell Itliong @MIShouldTalk RT @healWRITEnow: @btrfly12 T1: @btrfly12 T1: #gyncsm While we all want to be in the group that never recurs, I think it's important to let people know the possibility. Nothing stops the shock of actual recurrence, & living in fear is hard - to be sure - but since it's likely with #ovariancancer, facts are important. | |
Tobey @BRCAinfo @GlobalRadOnc Thank you Dr. Balogun ♥️. Nice to “meet you” #gyncsm | |
Tobey @BRCAinfo RT @GlobalRadOnc: Hi everyone, glad to join #gyncsm chat tonight. Tobey is correct. There are many variables to consider (tumor stage & subtype, initial treatment, if there were tx breaks). For instance, cervical cancer is more likely to not recur if chemoRT is completed within 8 wks of starting. | |
Dee Sparacio @womenofteal @BRCAinfo @gyncsm You're right Tobey - I was walking 2 miles a day before my dx. #gyncsm But maybe that helped me recover quicker? | |
Dee Sparacio @womenofteal RT @btrfly12: T2: T2: Survivorship plans are important for continued monitoring after initial diagnosis. The balance is listening to your body and getting things checked out without freaking out. #gyncsm | |
Tobey @BRCAinfo RT @IamCervivor: A2: A2: Follow-up care is imperative for preventing recurrence of #cervicalcancer. That includes exams, imaging, and blood work. Exercise and diet may help along with smoking cessation. #GYNCSM #Cervivor | |
Dee Sparacio @womenofteal RT @npeck: | |
Tobey @BRCAinfo RT @healWRITEnow: @btrfly12 T1: @btrfly12 T1: #gyncsm While we all want to be in the group that never recurs, I think it's important to let people know the possibility. Nothing stops the shock of actual recurrence, & living in fear is hard - to be sure - but since it's likely with #ovariancancer, facts are important. | |
Christine (Cissy) White @healWRITEnow @gyncsm T2: #gyncsm I know I was heavily recruited into clinical trials to try frontline #PARPs & #immuno (or placebo). Nothing prevents recurrence, yet, but the time between recurrences can be modestly longer for some. | |
Amanda Crowell Itliong @MIShouldTalk T2 I know I was told very clearly by my first gyn Onc that I had no chance of recurrence, but here I am 4x later. I just hope everyone knows the possibility honestly. #gyncsm | |
Christina Lizaso @btrfly12 RT @MIShouldTalk: T2 I know I was told very clearly by my first gyn Onc that I had no chance of recurrence, but here I am 4x later. I just hope everyone knows the possibility honestly. #gyncsm | |
Dee Sparacio @womenofteal T2 good article from @AmericanCancer Can I Do Anything to Prevent Cancer Recurrence? https://t.co/EhFArQiuqi #gyncsm | |
Dee Sparacio @womenofteal RT @MIShouldTalk: T2 I know I was told very clearly by my first gyn Onc that I had no chance of recurrence, but here I am 4x later. I just hope everyone knows the possibility honestly. #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm T3: Many cancer survivors report that fear of recurrence impacts their survivorship. What are some tips for dealing with the fear of recurrence? #gyncsm | |
Uterine Cancer Awareness Network @ucan2020 #gyncsm | |
Tobey @BRCAinfo RT @MIShouldTalk: T2 I know I was told very clearly by my first gyn Onc that I had no chance of recurrence, but here I am 4x later. I just hope everyone knows the possibility honestly. #gyncsm | |
Christina Lizaso @btrfly12 RT @womenofteal: T2 good article from @AmericanCancer Can I Do Anything to Prevent Cancer Recurrence? https://t.co/EhFArQiuqi #gyncsm | |
Michele E. Collins @Michele_w_1_L t1: I’m curious if there has been any research as to whether patients diagnosed at an earlier stage for ovarian cancer recur later? #gyncsm | |
Nita Lee @NitaKarnikLee @gyncsm #gyncsm T2 monitoring for recurrence: Regular exams; education about symptoms to report; routine imaging not always indicated but depends on individual plan; tumor markers if appropriate. Consuder for Surveillance plan - individual pros and cons/ patients preferences | |
IamCervivor @IamCervivor RT @btrfly12: T2: T2: Survivorship plans are important for continued monitoring after initial diagnosis. The balance is listening to your body and getting things checked out without freaking out. #gyncsm | |
IamCervivor @IamCervivor RT @npeck: | |
Dee Sparacio @womenofteal T2 I ended up gaining weight during initial chemotherapy. I was told that weight loss would help reduce my risk. #gyncsm | |
Christina Lizaso @btrfly12 RT @gyncsm: T3: T3: Many cancer survivors report that fear of recurrence impacts their survivorship. What are some tips for dealing with the fear of recurrence? #gyncsm | |
IamCervivor @IamCervivor A3: We have so many great nuggets of advice on our blog (search for recurrence). A few are "Know your existence," "Own your story," Set boundaries, ask for help, journal it out, and take care of your mental health. https://t.co/25m45zv2WD #cervivor #GYNCSM | |
IamCervivor @IamCervivor RT @NitaKarnikLee: @gyncsm #gyncsm T2 monitoring for recurrence: @gyncsm #gyncsm T2 monitoring for recurrence: Regular exams; education about symptoms to report; routine imaging not always indicated but depends on individual plan; tumor markers if appropriate. Consuder for Surveillance plan - individual pros and cons/ patients preferences | |
Dee Sparacio @womenofteal @Michele_w_1_L The SEER data shows the rate of recurrence by stage but I am not sure if they actually track the time to recurrence. #gyncsm | |
