#LCSM Transcript

Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.

ProfileTweet
NCI Cancer Stats @NCICancerStats
Help raise awareness for #LungCancer by watching and sharing our Did You Know? video: https://t.co/MnrkjeW1f2 #LCSM
Janet Freeman-Daily @JFreemanDaily
Welcome to #LCSM Chat! Tonight is "Open Mic Night" an unstructured chat about whatever #lungcancer topics are on your mind. Ready? Go!
CancerDotNet @CancerDotNet
Less than 2% of current + former heavy #smokers are screened for #lungcancer. #ASCO18 @uofl James Graham Brown Cancer Center study shows screening rates much lower than breast, colon cancers: https://t.co/HlcYae7sDk #lcsm https://t.co/w16NAwAhFJ
Faces of Lung Cancer @LungCancerFaces
Deana Hendrickson coming at you from Los Angeles #lcsm
Janet Freeman-Daily @JFreemanDaily
Janet Freeman-Daily, writer, speaker, science geek, lung cancer patient/activist. #lcsm
Denise Cutlip @dennycee
Michigan in the house #lcsm
Janet Freeman-Daily @JFreemanDaily
The soothing sound of crickets .... #lcsm
Diane 🧚🏻‍♀️ @diianeee
Hello everyone! Diane here from IL dx 4/14. #lcsm
Janet Freeman-Daily @JFreemanDaily
Denzie! Thanks for joining. Deana and I get tired of talking to each other. #lcsm
Faces of Lung Cancer @LungCancerFaces
@dennycee Hey Lady! #lcsm
Peggy Dennis @peggyddennis
Peggy joining from Denver #LCSM
Janet Freeman-Daily @JFreemanDaily
Hi Diane! #lcsm
Faces of Lung Cancer @LungCancerFaces
@diianeee Hi Denise! #lcsm
LungCancer.net @LungCancer_HU
Margot from https://t.co/4ebZcp0jKf - hi! #lcsm
Faces of Lung Cancer @LungCancerFaces
@JFreemanDaily Welcome, Peggy! #lcsm
Faces of Lung Cancer @LungCancerFaces
@LungCancer_HU Hey, Margot! #lcsm
Janet Freeman-Daily @JFreemanDaily
@LungCancer_HU Hi Margot! #lcsm
Faces of Lung Cancer @LungCancerFaces
@peggyddennis Welcome, Peggy! #lcsm
Janet Freeman-Daily @JFreemanDaily
Hey, Denise, how is your friend? #lcsm
LungCancer.net @LungCancer_HU
@JFreemanDaily @LungCancerFaces Hi! #lcsm
Faces of Lung Cancer @LungCancerFaces
If you're just watching, please tweet us with the hashtag so we know you're out there #lcsm
Janet Freeman-Daily @JFreemanDaily
I'd like to hear what kind of #lungcancer advocacy work currently interests each of you. #lcsm
Denise Cutlip @dennycee
@JFreemanDaily Out if ICU. Not coherent enough to be alone. Thx #lcsm
Faces of Lung Cancer @LungCancerFaces
My favorite type of advocacy work involves education the general public and getting more federal research funding for lung cancer. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I'd like to hear what kind of #lungcancer advocacy work currently interests each of you. #lcsm
Diane 🧚🏻‍♀️ @diianeee
I’m wondering if there is anyone that has the egfr mutation that has tried immunotherapy?? #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Janet Freeman-Daily, writer, speaker, science geek, lung cancer patient/activist. #lcsm
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy
@JFreemanDaily That moment when you check the Twitter feed right before you start your commute home and feel compelled to say LOVE YOU to the most awesome-est woman. 💖 XO. Have a great #lcsm chat and, if you haven't started digging through @ASCO ASCO18 abstracts yet... whatcha waiting for?
Janet Freeman-Daily @JFreemanDaily
@dennycee Glad to hear there's progress. Hospital staff are so overloaded -- patients really need an advocate with them 24/7. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: If you're just watching, please tweet us with the hashtag so we know you're out there #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I'd like to hear what kind of #lungcancer advocacy work currently interests each of you. #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: My favorite type of advocacy work involves education the general public and getting more federal research funding for lung cancer. #lcsm
Jane Aswell, PhD @AswellJane
RT @CancerDotNet: Less than 2% of current + former heavy #smokers are screened for #lungcancer. #ASCO18 @uofl James Graham Brown Cancer Center study shows screening rates much lower than breast, colon cancers: https://t.co/HlcYae7sDk #lcsm https://t.co/w16NAwAhFJ
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Tim here. #lcsm https://t.co/HcMozCFLy0
Faces of Lung Cancer @LungCancerFaces
@TimAllenMDJD Hi, Time! #lcsm
Faces of Lung Cancer @LungCancerFaces
Tim, not Time #lcsm
Denise Cutlip @dennycee
At my hospital I meet with newly dx’d when they’re at Lung Cancer clinic #lcsm
Janet Freeman-Daily @JFreemanDaily
@diianeee Yes, EGFR+ patients have tried immunotherapy. Experts suggest EGFR/ALK/ROS1 stage IV patients use it AFTER other therapies. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Howdy! #lcsm https://t.co/Qp7FThdL98
Karen Loss @cancertrek
Greetings everyone. Hope you're having a great evening. #lcsm
Janet Freeman-Daily @JFreemanDaily
Welcome Katherine! Is this your first #LCSM Chat?
