#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
– ().
See #LCSM Influencers/Analytics.
Profile | Tweet |
---|---|
NCI Cancer Stats @NCICancerStats Help raise awareness for #LungCancer by watching and sharing our Did You Know? video: https://t.co/MnrkjeW1f2 #LCSM | |
Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight is "Open Mic Night" an unstructured chat about whatever #lungcancer topics are on your mind. Ready? Go! | |
CancerDotNet @CancerDotNet Less than 2% of current + former heavy #smokers are screened for #lungcancer. #ASCO18 @uofl James Graham Brown Cancer Center study shows screening rates much lower than breast, colon cancers: https://t.co/HlcYae7sDk #lcsm https://t.co/w16NAwAhFJ | |
Faces of Lung Cancer @LungCancerFaces Deana Hendrickson coming at you from Los Angeles #lcsm | |
Janet Freeman-Daily @JFreemanDaily Janet Freeman-Daily, writer, speaker, science geek, lung cancer patient/activist. #lcsm | |
Denise Cutlip @dennycee Michigan in the house #lcsm | |
Janet Freeman-Daily @JFreemanDaily The soothing sound of crickets .... #lcsm | |
Diane 🧚🏻♀️ @diianeee Hello everyone! Diane here from IL dx 4/14. #lcsm | |
Janet Freeman-Daily @JFreemanDaily Denzie! Thanks for joining. Deana and I get tired of talking to each other. #lcsm | |
Faces of Lung Cancer @LungCancerFaces @dennycee Hey Lady! #lcsm | |
Peggy Dennis @peggyddennis Peggy joining from Denver #LCSM | |
Janet Freeman-Daily @JFreemanDaily Hi Diane! #lcsm | |
Faces of Lung Cancer @LungCancerFaces @diianeee Hi Denise! #lcsm | |
LungCancer.net @LungCancer_HU Margot from https://t.co/4ebZcp0jKf - hi! #lcsm | |
Faces of Lung Cancer @LungCancerFaces @JFreemanDaily Welcome, Peggy! #lcsm | |
Faces of Lung Cancer @LungCancerFaces @LungCancer_HU Hey, Margot! #lcsm | |
Janet Freeman-Daily @JFreemanDaily @LungCancer_HU Hi Margot! #lcsm | |
Faces of Lung Cancer @LungCancerFaces @peggyddennis Welcome, Peggy! #lcsm | |
Janet Freeman-Daily @JFreemanDaily Hey, Denise, how is your friend? #lcsm | |
LungCancer.net @LungCancer_HU @JFreemanDaily @LungCancerFaces Hi! #lcsm | |
Faces of Lung Cancer @LungCancerFaces If you're just watching, please tweet us with the hashtag so we know you're out there #lcsm | |
Janet Freeman-Daily @JFreemanDaily I'd like to hear what kind of #lungcancer advocacy work currently interests each of you. #lcsm | |
Denise Cutlip @dennycee @JFreemanDaily Out if ICU. Not coherent enough to be alone. Thx #lcsm | |
Faces of Lung Cancer @LungCancerFaces My favorite type of advocacy work involves education the general public and getting more federal research funding for lung cancer. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: I'd like to hear what kind of #lungcancer advocacy work currently interests each of you. #lcsm | |
Diane 🧚🏻♀️ @diianeee I’m wondering if there is anyone that has the egfr mutation that has tried immunotherapy?? #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Janet Freeman-Daily, writer, speaker, science geek, lung cancer patient/activist. #lcsm | |
Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JFreemanDaily That moment when you check the Twitter feed right before you start your commute home and feel compelled to say LOVE YOU to the most awesome-est woman. 💖 XO. Have a great #lcsm chat and, if you haven't started digging through @ASCO ASCO18 abstracts yet... whatcha waiting for? | |
Janet Freeman-Daily @JFreemanDaily @dennycee Glad to hear there's progress. Hospital staff are so overloaded -- patients really need an advocate with them 24/7. #lcsm | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: If you're just watching, please tweet us with the hashtag so we know you're out there #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: I'd like to hear what kind of #lungcancer advocacy work currently interests each of you. #lcsm | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: My favorite type of advocacy work involves education the general public and getting more federal research funding for lung cancer. #lcsm | |
Jane Aswell, PhD @AswellJane RT @CancerDotNet: Less than 2% of current + former heavy #smokers are screened for #lungcancer. #ASCO18 @uofl James Graham Brown Cancer Center study shows screening rates much lower than breast, colon cancers: https://t.co/HlcYae7sDk #lcsm https://t.co/w16NAwAhFJ | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tim here. #lcsm https://t.co/HcMozCFLy0 | |
Faces of Lung Cancer @LungCancerFaces @TimAllenMDJD Hi, Time! #lcsm | |
Faces of Lung Cancer @LungCancerFaces Tim, not Time #lcsm | |
Denise Cutlip @dennycee At my hospital I meet with newly dx’d when they’re at Lung Cancer clinic #lcsm | |
Janet Freeman-Daily @JFreemanDaily @diianeee Yes, EGFR+ patients have tried immunotherapy. Experts suggest EGFR/ALK/ROS1 stage IV patients use it AFTER other therapies. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Howdy! #lcsm https://t.co/Qp7FThdL98 | |
Karen Loss @cancertrek Greetings everyone. Hope you're having a great evening. #lcsm | |
Janet Freeman-Daily @JFreemanDaily Welcome Katherine! Is this your first #LCSM Chat? | |
Faces of Lung Cancer @LungCancerFaces @3_doghouse Welcome, Katherine! #lcsm | |
Janet Freeman-Daily @JFreemanDaily Hey Karen! Glad to see you. #lcsm | |
Faces of Lung Cancer @LungCancerFaces @cancertrek Hi, Karen! #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @diianeee Yes, EGFR+ patients have tried immunotherapy. Experts suggest EGFR/ALK/ROS1 stage IV patients use it AFTER other therapies. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @IntrovertinNC Welcome to #LCSM Chat@ | |
Karen Loss @cancertrek For me, I like doing media interviews and public speaking best. #lcsm | |
Faces of Lung Cancer @LungCancerFaces @IntrovertinNC Hey! We can relate. #lcsm | |
Ride Hard Breathe Easy @Ride4Lungs RT @LCAorg: Most people don't realize that #lungcancer is the top cancer killer among women. RETWEET THIS IMAGE and help raise awareness for a critical women's health issue. #NWHW #SaveHerLungs #LCSM https://t.co/itHCWi91hq | |
Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD Welcome! How's the new job? #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: At my hospital I meet with newly dx’d when they’re at Lung Cancer clinic #lcsm | |
