#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Faces of Lung Cancer @LungCancerFaces If you never tweet anything during this chat, please just tweet once to introduce yourselves so we know you're out there. #lcsm |
 | larrylm53 @larrylm53 Uneducated carpenter with 3b lung cancer #lcsm |
 | R.V. Rikard @rv_rikard Good evening! RV Rikard just lurking during the chat #hchlitss #lcsm |
 | Molly Lindquist @LindquistPDX Molly here -- http://t.co/Hpzye7pYLB founder, tweeting from a Nashville hotel, so the connection is a bit "hit or miss" #lcsm |
| Faces of Lung Cancer @LungCancerFaces Welcome, Larry! Hi Jack, Kim, Molly! #lcsm |
 | 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @rv_rikard: Good evening! RV Rikard just lurking during the chat #hchlitss #lcsm |
| Db @DbPharmxt Thoughts on PD-1 PDl-1 #lcsm | |
 | Deep Ramachandran MD @LungSleepDeep @ChrisCarrollMD @LungCancerFaces #lcsm chat going down in 3,2,1 ... |
| R.V. Rikard @rv_rikard @NatriceR Good evening Natrice! #hchlitss #lcsm |
 | Kathleen D. Hoffman @drkdhoffman Good evening! Kathleen Hoffman, health communication co-host #hchlitss w/@rv_rikard lurking as well #lcsm |
 | J.Antre @j_antre #lcsm |
 | Lung Cancer Leaders @LCleaders Glad to be a part of the conversation! #lcsm |
 | Chris Carroll MD @ChrisCarrollMD I'm Chris, Social media editor for journal CHEST & @accpchest. Interested in prevention & #nostigma. #LCSM |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: Good evening! Kathleen Hoffman, health communication co-host #hchlitss w/@rv_rikard lurking as well #lcsm |
| Kathleen D. Hoffman @drkdhoffman @NatriceR good to see you #hchlitss #lcsm |
| Deep Ramachandran MD @LungSleepDeep Deep, pulm doc diagnose and treat peeps with lc #lcsm |
| Faces of Lung Cancer @LungCancerFaces Hi Chris, J., Jens! #lcsm |
| Faces of Lung Cancer @LungCancerFaces Hi Natrice! DEEP! #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: @NatriceR good to see you #hchlitss #lcsm |
| Molly Lindquist @LindquistPDX @kimg5577 @LungCancerFaces Glad you're here, Kim! Love the attitude!! #lcsm |
 | Laronica Conway @louisianagirl91 #lcsm Laronica checking in from bham! |
 | Matthew Katz, MD 🟦 @subatomicdoc @LungCancerFaces Good evening! #lcsm |
 | 22 @pokerbucket @JackWestMD #lcsm We need early detection. Is an annual chest X-ray a good start? #nostigma |
| Faces of Lung Cancer @LungCancerFaces Hi Roni, JF, Matt! #lcsm |
 | KatyNenninger Lawson @ukpearlgirl I'm Katy and my dad died of lung cancer and my 29 year old never smoking sister has Stage 3a lung cancer. #LungCancer #tweetchat #lcsm |
 | Janet Freeman-Daily @JFreemanDaily Perhaps a brief overview of how this chat works would be helpful. #lcsm |
| Kathleen D. Hoffman @drkdhoffman Hi @subatomicdoc Matt Great to see you! #hchlitss #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @drkdhoffman: Good evening! Kathleen Hoffman, health communication co-host #hchlitss w/@rv_rikard lurking as well #lcsm |
 | Jens Malte Schuldt @jensmalteschuld Hi, My name is Malte Schuldt, I am from Denmark and studying comparative literature. My father has lung cancer stage 4 adeno. #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR “@drkdhoffman: Hi @subatomicdoc Matt Great to see you! #hchlitss #lcsm” evening;) |
 | Andrea Borondy Kitts @findlungcancer #lcsm -- lung cancer awareness advocate, lost husband to LC in april |
 | Gilles Frydman @gfry My first participation to #lcsm. I expect this will become one of many. Good to see so many friends. |
| Matthew Katz, MD 🟦 @subatomicdoc @ChrisCarrollMD @accpchest Hi Chris! Matt Katz here in Massachusetts, radiation oncologist. Hi All #lcsm |
| Faces of Lung Cancer @LungCancerFaces Welcome Gilles, Andrea! #lcsm |
| 22 @pokerbucket RT @JackWestMD: Evidence says low dose CT far superior, so "no". @JackWestMDWe need early detection. Is an annual chest X-ray a good start? |
 | Melissa Mohlere @ProfMohlere I'm Melissa - my dad died from lung cancer in '09. Like Deana, totally pissed, and not gonna sit on the sidelines. #lcsm |
| Kathleen D. Hoffman @drkdhoffman Hi @lungcancerfaces read your recent piece #lcsm |
| Deep Ramachandran MD @LungSleepDeep Unfortunately annual CXR no survival benefit though anecdotally a lot of pts are found that way #lcsm |
| Laronica Conway @louisianagirl91 @drkdhoffman welcome! No need to lurk! chime in!! #lcsm |
 | Nirav Desai @AndytweetM @JackWestMD @hydrogenblimp Dr. West this may be relevant across diff. Cancer types ; may make sense to do it across #lcsm @gyncsm @bcsm etc |
| Faces of Lung Cancer @LungCancerFaces Melissa, glad you could make it! #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm it's great to be here. always encouraging to see all the focus on making this better |
| Matthew Katz, MD 🟦 @subatomicdoc @gfry Hi Gilles, thanks for joining! #lcsm |
| Kathleen D. Hoffman @drkdhoffman Hi @jackwestmd good to see you #hchlitss #lcsm |
| Laronica Conway @louisianagirl91 @gfry AWESOME! SO glad to have you here!! #lcsm |
| Faces of Lung Cancer @LungCancerFaces @drkdhoffman I hope you like it! #lcsm |
| R.V. Rikard @rv_rikard RT @drkdhoffman Hi @jackwestmd good to see you #hchlitss #lcsm <-- I second that! #hchlitss |
| Melissa Mohlere @ProfMohlere @JensMalteSchuld Hi Malte - I studied Lit here in the US. Got my MA in Brit Lit. Nice to "meet" you! #lcsm |
| Laronica Conway @louisianagirl91 @ukpearlgirl so very sorry. Glad you could join us. We're all family. And here for you! #lcsm |
| Chris Carroll MD @ChrisCarrollMD RT @Caduceusblogger: Unfortunately annual CXR no survival benefit in lung cancer though anecdotally a lot of pts are found that way. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @louisianagirl91: @ukpearlgirl so very sorry. Glad you could join us. We're all family. And here for you! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: Some patients (especially those on Medicare w/o supplement) say the sometimes skip scans because of copays. #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm my husband elected to take pills every other day when dose reduced until pills gone because of cost (tarceva) |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JackWestMD: Let's get started! T1: Costs of cancer Rx are rising. How is this affecting pts? Do some miss Rx options due to high copays |
| Kathleen D. Hoffman @drkdhoffman @lungcancerfaces of course I liked the piece your wrote...excellent...#hchlitss #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @ChrisCarrollMD: RT @Caduceusblogger: Unfortunately annual CXR no survival benefit in lung cancer though anecdotally a lot of pts are fo |
| Kathleen D. Hoffman @drkdhoffman RT @findlungcancer #lcsm my husband elected to take pills every other day when dose reduced until pills gone because of cost (tarceva) |
| R.V. Rikard @rv_rikard @LungCancerFaces Hello Deana #hchlitss #lcsm |
| Melissa Mohlere @ProfMohlere @LungCancerFaces Thanks! Happy to be here. Going to storify the chat for Mom, who might join us sometime in coming weeks. #LCSM |
| Deep Ramachandran MD @LungSleepDeep Need better education of pcp and radiology, many insurance will cover low dose but its not widely used. #lcsm |
| Faces of Lung Cancer @LungCancerFaces TYVM! RT @drkdhoffman: @lungcancerfaces of course I liked the piece your wrote...excellent...#hchlitss #lcsm #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: @lungcancerfaces of course I liked the piece your wrote...excellent...#hchlitss #lcsm |
| Laronica Conway @louisianagirl91 My mom took out A CANCER POLICY way back in the '70s. It was a blessing. Paid for just about everything. We're in the minority. #lcsm |
 | John Nosta @JohnNosta RT @JackWestMD: I'm Jack West, med onc in Seattle, & Founder/CEO of cancer education nonprofit @cancergrace. Honored to moderate #lcsm |
| KatyNenninger Lawson @ukpearlgirl @johnpharmd. Sadly, yes. But outside of baseline chest X-ray, they won't do any tests since I'm 34 and have never smoked. #lcsm |
| Faces of Lung Cancer @LungCancerFaces Howdy RT @rv_rikard: @LungCancerFaces Hello Deana #hchlitss #lcsm #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR “@LungCancerFaces: TYVM! RT @drkdhoffman: @lungcancerfaces of course I liked the piece your wrote...excellent...#hchlitss #lcsm #lcsm” ;) |
| R.V. Rikard @rv_rikard RT @drkdhoffman: @lungcancerfaces of course I liked the piece your wrote...excellent... #hchlitss #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: patients on oral cancer drugs often find insurance doesn't cover much, even with parity laws. #lcsm |
| John Nosta @JohnNosta Hey @JackWestMD!!! #lcsm |
| 22 @pokerbucket @Caduceusblogger pts? It must find some early stage LC in high risk group? #nostigma #lcsm |
| Kathleen D. Hoffman @drkdhoffman @louisianagirl91my mother died of bc mets and we were also lucky w/ the cancer policy she had... in hosp 3 months #hchlitss #lcsm |
 | Dr. David Tom Cooke @DavidCookeMD Hi David Here, Thoracic Surgeon @ #UCDavis. Sorry I'm late! #lcsm |
| Jens Malte Schuldt @jensmalteschuld RT @ProfMohlere: @JensMalteSchuld Hi Malte - I studied Lit here in the US. Got my MA in Brit Lit. Nice to "meet" you! #lcsm |
| Molly Lindquist @LindquistPDX @JackWestMD I remember seeing my first itemized bill for chemo and being SHOCKED! I was lucky to have insurance that covered most. #lcsm |
| Laronica Conway @louisianagirl91 @drkdhoffman I suppose mom just knew. but her state ins as a teacher was also helpful. surprisingly. #lcsm |
| Faces of Lung Cancer @LungCancerFaces Fashionably late, David RT @UCD_ChestHealth: Hi David Here, Thoracic Surgeon @ #UCDavis. Sorry I'm late! #lcsm #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: Some drug companies help with copays (like Tarceva) for a while, but not years. #lcsm |
| Melissa Mohlere @ProfMohlere T1: Since most LC are dx so late, skipping doses of meds or scan must be scary - taking quite a chance. But what choice do they have? #LCSM |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JackWestMD: T1: I have few pts who don't get treatment they want/need, but I'm getting delays of 2-3 wks for approval, especially oral |
| Matthew Katz, MD 🟦 @subatomicdoc @UCD_ChestHealth Hi David! Thanks for joining #lcsm |
| Deep Ramachandran MD @LungSleepDeep T1: terrible terrible! So frustrated that good people can't get basic treatment. Hopefully healthcare expansion will help? #lcsm |
 | Dr Scott Finkelstein @ConsanoScott Joining for a few mins from my kids' swim lessons. #lcsm |
| Molly Lindquist @LindquistPDX @JohnNosta @JackWestMD Hi John! Glad to see you here! #lcsm |
 | WearPearl4LungCancer @WearPearlsforLC @JackWestMD we struggled then we were able to get help through some drug company programs #LCSM |
| Db @DbPharmxt @JackWestMD #lcsm 2-3 week delay in insurance approval? or copay assistence/foundation? | |
| Melissa Mohlere @ProfMohlere @JackWestMD That breaks my heart We were so lucky. Dad's ins. paid everything, including critical care transport & ICU #LCSM |
| Faces of Lung Cancer @LungCancerFaces Carla! RT @WearPearlsforLC: @JackWestMD we struggled then we were able to get help through some drug company programs #LCSM #lcsm |
| Janet Freeman-Daily @JFreemanDaily @Caduceusblogger Healthcare expansion is a whole 'nother topic. I fear it won't help as many as need it. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JackWestMD: The delay to get this going can be challenge. RT @JFreemanDaily: T1: Some drug companies help with copays (like Tarceva) # |
| Kathleen D. Hoffman @drkdhoffman MT @ProfMohlere T1: Since most LC Rdx so late skipping doses meds or scan must b scary -taking quite a chance. But what choice? #lcsm |