Faces of Lung Cancer @LungCancerFaces
@3_doghouse Welcome, Katherine! #lcsm
Janet Freeman-Daily @JFreemanDaily
Hey Karen! Glad to see you. #lcsm
Faces of Lung Cancer @LungCancerFaces
@cancertrek Hi, Karen! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: @diianeee Yes, EGFR+ patients have tried immunotherapy. Experts suggest EGFR/ALK/ROS1 stage IV patients use it AFTER other therapies. #lcsm
Janet Freeman-Daily @JFreemanDaily
@IntrovertinNC Welcome to #LCSM Chat@
Karen Loss @cancertrek
For me, I like doing media interviews and public speaking best. #lcsm
Faces of Lung Cancer @LungCancerFaces
@IntrovertinNC Hey! We can relate. #lcsm
Ride Hard Breathe Easy @Ride4Lungs
RT @LCAorg: Most people don't realize that #lungcancer is the top cancer killer among women. RETWEET THIS IMAGE and help raise awareness for a critical women's health issue. #NWHW #SaveHerLungs #LCSM https://t.co/itHCWi91hq
Janet Freeman-Daily @JFreemanDaily
@TimAllenMDJD Welcome! How's the new job? #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: At my hospital I meet with newly dx’d when they’re at Lung Cancer clinic #lcsm
#LCSM Chat @lcsmchat
RT @coffeemommy: @JFreemanDaily That moment when you check the Twitter feed right before you start your commute home and feel compelled to say LOVE YOU to the most awesome-est woman. 💖 XO. Have a great #lcsm chat and, if you haven't started digging through @ASCO ASCO18 abstracts yet... whatcha waiting for?
SunshineKK @SunshineKK68
#lcsm
#LCSM Chat @lcsmchat
RT @diianeee: I’m wondering if there is anyone that has the egfr mutation that has tried immunotherapy?? #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @diianeee Yes, EGFR+ patients have tried immunotherapy. Experts suggest EGFR/ALK/ROS1 stage IV patients use it AFTER other therapies. #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: For me, I like doing media interviews and public speaking best. #lcsm
Janet Freeman-Daily @JFreemanDaily
@dennycee For newly diagnosed patients, having an experienced #lungcancer patient to talk to is very comforting. #lcsm
Diane 🧚🏻‍♀️ @diianeee
I’m he oppositeof @cancertrek,... I like sharing my story to individuals. Connecting on fb/Twitter helps. #lcsm
Faces of Lung Cancer @LungCancerFaces
@SunshineKK68 Welcome! #lcsm
Denise Cutlip @dennycee
@cancertrek you do awesome job! #lcsm
Janet Freeman-Daily @JFreemanDaily
@SunshineKK68 Hi there! Is this your first #LCSM Chat? (I ask because my chemobrain doesn't retain names)
Flemming Rasmussen @fgrazz
@JFreemanDaily #lcsm To hear overviews of new paths research is venturing into periodically...and to seek means to show unity in present efforts most are familiar with, and those 'un-hyped' new paths regardless of discipline
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @dennycee For newly diagnosed patients, having an experienced #lungcancer patient to talk to is very comforting. #lcsm
#LCSM Chat @lcsmchat
RT @diianeee: I’m he oppositeof @cancertrek,... I like sharing my story to individuals. Connecting on fb/Twitter helps. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: @dennycee For newly diagnosed patients, having an experienced #lungcancer patient to talk to is very comforting. #lcsm
#LCSM Chat @lcsmchat
RT @fgrazz: @JFreemanDaily #lcsm To hear overviews of new paths research is venturing into periodically...and to seek means to show unity in present efforts most are familiar with, and those 'un-hyped' new paths regardless of discipline
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @fgrazz: @JFreemanDaily #lcsm To hear overviews of new paths research is venturing into periodically...and to seek means to show unity in present efforts most are familiar with, and those 'un-hyped' new paths regardless of discipline
Jennifer Ersek @JLErsek
Hello #lcsm peeps
Denise Cutlip @dennycee
Meeting new dx pats I share hope and answer questions about real life side effects. Identify barriers to treatment. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @dennycee: Meeting new dx pats I share hope and answer questions about real life side effects. Identify barriers to treatment. #lcsm
Faces of Lung Cancer @LungCancerFaces
@JLErsek Hello! #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: Meeting new dx pats I share hope and answer questions about real life side effects. Identify barriers to treatment. #lcsm
Janet Freeman-Daily @JFreemanDaily
@coffeemommy @ASCO Thanks for the wave! Love you too. Still finishing up with @AACR before I tackle @ASCO! #LCSM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @diianeee: I’m he oppositeof @cancertrek,... I like sharing my story to individuals. Connecting on fb/Twitter helps. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @cancertrek: For me, I like doing media interviews and public speaking best. #lcsm
Andrea Borondy Kitts @findlungcancer
View from my hotel room @atscommunity #ATS2018 @HiltonHotels San Diego Bayside @CrisAlvaradoMD #lcsm https://t.co/dHsjmxy6Kv
Karen Loss @cancertrek
@LungCancer_HU HI Margot! #lcsm
LungCancer.net @LungCancer_HU
@cancertrek Hi! #lcsm
Karen Loss @cancertrek
So do we have something specific we're talking about yet this evening? #lcsm
Janet Freeman-Daily @JFreemanDaily
@findlungcancer That's a foreboding dark cloud! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Thanks for asking, @JFreemanDaily It's great! Privileged to be part of an awesome @UMMC_Pathology team! #lcsm https://t.co/TaRUp3aLbJ
Faces of Lung Cancer @LungCancerFaces
@cancertrek You name a topic. Open Mic is all about that. #lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek I did ask if anyone had particular #lungcancer advocacy work they're doing right now. #lcsm
Karen Loss @cancertrek
I'm writing for https://t.co/xCpTzEHtm9. Woohoo! A fine website and wonderful parent company (Health Union). #lcsm
