#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
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See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community for gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Tobey @BRCAinfo Hi everyone~ how are you all? Tobey here from the “sunshine state” where covid is out of control! 😷#gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | Christina Lizaso @btrfly12 Hi All - I’ll be moderating as @gyncsm today. I'm a high-risk previvor and this week is "waiting for annual breast MRI results week". Super fun, lol. #gyncsm |
 | Erica Bednar @EMBOSU Hi all - it's been a while! I'm Erica, genetic counselor focusing on hereditary gyn cancers. Looking forward to listening in on tonight's chat! #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo Great to see you this month Tobey #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
| Tobey @BRCAinfo @btrfly12 @gyncsm Good luck 👍 🙏♥️ you’ve got this #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU Hi ERica . So glad you could join us tonight! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to “listen only” during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! |
 | Mutant Strong @IrinaBrooke1 Hey it’s been a while for me as well. I’m Irina Brooke aka mutant strong. I’m a patient advocate. #gyncsm |
 | Elixir Fund @elixirfund Meg from @elixirfund, a nonprofit that provides comfort care to cancer patients & their caregivers "#gyncsm" |
| Christina Lizaso @btrfly12 @BRCAinfo @gyncsm Thanks! #gyncsm |
| Dee Sparacio @womenofteal Dee here! Dx with #ovca Stage3B 2005, recurrence 2008, Ovarian Cancer research advocate, blogger, co-Author of “100 Questions and Answers about Ovarian cancer” & co-moderator #gyncsm |
| Tobey @BRCAinfo @womenofteal Thank you! Back atcha #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: Our co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself. #gyncsm |
 | IamCervivor @IamCervivor Hey everyone! Morgan here. Looking forward to tonight’s chat! #gyncsm |
| Dee Sparacio @womenofteal @IrinaBrooke1 Hi there ! Happy to have you back with us tonight! #gyncsm |
| Christina Lizaso @btrfly12 @BRCAinfo "Lone Star State" over here - same :( #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: Hi All - I’ll be moderating as @gyncsm today. I'm a high-risk previvor and this week is "waiting for annual breast MRI results week". Super fun, lol. #gyncsm |
| Tobey @BRCAinfo @IrinaBrooke1 Hi there! #gyncsm |
| Mutant Strong @IrinaBrooke1 @womenofteal Thanks you #gyncsm |
| Dee Sparacio @womenofteal @elixirfund Hi Meg, Thanks for joining us tonight. #gyncsm Hope you were able to stay cool today- hot one out there. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Note #gyncsm chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| Dee Sparacio @womenofteal @IamCervivor Hi Morgan - So happy you are here with us . #gyncsm |
| Sarah Temkin @temkins RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Note #gyncsm chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| Dee Sparacio @womenofteal RT @gyncsm: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy Note #gyncsm chats are an open discussion and all are welcome to share from their experiences and perspectives. |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Message to exchange email addresses/personal information.#gyncsm |
| Mutant Strong @IrinaBrooke1 RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| Sarah Temkin @temkins RT @gyncsm: Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
| GYN Cancer | #GYNCSM @gyncsm Wonderful to have you all joining along for #gyncsm We also welcome all those “listening in”. We'd love for you to tweet #gyncsm so we know you are here. You can also always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG |
| Dee Sparacio @womenofteal Thank you to all who have tweeted valuable information to our community during the past month using the #gyncsm hashtag and those who helped promote tonight's chat. |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #gyncsm we’ll be discussing Cancer Myths. We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight on #gyncsm we’ll be discussing Cancer Myths. We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
| GYN Cancer | #GYNCSM @gyncsm You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/U1P5wPx09N Here comes our first topic... |
| Dee Sparacio @womenofteal @elixirfund Me too. Hope I keep the internet up and running tonight. #gyncsm |
 | Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: Tonight on #gyncsm we’ll be discussing Cancer Myths. We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
 | Michele E. Collins @Michele_w_1_L Michele from NJ. Ovarian Cancer Survivor since 2015 🦋 #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: You can find the 6 questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/U1P5wPx09N Here comes our first topic... |
| GYN Cancer | #GYNCSM @gyncsm T1: For you, what makes something a cancer myth? Is it strictly false information or is it something more? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc Good evening! Matt Katz, radiation oncologist in MA/NH. Looking forward to learning and sharing with #gyncsm 🙂 |
| Dee Sparacio @womenofteal RT @gyncsm: T1: T1: For you, what makes something a cancer myth? Is it strictly false information or is it something more? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T1: T1: For you, what makes something a cancer myth? Is it strictly false information or is it something more? #gyncsm |
| Dee Sparacio @womenofteal @subatomicdoc Well Hello Matt. Great to have you here. #gyncsm |
 | Kathy Quinlan 🇺🇦 @kquinlan35 Hi Kathy here excited to listen in to tonight’s chat thank you #gyncsm |
| Mutant Strong @IrinaBrooke1 @gyncsm Probably false information or just misconceptions about cancer #gyncsm |
| Sarah Temkin @temkins RT @gyncsm: Tonight on #gyncsm we’ll be discussing Cancer Myths. We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal Hi Dee! Great to be able to join - serendipity is a good thing! I hope all is well 🙂 #gyncsm |
| Christina Lizaso @btrfly12 T1: I see the term "cancer myth" as a widely held belief about cancer. It could be true, false, misleading or anywhere along the spectrum. For me, it is a vague idea that I haven't really looked into the facts of. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: T1: T1: I see the term "cancer myth" as a widely held belief about cancer. It could be true, false, misleading or anywhere along the spectrum. For me, it is a vague idea that I haven't really looked into the facts of. #gyncsm |
