#HITsm Transcript
Healthcare social media transcript of the #HITsm hashtag.
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See #HITsm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Healthcare Scene @HealthcareScene Let's take 5 min to introduce ourselves. Who are you? Where are you from? What do you do? Are you more right brain or left brain? #HITsm (See the profile for @IrmaRaste for a description of right vs left) |
| Healthcare Scene @HealthcareScene Welcome to this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/y0vkBapdyn https://t.co/D5sZEmGDa2 |
 | Brian Mack @BFMack As an advocate and an Ally, I'm REALLY looking forward to hearing from leaders and colleagues in the ePatient space about how to be most effective in advancing the goal of a more patient-focused, compassionate, and inclusive health CARE system for us all! #HITSM |
 | IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @HealthcareScene: Welcome to this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/y0vkBapdyn https://t.co/D5sZEmGDa2 |
 | Inspire @InspireIsHealth RT @IrmaRaste: ⚡️What Does It Mean to Be an ePatient? Get your thoughts & ?s ready for #HITsm chat tomorrow. All are welcome: #patients #caregivers #physicians #nurses & others! #pinksocks #HCLDR #patients #healthcare #PatientExperience @evankirstel @eViRaHealth https://t.co/RRS6mkG6ou https://t.co/4n5zskT9wd |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Welcome to the #HITsm chat everyone! |
 | John Prince @thetechofficer RT @healthcarescene: Welcome to this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/GeQrFgrwyX https://t.co/wWxrgBXZaV #healthcare |
 | John Lynn @techguy RT @HealthcareScene: Welcome to this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/y0vkBapdyn https://t.co/D5sZEmGDa2 |
| John Lynn @techguy Hey everyone! Let's get this party started. Excited to have @irmaraste hosting. I'd say that I'm mostly a left brain, but I think my right brain skills have helped me be successful. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @HealthcareScene Welcome to the #HITsm chat everyone! https://t.co/v2XVHu8PEp |
 | Elena Ivanova @lenisocial @IrmaRaste @HealthcareScene @amariedauwer @GraceCordovano @techguy @Colin_Hung @JoeBabaian @glfceo @eViRaHealth @RasuShrestha Hi everyone. Elena here... joining from our @intersystems office in Cambridge today. It's 60 degrees out! Boston is warming up! Hmmmm.... I am left handed, and they say we're the only ones in our right minds. 🤣 #momjoke #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: Hey everyone! Let's get this party started. Excited to have @irmaraste hosting. I'd say that I'm mostly a left brain, but I think my right brain skills have helped me be successful. #HITsm |
 | 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @HealthcareScene: Let's take 5 min to introduce ourselves. Who are you? Where are you from? What do you do? Are you more right brain or left brain? #HITsm (See the profile for @IrmaRaste for a description of right vs left) |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: @HealthcareScene Welcome to the #HITsm chat everyone! https://t.co/v2XVHu8PEp |
| Brian Mack @BFMack Hey #HITSM Tribe! Fired up to back in the chat! I'm Brian, I do MarComm for @GLHC_HIE in Grand Rapids, MI. I am NO DOUBT more right brain than left, as ANYONE who has ever met me can certainly attest! LOL! https://t.co/fTfqL8lKt7 |
| Healthcare Scene @HealthcareScene RT @IrmaRaste: @HealthcareScene Welcome to the #HITsm chat everyone! https://t.co/v2XVHu8PEp |
 | EMR, EHR and HIT @ehrandhit That makes sense. #HITsm https://t.co/nMlLQMGxLV |
| Healthcare Scene @HealthcareScene T1: What does being an ePatient means to YOU? Please speak from your perspective as a patient, family/loved one, caregiver, nurse, physician or wherever else you are on the continuum of care. @IrmaRaste #HITsm https://t.co/RKwuASDp3Z |
 | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Chuck! Workflow, 3D Printing, and Virtual Reality! (Girls and boys, how many subset combinations are there? ... include the empty and complete sets...) Here for #hitsm. Me? I'm forebrain (any neuro folk know what I mean?) |
| John Lynn @techguy @lenisocial @IrmaRaste @HealthcareScene @amariedauwer @GraceCordovano @Colin_Hung @JoeBabaian @glfceo @eViRaHealth @RasuShrestha @InterSystems Let's hope it warms up just right for #HITMC in April. Thanks for joining. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @thetechofficer: RT @healthcarescene: RT @healthcarescene: Welcome to this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/GeQrFgrwyX https://t.co/wWxrgBXZaV #healthcare |
| Elena Ivanova @lenisocial @BFMack @GLHC_HIE Hi Brian 👋 #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @IrmaRaste: Welcome to the #HITsm chat everyone! |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BFMack: As an advocate and an Ally, I'm REALLY looking forward to hearing from leaders and colleagues in the ePatient space about how to be most effective in advancing the goal of a more patient-focused, compassionate, and inclusive health CARE system for us all! #HITSM |
 | HealthSparq @HealthSparq RT @HealthcareScene: T1: T1: What does being an ePatient means to YOU? Please speak from your perspective as a patient, family/loved one, caregiver, nurse, physician or wherever else you are on the continuum of care. @IrmaRaste #HITsm https://t.co/RKwuASDp3Z |
| Inspire @InspireIsHealth Hello to the #HITsm community, John Novack, communications director at Inspire, checking in. Am left-handed and probably more right-brained. |
| John Lynn @techguy Nothing wrong with that. #HITsm https://t.co/MjA2vaH1XJ |
| Elena Ivanova @lenisocial @wareFLO Hi Chuck! I'll have to google that one 😀 #hitsm |
 | Marie Ennis-O'Connor @JBBC @techguy @lenisocial @IrmaRaste @HealthcareScene @amariedauwer @GraceCordovano @Colin_Hung @JoeBabaian @glfceo @eViRaHealth @RasuShrestha @InterSystems Did someone say #ePatient?? Marie joining in from across the pond in #Ireland #hitsm |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @HealthSparq: Excited to announce that our first #WTFix event of 2019 will be something totally different...a #WTFIX-A-THON (aka: Excited to announce that our first #WTFix event of 2019 will be something totally different...a #WTFIX-A-THON (aka: a #hackathon to help #healthcare)! Learn more about what we'll be up to on April 4-5 at: https://t.co/t8WHy0CImD #patientchat #wegohealthchat #hitsm https://t.co/Xty8zafTjk |
| HealthSparq @HealthSparq @wareFLO Hi Chuck! Great to "see" you! #hitsm https://t.co/PfGVIQEczn |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BFMack: Hey #HITSM Tribe! Fired up to back in the chat! I'm Brian, I do MarComm for @GLHC_HIE in Grand Rapids, MI. I am NO DOUBT more right brain than left, as ANYONE who has ever met me can certainly attest! LOL! https://t.co/fTfqL8lKt7 |
| Marie Ennis-O'Connor @JBBC @teaminspire hello there you ☺️#HITsm |
 | We Are Substance @SubstanceNYC RT @IrmaRaste: @HealthcareScene Welcome to the #HITsm chat everyone! https://t.co/v2XVHu8PEp |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO {},{WF},{3DP},{ VR},{WF,3DP},{WF, VR},{3DP, VR},{WF,3DP, VR} #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ehrandhit: That makes sense. #HITsm https://t.co/nMlLQMGxLV |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @HealthSparq U2! #hitsm |
| Elena Ivanova @lenisocial @IrmaRaste @HealthcareScene @amariedauwer @GraceCordovano @techguy @Colin_Hung @JoeBabaian @glfceo @eViRaHealth @RasuShrestha @InterSystems Hi Irma, thanks for hosting! (also, saw your email, haven't forgotten about you!) #hitsm |
| John Lynn @techguy There's been an interesting evolution of this word over time. I remember the original use I saw being that they were a patient who used electronic options in their care. Often this meant aggregating their health data electronically. It seems to now be an active patient. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: Nothing wrong with that. #HITsm https://t.co/MjA2vaH1XJ |
 | Dave deBronkart @ePatientDave Sorry I'm late! #hitsm |
| John Lynn @techguy @JBBC @lenisocial @IrmaRaste @HealthcareScene @amariedauwer @GraceCordovano @Colin_Hung @JoeBabaian @glfceo @eViRaHealth @RasuShrestha @InterSystems Glad you could join us Marie. Can't wait to hear your insights on #epatients and more. #HITsm |
| HealthSparq @HealthSparq Hey there #hitsm, @annerskg here for HealthSparq! Excited to join the chat on such a great topic and with such great Friday morning crew. |
| Brian Mack @BFMack T1: (1 of 2) I am fortunate to have enjoyed relatively good health personally. Most of my experience as an "ePatient" has been as an advocate, paricularly for seniors and those suffering from Alzheimer's Disease. #HITSM #EndALZ |
| John Prince @thetechofficer Hello! Glad to join #HITsm again. I'm John, The Tech Officer based in New York City, & I'm here with our Director of Partnerships, @Lisa03755. Happy Friday, Everyone! |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @HealthcareScene: Welcome to this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/y0vkBapdyn https://t.co/D5sZEmGDa2 |
| Marie Ennis-O'Connor @JBBC @ePatientDave couldn't start a conversation on #epatients without you ☺️#HITSm |
| John Lynn @techguy Do you consider yourself a patient? #HITsm https://t.co/W7Hw5ehd28 |
 | Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell Hi everyone! I work in nonprofit disease advocacy orgs, digital health communications, and am a founder of an online community . Member and volunteer for @s4PM. ePatient to me means empowered, engaged, informed. #HITsm |
| John Lynn @techguy @HealthSparq @annerskg Glad you could join us. It's been too long since we've chatted. #HITsm |
| Elena Ivanova @lenisocial @HealthcareScene @IrmaRaste I like to think of ePatient as "engaged patient"... engaged in his/her own care, in the family/loved one/s care... and last but certainly not least - engaged digitally/electronically #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: There's been an interesting evolution of this word over time. I remember the original use I saw being that they were a patient who used electronic options in their care. Often this meant aggregating their health data electronically. It seems to now be an active patient. #HITsm |
| John Lynn @techguy Let's just say you're earlier than most doctors to their appointments :-) Glad you could join. #HITsm https://t.co/eCl1iywRbP |
| Inspire @InspireIsHealth RT @HealthcareScene: T1: T1: What does being an ePatient means to YOU? Please speak from your perspective as a patient, family/loved one, caregiver, nurse, physician or wherever else you are on the continuum of care. @IrmaRaste #HITsm https://t.co/RKwuASDp3Z |
| HealthSparq @HealthSparq T1. A patient that is actively engaged in their care & with their providers by taking advantage of as many digital/electronic options as possible (connecting to their providers, managing records, sharing data). Also think of the term as synonymous with @ePatientDave! #hitsm |
| Brian Mack @BFMack T1: (2 of 2) In over 14 of involvement with the Alzheimer's Association, there is no doubt in my mind that eComm has played a critical role in elevating the urgency of this epidemic, and driving attention of the public & policy makers. #HITSM |
| Dave deBronkart @ePatientDave @techguy Yes - friends of Doc Tom (who coined the word) say he used it just to mean "e-patient is to patient as e-mail is to mail" - the electronic one. e.g. @DocJohnG @DrDannySands @PeoplesPharmacy #HITSM In my speeches starting 2009 I highlighted the "empowered / engaged" etc |
| Marie Ennis-O'Connor @JBBC A1 my personal understanding is that I feel connected to a network of smart patients across the globe. I don't feel I'm as if I'm the lone voice I first was when I was diagnosed with breast cancer over a decade ago #HITsm |
| John Lynn @techguy @LyndaGMitchell @S4PM Glad you could join us and can't wait to hear your perspectives. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello all. I'm Shereese. I'm a strategist, futurist, and believe in the value of "e". I'm coming to you from the Eastern Shore of Maryland where the winds are crazy today, but the weather is optimal. #HITsm https://t.co/DbQDgvT8wC |