Michelle Basilio @TheMichiWay3
RT @Roche: Updated analyses of Roche data in ALK-positive #lungcancer announced today. Find out more:
diseases_an @diseases_an
RT @JillHW: @clinicaltrialON @N2Canada A #clinicaltrial is extending my life! The investigational drug stopped #lungcancer for two years, time for #CancerResearch and a new #targetedtherapy now working over a year! Milestones & memories with my kids! #LCSM @ALKPositiveLung @OttawaCancer @OttawaHospital #gratitude
Janet Freeman-Daily @JFreemanDaily
@cancertrek ...l and I see you answered that while I was busy typing a reply to someone else! Apparently I have trouble keeping up ... #lcsm
Flemming Rasmussen @fgrazz
@JFreemanDaily @cancertrek ..does this responds to you question? #lcsm
Denise Cutlip @dennycee
Deana, Lysa, Karen and crew that made 2d Rally/Breath. Kudos. These are things that will make a difference. #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: I'm writing for https://t.co/xCpTzEHtm9. Woohoo! A fine website and wonderful parent company (Health Union). #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: Deana, Lysa, Karen and crew that made 2d Rally/Breath. Kudos. These are things that will make a difference. #lcsm
Faces of Lung Cancer @LungCancerFaces
@dennycee Thank you! We tried our best. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @dennycee: Deana, Lysa, Karen and crew that made 2d Rally/Breath. Kudos. These are things that will make a difference. #lcsm
Karen Loss @cancertrek
Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: @dennycee Thank you! We tried our best. #lcsm
Janet Freeman-Daily @JFreemanDaily
Here's a question: What progress do you see in #lungcancer advocacy over the past few years? #lcsm
LungCancer.net @LungCancer_HU
@cancertrek we're lucky to have you :) #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: @dennycee Thank you! We tried our best. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Here's a question: Here's a question: What progress do you see in #lungcancer advocacy over the past few years? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @cancertrek: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: @dennycee Thank you! We tried our best. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
I see patients and families at medical society meetings! Thanks, #lcsm https://t.co/HjjJJ8m5VO
Faces of Lung Cancer @LungCancerFaces
The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm
Karen Loss @cancertrek
@JFreemanDaily I see an increasing number of patients coming out publicly and sharing their experiences. This matters in advocacy. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: I see patients and families at medical society meetings! Thanks, #lcsm https://t.co/HjjJJ8m5VO
#LCSM Chat @lcsmchat
RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: @JFreemanDaily I see an increasing number of patients coming out publicly and sharing their experiences. This matters in advocacy. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm
Janet Freeman-Daily @JFreemanDaily
@TimAllenMDJD As more #lungcancer patients feel healthier on new treatments, more are getting interested in research. Yay! #lcsm
Denise Cutlip @dennycee
Progress? More people get that all you need is lungs. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Tell your stories. Please. #lcsm https://t.co/yqFLNW2P5G
Karen Loss @cancertrek
Only a few years ago, lung cancer remained far more hidden behind closed doors. Now, at least we hear more about it in public settings #lcsm
Grumpy-ish @marlaceleri
@LungCancerFaces #Lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek Yes, learning to tell our patient stories effectively--and having more stories to tell--is definitely making a difference! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @TimAllenMDJD As more #lungcancer patients feel healthier on new treatments, more are getting interested in research. Yay! #lcsm
Janet Freeman-Daily @JFreemanDaily
@marlaceleri Welcome to #LCSM Chat!
Faces of Lung Cancer @LungCancerFaces
@marlaceleri Welcome! #lcsm
Janet Freeman-Daily @JFreemanDaily
Since we have some relative newbies in the chat, anyone have questions about tweetchats and how to participate? #lcsm
Faces of Lung Cancer @LungCancerFaces
@melmarie274 Thanks for joining us! #lcsm
Peggy Dennis @peggyddennis
#LCSM Likewise...maybe it's just that I am hyperaware now but I see more public awareness of #lungcancer cancer
#LCSM Chat @lcsmchat
RT @dennycee: Progress? More people get that all you need is lungs. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Tell your stories. Please. #lcsm https://t.co/yqFLNW2P5G
#LCSM Chat @lcsmchat
RT @cancertrek: Only a few years ago, lung cancer remained far more hidden behind closed doors. Now, at least we hear more about it in public settings #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @cancertrek Yes, learning to tell our patient stories effectively--and having more stories to tell--is definitely making a difference! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Since we have some relative newbies in the chat, anyone have questions about tweetchats and how to participate? #lcsm
#LCSM Chat @lcsmchat
RT @peggyddennis: #LCSM Likewise...maybe it's just that I am hyperaware now but I see more public awareness of #lungcancer cancer
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
@JFreemanDaily FTW! #lcsm #hope #RightTestRightTreatment #PatientsFirst https://t.co/JQfGbJnpEX
Janet Freeman-Daily @JFreemanDaily
@cancertrek Visibility! Glad that more #lungcancer patients are willing to talk publicly about their disease. #nostigma #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @peggyddennis: #LCSM Likewise...maybe it's just that I am hyperaware now but I see more public awareness of #lungcancer cancer
