#HITsm Transcript
Healthcare social media transcript of the #HITsm hashtag.
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| Profile | Tweet |
|---|---|
| Healthcare IT Today @hcittoday Let's take 5 min to introduce ourselves. Who are you? Where are you from? What do you do? And what food are you planning for your super bowl party? #HITsm @RareCandace | |
| Healthcare IT Today @hcittoday Welcome to this week's #HITsm chat hosted by @RareCandace on the topic of “Social Media, Patients, and Privacy” Details: https://t.co/qlbV7wqiGR https://t.co/MtZsw1JEhV | |
| Gail Zahtz @GailZahtz RT @hcittoday: Welcome to this week's #HITsm chat hosted by @RareCandace on the topic of “Social Media, Patients, and Privacy” Details: ht… | |
| John Lynn @techguy RT @hcittoday: Welcome to this week's #HITsm chat hosted by @RareCandace on the topic of “Social Media, Patients, and Privacy” Details: ht… | |
| Candace @RareCandace Hi everyone! I’m Candace- a rare disease patient, advocate, and lawyer. Tweeting from Super Bowl central- South Florida! I’ll be busy this weekend making pigs in a blanket, meatballs, and enjoying some pizza during the big game. #HITsm | |
| John Lynn @techguy Happy Friday! Looking forward to the chat. I run @EXPOdotHealth and @HITMarketingPR and write for @hcittoday Pizza and root beer are the essentials for my super bowl. Then, throw in some other sides that can vary. #HITsm https://t.co/WsRvtowg6p | |
| Seth Rotberg @Srotberg15 Hi everyone! Excited to be here, especially to support my colleague @RareCandace. I am the co-founder of @_OurOdyssey_ and Patient Engagement Manager at @teaminspire. Live in Boston and need to figure out what food to make for the Super Bowl. Any suggestions?! #HITsm | |
| Seth Rotberg @Srotberg15 RT @RareCandace: Hi everyone! I’m Candace- a rare disease patient, advocate, and lawyer. Tweeting from Super Bowl central- South Florida! I… | |
| Candace @RareCandace @techguy @EXPOdotHealth @HITMarketingPR @hcittoday Gotta have good beer to match with the pizza! #HITsm | |
| Healthcare Scene @HealthcareScene RT @techguy: Happy Friday! Looking forward to the chat. I run @EXPOdotHealth and @HITMarketingPR and write for @hcittoday Pizza and root… | |
| Candace @RareCandace @Srotberg15 @_OurOdyssey_ @teaminspire Hey Seth, thanks for joining in! You’re in Boston... so lobstah? 🤣 #HITsm | |
| Bennett Lauber @uuAbility Hello #HITSM peeps. Bennett Lauber from @UsabilityPeople Happy to be here | |
| ShereeseM, MS/MBA @ShereesePubHlth Hello all. I'm Shereese, HC Strategist from Maryland. #hitsm https://t.co/yW3bkYdQgN | |
| John Lynn @techguy @Srotberg15 @RareCandace @_OurOdyssey_ @teaminspire Welcome Seth! Glad you could join us. #hitsm | |
| Candace @RareCandace Welcome to chat! #HITsm | |
| Healthcare IT Today @hcittoday T1: What social media platforms are the best for patients and companies to connect on? Do privacy settings on certain apps make it more difficult to connect? @RareCandace #HITsm https://t.co/5TkeEsCwGF | |
| John Lynn @techguy @RareCandace @EXPOdotHealth @HITMarketingPR @hcittoday Root beer for me, but I love it. #hitsm | |
| Gail Zahtz @GailZahtz I don't know if I can join #HITsm I don't know who's playing in the superbowl and as proof of this lack of patriotism, have no food plans :-))) | |
| Candace @RareCandace @ShereesePubHlth Hi Shereese! Glad you could join us today. #HITsm | |
| Candace @RareCandace RT @hcittoday: T1: What social media platforms are the best for patients and companies to connect on? Do privacy settings on certain apps m… | |
| Julie Maas @JulieWMaas Hello #HITsm. I love super bowl food. Definitely a big guac day here in SD! Looking forward to today's chat with you. :) | |
| Savvy Co-op | #askpatients @savvy_coop Are you thinking TGIF? Is it because you’re in a job you don’t love? Wish you could make a bigger impact? Why not check out the opportunities @savvy_coop? 👀 https://t.co/ZPVu5ON4Fd #askpatients #Hiring #ptexp #hcldr #hitsm #uxdesign https://t.co/3Pc4TuB67e | |
| Candace @RareCandace T1: It depends on the interaction. I don’t find Facebook to be that great because of design. I think Twitter is best, with Instagram as a close second. Easiest way to connect is for a company to build a platform specifically for patients. #HITsm | |
| Seth Rotberg @Srotberg15 @RareCandace @_OurOdyssey_ @teaminspire Wrong season for lobstah but could get some cahfee at Dunkin 😂 #hitsm | |
| Bennett Lauber @uuAbility #HitSM Ready for the 49ers to win the big game? Who wants to bet a 6-pack? | |
| John Lynn @techguy @ShereesePubHlth Hey Rainbow Sunshine! How's my friend? #hitsm | |
| ShereeseM, MS/MBA @ShereesePubHlth I want tacos for #SuperBowl2020 but I'm not sure if it's going to happen. #hitsm https://t.co/wrrfCajU1U | |
| ShereeseM, MS/MBA @ShereesePubHlth @techguy I'm good, John. How was your week? #hitsm | |
| Seth Rotberg @Srotberg15 RT @RareCandace: T1: It depends on the interaction. I don’t find Facebook to be that great because of design. I think Twitter is best, with… | |
| Jen Horonjeff | #askpatients @jhoronjeff Check 👏🏽 it 👏🏽 out 👏🏽 🥳 👏🏽 | |
| Candace @RareCandace @GailZahtz Welcome Gail! #HITsm | |
| Bennett Lauber @uuAbility #HITsm Tacos! | |
| John Lynn @techguy @GailZahtz I'm pretty sure @amariedauwer doesn't know either, but I bet she knows the food plans. #HITsm #priorities | |
| Gail Zahtz @GailZahtz The different social media platforms are best for different people, thus for different patients. We shouldn't impart our biases in SM any more than other biases on patients. Instead, different communication for different choices. IMHO #HITsm | |
| Candace @RareCandace @JulieWMaas Hi Julie! I’m now rethinking my Sunday menu. Guac sounds really good 😁 #HITsm | |
| Gail Zahtz @GailZahtz @RareCandace 👋 #HITsm | |
| John Lynn @techguy @ShereesePubHlth Kind of crazy, but good. Making progress. Kind of suffering from #HIMSS20 #HIMSSanity this week, but hopefully the worst will be done by next week. #HITsm | |
| Candace @RareCandace RT @GailZahtz: The different social media platforms are best for different people, thus for different patients. We shouldn't impart our bia… | |
| Julie Maas @JulieWMaas My kids' pediatricians use Facebook and Twitter for a lot of real time updates like when flu shots become available, and other general health advice topics. It's great for quick updates that they find more cumbersome to do through their website #HITsm | |
| Gail Zahtz @GailZahtz @techguy @amariedauwer I am always cooking! Just not special for Superbowl. Right now I have homemade bread, chicken and potato leek soup in for dinner. #HITsm | |
| Candace @RareCandace @GailZahtz So true! I hate being forced to engage on a single platform. Some days I want variety. My use of Instagram is a great example. I will go months without posting, and then spend a few weeks being very active and connecting. #HITsm | |
| John Lynn @techguy This is such a hard one after the work that @fredtrotter @healthblawg and @BraveBosom have done with Facebook. However, I still think Facebook is the best for patient communities. Twitter can be ok as well. Privacy is a problem with Facebook. #HITsm https://t.co/ngmDAAXQdJ | |
| Bennett Lauber @uuAbility #HITsm T1 I’m frightened about social media companies having Personal medical information. Wondering if we need a HIPAA update to help protect us from other profiting from our med records. | |
| Boston Software Systems @Bossoft Platforms like @wegohealth are invaluable for connecting with other patients, however, I am also partial to @S4PM and specific Twitter chat groups. They provide a way IRL, for patients to connect with others. #hitsm | |