Dee Sparacio @womenofteal RT @NitaKarnikLee: @gyncsm #gyncsm T2 monitoring for recurrence: @gyncsm #gyncsm T2 monitoring for recurrence: Regular exams; education about symptoms to report; routine imaging not always indicated but depends on individual plan; tumor markers if appropriate. Consuder for Surveillance plan - individual pros and cons/ patients preferences | |
Tobey @BRCAinfo @gyncsm T3: walking my dog always keeps me chill & works for me…. We both enjoy it #gyncsm | |
Dee Sparacio @womenofteal Great resource for those with cervical cancer. #gyncsm | |
Tobey @BRCAinfo RT @IamCervivor: A3: A3: We have so many great nuggets of advice on our blog (search for recurrence). A few are "Know your existence," "Own your story," Set boundaries, ask for help, journal it out, and take care of your mental health. https://t.co/25m45zv2WD #cervivor #GYNCSM | |
Christine (Cissy) White @healWRITEnow @womenofteal #gyncsm I've heard mixed things about weight loss & gain in relation to #ovariancancer. I wish there were more studies on this as well as if/how/how much dietary changes do/don't make before, during & after treatment. | |
Christina Lizaso @btrfly12 T3: There are some good resources - videos, podcasts, literature - about dealing with the fear of cancer recurrence because so many experience it. Know you are not alone. #gyncsm one via @CancerDotNet https://t.co/aFzmrUlrrP | |
Dee Sparacio @womenofteal RT @gyncsm: T3: T3: Many cancer survivors report that fear of recurrence impacts their survivorship. What are some tips for dealing with the fear of recurrence? #gyncsm | |
Salud America! @SaludAmerica Latino cancer survivors face a tough journey. Our leader, Dr. Amelie Ramirez of @UTHealthSA, is helping launch a 6-year @theNCI study to find new ways to help Latino cancer survivors heal, recover, and stop cancer from returning! #gyncsm #cancer #latino https://t.co/B6QhlePH8u | |
Amanda Crowell Itliong @MIShouldTalk RT @btrfly12: T1: T1: The recurrence rate for #ovariancancer is very, very high. It can be hard to talk about with patients - and some don't want to think about it - but it also surprises too many that didn't get an open discussion after initial treatment. #gyncsm | |
IamCervivor @IamCervivor RT @btrfly12: T3: T3: There are some good resources - videos, podcasts, literature - about dealing with the fear of cancer recurrence because so many experience it. Know you are not alone. #gyncsm one via @CancerDotNet https://t.co/aFzmrUlrrP | |
Christina Lizaso @btrfly12 RT @IamCervivor: A3: A3: We have so many great nuggets of advice on our blog (search for recurrence). A few are "Know your existence," "Own your story," Set boundaries, ask for help, journal it out, and take care of your mental health. https://t.co/25m45zv2WD #cervivor #GYNCSM | |
JackelineDelToro @JDelToroCordero RT @SaludAmerica: Latino cancer survivors face a tough journey. Our leader, Dr. Amelie Ramirez of @UTHealthSA, is helping launch a 6-year @theNCI study to find new ways to help Latino cancer survivors heal, recover, and stop cancer from returning! #gyncsm #cancer #latino https://t.co/B6QhlePH8u | |
Nita Lee @NitaKarnikLee @gyncsm Incredibly important to address! Any plans for education and surveillance we add as MD we should be recognizing how this creates anxiety! and really should be coupled with how to get resources on coping, normal expected anxiety... #gyncsm | |
Dee Sparacio @womenofteal @healWRITEnow This is an interesting article I ran across prepping for this chat Obesity And Overweight Associated With Increased Risk Of Developing Several Types Of Cancers https://t.co/fZNsR4qxQ2 HealthDay #gyncsm | |
IamCervivor @IamCervivor RT @SaludAmerica: Latino cancer survivors face a tough journey. Our leader, Dr. Amelie Ramirez of @UTHealthSA, is helping launch a 6-year @theNCI study to find new ways to help Latino cancer survivors heal, recover, and stop cancer from returning! #gyncsm #cancer #latino https://t.co/B6QhlePH8u | |
Patsy Hinson @patsyhinson T3 Knowlege helps give me a sense of control. This made recurrence somewhat easier for me. #gyncsm | |
Dee Sparacio @womenofteal RT @btrfly12: T3: T3: There are some good resources - videos, podcasts, literature - about dealing with the fear of cancer recurrence because so many experience it. Know you are not alone. #gyncsm one via @CancerDotNet https://t.co/aFzmrUlrrP | |
Amanda Crowell Itliong @MIShouldTalk T3 There are multiple orgs who don’t like those of us with multiple recurrences or terminal disease to share our stories. They like 1 and done-ers. Really doesn’t show the truth. #gyncsm | |
Uterine Cancer Awareness Network @ucan2020 T2 I think survivorship plans are very important its been 10 years since my diagnosis and hardly any of my physicians followed mine because I had endometrial cancer they didn't think it was important after the hysterectomy. If only they knew #gyncsm | |
Dee Sparacio @womenofteal @SaludAmerica @UTHealthSA @theNCI This is great news! #gyncsm | |
Dee Sparacio @womenofteal RT @NitaKarnikLee: @gyncsm Incredibly important to address! Any plans for education and surveillance we add as MD we should be recognizing how this creates anxiety! and really should be coupled with how to get resources on coping, normal expected anxiety... #gyncsm | |
Christine (Cissy) White @healWRITEnow @womenofteal Thanks Dee! #gyncsm | |
Dee Sparacio @womenofteal RT @patsyhinson: T3 Knowlege helps give me a sense of control. This made recurrence somewhat easier for me. #gyncsm | |
