#HCLDR Transcript
Healthcare social media transcript of the #HCLDR hashtag.
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See #HCLDR Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | HCLDR Moderator @hcldr Hello Everyone! Welcome to the weekly Health Care Leadership Tweet Chat #hcldr |
| HCLDR Moderator @hcldr Tonight's #hcldr is extra-special. We are part of a global collaboration with our friends at #IrishMed & #HealthXPh on the topic of End-of-Life #EOL See blog for details https://t.co/MGBsyGDo33 https://t.co/OpPdICScIU |
 | Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Tonight's #hcldr is extra-special. We are part of a global collaboration with our friends at #IrishMed & #HealthXPh on the topic of End-of-Life #EOL See blog for details https://t.co/MGBsyGDo33 https://t.co/OpPdICScIU |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Hello Everyone! Welcome to the weekly Health Care Leadership Tweet Chat #hcldr |
 | Barby Ingle Official @BarbyIngle RT @hcldr: Tonight's #hcldr is extra-special. We are part of a global collaboration with our friends at #IrishMed & #HealthXPh on the topic of End-of-Life #EOL See blog for details https://t.co/MGBsyGDo33 https://t.co/OpPdICScIU |
| HCLDR Moderator @hcldr Behind this blue circle is @Colin_Hung blogger, community builder, marketer and #HealthIT true believer. Normally in Toronto but coming to you tonight from Pittsburgh #PGH #hcldr |
| HCLDR Moderator @hcldr Helping to keep the chat flowing is wingman extraordinaire Joe @JoeBabaian #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian @bonniesheeren @hcldr @drlfarrell Hi! #hcldr |
 | Enlightening Results 💡 @GraceCordovano Good evening #hcldr! Grace, board-certified patient advocate & #PtExp enhancer joining from NJ. I have a profound appreciation for & fascination of #EoL discussions. |
 | Nathan Grunewald MD MBA FACS @NathanGrunewald @JoeBabaian @bonniesheeren @hcldr @drlfarrell Hi Joe and Colin! #hcldr |
 | Bonnie C. Sheeren, BCPA @bonniesheeren Totally in my wheelhouse! https://t.co/R9Gil3yoJO Spent 2 years working across from UT Med School morgue! Keep this on my office desk. #hcldr https://t.co/IqbljmaRHI |
| HCLDR Moderator @hcldr Let’s start off with introductions! Tell us your name, what you do and where you are based #hcldr |
 | Colin Hung @Colin_Hung @NathanGrunewald @JoeBabaian @bonniesheeren @hcldr @drlfarrell Hello Nathan! #hcldr |
 | HealthSparq @HealthSparq #hcldr |
 | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS M! Speaking of which, can you spell m a s s p r o d u c t i on? #HIMSStiara #HIMSS19 #HCLDR PS Given tonight’s topic: of 3 parents & in-laws, one had an extensive Advanced Directive and it made an incredible difference (as in days of dignified decline vs months of the opposite) https://t.co/aD7jXREpJJ |
 | Jamie Roger @JamieRoger8 Hello @JoeBabaian @Colin_Hung and all of the other wonderful #hcldr folks. So glad to be with everyone tonight for this discussion. Jamie here from CT and @SalemOaks |
| Enlightening Results 💡 @GraceCordovano @hcldr @JoeBabaian Waving hello from NJ!! So happy to be here tonight! #hcldr |
| Jamie Roger @JamieRoger8 Hello @NathanGrunewald How's the weather treating you? #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren Bonnie Sheeren, pt. advocate, Houston, TX! Ready to chat tonight! #hcldr |
| HCLDR Moderator @hcldr Our #hcldr chat lasts 1hr. It's designed to educate & promote professional development, critical thinking & spur action |
| HCLDR Moderator @hcldr For those new to #hcldr every week we gather at 8:30pm ET to discuss interesting & timely healthcare topics |
 | Rasu Shrestha MD MBA @RasuShrestha RT @hcldr: Tonight's #hcldr is extra-special. We are part of a global collaboration with our friends at #IrishMed & #HealthXPh on the topic of End-of-Life #EOL See blog for details https://t.co/MGBsyGDo33 https://t.co/OpPdICScIU |
 | Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 Checking in with #hcldr for this evening with glass I hand of Barrel Proof Elijah Craig #whiskey #tonightstipple https://t.co/IxyQ2GVIGr |
| Joe Babaian 🇺🇦 @JoeBabaian @JamieRoger8 @Colin_Hung @SalemOaks Hi! #hcldr |
 | Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl Hellloooo, #hcldr! Laurel, mental health worker in Orlando. My sister is getting married next week and everyone is getting into full-blown panic mode. I'm the Matron of Honor... as long as we all survive that long. |
| Joe Babaian 🇺🇦 @JoeBabaian @NathanGrunewald @bonniesheeren @hcldr @drlfarrell Hi! #hcldr |
| Enlightening Results 💡 @GraceCordovano @bonniesheeren Hi Bonnie! Great to see you. #hcldr |
| HealthSparq @HealthSparq Hi everyone! @annerskg at @HealthSparq checking-in from a very chilly #PDX for tonight's #hcldr #irishmed #HealthXPh chat! Excited to be back tonight after many missed chats! |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl RT @hcldr: Our #hcldr chat lasts 1hr. It's designed to educate & promote professional development, critical thinking & spur action |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @JamieRoger8 Hi Jamie. Okay today, but looking pretty chilly in the next couple of days. Heading to warmer weather next week though, so I'll make it through. How ru? #hcldr |
| Jamie Roger @JamieRoger8 So glad you were able to join the discussion tonight @GraceCordovano How have you been? I feel like I haven't seen you lately? How was the conference? #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl RT @hcldr: For those new to #hcldr every week we gather at 8:30pm ET to discuss interesting & timely healthcare topics |
| Colin Hung @Colin_Hung @drnic1 Gotta hydrate right Dr. Nick? #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald Greetings from #WI 🧀where we are interviewing for new coaches if anyone is interested, #GreenBayPackers 🏈. #hcldr |
| HCLDR Moderator @hcldr While intros continue, let’s go over some #hcldr tweetchat guidelines. |
| HCLDR Moderator @hcldr You can read more about each week’s topic on the #hcldr blog https://t.co/ZeXP9qYIgJ |
| Joe Babaian 🇺🇦 @JoeBabaian @drnic1 Hi nick! #hcldr |
| Jamie Roger @JamieRoger8 @bonniesheeren HI Bonnie! How are ya? #hcldr |
| Colin Hung @Colin_Hung @HealthSparq @annerskg Hello. Glad you are here #hcldr |
| Enlightening Results 💡 @GraceCordovano @JamieRoger8 @JoeBabaian @Colin_Hung @SalemOaks Hi Jamie! How are you doing? On the mend? #hcldr |
 | Lisa Fitzpatrick,MD @askdrfitz Hi all. Dr. Lisa here. Great topic! #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @bonniesheeren Hi Bonnie! #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @twirlandswirl Wedding survival? Just enjoy the ride! #hcldr |
| Jamie Roger @JamieRoger8 @drnic1 Looks delicious. I am truly jealous, yet again. #hcldr |
 | Laura Appel @lauradianeappel First time at #hcldr in weeks for important topic of end of life decisions, #dnr, life-sustaining treatment, etc. |
 | Sandra Woods, CIPP/C; she/her @SandraWoodsMtl Waving a big #hcldr hello from Montréal! Driving home from work, after a 12+-hour day, so will likely be fading in & out of the chat tonight. Not driving while tweeting - hubby's driving 😉 https://t.co/gLkFXijIkO |
| Enlightening Results 💡 @GraceCordovano @NathanGrunewald Hi Nathan! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: @JamieRoger8 @JoeBabaian @Colin_Hung @SalemOaks Hi Jamie! How are you doing? On the mend? #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren Hello Bonnie. Great to see you here #hcldr |
| Barby Ingle Official @BarbyIngle I am @barbyignle, I am a chronic patient, #cheerleaderofHOPE, author, advocate, hcp educator, dancer, non-cooker, Pres of @powerofpain ... oh & so many more things too... based out of Phx, AZ area. #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano @askdrfitz Hi Dr Lisa! Nice to see you #hcldr |
| HCLDR Moderator @hcldr Watch this blue #hcldr avatar for the 4 questions we’ll be discussing. They are labeled T1, T2, T3 and T4. |
| HCLDR Moderator @hcldr We assume all tweets during #hcldr express your own personal opinions & not those of your employer (unless specified) |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Chuck! Here for #HCLDR on Advanced Directives BTW checkout yesterday's @PalliativeCareQ. Good Life Good Death Expo in #Australia #GLGDexpo https://t.co/Zx0DX2Yb0k #ContinueTheConversation: open, honestly normalizing #dying as part of life in a friendly, even fun, environment... https://t.co/SL2N2YsU5x |
| Bonnie C. Sheeren, BCPA @bonniesheeren @GraceCordovano Loving your posts this week! Such great words of wisdom! #hcldr |
| Colin Hung @Colin_Hung @GraceCordovano @hcldr @JoeBabaian Hello Grace. Flew thru EWR on my way here to #PGH #hcldr |
 | Bingle @TheBingle Bingle joining in from NY with patient experience. Hello All in #hcldr |
| Jamie Roger @JamieRoger8 @NathanGrunewald Doing well, the temperature definitely dropped here today. We are in the process of planning a warm getaway soon. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Is it undignified if you don't want to cut your time short, though? I don't think we can assign propriety to how someone chooses to handle their own death. #hcldr |
| Colin Hung @Colin_Hung @JamieRoger8 @JoeBabaian @SalemOaks Hello Jamie! #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @drnic1 Yum. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Watch this blue #hcldr avatar for the 4 questions we’ll be discussing. They are labeled T1, T2, T3 and T4. |
 | Ken Taylor, RPIC @KenRayTaylor Hi everyone, Happy Holidays. @kenraytaylor VP @powerofpain living outside of Phoenix AZ. #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano @BarbyIngle @powerofpain Hi Barby! So nice to see you! #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @bonniesheeren I'm trying! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @KenRayTaylor: Hi everyone, Happy Holidays. @kenraytaylor VP @powerofpain living outside of Phoenix AZ. #hcldr #IrishMed #HealthXPh |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @Colin_Hung Hydration with #whisky has always worked for me #hcldr |
| Colin Hung @Colin_Hung @KenRayTaylor @powerofpain Hello Ken. Thank you for being here tonight on this global chat #hcldr #IrishMed #HealthXPh |
| HCLDR Moderator @hcldr Dissenting comments and opposing views are perfectly acceptable. Personal attacks, vulgar language and negative tweets directed at an individual are not tolerated. #hcldr |
| HCLDR Moderator @hcldr Please mark your answers with the appropriate T1, T2, T3, T4 or CT label. This will make our transcript easier to read #hcldr |
| Barby Ingle Official @BarbyIngle RT @GraceCordovano: @BarbyIngle @powerofpain Hi Barby! So nice to see you! #hcldr |
| Enlightening Results 💡 @GraceCordovano @bonniesheeren Thanks Bonnie. This sick care system makes #PtExp insights sadly too easy to put in to words #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @GraceCordovano Hi Grace! Hope ur well. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Dissenting comments and opposing views are perfectly acceptable. Personal attacks, vulgar language and negative tweets directed at an individual are not tolerated. #hcldr |
| Barby Ingle Official @BarbyIngle You to @GraceCordovano!!!! #hcldr #IrishMed #HealthXPh |
 | Erin Moriarty Wade @EMoriartyWade Hi #hcldr friends. I’m a freelance writer specializing in healthcare. Such an interesting topic tonight! |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Please mark your answers with the appropriate T1, T2, T3, T4 or CT label. This will make our transcript easier to read #hcldr |
| Colin Hung @Colin_Hung @ColtonOrtolf Hello Colton. So great to see you. Thanks for joining the chat. #hcldr #IrishMed #HealthXPh |
| Jamie Roger @JamieRoger8 @GraceCordovano @JoeBabaian @Colin_Hung @SalemOaks doing so much better. Tiny things are still bothering me&energy level at times from the hormone shift of my body not supporting a bowling ball (fibroid) anymore. Glad to be back at it. Starting taking #cbdoil and it has vastly improved my mood, energy levels and sleep. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @askdrfitz Hi Lisa! #hcldr |
| HCLDR Moderator @hcldr We have a lot of remarkable folks with us tonight & lots of ideas will be shared – please try to stay on topic. #hcldr |
| HCLDR Moderator @hcldr Let’s get ready for T1 in just 1 minute #hcldr |
| Barby Ingle Official @BarbyIngle Its a freezing 61 degrees here right now!! BURR!!!!!!!!!!!!!!!! #hcldr #IrishMed #HealthXPh |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @ColtonOrtolf Welcome Colton! #hcldr |
| Bingle @TheBingle @drnic1 @Colin_Hung I'll drink to that! (it's good for you) #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @JeffMarek @TwitterCanada And #hcldr Habs vs Ottawa = Go Habs Ho!!! https://t.co/sMhlNYknB3 |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello friends. I'm Shereese, HC strategist, HealthIT truth-teller, speaker and writer. #hcldr https://t.co/Xzh5n16mPU |
 | Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @hcldr Hi everyone, Jen Chen here in San Diego (#PedsHM fellow). Yes, pediatricians deal with a fair amount of #hpm and EoL care too #hcldr |
| HCLDR Moderator @hcldr T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/9WVZDvVIrR |
| Jamie Roger @JamieRoger8 @Colin_Hung @JoeBabaian @SalemOaks How are you doing @Colin_Hung #hcldr |
 | Heather McCullen @H_SalemOaks Hello #hcldr. Heather joining from outside of Ann Arbor, MI |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @hcldr: We assume all tweets during #hcldr express your own personal opinions & not those of your employer (unless specified) |
| Enlightening Results 💡 @GraceCordovano @BarbyIngle haha...it's just about freezing here in the NJ. If I could, I'd fly south for the winter through to about mid-May #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @ShereesePubHlth Hey there! Great to see you! #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha So happy to have the amazing @Colin_Hung running #hcldr from #Pittsburgh tonight, as we get ready for #TopOfMind2019 Missing you here @JoeBabaian. Great blog piece: https://t.co/gPV9KHM6yu Photo credit: @DaveDiCello https://t.co/pIK1rAi7H9 |
| Colin Hung @Colin_Hung @BarbyIngle Dang. That's cold. #hcldr #IrishMed #HealthXPh |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS One of the many challenges with #death and dignity #eol is so poorly handled in today’s society #hcldr |
| Jamie Roger @JamieRoger8 @EMoriartyWade How have you been Erin? #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @ShereesePubHlth Hi Shereese! #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @bonniesheeren Hi Bonnie #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @DrJenChen4kids @hcldr Welcome Jen! #hcldr |
| HealthSparq @HealthSparq RT @hcldr: T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/9WVZDvVIrR |
 | Naomi, BSc MHSc @NaomiNerdsOut #hcldr T1 I don't; it may be prudent but I feel that I'm a bit young for it. I imagine my grandfather (94, soon to be 95) does, but I'm not sure. |
| Colin Hung @Colin_Hung @RasuShrestha @JoeBabaian @DaveDiCello @hcldr @mikebiselli @jasonawolf @nickisnpdx @wareFLO @HealthData4All @drnic1 @LGin412 @ShereesePubHlth @2healthguru So great to be here. Glad I could see the panel discussion tonight. Great appetizer before #TopOfMind2019 tomorrow #hcldr |
 | Mary Gallagher @mgallagherUSA Greetings from a very chilly Boston team #HCLDR. Wicked important topic tonight - as we say in Bahston. #advanced directives |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @twirlandswirl @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS I don’t believe that necessarily follows from my tweeted assertion. #hcldr https://t.co/3jeSWdIpRX |
| Barby Ingle Official @BarbyIngle I can't stand the cold... my favorite outside temp is 105, thats when my body feels best ~ I dont know how the east coast chronic patients do it! #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung @ShereesePubHlth Hello Shereese. Always a pleasure to see you #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano T1) Yes, majority of my immediate family does. We have had many difficult situations. The conversations were a reality that needed to be faced. Now #eol is simply a matter of fact conversation. #hcldr #IrishMed #HealthXPh |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T1 My field is biomedical ethics (bioethics), so of course that's a YES!! For my husband & me. And one of my aunts; I have her medical power of attorney as well, in case of emergency. We've talked often about what she would/wouldn't want... https://t.co/eP3YYSuL9d |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @NathanGrunewald What's up, Doc? How's your week going? #hcldr https://t.co/lRAOz2RJ4Y |
| Colin Hung @Colin_Hung RT @hcldr: T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/9WVZDvVIrR |
| Heather McCullen @H_SalemOaks T1: I'm in my 30s and feeling immortal soooooo... #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T1 We have advance directives to: ☑️Communicate goals of care, values, preferences ☑️Outline a plan ☑️Ease family burden ☑️Ease provider burden ☑️Provide legal framework Tough discussions best for ensuring your personal desires can be communicated when you can’t. #hcldr https://t.co/QwHNCC5HTE |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl #hcldr T1a Costs perhaps less a concern in Canada, but many folks I know here are concerned about quality of life at EoL... https://t.co/trLq2vp1N7 |
| Jamie Roger @JamieRoger8 I don't, but I was asked to decide various things before a recent surgery and it really gave me a reality check with certain things and what my decisions would be. Some of which did not align with my husbands beliefs. #hcldr |
| Bingle @TheBingle @GraceCordovano @BarbyIngle Ditto. NY #hcldr |
| Erin Moriarty Wade @EMoriartyWade @JamieRoger8 Hi @JamieRoger8 things pretty good here, how are you doing? #hcldr |
| Mary Gallagher @mgallagherUSA @drnic1 So agree. #HCLDR |
| Laura Appel @lauradianeappel T1 My dad has one and was vocal about it whenever he was admitted to a hospital. My mom has one. I don’t and@have no explanation for why not. #hcldr 1/ |
 | Mariah Obiedzinski @MariahWrites RT @hcldr: T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/9WVZDvVIrR |
| Mary Gallagher @mgallagherUSA T1. I have looked at the Conversation Project (@convoproject) and read their great blogposts, seen their videos but I have yet to take action and I work in healthcare. I need to make it a PRIORITY.#HCLDR |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @ShereesePubHlth Doing well and working hard! ;) #hcldr |
| Colin Hung @Colin_Hung RT @SandraWoodsMtl: #hcldr T1 My field is biomedical ethics (bioethics), so of course that's a YES!! For my husband & me. And one of my aunts; I have her medical power of attorney as well, in case of emergency. We've talked often about what she would/wouldn't want... https://t.co/eP3YYSuL9d |
| Bonnie C. Sheeren, BCPA @bonniesheeren T1: Big plug for National Healthcare Decision Day, 4/16 every year. Do your taxes, then make your advanced directive! https://t.co/OKWEvQemS2 #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @drnic1 @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Yes, it is. I'm still forming opinions on assisted dying, but I am hard set against the term "death with dignity;" it implies choosing NOT to die early is "undignified." I get why you want to die before the bitter end but hate the insinuation that fighting is wrong. #hcldr |
| Colin Hung @Colin_Hung RT @GraceCordovano: T1) Yes, majority of my immediate family does. We have had many difficult situations. The conversations were a reality that needed to be faced. Now #eol is simply a matter of fact conversation. #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung @GraceCordovano T1 Will be interested in how you got that #eol conversation started #hcldr #IrishMed #HealthXPh |
 | PF Anderson @pfanderson@disabled.social @pfanderson Echoing @andrewintech with my #pinksocks for #hcldr https://t.co/M4oalMoVYf |
| Mariah Obiedzinski @MariahWrites Mariah here, chiming in from #StamatsNation in #Iowa. Brrrr... #hcldr |
| Enlightening Results 💡 @GraceCordovano @drnic1 We need to normalize the conversation, start it earlier in high school. It should be a requirement to have one in place before graduating senior year. By then, we have the right to drive, vote, purchase tobacco products, enlist. Need to add, #EOL to that list #hcldr #IrishMed |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @twirlandswirl: @drnic1 @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Yes, it is. I'm still forming opinions on assisted dying, but I am hard set against the term "death with dignity;" it implies choosing NOT to die early is "undignified." I get why you want to die before the bitter end but hate the insinuation that fighting is wrong. #hcldr |
