#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
 | John Novack @J2Novack RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
 | Targeted Oncology @TargetedOnc Perliminary analyses of 2 cohorts from the phase 2 multicohort ZENITH20 trial evaluating poziotinib show clinical activity and tolerability for the tyrosine kinase inhibitor in patients with NSCLC harboring EGFR and HER2 exon 20 insertions.#LCSM https://t.co/6aEEiqRjYz |
 | Dear Dr. Researcher, PhD @corrie_painter RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
 | Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
 | Kristin Ito @KAdvocate_LCAM Here we go :) Kristin Ito joining from sunny (not snowy) Colorado! @lcsmchat #LCSM |
| Upstage Lung Cancer @UpstageLungCanc Good evening, everyone! Tuning in from Boston. Performing-arts-based nonprofit raising funds for #lungcancer research. Always an honor to be here and learn from all of you! #lcsm |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | Danielle Pardue @Actorielle Drink ✅ laptop ✅ slippers ✅ excitement about #cancer #research #advocacy and learning and sharing with my #lcsm peeps ✅ Good evening, friends!!! |
 | Jill Feldman @jillfeldman4 Hi everyone, Jill Feldman here from Deerfield, Il (Chicago burb) #LCSM |
| #LCSM Chat @lcsmchat @KAdvocate_LCAM Hi Kristin! #lcsm |
 | Rosemary Conway @SLPChitChat RT @LungCancerFaces: #LCSM Chat TODAY! Please retweet & join us. @ChristianRolfo https://t.co/4fQtRl5DZp |
| Jill Feldman @jillfeldman4 RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes -- please take a moment to introduce yourselves #lcsm |
 | kristen kimball @KimballKristen Hi, it's Kris (Kimball) from Boston, glad to be here! #LCSM |
| #LCSM Chat @lcsmchat @Actorielle Hey Danielle! #lcsm |
 | Dee Sparacio @womenofteal Dee from NJ. Ovarian cancer survivor, research advocate, author, and cofounder of #gyncsm community with @btrfly12 #lcsm |
| #LCSM Chat @lcsmchat @jillfeldman4 Howdy Jill! #lcsm |
| #LCSM Chat @lcsmchat @KimballKristen Hey Kris! #lcsm |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
 | @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher Cindy tweeting from The Garden State- NJ! #mmsm #lcsm |
| Dear Dr. Researcher, PhD @corrie_painter Hi #LCSM, Corrie here from Massachusetts. I’m 11 years out from angiosarcoma, but have worked with many cancer communities. I’m excited to learn from you all:) |
| #LCSM Chat @lcsmchat @womenofteal @btrfly12 Welcome Dee! #lcsm |
| kristen kimball @KimballKristen @Actorielle Hi there Danielle! <3 #lcsm |
 | Triage Cancer @TriageCancer Hello! We're a national nonprofit that provides free education on the legal and practical issues that can arise after a #cancer diagnosis (through events, materials, and resources). Thrilled to be here to learn and share! Thank you #lcsm! #beyonddiagnosis #cancerrights |
| Dear Dr. Researcher, PhD @corrie_painter RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
 | Gina @EAustin1969 Hello all, I’ll be 👀 #lcsm |
 | Erika Hlavacek @ErikaHlavacek Hi! Erika from Chicago. #lcsm |
| kristen kimball @KimballKristen @lcsmchat Hey Deana! #lcsm |
 | TerriConneran @TerriConneran Hi all beautiful evening here in Charlotte, NC #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
 | Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian This is Rami Manochakian. Thoracic oncologist from Mayo Clinic, FL First thing I want to tweet about is to thank @lcsmchat for bringing this very important topics #CancerResearchAdvocates to #LCSM |
 | Eden Lake @EdenLake Eden near Chicago... adenocarcinoma egfr surgery was in 2015 happy to be here tonight #lcsm |
| Danielle Pardue @Actorielle RT @TriageCancer: Hello! We're a national nonprofit that provides free education on the legal and practical issues that can arise after a #cancer diagnosis (through events, materials, and resources). Thrilled to be here to learn and share! Thank you #lcsm! #beyonddiagnosis #cancerrights |
| John Novack @J2Novack Hello to all here in the #LCSM community, John Novack here to follow and learn. |
| Danielle Pardue @Actorielle RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
 | Denise A Croix, PhD @CroixDenise @JFreemanDaily @lcsmchat Denise from Dallas, work in the cancer diagnostic arena. Here to expand my horizons. #lcsm |
| #LCSM Chat @lcsmchat @MyelomaTeacher Welcome Cindy! I’m from Cherry Hill. (Deana) #lcsm |
| Janet Freeman-Daily @JFreemanDaily I'm excited to that members of other Twitter hashtag communities will also be joining us this evening! #gyncsm #bscm #mmsm #btsm #lcsm |
| Danielle Pardue @Actorielle RT @UpstageLungCanc: Good evening, everyone! Tuning in from Boston. Performing-arts-based nonprofit raising funds for #lungcancer research. Always an honor to be here and learn from all of you! #lcsm |
 | Stephen V Liu, MD @StephenVLiu RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| #LCSM Chat @lcsmchat @corrie_painter Welcome Corrie! #lcsm |
 | Aliye Bricker @AliyeBricker Hello Everyone, Aliye Bricker here, 5+year survivor of stage four RET driven NSCLC and recent co-founder of RETpositive, joining from Cleveland! #LCSM |
| #LCSM Chat @lcsmchat @EAustin1969 Hey Gina! #lcsm |
 | Dr. Kelly Shanahan @stage4kelly Looking forward to lurking and learning from the incredible #lcsm community! |
| Erika Hlavacek @ErikaHlavacek Other hashtags....Amazing. Welcome all. #lcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| #LCSM Chat @lcsmchat @ErikaHlavacek Welcome Erika! #lcsm |
 | Austin Peppers @Jalapeno448 Hi all! Austin, an Ohioan living on the east coast (and now soon Utah) here! #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @lcsmchat I there- fellow Jersey Girl! #lcsm #mmsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: I'm excited to that members of other Twitter hashtag communities will also be joining us this evening! #gyncsm #bscm #mmsm #btsm #lcsm |
| #LCSM Chat @lcsmchat @TerriConneran Hi Terri! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
| #LCSM Chat @lcsmchat @RManochakian You’re very welcome! #lcsm |
 | Amanda Haddock 🧬 @AmandaHaddock @JFreemanDaily I’m riding shotgun so I’m going to try to 👀while riding. My experience is as a caregiver for childhood brain cancer, but try to advocate for all whenever possible. #lcsm |
 | Dave Bjork @bjork5 @JFreemanDaily Hello friends! Dave here from Boston #LCSM 😊 |
| Jill Feldman @jillfeldman4 This chat is for all cancer hashtags. #PatientResearchAdvocates @AdvocateCollab #LCSM |
| Erika Hlavacek @ErikaHlavacek 5+ years! I want to be you when I grow up! #lcsm |
| #LCSM Chat @lcsmchat @EdenLake Hey Eden! #lcsm |
| #LCSM Chat @lcsmchat @J2Novack Hi John! #lcsm |
| Dee Sparacio @womenofteal @lcsmchat @MyelomaTeacher The Jersey Girl contingent Hi Cindy! Hi Deana ! I'm off Exit 8 #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily Hi there. #supportivecare #PalliativeCare physician in Houston listening in as the kids allow. #lcsm https://t.co/ylKRuVhHV4 |
 | NCI Cancer Stats @NCICancerStats Did you know that #LungCancer is the leading cause of cancer death in both men and women in the US? Use our Cancer Stat Facts sheet to learn more about this cancer: https://t.co/BVqvN4e1pm #LCSM https://t.co/ERVRxHcPJT |
| Danielle Pardue @Actorielle RT @jillfeldman4: This chat is for all cancer hashtags. #PatientResearchAdvocates @AdvocateCollab #LCSM |
| #LCSM Chat @lcsmchat @CroixDenise @JFreemanDaily Welcome Denise! #lcsm |
| TerriConneran @TerriConneran @ErikaHlavacek Great that we all share best practices & ideas!! #gyncsm #bscm #mmsm #btsm #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I'm excited to that members of other Twitter hashtag communities will also be joining us this evening! #gyncsm #bscm #mmsm #btsm #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: I'm excited to that members of other Twitter hashtag communities will also be joining us this evening! #gyncsm #bscm #mmsm #btsm #lcsm |
| Eden Lake @EdenLake @Jalapeno448 Welcome Austin #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @womenofteal @lcsmchat Hi Dee, let’s do lunch soon. #lcsm #mmsm |
| #LCSM Chat @lcsmchat @AliyeBricker Hi Aliye! #lcsm |
| Janet Freeman-Daily @JFreemanDaily On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
| #LCSM Chat @lcsmchat @Jalapeno448 Hey Austin! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Jill Feldman @jillfeldman4 RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Eden Lake @EdenLake RT @jillfeldman4: This chat is for all cancer hashtags. #PatientResearchAdvocates @AdvocateCollab #LCSM |
 | Dr. Amy C. Moore @acmoorephd Good evening, everyone! Amy Moore, VP of Global Engagement and Patient Partnerships with @LUNGevity, here. Looking forward to this discussion! #LCSM Chat |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #LCSM |
 | Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #lcsm |
| #LCSM Chat @lcsmchat @TimAllenMDJD Hi Tim! #lcsm |
| Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| Eden Lake @EdenLake RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @EmilyVenanzi Thank you for what you do and for being a research advocate #LCSM |
| Janet Freeman-Daily @JFreemanDaily I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
| TerriConneran @TerriConneran RT @jillfeldman4: This chat is for all cancer hashtags. #PatientResearchAdvocates @AdvocateCollab #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #LCSM |
| #LCSM Chat @lcsmchat @AmandaHaddock @JFreemanDaily Welcome Amanda! #lcsm |
| Danielle Pardue @Actorielle RT @acmoorephd: Good evening, everyone! Amy Moore, VP of Global Engagement and Patient Partnerships with @LUNGevity, here. Looking forward to this discussion! #LCSM Chat |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Jill Feldman @jillfeldman4 Welcome to the, almost, two hand club! No small feat - Grateful for you ❤️ #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: This chat is for all cancer hashtags. #PatientResearchAdvocates @AdvocateCollab #LCSM |
| Dee Sparacio @womenofteal @MyelomaTeacher @lcsmchat Yes! We can meet for lunch once again. It has been too long. #lcsm |
| #LCSM Chat @lcsmchat @bjork5 @JFreemanDaily Hey Dave! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc Hi folks, Matt Katz here. I'm a radiation oncologist practicing in MA/NH. Lurking but hoping to learn! #lcsm |
 | Biagio Ricciuti, MD PhD @BiagioRicciutMD RT @ASCO_pubs: Plasma cell-free DNA NGS before pathologic diagnosis in hospitalized patients with suspected met NSCLC resulted in substantially shorter time to genotyping result compared with standard outpatient workflows https://t.co/OK3BjYhwOn #lcsm #JCOPO @BiagioMd @DrMarkAwad @df_hcc https://t.co/hA2R2XJZB6 |
| #LCSM Chat @lcsmchat RT @ErikaHlavacek: 5+ years! I want to be you when I grow up! #lcsm |
| Kristin Ito @KAdvocate_LCAM RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
| Eden Lake @EdenLake RT @NCICancerStats: Did you know that #LungCancer is the leading cause of cancer death in both men and women in the US? Use our Cancer Stat Facts sheet to learn more about this cancer: https://t.co/BVqvN4e1pm #LCSM https://t.co/ERVRxHcPJT |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy! #lcsm |
| #LCSM Chat @lcsmchat @EmilyVenanzi Welcome Emily! #lcsm |
| Austin Peppers @Jalapeno448 RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Dee Sparacio @womenofteal RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| #LCSM Chat @lcsmchat @IshwariaMD @JFreemanDaily Welcome Doctor! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Dee Sparacio @womenofteal RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| Jill Feldman @jillfeldman4 T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| #LCSM Chat @lcsmchat @acmoorephd @LUNGevity Hi Amy! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FIVE topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
| Triage Cancer @TriageCancer RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| Austin Peppers @Jalapeno448 RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
 | Christina Lizaso @btrfly12 RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| Austin Peppers @Jalapeno448 RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: Patient advocates support patients/caregivers, improve disease education/awareness, and raise funds for research. RAs have a personal connection to cancer and are passionate about helping research translate into meaningful outcomes for patients. #LCSM |
| kristen kimball @KimballKristen RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| #LCSM Chat @lcsmchat @subatomicdoc Hi Matt! Congrats on college acceptances. #lcsm |
| Erika Hlavacek @ErikaHlavacek RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: Patient advocates support patients/caregivers, improve disease education/awareness, and raise funds for research. RAs have a personal connection to cancer and are passionate about helping research translate into meaningful outcomes for patients. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: Patient advocates support patients/caregivers, improve disease education/awareness, and raise funds for research. RAs have a personal connection to cancer and are passionate about helping research translate into meaningful outcomes for patients. #LCSM |
| Dee Sparacio @womenofteal @JFreemanDaily T1 Research advocates bridge the gap between researchers- academic, government , corporate and health care organizations and patients. They provide feedback on trial design, insure a patient centered focus and gives a face to the disease for those at the bench. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @RManochakian: A1: A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| Jill Feldman @jillfeldman4 T1 Research advocates work directly with researchers and are the liaison between the scientific community & their disease community. We provide the collective voice of our community to drive research questions that are important & meaningful to patients -- patient centered #LCSM |
| Christina Lizaso @btrfly12 RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “The Hows and Whys of Cancer Research Advocacy” More info on our blog (including the 5 topic questions) at https://t.co/XJ95nrD9Dh https://t.co/Q0nJ7RWKTT |
| kristen kimball @KimballKristen RT @RManochakian: A1: A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian A1: Research advocates have different role than patients advocates. Research advocates they focus on anything related to research/science but role could overlap with patients advocates. Also some advocates elect to be both research and patients advocates #LCSM |
| #LCSM Chat @lcsmchat RT @womenofteal: @JFreemanDaily T1 Research advocates bridge the gap between researchers- academic, government , corporate and health care organizations and patients. They provide feedback on trial design, insure a patient centered focus and gives a face to the disease for those at the bench. #lcsm #gyncsm |
| Upstage Lung Cancer @UpstageLungCanc RT @womenofteal: @JFreemanDaily T1 Research advocates bridge the gap between researchers- academic, government , corporate and health care organizations and patients. They provide feedback on trial design, insure a patient centered focus and gives a face to the disease for those at the bench. #lcsm #gyncsm |
| Christina Lizaso @btrfly12 RT @jillfeldman4: T1 Research advocates work directly with researchers and are the liaison between the scientific community & their disease community. We provide the collective voice of our community to drive research questions that are important & meaningful to patients -- patient centered #LCSM |