| Laronica Conway @louisianagirl91 All of this means that folks are getting inconsistent treatment across the country. NOT good!! #lcsm |
| Deep Ramachandran MD @LungSleepDeep @louisianagirl91 how smart of her, i had never even heard of cancer policy before! #LCSM |
| WearPearl4LungCancer @WearPearlsforLC @LungCancerFaces @JackWestMD I made it. Phone alarms are great! #lcsm |
| Jens Malte Schuldt @jensmalteschuld @ProfMohlere Hi Melissa, nice too meet you as well and to meet someone who made similar experience. #lcsm |
| 22 @pokerbucket @ConsanoMolly @JackWestMD We Canadians need to appreciate our health care system when it comes to cost of LC treatment. #lcsm #nostigma |
| Chris Carroll MD @ChrisCarrollMD Slightly off topic but goes to yearly CXR question. Attached are @accpchest guidelines. #lcsm http://t.co/UD7CJlLs1t http://t.co/LISfWxC1LY |
| Kathleen D. Hoffman @drkdhoffman RT @louisianagirl91 All of this means that folks are getting inconsistent treatment across the country. NOT good!! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: I've heard from a hospital chaplain that some newly-diagnosed folks with few resources refuse treatment to save $$ for family. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @louisianagirl91 Yes, there is a fair amount of variability. #lcsm |
| Dr Scott Finkelstein @ConsanoScott @JackWestMD do you have patients want to go to other countries to get cheaper chemo care? #lcsm |
 | Robert C. Doebele, MD, PhD @rdoebele Bob Doebele joining a bit late #lcsm |
| Laronica Conway @louisianagirl91 @Caduceusblogger I know! Ins agents would visit the schools selling to teachers. She bought it. $10-20 a month for almost 40 yrs. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD More publicity may prompt drug co.s' participation @WearPearlsforLC: @JackWestMD we were able to get help thru some drug co programs #LCSM |
 | ☔️ earthseed☔️ @earthseed True first script for Tarceva was expensive even with insurance #LCSM |
| Faces of Lung Cancer @LungCancerFaces Wecome, Bob! Glad you could make it! RT @rdoebele: Bob Doebele joining a bit late #lcsm #lcsm |
| Melissa Mohlere @ProfMohlere @Fleming_clan @ConsanoMolly @JackWestMD Would love to hear more about what is covered in other countries - admittedly don't know much #LCSM |
| Molly Lindquist @LindquistPDX @rdoebele Good to "see" you, Bob! #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm some new targeted meds are so expensive insurance won't cover -- this will happen more and more |
| Janet Freeman-Daily @JFreemanDaily T1: I wonder how many drug company can help, with number of targeted therapy pts increasing so rapidly. #lcsm |
| WearPearl4LungCancer @WearPearlsforLC @TimAllenMDJD @JackWestMD in our case our social worker handled it. Really no publicity. #lcsm guess you need to know how to work the system |
| Laronica Conway @louisianagirl91 @JFreemanDaily Exactly. They have choices and usually put THEIR health last to pay bills & take care of family. #lcsm |
| Dr Scott Finkelstein @ConsanoScott Great to see you here, Bob! RT @rdoebele: Bob Doebele joining a bit late #lcsm |
 | MARv,L @marv_l RT @louisianagirl91: My mom took out A CANCER POLICY way back in the '70s. It was a blessing. Paid for just about everything. We're in the |
| Deep Ramachandran MD @LungSleepDeep RT @ChrisCarrollMD: Slightly off topic but goes to yearly CXR question. Attached are @accpchest guidelines. #lcsm http://t.co/UD7CJlLs1t ht… |
| Kathleen D. Hoffman @drkdhoffman MT @Fleming_clan We Canadians need to appreciate our health care system when it comes to cost of LC treatment. #lcsm #nostigma |
| Molly Lindquist @LindquistPDX T1: Is there still a prob with repurposing of drugs approved for other types of cancers as "personalized" takes off? #lcsm |
| Dr. David Tom Cooke @DavidCookeMD What about crowdsourcing to help cover costs of meds? Models for business loans, etc... #lcsm |
| Laronica Conway @louisianagirl91 @rdoebele hi Bob!!! #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @UCD_ChestHealth: What about crowdsourcing to help cover costs of meds? Models for business loans, etc... #lcsm |
| Melissa Mohlere @ProfMohlere @findlungcancer DISLIKE #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc @JackWestMD @ConsanoScott Hasn't happened from what i've seen going overseas for radiation. #lcsm |
| Dr Scott Finkelstein @ConsanoScott RT @ConsanoMolly: T1: Is there still a prob with repurposing of drugs approved for other types of cancers as "personalized" takes off? #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD But need to prove efficacy @findlungcancer: #lcsm some new targeted meds are so expensive insurance won't cover-this will happen more & more |
| Molly Lindquist @LindquistPDX @UCD_ChestHealth There are definitely quite a number of crowdfunding sites that help people raise money to help support med bills. #lcsm |
| R.V. Rikard @rv_rikard MT @JFreemanDaily put THEIR health last to pay bills & take care of family #lcsm disparities are a main topic on #hchlitss chat |
| Janet Freeman-Daily @JFreemanDaily T1: May not have enough ROS1 pts for Phase III trial to get FDA approval. At $10K/mo for Xalkori, wonder if insurance will pay? #lcsm |
| Laronica Conway @louisianagirl91 RT @JackWestMD: @WearPearlsforLC @TimAllenMDJD Sometimes it really helps to have social worker or other insider who knows where to look for |
| Faces of Lung Cancer @LungCancerFaces RT @ConsanoMolly: @UCD_ChestHealth There are definitely quite a number of crowdfunding sites that help people raise money to help support m |
| Andrea Borondy Kitts @findlungcancer #lcsm http://t.co/yUCDb0dcca won't have to use crx, ldct now in draft uspstf recommendation pls support with positive comment -- thru Aug 26 |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: T1: May not have enough ROS1 pts for Phase III trial to get FDA approval. At $10K/mo for Xalkori, wonder if insurance |
| ☔️ earthseed☔️ @earthseed Moat people don't realize without insurance NOBODY can afford care. Who has the $100,000 + for care? #LCSM |
| Db @DbPharmxt RT @WearPearlsforLC: @TimAllenMDJD @JackWestMD in our case our social worker handled it. Really no publicity. #lcsm guess you need to know … | |
| WearPearl4LungCancer @WearPearlsforLC @JackWestMD @TimAllenMDJD absolutely. Gregg had a great one. Although we were very fortunate!! #lcsm |
 | Bob Radinsky @bobradinsky Hi. My wife has stage 4 Nsclc/EGFR//LMC. On Tarceva. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Is there a web list? > RT @ConsanoMolly: Definitely a number of crowdfunding sites help people raise money to help support med bills. #lcsm |
| WearPearl4LungCancer @WearPearlsforLC RT @ConsanoMolly: @UCD_ChestHealth There are definitely quite a number of crowdfunding sites that help people raise money to help support m |
| Laronica Conway @louisianagirl91 @rv_rikard yep. i'm well aware of disparities. my family is in small, rural town; no options. but we were lucky. #lcsm |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy RT @earthseed: Moat people don't realize without insurance NOBODY can afford care. Who has the $100,000 + for care? #LCSM |
| Faces of Lung Cancer @LungCancerFaces #LCSM chat happening right now. Join the conversation. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| WearPearl4LungCancer @WearPearlsforLC RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| Laronica Conway @louisianagirl91 RT @earthseed: Moat people don't realize without insurance NOBODY can afford care. Who has the $100,000 + for care? #LCSM |
| J.Antre @j_antre RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| Faces of Lung Cancer @LungCancerFaces Welcome RT @bobradinsky: Hi. My wife has stage 4 Nsclc/EGFR//LMC. On Tarceva. #lcsm #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm as more genetic mutations are identified and targeted drugs developed for small populations will need public policy to address |
| Robert C. Doebele, MD, PhD @rdoebele Just saw that ctizotinib was not approved by NICE in UK #lcsm |
| Laronica Conway @louisianagirl91 @earthseed TRUE! And, it's not like you can SAVE for something like this! Who can do that??? #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @louisianagirl91: @earthseed TRUE! And, it's not like you can SAVE for something like this! Who can do that??? #lcsm |
| Melissa Mohlere @ProfMohlere @bobradinsky Welcome Bob. #lcsm. Glad to have you join us! |
| Db @DbPharmxt @JackWestMD @WearPearlsforLC @TimAllenMDJD #lcsm http://t.co/XA8SZRYgdb good resource for patient assistance/foundation | |
| Laronica Conway @louisianagirl91 RT @JackWestMD: RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| Kathleen D. Hoffman @drkdhoffman RT @rv_rikard MT @JFreemanDaily put THEIR hlth last 2 pay bills & take care of family #lcsm disparities R main topic on #hchlitss chat |
| Faces of Lung Cancer @LungCancerFaces What do you all think about that?RT @rdoebele: Just saw that ctizotinib was not approved by NICE in UK #lcsm #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Can we ask why it's so expensive in the 1st place? MT @UCD_ChestHealth: What about crowdsourcing to help cover costs of meds? #lcsm |
| Melissa Mohlere @ProfMohlere RT @JackWestMD: RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @coffeemommy: Can we ask why it's so expensive in the 1st place? MT @UCD_ChestHealth: What about crowdsourcing to help cover costs of me |
| Lung Cancer Leaders @LCleaders RT @JackWestMD: RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD SW should now be part of all onc teams @JackWestMD @WearPearlsforLC @TimAllenMDJD helps to have social worker-knows where to find help #lcsm |
| R.V. Rikard @rv_rikard @louisianagirl91 absolutely! rural areas exp access to health care disparities! #hchlitss #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm will need small population drug pricing public policy as more and more genome testing identifies targeted therapies |
| Melissa Mohlere @ProfMohlere @johnpharmd That figure makes me want to throw up. #lcsm |
| Kathleen D. Hoffman @drkdhoffman RT @rv_rikard @louisianagirl91 absolutely! rural areas exp access to health care disparities! #hchlitss #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy RT @TimAllenMDJD: SW should now be part of all onc teams @JackWestMD @WearPearlsforLC @TimAllenMDJD helps to have social worker-knows where |
| Molly Lindquist @LindquistPDX crowdsurfer.co is a good start MT @UCD_ChestHealth Is there a web list? RT @consanomolly crowdfunding sites to support med bills. #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm need more community based cancer care. NCI has program but it's not rural enough |
| Laronica Conway @louisianagirl91 @coffeemommy now THAT is the REAL question!! #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JackWestMD: @coffeemommy @UCD_ChestHealth Cancer drugs that cost $2M to develop/test & are used in small pops will cost LOTS of money # |
| Janet Freeman-Daily @JFreemanDaily How many rural oncologists specialize in #lungcancer and have time to keep up with rapid changes in guidelines and treatment? #lcsm |
| Melissa Mohlere @ProfMohlere RT @TimAllenMDJD: SW should now be part of all onc teams @JackWestMD @WearPearlsforLC @TimAllenMDJD helps to have social worker-knows where |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy And in some cases treatment costs are exacerbated by travel costs to get quality care. #lcsm |
 | Charles Lehman @CharlesLehmanTX Interesting read for #lcsm Tweeters: http://t.co/Cmi39JY9Fm via @dailyRx. |
| Dr Scott Finkelstein @ConsanoScott @coffeemommy @ucd_chesthealth R&D costs and very powerful pharma lobby. Same drugs costs way less in every other country. #lcsm |
