#GynCSM Transcript
Healthcare social media transcript of the #GynCSM hashtag.
– ().
See #GynCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
 | Dee Sparacio @womenofteal RT @gyncsm: Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself :) |
| Dee Sparacio @womenofteal RT @gyncsm: Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself :) |
 | EcanaAdrienne @AdrienneEcana #gyncsm@ AdrienneEcana- Evolving patient advocate and status quo agitator |
| Dee Sparacio @womenofteal Dee here! Diagnosed #ovca Stage3B 2005, recurrence 2008, OC research advocate, blogger & co-moderator #gyncsm |
 | Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer care. I’ll be moderating as @gyncsm today. Excited for tonight's chat. Been a long HOT day in TX. #gyncsm |
 | Sarah Temkin @temkins RT @gyncsm: Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself :) |
| GYN Cancer | #GYNCSM @gyncsm If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana Hi Adrienne - Thanks so much for joining us tonight. Looking forward to you sharing your story and needs of endometrial patients with us. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy |
| Dee Sparacio @womenofteal #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| Sarah Temkin @temkins RT @womenofteal: @AdrienneEcana Hi Adrienne - Thanks so much for joining us tonight. Looking forward to you sharing your story and needs of endometrial patients with us. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #gyncsm and include it in every tweet during the next hour to engage with others about this topic. |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi all. I'm Shereese here in Maryland #gyncsm |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info #gyncsm |
 | Amanda Crowell Itliong @MIShouldTalk Hi #gyncsm! Amanda from Michigan. Recovering from my latest surgery - 12 years with ovarian cancer. |
| Dee Sparacio @womenofteal @ShereesePubHlth Happy to have you join us! #gyncsm |
 | Rick Boulay,MD @journeycancer RT @womenofteal: #gyncsm tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| GYN Cancer | #GYNCSM @gyncsm Welcome to those joining in and those “listening in”. You can always tweet, DM or email us with questions/comments after the chat is over. https://t.co/XYaP3OTgsG #gyncsm |
| Dee Sparacio @womenofteal @MIShouldTalk Hope you are getting stronger every day. Glad you are here ! #gyncsm |
| Rick Boulay,MD @journeycancer Rick Boulay GYN oncologist. Hello Dee. Hello Christina. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and those who shared our promo tweet about this chat. |
| Rick Boulay,MD @journeycancer RT @gyncsm: If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join - just to let us know you are here. Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: Our #gyncsm co-moderators are @womenofteal @btrfly12 Our health care moderators are @ShannonWestin @temkins @journeycancer and our mental health moderator @DrBeckerSchutte We start out with brief intro’s - Please take a moment to introduce yourself :) |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Before I forget, I wanted to thank @womenofteal and this group for helping me through the psychological and physical issues post-op. I'm feeling very healthy and hopeful lately. #gyncsm |
| Dee Sparacio @womenofteal @journeycancer hello Rick. Hope you are doing well. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| GYN Cancer | #GYNCSM @gyncsm We’ll use a topic format with T1; T2 etc Please include the corresponding T1 at the front of your comment or answer. There are 5 Questions and at the end of the chat a Today I Learned (TIL) #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: The next #GYNCSM tweetchat is tonight, Wed Aug 12th, at 9pmET | 8pmCT | 6pmPT. The topic will be #EndometrialCancer w/ guest @AdrienneEcana https://t.co/GcVkESzh5W https://t.co/2ifsswYLXx |
| Rick Boulay,MD @journeycancer RT @gyncsm: Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| Dee Sparacio @womenofteal @ShereesePubHlth So good to hear. #gyncsm |
 | Uterine Cancer Awareness Network @ucan2020 Shakeya is here! I am a uterine cancer survivor diagnosed at 27 and also founder of UCAN #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We’ll use a topic format with T1; T2 etc Please include the corresponding T1 at the front of your comment or answer. There are 5 Questions and at the end of the chat a Today I Learned (TIL) #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @gyncsm: We’ll use a topic format with T1; T2 etc Please include the corresponding T1 at the front of your comment or answer. There are 5 Questions and at the end of the chat a Today I Learned (TIL) #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm You can find the questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/DnQKsB4dRi |
| Amanda Crowell Itliong @MIShouldTalk @ShereesePubHlth @womenofteal That’s so awesome! Hold onto that Hope!! #gyncsm |
| Dee Sparacio @womenofteal @ucan2020 Hi Shakeya -Thanks for joining us! #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: You can find the questions we’ll cover on today’s chat on our #gyncsm blog page: You can find the questions we’ll cover on today’s chat on our #gyncsm blog page: https://t.co/DnQKsB4dRi |
 | DaveisAliveAndKickn @AliveAndKicknDD Dave Dubin, co-founder AliveAndKickn lynch syndrome foundation, above average soccer coach #gyncsm |
| Rick Boulay,MD @journeycancer RT @CancerResearch: A study of patients with gynecologic cancer and COVID-19 found that neither having cancer nor receiving treatment for it worsened COVID-19 outcomes. Via @CancerNetwrk #gyncsm https://t.co/rjrEBGRd5d |
 | Erica Bednar @EMBOSU Hi all! Excited to listen in tonight -- I'm Erica, genetic counselor at @MDAndersonNews focusing on hereditary gynecologic cancers #gyncsm |
| DaveisAliveAndKickn @AliveAndKicknDD RT @gyncsm: Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| GYN Cancer | #GYNCSM @gyncsm We are happy to have Adrienne, endometrial cancer survivor and advocate, join us for tonight’s chat. Adrienne will be sharing her story and experience during this evening’s chat. All participants are invited to share from their experiences and perspectives. #gyncsm |
| Erica Bednar @EMBOSU RT @gyncsm: Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| Dee Sparacio @womenofteal @AliveAndKicknDD Hi Dave Thanks for joining - Did you have a power outage. We were out 97 hours with Isaias. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: We are happy to have Adrienne, endometrial cancer survivor and advocate, join us for tonight’s chat. Adrienne will be sharing her story and experience during this evening’s chat. All participants are invited to share from their experiences and perspectives. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: Hi all! Excited to listen in tonight -- I'm Erica, genetic counselor at @MDAndersonNews focusing on hereditary gynecologic cancers #gyncsm |
 | jackie feinberg @jackiefeinberg Listening-in to my first #gyncsm #twitterlive chat. Jackie Feinberg, gyn onc fellow here. Thanks for promoting your voices, happy to listen & learn |
| EcanaAdrienne @AdrienneEcana #gyncsm Please all bear with if I'm a little slow. I want to be as thorough as I can in the limited characters I have. |