| Dee Sparacio @womenofteal A1 I think of it as misinformation that for whatever reason has persisted through time. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T1: T1: I see the term "cancer myth" as a widely held belief about cancer. It could be true, false, misleading or anywhere along the spectrum. For me, it is a vague idea that I haven't really looked into the facts of. #gyncsm |
| Mutant Strong @IrinaBrooke1 RT @btrfly12: T1: T1: I see the term "cancer myth" as a widely held belief about cancer. It could be true, false, misleading or anywhere along the spectrum. For me, it is a vague idea that I haven't really looked into the facts of. #gyncsm |
| IamCervivor @IamCervivor RT @gyncsm: Tonight on #gyncsm we’ll be discussing Cancer Myths. We’ll use a topic format with T1; T2 etc. Please include the corresponding T# at the front of your comment or answer. We will also end our chat with a chance to share TIL: thoughts standing for “Today I Learned”. |
| Sarah Temkin @temkins A1: Sometimes people make generalizations ('cancer myths') about cancer, cancer treatments or cancer outcomes - but every cancer is different and every patient has an individual experience. #gyncsm |
| Mutant Strong @IrinaBrooke1 RT @aneinternationa: #Dazzle4Rare Important information to know! 🦓💪#gyncsm @gyncsm #gynecologicalcancer |
| Christina Lizaso @btrfly12 @womenofteal I like that part of the definition - persistence over time #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: A1: A1: Sometimes people make generalizations ('cancer myths') about cancer, cancer treatments or cancer outcomes - but every cancer is different and every patient has an individual experience. #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: A1: A1: Sometimes people make generalizations ('cancer myths') about cancer, cancer treatments or cancer outcomes - but every cancer is different and every patient has an individual experience. #gyncsm |
| Michele E. Collins @Michele_w_1_L t1: I think of cancer myths as outdated information or false beliefs that people have regarding cancer. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @btrfly12 T1: Great definition. It may also be an assumption about the disease, or its treatments, that are taken for granted based up conventional wisdom, rather than evidence. When passed down by attendings to trainees, we called it #oncolore in my residency #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T2: What are some cancer myths that you grew up with? What are some you have encountered as you've been impacted by cancer or worked with cancer patients? (re: causes/what happens during treatment/about emerging treatments/other) #gyncsm |
| Dee Sparacio @womenofteal RT @subatomicdoc: @btrfly12 T1: @btrfly12 T1: Great definition. It may also be an assumption about the disease, or its treatments, that are taken for granted based up conventional wisdom, rather than evidence. When passed down by attendings to trainees, we called it #oncolore in my residency #gyncsm |
| Tobey @BRCAinfo @btrfly12 When people keep harping on a false fact you start to think maybe they are right! #Cancer doesn’t deserve “blame or shame “ #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t1: t1: I think of cancer myths as outdated information or false beliefs that people have regarding cancer. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T2: T2: What are some cancer myths that you grew up with? What are some you have encountered as you've been impacted by cancer or worked with cancer patients? (re: causes/what happens during treatment/about emerging treatments/other) #gyncsm |
| IamCervivor @IamCervivor A1: For sure false information but also stigma! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: What are some cancer myths that you grew up with? What are some you have encountered as you've been impacted by cancer or worked with cancer patients? (re: causes/what happens during treatment/about emerging treatments/other) #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A1: A1: For sure false information but also stigma! #gyncsm |
| Christina Lizaso @btrfly12 RT @BRCAinfo: @btrfly12 When people keep harping on a false fact you start to think maybe they are right! #Cancer doesn’t deserve “blame or shame “ #gyncsm |
| Dee Sparacio @womenofteal Yes , stigma can play a role too. #gyncsm |
| Christina Lizaso @btrfly12 @subatomicdoc ohhh... oncolore - like it #gyncsm |
| Sarah Temkin @temkins Clinicians sometimes inadvertently propagate these myths by trying to provide information or a guide for managing cancer. But these are averages or norms and certainly everyone who has touched enough cancer patients knows that there are exceptions to every rule.... #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: Clinicians sometimes inadvertently propagate these myths by trying to provide information or a guide for managing cancer. But these are averages or norms and certainly everyone who has touched enough cancer patients knows that there are exceptions to every rule.... #gyncsm |
| IamCervivor @IamCervivor RT @temkins: A1: A1: Sometimes people make generalizations ('cancer myths') about cancer, cancer treatments or cancer outcomes - but every cancer is different and every patient has an individual experience. #gyncsm |
| Christina Lizaso @btrfly12 T2: Thinking back on my dad's cancer, I remember people talking about this idea that once you have surgery and expose it to air, you've allowed the cancer to spread and the end comes more quickly. #gyncsm |
| Erica Bednar @EMBOSU Agree! I was also thinking about generalizations - taking an example of one person's experience and assuming it is true for all. Also just outdated info that somehow keeps circulating #gyncsm |
| Mutant Strong @IrinaBrooke1 T2 People thinking there is a cure for cancer and it’s being hidden from us, sigh 😣🙄. Cancer isn’t one disease. People don’t realize it’s many diseases. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: T2: What are some cancer myths that you grew up with? What are some you have encountered as you've been impacted by cancer or worked with cancer patients? (re: causes/what happens during treatment/about emerging treatments/other) #gyncsm |
| Dee Sparacio @womenofteal T2 Growing up I remember hearing relatives say you shouldn't get surgery for cancer because when you do the air will cause the cancer to spread. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @EMBOSU: Agree! I was also thinking about generalizations - taking an example of one person's experience and assuming it is true for all. Also just outdated info that somehow keeps circulating #gyncsm |
| Tobey @BRCAinfo @gyncsm T2: you eat sugar? Foods can prevent cancer!!! #gyncsm WRONG 😑 |