| Andrea Borondy Kitts @findlungcancer AJfreemandaily #lcsm answer very few. so patient has to advocate for themselves not all can |
| WearPearl4LungCancer @WearPearlsforLC RT @hydrogenblimp: @JackWestMD @WearPearlsforLC @TimAllenMDJD #lcsm http://t.co/XA8SZRYgdb good resource for patient assistance/foundation |
| Deep Ramachandran MD @LungSleepDeep @TimAllenMDJD @findlungcancer agree. As CT screening finds more people reducing therapy costs will be big factor. #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @ConsanoScott: @coffeemommy @ucd_chesthealth R&D costs and very powerful pharma lobby. Same drugs costs way less in every other country. |
| Laronica Conway @louisianagirl91 @JFreemanDaily Not many that I know of. Trust me on that one! mom had to go to Houston. but we could AFFORD it. Others can't! #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @Caduceusblogger: @TimAllenMDJD @findlungcancer agree. As CT screening finds more people reducing therapy costs will be big factor. #LCSM |
| Laronica Conway @louisianagirl91 RT @findlungcancer: AJfreemandaily #lcsm answer very few. so patient has to advocate for themselves not all can |
| R.V. Rikard @rv_rikard MT @findlungcancer NCI has program but it's not rural enough <= that is def a #health and #socialscience topic!! #hchlitss #lcsm |
| WearPearl4LungCancer @WearPearlsforLC @TimAllenMDJD @JackWestMD great point. SW should be. And ours was . #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @Caduceusblogger: @TimAllenMDJD @findlungcancer agree. As CT screening finds more people reducing therapy costs will be big factor. #LCSM |
| Matthew Katz, MD 🟦 @subatomicdoc @coffeemommy @UCD_ChestHealth Cost of drug development is high, but not sustainable http://t.co/4QRcfq7Q6g via @TheEconomist #lcsm |
| Robert C. Doebele, MD, PhD @rdoebele The cost of development if drugs is quite high especially if FDA mandates phase III data deaoite clear benefit #lcsm |
| Kathleen D. Hoffman @drkdhoffman MT @earthseed: Mst people don't realize w/out ins. NOBODY can afford care. Who has $100,000 + for care? #LCSM #HCHLITSS<=hlth disparty #lcsm |
| Laronica Conway @louisianagirl91 RT @JackWestMD: @coffeemommy @UCD_ChestHealth Cancer drugs that cost $2M to develop/test & are used in small pops will cost LOTS of money # |
| WearPearl4LungCancer @WearPearlsforLC “@Caduceusblogger: @TimAllenMDJD @findlungcancer agree. As CT screening finds more people reducing therapy costs will be big factor. #LCSM” |
| Andrea Borondy Kitts @findlungcancer #lcsm need to find a way for genome and genetic signatures for targeted therapies to be approved with smaller populations |
| R.V. Rikard @rv_rikard MT @earthseed: Mst people don't realize w/out ins. NOBODY can afford care. Who has $100,000 + for care? #LCSM #HCHLITSS<=hlth disparty #lcsm |
| Dr Scott Finkelstein @ConsanoScott RT @johnpharmd: T1: US effectively subsidizes #cancerdrugdevelopment for the world. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Closer to 2B @JackWestMD: @coffeemommy @UCD_ChestHealth Cancer drugs that cost $2M to develop-used in small pops will costLOTSof money #lcsm |
| Deep Ramachandran MD @LungSleepDeep “@johnpharmd: @ProfMohlere I hear you, totally agree +1. #lcsm |
| Kathleen D. Hoffman @drkdhoffman MT @rv_rikard MT @findlungcancer NCI has program but it isn't rural enuff <= that's def a #health and #socialscience topic!! #hchlitss #lcsm |
| Melissa Mohlere @ProfMohlere @louisianagirl91 @JFreemanDaily Yes, & Dad had good ins. from his employer, which provided negotiated discounts w/providers. #LCSM Lucky |
| Andrea Borondy Kitts @findlungcancer #lcsm lets be innovative in how FDA approves genetically targeted drugs for small populations |
| Db @DbPharmxt @JackWestMD @coffeemommy answer is complicated researxh expensive but pricing boils down to what market can absorb #lcsm Nasdaq/Dow | |
| Robert C. Doebele, MD, PhD @rdoebele Smarter and smaller trials could bring down cost #lcsm |
 | Andrew Lopez, RN @nursefriendly Hello Everyone, Andrew Lopez, RN from #NewJersey. #Nurse #Healthcare #Tweetchat #Enthusiast :) #Nurseup #lcsm |
| Melissa Mohlere @ProfMohlere @louisianagirl91 @JFreemanDaily Those who pay cost out of pocket are hit twice as hard. #LCSM |
| Faces of Lung Cancer @LungCancerFaces RT @rdoebele: Smarter and smaller trials could bring down cost #lcsm |
| Laronica Conway @louisianagirl91 @JackWestMD OH Jack, nail on the head. mom had one social wkr who could only see her once a month, maybe. #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @rdoebele: Smarter and smaller trials could bring down cost #lcsm |
| Kathleen D. Hoffman @drkdhoffman Welcome @nursefriendly great to see you #lcsm |
| Molly Lindquist @LindquistPDX RT @rdoebele: Smarter and smaller trials could bring down cost #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy We are reactionary to raise funds b/c it's life/death. Real push should be to lower costs. Just no time for patients to wait for that. #lcsm |
| R.V. Rikard @rv_rikard RT @drkdhoffman Welcome @nursefriendly great to see you <== I second that!! #hchlitss #lcsm |
| Laronica Conway @louisianagirl91 @nursefriendly Hey there! just started following you! good stuff btw! #lcsm |
| Laronica Conway @louisianagirl91 RT @coffeemommy: We are reactionary to raise funds b/c it's life/death. Real push should be to lower costs. Just no time for patients to wa |
| Deep Ramachandran MD @LungSleepDeep @TimAllenMDJD @JackWestMD @WearPearlsforLC social worker, so right. #lcsm |
| Melissa Mohlere @ProfMohlere Just when I think, "This topic isn't big enough to cover in 30-60 mins," my friends in #lcsm bring up issues I had never imagined. #props |
| Dr Scott Finkelstein @ConsanoScott THIS! RT @rdoebele: Smarter and smaller trials could bring down cost #lcsm |
| WearPearl4LungCancer @WearPearlsforLC @louisianagirl91 @JackWestMD feeling more & more fortunate for our small cancer center SW. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Some populations (like ROS1) are TOO small to meet required number of patients. #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Agree with smarter. Smaller tho? So few as it is. Compared to pts. RT @rdoebele: Smarter and smaller trials could bring down cost #lcsm |
 | Reagan Hudgens @reags @LungCancerFaces @rdoebele true. Here is the article for reference. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Welcome chris, i'm FCCP > RT @ChrisCarrollMD: I'm Chris, SM editor for CHEST & @accpchest. Interested in prevention & #nostigma. #LCSM |
| Laronica Conway @louisianagirl91 Ok...so who are our LOBBIST friends in the drug industry for lung cancer??? #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy RT @ProfMohlere: Just when I think, "This topic isn't big enough to cover in 30-60 mins," my friends in #lcsm bring up issues I had never i… |
| Andrew Lopez, RN @nursefriendly RT @ChrisCarrollMD: #lcsm chat at 8pm EST, #GhostShark at 9pm EST. Gonna be a busy night on twitter! MT “@LungCancerFaces: #LCSM chat begin… |
| Melissa Mohlere @ProfMohlere RT @findlungcancer: #lcsm lets be innovative in how FDA approves genetically targeted drugs for small populations |
| Dr. David Tom Cooke @DavidCookeMD This forum? >> RT @louisianagirl91: Ok...so who are our LOBBIST friends in the drug industry for lung cancer??? #lcsm |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: Welcome to #lungcancer tweetchat! We've got a lot of timely stuff to cover in 1 hr. Pls introduce yourself, & just add #lcs |
| Matthew Katz, MD 🟦 @subatomicdoc @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @johnpharmd: T1: In order for trials to get smarter, our knowledge of cancer cell growth pathways has to increase. Genomics is making it |
| Andrea Borondy Kitts @findlungcancer #lcsm @JFreemanDaily many more targeted drugs will be in that category as genome testing takes off. Drugs are so targeted less testing |
 | CHEST @accpchest RT @UCD_ChestHealth: Welcome chris, i'm FCCP > RT @ChrisCarrollMD: I'm Chris, SM editor for CHEST & @accpchest. Interested in prevention & |
| Dr. David Tom Cooke @DavidCookeMD RT @JackWestMD: T2: Do cancer drugs need to prove "value"? Are cancer drugs priced fairly? Should we ever say cancer drugs aren't worth cos |
| Kathleen D. Hoffman @drkdhoffman This topic is huge & applies to all cancers...it's abt the haves & have nots #hchlitss #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Innovation is awesome! RT @findlungcancer: #lcsm lets be innovative in how FDA approves genetically targeted drugs for small populations |
| R.V. Rikard @rv_rikard RT @drkdhoffman This topic is huge & applies to all cancers...it's abt the haves & have nots #hchlitss #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
| Kathleen D. Hoffman @drkdhoffman RT @subatomicdoc @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/mPbPMZZ0En #lcsm #hchlitss |
| Andrew Lopez, RN @nursefriendly @LungCancerFaces Thursday #Healthcare Tweetchats 1/2 (ET) All day #BrainTumorThursday, 3p #Wenurses (UK) 8p #LCSM Lung Cancer - #nurseup |
| WearPearl4LungCancer @WearPearlsforLC RT @johnpharmd: T1: In order for trials to get smarter, our knowledge of cancer cell growth pathways has to increase. Genomics is making it |
| Dr. David Tom Cooke @DavidCookeMD RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
| KatyNenninger Lawson @ukpearlgirl @louisianagirl91. Thank you for support! :) #lcsm |
| Deep Ramachandran MD @LungSleepDeep @louisianagirl91: @JFreemanDaily I don't think it's so easy to generalize. I know good rural docs and bad academics. #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Absolutely! RT @drkdhoffman: This topic is huge & applies to all cancers...it's abt the haves & have nots #hchlitss #lcsm #bcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Already seeing Canada and UK deciding some drugs are too expensive: Alimta maintenance (CAN) and crizotinib (UK). #lcsm |
| Andrew Lopez, RN @nursefriendly @LungCancerFaces #lcsm Lotsa people out here :) |
| Lung Cancer Leaders @LCleaders RT @JackWestMD: T2: Do cancer drugs need to prove "value"? Are cancer drugs priced fairly? Should we ever say cancer drugs aren't worth cos |
| Dr Scott Finkelstein @ConsanoScott RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
| Faces of Lung Cancer @LungCancerFaces Hi Andrew! RT @nursefriendly: @LungCancerFaces #lcsm Lotsa people out here :) #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm pretty soon folks will elect chemo even with targeted treatments available just due to cost -- tragic |
| Laronica Conway @louisianagirl91 @drkdhoffman yes, but difference is, NO ONE wants to focus on LUNG CANCER. It's still TABOO!!! gotta change that. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @JackWestMD T2. Some overseas pharma companies are making drugs 50-70% effective for 20% the costs. #lcsm |
 | Showtime @withspin RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
| Melissa Mohlere @ProfMohlere @JackWestMD I'm biased. I'd give every penny I have, or ever WILL have, for more time w/ Dad. His life has no cost to me. #LCSM #stepsaside |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JackWestMD #lcsm Sometimes it's not about "wouldn't"; it's about "couldn't afford to" |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: Nice to see such a diverse crowd of committed folks. Welcome to any lurkers, as well: don't be afraid to chime in: we're f |
| Melissa Mohlere @ProfMohlere RT @louisianagirl91: @drkdhoffman yes, but difference is, NO ONE wants to focus on LUNG CANCER. It's still TABOO!!! gotta change that. #lcsm |