| Dee Sparacio @womenofteal #gyncsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 Research advocates work directly with researchers and are the liaison between the scientific community & their disease community. We provide the collective voice of our community to drive research questions that are important & meaningful to patients -- patient centered #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: A1: A1: Research advocates have different role than patients advocates. Research advocates they focus on anything related to research/science but role could overlap with patients advocates. Also some advocates elect to be both research and patients advocates #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @RManochakian: A1: A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @RManochakian: A1: A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc @lcsmchat Hello! Thanks so much, we're happy that they are happy with it. I hope you are well! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: T1: Patient advocates support patients/caregivers, improve disease education/awareness, and raise funds for research. RAs have a personal connection to cancer and are passionate about helping research translate into meaningful outcomes for patients. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @womenofteal: @JFreemanDaily T1 Research advocates bridge the gap between researchers- academic, government , corporate and health care organizations and patients. They provide feedback on trial design, insure a patient centered focus and gives a face to the disease for those at the bench. #lcsm #gyncsm |
 | Sue B @sewerb RT @ivybelkins: Very glad to see #lungcancer getting national attention on @GMA! More people need to understand that everyone with lungs is at risk for #lungcancer! Thank you Annabelle Gurwitch for sharing your story and being part of the @EGFRResisters! #lcsm @lcfamerica @triparnasen |
| TerriConneran @TerriConneran T1 #LCSM Patient advocates are finding a better solution for one patient today - #research advocates are working to find better treatment solutions for tomorrow's patients |
| Erika Hlavacek @ErikaHlavacek RT @jillfeldman4: T1 Research advocates work directly with researchers and are the liaison between the scientific community & their disease community. We provide the collective voice of our community to drive research questions that are important & meaningful to patients -- patient centered #LCSM |
| Dee Sparacio @womenofteal RT @jillfeldman4: T1 Both types of advocates share the same goal of improving care & patient experience. Patient advocates offer peer to peer support, education, resources, break down barriers to dx & rx, etc. Research advocates go one step further & get involved in research process #LCSM |
 | Emily Skotte @EmilySkotte RT @TravisOsterman: This is an important paper highlighting the opportunity to improve lung cancer screening in women already receiving breast cancer screening. Great work @SandlerRhodes #lcsm #bcsm |
| Jill Feldman @jillfeldman4 T1 Conversely, RAs also disseminate information and findings back into our communities in a way that they can understand. We are constantly educating ourselves on the science & learning to ensure we understand the needs of our community and to keep up with research. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T1: T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| #LCSM Chat @lcsmchat RT @TerriConneran: T1 #LCSM Patient advocates are finding a better solution for one patient today - #research advocates are working to find better treatment solutions for tomorrow's patients |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 Conversely, RAs also disseminate information and findings back into our communities in a way that they can understand. We are constantly educating ourselves on the science & learning to ensure we understand the needs of our community and to keep up with research. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @JFreemanDaily T1 Research advocates are patient advocates that focus on advancing cancer search by serving on IRB’s, steering committees, sharing clinical trial opportunities with their communities, working with R& D of Pharma ....#lcsm #mmsm |
| TerriConneran @TerriConneran RT @jillfeldman4: T1 Research advocates work directly with researchers and are the liaison between the scientific community & their disease community. We provide the collective voice of our community to drive research questions that are important & meaningful to patients -- patient centered #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1: T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| Kristin Ito @KAdvocate_LCAM T1: Research Advocates help to provide patient perspective to push for better treatment outcomes, options and care #LCSM |
| kristen kimball @KimballKristen RT @JFreemanDaily: T1: T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @TerriConneran: T1 #LCSM Patient advocates are finding a better solution for one patient today - #research advocates are working to find better treatment solutions for tomorrow's patients |
| Dave Bjork @bjork5 #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian A1: Research advocates give advice through the research journey. For instance in clinical trials, they help with design and protocols. Represent patients opinions when it comes to potential risks. They give recommendations. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock @JFreemanDaily T1: I define a research advocate as someone who is working on the science in general, trying to advance initiatives and funding. Patient advocates are working more directly on the experience patients have both inside and outside of the research experience. #lcsm |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: @JFreemanDaily T1 Research advocates are patient advocates that focus on advancing cancer search by serving on IRB’s, steering committees, sharing clinical trial opportunities with their communities, working with R& D of Pharma ....#lcsm #mmsm |
| Erika Hlavacek @ErikaHlavacek RT @MyelomaTeacher: @JFreemanDaily T1 Research advocates are patient advocates that focus on advancing cancer search by serving on IRB’s, steering committees, sharing clinical trial opportunities with their communities, working with R& D of Pharma ....#lcsm #mmsm |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T1: T1: Research Advocates help to provide patient perspective to push for better treatment outcomes, options and care #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: A1: A1: Research advocates give advice through the research journey. For instance in clinical trials, they help with design and protocols. Represent patients opinions when it comes to potential risks. They give recommendations. #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: @JFreemanDaily T1: @JFreemanDaily T1: I define a research advocate as someone who is working on the science in general, trying to advance initiatives and funding. Patient advocates are working more directly on the experience patients have both inside and outside of the research experience. #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian Research advocates also help spread the word on importance of participating in research and clinical trials. They Advocate for participating in trials. #LCSM |
| Dee Sparacio @womenofteal Yes disseminating info/ research is so important. #lcsm #gyncsm |
| John Novack @J2Novack RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter T1 both play important roles, RA’s can do deep dives into the science, participate in grant reviews, participate in clinical trial design. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @RManochakian: A1: A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #lcsm #mmsm |
| #LCSM Chat @lcsmchat RT @RManochakian: Research advocates also help spread the word on importance of participating in research and clinical trials. They Advocate for participating in trials. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @jillfeldman4: T1 Research advocates work directly with researchers and are the liaison between the scientific community & their disease community. We provide the collective voice of our community to drive research questions that are important & meaningful to patients -- patient centered #LCSM |
| #LCSM Chat @lcsmchat RT @womenofteal: Yes disseminating info/ research is so important. #lcsm #gyncsm |
| Danielle Pardue @Actorielle T1 this is fascinating: haven’t ever thought of the differences in terms. When I’m advocating with researchers I’m speaking for the benefit of patients, and when I’m advocating for patients the sought-after result is always related in some way to pertinent research. #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #mmsm #lcsm |
| #LCSM Chat @lcsmchat RT @corrie_painter: T1 both play important roles, RA’s can do deep dives into the science, participate in grant reviews, participate in clinical trial design. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @RManochakian: A1: A1: Research advocates have different role than patients advocates. Research advocates they focus on anything related to research/science but role could overlap with patients advocates. Also some advocates elect to be both research and patients advocates #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 this is fascinating: T1 this is fascinating: haven’t ever thought of the differences in terms. When I’m advocating with researchers I’m speaking for the benefit of patients, and when I’m advocating for patients the sought-after result is always related in some way to pertinent research. #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @AmandaHaddock: @JFreemanDaily T1: @JFreemanDaily T1: I define a research advocate as someone who is working on the science in general, trying to advance initiatives and funding. Patient advocates are working more directly on the experience patients have both inside and outside of the research experience. #lcsm |
| Jill Feldman @jillfeldman4 T1 And most of us do NOT have science backgrounds (it was my worst subject in school). We labor through the science. It's a labor of love and/or desperation, lol #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @KAdvocate_LCAM: T1: T1: Research Advocates help to provide patient perspective to push for better treatment outcomes, options and care #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @TerriConneran: T1 #LCSM Patient advocates are finding a better solution for one patient today - #research advocates are working to find better treatment solutions for tomorrow's patients |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily T1: RAs are at the table during study design. My research advocates serve on my career development award committee! They’re a part of every grant I’ve written — their time and expertise is valued and (consequently) budgeted in the grant! #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @jillfeldman4: T1 Conversely, RAs also disseminate information and findings back into our communities in a way that they can understand. We are constantly educating ourselves on the science & learning to ensure we understand the needs of our community and to keep up with research. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @jillfeldman4: T1 Conversely, RAs also disseminate information and findings back into our communities in a way that they can understand. We are constantly educating ourselves on the science & learning to ensure we understand the needs of our community and to keep up with research. #LCSM |
| #LCSM Chat @lcsmchat If you’re just watching the chat, please let us know you’re out there by sending a blank tweet with the hashtag #LCSM. I promise, we won’t bite! |
| Jill Feldman @jillfeldman4 RT @womenofteal: Yes disseminating info/ research is so important. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 And most of us do NOT have science backgrounds (it was my worst subject in school). We labor through the science. It's a labor of love and/or desperation, lol #LCSM |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @JFreemanDaily T1: @JFreemanDaily T1: RAs are at the table during study design. My research advocates serve on my career development award committee! They’re a part of every grant I’ve written — their time and expertise is valued and (consequently) budgeted in the grant! #lcsm |
| Dear Dr. Researcher, PhD @corrie_painter T1 a major contribution that RA’s can play for their patient community is to distill jargon rich literature into patient friendly explainers #LCSM |
| Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: A1: A1: Research advocates represent patients perspectives within cancer research. They make sure we don’t lose sight of ultimate goal of cancer research, which is helping patients and Improve their clinical outcomes. #LCSM |
 | Milagros Rosado Elia, APRN, ANP-BC (she/her/ella) @Milagros1Elia RT @lcsmchat: #LCSM Chat in ONE HOUR! Join us. https://t.co/uBnerQjzVJ @ArpanAshokPatel #hcsm #bcsm #btsm #gyncsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @womenofteal: @JFreemanDaily T1 Research advocates bridge the gap between researchers- academic, government , corporate and health care organizations and patients. They provide feedback on trial design, insure a patient centered focus and gives a face to the disease for those at the bench. #lcsm #gyncsm |
| Erika Hlavacek @ErikaHlavacek This is so true! But our lives are on the line and I am willing to dive deep into the science to help myself and others to bring positive change. |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T1: T1: RAs provide perspective from the cancer patient community to help research focus on the questions most important to patients, and design studies and trials that have a better chance of addressing these questions. #LCSM |
| Jill Feldman @jillfeldman4 T1 Have to note that BOTH play very important roles in improving outcomes for people and their families #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @TerriConneran: T1 #LCSM Patient advocates are finding a better solution for one patient today - #research advocates are working to find better treatment solutions for tomorrow's patients |
| #LCSM Chat @lcsmchat RT @corrie_painter: T1 a major contribution that RA’s can play for their patient community is to distill jargon rich literature into patient friendly explainers #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: A1: A1: Research advocates give advice through the research journey. For instance in clinical trials, they help with design and protocols. Represent patients opinions when it comes to potential risks. They give recommendations. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 Have to note that BOTH play very important roles in improving outcomes for people and their families #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @AmandaHaddock: @JFreemanDaily T1: @JFreemanDaily T1: I define a research advocate as someone who is working on the science in general, trying to advance initiatives and funding. Patient advocates are working more directly on the experience patients have both inside and outside of the research experience. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: Research advocates also help spread the word on importance of participating in research and clinical trials. They Advocate for participating in trials. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @jillfeldman4: T1 And most of us do NOT have science backgrounds (it was my worst subject in school). We labor through the science. It's a labor of love and/or desperation, lol #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RA re dedicated to learning and understanding the science so that their voice is respected at the table. They attended scientific meetings whenever possible. #mmsm #lcsm #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @IshwariaMD: @JFreemanDaily T1: @JFreemanDaily T1: RAs are at the table during study design. My research advocates serve on my career development award committee! They’re a part of every grant I’ve written — their time and expertise is valued and (consequently) budgeted in the grant! #lcsm |
| Danielle Pardue @Actorielle T1 Those constituents who (rightly) ask #advocates to be at the table during trial design and process/protocol reform often call us “patient advocates,” so I’ve treated it as an umbrella term. #lcsm |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: RA re dedicated to learning and understanding the science so that their voice is respected at the table. They attended scientific meetings whenever possible. #mmsm #lcsm #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @jillfeldman4 Definitely The roles could overlap and some serve as both patients and research advocates. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 Those constituents who (rightly) ask #advocates to be at the table during trial design and process/protocol reform often call us “patient advocates,” so I’ve treated it as an umbrella term. #lcsm |