| Rick Boulay,MD @journeycancer Wow. Big group tonight. #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU @MDAndersonNews Hi Erica Glad you could join us again. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Special thanks to our healthcare professionals joining #gyncsm - your support of patients and families is so very appreciated. |
| Dee Sparacio @womenofteal @jackiefeinberg Hi Jackie Thanks for joining in. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Special thanks to our healthcare professionals joining #gyncsm - your support of patients and families is so very appreciated. |
| GYN Cancer | #GYNCSM @gyncsm Here we go with the first topic... T1: What increases a woman's risk of developing #endometrialcancer? Age/Genetics/Other Factors? How common is endometrial cancer and how aware are women about it? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Here we go with the first topic... T1: What increases a woman's risk of developing #endometrialcancer? Age/Genetics/Other Factors? How common is endometrial cancer and how aware are women about it? #gyncsm |
| Rick Boulay,MD @journeycancer @jackiefeinberg Hey Jackie! #gyncsm |
| Dee Sparacio @womenofteal T1 @AmericanCancer estimated 65,620 US women dx with uterine, or endometrial, cancer. Uterine cancer is the 4th most common cancer for women in the United States. 90% of uterine cancers occur in the endometrium #gyncsm |
| Amanda Crowell Itliong @MIShouldTalk RT @womenofteal: T1 @AmericanCancer estimated 65,620 US women dx with uterine, or endometrial, cancer. Uterine cancer is the 4th most common cancer for women in the United States. 90% of uterine cancers occur in the endometrium #gyncsm |
| Christina Lizaso @btrfly12 T1: Endometrial cancer is in the top 5 of most common cancers for women in the United States. Yet, I don't feel like it gets much attention or advocacy. #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 We are donating free masks to uterine cancer patients, survivors, and caregivers of a patient. Please direct anyone to us that might need one! #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm I had cervical dysplasia since age 29 |
| DaveisAliveAndKickn @AliveAndKicknDD RT @womenofteal: T1 @AmericanCancer estimated 65,620 US women dx with uterine, or endometrial, cancer. Uterine cancer is the 4th most common cancer for women in the United States. 90% of uterine cancers occur in the endometrium #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba #edometrialcancer, ranks about 4th of all female cancers. effecting an estimated 65,000 women annually. I've always assumed there's a strong genetic component. I'm wondering if anyone can confirm that for me? #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: We are donating free masks to uterine cancer patients, survivors, and caregivers of a patient. Please direct anyone to us that might need one! #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 @btrfly12 I agree with you I was diagnosed 10 years ago and looking over the 10 years nothing has changed.#gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm The risks for cancer were never on the table for discussion. |
| Sarah Temkin @temkins A1: Obesity and older age are the typical risk factors for endometrial cancer. A small number of women have a genetic risk. At a population level declining rates of hysterectomy for benign gynecologic disease has also led to increasing endometrial cancer diagnoses. #gyncsm |
| Dee Sparacio @womenofteal @EMBOSU |
| Rick Boulay,MD @journeycancer Endometrial Cancer is diagnosed 60,000 X per year in the US. Cure rate 85%. Risks: Obesity, late menopause, infertility, fam history of Lynch Syndrome. Treatment surgery+\-radiation and chemo. Genomic testing recommended. |
| Christina Lizaso @btrfly12 T1: Some of the genetic links for #endometrialcancer are Lynch syndrome (up to 60% risk), Cowden syndrome (up to 30% risk), and a small risk with PJS. #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: A1: A1: Obesity and older age are the typical risk factors for endometrial cancer. A small number of women have a genetic risk. At a population level declining rates of hysterectomy for benign gynecologic disease has also led to increasing endometrial cancer diagnoses. #gyncsm |
| DaveisAliveAndKickn @AliveAndKicknDD RT @ShereesePubHlth: #edometrialcancer, ranks about 4th of all female cancers. effecting an estimated 65,000 women annually. I've always assumed there's a strong genetic component. I'm wondering if anyone can confirm that for me? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: T1: T1: Some of the genetic links for #endometrialcancer are Lynch syndrome (up to 60% risk), Cowden syndrome (up to 30% risk), and a small risk with PJS. #gyncsm |
| Christina Lizaso @btrfly12 T1: Not sure the % of endometrial cancers that have an identified genetic component. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @temkins: A1: A1: Obesity and older age are the typical risk factors for endometrial cancer. A small number of women have a genetic risk. At a population level declining rates of hysterectomy for benign gynecologic disease has also led to increasing endometrial cancer diagnoses. #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T1: T1: Some of the genetic links for #endometrialcancer are Lynch syndrome (up to 60% risk), Cowden syndrome (up to 30% risk), and a small risk with PJS. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm I only learned that I was at high risk because I was unable to get pregnant and found out the lining of my uterus was too thick |
| Erica Bednar @EMBOSU T1: An estimated ~3% of endometrial cancer is hereditary -- primarily due to increased risks associated with #LynchSyndrome. There are several LS genes, each with different levels of risk to develop endometrial cancer #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: A1: A1: Obesity and older age are the typical risk factors for endometrial cancer. A small number of women have a genetic risk. At a population level declining rates of hysterectomy for benign gynecologic disease has also led to increasing endometrial cancer diagnoses. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: T1: T1: An estimated ~3% of endometrial cancer is hereditary -- primarily due to increased risks associated with #LynchSyndrome. There are several LS genes, each with different levels of risk to develop endometrial cancer #gyncsm |
 | Jay Germar, MD @jvgermarmd I’m Dr Jay Germar Gyn oncologist from the Philippines 🇵🇭#gyncsm |
| Christina Lizaso @btrfly12 RT @AdrienneEcana: #gyncsm The risks for cancer were never on the table for discussion. |
| Christina Lizaso @btrfly12 RT @ucan2020: @btrfly12 I agree with you I was diagnosed 10 years ago and looking over the 10 years nothing has changed.#gyncsm |
| Rick Boulay,MD @journeycancer #Gyncsm |
| Sarah Temkin @temkins @ShereesePubHlth Very few women (~5%) have a genetic risk leading to endometrial cancer. This includes Lynch and Cowdens syndrome and a family history of colon and endometrial cancer. Most of the risk is environmental related to estrogen exposure from obesity or hormone replacement. #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: #Gyncsm |
| Dee Sparacio @womenofteal @jvgermarmd Welcome! #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: #Gyncsm |
| Dee Sparacio @womenofteal RT @temkins: @ShereesePubHlth Very few women (~5%) have a genetic risk leading to endometrial cancer. This includes Lynch and Cowdens syndrome and a family history of colon and endometrial cancer. Most of the risk is environmental related to estrogen exposure from obesity or hormone replacement. #gyncsm |