 | Kristi Bruno @kristibruno RT @LungCancerFaces: #LCSM chat happening right now. Join the conversation. #lcsm |
| Faces of Lung Cancer @LungCancerFaces +1 RT @louisianagirl91: @drkdhoffman yes, but difference is, NO ONE wants to focus on LUNG CANCER. It's still TABOO!!! #lcsm #lcsm |
| Laronica Conway @louisianagirl91 @Caduceusblogger Oh yea. They totally mean well...just don't have resources or time or exposure. #lcsm |
| Dr Scott Finkelstein @ConsanoScott T2: Hard to tell a cancer pt that a new drug isn't worth it. But many times it really isn't. #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm maybe as we find common mutations across cancer types same drug will treat many cancer and gain some economy of scale that way |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @rv_rikard: RT @drkdhoffman This topic is huge & applies to all cancers...it's abt the haves & have nots #hchlitss #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @rv_rikard: RT @drkdhoffman Welcome @nursefriendly great to see you <== I second that!! #hchlitss #lcsm |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: Evidence says low dose CT far superior, so "no". @JackWestMDWe need early detection. Is an annual chest X-ray a good start? |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy RT @findlungcancer: #lcsm maybe as we find common mutations across cancer types same drug will treat many cancer and gain some economy of s… |
| R.V. Rikard @rv_rikard @Caduceusblogger <= interesting! I know both opposite good rural docs and Good rural academics! @louisianagirl91 @JFreemanDaily #lcsm |
| Showtime @withspin RT @subatomicdoc: @JackWestMD T2. Some overseas pharma companies are making drugs 50-70% effective for 20% the costs. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: UK and Canada have to make tough choices about how to spend limited $$ to benefit the most people. USA will face this someday. #lcsm |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: We're going to get started with the topics today in just a minute. Theme is dealing with costs of care -- a timely challeng |
 | That Tik Tok nurse @SisterMick RT @JackWestMD: T2: Do cancer drugs need to prove "value"? Are cancer drugs priced fairly? Should we ever say cancer drugs aren't worth cos |
| Faces of Lung Cancer @LungCancerFaces NO! wow.RT @subatomicdoc: @JackWestMD T2. Some overseas pharma companies are making drugs 50-70% effective for 20% the costs. #lcsm #lcsm |
| Kathleen D. Hoffman @drkdhoffman @louisianagirl91 I know #lungcancer has so much #stigma attached! so WRONG=> When comes to METS its same all around! #metavivor #lcsm |
| Db @DbPharmxt “@JackWestMD: T2"? Are cancer drugs priced fairly? Should we ever say cancer drugs notworth cost? #lcsm Quantity of life vs Quality of life | |
| Faces of Lung Cancer @LungCancerFaces RT @ConsanoScott: T2: Hard to tell a cancer pt that a new drug isn't worth it. But many times it really isn't. #lcsm |
| WearPearl4LungCancer @WearPearlsforLC RT @LungCancerFaces: NO! wow.RT @subatomicdoc: @JackWestMD T2. Some overseas pharma companies are making drugs 50-70% effective for 20% th |
| Dr Scott Finkelstein @ConsanoScott RT @JFreemanDaily: T2: UK and Canada have to make tough choices about how to spend limited $$ to benefit the most people. USA will face t |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: Let's get started! T1: Costs of cancer Rx are rising. How is this affecting pts? Do some miss Rx options due to high copays |
| Laronica Conway @louisianagirl91 @drkdhoffman and the key is convincing other folks of that. #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm both UK and Canada often refuse 2nd line treatment once first line fails -- I agree @jfreeman daily we are next |
| Dr. David Tom Cooke @DavidCookeMD T2. Shoud there be guidelines on expected outcomes for a drug to be considered "worth it". Or a non drug therapy or device? #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @hydrogenblimp @JackWestMD It's not about worth. Can't put price on life. BUT the cost can be absolutely unaffordable for some. #lcsm |
| Gilles Frydman @gfry @JackWestMD It's so difficult to decide what is worth. Having choices made by equations only works for populations, not individuals #LCSM |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @findlungcancer: #lcsm both UK and Canada often refuse 2nd line treatment once first line fails -- I agree @jfreeman daily we are next |
| Kathleen D. Hoffman @drkdhoffman Pple w/Metastases are stigmatized...that's what #metavivor is working to inc funding 4 all pple w/ metastases #hchlitss #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @gfry: @JackWestMD It's so difficult to decide what is worth. Having choices made by equations only works for populations, not individua |
| Robert C. Doebele, MD, PhD @rdoebele Yes these drugs work for patients. @JackWestMD #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm there are guidelines published with clinical trial, we may need to change the guidelines |
| Dr Scott Finkelstein @ConsanoScott @JFreemanDaily The US needs to address this soon, because rising costs, aging population, and more expensive tx are not sustainable. #lcsm |
| Deep Ramachandran MD @LungSleepDeep @JackWestMD T2 does value mean efficacy or low cost or both? #LCSM |
| Melissa Mohlere @ProfMohlere @findlungcancer @JFreeman *gasp!* I had no idea. #lcsm |
 | Robyn Stoller @CancerHawk RT @ConsanoMolly: @JackWestMD I remember seeing my first itemized bill for chemo and being SHOCKED! I was lucky to have insurance that cove |
| WearPearl4LungCancer @WearPearlsforLC RT @gfry: @JackWestMD It's so difficult to decide what is worth. Having choices made by equations only works for populations, not individua |
| Faces of Lung Cancer @LungCancerFaces Most w lung cancer have mets at dx MT @drkdhoffman: Pple w/Metastases are stigmatized...#hchlitss #lcsm #lcsm |
| Laronica Conway @louisianagirl91 Ok ok. but here's the deal...drug cos KNOW lung cancer pts are desperate. HOW do we avoid being taken advantage of??? #lcsm |
 | Anne Marie Mercurio @chemobrainfog RT @drkdhoffman: @louisianagirl91 I know #lungcancer has so much #stigma attached! so WRONG=> When comes to METS its same all around! #lcsm |
| larrylm53 @larrylm53 Carpenters union folded we have no insurance? #lcsm |
| WearPearl4LungCancer @WearPearlsforLC “@JackWestMD: @subatomicdoc sometimes same companies can sell outside of US - same drug, far less - subsidized by huge profits in US #lcsm” |
| Robyn Stoller @CancerHawk RT @ConsanoMolly: crowdsurfer.co is a good start MT @UCD_ChestHealth Is there a web list? RT @consanomolly crowdfunding sites to support me |
| Dr. David Tom Cooke @DavidCookeMD Value means benefit to patient, especially Pt's point of view > RT @Caduceusblogger: T2 does value mean efficacy or low cost or both? #LCSM |
| Dr Scott Finkelstein @ConsanoScott No easy answer MT@johnpharmd: T2: How do we fairly balance value to individual families with that of the society as a whole? #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm value means increased survival and/or less adverse effects |
| Andrew Lopez, RN @nursefriendly @JackWestMD T1 Medical Bills Are the Biggest Cause of US Bankruptcies: Study http://t.co/sAN306jZCc #LCSM |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy RT @UCD_ChestHealth: Value means benefit to patient, especially Pt's point of view > RT @Caduceusblogger: T2 does value mean efficacy or lo |
| Kathleen D. Hoffman @drkdhoffman Ovarian cancer is also a cancr that is caught late w/ metastases=> again not getting attention #hchlitss #lcsm |
| Faces of Lung Cancer @LungCancerFaces Bingo RT @findlungcancer: #lcsm value means increased survival and/or less adverse effects #lcsm |
| Janet Freeman-Daily @JFreemanDaily Some drugs are cheaper outside the US because "knock-off" drugs with same formula are made w/o licensing. #lcsm |
| WearPearl4LungCancer @WearPearlsforLC RT @LungCancerFaces: Bingo RT @findlungcancer: #lcsm value means increased survival and/or less adverse effects #lcsm |
| ☔️ earthseed☔️ @earthseed RT @LungCancerFaces: Most w lung cancer have mets at dx MT @drkdhoffman: Pple w/Metastases are stigmatized...#hchlitss #lcsm #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
| Laronica Conway @louisianagirl91 RT @JackWestMD: How very sad… RT @coffeemommy: @JackWestMD #lcsm Sometimes it's not about "wouldn't"; it's about "couldn't afford to" #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Ditto >> RT @findlungcancer: #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
| Laronica Conway @louisianagirl91 @JFreemanDaily sooooooo very scary!! #lcsm |
| Andrew Lopez, RN @nursefriendly T1 For the uninsured patient, can see many declining treatment if out of pocket costs are out of reach.#LCSM |
| Anne Marie Mercurio @chemobrainfog Looks like I'm missing an awesome #lcsm chat tonight. |
| Melissa Mohlere @ProfMohlere @drkdhoffman YES - i have a friend who is a survivor of Ovarian cancer. Very active in awareness. Needs attention #lcsm |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @JackWestMD Not sad. Absolutely infuritating. #lcsm #bcsm |
| WearPearl4LungCancer @WearPearlsforLC RT @UCD_ChestHealth: Ditto >> RT @findlungcancer: #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
| Bob Radinsky @bobradinsky Wife is pulse dosing 7200 mg Tarceva per month. Insurance only pays for 4500 mg (30 pills). #lcsm |
| Melissa Mohlere @ProfMohlere RT @findlungcancer: #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @nursefriendly: T1 For the uninsured patient, can see many declining treatment if out of pocket costs are out of reach.#LCSM |
| Andrew Lopez, RN @nursefriendly RT @JFreemanDaily: T1: Some patients (especially those on Medicare w/o supplement) say the sometimes skip scans because of copays. #lcsm |
| WearPearl4LungCancer @WearPearlsforLC RT @findlungcancer: #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
| J.Antre @j_antre RT @UCD_ChestHealth: Ditto >> RT @findlungcancer: #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
| Andrea Borondy Kitts @findlungcancer #lcsm my husband was lucky -- his insurance (Medicare advantage plan) covered most treatment others don't treat it's so sad (and unfair) |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @chemobrainfog #lcsm Uh! If that's you typing... you're not missing *grin* |
| Laronica Conway @louisianagirl91 RT @findlungcancer: #lcsm need to identify early where cost of treatment is less -- lets start screening !!! |
 | Larry Lynam @scopedbylarry RT @JFreemanDaily: T1: Some patients (especially those on Medicare w/o supplement) say the sometimes skip scans because of copays. #lcsm |
| Andrew Lopez, RN @nursefriendly T1 @JFreemanDaily Can be a much bigger challenge if you have no insurance to start with :( #LCSM |
| Kathleen D. Hoffman @drkdhoffman For MD's What would cause you to screen early for lung cancer? How would that work? #hchlitss #lcsm |
| Dr Scott Finkelstein @ConsanoScott RT @JackWestMD: @gfry Yes, but health care systems need to make policies based on macroeconomics & populations |
| Andrea Borondy Kitts @findlungcancer #lcsm http://t.co/yUCDb0dcca here are the guidelines |
| Janet Freeman-Daily @JFreemanDaily If decisions made by insurance by $$, should be same policy for ALL types of cancer, e.g., two lines of therapy for metastatic cancer #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @LungCancerFaces @JackWestMD Actually my estimate was off for the drug I had in mind, Rituximab. 70% efficacy at 50% cost. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @findlungcancer: #lcsm http://t.co/yUCDb0dcca here are the guidelines |