| John Lynn @techguy Nice. I like this description. #HITsm |
| HealthSparq @HealthSparq @lenisocial @HealthcareScene @IrmaRaste 👏 #hitsm |
| HealthSparq @HealthSparq RT @lenisocial: @HealthcareScene @IrmaRaste I like to think of ePatient as "engaged patient"... engaged in his/her own care, in the family/loved one/s care... and last but certainly not least - engaged digitally/electronically #hitsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @BFMack: T1: T1: (2 of 2) In over 14 of involvement with the Alzheimer's Association, there is no doubt in my mind that eComm has played a critical role in elevating the urgency of this epidemic, and driving attention of the public & policy makers. #HITSM |
| Elena Ivanova @lenisocial RT @ePatientDave: @techguy Yes - friends of Doc Tom (who coined the word) say he used it just to mean "e-patient is to patient as e-mail is to mail" - the electronic one. e.g. @DocJohnG @DrDannySands @PeoplesPharmacy #HITSM In my speeches starting 2009 I highlighted the "empowered / engaged" etc |
| John Lynn @techguy @ePatientDave @DocJohnG @DrDannySands @PeoplesPharmacy I like the change. Although, I think a patient that emailed back with Doc Tom would have been quite engaged and empowered in their care too. #HITsm |
| HealthSparq @HealthSparq @techguy @annerskg It has! Great to be here! #HITsm |
| Dave deBronkart @ePatientDave @HealthSparq LOL glad you think I'm synonymous, but I'm just the loudest one. Many e-patients have far greater skills than I. Doc Tom cited @SharonFTerry's work back in the 1990s! #HITSM |
| Brian Mack @BFMack @JBBC @techguy @lenisocial @IrmaRaste @HealthcareScene @amariedauwer @GraceCordovano @Colin_Hung @JoeBabaian @glfceo @eViRaHealth @RasuShrestha @InterSystems Hi Marie!!! #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @LeaChatham A1: Lea, what response do you get when you push back? #HITsm |
| Elena Ivanova @lenisocial @techguy Thanks! #hitsm https://t.co/lgcxUtNsM4 |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @JBBC: @ePatientDave couldn't start a conversation on #epatients without you ☺️#HITSm |
| Brian Mack @BFMack @ShereesePubHlth Hey Shereese! #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @techguy A1: Aren't we all #patients in one way or another, at one time or another? #HITsm |
| Marie Ennis-O'Connor @JBBC @BFMack Hi Brian #hitsm https://t.co/84xezBsIUx |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste A1: Aren't we all #patients in one way or another, at one time or another? #HITsm |
| Elena Ivanova @lenisocial @ShereesePubHlth Hey Shereese! #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LyndaGMitchell: Hi everyone! I work in nonprofit disease advocacy orgs, digital health communications, and am a founder of an online community . Member and volunteer for @s4PM. ePatient to me means empowered, engaged, informed. #HITsm |
 | Anthony Leon @anthonynotleon @HealthcareScene @IrmaRaste T1: Email was the removal of friction of the mail system for a popular form of communication. The other still exists and is needed for certain pieces. Likewise, epatient is the removal of friction in many healthcare scenarios. In person is still needed, but the "e" helps #hitsm |
| HealthSparq @HealthSparq @ePatientDave @sharonfterry Well that loudness sure does help 🤣 #HITsm |
| Inspire @InspireIsHealth @HealthcareScene @IrmaRaste T1: What we see in our online community is a sense among members who are able to have real influence in their care--however modest--is tremendously empowering. So perhaps the "e" here is "empowered." #hitsm |
| John Lynn @techguy @JBBC I'd never thought of it as a community and helping you feel less alone. Love those ideas. #HITsm |
| Healthcare Scene @HealthcareScene T2: What are the most useful skill(s) ePatients rely on? @IrmaRaste #HITsm https://t.co/VdAbjZC8ed |
| John Lynn @techguy @ShereesePubHlth Was that a real time gif? :-) #HITsm |
| HealthSparq @HealthSparq RT @HealthcareScene: T2: T2: What are the most useful skill(s) ePatients rely on? @IrmaRaste #HITsm https://t.co/VdAbjZC8ed |
| John Prince @thetechofficer RT @techguy ...interesting evolution of [ePatient] over time. I remember the original use I saw being that they were a patient who used electronic options in their care. Often this meant aggregating their health data electronically. It seems to now be an active patient. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste A1: "e" stands for ENGAGED in #ePatient for Elena! What about you? #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 For me, the "e" in #ePatient stands for empowered. The patient that is engaged, informed, and educated in the efficient/effective use of innovative tools is an ePatient #HITsm https://t.co/R6MrRKLpAB |
| Marie Ennis-O'Connor @JBBC @techguy that's the real power IMO John. It's the collective power of us raising our voices together that has made a shift happen in healthcare towards a more participatory model of engagement for patients #HITSm |
| Anthony Leon @anthonynotleon RT @HealthSparq: Excited to announce that our first #WTFix event of 2019 will be something totally different...a #WTFIX-A-THON (aka: Excited to announce that our first #WTFix event of 2019 will be something totally different...a #WTFIX-A-THON (aka: a #hackathon to help #healthcare)! Learn more about what we'll be up to on April 4-5 at: https://t.co/t8WHy0CImD #patientchat #wegohealthchat #hitsm https://t.co/Xty8zafTjk |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: A1: A1: "e" stands for ENGAGED in #ePatient for Elena! What about you? #HITsm |
 | Amanda G @LAlupusLady A1 Being an ePatient means that as a person with #lupus and other chronic conditions I share, support and advocate for people like me online and off. #HITsm |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @LeaChatham Learned in cognitive neuroscience women on average have thicker corpus callosum connecting left, right hemispheres. While some have argued women are left AND right brain while men are left (exclusive) OR right brain, whole area is rife w/controversy #hitsm https://t.co/LEAIluOij4 |
| Dave deBronkart @ePatientDave @HealthcareScene @IrmaRaste T2 Interesting question - some are research, some are about being "woke," some are about pushing back on dinosaurs - courteously or stubbornly PRN #HITSM |
| Elena Ivanova @lenisocial @anthonynotleon @HealthcareScene @IrmaRaste Definitely! Hi Anthony... hope you're doing well! #hitsm |
| John Lynn @techguy @anthonynotleon @HealthcareScene @IrmaRaste It's amazing how far we've come with healthcare communication...and how far we still have to go. #HITsm |
| John Lynn @techguy @teaminspire @HealthcareScene @IrmaRaste Nice. Any good examples of places where they've been able to show real influence? #HITsm |
 | Lisa Davis Budzinski @lisadbudzinski Lisa here, please excuse my tardiness✨ #HITsm |
| John Prince @thetechofficer Why can't an ePatient be both? A patient who is actively engaged AND uses electronic options in their care. #HITsm #health #healthcare Irma Rastegayeva ✨ in #Boston |
| Amanda G @LAlupusLady RT @techguy: @anthonynotleon @HealthcareScene @IrmaRaste It's amazing how far we've come with healthcare communication...and how far we still have to go. #HITsm |
| John Lynn @techguy Persistence. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @techguy No, lol. I wish I could capture something like that. #HITsm |
 | Blessed Tabvirwa #MaskUp or #StayAtHome @blestab Hi all Blessed there #HealthIT developer @MEDITECHSA lurking from warm Johannesburg #HITsm https://t.co/PfnhLBDb9D |
| Elena Ivanova @lenisocial @techguy Or patience... another "p" letter word. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste A2: Talk more about that @ePatientDave! Especially what you mean by "woke" in this context. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @ePatientDave @HealthcareScene A2: Talk more about that @ePatientDave! Especially what you mean by "woke" in this context. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @lenisocial Hi Elena. #HITsm |
 | Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: RT @techguy ...interesting evolution of [ePatient] over time. I remember the original use I saw being that they were a patient who used electronic options in their care. Often this meant aggregating their health data electronically. It seems to now be an active patient. #HITsm |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Why can't an ePatient be both? A patient who is actively engaged AND uses electronic options in their care. #HITsm #health #healthcare Irma Rastegayeva ✨ in #Boston |
| John Lynn @techguy Eventually, but I have to admit that I don't generally feel like a patient. I don't generally attend conferences with the view of a patient. I try to be understanding and inclusive of that view, but not having any major health issues, I come from a different perspective. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @wareFLO: @LeaChatham Learned in cognitive neuroscience women on average have thicker corpus callosum connecting left, right hemispheres. While some have argued women are left AND right brain while men are left (exclusive) OR right brain, whole area is rife w/controversy #hitsm https://t.co/LEAIluOij4 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @BFMack Hey friend. How are things with you? #hitsm |
| Marie Ennis-O'Connor @JBBC @techguy A2 our network ... knowing how to tap into that network through social media to find the answers we need and the people we need to connect with #HitSM |
| Anthony Leon @anthonynotleon @HealthcareScene @IrmaRaste T2: If they are savvy on the "e" side of things, they have the ability to find community and raise their voice. Previous to internet 2.0/social media, you couldn't get very far. Now, they can push back with more force #hitsm |
| John Lynn @techguy @JBBC I've definitely seen the power of patient communities and how social media has helped many in those communities. Just hadn't thought about ePatients kind of being a supportive community that way. I like it. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @LAlupusLady Hi Amanda, great to have you on! Thanks for your perspective and doing this important work! #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A1 Being an ePatient means that as a person with #lupus and other chronic conditions I share, support and advocate for people like me online and off. #HITsm |
| John Prince @thetechofficer Agreed. RT @jbbc: @techguy that's the real power IMO John. It's the collective power of us raising our voices together that has made a shift happen in healthcare towards a more participatory model of engagement for patients #HITSm |
| Brian Mack @BFMack T2: ISTM, that the most effective ePatient is someone who is a Subject Matter Expert. First-hand perspective is certainly invaluable. But even if you are not the patient, a solid understanding of causes, effects, outcomes, obstacles etc. is critical to credibility #HITSM |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell T2. My philosophy is that empowerment follows a path similar to Maslow's hierarchy. Patients move from the initial diagnosis (basic human needs) to safety & security to belonging (that is where the community comes in) then they move higher to become engaged and empowered. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski T2 Tesearch & the understanding of such so that we can speak with Drs intelligently about our condition/s #HITsm |
| John Lynn @techguy @lenisocial Politely Pissed-off? #HITsm |
| Inspire @InspireIsHealth @techguy @HealthcareScene @IrmaRaste John -- Somewhat dated, but these come to mind https://t.co/xJvLU8p1Ld and https://t.co/9lnsw5rC5O. #hitsm |
 | William Vallejo Q. @william_vallejo RT @IrmaRaste: @HealthcareScene Welcome to the #HITsm chat everyone! https://t.co/v2XVHu8PEp |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste A1: "e" stands for EMPOWERED in #ePatient for Shereese! What about you? #HITsm |