| John Novack @J2Novack RT @JFreemanDaily: T2: T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| Kristin Ito @KAdvocate_LCAM Through respectful communication and networking, it is so helpful to be able to lean on our PhD and MD friends for explanation...or re-explanation :) #LCSM |
 | Liz Salmi @TheLizArmy RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| Jill Feldman @jillfeldman4 RT @KAdvocate_LCAM: Through respectful communication and networking, it is so helpful to be able to lean on our PhD and MD friends for explanation...or re-explanation :) #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2: Research advocates can provide useful inputs across the entire research enterprise. Their knowledge of patient community’s experience related to cancer treatment, side effects, and living with their disease helps identify key research questions. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: Through respectful communication and networking, it is so helpful to be able to lean on our PhD and MD friends for explanation...or re-explanation :) #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Research advocates can provide useful inputs across the entire research enterprise. Their knowledge of patient community’s experience related to cancer treatment, side effects, and living with their disease helps identify key research questions. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: Through respectful communication and networking, it is so helpful to be able to lean on our PhD and MD friends for explanation...or re-explanation :) #LCSM |
| kristen kimball @KimballKristen RT @JFreemanDaily: T2: T2: Research advocates can provide useful inputs across the entire research enterprise. Their knowledge of patient community’s experience related to cancer treatment, side effects, and living with their disease helps identify key research questions. #LCSM |
| Kristin Ito @KAdvocate_LCAM @jillfeldman4 YES! Both matter and are needed. #LCSM |
| Jill Feldman @jillfeldman4 T2 I heard someone say this once & it is spot on! We have our PHD - Person with History of Disease. We provide something most researchers can't - the lived experience. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2. Research advocates help review boards determine which proposed research projects are most deserving of grant funding from the patient perspective. #LCSM |
 | Sarjeet Gill #M4A #BLM #Resistor #LGBQTI #SJustice @GillSarjeet RT @acmoorephd: Join us TODAY (5 pm PT / 8 pm ET) as we discuss #cancer #research #advocacy #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 I heard someone say this once & it is spot on! We have our PHD - Person with History of Disease. We provide something most researchers can't - the lived experience. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian Research advocates are vital members of the research team. They are true partners with the scientists. They represent the ultimate cause: #PatientCare within #CancerResearch #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @jillfeldman4: T2 I heard someone say this once & it is spot on! We have our PHD - Person with History of Disease. We provide something most researchers can't - the lived experience. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2. Research advocates help review boards determine which proposed research projects are most deserving of grant funding from the patient perspective. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock @CroixDenise @jillfeldman4 Good question! Remember that most patients probably don’t have a science background. Explain things in simple terms and make sure they have time to ask questions. #lcsm #PatientExperience |
| Matthew Katz, MD 🟦 @subatomicdoc RT @jillfeldman4: T2 I heard someone say this once & it is spot on! We have our PHD - Person with History of Disease. We provide something most researchers can't - the lived experience. #LCSM |
| Danielle Pardue @Actorielle T1 So maybe it’s a difference in perspective: to the #researchers, I’m a #patientadvocate. To the #patients, I’m a #researchadvocate. This is why I personally ascribe to titles like liaison, facilitator, and networker. #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #mmsm #lcsm |
 | David Grew 🛠🏥 @DoctorGrew Hello #lcsm - I’m a radiation oncologist building a #doctorcreator community. Passionate about content creation as a means to improve patient experience. Building free resource of digital explanations for cancer patients here 👇 https://t.co/kCSu02Zc1D |
| #LCSM Chat @lcsmchat RT @RManochakian: Research advocates are vital members of the research team. They are true partners with the scientists. They represent the ultimate cause: #PatientCare within #CancerResearch #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: @CroixDenise @jillfeldman4 Good question! Remember that most patients probably don’t have a science background. Explain things in simple terms and make sure they have time to ask questions. #lcsm #PatientExperience |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 I heard someone say this once & it is spot on! We have our PHD - Person with History of Disease. We provide something most researchers can't - the lived experience. #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 So maybe it’s a difference in perspective: T1 So maybe it’s a difference in perspective: to the #researchers, I’m a #patientadvocate. To the #patients, I’m a #researchadvocate. This is why I personally ascribe to titles like liaison, facilitator, and networker. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2. Research advocates help review boards determine which proposed research projects are most deserving of grant funding from the patient perspective. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2. Research advocates offer patient perspective on clinical trials experience and access, which can help refine trial protocols and enable more patients to participate. More participants means more trials will be able to generate useful results. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter T2 In addition to co tribute for to research design, RA’s can act as liaisons between researchers and patients, which facilitates learning on both sides of the bench and may also lead to better accrual to studies involving patient samples. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2: Research advocates help disseminate research findings and translate those findings into patient-friendly language for their disease communities. #LCSM |
| Jill Feldman @jillfeldman4 T2 In #lungcancer many of us represent biomarker groups. We are able to drive research, involve patients & gather data that no one scientist, physician or institution ever could! Real World Data that if used correctly could provide critical insights that lead to better care.#LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2. Research advocates offer patient perspective on clinical trials experience and access, which can help refine trial protocols and enable more patients to participate. More participants means more trials will be able to generate useful results. #LCSM |
| #LCSM Chat @lcsmchat RT @corrie_painter: T2 In addition to co tribute for to research design, RA’s can act as liaisons between researchers and patients, which facilitates learning on both sides of the bench and may also lead to better accrual to studies involving patient samples. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Research advocates help disseminate research findings and translate those findings into patient-friendly language for their disease communities. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 In #lungcancer many of us represent biomarker groups. We are able to drive research, involve patients & gather data that no one scientist, physician or institution ever could! Real World Data that if used correctly could provide critical insights that lead to better care.#LCSM |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily T2 The ultra-perfect study design is often NOT patient friendly. RAs keep us centered on keeping the study design (and the frequency of visits, labs, etc) patient-friendly and scientifically worthwhile! #lcsm |
| Eden Lake @EdenLake RT @JFreemanDaily: T2: T2: Research advocates can provide useful inputs across the entire research enterprise. Their knowledge of patient community’s experience related to cancer treatment, side effects, and living with their disease helps identify key research questions. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: T2: Research advocates can provide useful inputs across the entire research enterprise. Their knowledge of patient community’s experience related to cancer treatment, side effects, and living with their disease helps identify key research questions. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Definitely They should be involved in the design of Trials and protocols #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: T2. Research advocates offer patient perspective on clinical trials experience and access, which can help refine trial protocols and enable more patients to participate. More participants means more trials will be able to generate useful results. #LCSM |
| Eden Lake @EdenLake RT @jillfeldman4: T2 I heard someone say this once & it is spot on! We have our PHD - Person with History of Disease. We provide something most researchers can't - the lived experience. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2: Knowledgeable research advocates can also partner with researchers to design and implement patient-centered research projects. Great examples are the @Count_Me_In projects in breast cancer, angiosarcoma, brain cancer ... #LCSM |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @JFreemanDaily T2 The ultra-perfect study design is often NOT patient friendly. RAs keep us centered on keeping the study design (and the frequency of visits, labs, etc) patient-friendly and scientifically worthwhile! #lcsm |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily Definitely They should be involved in the design of Trials and protocols #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T2: T2: Research advocates help disseminate research findings and translate those findings into patient-friendly language for their disease communities. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T2 In #lungcancer many of us represent biomarker groups. We are able to drive research, involve patients & gather data that no one scientist, physician or institution ever could! Real World Data that if used correctly could provide critical insights that lead to better care.#LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: T2: Knowledgeable research advocates can also partner with researchers to design and implement patient-centered research projects. Great examples are the @Count_Me_In projects in breast cancer, angiosarcoma, brain cancer ... #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter :) #lcsm |
 | Balazs Halmos @DrSteveMartin #lcsm |
 | Denise Cutlip @dennycee Sorry to be so late #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @corrie_painter: T2 In addition to co tribute for to research design, RA’s can act as liaisons between researchers and patients, which facilitates learning on both sides of the bench and may also lead to better accrual to studies involving patient samples. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: Research advocates are vital members of the research team. They are true partners with the scientists. They represent the ultimate cause: #PatientCare within #CancerResearch #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T2. Research advocates offer patient perspective on clinical trials experience and access, which can help refine trial protocols and enable more patients to participate. More participants means more trials will be able to generate useful results. #LCSM |
| TerriConneran @TerriConneran T2 Research Advocates are the exchange bridge 🔁between the research & patient communities #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @jillfeldman4: T2 In #lungcancer many of us represent biomarker groups. We are able to drive research, involve patients & gather data that no one scientist, physician or institution ever could! Real World Data that if used correctly could provide critical insights that lead to better care.#LCSM |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: T2: T2: Knowledgeable research advocates can also partner with researchers to design and implement patient-centered research projects. Great examples are the @Count_Me_In projects in breast cancer, angiosarcoma, brain cancer ... #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2. Research advocates offer patient perspective on clinical trials experience and access, which can help refine trial protocols and enable more patients to participate. More participants means more trials will be able to generate useful results. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @corrie_painter: T2 In addition to co tribute for to research design, RA’s can act as liaisons between researchers and patients, which facilitates learning on both sides of the bench and may also lead to better accrual to studies involving patient samples. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T2: T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily @count_me_in Paging @corrie_painter!👏👏👏 #DroolForData #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: Research advocates help disseminate research findings and translate those findings into patient-friendly language for their disease communities. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RA usually have deep roots within their cancer community and can provide the collective patient perspective. They know what patients value because they have first hand experience. #lcsm #mmsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian Research advocates Represent patients opinions when it comes to potential risks and what’s acceptable and what’s not. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T2: T2: Knowledgeable research advocates can also partner with researchers to design and implement patient-centered research projects. Great examples are the @Count_Me_In projects in breast cancer, angiosarcoma, brain cancer ... #LCSM |
| #LCSM Chat @lcsmchat @DrSteveMartin Welcome Doctor! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| Austin Peppers @Jalapeno448 T2: They bring incredible perspectives and expertise to research, even in basic science labs. With every experiment I carry out, I am always attempting to incorporate values and perspectives from those I meet at conferences, or my own personal experiences with my mom. #lcsm |
| Triage Cancer @TriageCancer RT @JFreemanDaily: T2: T2: How do cancer research advocates (RAs) bring value to research? What specific inputs are helpful in different types of research efforts? #LCSM |
| #LCSM Chat @lcsmchat @dennycee Fashionably so. #lcsm |
| #LCSM Chat @lcsmchat RT @TerriConneran: T2 Research Advocates are the exchange bridge 🔁between the research & patient communities #LCSM |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: RA usually have deep roots within their cancer community and can provide the collective patient perspective. They know what patients value because they have first hand experience. #lcsm #mmsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2. Research advocates offer patient perspective on clinical trials experience and access, which can help refine trial protocols and enable more patients to participate. More participants means more trials will be able to generate useful results. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: Research advocates Represent patients opinions when it comes to potential risks and what’s acceptable and what’s not. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock T2: RAs can bring more real-world experience to study design. Sometimes there can be a tendency to make decisions based on what the researcher thinks is best for the patient, but only a patient knows what is best in their situation. #lcsm #PatientExperience |