Christina Lizaso @btrfly12 THIS right here. I don't think it helps anyone when we hide the ugly cancer truths. #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm T4: What are some of the secondary cancers that those with a gynecologic cancer should be concerned about? What is the role of genetics and family history? What about secondary cancers related to treatment? #gyncsm | |
IamCervivor @IamCervivor RT @btrfly12: THIS right here. I don't think it helps anyone when we hide the ugly cancer truths. #gyncsm | |
Amanda Crowell Itliong @MIShouldTalk T3 I think the most important thing is to show those of us who LIVE with multiple recurrences and still make a positive impact and have a happy life! It’s tough, but I’m much better off than those frozen in fear! 💕 #gyncsm | |
Christina Lizaso @btrfly12 RT @gyncsm: T4: T4: What are some of the secondary cancers that those with a gynecologic cancer should be concerned about? What is the role of genetics and family history? What about secondary cancers related to treatment? #gyncsm | |
Christina Lizaso @btrfly12 RT @MIShouldTalk: T3 I think the most important thing is to show those of us who LIVE with multiple recurrences and still make a positive impact and have a happy life! It’s tough, but I’m much better off than those frozen in fear! 💕 #gyncsm | |
IamCervivor @IamCervivor LOVE this! | |
Dee Sparacio @womenofteal @MIShouldTalk I've run across that every now and then too. Recurrence may happen why not share the stories of those who are thriving after recurrence . #gyncsm | |
Dee Sparacio @womenofteal RT @ucan2020: T2 I think survivorship plans are very important its been 10 years since my diagnosis and hardly any of my physicians followed mine because I had endometrial cancer they didn't think it was important after the hysterectomy. If only they knew #gyncsm | |
Nita Lee @NitaKarnikLee RT @btrfly12: T3: T3: There are some good resources - videos, podcasts, literature - about dealing with the fear of cancer recurrence because so many experience it. Know you are not alone. #gyncsm one via @CancerDotNet https://t.co/aFzmrUlrrP | |
Dee Sparacio @womenofteal RT @gyncsm: T4: T4: What are some of the secondary cancers that those with a gynecologic cancer should be concerned about? What is the role of genetics and family history? What about secondary cancers related to treatment? #gyncsm | |
IamCervivor @IamCervivor A4: We can still get cancers that others get. According to @AmericanCancer, #cervicalcancer survivors are at higher risk for: mouth/throat, larynx, anal, vulvar, vaginal, lung, bladder/ureter, stomach, colorectal, pancreas, and acute myeloid leukemia. #GYNCSM | |
Christina Lizaso @btrfly12 T4: As we learn more and more about genetics, we learn more about what caners are connected and run in families. Know your family history if you can. See if multi-gene testing is advised as more is known. #gyncsm | |
Amanda Crowell Itliong @MIShouldTalk Now can we please do more to support cancer patients in weight loss! We are constantly on drugs that make it so difficult! | |
IamCervivor @IamCervivor RT @btrfly12: T4: T4: As we learn more and more about genetics, we learn more about what caners are connected and run in families. Know your family history if you can. See if multi-gene testing is advised as more is known. #gyncsm | |
Dee Sparacio @womenofteal T3 I like this article with tips from @sloan_kettering MMSKCC https://t.co/oKLfzz6Pgi #gyncsm | |
Michele E. Collins @Michele_w_1_L t3: I feel like oncologists think that closer surveillance will create anxiety for patients, but I am comforted by more frequent CA 125 testing. If it were up to me I’d like it done 3x a year but we’ve settled on 2x. #gyncsm | |
Christina Lizaso @btrfly12 T4: For my CHEK2 mutation, they are really still figuring out what all cancers this puts me at risk for. But I just try to start with the known and then add screening as learn more. Just keep adding doctors. #gyncsm | |
Dee Sparacio @womenofteal RT @IamCervivor: A4: A4: We can still get cancers that others get. According to @AmericanCancer, #cervicalcancer survivors are at higher risk for: mouth/throat, larynx, anal, vulvar, vaginal, lung, bladder/ureter, stomach, colorectal, pancreas, and acute myeloid leukemia. #GYNCSM | |
Carlos Orellana Garcia, MPH @Carlos_OGarcia RT @SaludAmerica: Latino cancer survivors face a tough journey. Our leader, Dr. Amelie Ramirez of @UTHealthSA, is helping launch a 6-year @theNCI study to find new ways to help Latino cancer survivors heal, recover, and stop cancer from returning! #gyncsm #cancer #latino https://t.co/B6QhlePH8u | |
Tobey @BRCAinfo @gyncsm T4 #brca mutation ~ puts you at a higher risk of breast & ovarian cancer…. Melanoma…. Prostrate…pancreatic #gyncsm | |
IamCervivor @IamCervivor RT @womenofteal: T3 I like this article with tips from @sloan_kettering MMSKCC https://t.co/oKLfzz6Pgi #gyncsm | |
Dee Sparacio @womenofteal Yes so important - | |
Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm T4 #brca mutation ~ puts you at a higher risk of breast & ovarian cancer…. Melanoma…. Prostrate…pancreatic #gyncsm | |
Uterine Cancer Awareness Network @ucan2020 One of my tips is join a support group so you have others to talk with about fears of reoccurrence because not thinking about it won't help. I often wonder is that why I started having seizures 4 years ago because I tried blocking it all out #gyncsm | |
Dee Sparacio @womenofteal T4 From @EKing719 in women who have had Hpv-related gyn malignancies there is a risk of anal cancer . Check @FarrahFawcettFN https://t.co/DPVvvpaqzF and at https://t.co/bheTVoAKCu #gyncsm | |