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @cancertrek Visibility! Glad that more #lungcancer patients are willing to talk publicly about their disease. #nostigma #lcsm
Karen Loss @cancertrek
I think we've made "some" progress with 1 or 2 of the big non-profits regarding the stigma issue. That's all due to patient activists. #lcsm
Kelly Keesling @kgkeesling
@JFreemanDaily Since getting involved in the Lung Cancer Initiative of NC, I've seen a lot more advocacy and am encouraged to advocate more myself. #LCSM
#LCSM Chat @lcsmchat
RT @cancertrek: I think we've made "some" progress with 1 or 2 of the big non-profits regarding the stigma issue. That's all due to patient activists. #lcsm
Janet Freeman-Daily @JFreemanDaily
@peggyddennis Absolutely more public awareness. Five years ago, couldn't imagine TV ads or billboards talking about #lungcancer. #lcsm
Treatment for Cancer @cancer_tm
RT @LUNGevity: Thank you @cure_magazine @LUNGevityKB and AmandaN. When #LungCancer Strikes People Under 50 #lcsm https://t.co/A7ghoy2bca
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Nothing but friends here at #lcsm Jump right in! https://t.co/MvH5ZPfYuA
Janet Freeman-Daily @JFreemanDaily
@cancertrek Yes, some progress on #stigma, but alas, still a long way to go. #lcsm
Jennifer Ersek @JLErsek
@JFreemanDaily @cancertrek @SunshineKK68 and I are hosting the #charlotteLUNGeforward 5K, Walk & Rally on Saturday!! 🏃🏻‍♀️We have really focused on sharing stories and the importance of research in our community this year. #lcsm
#LCSM Chat @lcsmchat
RT @kgkeesling: @JFreemanDaily Since getting involved in the Lung Cancer Initiative of NC, I've seen a lot more advocacy and am encouraged to advocate more myself. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @peggyddennis Absolutely more public awareness. Five years ago, couldn't imagine TV ads or billboards talking about #lungcancer. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Swaying public opinion. #NoStigma #lcsm https://t.co/VKy5eFOf50
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @kgkeesling: @JFreemanDaily Since getting involved in the Lung Cancer Initiative of NC, I've seen a lot more advocacy and am encouraged to advocate more myself. #LCSM
Faces of Lung Cancer @LungCancerFaces
@BillColona Welcome! #lcsm
Janet Freeman-Daily @JFreemanDaily
@BillColona Welcome Bill! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @JFreemanDaily: @cancertrek Visibility! Glad that more #lungcancer patients are willing to talk publicly about their disease. #nostigma #lcsm
Karen Loss @cancertrek
Indeed, a long way. But we've begun. RT @JFreemanDaily: @cancertrek Yes, some progress on #stigma, but alas, still a long way to go. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#JustMolecularChanges #NoStigma #lcsm https://t.co/hBeaOtIazK
Janet Freeman-Daily @JFreemanDaily
If I miss greeting anyone, I https://t.co/IQDnjIIRyz isn't showing me all the tweets in the chat. :( #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: Indeed, a long way. But we've begun. RT @JFreemanDaily: Indeed, a long way. But we've begun. RT @JFreemanDaily: @cancertrek Yes, some progress on #stigma, but alas, still a long way to go. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
And screening! #lcsm https://t.co/q2O7pzbAQF
#LCSM Chat @lcsmchat
RT @JFreemanDaily: If I miss greeting anyone, I https://t.co/IQDnjIIRyz isn't showing me all the tweets in the chat. :( #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: And screening! #lcsm https://t.co/q2O7pzbAQF
Janet Freeman-Daily @JFreemanDaily
@kgkeesling Hey, another @ros1cancer ROS1der! Welcome to the chat, Kelly. #LCSM
Peggy Dennis @peggyddennis
#LCSM Almost two years along and I find that more people are interested in my story. Until then, I think they were waiting to see if I'd be hanging around :)
Denise Cutlip @dennycee
older seniors not getting message QOL new treatments can give and opting not to seek treatment is a major fail #lcsm
#LCSM Chat @lcsmchat
RT @peggyddennis: #LCSM Almost two years along and I find that more people are interested in my story. Until then, I think they were waiting to see if I'd be hanging around :)
Karen Loss @cancertrek
I've noticed more people jumping right into patient advocacy soon after DX. I didn't even know about it until a year in, so kudos... #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: older seniors not getting message QOL new treatments can give and opting not to seek treatment is a major fail #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: I've noticed more people jumping right into patient advocacy soon after DX. I didn't even know about it until a year in, so kudos... #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
More work needs to be done. #lcsm https://t.co/EB7VSNiIFW
Karen Loss @cancertrek
RT @dennycee: older seniors not getting message QOL new treatments can give and opting not to seek treatment is a major fail #lcsm
Diane 🧚🏻‍♀️ @diianeee
@cancertrek I agree! It took me a while to even seek out support let alone advacocay. #lcsm
diseases_an @diseases_an
RT @LUNGevity: Thank you @cure_magazine @LUNGevityKB and AmandaN. When #LungCancer Strikes People Under 50 #lcsm https://t.co/A7ghoy2bca
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
This #lcsm https://t.co/YPWswY9tni
Kelly Keesling @kgkeesling
I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM
Janet Freeman-Daily @JFreemanDaily
Is anyone involved with research advocacy? Critiquing/evaluating grants, serving on IRBs, etc.? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @cancertrek: I've noticed more people jumping right into patient advocacy soon after DX. I didn't even know about it until a year in, so kudos... #lcsm