#LCSM Chat @lcsmchat RT @coffeemommy: @JFreemanDaily That moment when you check the Twitter feed right before you start your commute home and feel compelled to say LOVE YOU to the most awesome-est woman. 💖 XO. Have a great #lcsm chat and, if you haven't started digging through @ASCO ASCO18 abstracts yet... whatcha waiting for? | |
SunshineKK @SunshineKK68 #lcsm | |
#LCSM Chat @lcsmchat RT @diianeee: I’m wondering if there is anyone that has the egfr mutation that has tried immunotherapy?? #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @diianeee Yes, EGFR+ patients have tried immunotherapy. Experts suggest EGFR/ALK/ROS1 stage IV patients use it AFTER other therapies. #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: For me, I like doing media interviews and public speaking best. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @dennycee For newly diagnosed patients, having an experienced #lungcancer patient to talk to is very comforting. #lcsm | |
Diane 🧚🏻♀️ @diianeee I’m he oppositeof @cancertrek,... I like sharing my story to individuals. Connecting on fb/Twitter helps. #lcsm | |
Faces of Lung Cancer @LungCancerFaces @SunshineKK68 Welcome! #lcsm | |
Denise Cutlip @dennycee @cancertrek you do awesome job! #lcsm | |
Janet Freeman-Daily @JFreemanDaily @SunshineKK68 Hi there! Is this your first #LCSM Chat? (I ask because my chemobrain doesn't retain names) | |
Flemming Rasmussen @fgrazz @JFreemanDaily #lcsm To hear overviews of new paths research is venturing into periodically...and to seek means to show unity in present efforts most are familiar with, and those 'un-hyped' new paths regardless of discipline | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @dennycee For newly diagnosed patients, having an experienced #lungcancer patient to talk to is very comforting. #lcsm | |
#LCSM Chat @lcsmchat RT @diianeee: I’m he oppositeof @cancertrek,... I like sharing my story to individuals. Connecting on fb/Twitter helps. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @dennycee For newly diagnosed patients, having an experienced #lungcancer patient to talk to is very comforting. #lcsm | |
#LCSM Chat @lcsmchat RT @fgrazz: @JFreemanDaily #lcsm To hear overviews of new paths research is venturing into periodically...and to seek means to show unity in present efforts most are familiar with, and those 'un-hyped' new paths regardless of discipline | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @fgrazz: @JFreemanDaily #lcsm To hear overviews of new paths research is venturing into periodically...and to seek means to show unity in present efforts most are familiar with, and those 'un-hyped' new paths regardless of discipline | |
Jennifer Ersek @JLErsek Hello #lcsm peeps | |
Denise Cutlip @dennycee Meeting new dx pats I share hope and answer questions about real life side effects. Identify barriers to treatment. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @dennycee: Meeting new dx pats I share hope and answer questions about real life side effects. Identify barriers to treatment. #lcsm | |
Faces of Lung Cancer @LungCancerFaces @JLErsek Hello! #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: Meeting new dx pats I share hope and answer questions about real life side effects. Identify barriers to treatment. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @coffeemommy @ASCO Thanks for the wave! Love you too. Still finishing up with @AACR before I tackle @ASCO! #LCSM | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @diianeee: I’m he oppositeof @cancertrek,... I like sharing my story to individuals. Connecting on fb/Twitter helps. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @cancertrek: For me, I like doing media interviews and public speaking best. #lcsm | |
Andrea Borondy Kitts @findlungcancer View from my hotel room @atscommunity #ATS2018 @HiltonHotels San Diego Bayside @CrisAlvaradoMD #lcsm https://t.co/dHsjmxy6Kv | |
Karen Loss @cancertrek @LungCancer_HU HI Margot! #lcsm | |
LungCancer.net @LungCancer_HU @cancertrek Hi! #lcsm | |
Karen Loss @cancertrek So do we have something specific we're talking about yet this evening? #lcsm | |
Janet Freeman-Daily @JFreemanDaily @findlungcancer That's a foreboding dark cloud! #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Thanks for asking, @JFreemanDaily It's great! Privileged to be part of an awesome @UMMC_Pathology team! #lcsm https://t.co/TaRUp3aLbJ | |
Faces of Lung Cancer @LungCancerFaces @cancertrek You name a topic. Open Mic is all about that. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek I did ask if anyone had particular #lungcancer advocacy work they're doing right now. #lcsm | |
Karen Loss @cancertrek I'm writing for https://t.co/xCpTzEHtm9. Woohoo! A fine website and wonderful parent company (Health Union). #lcsm | |
Michelle Basilio @TheMichiWay3 RT @Roche: Updated analyses of Roche data in ALK-positive #lungcancer announced today. Find out more: | |
diseases_an @diseases_an RT @JillHW: @clinicaltrialON @N2Canada A #clinicaltrial is extending my life! The investigational drug stopped #lungcancer for two years, time for #CancerResearch and a new #targetedtherapy now working over a year! Milestones & memories with my kids! #LCSM @ALKPositiveLung @OttawaCancer @OttawaHospital #gratitude | |
Janet Freeman-Daily @JFreemanDaily @cancertrek ...l and I see you answered that while I was busy typing a reply to someone else! Apparently I have trouble keeping up ... #lcsm | |
Flemming Rasmussen @fgrazz @JFreemanDaily @cancertrek ..does this responds to you question? #lcsm | |
Denise Cutlip @dennycee Deana, Lysa, Karen and crew that made 2d Rally/Breath. Kudos. These are things that will make a difference. #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: I'm writing for https://t.co/xCpTzEHtm9. Woohoo! A fine website and wonderful parent company (Health Union). #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: Deana, Lysa, Karen and crew that made 2d Rally/Breath. Kudos. These are things that will make a difference. #lcsm | |