| #LCSM Chat @lcsmchat RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @IshwariaMD: @JFreemanDaily T2 The ultra-perfect study design is often NOT patient friendly. RAs keep us centered on keeping the study design (and the frequency of visits, labs, etc) patient-friendly and scientifically worthwhile! #lcsm |
| #LCSM Chat @lcsmchat RT @Jalapeno448: T2: T2: They bring incredible perspectives and expertise to research, even in basic science labs. With every experiment I carry out, I am always attempting to incorporate values and perspectives from those I meet at conferences, or my own personal experiences with my mom. #lcsm |
| Danielle Pardue @Actorielle RT @corrie_painter: T2 In addition to co tribute for to research design, RA’s can act as liaisons between researchers and patients, which facilitates learning on both sides of the bench and may also lead to better accrual to studies involving patient samples. #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: T2: T2: RAs can bring more real-world experience to study design. Sometimes there can be a tendency to make decisions based on what the researcher thinks is best for the patient, but only a patient knows what is best in their situation. #lcsm #PatientExperience |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 In #lungcancer many of us represent biomarker groups. We are able to drive research, involve patients & gather data that no one scientist, physician or institution ever could! Real World Data that if used correctly could provide critical insights that lead to better care.#LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| Danielle Pardue @Actorielle RT @IshwariaMD: @JFreemanDaily T2 The ultra-perfect study design is often NOT patient friendly. RAs keep us centered on keeping the study design (and the frequency of visits, labs, etc) patient-friendly and scientifically worthwhile! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: T2: Knowledgeable research advocates can also partner with researchers to design and implement patient-centered research projects. Great examples are the @Count_Me_In projects in breast cancer, angiosarcoma, brain cancer ... #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @Jalapeno448 Very well said @Jalapeno448 Couldn’t agree more Their role is so essential #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Trust is imperative. #lcsm |
 | Laura interrupted 🇺🇸☮🇺🇦🌈🌊 @laurenahan1 Just listening in. #LCSM |
 | ann price @aepriceny @JFreemanDaily Janet think you are amazing. Late but here. Survivor -here to learn #lcsm. |
| Dee Sparacio @womenofteal @JFreemanDaily T2 They add value by bringing the patient experience to the clinical trial design process, share the importance of trial participation with others, insure that funding of research takes place, interpret the science for patients and caregivers #lcsm #gyncsm |
| Danielle Pardue @Actorielle RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| Denise Cutlip @dennycee RT @JFreemanDaily: T2: T2: Research advocates help disseminate research findings and translate those findings into patient-friendly language for their disease communities. #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter T2 RA’s can specifically guide researchers on best practices to collect real world data. Want high fidelity data? Ask for their partnership. #lcsm |
| Jill Feldman @jillfeldman4 T2 At concept RAs ensure the relevance & prioritization of research questions. Also a crucial stage to address inequities such as epidemiology or what populations bear the brunt of the disease #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: @JFreemanDaily T2 They add value by bringing the patient experience to the clinical trial design process, share the importance of trial participation with others, insure that funding of research takes place, interpret the science for patients and caregivers #lcsm #gyncsm |
| Danielle Pardue @Actorielle RT @AmandaHaddock: T2: T2: RAs can bring more real-world experience to study design. Sometimes there can be a tendency to make decisions based on what the researcher thinks is best for the patient, but only a patient knows what is best in their situation. #lcsm #PatientExperience |
| Amanda Haddock 🧬 @AmandaHaddock @KAdvocate_LCAM I’m often thankful for the chance to hear a preso a 2nd or 3rd time. Seems I always learn a little more each time! #lcsm |
 | Chris Martin @CMPR RT @ivybelkins: Very glad to see #lungcancer getting national attention on @GMA! More people need to understand that everyone with lungs is at risk for #lungcancer! Thank you Annabelle Gurwitch for sharing your story and being part of the @EGFRResisters! #lcsm @lcfamerica @triparnasen |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @subatomicdoc @jillfeldman4 Love it @subatomicdoc Couldn’t agree more #LCSM |
| Danielle Pardue @Actorielle RT @womenofteal: @JFreemanDaily T2 They add value by bringing the patient experience to the clinical trial design process, share the importance of trial participation with others, insure that funding of research takes place, interpret the science for patients and caregivers #lcsm #gyncsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 At concept RAs ensure the relevance & prioritization of research questions. Also a crucial stage to address inequities such as epidemiology or what populations bear the brunt of the disease #LCSM |
| Janet Freeman-Daily @JFreemanDaily RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| Dee Sparacio @womenofteal Yes! #gyncsm #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next … #LCSM |
| TerriConneran @TerriConneran T2 RA can speak on behalf of the RWD including less tangible (practical & emotional) to help improve research - to include pt compliance #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RA help make the available clinical trials and new research being explored understandable to their communities. They debunk common myths, explain research protocols, sharing clinical trial resource nd finders #mmsm #lcsm |
| Kristin Ito @KAdvocate_LCAM T2 RAs can be a huge asset in survey review! Ensuring language is anti-stigma, worth the individuals time, and moving research/project forward in the right direction! #lcsm |
| Danielle Pardue @Actorielle RT @MyelomaTeacher: RA help make the available clinical trials and new research being explored understandable to their communities. They debunk common myths, explain research protocols, sharing clinical trial resource nd finders #mmsm #lcsm |
| TerriConneran @TerriConneran RT @womenofteal: Yes! #gyncsm #lcsm |
| Dee Sparacio @womenofteal #gyncsm |
| #LCSM Chat @lcsmchat @laurenahan1 Glad you’re here. #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @RManochakian: Research advocates are vital members of the research team. They are true partners with the scientists. They represent the ultimate cause: #PatientCare within #CancerResearch #LCSM |
| Jill Feldman @jillfeldman4 T2 RAs help researchers/scientists see the forest through the trees #LCSM |
| Kristin Ito @KAdvocate_LCAM @JFreemanDaily How does time go so quickly during these?! #LCSM |
| #LCSM Chat @lcsmchat @aepriceny @JFreemanDaily Hey Ann! #lcsm |
| Dee Sparacio @womenofteal #gyncsm |
| Matthew Katz, MD 🟦 @subatomicdoc @RManochakian @jillfeldman4 Yes, I learned from others #lcsm |
| #LCSM Chat @lcsmchat RT @womenofteal: @JFreemanDaily T2 They add value by bringing the patient experience to the clinical trial design process, share the importance of trial participation with others, insure that funding of research takes place, interpret the science for patients and caregivers #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @corrie_painter: T2 RA’s can specifically guide researchers on best practices to collect real world data. Want high fidelity data? Ask for their partnership. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 At concept RAs ensure the relevance & prioritization of research questions. Also a crucial stage to address inequities such as epidemiology or what populations bear the brunt of the disease #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: @KAdvocate_LCAM I’m often thankful for the chance to hear a preso a 2nd or 3rd time. Seems I always learn a little more each time! #lcsm |
| Jill Feldman @jillfeldman4 RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| TerriConneran @TerriConneran RT @corrie_painter: T2 RA’s can specifically guide researchers on best practices to collect real world data. Want high fidelity data? Ask for their partnership. #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| #LCSM Chat @lcsmchat RT @TerriConneran: T2 RA can speak on behalf of the RWD including less tangible (practical & emotional) to help improve research - to include pt compliance #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @KAdvocate_LCAM: T2 RAs can be a huge asset in survey review! Ensuring language is anti-stigma, worth the individuals time, and moving research/project forward in the right direction! #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock @Actorielle Well said. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T3: T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T3: T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @TimAllenMDJD RA advocates are trusted by both the patient and research community #lcsm #mmsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @DoctorGrew: Hello #lcsm - I’m a radiation oncologist building a #doctorcreator community. Passionate about content creation as a means to improve patient experience. Building free resource of digital explanations for cancer patients here 👇 https://t.co/kCSu02Zc1D |
| Austin Peppers @Jalapeno448 T2: I strongly feel that my involvement with LUNGevity (and the relationships that come with that) has in turn made me a more well-rounded scientist |
 | Jeff Stevens, Black Lives Matter @speedingticket4 We love our pediatric families and our foundational laboratory researchers! It’s so much fun when families can tour a lab! I like to think that is a big part of why we have a fantastic accrual rate. |
 | Preventive Medicine Bot @PreventiveBot RT @UpstageLungCanc: Good evening, everyone! Tuning in from Boston. Performing-arts-based nonprofit raising funds for #lungcancer research. Always an honor to be here and learn from all of you! #lcsm |
| Preventive Medicine Bot @PreventiveBot RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient and research advocate #lcsm |
| Danielle Pardue @Actorielle T3 a passionate desire for change - change leading to better outcomes. 💚 #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T3: It helps if Research advocates have some background/knowledge about cancer research so they can weigh in effectively and give sound opinions on research projects or proposals. Many research advocates are patients themselves or participated in cancer research #LCSM |
| Preventive Medicine Bot @PreventiveBot RT @NCICancerStats: Did you know that #LungCancer is the leading cause of cancer death in both men and women in the US? Use our Cancer Stat Facts sheet to learn more about this cancer: https://t.co/BVqvN4e1pm #LCSM https://t.co/ERVRxHcPJT |
| Preventive Medicine Bot @PreventiveBot RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Preventive Medicine Bot @PreventiveBot RT @jillfeldman4: T2 In #lungcancer many of us represent biomarker groups. We are able to drive research, involve patients & gather data that no one scientist, physician or institution ever could! Real World Data that if used correctly could provide critical insights that lead to better care.#LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @corrie_painter: T2 RA’s can specifically guide researchers on best practices to collect real world data. Want high fidelity data? Ask for their partnership. #lcsm |
| Denise Cutlip @dennycee T1: patient advocates meet patients where they're at and educate them for research and TAs #lcsm |
| Triage Cancer @TriageCancer RT @JFreemanDaily: T3: T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| Kristin Ito @KAdvocate_LCAM T3. Having patience with themselves as they dive into absorbing scientific information and being eager to practice talking about it. #LCSM |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: @TimAllenMDJD RA advocates are trusted by both the patient and research community #lcsm #mmsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T3 a passionate desire for change - change leading to better outcomes. 💚 #lcsm |
| #LCSM Chat @lcsmchat RT @RManochakian: T3: T3: It helps if Research advocates have some background/knowledge about cancer research so they can weigh in effectively and give sound opinions on research projects or proposals. Many research advocates are patients themselves or participated in cancer research #LCSM |
| Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM I'm having trouble keeping up with all the tweets tonight, which is GREAT! It means we have lots of active participants in #LCSM Chat. |
| #LCSM Chat @lcsmchat RT @dennycee: T1: T1: patient advocates meet patients where they're at and educate them for research and TAs #lcsm |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T3. Having patience with themselves as they dive into absorbing scientific information and being eager to practice talking about it. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @KAdvocate_LCAM I'm having trouble keeping up with all the tweets tonight, which is GREAT! It means we have lots of active participants in #LCSM Chat. |
| Janet Freeman-Daily @JFreemanDaily T3: Clear, respectful communications skills are also essential. RAs must be comfortable sharing their perspective concisely in a crowded room, yet not dominate the conversation or be dismissive of others’ perspectives. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This is a big picture advocacy goal. It's national. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Clear, respectful communications skills are also essential. RAs must be comfortable sharing their perspective concisely in a crowded room, yet not dominate the conversation or be dismissive of others’ perspectives. #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: This is a big picture advocacy goal. It's national. #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @JFreemanDaily Exactly, they need to represent the collective perspective and need to understand the unmet needs in their community. #mmsm #lcsm |
| Danielle Pardue @Actorielle RT @TimAllenMDJD: This is a big picture advocacy goal. It's national. #lcsm |
| TerriConneran @TerriConneran RT @JFreemanDaily: T3: T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| Dee Sparacio @womenofteal @JFreemanDaily T 3PA are dedicated to learning the most they can about their disease.They take the time to attend sci meetings read journal articles, become experts in their disease and have a good scientific understanding of the research and clinical trial process. #lcsm #gyncsm |
| Jill Feldman @jillfeldman4 T3 Important for RAs to: Move beyond personal story & provide the collective voice of the community. Our personal stories are only a part of a much bigger story & picture. We represent ALL stories #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T3: It goes without saying but always worth repeating: Keep nothing but patients’ best interest in mind. That’s always the ultimate goal of #CancerResearch #LCSM |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: @JFreemanDaily Exactly, they need to represent the collective perspective and need to understand the unmet needs in their community. #mmsm #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD And research advocates are vitally important. #lcsm |