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: @TimAllenMDJD As more #lungcancer patients feel healthier on new treatments, more are getting interested in research. Yay! #lcsm
Kevin Gallagher @GallagherKevinP
RT @LCAorg: Most people don't realize that #lungcancer is the top cancer killer among women. RETWEET THIS IMAGE and help raise awareness for a critical women's health issue. #NWHW #SaveHerLungs #LCSM https://t.co/itHCWi91hq
OurWarOnCancer @OurWarOnCancer
RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @diianeee: @cancertrek I agree! It took me a while to even seek out support let alone advacocay. #lcsm
#LCSM Chat @lcsmchat
RT @diianeee: @cancertrek I agree! It took me a while to even seek out support let alone advacocay. #lcsm
#LCSM Chat @lcsmchat
RT @kgkeesling: I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Is anyone involved with research advocacy? Critiquing/evaluating grants, serving on IRBs, etc.? #lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek I think as we have more visibility and more patient advocates for #lungcancer, more patients see opportunities earlier #lcsm
OurWarOnCancer @OurWarOnCancer
RT @VirginiaMByrne: Fresh eyes looking at old problems are welcome, especially in lung cancer, USA’s #1 cancer killer, yet gets 6% of @nih budget, due to stigma. Let’s get over 10%! NCICRC @ALKPositiveLung #LCSM @OurWarOnCancer @washingtonpost @NYTHealth @BrendonStilesMD https://t.co/3oxImKbEEM
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
2d that #lcsm #NoStigma https://t.co/PyRs4lNKbA
Faces of Lung Cancer @LungCancerFaces
Hi Tiffini! #lcsm https://t.co/O7Dhww4gT3
diseases_an @diseases_an
RT @LCAorg: Most people don't realize that #lungcancer is the top cancer killer among women. RETWEET THIS IMAGE and help raise awareness for a critical women's health issue. #NWHW #SaveHerLungs #LCSM https://t.co/itHCWi91hq
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @cancertrek I think as we have more visibility and more patient advocates for #lungcancer, more patients see opportunities earlier #lcsm
Karen Loss @cancertrek
BTW, I received a big, strong STABLE scan report today. Yay for me. Keeps me going for another three months. :D #lcsm
Janet Freeman-Daily @JFreemanDaily
@peggyddennis When a #lungcancer patient is around for a couple of years and feeling good enough to share their story, people start to take notice! #LCSM
OurWarOnCancer @OurWarOnCancer
RT @VirginiaMByrne: Thank you @SWOG. We’re going in the same direction, but with 18% 5-year survival rate, we all must move faster. #433DieDaily #Stage4NeedsMore #LCSM @ALKPositiveLung @NIHDirector @NIH @NCIDirector @NCICRCHD @LUNGevity https://t.co/LJwX0ng6iQ
#LCSM Chat @lcsmchat
RT @cancertrek: BTW, I received a big, strong STABLE scan report today. Yay for me. Keeps me going for another three months. :D #lcsm
Tiffini Joseph @Smiles4Nana
@LungCancerFaces Hi 👋🏼 sorry I’m a little late to the party #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @peggyddennis When a #lungcancer patient is around for a couple of years and feeling good enough to share their story, people start to take notice! #LCSM
Janet Freeman-Daily @JFreemanDaily
@cancertrek YAY! Stable is good! #lcsm
Diane 🧚🏻‍♀️ @diianeee
@cancertrek Great news, Karen! #lcsm
Janet Freeman-Daily @JFreemanDaily
@Smiles4Nana Welcome, Tiffini! #lcsm
OurWarOnCancer @OurWarOnCancer
RT @VirginiaMByrne: Pls follow Dusty, a lung cancer advocate @LiveLung1. I just did. #LCSM @ALKPositiveLung @OurWarOnCancer https://t.co/E0OwoUNf4Q
Faces of Lung Cancer @LungCancerFaces
@cancertrek Thank goodness! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
👍 #lcsm https://t.co/mzH7eHd9zp
Tiffini Joseph @Smiles4Nana
@cancertrek Awesome news!! #lcsm
OurWarOnCancer @OurWarOnCancer
RT @VirginiaMByrne: Both rads and meds are important! @DrewMoghanaki #lcsm @ALKPositiveLung @OurWarOnCancer @bonniejaddario @TimAllenMDJD @stage4kelly https://t.co/mYqZROc3LU
Peggy Dennis @peggyddennis
@JFreemanDaily #LCSM Would love to help with research advocacy. Not sure what/where to go to get onboard. Not sure if other advocates are as well???
OurWarOnCancer @OurWarOnCancer
RT @VirginiaMByrne: Patients & advocates are key stakeholders in research, clinical trials, etc. Thank you for having the common sense to recognize this & act on it. #LCSM @ALKPositiveLung @OurWarOnCancer @DNABARCODE @ivybelkins @stage4kelly @NYTHealth @bonniejaddario https://t.co/3E3IcwEm3V
Tiffini Joseph @Smiles4Nana
RT @JFreemanDaily: Is anyone involved with research advocacy? Critiquing/evaluating grants, serving on IRBs, etc.? #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Congratulations! #lcsm https://t.co/H0ZkQyQ7gm
OurWarOnCancer @OurWarOnCancer
RT @VirginiaMByrne: Agreed! Let’s drop this tired old “battle” cliche. People with cancer and carers need to use new words to create change in awareness. #LCSM @ALKPositiveLung @stage4kelly @double_whammied @OurWarOnCancer @DNABARCODE https://t.co/1ib9AtHHtu
Denise Cutlip @dennycee
@JFreemanDaily I’ve signed up for PCORI waiting to serve! #lcsm
Michele Gaguski @megcns
RT @CancerDotNet: Less than 2% of current + former heavy #smokers are screened for #lungcancer. #ASCO18 @uofl James Graham Brown Cancer Center study shows screening rates much lower than breast, colon cancers: https://t.co/HlcYae7sDk #lcsm https://t.co/w16NAwAhFJ
Tiffini Joseph @Smiles4Nana
@kgkeesling That’s a great way to get your story told #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#GoTeam #lcsm https://t.co/dyaWZ4w2pd
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @kgkeesling: I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM
#LCSM Chat @lcsmchat
RT @peggyddennis: @JFreemanDaily #LCSM Would love to help with research advocacy. Not sure what/where to go to get onboard. Not sure if other advocates are as well???