| Faces of Lung Cancer @LungCancerFaces RT @findlungcancer: #lcsm http://t.co/yUCDb0dcca here are the guidelines |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: If decisions made by insurance by $$, should be same policy for ALL types of cancer, e.g., two lines of therapy for meta |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: Pple w/Metastases are stigmatized...that's what #metavivor is working to inc funding 4 all pple w/ metastases #hchlitss #l |
| Gilles Frydman @gfry @JackWestMD @Caduceusblogger Look at this trial http://t.co/Wa1WAeSMFj Benefit here is QOL not survival. Many docs are switching drugs #lcsm |
| Andrew Lopez, RN @nursefriendly T1 For a very long time, the #elderly have decided between #prescription #drugs & #FoodOnTheTable :( #LCSM |
| Kathleen D. Hoffman @drkdhoffman RT @nursefriendly T1 For a very long time, the #elderly have decided between #prescription #drugs & #FoodOnTheTable :( #LCSM #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: Ovarian cancer is also a cancr that is caught late w/ metastases=> again not getting attention #hchlitss #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: For MD's What would cause you to screen early for lung cancer? How would that work? #hchlitss #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @LungCancerFaces @JackWestMD Developing countries can't afford cost if we can't. So a reasonable alternative in biosimilars #lcsm |
| Laronica Conway @louisianagirl91 @findlungcancer I know. Mom's policy "paid" her for chemo treatments & trips to Houston. We SAVED money I was sad, guilty & happy. :-( #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @nursefriendly: T1 For a very long time, the #elderly have decided between #prescription #drugs & #FoodOnTheTable :( #LCSM |
| Andrea Borondy Kitts @findlungcancer #lcsm large trial NLST identified 20% reduction in mortality with LDCT scans for high risk pop of current and former smokers |
| WearPearl4LungCancer @WearPearlsforLC RT @gfry: @JackWestMD @Caduceusblogger Look at this trial http://t.co/Wa1WAeSMFj Benefit here is QOL not survival. Many docs are switching |
| WearPearl4LungCancer @WearPearlsforLC So much great information on tonight's twitter chat #lcsm glad I made it |
| J.Antre @j_antre RT @JackWestMD: Follow NLST guidelines, annual CT for high risk pts. RT @drkdhoffman: What would cause you to screen early for lung cancer? |
| Faces of Lung Cancer @LungCancerFaces RT @WearPearlsforLC: So much great information on tonight's twitter chat #lcsm glad I made it |
| Dr. David Tom Cooke @DavidCookeMD http://t.co/cQ0hMGLfA8 > RT @drkdhoffman:For MD's What would cause you to screen early for lung cancer? How would that work? #hchlitss #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm http://t.co/yUCDb0dcca 55 to 79 yr, 30+ pack yr smoking history, quit w/I last 15 years |
| Faces of Lung Cancer @LungCancerFaces RT @UCD_ChestHealth: http://t.co/cQ0hMGLfA8 > RT @drkdhoffman:For MD's What would cause you to screen early for lung cancer? How would that |
| Dr. David Tom Cooke @DavidCookeMD RT @WearPearlsforLC: So much great information on tonight's twitter chat #lcsm glad I made it |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @UCD_ChestHealth: http://t.co/cQ0hMGLfA8 > RT @drkdhoffman:For MD's What would cause you to screen early for lung cancer? How would that |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Amazing group here and awesome #lcsm chat once again - now need to drop early to go to real life breast cancer support group! |
| Dr Scott Finkelstein @ConsanoScott Gotta run. Sorry to miss the rest of this great #lcsm chat. |
| J.Antre @j_antre RT @UCD_ChestHealth: http://t.co/cQ0hMGLfA8 > RT @drkdhoffman:For MD's What would cause you to screen early for lung cancer? How would that |
| Janet Freeman-Daily @JFreemanDaily Chemobrain here would like occasional repeat of topic -- chat moves too fast to keep it in mind! #lcsm |
| Kathleen D. Hoffman @drkdhoffman High risk patients? =>yet we are talking abt (ex. @lungcancerface mom) someone w/o "risk factor" What then? #hchlitss #lcsm |
| Deep Ramachandran MD @LungSleepDeep T2: "value" should we pay 100k for 2 more weeks of life? These r questions other nations are tackling but not US. #lcsm |
| Laronica Conway @louisianagirl91 @ConsanoScott AWWWWWWWW.... #lcsm |
 | Annette McKinnon @anetto RT @drkdhoffman: This topic is huge & applies to all cancers...it's abt the haves & have nots #hchlitss #lcsm |
| Andrew Lopez, RN @nursefriendly RT @drkdhoffman: For MD's What would cause you to screen early for lung cancer? How would that work? #hchlitss #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @Caduceusblogger: T2: "value" should we pay 100k for 2 more weeks of life? These r questions other nations are tackling but not US. #lc |
| Andrew Lopez, RN @nursefriendly RT @findlungcancer: #lcsm my husband was lucky -- his insurance (Medicare advantage plan) covered most treatment others don't treat it's so… |
| Deep Ramachandran MD @LungSleepDeep “@JackWestMD: @gfry need to make policies based on macroeconomics & populations… just can't say yes to everything 4 all #lcsm Agree! |
| Kathleen D. Hoffman @drkdhoffman Great to see you @anetto #hchlitss #lcsm |
| R.V. Rikard @rv_rikard RT @anetto RT @drkdhoffman: This topic is huge & applies to all cancers...it's abt the haves & have nots #hchlitss #lcsm |
| WearPearl4LungCancer @WearPearlsforLC @findlungcancer I have a hard time with the guidelines. My husband died at 41. Met all other criteria. #lcsm I think it needs to be expanded |
| Laronica Conway @louisianagirl91 @coffeemommy Lots of love to go around! We're always here! #lcsm |
| Janet Freeman-Daily @JFreemanDaily I admit to occasional survivor's guilt. After 2+ years, I'm approaching $1 mil in billed treatment costs. #lcsm |
| R.V. Rikard @rv_rikard RT @drkdhoffman Great to see you @anetto #hchlitss #lcsm |
| Andrew Lopez, RN @nursefriendly @findlungcancer Agree, the treatment options you have available should not be limited to what your #healthinsurance will cover :( #lcsm |
| Robyn Stoller @CancerHawk RT @JackWestMD: T2: Do cancer drugs need to prove "value"? Are cancer drugs priced fairly? Should we ever say cancer drugs aren't worth cos |
| WearPearl4LungCancer @WearPearlsforLC @findlungcancer and needs to look at things other than smoking - he had high radiation exposure as well at work. #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @JackWestMD: Follow NLST guidelines, annual CT for high risk pts. RT @drkdhoffman: What would cause you to screen early for lung cancer? |
| Robyn Stoller @CancerHawk RT @ProfMohlere: @JackWestMD I'm biased. I'd give every penny I have, or ever WILL have, for more time w/ Dad. His life has no cost to me. |
| Faces of Lung Cancer @LungCancerFaces Worth it RT @JFreemanDaily:admit to occasional survivor's guilt. After 2+ years, approaching $1 mil in billed treatment costs. #lcsm #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD But it must @Caduceusblogger: T2: "value" should we pay 100k for 2 more weeks of life?These r questions others are tackling but not US #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @LungCancerFaces: Worth it RT @JFreemanDaily:admit to occasional survivor's guilt. After 2+ years, approaching $1 mil in billed treatme |
| Kathleen D. Hoffman @drkdhoffman MT @WearPearlsforLC @findlungcancer I have a hard time w/ guidelines. My husband died at 41. Met all othr criteria. needs to b expandd #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: High risk patients? =>yet we are talking abt (ex. @lungcancerface mom) someone w/o "risk factor" What then? #hchlitss #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm when only consider macro economics can lose our humanity. needs to be a delicate balance, breakthrus don't consider cost |
| Andrew Lopez, RN @nursefriendly @findlungcancer T1 If it is an accepted treatment used commonly, all insurance companies should cover it. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @louisianagirl91: @coffeemommy Lots of love to go around! We're always here! #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR “@drkdhoffman: Great to see you @anetto #hchlitss #lcsm” hi Annette;) |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: @gfry Yes, but health care systems need to make policies based on macroeconomics & populations |
| Laronica Conway @louisianagirl91 @WearPearlsforLC Right! mom worked in area with cotton fields & pesticides...for 38 years. AND a paper mill. Seriously?! #lcsm |
| Kathleen D. Hoffman @drkdhoffman Did I say hi to you @natricer? Hi! #hchlitss #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm @nursefriendly once recommendation finalized insurance companies will cover w/o co-pay |
| Andrew Lopez, RN @nursefriendly @JackWestMD @gfry Therein lies the "Rub" at some point, rationing has to happen. Yet, no one wants to hear that when discussing costs #lcsm |
 | Christopher Steer @drcbsteer RT @Caduceusblogger: T2: "value" should we pay 100k for 2 more weeks of life? These r questions other nations are tackling but not US. #lc |
 | just me @peoplesdad RT @ProfMohlere: @JackWestMD I'm biased. I'd give every penny I have, or ever WILL have, for more time w/ Dad. His life has no cost to me. |
| Gilles Frydman @gfry @JFreemanDaily Good side of it is that billed costs have nothing to do with what ends up being paid. Only fraction w/ great variation #lcsm |
| WearPearl4LungCancer @WearPearlsforLC @louisianagirl91 goes back to #nostigma I think the guidelines for screening in someway aren't helping #lcsm |
| Laronica Conway @louisianagirl91 @nursefriendly yes! so my question is, how do we convince ins cos to do that? #lcsm |
| Kathleen D. Hoffman @drkdhoffman MT @louisianagirl91 @WearPearlsforLC Right! mom worked in area w/ cotton fields & pesticides...438 years. & a paper mill. Seriously?! #lcsm |
| Robyn Stoller @CancerHawk RT @chemobrainfog: RT @drkdhoffman: @louisianagirl91 I know #lungcancer has so much #stigma attached! so WRONG=> When comes to METS its sam |
 | Memorial Sloan Kettering Cancer Center @MSKCancerCenter RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
 | Michael D. Newton @mnewtonPharmD T2 - cancer drugs do need to prove value to a point, esp if less expensive an comparable options exist. For example: Zaltrap in colon #LCSM |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @drkdhoffman: Did I say hi to you @natricer? Hi! #hchlitss #lcsm |
| Andrew Lopez, RN @nursefriendly @chemobrainfog Came in late myself, do like what I'm seeing :) #lcsm |
| Molly Lindquist @LindquistPDX @findlungcancer It's also easier to think about when it's not you or your family in terms of "value." #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @mnewtonPharmD: T2 - cancer drugs do need to prove value to a point, esp if less expensive an comparable options exist. For example: Zal |
| Laronica Conway @louisianagirl91 @WearPearlsforLC yeah...something is missing...drives me crazy. #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm once USPSTF recommendations finalized insurance companies will cover LDCT scans |
| Deep Ramachandran MD @LungSleepDeep T2: unfortunately cost debates are politicized: hard to have a sane conversation. (Except here of course) #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @nursefriendly: @JackWestMD @gfry Therein lies the "Rub" at some point, rationing has to happen. Yet, no one wants to hear that when di |
