#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | #LupusChat @Lupus_Chat Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
 | Tiffany ⁷ @TiffanyAndLupus Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare https://t.co/YXqzz8PDup |
 | Caring For Lupus @CaringForLupus Es tiempo de #LupusChat Estas listo??🎆🎉🎈 https://t.co/aAyqw05fVj |
| #LupusChat @Lupus_Chat Bienvenido #LupusChat Hoy hablaremos de cuidadores con @CaringforLupus, Compartiremos aprenderemos necesidades mutuas durante brote de lupus https://t.co/1mKawWZzi3 |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Sending much love to each & every mother in all of your beloved forms, (yes, fur moms too!) We appreciate you. #MothersDay 💜💐✨ #LupusChat https://t.co/PlKRhapYuO |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| #LupusChat @Lupus_Chat For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Bienvenido #LupusChat Hoy hablaremos de cuidadores con @CaringforLupus, Compartiremos aprenderemos necesidades mutuas durante brote de lupus https://t.co/1mKawWZzi3 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido #LupusChat Hoy hablaremos de cuidadores con @CaringforLupus, Compartiremos aprenderemos necesidades mutuas durante brote de lupus https://t.co/1mKawWZzi3 |
| RaquelRoschell @raquelonpurpose RT @Xtel007: At 3. This one is all about our caregivers, family, and friends. #LupusChat https://t.co/wew6jBPyQH |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| #LupusChat @Lupus_Chat We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Bienvenido #LupusChat Hoy hablaremos de cuidadores con @CaringforLupus, Compartiremos aprenderemos necesidades mutuas durante brote de lupus https://t.co/1mKawWZzi3 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
 | Cheryl Wills🔛 @cherylwillsny1 RT @Lupus_Chat: Sending much love to each & every mother in all of your beloved forms, (yes, fur moms too!) We appreciate you. #MothersDay 💜💐✨ #LupusChat https://t.co/PlKRhapYuO |
 | Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| Carly by Nature @SynceNerd_Carli It's #LupusChat Tiiiiiime!!!! Let's gooooooooo! https://t.co/nmfJ4G8ihl |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido #LupusChat Hoy hablaremos de cuidadores con @CaringforLupus, Compartiremos aprenderemos necesidades mutuas durante brote de lupus https://t.co/1mKawWZzi3 |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Es tiempo de #LupusChat Estas listo??🎆🎉🎈 https://t.co/aAyqw05fVj |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| Tiffany ⁷ @TiffanyAndLupus Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: It's #LupusChat Tiiiiiime!!!! Let's gooooooooo! https://t.co/nmfJ4G8ihl |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| RaquelRoschell @raquelonpurpose Its that time again! #LupusChat |
| #LupusChat @Lupus_Chat Remember to use ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/eZYjwypRDj |
| Tiffany ⁷ @TiffanyAndLupus Remember to use ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/OgNP5hWHVa |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 #LupusChat timeeee let's go! |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| Tiffany ⁷ @TiffanyAndLupus To answer questions, please use Q1 or A1 for each numbered response. This helps us to add your thoughts to our post-chat #LupusChat |
| #LupusChat @Lupus_Chat To answer questions, please use Q1 or A1 for each numbered response. This helps us to add your thoughts to our post-chat #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Remember to use ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/eZYjwypRDj |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
 | PlusSizeShopEbay @CandacePitt1 RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| #LupusChat @Lupus_Chat As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Tiffany ⁷ @TiffanyAndLupus As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Remember to use ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/eZYjwypRDj |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Remember to use ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/OgNP5hWHVa |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: To answer questions, please use Q1 or A1 for each numbered response. This helps us to add your thoughts to our post-chat #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: To answer questions, please use Q1 or A1 for each numbered response. This helps us to add your thoughts to our post-chat #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: To answer questions, please use Q1 or A1 for each numbered response. This helps us to add your thoughts to our post-chat #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| PlusSizeShopEbay @CandacePitt1 RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Thank you. I lost my mom almost 15 years ago. I've had 6 miscarriages. 2 were lupus-related. #LupusChat |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
| RaquelRoschell @raquelonpurpose @iveyjanette_207 @Lupus_Chat Sending love your way💜💜. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Es tiempo de #LupusChat Estas listo??🎆🎉🎈 https://t.co/aAyqw05fVj |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi! Christele in NY, co-host of #LupusChat. I've had Lupus for 10 yrs. Fav selfcare activity is to curl up with a good... bowl of ice cream. https://t.co/o9IKVOcOsg |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
| #LupusChat @Lupus_Chat @iveyjanette_207 We can't imagine the pain you've experienced. You're so strong to have made it this far. We are always here for you with love. 💜💜💜#LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Hi! Christele in NY, co-host of #LupusChat. I've had Lupus for 10 yrs. Fav selfcare activity is to curl up with a good... bowl of ice cream. https://t.co/o9IKVOcOsg |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi! Christele in NY, co-host of #LupusChat. I've had Lupus for 10 yrs. Fav selfcare activity is to curl up with a good... bowl of ice cream. https://t.co/o9IKVOcOsg |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 💜💜 https://t.co/QxgdNOVlTX |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
 | 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @Lupus_Chat: We send love, hugs & support to those who have lost mothers, as well as to those who have experienced the loss of motherhood. #LupusChat https://t.co/ROugmxPV21 |
| Tiffany ⁷ @TiffanyAndLupus @mommade4change @iveyjanette_207 Sending much love your way Ivey. Loss is something that isn't easy to deal with. We're here for you 💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: Hi! Christele in NY, co-host of #LupusChat. I've had Lupus for 10 yrs. Fav selfcare activity is to curl up with a good... bowl of ice cream. https://t.co/o9IKVOcOsg |
| Caring For Lupus @CaringForLupus My name is Elizabeth from NJ. A #LupusChat Co-host My daughter is a Lupus Warrior💪 We get pedicures after each blood-work, de-stress time ⏰ https://t.co/gEo7Zad32h |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
 | Sebastien @sbstnjck RT @Xtel007: Hi! Christele in NY, co-host of #LupusChat. I've had Lupus for 10 yrs. Fav selfcare activity is to curl up with a good... bowl of ice cream. https://t.co/o9IKVOcOsg |
| Carly by Nature @SynceNerd_Carli Carly here in VA. patient advocate, Co-host of #LupusChat, Dx’d in 2011, and I love listening to music and reading a good book. https://t.co/0k7pFkdJcS |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @CaringForLupus: My name is Elizabeth from NJ. A #LupusChat Co-host My daughter is a Lupus Warrior💪 We get pedicures after each blood-work, de-stress time ⏰ https://t.co/gEo7Zad32h |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat It still hurts. I got pregnant 2 months after my mom passed. Miscarried 7 weeks in. Breaks my heart to this day. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: @iveyjanette_207 We can't imagine the pain you've experienced. You're so strong to have made it this far. We are always here for you with love. 💜💜💜#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus Tiffany from NYC here, your #LupusChat co-host. Diagnosed in 2010 & my favorite self-care activity is my skincare routine & massages/spa. https://t.co/1DDCC2qd17 |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: My name is Elizabeth from NJ. A #LupusChat Co-host My daughter is a Lupus Warrior💪 We get pedicures after each blood-work, de-stress time ⏰ https://t.co/gEo7Zad32h |
| #LupusChat @Lupus_Chat RT @CaringForLupus: My name is Elizabeth from NJ. A #LupusChat Co-host My daughter is a Lupus Warrior💪 We get pedicures after each blood-work, de-stress time ⏰ https://t.co/gEo7Zad32h |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Carly here in VA. patient advocate, Co-host of #LupusChat, Dx’d in 2011, and I love listening to music and reading a good book. https://t.co/0k7pFkdJcS |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Tiffany from NYC here, your #LupusChat co-host. Diagnosed in 2010 & my favorite self-care activity is my skincare routine & massages/spa. https://t.co/1DDCC2qd17 |
| RaquelRoschell @raquelonpurpose Hey! Raquel in TX living with Lupus. My favorite self-care is a tie between a massage & tv marathons on my couch..in my pjs. Yep #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat It still hurts. I got pregnant 2 months after my mom passed. Miscarried 7 weeks in. Breaks my heart to this day. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @mommade4change: Hey! Raquel in TX living with Lupus. My favorite self-care is a tie between a massage & tv marathons on my couch..in my pjs. Yep #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Carly here in VA. patient advocate, Co-host of #LupusChat, Dx’d in 2011, and I love listening to music and reading a good book. https://t.co/0k7pFkdJcS |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: My name is Elizabeth from NJ. A #LupusChat Co-host My daughter is a Lupus Warrior💪 We get pedicures after each blood-work, de-stress time ⏰ https://t.co/gEo7Zad32h |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Tiffany from NYC here, your #LupusChat co-host. Diagnosed in 2010 & my favorite self-care activity is my skincare routine & massages/spa. https://t.co/1DDCC2qd17 |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hi! Christele in NY, co-host of #LupusChat. I've had Lupus for 10 yrs. Fav selfcare activity is to curl up with a good... bowl of ice cream. https://t.co/o9IKVOcOsg |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: Hey! Raquel in TX living with Lupus. My favorite self-care is a tie between a massage & tv marathons on my couch..in my pjs. Yep #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: Hey! Raquel in TX living with Lupus. My favorite self-care is a tie between a massage & tv marathons on my couch..in my pjs. Yep #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Tiffany from NYC here, your #LupusChat co-host. Diagnosed in 2010 & my favorite self-care activity is my skincare routine & massages/spa. https://t.co/1DDCC2qd17 |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Carly here in VA. patient advocate, Co-host of #LupusChat, Dx’d in 2011, and I love listening to music and reading a good book. https://t.co/0k7pFkdJcS |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Sending you massive amounts of love, Ivey. I'm here if you ever need to talk. 💜 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @mommade4change Hey Raquel! So great to see you today sis. I must admit those are both some of my favorite ways to selfcare :) #LupusChat |
| RaquelRoschell @raquelonpurpose @TiffanyAndLupus Yes ma'am... #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Pedicures after blood work sounds like I movement I should join. #LupusChat https://t.co/ZwKTPAnWVh |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Carly here in VA. patient advocate, Co-host of #LupusChat, Dx’d in 2011, and I love listening to music and reading a good book. https://t.co/0k7pFkdJcS |
| #LupusChat @Lupus_Chat Here comes our 1st topic question! Everyone ready? #LupusChat https://t.co/48AkyAIGIB |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: My name is Elizabeth from NJ. A #LupusChat Co-host My daughter is a Lupus Warrior💪 We get pedicures after each blood-work, de-stress time ⏰ https://t.co/gEo7Zad32h |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque,DX'D with SLE and lupus nephritis 1995;favorite self-care is prayer,cooking and power napping. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'D with SLE and lupus nephritis 1995;favorite self-care is prayer,cooking and power napping. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'D with SLE and lupus nephritis 1995;favorite self-care is prayer,cooking and power napping. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready? #LupusChat https://t.co/48AkyAIGIB |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Pedicures after blood work sounds like I movement I should join. #LupusChat https://t.co/ZwKTPAnWVh |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Thank you. #LupusChat |
| #LupusChat @Lupus_Chat Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| Tiffany ⁷ @TiffanyAndLupus Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/WHQAbhX67E |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back Ivey. Thank you for joining us on a day that is filled with such emotion for u. We appreciate you sharing with us! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, location, connection to lupus, and what is your favorite self-care activity? https://t.co/ki9KPYbkrb |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready? #LupusChat https://t.co/48AkyAIGIB |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready? #LupusChat https://t.co/48AkyAIGIB |
| #LupusChat @Lupus_Chat Q1A: Cómo podemos ayudar a nuestros cuidadores, familiares y amigos a reconocer y entender cuando no nos sentimos bien? #LupusChat https://t.co/A9MeORm747 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Learning about the heart! I love this! #LupusChat https://t.co/Uj1ux1aRPm |
| Carly by Nature @SynceNerd_Carli @Xtel007 I need this in my life! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1A: Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'D with SLE and lupus nephritis 1995;favorite self-care is prayer,cooking and power napping. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q1A: Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1A. It’s important that we speak up. We say it all the time, it’s an invisible disease lol, so we have to let them know. #LupusChat |
| Carly by Nature @SynceNerd_Carli @mommade4change Heyyy sis! Thanks for joining us again. So great to have you with us. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1A. We should also let them know what it is we need so that they are able to help us. I tend to shut down and not say anything #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @TiffanyAndLupus @mommade4change It's not. I've lost my entire immediate family in the last 15 years. Only my brother is left. Plus 6 miscarriages. Heartbroken. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1A: When not feeling well we should try to vocalize it strongly. Don’t minimize how you feel so caregivers can see the severity. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1A: Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1A. The more detailed we can be, the better. That can give our caregivers/friends an idea of what we’re going through. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1A: Q1A: Cómo podemos ayudar a nuestros cuidadores, familiares y amigos a reconocer y entender cuando no nos sentimos bien? #LupusChat https://t.co/A9MeORm747 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1A: Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1A: Q1A: Cómo podemos ayudar a nuestros cuidadores, familiares y amigos a reconocer y entender cuando no nos sentimos bien? #LupusChat https://t.co/A9MeORm747 |
| Tiffany ⁷ @TiffanyAndLupus A1A: Cuando no nos sentimos bien vocalizar fuertemente! No minimiza cómo se siente para que los cuidadores puedan ver la gravedad #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. It’s important that we speak up. We say it all the time, it’s an invisible disease lol, so we have to let them know. #LupusChat |
| Caring For Lupus @CaringForLupus A1A Como madre trato de observar por cambios en el comportamiento. Cuando ella no esta sonriendo, se que algo esta que pasa. #Lupuschat |
| Carly by Nature @SynceNerd_Carli @cardiackenzie @Lupus_Chat Hey Kenzie! Welcome back to #LupusChat. So great to have you with us |
| Tiffany ⁷ @TiffanyAndLupus A1A: Describe your behavior on tough flare days so they recognize signs. I tell mines if you don’t see me all day, I’m NOT ok! #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Yes. I'm trying not to cry while looking at the old pics of mom and grandma. I've also been flaring off/on as well. Not easy. #LupusChat |
 | Nae :) @heynaehey_ @Lupus_Chat I'm Nae from Tennessee!!! I was diagnosed on Thanksgiving of 2011. My self care routine always consist of a good book. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1A: Q1A: Cómo podemos ayudar a nuestros cuidadores, familiares y amigos a reconocer y entender cuando no nos sentimos bien? #LupusChat https://t.co/A9MeORm747 |
| Carly by Nature @SynceNerd_Carli A1A: We can talk with them about symptoms and how they affect us. If we don’t tell them, how will they know? #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1A. We should also let them know what it is we need so that they are able to help us. I tend to shut down and not say anything #LupusChat |
| Caring For Lupus @CaringForLupus A1A Es importante que la persona diagnosticada con Lupus explique como se siente, los síntomas, que cree que le afecta. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1A Como madre trato de observar por cambios en el comportamiento. Cuando ella no esta sonriendo, se que algo esta que pasa. #Lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. It’s important that we speak up. We say it all the time, it’s an invisible disease lol, so we have to let them know. #LupusChat |
| Carly by Nature @SynceNerd_Carli A1A: Podemos hablar con ellos sobre los síntomas y cómo nos afectan. Si no les decimos, ¿cómo sabrán? #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1A: A1A: Cuando no nos sentimos bien vocalizar fuertemente! No minimiza cómo se siente para que los cuidadores puedan ver la gravedad #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1A: A1A: When not feeling well we should try to vocalize it strongly. Don’t minimize how you feel so caregivers can see the severity. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. The more detailed we can be, the better. That can give our caregivers/friends an idea of what we’re going through. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1A. The more detailed we can be, the better. That can give our caregivers/friends an idea of what we’re going through. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1A: A1A: Cuando no nos sentimos bien vocalizar fuertemente! No minimiza cómo se siente para que los cuidadores puedan ver la gravedad #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1A: A1A: When not feeling well we should try to vocalize it strongly. Don’t minimize how you feel so caregivers can see the severity. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1A Como madre trato de observar por cambios en el comportamiento. Cuando ella no esta sonriendo, se que algo esta que pasa. #Lupuschat |
| Carly by Nature @SynceNerd_Carli A1A: We have to be vocal about what we are feeling and what we need. It helps them recognize symptoms in the future. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1A: Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| RaquelRoschell @raquelonpurpose A1A : I'm normally joyful and when I get quiet the ones close to me know. The closest ones can see it in my eyes. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. We should also let them know what it is we need so that they are able to help us. I tend to shut down and not say anything #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1A: A1A: Describe your behavior on tough flare days so they recognize signs. I tell mines if you don’t see me all day, I’m NOT ok! #LupusChat |
| Carly by Nature @SynceNerd_Carli A1A:Tenemos que ser vocales sobre lo que estamos sintiendo y lo que necesitamos. Les ayuda a reconocer los síntomas en el futuro. #LupusChat |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @Lupus_Chat I'm Nae from Tennessee!!! I was diagnosed on Thanksgiving of 2011. My self care routine always consist of a good book. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1A: A1A: We can talk with them about symptoms and how they affect us. If we don’t tell them, how will they know? #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1A: A1A: When not feeling well we should try to vocalize it strongly. Don’t minimize how you feel so caregivers can see the severity. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1A: A1A: We have to be vocal about what we are feeling and what we need. It helps them recognize symptoms in the future. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1A: A1A: Cuando no nos sentimos bien vocalizar fuertemente! No minimiza cómo se siente para que los cuidadores puedan ver la gravedad #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. The more detailed we can be, the better. That can give our caregivers/friends an idea of what we’re going through. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1A Es importante que la persona diagnosticada con Lupus explique como se siente, los síntomas, que cree que le afecta. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1A: A1A: Podemos hablar con ellos sobre los síntomas y cómo nos afectan. Si no les decimos, ¿cómo sabrán? #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. We should also let them know what it is we need so that they are able to help us. I tend to shut down and not say anything #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A1A : A1A : I'm normally joyful and when I get quiet the ones close to me know. The closest ones can see it in my eyes. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1A Como madre trato de observar por cambios en el comportamiento. Cuando ella no esta sonriendo, se que algo esta que pasa. #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1A Es importante que la persona diagnosticada con Lupus explique como se siente, los síntomas, que cree que le afecta. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A1A : A1A : I'm normally joyful and when I get quiet the ones close to me know. The closest ones can see it in my eyes. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A1A Es importante que la persona diagnosticada con Lupus explique como se siente, los síntomas, que cree que le afecta. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1A: A1A: Describe your behavior on tough flare days so they recognize signs. I tell mines if you don’t see me all day, I’m NOT ok! #LupusChat |
| #LupusChat @Lupus_Chat Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/agdYc5Itp9 |
| Tiffany ⁷ @TiffanyAndLupus Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/ikT8pecIg2 |
| Carly by Nature @SynceNerd_Carli @mommade4change Yea, it's like the people who know us best can sense when we are not well. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1B: Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/agdYc5Itp9 |
| RaquelRoschell @raquelonpurpose A1A Not sure they will ever fully understand - only those who are going thru will. I say just surround ourselves w caring people. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @missnaedotcom: @Lupus_Chat I'm Nae from Tennessee!!! I was diagnosed on Thanksgiving of 2011. My self care routine always consist of a good book. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1A Es importante que la persona diagnosticada con Lupus explique como se siente, los síntomas, que cree que le afecta. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1A: A1A: We can talk with them about symptoms and how they affect us. If we don’t tell them, how will they know? #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A1A: A1A: We can talk with them about symptoms and how they affect us. If we don’t tell them, how will they know? #LupusChat |
| #LupusChat @Lupus_Chat Q1B: Cuidadores, cómo podemos ayudar a nuestros seres queridos a sentirse cómodos expresando sus necesidades durante un brote? #LupusChat https://t.co/p0xQe4EYw9 |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1A. The more detailed we can be, the better. That can give our caregivers/friends an idea of what we’re going through. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1B: Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/agdYc5Itp9 |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A1A Not sure they will ever fully understand - only those who are going thru will. I say just surround ourselves w caring people. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A1A Not sure they will ever fully understand - only those who are going thru will. I say just surround ourselves w caring people. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Q1B: Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/ikT8pecIg2 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1B: Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/agdYc5Itp9 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1B: Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/agdYc5Itp9 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1B: Cuidadores, cómo podemos ayudar a nuestros seres queridos a sentirse cómodos expresando sus necesidades durante un brote? #LupusChat https://t.co/p0xQe4EYw9 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1B. I think we can show an interest in understanding what our loved ones go through without being pushy about it. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1B: Cuidadores, cómo podemos ayudar a nuestros seres queridos a sentirse cómodos expresando sus necesidades durante un brote? #LupusChat https://t.co/p0xQe4EYw9 |
| Tiffany ⁷ @TiffanyAndLupus A1B: Checking in on our physical health to see if loved ones need help w/ daily tasks. Ask how we are REALLY feeling & mean it. #LupusChat |
| Carly by Nature @SynceNerd_Carli A1B: By being receptive to what they tell us. It is important that they feel speaking with you is a safe space. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1B. Also, we need to really listen when the person does open up. They will remember our reaction for the next time. #LupusChat |
| RaquelRoschell @raquelonpurpose @SynceNerd_Carli Hey!! Great to be here and good to see you all! #LupusChat |
| Carly by Nature @SynceNerd_Carli A1B: Al ser receptivo a lo que nos dicen. Es importante que sientan que hablar con usted es un espacio seguro. #LupusChat |
| Caring For Lupus @CaringForLupus A1B Lo podemos ayudar a sentirse cómodos ..escuchándolos .. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1B: Offer to help w/daily tasks if we’re not feeling well to help lessen our load. Ask us if/how you can be helpful in some way. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1B. I think we can show an interest in understanding what our loved ones go through without being pushy about it. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1B. I think we can show an interest in understanding what our loved ones go through without being pushy about it. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A1A Not sure they will ever fully understand - only those who are going thru will. I say just surround ourselves w caring people. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1B: Cuidadores, cómo podemos ayudar a nuestros seres queridos a sentirse cómodos expresando sus necesidades durante un brote? #LupusChat https://t.co/p0xQe4EYw9 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1a. Kindly ask them to run errands,bring stuff from the kitchen,etc,to you in bed. Even ask them to give you "space". #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1B. I think we can show an interest in understanding what our loved ones go through without being pushy about it. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1B: A1B: By being receptive to what they tell us. It is important that they feel speaking with you is a safe space. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat A1a. Kindly ask them to run errands,bring stuff from the kitchen,etc,to you in bed. Even ask them to give you "space". #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1B. Also, we need to really listen when the person does open up. They will remember our reaction for the next time. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1B: Q1B: Caregivers & friends, how can we help our loved ones feel more comfortable expressing their needs to us during a flare? #LupusChat https://t.co/agdYc5Itp9 |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1B: A1B: Checking in on our physical health to see if loved ones need help w/ daily tasks. Ask how we are REALLY feeling & mean it. #LupusChat |
| Caring For Lupus @CaringForLupus A1B Es importante que aprendamos y nos educamos sobre Lupus, ya que cada caso puede ser diferente y los síntomas varían #Lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1B. I think we can show an interest in understanding what our loved ones go through without being pushy about it. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1B: A1B: By being receptive to what they tell us. It is important that they feel speaking with you is a safe space. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1B. Also, we need to really listen when the person does open up. They will remember our reaction for the next time. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1B Lo podemos ayudar a sentirse cómodos ..escuchándolos .. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1B: A1B: Offer to help w/daily tasks if we’re not feeling well to help lessen our load. Ask us if/how you can be helpful in some way. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1B: A1B: Offer to help w/daily tasks if we’re not feeling well to help lessen our load. Ask us if/how you can be helpful in some way. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1B: A1B: Al ser receptivo a lo que nos dicen. Es importante que sientan que hablar con usted es un espacio seguro. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1a. Kindly ask them to run errands,bring stuff from the kitchen,etc,to you in bed. Even ask them to give you "space". #LupusChat |
| #LupusChat @Lupus_Chat We’ve discussed the best ways to recognize our symptoms, now let’s move onto care management. Question 2 is next. #LupusChat https://t.co/DcvV3ch18F |
| Carly by Nature @SynceNerd_Carli @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: We’ve discussed the best ways to recognize our symptoms, now let’s move onto care management. Question 2 is next. #LupusChat https://t.co/DcvV3ch18F |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1B Es importante que aprendamos y nos educamos sobre Lupus, ya que cada caso puede ser diferente y los síntomas varían #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A1a. Kindly ask them to run errands,bring stuff from the kitchen,etc,to you in bed. Even ask them to give you "space". #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1B Lo podemos ayudar a sentirse cómodos ..escuchándolos .. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: We’ve discussed the best ways to recognize our symptoms, now let’s move onto care management. Question 2 is next. #LupusChat https://t.co/DcvV3ch18F |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Yes!! This is important! We have to vocalize what we want and need help with! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @mommade4change: A1A Not sure they will ever fully understand - only those who are going thru will. I say just surround ourselves w caring people. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| #LupusChat @Lupus_Chat Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/pNTQfXH1ER |
| Tiffany ⁷ @TiffanyAndLupus Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/dbVjkUFhP6 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat A1B by showing care 💜💜 and understanding. We need to be mindful of your feelings. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2A: Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/pNTQfXH1ER |
| #LupusChat @Lupus_Chat Q2B: Caregivers, how would you approach a loved one making healthcare decisions that contradict your wishes for their care plan? #LupusChat https://t.co/Yzt7YS0CDq |
| Tiffany ⁷ @TiffanyAndLupus Q2B: Caregivers, how would you approach a loved one making healthcare decisions that contradict your wishes for their care plan? #LupusChat https://t.co/XYGj9M66u9 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: This is tough. We have to be honest and tell them that although they help with our care, they cannot make decisions FOR us. #LupusChat |
| #LupusChat @Lupus_Chat Q2A:Cómo debemos hablar con un cuidador,familia o amigo que toma decisiones de salud que no se alinean con nuestros deseos/metas? #LupusChat https://t.co/Dp4SmAmUtF |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1b. Nonverbal communication is essential. The facial expressions. Or watching them stay in bed all day. Instinctively recognize. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @mommade4change I think their empathy, care,& desire to learn abt wht we go through Lupus(for those who do care), is what makes me feel at ease #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A:Tenemos que ser honestos y decirles que, aunque ayudan con nuestra atención, no pueden tomar decisiones por nosotros. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat A1B by showing care 💜💜 and understanding. We need to be mindful of your feelings. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2A: Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/pNTQfXH1ER |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2A: A2A: This is tough. We have to be honest and tell them that although they help with our care, they cannot make decisions FOR us. #LupusChat |
| #LupusChat @Lupus_Chat Q2B: Cuidadores;cómo se acercaría a un ser querido tomando decisiones médicas que contradigan sus deseos para su plan de cuidado? #LupusChat https://t.co/u7wssJZptF |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2A: Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/pNTQfXH1ER |
| Tiffany ⁷ @TiffanyAndLupus A2A: Difficult! Perhaps, thank them for their input, explain how this can cause you harm & remind them it’s your decision to make #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Q2A: Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/dbVjkUFhP6 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. I think it’s important to let our caregivers know what our goals are and why they matter to us. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. Although we are grateful for their help, we are the ones primarily living through it, so our decisions matter. #LupusChat |
| RaquelRoschell @raquelonpurpose A1B We should always be nurturing our relationships. We can't make it all about us. We need to stay in touch..ask about them. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2A:Cómo debemos hablar con un cuidador,familia o amigo que toma decisiones de salud que no se alinean con nuestros deseos/metas? #LupusChat https://t.co/Dp4SmAmUtF |
| Carly by Nature @SynceNerd_Carli @lildeebab Same as me It'll happen in time.It took me a long time to open up about what I need & when I wasn't well. We all go through it. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. I used to get the impression that my voice didn’t matter, that I got myself sick and so I should stfu and do what others say #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2B: Q2B: Cuidadores;cómo se acercaría a un ser querido tomando decisiones médicas que contradigan sus deseos para su plan de cuidado? #LupusChat https://t.co/u7wssJZptF |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @iveyjanette_207 @Lupus_Chat Yes!! This is important! We have to vocalize what we want and need help with! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2A: I also strongly suggest designating a healthcare proxy who is aligned with your healthcare wishes & informing your Dr of it. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2B: Q2B: Caregivers, how would you approach a loved one making healthcare decisions that contradict your wishes for their care plan? #LupusChat https://t.co/Yzt7YS0CDq |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2A: Q2A: How should we address a caregiver who makes healthcare decisions that don’t align with our wishes or goals? #LupusChat https://t.co/pNTQfXH1ER |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2B: Q2B: Cuidadores;cómo se acercaría a un ser querido tomando decisiones médicas que contradigan sus deseos para su plan de cuidado? #LupusChat https://t.co/u7wssJZptF |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2B: Q2B: Caregivers, how would you approach a loved one making healthcare decisions that contradict your wishes for their care plan? #LupusChat https://t.co/Yzt7YS0CDq |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @Lupus_Chat A1B by showing care 💜💜 and understanding. We need to be mindful of your feelings. #LupusChat |
| Nae :) @heynaehey_ @Lupus_Chat A2A: You've got to tell your caregiver how you feel, no matter how hard it is & if they don't respect it, find someone that will #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @Lupus_Chat A1B by showing care 💜💜 and understanding. We need to be mindful of your feelings. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2A:Cómo debemos hablar con un cuidador,familia o amigo que toma decisiones de salud que no se alinean con nuestros deseos/metas? #LupusChat https://t.co/Dp4SmAmUtF |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1b. Nonverbal communication is essential. The facial expressions. Or watching them stay in bed all day. Instinctively recognize. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. It always made me felt like being sick was my fault. As if I did this, so now I get no more input into what has to be done. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2A: A2A: Difficult! Perhaps, thank them for their input, explain how this can cause you harm & remind them it’s your decision to make #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. I think it’s important to let our caregivers know what our goals are and why they matter to us. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A1B We should always be nurturing our relationships. We can't make it all about us. We need to stay in touch..ask about them. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: It’s important to have regular meetings w/ your caregiver to evaluate your care and to discuss future goals for your health. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. I used to get the impression that my voice didn’t matter, that I got myself sick and so I should stfu and do what others say #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. There used to be all these homemade remedies stuffed down my throat, and all these plans made for me without my input. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2A: A2A: I also strongly suggest designating a healthcare proxy who is aligned with your healthcare wishes & informing your Dr of it. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2a. I would have a discussion with them asap. Especially if it's family members. Reiterate those needs and goals. #LupusChat |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: You've got to tell your caregiver how you feel, no matter how hard it is & if they don't respect it, find someone that will #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. Although we are grateful for their help, we are the ones primarily living through it, so our decisions matter. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: We’ve discussed the best ways to recognize our symptoms, now let’s move onto care management. Question 2 is next. #LupusChat https://t.co/DcvV3ch18F |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A2A: A2A: I also strongly suggest designating a healthcare proxy who is aligned with your healthcare wishes & informing your Dr of it. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: Es importante tener reuniones regulares con su asistente para evaluar su atención y discutir las metas futuras de salud. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. This is bringing back horrible memories. It was a nightmare. Thank God my mom is more understanding now. #LupusChat |
| Caring For Lupus @CaringForLupus A2B Si nuestro ser querido quiere tomar una decisión médica diferente ...podemos ir juntos a una segura opinión médica. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A2A: A2A: Difficult! Perhaps, thank them for their input, explain how this can cause you harm & remind them it’s your decision to make #LupusChat |
| Nae :) @heynaehey_ @Lupus_Chat A2A: We deal with enough already alone, you've got to have someone on your team that's making life easier for you #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: Everyone must be on the same page for things to work properly with your care. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A2A: A2A: This is tough. We have to be honest and tell them that although they help with our care, they cannot make decisions FOR us. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2B: Q2B: Caregivers, how would you approach a loved one making healthcare decisions that contradict your wishes for their care plan? #LupusChat https://t.co/Yzt7YS0CDq |
| Carly by Nature @SynceNerd_Carli A2A: Todos deben estar en la misma página para que las cosas funcionen correctamente con su cuidado. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: You've got to tell your caregiver how you feel, no matter how hard it is & if they don't respect it, find someone that will #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2B. It can be frustrating to watch them do something you think will not help & as a caregiver to have to help them do that thing #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A2A. I used to get the impression that my voice didn’t matter, that I got myself sick and so I should stfu and do what others say #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A2A: A2A: It’s important to have regular meetings w/ your caregiver to evaluate your care and to discuss future goals for your health. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2B: Express deep concern, explain possible risks to loved ones but also acknowledge that their health is always their decision. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @mommade4change: A1B We should always be nurturing our relationships. We can't make it all about us. We need to stay in touch..ask about them. #LupusChat |
 | Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Q1A: Q1A: How can we help our caregivers, family & friends recognize and understand when we are not feeling well? #LupusChat https://t.co/yuQkyY7oJK |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2B. But ultimately, it is the patient’s life and it is the patient’s decision. Period. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2A: A2A: It’s important to have regular meetings w/ your caregiver to evaluate your care and to discuss future goals for your health. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2B:This is tough but we have to remember that even if we don’t think the decision is best, the patient’s wishes are final. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A2A. I think it’s important to let our caregivers know what our goals are and why they matter to us. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. It always made me felt like being sick was my fault. As if I did this, so now I get no more input into what has to be done. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2a. I would have a discussion with them asap. Especially if it's family members. Reiterate those needs and goals. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. There used to be all these homemade remedies stuffed down my throat, and all these plans made for me without my input. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2B: Tenemos que recordar que incluso si no creemos que la decisión es mejor, los deseos del paciente son definitivos. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2B Si nuestro ser querido quiere tomar una decisión médica diferente ...podemos ir juntos a una segura opinión médica. #LupusChat |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: We deal with enough already alone, you've got to have someone on your team that's making life easier for you #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2A: A2A: It’s important to have regular meetings w/ your caregiver to evaluate your care and to discuss future goals for your health. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2B. Communication is key though. It will help if the WHY is put on the table, concerning these decisions. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A1B We should always be nurturing our relationships. We can't make it all about us. We need to stay in touch..ask about them. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2A: A2A: Everyone must be on the same page for things to work properly with your care. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A2a. I would have a discussion with them asap. Especially if it's family members. Reiterate those needs and goals. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2B: A2B: Express deep concern, explain possible risks to loved ones but also acknowledge that their health is always their decision. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2A: A2A: Es importante tener reuniones regulares con su asistente para evaluar su atención y discutir las metas futuras de salud. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2B. But ultimately, it is the patient’s life and it is the patient’s decision. Period. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2A. This is bringing back horrible memories. It was a nightmare. Thank God my mom is more understanding now. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2B. It can be frustrating to watch them do something you think will not help & as a caregiver to have to help them do that thing #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2A: A2A: It’s important to have regular meetings w/ your caregiver to evaluate your care and to discuss future goals for your health. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2B. Communication is key though. It will help if the WHY is put on the table, concerning these decisions. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2A: A2A: Everyone must be on the same page for things to work properly with your care. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A2B Si nuestro ser querido quiere tomar una decisión médica diferente ...podemos ir juntos a una segura opinión médica. #LupusChat |
| Carly by Nature @SynceNerd_Carli @mommade4change Yes. It took me a while to realize I wasnt appreciating and considering the needs of my loved ones. #LupusChat |
| RaquelRoschell @raquelonpurpose A2A We have to speak up and be our own advocates. Unless I'm incapacitated I'm still in control of my body and health. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Welcome to #LupusChat! 🎉Today we'll discuss caregivers w/co-host @CaringforLupus. We'll share & learn our mutual needs during a lupus flare. https://t.co/hlHuoe16lj |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2A. I think it’s important to let our caregivers know what our goals are and why they matter to us. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2B: A2B: Express deep concern, explain possible risks to loved ones but also acknowledge that their health is always their decision. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2A. Although we are grateful for their help, we are the ones primarily living through it, so our decisions matter. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2A: A2A: Difficult! Perhaps, thank them for their input, explain how this can cause you harm & remind them it’s your decision to make #LupusChat |
| #LupusChat @Lupus_Chat Caregiver-patient relationships can be tough. Let’s dig deeper and discuss understanding each other better. Question 3 is next! #LupusChat https://t.co/m7Y1lSIsXM |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2B: Q2B: Cuidadores;cómo se acercaría a un ser querido tomando decisiones médicas que contradigan sus deseos para su plan de cuidado? #LupusChat https://t.co/u7wssJZptF |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A1b. Nonverbal communication is essential. The facial expressions. Or watching them stay in bed all day. Instinctively recognize. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Less than 2 hours to go until #LupusChat time! Get ready! https://t.co/W56Hp9mqn8 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Agreed! #LupusChat https://t.co/7SN5WRiWSQ |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @mommade4change Yes. It took me a while to realize I wasnt appreciating and considering the needs of my loved ones. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat I have had to do that many times with family members and boyfriends since my DX. All of them didn't think I was sick. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2B. Communication is key though. It will help if the WHY is put on the table, concerning these decisions. #LupusChat |
| #LupusChat @Lupus_Chat Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Tiffany ⁷ @TiffanyAndLupus Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/Y8r0STzuLL |
| Carly by Nature @SynceNerd_Carli RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: We deal with enough already alone, you've got to have someone on your team that's making life easier for you #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A2A We have to speak up and be our own advocates. Unless I'm incapacitated I'm still in control of my body and health. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2B. Communication is key though. It will help if the WHY is put on the table, concerning these decisions. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2B Si nuestro ser querido quiere tomar una decisión médica diferente ...podemos ir juntos a una segura opinión médica. #LupusChat |
 | Renée✨ @ReneeMHamilton Render the #respect of accepting that it is their life, their body, and their #health. They make the decisions. #Caregivers #support https://t.co/pZPyBiMGNu |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2A. Although we are grateful for their help, we are the ones primarily living through it, so our decisions matter. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2A. I think it’s important to let our caregivers know what our goals are and why they matter to us. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A2A We have to speak up and be our own advocates. Unless I'm incapacitated I'm still in control of my body and health. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2A: A2A: Everyone must be on the same page for things to work properly with your care. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2B. Communication is key though. It will help if the WHY is put on the table, concerning these decisions. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2B: A2B: Tenemos que recordar que incluso si no creemos que la decisión es mejor, los deseos del paciente son definitivos. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Caregiver-patient relationships can be tough. Let’s dig deeper and discuss understanding each other better. Question 3 is next! #LupusChat https://t.co/m7Y1lSIsXM |
| Tiffany ⁷ @TiffanyAndLupus RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: We deal with enough already alone, you've got to have someone on your team that's making life easier for you #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @CaringForLupus: @Lupus_Chat A1B by showing care 💜💜 and understanding. We need to be mindful of your feelings. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2B Si nuestro ser querido quiere tomar una decisión médica diferente ...podemos ir juntos a una segura opinión médica. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A2a. I would have a discussion with them asap. Especially if it's family members. Reiterate those needs and goals. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A2A: A2A: Everyone must be on the same page for things to work properly with your care. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @SynceNerd_Carli @Lupus_Chat I have had to do that many times with family members and boyfriends since my DX. All of them didn't think I was sick. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2A. There used to be all these homemade remedies stuffed down my throat, and all these plans made for me without my input. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2A: A2A: It’s important to have regular meetings w/ your caregiver to evaluate your care and to discuss future goals for your health. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: You've got to tell your caregiver how you feel, no matter how hard it is & if they don't respect it, find someone that will #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Caring For Lupus @CaringForLupus A2A Communication is important We need to learn & understand the reason behind Ur decision. Go 2 the appointments can be helpful #LupusChat |
| Renée✨ @ReneeMHamilton Render the #respect of accepting that it's their life, their body,& their #health. They make the decisions. #Caregivers #support #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A2A. It always made me felt like being sick was my fault. As if I did this, so now I get no more input into what has to be done. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Caregiver-patient relationships can be tough. Let’s dig deeper and discuss understanding each other better. Question 3 is next! #LupusChat https://t.co/m7Y1lSIsXM |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A2B: A2B: Express deep concern, explain possible risks to loved ones but also acknowledge that their health is always their decision. #LupusChat |
| #LupusChat @Lupus_Chat Q3: Cuidadores, amigos y familia, qué quiere entender mejor acerca de sus seres queridos que viven con enfermedades crónicas? #LupusChat https://t.co/bEm26qpdtD |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| #LupusChat @Lupus_Chat RT @ReneeMHamilton: Render the #respect of accepting that it's their life, their body,& their #health. They make the decisions. #Caregivers #support #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2A Communication is important We need to learn & understand the reason behind Ur decision. Go 2 the appointments can be helpful #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A2B. Communication is key though. It will help if the WHY is put on the table, concerning these decisions. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Cuidadores, amigos y familia, qué quiere entender mejor acerca de sus seres queridos que viven con enfermedades crónicas? #LupusChat https://t.co/bEm26qpdtD |
| Carly by Nature @SynceNerd_Carli @missnaedotcom @Lupus_Chat Yes! This is one of biggest lessons I've learned. I can't do it alone. I need to ask for help I need. #LupusChat |
| Renée✨ @ReneeMHamilton @Lupus_Chat A2) #Educate them on #compassion #management There is a great line between CARE and CONTROL. #LupusChat |
| Nae :) @heynaehey_ RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Caring For Lupus @CaringForLupus A3 Como cuidadora quiero aprender como Lupus, esta enfermedad crónica la afecta, que siente ella. Como le puedo ayudar #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: I would like my caregivers to understand the severity of my health & that when I express pain or limitations to believe me. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: You've got to tell your caregiver how you feel, no matter how hard it is & if they don't respect it, find someone that will #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ReneeMHamilton: @Lupus_Chat A2) #Educate them on #compassion #management There is a great line between CARE and CONTROL. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: Cuidadores, amigos y familia, qué quiere entender mejor acerca de sus seres queridos que viven con enfermedades crónicas? #LupusChat https://t.co/bEm26qpdtD |
| Tiffany ⁷ @TiffanyAndLupus RT @ReneeMHamilton: Render the #respect of accepting that it's their life, their body,& their #health. They make the decisions. #Caregivers #support #LupusChat |
| Renée✨ @ReneeMHamilton @Lupus_Chat A2) Help them understand the "best interest" is determined by the person and their medical providers. #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2A Communication is important We need to learn & understand the reason behind Ur decision. Go 2 the appointments can be helpful #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Como cuidadora quiero aprender como Lupus, esta enfermedad crónica la afecta, que siente ella. Como le puedo ayudar #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: I would like my caregivers to understand the severity of my health & that when I express pain or limitations to believe me. #LupusChat |
| #LupusChat @Lupus_Chat RT @ReneeMHamilton: @Lupus_Chat A2) Help them understand the "best interest" is determined by the person and their medical providers. #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @theone_cyn @Valou_lou7 @samie_love Help answer this please? #LupusChat https://t.co/G8vT5PEc9N |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q3: Q3: Cuidadores, amigos y familia, qué quiere entender mejor acerca de sus seres queridos que viven con enfermedades crónicas? #LupusChat https://t.co/bEm26qpdtD |
| Renée✨ @ReneeMHamilton @Lupus_Chat A2) Remind them that their care and concern is valid, but remove any feelings of superiority or guilt. #lupuschat |
| Carly by Nature @SynceNerd_Carli You're preaching a word today, sis! Yes. If they aren't meeting your needs find someone who will. #LupusChat https://t.co/RyOe6UNPEG |
| Carly by Nature @SynceNerd_Carli RT @missnaedotcom: @Lupus_Chat A2A: @Lupus_Chat A2A: You've got to tell your caregiver how you feel, no matter how hard it is & if they don't respect it, find someone that will #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A1B. I think we can show an interest in understanding what our loved ones go through without being pushy about it. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @Tinarsjn @WorldWarShem @sillystace_ Help answer this please? #LupusChat https://t.co/G8vT5PEc9N |
| Caring For Lupus @CaringForLupus A3 Learning is Caring 💜✋💜 #LupusChat https://t.co/oXw3h8N9Ze |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat It's so hard because they cant see it they dont believe it #LupusChat |
| Renée✨ @ReneeMHamilton @Lupus_Chat A2) Let them know that you are not incapable of decision-making. Establish boundaries. #Yes #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. The symptoms and what to look for. Especially emotionally. And when to give them "space" without angering them. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @ReneeMHamilton: @Lupus_Chat A2) Help them understand the "best interest" is determined by the person and their medical providers. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: I would like my caregivers to understand the severity of my health & that when I express pain or limitations to believe me. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Como cuidadora quiero aprender como Lupus, esta enfermedad crónica la afecta, que siente ella. Como le puedo ayudar #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: I would like my caregivers to understand the severity of my health & that when I express pain or limitations to believe me. #LupusChat |
| Nae :) @heynaehey_ @SynceNerd_Carli @Lupus_Chat I think we try to do everything on our own because we just want to have some sense of normality and independence in our lives. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: Many caregivers & friends just want to know how they can help in any way. They often feel helpless since there is no cure. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A3: A3: I would like my caregivers to understand the severity of my health & that when I express pain or limitations to believe me. #LupusChat |
| #LupusChat @Lupus_Chat RT @ReneeMHamilton: @Lupus_Chat A2) Remind them that their care and concern is valid, but remove any feelings of superiority or guilt. #lupuschat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Learning is Caring 💜✋💜 #LupusChat https://t.co/oXw3h8N9Ze |
| #LupusChat @Lupus_Chat RT @ReneeMHamilton: @Lupus_Chat A2) Let them know that you are not incapable of decision-making. Establish boundaries. #Yes #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. The symptoms and what to look for. Especially emotionally. And when to give them "space" without angering them. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Q3: Q3: Cuidadores, amigos y familia, qué quiere entender mejor acerca de sus seres queridos que viven con enfermedades crónicas? #LupusChat https://t.co/bEm26qpdtD |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 #LupusChat https://t.co/UEUfHQlR78 |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @SynceNerd_Carli @Lupus_Chat I think we try to do everything on our own because we just want to have some sense of normality and independence in our lives. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Many caregivers & friends just want to know how they can help in any way. They often feel helpless since there is no cure. #LupusChat |
| Carly by Nature @SynceNerd_Carli Yeeesssssss! It's a fine line and it's important to set proper boundaries to avoid crossing it. #LupusChat https://t.co/Pd5YLJ7tx6 |
| Carly by Nature @SynceNerd_Carli RT @ReneeMHamilton: @Lupus_Chat A2) #Educate them on #compassion #management There is a great line between CARE and CONTROL. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ReneeMHamilton: @Lupus_Chat A2) Let them know that you are not incapable of decision-making. Establish boundaries. #Yes #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @ReneeMHamilton: Render the #respect of accepting that it's their life, their body,& their #health. They make the decisions. #Caregivers #support #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Learning is Caring 💜✋💜 #LupusChat https://t.co/oXw3h8N9Ze |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2A Communication is important We need to learn & understand the reason behind Ur decision. Go 2 the appointments can be helpful #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A3. The symptoms and what to look for. Especially emotionally. And when to give them "space" without angering them. #LupusChat |
| #LupusChat @Lupus_Chat It’s important caregivers understand patient needs, Let’s discuss caregiver needs next. Get ready for question 4! #LupusChat https://t.co/CyPinLoYMg |
| Carly by Nature @SynceNerd_Carli A3:From patient perspective, I’d like my caregiver to know I’m difficult at times bc I am losing abilities, but be patient w/ me. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: Quiero que mi cuidador sepa que a veces soy difícil porque he perdido mis habilidades. Por favor, se paciente conmigo. #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat 3A I want to understand your feelings and thoughts...I want to learn what your are going through. I want to be there for you. #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A2A We have to speak up and be our own advocates. Unless I'm incapacitated I'm still in control of my body and health. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Wow ok that is the perfect answer! I was getting frustrated by this question, but you hit it right on the head! #LupusChat https://t.co/PdGtf7IFvF |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Right. Only my mom believed it. And knew when I was flaring. Rest of the family said I was "faking it" for attention. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3:From patient perspective, I’d like my caregiver to know I’m difficult at times bc I am losing abilities, but be patient w/ me. #LupusChat |
| RaquelRoschell @raquelonpurpose A3 What do they REALLY need from me?! Not just what I think I should be doing. Sometimes people can be a pain when you're sick😃 #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat 3A I want to understand your feelings and thoughts...I want to learn what your are going through. I want to be there for you. #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: It’s important caregivers understand patient needs, Let’s discuss caregiver needs next. Get ready for question 4! #LupusChat https://t.co/CyPinLoYMg |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @Lupus_Chat 3A I want to understand your feelings and thoughts...I want to learn what your are going through. I want to be there for you. #Lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It’s important caregivers understand patient needs, Let’s discuss caregiver needs next. Get ready for question 4! #LupusChat https://t.co/CyPinLoYMg |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @ReneeMHamilton: @Lupus_Chat A2) #Educate them on #compassion #management There is a great line between CARE and CONTROL. #LupusChat |
| #LupusChat @Lupus_Chat Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/yag6HGiLsR |
| Tiffany ⁷ @TiffanyAndLupus Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/ZXSwPpjGCe |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @ReneeMHamilton: Render the #respect of accepting that it's their life, their body,& their #health. They make the decisions. #Caregivers #support #LupusChat |
| #LupusChat @Lupus_Chat Q4:De qué manera podemos ayudar asegurar que nuestros cuidadores eviten el agotamiento y tomen un tiempo para cuidarse así mismo? #LupusChat https://t.co/0Y4TSDa7b4 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Girl I know I am lmao. Coz I don't like to talk but I also want you to guess what I need. #LupusChat https://t.co/itBrYCf6rB |
| Carly by Nature @SynceNerd_Carli @cardiackenzie This is extremely important and a lesson I had to learn. Caregivers are people too and our life impacts them so much. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @Tinarsjn @WorldWarShem @sillystace_ Help answer this please? #LupusChat https://t.co/G8vT5PEc9N |
| Caring For Lupus @CaringForLupus A4 Como cuidadora, mi prioridad son mis hijos. Muchas veces nos olvidamos de tomar un descanso. Pero es importante hacerlo #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @ReneeMHamilton: @Lupus_Chat A2) Remind them that their care and concern is valid, but remove any feelings of superiority or guilt. #lupuschat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A3: A3: Many caregivers & friends just want to know how they can help in any way. They often feel helpless since there is no cure. #LupusChat |
 | Bèl ti manmie Rosie @Tinarsjn @Xtel007 @WorldWarShem @sillystace_ A3: Everything, the symptoms and the triggers. How it affects the day to day activity. How to know when its "regular" or serious #LupusChat |
 | 🌙🌻 @_lunakay RT @TiffanyAndLupus: A3: A3: I would like my caregivers to understand the severity of my health & that when I express pain or limitations to believe me. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 💜 https://t.co/sNOkFOPPdd |
| 🌙🌻 @_lunakay RT @TiffanyAndLupus: A3: A3: Many caregivers & friends just want to know how they can help in any way. They often feel helpless since there is no cure. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Girl I know I am lmao. Coz I don't like to talk but I also want you to guess what I need. #LupusChat https://t.co/itBrYCf6rB |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: It’s important caregivers understand patient needs, Let’s discuss caregiver needs next. Get ready for question 4! #LupusChat https://t.co/CyPinLoYMg |
| Tiffany ⁷ @TiffanyAndLupus A3: There is a big misunderstanding of our capabilities w/lupus. Many don't understand we can have unexpected good & bad days. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: It’s important caregivers understand patient needs, Let’s discuss caregiver needs next. Get ready for question 4! #LupusChat https://t.co/CyPinLoYMg |
| 🌙🌻 @_lunakay RT @CaringForLupus: A3 Learning is Caring 💜✋💜 #LupusChat https://t.co/oXw3h8N9Ze |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Tinarsjn: @Xtel007 @WorldWarShem @sillystace_ A3: @Xtel007 @WorldWarShem @sillystace_ A3: Everything, the symptoms and the triggers. How it affects the day to day activity. How to know when its "regular" or serious #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: Oftentimes that misunderstanding of how lupus affects our lives daily can lead to "disbelief" when we're hurting. #LupusChat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat This is why awareness and education about Lupus (and other AI diseases) is important. They need to know this exists and is REAL #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @cardiackenzie This is extremely important and a lesson I had to learn. Caregivers are people too and our life impacts them so much. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4 Como cuidadora, mi prioridad son mis hijos. Muchas veces nos olvidamos de tomar un descanso. Pero es importante hacerlo #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Yes, that is very true. #LupusChat https://t.co/BBPSzwU2uB |
| #LupusChat @Lupus_Chat RT @Tinarsjn: @Xtel007 @WorldWarShem @sillystace_ A3: @Xtel007 @WorldWarShem @sillystace_ A3: Everything, the symptoms and the triggers. How it affects the day to day activity. How to know when its "regular" or serious #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: There is a big misunderstanding of our capabilities w/lupus. Many don't understand we can have unexpected good & bad days. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Tinarsjn: @Xtel007 @WorldWarShem @sillystace_ A3: @Xtel007 @WorldWarShem @sillystace_ A3: Everything, the symptoms and the triggers. How it affects the day to day activity. How to know when its "regular" or serious #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Como cuidadora, mi prioridad son mis hijos. Muchas veces nos olvidamos de tomar un descanso. Pero es importante hacerlo #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: Oftentimes that misunderstanding of how lupus affects our lives daily can lead to "disbelief" when we're hurting. #LupusChat |
| RaquelRoschell @raquelonpurpose @Xtel007 LOL. Yes.."you should know me by now". Have said it many times when it comes to family. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: There is a big misunderstanding of our capabilities w/lupus. Many don't understand we can have unexpected good & bad days. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/yag6HGiLsR |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/yag6HGiLsR |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4:De qué manera podemos ayudar asegurar que nuestros cuidadores eviten el agotamiento y tomen un tiempo para cuidarse así mismo? #LupusChat https://t.co/0Y4TSDa7b4 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @cardiackenzie This is extremely important and a lesson I had to learn. Caregivers are people too and our life impacts them so much. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3: A3: There is a big misunderstanding of our capabilities w/lupus. Many don't understand we can have unexpected good & bad days. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @ReneeMHamilton: @Lupus_Chat A2) Let them know that you are not incapable of decision-making. Establish boundaries. #Yes #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Tinarsjn: @Xtel007 @WorldWarShem @sillystace_ A3: @Xtel007 @WorldWarShem @sillystace_ A3: Everything, the symptoms and the triggers. How it affects the day to day activity. How to know when its "regular" or serious #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Como cuidadora, mi prioridad son mis hijos. Muchas veces nos olvidamos de tomar un descanso. Pero es importante hacerlo #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @iveyjanette_207 @Lupus_Chat This is why awareness and education about Lupus (and other AI diseases) is important. They need to know this exists and is REAL #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Oftentimes that misunderstanding of how lupus affects our lives daily can lead to "disbelief" when we're hurting. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Lol right. https://t.co/1TggQaRvQy |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Yes, that is very true. #LupusChat https://t.co/BBPSzwU2uB |
| Tiffany ⁷ @TiffanyAndLupus A4: Encourage your caregiver to do a stress-relieving activity either with you or on their own to help reduce overwhelm. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @iveyjanette_207 @Lupus_Chat This is why awareness and education about Lupus (and other AI diseases) is important. They need to know this exists and is REAL #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A3: A3: Oftentimes that misunderstanding of how lupus affects our lives daily can lead to "disbelief" when we're hurting. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A3: A3: There is a big misunderstanding of our capabilities w/lupus. Many don't understand we can have unexpected good & bad days. #LupusChat |
| Bèl ti manmie Rosie @Tinarsjn This was actually the hardest thing for me to understand. It took my fried forever and a miracle to get through to me https://t.co/CNUBxaaNYt |
| Tiffany ⁷ @TiffanyAndLupus A4: Self-care should be practiced often. It’s necessary to restore your self & health before you can help anyone else. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Encourage your caregiver to do a stress-relieving activity either with you or on their own to help reduce overwhelm. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/yag6HGiLsR |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: @iveyjanette_207 @Lupus_Chat This is why awareness and education about Lupus (and other AI diseases) is important. They need to know this exists and is REAL #LupusChat |
| Caring For Lupus @CaringForLupus A4 As a caregiver many times we forget to take time for ourselves. It is important to do it. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/yag6HGiLsR |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Self-care should be practiced often. It’s necessary to restore your self & health before you can help anyone else. #LupusChat |
| RaquelRoschell @raquelonpurpose @TiffanyAndLupus This is good💜✨. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Ask how they are doing. It’s often all about us, but we need to remind them and ourselves that their health/wellbeing matters #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Self-care should be practiced often. It’s necessary to restore your self & health before you can help anyone else. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4 As a caregiver many times we forget to take time for ourselves. It is important to do it. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Encourage your caregiver to do a stress-relieving activity either with you or on their own to help reduce overwhelm. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat And sadly,many of them still DON'T want to know Lupus is real and there's no cure. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Make sure they take time for their own selfcare. When we can, we have to care for the people who care for us. #LupusChat |
| Carly by Nature @SynceNerd_Carli @ODDGeekOUT Your input is appreciated, love. How can I help you understand better? What, would you like to know more about? #LupusChat https://t.co/SSjlaH9hTk |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Ask how they are doing. It’s often all about us, but we need to remind them and ourselves that their health/wellbeing matters #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Ask how they are doing. It’s often all about us, but we need to remind them and ourselves that their health/wellbeing matters #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: We really need to ensure our caregivers take time for themselves and take time to do something that makes THEM happy. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A4: A4: Encourage your caregiver to do a stress-relieving activity either with you or on their own to help reduce overwhelm. #LupusChat |
 | Tinu Abayomi-Paul @Tinu RT @Lupus_Chat: Q3: Q3: Caregivers, friends & family, what do you want to understand better about your loved ones living with chronic illness? #LupusChat https://t.co/k17ZKrtqA2 |
| Carly by Nature @SynceNerd_Carli A4: Debemos asegurarnos de que nuestros cuidadores tomen tiempo para sí mismos y hagan algo que los haga felices. #LupusChat |
| Nae :) @heynaehey_ @Lupus_Chat A4: Go out with your caregiver as a friend. Dinner, a movie, or stay in & play games. You want to show you appreciate them too. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @ODDGeekOUT Your input is appreciated, love. How can I help you understand better? What, would you like to know more about? #LupusChat https://t.co/SSjlaH9hTk |
| Carly by Nature @SynceNerd_Carli A4: Giving them time to do things by themselves and even spend time together doing things that they love. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Make sure they take time for their own selfcare. When we can, we have to care for the people who care for us. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: In what ways can we help ensure that our caregivers prevent burnout and take some time to care for themselves? #LupusChat https://t.co/yag6HGiLsR |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: We really need to ensure our caregivers take time for themselves and take time to do something that makes THEM happy. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: Déles tiempo para hacer cosas por sí mismos e incluso pasar tiempo juntos haciendo cosas que les encantan. #LupusChat |
| Nae :) @heynaehey_ Agree with this 100% https://t.co/O0B0DVM688 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @missnaedotcom: @Lupus_Chat A4: @Lupus_Chat A4: Go out with your caregiver as a friend. Dinner, a movie, or stay in & play games. You want to show you appreciate them too. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A4: A4: We really need to ensure our caregivers take time for themselves and take time to do something that makes THEM happy. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4: Also, saying thank you vocally and with actions to let your caregivers & friends know they are appreciated. That's important! #LupusChat |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @Lupus_Chat A4: @Lupus_Chat A4: Go out with your caregiver as a friend. Dinner, a movie, or stay in & play games. You want to show you appreciate them too. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Giving them time to do things by themselves and even spend time together doing things that they love. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 As a caregiver many times we forget to take time for ourselves. It is important to do it. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 #LupusChat https://t.co/Y7ALuQKggm |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. Designate an alternate/backup caregiver to help out when needed. I did that when my mom was losing her battle 15 years ago. #LupusChat |
| Caring For Lupus @CaringForLupus A4 Sometimes we are so worry about our love ones that we forget a self-care. Sometimes it is the last thing we are thinking about #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Also, saying thank you vocally and with actions to let your caregivers & friends know they are appreciated. That's important! #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Déles tiempo para hacer cosas por sí mismos e incluso pasar tiempo juntos haciendo cosas que les encantan. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Make sure they take time for their own selfcare. When we can, we have to care for the people who care for us. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A4: A4: Also, saying thank you vocally and with actions to let your caregivers & friends know they are appreciated. That's important! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Giving them time to do things by themselves and even spend time together doing things that they love. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @missnaedotcom: @Lupus_Chat A4: @Lupus_Chat A4: Go out with your caregiver as a friend. Dinner, a movie, or stay in & play games. You want to show you appreciate them too. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @missnaedotcom: @SynceNerd_Carli @Lupus_Chat I think we try to do everything on our own because we just want to have some sense of normality and independence in our lives. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Debemos asegurarnos de que nuestros cuidadores tomen tiempo para sí mismos y hagan algo que los haga felices. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: We really need to ensure our caregivers take time for themselves and take time to do something that makes THEM happy. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: #LupusChat https://t.co/Y7ALuQKggm |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4. Designate an alternate/backup caregiver to help out when needed. I did that when my mom was losing her battle 15 years ago. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4 Sometimes we are so worry about our love ones that we forget a self-care. Sometimes it is the last thing we are thinking about #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Sometimes we are so worry about our love ones that we forget a self-care. Sometimes it is the last thing we are thinking about #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A4. Designate an alternate/backup caregiver to help out when needed. I did that when my mom was losing her battle 15 years ago. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: #LupusChat https://t.co/Y7ALuQKggm |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Sometimes we are so worry about our love ones that we forget a self-care. Sometimes it is the last thing we are thinking about #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. Designate an alternate/backup caregiver to help out when needed. I did that when my mom was losing her battle 15 years ago. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: #LupusChat https://t.co/Y7ALuQKggm |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: Also, saying thank you vocally and with actions to let your caregivers & friends know they are appreciated. That's important! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A4 Sometimes we are so worry about our love ones that we forget a self-care. Sometimes it is the last thing we are thinking about #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @missnaedotcom: @Lupus_Chat A4: @Lupus_Chat A4: Go out with your caregiver as a friend. Dinner, a movie, or stay in & play games. You want to show you appreciate them too. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Déles tiempo para hacer cosas por sí mismos e incluso pasar tiempo juntos haciendo cosas que les encantan. #LupusChat |
| Nae :) @heynaehey_ @Xtel007 @Lupus_Chat Yes!!! Let them have time to themselves & let them regroup as well! Let them have space when it's needed as much as they need it. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Giving them time to do things by themselves and even spend time together doing things that they love. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: A4 Sometimes we are so worry about our love ones that we forget a self-care. Sometimes it is the last thing we are thinking about #LupusChat |
| #LupusChat @Lupus_Chat Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 That is a great idea. And I'm very sorry about your mom. #LupusChat https://t.co/MF3mQqEcfP |
| RaquelRoschell @raquelonpurpose RT @missnaedotcom: @Xtel007 @Lupus_Chat Yes!!! Let them have time to themselves & let them regroup as well! Let them have space when it's needed as much as they need it. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @missnaedotcom: @Xtel007 @Lupus_Chat Yes!!! Let them have time to themselves & let them regroup as well! Let them have space when it's needed as much as they need it. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A4: A4: Giving them time to do things by themselves and even spend time together doing things that they love. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A4: A4: We really need to ensure our caregivers take time for themselves and take time to do something that makes THEM happy. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A4: A4: Also, saying thank you vocally and with actions to let your caregivers & friends know they are appreciated. That's important! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @missnaedotcom: @Xtel007 @Lupus_Chat Yes!!! Let them have time to themselves & let them regroup as well! Let them have space when it's needed as much as they need it. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| #LupusChat @Lupus_Chat Q5: How can those w/chronic illness find a balance between managing their own health & their relationship with their loved ones? #LupusChat https://t.co/3ZgqrgYuG9 |
| Tiffany ⁷ @TiffanyAndLupus Q5: How can those w/chronic illness find a balance between managing their own health & their relationship with their loved ones? #LupusChat https://t.co/9rfxXMt6aH |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A4. Make sure they take time for their own selfcare. When we can, we have to care for the people who care for us. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A4. Ask how they are doing. It’s often all about us, but we need to remind them and ourselves that their health/wellbeing matters #LupusChat |
| #LupusChat @Lupus_Chat Q5: Cómo pueden personas con enfermedad crónica tener un equilibrio entre administrar su salud y relación con sus seres queridos? #LupusChat https://t.co/0SUpUZ7aRY |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A4: A4: Encourage your caregiver to do a stress-relieving activity either with you or on their own to help reduce overwhelm. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: How can those w/chronic illness find a balance between managing their own health & their relationship with their loved ones? #LupusChat https://t.co/3ZgqrgYuG9 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: How can those w/chronic illness find a balance between managing their own health & their relationship with their loved ones? #LupusChat https://t.co/3ZgqrgYuG9 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q5: Q5: Cómo pueden personas con enfermedad crónica tener un equilibrio entre administrar su salud y relación con sus seres queridos? #LupusChat https://t.co/0SUpUZ7aRY |
| Carly by Nature @SynceNerd_Carli RT @missnaedotcom: @Xtel007 @Lupus_Chat Yes!!! Let them have time to themselves & let them regroup as well! Let them have space when it's needed as much as they need it. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: How can those w/chronic illness find a balance between managing their own health & their relationship with their loved ones? #LupusChat https://t.co/3ZgqrgYuG9 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. It helps when the people we care for understands the limitations we have. With good communication we can care for each other #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Cómo pueden personas con enfermedad crónica tener un equilibrio entre administrar su salud y relación con sus seres queridos? #LupusChat https://t.co/0SUpUZ7aRY |
| Carly by Nature @SynceNerd_Carli A5:We have to be sure to respect each other and see each other as whole individuals who both need space, time, and understanding. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3: A3: Oftentimes that misunderstanding of how lupus affects our lives daily can lead to "disbelief" when we're hurting. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: Debemos respetarnos unos a otros y vernos como individuos completos que necesitan espacio, tiempo y entendimiento. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A5: A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A5:We have to be sure to respect each other and see each other as whole individuals who both need space, time, and understanding. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: Explaining how my energy varies & dictates what I’m able to do & not do has helped some of my caregivers/friends understand. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: We also need to set healthy boundaries.This ensures that everyone is on the same page with care and personal space. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A5: A5: Explaining how my energy varies & dictates what I’m able to do & not do has helped some of my caregivers/friends understand. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: Debemos establecer límites saludables. Esto asegura que todos estén en la misma página con cuidado y espacio personal. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: How can those w/chronic illness find a balance between managing their own health & their relationship with their loved ones? #LupusChat https://t.co/3ZgqrgYuG9 |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: Telling your caregivers & friends about safe activities for your health can help to maintain relationships post diagnosis. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: We also need to set healthy boundaries.This ensures that everyone is on the same page with care and personal space. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Debemos respetarnos unos a otros y vernos como individuos completos que necesitan espacio, tiempo y entendimiento. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5:We have to be sure to respect each other and see each other as whole individuals who both need space, time, and understanding. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: Explaining how my energy varies & dictates what I’m able to do & not do has helped some of my caregivers/friends understand. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q5: Q5: Cómo pueden personas con enfermedad crónica tener un equilibrio entre administrar su salud y relación con sus seres queridos? #LupusChat https://t.co/0SUpUZ7aRY |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. It helps when the people we care for understands the limitations we have. With good communication we can care for each other #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Very very important! https://t.co/D4BxjxaRmU |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @Xtel007 @Lupus_Chat Yes!!! Let them have time to themselves & let them regroup as well! Let them have space when it's needed as much as they need it. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: Telling your caregivers & friends about safe activities for your health can help to maintain relationships post diagnosis. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Debemos establecer límites saludables. Esto asegura que todos estén en la misma página con cuidado y espacio personal. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A5: A5: Debemos respetarnos unos a otros y vernos como individuos completos que necesitan espacio, tiempo y entendimiento. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: Telling your caregivers & friends about safe activities for your health can help to maintain relationships post diagnosis. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: We also need to set healthy boundaries.This ensures that everyone is on the same page with care and personal space. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A5: A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. It helps when the people we care for understands the limitations we have. With good communication we can care for each other #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: Explaining how my energy varies & dictates what I’m able to do & not do has helped some of my caregivers/friends understand. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: Debemos respetarnos unos a otros y vernos como individuos completos que necesitan espacio, tiempo y entendimiento. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Cómo pueden personas con enfermedad crónica tener un equilibrio entre administrar su salud y relación con sus seres queridos? #LupusChat https://t.co/0SUpUZ7aRY |
| RaquelRoschell @raquelonpurpose This... #LupusChat https://t.co/w2SiJUMe6E |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A5. It helps when the people we care for understands the limitations we have. With good communication we can care for each other #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. It helps when the people we care for understands the limitations we have. With good communication we can care for each other #LupusChat |
| Caring For Lupus @CaringForLupus A4 Since my daughter's diagnosis self-care has been the last thing in my mind. We needed to make sure that she is ok first. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: My sisters now know to ask me to do low-energy type activities. Late parties, drinking, dancing are usually a NO for me. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Since my daughter's diagnosis self-care has been the last thing in my mind. We needed to make sure that she is ok first. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4 Since my daughter's diagnosis self-care has been the last thing in my mind. We needed to make sure that she is ok first. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. Explain your health conditions to loved ones. Do it in a non-threatening manner. Try to plan activities and self-care. #LupusChat |
| RaquelRoschell @raquelonpurpose @TiffanyAndLupus I agree. Some relationships may not endure. The right ones will. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A5. It helps when the people we care for understands the limitations we have. With good communication we can care for each other #LupusChat |
| #LupusChat @Lupus_Chat Our last question is up next! #LupusChat https://t.co/WHwEi4E22o |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A5: A5: Telling your caregivers & friends about safe activities for your health can help to maintain relationships post diagnosis. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A5: A5: We also need to set healthy boundaries.This ensures that everyone is on the same page with care and personal space. #LupusChat |
| Carly by Nature @SynceNerd_Carli @lildeebab Yes! I think communication plays the biggest role. Being open and honest avoids a lot of issues. I'm working on this, myself. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A5: A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Since my daughter's diagnosis self-care has been the last thing in my mind. We needed to make sure that she is ok first. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A5:We have to be sure to respect each other and see each other as whole individuals who both need space, time, and understanding. #LupusChat |
| #LupusChat @Lupus_Chat Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| Tiffany ⁷ @TiffanyAndLupus Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/8DKwIoUcB7 |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A5. Explain your health conditions to loved ones. Do it in a non-threatening manner. Try to plan activities and self-care. #LupusChat |
 | Amy Burns @AmyBurnsBooks @Lupus_Chat Still trying to figure out. #LupusChat I put myself 1st when unwell. But when I feel well I can be more balanced & offer support to others. |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @lildeebab Yes! I think communication plays the biggest role. Being open and honest avoids a lot of issues. I'm working on this, myself. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Our last question is up next! #LupusChat https://t.co/WHwEi4E22o |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q6: Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| #LupusChat @Lupus_Chat RT @AmyLBurns: @Lupus_Chat Still trying to figure out. #LupusChat I put myself 1st when unwell. But when I feel well I can be more balanced & offer support to others. |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: @TiffanyAndLupus I agree. Some relationships may not endure. The right ones will. #LupusChat |
| Carly by Nature @SynceNerd_Carli @CaringForLupus I love the way you care for your daughter, but your care is important also. You can't be the best caregiver if you aren't 100% #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @AmyLBurns: @Lupus_Chat Still trying to figure out. #LupusChat I put myself 1st when unwell. But when I feel well I can be more balanced & offer support to others. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q6: Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| Carly by Nature @SynceNerd_Carli RT @AmyLBurns: @Lupus_Chat Still trying to figure out. #LupusChat I put myself 1st when unwell. But when I feel well I can be more balanced & offer support to others. |
 | daphne's daughter @DeniseWhorms RT @TiffanyAndLupus: A4: A4: Also, saying thank you vocally and with actions to let your caregivers & friends know they are appreciated. That's important! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. By talking lol. Simple. Our caregivers make a great effort to educate themselves. They can help educate others around them #LupusChat |
| Nae :) @heynaehey_ @TiffanyAndLupus Tiffany, you took the words right out of my mouth #LupusChat if they are meant to be in your life, they will love you regardless |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. We need more events/initiatives geared towards caregivers/family/friends of people with Lupus. #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat A5 It is important that our loveones learn about Lupus so they can be more understanding & be able 2 create a healthy environment #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. Involving caregivers/family/friends in advocacy imp. They experience Lupus in proximity to us, and that is valuable. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. They can speak on their experience as a caregiver right alongside our experience as patients. #LupusChat |
| #LupusChat @Lupus_Chat Q6: Cómo podemos trabajar juntos para aumentar la concienciación sobre Lupus y aumentar el apoyo en nuestras comunidades? #LupusChat https://t.co/SSRceb39mm |
| Tiffany ⁷ @TiffanyAndLupus A6: I often ask friends & loved ones to share or talk about lupus in a way they're comfortable with to help raise awareness. #LupusChat |
| RaquelRoschell @raquelonpurpose A5. I know/ love many people. My inner circle is small. True friendships are cherished & real so we don't have to people please #LupusChat |
| Carly by Nature @SynceNerd_Carli @AmyLBurns @Lupus_Chat YES! Important to prioritize your needs over others' when you aren't at your best. Finding that balance when you ARE well is key #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. Involving caregivers/family/friends in advocacy imp. They experience Lupus in proximity to us, and that is valuable. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. We need more events/initiatives geared towards caregivers/family/friends of people with Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @Lupus_Chat A5 It is important that our loveones learn about Lupus so they can be more understanding & be able 2 create a healthy environment #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A6. Explain lupus to our families. To our churches(if they care;many don't). Join support groups or create one. Word of mouth. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A6: Some loved ones like sharing graphics, some will wear a shirt, pin, or bracelet and that helps them start a conversation #LupusChat |
| Nae :) @heynaehey_ RT @Xtel007: A6. We need more events/initiatives geared towards caregivers/family/friends of people with Lupus. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. Involving caregivers/family/friends in advocacy imp. They experience Lupus in proximity to us, and that is valuable. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @Lupus_Chat A5 It is important that our loveones learn about Lupus so they can be more understanding & be able 2 create a healthy environment #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. We need more events/initiatives geared towards caregivers/family/friends of people with Lupus. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @missnaedotcom: @TiffanyAndLupus Tiffany, you took the words right out of my mouth #LupusChat if they are meant to be in your life, they will love you regardless |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. By talking lol. Simple. Our caregivers make a great effort to educate themselves. They can help educate others around them #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: If we communicate with our caregivers and share our experiences, they can then spread awareness based on that. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat A5 It is important that our loveones learn about Lupus so they can be more understanding & be able 2 create a healthy environment #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @CaringForLupus I love the way you care for your daughter, but your care is important also. You can't be the best caregiver if you aren't 100% #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Si compartimos nuestras experiencias con nuestros cuidadores, entonces pueden difundir la conciencia basada en eso. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. By talking lol. Simple. Our caregivers make a great effort to educate themselves. They can help educate others around them #LupusChat |
| #LupusChat @Lupus_Chat RT @missnaedotcom: @TiffanyAndLupus Tiffany, you took the words right out of my mouth #LupusChat if they are meant to be in your life, they will love you regardless |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. We need more events/initiatives geared towards caregivers/family/friends of people with Lupus. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. They can speak on their experience as a caregiver right alongside our experience as patients. #LupusChat |
| daphne's daughter @DeniseWhorms RT @Lupus_Chat: Let’s discuss maintaining our relationships next. Stay tuned for question 5! #LupusChat https://t.co/ljMox7BqAE |
| Carly by Nature @SynceNerd_Carli A6:We have to encourage them to seek education on Lupus, then they are better equipped to be advocates for the Lupus community. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. Involving caregivers/family/friends in advocacy imp. They experience Lupus in proximity to us, and that is valuable. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: I often ask friends & loved ones to share or talk about lupus in a way they're comfortable with to help raise awareness. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A5. I know/ love many people. My inner circle is small. True friendships are cherished & real so we don't have to people please #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Some loved ones like sharing graphics, some will wear a shirt, pin, or bracelet and that helps them start a conversation #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Anímelos a buscar la educación del Lupus para que estén mejor equipados para ser defensores de la comunidad de Lupus. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @AmyLBurns @Lupus_Chat YES! Important to prioritize your needs over others' when you aren't at your best. Finding that balance when you ARE well is key #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A6. Explain lupus to our families. To our churches(if they care;many don't). Join support groups or create one. Word of mouth. #LupusChat |
| RaquelRoschell @raquelonpurpose A5 Learning to say No to things that are not vital..saving our strength for things that are. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: If we communicate with our caregivers and share our experiences, they can then spread awareness based on that. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A6. Explain lupus to our families. To our churches(if they care;many don't). Join support groups or create one. Word of mouth. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @AmyLBurns @Lupus_Chat YES! Important to prioritize your needs over others' when you aren't at your best. Finding that balance when you ARE well is key #LupusChat |
 | IconoHash @iconohash Your daily conversation report is ready for #LupusChat for May 13th https://t.co/q2opKiIRgy https://t.co/4XQinVscg1 |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A5. I know/ love many people. My inner circle is small. True friendships are cherished & real so we don't have to people please #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat A6 As a mom I'm trying to make a difference in my community. The lovely nurses at my daughter's school created this mural #LupusChat https://t.co/rByPEr3mOf |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: Some loved ones like sharing graphics, some will wear a shirt, pin, or bracelet and that helps them start a conversation #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat A6 As a mom I'm trying to make a difference in my community. The lovely nurses at my daughter's school created this mural #LupusChat https://t.co/rByPEr3mOf |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A6. Explain lupus to our families. To our churches(if they care;many don't). Join support groups or create one. Word of mouth. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A5 Learning to say No to things that are not vital..saving our strength for things that are. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Xtel007 Yes. My brother was my mom's caregiver(I was working a demanding job,plus my lupus). Our aunt and neighbors were the backups. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A5 Learning to say No to things that are not vital..saving our strength for things that are. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6:We have to encourage them to seek education on Lupus, then they are better equipped to be advocates for the Lupus community. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A5. I know/ love many people. My inner circle is small. True friendships are cherished & real so we don't have to people please #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: I often ask friends & loved ones to share or talk about lupus in a way they're comfortable with to help raise awareness. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @Lupus_Chat A6 As a mom I'm trying to make a difference in my community. The lovely nurses at my daughter's school created this mural #LupusChat https://t.co/rByPEr3mOf |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Anímelos a buscar la educación del Lupus para que estén mejor equipados para ser defensores de la comunidad de Lupus. #LupusChat |
| RaquelRoschell @raquelonpurpose A5 It could be my age and life stage but my friends understand when we have to cancel. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @Lupus_Chat A6 As a mom I'm trying to make a difference in my community. The lovely nurses at my daughter's school created this mural #LupusChat https://t.co/rByPEr3mOf |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A5 Learning to say No to things that are not vital..saving our strength for things that are. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q6: Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| Tinu Abayomi-Paul @Tinu RT @iveyjanette_207: @Lupus_Chat A5. Explain your health conditions to loved ones. Do it in a non-threatening manner. Try to plan activities and self-care. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: My sisters now know to ask me to do low-energy type activities. Late parties, drinking, dancing are usually a NO for me. #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat A6 As a caregiver, I try to be as active as possible in my community. I explain about Lupus & how it forces you to make changes #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A5 It could be my age and life stage but my friends understand when we have to cancel. #LupusChat |
| #LupusChat @Lupus_Chat That brings our #LupusChat discussion on bridging the gap with our caregivers to a close. Thank you so much for sharing with us today! https://t.co/ru2F3M9nJR |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Anímelos a buscar la educación del Lupus para que estén mejor equipados para ser defensores de la comunidad de Lupus. #LupusChat |
| #LupusChat @Lupus_Chat Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| Carly by Nature @SynceNerd_Carli @mommade4change I used to feel so bad for canceling plans, but I learned those who truly care will understand and put my health first. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6:We have to encourage them to seek education on Lupus, then they are better equipped to be advocates for the Lupus community. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: If we communicate with our caregivers and share our experiences, they can then spread awareness based on that. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: Cómo podemos trabajar juntos para aumentar la concienciación sobre Lupus y aumentar el apoyo en nuestras comunidades? #LupusChat https://t.co/SSRceb39mm |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: That brings our #LupusChat discussion on bridging the gap with our caregivers to a close. Thank you so much for sharing with us today! https://t.co/ru2F3M9nJR |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: How can we all work together to raise Lupus awareness and further advocacy in our communities? #LupusChat https://t.co/b0Azg0kT0D |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @Lupus_Chat A6 As a caregiver, I try to be as active as possible in my community. I explain about Lupus & how it forces you to make changes #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: If we communicate with our caregivers and share our experiences, they can then spread awareness based on that. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6:We have to encourage them to seek education on Lupus, then they are better equipped to be advocates for the Lupus community. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: That brings our #LupusChat discussion on bridging the gap with our caregivers to a close. Thank you so much for sharing with us today! https://t.co/ru2F3M9nJR |
| Nae :) @heynaehey_ RT @Lupus_Chat: Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| #LupusChat @Lupus_Chat Vamos a utilizar #CuandoEstoyEnBrote para seguir compartiendo consejos con los seres queridos que nos ayude cuando nos flare. #LupusChat https://t.co/VnLs8Acirm |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: That brings our #LupusChat discussion on bridging the gap with our caregivers to a close. Thank you so much for sharing with us today! https://t.co/ru2F3M9nJR |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Vamos a utilizar #CuandoEstoyEnBrote para seguir compartiendo consejos con los seres queridos que nos ayude cuando nos flare. #LupusChat https://t.co/VnLs8Acirm |
| RaquelRoschell @raquelonpurpose A6 Open dialogue. Facilitating warm and accepting environment. Planning events as one and staying in touch with elected officials #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Vamos a utilizar #CuandoEstoyEnBrote para seguir compartiendo consejos con los seres queridos que nos ayude cuando nos flare. #LupusChat https://t.co/VnLs8Acirm |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: A4 Since my daughter's diagnosis self-care has been the last thing in my mind. We needed to make sure that she is ok first. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @CaringForLupus I love the way you care for your daughter, but your care is important also. You can't be the best caregiver if you aren't 100% #LupusChat |
| #LupusChat @Lupus_Chat Enjoy the rest of #MothersDay & remember to practice a little selfcare today because besides #LupusChat it's also #SelfCareSunday! ✨💜✨ https://t.co/tPnUczYH8d |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Vamos a utilizar #CuandoEstoyEnBrote para seguir compartiendo consejos con los seres queridos que nos ayude cuando nos flare. #LupusChat https://t.co/VnLs8Acirm |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @mommade4change I used to feel so bad for canceling plans, but I learned those who truly care will understand and put my health first. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A6. Involving caregivers/family/friends in advocacy imp. They experience Lupus in proximity to us, and that is valuable. #LupusChat |
| Amy Burns @AmyBurnsBooks RT @Lupus_Chat: Enjoy the rest of #MothersDay & remember to practice a little selfcare today because besides #LupusChat it's also #SelfCareSunday! ✨💜✨ https://t.co/tPnUczYH8d |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A6. By talking lol. Simple. Our caregivers make a great effort to educate themselves. They can help educate others around them #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Enjoy the rest of #MothersDay & remember to practice a little selfcare today because besides #LupusChat it's also #SelfCareSunday! ✨💜✨ https://t.co/tPnUczYH8d |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: That brings our #LupusChat discussion on bridging the gap with our caregivers to a close. Thank you so much for sharing with us today! https://t.co/ru2F3M9nJR |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A6: A6: We must remember that although lupus is our normal, many are still unaware but want to be involved. We can let them know how! #LupusChat |
| #LupusChat @Lupus_Chat Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @mommade4change: A5 Learning to say No to things that are not vital..saving our strength for things that are. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Enjoy the rest of #MothersDay & remember to practice a little selfcare today because besides #LupusChat it's also #SelfCareSunday! ✨💜✨ https://t.co/tPnUczYH8d |
 | Shami H Lefevré-F @LefevreShami RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Bèl ti manmie Rosie @Tinarsjn RT @Lupus_Chat: Let’s keep the discussion going this week by using the tag #WhenIFlare to share tips with loved ones to help us when we flare. #LupusChat https://t.co/DXZfSsRew2 |
| Shami H Lefevré-F @LefevreShami RT @Lupus_Chat: Vamos a utilizar #CuandoEstoyEnBrote para seguir compartiendo consejos con los seres queridos que nos ayude cuando nos flare. #LupusChat https://t.co/VnLs8Acirm |
| Tiffany ⁷ @TiffanyAndLupus @cardiackenzie A6: You're absolutely right McKenzie, because how else will people know how lupus affects us if we don't speak up? 💜 #LupusChat |
| Carly by Nature @SynceNerd_Carli A huge THANK YOU to everyone that joined #LupusChat today. We appreciate you sharing with us. Sending love to you all! 💜💜 https://t.co/1INBEjW6vb |
 | Proud American Woman @pinkgoldmc69 RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Tiffany ⁷ @TiffanyAndLupus RT @miranda_trauma: |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A6 Open dialogue. Facilitating warm and accepting environment. Planning events as one and staying in touch with elected officials #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @mommade4change I used to feel so bad for canceling plans, but I learned those who truly care will understand and put my health first. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @Lupus_Chat A6 As a caregiver, I try to be as active as possible in my community. I explain about Lupus & how it forces you to make changes #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A5 It could be my age and life stage but my friends understand when we have to cancel. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @mommade4change A5: I always feel so much guilt when I have to cancel plans....luckily I have friends who understand if I need to reschedule. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6:We have to encourage them to seek education on Lupus, then they are better equipped to be advocates for the Lupus community. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Si compartimos nuestras experiencias con nuestros cuidadores, entonces pueden difundir la conciencia basada en eso. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @TiffanyAndLupus: A6: A6: I often ask friends & loved ones to share or talk about lupus in a way they're comfortable with to help raise awareness. #LupusChat |
 | Nikki @Nixxie81 RT @Lupus_Chat: Enjoy the rest of #MothersDay & remember to practice a little selfcare today because besides #LupusChat it's also #SelfCareSunday! ✨💜✨ https://t.co/tPnUczYH8d |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. They can speak on their experience as a caregiver right alongside our experience as patients. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A5. Explain your health conditions to loved ones. