#LCSM Transcript
Healthcare social media transcript of the #LCSM hashtag.
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See #LCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Janet Freeman-Daily @JFreemanDaily Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Be an Engaged Patient.” More info on our blog at https://t.co/4FXfIQmKxO |
 | OncLive SOSS @OncLiveSOSS Andreas Saltos, MD, of @MoffittNews, provides perspective on the use of targeted therapy across EGFR-, RET-, and MET-positive NSCLC #lcsm https://t.co/cMoNJo0SPg https://t.co/WBmGgfMufO |
 | #LCSM Chat @lcsmchat RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Be an Engaged Patient.” More info on our blog at https://t.co/4FXfIQmKxO |
| Janet Freeman-Daily @JFreemanDaily We'll get started in a few minutes--please take a moment to introduce yourselves. If you are a patient/caregiver, please share how long you’ve been living with lung cancer. #LCSM |
 | Triage Cancer @TriageCancer RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Be an Engaged Patient.” More info on our blog at https://t.co/4FXfIQmKxO |
| Janet Freeman-Daily @JFreemanDaily I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient (10 year SURVIVOR!) and research advocate #LCSM |
 | Dr. Amy C. Moore @acmoorephd Happy Thursday! Amy Moore here from @LUNGevity #LCSM |
 | Faces of Lung Cancer @LungCancerFaces I’ll be tweeting from the @lcsmchat account during tonight’s #LCSM Chat. Join us! |
| #LCSM Chat @lcsmchat RT @LungCancerFaces: I’ll be tweeting from the @lcsmchat account during tonight’s #LCSM Chat. Join us! |
| Dr. Amy C. Moore @acmoorephd Happening NOW. Join us! #LCSM |
| Janet Freeman-Daily @JFreemanDaily @acmoorephd @LUNGevity Welcome, Amy! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We'll get started in a few minutes--please take a moment to introduce yourselves. If you are a patient/caregiver, please share how long you’ve been living with lung cancer. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient (10 year SURVIVOR!) and research advocate #LCSM |
 | Richard Dent @RichDent RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient (10 year SURVIVOR!) and research advocate #LCSM |
| #LCSM Chat @lcsmchat @acmoorephd @LUNGevity Hi Amy! #lcsm |
| Dr. Amy C. Moore @acmoorephd @JFreemanDaily @LUNGevity Fancy meeting you here, @JFreemanDaily #LCSM |
 | Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Happy #LCSM chat Rami Manochakian. Thoracic oncologist. Mayo Clinic, FL |
| Janet Freeman-Daily @JFreemanDaily @LungCancerFaces @lcsmchat My partner in crime for every chat: @LungCancerFaces #LCSM |
 | Angela Churie Kallhauge @AngelaAchurie 6 year Stage 3 NSCLC survivor and aiming for 50 more #LCSM |
| Triage Cancer @TriageCancer Good evening! Honored to be here to learn and share. We are a national nonprofit organization providing free education on the legal and practical issues that can arise after a #cancer diagnosis. We are big believers in engaged patients! 😀 #LCSM #beyonddiagnosis #oncoalert |
| #LCSM Chat @lcsmchat @RManochakian @JFreemanDaily Welcome, doctor. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @LungCancerFaces @lcsmchat My partner in crime for every chat: @LungCancerFaces @lcsmchat My partner in crime for every chat: @LungCancerFaces #LCSM |
| Janet Freeman-Daily @JFreemanDaily If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #LCSM |
| #LCSM Chat @lcsmchat RT @AngelaAchurie: 6 year Stage 3 NSCLC survivor and aiming for 50 more #LCSM |
| Janet Freeman-Daily @JFreemanDaily Please remember to use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
 | kristen kimball @KimballKristen Hi, it's Kristen Kimball (Kris) from Boston, former caregiver for my husband Dave. Still in the fold, happy to be here tonight. #LCSM |
| #LCSM Chat @lcsmchat @AngelaAchurie Welcome. Here’s to 50 more! #lcsm |
 | Jill Feldman @jillfeldman4 Hello from the suburbs of Chicago! #LCSM |
| #LCSM Chat @lcsmchat @TriageCancer Hey there! #lcsm |
 | Danielle Pardue @Actorielle Stirring dinner w one hand and tweeting with the other! Hello friends! Danielle here. NC. Caregiver for 6+ years. Always a pleasure to tune in. Love to everyone affected by current crazy-scary weather. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Please remember to use #lcsm in all your tweets so others participating in the chat can see them. #LCSM |
| Janet Freeman-Daily @JFreemanDaily If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. (It also helps keep the moderator motivated) #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen Hi Kris! #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: If you are new to Twitter chats and/or #LCSM Chat, you might find our primer on how to participate helpful https://t.co/5g28sSQQLb #LCSM |
 | Denise Cutlip @dennycee Ypsilanti Michigan in the house. Looking forward to this important topic #LCSM |
| Danielle Pardue @Actorielle RT @TriageCancer: Good evening! Honored to be here to learn and share. We are a national nonprofit organization providing free education on the legal and practical issues that can arise after a #cancer diagnosis. We are big believers in engaged patients! 😀 #LCSM #beyonddiagnosis #oncoalert |
| Dr. Amy C. Moore @acmoorephd @JFreemanDaily @lcsmchat For you, @JFreemanDaily #lcsm https://t.co/I6nClnjpOL |
| Danielle Pardue @Actorielle RT @JFreemanDaily: Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Welcome to #LCSM Chat! Tonight we will be discussing “It’s Your Life: Be an Engaged Patient.” More info on our blog at https://t.co/4FXfIQmKxO |
| #LCSM Chat @lcsmchat @jillfeldman4 Hi Jill! How many years surviving lung cancer? #lcsm |
| Janet Freeman-Daily @JFreemanDaily @acmoorephd @LUNGevity Surprise! How did you know where to find me? #LCSM |
| kristen kimball @KimballKristen @lcsmchat Hello, Deana! #lcsm |
| #LCSM Chat @lcsmchat @Actorielle Hello lady #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: If you prefer just to listen, please tweet “#LCSM” so we know you’re in the audience. (It also helps keep the moderator motivated) #LCSM |
 | Aliye Bricker @AliyeBricker Hi everybody - nearly 6 year survivor with stage 4 RET positive NSCLC joining in from Cleveland! #LCSM |
| Janet Freeman-Daily @JFreemanDaily Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| #LCSM Chat @lcsmchat @dennycee Yay! How many years surviving lung cancer now? #lcsm |
| #LCSM Chat @lcsmchat RT @acmoorephd: @JFreemanDaily @lcsmchat For you, @JFreemanDaily #lcsm https://t.co/I6nClnjpOL |
 | Bob Steele @steele_bob Good evening folks! #LCSM |
| #LCSM Chat @lcsmchat RT @AliyeBricker: Hi everybody - nearly 6 year survivor with stage 4 RET positive NSCLC joining in from Cleveland! #LCSM |
 | Upstage Lung Cancer @UpstageLungCanc Hello, friends! Happy to be here tonight. We’re a Boston-based org using performing arts to fundraise for #lungcancer #research. So good to “see” everyone. #lcsm |
| #LCSM Chat @lcsmchat @AliyeBricker That’s wonderful! Welcome #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Note: Note: Twitter allows tweets up to 280 characters, but some tweetchat apps (like https://t.co/A2M7gXQ66L) will not display tweets longer than 140. #LCSM |
| Dr. Amy C. Moore @acmoorephd @AliyeBricker @lcsmchat Hello, friend! #lcsm |
| #LCSM Chat @lcsmchat @steele_bob Hi Bob! #lcsm |
| #LCSM Chat @lcsmchat @UpstageLungCanc Hello! #lcsm |
 | Chrisarooski (She/her) @Career_Cupid Caregiver. Husband diagnosed with stage 1 NSCLC June 2020, now stage IV as of Feb 2021. In Canada. #LCSM |
| Danielle Pardue @Actorielle RT @UpstageLungCanc: Hello, friends! Happy to be here tonight. We’re a Boston-based org using performing arts to fundraise for #lungcancer #research. So good to “see” everyone. #lcsm |
| #LCSM Chat @lcsmchat RT @Career_Cupid: Caregiver. Husband diagnosed with stage 1 NSCLC June 2020, now stage IV as of Feb 2021. In Canada. #LCSM |
| Janet Freeman-Daily @JFreemanDaily I will announce FOUR topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
| #LCSM Chat @lcsmchat @Career_Cupid Hi Christine. Good to “see” you. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Glad to see familiar Twitter handles as well as new participants tonight! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: I will announce FOUR topics (T1 T2 etc). Pls label your answers with T1, T2, etc to make transcript easier to follow. #LCSM |
| Bob Steele @steele_bob RT @acmoorephd: Happening NOW. Join us! #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’ll start with Topic T1 in a minute … #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Glad to see familiar Twitter handles as well as new participants tonight! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’ll start with Topic T1 in a minute … #LCSM |
| Dr. Amy C. Moore @acmoorephd @dennycee @lcsmchat Hello, @dennycee! #lcsm |
| Denise Cutlip @dennycee @acmoorephd @lcsmchat Hi, Amy! Always happy to see you #lcsm |
| #LCSM Chat @lcsmchat I saw @anguspratt a minute ago. Scanxiety, right? #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1. What is an engaged patient? #LCSM |
 | Deborah Levesque, RDMS @dtanz25 Debbie living 4 years! #LCSM |
 | Laronica Conway @louisianagirl91 MY PEOPLE!! ❤️ Hey #lcsm friends! It’s Roni checking in from Birmingham, AL, 10+ year patient advocate and major Dallas Cowboys fan! 😆🙌🏾💙 |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1. What is an engaged patient? #LCSM |
| #LCSM Chat @lcsmchat RT @dtanz25: Debbie living 4 years! #LCSM |
| Jill Feldman @jillfeldman4 @lcsmchat January will be 13!!!!!!! #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T1. What is an engaged patient? #LCSM |
| #LCSM Chat @lcsmchat @dtanz25 Go Debbie! Welcome. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1. What is an engaged patient? #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: Engaged patients are active partners in their own healthcare. Examples: --making decisions with healthcare providers --understanding risks, benefits and alternatives to care --being activated to self-manage chronic conditions #LCSM |
| Triage Cancer @TriageCancer RT @JFreemanDaily: T1. What is an engaged patient? #LCSM |
| Bob Steele @steele_bob RT @JFreemanDaily: T1: Engaged patients are active partners in their own healthcare. Examples: T1: Engaged patients are active partners in their own healthcare. Examples: --making decisions with healthcare providers --understanding risks, benefits and alternatives to care --being activated to self-manage chronic conditions #LCSM |
| #LCSM Chat @lcsmchat @louisianagirl91 Hey! We miss you, Roni. #lcsm |
| #LCSM Chat @lcsmchat RT @louisianagirl91: MY PEOPLE!! ❤️ Hey #lcsm friends! It’s Roni checking in from Birmingham, AL, 10+ year patient advocate and major Dallas Cowboys fan! 😆🙌🏾💙 |
| #LCSM Chat @lcsmchat That’s years, not months! #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: Engaged patients are active partners in their own healthcare. Examples: T1: Engaged patients are active partners in their own healthcare. Examples: --making decisions with healthcare providers --understanding risks, benefits and alternatives to care --being activated to self-manage chronic conditions #LCSM |
 | I’m not crazy. You’re crazy @Millerthym RT @IASLC: Air pollution may play an important role in the development of #LungCancer in people who have never smoked, especially among East Asian women. This study compares cumulative ambient air pollution exposure between ever and never smokers. Read More: https://t.co/JQGqSNRoGY #LCSM https://t.co/w13BRBDW72 |