| Inspire @InspireIsHealth RT @HealthcareScene: T2: T2: What are the most useful skill(s) ePatients rely on? @IrmaRaste #HITsm https://t.co/VdAbjZC8ed |
| John Prince @thetechofficer We definitely want the patient to be all those things! RT @shereesepubhlth: T1 For me, the "e" in #ePatient stands for empowered. The patient that is engaged, informed, and educated in the efficient/effective use of innovative tools is an ePatient. #HITsm |
| Amanda G @LAlupusLady A2 the ePatients skills that are helpful to possess are the willingness to share our stories and speak about our patient experience to create awareness and shape the growth of the journey. Open your mouth- use a megaphone 📣 #HITsm |
| Brian Mack @BFMack @ShereesePubHlth I'm great thanks! How 'bout yourself? #HITSM |
 | Enlightening Results 💡 @GraceCordovano As a #patient, primary #carepartner to 2 disabled adults, & a patient advocate, if means having all of the info & tools needed to make real-time, educated decisions about care & treatment planning. Also, means being proactive member of #healthcare ecosystem & economy #HITsm |
| Amanda G @LAlupusLady RT @IrmaRaste: @LAlupusLady Hi Amanda, great to have you on! Thanks for your perspective and doing this important work! #HITsm |
| Marie Ennis-O'Connor @JBBC @teaminspire @techguy @HealthcareScene @IrmaRaste @katherinekleon story never grows old #HitSM |
| Dave deBronkart @ePatientDave @IrmaRaste "Woke" in the sense that to act in an empowered way, most people need to have that waking moment when they realize they need to take control, speak up, be empowered ... realize they can't assume the system will (or should!) automatically do everything for them. #HITSM |
| John Lynn @techguy @LAlupusLady What do you think of @jbbc's comment about connecting with other patients that might not have your specific issues? #HITsm |
| Marie Ennis-O'Connor @JBBC Love this #hitsm |
| Lisa Davis Budzinski @lisadbudzinski Oh good gravy alive! Research not tesearch. #HITsm |
| John Prince @thetechofficer Social networks are very important. RT @techguy: @JBBC I've definitely seen the power of patient communities and how social media has helped many in those communities. Just hadn't thought about ePatients kind of being a supportive community that way. I like it. #HITsm |
| John Lynn @techguy @lisadbudzinski Do you have a signed note from your mom? ;-) #HITsm Glad you could join. |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste A1: "e" stands for activeE 😉 in #ePatient for @thetechofficer! What about you? #HITsm |
| Dave deBronkart @ePatientDave @IrmaRaste Basically, until someone gets "woke," there's much less chance they'll act in an empowered engaged e-patient way. Some do! But in any case it's an essential skill, per the T2 question #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ePatientDave: @HealthcareScene @IrmaRaste T2 Interesting question - some are research, some are about being "woke," some are about pushing back on dinosaurs - courteously or stubbornly PRN #HITSM |
| Lisa Davis Budzinski @lisadbudzinski @techguy I do! She said “Get up! Time for #HITsm!” |
 | Jeremy Coleman @jeremycoleman T2: A desire to understand and courage to not be intimidated by the medical subject manner or ill mannered staff. #hitsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 The ePatient's important tools are research ability, tech savviness, and effective communication #HITsm https://t.co/YTbg9UkuHD |
 | Solutionreach @solutionreach RT @HealthcareScene: T2: T2: What are the most useful skill(s) ePatients rely on? @IrmaRaste #HITsm https://t.co/VdAbjZC8ed |
| Amanda G @LAlupusLady Love it. Important to understand that every patient has a unique experience- understand better through sharing. #HITsm |
 | Matthew Loxton is also on Mastodon @mloxton Skipping #HITsm bc research into animal vectors of disease is addictive |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @anthonynotleon @HealthcareScene Hi Anthony!!! Great to have you on. Great points. Community and support. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Perfect! #HITsm |
| Enlightening Results 💡 @GraceCordovano T2) From a personal & professional standpoint, being a serial connector: 👉to information needed 👉to right people 👉to peer support 👉to #digitaltech 👉knowing when to ask for help #HITsm #ABCD #PatientAdvocacy |
| Brian Mack @BFMack @LAlupusLady PREACH Amanda! #HITSM https://t.co/I2Potkacbw |
| Amanda G @LAlupusLady RT @JBBC: Love this #hitsm |
| Amanda G @LAlupusLady RT @BFMack: @LAlupusLady PREACH Amanda! #HITSM https://t.co/I2Potkacbw |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @BFMack Nursing a sinus infection but otherwise having a pretty productive week. Thanks #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @ePatientDave @IrmaRaste So true! 👏👏👏💕 #HITsm |
| John Lynn @techguy @lisadbudzinski lol...sounds like a great mom. #HITsm |
| Inspire @InspireIsHealth @JBBC @techguy @HealthcareScene @IrmaRaste @katherinekleon And @katherinekleon is at the #ACC19 conference as we speak, as an important voice for spontaneous coronary artery dissection #SCADHeart research and support. #hitsm |
| Elena Ivanova @lenisocial @ePatientDave @IrmaRaste THIS!! Right on... this is how we need to approach other aspects of our lives and healthcare is no different. #hitsm |
| Healthcare Scene @HealthcareScene T3: What helpful tips, tricks, tools and technologies can you share? @IrmaRaste #HITsm https://t.co/3jPOC1LIic |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Hmm, I collect workflow puns & plays on the word (workslow (several interps), workfloe (frozen workflow), twerkflow (don't ask) etc... wareflo comes from "workflow software") I think I have another: wokeflow! Subject to numerous interpretations I think! #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste A2: We will have a topic of #SocialMedia later on in the chat, glad to see it mentioned already as one of the useful skills and tools for #ePatient. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @lenisocial: @ePatientDave @IrmaRaste THIS!! Right on... this is how we need to approach other aspects of our lives and healthcare is no different. #hitsm |
| John Lynn @techguy Fascinating idea. I'm going to have to chew on this one some more. There does seem to be an evolution that occurs for patients. #HITsm |
| Brian Mack @BFMack THIS!!! #HITSM |
| Enlightening Results 💡 @GraceCordovano @techguy I have had many patients & carepartners tell me that navigating the diagnosis & coordinating their care was often worse than the initial diagnosis itself. Persistence is critical. #HITsm |
| John Lynn @techguy @lisadbudzinski Nice point. It's amazing how many have denial get in the way of this though. #HITsm |
| Marie Ennis-O'Connor @JBBC @teaminspire @techguy @HealthcareScene @IrmaRaste @katherinekleon @katherinekleon's story was one of the first stories I heard that made me go wow - this is the power of an engaged patient - I quote her all the time in my writing and in my talks #hitsm |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: A2: A2: We will have a topic of #SocialMedia later on in the chat, glad to see it mentioned already as one of the useful skills and tools for #ePatient. #HITsm |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: A1: A1: "e" stands for EMPOWERED in #ePatient for Shereese! What about you? #HITsm |
| Blessed Tabvirwa #MaskUp or #StayAtHome @blestab RT @IrmaRaste: A2: A2: We will have a topic of #SocialMedia later on in the chat, glad to see it mentioned already as one of the useful skills and tools for #ePatient. #HITsm |
| John Lynn @techguy @LAlupusLady So....bravery. #HITsm Or is it bubbles :-) |
| Elena Ivanova @lenisocial RT @GraceCordovano: As a #patient, primary #carepartner to 2 disabled adults, & a patient advocate, if means having all of the info & tools needed to make real-time, educated decisions about care & treatment planning. Also, means being proactive member of #healthcare ecosystem & economy #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: @lisadbudzinski Nice point. It's amazing how many have denial get in the way of this though. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @techguy Absolutely astounding #HITSm |
| Marie Ennis-O'Connor @JBBC @oliveblogs might agree with this... I know I do! #hitsm |
| John Lynn @techguy @GraceCordovano Thanks for joining Grace. #HITsm |
| Dave deBronkart @ePatientDave @lenisocial @IrmaRaste Well, but this is why I keep saying that patient empowerment is a social phenomenon, precisely like the women's movement, HIV / AIDS activism, etc. Here's the @S4PM 2015 blog post on pt empowerment as a civil rights movement: https://t.co/WCMasiUQZW #HITSM |
| Enlightening Results 💡 @GraceCordovano @LyndaGMitchell Interesting Lynda. I have likened the progression to survival. Many cases, patients are interacting with the #healthcare system purely out of the need to survive. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @techguy @lisadbudzinski I read this first as “dental” 😂 Which reminds me, how often do we consider #dental as part of the overall #health? #HITsm |
| John Lynn @techguy This is a hard concept since there are so many things in the system that try to push it down and quiet it. #HITsm |
| Elena Ivanova @lenisocial RT @ePatientDave: @lenisocial @IrmaRaste Well, but this is why I keep saying that patient empowerment is a social phenomenon, precisely like the women's movement, HIV / AIDS activism, etc. Here's the @S4PM 2015 blog post on pt empowerment as a civil rights movement: https://t.co/WCMasiUQZW #HITSM |
| Jeremy Coleman @jeremycoleman T3: The most helpful thing I would suggest is never go to the doc alone. Have a plan of action with a written list of questions the other person could make sure that everything is covered and can be your advocate. Visits can be too emotional for a patient, on their own. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @GraceCordovano: @LyndaGMitchell Interesting Lynda. I have likened the progression to survival. Many cases, patients are interacting with the #healthcare system purely out of the need to survive. #HITsm |
| Amanda G @LAlupusLady A3 Start tracking your health and symptoms. Manage and do what you can to control your condition(s) and after that start thinking about what you can do to be more empowered... #HITsm |
| Lisa Davis Budzinski @lisadbudzinski Grace is on point today! 👏👏👏 #HITsm |
| Enlightening Results 💡 @GraceCordovano @techguy Glad I could make it! Welcome home! Beautiful pics from your travels. Can't wait to hear all about it soon. #HITsm |
| Dave deBronkart @ePatientDave The great @Miriam_Hawley, one of the original authors of Our Bodies Ourselves, told me May 9 is the 50th anniversary of the first meeting of what became the Boston Women's Health Collective. A signal moment for us all. #HITSM |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCordovano @techguy You know I work w/ peds families and the parents' frustrations with navigating systems, when their 1st responsibility should the care of their child, is heart breaking. The insurance process is only the beginning. #hitsm |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski Thanks Lisa!! Great to see you here today #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @GraceCordovano @LyndaGMitchell Surviving is #1. When can we get to thriving? Can being an #ePatient help towards that goal? #HITsm |
| John Lynn @techguy @GraceCordovano I can imagine. Although, that's like asking would you rather be beaten or whipped. Both are awful. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @GraceCordovano @techguy Welcome Grace! Thrilled to have your perspective on this topic! #hitsm @GraceCordovano |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @lisadbudzinski: @techguy Absolutely astounding #HITSm |
| Elena Ivanova @lenisocial @jeremycoleman Great tip! #hitsm |
| EMR, EHR and HIT @ehrandhit RT @JBBC: @teaminspire @techguy @HealthcareScene @IrmaRaste @katherinekleon @katherinekleon's story was one of the first stories I heard that made me go wow - this is the power of an engaged patient - I quote her all the time in my writing and in my talks #hitsm |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Thank you Grace✨ This is s hard time of day for me to steal a few moments #HITSm |
