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#LupusChat Transcript

Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.

ProfileTweet
Carly by Nature @SynceNerd_Carli
Aye!! It's #LupusChat Tiiiiiiime!!! Let's Goooooo!!! https://t.co/Ntj8iSjO2a
#LupusChat @Lupus_Chat
Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb
#LupusChat @Lupus_Chat
Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: Aye!! It's #LupusChat Tiiiiiiime!!! Let's Goooooo!!! https://t.co/Ntj8iSjO2a
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb
Jillian G @Jillian_Gomes
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb
UMass Lupus @UMassLupus
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
UMass Lupus @UMassLupus
RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos los variados roles que podemos desempeñar al considerar el empoderamiento, la importancia del trabajo que hacemos y cómo magnificar los esfuerzos de nuestro impacto. https://t.co/xPzdklChYb
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @SynceNerd_Carli: Aye!! It's #LupusChat Tiiiiiiime!!! Let's Goooooo!!! https://t.co/Ntj8iSjO2a
#LupusChat @Lupus_Chat
Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas.
#LupusChat @Lupus_Chat
Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly.
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly.
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas.
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly.
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly.
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas.
RaquelRoschell @raquelonpurpose
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Carly by Nature @SynceNerd_Carli
Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b
#LupusChat @Lupus_Chat
Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Oi3vH7PUQM
#LupusChat @Lupus_Chat
Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly.
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Oi3vH7PUQM
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/Oi3vH7PUQM
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp
#LupusChat @Lupus_Chat
Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G
#LupusChat @Lupus_Chat
Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/cFSUrQHuLp
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. https://t.co/vKrZFeKfDn
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G
RaquelRoschell @raquelonpurpose
@Lupus_Chat Let's go! It's #LupusChat time!
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G
#LupusChat @Lupus_Chat
As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9
#LupusChat @Lupus_Chat
Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/YZceeKPtZL
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9
Tiffany ⁷ @TiffanyAndLupus
RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time!
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
Carly by Nature @SynceNerd_Carli
RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time!
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/YZceeKPtZL
#LupusChat @Lupus_Chat
Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A
#LupusChat @Lupus_Chat
Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time!
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/b3hIRedHz9
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/YZceeKPtZL
Caring For Lupus @CaringForLupus
Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A
Caring For Lupus @CaringForLupus
Hola ... Soy Elizabeth de NJ y co-anfitriona de #LupusChat. Mi hija de doce años es Lupus Warrior 💜💪. Una de nuestras tradiciones favoritas es reunirnos cada dos semanas. Somos aproximadamente 25 de nosotros ... entre los pequeños y los adultos. https://t.co/hgoQ5y5Hmh
#LupusChat @Lupus_Chat
RT @CaringForLupus: Hola ... Soy Elizabeth de NJ y co-anfitriona de #LupusChat. Mi hija de doce años es Lupus Warrior 💜💪. Una de nuestras tradiciones favoritas es reunirnos cada dos semanas. Somos aproximadamente 25 de nosotros ... entre los pequeños y los adultos. https://t.co/hgoQ5y5Hmh
#LupusChat @Lupus_Chat
RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5
#LupusChat @Lupus_Chat
RT @raquelonpurpose: @Lupus_Chat Let's go! It's #LupusChat time!
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: Hola ... Soy Elizabeth de NJ y co-anfitriona de #LupusChat. Mi hija de doce años es Lupus Warrior 💜💪. Una de nuestras tradiciones favoritas es reunirnos cada dos semanas. Somos aproximadamente 25 de nosotros ... entre los pequeños y los adultos. https://t.co/hgoQ5y5Hmh
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st.
Tiffany ⁷ @TiffanyAndLupus
Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st.
#LupusChat @Lupus_Chat
RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st.
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Joumou, not jew-mew.
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5
Friends AgainstLupus @AgainstLupus
RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st.
Friends AgainstLupus @AgainstLupus
RT @CaringForLupus: Hi....Im Elizabeth from NJ and a #LupusChat co-host. My twelve year old daughter is a Lupus Warrior 💜💪. One of our favorite traditions is getting together every two weeks.. It's about 25 of us....between the little ones and the adults. https://t.co/ZQCkijYsl5
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI
Caring For Lupus @CaringForLupus
RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st.
Friends AgainstLupus @AgainstLupus
RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI
Carly by Nature @SynceNerd_Carli
RT @Xtel007: Hi everyone, I’m Christele, one of your #LupusChat co-hosts here in Queens, NY. I was diagnosed in 2007 and have been advocating in some form or another since then. My fav tradition ever is soup joumou on Jan 1st.
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, cual es su tradición favorita? https://t.co/1h3Fofyd6A
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: Hey y’all! I’m Tiffany, your #LupusChat co-host from New York City. No meal is complete to me without some dessert right after & my favorite tradition is having a #SiblingDay with my 5 brothers and sisters! https://t.co/KWU41NuZnI
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Carly by Nature @SynceNerd_Carli
Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG
Friends AgainstLupus @AgainstLupus
RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG
Carly by Nature @SynceNerd_Carli
Both give me an opportunity to spend time with family that I don’t get to see during other parts of the year. Plus my siblings and cousins are all clowns so its non-stop laughter. #LupusChat https://t.co/BVqDOaBzID
#LupusChat @Lupus_Chat
#LupusChat
Carly by Nature @SynceNerd_Carli
¡Bienvenidos todos! Soy Carly, defensora de pacientes y copresentadora de #LupusChat. Mis tradiciones favoritas están ligadas. Navidad por parte de mi madre y las vacaciones familiares anuales por parte de mi padre. https://t.co/iqwwruzUPW
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the varied roles we can play when considering advocacy, the importance of the work we do and how to magnify the efforts of our impact. https://t.co/OAnCww04b1
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: ¡Bienvenidos todos! Soy Carly, defensora de pacientes y copresentadora de #LupusChat. Mis tradiciones favoritas están ligadas. Navidad por parte de mi madre y las vacaciones familiares anuales por parte de mi padre. https://t.co/iqwwruzUPW
UMass Lupus @UMassLupus
Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: Both give me an opportunity to spend time with family that I don’t get to see during other parts of the year. Plus my siblings and cousins are all clowns so its non-stop laughter. #LupusChat https://t.co/BVqDOaBzID
#LupusChat @Lupus_Chat
@SheWhoRises gentle reminder to use the #LupusChat hashtag so we can see your responses!
Rev. Dr. 4WheelWorkout @4WheelWorkOut
I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/241QgEqa8G
Tiffany ⁷ @TiffanyAndLupus
RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
Friends AgainstLupus @AgainstLupus
RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
#LupusChat @Lupus_Chat
RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat
Carly by Nature @SynceNerd_Carli
Ambos me dan la oportunidad de pasar tiempo con la familia que no puedo ver durante otras partes del año. Además, mis hermanos y primos son todos payasos, así que es una risa sin parar. #LupusChat https://t.co/bstRBooRzn
#LupusChat @Lupus_Chat
RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
Tiffany ⁷ @TiffanyAndLupus
RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat
Carly by Nature @SynceNerd_Carli
RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
RaquelRoschell @raquelonpurpose
Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
@UMassLupus @Lupus_Chat Hi Jillian. Welcome! #LupusChat
Carly by Nature @SynceNerd_Carli
@4WheelWorkOut Thanks for joining us, T! Always a pleasure. #LupusChat 💜
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
Friends AgainstLupus @AgainstLupus
RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
Caring For Lupus @CaringForLupus
RT @4WheelWorkOut: I'm Tiara. As usual I'm here to learn (I don't have Lupus but many of the symptoms mirror my invisibles). I'm from CA. My fave tradition was roadtripping to NC, stopping at Parkers before getting my granny's home, & the post office for a cherry pepsi (old school style) #LupusChat
#LupusChat @Lupus_Chat
RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
Caring For Lupus @CaringForLupus
RT @UMassLupus: Hi everyone! I'm Jillian from UMass. I am a lupus researcher. Looking forward to #LupusChat !
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: Welcome everyone! I’m Carly, Patient Advocate and a Co-host of #LupusChat. My favorite traditions are tied. Christmas time on my mom’s side and the annual family vacation on my Dad’s side. https://t.co/zMO0tZWClG
#LupusChat @Lupus_Chat
Is everyone ready? Here comes Question 1! #LupusChat https://t.co/n7Q3zOHVdn
#LupusChat @Lupus_Chat
Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/jbMiQA8Uxo
Tiffany ⁷ @TiffanyAndLupus
@UMassLupus Hi Jillian! So happy to have you join us at #LupusChat today!
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat
Carly by Nature @SynceNerd_Carli
@UMassLupus Hi Jillian! Thanks for joining us for #LupusChat today. And thank you for all you do! 💜
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat
#LupusChat @Lupus_Chat
Q1: Con qué tipos de campañas de promoción de empoderamiento y abogacía está familiarizado? #LupusChat https://t.co/ceckWpsdO0
#LupusChat @Lupus_Chat
Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: @SheWhoRises gentle reminder to use the #LupusChat hashtag so we can see your responses!
Friends AgainstLupus @AgainstLupus
RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat
Jillian G @Jillian_Gomes
@Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @raquelonpurpose: Hi! I'm Raquel from TX. I'm advocate for me and others in my community..the nation. My favorite tradition is my morning coffee ☕ #LupusChat
Caring For Lupus @CaringForLupus
RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat Jillian here originally from Hawaii/Guam..currently in Jersey City..diagnosed in 2017..I am a SoulCycle addict, love movies...one of my favorite traditions is Thanksgiving with the family. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
Adri @supacooladri
Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat
RaquelRoschell @raquelonpurpose
@Lupus_Chat A1 : Meaning Lupus advocacy campaigns or any kind? #LupusChat
Caring For Lupus @CaringForLupus
A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr
Carly by Nature @SynceNerd_Carli
@raquelonpurpose Thanks for joining us for #LupusChat, Raquel. Always great to have you with us. Also, coffee is a MUST!