| Rick Boulay,MD @journeycancer @jvgermarmd Welcome Jay #gyncsm |
| Christina Lizaso @btrfly12 @jvgermarmd Welcome to #gyncsm - my husband was born in the Philippines. Hope to visit someday in the future. |
| Erica Bednar @EMBOSU @btrfly12 About 3-5% of all endometrial cancer is thought to be due to an inherited risk #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: @ShereesePubHlth Very few women (~5%) have a genetic risk leading to endometrial cancer. This includes Lynch and Cowdens syndrome and a family history of colon and endometrial cancer. Most of the risk is environmental related to estrogen exposure from obesity or hormone replacement. #gyncsm |
| DaveisAliveAndKickn @AliveAndKicknDD RT @journeycancer: #Gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm T1/A1 My biggest risk was lack of comprehensive care. |
| Rick Boulay,MD @journeycancer Less than 5% #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @temkins I've always thought there may be some data bias contributing to the risk factors for #EndometrialCancer. I'm not a gynecologist but I wonder if there's a larger genetic component. #gyncsm |
| Christina Lizaso @btrfly12 T1: Here is some information from @GYNCancer about risks for all the gynecologic cancers: https://t.co/KSQSarD8ct #gyncsm |
 | Heather 🇺🇸 @ZHeatherChamp #PTEN #RareDisease |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @temkins: @ShereesePubHlth Very few women (~5%) have a genetic risk leading to endometrial cancer. This includes Lynch and Cowdens syndrome and a family history of colon and endometrial cancer. Most of the risk is environmental related to estrogen exposure from obesity or hormone replacement. #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm T1/A1 My biggest risk was lack of comprehensive care. |
| DaveisAliveAndKickn @AliveAndKicknDD RT @EMBOSU: @btrfly12 About 3-5% of all endometrial cancer is thought to be due to an inherited risk #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T1: T1: Here is some information from @GYNCancer about risks for all the gynecologic cancers: https://t.co/KSQSarD8ct #gyncsm |
| Christina Lizaso @btrfly12 @ShereesePubHlth @temkins Here is one of the important studies about data bias with #endometrialcancer https://t.co/zqlvUYXCRT #gyncsm |
| Christina Lizaso @btrfly12 THIS #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: @ShereesePubHlth @temkins Here is one of the important studies about data bias with #endometrialcancer https://t.co/zqlvUYXCRT #gyncsm |
| Erica Bednar @EMBOSU T1: Lynch syndrome can also increase someone's lifetime risk for other cancers, like ovarian and colorectal cancer. If you have a family history of these cancers, talk to your health care team + a genetic counselor to better understand your risk+ prevention options #gyncsm |
| Dee Sparacio @womenofteal T1 Weight loss is important for healthy living/ can also reduce risk of #uterinecancer via @CancerDotNet @JCO_ASCO https://t.co/roVSN5tnOY #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm T1/A1. I also was never able to have children so that was another risk factor for me. |
| Dee Sparacio @womenofteal RT @EMBOSU: T1: T1: Lynch syndrome can also increase someone's lifetime risk for other cancers, like ovarian and colorectal cancer. If you have a family history of these cancers, talk to your health care team + a genetic counselor to better understand your risk+ prevention options #gyncsm |
 | Tamika Felder @tamikafelder RT @btrfly12: T1: T1: Here is some information from @GYNCancer about risks for all the gynecologic cancers: https://t.co/KSQSarD8ct #gyncsm |
| Rick Boulay,MD @journeycancer RT @EMBOSU: T1: T1: Lynch syndrome can also increase someone's lifetime risk for other cancers, like ovarian and colorectal cancer. If you have a family history of these cancers, talk to your health care team + a genetic counselor to better understand your risk+ prevention options #gyncsm |
| Tamika Felder @tamikafelder RT @gyncsm: Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| Tamika Felder @tamikafelder RT @temkins: @ShereesePubHlth Very few women (~5%) have a genetic risk leading to endometrial cancer. This includes Lynch and Cowdens syndrome and a family history of colon and endometrial cancer. Most of the risk is environmental related to estrogen exposure from obesity or hormone replacement. #gyncsm |
| Heather 🇺🇸 @ZHeatherChamp Having had prophylactic hysterectomy due to my #PTEN mutation I’m here to advocate! #gyncsm |
| Dee Sparacio @womenofteal RT @ZHeatherChamp: Having had prophylactic hysterectomy due to my #PTEN mutation I’m here to advocate! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Here comes Topic 2 (T2:)... #gyncsm |
| Rick Boulay,MD @journeycancer RT @ZHeatherChamp: Having had prophylactic hysterectomy due to my #PTEN mutation I’m here to advocate! #gyncsm |
 | Nita Lee @NitaKarnikLee @womenofteal @AmericanCancer #gyncsm hi all! Gyn onc @UCCancerCenter. Very important topic tonight. endometrial cancer cases and unfortunately deaths due to this cancer are still rising. More attention to both risk reduction and to awareness on symptoms for women and providers outside of gyne. |
| GYN Cancer | #GYNCSM @gyncsm T2: How are cancers of the uterus diagnosed? What symptoms are women experiencing that lead to diagnosis? #gyncsm |
| Dee Sparacio @womenofteal RT @NitaKarnikLee: @womenofteal @AmericanCancer #gyncsm hi all! Gyn onc @UCCancerCenter. Very important topic tonight. endometrial cancer cases and unfortunately deaths due to this cancer are still rising. More attention to both risk reduction and to awareness on symptoms for women and providers outside of gyne. |
| Dee Sparacio @womenofteal @NitaKarnikLee @AmericanCancer @UCCancerCenter Thanks for joining us ! #gyncsm |
| Rick Boulay,MD @journeycancer RT @gyncsm: T2: T2: How are cancers of the uterus diagnosed? What symptoms are women experiencing that lead to diagnosis? #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T2: T2: How are cancers of the uterus diagnosed? What symptoms are women experiencing that lead to diagnosis? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @temkins @btrfly12 @KemiDoll Endometrial cancer (EC) is under-researched and there are many knowledge gaps. (@sciencedirect) #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: @temkins @btrfly12 @KemiDoll Endometrial cancer (EC) is under-researched and there are many knowledge gaps. (@sciencedirect) #gyncsm |
| Rick Boulay,MD @journeycancer Symptoms are most commonly irregular vaginal bleeding.Diagnosis is through endometrial biopsy either in the office or the operating room. #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: Symptoms are most commonly irregular vaginal bleeding.Diagnosis is through endometrial biopsy either in the office or the operating room. #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: Symptoms are most commonly irregular vaginal bleeding.Diagnosis is through endometrial biopsy either in the office or the operating room. #gyncsm |
 | Onyinye Balogun MD, MSc @GlobalRadOnc Onyinye Balogun - Gyn #radonc here for the chat. So happy to connect with this #endometrialcancer community 😊 #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm T2/A2 I experienced heavy bleeding for 3 weeks before a doctor would see me. |