 | The HealthCare IT Experts Blog @HCITExpert [Today] #HITsm TweetChat, on Twitter at - March 15, 2019 at 10:30PM IST | Topics | @HealthcareScene - https://t.co/K7wh2zv2MQ |
| Amanda G @LAlupusLady A3 search for a FB group that deals with your condition, join and engage with an organization to find support and if you can step in and empower others. #HITSM |
| John Lynn @techguy @jeremycoleman Intimidation....the enemy of empowered patients. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @IrmaRaste @GraceCordovano @LyndaGMitchell I believe we'll hear a lot about that word this year, #thrive. We are now looking more at infrastructure to ensure more seamless care and op to thrive for both patient and clinician. #hitsm |
| Brian Mack @BFMack T3: Even several years from direct care, I get calls to help seniors navigate the #LTPAC system. The lack of basic understanding is staggering. Not really a tip, so much as basic advice - EVERYONE should know the difference between Medicare & Medicaid & how they work! #HITSM |
| Dave deBronkart @ePatientDave Yes, I keep finding this the most useful starter tip that anyone can use at any level. That, and never go in the HOSPITAL alone. #HITSM |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell @GraceCordovano I agree with that. Some will move from survival to connecting with others or helping others to taking the lead on things and/or becoming activists. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste #Patient empowerment as a civil rights movement?! 👇 #HITsm |
| Enlightening Results 💡 @GraceCordovano T3) Don't pay any bill until you have reviewed the itemized version of it! Errors are rampant in bills, especially post hospitalizations & surgeries. Keep all EoBs from insurance companies. Get an idea of pricing with this resource. 👇👇 #HITsm https://t.co/syNJKz3mEG |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BFMack: THIS!!! #HITSM |
| Jeremy Coleman @jeremycoleman @techguy And the secret of intimidation is that it only has as much power as you give it. #hitsm |
| HealthSparq @HealthSparq RT @ePatientDave: Yes, I keep finding this the most useful starter tip that anyone can use at any level. That, and never go in the HOSPITAL alone. #HITSM |
| John Prince @thetechofficer I want my mother to feel empowered and educated about her health. I wrote about it here -- https://t.co/ciBRjSjnI0 #HITsm |
| John Lynn @techguy @Crohnoid No need to lurk. Hop in the water is fine :-) I'm not sure that's true. Probably depends on the healthcare organization. However, the stories of trying to access records and being empowered in your care are likely very similar. #HITsm |
| Dave deBronkart @ePatientDave @jeremycoleman Note: It's not just that visits can be too "emotional" - it's NORMAL for ANYONE in ANY MEETING to not remember everything. Why do ya think people publish MINUTES of meetings?? It's a giant cultural insult to say this is a PATIENT failure! #HITSM |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @GraceCordovano: T3) Don't pay any bill until you have reviewed the itemized version of it! Errors are rampant in bills, especially post hospitalizations & surgeries. Keep all EoBs from insurance companies. Get an idea of pricing with this resource. 👇👇 #HITsm https://t.co/syNJKz3mEG |
| HealthSparq @HealthSparq RT @GraceCordovano: T2) From a personal & professional standpoint, being a serial connector: 👉to information needed 👉to right people 👉to peer support 👉to #digitaltech 👉knowing when to ask for help #HITsm #ABCD #PatientAdvocacy |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Social networks are very important. RT @techguy: @JBBC I've definitely seen the power of patient communities and how social media has helped many in those communities. Just hadn't thought about ePatients kind of being a supportive community that way. I like it. #HITsm |
| Brian Mack @BFMack T3: Another piece of advice is to NEVER be afraid of a "stupid question". Ask! Knowledge is POWER! #HITSM https://t.co/Rm1gnVcsDM |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: We definitely want the patient to be all those things! RT @shereesepubhlth: T1 For me, the "e" in #ePatient stands for empowered. The patient that is engaged, informed, and educated in the efficient/effective use of innovative tools is an ePatient. #HITsm |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Agreed. RT @jbbc: @techguy that's the real power IMO John. It's the collective power of us raising our voices together that has made a shift happen in healthcare towards a more participatory model of engagement for patients #HITSm |
| Amanda G @LAlupusLady Bravery, strength and glitter 💓 but in conference rooms where glitter isn’t allowed “bubbles” work to show invisible illness. #HITsm |
| HealthSparq @HealthSparq @lisadbudzinski Hi @lisadbudzinski! It's been too long! How are you? #HITsm |
| John Lynn @techguy Be patient and try multiple angles when needed. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste That's as great "definition" of an #ePatient as any! But HOW do you do it Grace? Tell us more. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: Fascinating idea. I'm going to have to chew on this one some more. There does seem to be an evolution that occurs for patients. #HITsm |
| HealthSparq @HealthSparq RT @HealthcareScene: T3: T3: What helpful tips, tricks, tools and technologies can you share? @IrmaRaste #HITsm https://t.co/3jPOC1LIic |
| Jeremy Coleman @jeremycoleman @ePatientDave And if you look at a visit, the provider has multiple people collect data, record it, and organize it all before they talk to the patient. They definitely have a plan for the interaction with the patient. The patient should have a plan too. #hitsm |
| Anthony Leon @anthonynotleon @HealthcareScene @IrmaRaste A3 - Our phones have become extensions for many of us. Use it! Keep a running list of questions on future notes to your Drs, track what you can, aggregate records, offer to share wearable insights where applicable. Just had a Doc tell us, wearable info helped him save a pt #hitsm |
| John Prince @thetechofficer Which do you find are the best platforms for sharing? & why? RT @leachatham: RT @LAlupusLady: Love it. Important to understand that every patient has a unique experience - understand better through sharing. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCordovano It's funny, I teach my peds parents about place of service codes, etc,. just so they can understand discrepancies that can save them money and frustration #HITsm |
| Elena Ivanova @lenisocial @LAlupusLady Similar to @patientslikeme... the idea of having a place where you're able to relate, have a sense of community and support. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Very interesting idea Lynda. We need to come up with a graphic for that! Unless @ePatientDave & @S4PM already have something like this 🤓 #HITsm #pinksocks #HCLDR #ePatient #PatientExperience #community |
| Dave deBronkart @ePatientDave RT @techguy: Be patient and try multiple angles when needed. #HITsm |
| John Lynn @techguy I often tell me wife to keep talking. If you allow the visit to be too short, then you'll remember the questions you wanted to ask after the fact. Extending the visit so you have time to get all the questions answered is good. I also end up discovering more info I needed. #HITsm |
| Enlightening Results 💡 @GraceCordovano T3) Prepare for every appointment. You wouldn't show up to a business meeting unprepared, your health is more important than any meeting you have ever been to. 👉bring a carepartner 👉research your dr 👉write down ?'s 👉be clear on next steps before leaving exam room #hitsm |
| Healthcare Scene @HealthcareScene T4: What has your experience been as an ePatient or working with ePatients? Stories are welcome. @IrmaRaste #HITsm https://t.co/DxXCaYWkmP |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @techguy: I often tell me wife to keep talking. If you allow the visit to be too short, then you'll remember the questions you wanted to ask after the fact. Extending the visit so you have time to get all the questions answered is good. I also end up discovering more info I needed. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @ShereesePubHlth @GraceCordovano @techguy Attempting to navigate the system is pure frustration! And an unnecessary addition to the symptoms patients are already dealing with *sigh* #HITsm |
| Jeremy Coleman @jeremycoleman @anthonynotleon @HealthcareScene @IrmaRaste I'd go farther and use that camera to take pics of YOUR records. The sad part is there are better photo organizing software apps than PHR's. #hitsm |
| Brian Mack @BFMack THAT is excellent Advice! I HIGHLY recommend this series from Vox Media! #HITSM https://t.co/JyMcj7pJOx |
| Blessed Tabvirwa #MaskUp or #StayAtHome @blestab RT @BFMack: T3: T3: Even several years from direct care, I get calls to help seniors navigate the #LTPAC system. The lack of basic understanding is staggering. Not really a tip, so much as basic advice - EVERYONE should know the difference between Medicare & Medicaid & how they work! #HITSM |
| HealthSparq @HealthSparq @BFMack YES!!! Never be afraid to speak up...it's your life, or the life of a loved one, that could be on the line. Even the tiniest feeling of doubt, confusion or fear should not be ignored. #HITsm |
| John Lynn @techguy @GraceCordovano Thanks. It's good to be home, but I have to admit it was the hardest trip I've ever had to come home from. #HITsm |
| Amanda G @LAlupusLady ePatients use whatever they can to demonstrate the impact of our condition(s) - I do not stop raising awareness for #lupus when May is over... #HITsm https://t.co/IXlNms8lgv |
| John Lynn @techguy @jimmie_vanagon How many of your patients do you text with? #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @HealthSparq Way too long!!!💕✨💕✨ Always good to see you! #HITsm |
| Elena Ivanova @lenisocial @thetechofficer I will definitely read this later... I can relate like you talk about in your post. #hitsm |
| Enlightening Results 💡 @GraceCordovano @BFMack Never be afraid to tell your dr what is keeping you up at night. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste New hashtag, courtesy of @wareFLO: #WokeFlow for #ePatients 🤓 Let's see how #HITsm community takes to that and interprets it. #HCLDR #pinksocks |
| Lisa Davis Budzinski @lisadbudzinski @blestab @IrmaRaste @techguy True! LoL 😆 #HITsm |
| Blessed Tabvirwa #MaskUp or #StayAtHome @blestab RT @IrmaRaste: @GraceCordovano @LyndaGMitchell Surviving is #1. When can we get to thriving? Can being an #ePatient help towards that goal? #HITsm |
| Brian Mack @BFMack RT @GraceCordovano: T3) Prepare for every appointment. You wouldn't show up to a business meeting unprepared, your health is more important than any meeting you have ever been to. 👉bring a carepartner 👉research your dr 👉write down ?'s 👉be clear on next steps before leaving exam room #hitsm |
| EMR, EHR and HIT @ehrandhit RT @GraceCordovano: @BFMack Never be afraid to tell your dr what is keeping you up at night. #hitsm |
| Enlightening Results 💡 @GraceCordovano RT @thetechofficer: I want my mother to feel empowered and educated about her health. I wrote about it here -- https://t.co/ciBRjSjnI0 #HITsm |
 | Healthcare IT Today @hcittoday RT @jeremycoleman: T3: T3: The most helpful thing I would suggest is never go to the doc alone. Have a plan of action with a written list of questions the other person could make sure that everything is covered and can be your advocate. Visits can be too emotional for a patient, on their own. #hitsm |
| HealthSparq @HealthSparq T4. We have been blown away by the #epatients (including caregivers & advocates) that we've met through communities like this & through #WTFix - they are the ones truly driving change in #healthcare for the better, for everyone! #hitsm |