Faces of Lung Cancer @LungCancerFaces @dennycee Thank you! We tried our best. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @dennycee: Deana, Lysa, Karen and crew that made 2d Rally/Breath. Kudos. These are things that will make a difference. #lcsm | |
Karen Loss @cancertrek Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: @dennycee Thank you! We tried our best. #lcsm | |
Janet Freeman-Daily @JFreemanDaily Here's a question: What progress do you see in #lungcancer advocacy over the past few years? #lcsm | |
LungCancer.net @LungCancer_HU @cancertrek we're lucky to have you :) #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: @dennycee Thank you! We tried our best. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Here's a question: Here's a question: What progress do you see in #lungcancer advocacy over the past few years? #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @cancertrek: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: Lots of effort goes into those rallies. Thanks for the acknowledgement. RT @LungCancerFaces: @dennycee Thank you! We tried our best. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD I see patients and families at medical society meetings! Thanks, #lcsm https://t.co/HjjJJ8m5VO | |
Faces of Lung Cancer @LungCancerFaces The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm | |
Karen Loss @cancertrek @JFreemanDaily I see an increasing number of patients coming out publicly and sharing their experiences. This matters in advocacy. #lcsm | |
#LCSM Chat @lcsmchat RT @TimAllenMDJD: I see patients and families at medical society meetings! Thanks, #lcsm https://t.co/HjjJJ8m5VO | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: @JFreemanDaily I see an increasing number of patients coming out publicly and sharing their experiences. This matters in advocacy. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @TimAllenMDJD As more #lungcancer patients feel healthier on new treatments, more are getting interested in research. Yay! #lcsm | |
Denise Cutlip @dennycee Progress? More people get that all you need is lungs. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Tell your stories. Please. #lcsm https://t.co/yqFLNW2P5G | |
Karen Loss @cancertrek Only a few years ago, lung cancer remained far more hidden behind closed doors. Now, at least we hear more about it in public settings #lcsm | |
Grumpy-ish @marlaceleri @LungCancerFaces #Lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek Yes, learning to tell our patient stories effectively--and having more stories to tell--is definitely making a difference! #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @TimAllenMDJD As more #lungcancer patients feel healthier on new treatments, more are getting interested in research. Yay! #lcsm | |
Janet Freeman-Daily @JFreemanDaily @marlaceleri Welcome to #LCSM Chat! | |
Faces of Lung Cancer @LungCancerFaces @marlaceleri Welcome! #lcsm | |
Janet Freeman-Daily @JFreemanDaily Since we have some relative newbies in the chat, anyone have questions about tweetchats and how to participate? #lcsm | |
Faces of Lung Cancer @LungCancerFaces @melmarie274 Thanks for joining us! #lcsm | |
Peggy Dennis @peggyddennis #LCSM Likewise...maybe it's just that I am hyperaware now but I see more public awareness of #lungcancer cancer | |
#LCSM Chat @lcsmchat RT @dennycee: Progress? More people get that all you need is lungs. #lcsm | |
#LCSM Chat @lcsmchat RT @TimAllenMDJD: Tell your stories. Please. #lcsm https://t.co/yqFLNW2P5G | |
#LCSM Chat @lcsmchat RT @cancertrek: Only a few years ago, lung cancer remained far more hidden behind closed doors. Now, at least we hear more about it in public settings #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @cancertrek Yes, learning to tell our patient stories effectively--and having more stories to tell--is definitely making a difference! #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Since we have some relative newbies in the chat, anyone have questions about tweetchats and how to participate? #lcsm | |
#LCSM Chat @lcsmchat RT @peggyddennis: #LCSM Likewise...maybe it's just that I am hyperaware now but I see more public awareness of #lungcancer cancer | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD @JFreemanDaily FTW! #lcsm #hope #RightTestRightTreatment #PatientsFirst https://t.co/JQfGbJnpEX | |
Janet Freeman-Daily @JFreemanDaily @cancertrek Visibility! Glad that more #lungcancer patients are willing to talk publicly about their disease. #nostigma #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @peggyddennis: #LCSM Likewise...maybe it's just that I am hyperaware now but I see more public awareness of #lungcancer cancer | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @cancertrek Visibility! Glad that more #lungcancer patients are willing to talk publicly about their disease. #nostigma #lcsm | |
Karen Loss @cancertrek I think we've made "some" progress with 1 or 2 of the big non-profits regarding the stigma issue. That's all due to patient activists. #lcsm | |
Kelly Keesling @kgkeesling @JFreemanDaily Since getting involved in the Lung Cancer Initiative of NC, I've seen a lot more advocacy and am encouraged to advocate more myself. #LCSM | |
#LCSM Chat @lcsmchat RT @cancertrek: I think we've made "some" progress with 1 or 2 of the big non-profits regarding the stigma issue. That's all due to patient activists. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @peggyddennis Absolutely more public awareness. Five years ago, couldn't imagine TV ads or billboards talking about #lungcancer. #lcsm | |
Treatment for Cancer @cancer_tm RT @LUNGevity: Thank you @cure_magazine @LUNGevityKB and AmandaN. When #LungCancer Strikes People Under 50 #lcsm https://t.co/A7ghoy2bca | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Nothing but friends here at #lcsm Jump right in! https://t.co/MvH5ZPfYuA | |
Janet Freeman-Daily @JFreemanDaily @cancertrek Yes, some progress on #stigma, but alas, still a long way to go. #lcsm | |
Jennifer Ersek @JLErsek @JFreemanDaily @cancertrek @SunshineKK68 and I are hosting the #charlotteLUNGeforward 5K, Walk & Rally on Saturday!! 🏃🏻♀️We have really focused on sharing stories and the importance of research in our community this year. #lcsm | |