| #LCSM Chat @lcsmchat RT @womenofteal: @JFreemanDaily T 3PA are dedicated to learning the most they can about their disease.They take the time to attend sci meetings read journal articles, become experts in their disease and have a good scientific understanding of the research and clinical trial process. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 Important for RAs to: Move beyond personal story & provide the collective voice of the community. Our personal stories are only a part of a much bigger story & picture. We represent ALL stories #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: T3: T3: It goes without saying but always worth repeating: Keep nothing but patients’ best interest in mind. That’s always the ultimate goal of #CancerResearch #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: And research advocates are vitally important. #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T3: T3: What characteristics and skills are useful to a successful cancer research advocate? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #GoTeam #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: T3: T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @JFreemanDaily: T3: T3: Clear, respectful communications skills are also essential. RAs must be comfortable sharing their perspective concisely in a crowded room, yet not dominate the conversation or be dismissive of others’ perspectives. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T3 Important for RAs to: Move beyond personal story & provide the collective voice of the community. Our personal stories are only a part of a much bigger story & picture. We represent ALL stories #LCSM |
| kristen kimball @KimballKristen I'm so interested in this conversation. What might a role be for this #caregiver whose loved one with cancer (husband Dave Kimball @VoicesForUS has passed on? My experience is different from that of the patient! #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| #LCSM Chat @lcsmchat #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #teamwork #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @TimAllenMDJD: This is a big picture advocacy goal. It's national. #lcsm |
| TerriConneran @TerriConneran T3 Knowing I am not the point of the research - WE -the global community are the point #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @MyelomaTeacher: @TimAllenMDJD RA advocates are trusted by both the patient and research community #lcsm #mmsm |
| Jill Feldman @jillfeldman4 T3 RAs need to be eager and willing to constantly learn, be diplomatic & respectful, be a good listener & give feedback humbly. #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: I'm so interested in this conversation. What might a role be for this #caregiver whose loved one with cancer (husband Dave Kimball @VoicesForUS has passed on? My experience is different from that of the patient! #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @KAdvocate_LCAM: T3. Having patience with themselves as they dive into absorbing scientific information and being eager to practice talking about it. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily @KAdvocate_LCAM Indeed What a great #LCSM chat session So glad you keep and share tracks of all tweets later |
| Danielle Pardue @Actorielle RT @jillfeldman4: T3 Important for RAs to: Move beyond personal story & provide the collective voice of the community. Our personal stories are only a part of a much bigger story & picture. We represent ALL stories #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T3: T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @jillfeldman4: T3 Important for RAs to: Move beyond personal story & provide the collective voice of the community. Our personal stories are only a part of a much bigger story & picture. We represent ALL stories #LCSM |
| #LCSM Chat @lcsmchat RT @TerriConneran: T3 Knowing I am not the point of the research - WE -the global community are the point #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 RAs need to be eager and willing to constantly learn, be diplomatic & respectful, be a good listener & give feedback humbly. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T3: T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| Kristin Ito @KAdvocate_LCAM @RManochakian @lcsmchat Absolutely! Here is a great webinar from @BairdAM that goes into basic science of cancer as well as lung cancer diagnosis, treatment, and clinical trials. #LCSM https://t.co/T5Ju7vAA0l |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T3: T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen @VoicesForUS I’m curious, too. (Deana) #lcsm |
| Dear Dr. Researcher, PhD @corrie_painter T3 The ability to see themselves as equals to folks with letters after their names. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @RManochakian @lcsmchat Absolutely! Here is a great webinar from @BairdAM that goes into basic science of cancer as well as lung cancer diagnosis, treatment, and clinical trials. #LCSM https://t.co/T5Ju7vAA0l |
| #LCSM Chat @lcsmchat RT @corrie_painter: T3 The ability to see themselves as equals to folks with letters after their names. #LCSM |
| Danielle Pardue @Actorielle RT @KAdvocate_LCAM: @RManochakian @lcsmchat Absolutely! Here is a great webinar from @BairdAM that goes into basic science of cancer as well as lung cancer diagnosis, treatment, and clinical trials. #LCSM https://t.co/T5Ju7vAA0l |
| Amanda Haddock 🧬 @AmandaHaddock T3: most useful characteristic? Not easily intimidated!! #lcsm |
| TerriConneran @TerriConneran T3 A desire to compare, contrast and make outcomes better. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T3: Eager to learn. Good communicators. #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: T3: T3: most useful characteristic? Not easily intimidated!! #lcsm |
| #LCSM Chat @lcsmchat RT @TerriConneran: T3 A desire to compare, contrast and make outcomes better. #LCSM |
| Jill Feldman @jillfeldman4 RT @JFreemanDaily: T3: T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: T3: T3: Eager to learn. Good communicators. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RA must have enough confidence in their understanding of the science, and the needs and desires of their community so they are not intimidated to speak up in a room full of HCPs especially when their views are contradictory #lcsm #mmsm #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @JFreemanDaily: T3: T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @MyelomaTeacher: RA must have enough confidence in their understanding of the science, and the needs and desires of their community so they are not intimidated to speak up in a room full of HCPs especially when their views are contradictory #lcsm #mmsm #lcsm |
| Dear Dr. Researcher, PhD @corrie_painter T3 A deep understanding of the language of science/trials. #LCSM |
| Dee Sparacio @womenofteal @KimballKristen @VoicesForUS Sorry for your loss. You most certainly could be an RA. You have an understanding of the patient experience , the disease and the need for research. #lcsm #gyncsm |
| TerriConneran @TerriConneran T3 Courage to ask with a desire to learn #LCSM |
| kristen kimball @KimballKristen @Actorielle @acmoorephd @JFreemanDaily Yes! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @MyelomaTeacher: RA must have enough confidence in their understanding of the science, and the needs and desires of their community so they are not intimidated to speak up in a room full of HCPs especially when their views are contradictory #lcsm #mmsm #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @jillfeldman4: T3 Important for RAs to: Move beyond personal story & provide the collective voice of the community. Our personal stories are only a part of a much bigger story & picture. We represent ALL stories #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @corrie_painter: T3 The ability to see themselves as equals to folks with letters after their names. #LCSM |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: RA must have enough confidence in their understanding of the science, and the needs and desires of their community so they are not intimidated to speak up in a room full of HCPs especially when their views are contradictory #lcsm #mmsm #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @KAdvocate_LCAM @lcsmchat @BairdAM Thx for sharing There are many good resources for patients and research advocates #LCSM |
| Kristin Ito @KAdvocate_LCAM @AmandaHaddock @lcsmchat It can be intimidating, but it's important to remember that we are all a team and are here for one another. #LCSM |
| #LCSM Chat @lcsmchat RT @womenofteal: @KimballKristen @VoicesForUS Sorry for your loss. You most certainly could be an RA. You have an understanding of the patient experience , the disease and the need for research. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @corrie_painter: T3 A deep understanding of the language of science/trials. #LCSM |
| Danielle Pardue @Actorielle @lcsmchat @KimballKristen @VoicesForUS IMHO, #lungcancer touching our people made us mad, and mad people make a big difference. We love our people so much that we are brought intimately into the overall experience and definitely know enough to opine to researchers about what is and is NOT patient-centric. #lcsm |
| #LCSM Chat @lcsmchat RT @TerriConneran: T3 Courage to ask with a desire to learn #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #mmsm #lcsm |
| Austin Peppers @Jalapeno448 T3: RA's who are equipped with 1) substantial knowledge on the process of research and 2) a tireless passion to make a difference for cancer patients overall, would make a darn good RA. #lcsm |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @AmandaHaddock @lcsmchat It can be intimidating, but it's important to remember that we are all a team and are here for one another. #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: @lcsmchat @KimballKristen @VoicesForUS IMHO, #lungcancer touching our people made us mad, and mad people make a big difference. We love our people so much that we are brought intimately into the overall experience and definitely know enough to opine to researchers about what is and is NOT patient-centric. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @womenofteal: @KimballKristen @VoicesForUS Sorry for your loss. You most certainly could be an RA. You have an understanding of the patient experience , the disease and the need for research. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @Jalapeno448: T3: T3: RA's who are equipped with 1) substantial knowledge on the process of research and 2) a tireless passion to make a difference for cancer patients overall, would make a darn good RA. #lcsm |
| kristen kimball @KimballKristen RT @Actorielle: @lcsmchat @KimballKristen @VoicesForUS IMHO, #lungcancer touching our people made us mad, and mad people make a big difference. We love our people so much that we are brought intimately into the overall experience and definitely know enough to opine to researchers about what is and is NOT patient-centric. #lcsm |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| Christina Lizaso @btrfly12 RT @MyelomaTeacher: RA must have enough confidence in their understanding of the science, and the needs and desires of their community so they are not intimidated to speak up in a room full of HCPs especially when their views are contradictory #lcsm #mmsm #lcsm |
| Jill Feldman @jillfeldman4 T3 RAs have to be comfortable talking to researchers and scientists. It's intimidating at first, but while they are the experts in science RAs are the experts of the lived experience, which is just as valuable for the research to be successful #LCSM |
| Christina Lizaso @btrfly12 RT @AmandaHaddock: T3: T3: most useful characteristic? Not easily intimidated!! #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian Passionate and compassionate #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 RAs have to be comfortable talking to researchers and scientists. It's intimidating at first, but while they are the experts in science RAs are the experts of the lived experience, which is just as valuable for the research to be successful #LCSM |
| Christina Lizaso @btrfly12 RT @JFreemanDaily: T3: T3: Clear, respectful communications skills are also essential. RAs must be comfortable sharing their perspective concisely in a crowded room, yet not dominate the conversation or be dismissive of others’ perspectives. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @RManochakian: Passionate and compassionate #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: Passionate and compassionate #LCSM |
| Janet Freeman-Daily @JFreemanDaily Topic T4 is coming up … #LCSM |
 | Andrea @BraveBosom RT @subatomicdoc: @jillfeldman4 Very similar idea to a prior discussion we had - people with cancer are experiential oncologists https://t.co/XYLGL0AWM2 #lcsm |
| Christina Lizaso @btrfly12 RT @jillfeldman4: T3 RAs have to be comfortable talking to researchers and scientists. It's intimidating at first, but while they are the experts in science RAs are the experts of the lived experience, which is just as valuable for the research to be successful #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock @KimballKristen @VoicesForUS Sorry for your loss. Your voice is still important!! Most of the work I’ve done for research has happened after the death of my son. Caregivers are busy being caregivers for their person. Now, I care for everyone else.♥️ #lcsm |
| Dr. Amy C. Moore @acmoorephd A3. #research is not for the faint of heart. There will be bumps along the road. We are playing the long game. But with urgency and patients' best interests at heart. #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: @KimballKristen @VoicesForUS Sorry for your loss. Your voice is still important!! Most of the work I’ve done for research has happened after the death of my son. Caregivers are busy being caregivers for their person. Now, I care for everyone else.♥️ #lcsm |
 | Lung Cancer Sux @LungCancerSux RT @JFreemanDaily: On a personal note: On a personal note: I was diagnosed 10 years ago on May 10 with advanced #lungcancer. At that time, the majority of patients died in their first year after diagnosis. Thanks to research and research advocates, I've had no evidence of cancer on scans for 8+ years. #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock @JFreemanDaily Oh wow. This is such a good idea!! #lcsm |
| #LCSM Chat @lcsmchat RT @acmoorephd: A3. #research is not for the faint of heart. There will be bumps along the road. We are playing the long game. But with urgency and patients' best interests at heart. #LCSM |
| Austin Peppers @Jalapeno448 @corrie_painter This is so important! As an aside, it is equally important for the researchers to make RA feel that way #lcsm |
| kristen kimball @KimballKristen @AmandaHaddock @VoicesForUS thank you! a mentor <3 #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RAs need a good RA mentors to help them realize their full potential. I have had many. #lcsm #mmsm @IMFjimMYELOMA @JackMAiello @NorthTxMSG |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JFreemanDaily: T3: T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| #LCSM Chat @lcsmchat RT @Jalapeno448: @corrie_painter This is so important! As an aside, it is equally important for the researchers to make RA feel that way #lcsm |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: RAs need a good RA mentors to help them realize their full potential. I have had many. #lcsm #mmsm @IMFjimMYELOMA @JackMAiello @NorthTxMSG |
| Janet Freeman-Daily @JFreemanDaily @Actorielle @lcsmchat @KimballKristen @VoicesForUS While anger can be very energizing and motivating, RAs must be careful to keep the anger out of their communications. Angry statements can make it easier for others to dismiss a valid perspective. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: How can the cancer community develop more cancer research advocates? What resources are available to learn about research advocacy? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @Actorielle @lcsmchat @KimballKristen @VoicesForUS While anger can be very energizing and motivating, RAs must be careful to keep the anger out of their communications. Angry statements can make it easier for others to dismiss a valid perspective. #LCSM |