Christine (Cissy) White @healWRITEnow @womenofteal @MIShouldTalk @womenofteal We need those stories, like yours, to know what's possible. It gives hope. But we need more than the upbeat stories. We need all the stories about all the realities. We need truth & representation #gyncsm & that we aren't alone whether we are (or aren't) "unicorns" | |
Onyinye Balogun MD, MSc @GlobalRadOnc There have been conflicting study results but generally we don't think that radiotherapy increases your risk of rectal cancer for instance. In rare instances, you can develop sarcoma about 10 years after radiotherapy. #gyncsm | |
Christina Lizaso @btrfly12 RT @IamCervivor: A4: A4: We can still get cancers that others get. According to @AmericanCancer, #cervicalcancer survivors are at higher risk for: mouth/throat, larynx, anal, vulvar, vaginal, lung, bladder/ureter, stomach, colorectal, pancreas, and acute myeloid leukemia. #GYNCSM | |
IamCervivor @IamCervivor RT @ucan2020: One of my tips is join a support group so you have others to talk with about fears of reoccurrence because not thinking about it won't help. I often wonder is that why I started having seizures 4 years ago because I tried blocking it all out #gyncsm | |
Christina Lizaso @btrfly12 Taking Tamoxifen for breast cancer can increase the risk for uterine cancer (endometrial cancer and uterine sarcoma). #gyncsm | |
Amanda Crowell Itliong @MIShouldTalk Is anybody out there doing a great job on supporting cancer patients with weight loss? I’m on so many drugs that make even not gaining so challenging! Also limited on diet and exercise because of surgery complications and side effects. #gyncsm | |
Christine (Cissy) White @healWRITEnow @MIShouldTalk #gyncsm And because this may be true for many of us, we need to know what's possible & also to share lessons learned, what helps, etc. because those who have been through a lot also know a lot & have wisdom to share. We need ALL of it! | |
Nita Lee @NitaKarnikLee @gyncsm T4: #gyncsm- for basics also making sure survivors keep up with screening depending on phase in cancer care and age re #breastcancerscreening #colorectalcancerscreening #lungcancerscreening // know family history// refer for genetic counseling!! | |
Christina Lizaso @btrfly12 RT @healWRITEnow: @womenofteal @MIShouldTalk @womenofteal We need those stories, like yours, to know what's possible. It gives hope. But we need more than the upbeat stories. We need all the stories about all the realities. We need truth & representation #gyncsm & that we aren't alone whether we are (or aren't) "unicorns" | |
Patsy Hinson @patsyhinson T4 those of us with genetic mutations have to deal with risk of getting yet another cancer and decisions on how to prevent that. #gyncsm | |
Dee Sparacio @womenofteal @healWRITEnow @MIShouldTalk I agree 100% . Teal sisters share with each other but others should know too. Gyn Support groups have such a cross section of women at initial dx , different stages and recurrences #gyncsm | |
Michele E. Collins @Michele_w_1_L t4: I think patients should be informed of any secondary cancers we are at risk for and what symptoms to look out for. #gyncsm | |
Tobey @BRCAinfo RT @MIShouldTalk: Is anybody out there doing a great job on supporting cancer patients with weight loss? I’m on so many drugs that make even not gaining so challenging! Also limited on diet and exercise because of surgery complications and side effects. #gyncsm | |
Dee Sparacio @womenofteal RT @GlobalRadOnc: There have been conflicting study results but generally we don't think that radiotherapy increases your risk of rectal cancer for instance. In rare instances, you can develop sarcoma about 10 years after radiotherapy. #gyncsm | |
Emil Lou, MD, PhD, FACP @cancerassassin1 RT @NatRevClinOncol: | |
Tobey @BRCAinfo RT @patsyhinson: T4 those of us with genetic mutations have to deal with risk of getting yet another cancer and decisions on how to prevent that. #gyncsm | |
Dee Sparacio @womenofteal T4HNPCC or Lynch Syndrome While HNPCC poses the greatest risk of colorectal cancer, women with HNPCC have about a 12 percent lifetime risk of developing ovarian and a 40-60 percent chance of developing uterine cancer.” https://t.co/QbGQXoXRD5 #gyncsm | |
Dee Sparacio @womenofteal RT @healWRITEnow: @MIShouldTalk #gyncsm And because this may be true for many of us, we need to know what's possible & also to share lessons learned, what helps, etc. because those who have been through a lot also know a lot & have wisdom to share. We need ALL of it! | |
Dee Sparacio @womenofteal RT @NitaKarnikLee: @gyncsm T4: @gyncsm T4: #gyncsm- for basics also making sure survivors keep up with screening depending on phase in cancer care and age re #breastcancerscreening #colorectalcancerscreening #lungcancerscreening // know family history// refer for genetic counseling!! | |
IamCervivor @IamCervivor RT @womenofteal: T4HNPCC or Lynch Syndrome While HNPCC poses the greatest risk of colorectal cancer, women with HNPCC have about a 12 percent lifetime risk of developing ovarian and a 40-60 percent chance of developing uterine cancer.” https://t.co/QbGQXoXRD5 #gyncsm | |
Dee Sparacio @womenofteal RT @Michele_w_1_L: t4: t4: I think patients should be informed of any secondary cancers we are at risk for and what symptoms to look out for. #gyncsm | |