| Laronica Conway @louisianagirl91 RT @JFreemanDaily: T1. What is an engaged patient? #LCSM |
| Denise Cutlip @dennycee Engaged patients ask their doctors to speak in plain English #LCSM |
 | Kristin Ito @KAdvocate_LCAM A little late, but greetings from Denver! #lcsm |
| Janet Freeman-Daily @JFreemanDaily T1: “Engaged patient” is NOT the same as “patient engagement.” Engaged patient is a PATIENT initiative (patients decide to be engaged). “Patient engagement” is a healthcare system initiative (encouraging patients to be engaged). #LCSM |
| Laronica Conway @louisianagirl91 RT @JFreemanDaily: T1: T1: “Engaged patient” is NOT the same as “patient engagement.” Engaged patient is a PATIENT initiative (patients decide to be engaged). “Patient engagement” is a healthcare system initiative (encouraging patients to be engaged). #LCSM |
| Jill Feldman @jillfeldman4 T1 I have thought about this a lot because engaged patient or patient engagement means different things to different people. #LCSM |
| Danielle Pardue @Actorielle T1. Someone not content to accept a formula that doesn’t account for their legitimate needs and preferences; someone with the support necessary to understand their dx and have meaningful conversations about it and about their options; someone who sets their own goals. #lcsm |
| Dr. Amy C. Moore @acmoorephd @JFreemanDaily @lcsmchat T1. The room is full of them tonight, starting with you. Individuals who aren't afraid to ask lots of questions and expect lots of answers. #lcsm |
| kristen kimball @KimballKristen @jillfeldman4 @lcsmchat Go, Jill, go! <3 #lcsm |
| #LCSM Chat @lcsmchat @KAdvocate_LCAM Hi Kristin #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: “Engaged patient” is NOT the same as “patient engagement.” Engaged patient is a PATIENT initiative (patients decide to be engaged). “Patient engagement” is a healthcare system initiative (encouraging patients to be engaged). #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: Engaged patients ask their doctors to speak in plain English #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: “Engaged patient” is NOT the same as “patient engagement.” Engaged patient is a PATIENT initiative (patients decide to be engaged). “Patient engagement” is a healthcare system initiative (encouraging patients to be engaged). #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily T1 An engaged patient is a patient who is proactive about her/his health and actively participates in the journey of fighting disease/cancer. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: Engaged patients are active partners in their own healthcare. Examples: T1: Engaged patients are active partners in their own healthcare. Examples: --making decisions with healthcare providers --understanding risks, benefits and alternatives to care --being activated to self-manage chronic conditions #LCSM |
| Bob Steele @steele_bob RT @Actorielle: T1. Someone not content to accept a formula that doesn’t account for their legitimate needs and preferences; someone with the support necessary to understand their dx and have meaningful conversations about it and about their options; someone who sets their own goals. #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 I have thought about this a lot because engaged patient or patient engagement means different things to different people. #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T1. Someone not content to accept a formula that doesn’t account for their legitimate needs and preferences; someone with the support necessary to understand their dx and have meaningful conversations about it and about their options; someone who sets their own goals. #lcsm |
| Danielle Pardue @Actorielle RT @louisianagirl91: MY PEOPLE!! ❤️ Hey #lcsm friends! It’s Roni checking in from Birmingham, AL, 10+ year patient advocate and major Dallas Cowboys fan! 😆🙌🏾💙 |
| #LCSM Chat @lcsmchat RT @acmoorephd: @JFreemanDaily @lcsmchat T1. The room is full of them tonight, starting with you. Individuals who aren't afraid to ask lots of questions and expect lots of answers. #lcsm |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily T1 An engaged patient is a patient who is proactive about her/his health and actively participates in the journey of fighting disease/cancer. #LCSM |
| Bob Steele @steele_bob RT @RManochakian: @JFreemanDaily T1 An engaged patient is a patient who is proactive about her/his health and actively participates in the journey of fighting disease/cancer. #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @Actorielle: T1. Someone not content to accept a formula that doesn’t account for their legitimate needs and preferences; someone with the support necessary to understand their dx and have meaningful conversations about it and about their options; someone who sets their own goals. #lcsm |
| Denise Cutlip @dennycee @lcsmchat October will mark 11 years with stage 4 #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: T1: T1: “Engaged patient” is NOT the same as “patient engagement.” Engaged patient is a PATIENT initiative (patients decide to be engaged). “Patient engagement” is a healthcare system initiative (encouraging patients to be engaged). #LCSM |
| Bob Steele @steele_bob RT @dennycee: @lcsmchat October will mark 11 years with stage 4 #lcsm |
| Danielle Pardue @Actorielle T1 I also think it’s important to acknowledge that someone may not want to be “engaged” in the way it appears to an outside observer; the key is that the patient feels supported and has had the dignity of choice in HOW engaged they WANT to be. #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: @lcsmchat October will mark 11 years with stage 4 #lcsm |
| Laronica Conway @louisianagirl91 @lcsmchat 🤗💕 I have missed y’all tons! SO much to catch up on! #lcsm |
| Angela Churie Kallhauge @AngelaAchurie T1 - one who actively seeks information from professionals as well as peers and is not afraid to use their voice to advocate for themselves, asking questions as basic as they may be #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 I also think it’s important to acknowledge that someone may not want to be “engaged” in the way it appears to an outside observer; the key is that the patient feels supported and has had the dignity of choice in HOW engaged they WANT to be. #LCSM |
| Jill Feldman @jillfeldman4 T1 To me...it's being a true partner in ones own health by understanding diagnosis, keeps track of own records, asks questions, confident enough to participate in decision making, knows their options, etc. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T1: Engaged patients seek to learn about their condition from healthcare providers, from reliable online sources, and from others living with their conditions. #LCSM |
| Kristin Ito @KAdvocate_LCAM T1. Doing collaborative research and asking questions #lcsm |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T1: T1: Engaged patients seek to learn about their condition from healthcare providers, from reliable online sources, and from others living with their conditions. #LCSM |
| Laronica Conway @louisianagirl91 RT @jillfeldman4: T1 To me...it's being a true partner in ones own health by understanding diagnosis, keeps track of own records, asks questions, confident enough to participate in decision making, knows their options, etc. #LCSM |
| #LCSM Chat @lcsmchat RT @AngelaAchurie: T1 - one who actively seeks information from professionals as well as peers and is not afraid to use their voice to advocate for themselves, asking questions as basic as they may be #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 To me...it's being a true partner in ones own health by understanding diagnosis, keeps track of own records, asks questions, confident enough to participate in decision making, knows their options, etc. #LCSM |
| Laronica Conway @louisianagirl91 RT @Actorielle: T1. Someone not content to accept a formula that doesn’t account for their legitimate needs and preferences; someone with the support necessary to understand their dx and have meaningful conversations about it and about their options; someone who sets their own goals. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T1: T1: Engaged patients seek to learn about their condition from healthcare providers, from reliable online sources, and from others living with their conditions. #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T1. Doing collaborative research and asking questions #lcsm |
| Laronica Conway @louisianagirl91 RT @Actorielle: T1 I also think it’s important to acknowledge that someone may not want to be “engaged” in the way it appears to an outside observer; the key is that the patient feels supported and has had the dignity of choice in HOW engaged they WANT to be. #LCSM |
| Laronica Conway @louisianagirl91 RT @RManochakian: @JFreemanDaily T1 An engaged patient is a patient who is proactive about her/his health and actively participates in the journey of fighting disease/cancer. #LCSM |
 | Susan Warden @susan_warden @lcsmchat #LCSM |
| Laronica Conway @louisianagirl91 RT @JFreemanDaily: T1: Engaged patients are active partners in their own healthcare. Examples: T1: Engaged patients are active partners in their own healthcare. Examples: --making decisions with healthcare providers --understanding risks, benefits and alternatives to care --being activated to self-manage chronic conditions #LCSM |
| Bob Steele @steele_bob RT @Actorielle: T1 I also think it’s important to acknowledge that someone may not want to be “engaged” in the way it appears to an outside observer; the key is that the patient feels supported and has had the dignity of choice in HOW engaged they WANT to be. #LCSM |
| Jill Feldman @jillfeldman4 T1 I once heard someone say something like, "Your health is a doctor's concern, but it's your responsibility". Struck a chord with me because we are the CEOs of our health #LCSM |
| Danielle Pardue @Actorielle T1 my mom has not wanted to be kept abreast of absolutely everything, but she made the informed executive decision to have me tell her things on a “need to know basis,” and has led every decision that way. That’s still very engaged, Bc it is all exactly how she wants it. #LCSM |
| Chrisarooski (She/her) @Career_Cupid T1. Respectfully asking about rationale for decisions that affect care. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @jillfeldman4 I like the “being partner” part. Couldn’t have said it any better #lcsm |
| Dr. Amy C. Moore @acmoorephd T1. And what are the ways patients without resources such as #LCSM Chat and digital channels can best be engaged? |
| #LCSM Chat @lcsmchat @susan_warden Hi Susan! Welcome. #lcsm |