| Janet Freeman-Daily @JFreemanDaily Re billed costs vs. insur pmts: I paid out of pocket about $7500 for a procedure. When Ins paid, they were billed of $40K. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @Caduceusblogger: T2: unfortunately cost debates are politicized: hard to have a sane conversation. (Except here of course) #lcsm |
| Gilles Frydman @gfry @nursefriendly @JackWestMD Sure about rationing. Let's make sure we don't apply rules made 4 blockbuster drugs to molecular medicine #lcsm |
| Laronica Conway @louisianagirl91 @Caduceusblogger BINGO!!! *sigh* #lcsm |
| Melissa Mohlere @ProfMohlere RT @ConsanoMolly: @findlungcancer It's also easier to think about when it's not you or your family in terms of "value." #lcsm |
| Laronica Conway @louisianagirl91 RT @Caduceusblogger: T2: unfortunately cost debates are politicized: hard to have a sane conversation. (Except here of course) #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR @drkdhoffman thanks yes! U dud! Struggling w/ slow Internet to keep up #hchlitss tonite - important topic #lcsm |
| Andrew Lopez, RN @nursefriendly RT @Caduceusblogger: T2: "value" should we pay 100k for 2 more weeks of life? These r questions other nations are tackling but not US. #lc |
| Dr. David Tom Cooke @DavidCookeMD Only if CMS covers. Role for advocates >>RT @findlungcancer: #lcsm once USPSTF recommendations finalized insurance companies will cover LDCT |
| Dr. David Tom Cooke @DavidCookeMD RT @JackWestMD: T3: Now w/new tests/markers emerging, can we expect insurers/society to bear cost of novel Rx based on possible but unprove |
| Andrea Borondy Kitts @findlungcancer #lcsm @consanomolly agree -- I never think of value. I always think of going for the cure for all that's how we find breakthrus & progress |
 | Rocky Sweeney @Rocky4151 Awesome. RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/xNKDmFUtHq #lcsm |
| WearPearl4LungCancer @WearPearlsforLC @LungCancerFaces @JackWestMD gotta go! Duty calls!! Glad to have been part of #lcsm!! Xoxo Carla |
| Andrea Borondy Kitts @findlungcancer RT @TeamMDrs: Value has to be defined by the patient and their needs and beliefs. #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Agree. #PatientCentered Approach RT @TeamMDrs: Value has to be defined by the patient and their needs and beliefs. #lcsm |
| Laronica Conway @louisianagirl91 @WearPearlsforLC Ok...see you later! #lcsm |
| Faces of Lung Cancer @LungCancerFaces See you, sweetie RT @WearPearlsforLC: @LungCancerFaces @JackWestMD gotta go! Duty calls!! Glad to have been part of #lcsm!! Xox Carla #lcsm |
| Michael D. Newton @mnewtonPharmD T2 - Afatinib may be another example. But its mechanism is a little different so may eventually prove better in certain scenarios. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: ROS1ers may have trouble getting ins to pay for Xalkori because population too small to seek FDA approval under current rules #lcsm |
| Andrew Lopez, RN @nursefriendly RT @JackWestMD: T3: Now w/new tests/markers emerging, can we expect insurers/society to bear cost of novel Rx based on possible but unprove |
| Matthew Katz, MD 🟦 @subatomicdoc @JackWestMD @LungCancerFaces Yes, I agree. That is unsustainable too, research funding is down. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: T3: ROS1ers may have trouble getting ins to pay for Xalkori because population too small to seek FDA approval under cur |
| Andrea Borondy Kitts @findlungcancer #lcsm @jfreemandaily need to change guidelines for small patient population targeted drugs especially ones with genome based targeting |
| Andrew Lopez, RN @nursefriendly @JackWestMD T3 Wearing the #InsuranceAgent hat, you can be sure, they will want evidence, endorsements before they pay a dime. #lcsm |
| Laronica Conway @louisianagirl91 T3 folks don't support what they don't understand. #lcsm |
| R.V. Rikard @rv_rikard RT @anetto: But it sounds as though metastasized cancer is poorly funded (Sorry if you covered that) #hchlitss #lcsm |
| Kathleen D. Hoffman @drkdhoffman MT @JFreemanDaily T3: ROS1ers may have trouble gettng ins to pay 4 Xalkori cause pop too small 2 seek FDA approval undr current rules #lcsm |
| ☔️ earthseed☔️ @earthseed Thanks to all in this chat. I work in HC, mom and aunt died of LC. It's personal to me #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm@teammdrs I disagree we can be evidence based using mouse models and small population human trials |
| Deep Ramachandran MD @LungSleepDeep “@UCD_ChestHealth: http://t.co/43DHjVCytw > RT @drkdhoffman#hchlitss #lcsm” |
| Dr. David Tom Cooke @DavidCookeMD RT @earthseed: Thanks to all in this chat. I work in HC, mom and aunt died of LC. It's personal to me #lcsm |
| Kathleen D. Hoffman @drkdhoffman MT @mnewtonPharmD T2 - Afatinib may b anothr expl. But its mechanism is a little different so may prove better in certain scenarios. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @earthseed: Thanks to all in this chat. I work in HC, mom and aunt died of LC. It's personal to me #lcsm |
 | Beth Stroud @iestroud Just lurking tonight #lcsm |
| Andrew Lopez, RN @nursefriendly T3 Especially if you're talking new, #BrandName #Prescription drugs, they will be hesitant to cover if older, cheaper alternatives. #lcsm |
| Anne Marie Mercurio @chemobrainfog Can't be said ENOUGH! RT @anetto: But it sounds as though metastasized cancer is poorly funded (Sorry if you covered that) #hchlitss #lcsm |
| Janet Freeman-Daily @JFreemanDaily T3: So how much evidence is necessary? IS Phase 1 trial with 80% response rate with 1 yr extended PFS enough? #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @findlungcancer: #lcsm@teammdrs I disagree we can be evidence based using mouse models and small population human trials |
| Laronica Conway @louisianagirl91 @iestroud heeeyyyyy Beth! So glad to see you out here! #lcsm |
| Faces of Lung Cancer @LungCancerFaces My favorite lurker. Hi, Beth! RT @iestroud: Just lurking tonight #lcsm #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm my husband died it's personal to me too. all the other folks that died and will die are personal to me too |
| Andrew Lopez, RN @nursefriendly T3 Will be very interesting to see how the #AffordableCareAct affects coverage of new therapies, drugs :) #lcsm |
| Michael D. Newton @mnewtonPharmD T3 - If data exists (i.e. ROS and xalkori) 3rd parties will pay, but may take time. IF they pay for the testing itself. #LCSM |
| Laronica Conway @louisianagirl91 RT @nursefriendly: T3 Especially if you're talking new, #BrandName #Prescription drugs, they will be hesitant to cover if older, cheaper al |
| J.Antre @j_antre RT @chemobrainfog: Can't be said ENOUGH! RT @anetto: But it sounds as though metastasized cancer is poorly funded (Sorry if you covered tha |
| Andrea Borondy Kitts @findlungcancer #lcsm and precision RX should be able to be data base validated with models and small human trials |
| Matthew Katz, MD 🟦 @subatomicdoc RT @nursefriendly: T3 Will be very interesting to see how the #AffordableCareAct affects coverage of new therapies, drugs :) #lcsm |
| Laronica Conway @louisianagirl91 @mnewtonPharmD and that's just it...time. *sigh* #lcsm #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @chemobrainfog: Can't be said ENOUGH! RT @anetto: But it sounds as though metastasized cancer is poorly funded (Sorry if you covered tha |
| Melissa Mohlere @ProfMohlere @findlungcancer hard to put value on that, isn't it? I know how you feel. #lcsm #hugs |
| Dr. David Tom Cooke @DavidCookeMD T3: What about private foundations, philanthropic organizations to pay for small trials with targeted Rxs for smaller populations? #lcsm |
| Andrew Lopez, RN @nursefriendly @louisianagirl91 Contact your legislators, the pharmaceutical companies, and #InsuranceDepartment in your state. #lcsm |
| Db @DbPharmxt Drug companies should subsidize rare indications 4xalkori, collect the data and get a conditional approval" #lcsm costs them pennies 4 drug | |
| Andrea Borondy Kitts @findlungcancer #lcsm@johnpharmd totally agree we need to start disruption now and forge the data based path forward |
| Laronica Conway @louisianagirl91 @nursefriendly I know right? will be following that really close... #lcsm #lcsm |
| Kathleen D. Hoffman @drkdhoffman RT @nursefriendly: T3 Will be very interesting to see how the #AffordableCareAct affects coverage of new therapies, drugs :) #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD @JackWestMD #lcsm Difficult to get biomarker tests paid for,but w/o them don't know who to tx. &w/o payment,no incentive to develop new ones |
| Robert C. Doebele, MD, PhD @rdoebele Precision medicine in lung cancer will help other cancers too #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR @chemobrainfog @anetto AnneMarie hi:) #HCHLITSS #lcsm |
| Laronica Conway @louisianagirl91 RT @nursefriendly: @louisianagirl91 Contact your legislators, the pharmaceutical companies, and #InsuranceDepartment in your state. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Janet Freeman-Daily @JFreemanDaily I found a doctor crowdsourcing trial funding for a targeted drug with small population #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm@nursefriendly it will eventually lead to less choice and rationed care |
| Dr. David Tom Cooke @DavidCookeMD How so? RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Molly Lindquist @LindquistPDX Or perhaps crowdfunding?? :) MT @UCD_ChestHealthT3: pvt foundations, phil orgs pay for small trials w/tgted Rxs for smaller pops? #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: I found a doctor crowdsourcing trial funding for a targeted drug with small population #lcsm |
 | Matthew Herper @matthewherper RT @hydrogenblimp: Drug companies should subsidize rare indications 4xalkori, collect the data and get a conditional approval" #lcsm costs … |
| Andrea Borondy Kitts @findlungcancer RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @JackWestMD: This is a setting -- small pops, new targets -- where crowdfunded trials could be hugely helpful #lcsm |
| Laronica Conway @louisianagirl91 RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Kathleen D. Hoffman @drkdhoffman RT @johnpharmd T3: Precision med Rx's will completely disrupt the current clinical trial regime. <=GOOD! #lcsm #hchlitss |
| Faces of Lung Cancer @LungCancerFaces RT @JackWestMD: This is a setting -- small pops, new targets -- where crowdfunded trials could be hugely helpful #lcsm |
| J.Antre @j_antre RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Deep Ramachandran MD @LungSleepDeep @UCD_ChestHealth @drkdhoffman: no risk factors back to CXR screening. Also Early CDT blood testing has promise. (Google it) #hchlitss #lcsm |
| Molly Lindquist @LindquistPDX RT @JackWestMD: This is a setting -- small pops, new targets -- where crowdfunded trials could be hugely helpful #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD 2d that @TeamMDrs: The potential is in teams of patients and providers working in iterative cycles to define best protocols of care #lcsm |
| Andrew Lopez, RN @nursefriendly @gfry @JackWestMD The overall benefit to the #patient must be worth the costs. With #budgets being strained, costs will be scrutinized #lcsm |
| Michael D. Newton @mnewtonPharmD T3 - a good cost analysis might help too. Giving "standard" chemo in a ROS patient could be more expensive in long run vs xalkori. #LCSM |
| Molly Lindquist @LindquistPDX RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @JackWestMD: I think crowdfunded initial studies in very specific marker-driven populations could identify leads for companies to follow |
| Molly Lindquist @LindquistPDX RT @JackWestMD: I think crowdfunded initial studies in very specific marker-driven populations could identify leads for companies to follow |