| Dave Bjork @bjork5 @JFreemanDaily T3: feeling safe to find and use your voice #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock @jillfeldman4 And sometimes not so humbly. 😉 #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: How can the cancer community develop more cancer research advocates? What resources are available to learn about research advocacy? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @acmoorephd: A3. #research is not for the faint of heart. There will be bumps along the road. We are playing the long game. But with urgency and patients' best interests at heart. #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T3: @JFreemanDaily T3: feeling safe to find and use your voice #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: T4: T4: How can the cancer community develop more cancer research advocates? What resources are available to learn about research advocacy? #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @JFreemanDaily: T4: T4: How can the cancer community develop more cancer research advocates? What resources are available to learn about research advocacy? #LCSM |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: @jillfeldman4 And sometimes not so humbly. 😉 #lcsm |
| Dee Sparacio @womenofteal RT @JFreemanDaily: @Actorielle @lcsmchat @KimballKristen @VoicesForUS While anger can be very energizing and motivating, RAs must be careful to keep the anger out of their communications. Angry statements can make it easier for others to dismiss a valid perspective. #LCSM |
| kristen kimball @KimballKristen RT @JFreemanDaily: T3: T3: RAs who have proven themselves capable may find they have too many demands on their time. Helps to have a personal “mission statement” to help decide which opportunities will make the biggest difference for their community. #LCSM |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| Danielle Pardue @Actorielle @JFreemanDaily @lcsmchat @KimballKristen @VoicesForUS Absolutely. Anger is just the fuel for the engines. It has to be translated to passion before it can win an audience or persuade a listener. 💚 #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T4: Highlight their importance and explain & promote their vital role. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @JFreemanDaily T4 My first introduction to the research advocacy community was at the @AACR SSP program #lcsm #mmsm |
| Dr. Amy C. Moore @acmoorephd A4: @IASLC's STARS program is a great vehicle for creating a pool of highly-trained PRAs! Kudos to you, @JFreemanDaily and @KAdvocate_LCAM, for all you have done to build the program! #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @jillfeldman4: T3 RAs have to be comfortable talking to researchers and scientists. It's intimidating at first, but while they are the experts in science RAs are the experts of the lived experience, which is just as valuable for the research to be successful #LCSM |
| Dave Bjork @bjork5 @jillfeldman4 And it’s a bidirectional experience...patients and researchers connecting is beautiful for both #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter T4 step one for me was to find a mentor! A helpful hint is to look both within your cancer community, but also in other communities. I didn’t know Twitter was a thing until 5 years post diagnosis, was totally silo’d. But y’all taught me so much! #LCSM |
| Dee Sparacio @womenofteal @AmandaHaddock @jillfeldman4 Yes we can be the only "Oppose " in the room room full of MDs PhDs evaluating a proposal #gyncsm #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T4: Many societies & institutions have programs & resources to help with professional development of research advocates and support their mission such as @ASCO @theNCI and others |
| #LCSM Chat @lcsmchat RT @Actorielle: @JFreemanDaily @lcsmchat @KimballKristen @VoicesForUS Absolutely. Anger is just the fuel for the engines. It has to be translated to passion before it can win an audience or persuade a listener. 💚 #lcsm |
| #LCSM Chat @lcsmchat RT @RManochakian: T4: T4: Highlight their importance and explain & promote their vital role. #LCSM |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: @JFreemanDaily T4 My first introduction to the research advocacy community was at the @AACR SSP program #lcsm #mmsm |
| #LCSM Chat @lcsmchat RT @acmoorephd: A4: A4: @IASLC's STARS program is a great vehicle for creating a pool of highly-trained PRAs! Kudos to you, @JFreemanDaily and @KAdvocate_LCAM, for all you have done to build the program! #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: @jillfeldman4 And it’s a bidirectional experience...patients and researchers connecting is beautiful for both #LCSM |
| #LCSM Chat @lcsmchat RT @corrie_painter: T4 step one for me was to find a mentor! A helpful hint is to look both within your cancer community, but also in other communities. I didn’t know Twitter was a thing until 5 years post diagnosis, was totally silo’d. But y’all taught me so much! #LCSM |
| Austin Peppers @Jalapeno448 T4: I think the accessibility of science needs to improve overall, then we will have more participants! Away with the unneccessary scientific jargon and in with the funny, easy to understand analogies #lcsm |
| #LCSM Chat @lcsmchat RT @womenofteal: @AmandaHaddock @jillfeldman4 Yes we can be the only "Oppose " in the room room full of MDs PhDs evaluating a proposal #gyncsm #lcsm |
| Kristin Ito @KAdvocate_LCAM The @IASLC STARS (Supportive Training for Advocates on Research and Science)Program is an educational opportunity to help lung cancer PAs (whether patients or their loved ones) evolve into confident RAs. Applications close May 10th - learn more: https://t.co/J4yNoDI3Gk #LCSM |
| Dee Sparacio @womenofteal @JFreemanDaily T4 @RANAdvocate and organizations like @GRASPtweets have programs to train research advocates. A mentoring situation where an experienced advocate helps a new advocate at cancer conferences, meetings, during chats etc could be a useful. #lcsm #gyncsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @acmoorephd: A3. #research is not for the faint of heart. There will be bumps along the road. We are playing the long game. But with urgency and patients' best interests at heart. #LCSM |
 | Dusty Joy Donaldson @dustywater RT @bjork5: @jillfeldman4 And it’s a bidirectional experience...patients and researchers connecting is beautiful for both #LCSM |
| #LCSM Chat @lcsmchat RT @Jalapeno448: T4: T4: I think the accessibility of science needs to improve overall, then we will have more participants! Away with the unneccessary scientific jargon and in with the funny, easy to understand analogies #lcsm |
| #LCSM Chat @lcsmchat RT @womenofteal: @JFreemanDaily T4 @RANAdvocate and organizations like @GRASPtweets have programs to train research advocates. A mentoring situation where an experienced advocate helps a new advocate at cancer conferences, meetings, during chats etc could be a useful. #lcsm #gyncsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: The @IASLC STARS (Supportive Training for Advocates on Research and Science)Program is an educational opportunity to help lung cancer PAs (whether patients or their loved ones) evolve into confident RAs. Applications close May 10th - learn more: https://t.co/J4yNoDI3Gk #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily @Actorielle @lcsmchat @KimballKristen @VoicesForUS Couldn’t have said it any better Janet @JFreemanDaily Thank you! #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher T4 Once I learned there was research advocacy I actively sought out mentors both in and outside my cancer community. #mmsm #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @JFreemanDaily: @Actorielle @lcsmchat @KimballKristen @VoicesForUS While anger can be very energizing and motivating, RAs must be careful to keep the anger out of their communications. Angry statements can make it easier for others to dismiss a valid perspective. #LCSM |
| Danielle Pardue @Actorielle @JFreemanDaily @lcsmchat @KimballKristen @VoicesForUS In my first career I was an actor, and in my second, an attorney, so one way I contribute to the cause is by helping folks transform their anger at these events into a persuasive story for a certain result from a certain audience💚 #lcsm |
| Jill Feldman @jillfeldman4 T4 RAs that have been doing it for a while can help newer advocates interested in research find their voice and their passion. #LCSM |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: T4 Once I learned there was research advocacy I actively sought out mentors both in and outside my cancer community. #mmsm #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @KAdvocate_LCAM: The @IASLC STARS (Supportive Training for Advocates on Research and Science)Program is an educational opportunity to help lung cancer PAs (whether patients or their loved ones) evolve into confident RAs. Applications close May 10th - learn more: https://t.co/J4yNoDI3Gk #LCSM |
| Denise Cutlip @dennycee Oncologists could ID patients who ask ???? And refer them to the research nurse or nurse navigator at hospital for interest and education not just participation. #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T4: T4: How can the cancer community develop more cancer research advocates? What resources are available to learn about research advocacy? #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #lcsm #mmsm |
| #LCSM Chat @lcsmchat RT @Actorielle: @JFreemanDaily @lcsmchat @KimballKristen @VoicesForUS In my first career I was an actor, and in my second, an attorney, so one way I contribute to the cause is by helping folks transform their anger at these events into a persuasive story for a certain result from a certain audience💚 #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 RAs that have been doing it for a while can help newer advocates interested in research find their voice and their passion. #LCSM |
 | Saman Maleki, PhD @SMImmunology Why there is no twitter space use for this chat which allows for those tweeting to speak and others can listen or ask to participate in the conversation #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: Oncologists could ID patients who ask ???? And refer them to the research nurse or nurse navigator at hospital for interest and education not just participation. #lcsm |
 | Jamie Holloway, PhD @jamienholloway Hate to come late to #LCSM for an important discussion on research advocacy. But so glad the topic is being discussed! |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| Danielle Pardue @Actorielle RT @acmoorephd: A4: A4: @IASLC's STARS program is a great vehicle for creating a pool of highly-trained PRAs! Kudos to you, @JFreemanDaily and @KAdvocate_LCAM, for all you have done to build the program! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @KAdvocate_LCAM: The @IASLC STARS (Supportive Training for Advocates on Research and Science)Program is an educational opportunity to help lung cancer PAs (whether patients or their loved ones) evolve into confident RAs. Applications close May 10th - learn more: https://t.co/J4yNoDI3Gk #LCSM |
| Kristin Ito @KAdvocate_LCAM @ErikaHlavacek @acmoorephd @IASLC @JFreemanDaily BIG hugs to you @ErikaHlavacek It is so amazing to see all you are doing as a RA! #LCSM |
| Erika Hlavacek @ErikaHlavacek RT @KAdvocate_LCAM: The @IASLC STARS (Supportive Training for Advocates on Research and Science)Program is an educational opportunity to help lung cancer PAs (whether patients or their loved ones) evolve into confident RAs. Applications close May 10th - learn more: https://t.co/J4yNoDI3Gk #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: #LCSM |
| Danielle Pardue @Actorielle RT @MyelomaTeacher: T4 Once I learned there was research advocacy I actively sought out mentors both in and outside my cancer community. #mmsm #lcsm |
| TerriConneran @TerriConneran RT @KAdvocate_LCAM: @ErikaHlavacek @acmoorephd @IASLC @JFreemanDaily BIG hugs to you @ErikaHlavacek It is so amazing to see all you are doing as a RA! #LCSM |
| #LCSM Chat @lcsmchat #lcsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily T4 — I say dive right in! Most national conferences have heavily discounted to free registration for patient advocates (and research advocates)! Join the clinical and research meetings! Know you belong there! Hope to see you all at #ASCO21! #lcsm |
| Dee Sparacio @womenofteal T4 @AdvocateCollab is a great group too for advocates to learn about the science and best practices for advocates. #lcsm #gyncsm |
| Jill Feldman @jillfeldman4 T4 Many cancers have programs specific to their cancer like @IASLC STARS, but there are also good programs to start with like Research Advocacy Network & Cancer Information Support Network #LCSM |
| Janet Freeman-Daily @JFreemanDaily Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| Dave Bjork @bjork5 @JFreemanDaily T4: by creating trust that your voice matters, when you are comfortable sharing, no matter your background or experience #lcsm @DaveFuehrer @ctraz |
| Dee Sparacio @womenofteal T4 @theNCI has roles for research advocates too https://t.co/nU0lPZrfjZ #lcsm #gyncsm |
| Danielle Pardue @Actorielle RT @womenofteal: T4 @AdvocateCollab is a great group too for advocates to learn about the science and best practices for advocates. #lcsm #gyncsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T4 Many cancers have programs specific to their cancer like @IASLC STARS, but there are also good programs to start with like Research Advocacy Network & Cancer Information Support Network #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T4 Many cancers have programs specific to their cancer like @IASLC STARS, but there are also good programs to start with like Research Advocacy Network & Cancer Information Support Network #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: Several programs in the cancer space provide educational resources for RAs: Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher T4 I also volunteered to be the non-scientist on the IRB at my cancer center #LCSM #mmsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Several programs in the cancer space provide educational resources for RAs: Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| Janet Freeman-Daily @JFreemanDaily Last topic T5 is on the way … #LCSM |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @JFreemanDaily T4 — I say dive right in! Most national conferences have heavily discounted to free registration for patient advocates (and research advocates)! Join the clinical and research meetings! Know you belong there! Hope to see you all at #ASCO21! #lcsm |
| Danielle Pardue @Actorielle RT @womenofteal: T4 @theNCI has roles for research advocates too https://t.co/nU0lPZrfjZ #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @womenofteal: T4 @AdvocateCollab is a great group too for advocates to learn about the science and best practices for advocates. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 Many cancers have programs specific to their cancer like @IASLC STARS, but there are also good programs to start with like Research Advocacy Network & Cancer Information Support Network #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Several programs in the cancer space provide educational resources for RAs: Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T4: @JFreemanDaily T4: by creating trust that your voice matters, when you are comfortable sharing, no matter your background or experience #lcsm @DaveFuehrer @ctraz |
| #LCSM Chat @lcsmchat RT @womenofteal: T4 @theNCI has roles for research advocates too https://t.co/nU0lPZrfjZ #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: T4 I also volunteered to be the non-scientist on the IRB at my cancer center #LCSM #mmsm |
| Dee Sparacio @womenofteal @IshwariaMD @JFreemanDaily See you at #ASCO21 ! #gyncsm #lcsm |
| Christina Lizaso @btrfly12 RT @JFreemanDaily: Several programs in the cancer space provide educational resources for RAs: Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: Several programs in the cancer space provide educational resources for RAs: Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @womenofteal: T4 @theNCI has roles for research advocates too https://t.co/nU0lPZrfjZ #lcsm #gyncsm |
| Dee Sparacio @womenofteal RT @JFreemanDaily: Several programs in the cancer space provide educational resources for RAs: Several programs in the cancer space provide educational resources for RAs: Research Advocacy Network https://t.co/ktrgWHohbP, Cancer Information & Support Network https://t.co/9WzqPIuoc2, NBCC Project LEAD https://t.co/FQPhI0dzVV #LCSM |