| Bob Steele @steele_bob RT @AngelaAchurie: T1 - one who actively seeks information from professionals as well as peers and is not afraid to use their voice to advocate for themselves, asking questions as basic as they may be #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T1 I once heard someone say something like, "Your health is a doctor's concern, but it's your responsibility". Struck a chord with me because we are the CEOs of our health #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 I once heard someone say something like, "Your health is a doctor's concern, but it's your responsibility". Struck a chord with me because we are the CEOs of our health #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T1 my mom has not wanted to be kept abreast of absolutely everything, but she made the informed executive decision to have me tell her things on a “need to know basis,” and has led every decision that way. That’s still very engaged, Bc it is all exactly how she wants it. #LCSM |
| #LCSM Chat @lcsmchat RT @Career_Cupid: T1. Respectfully asking about rationale for decisions that affect care. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @jillfeldman4 I like the “being partner” part. Couldn’t have said it any better #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: T1: T1: Engaged patients seek to learn about their condition from healthcare providers, from reliable online sources, and from others living with their conditions. #LCSM |
| Danielle Pardue @Actorielle RT @acmoorephd: T1. And what are the ways patients without resources such as #LCSM Chat and digital channels can best be engaged? |
| #LCSM Chat @lcsmchat RT @acmoorephd: T1. And what are the ways patients without resources such as #LCSM Chat and digital channels can best be engaged? |
| Dr. Amy C. Moore @acmoorephd RT @jillfeldman4: T1 To me...it's being a true partner in ones own health by understanding diagnosis, keeps track of own records, asks questions, confident enough to participate in decision making, knows their options, etc. #LCSM |
| Bob Steele @steele_bob RT @jillfeldman4: T1 I once heard someone say something like, "Your health is a doctor's concern, but it's your responsibility". Struck a chord with me because we are the CEOs of our health #LCSM |
| Danielle Pardue @Actorielle @acmoorephd Always the crucial question for sure. I have found anecdotally that these are largely the folks who don’t know they’re “allowed” to ask questions or bring concerns or set their own goals. #lcsm |
| #LCSM Chat @lcsmchat T1: As basic as it may seem, getting second and even third opinions. It can save your life. -Deana #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: @acmoorephd Always the crucial question for sure. I have found anecdotally that these are largely the folks who don’t know they’re “allowed” to ask questions or bring concerns or set their own goals. #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Engaged patient seeks more knowledge (right knowledge from right resources) and #KnowledgeConquersCancer #LCSM |
 | Sevtap Savas, PhD @savaslab RT @JFreemanDaily: T1: T1: Engaged patients seek to learn about their condition from healthcare providers, from reliable online sources, and from others living with their conditions. #LCSM |
| Jill Feldman @jillfeldman4 T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
| Upstage Lung Cancer @UpstageLungCanc RT @lcsmchat: T1: T1: As basic as it may seem, getting second and even third opinions. It can save your life. -Deana #LCSM |
| Aliye Bricker @AliyeBricker @JFreemanDaily An engaged patient is an informed patient who knows the names of the meds they are on. Who goes to their doctors with questions and sees themselves as having some power over their own care rather than seeing themselves only as a victim submitting to somebody elses plan. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @acmoorephd: T1. And what are the ways patients without resources such as #LCSM Chat and digital channels can best be engaged? |
| #LCSM Chat @lcsmchat Hi @peggyddennis! Thanks for joining. #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T1 I once heard someone say something like, "Your health is a doctor's concern, but it's your responsibility". Struck a chord with me because we are the CEOs of our health #LCSM |
| Bob Steele @steele_bob RT @lcsmchat: T1: T1: As basic as it may seem, getting second and even third opinions. It can save your life. -Deana #LCSM |
| Denise Cutlip @dennycee @jillfeldman4 I tell newly diagnosed docs have thousands of patients. You only have one you need to stay atop things for. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Topic T2 is coming up … #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @jillfeldman4: T1 I once heard someone say something like, "Your health is a doctor's concern, but it's your responsibility". Struck a chord with me because we are the CEOs of our health #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily Engaged patient seeks more knowledge (right knowledge from right resources) and #KnowledgeConquersCancer #LCSM |
| Upstage Lung Cancer @UpstageLungCanc This reminds one of the need to advocate for #screening programs. Before we are ever patients, we can’t know what we don’t know. #LCSM |
| Bob Steele @steele_bob RT @AliyeBricker: @JFreemanDaily An engaged patient is an informed patient who knows the names of the meds they are on. Who goes to their doctors with questions and sees themselves as having some power over their own care rather than seeing themselves only as a victim submitting to somebody elses plan. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
| #LCSM Chat @lcsmchat RT @AliyeBricker: @JFreemanDaily An engaged patient is an informed patient who knows the names of the meds they are on. Who goes to their doctors with questions and sees themselves as having some power over their own care rather than seeing themselves only as a victim submitting to somebody elses plan. #LCSM |
| Laronica Conway @louisianagirl91 An ENGAGED patient feels EMPOWERED to dictate what they learn and how they learn it. That patient steers the information train in the direction they NEED it to go. #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: @jillfeldman4 I tell newly diagnosed docs have thousands of patients. You only have one you need to stay atop things for. #lcsm |
| Danielle Pardue @Actorielle RT @lcsmchat: T1: T1: As basic as it may seem, getting second and even third opinions. It can save your life. -Deana #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
| Danielle Pardue @Actorielle RT @UpstageLungCanc: This reminds one of the need to advocate for #screening programs. Before we are ever patients, we can’t know what we don’t know. #LCSM |
| #LCSM Chat @lcsmchat RT @UpstageLungCanc: This reminds one of the need to advocate for #screening programs. Before we are ever patients, we can’t know what we don’t know. #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @AliyeBricker: @JFreemanDaily An engaged patient is an informed patient who knows the names of the meds they are on. Who goes to their doctors with questions and sees themselves as having some power over their own care rather than seeing themselves only as a victim submitting to somebody elses plan. #LCSM |
| #LCSM Chat @lcsmchat RT @louisianagirl91: An ENGAGED patient feels EMPOWERED to dictate what they learn and how they learn it. That patient steers the information train in the direction they NEED it to go. #lcsm |
| Danielle Pardue @Actorielle RT @AliyeBricker: @JFreemanDaily An engaged patient is an informed patient who knows the names of the meds they are on. Who goes to their doctors with questions and sees themselves as having some power over their own care rather than seeing themselves only as a victim submitting to somebody elses plan. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T2. What’s so great about being an engaged patient? #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @jillfeldman4: T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
| Bob Steele @steele_bob RT @UpstageLungCanc: This reminds one of the need to advocate for #screening programs. Before we are ever patients, we can’t know what we don’t know. #LCSM |
| Sevtap Savas, PhD @savaslab RT @jillfeldman4: T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
 | Andrea @BraveBosom @JFreemanDaily @ekeeleymoore sums up it up pretty well. #LCSM https://t.co/7BKFVSgkTV |
| Laronica Conway @louisianagirl91 RT @AliyeBricker: @JFreemanDaily An engaged patient is an informed patient who knows the names of the meds they are on. Who goes to their doctors with questions and sees themselves as having some power over their own care rather than seeing themselves only as a victim submitting to somebody elses plan. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2. What’s so great about being an engaged patient? #LCSM |
| Danielle Pardue @Actorielle RT @BraveBosom: @JFreemanDaily @ekeeleymoore sums up it up pretty well. #LCSM https://t.co/7BKFVSgkTV |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2. What’s so great about being an engaged patient? #LCSM |
| #LCSM Chat @lcsmchat RT @BraveBosom: @JFreemanDaily @ekeeleymoore sums up it up pretty well. #LCSM https://t.co/7BKFVSgkTV |
| Danielle Pardue @Actorielle RT @louisianagirl91: An ENGAGED patient feels EMPOWERED to dictate what they learn and how they learn it. That patient steers the information train in the direction they NEED it to go. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| Angela Churie Kallhauge @AngelaAchurie @acmoorephd T1. by talking to fellow warriors, caregivers and survivors. nothing beats the lessons and hope inspired by real experiences... but important to also filter information. Best advice I got came from others who have walked this journey #LCSM |
| Laronica Conway @louisianagirl91 @jillfeldman4 SOOOOO true!! 😔 #lcsm |
| #LCSM Chat @lcsmchat Not at all in Canada? Under any circumstances? #lcsm |
| Bob Steele @steele_bob RT @JFreemanDaily: T2: Here's the kicker: T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| Bob Steele @steele_bob RT @AngelaAchurie: @acmoorephd T1. by talking to fellow warriors, caregivers and survivors. nothing beats the lessons and hope inspired by real experiences... but important to also filter information. Best advice I got came from others who have walked this journey #LCSM |
| Kristin Ito @KAdvocate_LCAM T2. The ability to share your knowledge! #lcsm |
| Janet Freeman-Daily @JFreemanDaily @BraveBosom @ekeeleymoore Hey Andrea! Welcome to #LCSM Chat! |
| Sevtap Savas, PhD @savaslab RT @louisianagirl91: An ENGAGED patient feels EMPOWERED to dictate what they learn and how they learn it. That patient steers the information train in the direction they NEED it to go. #lcsm |
| #LCSM Chat @lcsmchat Thanks for joining us @savaslab! #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily T2 Every Patient has to play a major & important role in the decision making. Ultimately, it’s their body and their health that are being addressed. Being an engaged patient helps achieve that. #LCSM |
| kristen kimball @KimballKristen For my husband Dave, "engaged" meant connecting with everyone involved in his care, not just his onc and nurses but also phlebotomist, pharmacist, med assistnts, clinical research coordinators, etc.; to support them in his care. Big team #LCSM |
| Jill Feldman @jillfeldman4 T2 Knowledge is power - Being an engaged patient is EMPOWERING and gives you some control over a situation that you don't have much control over #LCSM |