| Dee Sparacio @womenofteal RT @EMBOSU: Agree! I was also thinking about generalizations - taking an example of one person's experience and assuming it is true for all. Also just outdated info that somehow keeps circulating #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @temkins: Clinicians sometimes inadvertently propagate these myths by trying to provide information or a guide for managing cancer. But these are averages or norms and certainly everyone who has touched enough cancer patients knows that there are exceptions to every rule.... #gyncsm |
| Dee Sparacio @womenofteal RT @IrinaBrooke1: T2 People thinking there is a cure for cancer and it’s being hidden from us, sigh 😣🙄. Cancer isn’t one disease. People don’t realize it’s many diseases. #gyncsm |
| Michele E. Collins @Michele_w_1_L t2: “Cancer is a death sentence”, “Sugar fuels cancer”, “You are too young for cancer”, to name a few. #gyncsm |
| Sarah Temkin @temkins RT @EMBOSU: Agree! I was also thinking about generalizations - taking an example of one person's experience and assuming it is true for all. Also just outdated info that somehow keeps circulating #gyncsm |
| Christina Lizaso @btrfly12 This one has got to be so hard for physicians and physician scientists to hear. Makes me sad. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @IrinaBrooke1: T2 People thinking there is a cure for cancer and it’s being hidden from us, sigh 😣🙄. Cancer isn’t one disease. People don’t realize it’s many diseases. #gyncsm |
| Dee Sparacio @womenofteal @btrfly12 Wow were weren't even in the same state and heard the same thing growing up. #gyncsm |
| Dee Sparacio @womenofteal RT @BRCAinfo: @gyncsm T2: @gyncsm T2: you eat sugar? Foods can prevent cancer!!! #gyncsm WRONG 😑 |
| Christina Lizaso @btrfly12 @Michele_w_1_L It doesn't shock me anymore but it makes me sad how many cancer patients still say they heard from doctors pre-diagnosis "you are too young for cancer" #gyncsm |
| Tobey @BRCAinfo @btrfly12 I’ve heard this too… rolling my eyes 👀 #gyncsm |
| Christina Lizaso @btrfly12 I think “cancer = death sentence” is a belief/response that can be important to unpack and surround w/the individual facts at hand. Some cancers do have little progress - others certainly not as much as we would like - but there are ways to provide hope along w/info #gyncsm |
| Mutant Strong @IrinaBrooke1 @btrfly12 #gyncsm yes it is. Especially when your oncologist has a family member going through cancer. |
 | Suzie Siegel @SuzieSiegel T1. People hear that #leiomyosarcoma (and other subtypes of sarcoma) are "chemo resistant" and think that means chemo will never work. (Joining late. I'm a longtime LMS survivor.) #gyncsm |
| Dee Sparacio @womenofteal @IrinaBrooke1 And it is super hard to change the mind of people who think Pharma and researchers are holding back a cure. They don't see the complexity of treating different cancers. #gyncsm |
| Tobey @BRCAinfo RT @IrinaBrooke1: T2 People thinking there is a cure for cancer and it’s being hidden from us, sigh 😣🙄. Cancer isn’t one disease. People don’t realize it’s many diseases. #gyncsm |
| Erica Bednar @EMBOSU A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| Dee Sparacio @womenofteal RT @btrfly12: I think “cancer = death sentence” is a belief/response that can be important to unpack and surround w/the individual facts at hand. Some cancers do have little progress - others certainly not as much as we would like - but there are ways to provide hope along w/info #gyncsm |
| Sarah Temkin @temkins RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| IamCervivor @IamCervivor RT @btrfly12: @Michele_w_1_L It doesn't shock me anymore but it makes me sad how many cancer patients still say they heard from doctors pre-diagnosis "you are too young for cancer" #gyncsm |
| Dee Sparacio @womenofteal RT @SuzieSiegel: T1. People hear that #leiomyosarcoma (and other subtypes of sarcoma) are "chemo resistant" and think that means chemo will never work. (Joining late. I'm a longtime LMS survivor.) #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| Dee Sparacio @womenofteal @SuzieSiegel Hi Suzie - drop in any time! #gyncsm |
| Christina Lizaso @btrfly12 RT @SuzieSiegel: T1. People hear that #leiomyosarcoma (and other subtypes of sarcoma) are "chemo resistant" and think that means chemo will never work. (Joining late. I'm a longtime LMS survivor.) #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @btrfly12 @Michele_w_1_L Unfortunately there a cognitive biases that may interfere with making the diagnosis; or sometimes it's to try to reassure a patient. I'm sure much of the time that statement ends up correct, but it is really a problem when the uncommon diagnoses end up happening #gyncsm |
 | Sevtap Savas, PhD @savaslab RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| Dee Sparacio @womenofteal This is so important for cancer patients to know. #gyncsm |
 | Prof Caroline Ford @DrCFord RT @gyncsm: T2: T2: What are some cancer myths that you grew up with? What are some you have encountered as you've been impacted by cancer or worked with cancer patients? (re: causes/what happens during treatment/about emerging treatments/other) #gyncsm |
 | Detroit’s Own / Jokotifa @iammarypryor RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| Dee Sparacio @womenofteal RT @subatomicdoc: @btrfly12 @Michele_w_1_L Unfortunately there a cognitive biases that may interfere with making the diagnosis; or sometimes it's to try to reassure a patient. I'm sure much of the time that statement ends up correct, but it is really a problem when the uncommon diagnoses end up happening #gyncsm |
| Mutant Strong @IrinaBrooke1 RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| Suzie Siegel @SuzieSiegel T2. I don't know if this qualifies as a myth, but some #sarcoma patients repeat the idea that surgery -- the gold standard -- should always be the first treatment tried. But pre-op radiation & drugs may make surgery less debilitating. #gyncsm |
| IamCervivor @IamCervivor A2: A2. Growing up - The myth that only old people got cancer. Most recently - The myth that my HPV cancer was directly my fault. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @btrfly12 @Michele_w_1_L *are* cognitive biases #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A2: A2: A2. Growing up - The myth that only old people got cancer. Most recently - The myth that my HPV cancer was directly my fault. #gyncsm |
| Tobey @BRCAinfo @EMBOSU Thank you 🙏 Great one ~ so true! We get out DNA from both our mom & dad & mutations can come from both sides #gyncsm |
| Tobey @BRCAinfo RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| Dee Sparacio @womenofteal As treatments change and new evidence is found it is difficult to change old ways. #gyncsm |