Tiffany ⁷ @TiffanyAndLupus
A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Is everyone ready? Here comes Question 1! #LupusChat https://t.co/n7Q3zOHVdn
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/jbMiQA8Uxo
Carly by Nature @SynceNerd_Carli
RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving lupus since 1995. Favorite tradition is having chips and dip and sparkling water on New Year's Day. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May.
Caring For Lupus @CaringForLupus
A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat
Carly by Nature @SynceNerd_Carli
@iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat, Ivey! 💜
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Q1: Q1: Con qué tipos de campañas de promoción de empoderamiento y abogacía está familiarizado? #LupusChat https://t.co/ceckWpsdO0
Caring For Lupus @CaringForLupus
A1 Anualmente, alrededor de Marzo, diferentes organizaciones de Lupus organizan una campaña en persona y en línea en DC para abogar para aumentar fondos para Lupus Research 🔬. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May.
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat
Kate Sattler | Sweet Freeze @katesattler
@Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat
#LupusChat @Lupus_Chat
RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat
Rev. Dr. 4WheelWorkout @4WheelWorkOut
RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May.
Caring For Lupus @CaringForLupus
A1 Every year @KathleenArntsen with the @LADAOrg host a advocacy event in Albany 🦋💪. Patients are invited and all travel expenses are covered by the organization 💜💜.
Carly by Nature @SynceNerd_Carli
@Jillian_Gomes @Lupus_Chat Thanks for joining us for #LupusChat Jillian! 💜
#LupusChat @Lupus_Chat
@raquelonpurpose It can be any kind of lupus advocacy. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May.
Jillian G @Jillian_Gomes
@Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat
Caring For Lupus @CaringForLupus
A1 Todos los años @KathleenArntsen con @LADAOrg organiza un evento de promoción en Albany 🦋💪. Los pacientes están invitados y todos los gastos de viaje están cubiertos por la organización 💜💜.
Carly by Nature @SynceNerd_Carli
RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat
itsmorenamorena @itsmorenamorena
@Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 Anualmente, alrededor de Marzo, diferentes organizaciones de Lupus organizan una campaña en persona y en línea en DC para abogar para aumentar fondos para Lupus Research 🔬. #LupusChat
Caring For Lupus @CaringForLupus
A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat
Caring For Lupus @CaringForLupus
RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat
RaquelRoschell @raquelonpurpose
RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Meaning Lupus advocacy campaigns or any kind? #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A1 Anualmente, alrededor de Marzo, diferentes organizaciones de Lupus organizan una campaña en persona y en línea en DC para abogar para aumentar fondos para Lupus Research 🔬. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May.
Tiffany ⁷ @TiffanyAndLupus
RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A1. I know of other advocates who do the same in their respective cities. It’s very inspiring. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: Hi everyone happy Sunday! I'm Adriana from San Diego....don't really many traditions but I do love to bake! #LupusChat
Caring For Lupus @CaringForLupus
RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A1: A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat
Caring For Lupus @CaringForLupus
RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat
Adri @supacooladri
A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat
#LupusChat @Lupus_Chat
RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A1: A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth.
#LupusChat @Lupus_Chat
RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat
Caring For Lupus @CaringForLupus
A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q1: Q1: What types of advocacy campaigns are you familiar with? #LupusChat https://t.co/bHuLsmSzf7
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q1: Q1: Con qué tipos de campañas de promoción de empoderamiento y abogacía está familiarizado? #LupusChat https://t.co/ceckWpsdO0
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth.
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat
itsmorenamorena @itsmorenamorena
RT @CaringForLupus: A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr
Caring For Lupus @CaringForLupus
A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Caring For Lupus @CaringForLupus
A1 Todos los años desde el diagnóstico de Miah, organizo un evento de Ceremonia 🎀 en Kearny NJ para celebrar el comienzo del Mes de Conciencia del Lupus en los Estados Unidos. #LupusChat https://t.co/Yspmz333j1
Caring For Lupus @CaringForLupus
A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Caring For Lupus @CaringForLupus
1. Muchos defensores de Lupus trabajan con sus representantes de la ciudad correspondientes para solicitar una Proclamación 📜 designando Mayo como el Mes de la Conciencia del Lupus en su ciudad. #LupusChat
Carly by Nature @SynceNerd_Carli
@supacooladri Welcome to #LupusChat, Adriana! Thanks for joining us.
Carly by Nature @SynceNerd_Carli
A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth.
itsmorenamorena @itsmorenamorena
A1: Well...to begin...#LupusChat! 💜❤️
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A1. There are yearly advocacy campaigns in DC (and virtually) to reach out to elected officials, as well as state-based efforts. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A1: A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth.
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth.
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Friends AgainstLupus @AgainstLupus
RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Caring For Lupus @CaringForLupus
RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️
Caring For Lupus @CaringForLupus
A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat
⚜️Rev johnboy freeman⚜️dna provenrelated2 st luke @RevJohnboy
RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat
#LupusChat @Lupus_Chat
RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️
Friends AgainstLupus @AgainstLupus
RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: El coanfitrión de #LupusChat, @CaringForLupus, también organiza una ceremonia de corte de cinta para comenzar #LupusAwarenessMonth.
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @SynceNerd_Carli: A1: A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth.
#LupusChat @Lupus_Chat
RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Carly by Nature @SynceNerd_Carli
A1: Throughout the year both local and national organizations host trainings, awareness events, educational meetings, and community outreach events. #LupusChat
#LupusChat @Lupus_Chat
People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ
#LupusChat @Lupus_Chat
Las personas a menudo tienen sus propias ideas sobre lo que significa ser un defensor y lo que es. Para la pregunta 2, exploremos las realidades abogacia. #LupusChat https://t.co/KcxRRSWMSJ
Friends AgainstLupus @AgainstLupus
RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 Todos los años desde el diagnóstico de Miah, organizo un evento de Ceremonia 🎀 en Kearny NJ para celebrar el comienzo del Mes de Conciencia del Lupus en los Estados Unidos. #LupusChat https://t.co/Yspmz333j1
Friends AgainstLupus @AgainstLupus
RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: Throughout the year both local and national organizations host trainings, awareness events, educational meetings, and community outreach events. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Jillian_Gomes: @Lupus_Chat A1. I am familiar with things like the Lupus Walk..and only recently started to try and find peer groups. #LupusChat
Carly by Nature @SynceNerd_Carli
@raquelonpurpose @Lupus_Chat Lupus advocacy, but also any healthcare related campaign information is welcomed. 😊 #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 A campaign I'm familiar with...is the #Lupuschat May Awareness month!!!! Every Sunday during May we host a Twitter chat at 3pm Eastern Time . https://t.co/DGbWJ3TDkr
#LupusChat @Lupus_Chat
RT @CaringForLupus: 1. Muchos defensores de Lupus trabajan con sus representantes de la ciudad correspondientes para solicitar una Proclamación 📜 designando Mayo como el Mes de la Conciencia del Lupus en su ciudad. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A1. My dear friend and #LupusChat co-host @CaringForLupus also works with her local officials, and hosts ribbon cutting ceremonies annually to announce Lupus Awareness Month in May.
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 Annually around March different Lupus organizations host a in-person and online campaign in DC to advocate to increase funds for Lupus Research 🔬. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A1. During Lupus Awareness Month in May, #LupusChat hosts a chat every Sunday.
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@SynceNerd_Carli @Lupus_Chat Thanks. 💜 #LupusChat
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: @Lupus_Chat I'm Stephanie, in the A-T-L, lupus has been living with me going on 7 years, and my family used to have a day-after-Thanksgiving Fish Fry that was legendary. Lots of food, folks, fun times. #LupusChat
itsmorenamorena @itsmorenamorena
A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @katesattler: @Lupus_Chat I’m Kate in Portland. Diagnosed w lupus in 2018. Hmm...need to think a bit on the favorite tradition. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: Durante todo el año, las organizaciones locales y nacionales organizan capacitaciones, eventos de sensibilización, reuniones educativas y eventos de divulgación comunitaria. #LupusChat
#LupusChat @Lupus_Chat
Q2: Qué es algo nuevo que aprendiste sobre abogacía el año pasado? #LupusChat https://t.co/2lgBp7Y0jw
#LupusChat @Lupus_Chat
Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
Tiffany ⁷ @TiffanyAndLupus
RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️
Friends AgainstLupus @AgainstLupus
RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️
#LupusChat @Lupus_Chat
RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : Meaning Lupus advocacy campaigns or any kind? #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A1: A1: #LupusChat Co-host, @CaringForLupus, also hosts a ribbon cutting ceremony to kick off #LupusAwarenessMonth.
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat
UMass Lupus @UMassLupus
A1: I have seen most of the major foundations (@LupusResearch LRA, @LupusOrg LFA) have petitions people can sign, and advocacy days where you can meet with your representatives on Capitol Hill. I participated in the @ImmunologyAAI public policy fellowship for research advocacy
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: Durante todo el año, las organizaciones locales y nacionales organizan capacitaciones, eventos de sensibilización, reuniones educativas y eventos de divulgación comunitaria. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
#LupusChat @Lupus_Chat
RT @itsmorenamorena: A1: A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A1. During Lupus Awareness Month in May, #LupusChat hosts a chat every Sunday.