| Laronica Conway @louisianagirl91 RT @JFreemanDaily: T2. What’s so great about being an engaged patient? #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T2: Here's the kicker: T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| #LCSM Chat @lcsmchat RT @AngelaAchurie: @acmoorephd T1. by talking to fellow warriors, caregivers and survivors. nothing beats the lessons and hope inspired by real experiences... but important to also filter information. Best advice I got came from others who have walked this journey #LCSM |
| #LCSM Chat @lcsmchat RT @KAdvocate_LCAM: T2. The ability to share your knowledge! #lcsm |
| Sevtap Savas, PhD @savaslab RT @JFreemanDaily: T2: Here's the kicker: T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| Bob Steele @steele_bob RT @KimballKristen: For my husband Dave, "engaged" meant connecting with everyone involved in his care, not just his onc and nurses but also phlebotomist, pharmacist, med assistnts, clinical research coordinators, etc.; to support them in his care. Big team #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily T2 Every Patient has to play a major & important role in the decision making. Ultimately, it’s their body and their health that are being addressed. Being an engaged patient helps achieve that. #LCSM |
| kristen kimball @KimballKristen T1! sorry :) |
| #LCSM Chat @lcsmchat RT @KimballKristen: For my husband Dave, "engaged" meant connecting with everyone involved in his care, not just his onc and nurses but also phlebotomist, pharmacist, med assistnts, clinical research coordinators, etc.; to support them in his care. Big team #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Being an engaged patient gives u more knowledge. Knowledge is power. #KnowledgeConquersCancer #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 Knowledge is power - Being an engaged patient is EMPOWERING and gives you some control over a situation that you don't have much control over #LCSM |
| Triage Cancer @TriageCancer T1 often, an engaged patient is also someone who has had the support and help necessary to understand their health insurance options, finances, rights at work, etc, and to understand how to navigate or pursue such. #lcsm |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily Being an engaged patient gives u more knowledge. Knowledge is power. #KnowledgeConquersCancer #LCSM |
| Danielle Pardue @Actorielle RT @TriageCancer: T1 often, an engaged patient is also someone who has had the support and help necessary to understand their health insurance options, finances, rights at work, etc, and to understand how to navigate or pursue such. #lcsm |
| #LCSM Chat @lcsmchat RT @TriageCancer: T1 often, an engaged patient is also someone who has had the support and help necessary to understand their health insurance options, finances, rights at work, etc, and to understand how to navigate or pursue such. #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 Knowledge is power - Being an engaged patient is EMPOWERING and gives you some control over a situation that you don't have much control over #LCSM |
| Danielle Pardue @Actorielle RT @KimballKristen: For my husband Dave, "engaged" meant connecting with everyone involved in his care, not just his onc and nurses but also phlebotomist, pharmacist, med assistnts, clinical research coordinators, etc.; to support them in his care. Big team #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T2: Here's the kicker: T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| Denise Cutlip @dennycee as an engaged patient, I have reviewed results on patient portal and research my questions and options before my appt #lcsm |
 | Jon Trent, MD, PhD @JTrentMDPhD RT @Latinamd: Thanks you for all you do @Pap_Corps survivorship mentors to provide peer patient support for our patients when they needed most @SylvesterCancer #cancersurvivors #patientadvocates #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: as an engaged patient, I have reviewed results on patient portal and research my questions and options before my appt #lcsm |
| Sevtap Savas, PhD @savaslab RT @dennycee: as an engaged patient, I have reviewed results on patient portal and research my questions and options before my appt #lcsm |
| Dr. Amy C. Moore @acmoorephd T2: I learn so much from engaged patients about their experiences, hopes and fears. And that makes me a better #advocate on their behalf and on behalf of those who can't advocate for themselves. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| Jill Feldman @jillfeldman4 T2 Engaged patients have better quality of life, live longer and have better communication/good relationships with their health care team #LCSM |
| #LCSM Chat @lcsmchat Anyone else out there observing the chat? Let us know you’re with us by just tweeting #lcsm. We care. #LCSM |
| #LCSM Chat @lcsmchat RT @acmoorephd: T2: T2: I learn so much from engaged patients about their experiences, hopes and fears. And that makes me a better #advocate on their behalf and on behalf of those who can't advocate for themselves. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| Triage Cancer @TriageCancer @JFreemanDaily Yes, patients who have been given comprehensive information about their #healthinsurance options, whole financial picture, employment rights, etc, and now to understand and navigate it all, do have better outcomes. Crucial education. #lcsm #beyonddiagnosis #oncoalert #cancersm |
| Bob Steele @steele_bob RT @JFreemanDaily: @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| Danielle Pardue @Actorielle RT @TriageCancer: @JFreemanDaily Yes, patients who have been given comprehensive information about their #healthinsurance options, whole financial picture, employment rights, etc, and now to understand and navigate it all, do have better outcomes. Crucial education. #lcsm #beyonddiagnosis #oncoalert #cancersm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 Engaged patients have better quality of life, live longer and have better communication/good relationships with their health care team #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 Engaged patients have better quality of life, live longer and have better communication/good relationships with their health care team #LCSM |
| #LCSM Chat @lcsmchat RT @TriageCancer: @JFreemanDaily Yes, patients who have been given comprehensive information about their #healthinsurance options, whole financial picture, employment rights, etc, and now to understand and navigate it all, do have better outcomes. Crucial education. #lcsm #beyonddiagnosis #oncoalert #cancersm |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: T2: Here's the kicker: T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| #LCSM Chat @lcsmchat Hey @EdenLake I see you! xo #lcsm |
| Sevtap Savas, PhD @savaslab #LCSM |
| Jill Feldman @jillfeldman4 T2 I always say being an engaged patient (personally and in advocacy) allows ME to choose the role that #lungcancer has in my life. It's like saying 🖕to lung cancer, LOL #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T2 I always say being an engaged patient (personally and in advocacy) allows ME to choose the role that #lungcancer has in my life. It's like saying 🖕to lung cancer, LOL #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T2 I always say being an engaged patient (personally and in advocacy) allows ME to choose the role that #lungcancer has in my life. It's like saying 🖕to lung cancer, LOL #LCSM |
| Andrea @BraveBosom @JFreemanDaily @ekeeleymoore Popping in to say hello!!! #LCSM https://t.co/OsAleqzcJB |
 | Eden Lake @EdenLake Really late friends but im here and catching up #lcsm |
| Jill Feldman @jillfeldman4 RT @JFreemanDaily: @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| Bob Steele @steele_bob RT @jillfeldman4: T2 I always say being an engaged patient (personally and in advocacy) allows ME to choose the role that #lungcancer has in my life. It's like saying 🖕to lung cancer, LOL #LCSM |
| Janet Freeman-Daily @JFreemanDaily @TriageCancer Engaged patients ask when they need more information, and know how to use the info, make the time to find out how to use it, or find someone to help them use it. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: @TriageCancer Engaged patients ask when they need more information, and know how to use the info, make the time to find out how to use it, or find someone to help them use it. #LCSM |
| Aliye Bricker @AliyeBricker @jillfeldman4 Exactly this. Being engaged is being empowered! You are taking some ownership of what is going on with your health and your life. Gives you some semblance of control and assurance that you and your doc have made the best plan possible with what data is available. #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’ll shift to Topic T3 next ... #LCSM |
 | Preventive Medicine Bot @PreventiveBot RT @JFreemanDaily: I’m your moderator Janet Freeman-Daily: I’m your moderator Janet Freeman-Daily: writer (https://t.co/OBCc87ZwkG), science geek, stage IV #lungcancer patient (10 year SURVIVOR!) and research advocate #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T2 I always say being an engaged patient (personally and in advocacy) allows ME to choose the role that #lungcancer has in my life. It's like saying 🖕to lung cancer, LOL #LCSM |
| Jill Feldman @jillfeldman4 @ZieglerColleen I ask myself that all the time. But, we are already doing it (compared to 10 years ago) and just have to keep the momentum going #LCSM |
| Preventive Medicine Bot @PreventiveBot RT @UpstageLungCanc: Hello, friends! Happy to be here tonight. We’re a Boston-based org using performing arts to fundraise for #lungcancer #research. So good to “see” everyone. #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @TriageCancer: @JFreemanDaily Yes, patients who have been given comprehensive information about their #healthinsurance options, whole financial picture, employment rights, etc, and now to understand and navigate it all, do have better outcomes. Crucial education. #lcsm #beyonddiagnosis #oncoalert #cancersm |
| Preventive Medicine Bot @PreventiveBot RT @jillfeldman4: T2 I always say being an engaged patient (personally and in advocacy) allows ME to choose the role that #lungcancer has in my life. It's like saying 🖕to lung cancer, LOL #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T2 Engaged patients have better quality of life, live longer and have better communication/good relationships with their health care team #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| #LCSM Chat @lcsmchat Thanks for joining @EDWARDCUTLER2 ! #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @acmoorephd: T2: T2: I learn so much from engaged patients about their experiences, hopes and fears. And that makes me a better #advocate on their behalf and on behalf of those who can't advocate for themselves. #LCSM |
| Sevtap Savas, PhD @savaslab RT @JFreemanDaily: @TriageCancer Engaged patients ask when they need more information, and know how to use the info, make the time to find out how to use it, or find someone to help them use it. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3. How does one become an engaged patient? Does someone sprinkle magic dust over you so you wake up and become engaged? #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T3. How does one become an engaged patient? Does someone sprinkle magic dust over you so you wake up and become engaged? #LCSM |