| Brian Mack @BFMack RT @anthonynotleon: @HealthcareScene @IrmaRaste A3 - Our phones have become extensions for many of us. Use it! Keep a running list of questions on future notes to your Drs, track what you can, aggregate records, offer to share wearable insights where applicable. Just had a Doc tell us, wearable info helped him save a pt #hitsm |
| HealthSparq @HealthSparq @GraceCordovano @BFMack Also, take notes on your questions and feelings! I so often forget - or keep myself awake - trying to make mental notes of what's going on with me that I want to check in with a doctor about. #HITsm |
| John Lynn @techguy Thriving. I like that idea. #HITsm |
| Enlightening Results 💡 @GraceCordovano @IrmaRaste @techguy I RAN here as soon as I could!! What a great discussion! #HITsm |
| Dave deBronkart @ePatientDave @lisadbudzinski Don't forget that #HITSM hashtag! <3 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @Crohnoid When my father-in-law was diagnosed with cancer, I showed my husband & in-laws how to keep a care journal for important milestones, questions for providers, etc. It's a good thing #HITsm |
 | pawan kaushal @pawankaushal RT @IrmaRaste: #Patient empowerment as a civil rights movement?! 👇 #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Spot on Jeremy! I’ve been #PatientAdvocate for others for 20 years. Yet when I became #cancer #patient myself, at times it was challenging to advocate for myself. #HITsm #pinksocks |
| Anthony Leon @anthonynotleon @HealthcareScene @IrmaRaste A4: We have a long ways to go. It takes a ton of effort for baby steps but it feels momentum is starting to grow. You can feel the shift coming, there is an energy about it, but it requires a group effort #hitsm https://t.co/11EK29wauL |
| John Lynn @techguy @GraceCordovano This makes me exhausted just thinking about it. You're right, but it's exhausting. #HITsm |
| HealthSparq @HealthSparq @LAlupusLady You are such a powerful force for awareness, @LAlupusLady - we ❤️ you and all you do! #HITsm |
| Enlightening Results 💡 @GraceCordovano @HealthSparq @BFMack Yes! Write it all down! You can be super organized in your head & mentally prepared and then the appt happens and goes a million different directions. #HITsm |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell @IrmaRaste @ePatientDave @S4PM . @ePatientDave does @S4PM have anything like that? If not I'd be happy to work with you and anyone else interested on it. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @techguy Let's make it a thing for 2019, ensuring patients & providers can thrive. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste How do we “fight the system” without making things worse? Case by case and overall? #HITsm #ePatient #PatientExperience @GraceCordovano |
| John Lynn @techguy @BFMack Stupid questions can be used effectively to get you to better questions. #HITsm |
| Blessed Tabvirwa #MaskUp or #StayAtHome @blestab RT @IrmaRaste: New hashtag, courtesy of @wareFLO: New hashtag, courtesy of @wareFLO: #WokeFlow for #ePatients 🤓 Let's see how #HITsm community takes to that and interprets it. #HCLDR #pinksocks |
| EMR, EHR and HIT @ehrandhit RT @LyndaGMitchell: @IrmaRaste @ePatientDave @S4PM . @ePatientDave does @S4PM have anything like that? If not I'd be happy to work with you and anyone else interested on it. #HITsm |
| John Lynn @techguy Interesting idea. Thanks for sharing. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Great point and resource Grace! #hospital #costs #healthcare #PatientExperience #PatientAdvocacy #HITsm |
| Amanda G @LAlupusLady A4 my experience was discovering that my support and advocacy had made me an ePatient and once I recognized that... I began to feel more confident and comfortable sharing my story with people outside of the patient community. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @techguy: I often tell me wife to keep talking. If you allow the visit to be too short, then you'll remember the questions you wanted to ask after the fact. Extending the visit so you have time to get all the questions answered is good. I also end up discovering more info I needed. #HITsm |
| Amanda G @LAlupusLady RT @HealthSparq: @LAlupusLady You are such a powerful force for awareness, @LAlupusLady - we ❤️ you and all you do! #HITsm |
| Brian Mack @BFMack T4: In both my professional and advocacy roles I admit to sometimes getting lost in the forest and losing sight of the trees. I'm grateful for those vocal ePatients that keep us focused on the MAIN thing - Patient CARE #HITSM https://t.co/BXMbGvO2ka |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @thetechofficer: I want my mother to feel empowered and educated about her health. I wrote about it here -- https://t.co/ciBRjSjnI0 #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @thetechofficer Thanks for sharing this personal perspective! #HITsm |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 I'm good at this. lol. RT @techguy: @BFMack Stupid questions can be used effectively to get you to better questions. #HITsm |
| John Lynn @techguy If I was in this situation, I would ask myself, "What would Grace do?" #HITsm |
| Amanda G @LAlupusLady RT @ShereesePubHlth: @techguy Let's make it a thing for 2019, ensuring patients & providers can thrive. #hitsm |
| Enlightening Results 💡 @GraceCordovano @blestab @LeaChatham @jeremycoleman Googling = necessary research. There is no shame in researching & preparing. Last I checked, there wasn't a course or degree in being a professional patient. Stop belittling patients for trying to gather information. #HITsm |
| John Lynn @techguy I still think about @ePatientDave's story. Then, I think about how many more people have the opposite outcome because they weren't engaged and empowered. #HITsm |
| Blessed Tabvirwa #MaskUp or #StayAtHome @blestab RT @LAlupusLady: ePatients use whatever they can to demonstrate the impact of our condition(s) - I do not stop raising awareness for #lupus when May is over... #HITsm https://t.co/IXlNms8lgv |
| John Prince @thetechofficer Count me in! With @Lisa03755 RT @shereesepubhlth: @techguy Let's make it a thing for 2019, ensuring patients & providers can thrive. #hitsm |
| Dave deBronkart @ePatientDave @Crohnoid If you get SERIOUSLY into it, you can use @EverNote as your #EMR, the way @NickDawson does. His post on the @S4PM blog, 2014: https://t.co/MzZzFJVmGM #HITSM Being an empowered patient is a life skill - and it does (and should) take advantage of every skill you have. #HITSM |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 This. RT @gracecordovano: @HealthSparq @BFMack Yes! Write it all down! You can be super organized in your head & mentally prepared and then the appt happens and goes a million different directions. #HITsm #healthcare |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste There are no stupid questions when it comes to our #health & #wellbeing! I often say “Questions are the answers” ✅ #HITsm |
| Amanda G @LAlupusLady RT @techguy: I still think about @ePatientDave's story. Then, I think about how many more people have the opposite outcome because they weren't engaged and empowered. #HITsm |
| Enlightening Results 💡 @GraceCordovano @blestab @BFMack Chatbots in the waiting room or exam room could be a great way to help. People are reluctant to share some info for fear of being judged, stigmatized. #HITsm |
| Dave deBronkart @ePatientDave @blestab @GraceCordovano @BFMack Yes; speaking up / asking questions / being bold / standing up for what you need is a skill MOST people need, everywhere in life - healthcare is no different. :-) #HITSM |
| Amanda G @LAlupusLady RT @ePatientDave: @Crohnoid If you get SERIOUSLY into it, you can use @EverNote as your #EMR, the way @NickDawson does. His post on the @S4PM blog, 2014: https://t.co/MzZzFJVmGM #HITSM Being an empowered patient is a life skill - and it does (and should) take advantage of every skill you have. #HITSM |
| Enlightening Results 💡 @GraceCordovano RT @ePatientDave: @Crohnoid If you get SERIOUSLY into it, you can use @EverNote as your #EMR, the way @NickDawson does. His post on the @S4PM blog, 2014: https://t.co/MzZzFJVmGM #HITSM Being an empowered patient is a life skill - and it does (and should) take advantage of every skill you have. #HITSM |
| Lisa Davis Budzinski @lisadbudzinski T3 Use Google scholar & medical periodicals to learn your conditions Follow mentors on social media to learn from. Learn to speak/converse in a polite, respectful, intelligent manner-not through pure emotion. #Hitsm |
| Amanda G @LAlupusLady RT @ePatientDave: @blestab @GraceCordovano @BFMack Yes; speaking up / asking questions / being bold / standing up for what you need is a skill MOST people need, everywhere in life - healthcare is no different. :-) #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Great checklist from @GraceCordovano who embodies this philosophy! #ePatient #hitsm #pinksocks #hcldr |
| John Lynn @techguy @GraceCordovano @IrmaRaste #running #HITsm https://t.co/kw2YJVCrQt |
| Healthcare Scene @HealthcareScene T5: What role does Social Media play for ePatients? @IrmaRaste #HITsm https://t.co/F4Ce3qtZWa |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: A3 search for a FB group that deals with your condition, join and engage with an organization to find support and if you can step in and empower others. #HITSM |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: Great checklist from @GraceCordovano who embodies this philosophy! #ePatient #hitsm #pinksocks #hcldr |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @IrmaRaste: There are no stupid questions when it comes to our #health & #wellbeing! I often say “Questions are the answers” ✅ #HITsm |
| Enlightening Results 💡 @GraceCordovano T4) A glimpse into how I became an advocate: https://t.co/VhhxOeu0Gb #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @IrmaRaste True! #HITsm https://t.co/bGZuEAQVbD |
| John Lynn @techguy That's a fascinating observation. I wonder why the difference. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Ha - to be an #ePatient you have to be... #patient - no coincidence patience is in the word! #hitsm |
 | Participatory Medicine @S4PM RT @ePatientDave: @Crohnoid If you get SERIOUSLY into it, you can use @EverNote as your #EMR, the way @NickDawson does. His post on the @S4PM blog, 2014: https://t.co/MzZzFJVmGM #HITSM Being an empowered patient is a life skill - and it does (and should) take advantage of every skill you have. #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ePatientDave: The great @Miriam_Hawley, one of the original authors of Our Bodies Ourselves, told me May 9 is the 50th anniversary of the first meeting of what became the Boston Women's Health Collective. A signal moment for us all. #HITSM |
| Participatory Medicine @S4PM RT @LyndaGMitchell: @IrmaRaste @ePatientDave @S4PM . @ePatientDave does @S4PM have anything like that? If not I'd be happy to work with you and anyone else interested on it. #HITsm |
| Amanda G @LAlupusLady A5 Social media plays a vital role. It can provide resources, support and often friendship for people whose condition make us/them feel isolated. #HITsm |
| Enlightening Results 💡 @GraceCordovano @techguy @ePatientDave As someone who was misdiagnosed with advanced lymphoma, I often think about what my life would have been like had I immediately started treatment w/o a 2nd opinion (which cleared me of cancer & diagnosed me w/a fungal infection that needed no treatment) #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ePatientDave: Yes, I keep finding this the most useful starter tip that anyone can use at any level. That, and never go in the HOSPITAL alone. #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @HealthcareScene: T4: T4: What has your experience been as an ePatient or working with ePatients? Stories are welcome. @IrmaRaste #HITsm https://t.co/DxXCaYWkmP |
| Participatory Medicine @S4PM RT @ePatientDave: @lenisocial @IrmaRaste Well, but this is why I keep saying that patient empowerment is a social phenomenon, precisely like the women's movement, HIV / AIDS activism, etc. Here's the @S4PM 2015 blog post on pt empowerment as a civil rights movement: https://t.co/WCMasiUQZW #HITSM |