| Christina Lizaso @btrfly12 @SuzieSiegel Cancer science changes so fast. It can be hard to overcome "old" knowledge. Also keeping in mind that some general stuff doesn't apply to sub-types/rare/etc #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: A2: A2: A2. Growing up - The myth that only old people got cancer. Most recently - The myth that my HPV cancer was directly my fault. #gyncsm |
 | Your Mom @NieceyBoBC RT @EMBOSU: A cancer myth I still occasionally hear is "you can only inherit female cancer risks from mom" ... We all inherit DNA from both mom and dad, hereditary cancer risks included! Both sides of family health history are important #gyncsm #FamilyHealthHistory #GeneticsMyths |
| GYN Cancer | #GYNCSM @gyncsm T3: What are some cancer myths that come up around nutrition/diet? Why do you think there is so much conflicting information in this area? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T3: T3: What are some cancer myths that come up around nutrition/diet? Why do you think there is so much conflicting information in this area? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: What are some cancer myths that come up around nutrition/diet? Why do you think there is so much conflicting information in this area? #gyncsm |
| Mutant Strong @IrinaBrooke1 @womenofteal Yep exactly! #gyncsm |
| Dee Sparacio @womenofteal T3 - the top myth to me is - People who have cancer shouldn't eat sugar, since sugar makes cancer to grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. Giving more sugar to cancer cells doesn't make them grow faster. #gyncsm |
| Christina Lizaso @btrfly12 And artificial sugars too. So no sweets for anyone lol. #gyncsm |
| Tobey @BRCAinfo @gyncsm How many of us cancer survivors exercise, eat healthy & still get cancer? It’s so infuriating #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: And artificial sugars too. So no sweets for anyone lol. #gyncsm |
| Mutant Strong @IrinaBrooke1 @btrfly12 Lol 😂 #gyncsm nope |
| Michele E. Collins @Michele_w_1_L t3: I think people want to believe that you have some control over whether you get cancer so thinking that if you eat healthy, limit sugar, and exercise, you will be safe which is not always true. #gyncsm |
| Mutant Strong @IrinaBrooke1 @BRCAinfo @gyncsm #gyncsm too many of us. |
| Christina Lizaso @btrfly12 T3: Diet and nutrition are something we can have an impact on for ourselves... so I think a lot of focus goes there = opps for confusion. Some things do impact your health and your cancer risk, but overall there are lots of things that are out of your control. #gyncsm |
| Suzie Siegel @SuzieSiegel RT @womenofteal: T3 - the top myth to me is - People who have cancer shouldn't eat sugar, since sugar makes cancer to grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. Giving more sugar to cancer cells doesn't make them grow faster. #gyncsm |
| Dee Sparacio @womenofteal I agree with you on this - #gynscm |
| Sarah Temkin @temkins @IrinaBrooke1 @gyncsm Blargh! Nutrition cancer myths! So difficult to dispel. Food should bring you joy. Joy helps you enjoy life. Food is not a one-size fits all algorithm. #gyncsm. |
| Dee Sparacio @womenofteal RT @temkins: @IrinaBrooke1 @gyncsm Blargh! Nutrition cancer myths! So difficult to dispel. Food should bring you joy. Joy helps you enjoy life. Food is not a one-size fits all algorithm. #gyncsm. |
| Sarah Temkin @temkins RT @btrfly12: T3: T3: Diet and nutrition are something we can have an impact on for ourselves... so I think a lot of focus goes there = opps for confusion. Some things do impact your health and your cancer risk, but overall there are lots of things that are out of your control. #gyncsm |
| Mutant Strong @IrinaBrooke1 @temkins @gyncsm #gyncsm absolutely!! |
| Christina Lizaso @btrfly12 I think the food you should eat during treatment - is the food you CAN eat or maybe even enjoy. Just like the best exercise is the one that you will actually do :) #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: I think the food you should eat during treatment - is the food you CAN eat or maybe even enjoy. Just like the best exercise is the one that you will actually do :) #gyncsm |
| Suzie Siegel @SuzieSiegel RT @btrfly12: I think the food you should eat during treatment - is the food you CAN eat or maybe even enjoy. Just like the best exercise is the one that you will actually do :) #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: I think the food you should eat during treatment - is the food you CAN eat or maybe even enjoy. Just like the best exercise is the one that you will actually do :) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: Are there cancer myths specific to gynecologic cancers? Is there information you learned about a gyn cancer that you now know is wrong? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: Are there cancer myths specific to gynecologic cancers? Is there information you learned about a gyn cancer that you now know is wrong? #gyncsm |
| Tobey @BRCAinfo @gyncsm T3: how bout take your supplements & vitamins ~ it prevents cancer #gyncsm |
| Christina Lizaso @btrfly12 T4: Maybe not a myth, but there is a lack of basic female anatomy knowledge and also many do think the pap covers “everything down there” vs mainly cervical cancer. #gyncsm |
| Suzie Siegel @SuzieSiegel T4. In the #sarcoma world, some women assume a PAP smear will catch their cancer. Not necessarily. #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: T4: T4: Maybe not a myth, but there is a lack of basic female anatomy knowledge and also many do think the pap covers “everything down there” vs mainly cervical cancer. #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo @gyncsm Heard that too - I'll herbal supplements and I won't get cancer. or Vitamin C and I won't recur. #gyncsm |
| Christina Lizaso @btrfly12 T4: I think cervical cancer definitely still has a lot of myths to overcome - from the causes, to treatment and prevention. Thanks @IamCervivor for leading the way on taking down myths and stigma. #gyncsm |
| Erica Bednar @EMBOSU @btrfly12 Agree - The risk of focusing on areas we can "control" is the inevitable opposite, that when something out of our control happens, there is shame/blame... Feels similar to fad diets and other trends that seem to just make people feel bad about their bodies #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: Maybe not a myth, but there is a lack of basic female anatomy knowledge and also many do think the pap covers “everything down there” vs mainly cervical cancer. #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: @btrfly12 Agree - The risk of focusing on areas we can "control" is the inevitable opposite, that when something out of our control happens, there is shame/blame... Feels similar to fad diets and other trends that seem to just make people feel bad about their bodies #gyncsm |