| Boston Software Systems @Bossoft RT @RareCandace: @GailZahtz So true! I hate being forced to engage on a single platform. Some days I want variety. My use of Instagram is a… | |
| John Lynn @techguy @GailZahtz @amariedauwer Are you just trying to get us all to come visit you in NYC? #HITsm | |
| Julie Maas @JulieWMaas "Do privacy settings on certain apps make it more difficult to connect?" That is certainly one of the elephants! #HITsm | |
| John Lynn @techguy @ShereesePubHlth No taco trucks nearby? #HITsm | |
| Candace @RareCandace This is great! My Gyno uses Facebook a lot too. Generally to send out reminders about appointments, flu shots, dieting, and making sure you’re getting your vitamins. I usually read her posts while I’m eating pizza 🤣 #HITsm | |
| Gail Zahtz @GailZahtz That said, I think twitter is best for #meded and instant communication, I've seen patients use FB a lot when they can't check in all the time for an update for everyone. I know some patients like video. It's where people are personally comfortable. #HITsm | |
| Candace @RareCandace RT @techguy: This is such a hard one after the work that @fredtrotter @healthblawg and @BraveBosom have done with Facebook. However, I sti… | |
| Candace @RareCandace RT @uuAbility: #HITsm T1 I’m frightened about social media companies having Personal medical information. Wondering if we need a HIPAA upd… | |
| Bennett Lauber @uuAbility @JulieWMaas #HITSM I Agree. that is great. Public health information, by defn is public! | |
| Gail Zahtz @GailZahtz @RareCandace I still struggle "getting" Instagram but have noticed some really creative uses. #HITsm | |
| Candace @RareCandace Yes, big shout out to @wegohealth for building an inclusive patient community platform. It’s fantastic! #HITsm | |
| John Lynn @techguy @RareCandace @JulieWMaas Fun story. Last night my almost 16 year old son said that guac was easy to make. I said, Ok, then make it if you want it. So, he did. Then, he tasted it and said it was awful. Good lesson learned. #humility #HITsm | |
| Jeremy Coleman @jeremycoleman T1: Co's need to go where their customers are. Educational messages deliver value and people will respond. The best apps are the ones that allow both a broad reach and a secure 1 on 1 communication option. #hitsm | |
| Julie Maas @JulieWMaas T1: Just to clarify--is the question about two-way communication between patients and providers over social media? #HITsm | |
| Candace @RareCandace RT @GailZahtz: That said, I think twitter is best for #meded and instant communication, I've seen patients use FB a lot when they can't che… | |
| Boston Software Systems @Bossoft My youngest has #NF1. I spent evenings connecting with FB users, 18 years ago, and actually benefited from their chat groups, connected IRL with several, and created a nonprofit tee shirt program, #micahstees that promoted awareness and information about this disorder. #hitsm | |
| Gail Zahtz @GailZahtz Always ;-) #HITsm #FoodOnTheReady | |
| John Lynn @techguy Good example of good usage. I see it in a number of other specialties that have elective procedures as well. #HITsm https://t.co/EAT1vWmrMV | |
| Candace @RareCandace @techguy @JulieWMaas Uh oh! If it makes him feel any better, it took me a few tries before I mastered guac. Now I’m lazy and buy it pre-made! #HITsm | |
| Candace @RareCandace RT @jeremycoleman: T1: Co's need to go where their customers are. Educational messages deliver value and people will respond. The best ap… | |
| Bennett Lauber @uuAbility @JulieWMaas #HITSM Also be aware of dark patterns used to fool people into opt-in to things that might not be in their best interest. | |
| John Lynn @techguy @uuAbility Is there anything we can do to stop them from having that information? This is why new regulations are needed. #HITsm | |
| Jeremy Coleman @jeremycoleman @techguy My hope is we will get to the day that these platforms offer pricing on them as well. #oneday #hitsm | |
| John Lynn @techguy @Bossoft @wegohealth @S4PM Great example. #HITsm | |
| ShereeseM, MS/MBA @ShereesePubHlth @techguy No. There's a great new taco place, but they're not open on Sunday. Go figure. We may make our own. #HITsm https://t.co/sDWzZ6z93F | |
| Boston Software Systems @Bossoft I would not have had the information, or the courage to pursue all of this while raising a toddler, without social media. #hitsm | |
| John Lynn @techguy @RareCandace @JulieWMaas He said something about losing his recipe. Either way. I laughed at how confident he was and then when it didn't work out. #HITsm | |
| Chinmay A. Singh @cagefreesingh @JulieWMaas In India almost all the doctors in solo practice use @whatsapp #HITsm. Actually the ones I know personally working at big chain hospitals also use the platform. | |
| Gail Zahtz @GailZahtz @RareCandace @wegohealth I was interested hearing @healthblawg on @teaminspire It gave me a new perspective on patient communities #HITsm | |
| Symsilico @symsilico A1: @Twitter can be a good platform for patients to use @bruce_y_lee covered for @Forbes on #PatientsAreNotFaking #HITsm #digitalhealth https://t.co/L3FMMJTkU4 | |
| John Lynn @techguy @jeremycoleman Interesting. So pricing transparency could be facilitated by social media? #HITsm | |
| Healthcare IT Today @hcittoday T2: When building relationships with patient communities, how can we start a conversation centered around the value of patient-generated data and what that data looks like? @RareCandace #HITsm https://t.co/UrBvRenczI | |
| Seth Rotberg @Srotberg15 Couldn’t agree more. Providing options for advocates to connect to one another is important. #hitsm | |
| MedEdBot @MedEdBot RT @GailZahtz: That said, I think twitter is best for #meded and instant communication, I've seen patients use FB a lot when they can't che… | |
| John Lynn @techguy @ShereesePubHlth Let me know what time they're ready ;-) #HITsm | |
| Chinmay A. Singh @cagefreesingh @JulieWMaas @WhatsApp You regularly see them advertising their WhatsApp number in advertisements and signage outside the office. #HITsm | |
| Boston Software Systems @Bossoft Chinmay, This is very interesting! How awesome to hear! #hitsm | |
| Candace @RareCandace I keep hearing amazing stories like this. When I was diagnosed with my rare disease, I turned to Facebook too. I was in the hospital and terrified. The connections I made were priceless. #HITsm | |
| Candace @RareCandace RT @jeremycoleman: @techguy My hope is we will get to the day that these platforms offer pricing on them as well. #oneday #hitsm | |
| Bennett Lauber @uuAbility @techguy #HitSM Not yet. Only their moral character. | |
| ShereeseM, MS/MBA @ShereesePubHlth T1 Twitter seems to have very robust patient support groups. There' #patientchat #bcsm #lupuchat #GynCsm, #spsm and many more. #HITsm | |
| John Lynn @techguy Do you think it makes them more difficult to connect with people? Or do the settings make you afraid to share...which makes it more difficult to connect with people? #HITsm https://t.co/GS8T6Epu8y | |
| Jeremy Coleman @jeremycoleman @techguy No doubt. I have already seen ped's and family prac offices advertising pricing for sports physicals in the summer. #hitsm | |
| Julie Maas @JulieWMaas @techguy @RareCandace Here's a good starter recipe: have him just stir the cubes of avocado with a spoon or two of salsa then salt and pepper to taste! #HITsm | |
| John Lynn @techguy @uuAbility At least Epic is trying to protect us. You know. Like Practice Fusion was doing too. #TooSoon? #HITsm | |
| Candace @RareCandace I’ve noticed a lot of patients are using @WhatsApp now to communicate. I’m wondering how long it will take before it becomes a trend in the US #HITsm | |