| Jill Feldman @jillfeldman4 RT @jillfeldman4: T1 To me...it's being a true partner in ones own health by understanding diagnosis, keeps track of own records, asks questions, confident enough to participate in decision making, knows their options, etc. #LCSM |
| #LCSM Chat @lcsmchat I see you @PatrickCMa1! Thanks for popping in. #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: @ZieglerColleen I ask myself that all the time. But, we are already doing it (compared to 10 years ago) and just have to keep the momentum going #LCSM |
| Danielle Pardue @Actorielle RT @AliyeBricker: @jillfeldman4 Exactly this. Being engaged is being empowered! You are taking some ownership of what is going on with your health and your life. Gives you some semblance of control and assurance that you and your doc have made the best plan possible with what data is available. #LCSM |
 | Lakshmi Grama @lgrama T2: how do we help patients who may not have the resources- educational, financial, or otherwise- become engaged patients? #LCSM |
| Danielle Pardue @Actorielle RT @lgrama: T2: T2: how do we help patients who may not have the resources- educational, financial, or otherwise- become engaged patients? #LCSM |
| #LCSM Chat @lcsmchat RT @AliyeBricker: @jillfeldman4 Exactly this. Being engaged is being empowered! You are taking some ownership of what is going on with your health and your life. Gives you some semblance of control and assurance that you and your doc have made the best plan possible with what data is available. #LCSM |
| Sevtap Savas, PhD @savaslab RT @lgrama: T2: T2: how do we help patients who may not have the resources- educational, financial, or otherwise- become engaged patients? #LCSM |
| #LCSM Chat @lcsmchat @ZieglerColleen @jillfeldman4 Thanks for joining @ZieglerColleen! #lcsm |
 | Lauren Meehan Machos, MPH @LaurenMachos #lcsm |
| #LCSM Chat @lcsmchat RT @lgrama: T2: T2: how do we help patients who may not have the resources- educational, financial, or otherwise- become engaged patients? #LCSM |
| Janet Freeman-Daily @JFreemanDaily Welcome, Colleen! #LCSM |
| #LCSM Chat @lcsmchat @LaurenMachos Welcome @LaurenMachos #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3. How does one become an engaged patient? Does someone sprinkle magic dust over you so you wake up and become engaged? #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: @jillfeldman4 What Jill said! Cancer strips away one's sense of control in life. Being an active partner on your care team restores some sense of control. Only YOU can say what's important to you when selecting your treatment and care plan. #LCSM |
| Danielle Pardue @Actorielle T3 part of it is your natural personality. Sometimes we’re just the kind of folks who don’t take an easy answer, and want to learn more. Sometimes, we are inspired by some1 we meet (a provider, another pt or CG, etc). I’ve seen both, and both “types” make great advocates.💚 #lcsm |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily T3 Once a patient understands why it’s important to be engaged, can slowly and gradually become more & more engaged. Ask questions, seek more knowledge, research their disease and the science behind it #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T3 part of it is your natural personality. Sometimes we’re just the kind of folks who don’t take an easy answer, and want to learn more. Sometimes, we are inspired by some1 we meet (a provider, another pt or CG, etc). I’ve seen both, and both “types” make great advocates.💚 #lcsm |
| Sevtap Savas, PhD @savaslab RT @RManochakian: @JFreemanDaily T3 Once a patient understands why it’s important to be engaged, can slowly and gradually become more & more engaged. Ask questions, seek more knowledge, research their disease and the science behind it #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily T3 Once a patient understands why it’s important to be engaged, can slowly and gradually become more & more engaged. Ask questions, seek more knowledge, research their disease and the science behind it #LCSM |
| Bob Steele @steele_bob RT @Actorielle: T3 part of it is your natural personality. Sometimes we’re just the kind of folks who don’t take an easy answer, and want to learn more. Sometimes, we are inspired by some1 we meet (a provider, another pt or CG, etc). I’ve seen both, and both “types” make great advocates.💚 #lcsm |
| Danielle Pardue @Actorielle RT @RManochakian: @JFreemanDaily T3 Once a patient understands why it’s important to be engaged, can slowly and gradually become more & more engaged. Ask questions, seek more knowledge, research their disease and the science behind it #LCSM |
| Jill Feldman @jillfeldman4 T3 This is hard because being dx with cancer is overwhelming and anxiety clouds our ability to think straight. Some are natural, some have loved ones who take over and others don't know where to begin. Having support & a care team that empowers you from the start is key #LCSM |
| Bob Steele @steele_bob RT @jillfeldman4: T3 This is hard because being dx with cancer is overwhelming and anxiety clouds our ability to think straight. Some are natural, some have loved ones who take over and others don't know where to begin. Having support & a care team that empowers you from the start is key #LCSM |
| kristen kimball @KimballKristen RT @RManochakian: @JFreemanDaily T3 Once a patient understands why it’s important to be engaged, can slowly and gradually become more & more engaged. Ask questions, seek more knowledge, research their disease and the science behind it #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Every patient & caregiver here on LCSM chat is a great example of great engaged patients #LCSM |
| Dr. Amy C. Moore @acmoorephd T3: patients should avail themselves of all the wonderful online communities available: @ros1cancer, @EGFRResisters, @ALKLungCancer, @alk_fusion, @BrafBombers, @NTRKers, @RETpositive, @RetRenegades, and many more! Also @LUNGevity has many different support communities! #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: Being an engaged patient also includes choosing to talk to family and caregivers about what you do and DO NOT want from them. #LCSM |
| Chrisarooski (She/her) @Career_Cupid T3. Understanding that you are the best expert on your own body and experience helps you become engaged so you can actively contribute your important perspective within the partnership with your health team. #lcsm |
 | Devika Das, MD, MSHQS @DevikaDasMD @lcsmchat Observing and learning! Throacic Lee Onc from Alabama #lcsm |
| #LCSM Chat @lcsmchat If you’re a lung cancer survivor, and haven’t done so already, please tweet how long it’s been since diagnosis. It helps all of us. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 This is hard because being dx with cancer is overwhelming and anxiety clouds our ability to think straight. Some are natural, some have loved ones who take over and others don't know where to begin. Having support & a care team that empowers you from the start is key #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily Every patient & caregiver here on LCSM chat is a great example of great engaged patients #LCSM |
| #LCSM Chat @lcsmchat RT @acmoorephd: T3: patients should avail themselves of all the wonderful online communities available: T3: patients should avail themselves of all the wonderful online communities available: @ros1cancer, @EGFRResisters, @ALKLungCancer, @alk_fusion, @BrafBombers, @NTRKers, @RETpositive, @RetRenegades, and many more! Also @LUNGevity has many different support communities! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: Being an engaged patient also includes choosing to talk to family and caregivers about what you do and DO NOT want from them. #LCSM |
| Sevtap Savas, PhD @savaslab RT @lcsmchat: If you’re a lung cancer survivor, and haven’t done so already, please tweet how long it’s been since diagnosis. It helps all of us. #LCSM |
| #LCSM Chat @lcsmchat RT @Career_Cupid: T3. Understanding that you are the best expert on your own body and experience helps you become engaged so you can actively contribute your important perspective within the partnership with your health team. #lcsm |
| Danielle Pardue @Actorielle @JFreemanDaily @TriageCancer The catch is that many people don’t know what they don’t know, “until.” @triagecancer teaches folks the stuff we all *should* have learned in high school but didn’t, lol. (Crisis time is not the time to be learning about health insurance options for the first time, e.g.) #lcsm |
| Jill Feldman @jillfeldman4 T3 There is nothing better than helping a newly dx person navigate their way to being engaged & self advocacy. It's like watching a deflated balloon inflate. The hope is real and it is so meaningful ❤️ #LCSM |
| Danielle Pardue @Actorielle RT @Career_Cupid: T3. Understanding that you are the best expert on your own body and experience helps you become engaged so you can actively contribute your important perspective within the partnership with your health team. #lcsm |
| Denise Cutlip @dennycee T3: sign up for newletters from leading cancer hospitals,NCCN and ASCO' Visit patient to patient sites verify whst they say to learn which contributors you can trust #lcsm |
| Danielle Pardue @Actorielle @Career_Cupid Hear, hear! My mom to HCPs: “you have hundreds of patients. I have one.” #lcsm |
| Aliye Bricker @AliyeBricker T3: We become engaged when we are tired of just feeling lost and scared. When we decide to start learning about why we are being treated with this or that, or start thinking about what might come next in our treatment if the current line doesn't work. #LCSM |
| Danielle Pardue @Actorielle RT @acmoorephd: T3: patients should avail themselves of all the wonderful online communities available: T3: patients should avail themselves of all the wonderful online communities available: @ros1cancer, @EGFRResisters, @ALKLungCancer, @alk_fusion, @BrafBombers, @NTRKers, @RETpositive, @RetRenegades, and many more! Also @LUNGevity has many different support communities! #LCSM |
| #LCSM Chat @lcsmchat @DevikaDasMD Welcome Doctor! #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T3 This is hard because being dx with cancer is overwhelming and anxiety clouds our ability to think straight. Some are natural, some have loved ones who take over and others don't know where to begin. Having support & a care team that empowers you from the start is key #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Seeks more knowledge. Ask about the great resources out there. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: @JFreemanDaily @TriageCancer The catch is that many people don’t know what they don’t know, “until.” @triagecancer teaches folks the stuff we all *should* have learned in high school but didn’t, lol. (Crisis time is not the time to be learning about health insurance options for the first time, e.g.) #lcsm |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 There is nothing better than helping a newly dx person navigate their way to being engaged & self advocacy. It's like watching a deflated balloon inflate. The hope is real and it is so meaningful ❤️ #LCSM |