Carly by Nature @SynceNerd_Carli
@itsmorenamorena @Lupus_Chat Welcome back Stephanie. Always great to have you with us for #LupusChat. But also...sis, when we doing a fish fry? 👀
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 During the annual DC Hill event, patients and caregivers share their experiences with elected representatives and advocate for the necessity of better and new treatments for Lupus 🔬. #LupusChat
itsmorenamorena @itsmorenamorena
A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
Carly by Nature @SynceNerd_Carli
A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat
UMass Lupus @UMassLupus
RT @SynceNerd_Carli: A1: A1: En lo que respecta a la defensa del lupus, están los eventos Cumbre de defensa y Hill Day dirigidos por @LupusOrg y @LupusResearch. También hay un evento de promoción del estado de Nueva York organizado por @LADAOrg cada año. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
RaquelRoschell @raquelonpurpose
RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q2: Q2: Qué es algo nuevo que aprendiste sobre abogacía el año pasado? #LupusChat https://t.co/2lgBp7Y0jw
UMass Lupus @UMassLupus
RT @CaringForLupus: A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat
#LupusChat @Lupus_Chat
RT @itsmorenamorena: A1: A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat
UMass Lupus @UMassLupus
RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat
Kate Sattler | Sweet Freeze @katesattler
@Lupus_Chat Feel like #LupusChat is among the most powerful advocacy
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A2: A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A1: A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat
UMass Lupus @UMassLupus
RT @TiffanyAndLupus: A1: A1: I’m familiar with the large scale advocacy days that both @lupusorg & @lupusresearch host annually where they gather lupus patients all across the country to lobby in DC to secure finances to fund lupus research. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Xtel007: A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @TiffanyAndLupus: A2: A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: Muchos defensores también van a DC y sus Capitols estatales durante todo el año para trabajar en la aprobación de la legislación de salud clave a nivel local y federal. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat
Carly by Nature @SynceNerd_Carli
@Marilyn_Allen1 @UMBC Hey Marilyn!! Thanks so much for joining us for #LupusChat today! Appreciate all the work you do 💜
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: Muchos defensores también van a DC y sus Capitols estatales durante todo el año para trabajar en la aprobación de la legislación de salud clave a nivel local y federal. #LupusChat
itsmorenamorena @itsmorenamorena
@TiffanyAndLupus What desserts have you had today so far? I need ideas for my next grocery delivery. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @supacooladri: A1: A1: I usually participate in the virtual summit every year and letters to my representatives. Locally I participate in the LRA walk and work with my local lupus foundation #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A2: A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 Durante el evento anual de DC Hill, los pacientes y cuidadores comparten sus experiencias con representantes electos y abogan por la necesidad de mejores y nuevos tratamientos para Lupus 🔬. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 Todos los años desde el diagnóstico de Miah, organizo un evento de Ceremonia 🎀 en Kearny NJ para celebrar el comienzo del Mes de Conciencia del Lupus en los Estados Unidos. #LupusChat https://t.co/Yspmz333j1
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 . Many Lupus advocates work closely with their corresponding town representatives to request a Proclamation 📜 designating May as Lupus Awareness Month in their town. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: 1. Muchos defensores de Lupus trabajan con sus representantes de la ciudad correspondientes para solicitar una Proclamación 📜 designando Mayo como el Mes de la Conciencia del Lupus en su ciudad. #LupusChat
Hydrotroop91 @hydrotroop91
RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your favorite tradition? https://t.co/BnkJpFCvCq
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: A1: A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: Muchos defensores también van a DC y sus Capitols estatales durante todo el año para trabajar en la aprobación de la legislación de salud clave a nivel local y federal. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: A1: A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: También hay defensores que trabajan con legisladores locales y federales para tener proclamaciones y resoluciones del Mes de Conciencia del Lupus para su ciudad y estado. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat
Caring For Lupus @CaringForLupus
RT @itsmorenamorena: A1: A1: And lots of other Twitter Chat campaigns, some of which I participate, that advocacy for chronic illness, disability, etc. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: Durante todo el año, las organizaciones locales y nacionales organizan capacitaciones, eventos de sensibilización, reuniones educativas y eventos de divulgación comunitaria. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A1: A1: Many advocates also go to DC and their state Capitols throughout the year to work on getting key healthcare legislation passed on the local and federal level. #LupusChat
Kate Sattler | Sweet Freeze @katesattler
@Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
Caring For Lupus @CaringForLupus
RT @itsmorenamorena: A1: A1: Also, annual Lupus Walks put on by @LupusOrg chapters, and day of advocacy every year organized by @LupusGeorgia #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A1. During Lupus Awareness Month in May, #LupusChat hosts a chat every Sunday.
Carly by Nature @SynceNerd_Carli
A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: Hay defensores que asisten a reuniones de investigación y conferencias durante todo el año y difunden la información discutida en sus comunidades. Esto ayuda a mantener informados y educados a los pacientes y a otras personas. #LupusChat
Carly by Nature @SynceNerd_Carli
A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat
Caring For Lupus @CaringForLupus
RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: Throughout the year both local and national organizations host trainings, awareness events, educational meetings, and community outreach events. #LupusChat
#LupusChat @Lupus_Chat
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A1: A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat
Carly by Nature @SynceNerd_Carli
Ayyyeee!!! 🔥🔥🔥 #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A2. The advocacy space is not near as accessible as it should be, especially for a space that is supposed to be FOR PATIENTS. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: A1: A1: Well...to begin...#LupusChat! 💜❤️
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A2: A2: I learned that there are still major gaps that have not been filled when it comes to lupus advocacy. There is still so much more that can be done both physically & virtually. What currently exists is not enough. & I hope to help fill that gap. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A2. I've also experienced how great it is when collaboration/support/fellowship happens among patient advocates. We can learn from each other how to work better with our respective communities. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A2: A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat
Caring For Lupus @CaringForLupus
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: Hay defensores que asisten a reuniones de investigación y conferencias durante todo el año y difunden la información discutida en sus comunidades. Esto ayuda a mantener informados y educados a los pacientes y a otras personas. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat
itsmorenamorena @itsmorenamorena
RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat
RaquelRoschell @raquelonpurpose
RT @TiffanyAndLupus: A1: A1: I really love the patient-driven advocacy day that @KathleenArntsen host annually with @LADAorg in Albany each May. She asks lupus patients who have become advocates to join her & ensures that all finances are paid for them to participate. #LupusChat
Carly by Nature @SynceNerd_Carli
A2: Una cosa que aprendí fue cuán exclusivo es el espacio de abogacia. Se podría pensar que, dado que está diseñado para ayudar a los pacientes, incluiría a más pacientes en muchos de los procesos. Este no es el caso. #LupusChat
#LupusChat @Lupus_Chat
Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q
#LupusChat @Lupus_Chat
Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/kqTSq4s2mY
Tiffany ⁷ @TiffanyAndLupus
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
Friends AgainstLupus @AgainstLupus
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
Kate Sattler | Sweet Freeze @katesattler
@TiffanyAndLupus A2 I agree and same!! #LupusChat
Caring For Lupus @CaringForLupus
A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat
Carly by Nature @SynceNerd_Carli
RT @SynceNerd_Carli: Aye! It's #LupusChat Sunday. Sooooo y'all already know, for the next hour and change that's all the content coming from over here. Please, mute as needed or stick around and learn something. It's up to you. https://t.co/GPsGpJz69b
Caring For Lupus @CaringForLupus
A2 Durante el año pasado, aprendí que necesitamos más representación del paciente en seminarios, conferencias, reuniones de investigación, etc. #Lupuschat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q2: Q2: Qué es algo nuevo que aprendiste sobre abogacía el año pasado? #LupusChat https://t.co/2lgBp7Y0jw
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
#LupusChat @Lupus_Chat
RT @CaringForLupus: A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat
Jillian G @Jillian_Gomes
@Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q
💜⚽🇭🇹♊ Xtel Bond @Xtel007
💜
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/kqTSq4s2mY
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: Una cosa que aprendí fue cuán exclusivo es el espacio de abogacia. Se podría pensar que, dado que está diseñado para ayudar a los pacientes, incluiría a más pacientes en muchos de los procesos. Este no es el caso. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov
Carly by Nature @SynceNerd_Carli
A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat
#LupusChat @Lupus_Chat
Ahora que hemos discutido las complejidades de aborgacia, para la Pregunta 3 nos centraremos en las diferentes formas en que podemos participar en el proceso. #LupusChat https://t.co/eTB4Vn1yyO
#LupusChat @Lupus_Chat
Now that we’ve discussed the complexities of advocacy, for Question 3 we’ll move onto the different ways we can play a part in the process. #LupusChat https://t.co/08ESpXTVUB
itsmorenamorena @itsmorenamorena
@Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Las personas a menudo tienen sus propias ideas sobre lo que significa ser un defensor y lo que es. Para la pregunta 2, exploremos las realidades abogacia. #LupusChat https://t.co/KcxRRSWMSJ
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: People often have their own ideas about what advocacy is and consists of. For Question 2, let’s explore the realities of the advocacy space. #LupusChat https://t.co/DaaGSVcOFJ
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Q2: Q2: What is something new you learned about advocacy in the past year? #LupusChat https://t.co/Xd9n5l2fYj
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A2: A2: Una cosa que aprendí fue cuán exclusivo es el espacio de abogacia. Se podría pensar que, dado que está diseñado para ayudar a los pacientes, incluiría a más pacientes en muchos de los procesos. Este no es el caso. #LupusChat
Adri @supacooladri
A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @iveyjanette_207: @Lupus_Chat A1. I'm familiar with the grassroots campaigns by both @LupusOrg and @LupusResearch. Both in Washington and at the community/state level: lobbying,races,events. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