| Laura Appel @lauradianeappel T1 Husband has a traumatic accident and needed craniotomy. No advance directive in place. W/that experience I certainly should find time to get one. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T1: More importantly, talk things over with your loved ones. I knew my older daughter was getting serious w/ her BF when she said, "He's my medical decision maker now." #hcldr |
| Barby Ingle Official @BarbyIngle T1. YES, my doctor & lawyer suggested back in 2003 that I have 1 created & its on file at multiple hospitals here n Phx area, as well as a copy n my safe. W chronic health challenges its a smart thing to do, you never know what the next moment will be! #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano RT @bonniesheeren: T1: T1: Big plug for National Healthcare Decision Day, 4/16 every year. Do your taxes, then make your advanced directive! https://t.co/OKWEvQemS2 #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS I do, though - you used "dignified" in contrast to other deaths, which strongly implies they are the opposite. #hcldr |
| HealthSparq @HealthSparq @bonniesheeren Nice call out, Bonnie! #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 I have one b/c I know how important they can be. And the time to discover a loved one doesn't have one is not during a crisis #hcldr https://t.co/FqcfplRCq2 |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @JamieRoger8 Indeed, before surgery is a common time check for evaluating if patients desire to outline an AD. #hcldr |
| Colin Hung @Colin_Hung @ColtonOrtolf T1 It's sad that is a driving reason, but if it helps to have the discussion then it's not totally a bad thing right? Another way to look at it - we're all about saving precious HC resources #hcldr #IrishMed #HealthXPh |
| Jamie Roger @JamieRoger8 @SandraWoodsMtl We did the paperwork with my spanish speaking grandfather in law. My husband has power of attorney so it was a lot to take in... especially because he was chosen to make the decisions instead of his parents. #hcldr |
 | Christoph Trappe @CTrappe RT @MariahWrites: Mariah here, chiming in from #StamatsNation in #Iowa. Brrrr... #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl RT @GraceCordovano: @drnic1 We need to normalize the conversation, start it earlier in high school. It should be a requirement to have one in place before graduating senior year. By then, we have the right to drive, vote, purchase tobacco products, enlist. Need to add, #EOL to that list #hcldr #IrishMed |
| HCLDR Moderator @hcldr Repeating T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/YPy54gJbna |
| Enlightening Results 💡 @GraceCordovano @bonniesheeren Here's an oldie but goodie https://t.co/1QWWArC8pF #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T1: Really, really important to talk w/ your loved ones & have ongoing discussions--my daughters & I have discussed basic funeral plans. #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @BarbyIngle Lol Bonnie, it's 58 here and I already pulled out flannel sheets! #hcldr |
| HealthSparq @HealthSparq Do your taxes, then make your advanced directive. #hcldr |
 | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T1. YES, my doctor & lawyer suggested back in 2003 that I have 1 created & its on file at multiple hospitals here n Phx area, as well as a copy n my safe. W chronic health challenges its a smart thing to do, you never know what the next moment will be! #hcldr #IrishMed #HealthXPh |
| Jamie Roger @JamieRoger8 @EMoriartyWade I'm doing really well. Starting to feel like myself again for the first time in a long time. #hcldr |
 | Michele Longabaugh @CrazyAssCancer T1: Stage 4 cancer 8 years plus and counting and no advanced directive. Why, I am not sure. It feels so final and I am so young.. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @TechNurseJon @hcldr Back when Hypercard was a thing, I tried to build an app that walked people through both the AD content, but also info folk need to know if you are suddenly homebound. From fave grocery/foods to pet groomer to emergency contacts & legal docs #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @hcldr T1: I don't have a full legal document, but hubby and I have talked about some things along those lines. I'm trying to get my parents and in-laws to think about them too, but bringing up those topics can understandably get awkward #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @NathanGrunewald Well, kindergarten can be hard, kid. #justkidding #hcldr https://t.co/jmyZHBnWeh |
| Mariah Obiedzinski @MariahWrites T1: I don't have an advance directive, but I know I should. Some people say that I, as a healthy #Millennial, don't need one. But I'm a parent, and it's important. #hcldr |
| Naomi, BSc MHSc @NaomiNerdsOut RT @ShereesePubHlth: T1 I have one b/c I know how important they can be. And the time to discover a loved one doesn't have one is not during a crisis #hcldr https://t.co/FqcfplRCq2 |
| Bingle @TheBingle T1 Yes. It is logical to have ones' wishes expressed as to what they would prefer if all else fails. Although, I and perhaps you have known of miracles happening. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @GraceCordovano @drnic1 I bet this meets with a lot of resistance (maybe not in this group, but culture-wide), but it's not a bad idea to include planning for death as part of becoming an adult. Also, can we get opt-out organ donation at the same time? I'll combine my platforms for ease of use. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @DrJenChen4kids: @hcldr T1: @hcldr T1: I don't have a full legal document, but hubby and I have talked about some things along those lines. I'm trying to get my parents and in-laws to think about them too, but bringing up those topics can understandably get awkward #hcldr |
| Colin Hung @Colin_Hung @SandraWoodsMtl T1 That's my concern as well. It's more about Quality of Life for me. I don't want to linger. I want to live out my end as best I can. Thus the AD #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung RT @NathanGrunewald: T1 We have advance directives to: ☑️Communicate goals of care, values, preferences ☑️Outline a plan ☑️Ease family burden ☑️Ease provider burden ☑️Provide legal framework Tough discussions best for ensuring your personal desires can be communicated when you can’t. #hcldr https://t.co/QwHNCC5HTE |
| Joe Babaian 🇺🇦 @JoeBabaian RT @CrazyAssCancer: T1: T1: Stage 4 cancer 8 years plus and counting and no advanced directive. Why, I am not sure. It feels so final and I am so young.. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @bonniesheeren: T1: T1: Big plug for National Healthcare Decision Day, 4/16 every year. Do your taxes, then make your advanced directive! https://t.co/OKWEvQemS2 #hcldr |
| Enlightening Results 💡 @GraceCordovano @drnic1 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Being an advocate in the oncology space has changed my perspectives on aid in dying. Patients should be informed of all their options for #EoL https://t.co/vgceNADjq7 #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @bonniesheeren: T1: T1: Really, really important to talk w/ your loved ones & have ongoing discussions--my daughters & I have discussed basic funeral plans. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T1: Sad situation: A former co-worker's adult child OD'd...and they were absolutely torn apart about what to do for the funeral. It was hard to watch. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: @bonniesheeren Here's an oldie but goodie https://t.co/1QWWArC8pF #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @hcldr I made an advanced directive for me in 2002 when I was having major surgery. Probably need to revisit. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: Repeating T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/YPy54gJbna |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @hcldr: T1 Do you (or members of your family) have an advanced directive? Why or why not? #hcldr #IrishMed #HealthXPh https://t.co/9WVZDvVIrR |
| Jamie Roger @JamieRoger8 @bonniesheeren Thats a big step! I don't know that I would have ever given that right to a bf prior to my husband. Even now at times I might trust my father more. #hcldr |
| Heather McCullen @H_SalemOaks @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS I'm with you on this one. The whole idea that certain ways of dying are more ... umm ... respectable(?) than others is ridiculous. #hcldr |
 | Heather 🇺🇸 @ZHeatherChamp @hcldr A1: I believe I have one via my doctors’ offices? Other than that....? #hcldr |
| Erin Moriarty Wade @EMoriartyWade @JamieRoger8 That’s so good to hear @JamieRoger8! That’s a great place to be :) #hcldr |
| Mariah Obiedzinski @MariahWrites @JamieRoger8 @JoeBabaian @Colin_Hung @SalemOaks Hi friends! #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @CrazyAssCancer: T1: T1: Stage 4 cancer 8 years plus and counting and no advanced directive. Why, I am not sure. It feels so final and I am so young.. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @askdrfitz Secret Google image search skills...However, I do read the blog if it is posted early so it gives me time to think, which is most helpful. Thanks. #hcldr |
| Mariah Obiedzinski @MariahWrites @npiercePhDRN Hi Nicole! #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @bonniesheeren: T1: T1: Big plug for National Healthcare Decision Day, 4/16 every year. Do your taxes, then make your advanced directive! https://t.co/OKWEvQemS2 #hcldr |
 | Annette McKinnon @anetto RT @NathanGrunewald: T1 We have advance directives to: ☑️Communicate goals of care, values, preferences ☑️Outline a plan ☑️Ease family burden ☑️Ease provider burden ☑️Provide legal framework Tough discussions best for ensuring your personal desires can be communicated when you can’t. #hcldr https://t.co/QwHNCC5HTE |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @bonniesheeren Here's an oldie but goodie https://t.co/1QWWArC8pF #hcldr |
| Colin Hung @Colin_Hung @MariahWrites T1 It's kind of like insurance. No one really wants it, but it's there in case the worst happens. AD is important if only to save family from bearing the guilt/pain/anguish over having to make a hard decision #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @mgallagherUSA: T1. I have looked at the Conversation Project (@convoproject) and read their great blogposts, seen their videos but I have yet to take action and I work in healthcare. I need to make it a PRIORITY.#HCLDR |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl T1 Not a lawyer-official one, but I've made my desires pretty clear here and elsewhere and to family. #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz @bonniesheeren I think an adult is never too young to discuss this. Besides, it is how we get better at talking about this #hcldr |
| Jamie Roger @JamieRoger8 @EMoriartyWade Yes, it is. It's been awhile. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @GraceCordovano @drnic1 YES! Starting early in life and normalization can help tremendously! #hcldr |
 | Thalia Sirjue @ThaliaMSirjue 👋🏾 Joining for the first time from Jersey! #hcldr |
| Colin Hung @Colin_Hung @DrJenChen4kids @hcldr T1 That's an important start. Just having the conversation is a step in the right direction. Many don't even get that far. #hcldr #IrishMed #HealthXPh |
| Jamie Roger @JamieRoger8 @MariahWrites @JoeBabaian @Colin_Hung @SalemOaks Hello Mariah! #hcldr |
| Ken Taylor, RPIC @KenRayTaylor T1: I do not have advanced directive on file. I havent been hospitalized for anything in over 30 years, thank god. Should I just put it on file anyway? I have very few medical records. #hcldr #IrishMed #HealthXPh |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS I disagree - whether you chose to die early/assisted or otherwise should be dignified no matter the choice #Eileen #hcldr |
| Mariah Obiedzinski @MariahWrites @Colin_Hung Exactly. #hcldr #HealthXPh #IrishMed |
| Rasu Shrestha MD MBA @RasuShrestha T1. Prioratize yourself. And in doing so, your loved ones. That's the one way to get more of us to get an advance directive in place. Get your state's here: https://t.co/bhdpGG5vU3 #hcldr #healthxPH #irishmed https://t.co/kwKYVRUzJi |
| Bonnie C. Sheeren, BCPA @bonniesheeren T1: Obviously, I feel strongly about this: here's my @chron essay https://t.co/7EaOPql6Fx #hcldr |
| Annette McKinnon @anetto RT @Colin_Hung: @SandraWoodsMtl T1 That's my concern as well. It's more about Quality of Life for me. I don't want to linger. I want to live out my end as best I can. Thus the AD #hcldr #IrishMed #HealthXPh |
| Bingle @TheBingle @HealthSparq Irony is Truth.... Can't get away from death or taxes. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T1. I don’t, but my parents do and have been very organized and responsible about their planning. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @Colin_Hung @MariahWrites And it's one of those difficult but necessary conversations we must have w/ loved ones #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @wareFLO: @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS M! Speaking of which, can you spell m a s s p r o d u c t i on? #HIMSStiara #HIMSS19 #HCLDR PS Given tonight’s topic: of 3 parents & in-laws, one had an extensive Advanced Directive and it made an incredible difference (as in days of dignified decline vs months of the opposite) https://t.co/aD7jXREpJJ |
| Enlightening Results 💡 @GraceCordovano @twirlandswirl @drnic1 My kids started asking about death about age 4. Kids need a safe space to talk about it. High school is a great opportunity #hcldr |
| Mariah Obiedzinski @MariahWrites RT @bonniesheeren: T1: Obviously, I feel strongly about this: T1: Obviously, I feel strongly about this: here's my @chron essay https://t.co/7EaOPql6Fx #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS It's disgusting, really. And kinda terrifying to think that it could morph into "come on, do you really want to put your family through that? Isn't it more DIGNIFIED to just die now?" Not against the option, but STRONGLY against the obligation. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @DrJenChen4kids @hcldr It is a good start. #hcldr |
| Colin Hung @Colin_Hung @CrazyAssCancer Hello Michele!!! So nice to see you. It's not wrong that you don't have one. Just something recommended, but it's gotta be for the right reasons. At some point you may feel like it's time for an AD. #hcldr #IrishMed #HealthXPh |
| Heather McCullen @H_SalemOaks @bonniesheeren I don't have a proper advanced directive, but I let anyone and everyone know that I would rather not take up space in a cemetery forever. Cremation is the obvious choice ... but as long as I'm not buried #hcldr |
| International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T1: T1: I do not have advanced directive on file. I havent been hospitalized for anything in over 30 years, thank god. Should I just put it on file anyway? I have very few medical records. #hcldr #IrishMed #HealthXPh |
| Mariah Obiedzinski @MariahWrites Indeed. #hcldr #IrishMed #HealthXPh |
| Mariah Obiedzinski @MariahWrites RT @EMoriartyWade: @hcldr T1. I don’t, but my parents do and have been very organized and responsible about their planning. #hcldr |
| Jamie Roger @JamieRoger8 @ShereesePubHlth @NathanGrunewald I worked in a kindergarten for 4 years. IT IS HARD. haha #hcldr |
| Mariah Obiedzinski @MariahWrites RT @TheBingle: @HealthSparq Irony is Truth.... Can't get away from death or taxes. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @RasuShrestha: T1. Prioratize yourself. And in doing so, your loved ones. That's the one way to get more of us to get an advance directive in place. Get your state's here: https://t.co/bhdpGG5vU3 #hcldr #healthxPH #irishmed https://t.co/kwKYVRUzJi |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @bonniesheeren: T1: T1: More importantly, talk things over with your loved ones. I knew my older daughter was getting serious w/ her BF when she said, "He's my medical decision maker now." #hcldr |
 | Karlea Abel @ruralhealthlady @hcldr Hey #hcldr !! Joining for the first time in too long. Checking in from rural Kansas 🤗 |
| Enlightening Results 💡 @GraceCordovano @MariahWrites It doesn't need to be incredibly formal. Start simple. Write it down. It can be revisited. #hcldr |
 | Janae Sharp @CoherenceMed @H_SalemOaks @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS Well what about suicide? Is that dignified? #HCLDR |
 | Jason A. Wolf @jasonawolf RT @Colin_Hung: @RasuShrestha @JoeBabaian @DaveDiCello @hcldr @mikebiselli @jasonawolf @nickisnpdx @wareFLO @HealthData4All @drnic1 @LGin412 @ShereesePubHlth @2healthguru So great to be here. Glad I could see the panel discussion tonight. Great appetizer before #TopOfMind2019 tomorrow #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @drnic1 @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Well, that's kind of my point. Called assisted dying "death with dignity" implies choosing otherwise is undignified. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @JamieRoger8 @bonniesheeren I need someone. I don't really have anyone right now. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @ThaliaMSirjue Welcome! #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha T1: The holidays are the best times to have conversations around advance directives. And all things that matter to you and your loved ones. #hcldr #HealthxPH #irishmed |
| Jamie Roger @JamieRoger8 My father's parents and my great grandma (101) have all donated their bodies to University of Buffalo. #goodgenes #oldage #hcldr |
| Mariah Obiedzinski @MariahWrites Excellent advice. #hcldr #IrishMed #HealthXPh |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @RasuShrestha: T1: T1: The holidays are the best times to have conversations around advance directives. And all things that matter to you and your loved ones. #hcldr #HealthxPH #irishmed |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @KenRayTaylor Absolutely. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @CoherenceMed @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I know this is a HUGE debate in the mental health/suicide prevention community. If we're going to say mental illness IS illness - which it is - is unbearable depression any different than unbearable cancer? #hcldr |
 | Alzheimer's Los Angeles @AlzheimersLA RT @NathanGrunewald: T1 We have advance directives to: ☑️Communicate goals of care, values, preferences ☑️Outline a plan ☑️Ease family burden ☑️Ease provider burden ☑️Provide legal framework Tough discussions best for ensuring your personal desires can be communicated when you can’t. #hcldr https://t.co/QwHNCC5HTE |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung @MariahWrites Many people don't realize what options are available at #EoL. When you learn about what can be done, many are horrified & say no thank you. The education that comes w/prepping the document is powerful #hcldr |
| Thalia Sirjue @ThaliaMSirjue Ashamed to say I don’t. Especially since I experienced firsthand how amazing it is not to have to deal with things like that while mourning a loved one. My grandmother made sure we didn’t have to do a thing but miss her #hcldr |
| Michele Longabaugh @CrazyAssCancer @Colin_Hung Hello! I feel awkward every time I am at MDA and asked if I have one. #weird I just can't bring myself to do it. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @GilmerHealthLaw Amen, sister! #hcldr |
| HCLDR Moderator @hcldr An amazing T1 discussion. Let’s get ready for T2 in just 1 minute #hcldr |
| Mariah Obiedzinski @MariahWrites RT @GraceCordovano: @Colin_Hung @MariahWrites Many people don't realize what options are available at #EoL. When you learn about what can be done, many are horrified & say no thank you. The education that comes w/prepping the document is powerful #hcldr |
| Colin Hung @Colin_Hung @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS It's more abt not putting family thru making the hard decision. An AD does not mean stopping treatment. Your AD can include - do this and try that, An AD is tailored to fit what YOU want. That's the important thing - to document your wishes #hcldr |
| Erin Moriarty Wade @EMoriartyWade @ThaliaMSirjue Welcome @ThaliaMSirjue! Glad you came to #hcldr :) |
| Heather McCullen @H_SalemOaks @CoherenceMed @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I'm not sure I'm prepared to take the conversation there. My point was more that no one should feel like there is a set of deaths that are dignified and a set that aren't. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @H_SalemOaks @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS A friend was caring for someone who wanted to die at home, unassisted. Towards the end, was driving everyone around them a little bit nuts. Asked me WHY? I reminded her that to be allowed to witness this was a great gift. Suddenly, it was all okay again. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @TechNurseJon @hcldr Amen! #hcldr |
| Janae Sharp @CoherenceMed @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS yes it is- but culturally not all deaths are equal. #hcldr |
| Jamie Roger @JamieRoger8 @NathanGrunewald @GraceCordovano @drnic1 Agreed. A lot of healthcare discussions need to start earlier in life. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @drnic1 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Being an advocate in the oncology space has changed my perspectives on aid in dying. Patients should be informed of all their options for #EoL https://t.co/vgceNADjq7 #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA Planning ahead for end of life and having advanced directives makes things easier in times of crisis. It gives caregivers and family something concrete to rely on and helps with decision-making. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @GraceCordovano @BarbyIngle @GraceCordovano you’d make the perfect snowbird someday :) #hcldr |
 | Mark Milligan @MarkMilliganDPT @hcldr T1. Advanced directive? What about a safety plan for natural disasters as well?? #HCLDR https://t.co/w9RH64Psrt |
| HCLDR Moderator @hcldr T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/WrxxtPVhSN |
| Enlightening Results 💡 @GraceCordovano @RasuShrestha I'm the only 1 in healthcare in my family. I'm a joy to have at the dinner & holiday table. I talk about death, #EoL regularly. It strikes up very eye-opening conversations. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @Colin_Hung @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS That's not what I'm talking about, though. I'm talking about feeling obligated to choose assisted dying. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @hcldr: T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/WrxxtPVhSN |
 | Lisa Davis Budzinski @lisadbudzinski Reading through the #hcldr chats & seeing a lot of tweets thinking ADs are for older population & nothing could be further from the truth ✨ |
| Thalia Sirjue @ThaliaMSirjue T1 - Definitely going to make is a priority for my mom and I before the end of the year! #hcldr |
 | KentBottles @KentBottles RT @FutureDocs: Excited to share that I have a new job. I wrote more about it here-“Why the Hospital C Suite Should Invest in Learning” https://t.co/vaIH20oUhS cc @SHMLive @macyfoundation @acgme @women_of_impact @CostsofCare #meded #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @GraceCordovano @drnic1 @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS A friend was a nurse on an AIDS ward at the peak of the epidemic. At first, she fought those who wanted to die, but after a few years, she changed her mind. It comes back to consent and respect, like love. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @ThaliaMSirjue: T1 - Definitely going to make is a priority for my mom and I before the end of the year! #hcldr |
| Erin Moriarty Wade @EMoriartyWade @H_SalemOaks I’m in my 40’s, but me too 😆 #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz T1: I think it is important to do this for loved ones. We take life for granted thinking nothing will happen because of age but life can change in an instant. Seeing families struggle with the unsaid, not discussed is heart wrenching #hcldr |
| Colin Hung @Colin_Hung @ThaliaMSirjue T1 It's not wrong not to have one. But it can help make a difficult time a little less stressful. Having an AD just means that the end will be on your terms. When the time is right an AD will make sense. #hcldr #IrishMed #HealthXPh |
| Joe Babaian 🇺🇦 @JoeBabaian RT @lisadbudzinski: Reading through the #hcldr chats & seeing a lot of tweets thinking ADs are for older population & nothing could be further from the truth ✨ |
| Jamie Roger @JamieRoger8 @H_SalemOaks @bonniesheeren I want to be cremated and then buried in one of those seed pods to grow a tree. #hcldr @salemoaks #dontcutmedown |
| Karlea Abel @ruralhealthlady T1: Not formally. I've tried to ask some basics of the people I love but it's a hard convo to start. I also have a family member who sent me an email that I promised not to open yet that has all of the details one would need #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @twirlandswirl: @Colin_Hung @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS That's not what I'm talking about, though. I'm talking about feeling obligated to choose assisted dying. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: @RasuShrestha I'm the only 1 in healthcare in my family. I'm a joy to have at the dinner & holiday table. I talk about death, #EoL regularly. It strikes up very eye-opening conversations. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/WrxxtPVhSN |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @GraceCordovano @Colin_Hung @MariahWrites So true. When you start going through the formality of the documentation, it is eye opening. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @MarkMilliganDPT: @hcldr T1. Advanced directive? What about a safety plan for natural disasters as well?? #HCLDR https://t.co/w9RH64Psrt |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS I think perhaps this is a difference I understanding of dignity This is not about forcing but about dying how and where you want die (when this is even a choice/possibility) #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @AlzheimersLA: Planning ahead for end of life and having advanced directives makes things easier in times of crisis. It gives caregivers and family something concrete to rely on and helps with decision-making. #hcldr |
| Colin Hung @Colin_Hung @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Ah. Thanks for the clarification. Carry on then. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @JamieRoger8 #hcldr T1 It can be a lot to take on, definitely. And the alternative is having no one prepared to make difficult decisions, and that can cause family tensions & even feuds during a time when loved ones should be supportive of each other... https://t.co/ioQR5XN4HD |
| Joe Babaian 🇺🇦 @JoeBabaian RT @CoherenceMed: @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS yes it is- but culturally not all deaths are equal. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @twirlandswirl: @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS It's disgusting, really. And kinda terrifying to think that it could morph into "come on, do you really want to put your family through that? Isn't it more DIGNIFIED to just die now?" Not against the option, but STRONGLY against the obligation. #hcldr |
| Colin Hung @Colin_Hung RT @hcldr: T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/WrxxtPVhSN |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @Colin_Hung: @SandraWoodsMtl T1 That's my concern as well. It's more about Quality of Life for me. I don't want to linger. I want to live out my end as best I can. Thus the AD #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @bonniesheeren: T1: Obviously, I feel strongly about this: T1: Obviously, I feel strongly about this: here's my @chron essay https://t.co/7EaOPql6Fx #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T2: I can't even get my own parents to discuss this...and I'm a pt advocate??? So, I've not been extremely successful! #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @H_SalemOaks @twirlandswirl @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS All I can say is I knew all 3 individuals well & I believe they would agree w/me, were it possible for them to weigh in. Your generalizations may be true. All I know is what I observed & what I believe they would likely say in retrospect if possible #hcldr https://t.co/ZA5WoDzBf4 |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS The conversation NEEDS to go there, though. (You're welcome to set your own boundaries and excuse yourself, of course.) But this is one of the biggest issues around #EOL care right now. Who gets to decide they want to die? And who needs to be stopped from doing it? #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/WrxxtPVhSN |
| Janae Sharp @CoherenceMed @drnic1 @twirlandswirl @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I think the reality is always a bit messier. #HCLDR |
| Heather 🇺🇸 @ZHeatherChamp @hcldr A2: I’m single no dependents. I only *wish* I had someone to discuss things with. I feel guilty burdening my mom with things as it is. #hcldr |
| Jamie Roger @JamieRoger8 @SandraWoodsMtl We were the most neutral party involved, and already reside in his home. #hcldr #inlaws #FunAndFrustration |
| Bonnie C. Sheeren, BCPA @bonniesheeren T2: Then again, my own family is very comfortable with the topic as I saw dead bodies (yes, the "Sixth Sense" had nothing on me!) almost every day in the hallway when I went to work for 2 years. #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz Recognize windows of opportunity to talk about it: a tragedy befalls someone we know, a loved has a near miss, a terrible diagnosis. Talk about how people want to live and what's most important #hcldr |
| Laura Appel @lauradianeappel T2 My mother is an RN and her lifelong experience with death on the job (med/surg) has made it much more part of the continuum. Parents put wishes in their will decades ago. #hcldr |
| Barby Ingle Official @BarbyIngle T2. I am just blunt. When my mom passed away 2015 I made my will & also my whole funeral plan, I had each sibling, my husband & dad sign it so everyone is on the same pg, down 2 the pics that will be used on CD & my obituary (minus the death info) #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung RT @GraceCordovano: @Colin_Hung @MariahWrites Many people don't realize what options are available at #EoL. When you learn about what can be done, many are horrified & say no thank you. The education that comes w/prepping the document is powerful #hcldr |
| Mary Gallagher @mgallagherUSA T1. I very much respect Atul Gawande's views and was so moved by his book, "Being Mortal" and the focus on this topic. It's about families having the conversation so they truly know the wishes of their loved ones. #hcldr https://t.co/x0Gurx4mhb |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T2 Advance directive discussions are never easy. Using this statement can be helpful: "What would you like me to know about your healthcare goals if someday you were unable to tell me?" #hcldr https://t.co/Ag5E0X2hig |
| Enlightening Results 💡 @GraceCordovano @SandraWoodsMtl @JamieRoger8 Things get ugly instantly. These are not discussions to be had in the ER, in the hospital. Too emotional at an already traumatic time & setting. #hcldr |
| Karlea Abel @ruralhealthlady T2: oh good! Tips and tricks, can't wait to read these 😁 #hcldr https://t.co/Dbd04TsmRn |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @CoherenceMed @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I read about a young guy who got a face transplant recently. He had tried to die by suicide in a way that destroyed his face, and a lot of people argued he didn't "deserve" the transplant because he tried to kill himself. Horrible reactions to someone who wants to LIVE. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @GraceCordovano @twirlandswirl @drnic1 My daughter was 3.5 when she explained death to me. So profound. Changed my views on matters. #hcldr |
| Colin Hung @Colin_Hung @pfanderson @H_SalemOaks @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS That's a great reframe. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T2. I think it’s important to remember that it’s not a one-sided discussion (and it affects both parties...the dying person and the loved ones left behind). It was hard to accept my beloved 93-year-old grandmother’s #EOL wishes but we respected her choice. #hcldr |
 | Andrew Watson MD MLitt @arwmd RT @NathanGrunewald: T2 Advance directive discussions are never easy. Using this statement can be helpful: "What would you like me to know about your healthcare goals if someday you were unable to tell me?" #hcldr https://t.co/Ag5E0X2hig |
| Joe Babaian 🇺🇦 @JoeBabaian RT @CrazyAssCancer: @Colin_Hung Hello! I feel awkward every time I am at MDA and asked if I have one. #weird I just can't bring myself to do it. #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @hcldr T2: I think I'll bring it up next time I see my parents/in-laws in person; definitely preferable to have that discussion live, not over email or phone. 3/4 of my grandparents had peaceful passings (last one still alive) so I have a good idea what they'd want #hcldr |
| HealthSparq @HealthSparq RT @hcldr: T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/WrxxtPVhSN |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: @Colin_Hung @MariahWrites Many people don't realize what options are available at #EoL. When you learn about what can be done, many are horrified & say no thank you. The education that comes w/prepping the document is powerful #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz T2: I'm dating myself but the Terri Shiavo case had our attention and the moment passed. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @twirlandswirl: @CoherenceMed @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I know this is a HUGE debate in the mental health/suicide prevention community. If we're going to say mental illness IS illness - which it is - is unbearable depression any different than unbearable cancer? #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @JamieRoger8 @H_SalemOaks @bonniesheeren @SalemOaks And I want to add some Boron to the soil so I am blue as I grow. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @EMoriartyWade: @hcldr T2. I think it’s important to remember that it’s not a one-sided discussion (and it affects both parties...the dying person and the loved ones left behind). It was hard to accept my beloved 93-year-old grandmother’s #EOL wishes but we respected her choice. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pfanderson: @H_SalemOaks @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS A friend was caring for someone who wanted to die at home, unassisted. Towards the end, was driving everyone around them a little bit nuts. Asked me WHY? I reminded her that to be allowed to witness this was a great gift. Suddenly, it was all okay again. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @Colin_Hung #hcldr T1 And some folks who're against medical assistance in dying (MAiD) will argue that people requesting it are afraid of pain. I disagree; suffering goes far beyond pain. The 2 are not interchangeable concepts! https://t.co/2bqCwmGcMh |
| Bingle @TheBingle T2 Raising the issue is definitely going to happen in a critical situation. My own situation happened twenty years ago. Some pretty good Drs. fixed my brain (although some may disagree) #hcldr |
| Mariah Obiedzinski @MariahWrites T2: Watching my aunt die on her own terms was comforting, in a way. Got me talking to my parents about their #eol wishes. Dad says I'm in charge of "pulling the plug." Easy, Pops. #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano @BarbyIngle Barby, you bring up an excellent point. It's not enough to have the AD done. We must share & discuss our decisions. Does no one any good filed away. I've seen that happen too. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @NathanGrunewald: T2 Advance directive discussions are never easy. Using this statement can be helpful: "What would you like me to know about your healthcare goals if someday you were unable to tell me?" #hcldr https://t.co/Ag5E0X2hig |
| Michele Longabaugh @CrazyAssCancer T2: I'm the queen #EOL convo. I feel like I have mocked my own death plenty. My family knows my wishes. But really I wish not to die. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @mgallagherUSA: T1. I very much respect Atul Gawande's views and was so moved by his book, "Being Mortal" and the focus on this topic. It's about families having the conversation so they truly know the wishes of their loved ones. #hcldr https://t.co/x0Gurx4mhb |
| Alzheimer's Los Angeles @AlzheimersLA At best, end of life conversations are on-going. "How do you feel about XYZ?" "What would you prefer if ABC?" Framing it as "I want to be able to honor your wishes" can make it a little easier. #hcldr https://t.co/cx7q8nzKId |
 | Health Equity and Community Engagement Research @mayoclinic_cenr A1 #hcldr during the holidays it’s a good time to have this conversation when most of the family is together https://t.co/8F6USOJ6qg |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl T2 #hcldr Still trying to get some family members to even consider this, let alone talk about it. It's really not a topic you can force on someone. Have even tried referring to medical dramas on TV! https://t.co/jklwVtJUmZ |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl T2 #hcldr I've done some (volunteer) work in line with the US-based Conversation Project; their fantastic Starter Kit, 10+ languages ↔️ "whether you are getting ready to tell someone else what you want, or you want to help someone else get ready" for EoL https://t.co/5YLI2ZxJU9 https://t.co/ERDUJ8Kxom |
| Bonnie C. Sheeren, BCPA @bonniesheeren T2: But we're clear---death sucks. It's awful. We don't want to be apart from each other. But we want to make it easier for each other during the grieving time. And hold to each other as much as possible while here. #hcldr |
| Colin Hung @Colin_Hung @CrazyAssCancer Shaming someone into having an AD is like shaming someone into having kids. It's a personal choice. When I went thru the conversation I was more focused on how I wanted to be remembered, celebrated. That helped lessen the "finality" ...a little #hcldr #IrishMed #HealthXPh |
| Mariah Obiedzinski @MariahWrites @askdrfitz I remember that. So very tragic and eye-opening. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson Active Choice Intervention Increases Advance Directive Completion: A Randomized Trial. https://t.co/wYgBBvdPaA #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 I have a native, soft segue into the conversation. "Have you seen the PBS special on @Atul_Gawande's "Being Mortal"? And then I get to the meat of the discussion. "What are your EOL wishes?" #hcldr https://t.co/kHrOMTwOaq |
| Mariah Obiedzinski @MariahWrites RT @GraceCordovano: @SandraWoodsMtl @JamieRoger8 Things get ugly instantly. These are not discussions to be had in the ER, in the hospital. Too emotional at an already traumatic time & setting. #hcldr |
| Colin Hung @Colin_Hung RT @bonniesheeren: T2: T2: But we're clear---death sucks. It's awful. We don't want to be apart from each other. But we want to make it easier for each other during the grieving time. And hold to each other as much as possible while here. #hcldr |
 | Brenda Peters-Ватраль RN(NP), PhD @BPetersWatral RT @NathanGrunewald: T1 We have advance directives to: ☑️Communicate goals of care, values, preferences ☑️Outline a plan ☑️Ease family burden ☑️Ease provider burden ☑️Provide legal framework Tough discussions best for ensuring your personal desires can be communicated when you can’t. #hcldr https://t.co/QwHNCC5HTE |
| Mariah Obiedzinski @MariahWrites RT @NathanGrunewald: T2 Advance directive discussions are never easy. Using this statement can be helpful: "What would you like me to know about your healthcare goals if someday you were unable to tell me?" #hcldr https://t.co/Ag5E0X2hig |
| Colin Hung @Colin_Hung RT @SandraWoodsMtl: T2 #hcldr I've done some (volunteer) work in line with the US-based Conversation Project; their fantastic Starter Kit, 10+ languages ↔️ "whether you are getting ready to tell someone else what you want, or you want to help someone else get ready" for EoL https://t.co/5YLI2ZxJU9 https://t.co/ERDUJ8Kxom |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pfanderson: Active Choice Intervention Increases Advance Directive Completion: Active Choice Intervention Increases Advance Directive Completion: A Randomized Trial. https://t.co/wYgBBvdPaA #hcldr |
| Andrew Watson MD MLitt @arwmd T2 Having been through this a few times, sadly, #hcldr, simple open discussions and honesty over time. Also, de-emphasizing the fear / sadness. I really don't think there is a perfect answer I also try to help patients take the same approach. Holidays are hard, regardless. |
 | Jon @TechNurseJon @hcldr T2 Everyone is different. I have a family of nurses, so talking about death and illness is easy. But not everyone wants to talk about dying or what they want if they are unable to make their own decisions, especially if that seems so far away to them... #hcldr #irishmed |
| HCLDR Moderator @hcldr Repeating T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/MGHWCk7Wh3 |
| Lisa Davis Budzinski @lisadbudzinski T2 Giving instances in which it would be hard to say anything up front like a bad auto accident, stroke, heart attack. It’s very difficult to think during traumatic moments #hcldr |
| Colin Hung @Colin_Hung RT @AlzheimersLA: At best, end of life conversations are on-going. "How do you feel about XYZ?" "What would you prefer if ABC?" Framing it as "I want to be able to honor your wishes" can make it a little easier. #hcldr https://t.co/cx7q8nzKId |
| Health Equity and Community Engagement Research @mayoclinic_cenr A1 #hcldr Advance Directives https://t.co/8F6USOJ6qg via @YouTube |
 | Sanford Jeames; DHA, FASCO(He, Him) @JeamesSailor @UsTOOHQ @MensHlthNetwork @MBC_Project @DrMarkham A great turn out again for our monthly prostate cancer support group here in Austin. #ProstateCancer #PatientEducation #Menwhocare #support #hcsm #hcldr https://t.co/XTRNPya65Z |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @askdrfitz 100% Seize the opportunities when they present themselves. #hcldr |
| Karlea Abel @ruralhealthlady @askdrfitz Ugh, that was a rough story to be on the national stage but it raises a good point of why these conversations are so important! #hcldr |
| Colin Hung @Colin_Hung @AlzheimersLA T2 Love that! #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA There are 2 types of end of life convos: (1) one that addresses post-death wishes, and (2) one that talks about when things get really bad. There also needs to be a convo about what happens if someone is incapacitated or can't make decisions for themselves. #hcldr |
| Laura Appel @lauradianeappel This is good advice. Use windows of opportunity to have these conversations. #hcldr |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T2. I am just blunt. When my mom passed away 2015 I made my will & also my whole funeral plan, I had each sibling, my husband & dad sign it so everyone is on the same pg, down 2 the pics that will be used on CD & my obituary (minus the death info) #hcldr #IrishMed #HealthXPh |
| Thalia Sirjue @ThaliaMSirjue T2 Fear mongering ...my dad is petrified of cremation so my sister and I told him if he didn’t create an AD we’d cremate him. We’d never actually do that but it did the trick! #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EMoriartyWade: @hcldr T2. I think it’s important to remember that it’s not a one-sided discussion (and it affects both parties...the dying person and the loved ones left behind). It was hard to accept my beloved 93-year-old grandmother’s #EOL wishes but we respected her choice. #hcldr |
| Jamie Roger @JamieRoger8 @ZHeatherChamp @hcldr friends? #hcldr |
| Naomi, BSc MHSc @NaomiNerdsOut #hcldr T2 We talked about it a bit when my grandmother was diagnosed with cancer; we knew her wishes, but we also had a bit of time to prepare. Reminders that it is an eventuality, an insurance if you will, is something I have seen to be helpful. |
| Mariah Obiedzinski @MariahWrites RT @AlzheimersLA: There are 2 types of end of life convos: There are 2 types of end of life convos: (1) one that addresses post-death wishes, and (2) one that talks about when things get really bad. There also needs to be a convo about what happens if someone is incapacitated or can't make decisions for themselves. #hcldr |
| Enlightening Results 💡 @GraceCordovano @hcldr T2) A great deal of my advocacy work involves #EoL care. In talking about my work, I have the opportunity to bring conversations to delicate topics w/family. I have been able to piecemeal some great details about their wishes over time. #hcldr |
| Colin Hung @Colin_Hung @CrazyAssCancer T2 And that's cool too. An AD can/should incorporate that #hcldr |
| Barby Ingle Official @BarbyIngle RT @GraceCordovano: @BarbyIngle Barby, you bring up an excellent point. It's not enough to have the AD done. We must share & discuss our decisions. Does no one any good filed away. I've seen that happen too. #hcldr |
| Thalia Sirjue @ThaliaMSirjue RT @AlzheimersLA: There are 2 types of end of life convos: There are 2 types of end of life convos: (1) one that addresses post-death wishes, and (2) one that talks about when things get really bad. There also needs to be a convo about what happens if someone is incapacitated or can't make decisions for themselves. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @lisadbudzinski: T2 Giving instances in which it would be hard to say anything up front like a bad auto accident, stroke, heart attack. It’s very difficult to think during traumatic moments #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @NathanGrunewald: @JamieRoger8 @H_SalemOaks @bonniesheeren @SalemOaks And I want to add some Boron to the soil so I am blue as I grow. #hcldr |
| Colin Hung @Colin_Hung RT @MariahWrites: T2: T2: Watching my aunt die on her own terms was comforting, in a way. Got me talking to my parents about their #eol wishes. Dad says I'm in charge of "pulling the plug." Easy, Pops. #hcldr #IrishMed #HealthXPh |
| Ken Taylor, RPIC @KenRayTaylor T2: Its easier to talk about before the final moments of life as it does not seem so serious. I usually put myself in the equation to get it started. When I die I want.... What about you? Then its easy to carry on with the topic. #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung RT @TheBingle: T2 Raising the issue is definitely going to happen in a critical situation. My own situation happened twenty years ago. Some pretty good Drs. fixed my brain (although some may disagree) #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @Colin_Hung: @AlzheimersLA T2 Love that! #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @mgallagherUSA: T1. I very much respect Atul Gawande's views and was so moved by his book, "Being Mortal" and the focus on this topic. It's about families having the conversation so they truly know the wishes of their loved ones. #hcldr https://t.co/x0Gurx4mhb |
| Mariah Obiedzinski @MariahWrites RT @Colin_Hung: @CrazyAssCancer Shaming someone into having an AD is like shaming someone into having kids. It's a personal choice. When I went thru the conversation I was more focused on how I wanted to be remembered, celebrated. That helped lessen the "finality" ...a little #hcldr #IrishMed #HealthXPh |
| Karlea Abel @ruralhealthlady @NathanGrunewald This is great! So much nicer, yet to the point. #hcldr |
| Jamie Roger @JamieRoger8 @mgallagherUSA I was JUST trying to find this online. Great watch. #hcldr |
| Jamie Roger @JamieRoger8 RT @mgallagherUSA: T1. I very much respect Atul Gawande's views and was so moved by his book, "Being Mortal" and the focus on this topic. It's about families having the conversation so they truly know the wishes of their loved ones. #hcldr https://t.co/x0Gurx4mhb |
| Alzheimer's Los Angeles @AlzheimersLA RT @pfanderson: Active Choice Intervention Increases Advance Directive Completion: Active Choice Intervention Increases Advance Directive Completion: A Randomized Trial. https://t.co/wYgBBvdPaA #hcldr |
| International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T2: T2: Its easier to talk about before the final moments of life as it does not seem so serious. I usually put myself in the equation to get it started. When I die I want.... What about you? Then its easy to carry on with the topic. #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @BarbyIngle: T2. I am just blunt. When my mom passed away 2015 I made my will & also my whole funeral plan, I had each sibling, my husband & dad sign it so everyone is on the same pg, down 2 the pics that will be used on CD & my obituary (minus the death info) #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung RT @KenRayTaylor: T2: T2: Its easier to talk about before the final moments of life as it does not seem so serious. I usually put myself in the equation to get it started. When I die I want.... What about you? Then its easy to carry on with the topic. #hcldr #IrishMed #HealthXPh |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @SandraWoodsMtl @Colin_Hung I would imagine most who choose assisted dying are scared of losing who they are before they lose their life, and I get that. And I've seen it happen, and it must be horrifying. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T2: But then again when I worked at MD Anderson, it seemed like we could do preventive care & control our fates. Then I got switched over to working around an ER--my head was spinning as I realized how quickly life can change! Made me double up on plans! #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @bonniesheeren: T1: T1: Big plug for National Healthcare Decision Day, 4/16 every year. Do your taxes, then make your advanced directive! https://t.co/OKWEvQemS2 #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl T2 #hcldr This is what I used for EoL planning with my aunt, long-distance. We'd talk about 1 question during each of our weekly 1-hour chats. So we'd the question 'over with' first, then chat about anything/everything else! |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @hcldr T2b: One tool I've found helpful is "5 wishes" which helps people think through who they want to help make decisions, how aggressive they want to be in their care, etc. #hcldr https://t.co/BZWtS738FF |
| Colin Hung @Colin_Hung RT @GraceCordovano: @hcldr T2) A great deal of my advocacy work involves #EoL care. In talking about my work, I have the opportunity to bring conversations to delicate topics w/family. I have been able to piecemeal some great details about their wishes over time. #hcldr |
| Colin Hung @Colin_Hung RT @naomi_re_health: #hcldr T2 We talked about it a bit when my grandmother was diagnosed with cancer; we knew her wishes, but we also had a bit of time to prepare. Reminders that it is an eventuality, an insurance if you will, is something I have seen to be helpful. |
| Enlightening Results 💡 @GraceCordovano T2) Can't say enough about https://t.co/fyPBAZ4lFF #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @BarbyIngle And here I've just been assuming it will be awful and nothing I would have wanted, but it isn't for me anyway. :) But my grandmother dotted all the I's and crossed the t's. My parents left the plans wide open. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 TBH, I don't have trouble having these conversations. I believe it's better to set the example of having open conversations about EOL decisions. It's an important discusssion to have #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha RT @askdrfitz: Recognize windows of opportunity to talk about it: Recognize windows of opportunity to talk about it: a tragedy befalls someone we know, a loved has a near miss, a terrible diagnosis. Talk about how people want to live and what's most important #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl T2 None! I can't even get my parents to decide where they want to be buried. (Mom is from Boston, Dad is from Hawai'i, we live in Florida. So this is obviously a significant matter.) #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @lauradianeappel: T2 My mother is an RN and her lifelong experience with death on the job (med/surg) has made it much more part of the continuum. Parents put wishes in their will decades ago. #hcldr |
 | Christine Lynch @clynch504 RT @hcldr: Repeating T2 What tactics or approaches have you found effective in raising the issue of end-of-life #EOL with family/friends? #hcldr #IrishMed #HealthXPh https://t.co/MGHWCk7Wh3 |
| Enlightening Results 💡 @GraceCordovano T2) The Conversation Project is also an excellent resource for people looking to start somewhere https://t.co/8q1tKU9Z2w #hcldr |
| Mary Gallagher @mgallagherUSA T2: Many clients (health plans/ ACOs) for my company have their case managers broker this convo w/ family caregivers.Some have used @5wishesorg w/ gr8 https://t.co/mEIpS25JsH we think it's easier for family or the h/c partner to have the convo? I think family but I wonder? #hcldr https://t.co/FQbY1EIIUl |
| Colin Hung @Colin_Hung @SandraWoodsMtl T2 Thanks for sharing that was effective for you Sandra #hcldr #IrishMed #HealthXPh |
 | Dr. Berner, PT, DPT, RDN @TheFuelPhysio RT @MarkMilliganDPT: @hcldr T1. Advanced directive? What about a safety plan for natural disasters as well?? #HCLDR https://t.co/w9RH64Psrt |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @twirlandswirl: @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS The conversation NEEDS to go there, though. (You're welcome to set your own boundaries and excuse yourself, of course.) But this is one of the biggest issues around #EOL care right now. Who gets to decide they want to die? And who needs to be stopped from doing it? #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 I wouldn't want my family to be burdened with not knowing my wishes #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T2: I'm a big fan of crying. I cried all the way through making a new will when my younger daughter was born--designating who would raise both our children. Took me a week to work thru that process. Cried the whole time. Just hard to do w/o emotion IMHO #hcldr |
| Mariah Obiedzinski @MariahWrites T2: We have to appreciate, too, that death is just death to some people. The end. No afterlife. For these folks, perhaps the conversation is less "your #eol wishes" and more "make it easier for loved ones." #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano @drnic1 @pfanderson @twirlandswirl Wow, that gives me chills. I can't even begin to imagine how life changing those experiences must be. #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA Ppl often make promises they genuinely want to keep, but they don't anticipate all the hardships of caregiving. Leave space for your own well-being. You may have promised to keep mom at home, for ex, but if that becomes impossible, placing her might be best for both of you #hcldr |
| Andrew Watson MD MLitt @arwmd T2 #hcldr with #Eol care, I also find honestly about the treatments and possible extent of suffering is a real discussion. Chemo, intubation, being hospital bound are rarely what patients want; a clear explanation is good. Hard to be unbiased as a provider here when talking.... |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl It's funny, I see many people romanticizing dying at home, but after watching it happen to my grandmother (she was on at-home hospice and died at home), my dad and I both agreed we'd rather die in a hospital. Can't speak for when the time comes, but at home seemed harder. #hcldr |
 | David Lee Scher, MD @dlschermd T2 Having discussions in context of even casual conversation about someone not even necessarily family with serious illness. In other words any chance I get. #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @MariahWrites: T2: T2: We have to appreciate, too, that death is just death to some people. The end. No afterlife. For these folks, perhaps the conversation is less "your #eol wishes" and more "make it easier for loved ones." #hcldr #IrishMed #HealthXPh |
| Thalia Sirjue @ThaliaMSirjue T2 My sister was in the Marine Corps so she got my niece & I on #EOL planning pretty early on. At one point she made a game out of choosing our caskets & desired burial place. She reviewed her AD with us every time she deployed. I think that helped make it seem less scary #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @lisadbudzinski #hcldr Exactly, and when someone's incapacitated, or has to be sedated or induced into coma... |
| Colin Hung @Colin_Hung @bonniesheeren T2 Sometimes it takes that context - to see how fleeting things can be - before it spurs us to action. That happened to me when I volunteered as a teen in the ER of the local hospital and saw a friend come in on a gurney due to an accident. #hcldr #IrishMed #HealthXPh |
| Mariah Obiedzinski @MariahWrites @npiercePhDRN Thanks so much. It's exciting to start anew! #hcldr #fullpotential |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pfanderson: @GraceCordovano @twirlandswirl @drnic1 My daughter was 3.5 when she explained death to me. So profound. Changed my views on matters. #hcldr |
| Laura Appel @lauradianeappel Working on #DNR legislation earlier this year our Chief Medical Officer explained that many times he had patients who didn’t want their families informed of serious or terminal dx. #EoL #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I hear you. I always worry about this. I feel very strongly about informed consent about options in the dying process, whenever possible, but I also worry about the challenge of respecting consent for one's own death in contrast with suicide. It's a subtle line #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: @drnic1 We need to normalize the conversation, start it earlier in high school. It should be a requirement to have one in place before graduating senior year. By then, we have the right to drive, vote, purchase tobacco products, enlist. Need to add, #EOL to that list #hcldr #IrishMed |
| Colin Hung @Colin_Hung RT @dlschermd: T2 Having discussions in context of even casual conversation about someone not even necessarily family with serious illness. In other words any chance I get. #hcldr |
 | Nicole L. Bohr, PhD, RN @nbohrPhDRN @hcldr T2 - I just try to be open and available. We can’t force the issue, but we can be available when people are ready to talk. Also, being genuine is important. I share my experiences when requested - but I don’t over share. It’s not about me. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @ThaliaMSirjue: T2 My sister was in the Marine Corps so she got my niece & I on #EOL planning pretty early on. At one point she made a game out of choosing our caskets & desired burial place. She reviewed her AD with us every time she deployed. I think that helped make it seem less scary #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @dlschermd: T2 Having discussions in context of even casual conversation about someone not even necessarily family with serious illness. In other words any chance I get. #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @NathanGrunewald That’s how I asked my precious Mom who passed from Leukemia. She was taught death was not to be talked about at all #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA Make sure that you include power of attorney (for both financial & medical decisions) in your end of life conversations. #hcldr |
| Jamie Roger @JamieRoger8 Really brings in the holiday spirit. True though. #HCldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @SandraWoodsMtl @JamieRoger8 Things get ugly instantly. These are not discussions to be had in the ER, in the hospital. Too emotional at an already traumatic time & setting. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T2: Another plug: There are Death Cafes springing up around the world to discuss EOL. So, it's a topic no longer being swept under the rug. https://t.co/J8ph7Sh4uR #hcldr |
| Mark Milligan @MarkMilliganDPT @hcldr T2: As a #physicaltherapist who works in assisted living facilities and memory care units, I try an be a honest and open with patients and families as well with as much empathy as possible. I offer information and not dictate care. #patientpartnership #HCLDR #homehealth |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @NathanGrunewald: T2 Advance directive discussions are never easy. Using this statement can be helpful: "What would you like me to know about your healthcare goals if someday you were unable to tell me?" #hcldr https://t.co/Ag5E0X2hig |
| Rasu Shrestha MD MBA @RasuShrestha T2. Begin a conversation with your loved ones with this statement: 💕"It's not the years in your life, but the life in your years." And plan on how best to maximize that quality of life. #EoL #HCLDR #healthxPH #irishmed |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @ShereesePubHlth @Atul_Gawande #hcldr I kept trying that but no one O know had seen it!! Forced my hubby to watch it with me, tho😉 https://t.co/DxQql243Qr |
| Lisa Davis Budzinski @lisadbudzinski RT @SandraWoodsMtl: @lisadbudzinski #hcldr Exactly, and when someone's incapacitated, or has to be sedated or induced into coma... |
| HCLDR Moderator @hcldr Really interesting tweets on #hcldr right now. Let’s get ready for T3 in just 1 minute! |
| David Lee Scher, MD @dlschermd T2 It’s easier to discuss with people when it’s a third party who’s ill. Less pressure and more relaxed. #hcldr |