#LCSM Chat @lcsmchat
RT @dennycee: @JFreemanDaily I’ve signed up for PCORI waiting to serve! #lcsm
Karen Loss @cancertrek
I have served on a couple of Big Pharma advisory panels - one-offs. Good experiences though. #lcsm
Jennifer Ersek @JLErsek
RT @kgkeesling: I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM
#LCSM Chat @lcsmchat
RT @cancertrek: I have served on a couple of Big Pharma advisory panels - one-offs. Good experiences though. #lcsm
dopaminergic13 🐭 @dopaminergic13
RT @TimAllenMDJD: Congratulations! #lcsm https://t.co/H0ZkQyQ7gm
diseases_an @diseases_an
RT @Roche: Updated analyses of Roche data in ALK-positive #lungcancer announced today. Find out more:
Karen Loss @cancertrek
Here's a question for everyone. What specific ways are you speaking to the public? Kind of a reframing of Janet's earlier question. #lcsm
Janet Freeman-Daily @JFreemanDaily
@peggyddennis Talk to some of the advocates who are involved in research advocacy: @findlungcancer, @don450sl, @dustywater ... #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Long way to go regarding research funding. #1CancerKiller #LCSM
#LCSM Chat @lcsmchat
RT @cancertrek: Here's a question for everyone. What specific ways are you speaking to the public? Kind of a reframing of Janet's earlier question. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @findlungcancer, @don450sl, @dustywater ... #lcsm
Denise Cutlip @dennycee
Would love to see Exceptional Responder Registry reopen and expanded. #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Long way to go regarding research funding. #1CancerKiller #LCSM
Karen Loss @cancertrek
I published a book a few years ago. It gave me ops to do book chats about my lung cancer experience and reach plenty of lay people. #lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek I now speak at cancer conferences, NCI, universities, pharma ... but it started by speaking at my church and my blog. #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: Would love to see Exceptional Responder Registry reopen and expanded. #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: I published a book a few years ago. It gave me ops to do book chats about my lung cancer experience and reach plenty of lay people. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @cancertrek I now speak at cancer conferences, NCI, universities, pharma ... but it started by speaking at my church and my blog. #lcsm
Karen Loss @cancertrek
I've been invited by generic patient groups to speak when they do lung cancer specific events. Don't limit to lung cancer groups only. #lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek Karen, are you still getting contacts related to your book? Just wondering what the staying power of nonfiction is ... #lcsm
Tiffini Joseph @Smiles4Nana
@cancertrek I have hosted several Shine a Light on Lung Cancer @LCAorg and try to educate people as often as possible in daily life #lcsm
Diane 🧚🏻‍♀️ @diianeee
@cancertrek Karen, when were you diagnosed? If you don’t mind me asking. #lcsm
Kelly Keesling @kgkeesling
Is anyone seeing my tweets? #lcsm
SunshineKK @SunshineKK68
@kgkeesling yes #lcsm
Karen Loss @cancertrek
@JFreemanDaily @cancertrek Not so much for speaking, but occasionally requests to include it in magazine references. #lcsm
Diane 🧚🏻‍♀️ @diianeee
@kgkeesling Yes! #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: I've been invited by generic patient groups to speak when they do lung cancer specific events. Don't limit to lung cancer groups only. #lcsm
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @cancertrek I have hosted several Shine a Light on Lung Cancer @LCAorg and try to educate people as often as possible in daily life #lcsm
Janet Freeman-Daily @JFreemanDaily
@kgkeesling Your tweet just now showed up in https://t.co/A2M7gY7Hvl! #lcsm
Karen Loss @cancertrek
Diagnosed Thanksgiving 2012. #lcsm
Jill Feldman @jillfeldman4
Hi all, sorry I'm joining late (all four kids home for dinner so family time) but wanted to say hi! #lcsm
Karen Loss @cancertrek
BTW, still wanting to see more green shirt survivors at Breathe Deep walks. In DC, lots of blue shirts, but we need more green ones. #lcsm
Janet Freeman-Daily @JFreemanDaily
So what would y'all most like to see happen in #lungcancer advocacy this year? #lcsm
Janet Freeman-Daily @JFreemanDaily
@jillfeldman4 **waving** Hi Jill! #lcsm
Faces of Lung Cancer @LungCancerFaces
@jillfeldman4 Hi, Jill! Bye, Jill! #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: BTW, still wanting to see more green shirt survivors at Breathe Deep walks. In DC, lots of blue shirts, but we need more green ones. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: So what would y'all most like to see happen in #lungcancer advocacy this year? #lcsm
Karen Loss @cancertrek
What I'd most like to see is a major actor or entertainer get on board and become our champion. #lcsm
Ian Pereira @IanJPereira
RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm
Diane 🧚🏻‍♀️ @diianeee
@cancertrek At the small breathe deep Kankakee we had 3 green shirts, at the bigger BD North Shore there were 13! #lcsm
Faces of Lung Cancer @LungCancerFaces
I'd like to see more patient voices involved in a significant way in our major lung cancer groups #lcsm
Karen Loss @cancertrek
LIke it or not, big media needs to get behind us if we're to gain a large public footing. #lcsm
Janet Freeman-Daily @JFreemanDaily
FYI, as @cancertrek knows, sharing your patient story at #lungcancer fundraising walks is a great way to get started in advocacy. #lcsm
Tiffini Joseph @Smiles4Nana
@JFreemanDaily More organizational unity, more survivors and family sharing their stories and more of the public listening to the message #lcsm
Faces of Lung Cancer @LungCancerFaces
I'd like to see more survivors and their families participate in the political aspect of federal lung cancer research funding #lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek With a caveat--would like a major public figure as #lungcancer advocate who knows the issues patients deal with. #lcsm
Denise Cutlip @dennycee
I would like to see the major nonprofits focus more education efforts on ALL Causes of lc #lcsm
Faces of Lung Cancer @LungCancerFaces
I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm
Jill Feldman @jillfeldman4
To see more collaborative efforts w/organizations. We share a vision, core belief & our desired result is the same #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: What I'd most like to see is a major actor or entertainer get on board and become our champion. #lcsm
Karen Loss @cancertrek
I'd like to see us get MLB behind us to let us have survivors throw 1st pitches in every ballpark on Aug. 1, World Lung Cancer Day. #lcsm
#LCSM Chat @lcsmchat