You mean A2, I think #LupusChat
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A2: A2: Aprendí que todavía hay lagunas que no se han llenado cuando se trata de la promoción del lupus. Hay más que se puede hacer tanto físicamente como virtualmente. Lo que existe actualmente no es suficiente y espero ayudar a llenar ese vacío. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Now that we’ve discussed the complexities of advocacy, for Question 3 we’ll move onto the different ways we can play a part in the process. #LupusChat https://t.co/08ESpXTVUB
itsmorenamorena @itsmorenamorena
RT @CaringForLupus: A1 Every year since Miah's diagnosis, I organize a Ribbon 🎀 Ceremony event in Kearny NJ to celebrate the beginning of Lupus Awareness Month in The United States. #LupusChat https://t.co/LZMrxHjfTn
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat
UMass Lupus @UMassLupus
And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat
Carly by Nature @SynceNerd_Carli
A2: También aprendí que hay organizaciones que no hacen que sus eventos sean tan accesibles para las personas como deberían ser. Esto necesita cambiar. #LupusChat
#LupusChat @Lupus_Chat
Q3: Qué tipos de métodos puedes usar para que tu voz se escuche? #LupusChat https://t.co/dwTmfmWubW
#LupusChat @Lupus_Chat
Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
Caring For Lupus @CaringForLupus
RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
Caring For Lupus @CaringForLupus
RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat
Caring For Lupus @CaringForLupus
RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: También aprendí que hay organizaciones que no hacen que sus eventos sean tan accesibles para las personas como deberían ser. Esto necesita cambiar. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat A2. More needs to be done. Especially at the state and local level. There's nothing here in NM,for example. #LupusChat
#LupusChat @Lupus_Chat
RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat
#LupusChat @Lupus_Chat
RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat
#LupusChat @Lupus_Chat
RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
itsmorenamorena @itsmorenamorena
RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @SynceNerd_Carli: A1: A1: There are also a advocates that work with local and federal legislators to have Lupus Awareness Month proclamations and resolutions for their city and state. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat
Carly by Nature @SynceNerd_Carli
A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
UMass Lupus @UMassLupus
It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q3: Q3: Qué tipos de métodos puedes usar para que tu voz se escuche? #LupusChat https://t.co/dwTmfmWubW
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A2: A2: También aprendí que hay organizaciones que no hacen que sus eventos sean tan accesibles para las personas como deberían ser. Esto necesita cambiar. #LupusChat
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat A2. More needs to be done. Especially at the state and local level. There's nothing here in NM,for example. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A2: A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat
#LupusChat @Lupus_Chat
RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A2: A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat
Carly by Nature @SynceNerd_Carli
A2: Además, se necesita mucho para reunirse con legisladores en la colina. Es tanto física como mentalmente exigente. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Carly by Nature @SynceNerd_Carli
#LupusChat I mean.... https://t.co/B7vVEAzjvP
RaquelRoschell @raquelonpurpose
@Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat
UMass Lupus @UMassLupus
A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
#LupusChat @Lupus_Chat
RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Thank you, thank you very much.
#LupusChat @Lupus_Chat
RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat
Carly by Nature @SynceNerd_Carli
@katesattler @Lupus_Chat We appreciate you and your continued support, Kate! #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Carly by Nature @SynceNerd_Carli
A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat
Carly by Nature @SynceNerd_Carli
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/axPKzSwy2q
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/kqTSq4s2mY
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A2 During the last year's, I have learned that we need more patient representation in Seminars, Conferences, Research meetings, etc. #Lupuschat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A2 Durante el año pasado, aprendí que necesitamos más representación del paciente en seminarios, conferencias, reuniones de investigación, etc. #Lupuschat
Carly by Nature @SynceNerd_Carli
RT @Jillian_Gomes: @Lupus_Chat A2. Honestly, it’s been quite challenging to easily find other local advocacy opportunities outside the large organizations. To find a consistent peer group meeting took some digging..even some of the local information on the larger organization sites is inaccurate. #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat
itsmorenamorena @itsmorenamorena
All of this👇🏾💜 #LupusChat
Jillian G @Jillian_Gomes
@Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat
Carly by Nature @SynceNerd_Carli
A2: Todavía queda mucho trabajo por hacer en el espacio de la atención médica y espero que todos puedan unirse para hacer un cambio REAL. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat
itsmorenamorena @itsmorenamorena
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @itsmorenamorena: All of this👇🏾💜 #LupusChat
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat A3. The most accessible: @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet.
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A3: A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat
Caring For Lupus @CaringForLupus
A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A2: A2: Todavía queda mucho trabajo por hacer en el espacio de la atención médica y espero que todos puedan unirse para hacer un cambio REAL. #LupusChat
Carly by Nature @SynceNerd_Carli
@Jillian_Gomes @Lupus_Chat Agreed! This has been one of the biggest struggles. My goal is to try and provide these resources within my community to try to help. #LupusChat
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet.
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Now that we’ve discussed the complexities of advocacy, for Question 3 we’ll move onto the different ways we can play a part in the process. #LupusChat https://t.co/08ESpXTVUB
The Lupus Rainbow @thelupusrainbow
A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
#LupusChat @Lupus_Chat
RT @CaringForLupus: A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Ahora que hemos discutido las complejidades de aborgacia, para la Pregunta 3 nos centraremos en las diferentes formas en que podemos participar en el proceso. #LupusChat https://t.co/eTB4Vn1yyO
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: @Lupus_Chat A2: @Lupus_Chat A2: It can be as simple as speaking up. It doesn't have to be a formal, defined activity. Advocacy can be sharing your experience and raising awareness. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: @Jillian_Gomes @Lupus_Chat Agreed! This has been one of the biggest struggles. My goal is to try and provide these resources within my community to try to help. #LupusChat
#LupusChat @Lupus_Chat
RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat
Caring For Lupus @CaringForLupus
A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Yes, this!!!!!! #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat
Caring For Lupus @CaringForLupus
RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet.
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Caring For Lupus @CaringForLupus
A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q3: Q3: What types of methods can you use to make your voice heard? #LupusChat https://t.co/UkdIXMRCMM
Carly by Nature @SynceNerd_Carli
RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
@itsmorenamorena I've only had some nutter butter cookies today, but I plan to have some chocolate cake later after lunch! #LupusChat
itsmorenamorena @itsmorenamorena
RT @SynceNerd_Carli: A2: A2: One thing that I learned was how exclusive the advocacy space is. You would think that since it is designed to help patients, that it would include more patients in many of the processes. This isn’t the case. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat
itsmorenamorena @itsmorenamorena
RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat
Caring For Lupus @CaringForLupus
A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat
The Lupus Rainbow @thelupusrainbow
RT @UMassLupus: It's also good to know you can meet with your representative in their local office instead of traveling to DC. Phone calls generally work better than emails/letters, but large numbers of signatures also help! #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q3: Q3: Qué tipos de métodos puedes usar para que tu voz se escuche? #LupusChat https://t.co/dwTmfmWubW
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I am learning more about initiatives and campaigns. I have gotten invites to summits and conferences I never knew about. #LupusChat
Caring For Lupus @CaringForLupus
RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @UMassLupus: And local groups like @LupusNE host walks. I think local groups could increase advocacy by including info at these events #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat
The Lupus Rainbow @thelupusrainbow
RT @SynceNerd_Carli: @Jillian_Gomes @Lupus_Chat Agreed! This has been one of the biggest struggles. My goal is to try and provide these resources within my community to try to help. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat A3. The most accessible: @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A3: A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: Todavía queda mucho trabajo por hacer en el espacio de la atención médica y espero que todos puedan unirse para hacer un cambio REAL. #LupusChat
Caring For Lupus @CaringForLupus
RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
RaquelRoschell @raquelonpurpose
RT @katesattler: @Lupus_Chat A1 Feel like #LupusChat is among the most powerful advocacy - patient-centered organizing, awareness and more
#LupusChat @Lupus_Chat
RT @CaringForLupus: A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat
Carly by Nature @SynceNerd_Carli
@SheWhoRises @Lupus_Chat I’m here to tell you that it DOES work. Each and every time. We see and support you. 💜💜💜 #LupusChat
Carly by Nature @SynceNerd_Carli
A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat
#LupusChat @Lupus_Chat
A medida que el mundo cambia, también cambian las formas en que podemos participar en los abogacia. Exploremos esto más a fondo en la pregunta 4. #LupusChat https://t.co/jd0Gp0hvGC
#LupusChat @Lupus_Chat
As the world changes, so do the ways we can participate in advocacy. Let’s explore this more in Question 4. #LupusChat https://t.co/vuQdtV1bLw
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A3: A3: Honestly, talking about lupus in whatever way or form you feel most comfortable is a way to make your voice heard. Whether in person or online in forums or on social media, speaking openly about your experiences w/ lupus is a way to vent, inform, & find community. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat
Adri @supacooladri
A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: All of this👇🏾💜 #LupusChat
Jillian G @Jillian_Gomes
Facts!!
Carly by Nature @SynceNerd_Carli
RT @Jillian_Gomes: @Lupus_Chat A3. The most accessible: @Lupus_Chat A3. The most accessible: Social Media sharing your experience..participating in local programs like the walk..Workshops..#LupusChat
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A3: A3: Hablar sobre el lupus de todos modos te sientes más cómodo es una manera de hacer oír tu voz. Ya sea en persona o en línea o en las redes sociales, hablar abiertamente sobre el lupus es una manera de ventilar, informar y encontrar comunidad. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet.