Nita Lee @NitaKarnikLee RT @womenofteal: T4HNPCC or Lynch Syndrome While HNPCC poses the greatest risk of colorectal cancer, women with HNPCC have about a 12 percent lifetime risk of developing ovarian and a 40-60 percent chance of developing uterine cancer.” https://t.co/QbGQXoXRD5 #gyncsm | |
Christina Lizaso @btrfly12 T4: BRCA gets a lot of attention, but luckily seeing more being paid to Lynch syndrome - and others - that patients and families should be aware of and potentially screened for #gyncsm | |
Christina Lizaso @btrfly12 RT @Michele_w_1_L: t4: t4: I think patients should be informed of any secondary cancers we are at risk for and what symptoms to look out for. #gyncsm | |
Tobey @BRCAinfo @patsyhinson I think those of us with genetic mutations are more informed than others. Doctors pay attention & use us for research as well #gyncsm | |
Christina Lizaso @btrfly12 @MIShouldTalk @IamCervivor has a fabulous program - #gyncsm | |
Christina Lizaso @btrfly12 T4: Ran across this while doing chat prep: Meta-analysis and retrospective pharmacovigilance study of MDS and AML in patients receiving PARP inhibitor treatment https://t.co/LXHXHi7T6K #gyncsm | |
Dee Sparacio @womenofteal T4 Now to make sure all women dx with ovarian cancer have genetic testing - it is important to treatment decision making. #gyncsm | |
John Novack @J2Novack RT @btrfly12: T3: T3: There are some good resources - videos, podcasts, literature - about dealing with the fear of cancer recurrence because so many experience it. Know you are not alone. #gyncsm one via @CancerDotNet https://t.co/aFzmrUlrrP | |
Tobey @BRCAinfo @womenofteal THIS should be standard of care #gyncsm | |
Tobey @BRCAinfo RT @womenofteal: T4 Now to make sure all women dx with ovarian cancer have genetic testing - it is important to treatment decision making. #gyncsm | |
Christina Lizaso @btrfly12 It can be heavy to talk about all the additional risks, but like someone said, knowledge can help one deal with the fear and not be blind-sideded if something does come up. #gyncsm | |
Christine (Cissy) White @healWRITEnow Kind of back to preventing recurrence. But what treatment we get initially, if we have a gynonc (or not), & what type of surgery can all matter as well. #gyncsm https://t.co/zkEa3MyfP3 | |
Patsy Hinson @patsyhinson T5 many already have a list of conditions prior to cancer. This just adds to the pile. Can be hard to assess what is causing what. #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm T5: Are there other physical and mental health conditions that being diagnosed with and treated for gynecologic cancers increase the risk of experiencing? #gyncsm | |
Nita Lee @NitaKarnikLee @patsyhinson #gyncsm T4; Very important point! Important to know for patients who on your medical team can best help quarterback getting appropriate tests scheduled, ordered up to date etc- sometimes gyn onc or med onc or PCP or cancer genetics team . @FacingOurRisk - great resources here! | |
Dee Sparacio @womenofteal @btrfly12 @MIShouldTalk @IamCervivor Here is the facebook page for Survivor Slimdown https://t.co/tVeEbxSI3N #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm RT @healWRITEnow: Kind of back to preventing recurrence. But what treatment we get initially, if we have a gynonc (or not), & what type of surgery can all matter as well. #gyncsm https://t.co/zkEa3MyfP3 | |
Saman Maleki, PhD @SMImmunology RT @NatRevClinOncol: | |
Christina Lizaso @btrfly12 RT @womenofteal: @btrfly12 @MIShouldTalk @IamCervivor Here is the facebook page for Survivor Slimdown https://t.co/tVeEbxSI3N #gyncsm | |
Amanda Crowell Itliong @MIShouldTalk This is interesting to overlay with Racial Disparities in Gyn Cancer too! | |
Dee Sparacio @womenofteal RT @btrfly12: T4: T4: Ran across this while doing chat prep: Meta-analysis and retrospective pharmacovigilance study of MDS and AML in patients receiving PARP inhibitor treatment https://t.co/LXHXHi7T6K #gyncsm | |
Christina Lizaso @btrfly12 RT @NitaKarnikLee: @patsyhinson #gyncsm T4; Very important point! Important to know for patients who on your medical team can best help quarterback getting appropriate tests scheduled, ordered up to date etc- sometimes gyn onc or med onc or PCP or cancer genetics team . @FacingOurRisk - great resources here! | |
Christina Lizaso @btrfly12 RT @womenofteal: T4 Now to make sure all women dx with ovarian cancer have genetic testing - it is important to treatment decision making. #gyncsm | |
Dee Sparacio @womenofteal RT @gyncsm: T5: T5: Are there other physical and mental health conditions that being diagnosed with and treated for gynecologic cancers increase the risk of experiencing? #gyncsm | |
IamCervivor @IamCervivor A5: PTSD is often experienced in our community from internal radiation. It may take someone years to process through the emotional toll - as for physical, there are various side effects from lymphedema, infertility, osteoporosis, gastrointestinal issues, etc. #GYNCSM | |
Michele E. Collins @Michele_w_1_L t5: For women who were younger who went into surgical menopause due to surgery, this can create many physical & psychological issues. #gyncsm | |
IamCervivor @IamCervivor RT @NitaKarnikLee: @patsyhinson #gyncsm T4; Very important point! Important to know for patients who on your medical team can best help quarterback getting appropriate tests scheduled, ordered up to date etc- sometimes gyn onc or med onc or PCP or cancer genetics team . @FacingOurRisk - great resources here! | |