| Andrew Watson MD MLitt @arwmd RT @RasuShrestha: T2. Begin a conversation with your loved ones with this statement: T2. Begin a conversation with your loved ones with this statement: 💕"It's not the years in your life, but the life in your years." And plan on how best to maximize that quality of life. #EoL #HCLDR #healthxPH #irishmed |
| Jamie Roger @JamieRoger8 @ShereesePubHlth @Atul_Gawande Nice transition. #hcldr |
| Enlightening Results 💡 @GraceCordovano @drnic1 @pfanderson @twirlandswirl I was invited to St Jude's years ago to present my graduate research. Seeing the kids who were patients crushed me, I cried for days. Having the chance to speak to the parents, hear the kids stories, see their drawings. It was overwhelming & incredibly inspiring. #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren T2 I think it's natural to be emotional. How can you not be when thinking about that part of life #hcldr |
| Thalia Sirjue @ThaliaMSirjue RT @AlzheimersLA: Ppl often make promises they genuinely want to keep, but they don't anticipate all the hardships of caregiving. Leave space for your own well-being. You may have promised to keep mom at home, for ex, but if that becomes impossible, placing her might be best for both of you #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @pfanderson @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS It also opens the dialogue - do we have a right to prevent a suicide? I would argue yes, because so many attempt survivors have lived to regret it, but in contrast to depression as a "fatal disease," do we really, though? #hcldr |
| Thalia Sirjue @ThaliaMSirjue Yes! #hcldr |
| Heather McCullen @H_SalemOaks @twirlandswirl This is weird for an immortal 30 year old to think about, but I'm worried about the logistics of what happens after someone dies at home. It just seems less traumatic for everyone involved if a hospital is involved. #hcldr |
| HCLDR Moderator @hcldr T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/IpWNGk81u5 |
| Colin Hung @Colin_Hung RT @hcldr: T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/IpWNGk81u5 |
| Lisa Davis Budzinski @lisadbudzinski This is why I love #hcldr! 👇 I always learn something new ✨ |
| Mary Gallagher @mgallagherUSA @RasuShrestha You just re-framed my typical bday sentiment. Nice way to begin the EoL discussion. #hcldr |
| Mark Milligan @MarkMilliganDPT @hcldr T2: As a son who lost his dad to #cancer, I appreciated the honesty from the #hospice team. Whether the information was positive or negative, honesty helped me manage the information when I was already cloudy with emotion. #HCLDR |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @hcldr: T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/IpWNGk81u5 |
| Alzheimer's Los Angeles @AlzheimersLA RT @ThaliaMSirjue: T2 My sister was in the Marine Corps so she got my niece & I on #EOL planning pretty early on. At one point she made a game out of choosing our caskets & desired burial place. She reviewed her AD with us every time she deployed. I think that helped make it seem less scary #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @Colin_Hung That's why I think it's hard for people to discuss EOL. It requires being vulnerable & possibly very emotional. But that's the beauty of it! #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @dlschermd: T2 Having discussions in context of even casual conversation about someone not even necessarily family with serious illness. In other words any chance I get. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/IpWNGk81u5 |
| PF Anderson @pfanderson@disabled.social @pfanderson @ThaliaMSirjue My mom wanted cremation, but they took her body and did it so fast after she died, I had irrational fear, "what if they were wrong?" The next morning my sister told me, "Mom was in my dreams last night. I don't know why, but she wanted me to tell you she's just fine." #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @twirlandswirl Having someone die at home can be traumatizing for the rest of the family too. I've admitted kids for EoL care several times because the parents understandably felt it would be hard for them or siblings to see the patient pass away in what should be a safe space #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @twirlandswirl: It's funny, I see many people romanticizing dying at home, but after watching it happen to my grandmother (she was on at-home hospice and died at home), my dad and I both agreed we'd rather die in a hospital. Can't speak for when the time comes, but at home seemed harder. #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @drnic1 @twirlandswirl @H_SalemOaks @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Exactly. Of 3 people, one had a lengthy advanced directive. They died on their own terms. That’s what I meant by dignified. #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @arwmd: T2 #hcldr with #Eol care, I also find honestly about the treatments and possible extent of suffering is a real discussion. Chemo, intubation, being hospital bound are rarely what patients want; a clear explanation is good. Hard to be unbiased as a provider here when talking.... |
 | Ashley Ashbee @ashley_ashbee @bonniesheeren T2: I imagine it's helpful to accept that it will be emotional. #HCLDR |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @twirlandswirl: @pfanderson @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS It also opens the dialogue - do we have a right to prevent a suicide? I would argue yes, because so many attempt survivors have lived to regret it, but in contrast to depression as a "fatal disease," do we really, though? #hcldr |
| Health Equity and Community Engagement Research @mayoclinic_cenr A2 #hcldr Advanced Directives laws change from state to state : Mayo Clinic Radio https://t.co/AuMlIfvWj4 |
| David Lee Scher, MD @dlschermd I find an even like Bush 41’s passing is an opportunity. He refused last hospitalization. Surrounded by loved ones. Way to go (pun intended). #hcldr |
| Enlightening Results 💡 @GraceCordovano @RasuShrestha Very true. The majority of people do not understand or know what an #EoL experience at the hospital can look like or what it could involve. The tubes, machines, how mechanical & invasive. There is a learning curve that helps that conversation. #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA Are there films or tv shows that deal with end of life? Using pop culture can help make these conversations easier. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS EXACTLY! I think about this a lot. Friends who died of suicide who I still want desperately to have back, but I also want to respect their choice, and then question was it a true choice? My brain goes in circles. #hcldr |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @lauradianeappel Sad recurring experience of dysfunctional families and the impact on #eol #hcldr |
| Colin Hung @Colin_Hung @MarkMilliganDPT @hcldr T2 I hear you Mark. That's what I appreciated when my dad went through the same thing. Drs & nurses gave us their honest assessment no sugar coating. We didn't have false hope and were prepared for what was next #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA Also: death doulas. #hcldr https://t.co/NEAZheBVH0 |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @drnic1 @pfanderson @twirlandswirl I was invited to St Jude's years ago to present my graduate research. Seeing the kids who were patients crushed me, I cried for days. Having the chance to speak to the parents, hear the kids stories, see their drawings. It was overwhelming & incredibly inspiring. #hcldr |
| Nicole L. Bohr, PhD, RN @nbohrPhDRN @hcldr T3 - yes. We don’t have frank conversations about #eol and #qol - instead we let fear of the unknown allow us to focus on quantity over quality. We need to be frank and open. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T3: Slightly off-topic, but a Spotify musical playlist for tonight, done by a nun, Sr. Alethia--it's got a little of everything, rock and roll, country, classical for everyone: https://t.co/Mybty6mlYe #hcldr |
| Naomi, BSc MHSc @NaomiNerdsOut RT @RasuShrestha: T2. Begin a conversation with your loved ones with this statement: T2. Begin a conversation with your loved ones with this statement: 💕"It's not the years in your life, but the life in your years." And plan on how best to maximize that quality of life. #EoL #HCLDR #healthxPH #irishmed |
| Michele Longabaugh @CrazyAssCancer T3: Quantity without quality isn't for me. That said, these decisions are very personal. Time is so precious. #hcldr |
| Colin Hung @Colin_Hung @AlzheimersLA And #hcldr friend @KathyKastner is one! #hcsmca |
| Mariah Obiedzinski @MariahWrites RT @pfanderson: @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS EXACTLY! I think about this a lot. Friends who died of suicide who I still want desperately to have back, but I also want to respect their choice, and then question was it a true choice? My brain goes in circles. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @DroopySocialwkr The hardest was after she passed. We had to call a nurse to declare death, and then wait for the funeral home to get there. All in all, her body was in her bed after her death for about six hours. #hcldr |
| Colin Hung @Colin_Hung RT @npiercePhDRN: @hcldr T3 - yes. We don’t have frank conversations about #eol and #qol - instead we let fear of the unknown allow us to focus on quantity over quality. We need to be frank and open. #hcldr |
| Heather McCullen @H_SalemOaks T3: This is a hard one. But my tendency would be to argue the opposite (sort of), even in the previous two questions money, specifically not leaving debt, is more of a concern than it should be. It should be up to the person's wishes. Either way. #hcldr |
| Laura Appel @lauradianeappel @H_SalemOaks @twirlandswirl My mom (the RN) took care of her brother and my dad as they each died at home. Watching my mom with my dad on the last few days was breathtaking. Beautiful. Definition of love. Would not have been that way in a hospital. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @drnic1 We need to normalize the conversation, start it earlier in high school. It should be a requirement to have one in place before graduating senior year. By then, we have the right to drive, vote, purchase tobacco products, enlist. Need to add, #EOL to that list #hcldr #IrishMed |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T3 This is a very difficult question. We'll get into this a bit tonight in #HTReads. #IrishMed's @drlfarrell in his book writes about knowing when to confirm "life has fled into darkness & what to do when we're wrong. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @drnic1 There is a "never give up" undertone to our training. Sometimes we need to help patients and families transition to end of life and understand this is not "giving up." #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T3 Quality of life should always be the goal anytime we care for patients. Often the care is also life prolonging. However, if the intervention is neither life prolonging, nor improving quality, then it is not care, it is harm. #hcldr https://t.co/LbJ8y9NxEN |
| Mariah Obiedzinski @MariahWrites @pfanderson @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS Yes. Grief cycles. Can't be rationalized, so it's tough to accept. #hcldr #HealthXPh #IrishMed |
| Bonnie C. Sheeren, BCPA @bonniesheeren @AlzheimersLA Oh yes! My friend, Deanna Cochran is a Death Doula in Austin, TX! https://t.co/ScrtHcLZaB #hcldr |
| Bingle @TheBingle @npiercePhDRN @MariahWrites Yes, I agree wholeheartedly! That is why i put in my EOL Directive I want to go on the UP Elevator! #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @H_SalemOaks I just replied to someone else's comment, but the hardest logistical part was that her body was in the house for about six hours after she passed. #hcldr |
| Colin Hung @Colin_Hung T3 I do think that in some cases we expend WAAAAY more resources prolonging life beyond what the person really wanted. Sometimes it's based on false hop that the family is given. Other times it's because no on e wants to make the hard call #hcldr #IrishMed #HealthXPh |
| Erin Moriarty Wade @EMoriartyWade T3. My 93-year-old grandma decided she didn’t want to live anymore with cancer after having been on hospice for over a year. She told us she was going to die peacefully at home with help from her longtime physician (legal in Oregon). We didn’t want to let her go but we did.#hcldr |
| Naomi, BSc MHSc @NaomiNerdsOut #hcldr T3 Yes, I do - we talk about extending life but I feel that bioethics has only recently come into play. I think it's part of making sure that the patient is part of the conversation - we have to center all parts of care, including ceasing care, around patients. |
| Naomi, BSc MHSc @NaomiNerdsOut RT @Colin_Hung: T3 I do think that in some cases we expend WAAAAY more resources prolonging life beyond what the person really wanted. Sometimes it's based on false hop that the family is given. Other times it's because no on e wants to make the hard call #hcldr #IrishMed #HealthXPh |
| Michele Longabaugh @CrazyAssCancer @NathanGrunewald the goal of palliative care no matter the age, no matter the stage. #hcldr |
| David Lee Scher, MD @dlschermd Commercials discussing increased longevity for advanced cancer of super expensive meds with only demonstration of weeks longer is deceiving. Get the facts from your oncologist! #hcldr |
| Colin Hung @Colin_Hung T3 I really feel for doctors & nurses. I'm not sure I would have the courage to be the first to voice that there isn't more we can do to help the patient, other than to make them comfortable. #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson @Colin_Hung @H_SalemOaks @twirlandswirl @wareFLO @MI_turnaround @amariedauwer @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS Her friend told her I was a wise woman, and that she was lucky to have me around. ;) That also made it feel better for her, and less alone with it. #hcldr |
| Mary Gallagher @mgallagherUSA T3. I think the concept of 'person centered care' is gaining more acceptance and at its core it is about making sure we are uber focused on what the person who is diagnosed wants/ desires + respecting their wishes. Start there + QoL will follow. #hcldr |
| Naomi, BSc MHSc @NaomiNerdsOut RT @NathanGrunewald: T3 Quality of life should always be the goal anytime we care for patients. Often the care is also life prolonging. However, if the intervention is neither life prolonging, nor improving quality, then it is not care, it is harm. #hcldr https://t.co/LbJ8y9NxEN |
| Andrew Watson MD MLitt @arwmd T3 #hcldr. The inpatient setting is the most egregious for cost / Rx momentum that transcends logic. We need to have specific hospital areas / rooms / setting for #EoL care. Not just a room on a floor. And, explain the peace of the final moment - analgesia, support, comfort.. |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @hcldr T3: Frequently, yes, but hopefully the mindset is shifting as more people become aware that longer ≠ better life. Also, more healthcare folks are recognizing the importance of getting #hpm teams involved early on, especially in pediatrics #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz I think his arguments are rationale and fine for when you are healthy but when faced with illness and knowing something could be done, not sure how practical it is. https://t.co/1sWkmnGKht #hcldr |
| HealthSparq @HealthSparq RT @hcldr: T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/IpWNGk81u5 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T3 Quality of life should always be a consideration, but it also calls into question cultural norms and who we feel has the right to make certain decisions. This is very complicated. #hcldr https://t.co/6r4t81YEyy |
| Enlightening Results 💡 @GraceCordovano @hcldr Many #EoL conversations in the hospital setting are framed by declining "heroic measures" for prolonging life. I always point out, its heroic to step back & choose to not do aggressive measures. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @drnic1 @GraceCordovano @twirlandswirl Sometimes they see so clearly. I can't wrap my mind around it. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @wareFLO @drnic1 @H_SalemOaks @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @CoherenceMed @HIMSS I'd actually prefer NOT to die on my own terms. I don't think that's my decision to make. I still feel like waiting for God (for me, your mileage may vary) to decide when it's my time is plenty dignified. #hcldr |
| Mariah Obiedzinski @MariahWrites @EMoriartyWade There is dignity in freedom of choice, even if the decision is unpopular. #hcldr #justkeepsmiling #IrishMed #HealthXPh |
| HCLDR Moderator @hcldr Repeating T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/VdfWd861fl |
| Laura Appel @lauradianeappel T3 Learned this year about the ethical dilemmas when families want to prolong care and clinicians believe unethical to continue treatment. Definitely don’t spend enough time on that problem. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @arwmd #hcldr And sometimes patients want to hear their clinician's less-than-unbiased advice. I'm a bioethics professional with a neuro-inflammatory & autoimmune disease since 2016. I've asked a specialist: "If I were your sister, what would you recommend?" Decision still mine to make https://t.co/TAXRk5nTot |
| Health Equity and Community Engagement Research @mayoclinic_cenr A3 #hcldr Conversations about death and dying: Mayo Clinic Radio https://t.co/QhA6PoodJ2 |
| Barby Ingle Official @BarbyIngle T3. QOL for me is a consideration, I want it weighted out by my decision makers (health vs finance vs mental status) its all part of the equation for me. I think its a personal decision though. #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson @MariahWrites @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I want to be a person they can trust to support them no matter what. But sometimes I'm not so sure I'm that person. #hcldr |
| Mariah Obiedzinski @MariahWrites This is it. ⬇️⬇️ #hcldr |
| Colin Hung @Colin_Hung @dlschermd T3 I do think TV is partly to blame. Patients pulled from the death's door is a weekly plotline. Sadly life isn't like that for many. It does happen, but not nearly at the frequency Hollywood makes it seem #hcldr #IrishMed #HealthXPh |
| Karlea Abel @ruralhealthlady T3 ugh. Even a small amount of time in an understaffed nursing home is difficult for me. I think the convo needs to emphasis dignity in the same breath as quality. Those thresholds may be different for everyone too. #hcldr |
| Mark Milligan @MarkMilliganDPT @Colin_Hung @hcldr T2: I am with you, Colin. Honest but compassionate. That was the key. I am sorry for your loss, my friend. #HCLDR |
| Thalia Sirjue @ThaliaMSirjue RT @AlzheimersLA: Also: Also: death doulas. #hcldr https://t.co/NEAZheBVH0 |
| Naomi, BSc MHSc @NaomiNerdsOut RT @ShereesePubHlth: T3 Quality of life should always be a consideration, but it also calls into question cultural norms and who we feel has the right to make certain decisions. This is very complicated. #hcldr https://t.co/6r4t81YEyy |
| Bingle @TheBingle @NathanGrunewald @drnic1 Remember one case fairly recent in which all Drs. said the "kid" was not going to get better. He fully recovered. The Drs. gave up too quickly. #hcldr |
| David Lee Scher, MD @dlschermd Physicians need to incorporate this in shared decision making. Its not all about “Do you want everything done?” #hcldr |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth These are very culturally sensitive discussions that generational can vary so vastly. So important to point out Shereese. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl T3 #hcldr Yes, definitely. Often because families don't understand reality of low likelihood of a loved one "getting better" at EoL. Too many medical dramas showing unrealistic recoveries - really doesn't help... https://t.co/EQiRKx2dug |
| Bonnie C. Sheeren, BCPA @bonniesheeren T3: One of my favorite examples: Amy Berman, @NotesOnNursing, a nurse w/ a "terminal breast cancer" decided to only do palliative care--and has had a very rewarding life because of that decision: https://t.co/yA6pLPZtQv #hcldr |