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA
#LupusChat @Lupus_Chat
RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: As the world changes, so do the ways we can participate in advocacy. Let’s explore this more in Question 4. #LupusChat https://t.co/vuQdtV1bLw
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A3 Localmente, puede usted programar una reunión con los representantes de su ciudad y compartir su experiencia con Lupus. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: Yes, this!!!!!! #LupusChat
Carly by Nature @SynceNerd_Carli
A3: Debido a que la promoción incluye todo lo que se haga para crear conciencia, las opciones son muchas. #LupusChat
Carly by Nature @SynceNerd_Carli
A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
#LupusChat @Lupus_Chat
Q4: Cómo ha cambiado la abogacía con la tecnología a través de los años? Sientes que es más o menos accesible? #LupusChat https://t.co/cLHcuInu96
#LupusChat @Lupus_Chat
Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A3 Raise awareness and communicate with lawmakers in different ways : A3 Raise awareness and communicate with lawmakers in different ways : in-person meetings, phone calls, emails, letters and social media platforms such as Twitter and Facebook. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
itsmorenamorena @itsmorenamorena
RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
RaquelRoschell @raquelonpurpose
@Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat
Carly by Nature @SynceNerd_Carli
@TiffanyAndLupus @itsmorenamorena You bringing me some cake, boo? #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
itsmorenamorena @itsmorenamorena
RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat *A3* #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
#LupusChat @Lupus_Chat
RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat
Carly by Nature @SynceNerd_Carli
A3: Puede llamar o reunirse con legisladores, hablar sobre el lupus y las enfermedades crónicas en línea y en persona con otros, también puede organizar eventos para recaudar fondos. #LupusChat
Carly by Nature @SynceNerd_Carli
A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat
Carly by Nature @SynceNerd_Carli
#LupusChat A2 👇🏾
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A3: A3: Puede llamar o reunirse con legisladores, hablar sobre el lupus y las enfermedades crónicas en línea y en persona con otros, también puede organizar eventos para recaudar fondos. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A3: A3: Puede llamar o reunirse con legisladores, hablar sobre el lupus y las enfermedades crónicas en línea y en persona con otros, también puede organizar eventos para recaudar fondos. #LupusChat
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: A medida que el mundo cambia, también cambian las formas en que podemos participar en los abogacia. Exploremos esto más a fondo en la pregunta 4. #LupusChat https://t.co/jd0Gp0hvGC
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: As the world changes, so do the ways we can participate in advocacy. Let’s explore this more in Question 4. #LupusChat https://t.co/vuQdtV1bLw
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A3: A3: Debido a que la promoción incluye todo lo que se haga para crear conciencia, las opciones son muchas. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat
Caring For Lupus @CaringForLupus
RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Q4: Q4: Cómo ha cambiado la abogacía con la tecnología a través de los años? Sientes que es más o menos accesible? #LupusChat https://t.co/cLHcuInu96
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A3: A3: Because advocacy is inclusive of anything done to raise awareness, the options are plenty. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
Carly by Nature @SynceNerd_Carli
A3: La promoción también incluye ser un defensor de uno mismo. Esto significa que incluso al hablar por usted mismo en el médico, la escuela o el trabajo, está contribuyendo al discurso. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Rev. Dr. 4WheelWorkout @4WheelWorkOut
I like to be assertive. It's served me well to just speak and speak plainly to be heard and listened to. Online or in person, it's what has worked for me.
Carly by Nature @SynceNerd_Carli
@AngiecarterUK Thanks for sharing. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A4. Thanks to technology you can now participate in online campaigns right from home (or anywhere). You can access your elected officials’ social media pages. You can talk about your Lupus experience to your followers. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Engage elected officials. They work for us. Social media. Organize community events. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: A3 Concienciar y comunicarse con los legisladores de diferentes maneras: reuniones en persona, llamadas telefónicas, correos electrónicos, cartas y plataformas de redes sociales como Twitter y Facebook. #LupusChat
The Lupus Rainbow @thelupusrainbow
RT @SynceNerd_Carli: A3: A3: You can have a call or meeting with legislators, discuss Lupus and chronic illness online and in person with others, you can also host fundraisers. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A3: A3: La promoción también incluye ser un defensor de uno mismo. Esto significa que incluso al hablar por usted mismo en el médico, la escuela o el trabajo, está contribuyendo al discurso. #LupusChat
RaquelRoschell @raquelonpurpose
RT @thelupusrainbow: A3: A3: #LupusChat i raise lupus awareness by sharing My Story of Glory with others. I will say, people still don't know about/or understand lupus.
Tiffany ⁷ @TiffanyAndLupus
A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Jillian G @Jillian_Gomes
@Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A3: A3: La promoción también incluye ser un defensor de uno mismo. Esto significa que incluso al hablar por usted mismo en el médico, la escuela o el trabajo, está contribuyendo al discurso. #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat
#LupusChat @Lupus_Chat
RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Agreed. All of that is advocacy. Researching and learning for yourself is, talking to other is, being in community with fellow patients, all, advocacy. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat
Adri @supacooladri
A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them.
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat
Carly by Nature @SynceNerd_Carli
@Xtel007 And do. #LupusChat https://t.co/I6pywOV8c5
Tiffany ⁷ @TiffanyAndLupus
A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat
itsmorenamorena @itsmorenamorena
RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: Agreed. All of that is advocacy. Researching and learning for yourself is, talking to other is, being in community with fellow patients, all, advocacy. #LupusChat
#LupusChat @Lupus_Chat
RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them.
itsmorenamorena @itsmorenamorena
RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A4: A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
Jillian G @Jillian_Gomes
@Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat
itsmorenamorena @itsmorenamorena
RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat
#LupusChat @Lupus_Chat
A3 #LupusChat 👇🏾
Friends AgainstLupus @AgainstLupus
RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat
#LupusChat @Lupus_Chat
RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat
itsmorenamorena @itsmorenamorena
@SynceNerd_Carli @TiffanyAndLupus Yaaassss for the chocolate cake! #LupusChat
UMass Lupus @UMassLupus
A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
Carly by Nature @SynceNerd_Carli
A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat
#LupusChat @Lupus_Chat
El trabajo de abogacia puede tener muchos obstáculos en función de las percepciones de los demás que pueden dificultar a algunos. Exploraremos esto más en la Pregunta 5. #LupusChat https://t.co/yG9FVgrWLm
#LupusChat @Lupus_Chat
Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME
#LupusChat @Lupus_Chat
@thelupusrainbow @katesattler Thank you both for all the #LupusChat love 💗
Tiffany ⁷ @TiffanyAndLupus
RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
Friends AgainstLupus @AgainstLupus
RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
Kate Sattler | Sweet Freeze @katesattler
@Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat
#LupusChat @Lupus_Chat
RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat
Rev. Dr. 4WheelWorkout @4WheelWorkOut
RT @Lupus_Chat: El trabajo de abogacia puede tener muchos obstáculos en función de las percepciones de los demás que pueden dificultar a algunos. Exploraremos esto más en la Pregunta 5. #LupusChat https://t.co/yG9FVgrWLm
#LupusChat @Lupus_Chat
RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat
Carly by Nature @SynceNerd_Carli
A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat
#LupusChat @Lupus_Chat
Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l
#LupusChat @Lupus_Chat
Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME
Caring For Lupus @CaringForLupus
A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME
#LupusChat @Lupus_Chat
RT @CaringForLupus: A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat
MizJ 🇨🇦 @MizJfromtheDot
A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
#LupusChat @Lupus_Chat
RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A4: A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q5: Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l
Caring For Lupus @CaringForLupus
A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Q5: Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
Carly by Nature @SynceNerd_Carli
A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest.
Rev. Dr. 4WheelWorkout @4WheelWorkOut
A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat
#LupusChat @Lupus_Chat
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest.
UMass Lupus @UMassLupus
@MizJfromtheDot Yes sometimes a disconnect, I think they get too busy? But they mean well! We should try to brainstorm ways to keep in touch with the large orgs #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest.
MizJ 🇨🇦 @MizJfromtheDot
RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest.
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A4. If you cannot attend an event/conference for w.e reason, it may be streamed. The rest of the team and I try to livetweet all events we attend to make sure it reaches the online patient community and general public. #LupusChat
RaquelRoschell @raquelonpurpose
RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
Tiffany ⁷ @TiffanyAndLupus
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest.
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: Agreed. All of that is advocacy. Researching and learning for yourself is, talking to other is, being in community with fellow patients, all, advocacy. #LupusChat
Carly by Nature @SynceNerd_Carli
A4: #LupusChat en sí mismo, es un ejemplo de cómo la tecnología ha mejorado nuestra capacidad de trascender las barreras físicas. Podemos mantener conversaciones importantes y crear conciencia desde cualquier lugar. Edificio comunitario en su máxima expresión.
Tiffany ⁷ @TiffanyAndLupus
A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
Carly by Nature @SynceNerd_Carli
RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them.
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A4: A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat
Caring For Lupus @CaringForLupus
RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A4: A4: #LupusChat in and of itself, is an example of how technology has improved our ability to transcend physical barriers. We’re able to have important conversations and raise awareness from anywhere. Community building at its finest.
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A4: A4: #LupusChat en sí mismo, es un ejemplo de cómo la tecnología ha mejorado nuestra capacidad de trascender las barreras físicas. Podemos mantener conversaciones importantes y crear conciencia desde cualquier lugar. Edificio comunitario en su máxima expresión.