Dee Sparacio @womenofteal RT @IamCervivor: A5: A5: PTSD is often experienced in our community from internal radiation. It may take someone years to process through the emotional toll - as for physical, there are various side effects from lymphedema, infertility, osteoporosis, gastrointestinal issues, etc. #GYNCSM | |
Patsy Hinson @patsyhinson T5 the hardest part of being diagnosed to me was the emotional pain it cause for me and my family. Brutal. #gyncsm | |
Dee Sparacio @womenofteal RT @Michele_w_1_L: t5: t5: For women who were younger who went into surgical menopause due to surgery, this can create many physical & psychological issues. #gyncsm | |
Tobey @BRCAinfo RT @IamCervivor: A5: A5: PTSD is often experienced in our community from internal radiation. It may take someone years to process through the emotional toll - as for physical, there are various side effects from lymphedema, infertility, osteoporosis, gastrointestinal issues, etc. #GYNCSM | |
Christina Lizaso @btrfly12 RT @Michele_w_1_L: t5: t5: For women who were younger who went into surgical menopause due to surgery, this can create many physical & psychological issues. #gyncsm | |
Christina Lizaso @btrfly12 RT @IamCervivor: A5: A5: PTSD is often experienced in our community from internal radiation. It may take someone years to process through the emotional toll - as for physical, there are various side effects from lymphedema, infertility, osteoporosis, gastrointestinal issues, etc. #GYNCSM | |
Amanda Crowell Itliong @MIShouldTalk @NitaKarnikLee @patsyhinson @FacingOurRisk So true! We need some better AI for tracking all of this! The work I do with @RadiologyACR is working on using AI to improve follow up and we definitely need more of this in following cancer of all kinds! #gyncsm | |
Nita Lee @NitaKarnikLee @gyncsm #gyncsm T5: Issues related to sexual function; chronic changes in urinary and GI function after surgery, chemo and or RT.; early referring to physical therapy, urogyn, GI nutrition.... need to ask and talk about even if no easy answers. | |
Christina Lizaso @btrfly12 @Michele_w_1_L surgical menopause is another topic - like recurrence - that sometimes isn't adequately covered :( #gyncsm | |
Christina Lizaso @btrfly12 RT @NitaKarnikLee: @gyncsm #gyncsm T5: @gyncsm #gyncsm T5: Issues related to sexual function; chronic changes in urinary and GI function after surgery, chemo and or RT.; early referring to physical therapy, urogyn, GI nutrition.... need to ask and talk about even if no easy answers. | |
Tobey @BRCAinfo RT @btrfly12: @Michele_w_1_L surgical menopause is another topic - like recurrence - that sometimes isn't adequately covered :( #gyncsm | |
Dee Sparacio @womenofteal RT @NitaKarnikLee: @gyncsm #gyncsm T5: @gyncsm #gyncsm T5: Issues related to sexual function; chronic changes in urinary and GI function after surgery, chemo and or RT.; early referring to physical therapy, urogyn, GI nutrition.... need to ask and talk about even if no easy answers. | |
Dee Sparacio @womenofteal RT @btrfly12: @Michele_w_1_L surgical menopause is another topic - like recurrence - that sometimes isn't adequately covered :( #gyncsm | |
Uterine Cancer Awareness Network @ucan2020 T5 In my own situation it has increased my anxiety and depression at times especially in regards to my infertility. #gyncsm | |
Dee Sparacio @womenofteal T% From the recent @AACR Ovarian Cancer Patients at Higher Risk for Mental Illness https://t.co/FPY9IGbQrA #gyncsm | |
Christina Lizaso @btrfly12 I believe that heart issues can come up after some types of treatment.... It can be depressing to look at all the potential things but also when you are ready for the info, good to have it and consider. #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm T6: What impact does having had cancer have on risk for and severity of COVID-19 and other non-cancer related diseases? #gyncsm | |
Christine (Cissy) White @healWRITEnow @IamCervivor #gyncsm Confounding this is that the rate of #ovariancancer is higher in those who have had #PTSD prior to diagnosis. And, we know from the #ACEs study, those of us with trauma in childhood have increased risk of many diseases, including cancer. #gyncsm | |
Kathy Quinlan 🇺🇦 @kquinlan35 RT @ucan2020: T2 I think survivorship plans are very important its been 10 years since my diagnosis and hardly any of my physicians followed mine because I had endometrial cancer they didn't think it was important after the hysterectomy. If only they knew #gyncsm | |
Christina Lizaso @btrfly12 https://t.co/T5tQaBYwp7 #gyncsm | |
“Get Screened” King-Mullins, MD @EKing719 @womenofteal @FarrahFawcettFN Thanks for sharing & tagging me. Sorry I missed the chat. Women are 2x more likely to get & 1.5x more likely to die from #analcancer than men. Vulvar, vaginal and cervical cancer increases your risk! Talk to your provider!!! @ReallyMarcia @AmericanCancer #gyncsm | |
IamCervivor @IamCervivor A6: Most research shows that having cancer increases your risk of severe illness from COVID-19. Other factors include a weakened immune system, older age, and other medical conditions. #GYNCSM | |
Christina Lizaso @btrfly12 RT @EKing719: @womenofteal @FarrahFawcettFN Thanks for sharing & tagging me. Sorry I missed the chat. Women are 2x more likely to get & 1.5x more likely to die from #analcancer than men. Vulvar, vaginal and cervical cancer increases your risk! Talk to your provider!!! @ReallyMarcia @AmericanCancer #gyncsm | |
IamCervivor @IamCervivor RT @EKing719: @womenofteal @FarrahFawcettFN Thanks for sharing & tagging me. Sorry I missed the chat. Women are 2x more likely to get & 1.5x more likely to die from #analcancer than men. Vulvar, vaginal and cervical cancer increases your risk! Talk to your provider!!! @ReallyMarcia @AmericanCancer #gyncsm | |