| Erin Moriarty Wade @EMoriartyWade T3. My grandmother lived an amazing life and was sharp mentally (still beating us at card games!). But she had lost the quality of life she loved (travel, hikes, yoga, reading) and didn’t want to live through her 90’s with pain, cancer and a diminishing quality of life. #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @pfanderson @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS And that's the thing, really - I feel like no suicide attempt is truly rational. In order to do some of the things you have to do to die by suicide, you can't really be in a logical state of mind. So IS it a choice? But if it's evaluated and assisted, does that change? #hcldr |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @DrJenChen4kids @twirlandswirl Understand the differences for different people but would also suggest it’s cultural - for example the Irish Wake is whole different approach and thinking to death and #eol imho #hcldr |
| Jamie Roger @JamieRoger8 love this documentary. I also watched another speaker talk about his father's passing but i can't for the life of my remember what it was called or his name. #hcldr |
| Colin Hung @Colin_Hung @lauradianeappel T3 I think part of the problem is the definition of "Quality of Life". I don't want to be bed-ridden and in pain, but for others that might be okay - to have the chance to say goodbye. But QoL is such a person thing #hcldr #IrishMed #HealthXPh |
| Lisa Davis Budzinski @lisadbudzinski T3 #QOL is of huge importance. One does not realize that until it’s gone. #hcldr |
| David Lee Scher, MD @dlschermd T3 Need to have this discussion with ANY end stage disease: cardiac, pulmonary, renal, oncology, whatever. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @GraceCordovano @hcldr Agree. Doing nothing, comfort measures are always treatment options. My job is to share them all, provide details, develop understanding and let the patient decide what they want to do. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MariahWrites: T2: T2: We have to appreciate, too, that death is just death to some people. The end. No afterlife. For these folks, perhaps the conversation is less "your #eol wishes" and more "make it easier for loved ones." #hcldr #IrishMed #HealthXPh |
| Karlea Abel @ruralhealthlady @Colin_Hung @dlschermd Yes! I was thinking that too. The miraculous turnarounds are what you hear about but you don't hear about the much, much more common flipside stories. #hcldr |
| Laura Appel @lauradianeappel @twirlandswirl @H_SalemOaks When my dad died we decided it was too late at night to call the hospice nurse back. My mom tucked him in at midnight and then we all went to bed. We called hospice and funeral home in the morning. It was okay. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @Colin_Hung: @lauradianeappel T3 I think part of the problem is the definition of "Quality of Life". I don't want to be bed-ridden and in pain, but for others that might be okay - to have the chance to say goodbye. But QoL is such a person thing #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung RT @EMoriartyWade: T3. My 93-year-old grandma decided she didn’t want to live anymore with cancer after having been on hospice for over a year. She told us she was going to die peacefully at home with help from her longtime physician (legal in Oregon). We didn’t want to let her go but we did.#hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @DrJenChen4kids: @twirlandswirl Having someone die at home can be traumatizing for the rest of the family too. I've admitted kids for EoL care several times because the parents understandably felt it would be hard for them or siblings to see the patient pass away in what should be a safe space #hcldr |
| Heather 🇺🇸 @ZHeatherChamp @dlschermd Mine just told me today she’s moving out of state! 😑 #hcldr |
| Colin Hung @Colin_Hung RT @drnic1: @DrJenChen4kids @twirlandswirl Understand the differences for different people but would also suggest it’s cultural - for example the Irish Wake is whole different approach and thinking to death and #eol imho #hcldr |
| Jamie Roger @JamieRoger8 @ZHeatherChamp @hcldr I think it is important for you to find someone to have the discussion with. They don't need to be involved in carrying out your wishes, but they can help you work through your own thoughts and emotions about your #eol care #hcldr |
| Ken Taylor, RPIC @KenRayTaylor T3: In many cases, prolonging life is a choice. However prolonging life can mean new policies and or treatments. #RightToTry I think it should be up to the individual and their personal situation. #hcldr #IrishMed #HealthXPh |
| Thalia Sirjue @ThaliaMSirjue T3 Sometimes, but I think we’re getting better at focusing on quality of life and care in healthcare in general #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @DrJenChen4kids @twirlandswirl It can be. It can also be wonderfully healing and comforting. Me, I'd vastly prefer to die at home in my own bed. Or couch. And I don't mind (so far at least) being with remains of loved ones. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @JamieRoger8: @ZHeatherChamp @hcldr I think it is important for you to find someone to have the discussion with. They don't need to be involved in carrying out your wishes, but they can help you work through your own thoughts and emotions about your #eol care #hcldr |
| Karlea Abel @ruralhealthlady @npiercePhDRN @Colin_Hung That has to be hard on providers too. Is it "just" 1% chance or "still" 1% chance? #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @mayoclinic_cenr: A2 #hcldr Advanced Directives laws change from state to state : Mayo Clinic Radio https://t.co/AuMlIfvWj4 |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @arwmd With my grandmother, my family was fortunate to have the option of inpatient hospice. It was actually a floor in one of the hospitals where I rotated as a med student but so much more peaceful than all the other units #hcldr |
| Bingle @TheBingle T3 I'd say Quality of Life is certainly discretionary. Stephen Hawking comes to mind. Some would say he had no quality of life. Others would say he understood the life of the Universe. Any thoughts? #hcldr |
| Mark Milligan @MarkMilliganDPT @hcldr T3: Now that is a challenging question. The more that I am in end of life situations with families the more I realize and think we should focus on prolonging quality of life earlier in life. #prevention #HCLDR |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @lauradianeappel @H_SalemOaks We just all sat there waiting. That's the worst memory of the whole thing for me. And I held her hand as she actually died. #hcldr |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T3. QOL for me is a consideration, I want it weighted out by my decision makers (health vs finance vs mental status) its all part of the equation for me. I think its a personal decision though. #hcldr #IrishMed #HealthXPh |
| Mary Gallagher @mgallagherUSA T3. Death doulas are on the rise and w/ the aging population I expect it to grow much further. The book ends of life: birth and death doulas. #hcldr https://t.co/ddvBtGF8J4 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T3 When life itself is chosen over QOL, it always begs the question; "Am I staying alive for you (my loved ones) or ruining my death?" #Justsaying #hcldr https://t.co/OeBKc4LaGi |
| International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T3: T3: In many cases, prolonging life is a choice. However prolonging life can mean new policies and or treatments. #RightToTry I think it should be up to the individual and their personal situation. #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung @TechNurseJon @hcldr T3 I think that's the gap. Doctors & nurses assume families want to do everything possible to prolong, but families might be open to other options if they were presented. I think it's just hard to have those discussions in that moment #hcldr #IrishMed #HealthXPh |
| Enlightening Results 💡 @GraceCordovano I came across a company that specializes in glittery coffins & storage boxes for ashes. Had many incredible conversations with this one. I'm a big champion of leave a little sparkle wherever you go. I may need the glittery ash box. https://t.co/3xrJM1u0Hq #hcldr |
| Colin Hung @Colin_Hung RT @NathanGrunewald: @GraceCordovano @hcldr Agree. Doing nothing, comfort measures are always treatment options. My job is to share them all, provide details, develop understanding and let the patient decide what they want to do. #hcldr |
| Laura Appel @lauradianeappel @drnic1 I think it is also a function of the older way of thinking to spare family the pain of knowing. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @bonniesheeren We have one here. Unfortunately it always meets at times I have a conflict https://t.co/libi2vLMca #hcldr |
| Mariah Obiedzinski @MariahWrites @JamieRoger8 @ZHeatherChamp @hcldr Great idea. A neutral third party would be preferable for me to discuss #eol. I'm a crier, and it's easy to sweep loved ones up in that wave of emotion. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @bonniesheeren: T2: Another plug: T2: Another plug: There are Death Cafes springing up around the world to discuss EOL. So, it's a topic no longer being swept under the rug. https://t.co/J8ph7Sh4uR #hcldr |
| HCLDR Moderator @hcldr Almost time for our final question. Let’s get ready for T4 in just 1 minute! #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl Since I feel like I'm fighting everyone tonight, I think this might be a good time to clarify this is all for the sake of discussion and I'm not mad at any of you. In case I come off that way. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren T3: But it's truly difficult-I saw pts at MD Anderson that planned to stop treatment, but panicked & did treatments right up till the end. It's easy to say while we feel good, but when we feel terrible--plans sometimes go out the window. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @bonniesheeren: T3: T3: Slightly off-topic, but a Spotify musical playlist for tonight, done by a nun, Sr. Alethia--it's got a little of everything, rock and roll, country, classical for everyone: https://t.co/Mybty6mlYe #hcldr |
 | TheButterflyProtocol™ @emergVictorious RT @RasuShrestha: T2. Begin a conversation with your loved ones with this statement: T2. Begin a conversation with your loved ones with this statement: 💕"It's not the years in your life, but the life in your years." And plan on how best to maximize that quality of life. #EoL #HCLDR #healthxPH #irishmed |
| Joe Babaian 🇺🇦 @JoeBabaian RT @bonniesheeren: T3: T3: But it's truly difficult-I saw pts at MD Anderson that planned to stop treatment, but panicked & did treatments right up till the end. It's easy to say while we feel good, but when we feel terrible--plans sometimes go out the window. #hcldr |
| David Lee Scher, MD @dlschermd T3. One must separate QOL of patirnt from understandably selfish desire of loved ones to hang on as long as possible. Very tough. I’ve lived this multiple times. Respect the patient. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @bonniesheeren I love this! Thank you! #eol #music #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @Colin_Hung: @TechNurseJon @hcldr T3 I think that's the gap. Doctors & nurses assume families want to do everything possible to prolong, but families might be open to other options if they were presented. I think it's just hard to have those discussions in that moment #hcldr #IrishMed #HealthXPh |
| Lisa Davis Budzinski @lisadbudzinski @Colin_Hung @lauradianeappel T3 I had a friend tell me that if I’m in a coma, don’t let them unplug me because people have waken up before. I asked her to please put that in her AD #hcldr |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth I have witnessed family members give their loved one "permission" to die. I've seen the relief that comes, I've heard patients say they were fighting for their family, didn't want to fail them, give up too early. #hcldr |
| Colin Hung @Colin_Hung @sassyQIqueen @npiercePhDRN T3 So true. But that's where knowing the family/pts wishes is important. For some 1% is enough to keep trying. For others 1% vs the cost of pain might not be #hcldr #IrishMed #HealthXPh |
| Erin Moriarty Wade @EMoriartyWade RT @dlschermd: Physicians need to incorporate this in shared decision making. Its not all about “Do you want everything done?” #hcldr |
| HCLDR Moderator @hcldr T4 Let’s start here on #hcldr – fill in the blank. “If I knew I had a year to live I would want to (see/do/go)…” #hcldr #IrishMed #HealthXPh https://t.co/1B4yn6QhM0 |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 T4 Oh so much to tell - start here with Top 37 things you’ll regret when you are old #hcldr https://t.co/UmO7CRtVg5 |
| Erin Moriarty Wade @EMoriartyWade RT @MariahWrites: @EMoriartyWade There is dignity in freedom of choice, even if the decision is unpopular. #hcldr #justkeepsmiling #IrishMed #HealthXPh |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl T3 #hcldr I'm going to throw something in here that I often mention ↔️ Health literacy⤵️ If a patient & their loved ones don't understand the language being used by clinicians at EoL, they can be completely unprepared when condition worsens We need to be clearer, at basics... https://t.co/zu5dZH7QmY |
| Joe Babaian 🇺🇦 @JoeBabaian RT @GraceCordovano: I came across a company that specializes in glittery coffins & storage boxes for ashes. Had many incredible conversations with this one. I'm a big champion of leave a little sparkle wherever you go. I may need the glittery ash box. https://t.co/3xrJM1u0Hq #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @Colin_Hung: @TechNurseJon @hcldr T3 I think that's the gap. Doctors & nurses assume families want to do everything possible to prolong, but families might be open to other options if they were presented. I think it's just hard to have those discussions in that moment #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @twirlandswirl: @DroopySocialwkr The hardest was after she passed. We had to call a nurse to declare death, and then wait for the funeral home to get there. All in all, her body was in her bed after her death for about six hours. #hcldr |
| Colin Hung @Colin_Hung RT @dlschermd: T3. One must separate QOL of patirnt from understandably selfish desire of loved ones to hang on as long as possible. Very tough. I’ve lived this multiple times. Respect the patient. #hcldr |
| Heather McCullen @H_SalemOaks @GraceCordovano Changed my mind. GLITTER COFFIN! (but no, really, don bury me) #hcldr |
| Mariah Obiedzinski @MariahWrites @ZHeatherChamp @JamieRoger8 @hcldr There are #eol forms online, and many primary care offices have them on hand. #hcldr |
 | Ian Pereira @IanJPereira @MariahWrites @JamieRoger8 @ZHeatherChamp @hcldr Social works and spiritual care are often adept at discussing these issues. Palliative medicine can often be involved to discuss goals of care. #hcldr #eol T2 |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @H_SalemOaks: T3: T3: This is a hard one. But my tendency would be to argue the opposite (sort of), even in the previous two questions money, specifically not leaving debt, is more of a concern than it should be. It should be up to the person's wishes. Either way. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @TheBingle: T3 I'd say Quality of Life is certainly discretionary. Stephen Hawking comes to mind. Some would say he had no quality of life. Others would say he understood the life of the Universe. Any thoughts? #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @lauradianeappel: @H_SalemOaks @twirlandswirl My mom (the RN) took care of her brother and my dad as they each died at home. Watching my mom with my dad on the last few days was breathtaking. Beautiful. Definition of love. Would not have been that way in a hospital. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @KenRayTaylor: T3: T3: In many cases, prolonging life is a choice. However prolonging life can mean new policies and or treatments. #RightToTry I think it should be up to the individual and their personal situation. #hcldr #IrishMed #HealthXPh |
| Alzheimer's Los Angeles @AlzheimersLA RT @NathanGrunewald: @GraceCordovano @hcldr Agree. Doing nothing, comfort measures are always treatment options. My job is to share them all, provide details, develop understanding and let the patient decide what they want to do. #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @Colin_Hung @TechNurseJon @hcldr I have to find the exact reference, but at least in pediatric oncology there's data that the patients/families recognized likely terminal prognosis even a few months before the physician did #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz T2: A recent experience showed me how inadequately trained hospital staff can be for these issues. The patient advocate did not understand the purpose of an AD. Frustrating and sad. #hcldr |
| Colin Hung @Colin_Hung @twirlandswirl We understand Laurel. It's a tough topic and you have an opinion that you are passionate about. That's not being mad. That's just expressing your voice. The way I see it #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: T4 Let’s start here on #hcldr – fill in the blank. “If I knew I had a year to live I would want to (see/do/go)…” #hcldr #IrishMed #HealthXPh https://t.co/1B4yn6QhM0 |
| Jason A. Wolf @jasonawolf RT @RasuShrestha: So happy to have the amazing @Colin_Hung running #hcldr from #Pittsburgh tonight, as we get ready for #TopOfMind2019 Missing you here @JoeBabaian. Great blog piece: https://t.co/gPV9KHM6yu Photo credit: @DaveDiCello https://t.co/pIK1rAi7H9 |
| Laura Appel @lauradianeappel @Colin_Hung Prolonging treatment could mean continuing hydration. For a body with no kidney function the results are not good. So what is “wanted” can actually violate oath of doing no harm. That’s the type of dilemma we were confronting. #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha T3: (Unnecessary) Heroics in healthcare hurt more that they help. #hcldr #healthxPH #irishmed cc: @hcldr |
| Alzheimer's Los Angeles @AlzheimersLA Ultimately, patients and their families have to make the choice that's best for them. But its up to healthcare professionals to provide all the information, no matter how difficult it might be. End of life isn't the time to sugarcoat. #hcldr |
| Colin Hung @Colin_Hung RT @ShereesePubHlth: T3 When life itself is chosen over QOL, it always begs the question; "Am I staying alive for you (my loved ones) or ruining my death?" #Justsaying #hcldr https://t.co/OeBKc4LaGi |
| PF Anderson @pfanderson@disabled.social @pfanderson @lauradianeappel @H_SalemOaks @twirlandswirl There is a middle ground of hospice. My mom was in a beautiful hospice, with a bird feeder in the window, music playing of her choice, clean, supportive, room for the whole family. My dad was in hospital, and ... not the same. #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @drnic1 One of my favorite books! #hcldr |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski @NathanGrunewald @hcldr Yes, I 2nd Lisa's idea! #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz Highly recommend. Such grace and poise facing death. And he is such a beautiful writer. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ShereesePubHlth: T3 This is a very difficult question. We'll get into this a bit tonight in #HTReads. #IrishMed's @drlfarrell in his book writes about knowing when to confirm "life has fled into darkness & what to do when we're wrong. #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @drnic1 Definitely agree! #hcldr |
| Andrew Watson MD MLitt @arwmd T3 We use surgical frailty assessment pre-operatively. #hcldr. In my clinics this helps us head off surgeries we dread / those that may not be as helpful. Wish I had this during my surgical residency (ages ago). Great work @UPMC in this domain. Helps us on the front lines. |
| Heather McCullen @H_SalemOaks T4: Go somewhere warm and do nothing, and then come home for the summer ... and also do nothing. As long as I'm outside the whole time. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCordovano One of my favorite films, #TheHours dealt with this idea; that you can stay alive for others or others can choose selflessness and grant you permission to die. #hcldr |
| Thalia Sirjue @ThaliaMSirjue T4 See the world! I’d grab my hubby and my passport and see as much of this Earth as possible!! #hcldr |
| Lisa Fitzpatrick,MD @askdrfitz T4: That is easy. Travel. Spas. Eat. Repeat. #hcldr |
| Enlightening Results 💡 @GraceCordovano @askdrfitz Oh dear. So complicated at the worst times. This should never happen. #hcldr |
| Colin Hung @Colin_Hung @drnic1 Wow. Another great share Nick! Thanks #hcldr |
| Bingle @TheBingle @ScottyWeitzman @ShereesePubHlth Very hard to let go of even pets. They are family. Perhaps EOL Directive w/Paw Prints. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @NathanGrunewald @drnic1 I've prepared for death several times, under different circumstances. It doesn't feel like giving up. It feels like being prepared. #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha RT @askdrfitz: T2: T2: A recent experience showed me how inadequately trained hospital staff can be for these issues. The patient advocate did not understand the purpose of an AD. Frustrating and sad. #hcldr |
| Mark Milligan @MarkMilliganDPT @askdrfitz @hcldr That's a great question, Dr. Fitzpatrick. I have always had knowledge of how our choices effect our future self but I had never been faced with it on a daily basis. Seeing people at the end of their life everyday is humbling and thought provoking. I have a new mission. #HCLDR |
 | Dave White @kidneywarrior RT @mike_mitt: Yesterday at pre-conf. orientation to #science of #dissemination & #Implementation we saw study & #evaluation frameworks. What's missing from the pictures?#patients!! #pinksocks #DIscience18 #hcldr Today I heard more about #patientsincluded https://t.co/INooMiX12M |
| Michele Longabaugh @CrazyAssCancer T4: Spend as much time with my loved ones making memories and telling them what they need to me. #iamnotintoexpirationdates #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @bonniesheeren: @AlzheimersLA Oh yes! My friend, Deanna Cochran is a Death Doula in Austin, TX! https://t.co/ScrtHcLZaB #hcldr |
| Mariah Obiedzinski @MariahWrites T4: If I knew I had a year left to live, I'd want to see @marilynmanson live again, get a few more tattoos, and take a beach vacation with my kids, dogs, and best friends. #hcldr |
| Jamie Roger @JamieRoger8 @ZHeatherChamp @hcldr https://t.co/9dlNiUASMZ You can get started there to learn what decisions are important to discuss. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald T4 If I knew I had a year to live I would want to… Bend space and time to see my daughter’s life in 30 years to experience what she has become after she is ‘all grown up’. #hcldr My little #rockstar 👇💃#pinksocks #BeTheChange https://t.co/DpsJaGnXg0 |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @askdrfitz: I think his arguments are rationale and fine for when you are healthy but when faced with illness and knowing something could be done, not sure how practical it is. https://t.co/1sWkmnGKht #hcldr |
 | patrick moral @ericmoral RT @hcldr: T4 Let’s start here on #hcldr – fill in the blank. “If I knew I had a year to live I would want to (see/do/go)…” #hcldr #IrishMed #HealthXPh https://t.co/1B4yn6QhM0 |
 | Rie Lopez, MPH (she/her) @RieOfLetters An important and thought-provoking discussion taking place tonight. So grateful for the diverse thoughts and compassion shown when discussing end of life. #EOL #hcldr #IrishMed |
| Mark Milligan @MarkMilliganDPT @askdrfitz @hcldr Also, realize that I work in prevention and I am a huge advocate for #prevention but the last few years have made a fundamental change in my approach to my care. Thoughts? #HCLDR |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @npiercePhDRN @sassyQIqueen @Colin_Hung #hcldr Or "Would Uncle Bill want to live if he couldn't do x and y?" Examples for x & y; communicate, ever wake up, breathe on his own... just about anything, depending on what's important to a person. And that can - and does - change over time! |
| Joe Babaian 🇺🇦 @JoeBabaian RT @RieOfLetters: An important and thought-provoking discussion taking place tonight. So grateful for the diverse thoughts and compassion shown when discussing end of life. #EOL #hcldr #IrishMed |
| PF Anderson @pfanderson@disabled.social @pfanderson @askdrfitz I *do* wish that I could be healthy and happy until very shortly before the end, with enough time to say goodbye to loved ones. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @NathanGrunewald: T4 If I knew I had a year to live I would want to… Bend space and time to see my daughter’s life in 30 years to experience what she has become after she is ‘all grown up’. #hcldr My little #rockstar 👇💃#pinksocks #BeTheChange https://t.co/DpsJaGnXg0 |
| Joe Babaian 🇺🇦 @JoeBabaian RT @MariahWrites: T4: T4: If I knew I had a year left to live, I'd want to see @marilynmanson live again, get a few more tattoos, and take a beach vacation with my kids, dogs, and best friends. #hcldr |
| Barby Ingle Official @BarbyIngle T4. If I knew I had a year to live... I would want to fulfill the rest of my bucket list even if you have to strap me in to do it *\O/* - https://t.co/8zXxNQIyM3 #hcldr #IrishMed #HealthXPh #CheerleaderofHOPE |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth I'll have to watch that, thank you. Heavy topics. I'm curious to learn as much as possible & witness as many conversations about #EoL. So much to learn. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @CrazyAssCancer: T4: T4: Spend as much time with my loved ones making memories and telling them what they need to me. #iamnotintoexpirationdates #hcldr |
| Ian Pereira @IanJPereira @hcldr Perhaps more patient-reported outcomes (or other endpoints) in clinical trials would help. #hcldr #PatientCenteredCare #PRO T3 |
| Colin Hung @Colin_Hung @CrazyAssCancer T4 Totally with you on that one Michele. I'd want to do a "final tour" and have the chance to say everything I should have said to family and loved ones #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @JamieRoger8: @ZHeatherChamp @hcldr https://t.co/9dlNiUASMZ You can get started there to learn what decisions are important to discuss. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @GraceCordovano: @hcldr Many #EoL conversations in the hospital setting are framed by declining "heroic measures" for prolonging life. I always point out, its heroic to step back & choose to not do aggressive measures. #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha Indeed. Advance Directives should NOT just be a checkbox/formality item. Hospital staff should be trained to prioritize and have meaningful conversations around why, how and when of ADs. #hcldr #HealthxPH #irishmed |
| Mariah Obiedzinski @MariahWrites @npiercePhDRN My mom wants to be cremated, dispersed on a sandy beach, and hopefully stuck to a muscular surfer's biceps. #lifegoals #hcldr |
| patrick moral @ericmoral @hcldr Spend more time with my family in the real world than with people on social media. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @hcldr: Repeating T3 Do you believe that we are spending to much time, effort and resources prolonging life without considering quality of life? How could we change this? #hcldr #IrishMed #HealthXPh https://t.co/VdfWd861fl |
| Lisa Fitzpatrick,MD @askdrfitz T4: This is such a great question and challenges you to think about what you should be doing now. But I'd also eat copious amounts of chocolate everyday and this is definitely not something I should do everyday unless I want to speed things along. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @askdrfitz: T2: T2: A recent experience showed me how inadequately trained hospital staff can be for these issues. The patient advocate did not understand the purpose of an AD. Frustrating and sad. #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl T4 #hcldr... spend every moment with my best friend & sweetheart; my husband. But that's true every moment now, even after 25 years! And that's why we try meet for coffee every day, at lunch... just to see each other... https://t.co/tND1pYLNhJ |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @twirlandswirl @pfanderson @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I disagree and in some cases for some people making such a decision is heartbreaking and rational in the case of #eol and terminal disease #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA This right here. #hcldr https://t.co/Y4Lt2bYmHb |
| Joe Babaian 🇺🇦 @JoeBabaian RT @ThaliaMSirjue: T4 See the world! I’d grab my hubby and my passport and see as much of this Earth as possible!! #hcldr |
| Thalia Sirjue @ThaliaMSirjue RT @AlzheimersLA: Ultimately, patients and their families have to make the choice that's best for them. But its up to healthcare professionals to provide all the information, no matter how difficult it might be. End of life isn't the time to sugarcoat. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T4 If I knew I had only a year to live, I wouldn't change a thing. I try to live my best life every day, and that's not pride speaking. It's the knowing that the alternative embraces fear. "It is well with my soul." #hcldr https://t.co/aYfWW1g24i |
| Mariah Obiedzinski @MariahWrites RT @IanJPereira: @MariahWrites @JamieRoger8 @ZHeatherChamp @hcldr Social works and spiritual care are often adept at discussing these issues. Palliative medicine can often be involved to discuss goals of care. #hcldr #eol T2 |
| David Lee Scher, MD @dlschermd #hcldr There is not a more unifying or understandable common experience anywhere in the world of watching a loved one struggle at the end of life. It’s a magical and soulful bond. |
| David Lee Scher, MD @dlschermd #hcldr As a physician it is always a sacred conversation with a family informing them of a terminal outcome. But it’s a true privilege to be involved in that discussion and talking about quality of life and what the patient wants. And what a blessing hospice care is. |
| Bonnie C. Sheeren, BCPA @bonniesheeren T4: If I just had a year to live--I would probably write letters for my daughters to read later, tie up loose ends & then just enjoy being with my loved ones. They're all the scenery I need! #hcldr |
| Jason A. Wolf @jasonawolf RT @RasuShrestha: 🔼Believe 🔼Do 🔼Grow 🔼Mentor/be mentored 🔄Rinse n repeat Thanks for showing by doing @Colin_Hung & @LGin412. #HeForShe #UPMCtakesFLIGHT #UPMCinnovates #TopOfMind2019 #hcldr https://t.co/gdeHFUZ1UF |
| Mariah Obiedzinski @MariahWrites RT @AlzheimersLA: This right here. #hcldr https://t.co/Y4Lt2bYmHb |
| Colin Hung @Colin_Hung @MariahWrites @npiercePhDRN T4 THAT's AWESOME. Death can be met with humor. I want to be shot into space and travel the universe. #hcldr |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T4. If I knew I had a year to live... I would want to fulfill the rest of my bucket list even if you have to strap me in to do it *\O/* - https://t.co/8zXxNQIyM3 #hcldr #IrishMed #HealthXPh #CheerleaderofHOPE |
| Enlightening Results 💡 @GraceCordovano @drnic1 YAAASSSSSS #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @drnic1 @pfanderson @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS That isn't what we're talking about here. We're talking about suicide itself, for the sake of suicide. #hcldr |
| Colin Hung @Colin_Hung RT @BarbyIngle: T4. If I knew I had a year to live... I would want to fulfill the rest of my bucket list even if you have to strap me in to do it *\O/* - https://t.co/8zXxNQIyM3 #hcldr #IrishMed #HealthXPh #CheerleaderofHOPE |
| Erin Moriarty Wade @EMoriartyWade RT @ShereesePubHlth: @GraceCordovano One of my favorite films, #TheHours dealt with this idea; that you can stay alive for others or others can choose selflessness and grant you permission to die. #hcldr |
| Nathan Grunewald MD MBA FACS @NathanGrunewald @ShereesePubHlth Fantastic! Keep being the great you that you are!! #hcldr |
| Heather McCullen @H_SalemOaks @ericmoral @hcldr I'd spend more time with social media, no more forced extroversion! (So, in summary, I'd be outside on my phone for a year..) #hcldr |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @lauradianeappel @twirlandswirl @H_SalemOaks What a nice way to say farewell #hcldr |
| David Lee Scher, MD @dlschermd TV has no place in advertising drugs for end stage disease. It trivializes the necessary associated discussions around such a drug. #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @hcldr T4: form meaningful memories with family and friends, tie up loose ends so my family won't have to deal with it (eg donate things to ppl who will actually use them), write letters for loved ones to be delivered after my passing #hcldr |
| Mariah Obiedzinski @MariahWrites @Colin_Hung @npiercePhDRN #RocketMan #hcldr https://t.co/6BFal40rD2 |
| HCLDR Moderator @hcldr Repeating T4 Let’s start here on #hcldr – fill in the blank. “If I knew I had a year to live I would want to (see/do/go)…” #hcldr #IrishMed #HealthXPh https://t.co/CN8LcXnkL5 |
| Ian Pereira @IanJPereira @GraceCordovano @hcldr A mentor framed these as “level of care” vs true “goals of care” discussions. The latter requires insight into what patients want from their treatment (eg to attend a wedding, regain independence, etc), not only what to do if their heart stops. It also takes more time. #hcldr t4 |
 | Michael Joseph, PMP @HealthData4All RT @RasuShrestha: So happy to have the amazing @Colin_Hung running #hcldr from #Pittsburgh tonight, as we get ready for #TopOfMind2019 Missing you here @JoeBabaian. Great blog piece: https://t.co/gPV9KHM6yu Photo credit: @DaveDiCello https://t.co/pIK1rAi7H9 |
| Bonnie C. Sheeren, BCPA @bonniesheeren @NathanGrunewald ADORABLE!!! #hcldr |
 | The Roctor,MD @TheRoctor_MD @ShereesePubHlth ✌️😎 I have taken 100s of patients thru death n dying over 30 years. Every situation is unique. Some want to live no matter what. Some families won't give up no matter what. Much guilt is involved. It's hard every time. #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren T4 I love that. Wasn't there a movie about that? Where letters would be opened on specific important dates (wedding, graduation, etc). What a way to stay in the hearts of loved ones. To hear from you directly #hcldr #IrishMed #HealthXPh |
| Ken Taylor, RPIC @KenRayTaylor T4: Complete as many things on my bucket list as possible! Give my belongings away to my closest friends and family. The end. #hcldr #IrishMed #HealthXPh |
| Karlea Abel @ruralhealthlady @MarkMilliganDPT @askdrfitz @hcldr Prevention is difficult when those darn #sdoh get in the way. Who *has time* for prevention when you are worried about food, transportation, working 60 hrs/week, kids/sports, etc etc! And then it catches up. Our culture needs to create prevention time. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCordovano Great movie. Watch it w/ a box of @Kleenex. #hcldr https://t.co/C8eGgcfpFr |
| Colin Hung @Colin_Hung @askdrfitz @CrazyAssCancer One of the things I have to work on :) #hcldr |
| Ñick van Terheyden, MD -Dr Ñiçk 🇺🇸🇬🇧🇮🇪🇳🇬🌍 @drnic1 @DrJenChen4kids I think especially resonant for clinicians #hcldr |
| International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T4: T4: Complete as many things on my bucket list as possible! Give my belongings away to my closest friends and family. The end. #hcldr #IrishMed #HealthXPh |
| Jamie Roger @JamieRoger8 Travel the world every single day. Visit the #African Safari's, swim at the most beautiful beaches, visit family and friends that I haven't seen lately. I would want to #livemybestlife every day that I had left. #hcldr |
| Mary Gallagher @mgallagherUSA T4 If I knew I had a year to live I would want to…write letters and record videos for my girls of what to expect as they grow into tweens, teens, walk down the aisle, become moms + age w/ grace + dignity. #hcldr |
| Andrew Watson MD MLitt @arwmd Signing off, goodnight folks. #hcldr. Great discussion, thank you. |
| Thalia Sirjue @ThaliaMSirjue So true! #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @Colin_Hung There probably was! I don't think I'm that creative! ha! #hcldr |
| Lisa Davis Budzinski @lisadbudzinski T4 Have a grand ole time! With friends, family, strangers, everyone! Throw out #pinksocks & tell them why✨ #hcldr #irishmed #HealthXPh |
| patrick moral @ericmoral @H_SalemOaks @hcldr So that’s how its termed: forced extroversion - the generator of small talk 😁#hcldr |
| Barby Ingle Official @BarbyIngle CT... I wish everyone a great week... happy holidays and best wishes! #CheerleaderofHOPE #hcldr |
| Bonnie C. Sheeren, BCPA @bonniesheeren @mgallagherUSA Great minds work alike! #hcldr |
| Jamie Roger @JamieRoger8 RT @NathanGrunewald: T4 If I knew I had a year to live I would want to… Bend space and time to see my daughter’s life in 30 years to experience what she has become after she is ‘all grown up’. #hcldr My little #rockstar 👇💃#pinksocks #BeTheChange https://t.co/DpsJaGnXg0 |
| Lisa Davis Budzinski @lisadbudzinski @arwmd Good night ✨ #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @Colin_Hung: @dlschermd T3 I do think TV is partly to blame. Patients pulled from the death's door is a weekly plotline. Sadly life isn't like that for many. It does happen, but not nearly at the frequency Hollywood makes it seem #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson @Colin_Hung @dlschermd CPR survival rates are lower than most people think (2018) https://t.co/fjABZUJ38m #hcldr |
 | Kelly Rawlings, MPH, PWD @KellyRawlings #4: Swedish death cleaning, meaningful conversation w/ people who have touched my life, confirming my relatives understand my desire to donate body for diabetes research. #hcldr |
| Erin Moriarty Wade @EMoriartyWade @hcldr T4. I’d go travel the world again off the beaten path like I did in my 20’s (Southeast Asia, South America, etc.) but this time, I’d bring my kids to show them everything...and then I’d go visit all my far-flung friends and family who I rarely get to see! #hcldr |
| Dr. Jennifer Chen, MD FAAP 林 明 堯 @DrJenChen4kids @askdrfitz Me too! #hcldr |
| Colin Hung @Colin_Hung @arwmd Good night Andrew. Thanks for joining #hcldr tonight. |
| PF Anderson @pfanderson@disabled.social @pfanderson @Colin_Hung @dlschermd "The overall rate of survival that leads to hospital discharge for someone who experiences cardiac arrest is about 10.6 percent, the study authors note. But most participants in the study estimated it at more than 75 percent." #hcldr #IrishMed #HealthXPh |
| Colin Hung @Colin_Hung RT @EMoriartyWade: @hcldr T4. I’d go travel the world again off the beaten path like I did in my 20’s (Southeast Asia, South America, etc.) but this time, I’d bring my kids to show them everything...and then I’d go visit all my far-flung friends and family who I rarely get to see! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pfanderson: @Colin_Hung @dlschermd "The overall rate of survival that leads to hospital discharge for someone who experiences cardiac arrest is about 10.6 percent, the study authors note. But most participants in the study estimated it at more than 75 percent." #hcldr #IrishMed #HealthXPh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @sassyQIqueen: T3 ugh. Even a small amount of time in an understaffed nursing home is difficult for me. I think the convo needs to emphasis dignity in the same breath as quality. Those thresholds may be different for everyone too. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @EMoriartyWade: @hcldr T4. I’d go travel the world again off the beaten path like I did in my 20’s (Southeast Asia, South America, etc.) but this time, I’d bring my kids to show them everything...and then I’d go visit all my far-flung friends and family who I rarely get to see! #hcldr |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl @Colin_Hung @dlschermd While I fully agree that's true - miracles don't happen as often when you don't have friendly writers - I also support anyone who wants to cling on till the bitter end, just in case, and I feel like those people don't have enough advocates right now. #hcldr |
| Colin Hung @Colin_Hung @BarbyIngle Have a great week Barby. Thanks for being here tonight #hcldr |
| Ian Pereira @IanJPereira @hcldr Or perhaps put another way, if I had a life-limiting condition, I want to live to a certain date or at a functional capacity to be able to meet my goals. Time and #QoL often have trade offs. #hcldr T4 |
| Joe Babaian 🇺🇦 @JoeBabaian RT @KellyRawlings: #4: #4: Swedish death cleaning, meaningful conversation w/ people who have touched my life, confirming my relatives understand my desire to donate body for diabetes research. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EMoriartyWade: T3. My 93-year-old grandma decided she didn’t want to live anymore with cancer after having been on hospice for over a year. She told us she was going to die peacefully at home with help from her longtime physician (legal in Oregon). We didn’t want to let her go but we did.#hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @pfanderson: @Colin_Hung @dlschermd CPR survival rates are lower than most people think (2018) https://t.co/fjABZUJ38m #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha T4: "... I would tell everyone I love, in person, at a vacation destination of their choice, the reasons I love them, and WHY they matter." 💕 #hcldr #HealthxPH #irishmed #EoL |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EMoriartyWade: T3. My grandmother lived an amazing life and was sharp mentally (still beating us at card games!). But she had lost the quality of life she loved (travel, hikes, yoga, reading) and didn’t want to live through her 90’s with pain, cancer and a diminishing quality of life. #hcldr |
| Colin Hung @Colin_Hung RT @IanJPereira: @hcldr Or perhaps put another way, if I had a life-limiting condition, I want to live to a certain date or at a functional capacity to be able to meet my goals. Time and #QoL often have trade offs. #hcldr T4 |
| Joe Babaian 🇺🇦 @JoeBabaian What a powerful night here on #hcldr Thanks to everyone for making this amazing!! |
| patrick moral @ericmoral @hcldr Leave behind an oral history of our traditions and heritage and share my mistakes in life and how I moved on from them. #hcldr |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba I have to run but if you haven't seen #TheHours, check out the movie. Thanks for the great conversation on an important topic #irishmed #healthxph #hcldr https://t.co/T8TyZZeMqz |
| HCLDR Moderator @hcldr That’s a wrap. Thank you for joining the #hcldr tweetchat tonight. Your time, tweets and comments are greatly appreciated! |
| Joe Babaian 🇺🇦 @JoeBabaian RT @RasuShrestha: T4: T4: "... I would tell everyone I love, in person, at a vacation destination of their choice, the reasons I love them, and WHY they matter." 💕 #hcldr #HealthxPH #irishmed #EoL |
| Erin Moriarty Wade @EMoriartyWade @mgallagherUSA Love that! Such a wonderful idea. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @twirlandswirl: @pfanderson @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS And that's the thing, really - I feel like no suicide attempt is truly rational. In order to do some of the things you have to do to die by suicide, you can't really be in a logical state of mind. So IS it a choice? But if it's evaluated and assisted, does that change? #hcldr |
| Lisa Davis Budzinski @lisadbudzinski @Colin_Hung @askdrfitz @CrazyAssCancer Start making recordings for wife & kids while you’re away from home. Let them know how much you think of them, love them; even tell children how to deal with life events that will come up now & later ✨ #hcldr |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Nite, nite #hcldr! https://t.co/uS1dDJufTL |
| Joe Babaian 🇺🇦 @JoeBabaian RT @IanJPereira: @hcldr Or perhaps put another way, if I had a life-limiting condition, I want to live to a certain date or at a functional capacity to be able to meet my goals. Time and #QoL often have trade offs. #hcldr T4 |
 | Health Nerd @GidMK RT @pfanderson: @Colin_Hung @dlschermd "The overall rate of survival that leads to hospital discharge for someone who experiences cardiac arrest is about 10.6 percent, the study authors note. But most participants in the study estimated it at more than 75 percent." #hcldr #IrishMed #HealthXPh |
| Lisa Fitzpatrick,MD @askdrfitz T4: Interesting so many of our answers relate to traveling. Why don't we travel more? #hcldr |
| Thalia Sirjue @ThaliaMSirjue Good night #hcldr! Thanks for a great first tweetup!! |
| Laurel Ann Kameleonalani Whitlock 🐊🌺🌈 @twirlandswirl Have a good week, everyone! If I'm not here next week, send help to Weddingville. 😂😂😂😂 #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @dlschermd: Commercials discussing increased longevity for advanced cancer of super expensive meds with only demonstration of weeks longer is deceiving. Get the facts from your oncologist! #hcldr |
| Bingle @TheBingle T4 If I had a year to live I'd like to see a roundtable with patients & Drs./Researchers who some I think would be knocked off their thrones at the resiliency & knowledge that patients possess. #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @twirlandswirl: @Colin_Hung @dlschermd While I fully agree that's true - miracles don't happen as often when you don't have friendly writers - I also support anyone who wants to cling on till the bitter end, just in case, and I feel like those people don't have enough advocates right now. #hcldr |
| Colin Hung @Colin_Hung @ShereesePubHlth Thanks for being here Shereese. Can't wait to see you next week! #hcldr #IrishMed #HealthXPh |
| HCLDR Moderator @hcldr Special shout-out to @drlfarrell @endocrine_witch and all our #IrishMed #HealthXPh collaborators. It was really fun to be part of this global event. #hcldr https://t.co/DNEentEEdB |
| Heather McCullen @H_SalemOaks @twirlandswirl @Colin_Hung @dlschermd This is going to sound like a joke, but I'm serious. FOMO to the end for me. I can't think of an amount of terribleness that would keep me from wanting to see if tomorrow could be better. #hcldr |
| Karlea Abel @ruralhealthlady T4 all the feels today #hcldr ! Write letters, record videos, spend beach time with friends & family. Maybe one last karma project if I could! |
| Bonnie C. Sheeren, BCPA @bonniesheeren Wow...going to have to go back and see if I missed any Tweets as they flew by! See everyone next week! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @TheBingle: T4 If I had a year to live I'd like to see a roundtable with patients & Drs./Researchers who some I think would be knocked off their thrones at the resiliency & knowledge that patients possess. #hcldr |
| Enlightening Results 💡 @GraceCordovano @JoeBabaian I'm going to have to go through all of the conversations. So much to digest here! Thanks Joe & @Colin_Hung #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @pfanderson: @Colin_Hung @dlschermd "The overall rate of survival that leads to hospital discharge for someone who experiences cardiac arrest is about 10.6 percent, the study authors note. But most participants in the study estimated it at more than 75 percent." #hcldr #IrishMed #HealthXPh |
| Joe Babaian 🇺🇦 @JoeBabaian RT @hcldr: That’s a wrap. Thank you for joining the #hcldr tweetchat tonight. Your time, tweets and comments are greatly appreciated! |
 | Sally James @jamesian Late to #EOL discussion. #hcldr but eager 2 say - talk about death often, early, with all ages. |
| Nathan Grunewald MD MBA FACS @NathanGrunewald Great #hcldr discussion. Thanks @Colin_Hung, @JoeBabaian. Have a great week. Sadly, I'll miss out next week. #IrishMed #HealthXPh |
| Jamie Roger @JamieRoger8 RT @RasuShrestha: T4: T4: "... I would tell everyone I love, in person, at a vacation destination of their choice, the reasons I love them, and WHY they matter." 💕 #hcldr #HealthxPH #irishmed #EoL |
| Colin Hung @Colin_Hung @mikebiselli @RasuShrestha @JoeBabaian @DaveDiCello @hcldr @jasonawolf @nickisnpdx @wareFLO @HealthData4All @drnic1 @LGin412 @ShereesePubHlth @2healthguru @BannerHealth It was a meatball-kind-of-night here in #PGH Nothing like having the special of the week while tweeting on #hcldr |
| Alzheimer's Los Angeles @AlzheimersLA RT @ericmoral: @hcldr Leave behind an oral history of our traditions and heritage and share my mistakes in life and how I moved on from them. #hcldr |
| Colin Hung @Colin_Hung @NathanGrunewald @JoeBabaian Thank you for your tweets Nathan. #hcldr |
| David Lee Scher, MD @dlschermd @twirlandswirl @Colin_Hung Agree. I’m just saying it shouldn’t be a subject of advertising. There certainly is a place for discussion about the drug in the office and home if it’s approved. But not a slick commercial. #hcldr |
| HCLDR Moderator @hcldr Don’t forget to use the #hcldr hashtag during week for interesting healthcare/leadership posts, pics, articles & news |
| Heather McCullen @H_SalemOaks @TheBingle Let's do that anyway! #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren Have a wonderful week Bonnie. Really appreciate your time tonight #hcldr |
| Rie Lopez, MPH (she/her) @RieOfLetters T4: I'd spend the time with my family, including visiting the family of my heart. I'd like to see the Grand Canyon again and the 'Northern Lights'. Family though, making happy memories is most important. #hcldr #IrishMed #EOL |
| Erin Moriarty Wade @EMoriartyWade @JoeBabaian Thank you for another great #hcldr Tuesday @JoeBabaian and @Colin_Hung! |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl RT @TheRoctor_MD: @ShereesePubHlth ✌️😎 I have taken 100s of patients thru death n dying over 30 years. Every situation is unique. Some want to live no matter what. Some families won't give up no matter what. Much guilt is involved. It's hard every time. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS Evaluated and assisted is a big deal. At same time, I got to meet Dax Cowart https://t.co/H2Kj7wvRXB who always fought for right to die. He refused medical treatment when severely burned, and was forced to comply. #hcldr |
| Mariah Obiedzinski @MariahWrites RT @hcldr: Special shout-out to @drlfarrell @endocrine_witch and all our #IrishMed #HealthXPh collaborators. It was really fun to be part of this global event. #hcldr https://t.co/DNEentEEdB |
| Colin Hung @Colin_Hung @twirlandswirl Have a great week Laurel #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @KellyRawlings: #4: #4: Swedish death cleaning, meaningful conversation w/ people who have touched my life, confirming my relatives understand my desire to donate body for diabetes research. #hcldr |
| Jamie Roger @JamieRoger8 GREAT discussion tonight, #eol care/choices are such a meaningful part of our death, something we should all be talking about. Hope you are all able to transition over and join us for #htreads. #hcldr love my #TuesdayNightFever |
 | Mike Biselli @mikebiselli RT @RasuShrestha: 🔼Believe 🔼Do 🔼Grow 🔼Mentor/be mentored 🔄Rinse n repeat Thanks for showing by doing @Colin_Hung & @LGin412. #HeForShe #UPMCtakesFLIGHT #UPMCinnovates #TopOfMind2019 #hcldr https://t.co/gdeHFUZ1UF |
| Bingle @TheBingle @H_SalemOaks Sounds like a plan..... #hcldr |
| Colin Hung @Colin_Hung @GraceCordovano @JoeBabaian Thanks for being here Grace. Hope to see you next week in NYC #hcldr #IrishMed #HealthXPh |
| Lisa Davis Budzinski @lisadbudzinski @hcldr @drlfarrell @endocrine_witch 👏👏👏 Truly a great collaboration on such an important topic to all humans #hcldr |
| Colin Hung @Colin_Hung @bonniesheeren Me too Bonnie! #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ShereesePubHlth: I have to run but if you haven't seen #TheHours, check out the movie. Thanks for the great conversation on an important topic #irishmed #healthxph #hcldr https://t.co/T8TyZZeMqz |
| Naomi, BSc MHSc @NaomiNerdsOut #hcldr T4 if I had a year to live I would want to climb every mountain I could and help as many people as I could. |
| Barby Ingle Official @BarbyIngle My pleasure @Colin_Hung I so enjoy #hcldr each week. I will be off the next two weeks due to travel days but look forward to being able to participate again in 3 weeks. :) |
| David Lee Scher, MD @dlschermd @H_SalemOaks @twirlandswirl @Colin_Hung That’s a valid feeling, and certainly a choice to make. Not a joke at all. All patients wishes need respected. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @ShereesePubHlth Thanks for the recommendation. I hadn't heard of this one. #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha @LGin412 @Colin_Hung @JoeBabaian @DaveDiCello @hcldr @mikebiselli @jasonawolf @nickisnpdx @wareFLO @HealthData4All @drnic1 @ShereesePubHlth @2healthguru The only thing better than #broccolini analogies to #interoperability challenges = #meatballsintech. Cc: @jessdamassa @jameyedwards @HealthEugene #hcldr |
| Lisa Davis Budzinski @lisadbudzinski Everyone have a great week no matter where you are ✨ #hcldr |
| Jamie Roger @JamieRoger8 @askdrfitz I do travel often. I think it would just turn into a year long adventure instead of an adventure every few months. #hcldr |
| Enlightening Results 💡 @GraceCordovano RT @TheRoctor_MD: @ShereesePubHlth ✌️😎 I have taken 100s of patients thru death n dying over 30 years. Every situation is unique. Some want to live no matter what. Some families won't give up no matter what. Much guilt is involved. It's hard every time. #hcldr |
| Rie Lopez, MPH (she/her) @RieOfLetters @JoeBabaian Thank you! I'm so glad that I could be here for a little while. Very meaningful conversation. #hcldr |
| Rasu Shrestha MD MBA @RasuShrestha @askdrfitz Thank you Lisa. 🙏 #heartspeak #hcldr |
| Laura Appel @lauradianeappel Before we all scatter, I invite #hcldr crew to join in @MarkMilliganDPT #IMovedToday challenge. Simple to do. Just find a bit of time to move everyday this month then post with the hashtag. Spread the word! |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl Thanks for another great #hcldr chat everyone!!! Home in time to watch my beloved Habs play hockey & it's 5-1 for them now!!! #GoHabsGo https://t.co/HGjznhF8q3 |
| Colin Hung @Colin_Hung @JamieRoger8 Have a fantastic week Jamie. Appreciate your time #hcldr |
| Bingle @TheBingle @jamesian You made the cut before EOL on tonights #hcldr |
| Heather McCullen @H_SalemOaks Hi #htreads. #hcldr required a beer tonight. Time for a refill. |
| Karlea Abel @ruralhealthlady RT @hcldr: Don’t forget to use the #hcldr hashtag during week for interesting healthcare/leadership posts, pics, articles & news |
| Colin Hung @Colin_Hung @lisadbudzinski You too Lisa. Have a great night! #hcldr |
 | Iris Thiele Isip Tan MD, MSc @endocrine_witch RT @hcldr: Special shout-out to @drlfarrell @endocrine_witch and all our #IrishMed #HealthXPh collaborators. It was really fun to be part of this global event. #hcldr https://t.co/DNEentEEdB |
| Rasu Shrestha MD MBA @RasuShrestha @askdrfitz Indeed... why wait? Life is for the living. And death is but a part of life. #hcldr #HealthxPH #irishmed |
| Naomi, BSc MHSc @NaomiNerdsOut RT @TheRoctor_MD: @ShereesePubHlth ✌️😎 I have taken 100s of patients thru death n dying over 30 years. Every situation is unique. Some want to live no matter what. Some families won't give up no matter what. Much guilt is involved. It's hard every time. #hcldr |
| Colin Hung @Colin_Hung RT @lauradianeappel: Before we all scatter, I invite #hcldr crew to join in @MarkMilliganDPT #IMovedToday challenge. Simple to do. Just find a bit of time to move everyday this month then post with the hashtag. Spread the word! |
| Lisa Davis Budzinski @lisadbudzinski CT: Please know life can change in a blink of an eye at any age. It’s always best to be prepared & not need it, than to need it & not be prepared. No one is immortal or exempt #hcldr |
| Iris Thiele Isip Tan MD, MSc @endocrine_witch @hcldr @drlfarrell Happy to have been part of this :) #hcldr #irishmed #healthxph |
| Janae Sharp @CoherenceMed @drnic1 @twirlandswirl @pfanderson @H_SalemOaks @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS I don't know if I agree that no attempt is rational. #hcldr #spsm - it's very complex. |
| Colin Hung @Colin_Hung @SandraWoodsMtl Have a great week Sandra. Go H--a--b-- Nope can't do it. Been too long a Leafs fan. #hcldr :) |
| PF Anderson @pfanderson@disabled.social @pfanderson @twirlandswirl @drnic1 @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS Yes, that's the important difference. I also consider the complications of Seppuku, when someone dies of suicide for the good of others, to protect them, to save their life. #hcldr |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @lauradianeappel: Before we all scatter, I invite #hcldr crew to join in @MarkMilliganDPT #IMovedToday challenge. Simple to do. Just find a bit of time to move everyday this month then post with the hashtag. Spread the word! |
| Janae Sharp @CoherenceMed @mayoclinic_cenr @MariahWrites I wanted John to be where the kids could visit the grave. Not everyone agreed. #hcldr. |
| Bingle @TheBingle T5 Thanks for another great chat on #hcldr |
| Sandra Woods, CIPP/C; she/her @SandraWoodsMtl @pfanderson @NathanGrunewald @drnic1 #hcldr This is precisely how I feel. May also be influenced by having been in respiratory failure a few times in my teens, due to uncontrolled exercise-induced asthma - while trying to continue multiple competitive sports😎 |
| Enlightening Results 💡 @GraceCordovano @H_SalemOaks @twirlandswirl It's very difficult to process, when life ends & leaves the physical body. Personally, having that time in the presence of family who have died at home gave me a unique appreciation of the miracle of life. #hcldr |
| Jason A. Wolf @jasonawolf There is something about #hcldr and a meal that makes it all the more fulfilling. @Colin_Hung would love to know your stats on chats at receptions or restaurants. Mine always seem to be at bedtimes. Too bad you can’t here my rendition of #youaremysunshine! #TopOfMind2019 #ptexp |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski Good night, Lisa 💖 #hcldr |
| Colin Hung @Colin_Hung @jasonawolf See you in #PGH Jason. Can't wait. #hcldr |
| PF Anderson @pfanderson@disabled.social @pfanderson @drnic1 @twirlandswirl @H_SalemOaks @CoherenceMed @wareFLO @MI_turnaround @amariedauwer @Colin_Hung @techguy @lenisocial @jhoronjeff @JennDennard @HIMSS And that is a context where it makes sense to me. This is a topic where there just isn't a right answer that covers all possible circumstances. Which is part of what makes it so hard, so wrenching, so haunting. #hcldr |
| David Lee Scher, MD @dlschermd This is a very spiritually moving topic and important for every human to think about. Cultural differences exist but death is universal and an important part of life. Thanks all for privilege of participating with my #hcldr friends. |
| Mark Milligan @MarkMilliganDPT @lauradianeappel 🙌🙌🙌 would love the entire #Hcldr crew to get motivated and supported to #move!! Please join along and DM me with any questions!! Thank you for the shout, Laura! #Prevention #Movement #IMovedToday |
| Jamie Roger @JamieRoger8 @Colin_Hung Thanks Colin, I appreciate your ability to keep #hcldr moving and exciting every week. |
| Enlightening Results 💡 @GraceCordovano @MariahWrites @npiercePhDRN That is epic! I overheard an #EoL conversation were an elderly woman said she wanted to be cremated & sprinkled over the shoe dept at Neiman Marcus. #lifegoals #hcldr |
| Mark Milligan @MarkMilliganDPT RT @lauradianeappel: Before we all scatter, I invite #hcldr crew to join in @MarkMilliganDPT #IMovedToday challenge. Simple to do. Just find a bit of time to move everyday this month then post with the hashtag. Spread the word! |
| Lisa Fitzpatrick,MD @askdrfitz T4: “When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, 'I used everything you gave me.”Erma Bombeck #hcldr #bettergetbusy |
| Mariah Obiedzinski @MariahWrites For the win. #hcldr |
| Bingle @TheBingle @Colin_Hung Yes, definitely if possible. Busy working but as Spock may say: I'm calculating the Time Travel Now! #hcldr |
 | Dennis Kendel @DennisKendel RT @FutureDocs: Excited to share that I have a new job. I wrote more about it here-“Why the Hospital C Suite Should Invest in Learning” https://t.co/vaIH20oUhS cc @SHMLive @macyfoundation @acgme @women_of_impact @CostsofCare #meded #hcldr |
| Ian Pereira @IanJPereira Thanks #hcldr for tackling this topic! |
 | Larry Gioia 🔠 @LGin412 @RasuShrestha @Colin_Hung @JoeBabaian @DaveDiCello @hcldr @mikebiselli @jasonawolf @nickisnpdx @wareFLO @HealthData4All @drnic1 @ShereesePubHlth @2healthguru @jessdamassa @jameyedwards @HealthEugene Sooooo I think we just came up a new #TopOfMind2019 challenge for you, Rasu - incorporate ‘meatballs’ or a reference therein, to some part of one of your panels, intros, summaries over the next 72 hours. 😬 #hcldr #ABCD #pinksocks |
| Colin Hung @Colin_Hung @IanJPereira Thanks for being here Ian! #hcldr |
| Joe Babaian 🇺🇦 @JoeBabaian RT @RasuShrestha: So happy to have the amazing @Colin_Hung running #hcldr from #Pittsburgh tonight, as we get ready for #TopOfMind2019 Missing you here @JoeBabaian. Great blog piece: https://t.co/gPV9KHM6yu Photo credit: @DaveDiCello https://t.co/pIK1rAi7H9 |
 | Natasha✨ @Rawls_Natasha RT @mikebiselli: I’m back in #Pittsburgh for #TopOfMind2019! A TON of learning will be had and can’t wait to catch up w amazing friends! Got my #pinksocks pin (and socks!) and rhino (#RiNo) cufflinks ready to go! 🙌🏻 Lets do this! 🤘🏻 #healthtech #healthcare #innovation #hcldr #gsd #aim2innovate https://t.co/IKyggTvqCs |
| Enlightening Results 💡 @GraceCordovano @Colin_Hung @JoeBabaian Looking forward to it! #hcldr #HITMC #NYC |
| PF Anderson @pfanderson@disabled.social @pfanderson @SandraWoodsMtl @NathanGrunewald @drnic1 Yes! In my youth, a few times in middle age, older ... it feels different each time, but after the first time, once you accept that death is going to happen and be okay, that hurdle you never need to cross twice,. #hcldr |
| Colin Hung @Colin_Hung @LGin412 @RasuShrestha @JoeBabaian @DaveDiCello @hcldr @mikebiselli @jasonawolf @nickisnpdx @wareFLO @HealthData4All @drnic1 @ShereesePubHlth @2healthguru @jessdamassa @jameyedwards @HealthEugene Totally In! #hcldr #pinksocks #TopOfMind2019 |
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