Carly by Nature @SynceNerd_Carli
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
Caring For Lupus @CaringForLupus
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat
Caring For Lupus @CaringForLupus
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
Caring For Lupus @CaringForLupus
RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat
Carly by Nature @SynceNerd_Carli
RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A4: A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: A3 #LupusChat 👇🏾
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A4: A4: #LupusChat en sí mismo, es un ejemplo de cómo la tecnología ha mejorado nuestra capacidad de trascender las barreras físicas. Podemos mantener conversaciones importantes y crear conciencia desde cualquier lugar. Edificio comunitario en su máxima expresión.
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
Caring For Lupus @CaringForLupus
RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat
Caring For Lupus @CaringForLupus
RT @MizJfromtheDot: A2: A2: That’s friends and family are your best support! Asking for #help is the hardest part. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat A4. advocacy space but for someone newly diagnosed you may not be ready for that...and sometimes you just want to find a physical community in proximity. (2/2) #LupusChat
itsmorenamorena @itsmorenamorena
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A4: A4: Hay campañas en línea como #LupusEadvocate de organizaciones nacionales de lupus donde puede escribir cartas y llamar a sus legisladores locales para unirse al caucus del lupus o pedir una proclamación para conmemorar mayo como mes de concienciación sobre el lupus #LupusChat
Caring For Lupus @CaringForLupus
RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them.
itsmorenamorena @itsmorenamorena
RT @iveyjanette_207: @Lupus_Chat A4. It's now easier for us to watch and participate in meetings,conferences or groups. Most conferences and groups now livestream or have a YouTube channel. That is essential in areas with no groups and organizations. Downside is not having the face to face contact. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat A4. What I great question! I SEE that it is happening and the advocacy is out there but accessing it on a local level or at least finding the door to it is more challenging than I think it should be. With social media we all have the ability to create our own (1/2) #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat
Caring For Lupus @CaringForLupus
RT @MizJfromtheDot: A1: A1: my doctors, friends and family. The #lupus groups and organizations aren’t usually that helpful tbh #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A5: A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A4: A4: Technology has helped lupus advocacy expand beyond just physical means. Making live-streams & social media options available allows those who cannot be mobile partake of the health information being shared. #LupusChat
Bigfraggle @bigfraggl3
Feeling optimistic about the COVID 19 outcome after finding this tweet! Would be good to know how methotrexate with HCQ affects things! #LupusChat #Lupus
Carly by Nature @SynceNerd_Carli
@UMassLupus This is so true. It’s important to remember that we can make change in many different ways and each style is important. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Advocacy work can have many hurdles based on others’ perceptions that may make it difficult for some. We’ll explore this more in Question 5. #LupusChat https://t.co/38mbD7bVME
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: El trabajo de abogacia puede tener muchos obstáculos en función de las percepciones de los demás que pueden dificultar a algunos. Exploraremos esto más en la Pregunta 5. #LupusChat https://t.co/yG9FVgrWLm
Carly by Nature @SynceNerd_Carli
RT @katesattler: @Lupus_Chat Q3 I can contact my reps. I can work behind the scenes to support and amplify lupus leaders. I can design campaigns and materials to educate people on lupus and how it impacts our lives. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Q5: Q5: Cuáles son algunos de los estigmas asociados con la (abogacía) defensa de usted mismo o de otros? #LupusChat https://t.co/bvj25Vx32l
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A4 Social Media has changed the Advocacy over the past decade. As the years continue to progress, these platforms increasingly influence how citizens and advocacy organizations engage online #Lupuschat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: @UMassLupus This is so true. It’s important to remember that we can make change in many different ways and each style is important. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @MizJfromtheDot: A3: A3: #socialmedia teaching friends and family and hoping they teach others #beinformed not being scared to speak up even when its hard #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat
Caring For Lupus @CaringForLupus
A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat
UMass Lupus @UMassLupus
@SynceNerd_Carli Have you ever tried Facetime, Skype, Zoom, WebEx, etc to virtually go with a group to DC to advocate? #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q4: Q4: How has advocacy changed with technology through the years? Do you feel it is more or less accessible? #LupusChat https://t.co/Z5SFJxhghe
Carly by Nature @SynceNerd_Carli
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat
Friends AgainstLupus @AgainstLupus
RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: @UMassLupus This is so true. It’s important to remember that we can make change in many different ways and each style is important. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat
#LupusChat @Lupus_Chat
¡Manténganse al tanto! ¡La última pregunta en esta discusión de #LupusChat está por llegar! https://t.co/ZhVOPJ9sEw
#LupusChat @Lupus_Chat
Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1
Caring For Lupus @CaringForLupus
A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat
Adri @supacooladri
A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat
Jillian G @Jillian_Gomes
A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1
Rev. Dr. 4WheelWorkout @4WheelWorkOut
RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
#LupusChat @Lupus_Chat
RT @CaringForLupus: A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat
#LupusChat @Lupus_Chat
RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat
Carly by Nature @SynceNerd_Carli
@4WheelWorkOut This would definitely be me too 🤣😂#LupusChat https://t.co/xGPK7ijz00
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1
#LupusChat @Lupus_Chat
Q6: Puede compartir algún trabajo de abogacía o proyectos que haya planeado durante este año? #LupusChat https://t.co/DCdo2Rfkuj
#LupusChat @Lupus_Chat
Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5
💜⚽🇭🇹♊ Xtel Bond @Xtel007
(A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Q6: Q6: Puede compartir algún trabajo de abogacía o proyectos que haya planeado durante este año? #LupusChat https://t.co/DCdo2Rfkuj
UMass Lupus @UMassLupus
RT @bigfraggl3: Feeling optimistic about the COVID 19 outcome after finding this tweet! Would be good to know how methotrexate with HCQ affects things! #LupusChat #Lupus
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @4WheelWorkOut: A4: A4: Technology has opened up access to information, like-minded individuals, and an audience willing to listen. Otherwise I'd just be staring in the mirror making points, to no one in particular #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can.
RaquelRoschell @raquelonpurpose
@CaringForLupus @SynceNerd_Carli A1 : Stole my tweet😀. Indeed..#LupusChat is the best💜
itsmorenamorena @itsmorenamorena
RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat
#LupusChat @Lupus_Chat
RT @TiffanyAndLupus: A6: A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can.
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5
Rev. Dr. 4WheelWorkout @4WheelWorkOut
A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q4: Q4: Cómo ha cambiado la abogacía con la tecnología a través de los años? Sientes que es más o menos accesible? #LupusChat https://t.co/cLHcuInu96
#LupusChat @Lupus_Chat
RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat
Caring For Lupus @CaringForLupus
RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat
Friends AgainstLupus @AgainstLupus
RT @4WheelWorkOut: A5: A5: That I am being demanding, not satisfied with what I have or am giving. This is a horrible view because it ignores the fact that I know what I need and works for me. IRT other people: Stigma is that I'm in their business, speaking FOR them. Stirring up trouble #LupusChat
Carly by Nature @SynceNerd_Carli
@UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @CaringForLupus @SynceNerd_Carli A1 : @CaringForLupus @SynceNerd_Carli A1 : Stole my tweet😀. Indeed..#LupusChat is the best💜
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @TiffanyAndLupus: A6: A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can.
MizJ 🇨🇦 @MizJfromtheDot
@UMassLupus Yes I agree!!! They are also #lupuswarriors so I’m sure it’s hard from their end in general #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat
Carly by Nature @SynceNerd_Carli
RT @TiffanyAndLupus: A5: A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat
Friends AgainstLupus @AgainstLupus
RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A6: A6: I’m really looking forward to what the #LupusChat Executive Team is planning for lupus awareness in May. I hope that you’ll enjoy, share, and join us if you can.
Caring For Lupus @CaringForLupus
RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q6: Q6: Puede compartir algún trabajo de abogacía o proyectos que haya planeado durante este año? #LupusChat https://t.co/DCdo2Rfkuj
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat
Michelle @wordsbymj
@Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
RT @Lupus_Chat: Q6: Q6: Can you share any advocacy work or projects you have planned throughout this year? #LupusChat https://t.co/dK1HgEmAS5
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A4 With the emergence and continual development of the internet, a door was opened for a new form of advocacy 💪💜 #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @UMassLupus: @MizJfromtheDot Yes sometimes a disconnect, I think they get too busy? But they mean well! We should try to brainstorm ways to keep in touch with the large orgs #LupusChat
Carly by Nature @SynceNerd_Carli
A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited!
Tiffany ⁷ @TiffanyAndLupus
A6: Estoy deseando saber lo que el equipo ejecutivo de #LupusChat está planeando para la concienciación sobre el lupus en mayo. Espero que disfrutes, compartas y te unas a nosotros si puedes.
Kate Sattler | Sweet Freeze @katesattler
@Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat
#LupusChat @Lupus_Chat
RT @wordsbymj: @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat
Caring For Lupus @CaringForLupus
RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat
Caring For Lupus @CaringForLupus
RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @SynceNerd_Carli: @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A6: A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited!
#LupusChat @Lupus_Chat
RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A5: A5: La gente asume que aquellos que hablan de sus experiencias con el lupus están "dejando que su enfermedad se apodere de su vida". Esto no es verdad. El lupus es parte de nuestra vida diaria y hablar de ello nos ayuda a nosotros mismos y a los demás. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat
Carly by Nature @SynceNerd_Carli
A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat
itsmorenamorena @itsmorenamorena
A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited!
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207
@Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A6: A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A6: A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A6: A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat
Caring For Lupus @CaringForLupus
RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited!
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A6: A6: Unfortunately I can’t share everything right now about projects I’m working on, but please know that we’ve got some good things in store for this community. #LupusChat
Carly by Nature @SynceNerd_Carli
A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A6: A6: Estoy deseando saber lo que el equipo ejecutivo de #LupusChat está planeando para la concienciación sobre el lupus en mayo. Espero que disfrutes, compartas y te unas a nosotros si puedes.