| John Lynn @techguy @GraceCordovano @blestab @BFMack I really love chatbots in healthcare. #HItsm |
| Brian Mack @BFMack T5: (1 of 2) Can I push back on this question with another question? To what degree do you feel that Social Media creates an echo chamber with the risk of giving us a false sense of security/accomplishment? #HITSM |
| Lisa Davis Budzinski @lisadbudzinski T4 I should just attach my book to this one 😉 there’s so many over 30+ years! #HITsm |
| Participatory Medicine @S4PM RT @LyndaGMitchell: T2. My philosophy is that empowerment follows a path similar to Maslow's hierarchy. Patients move from the initial diagnosis (basic human needs) to safety & security to belonging (that is where the community comes in) then they move higher to become engaged and empowered. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @anthonynotleon: @HealthcareScene @IrmaRaste A4: @HealthcareScene @IrmaRaste A4: We have a long ways to go. It takes a ton of effort for baby steps but it feels momentum is starting to grow. You can feel the shift coming, there is an energy about it, but it requires a group effort #hitsm https://t.co/11EK29wauL |
| Enlightening Results 💡 @GraceCordovano @techguy @IrmaRaste This is accurate. Pigtails and all across the hospital parking lot 🤣 #HITsm |
| Participatory Medicine @S4PM RT @LyndaGMitchell: Hi everyone! I work in nonprofit disease advocacy orgs, digital health communications, and am a founder of an online community . Member and volunteer for @s4PM. ePatient to me means empowered, engaged, informed. #HITsm |
| Elena Ivanova @lenisocial @HealthcareScene @IrmaRaste Echoing what others said... we've come a long way, but there's so much to do. From a patient perspective: 1⃣It's 2019, I shouldn't have to fax 2⃣ONE portal to rule them all 3⃣Empower patients, care givers & orgs with tools to gain real-time insights from data, w/n workflow #hitsm |
| Amanda G @LAlupusLady A5 social media apps can simplify the way a patient monitors their symptoms as well. #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @anthonynotleon @HealthcareScene Here comes the power of community again, to provide support and encouragement when things get tough, and they often do for #ePatients #HITsm |
| Marie Ennis-O'Connor @JBBC A5 Before the Internet connected people from every corner of the globe, many patients experienced their illness in isolation. #hitsm |
| Participatory Medicine @S4PM RT @IrmaRaste: Excited to host #HITsm chat this Friday: Excited to host #HITsm chat this Friday: ⚡️What Does It Mean to Be an ePatient? Whether u r a #patient, #caregiver, #physician, #nurse, or anywhere else on the continium of care, join us! #pinksocks #HCLDR #patients #healthcare @evankirstel @eViRaHealth https://t.co/RRS6mkG6ou https://t.co/ZnHXzoOLyj |
| John Lynn @techguy #HITsm |
| Participatory Medicine @S4PM RT @GraceCordovano: As a #patient, primary #carepartner to 2 disabled adults, & a patient advocate, if means having all of the info & tools needed to make real-time, educated decisions about care & treatment planning. Also, means being proactive member of #healthcare ecosystem & economy #HITsm |
| Participatory Medicine @S4PM RT @GraceCordovano: T2) From a personal & professional standpoint, being a serial connector: 👉to information needed 👉to right people 👉to peer support 👉to #digitaltech 👉knowing when to ask for help #HITsm #ABCD #PatientAdvocacy |
| Participatory Medicine @S4PM RT @HealthcareScene: T1: T1: What does being an ePatient means to YOU? Please speak from your perspective as a patient, family/loved one, caregiver, nurse, physician or wherever else you are on the continuum of care. @IrmaRaste #HITsm https://t.co/RKwuASDp3Z |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @BFMack What is the main difference Brian and what resources could be helpful here? #HITsm |
| EMR, EHR and HIT @ehrandhit RT @IrmaRaste: @anthonynotleon @HealthcareScene Here comes the power of community again, to provide support and encouragement when things get tough, and they often do for #ePatients #HITsm |
| Participatory Medicine @S4PM RT @HealthSparq: Excited to announce that our first #WTFix event of 2019 will be something totally different...a #WTFIX-A-THON (aka: Excited to announce that our first #WTFix event of 2019 will be something totally different...a #WTFIX-A-THON (aka: a #hackathon to help #healthcare)! Learn more about what we'll be up to on April 4-5 at: https://t.co/t8WHy0CImD #patientchat #wegohealthchat #hitsm https://t.co/Xty8zafTjk |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ShereesePubHlth: @GraceCordovano @techguy You know I work w/ peds families and the parents' frustrations with navigating systems, when their 1st responsibility should the care of their child, is heart breaking. The insurance process is only the beginning. #hitsm |
| 🇺🇦Evan Kirstel #B2B #TechFluencer @EvanKirstel RT @techguy: Hey everyone! Let's get this party started. Excited to have @irmaraste hosting. I'd say that I'm mostly a left brain, but I think my right brain skills have helped me be successful. #HITsm |
| Participatory Medicine @S4PM RT @GraceCordovano: T3) Don't pay any bill until you have reviewed the itemized version of it! Errors are rampant in bills, especially post hospitalizations & surgeries. Keep all EoBs from insurance companies. Get an idea of pricing with this resource. 👇👇 #HITsm https://t.co/syNJKz3mEG |
| Amanda G @LAlupusLady RT @JBBC: A5 Before the Internet connected people from every corner of the globe, many patients experienced their illness in isolation. #hitsm |
| Enlightening Results 💡 @GraceCordovano T5) SoMe removes barriers, hierarchies, provides real-time, global access to info & peer to peer support 24 hours a day. I utilize it regularly to by pass phone lines, emails, office staff. The communities are priceless. #HITsm |
| Participatory Medicine @S4PM RT @techguy: I still think about @ePatientDave's story. Then, I think about how many more people have the opposite outcome because they weren't engaged and empowered. #HITsm |
| Participatory Medicine @S4PM RT @BFMack: T3: T3: Another piece of advice is to NEVER be afraid of a "stupid question". Ask! Knowledge is POWER! #HITSM https://t.co/Rm1gnVcsDM |
| Participatory Medicine @S4PM RT @ePatientDave: The great @Miriam_Hawley, one of the original authors of Our Bodies Ourselves, told me May 9 is the 50th anniversary of the first meeting of what became the Boston Women's Health Collective. A signal moment for us all. #HITSM |
| Elena Ivanova @lenisocial @HealthcareScene @IrmaRaste social media - the place you go connect and to share the good, the bad and the ugly! #hitsm |
| Brian Mack @BFMack T5: (2 of 2) Hypothetically, take the #HITSM community as an example. WE are all fairly influential in our respective areas, and spend a lot of time interacting with each other on Social Media. How do we quantify that we are actually moving the needle? |
| Participatory Medicine @S4PM RT @lenisocial: @HealthcareScene @IrmaRaste I like to think of ePatient as "engaged patient"... engaged in his/her own care, in the family/loved one/s care... and last but certainly not least - engaged digitally/electronically #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste SIGH indeed. #hitsm |
| Dave deBronkart @ePatientDave @BFMack Your excellent question is why we gotta STAY woke about what's going on, including in our feeds. This is btw one of the great values of joining a good patient community like @smart_patients or @teaminspire or #BCSM - good ones keep us from getting overconfident. #HITSM |
| Participatory Medicine @S4PM RT @GraceCordovano: @BFMack Never be afraid to tell your dr what is keeping you up at night. #hitsm |
| Participatory Medicine @S4PM RT @LAlupusLady: ePatients use whatever they can to demonstrate the impact of our condition(s) - I do not stop raising awareness for #lupus when May is over... #HITsm https://t.co/IXlNms8lgv |
| Participatory Medicine @S4PM RT @GraceCordovano: @techguy I have had many patients & carepartners tell me that navigating the diagnosis & coordinating their care was often worse than the initial diagnosis itself. Persistence is critical. #HITsm |
| Marie Ennis-O'Connor @JBBC A5 Personal stories and first person accounts of illness are the life blood pulsing through the social media healthcare eco-system #hitsm |
| Participatory Medicine @S4PM RT @HealthcareScene: T4: T4: What has your experience been as an ePatient or working with ePatients? Stories are welcome. @IrmaRaste #HITsm https://t.co/DxXCaYWkmP |
| Participatory Medicine @S4PM RT @techguy: Be patient and try multiple angles when needed. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski T4 I would love for others to know it’s ok to get a 2nd opinion; 3rd or 4th. It’s not about seeking out what you want to hear but finding Drs who care to find answers with you✨ #HITsm |
| Participatory Medicine @S4PM RT @ePatientDave: @HealthcareScene @IrmaRaste T2 Interesting question - some are research, some are about being "woke," some are about pushing back on dinosaurs - courteously or stubbornly PRN #HITSM |
| Elena Ivanova @lenisocial RT @GraceCordovano: T5) SoMe removes barriers, hierarchies, provides real-time, global access to info & peer to peer support 24 hours a day. I utilize it regularly to by pass phone lines, emails, office staff. The communities are priceless. #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T4 I'm a former COO of a large healthcare conglomerate. I became a peds advoc while in that role. I couldn't believe how parents of medically-fragile peds were treated by the system & how they were expected to understand complex systems that they had no role in designing #HITsm https://t.co/UJpXu5ZYut |
| Enlightening Results 💡 @GraceCordovano @oliveblogs @techguy I cry regularly on behalf of my patients & loved ones. IT SHOULDN'T BE THIS HARD! Especially for people who WANT to navigate their care, follow their treatment plan, and help themselves. Its a disgrace. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @jimmie_vanagon Do you utilize this #tech in your practice? Do you encounter less resistance / higher adoption rates? #hitsm #ePatient |
| Participatory Medicine @S4PM RT @ePatientDave: @IrmaRaste "Woke" in the sense that to act in an empowered way, most people need to have that waking moment when they realize they need to take control, speak up, be empowered ... realize they can't assume the system will (or should!) automatically do everything for them. #HITSM |
| Elena Ivanova @lenisocial @GraceCordovano Right on! #hitsm |
| Brian Mack @BFMack T5: How can we leverage Social Media to perpetuate a self-sustaining and growing ePatient ecosystem of advocacy that drives tangible improvement in outcomes? #HITSM |
| John Prince @thetechofficer The caregiver problem is growing & I want to build awareness so we can seek solutions together. cc @ShereesePubHlth #healthcare #eldercare RT @IrmaRaste: Thanks for sharing this personal perspective! #HITsm |
| Dave deBronkart @ePatientDave And many still do think they're alone! I just encountered a breast cancer activist with a 240 page book of tips she's accumulated - has given away 3000 copies - just discovered #BCSM and @Stales. (Right Stales?) #HITSM |
| Inspire @InspireIsHealth RT @GraceCordovano: As a #patient, primary #carepartner to 2 disabled adults, & a patient advocate, if means having all of the info & tools needed to make real-time, educated decisions about care & treatment planning. Also, means being proactive member of #healthcare ecosystem & economy #HITsm |
| Amanda G @LAlupusLady @BFMack When a newly diagnosed person reaches out... the needle moves. One patient at a time. #HITsm |
| Brian Mack @BFMack RT @ePatientDave: @BFMack Your excellent question is why we gotta STAY woke about what's going on, including in our feeds. This is btw one of the great values of joining a good patient community like @smart_patients or @teaminspire or #BCSM - good ones keep us from getting overconfident. #HITSM |
| Amanda G @LAlupusLady RT @JBBC: A5 Personal stories and first person accounts of illness are the life blood pulsing through the social media healthcare eco-system #hitsm |