| Andrew Lopez, RN @nursefriendly RT @UCD_ChestHealth: T3: What about private foundations, philanthropic organizations to pay for small trials with targeted Rxs for smaller |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD No, must prove @JackWestMD: T3: Now w/new tests/markers emerging, can we expect insurers/society to bear cost, with unproven benefits? #lcsm |
| Laronica Conway @louisianagirl91 It was probably good mom never got a chance to quality for xalkori...what if they wouldn't have paid for it?! arrrrggghh... #lcsm |
| Gilles Frydman @gfry #lcsm Too bad I have to run. This is a great chat. Will be back for sure! |
| Deep Ramachandran MD @LungSleepDeep @nursefriendly @JackWestMD @gfry: oh man whatever else happens never ever ever use the "R"word! #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm is anyone working on new standards for clinical trials for precision meds |
| Db @DbPharmxt How much should drug companies profit for indications like ros? Why can't they share risk in this scenario #lcsm | |
| Laronica Conway @louisianagirl91 @gfry ok cool!! Looking forward to it! #lcsm |
| Reagan Hudgens @reags RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm |
| Andrew Lopez, RN @nursefriendly RT @chemobrainfog: Can't be said ENOUGH! RT @anetto: But it sounds as though metastasized cancer is poorly funded (Sorry if you covered tha |
| Matthew Katz, MD 🟦 @subatomicdoc Bold statement from Paul Sabbatini at @sloan_kettering : http://t.co/fmx1WPneCx #lcsm #smaller #smarter #clinicaltrials |
| Dr. David Tom Cooke @DavidCookeMD Should acad. institutions enter this arena? >RT @JackWestMD: crowdfunded initial studies could identify leads for companies to follow. #lcsm |
| Anne Marie Mercurio @chemobrainfog On FIRE.... there's steam coming out of my laptop #lcsm ... watching and lurking tonight. |
| Chris Carroll MD @ChrisCarrollMD @JackWestMD Crowdfunding research trials great idea, but most institutions not ready for financial complexities! (I've been trying!) #lcsm |
| Laronica Conway @louisianagirl91 @TimAllenMDJD but how long can we expect to way for proven results? Sooo very frustrating. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @chemobrainfog: On FIRE.... there's steam coming out of my laptop #lcsm ... watching and lurking tonight. |
| Kathleen D. Hoffman @drkdhoffman RT @reags RT @rdoebele: Precision medicine in lung cancer will help other cancers too #lcsm <=Very Impt! |
| R.V. Rikard @rv_rikard RT @anetto: @drkdhoffman T3 Read recently that 80% of trials are contracted out to private firms. Really? #hchlitss #lcsm |
| Molly Lindquist @LindquistPDX @ChrisCarrollMD @JackWestMD I think they are coming around! That's what we've seen at http://t.co/Hpzye7pYLB. #lcsm |
| Andrew Lopez, RN @nursefriendly RT @Caduceusblogger: @nursefriendly @JackWestMD @gfry: oh man whatever else happens never ever ever use the "R"word! #lcsm |
| Laronica Conway @louisianagirl91 @UCD_ChestHealth ooooh...good question... #lcsm |
| Kathleen D. Hoffman @drkdhoffman RT @rv_rikard RT @anetto: @drkdhoffman T3 Read recently that 80% of trials are contracted out to private firms.Really? #hchlitss #lcsm |
| Janet Freeman-Daily @JFreemanDaily Drug companies more interested in getting first FDA approval, then prescribe drug off-label for small populations. #lcsm |
| Faces of Lung Cancer @LungCancerFaces THIS MT @ConsanoMolly: @ChrisCarrollMD @JackWestMD That's what we've seen at http://t.co/2wi5Sl6LCd. #lcsm #lcsm |
| Molly Lindquist @LindquistPDX @JFreemanDaily But on the flip side, what already approved drugs might be effective in other populations? Could hold some promise. #lcsm |
| Andrew Lopez, RN @nursefriendly #LCSM - #LungCancer #SocialMedia, Healthcare Social Media Transcript http://t.co/3PCgxCXOhv #nurseup #oncology #bcsm #btsm #cancer |
| Dr. David Tom Cooke @DavidCookeMD RT @ConsanoMolly: @JFreemanDaily But on the flip side, what already approved drugs might be effective in other populations? Could hold some |
 | DaveisAliveAndKickn @AliveAndKicknDD RT @subatomicdoc: @sloan_kettering took a stand against high cost...pushed back successfully. http://t.co/HYc0NU0lnJ #lcsm |
 | Ahava Leibtag @ahaval @JackWestMD I'm dumb. What's the l forum #lcsm? |
| Faces of Lung Cancer @LungCancerFaces Lung cancer social media. Not dumb at all RT @ahaval: @JackWestMD I'm dumb. What's the l forum #lcsm? #lcsm |
| Beth Stroud @iestroud Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @LungCancerFaces: Lung cancer social media. Not dumb at all RT @ahaval: @JackWestMD I'm dumb. What's the l forum #lcsm? #lcsm |
| Michael D. Newton @mnewtonPharmD Yep, I call this the "foot in the door" indication. MT @JFreemanDaily: Drug companies interested in 1st approval, then use off-label. #lcsm |
| Laronica Conway @louisianagirl91 @ahaval not dumb at all! lung cancer social media #lcsm #lcsm |
| DaveisAliveAndKickn @AliveAndKicknDD RT @JackWestMD: T2: Do cancer drugs need to prove "value"? Are cancer drugs priced fairly? Should we ever say cancer drugs aren't worth cos |
| Matthew Katz, MD 🟦 @subatomicdoc @ahaval @JackWestMD lung cancer social media. #lcsm |
| Andrew Lopez, RN @nursefriendly Top Influencers of #LCSM: @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffman @natricer @TimAllenMDJD @RV_Rikard http://t.co/wfJZpP0AaS |
| Laronica Conway @louisianagirl91 RT @JackWestMD: Should be repeated RT @subatomicdoc: @sloan_kettering took stand against high cost...pushed back successfully. http://t.co/ |
| Faces of Lung Cancer @LungCancerFaces RT @nursefriendly: Top Influencers of #LCSM: @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffman @natricer @TimAllenMDJD @RV_Rikard htt… |
| Laronica Conway @louisianagirl91 RT @mnewtonPharmD: Yep, I call this the "foot in the door" indication. MT @JFreemanDaily: Drug companies interested in 1st approval, then u |
| Laronica Conway @louisianagirl91 RT @iestroud: Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Lung Cancer Leaders @LCleaders RT @JackWestMD: Should be repeated RT @subatomicdoc: @sloan_kettering took stand against high cost...pushed back successfully. http://t.co/ |
| Laronica Conway @louisianagirl91 @iestroud yep. one of many, many issues. #lcsm #lcsm |
| Andrew Lopez, RN @nursefriendly @JackWestMD Thank you for hosting :) Will get here on time next week :) #lcsm |
| Deep Ramachandran MD @LungSleepDeep T3: if expensive drug with uncertain benefits may have use for orphan conditions. #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @nursefriendly: Top Influencers of #LCSM: @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffman @natricer @TimAllenMDJD @RV_Rikard htt… |
| Andrea Borondy Kitts @findlungcancer #lcsm how do we work to change how clinical trials are run for small populations |
| Janet Freeman-Daily @JFreemanDaily @ConsanoMolly Example: Xalkori can be prescribed off-label for ROS1, but most insurance won't pay. $10k/mo is too much for most pts. #lcsm |
| Laronica Conway @louisianagirl91 RT @ConsanoMolly: @ChrisCarrollMD @JackWestMD I think they are coming around! That's what we've seen at http://t.co/Hpzye7pYLB. #lcsm |
| Molly Lindquist @LindquistPDX We've seen some quick initial traction with @rdoebele's #crowdfunding campaign: https://t.co/YqFD7kea2g #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Agree;moves slow,but careful research is required @louisianagirl91: @TimAllenMDJD how long must we wait for proven results?Frustrating #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm is there a test case for a targeted drug based on genetic signature we could use |
| Beth Stroud @iestroud RT @JFreemanDaily: @ConsanoMolly Example: Xalkori can be prescribed off-label for ROS1, but most insurance won't pay. $10k/mo is too much |
 | Patrick Leer @patrickleer RT @iestroud: Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Michael D. Newton @mnewtonPharmD Good centers find a way for all. MT @iestroud: Unacceptable folks w more resources get cutting edge tx, but poorer patients can't #lcsm |
| Laronica Conway @louisianagirl91 RT @johnpharmd: T3: Society as a whole, the right judge of value, will have to accept precision medicine Rxs, rather than population med gu |
| Andrea Borondy Kitts @findlungcancer RT @iestroud: Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Melissa Mohlere @ProfMohlere RT @iestroud: Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Andrew Lopez, RN @nursefriendly RT @iestroud: Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @JackWestMD: Should be repeated RT @subatomicdoc: @sloan_kettering took stand against high cost...pushed back successfully. http://t.co/ |
| Molly Lindquist @LindquistPDX @JFreemanDaily Totally agree! We need to think more about "repurposing" and how that is dealt with by insurance. #lcsm |
| Faces of Lung Cancer @LungCancerFaces I'm in! MT @ConsanoMolly: We've seen some quick initial traction w @rdoebele's #crowdfunding campaign: https://t.co/O1b8XdBgn7 #lcsm #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Costs are not just limited to drugs. Devices, surgical modalities, radiographic elemets are also in play. #lcsm |
| Laronica Conway @louisianagirl91 @mnewtonPharmD yes, but...where are the good centers geographically located? #lcsm |
| Molly Lindquist @LindquistPDX RT @iestroud: Unacceptable for folks w more resources to get cutting edge testing & treatment while poorer patients can't #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm maybe way to accru more to clinical trials is to pay for all costs for folks w/o insurance |
| J.Antre @j_antre RT @UCD_ChestHealth: Costs are not just limited to drugs. Devices, surgical modalities, radiographic elemets are also in play. #lcsm |
| Deep Ramachandran MD @LungSleepDeep T3: there's a name for unproven chemo: poison! Really expensive poison! #lcsm |
| J.Antre @j_antre RT @JackWestMD: Just one last thought. Do folks think society is tougher on LC for cost/value than is demanded from other cancers? #lcsm #n… |
| Chris Carroll MD @ChrisCarrollMD RT @Caduceusblogger: T3: there's a name for unproven chemo: poison! Really expensive poison! #lcsm |
| Faces of Lung Cancer @LungCancerFaces Um, YES MT @JackWestMD: Do folks think society is tougher on LC for cost/value than is demanded from other cancers? #lcsm #nostigma #lcsm |
| Michael D. Newton @mnewtonPharmD Access can be a challenge RT @louisianagirl91: @mnewtonPharmD yes, but...where are the good centers geographically located? #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm @jackwastmd yes I think tougher on lung cancer -- no pressure to cure. folks did it to themselves |
| Laronica Conway @louisianagirl91 T3 definitely. Folks still think it's THE PATIENT'S fault for getting lung cancer so why should they get assistance in any way? #LCSM #lcsm |
| Andrew Lopez, RN @nursefriendly Final: Know what your care will cost before you start, do not set yourself up for unsustainable bills, if cheaper way to treat. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc Final thought: "Problems are opportunities in work clothes." -- Henry Kaiser #lcsm |
| Robert C. Doebele, MD, PhD @rdoebele Arguing for diffrrent trial paradigm http://t.co/mWDsvD8orz #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes @TeamMDrs: Guideline are powerful starting pt-applied locally,through patient/provider teams,w/ strong data coll to define outcome #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @rdoebele: Arguing for diffrrent trial paradigm http://t.co/mWDsvD8orz #lcsm |