Caring For Lupus @CaringForLupus
RT @wordsbymj: @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat
UMass Lupus @UMassLupus
A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A6: A6: Desafortunadamente, no puedo compartir todo en este momento sobre los proyectos en los que estoy trabajando, pero tenga en cuenta que tenemos algunas cosas buenas para esta comunidad. #LupusChat
#LupusChat @Lupus_Chat
RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
#LupusChat @Lupus_Chat
RT @iveyjanette_207: @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: A6: A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat
Carly by Nature @SynceNerd_Carli
@UMassLupus When in DC & Albany for legislative meetings, we often will go “live” at some point to help bring others with us when they physically can’t be there. We also try to do this when we attend conferences. We also live tweet all events and pose questions from our community #LupusChat
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: @SynceNerd_Carli Have you ever tried Facetime, Skype, Zoom, WebEx, etc to virtually go with a group to DC to advocate? #LupusChat
#LupusChat @Lupus_Chat
RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat
#LupusChat @Lupus_Chat
RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
@UMassLupus @Lupus_Chat That would be so awesome! #LupusChat
#LupusChat @Lupus_Chat
RT @SynceNerd_Carli: @UMassLupus When in DC & Albany for legislative meetings, we often will go “live” at some point to help bring others with us when they physically can’t be there. We also try to do this when we attend conferences. We also live tweet all events and pose questions from our community #LupusChat
Carly by Nature @SynceNerd_Carli
A6: Dependiendo de la situación de COVID-19, hay varios eventos que tendrán lugar este año al que asistiré. Hemos cancelado algunos de ellos en las últimas 2 semanas, por lo que la situación se está desarrollando. #LupusChat
#LupusChat @Lupus_Chat
Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat sobre Abogacía. Agradecemos su disposición a compartir sus experiencias con la comunidad. https://t.co/k5nwyQrUG0
#LupusChat @Lupus_Chat
Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A6: A6: Dependiendo de la situación de COVID-19, hay varios eventos que tendrán lugar este año al que asistiré. Hemos cancelado algunos de ellos en las últimas 2 semanas, por lo que la situación se está desarrollando. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: @UMassLupus When in DC & Albany for legislative meetings, we often will go “live” at some point to help bring others with us when they physically can’t be there. We also try to do this when we attend conferences. We also live tweet all events and pose questions from our community #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A6: A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat
RaquelRoschell @raquelonpurpose
@Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG
Carly by Nature @SynceNerd_Carli
@UMassLupus Yes! This is definitely something I’d like to see more of at all advocacy events. It’s such a great way to stay involved when you can’t be there physically. #LupusChat
#LupusChat @Lupus_Chat
Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb
#LupusChat @Lupus_Chat
Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
UMass Lupus @UMassLupus
RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
#LupusChat @Lupus_Chat
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: See I see the "letting their illness take over their life" comment as people not being aware or dismissing just how much of every single aspect of your life Lupus affects. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: ¡Manténganse al tanto! ¡La última pregunta en esta discusión de #LupusChat está por llegar! https://t.co/ZhVOPJ9sEw
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Stay tuned! The last question of this #LupusChat discussion is next! https://t.co/W45ac744u1
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Right. As this situation unfolds, I'm unsure about some of the things I had planned, esp in near future. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @CaringForLupus: A4 Con la aparición y el desarrollo continuo de Internet, se abrió una puerta para una nueva forma de promoción y abogacia 💪💜 #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @iveyjanette_207: @Lupus_Chat A5. Being in a predominantly rural state like NM where medical care and support groups are hundreds of miles away or in another state. And sadly,racial and cultural traditions play a part in advocating for people with illness. Many choose to stay silent. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat
#LupusChat @Lupus_Chat
Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/8dDZonIp2O
#LupusChat @Lupus_Chat
Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited!
Tiffany ⁷ @TiffanyAndLupus
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
RaquelRoschell @raquelonpurpose
@Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat
Adri @supacooladri
A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat
MizJ 🇨🇦 @MizJfromtheDot
A5: Whew! This is a big one!! #stigmas Youlook great so you must feel great Oh you’re still sick #nocure If you do this or that im sure you’d feel much better #genes Generally not understanding #googleit But I heard this person had it and they did or were like this #notme
Friends AgainstLupus @AgainstLupus
RT @Xtel007: A6. #LupusChat has very dope things prepared for our jam-packed Awareness month in May. We spend so much (sooooooo much) time planning exciting things for our community. I'm excited!
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
Friends AgainstLupus @AgainstLupus
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
Tiffany ⁷ @TiffanyAndLupus
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG
#LupusChat @Lupus_Chat
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat
Carly by Nature @SynceNerd_Carli
Y’all really gonna trip when you see all that we have planned this year. Can. Not. Wait. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
#LupusChat @Lupus_Chat
RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat
Carly by Nature @SynceNerd_Carli
RT @katesattler: @Lupus_Chat Q5: @Lupus_Chat Q5: The perception of struggle and risking a lack of client confidence in me. The fear of losing more work. #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
#LupusChat @Lupus_Chat
RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
Jillian G @Jillian_Gomes
@Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Thank you everyone for chilling and talking with us. I love my #LupusChat fam 💜
𝙀-𝙇𝙀𝙀 𝙇𝙊𝙑𝙀 💋 @E_LeeLove1
RT @UMassLupus: A4: A4: I think connecting with the lupus community is more accessible with technology. But I think advocacy still requires old school meet-and-greet (at least on the Hill) #LupusChat
Carly by Nature @SynceNerd_Carli
Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/mLMB4suNT0
Carly by Nature @SynceNerd_Carli
Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/oWuUhdjkhL
💜⚽🇭🇹♊ Xtel Bond @Xtel007
I know I just woke up from a nap to do #LupusChat. But. Not gonna lie, I might go right back to bed.
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A6: A6: Depending on the COVID-19 situation, there are a number of events that will take place this year that I will attend. We’ve had a few of them canceled in the last 2 weeks so the situation is developing. #LupusChat
Caring For Lupus @CaringForLupus
RT @iveyjanette_207: @Lupus_Chat A6. Right now,nothing planned. I'm finally returning to work in 2 weeks. Plus the coronavirus issues take priority. #LupusChat
itsmorenamorena @itsmorenamorena
I just got out of bed to participate in #LupusChat, and now I am about to get back in it 😂🤣💜 Good day to everybody!
Carly by Nature @SynceNerd_Carli
¡Gracias a todos los que nos acompañaron por #LupusChat hoy! Realmente apreciamos su tiempo. Gracias por compartir. Por favor, mantente a salvo y que tengas un buen día. ¡Amor para todos ustedes! https://t.co/KhwEcnrFoO
UMass Lupus @UMassLupus
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
UMass Lupus @UMassLupus
RT @Lupus_Chat: Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A6: A6: Dependiendo de la situación de COVID-19, hay varios eventos que tendrán lugar este año al que asistiré. Hemos cancelado algunos de ellos en las últimas 2 semanas, por lo que la situación se está desarrollando. #LupusChat
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat
💜⚽🇭🇹♊ Xtel Bond @Xtel007
Lol you and me are the same person. I literally said the same thing!