| Danielle Pardue @Actorielle RT @AliyeBricker: T3: T3: We become engaged when we are tired of just feeling lost and scared. When we decide to start learning about why we are being treated with this or that, or start thinking about what might come next in our treatment if the current line doesn't work. #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: T3: T3: sign up for newletters from leading cancer hospitals,NCCN and ASCO' Visit patient to patient sites verify whst they say to learn which contributors you can trust #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: @Career_Cupid Hear, hear! My mom to HCPs: @Career_Cupid Hear, hear! My mom to HCPs: “you have hundreds of patients. I have one.” #lcsm |
| #LCSM Chat @lcsmchat RT @AliyeBricker: T3: T3: We become engaged when we are tired of just feeling lost and scared. When we decide to start learning about why we are being treated with this or that, or start thinking about what might come next in our treatment if the current line doesn't work. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily Seeks more knowledge. Ask about the great resources out there. #lcsm |
| Bob Steele @steele_bob RT @AliyeBricker: T3: T3: We become engaged when we are tired of just feeling lost and scared. When we decide to start learning about why we are being treated with this or that, or start thinking about what might come next in our treatment if the current line doesn't work. #LCSM |
| Janet Freeman-Daily @JFreemanDaily It's really important for EVERY patient to know what's most important to THEM, and communicate that to ALL your care partners. Maybe you want to be able to make memories with your kids/grandkids. Maybe you want to be able to garden. What matters to you? Only you can say. #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @acmoorephd: T3: patients should avail themselves of all the wonderful online communities available: T3: patients should avail themselves of all the wonderful online communities available: @ros1cancer, @EGFRResisters, @ALKLungCancer, @alk_fusion, @BrafBombers, @NTRKers, @RETpositive, @RetRenegades, and many more! Also @LUNGevity has many different support communities! #LCSM |
| #LCSM Chat @lcsmchat We love this! Welcome. #lcsm |
| Denise Cutlip @dennycee RT @acmoorephd: T3: patients should avail themselves of all the wonderful online communities available: T3: patients should avail themselves of all the wonderful online communities available: @ros1cancer, @EGFRResisters, @ALKLungCancer, @alk_fusion, @BrafBombers, @NTRKers, @RETpositive, @RetRenegades, and many more! Also @LUNGevity has many different support communities! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: It's really important for EVERY patient to know what's most important to THEM, and communicate that to ALL your care partners. Maybe you want to be able to make memories with your kids/grandkids. Maybe you want to be able to garden. What matters to you? Only you can say. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: It's really important for EVERY patient to know what's most important to THEM, and communicate that to ALL your care partners. Maybe you want to be able to make memories with your kids/grandkids. Maybe you want to be able to garden. What matters to you? Only you can say. #LCSM |
| Janet Freeman-Daily @JFreemanDaily T3: When you share with your healthcare team what matters most to YOU, you are helping to shape your treatment options. ANY patient can do this. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: T3: When you share with your healthcare team what matters most to YOU, you are helping to shape your treatment options. ANY patient can do this. #LCSM |
 | Peggy Dennis @peggyddennis @JFreemanDaily @lcsmchat T3 willingness to ask questions of your oncologists and fellow LC survivors. Then be available to share what you’ve learned. Most importantly, always be open to learning more. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Absolutely, Tomma. #LCSM |
| Danielle Pardue @Actorielle @JFreemanDaily Amen. Key is to help folks feel enfranchised to do so. If I had a nickel for every time someone feels bad or guilty about bringing up their own goals or asking “another” question… so many nickels! #lcsm |
| Denise Cutlip @dennycee T3: participate in virtual education programs sponsored by reputable foundations #lcsm |
| #LCSM Chat @lcsmchat Question from an observer: What to do if your oncologist doesn’t want to deal with an engaged patient? @RedGia #LCSM |
| #LCSM Chat @lcsmchat RT @peggyddennis: @JFreemanDaily @lcsmchat T3 willingness to ask questions of your oncologists and fellow LC survivors. Then be available to share what you’ve learned. Most importantly, always be open to learning more. #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Absolutely, Tomma. #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: @JFreemanDaily Amen. Key is to help folks feel enfranchised to do so. If I had a nickel for every time someone feels bad or guilty about bringing up their own goals or asking “another” question… so many nickels! #lcsm |
| #LCSM Chat @lcsmchat RT @dennycee: T3: T3: participate in virtual education programs sponsored by reputable foundations #lcsm |
| kristen kimball @KimballKristen @lcsmchat @RedGia New oncologist #LCSM |
| #LCSM Chat @lcsmchat Agree! #lcsm https://t.co/RSmYLY3gWD |
| Janet Freeman-Daily @JFreemanDaily T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
 | Lillian Leigh GAICD @ProjectBreath Hello #LCSM, sorry I'm late. Greetings from Sydney. |
| Danielle Pardue @Actorielle Hopefully can be “handled” before it gets to that point. Try to make friendships ASAP w all HCPs. Connect as humans. Talk about hobbies, kids, etc. Then “launch” your engaged personality. Best way we’ve been able to manage. #lcsm |
 | Suanna Bruinooge @SuannaBruinooge Beautifully said, @JFreemanDaily! Patient empowerment and engagement in decisionmaking are crucial. |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
| #LCSM Chat @lcsmchat @ProjectBreath Wow, Lillian! So happy you’ve joined us. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
| Janet Freeman-Daily @JFreemanDaily Thanks for sharing a great example. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily Very important to guide/direct patients and caregivers to the right resources #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: Hopefully can be “handled” before it gets to that point. Try to make friendships ASAP w all HCPs. Connect as humans. Talk about hobbies, kids, etc. Then “launch” your engaged personality. Best way we’ve been able to manage. #lcsm |
| Janet Freeman-Daily @JFreemanDaily Topic T4 is on the way #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Thanks for sharing a great example. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily Very important to guide/direct patients and caregivers to the right resources #lcsm |
 | Suzy Spencer @spencerwriter RT @acmoorephd: T3: patients should avail themselves of all the wonderful online communities available: T3: patients should avail themselves of all the wonderful online communities available: @ros1cancer, @EGFRResisters, @ALKLungCancer, @alk_fusion, @BrafBombers, @NTRKers, @RETpositive, @RetRenegades, and many more! Also @LUNGevity has many different support communities! #LCSM |
| Bob Steele @steele_bob RT @JFreemanDaily: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
| Janet Freeman-Daily @JFreemanDaily Remember to include #LCSM in all your tweets so your tweets will show up in the chat. |
| Suzy Spencer @spencerwriter RT @Career_Cupid: T3. Understanding that you are the best expert on your own body and experience helps you become engaged so you can actively contribute your important perspective within the partnership with your health team. #lcsm |
| Suzy Spencer @spencerwriter RT @Actorielle: @Career_Cupid Hear, hear! My mom to HCPs: @Career_Cupid Hear, hear! My mom to HCPs: “you have hundreds of patients. I have one.” #lcsm |
| #LCSM Chat @lcsmchat @JFreemanDaily Remember to add the hashtag #lcsm to your tweets. No worries. We’re catching them so far. Thanks! @ADesaiMD |
| Bob Steele @steele_bob RT @JFreemanDaily: Thanks for sharing a great example. #LCSM |
| Suzy Spencer @spencerwriter RT @Actorielle: Hopefully can be “handled” before it gets to that point. Try to make friendships ASAP w all HCPs. Connect as humans. Talk about hobbies, kids, etc. Then “launch” your engaged personality. Best way we’ve been able to manage. #lcsm |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Remember to include #LCSM in all your tweets so your tweets will show up in the chat. |
 | Alicia C. Staley @stales RT @JFreemanDaily: T1: T1: “Engaged patient” is NOT the same as “patient engagement.” Engaged patient is a PATIENT initiative (patients decide to be engaged). “Patient engagement” is a healthcare system initiative (encouraging patients to be engaged). #LCSM |
| Janet Freeman-Daily @JFreemanDaily More good info on finding reliable information resources online. #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: T2: Here's the kicker: T2: Here's the kicker: Patients who are more engaged in their healthcare have better health outcomes (and help lower healthcare costs for everyone) https://t.co/iO1H3Hwtc4 #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: More good info on finding reliable information resources online. #LCSM |
| Alicia C. Staley @stales RT @louisianagirl91: An ENGAGED patient feels EMPOWERED to dictate what they learn and how they learn it. That patient steers the information train in the direction they NEED it to go. #lcsm |
| Janet Freeman-Daily @JFreemanDaily T4. How can physicians and engaged patients work together effectively? #LCSM |
| Lillian Leigh GAICD @ProjectBreath This is such a fabulous list of tips for patients and caregivers. They apply globally and to other cancers too. Thanks for sharing @JFreemanDaily #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: It's really important for EVERY patient to know what's most important to THEM, and communicate that to ALL your care partners. Maybe you want to be able to make memories with your kids/grandkids. Maybe you want to be able to garden. What matters to you? Only you can say. #LCSM |
| Alicia C. Staley @stales RT @jillfeldman4: T1 But we must recognize that not everyone has the same access or opportunities to be fully involved in their care, #SDOH, but may still be engaged to their ability #LCSM #HealthEquity |
| Danielle Pardue @Actorielle RT @JFreemanDaily: More good info on finding reliable information resources online. #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T4. How can physicians and engaged patients work together effectively? #LCSM |
| #LCSM Chat @lcsmchat Yep. #lcsm |
| Jill Feldman @jillfeldman4 T3 It can be hard to be an engaged patient at times - prudent conversations about treatment or not wanting to disclose all side effects. That's why it is so important that your team knows your goals of treatment/care, what's impt to you, what tradeoffs willing to make, etc. #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: T1: Engaged patients seek to learn about their condition from healthcare providers, from reliable online sources, and from others living with their conditions. #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: T3: T3: Being an engaged patient also includes choosing to talk to family and caregivers about what you do and DO NOT want from them. #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: @TriageCancer Engaged patients ask when they need more information, and know how to use the info, make the time to find out how to use it, or find someone to help them use it. #LCSM |