| IamCervivor @IamCervivor A4: There are absolutely myths to GYN cancers. One is that cervical cancer is the “easy” cancer, that it is just bad cells from a Pap test when in reality it is much, much more involved. #gyncsm |
| Sarah Temkin @temkins RT @EMBOSU: @btrfly12 Agree - The risk of focusing on areas we can "control" is the inevitable opposite, that when something out of our control happens, there is shame/blame... Feels similar to fad diets and other trends that seem to just make people feel bad about their bodies #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: T4: T4: I think cervical cancer definitely still has a lot of myths to overcome - from the causes, to treatment and prevention. Thanks @IamCervivor for leading the way on taking down myths and stigma. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: I think cervical cancer definitely still has a lot of myths to overcome - from the causes, to treatment and prevention. Thanks @IamCervivor for leading the way on taking down myths and stigma. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: @btrfly12 Agree - The risk of focusing on areas we can "control" is the inevitable opposite, that when something out of our control happens, there is shame/blame... Feels similar to fad diets and other trends that seem to just make people feel bad about their bodies #gyncsm |
| IamCervivor @IamCervivor RT @btrfly12: T4: T4: I think cervical cancer definitely still has a lot of myths to overcome - from the causes, to treatment and prevention. Thanks @IamCervivor for leading the way on taking down myths and stigma. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A4: A4: There are absolutely myths to GYN cancers. One is that cervical cancer is the “easy” cancer, that it is just bad cells from a Pap test when in reality it is much, much more involved. #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: A4: A4: There are absolutely myths to GYN cancers. One is that cervical cancer is the “easy” cancer, that it is just bad cells from a Pap test when in reality it is much, much more involved. #gyncsm |
| Tobey @BRCAinfo @gyncsm T4: the talcum powder issue #gyncsm |
| Michele E. Collins @Michele_w_1_L t4: that the Gardasil vaccine will cause fertility issues or other catastrophic problems. #gyncsm |
| Christina Lizaso @btrfly12 I'm not a fan of calling any cancer an "easy" cancer. I do get that you don't want people thinking all cancer is immediately fatal, but on individual level - every cancer experience is "hard". And any cancer type can be life altering or life ending for a specific person. #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t4: t4: that the Gardasil vaccine will cause fertility issues or other catastrophic problems. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: I'm not a fan of calling any cancer an "easy" cancer. I do get that you don't want people thinking all cancer is immediately fatal, but on individual level - every cancer experience is "hard". And any cancer type can be life altering or life ending for a specific person. #gyncsm |
| Christina Lizaso @btrfly12 @Michele_w_1_L That one is super frustrating as there are very few cancers we have the science to keep them from developing on a large scale. So anything that keeps people from putting that knowledge to use.. ugh #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T4: T4: Are there cancer myths specific to gynecologic cancers? Is there information you learned about a gyn cancer that you now know is wrong? #gyncsm |
| Kathy Quinlan 🇺🇦 @kquinlan35 @btrfly12 Haha I know that one is not true I have Uterine cancer and went for my yearly check #gyncsm |
| IamCervivor @IamCervivor Absolutely! Thank you @btrfly12! |
 | Tim Broyle, MD @BroyleTim RT @gyncsm: T4: T4: Are there cancer myths specific to gynecologic cancers? Is there information you learned about a gyn cancer that you now know is wrong? #gyncsm |
| Christina Lizaso @btrfly12 @BRCAinfo @gyncsm Info from @AmericanCancer re: talc https://t.co/FCGPHSIdzX #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T5: What are some tips for handling cancer myths and responding (or not) when you encounter them - both in-person and online? #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: T5: T5: What are some tips for handling cancer myths and responding (or not) when you encounter them - both in-person and online? #gyncsm |
| Tobey @BRCAinfo @btrfly12 @gyncsm @AmericanCancer Thanks Christina ~ #gyncsm |
| Tobey @BRCAinfo RT @btrfly12: @BRCAinfo @gyncsm Info from @AmericanCancer re: @BRCAinfo @gyncsm Info from @AmericanCancer re: talc https://t.co/FCGPHSIdzX #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm : |
| Dee Sparacio @womenofteal RT @gyncsm: T5: T5: What are some tips for handling cancer myths and responding (or not) when you encounter them - both in-person and online? #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T5: T5: What are some tips for handling cancer myths and responding (or not) when you encounter them - both in-person and online? #gyncsm |
| Mutant Strong @IrinaBrooke1 @gyncsm T5 #gyncsm Tell people to fact check and look for information that is factual and not here say. As frustrating as it is at times, some people just can’t here you. |
| Christina Lizaso @btrfly12 I think gynecologists and pediatricians can have a lot of influence on cancer-related myths. So appreciative of those that also take time - and personal risk - to put out reliable information on social media. #gyncsm |
| Michele E. Collins @Michele_w_1_L t5: I try to educate in a calm manner to dispel the belief. Can be quite difficult with some people though. It’s important to remember you may not change their mind about some things and to stay composed. #gyncsm |
| Mutant Strong @IrinaBrooke1 @kquinlan35 @btrfly12 So sorry to here it. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @gyncsm T5: Very situational - have to adapt to the person and setting. First step I find helpful is active listening and clarifying where the perspective/myth comes from. #gyncsm |
| Tobey @BRCAinfo @IrinaBrooke1 @gyncsm I’ll refer them to you Irina ~ I don’t debate! #gyncsm |
| Dee Sparacio @womenofteal T5 I will ask the person to share the research that backs their statement. Then I share a reliable source or journal article that dispels the myth. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm Not sure about this one. Maybe others have info: In general, the finding were the less you ovulate the less chance for cells to go awry. |
| Dee Sparacio @womenofteal RT @btrfly12: I think gynecologists and pediatricians can have a lot of influence on cancer-related myths. So appreciative of those that also take time - and personal risk - to put out reliable information on social media. #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: T5 I will ask the person to share the research that backs their statement. Then I share a reliable source or journal article that dispels the myth. #gyncsm |
| Christina Lizaso @btrfly12 RT @subatomicdoc: @gyncsm T5: @gyncsm T5: Very situational - have to adapt to the person and setting. First step I find helpful is active listening and clarifying where the perspective/myth comes from. #gyncsm |
| Dee Sparacio @womenofteal RT @subatomicdoc: @gyncsm T5: @gyncsm T5: Very situational - have to adapt to the person and setting. First step I find helpful is active listening and clarifying where the perspective/myth comes from. #gyncsm |
| Dee Sparacio @womenofteal RT @Michele_w_1_L: t5: t5: I try to educate in a calm manner to dispel the belief. Can be quite difficult with some people though. It’s important to remember you may not change their mind about some things and to stay composed. #gyncsm |
| Suzie Siegel @SuzieSiegel T5. I often give people studies or quote experts. But I try to be diplomatic, unless I think the person is making money or hurting people with myths. #gyncsm |
| Tobey @BRCAinfo RT @btrfly12: #gyncsm Not sure about this one. Maybe others have info: In general, the finding were the less you ovulate the less chance for cells to go awry. |
| Christina Lizaso @btrfly12 T5: Dispelling myths can take a lot of time and energy. And it is okay to not always be up for that. When we can interact one on one and ask questions IF they are open to a discussion that is where to start. #gyncsm |
| IamCervivor @IamCervivor A5: Meet people where they’re at - sometimes that’s really hard. Sometimes they are not taught what we already know. Clarify and ask questions to understand. Have a conversation. Share your story and some reliable resources for them to check out. #gyncsm |
| Mutant Strong @IrinaBrooke1 @BRCAinfo @gyncsm #gyncsm love you too @BRCAinfo lol |
| GYN Cancer | #GYNCSM @gyncsm T6: What are your go-to sources for reliable information about cancer? For gynecologic cancers specifically? #gyncsm |
| Sarah Temkin @temkins RT @subatomicdoc: @gyncsm T5: @gyncsm T5: Very situational - have to adapt to the person and setting. First step I find helpful is active listening and clarifying where the perspective/myth comes from. #gyncsm |
| Dee Sparacio @womenofteal And sometimes we just have to leave the conversation. #gyncsm |
| Suzie Siegel @SuzieSiegel @btrfly12 But people with rare cancers -- such as #sarcoma -- may not get reliable info from gyns and pediatricians. #gyncsm |
| Michele E. Collins @Michele_w_1_L t6: @SHAREing @ocrahope #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T6: T6: What are your go-to sources for reliable information about cancer? For gynecologic cancers specifically? #gyncsm |
| Sarah Temkin @temkins A5: Assume the best but prepare for the worst. #wordstoliveby #gyncsm |
| Christina Lizaso @btrfly12 @SuzieSiegel Yes, with anything "rare" it is super important to find second opinions and experts in that exact rare type. Hard for general practitioners to know current. So much work for patients, but cancer world is vast and so much changes too. :( #gyncsm |
| Erica Bednar @EMBOSU There is a ton of attention and research in health communication and combatting misinformation with ~everything~ going on...I look to experts in that space for ideas and approaches to build trust and communicate evidence clearly #gyncsm |
| Suzie Siegel @SuzieSiegel T6. I get an alert from Pubmed on new research for #leiomyosarcoma, including gyn LMS. I read experts online & attend #sarcoma conferences when I can afford them. #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: There is a ton of attention and research in health communication and combatting misinformation with ~everything~ going on...I look to experts in that space for ideas and approaches to build trust and communicate evidence clearly #gyncsm |
| Tobey @BRCAinfo @gyncsm T6: definitely NOT Dr. Google. ALWAYS MY DOCTOR. My doc knows me & my history & can always give me the best info for me #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: And sometimes we just have to leave the conversation. #gyncsm |
| Christina Lizaso @btrfly12 RT @IamCervivor: A5: A5: Meet people where they’re at - sometimes that’s really hard. Sometimes they are not taught what we already know. Clarify and ask questions to understand. Have a conversation. Share your story and some reliable resources for them to check out. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: T5: T5: Dispelling myths can take a lot of time and energy. And it is okay to not always be up for that. When we can interact one on one and ask questions IF they are open to a discussion that is where to start. #gyncsm |
| Christina Lizaso @btrfly12 Resource | @theNCI is an important source of information and has this article addressing common cancer myths: https://t.co/B19ouPtbc9 #gyncsm |
| Suzie Siegel @SuzieSiegel RT @btrfly12: @SuzieSiegel Yes, with anything "rare" it is super important to find second opinions and experts in that exact rare type. Hard for general practitioners to know current. So much work for patients, but cancer world is vast and so much changes too. :( #gyncsm |
| Christina Lizaso @btrfly12 Resource | @cancerdotnet is doctor-approved cancer information from @ASCO, designed for patients Resource | National Comprehensive Cancer Network ( @NCCN ) has patient versions of screening and treatment guidelines for many specific cancers #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: There is a ton of attention and research in health communication and combatting misinformation with ~everything~ going on...I look to experts in that space for ideas and approaches to build trust and communicate evidence clearly #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: https://t.co/B19ouPtbc9 #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @gyncsm: T6: T6: What are your go-to sources for reliable information about cancer? For gynecologic cancers specifically? #gyncsm |
| Erica Bednar @EMBOSU RT @btrfly12: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: https://t.co/B19ouPtbc9 #gyncsm |
| Mutant Strong @IrinaBrooke1 @BRCAinfo @gyncsm #gyncsm Good G-D never Dr google |
| Christina Lizaso @btrfly12 For GYN Cancer, see the #gyncsm blog Resources page https://t.co/LRawOmxMsN and a good starting place is the Foundation for Women’s Cancer https://t.co/qzYK7EBP5J #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @SuzieSiegel I agree, PubMed is a great resource! #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @SuzieSiegel: T6. I get an alert from Pubmed on new research for #leiomyosarcoma, including gyn LMS. I read experts online & attend #sarcoma conferences when I can afford them. #gyncsm |
| Christina Lizaso @btrfly12 #gyncsm @NIH |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: For GYN Cancer, see the #gyncsm blog Resources page https://t.co/LRawOmxMsN and a good starting place is the Foundation for Women’s Cancer https://t.co/qzYK7EBP5J #gyncsm |
| Sarah Temkin @temkins RT @btrfly12: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: https://t.co/B19ouPtbc9 #gyncsm |
| Dee Sparacio @womenofteal @gyncsm T6 My favorites- @theNCI @CancerDotNet and @ASCO @MDAndersonNews @sloan_kettering @SGO_org and @GYNCancer @ocrahope @IamCervivor #gyncsm |
| Tobey @BRCAinfo RT @btrfly12: For GYN Cancer, see the #gyncsm blog Resources page https://t.co/LRawOmxMsN and a good starting place is the Foundation for Women’s Cancer https://t.co/qzYK7EBP5J #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: https://t.co/B19ouPtbc9 #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: Resource | @cancerdotnet is doctor-approved cancer information from @ASCO, designed for patients Resource | National Comprehensive Cancer Network ( @NCCN ) has patient versions of screening and treatment guidelines for many specific cancers #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: For GYN Cancer, see the #gyncsm blog Resources page https://t.co/LRawOmxMsN and a good starting place is the Foundation for Women’s Cancer https://t.co/qzYK7EBP5J #gyncsm |
| Christina Lizaso @btrfly12 Peer support - in person and online can be VITAL to fill in information gaps BUT you have to be careful and use these other sources and your doctor to verify information. I steer to groups like @smart_patients which have clear moderation vs. FB groups. #gyncsm |
| Mutant Strong @IrinaBrooke1 @btrfly12 @NIH #gyncsm yes 👏🏻 |
| Christina Lizaso @btrfly12 #gyncsm so much so |
| Tobey @BRCAinfo Question: myths…. Deodorants, hair dye? Thoughts? #gyncsm |
| Dee Sparacio @womenofteal Agree 100% #gyncsm |
| Prof Caroline Ford @DrCFord RT @gyncsm: T4: T4: Are there cancer myths specific to gynecologic cancers? Is there information you learned about a gyn cancer that you now know is wrong? #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm We use the last minutes of the chat to wrap up and share closing thoughts. What did you learn or were you reminded of during this chat? You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| Kathy Quinlan 🇺🇦 @kquinlan35 RT @btrfly12: For GYN Cancer, see the #gyncsm blog Resources page https://t.co/LRawOmxMsN and a good starting place is the Foundation for Women’s Cancer https://t.co/qzYK7EBP5J #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo @theNCI says "studies so far have found no evidence linking the chemicals typically found in antiperspirants and deodorants with changes in breast tissue" "no convincing scientific evidence that personal hair dye use increases the risk " #gyncsm |
| IamCervivor @IamCervivor A6: @GYNCancer @AmericanCancer @SGO_org @gyncsm @theNCI @NIH @CDC_Cancer (there are so many great resources to add!) #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We use the last minutes of the chat to wrap up and share closing thoughts. What did you learn or were you reminded of during this chat? You can start your tweet with TIL: standing for Today I Learned. #gyncsm |
| Mutant Strong @IrinaBrooke1 @gyncsm #gyncsm I was reminded of the fact that there are great legit resources to be able to rely on for information. |
| Christina Lizaso @btrfly12 Doctors telling patients don't Google isn't good advice if you don't follow it up by telling them where online to find good info and peer support. #gyncsm |
| Dee Sparacio @womenofteal RT @IamCervivor: A6: A6: @GYNCancer @AmericanCancer @SGO_org @gyncsm @theNCI @NIH @CDC_Cancer (there are so many great resources to add!) #gyncsm |
| Christina Lizaso @btrfly12 RT @IrinaBrooke1: @gyncsm #gyncsm I was reminded of the fact that there are great legit resources to be able to rely on for information. |
| Erica Bednar @EMBOSU RT @btrfly12: Doctors telling patients don't Google isn't good advice if you don't follow it up by telling them where online to find good info and peer support. #gyncsm |
| Mutant Strong @IrinaBrooke1 RT @IamCervivor: A6: A6: @GYNCancer @AmericanCancer @SGO_org @gyncsm @theNCI @NIH @CDC_Cancer (there are so many great resources to add!) #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: #Dazzle4Rare - Visit the #gyncsm blog for survivor stories, discussions and resources about rare gynecologic cancers: https://t.co/jYzNuNnO43 https://t.co/1KLsUpmr0G |
 | CancerDotNet @CancerDotNet RT @womenofteal: @gyncsm T6 My favorites- @theNCI @CancerDotNet and @ASCO @MDAndersonNews @sloan_kettering @SGO_org and @GYNCancer @ocrahope @IamCervivor #gyncsm |
| Mutant Strong @IrinaBrooke1 RT @btrfly12: Doctors telling patients don't Google isn't good advice if you don't follow it up by telling them where online to find good info and peer support. #gyncsm |
| CancerDotNet @CancerDotNet RT @btrfly12: Resource | @cancerdotnet is doctor-approved cancer information from @ASCO, designed for patients Resource | National Comprehensive Cancer Network ( @NCCN ) has patient versions of screening and treatment guidelines for many specific cancers #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @gyncsm TIL: people with cancer can access PubMed for evidence based information. It's a good foundation for discussing data with your doctor. #gyncsm #epatient |
| Tobey @BRCAinfo RT @womenofteal: @BRCAinfo @theNCI says "studies so far have found no evidence linking the chemicals typically found in antiperspirants and deodorants with changes in breast tissue" "no convincing scientific evidence that personal hair dye use increases the risk " #gyncsm |
| Mutant Strong @IrinaBrooke1 @btrfly12 #gyncsm exactly! Bingo!!! |
 | CP Nerve Center @Cpnervecenter Sharing for #Dazzle4Rare week! 👇🏼👏👏👏✨💞 |
| Christina Lizaso @btrfly12 @BRCAinfo the NCI myth page addresses and has a fact sheet link for both deo and hair dye https://t.co/B19ouPtbc9 #gyncsm |
| Tobey @BRCAinfo RT @subatomicdoc: @gyncsm TIL: @gyncsm TIL: people with cancer can access PubMed for evidence based information. It's a good foundation for discussing data with your doctor. #gyncsm #epatient |
| Matthew Katz, MD 🟦 @subatomicdoc RT @btrfly12: @BRCAinfo the NCI myth page addresses and has a fact sheet link for both deo and hair dye https://t.co/B19ouPtbc9 #gyncsm |
| Tobey @BRCAinfo RT @btrfly12: @BRCAinfo the NCI myth page addresses and has a fact sheet link for both deo and hair dye https://t.co/B19ouPtbc9 #gyncsm |
| Tobey @BRCAinfo @btrfly12 Thank you 🙏 #gyncsm |