Rev. Dr. 4WheelWorkout @4WheelWorkOut
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
Kate Sattler | Sweet Freeze @katesattler
@Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat
Caring For Lupus @CaringForLupus
RT @TiffanyAndLupus: A4: A4: There are online campaigns like (#LupusEadvocate) by national lupus organizations where you can write letters & call your local legislators to join the lupus caucus or ask for a proclamation to commemorate May as lupus awareness month. #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Q5: Q5: What are some stigmas associated with advocating for yourself or others? #LupusChat https://t.co/qhGG6p5ecb
Caring For Lupus @CaringForLupus
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: I also learned that there are organizations that are not making their events as accessible to people as they should be. This needs to change. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A2: A2: Also, there is a lot that goes into meeting with legislators on the Hill. It is both physically and mentally demanding. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A3. There are many many ways to advocate. You can advocate simply by educating people about Lupus and chronic illness. You can speak up at your doctor’s office and make sure your concerns are heard. #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat
RaquelRoschell @raquelonpurpose
RT @Lupus_Chat: Our next discussion will be Sunday March 29, 2020. Follow the #LupusChat tag throughout the week for our upcoming topic announcement and updates. Remember to mark your calendars to save the date. https://t.co/UcXhpxnBBC
Sofy C. Sosa🇭🇳 @s0fyyy_s
RT @Xtel007: A3. You can get in contact with your elected officials, in person, or by phone/mail/email, to ask for programs raising awareness and supporting research. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @UMassLupus: A2: A2: I learned about @Lupus_Chat and all the great support on social media including Twitter! 💜 #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: 🌞 Good Morning!🎉You know what today is? It's #LupusChat AND #SelfCareSunday! We hope you're doing well today. Let's start our day with a delicious breakfast🍳 & light stretches (if you're able). Have a great Sunday! https://t.co/UIyvmDGODw
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A3 Locally, you can schedule a meeting with your town representatives and share your experience with Lupus. #LupusChat https://t.co/XWHopy7vvA
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A1 An advocacy Campaign close to my heart 💜 is the School Lupus Assemblies. As a mom of a Lupus patient, my goal is for children to learn about Lupus 🦋 at an early age in a fun and friendly way. #LupusChat https://t.co/upwQ7RlAov
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A3: A3: Advocacy also includes being a self advocate. This means that even by speaking up for yourself at the doctor, school, or work you are contributing to the discourse. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A1: A1: When it comes to Lupus advocacy, there are the Advocacy Summit and Hill Day events led by @LupusOrg & @LupusResearch. There’s also a NY state advocacy event held by @LADAOrg each year. #LupusChat
Caring For Lupus @CaringForLupus
RT @katesattler: @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat
Rev. Dr. 4WheelWorkout @4WheelWorkOut
A6: I'm considering getting involved with my city's ADA commission, but that depends on time/energy/economics. I really want to get involved with Black Infant Health in Long Beach as well (for pre-natal and post-partum mothers) so there is disability representation in the org
Carly by Nature @SynceNerd_Carli
Yes! Register for the @LupusOrg advocacy summit! Last week we worked w/ @LupusResearch to speak with legislators. Let’s keep that same energy this week as we continue our work to #AdvocateForLupus Research funding. #LupusChat 👇🏾👇🏾
Carly by Nature @SynceNerd_Carli
RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat
#LupusChat @Lupus_Chat
RT @katesattler: @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat
itsmorenamorena @itsmorenamorena
@Xtel007 My electric blanket and my weighted blanket are waiting for me to join them LOLOL #LupusChat
Tiffany ⁷ @TiffanyAndLupus
@Xtel007 And it ain’t nothing wrong with that! Get the rest you need boo 💜 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/oWuUhdjkhL
Tiffany ⁷ @TiffanyAndLupus
RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat
#LupusChat @Lupus_Chat
RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat
Carly by Nature @SynceNerd_Carli
We are looking forward to it! #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @wordsbymj: @Lupus_Chat Hello 👋🏼 I’m Michelle. In PNW and #DiagnosticLimbo with a small but mighty pup. I love lighting candles during hanukah as an ancient pagan act that dispells some of the darkness of winter. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: @UMassLupus @MizJfromtheDot Agreed that there is a disconnect. Aside from time constraints, I honestly believe that it comes from the lack of patient representation within the administration of certain larger organizations. Having patients in the planning can and will help bridge the gaps. #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
MizJ 🇨🇦 @MizJfromtheDot
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @CaringForLupus: A4 Social Media ha cambiado la promoción de abogacía en la última década. A medida que los años continúan progresando, estas plataformas influyen cada vez más en cómo los ciudadanos y las organizaciones de defensa participan en línea #Lupuschat
MizJ 🇨🇦 @MizJfromtheDot
RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A4: A4: Afortunadamente, la tecnología ha permitido a quienes no pueden abandonar sus hogares participar en eventos que consideran importantes. #LupusChat
itsmorenamorena @itsmorenamorena
RT @SynceNerd_Carli: Yes! Register for the @LupusOrg advocacy summit! Last week we worked w/ @LupusResearch to speak with legislators. Let’s keep that same energy this week as we continue our work to #AdvocateForLupus Research funding. #LupusChat 👇🏾👇🏾
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: A4: A4: I feel like technology has been a gamechanger for me. For so long in many situations I felt alone but technology allows me to connect with so many people that truly understand how I'm feeling #LupusChat being one of them.
Carly by Nature @SynceNerd_Carli
@UMassLupus @Lupus_Chat Love this idea of getting researchers together for an advocacy event. Keep me posted! #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat sobre Abogacía. Agradecemos su disposición a compartir sus experiencias con la comunidad. https://t.co/k5nwyQrUG0
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on Advocacy. We appreciate your willingness to share your experiences with the community. https://t.co/y29beeblKG
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: A3: A3: I find that social media is a great tool. I also participate in anything that may be in my area that helps create more of a lupus community #LupusChat
Carly by Nature @SynceNerd_Carli
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : People will say things like "oh Raquel I'm so sorry..I'll be praying for you." And I'm thinking - you didn't hear a word I said did ya? Some of that I think comes from not being comfortable with not good vibes or their own struggles. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat A1. Social media! #LupusChat. Twitter. Instagram. Even YouTube. And of course the old school snail mail,e-mail and (pre-coronavirus) meet and greet.
Carly by Nature @SynceNerd_Carli
RT @Xtel007: Right. As this situation unfolds, I'm unsure about some of the things I had planned, esp in near future. #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @Xtel007: (A5) Yes it's taken over my life, because I have to consider my disease when I wake up and plan my day, when I decide what my priorities are, when to eat, sleep etc etc. It truly does affect everything. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/8dDZonIp2O
Carly by Nature @SynceNerd_Carli
RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
Carly by Nature @SynceNerd_Carli
RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : Some people feel Lupus or Arthritis is something we did to ourselves. What can you do better to make it go away? #LupusChat
Carly by Nature @SynceNerd_Carli
RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A2: A2: There is still so much work to be done in the healthcare space and my hope is that everyone can come together to make REAL change. #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @Jillian_Gomes: A5: A5: People forget that you are more than just your condition/disease. They forget that you were a whole person before and still are. Also that just bc you advocate doesn’t mean that’s all you want to talk about...but I am going to talk about it 🙂 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @iveyjanette_207: @Lupus_Chat A2. More needs to be done. Especially at the state and local level. There's nothing here in NM,for example. #LupusChat
Carly by Nature @SynceNerd_Carli
@supacooladri Amazing. Please keep us posted!! #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @supacooladri: A5: A5: I really feel like people are quick to judge my situation and give opinions on something they know nothing about. On the other hand Sometimes those situations are great teachable moments #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: A1: A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @supacooladri: A2: A2: I really learned that advocacy starts with me. I need to start and be the change I want to see. I also notice how much of need there is for more support. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat
Tiffany ⁷ @TiffanyAndLupus
RT @SynceNerd_Carli: A1: A1: There are advocates that attend research meetings and conferences throughout the year and disseminate the information discussed, to their communities. This helps keep patients and others informed and educated. #LupusChat
Carly by Nature @SynceNerd_Carli
@Jillian_Gomes @Lupus_Chat Keep us posted! #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @Xtel007: A5. Some that I can think of are being entitled or whiny. The fact is, patient right activists/advocates fought and continue to fight for our right to have a place and thrive. I actually wish I knew to speak up about my rights SOONER! #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: Thank you everyone for chilling and talking with us. I love my #LupusChat fam 💜
MizJ 🇨🇦 @MizJfromtheDot
RT @TiffanyAndLupus: A5: A5: There is sometimes an assumption that those who speak openly about their experiences with lupus are “letting their illness take over their life.” This isn’t true. Lupus is a part of our everyday lives and speaking about it out loud helps both ourselves and others. #LupusChat
Carly by Nature @SynceNerd_Carli
RT @Xtel007: I know I just woke up from a nap to do #LupusChat. But. Not gonna lie, I might go right back to bed.
Carly by Nature @SynceNerd_Carli
RT @itsmorenamorena: I just got out of bed to participate in #LupusChat, and now I am about to get back in it 😂🤣💜 Good day to everybody!
Carly by Nature @SynceNerd_Carli
RT @katesattler: @Lupus_Chat Q6 Will try to complete some of the projects I have underway to share soon. #LupusChat
MizJ 🇨🇦 @MizJfromtheDot
RT @SynceNerd_Carli: A4: A4: Thankfully, technology has enabled those not able to leave their homes to participate in events that they find important. #LupusChat
Caring For Lupus @CaringForLupus
RT @SynceNerd_Carli: Thank you to everyone who joined us for #LupusChat today! We truly appreciate your time. Thank you for sharing. Please be safe out there and have a great day. Love to you all! https://t.co/oWuUhdjkhL
Caring For Lupus @CaringForLupus
RT @Jillian_Gomes: @Lupus_Chat A6: @Lupus_Chat A6: This has motivated me to finish a project I had in mind a few months ago. With this corona quarantine WFH I’ve got the time to do so!! ✊🏼 #LupusChat
Caring For Lupus @CaringForLupus
RT @supacooladri: A6: A6: I'm working on starting a support group hopefully bilingual and continue to work with my local foundation. Sending everyone love and light!💜💜#LupusChat
Michelle @wordsbymj
@Lupus_Chat A1. Interpersonal (eg mutual aid) efforts, educational campaigns, individual and institutional fundraising, patient advocacy, action for for local change, lobbying for legislative action...there are so many ways to make a difference. #LupusChat
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/8dDZonIp2O
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Enjoy the rest of your day & remember to be safe and practice a little self-care (or a lot) today because besides #LupusChat it's also #SelfcareSunday! https://t.co/D9PUz1oY5b
Caring For Lupus @CaringForLupus
RT @Lupus_Chat: Nuestra próxima discusión será el domingo 29 de marzo de 2020. Siga la etiqueta #LupusChat durante toda la semana para nuestro próximo anuncio de tema y actualizaciones. Recuerde marcar sus calendarios para guardar la fecha. https://t.co/GkofG2Galb
Caring For Lupus @CaringForLupus
RT @UMassLupus: A6: A6: My goal is to get a team of our local researchers to join the larger orgs in an advocacy day next year! And to host @Lupus_Chat for an event hopefully later this year! #LupusChat
Caring For Lupus @CaringForLupus
RT @Xtel007: A6. One thing I need to be better at is speaking up more about the advocacy work that I do. I plan to continue educating people about clinical trials and speaking on my patient experience. #LupusChat
Caring For Lupus @CaringForLupus
RT @itsmorenamorena: A6: A6: Because of THIS #LupusChat conversation, I am going to register for the Digital Lupus Advocacy Summit taking place this week March 16-17 | https://t.co/Hqyc6FQtv9
Carly by Nature @SynceNerd_Carli
@katesattler @Lupus_Chat Please keep us posted! Also, I’m going to follow up with you soon about the inquiry you sent. Been a bit hectic but we haven’t forgotten. 💜 #LupusChat
#LupusChat content from Twitter.