 | Fay Hlubocky PhD MA FASCO @FayUCCancerCr RT @NitaKarnikLee: @womenofteal @AmericanCancer #gyncsm hi all! Gyn onc @UCCancerCenter. Very important topic tonight. endometrial cancer cases and unfortunately deaths due to this cancer are still rising. More attention to both risk reduction and to awareness on symptoms for women and providers outside of gyne. |
| Christina Lizaso @btrfly12 #gyncsm |
| Fay Hlubocky PhD MA FASCO @FayUCCancerCr RT @womenofteal: @NitaKarnikLee @AmericanCancer @UCCancerCenter Thanks for joining us ! #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm T2/A2 I experienced heavy bleeding for 3 weeks before a doctor would see me. |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Recognizing the symptoms of endometrial cancer https://t.co/Sp9mxtCuPj via @YouTube #WomensHealth #gyncsm |
| Dee Sparacio @womenofteal @GlobalRadOnc Thanks for joining us. #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 My main symptom was abnormal menstrual cycles. I went to several gynecologist because of it and sadly not one ever brought up endometrial cancer. #gyncsm |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: Recognizing the symptoms of endometrial cancer https://t.co/Sp9mxtCuPj via @YouTube #WomensHealth #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @ucan2020: My main symptom was abnormal menstrual cycles. I went to several gynecologist because of it and sadly not one ever brought up endometrial cancer. #gyncsm |
| Erica Bednar @EMBOSU RT @journeycancer: Symptoms are most commonly irregular vaginal bleeding.Diagnosis is through endometrial biopsy either in the office or the operating room. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm I had a history of Ovarian cancer. That mad me more vulnerable to other gyn cancers. |
| Dee Sparacio @womenofteal @AdrienneEcana Did you think it was cancer at that time or something else like fibroids ? #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: My main symptom was abnormal menstrual cycles. I went to several gynecologist because of it and sadly not one ever brought up endometrial cancer. #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm I had a history of Ovarian cancer. That mad me more vulnerable to other gyn cancers. |
| EcanaAdrienne @AdrienneEcana #gyncsm I was told I was peri-menopausal so my symptoms of irregular periods and bloating were normal. |
| Christina Lizaso @btrfly12 T2: Any irregular-for-you bleeding needs attention! And after listening to your body and making an appointment happen - really need doc's to listen. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: T2: T2: Any irregular-for-you bleeding needs attention! And after listening to your body and making an appointment happen - really need doc's to listen. #gyncsm |
| Christina Lizaso @btrfly12 RT @ucan2020: My main symptom was abnormal menstrual cycles. I went to several gynecologist because of it and sadly not one ever brought up endometrial cancer. #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: Recognizing the symptoms of endometrial cancer https://t.co/Sp9mxtCuPj via @YouTube #WomensHealth #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm Fibrouds were the reason for everything. |
| Heather 🇺🇸 @ZHeatherChamp RT @ZHeatherChamp: Having had prophylactic hysterectomy due to my #PTEN mutation I’m here to advocate! #gyncsm |
| Dee Sparacio @womenofteal T2 @GYNCancer - Symptoms ” warning sign for uterine cancer, including endometrial cancer, is abnormal vaginal bleeding.” In older women, any bleeding, spotting, or brownish discharge after menopause may symptom #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Topic 3 (T3:) coming up... #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm What do you do if docs don't listen and normalize your experience? |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm What do you do if docs don't listen and normalize your experience? |
| Rick Boulay,MD @journeycancer @frandrescher experienced a Delay in diagnosis of endometrial cancer due to her young age and sense from the medical establishment that she was unlikely to have a cancer. Biopsy should be done on any women over 35 with irregular bleeding. #gyncsm |
| Heather 🇺🇸 @ZHeatherChamp RT @gyncsm: Topic 3 (T3:) coming up... #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: @frandrescher experienced a Delay in diagnosis of endometrial cancer due to her young age and sense from the medical establishment that she was unlikely to have a cancer. Biopsy should be done on any women over 35 with irregular bleeding. #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: @frandrescher experienced a Delay in diagnosis of endometrial cancer due to her young age and sense from the medical establishment that she was unlikely to have a cancer. Biopsy should be done on any women over 35 with irregular bleeding. #gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana I'd go for a second opinion. #gyncsm |
| Rick Boulay,MD @journeycancer Find a new doc #GYNCSM |
 | Elixir Fund @elixirfund RT @ucan2020: We are donating free masks to uterine cancer patients, survivors, and caregivers of a patient. Please direct anyone to us that might need one! #gyncsm |
| Christina Lizaso @btrfly12 There have been too many studies and too many stories I have heard personally re: women being told physical symptoms are all in their heads. Unfortunately, just have to keep going to providers until we find one that listens. Connecting with other women/patients can help #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba WOC are more likely not to be believed when reporting symptoms. Racism, African American Women, and Their Sexual and Reproductive Health: A Review of Historical and Contemporary Evidence and Implications for Health Equity https://t.co/EZOB2O4ZZx #Gyncsm |
| Dee Sparacio @womenofteal @TaxLady580 True and Sometimes the simple answer is the right one but we know when something is just not right and we have to advocate for ourselves. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T3: What are the different types of #EndometrialCancer? Are they treated differently? #gyncsm |
| Rick Boulay,MD @journeycancer RT @ShereesePubHlth: WOC are more likely not to be believed when reporting symptoms. Racism, African American Women, and Their Sexual and Reproductive Health: A Review of Historical and Contemporary Evidence and Implications for Health Equity https://t.co/EZOB2O4ZZx #Gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: There have been too many studies and too many stories I have heard personally re: There have been too many studies and too many stories I have heard personally re: women being told physical symptoms are all in their heads. Unfortunately, just have to keep going to providers until we find one that listens. Connecting with other women/patients can help #gyncsm |
| Dee Sparacio @womenofteal RT @ShereesePubHlth: WOC are more likely not to be believed when reporting symptoms. Racism, African American Women, and Their Sexual and Reproductive Health: A Review of Historical and Contemporary Evidence and Implications for Health Equity https://t.co/EZOB2O4ZZx #Gyncsm |
| Nita Lee @NitaKarnikLee RT @womenofteal: T2 @GYNCancer - Symptoms ” warning sign for uterine cancer, including endometrial cancer, is abnormal vaginal bleeding.” In older women, any bleeding, spotting, or brownish discharge after menopause may symptom #gyncsm |
| Rick Boulay,MD @journeycancer RT @womenofteal: @TaxLady580 True and Sometimes the simple answer is the right one but we know when something is just not right and we have to advocate for ourselves. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T3: T3: What are the different types of #EndometrialCancer? Are they treated differently? #gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: WOC are more likely not to be believed when reporting symptoms. Racism, African American Women, and Their Sexual and Reproductive Health: A Review of Historical and Contemporary Evidence and Implications for Health Equity https://t.co/EZOB2O4ZZx #Gyncsm |
 | Sakinah Kaiser (She/Her) @themuslimhippie 👇 |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @ShereesePubHlth: WOC are more likely not to be believed when reporting symptoms. Racism, African American Women, and Their Sexual and Reproductive Health: A Review of Historical and Contemporary Evidence and Implications for Health Equity https://t.co/EZOB2O4ZZx #Gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @AdrienneEcana There are disparities particular to WOC. Doctors are less likely to believe our symptom & often misdiagnose #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 That is one of the things I have tried to really press upon with my public awareness campaigns that if your doc does not listen go find another doc! I really wish I would have! #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @ucan2020: That is one of the things I have tried to really press upon with my public awareness campaigns that if your doc does not listen go find another doc! I really wish I would have! #gyncsm |
| Dee Sparacio @womenofteal RT @ucan2020: That is one of the things I have tried to really press upon with my public awareness campaigns that if your doc does not listen go find another doc! I really wish I would have! #gyncsm |
| Christina Lizaso @btrfly12 T2: Women also run into weight bias at the doctor's office when reporting symptoms. The age thing, as mentioned, can be a diagnosis barrier for most of the gyn cancers or any cancer. Not just older women get cancer. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm T3/A3 . I had endometroid Stage III Grade 2. I recieved Full Hysterectomy 6 rounds carbo/taxol and 21 rounds rad |
| Nita Lee @NitaKarnikLee T2: #gyncsm. link to a great video we made years back with @SGO_org via @ACS_Illinois grant on hearing pt voices and experiences about risk factors and healthy lifestyle change after endometrial cancer. https://t.co/7IwQz36zbU |
| Dee Sparacio @womenofteal @theNCI states endometrial cancer may be low risk or high risk #gyncsm https://t.co/IC1rsGpzKL |
| Sarah Temkin @temkins RT @ucan2020: That is one of the things I have tried to really press upon with my public awareness campaigns that if your doc does not listen go find another doc! I really wish I would have! #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T2: T2: Women also run into weight bias at the doctor's office when reporting symptoms. The age thing, as mentioned, can be a diagnosis barrier for most of the gyn cancers or any cancer. Not just older women get cancer. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm I quit radiation after 21 rounds due to severe side effects. |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm T3/A3 . I had endometroid Stage III Grade 2. I recieved Full Hysterectomy 6 rounds carbo/taxol and 21 rounds rad |
| Dee Sparacio @womenofteal RT @NitaKarnikLee: T2: T2: #gyncsm. link to a great video we made years back with @SGO_org via @ACS_Illinois grant on hearing pt voices and experiences about risk factors and healthy lifestyle change after endometrial cancer. https://t.co/7IwQz36zbU |
| EcanaAdrienne @AdrienneEcana #gyncsm Radiation was more toxic than chemotherapy. |
| Rick Boulay,MD @journeycancer There are multiple different types of endometrial cancer, most commonly endometrioid, also carcinosarcoma and papillary serous + clear cell subtypes as well as adenosarcoma. All are treated differently due to different genetic fingerprints and susceptibility to treatment. #gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana Was your radiation therapy Brachytherapy? #gyncsm |
| Dee Sparacio @womenofteal RT @journeycancer: There are multiple different types of endometrial cancer, most commonly endometrioid, also carcinosarcoma and papillary serous + clear cell subtypes as well as adenosarcoma. All are treated differently due to different genetic fingerprints and susceptibility to treatment. #gyncsm |
| Rick Boulay,MD @journeycancer RT @ucan2020: That is one of the things I have tried to really press upon with my public awareness campaigns that if your doc does not listen go find another doc! I really wish I would have! #gyncsm |
| Christina Lizaso @btrfly12 T3: Terms and types and subtypes within cancer make my brain hurt. There are 2 main types of uterine cancer - endometrial (90% of uterine cancers) and sarcoma. Then for endometrial there are varieties. Most treated with surgery/radiation/chemo. #gyncsm |
| Christina Lizaso @btrfly12 RT @journeycancer: There are multiple different types of endometrial cancer, most commonly endometrioid, also carcinosarcoma and papillary serous + clear cell subtypes as well as adenosarcoma. All are treated differently due to different genetic fingerprints and susceptibility to treatment. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm However leaving radiation was my first act of self advocacy!! Still a proud moment of realizing I had a decision in my care. |
| Christina Lizaso @btrfly12 RT @womenofteal: @theNCI states endometrial cancer may be low risk or high risk #gyncsm https://t.co/IC1rsGpzKL |
| Dee Sparacio @womenofteal RT @btrfly12: T3: T3: Terms and types and subtypes within cancer make my brain hurt. There are 2 main types of uterine cancer - endometrial (90% of uterine cancers) and sarcoma. Then for endometrial there are varieties. Most treated with surgery/radiation/chemo. #gyncsm |
| Nita Lee @NitaKarnikLee RT @ShereesePubHlth: WOC are more likely not to be believed when reporting symptoms. Racism, African American Women, and Their Sexual and Reproductive Health: A Review of Historical and Contemporary Evidence and Implications for Health Equity https://t.co/EZOB2O4ZZx #Gyncsm |
 | DineoKhabeleMD @DKhabeleMD RT @womenofteal: T2 @GYNCancer - Symptoms ” warning sign for uterine cancer, including endometrial cancer, is abnormal vaginal bleeding.” In older women, any bleeding, spotting, or brownish discharge after menopause may symptom #gyncsm |
| Dee Sparacio @womenofteal Self advocating is important. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm @womenofteal . Pelvic only. I declined brachy. It terrified me |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @journeycancer: There are multiple different types of endometrial cancer, most commonly endometrioid, also carcinosarcoma and papillary serous + clear cell subtypes as well as adenosarcoma. All are treated differently due to different genetic fingerprints and susceptibility to treatment. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm T4: Studies have found African-American women experience higher mortality from #endometrialcancer than any other group of women. What factors are researchers looking into to explain and address this disparity? #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @AdrienneEcana: #gyncsm I quit radiation after 21 rounds due to severe side effects. |
| Onyinye Balogun MD, MSc @GlobalRadOnc Agreed! I've seen more WOC than I'd like whose sxs were minimized only to discover #endometrialcancer later. Or they weren't informed about their true diagnosis post-op. Or abandoned post-op despite complications. And the toll on their #mentalhealth is heartbreaking. 😔#gyncsm |
| Erica Bednar @EMBOSU RT @gyncsm: T4: T4: Studies have found African-American women experience higher mortality from #endometrialcancer than any other group of women. What factors are researchers looking into to explain and address this disparity? #gyncsm |
| Dee Sparacio @womenofteal RT @GlobalRadOnc: Agreed! I've seen more WOC than I'd like whose sxs were minimized only to discover #endometrialcancer later. Or they weren't informed about their true diagnosis post-op. Or abandoned post-op despite complications. And the toll on their #mentalhealth is heartbreaking. 😔#gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @GlobalRadOnc: Agreed! I've seen more WOC than I'd like whose sxs were minimized only to discover #endometrialcancer later. Or they weren't informed about their true diagnosis post-op. Or abandoned post-op despite complications. And the toll on their #mentalhealth is heartbreaking. 😔#gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: T4: T4: Studies have found African-American women experience higher mortality from #endometrialcancer than any other group of women. What factors are researchers looking into to explain and address this disparity? #gyncsm |
| Christina Lizaso @btrfly12 RT @GlobalRadOnc: Agreed! I've seen more WOC than I'd like whose sxs were minimized only to discover #endometrialcancer later. Or they weren't informed about their true diagnosis post-op. Or abandoned post-op despite complications. And the toll on their #mentalhealth is heartbreaking. 😔#gyncsm |
| Rick Boulay,MD @journeycancer Generally, barriers to diagnosis and treatment which allow for advanced stage at diagnosis. #GYNCSM |
| Dee Sparacio @womenofteal t 4 2/2 "the study described knowledge gaps and silence about menopause, misinterpretation of vaginal bleeding in the context of these knowledge gaps, and responses by first-line health care practitioners that were not aligned with the high-risk status of the women. #gyncsm |
| Dee Sparacio @womenofteal T4 "factors may be useful in the development of targeted interventions to improve early dx rates among black women w/ endometrial cancer.” Assessment of Prediagnostic Experiences of Black Women With Endometrial Cancer in the United States https://t.co/0I00Zykxxa #gyncsm 1/2 |
| Sarah Temkin @temkins A3 Subtyping of endometrial cancer is so behind other disease sites! We having even reached the ER/PR/HER2 categorizations that define breast cancers. Research is needed on the molecular categories - POLE, MMR, and p53. #gyncsm |
| Dee Sparacio @womenofteal RT @temkins: A3 Subtyping of endometrial cancer is so behind other disease sites! We having even reached the ER/PR/HER2 categorizations that define breast cancers. Research is needed on the molecular categories - POLE, MMR, and p53. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm T4/A4 In 2019 @ECANAwomen convened survivors and researchers to come together and talk about policies to address the issues of bias in research |
| Rick Boulay,MD @journeycancer RT @womenofteal: T4 "factors may be useful in the development of targeted interventions to improve early dx rates among black women w/ endometrial cancer.” Assessment of Prediagnostic Experiences of Black Women With Endometrial Cancer in the United States https://t.co/0I00Zykxxa #gyncsm 1/2 |
| Dee Sparacio @womenofteal @temkins Prepping for this chat I learned there is some research using mTor inhibitors for endometrial cancer . #gyncsm |
| Christina Lizaso @btrfly12 T4: @KemiDoll @ECANAwomen and others are doing great research and advocacy in this area. https://t.co/C5pjm4zen5 #gyncsm |
| Christina Lizaso @btrfly12 RT @AdrienneEcana: #gyncsm T4/A4 In 2019 @ECANAwomen convened survivors and researchers to come together and talk about policies to address the issues of bias in research |
| Uterine Cancer Awareness Network @ucan2020 We need to make endometrial cancer information easily accessible to our young ladies as well as all ladies especially in the gynecologist office. I would have handled my abnormal bleeding differently if I had known it was a symptom of the disease #gyncsm |
| Dee Sparacio @womenofteal Imp work being done my @ECANAwomen #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: T4: T4: @KemiDoll @ECANAwomen and others are doing great research and advocacy in this area. https://t.co/C5pjm4zen5 #gyncsm |
| Christina Lizaso @btrfly12 RT @temkins: A3 Subtyping of endometrial cancer is so behind other disease sites! We having even reached the ER/PR/HER2 categorizations that define breast cancers. Research is needed on the molecular categories - POLE, MMR, and p53. #gyncsm |
| Sarah Temkin @temkins @ShereesePubHlth And just to shout out to @KemiDoll again see this article. #RacismIsReal. #gyncsm. https://t.co/qQDGYqePse |
| EcanaAdrienne @AdrienneEcana #gyncsm T4/A4 We want to be included in research but it is rare we are presented with the opportunity. |
| Dee Sparacio @womenofteal RT @ucan2020: We need to make endometrial cancer information easily accessible to our young ladies as well as all ladies especially in the gynecologist office. I would have handled my abnormal bleeding differently if I had known it was a symptom of the disease #gyncsm |
| Christina Lizaso @btrfly12 @womenofteal "responses that were not aligned"... is like... about the nicest way to put something terrible... #gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana But advocates like you will make a difference ! #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GlobalRadOnc This is a problem, as many WOC don't feel empowered int heir own health and can't advocate about what they don't know. Even most research (& I've done the legwork) fails to mention EndCa for WOC as in the top 5. The data doesn't exist. #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @temkins: @ShereesePubHlth And just to shout out to @KemiDoll again see this article. #RacismIsReal. #gyncsm. https://t.co/qQDGYqePse |
| Dee Sparacio @womenofteal @btrfly12 exactly what I thought when I was reading the article. Which was the first time a study like this was done. #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm Our Advocacy included talking to our friends in neighbors in small groups about EC and Clinical research |
| Nita Lee @NitaKarnikLee T3: within endometrial cancers often divided by low risk (type1) and high risk cell types (type2). High risk types like serous, clear cell, carcinosarcoma are often treated more aggressively due to presentation at higher stages or due to higher recurrence risks. #gyncsm |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @GlobalRadOnc: Agreed! I've seen more WOC than I'd like whose sxs were minimized only to discover #endometrialcancer later. Or they weren't informed about their true diagnosis post-op. Or abandoned post-op despite complications. And the toll on their #mentalhealth is heartbreaking. 😔#gyncsm |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: @GlobalRadOnc This is a problem, as many WOC don't feel empowered int heir own health and can't advocate about what they don't know. Even most research (& I've done the legwork) fails to mention EndCa for WOC as in the top 5. The data doesn't exist. #gyncsm |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @btrfly12: T4: T4: @KemiDoll @ECANAwomen and others are doing great research and advocacy in this area. https://t.co/C5pjm4zen5 #gyncsm |
| Christina Lizaso @btrfly12 RT @NitaKarnikLee: T3: T3: within endometrial cancers often divided by low risk (type1) and high risk cell types (type2). High risk types like serous, clear cell, carcinosarcoma are often treated more aggressively due to presentation at higher stages or due to higher recurrence risks. #gyncsm |
| Christina Lizaso @btrfly12 RT @AdrienneEcana: #gyncsm Our Advocacy included talking to our friends in neighbors in small groups about EC and Clinical research |
| Sarah Temkin @temkins RT @womenofteal: Self advocating is important. #gyncsm |
 | Prof Caroline Ford @DrCFord RT @gyncsm: Tonight #gyncsm is holding a chat on Endometrial Cancer - Risks, Symptoms and Treatments. Endometrial cancer is the more common of the two main types of uterine cancer. The other main uterine cancer type is sarcoma. |
| GYN Cancer | #GYNCSM @gyncsm Last topic for tonight's chat... T5: What are the side effects of #endometrialcancer and its treatments that may impact a woman’s quality of life? What can be done to improve the lives of women diagnosed with endometrial cancer? #gyncsm |
| Christina Lizaso @btrfly12 RT @ucan2020: We need to make endometrial cancer information easily accessible to our young ladies as well as all ladies especially in the gynecologist office. I would have handled my abnormal bleeding differently if I had known it was a symptom of the disease #gyncsm |
| Dee Sparacio @womenofteal RT @NitaKarnikLee: T3: T3: within endometrial cancers often divided by low risk (type1) and high risk cell types (type2). High risk types like serous, clear cell, carcinosarcoma are often treated more aggressively due to presentation at higher stages or due to higher recurrence risks. #gyncsm |
| Christina Lizaso @btrfly12 RT @AdrienneEcana: #gyncsm T4/A4 We want to be included in research but it is rare we are presented with the opportunity. |
| EcanaAdrienne @AdrienneEcana #gyncsm T5/A5. We all experience the similar physical side effects but what about the emotional and psychological? |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @womenofteal: @temkins Prepping for this chat I learned there is some research using mTor inhibitors for endometrial cancer . #gyncsm |
| Dee Sparacio @womenofteal T4 # from ASCO20 Uterine cancer histology and stage at presentation in black & white women: A cohort study of 488,000 Compared to white women black women are more likely to be dx with serous, clear cell,carcinosarcoma, leiomyosarcomas at adv stages #gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana Yes we need to treat the whole patient - not just physical side effects . #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Last topic for tonight's chat... T5: What are the side effects of #endometrialcancer and its treatments that may impact a woman’s quality of life? What can be done to improve the lives of women diagnosed with endometrial cancer? #gyncsm |
| DaveisAliveAndKickn @AliveAndKicknDD RT @temkins: @ShereesePubHlth And just to shout out to @KemiDoll again see this article. #RacismIsReal. #gyncsm. https://t.co/qQDGYqePse |
| EcanaAdrienne @AdrienneEcana #gyncsm T5/A5 we should implement #Cancer Rehab as part of treatment plan that includes post psychological therapies. |
| DaveisAliveAndKickn @AliveAndKicknDD RT @AdrienneEcana: #gyncsm T4/A4 We want to be included in research but it is rare we are presented with the opportunity. |
| Dee Sparacio @womenofteal T5 Help with managing side effects are listed on this @CancerSupportHQhttps://www.cancersupportcommunity.org/article/side-effects-management-endometrial-cancer #gyncsm |
| Christina Lizaso @btrfly12 @AdrienneEcana There is so much room to better support cancer survivors post front-line treatment. Healthcare taking steps to help patients connect is to me an important part of the equation. #gyncsm |
| Christina Lizaso @btrfly12 RT @AdrienneEcana: #gyncsm T5/A5 we should implement #Cancer Rehab as part of treatment plan that includes post psychological therapies. |
| DaveisAliveAndKickn @AliveAndKicknDD RT @womenofteal: T4 # from ASCO20 Uterine cancer histology and stage at presentation in black & white women: T4 # from ASCO20 Uterine cancer histology and stage at presentation in black & white women: A cohort study of 488,000 Compared to white women black women are more likely to be dx with serous, clear cell,carcinosarcoma, leiomyosarcomas at adv stages #gyncsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @AdrienneEcana: #gyncsm T5/A5 we should implement #Cancer Rehab as part of treatment plan that includes post psychological therapies. |
| EcanaAdrienne @AdrienneEcana #gyncsm Long term neuropathy and forced menopause are damaging to how you view yourself. |
| Dee Sparacio @womenofteal Trying again with the correct spacing T5 Help with managing side effects are listed on this @CancerSupportHQ https://t.co/eYB03AH99V #gyncsm |
| Dee Sparacio @womenofteal RT @btrfly12: @AdrienneEcana There is so much room to better support cancer survivors post front-line treatment. Healthcare taking steps to help patients connect is to me an important part of the equation. #gyncsm |
| Onyinye Balogun MD, MSc @GlobalRadOnc T4: Black women more often develop high grade/aggressive types of endometrial cancer. Could be genetic, environmental factors? Also advanced stage at presentation plays a role. Need to educate about sxs, address insurance, systemic racism. Devoting my career to this! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Whew - Already time to start sharing closing thoughts on this #endometrialcancer chat! If you like, you can start your tweet with TIL: for Today I Learned. #gyncsm |
| Dee Sparacio @womenofteal RT @GlobalRadOnc: T4: T4: Black women more often develop high grade/aggressive types of endometrial cancer. Could be genetic, environmental factors? Also advanced stage at presentation plays a role. Need to educate about sxs, address insurance, systemic racism. Devoting my career to this! #gyncsm |
| EcanaAdrienne @AdrienneEcana #gyncsm I still struggle with gait and balance. |
| Dee Sparacio @womenofteal RT @gyncsm: Whew - Already time to start sharing closing thoughts on this #endometrialcancer chat! If you like, you can start your tweet with TIL: for Today I Learned. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm So very grateful to our special guest @AdrienneEcana and to all who shared of their personal experiences. #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm Long term neuropathy and forced menopause are damaging to how you view yourself. |
| Erica Bednar @EMBOSU T4: public health researchers study system-level factors causing differences in health outcomes sometimes called "social determinants of health": includes factors that create barriers to accessing healthcare/health insurance, systematic racism in healthcare, etc. #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm I still struggle with gait and balance. |
| EcanaAdrienne @AdrienneEcana #gyncsm TIL you need alot of support no matter what stage of your cancer journey. |
| Uterine Cancer Awareness Network @ucan2020 @AdrienneEcana I agree with you 100% and then not to have anyone to really talk to about it because no one talks about uterine cancer.#gyncsm |
| Dee Sparacio @womenofteal @AdrienneEcana For me and for so many women. #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Was great to see healthcare providers in various roles and including first-timers to the chat. Thanks for all you do for patients. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: So very grateful to our special guest @AdrienneEcana and to all who shared of their personal experiences. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: T4: T4: public health researchers study system-level factors causing differences in health outcomes sometimes called "social determinants of health": includes factors that create barriers to accessing healthcare/health insurance, systematic racism in healthcare, etc. #gyncsm |
| Dee Sparacio @womenofteal RT @AdrienneEcana: #gyncsm TIL you need alot of support no matter what stage of your cancer journey. |
| GYN Cancer | #GYNCSM @gyncsm It was wonderful to see so many new faces. Please join us our next #gyncsm chat on Wed Sept 9 at 9pmET as we discuss Rare Gyn Cancers. Wishing wellness and safety for all! #gyncsm |
| Nita Lee @NitaKarnikLee @AdrienneEcana #gyncsm This is critically important. I learned early on that patients and their personal social network were the most powerful trusted voices to share information and promote awareness. Excited to see more pt /community perspective to education efforts! @SGO_org @GYNCancer |
| jackie feinberg @jackiefeinberg @AdrienneEcana Thank you for sharing your story and for your advocacy 🙏 #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: Was great to see healthcare providers in various roles and including first-timers to the chat. Thanks for all you do for patients. #gyncsm |
| Christina Lizaso @btrfly12 T5: I think, unfortunately, that surgical menopause is still down-played and women are not really prepared well for it. #gyncsm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte |
| Dee Sparacio @womenofteal RT @gyncsm: It was wonderful to see so many new faces. Please join us our next #gyncsm chat on Wed Sept 9 at 9pmET as we discuss Rare Gyn Cancers. Wishing wellness and safety for all! #gyncsm |
| Christina Lizaso @btrfly12 RT @NitaKarnikLee: @AdrienneEcana #gyncsm This is critically important. I learned early on that patients and their personal social network were the most powerful trusted voices to share information and promote awareness. Excited to see more pt /community perspective to education efforts! @SGO_org @GYNCancer |
| Dee Sparacio @womenofteal RT @NitaKarnikLee: @AdrienneEcana #gyncsm This is critically important. I learned early on that patients and their personal social network were the most powerful trusted voices to share information and promote awareness. Excited to see more pt /community perspective to education efforts! @SGO_org @GYNCancer |
| Christina Lizaso @btrfly12 RT @ucan2020: @AdrienneEcana I agree with you 100% and then not to have anyone to really talk to about it because no one talks about uterine cancer.#gyncsm |
| Dee Sparacio @womenofteal @NitaKarnikLee @AdrienneEcana @SGO_org @GYNCancer Thank you for joining us! #gyncsm |
| Christina Lizaso @btrfly12 RT @AdrienneEcana: #gyncsm TIL you need alot of support no matter what stage of your cancer journey. |
| Christina Lizaso @btrfly12 RT @EMBOSU: T4: T4: public health researchers study system-level factors causing differences in health outcomes sometimes called "social determinants of health": includes factors that create barriers to accessing healthcare/health insurance, systematic racism in healthcare, etc. #gyncsm |
| Dee Sparacio @womenofteal RT @jackiefeinberg: @AdrienneEcana Thank you for sharing your story and for your advocacy 🙏 #gyncsm |
 | Waxman Foundation @WaxmanCancer Aging and cancer. |
| Christina Lizaso @btrfly12 RT @GlobalRadOnc: T4: T4: Black women more often develop high grade/aggressive types of endometrial cancer. Could be genetic, environmental factors? Also advanced stage at presentation plays a role. Need to educate about sxs, address insurance, systemic racism. Devoting my career to this! #gyncsm |
 | Colletta Orr @CollettaOrr RT @GlobalRadOnc: T4: T4: Black women more often develop high grade/aggressive types of endometrial cancer. Could be genetic, environmental factors? Also advanced stage at presentation plays a role. Need to educate about sxs, address insurance, systemic racism. Devoting my career to this! #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Dee Sparacio @womenofteal So happy you could join us and share your story @AdrienneEcana . So glad we got to meet in person at the @NRGonc meeting- till the next time! #gyncsm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #gyncsm |
| Uterine Cancer Awareness Network @ucan2020 @btrfly12 Going into menopause at 27 and now 38 I have started to have seizures and they can't figure out why. I truly believe it has something to do with not having the hormones and it's affecting my brain but with outdated research I am just left to wonder.#gyncsm |
| Christina Lizaso @btrfly12 RT @ucan2020: @btrfly12 Going into menopause at 27 and now 38 I have started to have seizures and they can't figure out why. I truly believe it has something to do with not having the hormones and it's affecting my brain but with outdated research I am just left to wonder.#gyncsm |
| Erica Bednar @EMBOSU TIL that endometrial cancer awareness, education, and advocacy are needed and have many opportunities to reach more women, healthcare providers, and communities to decrease misdiagnosed and delays in treatment #gyncsm |
| Christina Lizaso @btrfly12 RT @EMBOSU: TIL that endometrial cancer awareness, education, and advocacy are needed and have many opportunities to reach more women, healthcare providers, and communities to decrease misdiagnosed and delays in treatment #gyncsm |
| Dee Sparacio @womenofteal @ucan2020 Thank you for joining us and for working to make others aware of endometrial cancer. #gyncsm |
| Dee Sparacio @womenofteal RT @gyncsm: As always, remember to tweet things of interest with hashtag #gyncsm to keep the conversation going between chats. |
| Christina Lizaso @btrfly12 RT @womenofteal: @ucan2020 Thank you for joining us and for working to make others aware of endometrial cancer. #gyncsm |
| Dee Sparacio @womenofteal @ucan2020 @btrfly12 I hope they can find the cause soon. Instant menopause is not fun. #gyncsm |
| Dee Sparacio @womenofteal RT @EMBOSU: TIL that endometrial cancer awareness, education, and advocacy are needed and have many opportunities to reach more women, healthcare providers, and communities to decrease misdiagnosed and delays in treatment #gyncsm |
| Dee Sparacio @womenofteal TIL That we have to work to do to raise awareness of endometrial cancer and researchers and health care providers need work with WOC to improve gyn cancer care. #gyncsm |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @womenofteal: TIL That we have to work to do to raise awareness of endometrial cancer and researchers and health care providers need work with WOC to improve gyn cancer care. #gyncsm |
#GynCSM content from Twitter.