#LCSM Chat @lcsmchat RT @kgkeesling: @JFreemanDaily Since getting involved in the Lung Cancer Initiative of NC, I've seen a lot more advocacy and am encouraged to advocate more myself. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @peggyddennis Absolutely more public awareness. Five years ago, couldn't imagine TV ads or billboards talking about #lungcancer. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Swaying public opinion. #NoStigma #lcsm https://t.co/VKy5eFOf50 | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @kgkeesling: @JFreemanDaily Since getting involved in the Lung Cancer Initiative of NC, I've seen a lot more advocacy and am encouraged to advocate more myself. #LCSM | |
Faces of Lung Cancer @LungCancerFaces @BillColona Welcome! #lcsm | |
Janet Freeman-Daily @JFreemanDaily @BillColona Welcome Bill! #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JFreemanDaily: @cancertrek Visibility! Glad that more #lungcancer patients are willing to talk publicly about their disease. #nostigma #lcsm | |
Karen Loss @cancertrek Indeed, a long way. But we've begun. RT @JFreemanDaily: @cancertrek Yes, some progress on #stigma, but alas, still a long way to go. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #JustMolecularChanges #NoStigma #lcsm https://t.co/hBeaOtIazK | |
Janet Freeman-Daily @JFreemanDaily If I miss greeting anyone, I https://t.co/IQDnjIIRyz isn't showing me all the tweets in the chat. :( #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: Indeed, a long way. But we've begun. RT @JFreemanDaily: Indeed, a long way. But we've begun. RT @JFreemanDaily: @cancertrek Yes, some progress on #stigma, but alas, still a long way to go. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD And screening! #lcsm https://t.co/q2O7pzbAQF | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: If I miss greeting anyone, I https://t.co/IQDnjIIRyz isn't showing me all the tweets in the chat. :( #lcsm | |
#LCSM Chat @lcsmchat RT @TimAllenMDJD: And screening! #lcsm https://t.co/q2O7pzbAQF | |
Janet Freeman-Daily @JFreemanDaily @kgkeesling Hey, another @ros1cancer ROS1der! Welcome to the chat, Kelly. #LCSM | |
Peggy Dennis @peggyddennis #LCSM Almost two years along and I find that more people are interested in my story. Until then, I think they were waiting to see if I'd be hanging around :) | |
Denise Cutlip @dennycee older seniors not getting message QOL new treatments can give and opting not to seek treatment is a major fail #lcsm | |
#LCSM Chat @lcsmchat RT @peggyddennis: #LCSM Almost two years along and I find that more people are interested in my story. Until then, I think they were waiting to see if I'd be hanging around :) | |
Karen Loss @cancertrek I've noticed more people jumping right into patient advocacy soon after DX. I didn't even know about it until a year in, so kudos... #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: older seniors not getting message QOL new treatments can give and opting not to seek treatment is a major fail #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: I've noticed more people jumping right into patient advocacy soon after DX. I didn't even know about it until a year in, so kudos... #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD More work needs to be done. #lcsm https://t.co/EB7VSNiIFW | |
Karen Loss @cancertrek RT @dennycee: older seniors not getting message QOL new treatments can give and opting not to seek treatment is a major fail #lcsm | |
Diane 🧚🏻♀️ @diianeee @cancertrek I agree! It took me a while to even seek out support let alone advacocay. #lcsm | |
diseases_an @diseases_an RT @LUNGevity: Thank you @cure_magazine @LUNGevityKB and AmandaN. When #LungCancer Strikes People Under 50 #lcsm https://t.co/A7ghoy2bca | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD This #lcsm https://t.co/YPWswY9tni | |
Kelly Keesling @kgkeesling I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM | |
Janet Freeman-Daily @JFreemanDaily Is anyone involved with research advocacy? Critiquing/evaluating grants, serving on IRBs, etc.? #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @cancertrek: I've noticed more people jumping right into patient advocacy soon after DX. I didn't even know about it until a year in, so kudos... #lcsm | |
Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: @TimAllenMDJD As more #lungcancer patients feel healthier on new treatments, more are getting interested in research. Yay! #lcsm | |
Kevin Gallagher @GallagherKevinP RT @LCAorg: Most people don't realize that #lungcancer is the top cancer killer among women. RETWEET THIS IMAGE and help raise awareness for a critical women's health issue. #NWHW #SaveHerLungs #LCSM https://t.co/itHCWi91hq | |
OurWarOnCancer @OurWarOnCancer RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @diianeee: @cancertrek I agree! It took me a while to even seek out support let alone advacocay. #lcsm | |
#LCSM Chat @lcsmchat RT @diianeee: @cancertrek I agree! It took me a while to even seek out support let alone advacocay. #lcsm | |
#LCSM Chat @lcsmchat RT @kgkeesling: I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Is anyone involved with research advocacy? Critiquing/evaluating grants, serving on IRBs, etc.? #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek I think as we have more visibility and more patient advocates for #lungcancer, more patients see opportunities earlier #lcsm | |
OurWarOnCancer @OurWarOnCancer RT @VirginiaMByrne: Fresh eyes looking at old problems are welcome, especially in lung cancer, USA’s #1 cancer killer, yet gets 6% of @nih budget, due to stigma. Let’s get over 10%! NCICRC @ALKPositiveLung #LCSM @OurWarOnCancer @washingtonpost @NYTHealth @BrendonStilesMD https://t.co/3oxImKbEEM | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that #lcsm #NoStigma https://t.co/PyRs4lNKbA | |
Faces of Lung Cancer @LungCancerFaces Hi Tiffini! #lcsm https://t.co/O7Dhww4gT3 | |