| Christina Lizaso @btrfly12 @BRCAinfo of course always keep in mind - we haven't found a link yet doesn't = no link... but it is the info we have #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm #gyncsm is participating in #Dazzle4Rare this week shining a light on rare disease - which most gyn cancer are classified as. We invite you to follow that hashtag to learn about other rare diseases and share your own story. |
| GYN Cancer | #GYNCSM @gyncsm We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
| Mutant Strong @IrinaBrooke1 @btrfly12 @BRCAinfo #gyncsm thanks for the chat and for moderating tonight. |
| Sarah Temkin @temkins RT @gyncsm: We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
| Dee Sparacio @womenofteal TIL That myths and misinformation are still out there years later. As advocates we can do our part in a civil discourse to share good reliable resources and info. #gyncsm |
| Tobey @BRCAinfo RT @gyncsm: We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
| Mutant Strong @IrinaBrooke1 RT @gyncsm: We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
| Dee Sparacio @womenofteal RT @gyncsm: We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
| Erica Bednar @EMBOSU TIL how widespread some cancer myths are, highlighting an area for more work/education/improvement. Great to "see" you all this evening!! Stay safe out there! #gyncsm |
| Tobey @BRCAinfo RT @IrinaBrooke1: @btrfly12 @BRCAinfo #gyncsm thanks for the chat and for moderating tonight. |
| Erica Bednar @EMBOSU Mark your calendars #GCChat |
| Michele E. Collins @Michele_w_1_L til: I was reminded by how mad it makes me to think that people believe that the government is holding back a cure for cancer #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone who joined along and shared. As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
 | Shelley LM @ShelleyMLM RT @gyncsm: We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
| Dee Sparacio @womenofteal Grateful for my #gyncsm co-moderators! @btrfly12 @temkins on tonight! |
| Kathy Quinlan 🇺🇦 @kquinlan35 RT @IrinaBrooke1: @btrfly12 @BRCAinfo #gyncsm thanks for the chat and for moderating tonight. |
| Tobey @BRCAinfo Goodnight #gyncsm See you next month 🙏. Thanks for all you do ♥️ |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: TIL That myths and misinformation are still out there years later. As advocates we can do our part in a civil discourse to share good reliable resources and info. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: Grateful for my #gyncsm co-moderators! @btrfly12 @temkins on tonight! |
| Kathy Quinlan 🇺🇦 @kquinlan35 RT @gyncsm: #Dazzle4Rare - Visit the #gyncsm blog for survivor stories, discussions and resources about rare gynecologic cancers: https://t.co/jYzNuNnO43 https://t.co/1KLsUpmr0G |
 | Sarah Cassidy @CassidyFish2 Great advice for #cancer myths and in so many areas of life. #gyncsm |
| Christina Lizaso @btrfly12 RT @gyncsm: #gyncsm is participating in #Dazzle4Rare this week shining a light on rare disease - which most gyn cancer are classified as. We invite you to follow that hashtag to learn about other rare diseases and share your own story. |
| Christina Lizaso @btrfly12 RT @subatomicdoc: @gyncsm TIL: @gyncsm TIL: people with cancer can access PubMed for evidence based information. It's a good foundation for discussing data with your doctor. #gyncsm #epatient |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal @btrfly12 @temkins Thank you all! Good topic and lots of useful information #gyncsm |
| Kathy Quinlan 🇺🇦 @kquinlan35 RT @gyncsm: We look forward to you joining us at the next #gyncsm chat on Wed, September 8, 2021 at 8pmET when we’ll discuss Genetic Testing and Gyn Cancers. We’ll also be asking our participants to fill out a survey to help us improve the #gyncsm community. |
 | NCI Cancer Stats @NCICancerStats Did you know that #UterineCancer is the most common cancer of the female reproductive system? Watch our ‘Did You Know?’ video to learn more about this cancer: https://t.co/4g9YhY0ddu #GynCSM |
| Dee Sparacio @womenofteal Good night, stay well and stay safe everyone! As the song says- See you in September! #gyncsm |
| Dee Sparacio @womenofteal @subatomicdoc @btrfly12 @temkins So happy you stopped by. #gyncsm |
| Dee Sparacio @womenofteal @BRCAinfo Thanks Tobey! Happy you could participate. #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @womenofteal @btrfly12 @temkins Me too! Great to see you - enjoy your remaining summer 🙂 #gyncsm |
| Christina Lizaso @btrfly12 @SuzieSiegel @smart_patients @SarcomaAlliance Love the sites - no matter the platform - that have great moderation. I think there are some excellent colon cancer groups on FB as well. For my genetic mutation the only real group is on FB so that is where I go. In general, FB tends to have less moderated groups. #gyncsm |
 | Cancer Hope Network @CancerHopeNet Our survivor and caregiver volunteers can be helpful when avoiding - or recovering from - “the Google.” #gyncsm |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: Our survivor and caregiver volunteers can be helpful when avoiding - or recovering from - “the Google.” #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @womenofteal: TIL That myths and misinformation are still out there years later. As advocates we can do our part in a civil discourse to share good reliable resources and info. #gyncsm |
 | DaveisAliveAndKickn @AliveAndKicknDD RT @btrfly12: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: Resource | @theNCI is an important source of information and has this article addressing common cancer myths: https://t.co/B19ouPtbc9 #gyncsm |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: T3: T3: Diet and nutrition are something we can have an impact on for ourselves... so I think a lot of focus goes there = opps for confusion. Some things do impact your health and your cancer risk, but overall there are lots of things that are out of your control. #gyncsm |
| Dee Sparacio @womenofteal @SuzieSiegel @btrfly12 @smart_patients @SarcomaAlliance Facebook groups moderated by an organization is different than some of the other Facebook groups . The three larger ovarian cancer groups I am part of do pretty well moderating too. @teaminspire is a good support platform too. The OC group is @ocrahope #gyncsm |
| Christina Lizaso @btrfly12 RT @womenofteal: @SuzieSiegel @btrfly12 @smart_patients @SarcomaAlliance Facebook groups moderated by an organization is different than some of the other Facebook groups . The three larger ovarian cancer groups I am part of do pretty well moderating too. @teaminspire is a good support platform too. The OC group is @ocrahope #gyncsm |
#GynCSM content from Twitter.