| Christina Lizaso @btrfly12 RT @jillfeldman4: T4 Many cancers have programs specific to their cancer like @IASLC STARS, but there are also good programs to start with like Research Advocacy Network & Cancer Information Support Network #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @IshwariaMD: @JFreemanDaily T4 — I say dive right in! Most national conferences have heavily discounted to free registration for patient advocates (and research advocates)! Join the clinical and research meetings! Know you belong there! Hope to see you all at #ASCO21! #lcsm |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| Christina Lizaso @btrfly12 RT @womenofteal: T4 @AdvocateCollab is a great group too for advocates to learn about the science and best practices for advocates. #lcsm #gyncsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #MMSG #lcsm |
| Christina Lizaso @btrfly12 RT @IshwariaMD: @JFreemanDaily T4 — I say dive right in! Most national conferences have heavily discounted to free registration for patient advocates (and research advocates)! Join the clinical and research meetings! Know you belong there! Hope to see you all at #ASCO21! #lcsm |
| Janet Freeman-Daily @JFreemanDaily By the way, remember to include #LCSM in all your tweets during the chat so that others can see them. |
 | Sara’s Acts of Kindness @SarasKindness RT @JFreemanDaily: T4: T4: How can the cancer community develop more cancer research advocates? What resources are available to learn about research advocacy? #LCSM |
| Janet Freeman-Daily @JFreemanDaily T5: How can we help the cancer community make best use of research advocates? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: By the way, remember to include #LCSM in all your tweets during the chat so that others can see them. |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T5: T5: How can we help the cancer community make best use of research advocates? #LCSM |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @KickinCancerAss @JFreemanDaily You nailed it @KickinCancerAss #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T5: T5: How can we help the cancer community make best use of research advocates? #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T5: T5: How can we help the cancer community make best use of research advocates? #LCSM |
| Jill Feldman @jillfeldman4 There are RAs from several different cancer in @AdvocateCollab I have learned a lot from many of advocates & the shared experiences, initiatives, best practices, etc. are very helpful #LCSM |
| Christina Lizaso @btrfly12 RT @MyelomaTeacher: T4 Once I learned there was research advocacy I actively sought out mentors both in and outside my cancer community. #mmsm #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher T4 I knew the value of attending scientific meetings, so I would write to conference organizers requesting a scholarship to attend. #LCSM #mmsm |
| Christina Lizaso @btrfly12 RT @KAdvocate_LCAM: The @IASLC STARS (Supportive Training for Advocates on Research and Science)Program is an educational opportunity to help lung cancer PAs (whether patients or their loved ones) evolve into confident RAs. Applications close May 10th - learn more: https://t.co/J4yNoDI3Gk #LCSM |
| Erika Hlavacek @ErikaHlavacek The STARS program by @IASLC was such an amazing experience. I highly recommend anyone wanted to learn the science in a welcoming environment, apply by May 10th! I actually understand graphs at conferences now! ❤️❤️❤️ STARS! @KAdvocate_LCAM and @JFreemanDaily are the best! |
| Triage Cancer @TriageCancer RT @JFreemanDaily: T5: T5: How can we help the cancer community make best use of research advocates? #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD The cancer community must embrace research advocates and make certain they are included in the strategy discussion. #lcsm |
| Kristin Ito @KAdvocate_LCAM T4 Here is a photo of the 2019 IASLC STARS group, pre-COVID. My hope is that when WCLC is back to being in-person, all STARS alumni will be together again <3 #LCSM We learn, grow and advocate! https://t.co/KBRqAMFp4N |
| Janet Freeman-Daily @JFreemanDaily @SMImmunology Follow the #LCSM hashtag to see the conversation. Twitter chats don't contain audio components, but you can reply to tweets as a form of conversation. |
| Amanda Haddock 🧬 @AmandaHaddock RT @TimAllenMDJD: The cancer community must embrace research advocates and make certain they are included in the strategy discussion. #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: There are RAs from several different cancer in @AdvocateCollab I have learned a lot from many of advocates & the shared experiences, initiatives, best practices, etc. are very helpful #LCSM |
| Christina Lizaso @btrfly12 RT @MyelomaTeacher: @JFreemanDaily T4 My first introduction to the research advocacy community was at the @AACR SSP program #lcsm #mmsm |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @JFreemanDaily T4 we are planning several Clubhouse conversations during #asco21! Aiming for the PA/RA voice in each discussion of the research that we each find most intriguing! Join CH and follow the Heme/Onc Club to keep up with the updated schedules and join the conversation! #lcsm https://t.co/hhiwYIeePi |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T5: Respect, promote and emphasize the role of research advocates. Help them grow and provide them with resources. #LCSM |
 | Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @MyelomaTeacher: #mmsm #lcsm |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @MyelomaTeacher: RAs need a good RA mentors to help them realize their full potential. I have had many. #lcsm #mmsm @IMFjimMYELOMA @JackMAiello @NorthTxMSG |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @MyelomaTeacher: T4 Once I learned there was research advocacy I actively sought out mentors both in and outside my cancer community. #mmsm #lcsm |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @MyelomaTeacher: #lcsm #mmsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: There are RAs from several different cancer in @AdvocateCollab I have learned a lot from many of advocates & the shared experiences, initiatives, best practices, etc. are very helpful #LCSM |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @MyelomaTeacher: T4 I also volunteered to be the non-scientist on the IRB at my cancer center #LCSM #mmsm |
| #LCSM Chat @lcsmchat RT @MyelomaTeacher: T4 I knew the value of attending scientific meetings, so I would write to conference organizers requesting a scholarship to attend. #LCSM #mmsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: The cancer community must embrace research advocates and make certain they are included in the strategy discussion. #lcsm |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @MyelomaTeacher: T4 I knew the value of attending scientific meetings, so I would write to conference organizers requesting a scholarship to attend. #LCSM #mmsm |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T4 Here is a photo of the 2019 IASLC STARS group, pre-COVID. My hope is that when WCLC is back to being in-person, all STARS alumni will be together again <3 #LCSM We learn, grow and advocate! https://t.co/KBRqAMFp4N |
| Danielle Pardue @Actorielle RT @jillfeldman4: There are RAs from several different cancer in @AdvocateCollab I have learned a lot from many of advocates & the shared experiences, initiatives, best practices, etc. are very helpful #LCSM |
| Jamie Holloway, PhD @jamienholloway T4: I thought the advocates program at @AAADVWorkshop was excellent— all cancers and discussion about clinical trials and drug development #LCSM |
 | Nicole Karapanagiotis, Ph.D. @ProfessorNK #LCSM |
| Dee Sparacio @womenofteal @JFreemanDaily T5 Current RAs can: share information near and far of opportunities for research advocates in gov’t, academia, industry. Be a mentor Maybe Cancer Twitter communities can list these training groups / opportunities on their websites. #lcsm #gyncsm |
| Jill Feldman @jillfeldman4 T5 This is a great resource. European Patients’ Academy on Therapeutic Innovation’s roadmap highlights specific opportunities for patient involvement along the four key stages of the medicines R&D lifecycle & it provides concrete examples #LCSM https://t.co/8mXjtLgKPU |
| Eden Lake @EdenLake RT @RManochakian: T5: T5: Respect, promote and emphasize the role of research advocates. Help them grow and provide them with resources. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #lcsm #mmsm |
| Janet Freeman-Daily @JFreemanDaily @IshwariaMD I must confess that my 60+yo brain has decided it won't learn any new social media platforms ... #LCSM |
| Christina Lizaso @btrfly12 RT @TimAllenMDJD: The cancer community must embrace research advocates and make certain they are included in the strategy discussion. #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian T5: Consider & Explore giving research advocates more voice and presence in scientific meetings. Even support some dedicated meetings for them. #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @jillfeldman4: T5 This is a great resource. European Patients’ Academy on Therapeutic Innovation’s roadmap highlights specific opportunities for patient involvement along the four key stages of the medicines R&D lifecycle & it provides concrete examples #LCSM https://t.co/8mXjtLgKPU |
| #LCSM Chat @lcsmchat @SMImmunology @JFreemanDaily Let’s check it out after the chat. #lcsm |
| Denise Cutlip @dennycee T5: a data base on individuals who want to act as Lay Reviewers. Start with a Facebook page #lcsm |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @JFreemanDaily T4 we are planning several Clubhouse conversations during #asco21! Aiming for the PA/RA voice in each discussion of the research that we each find most intriguing! Join CH and follow the Heme/Onc Club to keep up with the updated schedules and join the conversation! #lcsm https://t.co/hhiwYIeePi |
| #LCSM Chat @lcsmchat RT @RManochakian: T5: T5: Respect, promote and emphasize the role of research advocates. Help them grow and provide them with resources. #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T5 This is a great resource. European Patients’ Academy on Therapeutic Innovation’s roadmap highlights specific opportunities for patient involvement along the four key stages of the medicines R&D lifecycle & it provides concrete examples #LCSM https://t.co/8mXjtLgKPU |
| #LCSM Chat @lcsmchat RT @jamienholloway: T4: T4: I thought the advocates program at @AAADVWorkshop was excellent— all cancers and discussion about clinical trials and drug development #LCSM |
| Kristin Ito @KAdvocate_LCAM @jillfeldman4 @IASLC STARS is proud to partner with Research Advocacy Network! To learn more about their offerings beyond STARS, #LCSM https://t.co/TlY0P1AIDq |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #mmsm #lcsm |
| Janet Freeman-Daily @JFreemanDaily RT @jillfeldman4: T5 This is a great resource. European Patients’ Academy on Therapeutic Innovation’s roadmap highlights specific opportunities for patient involvement along the four key stages of the medicines R&D lifecycle & it provides concrete examples #LCSM https://t.co/8mXjtLgKPU |
| #LCSM Chat @lcsmchat RT @womenofteal: @JFreemanDaily T5 Current RAs can: share information near and far of opportunities for research advocates in gov’t, academia, industry. Be a mentor Maybe Cancer Twitter communities can list these training groups / opportunities on their websites. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 This is a great resource. European Patients’ Academy on Therapeutic Innovation’s roadmap highlights specific opportunities for patient involvement along the four key stages of the medicines R&D lifecycle & it provides concrete examples #LCSM https://t.co/8mXjtLgKPU |
| Amanda Haddock 🧬 @AmandaHaddock @IshwariaMD @JFreemanDaily I’m on CH but haven’t found the right groups. Thanks for that recommendation. Any others you’d recommend? #lcsm #btsm |
| #LCSM Chat @lcsmchat RT @RManochakian: T5: T5: Consider & Explore giving research advocates more voice and presence in scientific meetings. Even support some dedicated meetings for them. #LCSM |
| Dee Sparacio @womenofteal #gyncsm |
| Jill Feldman @jillfeldman4 T5 I like to say, "help us help you help us" but the biggest challenge is many researchers don’t have a clear understanding of what a research advocate is & how to engage with us. I recommend visiting PCORI and make good use of their resources https://t.co/nILmIV2Aeg #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: T5: T5: a data base on individuals who want to act as Lay Reviewers. Start with a Facebook page #lcsm |
| Dave Bjork @bjork5 @JFreemanDaily T5: be inclusive! Not everyone is science minded but deserve a seat at the table to share xperience. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @jillfeldman4 @IASLC STARS is proud to partner with Research Advocacy Network! To learn more about their offerings beyond STARS, #LCSM https://t.co/TlY0P1AIDq |
| Danielle Pardue @Actorielle RT @KAdvocate_LCAM: @jillfeldman4 @IASLC STARS is proud to partner with Research Advocacy Network! To learn more about their offerings beyond STARS, #LCSM https://t.co/TlY0P1AIDq |
| #LCSM Chat @lcsmchat RT @AmandaHaddock: @IshwariaMD @JFreemanDaily I’m on CH but haven’t found the right groups. Thanks for that recommendation. Any others you’d recommend? #lcsm #btsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 I like to say, "help us help you help us" but the biggest challenge is many researchers don’t have a clear understanding of what a research advocate is & how to engage with us. I recommend visiting PCORI and make good use of their resources https://t.co/nILmIV2Aeg #LCSM |
| #LCSM Chat @lcsmchat RT @bjork5: @JFreemanDaily T5: @JFreemanDaily T5: be inclusive! Not everyone is science minded but deserve a seat at the table to share xperience. #LCSM |
| Danielle Pardue @Actorielle RT @IshwariaMD: @JFreemanDaily T4 we are planning several Clubhouse conversations during #asco21! Aiming for the PA/RA voice in each discussion of the research that we each find most intriguing! Join CH and follow the Heme/Onc Club to keep up with the updated schedules and join the conversation! #lcsm https://t.co/hhiwYIeePi |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #mmsm #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T5 I like to say, "help us help you help us" but the biggest challenge is many researchers don’t have a clear understanding of what a research advocate is & how to engage with us. I recommend visiting PCORI and make good use of their resources https://t.co/nILmIV2Aeg #LCSM |
 | cunmarket.com @ebscbwi RT @MyelomaTeacher: #lcsm #mmsm |
| Jill Feldman @jillfeldman4 T5 Cancer Research Uk also has great resources https://t.co/Uh7eg31BDT #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian Social media such as Twitter and other platforms are definitely great venues to enhance visibility and promote research advocates #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T5 Cancer Research Uk also has great resources https://t.co/Uh7eg31BDT #LCSM |
| Danielle Pardue @Actorielle RT @RManochakian: Social media such as Twitter and other platforms are definitely great venues to enhance visibility and promote research advocates #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 Cancer Research Uk also has great resources https://t.co/Uh7eg31BDT #LCSM |
| Kristin Ito @KAdvocate_LCAM RT @jillfeldman4: T5 Cancer Research Uk also has great resources https://t.co/Uh7eg31BDT #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: Social media such as Twitter and other platforms are definitely great venues to enhance visibility and promote research advocates #LCSM |
| Dave Bjork @bjork5 @IshwariaMD @JFreemanDaily Love the Schitts Creek GIFs by the way lol... 🥸 #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @RManochakian: Social media such as Twitter and other platforms are definitely great venues to enhance visibility and promote research advocates #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T5 Cancer Research Uk also has great resources https://t.co/Uh7eg31BDT #LCSM |