diseases_an @diseases_an RT @LCAorg: Most people don't realize that #lungcancer is the top cancer killer among women. RETWEET THIS IMAGE and help raise awareness for a critical women's health issue. #NWHW #SaveHerLungs #LCSM https://t.co/itHCWi91hq | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @cancertrek I think as we have more visibility and more patient advocates for #lungcancer, more patients see opportunities earlier #lcsm | |
Karen Loss @cancertrek BTW, I received a big, strong STABLE scan report today. Yay for me. Keeps me going for another three months. :D #lcsm | |
Janet Freeman-Daily @JFreemanDaily @peggyddennis When a #lungcancer patient is around for a couple of years and feeling good enough to share their story, people start to take notice! #LCSM | |
OurWarOnCancer @OurWarOnCancer RT @VirginiaMByrne: Thank you @SWOG. We’re going in the same direction, but with 18% 5-year survival rate, we all must move faster. #433DieDaily #Stage4NeedsMore #LCSM @ALKPositiveLung @NIHDirector @NIH @NCIDirector @NCICRCHD @LUNGevity https://t.co/LJwX0ng6iQ | |
#LCSM Chat @lcsmchat RT @cancertrek: BTW, I received a big, strong STABLE scan report today. Yay for me. Keeps me going for another three months. :D #lcsm | |
Tiffini Joseph @Smiles4Nana @LungCancerFaces Hi 👋🏼 sorry I’m a little late to the party #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @peggyddennis When a #lungcancer patient is around for a couple of years and feeling good enough to share their story, people start to take notice! #LCSM | |
Janet Freeman-Daily @JFreemanDaily @cancertrek YAY! Stable is good! #lcsm | |
Diane 🧚🏻♀️ @diianeee @cancertrek Great news, Karen! #lcsm | |
Janet Freeman-Daily @JFreemanDaily @Smiles4Nana Welcome, Tiffini! #lcsm | |
OurWarOnCancer @OurWarOnCancer RT @VirginiaMByrne: Pls follow Dusty, a lung cancer advocate @LiveLung1. I just did. #LCSM @ALKPositiveLung @OurWarOnCancer https://t.co/E0OwoUNf4Q | |
Faces of Lung Cancer @LungCancerFaces @cancertrek Thank goodness! #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 👍 #lcsm https://t.co/mzH7eHd9zp | |
Tiffini Joseph @Smiles4Nana @cancertrek Awesome news!! #lcsm | |
OurWarOnCancer @OurWarOnCancer RT @VirginiaMByrne: Both rads and meds are important! @DrewMoghanaki #lcsm @ALKPositiveLung @OurWarOnCancer @bonniejaddario @TimAllenMDJD @stage4kelly https://t.co/mYqZROc3LU | |
Peggy Dennis @peggyddennis @JFreemanDaily #LCSM Would love to help with research advocacy. Not sure what/where to go to get onboard. Not sure if other advocates are as well??? | |
OurWarOnCancer @OurWarOnCancer RT @VirginiaMByrne: Patients & advocates are key stakeholders in research, clinical trials, etc. Thank you for having the common sense to recognize this & act on it. #LCSM @ALKPositiveLung @OurWarOnCancer @DNABARCODE @ivybelkins @stage4kelly @NYTHealth @bonniejaddario https://t.co/3E3IcwEm3V | |
Tiffini Joseph @Smiles4Nana RT @JFreemanDaily: Is anyone involved with research advocacy? Critiquing/evaluating grants, serving on IRBs, etc.? #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Congratulations! #lcsm https://t.co/H0ZkQyQ7gm | |
OurWarOnCancer @OurWarOnCancer RT @VirginiaMByrne: Agreed! Let’s drop this tired old “battle” cliche. People with cancer and carers need to use new words to create change in awareness. #LCSM @ALKPositiveLung @stage4kelly @double_whammied @OurWarOnCancer @DNABARCODE https://t.co/1ib9AtHHtu | |
Denise Cutlip @dennycee @JFreemanDaily I’ve signed up for PCORI waiting to serve! #lcsm | |
Michele Gaguski @megcns RT @CancerDotNet: Less than 2% of current + former heavy #smokers are screened for #lungcancer. #ASCO18 @uofl James Graham Brown Cancer Center study shows screening rates much lower than breast, colon cancers: https://t.co/HlcYae7sDk #lcsm https://t.co/w16NAwAhFJ | |
Tiffini Joseph @Smiles4Nana @kgkeesling That’s a great way to get your story told #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #GoTeam #lcsm https://t.co/dyaWZ4w2pd | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @kgkeesling: I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM | |
#LCSM Chat @lcsmchat RT @peggyddennis: @JFreemanDaily #LCSM Would love to help with research advocacy. Not sure what/where to go to get onboard. Not sure if other advocates are as well??? | |
#LCSM Chat @lcsmchat RT @dennycee: @JFreemanDaily I’ve signed up for PCORI waiting to serve! #lcsm | |
Karen Loss @cancertrek I have served on a couple of Big Pharma advisory panels - one-offs. Good experiences though. #lcsm | |
Jennifer Ersek @JLErsek RT @kgkeesling: I started a blog when I was first diagnosed in 2015 — mostly just to keep my friends and family informed, but since then, I've realized it is a powerful advocacy tool. I have followers all over the world and I share my story every chance I get. #LCSM | |
#LCSM Chat @lcsmchat RT @cancertrek: I have served on a couple of Big Pharma advisory panels - one-offs. Good experiences though. #lcsm | |
dopaminergic13 🐭 @dopaminergic13 RT @TimAllenMDJD: Congratulations! #lcsm https://t.co/H0ZkQyQ7gm | |
diseases_an @diseases_an RT @Roche: Updated analyses of Roche data in ALK-positive #lungcancer announced today. Find out more: | |
Karen Loss @cancertrek Here's a question for everyone. What specific ways are you speaking to the public? Kind of a reframing of Janet's earlier question. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @peggyddennis Talk to some of the advocates who are involved in research advocacy: @findlungcancer, @don450sl, @dustywater ... #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Long way to go regarding research funding. #1CancerKiller #LCSM | |
#LCSM Chat @lcsmchat RT @cancertrek: Here's a question for everyone. What specific ways are you speaking to the public? Kind of a reframing of Janet's earlier question. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @findlungcancer, @don450sl, @dustywater ... #lcsm | |
Denise Cutlip @dennycee Would love to see Exceptional Responder Registry reopen and expanded. #lcsm | |
#LCSM Chat @lcsmchat RT @TimAllenMDJD: Long way to go regarding research funding. #1CancerKiller #LCSM | |