| Michael D. Newton @mnewtonPharmD Look for academic 340B status ctr RT @louisianagirl91: @mnewtonPharmD yes, but...where are the good centers geographically located? #lcsm |
| Laronica Conway @louisianagirl91 @nursefriendly But that's easier said than done right?? #lcsm |
| Janet Freeman-Daily @JFreemanDaily Is society tougher on #lungcancer? Well ... how many lines of chemo do Stg IV breastcancer patients get vs. Lung cancer patients? #lcsm |
| Andrew Lopez, RN @nursefriendly Final: Do not rely on your #doctor #nurse #insurancecompany to control your #medical costs, know them going in #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm @subatomicdoc agree -- we have opportunity to radiaclly change clinical trial protocol with genetically targeted therapie let's start |
| Molly Lindquist @LindquistPDX @nursefriendly I think that's a challenge with all HC though - we don't necessarily know the true cost. #frustrating #lcsm |
| J.Antre @j_antre RT @LungCancerFaces: Um, YES MT @JackWestMD: Do folks think society is tougher on LC for cost/value than is demanded from other cancers? #l |
| Faces of Lung Cancer @LungCancerFaces RT @JFreemanDaily: Is society tougher on #lungcancer? Well ... how many lines of chemo do Stg IV breastcancer patients get vs. Lung cancer |
| Laronica Conway @louisianagirl91 @mnewtonPharmD I'm saying...folks who can't even drive to those centers don't have options... #lcsm #lcsm |
 | OncLive.com @OncLive MT @JackWestMD Do folks think society is tougher on LC for cost/value than is demanded from other cancers? #lcsm #nostigma |
| Deep Ramachandran MD @LungSleepDeep 1 min left I can still make it into the rankings! @nursefriendly @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffman @NatriceR #lcsm |
| Janet Freeman-Daily @JFreemanDaily Thanks everyone for a great chat! Look forward to next time. #lcsm |
| ☔️ earthseed☔️ @earthseed RT @JFreemanDaily: Is society tougher on #lungcancer? Well ... how many lines of chemo do Stg IV breastcancer patients get vs. Lung cancer |
| Dr. David Tom Cooke @DavidCookeMD Telemedicine > RT @louisianagirl91: @mnewtonPharmD...folks who can't even drive to those centers don't have options... #lcsm #lcsm |
| Melissa Mohlere @ProfMohlere RT @Caduceusblogger: 1 min left I can still make it into the rankings! @nursefriendly @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffm |
| Faces of Lung Cancer @LungCancerFaces @Caduceusblogger Get that man some oreos, stat! He needs energy #lcsm |
| Laronica Conway @louisianagirl91 @nursefriendly And even if you KNOW them, then what? #lcsm #lcsm |
| Andrew Lopez, RN @nursefriendly Final: Ask directly, "You've given me percentages, my chances of this being effective. Will this eat up my remaining assets?" #lcsm |
| Andrea Borondy Kitts @findlungcancer #lcsm please don't forget to comment on LDCT scan http://t.co/yUCDb0dcca |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Biomarker tests too.Many pts tested, v few pos @UCD_ChestHealth: Costs are not just limited to drugs.Devices, surgical modalities, etc #lcsm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @Caduceusblogger: 1 min left I can still make it into the rankings! @nursefriendly @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffm |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @LungCancerFaces: @Caduceusblogger Get that man some oreos, stat! He needs energy #lcsm |
| Dr. David Tom Cooke @DavidCookeMD Thanks everyone! Great chat. Productive as always! #lcsm |
| Chris Carroll MD @ChrisCarrollMD Goodnight #lcsm tweeps! Another great chat! Off the watch #GhostShark, the sequel to #SharkNado! |
| Laronica Conway @louisianagirl91 @nursefriendly now that's a good question...even if you can't afford it, it's always good to know what to expect. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @Caduceusblogger: T3: there's a name for unproven chemo: poison! Really expensive poison! #lcsm |
| J.Antre @j_antre RT @JackWestMD: Time to wrap up. We'll put up transcript of the chat very soon. Earmark time on Thursday, 9/5 for next chat. Thx to all for |
| Laronica Conway @louisianagirl91 @ChrisCarrollMD ok. I won't judge... :-) #lcsm |
| Melissa Mohlere @ProfMohlere @JackWestMD Thanks for moderating! #lcsm |
| Beth Stroud @iestroud Thank you everybody! I keep learning more. #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @findlungcancer: #lcsm please don't forget to comment on LDCT scan http://t.co/yUCDb0dcca |
| Matthew Katz, MD 🟦 @subatomicdoc @TeamMDrs @iestroud Yes, I agree. Some do need more help. But more aggressive treatment and testing doesn't equate to better care. #lcsm |
| Molly Lindquist @LindquistPDX Great chat y'all (when in Nashville...) :) #lcsm |
| Deep Ramachandran MD @LungSleepDeep @JackWestMD Totally harder on lc, less funding than other cancers but deadliest. #lcsm #nostigma |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Must fight this mindset @findlungcancer: #lcsm @jackwastmd yes I think tougher on lung cancer-no pressure to cure;folks did it to themselves |
| Andrea Borondy Kitts @findlungcancer RT @subatomicdoc: @TeamMDrs @iestroud Yes, I agree. Some do need more help. But more aggressive treatment and testing doesn't equate to be |
| J.Antre @j_antre RT @Caduceusblogger: @JackWestMD Totally harder on lc, less funding than other cancers but deadliest. #lcsm #nostigma |
| Andrew Lopez, RN @nursefriendly Final: Hate to say it, but if a therapy will eat up my children's inheritance, with poor chances of working. I might chose #hospice. #lcsm |
| Laronica Conway @louisianagirl91 RT @TimAllenMDJD: Must fight this mindset @findlungcancer: #lcsm @jackwastmd yes I think tougher on lung cancer-no pressure to cure;folks d… |
| Faces of Lung Cancer @LungCancerFaces +1000 RT @Caduceusblogger: @JackWestMD Totally harder on lc, less funding than other cancers but deadliest. #lcsm #nostigma #lcsm |
| Chris Carroll MD @ChrisCarrollMD @louisianagirl91 lol! #nostigma right? #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @UCD_ChestHealth: Thanks everyone! Great chat. Productive as always! #lcsm |
| J.Antre @j_antre RT @TimAllenMDJD: Must fight this mindset @findlungcancer: #lcsm @jackwastmd yes I think tougher on lung cancer-no pressure to cure;folks d… |
| Faces of Lung Cancer @LungCancerFaces RT @TimAllenMDJD: Must fight this mindset @findlungcancer: #lcsm @jackwastmd yes I think tougher on lung cancer-no pressure to cure;folks d… |
| Matthew Katz, MD 🟦 @subatomicdoc @ChrisCarrollMD Good night, enjoy! #lcsm |
| J.Antre @j_antre RT @LungCancerFaces: +1000 RT @Caduceusblogger: @JackWestMD Totally harder on lc, less funding than other cancers but deadliest. #lcsm #nos… |
| Andrew Lopez, RN @nursefriendly @Caduceusblogger @JackWestMD @LungCancerFaces @subatomicdoc @drkdhoffman @NatriceR Usually make it a point to keep myself OUT :) #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD Yes, thanks for another great session. @ProfMohlere: @JackWestMD Thanks for moderating! #lcsm |
| Faces of Lung Cancer @LungCancerFaces Thanks everyone! Thanks Jack for another great chat! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @LungCancerFaces: Thanks everyone! Thanks Jack for another great chat! #lcsm |
| Andrew Lopez, RN @nursefriendly RT @subatomicdoc: @TeamMDrs @iestroud Yes, I agree. Some do need more help. But more aggressive treatment and testing doesn't equate to be |
| Beth Stroud @iestroud @subatomicdoc @TeamMDrs many don't know about, can't afford genetic profiling #lcsm |
| Deep Ramachandran MD @LungSleepDeep Great chat! Gnight all! #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @nursefriendly I know patients who do chose less or no care for that reason. #lcsm |
| Michael D. Newton @mnewtonPharmD Seems to be increasing interest from pharm industry in lung cancer drug development. Lots of clinical trials out there right now. #LCSM |
| Andrea Borondy Kitts @findlungcancer #lcsm thanks @lungcancerfaces and @jackwestmd |
| Chris Carroll MD @ChrisCarrollMD @nursefriendly Good choice! #hospice patients live on average 6 months longer with better quality of life! #lcsm |
| Dr. David Tom Cooke @DavidCookeMD RT @JackWestMD: #LCSM Top Influencers & Analytics #hcsm http://t.co/B73PrDpyvV via @symplur |
| Melissa Mohlere @ProfMohlere Great chat, all. #lcsm |
| Andrew Lopez, RN @nursefriendly @louisianagirl91 You will never know if you don't ask. Don't expect them to offer #financial or #creditcounseling or #estateplanning #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @iestroud @TeamMDrs Yes, very true. Access is not equal for all with genetic testing. #lcsm |
| Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @subatomicdoc: @TeamMDrs @iestroud Yes, I agree. Some do need more help. But more aggressive treatment and testing doesn't equate to be |
| Laronica Conway @louisianagirl91 @ChrisCarrollMD LMAO! It's ok. It's time for CHOPPED. #lcsm |
| Andrea Borondy Kitts @findlungcancer RT @subatomicdoc: @iestroud @TeamMDrs Yes, very true. Access is not equal for all with genetic testing. #lcsm |
| Andrew Lopez, RN @nursefriendly @ConsanoMolly Most #hospitals, #doctors offices will spell it out for you for elective treatments if you take the time to ask. #lcsm |
| Laronica Conway @louisianagirl91 ya'll have a good night! Thanks for hanging out! #lcsm #lcsm |
| Andrew Lopez, RN @nursefriendly @ConsanoMolly For an emergency admission, in a crisis it is much more difficult to control costs, get an idea in advance. #lcsm |
| Faces of Lung Cancer @LungCancerFaces It's Miller Time. RT @louisianagirl91: @ChrisCarrollMD LMAO! It's ok. It's time for CHOPPED. #lcsm #lcsm |
| Beth Stroud @iestroud RT @subatomicdoc: @iestroud @TeamMDrs Yes, very true. Access is not equal for all with genetic testing. #lcsm |
| Andrew Lopez, RN @nursefriendly @louisianagirl91 Then you make an informed decision on whether you can afford it, need help, or want to look into alternatives #lcsm |
| Faces of Lung Cancer @LungCancerFaces RT @JackWestMD: Here's transcript from #lcsm chat this evening: http://t.co/mssPXCpSzn Thx to all who made such a rich, lively conversation! |
| Matthew Katz, MD 🟦 @subatomicdoc RT @JackWestMD: Here's transcript from #lcsm chat this evening: http://t.co/mssPXCpSzn Thx to all who made such a rich, lively conversation! |
| Beth Stroud @iestroud RT @JackWestMD: Here's transcript from #lcsm chat this evening: http://t.co/mssPXCpSzn Thx to all who made such a rich, lively conversation! |
| Matthew Katz, MD 🟦 @subatomicdoc @JackWestMD @LungCancerFaces Thanks for moderating tonight! #lcsm |
| Andrew Lopez, RN @nursefriendly @subatomicdoc It is unfortunate that people need to decide on getting treated based on #finances :( #lcsm |
| Andrew Lopez, RN @nursefriendly @subatomicdoc It is one reason I'm going to be spreading the word about the #AffordableCareAct #ACA see if it delivers as promised. #lcsm |
| Andrew Lopez, RN @nursefriendly Thursday #Healthcare Tweetchats 2/2 (ET) 9p #Medlibs Medical Librarians #MedEd Medical Education - #nurseup #lcsm |
 | Dan McCoy @dan1mccoy RT @TeamMDrs: New is not always better. Better is better. That is a local phenomena. #lcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @nursefriendly True. Other systems differ how costs distributed. No perfect system, but definitely room for a lot of improvement #lcsm |
| Beth Stroud @iestroud RT @subatomicdoc: Bold statement from Paul Sabbatini at @sloan_kettering : http://t.co/fmx1WPneCx #lcsm #smaller #smarter #clinicaltrials |
| Beth Stroud @iestroud RT @JackWestMD: Should be repeated RT @subatomicdoc: @sloan_kettering took stand against high cost...pushed back successfully. http://t.co/ |
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