| Dr. Amy C. Moore @acmoorephd A5: My own goal, whether it be related to #cancer #research or the #pandemic, has been to try to humanize the #science and to have people see me as a trusted friend and partner willing to talk, listen, learn and roll up our sleeves together #LCSM |
| Eden Lake @EdenLake So sorry to be pulled away but my late sons fiance needs to talk. 9 month marker is hitting her hard. Glad I was here though. Be well everyone @lcsmchat #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T5 I like to say, "help us help you help us" but the biggest challenge is many researchers don’t have a clear understanding of what a research advocate is & how to engage with us. I recommend visiting PCORI and make good use of their resources https://t.co/nILmIV2Aeg #LCSM |
| #LCSM Chat @lcsmchat RT @acmoorephd: A5: A5: My own goal, whether it be related to #cancer #research or the #pandemic, has been to try to humanize the #science and to have people see me as a trusted friend and partner willing to talk, listen, learn and roll up our sleeves together #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter T5 step one is eliminating tokenism. If your grant/application asks for an advocate, take it seriously, invest the time to work with them. #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @RManochakian: Social media such as Twitter and other platforms are definitely great venues to enhance visibility and promote research advocates #LCSM |
| Janet Freeman-Daily @JFreemanDaily @SMImmunology Alas, I've got my hands full moderating this chat at the moment.... #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock @JFreemanDaily @IshwariaMD I’m not a big fan of the audio format. (Shocking to those who know me!) Audio only is harder to follow for me. #lcsm |
| Danielle Pardue @Actorielle RT @corrie_painter: T5 step one is eliminating tokenism. If your grant/application asks for an advocate, take it seriously, invest the time to work with them. #lcsm |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #LCSM |
| Amanda Haddock 🧬 @AmandaHaddock RT @RManochakian: T5: T5: Consider & Explore giving research advocates more voice and presence in scientific meetings. Even support some dedicated meetings for them. #LCSM |
| Kristin Ito @KAdvocate_LCAM @acmoorephd I am so grateful to know you and learn from you! You're doing incredible work for the community. #LCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher #mmsm #lcsm |
| Aliye Bricker @AliyeBricker Great discussion on the nuances and available resources for research advocacy - Especially for those of us who are just getting started and representing newly formed oncogene groups! Thank you all! #LCSM |
| Jamie Holloway, PhD @jamienholloway @bjork5 @IshwariaMD @JFreemanDaily I once vowed that I would only communicate in gifs from schitts creek! #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Or better yet, don't wait to be asked! #lcsm |
| Denise Cutlip @dennycee Y5: ❤️ that people are going outside US to look for inspiration #lcsm |
| Danielle Pardue @Actorielle Thank you #lcsm! Invigorating as always! @JFreemanDaily @lcsmchat 💚💚💚💚💚 |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @jamienholloway @AAADVWorkshop T4 yes!! We’re close to finalizing the agenda for the 2021 @AAADVWorkshop! Stay tuned but #advocates, you can get a head start on registering and requesting the advocate scholarship (100% registration is covered)! #lcsm ✅➡️https://t.co/2kUVh1Uynn https://t.co/hT2fKCw8DK |
| Danielle Pardue @Actorielle RT @AliyeBricker: Great discussion on the nuances and available resources for research advocacy - Especially for those of us who are just getting started and representing newly formed oncogene groups! Thank you all! #LCSM |
| Danielle Pardue @Actorielle RT @IshwariaMD: @jamienholloway @AAADVWorkshop T4 yes!! We’re close to finalizing the agenda for the 2021 @AAADVWorkshop! Stay tuned but #advocates, you can get a head start on registering and requesting the advocate scholarship (100% registration is covered)! #lcsm ✅➡️https://t.co/2kUVh1Uynn https://t.co/hT2fKCw8DK |
 | Sara Whitlock @sjwhitlock Great job guys on a really important subject! #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @JFreemanDaily Thanks for organizing. Maybe we can compile a list of RA resources that were shared this evening #lcsm #mmsm |
| Upstage Lung Cancer @UpstageLungCanc Thank you, #lcsm, for a fantastic chat as always! |
| Dee Sparacio @womenofteal @corrie_painter Yes I've had a researcher ask me to be part of a grant . Write a letter of support. They get the grant. Hurrah! No contact . Makes you wonder. #lcsm #gyncsm |
 | KRASKickers @KRASKickers RT @TimAllenMDJD: Or better yet, don't wait to be asked! #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thank you for your excellent hosting of this critical #lcsm topic, @JFreemanDaily! It was a privilege to participate. |
| Triage Cancer @TriageCancer Thank you for an enlightening evening, #lcsm! |
| Jill Feldman @jillfeldman4 T5 There isn't a handbook on engaging patients, but many times it's as simple as reaching out to have a conversation #JustAsk #LCSM https://t.co/keV5d757yr |
| #LCSM Chat @lcsmchat RT @corrie_painter: T5 step one is eliminating tokenism. If your grant/application asks for an advocate, take it seriously, invest the time to work with them. #lcsm |
| Kristin Ito @KAdvocate_LCAM Where did the hour go @JFreemanDaily ?! You are a powerhouse LCSM Chat host. Thank you for all you do, my friend. Cheers to all RA for all cancers. We are here for one another, always. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: @acmoorephd I am so grateful to know you and learn from you! You're doing incredible work for the community. #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T5 There isn't a handbook on engaging patients, but many times it's as simple as reaching out to have a conversation #JustAsk #LCSM https://t.co/keV5d757yr |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’re in our final minutes - closing thoughts? #LCSM |
| Dear Dr. Researcher, PhD @corrie_painter Thank you for hosting this @JFreemanDaily! Cross cancer advocacy is incredibly important. Here’s to achieving our common goals of better living while longer living across all cancer. #lcsm |
| #LCSM Chat @lcsmchat RT @AliyeBricker: Great discussion on the nuances and available resources for research advocacy - Especially for those of us who are just getting started and representing newly formed oncogene groups! Thank you all! #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @UpstageLungCanc Indeed, it was #LCSM |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Or better yet, don't wait to be asked! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @jamienholloway @bjork5 @IshwariaMD Where's the LOL emoji for Twitter? 😂 #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: Y5: Y5: ❤️ that people are going outside US to look for inspiration #lcsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @corrie_painter: Thank you for hosting this @JFreemanDaily! Cross cancer advocacy is incredibly important. Here’s to achieving our common goals of better living while longer living across all cancer. #lcsm |
| #LCSM Chat @lcsmchat RT @IshwariaMD: @jamienholloway @AAADVWorkshop T4 yes!! We’re close to finalizing the agenda for the 2021 @AAADVWorkshop! Stay tuned but #advocates, you can get a head start on registering and requesting the advocate scholarship (100% registration is covered)! #lcsm ✅➡️https://t.co/2kUVh1Uynn https://t.co/hT2fKCw8DK |
| KRASKickers @KRASKickers RT @corrie_painter: Thank you for hosting this @JFreemanDaily! Cross cancer advocacy is incredibly important. Here’s to achieving our common goals of better living while longer living across all cancer. #lcsm |
| Denise A Croix, PhD @CroixDenise @JFreemanDaily Thanks for a great educational evening! #LCSM |
| Dr. Amy C. Moore @acmoorephd @AliyeBricker @lcsmchat We'll be with you every step of the way! #LCSM |
| #LCSM Chat @lcsmchat RT @womenofteal: @corrie_painter Yes I've had a researcher ask me to be part of a grant . Write a letter of support. They get the grant. Hurrah! No contact . Makes you wonder. #lcsm #gyncsm |
| #LCSM Chat @lcsmchat RT @TimAllenMDJD: Thank you for your excellent hosting of this critical #lcsm topic, @JFreemanDaily! It was a privilege to participate. |
| Austin Peppers @Jalapeno448 I think this starts at the institutional level- that is, formalized events connecting researchers and patients (talks by patients, social hours, allowing patients to come to instiutional talks, etc). And, importantly, promoting participation by advertising in the clinic! |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T5 There isn't a handbook on engaging patients, but many times it's as simple as reaching out to have a conversation #JustAsk #LCSM https://t.co/keV5d757yr |
| Dear Dr. Researcher, PhD @corrie_painter @womenofteal Me too, then the grant agency contacted me for an update and I forgot I was a line item in the application #awkward #lcsm |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: Where did the hour go @JFreemanDaily ?! You are a powerhouse LCSM Chat host. Thank you for all you do, my friend. Cheers to all RA for all cancers. We are here for one another, always. #LCSM |
| #LCSM Chat @lcsmchat RT @corrie_painter: Thank you for hosting this @JFreemanDaily! Cross cancer advocacy is incredibly important. Here’s to achieving our common goals of better living while longer living across all cancer. #lcsm |
| kristen kimball @KimballKristen Lots to think about (and glad there will be a transcript!) Thank you Janet @JFreemanDaily and Deana @lcsmchat and everyone here for another intriguing chat #LCSM |
| #LCSM Chat @lcsmchat RT @KimballKristen: Lots to think about (and glad there will be a transcript!) Thank you Janet @JFreemanDaily and Deana @lcsmchat and everyone here for another intriguing chat #LCSM |
| Jill Feldman @jillfeldman4 Thank you Janet for starting the conversation! Fantastic chat as always. #LCSM |
 | Smart Patients @smart_patients RT @JFreemanDaily: T1: T1: What is a cancer research advocate (RA)? How do research advocates (RAs) differ from patient advocates? #LCSM |
| Janet Freeman-Daily @JFreemanDaily @MyelomaTeacher I'll be making a Wakelet of this chat. If you have any research advocates resources to share that haven't been mentioned, please post them in the next 15 minutes so I can put them in the summary! #LCSM |
| Dee Sparacio @womenofteal Great chat Janet and all. Loved the sharing of information and seeing so many great advocates all in one spot. Almost like sitting around a table in the advocate room at the annual @ASCO mtg . #gyncsm #lcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher Good night all #lcsm |
| #LCSM Chat @lcsmchat Thank you to @JFreemanDaily for organizing and moderating tonight’s chat. Transcript will be posted shortly. #lcsm |
| Dr. Amy C. Moore @acmoorephd Closing thoughts: my life has been so much richer because of the thoughtful, dedicated research advocates I've had the pleasure of working with @JFreemanDaily @jillfeldman4 @ivybelkins and so many more! Thank you for your friendship and mentorship! #LCSM |
| Jamie Holloway, PhD @jamienholloway I think it’s important or a research advocate to have some concrete ideas about how they would like to engage— and be ready to make suggestions when researchers do reach out. #LCSM |
| #LCSM Chat @lcsmchat RT @womenofteal: Great chat Janet and all. Loved the sharing of information and seeing so many great advocates all in one spot. Almost like sitting around a table in the advocate room at the annual @ASCO mtg . #gyncsm #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @MyelomaTeacher I'll be making a Wakelet of this chat. If you have any research advocates resources to share that haven't been mentioned, please post them in the next 15 minutes so I can put them in the summary! #LCSM |
| Janet Freeman-Daily @JFreemanDaily Thanks to all the advocates, researchers, and healthcare providers across the cancer communities for joining tonight's #LCSM Chat on Research Advocacy! The transcript will be up shortly. See you next month! |
| #LCSM Chat @lcsmchat RT @acmoorephd: Closing thoughts: Closing thoughts: my life has been so much richer because of the thoughtful, dedicated research advocates I've had the pleasure of working with @JFreemanDaily @jillfeldman4 @ivybelkins and so many more! Thank you for your friendship and mentorship! #LCSM |
| KRASKickers @KRASKickers THank you to the research advocates for being so helpful & approachable - open to sharing your knowledge & experiences as we learn how to grow #LCSM This means you @jillfeldman4 @JFreemanDaily |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Thank you very much @JFreemanDaily for bringing this community of #LCSM together. #TogetherAgainstCancer |
| #LCSM Chat @lcsmchat RT @kRasKickers: THank you to the research advocates for being so helpful & approachable - open to sharing your knowledge & experiences as we learn how to grow #LCSM This means you @jillfeldman4 @JFreemanDaily |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Thanks to all the advocates, researchers, and healthcare providers across the cancer communities for joining tonight's #LCSM Chat on Research Advocacy! The transcript will be up shortly. See you next month! |
| #LCSM Chat @lcsmchat RT @jamienholloway: I think it’s important or a research advocate to have some concrete ideas about how they would like to engage— and be ready to make suggestions when researchers do reach out. #LCSM |
| Ishwaria Subbiah, MD MS FASCO @IshwariaMD @ErikaHlavacek @bjork5 @JFreemanDaily Oh that whole Crows arc just had me spitting out laughing! #lcsm @SchittsCreek 🖤🖤 https://t.co/VgXqt4HcGN |
| Dee Sparacio @womenofteal #gyncsm #lcsm |
| Jill Feldman @jillfeldman4 Thank you everyone for your insights & leadership. You all inspire and motivate me! Let's keep the conversation going across all cancers and all disciplines #LCSM |
| Janet Freeman-Daily @JFreemanDaily #LCSM |
| Jasmin @Jas_LohPY RT @StephenVLiu: Congratulations to the authors, Drs. @vivianetalencar @PirolliRafaela @CamillaFogassa @ClaudioVladmir from AC Camargo Cancer Center #LCSM @IASLC @JTOonline https://t.co/riSRHbQWZB |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian Research advocates are vital and crucial members of the research team. They are needed more than ever in this hopeful era of major research & scientific advancement in cancer care Let’s continue to promote and support them and their role. #LCSM |
| Christina Lizaso @btrfly12 RT @RManochakian: Research advocates are vital and crucial members of the research team. They are needed more than ever in this hopeful era of major research & scientific advancement in cancer care Let’s continue to promote and support them and their role. #LCSM |
 | Manju George MVSc PhD Rectal Cancer Survivor @manjuggm RT @JFreemanDaily: T3: T3: One essential skill for research advocates is maintaining a focus on fixing problems that help the entire patient community rather than just their own cancer case. RAs must know when NOT to tell their patient story. #LCSM |
| Manju George MVSc PhD Rectal Cancer Survivor @manjuggm RT @IshwariaMD: @JFreemanDaily T4 — I say dive right in! Most national conferences have heavily discounted to free registration for patient advocates (and research advocates)! Join the clinical and research meetings! Know you belong there! Hope to see you all at #ASCO21! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @KAdvocate_LCAM Thanks to @KAdvocate_LCAM for your dedication and collaboration on the @IASLC STARS program--you are the heart STARS! #LCSM |
| Jill Feldman @jillfeldman4 RT @kRasKickers: THank you to the research advocates for being so helpful & approachable - open to sharing your knowledge & experiences as we learn how to grow #LCSM This means you @jillfeldman4 @JFreemanDaily |
| Jill Feldman @jillfeldman4 RT @KAdvocate_LCAM: @jillfeldman4 @IASLC STARS is proud to partner with Research Advocacy Network! To learn more about their offerings beyond STARS, #LCSM https://t.co/TlY0P1AIDq |
#LCSM content from Twitter.