| Dr. Amy C. Moore @acmoorephd T3: Not to be an advertisement for @LUNGevity, but we have some really great educational resources, including our #Lungcancer 101: https://t.co/8c19G4o0xD #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: T1: Engaged patients are active partners in their own healthcare. Examples: T1: Engaged patients are active partners in their own healthcare. Examples: --making decisions with healthcare providers --understanding risks, benefits and alternatives to care --being activated to self-manage chronic conditions #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4. How can physicians and engaged patients work together effectively? #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: More good info on finding reliable information resources online. #LCSM |
| #LCSM Chat @lcsmchat RT @ProjectBreath: This is such a fabulous list of tips for patients and caregivers. They apply globally and to other cancers too. Thanks for sharing @JFreemanDaily #LCSM |
 | Aakash Desai, MD, MPH @ADesaiMD RT @acmoorephd: T3: T3: Not to be an advertisement for @LUNGevity, but we have some really great educational resources, including our #Lungcancer 101: https://t.co/8c19G4o0xD #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T3 It can be hard to be an engaged patient at times - prudent conversations about treatment or not wanting to disclose all side effects. That's why it is so important that your team knows your goals of treatment/care, what's impt to you, what tradeoffs willing to make, etc. #LCSM |
| #LCSM Chat @lcsmchat RT @acmoorephd: T3: T3: Not to be an advertisement for @LUNGevity, but we have some really great educational resources, including our #Lungcancer 101: https://t.co/8c19G4o0xD #LCSM |
| Alicia C. Staley @stales RT @JFreemanDaily: T4. How can physicians and engaged patients work together effectively? #LCSM |
| Danielle Pardue @Actorielle T4 respect, respect, respect. HCP is the subject matter expert. Pt is the lived experience expert AND the expert in their own life, preferences, abilities, goals, logistical capabilities, etc etc etc. It is a team with different roles. There is no hierarchy. #lcsm |
| #LCSM Chat @lcsmchat RT @Actorielle: T4 respect, respect, respect. HCP is the subject matter expert. Pt is the lived experience expert AND the expert in their own life, preferences, abilities, goals, logistical capabilities, etc etc etc. It is a team with different roles. There is no hierarchy. #lcsm |
| Danielle Pardue @Actorielle RT @acmoorephd: T3: T3: Not to be an advertisement for @LUNGevity, but we have some really great educational resources, including our #Lungcancer 101: https://t.co/8c19G4o0xD #LCSM |
| Alicia C. Staley @stales good evening - listening in and learning from all of you #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily By setting clear expectations. By understanding the channels of communication. By being partners on this journey. As a physician,I need to fight for and with my patients. #LCSM |
| #LCSM Chat @lcsmchat @stales Thanks for joining! #lcsm |
| Bob Steele @steele_bob RT @RManochakian: @JFreemanDaily By setting clear expectations. By understanding the channels of communication. By being partners on this journey. As a physician,I need to fight for and with my patients. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily By setting clear expectations. By understanding the channels of communication. By being partners on this journey. As a physician,I need to fight for and with my patients. #LCSM |
| Rami Manochakian MD, FASCO 🇺🇸🇸🇾CancerEducation @RManochakian @JFreemanDaily As a physician I need to keep my patients engaged. I need to guide them and direct them to the right resources and equip them with the right knowledge. #LCSM |
 | Laura Petrillo 🗽 @lpetrillz Joining very late from MA & catching up on this excellent discussion! #lcsm |
| Bob Steele @steele_bob RT @Actorielle: T4 respect, respect, respect. HCP is the subject matter expert. Pt is the lived experience expert AND the expert in their own life, preferences, abilities, goals, logistical capabilities, etc etc etc. It is a team with different roles. There is no hierarchy. #lcsm |
| Lillian Leigh GAICD @ProjectBreath T4 With open-mindedness. Make no assumptions about each other. Create an environment where patients/caregivers are welcome to ask any question they like. Be receptive of responses as well. #LCSM |
| Denise Cutlip @dennycee T4 the patients live in their body 24/7, dr should trust engaged patient who bring up new issues and not dismiss them #LCSM |
| #LCSM Chat @lcsmchat @lpetrillz Thank you for joining us! You can catch up with the transcript. #lcsm |
| Dr. Amy C. Moore @acmoorephd RT @RManochakian: @JFreemanDaily By setting clear expectations. By understanding the channels of communication. By being partners on this journey. As a physician,I need to fight for and with my patients. #LCSM |
| #LCSM Chat @lcsmchat RT @RManochakian: @JFreemanDaily As a physician I need to keep my patients engaged. I need to guide them and direct them to the right resources and equip them with the right knowledge. #LCSM |
| Aliye Bricker @AliyeBricker @lcsmchat @RedGia This is a tough one. It can be helpful to find a support group to bounce some of your questions off of, rather than go to your onc w/everything - this can be too much for some docs. Finding trusted online resources is key. Saving only the important questions for your onc. #LCSM |
| #LCSM Chat @lcsmchat RT @ProjectBreath: T4 With open-mindedness. Make no assumptions about each other. Create an environment where patients/caregivers are welcome to ask any question they like. Be receptive of responses as well. #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: T4 the patients live in their body 24/7, dr should trust engaged patient who bring up new issues and not dismiss them #LCSM |
| #LCSM Chat @lcsmchat RT @AliyeBricker: @lcsmchat @RedGia This is a tough one. It can be helpful to find a support group to bounce some of your questions off of, rather than go to your onc w/everything - this can be too much for some docs. Finding trusted online resources is key. Saving only the important questions for your onc. #LCSM |
| Eden Lake @EdenLake RT @AliyeBricker: T3: T3: We become engaged when we are tired of just feeling lost and scared. When we decide to start learning about why we are being treated with this or that, or start thinking about what might come next in our treatment if the current line doesn't work. #LCSM |
| Jill Feldman @jillfeldman4 T4 The most important conversations are not the data driven ones. Talk about goals of care before treatment! #LCSM |
| Eden Lake @EdenLake RT @JFreemanDaily: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
| Danielle Pardue @Actorielle T4 also need to drop a bit of practical wisdom that has affected us v often: HCPs need to understand the practicality of how “stuff” actually happens when they order it. We’ve been promised accommodations by HCPs that weren’t possible w/in the structure of the institution. #LCSM |
| Dr. Amy C. Moore @acmoorephd @Actorielle @lcsmchat @Actorielle #LCSM https://t.co/bzXWvm7Hp9 |
| kristen kimball @KimballKristen @acmoorephd @LUNGevity pls do advertise. Took us 2 yrs to find @LUNGevity and then only bc @LeciaSequist let us know about it! #LCSM |
| Bob Steele @steele_bob RT @AliyeBricker: @lcsmchat @RedGia This is a tough one. It can be helpful to find a support group to bounce some of your questions off of, rather than go to your onc w/everything - this can be too much for some docs. Finding trusted online resources is key. Saving only the important questions for your onc. #LCSM |
| Danielle Pardue @Actorielle RT @ProjectBreath: T4 With open-mindedness. Make no assumptions about each other. Create an environment where patients/caregivers are welcome to ask any question they like. Be receptive of responses as well. #LCSM |
| #LCSM Chat @lcsmchat We couldn’t agree more! #lcsm |
| #LCSM Chat @lcsmchat RT @KimballKristen: @acmoorephd @LUNGevity pls do advertise. Took us 2 yrs to find @LUNGevity and then only bc @LeciaSequist let us know about it! #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: T4 also need to drop a bit of practical wisdom that has affected us v often: T4 also need to drop a bit of practical wisdom that has affected us v often: HCPs need to understand the practicality of how “stuff” actually happens when they order it. We’ve been promised accommodations by HCPs that weren’t possible w/in the structure of the institution. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 The most important conversations are not the data driven ones. Talk about goals of care before treatment! #LCSM |
| Janet Freeman-Daily @JFreemanDaily T4: Sometimes physicians need to make good use of silence--ask the patient what matters to them, and WAIT for the answer. It's not something that many people think about before they get sick. #LCSM |
 | Gina @EAustin1969 RT @acmoorephd: T3: T3: Not to be an advertisement for @LUNGevity, but we have some really great educational resources, including our #Lungcancer 101: https://t.co/8c19G4o0xD #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: T4: T4: Sometimes physicians need to make good use of silence--ask the patient what matters to them, and WAIT for the answer. It's not something that many people think about before they get sick. #LCSM |
| Gina @EAustin1969 I’m here but late ❤️ #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: T4: T4: Sometimes physicians need to make good use of silence--ask the patient what matters to them, and WAIT for the answer. It's not something that many people think about before they get sick. #LCSM |
| Jill Feldman @jillfeldman4 T4 The most underrated skill of a physician is the ability to communicate with patients & families. Words used/body language all shape how we experience a terrifying time in their life & their comfort level with asking questions/being engaged. No pressure :) #LCSM |
| Lillian Leigh GAICD @ProjectBreath @dennycee Such a great point @dennycee! And the dr's trust empowers the patient to speak up without hesitation. #LCSM |
| #LCSM Chat @lcsmchat @EAustin1969 It’s so great to see you! Congrats, BTW. #LCSM |
| Danielle Pardue @Actorielle RT @jillfeldman4: T4 The most underrated skill of a physician is the ability to communicate with patients & families. Words used/body language all shape how we experience a terrifying time in their life & their comfort level with asking questions/being engaged. No pressure :) #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 The most underrated skill of a physician is the ability to communicate with patients & families. Words used/body language all shape how we experience a terrifying time in their life & their comfort level with asking questions/being engaged. No pressure :) #LCSM |
| #LCSM Chat @lcsmchat RT @ProjectBreath: @dennycee Such a great point @dennycee! And the dr's trust empowers the patient to speak up without hesitation. #LCSM |