| John Prince @thetechofficer I would appreciate hearing your thoughts. & maybe we can share tips. RT @lenisocial: I will definitely read this later... I can relate like you talk about in your post. #hitsm |
| Amanda G @LAlupusLady RT @Crohnoid: |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Great tip on tracking #health stats. What tools/techniques do you use for that Amanda? #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @LAlupusLady Great tip on tracking #health stats. What tools/techniques do you use for that Amanda? #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T4 I often use the word "seamless" when discussing system improvements with clients who directly serve patients. We need innovation to reflect the true nature of users, families who want to thrive in their health while getting on w/ their lives. #HITsm |
| John Prince @thetechofficer RT @Lisa03755: This. RT @gracecordovano: @HealthSparq @BFMack Yes! Write it all down! You can be super organized in your head & mentally prepared and then the appt happens and goes a million different directions. #HITsm #healthcare |
| John Lynn @techguy There's a real power in just finding someone else that has a shared experience. Even if it can't change the experience. #HITsm |
| Brian Mack @BFMack RT @techguy: #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ePatientDave: @jeremycoleman Note: @jeremycoleman Note: It's not just that visits can be too "emotional" - it's NORMAL for ANYONE in ANY MEETING to not remember everything. Why do ya think people publish MINUTES of meetings?? It's a giant cultural insult to say this is a PATIENT failure! #HITSM |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski Any life-altering diagnosis should get a 2nd opinion. I have many patients pursue 3rd & 4th. And when they are all different, we schedule a virtual diagnosis review. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano So very true! With hubby’s heart Dr, I had to go speak with the financial officer to point out so many errors on the bills to-which she replied, “Yeah we have old software” 😳 but how many are not looking & over-paying?! #HITsm |
| John Prince @thetechofficer RT @lalupuslady: @BFMack When a newly diagnosed person reaches out... the needle moves. One patient at a time. #HITsm |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell Social media can be a way to connect patients with others for support; w information about their condition and where to seek help/referrals; w news and research about their condition; with thought leaders and with medical professionals who specialize in their condition. #HITsm |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: The caregiver problem is growing & I want to build awareness so we can seek solutions together. cc @ShereesePubHlth #healthcare #eldercare RT @IrmaRaste: Thanks for sharing this personal perspective! #HITsm |
| Dave deBronkart @ePatientDave Okay #hitsm @IrmaRaste I gotta run - hope you'll archive this and promote it. It went far beyond what I anticipated - really REALLY good to see how far everyone's thinking has advanced in the 10 years since e-patient "came out" into the public eye! #HITSM |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @HealthcareScene: T5: T5: What role does Social Media play for ePatients? @IrmaRaste #HITsm https://t.co/F4Ce3qtZWa |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @blestab @HealthcareScene Hi Blessed, great to have you on! Thanks for your perspective. #hitsm |
| John Lynn @techguy @jimmie_vanagon Nicely done! Those are amazing numbers for the portal. I'm sure text will be even better. #HITsm And for the doctors watching at home, how do you get paid for "all this extra work"? |
| Amanda G @LAlupusLady RT @ePatientDave: And many still do think they're alone! I just encountered a breast cancer activist with a 240 page book of tips she's accumulated - has given away 3000 copies - just discovered #BCSM and @Stales. (Right Stales?) #HITSM |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 :( RT @oliveblogs: RT @GraceCordovano: @oliveblogs @techguy I cry regularly on behalf of my patients & loved ones. IT SHOULDN'T BE THIS HARD! #HITsm |
| Amanda G @LAlupusLady RT @techguy: There's a real power in just finding someone else that has a shared experience. Even if it can't change the experience. #HITsm |
| Healthcare Scene @HealthcareScene BONUS: Name the “e” words that “e” in ePatient can stand for. We know the original 4 – equipped, enabled, empowered and engaged, but there are so many more possibilities… go! @IrmaRaste #HITsm https://t.co/lsXuZaaHGC |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @lisadbudzinski: T2 Tesearch & the understanding of such so that we can speak with Drs intelligently about our condition/s #HITsm |
| Enlightening Results 💡 @GraceCordovano @Crohnoid I learn so much from tweet chats! Personally love the conversations that happen between patients, carepartners, newly diagnosed, physicians, caregivers, & others in the ecosystem, all focusing on authentic discussion. #HITsm |
| Amanda G @LAlupusLady RT @thetechofficer: RT @lalupuslady: RT @lalupuslady: @BFMack When a newly diagnosed person reaches out... the needle moves. One patient at a time. #HITsm |
| HealthSparq @HealthSparq RT @HealthcareScene: T5: T5: What role does Social Media play for ePatients? @IrmaRaste #HITsm https://t.co/F4Ce3qtZWa |
| John Prince @thetechofficer RT @lenisocial: RT @GraceCordovano: T5) SoMe removes barriers, hierarchies, provides real-time, global access to info & peer to peer support 24 hours a day… #HITsm #healthcare |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @LAlupusLady: ePatients use whatever they can to demonstrate the impact of our condition(s) - I do not stop raising awareness for #lupus when May is over... #HITsm https://t.co/IXlNms8lgv |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @GraceCordovano: T3) Prepare for every appointment. You wouldn't show up to a business meeting unprepared, your health is more important than any meeting you have ever been to. 👉bring a carepartner 👉research your dr 👉write down ?'s 👉be clear on next steps before leaving exam room #hitsm |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Yes! 👏👏👏💕 When the 1st Dr didn’t even look at hubby’s leg & just stated “cut it off” within the first 5 minutes.....I turned to look at hubby & he was going out the door 😉 #HITsm |
| Dave deBronkart @ePatientDave @techguy It's universal! Here's the legendary @RAWarrior Kelly Young recounting her own epiphany on this: #HITSM "Learning to use my mother-of-a-patient voice" 2010! https://t.co/8HPwvHhTq4 |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @thetechofficer: Which do you find are the best platforms for sharing? & why? RT @leachatham: RT @LAlupusLady: Love it. Important to understand that every patient has a unique experience - understand better through sharing. #HITsm |
| Enlightening Results 💡 @GraceCordovano @ePatientDave @IrmaRaste Have a fabulous weekend Dave! You seriously rock & had so many mic drops during the discussion! #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba e= empowered, efficient, equity #HITsm https://t.co/PXdbCIgOZl |
| Brian Mack @BFMack Oh my gosh, this is pure gold! Just because someone is managing an illness does NOT mean they are DEFINED by the illness! We all have challenges and struggles. It's called LIFE! #HITSM |
| John Lynn @techguy @GraceCordovano @lisadbudzinski We had this with my daughter when she hurt her thumb. 2 doctors and a radiologist friend later and we finally got to the right diagnosis. I can't imagine what we'd have done if 2/3 of the people involved weren't friends. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Never stop asking questions! If your doc doesn’t like it, he is not YOUR doc. Find another. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BFMack: THAT is excellent Advice! I HIGHLY recommend this series from Vox Media! #HITSM https://t.co/JyMcj7pJOx |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @BFMack: Oh my gosh, this is pure gold! Just because someone is managing an illness does NOT mean they are DEFINED by the illness! We all have challenges and struggles. It's called LIFE! #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @anthonynotleon: @HealthcareScene @IrmaRaste A3 - Our phones have become extensions for many of us. Use it! Keep a running list of questions on future notes to your Drs, track what you can, aggregate records, offer to share wearable insights where applicable. Just had a Doc tell us, wearable info helped him save a pt #hitsm |
| John Lynn @techguy Exciting! #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Excellent point Jeremy. What tools/tricks do you use/recommend? #hitsm |
| Enlightening Results 💡 @GraceCordovano T5) SoMe has connected me to experts who have attended conferences, who saw presentations & posters of currently unpublished work, connected me with those authors, how then collaborated with me to provide unpublished results to help patients. Mind blown #hitsm |
| Brian Mack @BFMack RT @EMRAnswers: |
| John Prince @thetechofficer Full length stories? I'm happy to submit my experiences and thoughts. RT @s4pm: RT @HealthcareScene: T4: What has your experience been as an ePatient or working with ePatients? Stories are welcome. @IrmaRaste #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @techguy @GraceCordovano It’s even more frightening when one does not have medical friends and flying blind 😉 #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @jeremycoleman: @anthonynotleon @HealthcareScene @IrmaRaste I'd go farther and use that camera to take pics of YOUR records. The sad part is there are better photo organizing software apps than PHR's. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @lenisocial: @LAlupusLady Similar to @patientslikeme... the idea of having a place where you're able to relate, have a sense of community and support. #hitsm |
| Marie Ennis-O'Connor @JBBC @HealthcareScene @IrmaRaste enterprising, enlightened #hitsm |
| John Prince @thetechofficer Awareness makes such a difference. RT @jbbc: A5 Personal stories and first person accounts of illness are the life blood pulsing through the social media healthcare eco-system #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @GraceCordovano: T5) SoMe has connected me to experts who have attended conferences, who saw presentations & posters of currently unpublished work, connected me with those authors, how then collaborated with me to provide unpublished results to help patients. Mind blown #hitsm |
| Dave deBronkart @ePatientDave @techguy And here's one of the most ferocious stories ever - big California health system wanted to give daughter an UNNECESSARY kind of valve surgery just so they didn't have to send her out of network.(!) "Mama Lion" @DianeEngleman bit their asses off. Jerks. #HITSM |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @ePatientDave: @techguy And here's one of the most ferocious stories ever - big California health system wanted to give daughter an UNNECESSARY kind of valve surgery just so they didn't have to send her out of network.(!) "Mama Lion" @DianeEngleman bit their asses off. Jerks. #HITSM |
| Enlightening Results 💡 @GraceCordovano I may be biased but ENLIGHTENED 🎯 #HITSM |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell @BFMack One of the answers is a need to publish research to show that all of these efforts are making a difference. #HITsm |
| Amanda G @LAlupusLady Bonus⭐️ ePatients are extraordinary experts with experience 💫 effective at conveying symptoms and emotions. When not fatigued ePatients are energetic and excellent exceptional advocates ePatients are everything! #HITsm |
| Dave deBronkart @ePatientDave @Crohnoid @evernote @nickdawson @S4PM You too have a tattooed QR code?? Got a pic, to match with @MightyCasey's?? #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste BONUS: Get your “e” words in for #ePatient! I will collect and publish a list. Maybe even a word cloud (hey @BFMack :-) #hitsm |