| Candace @RareCandace RT @symsilico: A1: @Twitter can be a good platform for patients to use @bruce_y_lee covered for @Forbes on #PatientsAreNotFaking #HITsm #… | |
| ShereeseM, MS/MBA @ShereesePubHlth T2 Proceed with caution. Ensure you bring data that supports PGD to the conversation & share don't sell your ideas. #HITsm | |
| Ashley Dauwer @amariedauwer @techguy @GailZahtz Hit the nail on the head as always @techguy 🙂🍝 Sad to be missing you all at #HITsm today! But it always feels better knowing how soon I’ll be seeing you all IRL – 37 days!! (Insert happy dance here) | |
| Bennett Lauber @uuAbility #HitSM - Now I am hungry for tacos. Heading out to BaJaFresh after this chat | |
| Candace @RareCandace RT @Srotberg15: Couldn’t agree more. Providing options for advocates to connect to one another is important. #hitsm | |
| Boston Software Systems @Bossoft @RareCandace We actually met another family, at the time, with a grandmother who was raising her grandson, invited them to Nashville, spent 4 fabulous days together, and learned so much! connecting via sm took much of the "fear" and "unknown" aspect away! He's now 23....lol. #hitsm | |
| Gail Zahtz @GailZahtz On different social media for patients, I also notice that I think of a lot of "influencers" based on my own circle and format (primarily twitter). But I saw someone I know from highschool do incredible work on cancer with her facebook following. #HITsm | |
| Jeremy Coleman @jeremycoleman T2: The best option, imo, are patient testimonials. PT's should talk about how they use pedometers. Diabetes patients talk about how blood sugar journals lead to better outcomes. People need real examples. #hitsm | |
| John Lynn @techguy @amariedauwer @GailZahtz 37 days until the real life happy dance! #HITsm #HIMSS20 | |
| Candace @RareCandace RT @jeremycoleman: T2: The best option, imo, are patient testimonials. PT's should talk about how they use pedometers. Diabetes patients… | |
| Chinmay A. Singh @cagefreesingh @RareCandace @WhatsApp In the US, WhatsApp is not allowing healthcare businesses to use the platform due to HIPAA. #HITsm | |
| Julie Maas @JulieWMaas @techguy I'm still not getting the "privacy settings" reference...can we be a little more specific like: "you can't find the UI for Direct in the patient portal and the provider can't find it in the EHR"? Or something else? #HITsm | |
| Boston Software Systems @Bossoft RT @hcittoday: T2: When building relationships with patient communities, how can we start a conversation centered around the value of patie… | |
| John Lynn @techguy @GailZahtz Interesting. I haven't seen many doing video. Is it on YouTube or something else? #HITsm | |
| Seth Rotberg @Srotberg15 T2: It starts with building trust within the relationship and not having one off conversations. Then trying to figure out the needs of the community and how to best support them. #hitsm | |
| Gail Zahtz @GailZahtz @cagefreesingh @RareCandace @WhatsApp Really? I did not know this. But healthcare uses text. I thought WhatsApp was more secure than regular text? #HITsm | |
| Candace @RareCandace @jeremycoleman I agree. I enjoy seeing patients like myself describing a product that they're using to battle my same condition. It makes it "real" to me. #HITsm | |
| Candace @RareCandace T2: Transparency is key. Patients want to know what you’re looking for and why. Being upfront about endpoints can help patients work with you to develop strategies to meet your goals. Engagement and participation are critical, so you need to have a dialogue! #HITsm | |
| John Lynn @techguy @JulieWMaas Not sure what @RareCandace intended, but I think all angles are open for discussion. #HITsm | |
| Bennett Lauber @uuAbility @GailZahtz #HitSM We need a “facebook behind a firewall” to enable secure, HIPAA compliant communication between Dr and Patient, Dr and Dr, and Patient and Patient | |
| Boston Software Systems @Bossoft @hcittoday @RareCandace The value of #patient-generated data, whether thru portals, messaging, HIE, apps or #telehealth, is in connecting that data to the #EHR. We've doing a lot of that recently, with good results, thru automation. Making the gathering, organizing & presenting process easier. #hitsm | |
| Candace @RareCandace @cagefreesingh @WhatsApp Perhaps the demand will push them to become compliant. I enjoy using the app over text. #HITsm | |
| Jeremy Coleman @jeremycoleman @RareCandace That's the most powerful part of social media is the ability to build a community. Care providers need to be comfortable with that community being built around them without them being in the gatekeeper. #hitsm | |
| John Lynn @techguy We could learn a lot about messaging interaction from Whatsapp and Wechat in other countries. #HITsm https://t.co/SF8EubV5Bq | |
| Ashley Dauwer @amariedauwer @techguy @GailZahtz We're remaking this GIF exactly 37 days from today. Please and thank you. #HIMSS20 #HITsm https://t.co/Q3EUzuVhzM | |
| Chinmay A. Singh @cagefreesingh @techguy @fredtrotter @healthblawg @BraveBosom A tangential topic. One of the key area where social media can be effective is #vaccination. @ZDoggMD #HITsm. But it is being used very effectively by anti-vexers. | |
| Boston Software Systems @Bossoft RT @cagefreesingh: @techguy @fredtrotter @healthblawg @BraveBosom A tangential topic. One of the key area where social media can be effecti… | |
| Candace @RareCandace Yes, all angles. For patients, we generally create private Facebook groups that cannot be accessed outside being a member. Then you have issues with apps and webpages sharing data. It’s open to all discussion 😊 #HITsm | |
| Gail Zahtz @GailZahtz @techguy There's definitely on YouTube. I also think that video can be powerful for engaging people about the reality of living with different conditions. I'm looking at doing video for a current project on senior loneliness. Personally, it's not for me though. #HITsm | |
| Julie Maas @JulieWMaas @techguy @RareCandace Thank you! :) #HITsm | |
| John Lynn @techguy This a tough one. Unfortunately, I think that most individual data isn't that valuable from a $$ perspective. The aggregate data is valuable and the individual data is valuable to the individual. #HITsm https://t.co/LBcD4IMjiW | |
| Candace @RareCandace Yes!!! #HITsm | |
| Jared Jeffery @Jk_Jeffery So #BestinKLAS has published! Winners & scores are publicly available: https://t.co/lKFrVUEc48 Represents a pretty colossal effort from some of the greatest folks I know. Many of whom sacrificed holiday time to make it happen. Give it a read! #CategoryLeaders #HITsm #HITmc https://t.co/pFGeVjI3za | |
| Chinmay A. Singh @cagefreesingh @RareCandace @WhatsApp What do you like with apps that you don't have with text. #MarketResearchQuestion. #HITsm | |
| KLAS @KLASresearch RT @Jk_Jeffery: So #BestinKLAS has published! Winners & scores are publicly available: https://t.co/lKFrVUEc48 Represents a pretty coloss… | |
| Jeremy Coleman @jeremycoleman Innovations in other countries typically have more direct application to rural American populations. We need to look there besides just trying to emulate urban innovations in the US. #hitsm | |
| Candace @RareCandace RT @GailZahtz: On different social media for patients, I also notice that I think of a lot of "influencers" based on my own circle and form… | |
| John Lynn @techguy @amariedauwer @GailZahtz I'm Jerry and you're Elaine. Who are we going to get as Kramer and George? #HITsm | |
| Bennett Lauber @uuAbility @Bossoft @hcittoday @RareCandace #HITsm This is related to one of the #JourneyMaps we created at this weeks #EHRA #Usability summit. They’ll be published soon! | |