RT @diianeee: @cancertrek At the small breathe deep Kankakee we had 3 green shirts, at the bigger BD North Shore there were 13! #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: I'd like to see more patient voices involved in a significant way in our major lung cancer groups #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: LIke it or not, big media needs to get behind us if we're to gain a large public footing. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: FYI, as @cancertrek knows, sharing your patient story at #lungcancer fundraising walks is a great way to get started in advocacy. #lcsm
Core 98 Media Group @Core98Media
Buy #coffee, save a life. Proceeds benefit my #cancer #medicalfund #lcam #lcsm #lungcancer #cancersucks https://t.co/ZHtbgGO9p2
Jennifer Ersek @JLErsek
@LungCancerFaces That is an area I’d like to explore more...any tips on getting started? #lcsm
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @JFreemanDaily More organizational unity, more survivors and family sharing their stories and more of the public listening to the message #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: I'd like to see more survivors and their families participate in the political aspect of federal lung cancer research funding #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @cancertrek With a caveat--would like a major public figure as #lungcancer advocate who knows the issues patients deal with. #lcsm
#LCSM Chat @lcsmchat
RT @dennycee: I would like to see the major nonprofits focus more education efforts on ALL Causes of lc #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm
#LCSM Chat @lcsmchat
RT @jillfeldman4: To see more collaborative efforts w/organizations. We share a vision, core belief & our desired result is the same #lcsm
#LCSM Chat @lcsmchat
RT @cancertrek: I'd like to see us get MLB behind us to let us have survivors throw 1st pitches in every ballpark on Aug. 1, World Lung Cancer Day. #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
Perhaps that would help. But y'all are genuine. And have real stories. #lcsm https://t.co/4U3ckbm6vr
Karen Loss @cancertrek
RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm
Janet Freeman-Daily @JFreemanDaily
@cancertrek Oooo, great idea! @chrisdraft @TeamDraft, are you reading this? #lcsm
Jill Feldman @jillfeldman4
See more celebrities speak up - their respected influential voices can reach large audiences & really make a difference #lcsm
Faces of Lung Cancer @LungCancerFaces
Check out @lcaorg for their upcoming summit RT @JLErsek: That is an area I’d like to explore more...any tips on getting started? #lcsm
Kelly Keesling @kgkeesling
@JFreemanDaily @cancertrek I'm actually doing that on Saturday! #lcsm
#LCSM Chat @lcsmchat
RT @TimAllenMDJD: Perhaps that would help. But y'all are genuine. And have real stories. #lcsm https://t.co/4U3ckbm6vr
Michele @rants_by_egg
I would like to see more genetic testing for germline #lungcancer mutations to help populate the research and establish early screening protocols just like with breast cancer. Seems #lungcancer is a couple of decades behind. #lcsm
Tiffini Joseph @Smiles4Nana
@LungCancerFaces Yes! #lcsm
Janet Freeman-Daily @JFreemanDaily
@kgkeesling @cancertrek GREAT! At which ballpark? For which team? #lcsm
Karen Loss @cancertrek
@kgkeesling @JFreemanDaily @cancertrek Where, Kelly? #lcsm
Jill Feldman @jillfeldman4
@LungCancerFaces Yep, Media are a vital conduit for health information, & lung cancer is a major health issue- an epidemic #lcsm
Tiffini Joseph @Smiles4Nana
@cancertrek This would be amazing @mlb #lcsm
Kelly Keesling @kgkeesling
Or TV spots like breast cancer has. #lcsm
Ian Pereira @IanJPereira
@kgkeesling Blogging/reflection may also be a great therapeutic tool https://t.co/iZlSX9B9BA #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @rants_by_egg: I would like to see more genetic testing for germline #lungcancer mutations to help populate the research and establish early screening protocols just like with breast cancer. Seems #lungcancer is a couple of decades behind. #lcsm
#LCSM Chat @lcsmchat
RT @jillfeldman4: See more celebrities speak up - their respected influential voices can reach large audiences & really make a difference #lcsm
#LCSM Chat @lcsmchat
RT @LungCancerFaces: Check out @lcaorg for their upcoming summit RT @JLErsek: Check out @lcaorg for their upcoming summit RT @JLErsek: That is an area I’d like to explore more...any tips on getting started? #lcsm
#LCSM Chat @lcsmchat
RT @rants_by_egg: I would like to see more genetic testing for germline #lungcancer mutations to help populate the research and establish early screening protocols just like with breast cancer. Seems #lungcancer is a couple of decades behind. #lcsm
Peggy Dennis @peggyddennis
#LCSM No one is as passionate about our stories as we are. Personally, I encourage other survivors/caregivers to share. The Denver Free to Breathe events have been my way into advocacy so far.
diseases_an @diseases_an
RT @IASLC: Analysis of 1,800 #lungcancer screening sites revealed that a majority of heavy smokers are not being screened for lung cancer, despite meeting USPSTF and ASCO screening recommendations. This analysis will be presented at #ASCO18. #LCSM https://t.co/8CYuFUpGvc
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
RT @peggyddennis: #LCSM No one is as passionate about our stories as we are. Personally, I encourage other survivors/caregivers to share. The Denver Free to Breathe events have been my way into advocacy so far.
Faces of Lung Cancer @LungCancerFaces
#lcsm https://t.co/BW3CT71yKL
Karen Loss @cancertrek
From two years ago. Bad pitch, but good cause. https://t.co/QLH6onAMwd Better still if we hit all teams on one day. Bigger media story. #lcsm
Tiffini Joseph @Smiles4Nana
@LungCancerFaces Sorry for the typo 🤦🏻‍♀️ #lcsm
#LCSM Chat @lcsmchat
RT @jillfeldman4: @LungCancerFaces Yep, Media are a vital conduit for health information, & lung cancer is a major health issue- an epidemic #lcsm
Ian Pereira @IanJPereira
@JFreemanDaily @TimAllenMDJD It’s been great to see more patient advocates participating in medical meetings - great insight to help direct research & advocacy. #lcsm
#LCSM Chat @lcsmchat
RT @kgkeesling: Or TV spots like breast cancer has. #lcsm
#LCSM Chat @lcsmchat
RT @IanJPereira: @kgkeesling Blogging/reflection may also be a great therapeutic tool https://t.co/iZlSX9B9BA #lcsm
Janet Freeman-Daily @JFreemanDaily
@rants_by_egg Before anyone will pay for germline screening of #lungcancer, we first have to identify germline mutations that directly increase the risk for #lungcancer. Need more research! #lcsm
#LCSM Chat @lcsmchat
RT @peggyddennis: #LCSM No one is as passionate about our stories as we are. Personally, I encourage other survivors/caregivers to share. The Denver Free to Breathe events have been my way into advocacy so far.
#LCSM Chat @lcsmchat
RT @LungCancerFaces: #lcsm https://t.co/BW3CT71yKL
#LCSM Chat @lcsmchat
RT @cancertrek: From two years ago. Bad pitch, but good cause. https://t.co/QLH6onAMwd Better still if we hit all teams on one day. Bigger media story. #lcsm
#LCSM Chat @lcsmchat
RT @IanJPereira: @JFreemanDaily @TimAllenMDJD It’s been great to see more patient advocates participating in medical meetings - great insight to help direct research & advocacy. #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: @rants_by_egg Before anyone will pay for germline screening of #lungcancer, we first have to identify germline mutations that directly increase the risk for #lungcancer. Need more research! #lcsm
Alan Meng @AlanMeng3
RT @n8pennell: Median survival >4 years in a phase 3 trial of metastatic ALK+ NSCLC? Astonishing, I wonder if it is because so many went on to 2nd and potentially third gen TKIs? Now that I think of it I know a number of ALK+ pts surviving >4-5 years with stage 4 dz. #LCSM https://t.co/FWvc9tOcw9
Tiffini Joseph @Smiles4Nana
@JFreemanDaily @rants_by_egg More funding, more research, more testing. We have work to do! #lcsm
Karen Loss @cancertrek
All teams/one day/bigger media impact. Two years ago, my Nats effort. Bad pitch, good cause. https://t.co/QLH6onAMwd #lcsm
Chris Draft @chrisdraft
RT @JFreemanDaily: @cancertrek Oooo, great idea! @chrisdraft @TeamDraft, are you reading this? #lcsm
#LCSM Chat @lcsmchat
RT @Smiles4Nana: @JFreemanDaily @rants_by_egg More funding, more research, more testing. We have work to do! #lcsm
Kelly Keesling @kgkeesling
I'm telling my story at the Lung Cancer Initiative of NC's LUNGe Forwaed 5K this Saturday. Being involved on the committee has given me multiple opportunities to tell my story – including on the radio. #lcsm
Ian Pereira @IanJPereira
RT @JFreemanDaily: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @findlungcancer, @don450sl, @dustywater ... #lcsm
Andrea Zinn @azinnz09
RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm
Janet Freeman-Daily @JFreemanDaily
@Smiles4Nana @LungCancerFaces Just ONE typo? You're doing great for a tweetchat! #lcsm
Janet Freeman-Daily @JFreemanDaily
Down to the last four minutes? Anyone have a closing thought? #lcsm
Denise Cutlip @dennycee
Having issues with hospital WiFi. Checking out now. #lcsm
Janet Freeman-Daily @JFreemanDaily
I wasn't sure we'd get much conversation tonight, but it's been a nice chat--slow enough to follow, enough people to be interesting! #lcsm
#LCSM Chat @lcsmchat
RT @kgkeesling: I'm telling my story at the Lung Cancer Initiative of NC's LUNGe Forwaed 5K this Saturday. Being involved on the committee has given me multiple opportunities to tell my story – including on the radio. #lcsm
Diane 🧚🏻‍♀️ @diianeee
Great chat everyone! Goodnight! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Down to the last four minutes? Anyone have a closing thought? #lcsm
Janet Freeman-Daily @JFreemanDaily
@dennycee Thanks for joining the chat! #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: I wasn't sure we'd get much conversation tonight, but it's been a nice chat--slow enough to follow, enough people to be interesting! #lcsm
Karen Loss @cancertrek
Thanks everyone. Keep up the good work and I will keep it up with you. Seeya next time. #lcsm
Faces of Lung Cancer @LungCancerFaces
Thanks to @JFreemanDaily for moderating on short notice. As always, I love this community! #lcsm
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD
#lcsm FTW It was a privilege to participate. https://t.co/V7cMoU25Pm
Inspire @InspireIsHealth
RT @cancertrek: All teams/one day/bigger media impact. Two years ago, my Nats effort. Bad pitch, good cause. https://t.co/QLH6onAMwd #lcsm
Janet Freeman-Daily @JFreemanDaily
Thanks everyone for joining #LCSM Chat tonight! Love this community. Keep up the networking and advocacy! See you in two weeks.
Michele @rants_by_egg
Germline panel of 80 including T790M was only $250. I found that very reasonable...and after me I start with my family. If we can identify these markers early, we can detect earlier and increase survivorship. It's my little start...#lcsm
Peggy Dennis @peggyddennis
#LCSM @JFreemanDaily I find these chats to be helpful on many levels. And the variety keeps me interested and involved. Thank You!
Tiffini Joseph @Smiles4Nana
Have a great evening everyone! Advocate, educate and stimulate the minds of everyone who will listen to our cause! #lcsm
#LCSM Chat @lcsmchat
RT @peggyddennis: #LCSM @JFreemanDaily I find these chats to be helpful on many levels. And the variety keeps me interested and involved. Thank You!
#LCSM Chat @lcsmchat
RT @Smiles4Nana: Have a great evening everyone! Advocate, educate and stimulate the minds of everyone who will listen to our cause! #lcsm
SunshineKK @SunshineKK68
find ways to get those not listening to listen #lcsm
Janet Freeman-Daily @JFreemanDaily
@peggyddennis Thank you, Peggy! #lcsm
Janet Freeman-Daily @JFreemanDaily
Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC
Michele @rants_by_egg
@JFreemanDaily Chicken or the egg...I agree, more research but more people tested and identified with "variants of unknown significance" become significant. We know T790M. #lcsm
#LCSM Chat @lcsmchat
RT @SunshineKK68: find ways to get those not listening to listen #lcsm
#LCSM Chat @lcsmchat
RT @JFreemanDaily: Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC
✨KRISTIN ELIZABETH ☽ ✨🤍🪩🔮 @KristinEliz23
RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm
Janet Freeman-Daily @JFreemanDaily
@rants_by_egg Few #lungcancer people are getting healthy tissue sequenced. Most #lungcancer biobank samples are cancerous tumor tissue. Maybe the #PrecisionMedicine Initiative will help with this. #LCSM
Enlightening Results 💡 @GraceCordovano
RT @JFreemanDaily: Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC
Celtic Witch 🌻🌻🌻🌻 @ZieglerSandi
RT @JFreemanDaily: Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC
#LCSM content from Twitter.