| Healthcare Scene @HealthcareScene Let's give a massive thank you to @IrmaRaste for hosting this week's #HITsm chat and to each of you who participated. https://t.co/gkPzfpFDKW |
| Healthcare Scene @HealthcareScene Join us for next week's #HITsm chat on the topic of "Healthcare tech: Challenges in User Adoption & Implementation" hosted by @TheTechOfficer |
| Dave deBronkart @ePatientDave @GraceCordovano @IrmaRaste LOL look who's talking - the Big Dropper herself! <3 #HITSM |
| Amanda G @LAlupusLady RT @techguy: Exciting! #HITsm |
| Jeremy Coleman @jeremycoleman @IrmaRaste I'd always ask what are the alternative to any med's and discuss side effects or long term effects. Always talk about labs, how are they trending, or could other treatments take the place of meds. Basically ask for options and what's the tradeoff's. #hitsm |
| Enlightening Results 💡 @GraceCordovano @ePatientDave @Crohnoid @evernote @nickdawson @S4PM @MightyCasey This is incredible #Hitsm |
| Healthcare Scene @HealthcareScene In case you missed today's #HITsm chat hosted by @IrmaRaste, you can find the full transcript of the chat here: https://t.co/smVtmbtsmN |
 | Be The Cure | Soyez le Remède @BeTheCureCA RT @HealthcareScene: 15 min til this week's #HITsm chat hosted by @IrmaRaste on the topic of "What Does It Mean to Be an ePatient?" Details: https://t.co/y0vkBapdyn |
| Brian Mack @BFMack BONUS: How about ESSENTIAL! We will never achieve the Nirvana of a fully integrated WELL care society without the proactive participation & feedback of those who interact with the system most! #LetsDOThis! #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @EMRAnswers @BFMack Hi Linda, great to have you here! Good points. What if #patient doesn’t have a “natural” caregiver, how can they get someone to help them? #hitsm |
| Dave deBronkart @ePatientDave @WheezyNurse LOL some years ago I made @SixUntilMe giggle when I mentioned from the stage something about "up in the 603" ... young punks think over-40 means "the In door is shut & locked" :-) #HITSM |
| Dave deBronkart @ePatientDave RT @GraceCordovano: @techguy @ePatientDave As someone who was misdiagnosed with advanced lymphoma, I often think about what my life would have been like had I immediately started treatment w/o a 2nd opinion (which cleared me of cancer & diagnosed me w/a fungal infection that needed no treatment) #HITsm |
| Lisa Davis Budzinski @lisadbudzinski This! 👇 #HITsm |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @HealthcareScene @IrmaRaste Thanks, @IrmaRaste & @techguy Have a great weekend everyone. #hitsm https://t.co/aLpIxvwhO2 |
| Enlightening Results 💡 @GraceCordovano @HealthcareScene @IrmaRaste Brilliant discussions today @IrmaRaste #HITsm https://t.co/moQvvZ7RYG |
| Brian Mack @BFMack RT @thetechofficer: RT @lalupuslady: RT @lalupuslady: @BFMack When a newly diagnosed person reaches out... the needle moves. One patient at a time. #HITsm |
| Blessed Tabvirwa #MaskUp or #StayAtHome @blestab RT @IrmaRaste: BONUS: BONUS: Get your “e” words in for #ePatient! I will collect and publish a list. Maybe even a word cloud (hey @BFMack :-) #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Good points. What if #patient doesn’t have a “natural” caregiver, how can they get someone to help them? #hitsm Are there free #PatientAdvocacy resources? |
| John Prince @thetechofficer Would like to connect on your Mission: To catalyze collaborative partnerships across the continuum of care. Encouraging patients, providers & caregivers as =partners. @S4PM #HITsm |
| Dave deBronkart @ePatientDave Hey, that's a SHARP CRISP QR code tattoo! #HITSM |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell @ePatientDave @techguy @DianeEngleman 🤯 #hitsm |
| Amanda G @LAlupusLady @HealthcareScene @IrmaRaste Thank you all! Thank you @IrmaRaste @techguy and @HealthcareScene for an important #HITsm 💓 |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski @techguy This is why we need to level the playing field. #HITsm |
| Dave deBronkart @ePatientDave @LyndaGMitchell @IrmaRaste @S4PM Let's do it! Let's get something started on SPM Connect! #HITSM |
| Brian Mack @BFMack Thanks @IrmaRaste for a GREAT discussion topic, and of course to @Techguy & @HealthcareScene for bringing the NOISE and the FUNK week after week! #HITSM https://t.co/XvJqKagzey |
| John Prince @thetechofficer Another great #HITsm chat. Thank you.If any of you are in NYC, @Lisa03755 & I are hosting a casual meetup on Wall Street for healthcare professionals. We have 2-3 spots for people to join us. Just DM Lisa for details. Have a great weekend, Everyone! |
| Amanda G @LAlupusLady @IrmaRaste Too many to list- #Lupus minder is my go to and since my Drs. all use different portals I attempt to coordinate all current labs and prescriptions #HITsm |
| John Prince @thetechofficer RT @HealthcareScene: Join us for next week's #HITsm chat on the topic of "Healthcare tech: Join us for next week's #HITsm chat on the topic of "Healthcare tech: Challenges in User Adoption & Implementation" hosted by @TheTechOfficer |
| Enlightening Results 💡 @GraceCordovano RT @HealthcareScene: In case you missed today's #HITsm chat hosted by @IrmaRaste, you can find the full transcript of the chat here: In case you missed today's #HITsm chat hosted by @IrmaRaste, you can find the full transcript of the chat here: https://t.co/smVtmbtsmN |
| Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell @ePatientDave @IrmaRaste @S4PM Mapping the e-Patient Journey. :) #HITsm |
| Dave deBronkart @ePatientDave @LyndaGMitchell btw, the World Bank has a TON of info on empowerment. There's a separate body of knowledge in citizen participation. I sum up both in this 8 minute "slidecast" https://t.co/y0CyuPMvMQ #HITSM |
| Dave deBronkart @ePatientDave RT @Crohnoid: |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste Huge THANK YOU to all who participated today! 👏 What an awesome discussion. So many great points, tips, tricks, topics for further exploration. I would love to continue the conversation beyond this #HITsm chat hour 🚀 #HCLDR #pinksocks #ePatient #PatientExperience #healthcare |
| Brian Mack @BFMack RT @LyndaGMitchell: @BFMack One of the answers is a need to publish research to show that all of these efforts are making a difference. #HITsm |
| John Prince @thetechofficer Thank you for your kind feedback. Would love to see if we can collaborate at some point. #HITsm RT @PatientAdvStrat: Thanks for the thoughtful and spot-on article, @thetechofficer https://t.co/bBWCU2ACG8 |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Thank you for your kind feedback. Would love to see if we can collaborate at some point. #HITsm RT @PatientAdvStrat: Thanks for the thoughtful and spot-on article, @thetechofficer https://t.co/bBWCU2ACG8 |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @HealthcareScene: Join us for next week's #HITsm chat on the topic of "Healthcare tech: Join us for next week's #HITsm chat on the topic of "Healthcare tech: Challenges in User Adoption & Implementation" hosted by @TheTechOfficer |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Another great #HITsm chat. Thank you.If any of you are in NYC, @Lisa03755 & I are hosting a casual meetup on Wall Street for healthcare professionals. We have 2-3 spots for people to join us. Just DM Lisa for details. Have a great weekend, Everyone! |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Would like to connect on your Mission: Would like to connect on your Mission: To catalyze collaborative partnerships across the continuum of care. Encouraging patients, providers & caregivers as =partners. @S4PM #HITsm |
| Lisa 🌲 Chau || Clover Canal 🍀💦 @Lisa03755 RT @thetechofficer: Awareness makes such a difference. RT @jbbc: A5 Personal stories and first person accounts of illness are the life blood pulsing through the social media healthcare eco-system #hitsm |
| Enlightening Results 💡 @GraceCordovano Just 1 example of what being an e-patient is IRL #HITsm |
| Inspire @InspireIsHealth RT @ePatientDave: @LyndaGMitchell btw, the World Bank has a TON of info on empowerment. There's a separate body of knowledge in citizen participation. I sum up both in this 8 minute "slidecast" https://t.co/y0CyuPMvMQ #HITSM |
| Dave deBronkart @ePatientDave @GraceCordovano Ah, but this has Grace written all over it! So any "incredible" is you in the mirror, seeing more of what you stand for. #HITSM |
| Enlightening Results 💡 @GraceCordovano RT @BFMack: Oh my gosh, this is pure gold! Just because someone is managing an illness does NOT mean they are DEFINED by the illness! We all have challenges and struggles. It's called LIFE! #HITSM |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski Oh my goodness Lisa. I'm so sorry that your husband and you went through that. How awful! #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @Crohnoid @ePatientDave @evernote @nickdawson @S4PM Another great “woke” moment!! 👏👏👏✨💕 #HITsm |
| Jeremy Coleman @jeremycoleman @GraceCordovano @blestab @LeaChatham Any provider that would try to shame a patient into not googling is probably too arrogant to look things up before making decisions also. #hitsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste An #engineer in me resonates w/ this. Having masters degree in #Engineering #Management & 20 yrs in #product development definitely helps here. BUT we’ve all planned a big vacation, car purchase or house renovation - use those #project skills for your #health management! #hitsm |
| Enlightening Results 💡 @GraceCordovano DO NOT PAY ANY MEDICAL BILL THAT IS NOT FULLY ITEMIZED. Not yelling, just Jersey loud for emphasis. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @Crohnoid @ePatientDave @evernote @nickdawson @S4PM Is this for real? How many people have done this? #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BFMack: BONUS: BONUS: How about ESSENTIAL! We will never achieve the Nirvana of a fully integrated WELL care society without the proactive participation & feedback of those who interact with the system most! #LetsDOThis! #HITSM |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @GraceCordovano: @HealthcareScene @IrmaRaste Brilliant discussions today @IrmaRaste #HITsm https://t.co/moQvvZ7RYG |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste @GraceCordovano @HealthcareScene Thanks Grace. Feels like we just scratched the surface. #HITsm |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Oh there’s so much more. All these events add up to learning moments & the strength to move forward with thicker skin 😉 #HITsm |
| Enlightening Results 💡 @GraceCordovano @LeaChatham @blestab @jeremycoleman Im so sorry Lea. Thank you for sharing that powerful experience & key learnings with us so hopefully it will never happen again. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @BFMack: Thanks @IrmaRaste for a GREAT discussion topic, and of course to @Techguy & @HealthcareScene for bringing the NOISE and the FUNK week after week! #HITSM https://t.co/XvJqKagzey |
| Enlightening Results 💡 @GraceCordovano RT @techguy: There's a real power in just finding someone else that has a shared experience. Even if it can't change the experience. #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ePatientDave: @LyndaGMitchell btw, the World Bank has a TON of info on empowerment. There's a separate body of knowledge in citizen participation. I sum up both in this 8 minute "slidecast" https://t.co/y0CyuPMvMQ #HITSM |
| Lisa Davis Budzinski @lisadbudzinski @HealthcareScene @IrmaRaste Thank you! 👏👏👏✨ #HITsm |
| IrmaRaste ✨ InfluenceThroughStorytelling™ @IrmaRaste RT @ePatientDave: @GraceCordovano Ah, but this has Grace written all over it! So any "incredible" is you in the mirror, seeing more of what you stand for. #HITSM |
| Lisa Davis Budzinski @lisadbudzinski RT @HealthcareScene: In case you missed today's #HITsm chat hosted by @IrmaRaste, you can find the full transcript of the chat here: In case you missed today's #HITsm chat hosted by @IrmaRaste, you can find the full transcript of the chat here: https://t.co/smVtmbtsmN |
#HITsm content from Twitter.