| Candace @RareCandace RT @cagefreesingh: @RareCandace @WhatsApp What do you like with apps that you don't have with text. #MarketResearchQuestion. #HITsm | |
| John Lynn @techguy @cagefreesingh @fredtrotter @healthblawg @BraveBosom @ZDoggMD That's actually the topic for next week's #HITsm chat. And you're right. | |
| ShereeseM, MS/MBA @ShereesePubHlth RT @Jk_Jeffery: So #BestinKLAS has published! Winners & scores are publicly available: https://t.co/lKFrVUEc48 Represents a pretty coloss… | |
| Candace @RareCandace @cagefreesingh @WhatsApp Sometimes my text messages don’t come through if I have bad cell service. But I’m normally near wifi so I pick up my messages a lot quicker. I can also send video and media a lot easier and it doesn’t throttle my data. #HITsm | |
| Boston Software Systems @Bossoft Awesome, Bennett. Love looking at #JourneyMaps. Look forward to seeing it- Linda #hitsm | |
| John Lynn @techguy @GailZahtz Come on. I think we'd all watch the Gail YouTube channel. #HITsm | |
| Chinmay A. Singh @cagefreesingh @techguy @fredtrotter @healthblawg @BraveBosom @ZDoggMD Oh I time travelled today. #HITsm | |
| Gail Zahtz @GailZahtz @uuAbility I played around with that years ago. We were doing Life Guide institute. It had communities of practice by diagnosis led by patient advocates and/or hcps in the field. We ran into this same issue of privacy and security. I never ended up launching it live. #HITsm | |
| Healthcare IT Today @hcittoday T3: What are some examples of great engagements between patients and companies looking to use their data? @RareCandace #HITsm https://t.co/ufX3BIysQV | |
| John Lynn @techguy RT @RareCandace: I keep hearing amazing stories like this. When I was diagnosed with my rare disease, I turned to Facebook too. I was in th… | |
| Julie Maas @JulieWMaas @techguy Those are both good points. Clearly there is also a lot of room for electronic communication and new PGD to be shared and analyzed as part of the learning health system we are building and increased emphasis on value based care. #HITsm | |
| Candace @RareCandace RT @techguy: We could learn a lot about messaging interaction from Whatsapp and Wechat in other countries. #HITsm https://t.co/SF8EubV5Bq | |
| Jared Jeffery @Jk_Jeffery RT @hcittoday: T3: What are some examples of great engagements between patients and companies looking to use their data? @RareCandace #HITs… | |
| Chinmay A. Singh @cagefreesingh @jeremycoleman Without WhatsApp, I think Indian healthcare delivery would crumble. #HITsm. For the US, I think iMessage is the perfect platform. But a fellow #BlueDevil, @tim_cook has not responded to my multiple requests on this. | |
| Candace @RareCandace RT @JulieWMaas: @techguy Those are both good points. Clearly there is also a lot of room for electronic communication and new PGD to be sha… | |
| Candace @RareCandace RT @cagefreesingh: @jeremycoleman Without WhatsApp, I think Indian healthcare delivery would crumble. #HITsm. For the US, I think iMessage… | |
| Julie Maas @JulieWMaas @BFMack You are sarcastic but it really is happening more and more #HITsm | |
| Gail Zahtz @GailZahtz @techguy Ha. So story- don't I always have a story?- I used to do network news for ABC etc. So when video came out (remember G+ groups with video too?) I couldn't adjust to the no camera crew, lighting, etc. Now it's its own mechanism- youtube vlogs. #HITsm | |
| Bennett Lauber @uuAbility @GailZahtz Bummer. Maybe it’s time to try again? I’d be VERY interested. Would love to apply theories of distributed cognition to a HIPAA conformant medical social media platform. #HITsm | |
| Chinmay A. Singh @cagefreesingh @RareCandace @WhatsApp The cell carriers may be blocking. #HITsm. | |
| Candace @RareCandace T3: I enjoy working with companies like @rarepatientvoic and @wegohealth. They are transparent, they compensate patients for their time, and the objectives of the interactions centered around data are clearly defined. #HITsm | |
| John Lynn @techguy @cagefreesingh @RareCandace @WhatsApp That isn't totally true. I think the same rule would apply as email and text. If the patient sends you a message over WhatsApp, then that would be them giving you consent to communicate over it. #HITsm | |
| Gail Zahtz @GailZahtz T3: Not to be lynched here, but I think that some pharma who do it with transparency can make a lot of headway for patients and healthcare using social media. I haven't done it, but I think it can/is being done. #HITsm | |
| Candace @RareCandace T3: Sometimes “Data” is simply gathering an understanding of the patient odyssey. Especially for rare diseases that have little research and natural history. #HITsm | |
| Jared Jeffery @Jk_Jeffery @RareCandace @rarepatientvoic @wegohealth Compensating patients for their time = actually serious about the value of patient data, and who's data it really is! Impressive. #HITsm | |
| John Lynn @techguy @GailZahtz That's my issue too. I hate when my hair isn't just perfect and the lighting just right to provide me that perfect glow. #HITsm | |
| Candace @RareCandace RT @techguy: @cagefreesingh @RareCandace @WhatsApp That isn't totally true. I think the same rule would apply as email and text. If the p… | |
| Chinmay A. Singh @cagefreesingh @techguy @RareCandace @WhatsApp Agree. But WhatsApp attorneys are probably not convinced or think it may expose company to huge liability. #HITsm. | |
| Seth Rotberg @Srotberg15 RT @RareCandace: T3: Sometimes “Data” is simply gathering an understanding of the patient odyssey. Especially for rare diseases that have l… | |
| Gail Zahtz @GailZahtz @uuAbility I was literally just going over some of the work- popped up in my google files. It was really solid, and a key was that we had tremendous patients, healthcare providers and stakeholders involved. I'd def be interested in renewing it, for sure. #HITsm | |
| John Lynn @techguy Transparency is the key. When they're hiding something, there's often a reason. #HITsm https://t.co/PtLFNnpuqB | |
| Boston Software Systems @Bossoft RT @Jk_Jeffery: @RareCandace @rarepatientvoic @wegohealth Compensating patients for their time = actually serious about the value of patien… | |
| Candace @RareCandace We may need to carve out the law to allow patients to consent to speaking with HCPs via these apps. I think providers are always afraid of violating the law, and it impedes conversations. #HITsm | |
| Gail Zahtz @GailZahtz @techguy I know. I have to get you some product lol. #HITsm | |
| Candace @RareCandace RT @GailZahtz: T3: Not to be lynched here, but I think that some pharma who do it with transparency can make a lot of headway for patients… | |
| Jared Jeffery @Jk_Jeffery @GailZahtz T3: I think Intermountain just spun up their own pharma group in part to better serve patients. #HITsm | |
| Jeremy Coleman @jeremycoleman @cagefreesingh @tim_cook I would prefer an app that is hardware agnostic. Just me. Healthcare as enough hoops to jump through. #hitsm | |
| John Lynn @techguy @cagefreesingh @RareCandace @WhatsApp Do WhatsApp attorneys really have a choice? #HITsm | |
| Candace @RareCandace @techguy Absolutely! And the skeptical lawyer in me is always on the look out for those folks. They exist and unfortunately everyone else has to pay for their misdeeds. #HITsm | |
| Chinmay A. Singh @cagefreesingh @techguy We are finding a lot of useful ways to help clinical team with patient-generated data. Hopefully we will do a press release in future. #HITsm | |