Karen Loss @cancertrek I published a book a few years ago. It gave me ops to do book chats about my lung cancer experience and reach plenty of lay people. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek I now speak at cancer conferences, NCI, universities, pharma ... but it started by speaking at my church and my blog. #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: Would love to see Exceptional Responder Registry reopen and expanded. #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: I published a book a few years ago. It gave me ops to do book chats about my lung cancer experience and reach plenty of lay people. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @cancertrek I now speak at cancer conferences, NCI, universities, pharma ... but it started by speaking at my church and my blog. #lcsm | |
Karen Loss @cancertrek I've been invited by generic patient groups to speak when they do lung cancer specific events. Don't limit to lung cancer groups only. #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek Karen, are you still getting contacts related to your book? Just wondering what the staying power of nonfiction is ... #lcsm | |
Tiffini Joseph @Smiles4Nana @cancertrek I have hosted several Shine a Light on Lung Cancer @LCAorg and try to educate people as often as possible in daily life #lcsm | |
Diane 🧚🏻♀️ @diianeee @cancertrek Karen, when were you diagnosed? If you don’t mind me asking. #lcsm | |
Kelly Keesling @kgkeesling Is anyone seeing my tweets? #lcsm | |
SunshineKK @SunshineKK68 @kgkeesling yes #lcsm | |
Karen Loss @cancertrek @JFreemanDaily @cancertrek Not so much for speaking, but occasionally requests to include it in magazine references. #lcsm | |
Diane 🧚🏻♀️ @diianeee @kgkeesling Yes! #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: I've been invited by generic patient groups to speak when they do lung cancer specific events. Don't limit to lung cancer groups only. #lcsm | |
#LCSM Chat @lcsmchat RT @Smiles4Nana: @cancertrek I have hosted several Shine a Light on Lung Cancer @LCAorg and try to educate people as often as possible in daily life #lcsm | |
Janet Freeman-Daily @JFreemanDaily @kgkeesling Your tweet just now showed up in https://t.co/A2M7gY7Hvl! #lcsm | |
Karen Loss @cancertrek Diagnosed Thanksgiving 2012. #lcsm | |
Jill Feldman @jillfeldman4 Hi all, sorry I'm joining late (all four kids home for dinner so family time) but wanted to say hi! #lcsm | |
Karen Loss @cancertrek BTW, still wanting to see more green shirt survivors at Breathe Deep walks. In DC, lots of blue shirts, but we need more green ones. #lcsm | |
Janet Freeman-Daily @JFreemanDaily So what would y'all most like to see happen in #lungcancer advocacy this year? #lcsm | |
Janet Freeman-Daily @JFreemanDaily @jillfeldman4 **waving** Hi Jill! #lcsm | |
Faces of Lung Cancer @LungCancerFaces @jillfeldman4 Hi, Jill! Bye, Jill! #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: BTW, still wanting to see more green shirt survivors at Breathe Deep walks. In DC, lots of blue shirts, but we need more green ones. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: So what would y'all most like to see happen in #lungcancer advocacy this year? #lcsm | |
Karen Loss @cancertrek What I'd most like to see is a major actor or entertainer get on board and become our champion. #lcsm | |
Ian Pereira @IanJPereira RT @LungCancerFaces: The progress that needs to be made is based on our lung cancer orgs unifying on key initiatives. We can't be effective if divided. #lcsm | |
Diane 🧚🏻♀️ @diianeee @cancertrek At the small breathe deep Kankakee we had 3 green shirts, at the bigger BD North Shore there were 13! #lcsm | |
Faces of Lung Cancer @LungCancerFaces I'd like to see more patient voices involved in a significant way in our major lung cancer groups #lcsm | |
Karen Loss @cancertrek LIke it or not, big media needs to get behind us if we're to gain a large public footing. #lcsm | |
Janet Freeman-Daily @JFreemanDaily FYI, as @cancertrek knows, sharing your patient story at #lungcancer fundraising walks is a great way to get started in advocacy. #lcsm | |
Tiffini Joseph @Smiles4Nana @JFreemanDaily More organizational unity, more survivors and family sharing their stories and more of the public listening to the message #lcsm | |
Faces of Lung Cancer @LungCancerFaces I'd like to see more survivors and their families participate in the political aspect of federal lung cancer research funding #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek With a caveat--would like a major public figure as #lungcancer advocate who knows the issues patients deal with. #lcsm | |
Denise Cutlip @dennycee I would like to see the major nonprofits focus more education efforts on ALL Causes of lc #lcsm | |
Faces of Lung Cancer @LungCancerFaces I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm | |
Jill Feldman @jillfeldman4 To see more collaborative efforts w/organizations. We share a vision, core belief & our desired result is the same #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: What I'd most like to see is a major actor or entertainer get on board and become our champion. #lcsm | |
Karen Loss @cancertrek I'd like to see us get MLB behind us to let us have survivors throw 1st pitches in every ballpark on Aug. 1, World Lung Cancer Day. #lcsm | |
#LCSM Chat @lcsmchat RT @diianeee: @cancertrek At the small breathe deep Kankakee we had 3 green shirts, at the bigger BD North Shore there were 13! #lcsm | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: I'd like to see more patient voices involved in a significant way in our major lung cancer groups #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: LIke it or not, big media needs to get behind us if we're to gain a large public footing. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: FYI, as @cancertrek knows, sharing your patient story at #lungcancer fundraising walks is a great way to get started in advocacy. #lcsm | |
Core 98 Media Group @Core98Media Buy #coffee, save a life. Proceeds benefit my #cancer #medicalfund #lcam #lcsm #lungcancer #cancersucks https://t.co/ZHtbgGO9p2 | |
Jennifer Ersek @JLErsek @LungCancerFaces That is an area I’d like to explore more...any tips on getting started? #lcsm | |