Dee Sparacio @womenofteal T5 Recovery from Surgery is difficult . Hoping there will be more physical therapy recommended after surgery and other treatments. #gyncsm | |
Christina Lizaso @btrfly12 RT @IamCervivor: A6: A6: Most research shows that having cancer increases your risk of severe illness from COVID-19. Other factors include a weakened immune system, older age, and other medical conditions. #GYNCSM | |
Dee Sparacio @womenofteal RT @gyncsm: T6: T6: What impact does having had cancer have on risk for and severity of COVID-19 and other non-cancer related diseases? #gyncsm | |
Dee Sparacio @womenofteal RT @healWRITEnow: @IamCervivor #gyncsm Confounding this is that the rate of #ovariancancer is higher in those who have had #PTSD prior to diagnosis. And, we know from the #ACEs study, those of us with trauma in childhood have increased risk of many diseases, including cancer. #gyncsm | |
Dee Sparacio @womenofteal RT @EKing719: @womenofteal @FarrahFawcettFN Thanks for sharing & tagging me. Sorry I missed the chat. Women are 2x more likely to get & 1.5x more likely to die from #analcancer than men. Vulvar, vaginal and cervical cancer increases your risk! Talk to your provider!!! @ReallyMarcia @AmericanCancer #gyncsm | |
Dee Sparacio @womenofteal RT @IamCervivor: A6: A6: Most research shows that having cancer increases your risk of severe illness from COVID-19. Other factors include a weakened immune system, older age, and other medical conditions. #GYNCSM | |
Michele E. Collins @Michele_w_1_L t6: one of my concerns are potential cardiac issues due to cancer treatment combined w surgical menopause. #gyncsm | |
Nita Lee @NitaKarnikLee @IamCervivor T5: PTSD #cervicalcancer This is a critical point that needs more specific research!!! #gyncsm the trauma inherent in needed curative treatment for locally advanced cervical cancer is a terrible burden. Thank you for bringing this up! Would really like to work with pts on this! | |
Christina Lizaso @btrfly12 You may not always think to bring it up, but do mention to all medical professionals you see that you are a cancer survivor and ask if there are things to watch for related to their specialty. #gyncsm | |
Christine (Cissy) White @healWRITEnow @IamCervivor Lots of research related to this topic. #gyncsm And the book Childhood Disrupted, by @DonnaJackNak discusses this as well. https://t.co/owDDEsoC3o | |
Christina Lizaso @btrfly12 RT @womenofteal: T5 Recovery from Surgery is difficult . Hoping there will be more physical therapy recommended after surgery and other treatments. #gyncsm | |
GYN Cancer | #GYNCSM @gyncsm Lots of great input and sharing. We use the last minutes of the chat to wrap up and share closing thoughts. What did you learn or were you reminded of during this chat? You can start your tweet with TIL: standing for Today I Learned. #gyncsm | |
Dee Sparacio @womenofteal T6 you can find resources at @GYNCancer site https://t.co/fvRX6dpubK #gyncsm | |
Dee Sparacio @womenofteal RT @NitaKarnikLee: @IamCervivor T5: @IamCervivor T5: PTSD #cervicalcancer This is a critical point that needs more specific research!!! #gyncsm the trauma inherent in needed curative treatment for locally advanced cervical cancer is a terrible burden. Thank you for bringing this up! Would really like to work with pts on this! | |
IamCervivor @IamCervivor @healWRITEnow Yes! We cannot forget the complexities of trauma! #GYNCSM | |
IamCervivor @IamCervivor RT @NitaKarnikLee: @IamCervivor T5: @IamCervivor T5: PTSD #cervicalcancer This is a critical point that needs more specific research!!! #gyncsm the trauma inherent in needed curative treatment for locally advanced cervical cancer is a terrible burden. Thank you for bringing this up! Would really like to work with pts on this! | |
Dee Sparacio @womenofteal RT @gyncsm: Lots of great input and sharing. We use the last minutes of the chat to wrap up and share closing thoughts. What did you learn or were you reminded of during this chat? You can start your tweet with TIL: standing for Today I Learned. #gyncsm | |
IamCervivor @IamCervivor RT @btrfly12: You may not always think to bring it up, but do mention to all medical professionals you see that you are a cancer survivor and ask if there are things to watch for related to their specialty. #gyncsm | |
Christina Lizaso @btrfly12 TIL: Hard conversations are... hard. But let's not avoid them. Cancer stories are not all "inspirational/positive" but they are all important and provide so much value. Thanks to all who share their cancer truths. #gyncsm | |
Christine (Cissy) White @healWRITEnow @patsyhinson #gyncsm I relate. My recurrence hit my daughter hard. It ended the hope of cure & made death, disability, & chronic health issues much more likely - which she felt, to some extent, of course, after diagnosis & treatment but recurrence was different. It means: this never ends. | |
Christina Lizaso @btrfly12 RT @SaludAmerica: Latino cancer survivors face a tough journey. Our leader, Dr. Amelie Ramirez of @UTHealthSA, is helping launch a 6-year @theNCI study to find new ways to help Latino cancer survivors heal, recover, and stop cancer from returning! #gyncsm #cancer #latino https://t.co/B6QhlePH8u | |
Dee Sparacio @womenofteal Yes! | |
Christine (Cissy) White @healWRITEnow RT @IamCervivor: @healWRITEnow Yes! We cannot forget the complexities of trauma! #GYNCSM | |
GYN Cancer | #GYNCSM @gyncsm Thanks all. We look forward to you joining us at the next #gyncsm chat on Wed, June 9, at 8pmET (new time for 2021) when we’ll discuss “GYN Cancer Research News” from #SGOMtg #ASCO21 | |
IamCervivor @IamCervivor RT @gyncsm: Thanks all. We look forward to you joining us at the next #gyncsm chat on Wed, June 9, at 8pmET (new time for 2021) when we’ll discuss “GYN Cancer Research News” from #SGOMtg #ASCO21 | |
GYN Cancer | #GYNCSM @gyncsm Just joining #gyncsm? Sorry if you missed us due to our changing the chat time for 2021. #gyncsm will now be held at 8pmET | 7pmCT | 5pmPT. Look for the chat recap and resource links to be posted on our blog shortly https://t.co/oAfi7Me49e | |
Tobey @BRCAinfo @gyncsm Today I was reminded that cancer is confusing & scary #gyncsm | |
Uterine Cancer Awareness Network @ucan2020 RT @btrfly12: You may not always think to bring it up, but do mention to all medical professionals you see that you are a cancer survivor and ask if there are things to watch for related to their specialty. #gyncsm | |
Tobey @BRCAinfo RT @gyncsm: Thanks all. We look forward to you joining us at the next #gyncsm chat on Wed, June 9, at 8pmET (new time for 2021) when we’ll discuss “GYN Cancer Research News” from #SGOMtg #ASCO21 | |
Christine (Cissy) White @healWRITEnow RT @btrfly12: TIL: TIL: Hard conversations are... hard. But let's not avoid them. Cancer stories are not all "inspirational/positive" but they are all important and provide so much value. Thanks to all who share their cancer truths. #gyncsm | |
Christine (Cissy) White @healWRITEnow RT @gyncsm: Just joining #gyncsm? Sorry if you missed us due to our changing the chat time for 2021. #gyncsm will now be held at 8pmET | 7pmCT | 5pmPT. Look for the chat recap and resource links to be posted on our blog shortly https://t.co/oAfi7Me49e | |
Christina Lizaso @btrfly12 @BRCAinfo @gyncsm :( hard #cancertruth #gyncsm | |
Dee Sparacio @womenofteal @patsyhinson I hear you. My son wanted to transfer to a college closer to home when I was initially dx. Promising to let him know of any bad news allowed us to move forward and him to return to college. #gyncsm | |
Michele E. Collins @Michele_w_1_L til: I feel like Doctors need to meet patients where they are. If they are asking for information, give it to them. For a lot of patients, knowledge is power. #gyncsm | |
Dee Sparacio @womenofteal RT @gyncsm: Thanks all. We look forward to you joining us at the next #gyncsm chat on Wed, June 9, at 8pmET (new time for 2021) when we’ll discuss “GYN Cancer Research News” from #SGOMtg #ASCO21 | |
Dee Sparacio @womenofteal RT @gyncsm: Just joining #gyncsm? Sorry if you missed us due to our changing the chat time for 2021. #gyncsm will now be held at 8pmET | 7pmCT | 5pmPT. Look for the chat recap and resource links to be posted on our blog shortly https://t.co/oAfi7Me49e | |
Nita Lee @NitaKarnikLee #gyncsm great resources in print materials and series of excellent webinars and self directed tools on many topics @GYNCancer https://t.co/CdVK9qnztR Free and easy to access and share! https://t.co/9IaUa5Jfhs | |
Dee Sparacio @womenofteal @BRCAinfo @gyncsm But it helps to be with others who understand exactly how you feel- emotionally and physically. #gyncsm | |
Dee Sparacio @womenofteal RT @NitaKarnikLee: #gyncsm great resources in print materials and series of excellent webinars and self directed tools on many topics @GYNCancer https://t.co/CdVK9qnztR Free and easy to access and share! https://t.co/9IaUa5Jfhs | |
GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. Be safe and well and thanks again for joining. | |
Amanda Crowell Itliong @MIShouldTalk I’m so appreciative of all I learn from #gyncsm! ❤️💕🥇handmade virtual thank you card I made 😉 https://t.co/TKle4jiHn3 | |
Uterine Cancer Awareness Network @ucan2020 Thanks for allowing UCAN to join in tonight! It is conversations like these that help us talk about it! Thank you so much for what you do! #gyncsm | |
Tobey @BRCAinfo @womenofteal @gyncsm Yes! Thank you for doing what you do 🤗 #gyncsm | |
Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm | |
Christine (Cissy) White @healWRITEnow @patsyhinson And that doesn't mean there can't be good quality life while managing cancer, but it means there's no going back to how things were before. Per my oncologist, for many (not all), recurrence is much harder to deal with than diagnosis - for us & our loved ones. #gyncsm | |
NCI Cancer Stats @NCICancerStats Did you know there will be ~14,480 new cases of #CervicalCancer in the US in 2021? Watch our ‘Did You Know?’ video to learn more about this cancer: https://t.co/6wzBhK8hmZ #GynCSM #NWHW | |
Christina Lizaso @btrfly12 @MIShouldTalk love, love, love this :) 🥰 #gyncsm | |
Dee Sparacio @womenofteal @healWRITEnow @patsyhinson Yes recurrence is much harder in ways than initial dx. Even when we "know the drill" and the doctors and nurses. #gyncsm | |
Dee Sparacio @womenofteal Stay well Teal Sisters, healthcare providers and caregivers. #gyncsm | |
Dee Sparacio @womenofteal So grateful for my #gyncsm co-moderators! @btrfly12 - Crafter of amazing questions And our health care moderators | |
Christina Lizaso @btrfly12 #gyncsm : | |
Uterine Cancer Awareness Network @ucan2020 RT @gyncsm: Thanks all. We look forward to you joining us at the next #gyncsm chat on Wed, June 9, at 8pmET (new time for 2021) when we’ll discuss “GYN Cancer Research News” from #SGOMtg #ASCO21 |
#GynCSM content from Twitter.