| Bennett Lauber @uuAbility #HITsm What happens most often these days is an email or a text that has a link to a secure #patientPortal. Unfortunately the #usability of most portals is less than optimal (Trying to be nice!) and the patient give up, and just calls on the phone | |
| Jared Jeffery @Jk_Jeffery @techguy It only sounds conspiratorial if it's not true, *cough cough* Practice Fusion *cough* #HITsm | |
| Candace @RareCandace RT @uuAbility: #HITsm What happens most often these days is an email or a text that has a link to a secure #patientPortal. Unfortunately t… | |
| ShereeseM, MS/MBA @ShereesePubHlth RT @cagefreesingh: @techguy We are finding a lot of useful ways to help clinical team with patient-generated data. Hopefully we will do a p… | |
| Gail Zahtz @GailZahtz The new #telehealth rules actually addressed this issue. Originally CMS was saying that patients had to consent every time there was an interaction. The rules that went into affect 2020 call for consent once a year. #HITsm | |
| John Lynn @techguy I think the law is pretty clear that it's ok if the patient consents. Similar to this: https://t.co/QiTAafRjvA #HITsm | |
| Boston Software Systems @Bossoft @GailZahtz I'm actually in a pharma thought group for patients and caregivers of COPD. The company uses the group to assess patient facing materials, and assess pt's ability to participate in certain aspects of a trial, meds, etc. Great group. #hitsm | |
| John Lynn @techguy @GailZahtz You're saying that I need some product? #devastated #HITsm | |
| Candace @RareCandace @uuAbility So true! I get so frustrated trying to send my doctor a message through the portal. I give up every time and call. #HITsm | |
| Matt Fisher @Matt_R_Fisher @techguy @cagefreesingh @RareCandace @WhatsApp Can't avoid responding. Patient can certainly initiate communication here. However, health care org must be wary of #HIPAA in responding/using. If PHI stored, need BAA. Could respond to push discussion to another venue. #HITsm | |
| Boston Software Systems @Bossoft @RareCandace @uuAbility It can be SO difficult! #hitsm | |
| John Lynn @techguy @Jk_Jeffery I still have the scars from this one. #HITsm | |
| Gail Zahtz @GailZahtz @Jk_Jeffery I'll be interested to look into it. I think that part of the moving forward solutions are going to have to be to include all the stakeholders and yet do so with transparency completely. I have changed on this issue in the past decade, I used to just be anti-pharma honestly #HITsm | |
| John Lynn @techguy @cagefreesingh @RareCandace @WhatsApp To several apps? #HITsm | |
| Gail Zahtz @GailZahtz @Bossoft Sounds very interesting! #HITsm | |
| Candace @RareCandace The fears I hear from HCPs are that the platforms they are using to communicate may not be secure. What if a patient contacts me over Facebook and my account gets hacked? A lot of variables. #HITsm | |
| Gail Zahtz @GailZahtz @techguy Just to feel your absolute best :-) #HITsm | |
| Candace @RareCandace RT @Matt_R_Fisher: @techguy @cagefreesingh @RareCandace @WhatsApp Can't avoid responding. Patient can certainly initiate communication here… | |
| John Lynn @techguy @Matt_R_Fisher @cagefreesingh @RareCandace @WhatsApp Didn't Severino say this was ok if the patient initiates it? That basically gives consent to continue using it. https://t.co/QiTAafRjvA #HITsm cc: @SemelConsulting @HealthPrivacy | |
| Gail Zahtz @GailZahtz @RareCandace I hear you. I think what would be good is for patients to really have choice on this. Personally, I choose the ability to learn information quickly and easily over my own security concerns. But I want to be given that choice right? #HITsm | |
| Bennett Lauber @uuAbility @RareCandace #HITsm Plus remember that the Dr prob has a huge number of items in their inbox, and take way too long (from patient perspective) to reply. (personal experience—took 2 weeks to get dosage change on a med) | |
| Chinmay A. Singh @cagefreesingh @techguy @RareCandace @WhatsApp Yes. Think big Pharma. #HITsm | |
| Candace @RareCandace @Matt_R_Fisher @techguy @cagefreesingh @WhatsApp Yes, a lot of times HCPs feel more comfortable moving the conversation to a more “secure” platform. Twitter and Facebook are not ideal. Many will ask the patient to call the office and speak with them directly. #HITsm | |
| John Lynn @techguy @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS Shouldn't this wait until the Monday after the Super Bowl? Not the Friday before ;-) #HITsm | |
| Julie Maas @JulieWMaas T3: I think we will see much more of this type of collaboration over time. Happen to be working with a co-lead from @Cerner in an industry collab of vendors working on a new interoperable secure messaging standard--so that one secure app's messaging can talk to another. #HITsm | |
| Matt Fisher @Matt_R_Fisher @techguy @cagefreesingh @RareCandace @WhatsApp @SemelConsulting @HealthPrivacy Texting can be ok, but I'm worried about continued use of a platform known to not be compliant. Also, while the Director can say what he wants, absent official reg, doesn't need to be respected. #HITsm | |
| Healthcare IT Today @hcittoday T4: The elephant in the room is privacy. How can patients and healthcare companies collaborate so that everyone is on the same page? @RareCandace #HITsm https://t.co/8Aw2jjtHah | |
| John Lynn @techguy I'd be remiss if I didn't mention the amazing work of @jhoronjeff and the @savvy_coop team. #HITsm https://t.co/HCFX6uF09K | |
| Candace @RareCandace Absolutely! I feel the same. But some patients may become concerned if a doctor loses their phone and it contains texts with PHI on it. Or an email gets hacked. So many possibilities that could result in privacy being violated. #HITsm | |
| Candace @RareCandace RT @Matt_R_Fisher: @techguy @cagefreesingh @RareCandace @WhatsApp @SemelConsulting @HealthPrivacy Texting can be ok, but I'm worried about… | |
| Boston Software Systems @Bossoft Absolutely true. Getting the information from the portal to the EHR, to the provider, is a process. Many times, delayed or nearly impossible bc of the interfaces...... #hitsm | |
| John Lynn @techguy @cagefreesingh @jeremycoleman @tim_cook iMessage would exclude 2/3 of the population that doesn't have an iPhone. #HITsm | |
| Our Odyssey @_OurOdyssey_ RT @Srotberg15: Hi everyone! Excited to be here, especially to support my colleague @RareCandace. I am the co-founder of @_OurOdyssey_ and… | |
| Jared Jeffery @Jk_Jeffery @GailZahtz To be fair, I think the OTHER reason Intermountain did it was to make money. But the early reports on their effort seem positive. #HITsm https://t.co/OCX1LnzA7S | |
| Candace @RareCandace RT @JulieWMaas: T3: I think we will see much more of this type of collaboration over time. Happen to be working with a co-lead from @Cerner… | |
| Gail Zahtz @GailZahtz @RareCandace Right, different patients may feel differently. That's why I think giving real choice is the only real answer. Do you patient x want the convenience of getting info on your phone or does it seem too risky to you? How do we do informed consent? #HITsm | |
| Jeremy Coleman @jeremycoleman RT @techguy: I'd be remiss if I didn't mention the amazing work of @jhoronjeff and the @savvy_coop team. #HITsm https://t.co/HCFX6uF09K | |
| John Lynn @techguy @GailZahtz Are you trying to say that Pharma could do good? #HITsm | |
| Jared Jeffery @Jk_Jeffery @techguy @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS TBH I just fired the above tweet off like an idiot not realizing that #HITsm was actually happening RIGHT NOW. Or I would've excluded that hashtag. #TwitterFail https://t.co/oPPvGAJc8s | |
| John Lynn @techguy @cagefreesingh @jeremycoleman @tim_cook @Apple Pride. Competition. #HITsm | |