#LCSM Chat @lcsmchat RT @Smiles4Nana: @JFreemanDaily More organizational unity, more survivors and family sharing their stories and more of the public listening to the message #lcsm | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: I'd like to see more survivors and their families participate in the political aspect of federal lung cancer research funding #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @cancertrek With a caveat--would like a major public figure as #lungcancer advocate who knows the issues patients deal with. #lcsm | |
#LCSM Chat @lcsmchat RT @dennycee: I would like to see the major nonprofits focus more education efforts on ALL Causes of lc #lcsm | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: To see more collaborative efforts w/organizations. We share a vision, core belief & our desired result is the same #lcsm | |
#LCSM Chat @lcsmchat RT @cancertrek: I'd like to see us get MLB behind us to let us have survivors throw 1st pitches in every ballpark on Aug. 1, World Lung Cancer Day. #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Perhaps that would help. But y'all are genuine. And have real stories. #lcsm https://t.co/4U3ckbm6vr | |
Karen Loss @cancertrek RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm | |
Janet Freeman-Daily @JFreemanDaily @cancertrek Oooo, great idea! @chrisdraft @TeamDraft, are you reading this? #lcsm | |
Jill Feldman @jillfeldman4 See more celebrities speak up - their respected influential voices can reach large audiences & really make a difference #lcsm | |
Faces of Lung Cancer @LungCancerFaces Check out @lcaorg for their upcoming summit RT @JLErsek: That is an area I’d like to explore more...any tips on getting started? #lcsm | |
Kelly Keesling @kgkeesling @JFreemanDaily @cancertrek I'm actually doing that on Saturday! #lcsm | |
#LCSM Chat @lcsmchat RT @TimAllenMDJD: Perhaps that would help. But y'all are genuine. And have real stories. #lcsm https://t.co/4U3ckbm6vr | |
Michele @rants_by_egg I would like to see more genetic testing for germline #lungcancer mutations to help populate the research and establish early screening protocols just like with breast cancer. Seems #lungcancer is a couple of decades behind. #lcsm | |
Tiffini Joseph @Smiles4Nana @LungCancerFaces Yes! #lcsm | |
Janet Freeman-Daily @JFreemanDaily @kgkeesling @cancertrek GREAT! At which ballpark? For which team? #lcsm | |
Karen Loss @cancertrek @kgkeesling @JFreemanDaily @cancertrek Where, Kelly? #lcsm | |
Jill Feldman @jillfeldman4 @LungCancerFaces Yep, Media are a vital conduit for health information, & lung cancer is a major health issue- an epidemic #lcsm | |
Tiffini Joseph @Smiles4Nana @cancertrek This would be amazing @mlb #lcsm | |
Kelly Keesling @kgkeesling Or TV spots like breast cancer has. #lcsm | |
Ian Pereira @IanJPereira @kgkeesling Blogging/reflection may also be a great therapeutic tool https://t.co/iZlSX9B9BA #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @rants_by_egg: I would like to see more genetic testing for germline #lungcancer mutations to help populate the research and establish early screening protocols just like with breast cancer. Seems #lungcancer is a couple of decades behind. #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: See more celebrities speak up - their respected influential voices can reach large audiences & really make a difference #lcsm | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: Check out @lcaorg for their upcoming summit RT @JLErsek: Check out @lcaorg for their upcoming summit RT @JLErsek: That is an area I’d like to explore more...any tips on getting started? #lcsm | |
#LCSM Chat @lcsmchat RT @rants_by_egg: I would like to see more genetic testing for germline #lungcancer mutations to help populate the research and establish early screening protocols just like with breast cancer. Seems #lungcancer is a couple of decades behind. #lcsm | |
Peggy Dennis @peggyddennis #LCSM No one is as passionate about our stories as we are. Personally, I encourage other survivors/caregivers to share. The Denver Free to Breathe events have been my way into advocacy so far. | |
diseases_an @diseases_an RT @IASLC: Analysis of 1,800 #lungcancer screening sites revealed that a majority of heavy smokers are not being screened for lung cancer, despite meeting USPSTF and ASCO screening recommendations. This analysis will be presented at #ASCO18. #LCSM https://t.co/8CYuFUpGvc | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @peggyddennis: #LCSM No one is as passionate about our stories as we are. Personally, I encourage other survivors/caregivers to share. The Denver Free to Breathe events have been my way into advocacy so far. | |
Faces of Lung Cancer @LungCancerFaces #lcsm https://t.co/BW3CT71yKL | |
Karen Loss @cancertrek From two years ago. Bad pitch, but good cause. https://t.co/QLH6onAMwd Better still if we hit all teams on one day. Bigger media story. #lcsm | |
Tiffini Joseph @Smiles4Nana @LungCancerFaces Sorry for the typo 🤦🏻♀️ #lcsm | |
#LCSM Chat @lcsmchat RT @jillfeldman4: @LungCancerFaces Yep, Media are a vital conduit for health information, & lung cancer is a major health issue- an epidemic #lcsm | |
Ian Pereira @IanJPereira @JFreemanDaily @TimAllenMDJD It’s been great to see more patient advocates participating in medical meetings - great insight to help direct research & advocacy. #lcsm | |
#LCSM Chat @lcsmchat RT @kgkeesling: Or TV spots like breast cancer has. #lcsm | |
#LCSM Chat @lcsmchat RT @IanJPereira: @kgkeesling Blogging/reflection may also be a great therapeutic tool https://t.co/iZlSX9B9BA #lcsm | |
Janet Freeman-Daily @JFreemanDaily @rants_by_egg Before anyone will pay for germline screening of #lungcancer, we first have to identify germline mutations that directly increase the risk for #lungcancer. Need more research! #lcsm | |
#LCSM Chat @lcsmchat RT @peggyddennis: #LCSM No one is as passionate about our stories as we are. Personally, I encourage other survivors/caregivers to share. The Denver Free to Breathe events have been my way into advocacy so far. | |
#LCSM Chat @lcsmchat RT @LungCancerFaces: #lcsm https://t.co/BW3CT71yKL | |