| Alicia C. Staley @stales RT @AliyeBricker: T3: T3: We become engaged when we are tired of just feeling lost and scared. When we decide to start learning about why we are being treated with this or that, or start thinking about what might come next in our treatment if the current line doesn't work. #LCSM |
| Janet Freeman-Daily @JFreemanDaily Yup. This. #LCSM https://t.co/BB2KzWo0Nf |
| Alicia C. Staley @stales @JFreemanDaily even a moment to process all the info would be welcomed. #lcsm |
| Upstage Lung Cancer @UpstageLungCanc RT @jillfeldman4: T4 The most underrated skill of a physician is the ability to communicate with patients & families. Words used/body language all shape how we experience a terrifying time in their life & their comfort level with asking questions/being engaged. No pressure :) #LCSM |
| Upstage Lung Cancer @UpstageLungCanc RT @JFreemanDaily: T4: T4: Sometimes physicians need to make good use of silence--ask the patient what matters to them, and WAIT for the answer. It's not something that many people think about before they get sick. #LCSM |
| Janet Freeman-Daily @JFreemanDaily We’re in our final minutes - closing thoughts? #LCSM |
| Eden Lake @EdenLake @JFreemanDaily T4: open lines of communication. If you are someone that is better with written communication than phone/in person, recognize it, and seek out care teams that are understanding of it. My drs are great about this, despite being on 2 continents & cc me on everything. It helps #lcsm |
| Chrisarooski (She/her) @Career_Cupid @JFreemanDaily I find this super interesting. We have not once been asked about our goals of care. I guess, as an engaged patient, that should be a conversation to initiate at the next appt! #lcsm |
| Aakash Desai, MD, MPH @ADesaiMD T4: The best advice on having tough conversations with patient, I received from @DevikaDasMD, "Imagine you are in patients shoes, and communicate with them as you would like to be treated if you were a patient" #LCSM |
| #LCSM Chat @lcsmchat @KimballKristen @acmoorephd @LUNGevity @LeciaSequist We love @LeciaSequist! #lcsm |
| Jill Feldman @jillfeldman4 T4 The patient you care 'for' also want to know you care 'about' them. #LCSM |
| Lillian Leigh GAICD @ProjectBreath RT @JFreemanDaily: T4: T4: Sometimes physicians need to make good use of silence--ask the patient what matters to them, and WAIT for the answer. It's not something that many people think about before they get sick. #LCSM |
| Eden Lake @EdenLake RT @Actorielle: T4 respect, respect, respect. HCP is the subject matter expert. Pt is the lived experience expert AND the expert in their own life, preferences, abilities, goals, logistical capabilities, etc etc etc. It is a team with different roles. There is no hierarchy. #lcsm |
| Danielle Pardue @Actorielle RT @ADesaiMD: T4: T4: The best advice on having tough conversations with patient, I received from @DevikaDasMD, "Imagine you are in patients shoes, and communicate with them as you would like to be treated if you were a patient" #LCSM |
| Danielle Pardue @Actorielle @jillfeldman4 Yes, amen, as an individual and unique person. Not just a number or a prescription. #lcsm |
| Dr. Amy C. Moore @acmoorephd T4: “The single biggest problem in communication is the illusion that it has taken place." - George Bernard Shaw #LCSM |
| Denise Cutlip @dennycee Familiarize yourself with the best resources,read, research, communicate and trust #LCSM |
| #LCSM Chat @lcsmchat @EDWARDCUTLER2 We post a transcript. No worries. #lcsm |
| Danielle Pardue @Actorielle @acmoorephd YES. Speaks profound tomes that this comes from a playwright. Holding up a mirror to the study of being human. 💚 #lcsm |
| Sevtap Savas, PhD @savaslab @JFreemanDaily #LCSM https://t.co/f4ppHK4f6j |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: We’re in our final minutes - closing thoughts? #LCSM |
| #LCSM Chat @lcsmchat RT @EdenLake: @JFreemanDaily T4: @JFreemanDaily T4: open lines of communication. If you are someone that is better with written communication than phone/in person, recognize it, and seek out care teams that are understanding of it. My drs are great about this, despite being on 2 continents & cc me on everything. It helps #lcsm |
| Janet Freeman-Daily @JFreemanDaily CT: ALL patients can be engaged patients. Start where you are. Tell the doctor what matters to you, what info you do and don't want to know. Ask them to clarify when needed. Then build on that relationship. #LCSM |
| #LCSM Chat @lcsmchat RT @Career_Cupid: @JFreemanDaily I find this super interesting. We have not once been asked about our goals of care. I guess, as an engaged patient, that should be a conversation to initiate at the next appt! #lcsm |
| Jill Feldman @jillfeldman4 T4 Patients definitely have some responsibility but there is a real power imbalance that I'm not sure is always realized. Listen, listen, listen... you can't help someone if you don't know what they need/want. And a large dose of compassion goes a long way ❤️ #LCSM |
| Danielle Pardue @Actorielle Thank you so much @JFreemanDaily and @lcsmchat! You are such rockstars, as always! 💚 #LCSM |
| Bob Steele @steele_bob A ton of sage advice on tonight's monthly Lung Cancer Social Media Chat session! #LCSM |
| #LCSM Chat @lcsmchat RT @ADesaiMD: T4: T4: The best advice on having tough conversations with patient, I received from @DevikaDasMD, "Imagine you are in patients shoes, and communicate with them as you would like to be treated if you were a patient" #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 The patient you care 'for' also want to know you care 'about' them. #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: @jillfeldman4 Yes, amen, as an individual and unique person. Not just a number or a prescription. #lcsm |
| #LCSM Chat @lcsmchat RT @acmoorephd: T4: T4: “The single biggest problem in communication is the illusion that it has taken place." - George Bernard Shaw #LCSM |
| #LCSM Chat @lcsmchat RT @dennycee: Familiarize yourself with the best resources,read, research, communicate and trust #LCSM |
| #LCSM Chat @lcsmchat RT @Actorielle: @acmoorephd YES. Speaks profound tomes that this comes from a playwright. Holding up a mirror to the study of being human. 💚 #lcsm |
| Upstage Lung Cancer @UpstageLungCanc The hour always flies by far too quickly. Thank you, #lcsm! @lcsmchat @JFreemanDaily 💜💜💜 |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: CT: CT: ALL patients can be engaged patients. Start where you are. Tell the doctor what matters to you, what info you do and don't want to know. Ask them to clarify when needed. Then build on that relationship. #LCSM |
| #LCSM Chat @lcsmchat RT @jillfeldman4: T4 Patients definitely have some responsibility but there is a real power imbalance that I'm not sure is always realized. Listen, listen, listen... you can't help someone if you don't know what they need/want. And a large dose of compassion goes a long way ❤️ #LCSM |
| Laura Petrillo 🗽 @lpetrillz Appreciate all of the comments re: respect, humility, listening, appreciating respective expertise (patient and clinician) and giving space in communication #lcsm |
| kristen kimball @KimballKristen @lcsmchat @acmoorephd @LUNGevity @LeciaSequist with good reason! @LeciaSequist is a fantastic physician/scientist and phenomenal human being. #LCSM |
| Denise Cutlip @dennycee Thank you @JFreemanDaily great job! #LCSM |
| Lillian Leigh GAICD @ProjectBreath @JFreemanDaily Thanks as always @JFreemanDaily. So great to chat with everyone #LCSM |
| Preventive Medicine Bot @PreventiveBot RT @acmoorephd: T3: T3: Not to be an advertisement for @LUNGevity, but we have some really great educational resources, including our #Lungcancer 101: https://t.co/8c19G4o0xD #LCSM |
| Janet Freeman-Daily @JFreemanDaily Thank you all for participating in tonight's #LCSM Chat. Link to transcript will be posted shortly. Stay safe, all! |
| Gina @EAustin1969 RT @JFreemanDaily: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: T3: Learn how to search for vetted healthcare information online. Here are some tips from reliable sources: https://t.co/hgnHwCN9h6 #LCSM |
| Triage Cancer @TriageCancer Thank you to @JFreemanDaily, @lcsmchat, and the whole #lcsm crew for another great conversation! 😃 |
| Dr. Amy C. Moore @acmoorephd Final thoughts: glad life brought me fearless engaged patients and #advocates like you! Thanks for moderating, @JFreemanDaily! Good to "see" so many friends here tonight! #LCSM |
| #LCSM Chat @lcsmchat RT @JFreemanDaily: Thank you all for participating in tonight's #LCSM Chat. Link to transcript will be posted shortly. Stay safe, all! |
| #LCSM Chat @lcsmchat RT @acmoorephd: Final thoughts: Final thoughts: glad life brought me fearless engaged patients and #advocates like you! Thanks for moderating, @JFreemanDaily! Good to "see" so many friends here tonight! #LCSM |
| Bob Steele @steele_bob It was great sitting in on the chat session. I look forward to next month's session. Good night all and stay well! #lcsm |
| Danielle Pardue @Actorielle RT @jillfeldman4: T4 Patients definitely have some responsibility but there is a real power imbalance that I'm not sure is always realized. Listen, listen, listen... you can't help someone if you don't know what they need/want. And a large dose of compassion goes a long way ❤️ #LCSM |
| Danielle Pardue @Actorielle RT @JFreemanDaily: CT: CT: ALL patients can be engaged patients. Start where you are. Tell the doctor what matters to you, what info you do and don't want to know. Ask them to clarify when needed. Then build on that relationship. #LCSM |
| Aliye Bricker @AliyeBricker Engaged does not and should not mean 'Annoying' patient. It is possible to ask questions while still respecting your Onc's expertise in the subject matter. In the end our Onc's want us to be engaged, because patients who are invested in their care do better! #LCSM |
| #LCSM Chat @lcsmchat Thanks @JFreemanDaily for tonight, and for being an awesome friend. -Deana #LCSM |
| Angela Churie Kallhauge @AngelaAchurie @JFreemanDaily Thank you #LCSM https://t.co/Hm7yD2lqWq |
| Janet Freeman-Daily @JFreemanDaily @lcsmchat Backatcha, Deana! #LCSM |
| Jill Feldman @jillfeldman4 Are we done, lol? As always THANK YOU @JFreemanDaily & @lcsmchat! And thank you to everyone else for all the thoughtful tips (I still have a lot to read over). I love the passion, compassion and care in this community ❤️ Can't wait to see y'all IRL #LCSM |
| Dr. Amy C. Moore @acmoorephd RT @JFreemanDaily: CT: CT: ALL patients can be engaged patients. Start where you are. Tell the doctor what matters to you, what info you do and don't want to know. Ask them to clarify when needed. Then build on that relationship. #LCSM |
| Janet Freeman-Daily @JFreemanDaily @steele_bob Jump in and contribute your experiences next time, Bob! You've been doing the patient thing for a while now. #LCSM |
| kristen kimball @KimballKristen Thank you @JFreemanDaily @LungCancerFaces @lcsmchat and everyone for another wonderful "chat." so glad they're back on the calendar #LCSM |
 | Deb Smith 🌻🟧 @debsmithbeach @lcsmchat Sorry I missed this. I fell asleep… Deb from NH, just celebrated 10 years since diagnosis and another birthday I didn’t expect to see. Cheers! #LCSM |
| kristen kimball @KimballKristen @debsmithbeach @lcsmchat If this chat had been a few hours earlier - that would've been me. Hi Deb, and congratulations on 10 years, wow! #LCSM |
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