| Gail Zahtz @GailZahtz @Jk_Jeffery It's a tricky reality- pharma and a good chunk of healthcare is about profit. So how do we combine the need for profit with the need to do great quality with ethics in healthcare? It's a big question not just for pharma. #HITsm | |
| John Lynn @techguy @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS I'll blame it on the baby brain. Plus, it's all good. The #HITsm crowd is a friendly one. | |
| Julie Maas @JulieWMaas T4: This is a huge question so to answer generally I think we will find ways to scale new PGD data sets and use cases for collaboration on them in parallel and alongside emerging data transfer modalities (both communication + exchange of PHI) other over the next few years #HITsm | |
| Candace @RareCandace @GailZahtz I think it may have to go as far as having a chart with options. Some patients won’t worry too much about a data breach, but these things happen. Perhaps each doctor has a secure communication portal and those who want to text, will. #HITsm | |
| Chinmay A. Singh @cagefreesingh @jeremycoleman @techguy @tim_cook Just imaging a world where people are not able to use Microfot @Office on @Apple devices. Half the founders will freakout. #HITsm. | |
| Jared Jeffery @Jk_Jeffery @GailZahtz I always start down the road of, "well Amazon has served customers amazingly well while being incredibly profitable, what lessons can we learn?" but then I look deeper and I'm not ALWAYS a fan of those lessons. #HITsm | |
| Gail Zahtz @GailZahtz @techguy Maybe I am. Maybe I'm still a crazy true believer despite a lifetime in healthcare? Anyone can do good and anyone can do really evil nasty stuff. I just am thinking lately that the resources alone could help a lot of people if directed well. #HITsm | |
| John Lynn @techguy Most patients get stuck at the login. #HITsm https://t.co/SQnK0UHS0Y | |
| Candace @RareCandace RT @JulieWMaas: T4: This is a huge question so to answer generally I think we will find ways to scale new PGD data sets and use cases for c… | |
| John Lynn @techguy I'm excited for this to become reality. #HITsm https://t.co/SPLR7UY5ut | |
| Chinmay A. Singh @cagefreesingh @techguy @jeremycoleman @tim_cook @Apple But the pride stays impact when iMessage rides Android. And it will crush the competition too. #HITsm. Microsoft did that with @Office. | |
| Gail Zahtz @GailZahtz @RareCandace A really clear maybe even signed sheet- the risks in a couple of lines instead of the standard 10 pages HIPAA that no-one reads? Ok, now I'm just talking crazy. The lawyers would never allow such simple transparency. #HITsm | |
| Jared Jeffery @Jk_Jeffery @techguy @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS I may or may not have stayed up way too late last night watching cute baby videos. So you're not wrong. And thank goodness for the #HITsm culture! | |
| Bennett Lauber @uuAbility @Jk_Jeffery @techguy @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS #Hitsm Don’t give in to the user error fallacy. Don’t blame yourself. Sometimes a poorly designed #UI can force an end user to make a mistake. In #HealthIT this could be deadly. Remember the Ebola issue? | |
| John Lynn @techguy @cagefreesingh @jeremycoleman @tim_cook @Apple @Office As an Android user, I can't see why I'd start using iMessage over the other messaging apps I already have. #HITsm | |
| Jeremy Coleman @jeremycoleman @cagefreesingh @techguy @tim_cook @Office @Apple This is way off topic, but Apple operating in a world of linux/java/cloud is so regressive I can't believe it. #hitsm | |
| Julie Maas @JulieWMaas T4: Another aspect of this privacy question is "how does my digital identity get matched for authentication/authorization to data and for data resolution purposes (finding my chart)", another nut to crack...some good work on that in ONC's FAST, Carequality, HL7 #HITsm | |
| Candace @RareCandace T4: If you’re developing an app or creating a trial, seek patient input early and often. Patients may be more willing to share intimate details of their lives if you establish trust and a good relationship. #HITsm | |
| Bennett Lauber @uuAbility LIKE! #hism | |
| John Lynn @techguy @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS I'm so excited for you. I can just picture you now up at 3 AM with the baby crying, your wife crying, you're crying and no one knows why anyone is crying. #ThoseWereTheDays #HITsm | |
| Chinmay A. Singh @cagefreesingh @techguy @jeremycoleman @tim_cook @Apple @Office When I send "congrats" to you on iMessage, you would love the confetti. And Bday message with balloons popping. #HITsm. | |
| Gail Zahtz @GailZahtz @Jk_Jeffery I was watching this show with @TedDanson on the afterlife. Spoiler alert: several seasons in it said that life has become so complicated w/ every decision possibly having bad impact (eg-child labor in China from your local store) We have to choose what's the relative costs #HITsm | |
| Candace @RareCandace I have to admit, we lawyers are part of the problem! Something may be “legal” but we will always tell you 100 ways it is not! 🤣 #HITsm | |
| John Lynn @techguy @cagefreesingh @jeremycoleman @tim_cook @Apple @Office TBH, it kind of annoys me when Facebook does this with "Congrats" #HITsm | |
| Jared Jeffery @Jk_Jeffery T4: I want to say it starts with getting patients into the conversation, but really it starts with helping patients UNDERSTAND the conversation. In a lot of ways, #HealthIT is its own language. New patients will need a translator & guide. #HITsm | |
| Julie Maas @JulieWMaas @techguy Thanks! You might have heard about the demo from @Colin_Hung who I was there #HITsm | |
| Candace @RareCandace @uuAbility @Jk_Jeffery @techguy @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS I have been guilty of thinking I couldn’t navigate a patient portal and thought maybe it was bad chemo brain fog. Turns out, it was the portal itself. But I spent a lot of time questioning my sanity! #HITsm | |
| Candace @RareCandace RT @JulieWMaas: T4: Another aspect of this privacy question is "how does my digital identity get matched for authentication/authorization t… | |
| John Lynn @techguy @RareCandace @uuAbility @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS Wow. That's crazy to consider. #HITsm | |
| Gail Zahtz @GailZahtz @RareCandace Ha. No offense. But you couldn't possibly allow for 2 lines because of the perceived risk of not explicitly stating what else could go wrong. But then law suits make it more difficult for patients to really understand a release. Sorry my messages are so complicated today! #HITsm | |
| Jared Jeffery @Jk_Jeffery @techguy @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS Me, making middle-of-the-night comfort food to deal with the tears: #HITsm https://t.co/KIIBPzmj45 | |
| Healthcare IT Today @hcittoday T5: What are your top three tips for companies looking to engage with patients and form a data sharing relationship? @RareCandace #HITsm https://t.co/FT4xNHZd7Q | |
| Jeremy Coleman @jeremycoleman T4: Patients need to ability to sacrifice whatever amount of privacy they want, short of public facebook posts, in order to hit their lowest common denominator of timely and effective communication. #hitsm | |
| Candace @RareCandace Yes! 👏🏻 Patients can contribute but they need to understand the language that #HealthIT partners are speaking. Especially us lawyers! #HITsm | |
| Bennett Lauber @uuAbility @RareCandace @Jk_Jeffery @techguy @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS #Hitsm The gears in my mind are spinning. Look for a new blog post on the “user error fallacy” - is it ok if I quote you? | |
| John Lynn @techguy I'm not sure we will really see collaboration. I think the best thing we can push for is transparency. I don't think privacy will exist, but transparency will at least help us understand the impact and hopefully avoid the worst situations. #HITsm https://t.co/FRjg0Y7bOy | |
| Jared Jeffery @Jk_Jeffery RT @RareCandace: Yes! 👏🏻 Patients can contribute but they need to understand the language that #HealthIT partners are speaking. Especially… | |
| ShereeseM, MS/MBA @ShereesePubHlth RT @techguy: I'm not sure we will really see collaboration. I think the best thing we can push for is transparency. I don't think privacy… | |
| Kathy Sucich @ksucich RT @Jk_Jeffery: So #BestinKLAS has published! Winners & scores are publicly available: https://t.co/lKFrVUEc48 Represents a pretty coloss… | |
| John Lynn @techguy @Jk_Jeffery @GailZahtz More so to save money than to make money. It does look promising. #HITsm | |
| Chinmay A. Singh @cagefreesingh Coming back to social media. Another place where it can be effective is engaging teens. #mentalillness #vaping etc to name a few. #HItsm | |
| Candace @RareCandace @GailZahtz Don’t worry, complicated is good. This is a complicated topic that mixes so many views and issues. #HITsm | |
| John Lynn @techguy RT @JulieWMaas: T4: This is a huge question so to answer generally I think we will find ways to scale new PGD data sets and use cases for c… | |
| Bennett Lauber @uuAbility @techguy @RareCandace @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS #Hitsm reminds me of a #userjourney and #personas that a lot of #telehealth seem to forget. The Patient is SICK | |
| Gail Zahtz @GailZahtz T5: Top 3 tips for companies looking to engage with patients and share data: 1. Transparency!!! 2. Transparency 3. Transparency. #HITsm | |
| Jeremy Coleman @jeremycoleman T5: 1. Meet the patient 2. where they are 3. with empathy. #hitsm | |
| Candace @RareCandace A little louder for the people in the back 😉 #HITsm | |
| Gail Zahtz @GailZahtz @RareCandace Thanks Candace! My own chemo brain seems pretty clear these days, but then I wasn't sure because my own messages were starting to blur lol #HITsm | |
| Candace @RareCandace RT @uuAbility: @techguy @RareCandace @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason… | |
| Candace @RareCandace RT @techguy: I'm not sure we will really see collaboration. I think the best thing we can push for is transparency. I don't think privacy… | |
| John Lynn @techguy @Jk_Jeffery @KLASresearch @otherAdamatKLAS @AdamGale1 @TAYLORatKLAS @mitchellized @RasuShrestha @Jason_Hess_KLAS The precious moments. They bring me such joy thinking about you experiencing them. #HITsm | |
| Gail Zahtz @GailZahtz @RareCandace Ha ha. I know, like I said, maybe I'm not so clear today #HITsm | |
| Chinmay A. Singh @cagefreesingh Engaging schools, students, and community physicians via social media to address these issues. #HITsm | |
| Candace @RareCandace Love this! #HITsm | |
| Bennett Lauber @uuAbility @hcittoday @RareCandace #HITsm I’m kinda biased in suggesting that they design the interaction with an understanding of the mental models and workflow of end users. #HumanCenteredDesign | |
| Jared Jeffery @Jk_Jeffery @techguy @GailZahtz Gramma always said a penny saved is a penny earned. But also what a crazy world we live in where spinning up a brand new generic RX company is cheaper than just working with Pharma? #HITsm | |
| Candace @RareCandace T5: This is a big one! A. Engage early and get to know us B. Let’s collaborate, don’t make this a one way conversation C. Compensate patients for their insights, treat them as you would any of your consultants! #HITsm | |
| Candace @RareCandace RT @uuAbility: @hcittoday @RareCandace #HITsm I’m kinda biased in suggesting that they design the interaction with an understanding of the… | |
| Gail Zahtz @GailZahtz @uuAbility @hcittoday @RareCandace Yey! #HumanCenteredDesign #evidence based design, usability, accessibility, design thinking, patient centered design. Crazy concept- smart design that just works for the most amount of people! #HITsm | |
| John Lynn @techguy One time I met the lawyer for a famous app at SXSW. He told me how his job as in house counsel wasn't to just say no, but to manage the risk of yes. #HITsm https://t.co/Du24Jj9Vcy | |
| Candace @RareCandace RT @techguy: One time I met the lawyer for a famous app at SXSW. He told me how his job as in house counsel wasn't to just say no, but to… | |
| Candace @RareCandace RT @GailZahtz: @uuAbility @hcittoday @RareCandace Yey! #HumanCenteredDesign #evidence based design, usability, accessibility, design thinki… | |
| Gail Zahtz @GailZahtz @Jk_Jeffery @techguy Things that make you go "hm" #HITsm Agreed. | |
| Andrea Downing @BraveBosom RT @techguy: This is such a hard one after the work that @fredtrotter @healthblawg and @BraveBosom have done with Facebook. However, I sti… | |
| Erin Moriarty Wade @EMoriartyWade RT @RareCandace: T5: This is a big one! A. Engage early and get to know us B. Let’s collaborate, don’t make this a one way conversation… | |
| The Usability People @UsabilityPeople This: | |
| Candace @RareCandace And on the topic of design, when I spoke at an RWE conference this week I reminded the room that you have to take patient convenience into account. Are you making me take extra steps to participate? Too many steps and I’m out! #HITsm | |
| Gregg Masters MPH @2healthguru RT @JeffersonJCPH: 📣Final day for your early bird discount registration for the 20th Anniversary Population Health Colloquium! @pophealthco… | |
| Candace @RareCandace RT @Jk_Jeffery: @techguy @GailZahtz Gramma always said a penny saved is a penny earned. But also what a crazy world we live in where spinn… | |
| Jeremy Coleman @jeremycoleman @techguy We now need all privacy/data governance people to use that as their motto as well. I embraced "saying no is too easy, figuring out how to get to yes is the goal" a while back. #hitsm | |
| Candace @RareCandace RT @jeremycoleman: @techguy We now need all privacy/data governance people to use that as their motto as well. I embraced "saying no is to… | |
| pophealthconference @pophealthconf RT @JeffersonJCPH: 📣Final day for your early bird discount registration for the 20th Anniversary Population Health Colloquium! @pophealthco… | |
| Bruce Y. Lee @bruce_y_lee Hello #HITsm interested in and cover health IT issues https://t.co/Caab1Ke7t0 | |
| Candace @RareCandace @bruce_y_lee Welcome! #HITsm | |
| Gail Zahtz @GailZahtz @RareCandace I can talk design All. Day. Long. Those of us in tech are often too quick to build a shiny new gadget and skip the part that many solutions work great, but when they have to interact with people the usability fails. Imagine a bit more time on the design with patients. #HItsm | |
| Julie Maas @JulieWMaas Top 3 tips for companies looking to engage with patients: 1) Ask up front what a vendor's patient readiness is, what effort is required of the patient to get connected--forms, apps or software to download and set up, etc. 2) Plan privacy/security diligently 3) Test, esp UX #HITsm | |
| Healthcare IT Today @hcittoday Bonus: Going forward, what kind of information are companies looking to collect from patients? And for patients, what kind of information would you like to share with healthcare companies? @RareCandace #HITsm https://t.co/KY7Bqi6Wcn | |
| Bennett Lauber @uuAbility @GailZahtz @RareCandace #HITsm There was an episode of “silicon valley” on HBO that made fun of this exact issue | |
| Candace @RareCandace It seems like patient interaction is heavily dependent on whether or not the system is set up to secure interactions. I can’t blame HCPs for being cautious. But we also need to make sure we aren’t keeping them from interacting with patients. #HITsm | |
| Candace @RareCandace RT @GailZahtz: @RareCandace I can talk design All. Day. Long. Those of us in tech are often too quick to build a shiny new gadget and skip… | |
| Candace @RareCandace RT @JulieWMaas: Top 3 tips for companies looking to engage with patients: 1) Ask up front what a vendor's patient readiness is, what effort… | |
| Gail Zahtz @GailZahtz For my broken record - companies/ healthcare are starting to and should continue to grow in collecting more #SDoH data from patients and then using that for solutions. #HITsm | |
| John Lynn @techguy Is there any data they don't want? Most companies want to collect as much data as possible since they don't know what data they could use in the future. #HITsm https://t.co/8CKSnyGHIS | |
| Julie Maas @JulieWMaas RT @jeremycoleman: T5: 1. Meet the patient 2. where they are 3. with empathy. #hitsm https://t.co/rlIGjog0lZ | |
| Candace @RareCandace I’d love to be able to provide more feedback for the apps and services I use to manage my rare disease. Sometimes the protocols in place are aggravating (to put it nicely). #HITsm | |
| Candace @RareCandace RT @GailZahtz: For my broken record - companies/ healthcare are starting to and should continue to grow in collecting more #SDoH data from… | |
| Aurora Kangaspuu @aurorakangaspuu RT @bruce_y_lee: Hello #HITsm interested in and cover health IT issues https://t.co/Caab1Ke7t0 | |
| Candace @RareCandace RT @techguy: Is there any data they don't want? Most companies want to collect as much data as possible since they don't know what data th… | |
| Gail Zahtz @GailZahtz @techguy Right. Sometimes it would be better if companies/ healthcare had a plan for the data before actually collecting it? I'm just full of crazy today ;-) #HITsm | |
| Jeremy Coleman @jeremycoleman Bonus: They better look for what they need for value based care. Patients need to give contemporaneous, thx politics for giving me this word, feedback on care plans. Caregivers need to be that google search replacement they claim to hate. #hitsm | |
| John Lynn @techguy @GailZahtz If by crazy you mean reasonable, then yes. #HITsm | |
| Candace @RareCandace @techguy I think this is what scares patients the most. When someone wants “everything” it becomes rather intimidating. #HITsm | |
| Candace @RareCandace RT @jeremycoleman: Bonus: They better look for what they need for value based care. Patients need to give contemporaneous, thx politics fo… | |
| Jeremy Coleman @jeremycoleman @techguy Preach!!!! Sounds like you work for an ML company. #hitsm | |
| Gail Zahtz @GailZahtz @jeremycoleman @JulieWMaas I notice some of the talk lately has quieted down about patient journey. But when we're talking about getting and sharing data, it really is about where on the patient journey someone is- then it's useful both ways. #HITsm | |
| Bennett Lauber @uuAbility @hcittoday @RareCandace #HITsm I think companies are data mining so they can make money. Would be great if instead we could use social media see trends in reported illnesses and react in a public health context. Eg. Use info to help stop the Corona virus | |
| John Lynn @techguy Thanks for sharing. #HITsm | |
| Bennett Lauber @uuAbility @jeremycoleman @JulieWMaas #HITsm #Empathy! | |
| John Lynn @techguy @jeremycoleman Just a few. #HITsm | |
| Candace @RareCandace This would be awesome! Social media is a great window into a variety of habits for patients (and those infected with a virus that is causing global concern). #HITsm | |
| Ashley Dauwer @amariedauwer @techguy @GailZahtz It's impossible to pick just 2! I say we kick off the #HITsm #pinksocks 📸 meetup this way... running down the stairs in pure joy & excitement. @GraceCordovano @lenisocial @sarahbennight @Colin_Hung @Jk_Jeffery @Brian_Eastwood @KisteinM @andrewintech @nickisnpdx 💖 #HIMSS20 | |
| Healthcare IT Today @hcittoday In case you missed today's #HITsm chat, you can find the full transcript of the chat here: https://t.co/m27aw7NfIx @RareCandace | |
| Healthcare IT Today @hcittoday Join us for next week's #HITsm chat on "Logic, Trust and Anti-Vax Communities" that will be hosted by Jennifer Michelle, MPH, EMT (@MMSJennifer) | |
| Candace @RareCandace RT @hcittoday: In case you missed today's #HITsm chat, you can find the full transcript of the chat here: https://t.co/m27aw7NfIx @RareCan… | |
| Gail Zahtz @GailZahtz Thanks as always for a great #HITsm @techguy and crowd. Really great job moderating today @RareCandace I'm surprised we haven't connected before, but really enjoyed all you had to say today. Have a great weekend! | |
| Healthcare IT Today @hcittoday Let's give a massive thank you to @RareCandace for hosting this week's #HITsm chat and to each of you who participated. https://t.co/UYBbSELC4Y | |
| HD Awareness @HDAwareness RT @RareCandace: Looking forward to chatting with everyone on #HITsm chat today at noon EST! https://t.co/68r74dKI7D | |
| Julie Maas @JulieWMaas So much data is potentially useful in health care, and in managing wellness which I see as high growth area. The challenge IMO is optimizing data for efficient storage & processing and that includes how a health system can parse it + any necessary security tagging #HITsm | |
| Candace @RareCandace Thanks everyone for a great chat! I’ll see some of you at #HIMSS20! #HITsm | |
| John Lynn @techguy @JulieWMaas And making sure the data is being used for good purposes. #HITsm | |
| Andrea Downing @BraveBosom RT @techguy: Thanks for sharing. #HITsm https://t.co/eTCZ85zatJ | |
| Linda Stotsky @EMRAnswers Happy Friday everyone! #HITsm | |
| Candace @RareCandace @GailZahtz @techguy Thank you so much for participating! Glad we connected 😊 #HITsm | |
| Julie Maas @JulieWMaas Thank you @RareCandace for hosting conversation today! I'm looking forward to better care in the future through better use of data! #HITsm | |
| Candace @RareCandace RT @JulieWMaas: Thank you @RareCandace for hosting conversation today! I'm looking forward to better care in the future through better use… | |
| Candace @RareCandace @JulieWMaas Thank you for your great insights! #HITsm | |
| Enlightening Results @GraceCordovano @amariedauwer @techguy @GailZahtz @lenisocial @sarahbennight @Colin_Hung @Jk_Jeffery @Brian_Eastwood @KisteinM @andrewintech @nickisnpdx ....let me know where you need me to fill in #HITsm #HIMSS20 https://t.co/tKZYGdjD9J | |
| Julie Maas @JulieWMaas RT @techguy: @JulieWMaas And making sure the data is being used for good purposes. #HITsm | |
| Healthcare Usability @HlthCrUsability #HITsm | |
| Candace @RareCandace And thank you @techguy for coordinating today’s chat. It was a lot of fun! #HITsm | |
| HD Awareness @HDAwareness RT @Srotberg15: Hi everyone! Excited to be here, especially to support my colleague @RareCandace. I am the co-founder of @_OurOdyssey_ and… | |
| Gail Zahtz @GailZahtz @EMRAnswers You too Linda! #HITsm | |
| Blessed Tabvirwa @blestab Checkout the latest @HITlikeaGirlpod, featuring Patient Advocate, @EnlighteningResults, talking about helping people to navigate the complex and confusing healthcare system, among other things she is busy with #UnblockHealth #HITsm #hcsm #DigitalHealth https://t.co/8yoXocrC1Q https://t.co/MrasXjnTZd | |
| HD Awareness @HDAwareness RT @RareCandace: Hi everyone! I’m Candace- a rare disease patient, advocate, and lawyer. Tweeting from Super Bowl central- South Florida! I… |
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