#LCSM Chat @lcsmchat RT @cancertrek: From two years ago. Bad pitch, but good cause. https://t.co/QLH6onAMwd Better still if we hit all teams on one day. Bigger media story. #lcsm | |
#LCSM Chat @lcsmchat RT @IanJPereira: @JFreemanDaily @TimAllenMDJD It’s been great to see more patient advocates participating in medical meetings - great insight to help direct research & advocacy. #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: @rants_by_egg Before anyone will pay for germline screening of #lungcancer, we first have to identify germline mutations that directly increase the risk for #lungcancer. Need more research! #lcsm | |
Alan Meng @AlanMeng3 RT @n8pennell: Median survival >4 years in a phase 3 trial of metastatic ALK+ NSCLC? Astonishing, I wonder if it is because so many went on to 2nd and potentially third gen TKIs? Now that I think of it I know a number of ALK+ pts surviving >4-5 years with stage 4 dz. #LCSM https://t.co/FWvc9tOcw9 | |
Tiffini Joseph @Smiles4Nana @JFreemanDaily @rants_by_egg More funding, more research, more testing. We have work to do! #lcsm | |
Karen Loss @cancertrek All teams/one day/bigger media impact. Two years ago, my Nats effort. Bad pitch, good cause. https://t.co/QLH6onAMwd #lcsm | |
Chris Draft @chrisdraft RT @JFreemanDaily: @cancertrek Oooo, great idea! @chrisdraft @TeamDraft, are you reading this? #lcsm | |
#LCSM Chat @lcsmchat RT @Smiles4Nana: @JFreemanDaily @rants_by_egg More funding, more research, more testing. We have work to do! #lcsm | |
Kelly Keesling @kgkeesling I'm telling my story at the Lung Cancer Initiative of NC's LUNGe Forwaed 5K this Saturday. Being involved on the committee has given me multiple opportunities to tell my story – including on the radio. #lcsm | |
Ian Pereira @IanJPereira RT @JFreemanDaily: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @peggyddennis Talk to some of the advocates who are involved in research advocacy: @findlungcancer, @don450sl, @dustywater ... #lcsm | |
Andrea Zinn @azinnz09 RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm | |
Janet Freeman-Daily @JFreemanDaily @Smiles4Nana @LungCancerFaces Just ONE typo? You're doing great for a tweetchat! #lcsm | |
Janet Freeman-Daily @JFreemanDaily Down to the last four minutes? Anyone have a closing thought? #lcsm | |
Denise Cutlip @dennycee Having issues with hospital WiFi. Checking out now. #lcsm | |
Janet Freeman-Daily @JFreemanDaily I wasn't sure we'd get much conversation tonight, but it's been a nice chat--slow enough to follow, enough people to be interesting! #lcsm | |
#LCSM Chat @lcsmchat RT @kgkeesling: I'm telling my story at the Lung Cancer Initiative of NC's LUNGe Forwaed 5K this Saturday. Being involved on the committee has given me multiple opportunities to tell my story – including on the radio. #lcsm | |
Diane 🧚🏻♀️ @diianeee Great chat everyone! Goodnight! #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Down to the last four minutes? Anyone have a closing thought? #lcsm | |
Janet Freeman-Daily @JFreemanDaily @dennycee Thanks for joining the chat! #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: I wasn't sure we'd get much conversation tonight, but it's been a nice chat--slow enough to follow, enough people to be interesting! #lcsm | |
Karen Loss @cancertrek Thanks everyone. Keep up the good work and I will keep it up with you. Seeya next time. #lcsm | |
Faces of Lung Cancer @LungCancerFaces Thanks to @JFreemanDaily for moderating on short notice. As always, I love this community! #lcsm | |
Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD #lcsm FTW It was a privilege to participate. https://t.co/V7cMoU25Pm | |
Inspire @InspireIsHealth RT @cancertrek: All teams/one day/bigger media impact. Two years ago, my Nats effort. Bad pitch, good cause. https://t.co/QLH6onAMwd #lcsm | |
Janet Freeman-Daily @JFreemanDaily Thanks everyone for joining #LCSM Chat tonight! Love this community. Keep up the networking and advocacy! See you in two weeks. | |
Michele @rants_by_egg Germline panel of 80 including T790M was only $250. I found that very reasonable...and after me I start with my family. If we can identify these markers early, we can detect earlier and increase survivorship. It's my little start...#lcsm | |
Peggy Dennis @peggyddennis #LCSM @JFreemanDaily I find these chats to be helpful on many levels. And the variety keeps me interested and involved. Thank You! | |
Tiffini Joseph @Smiles4Nana Have a great evening everyone! Advocate, educate and stimulate the minds of everyone who will listen to our cause! #lcsm | |
#LCSM Chat @lcsmchat RT @peggyddennis: #LCSM @JFreemanDaily I find these chats to be helpful on many levels. And the variety keeps me interested and involved. Thank You! | |
#LCSM Chat @lcsmchat RT @Smiles4Nana: Have a great evening everyone! Advocate, educate and stimulate the minds of everyone who will listen to our cause! #lcsm | |
SunshineKK @SunshineKK68 find ways to get those not listening to listen #lcsm | |
Janet Freeman-Daily @JFreemanDaily @peggyddennis Thank you, Peggy! #lcsm | |
Janet Freeman-Daily @JFreemanDaily Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC | |
Michele @rants_by_egg @JFreemanDaily Chicken or the egg...I agree, more research but more people tested and identified with "variants of unknown significance" become significant. We know T790M. #lcsm | |
#LCSM Chat @lcsmchat RT @SunshineKK68: find ways to get those not listening to listen #lcsm | |
#LCSM Chat @lcsmchat RT @JFreemanDaily: Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC | |
✨KRISTIN ELIZABETH ☽ ✨🤍🪩🔮 @KristinEliz23 RT @LungCancerFaces: I'd like to see the media take up lung cancer the way they've championed the opioid "epidemic' #lcsm | |
Janet Freeman-Daily @JFreemanDaily @rants_by_egg Few #lungcancer people are getting healthy tissue sequenced. Most #lungcancer biobank samples are cancerous tumor tissue. Maybe the #PrecisionMedicine Initiative will help with this. #LCSM | |
Enlightening Results 💡 @GraceCordovano RT @JFreemanDaily: Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC | |
Celtic Witch 🌻🌻🌻🌻 @ZieglerSandi RT @JFreemanDaily: Transcript for tonight's #LCSM Chat "Open Mic Night" is here: https://t.co/NRWTVGyHLC |
#LCSM content from Twitter.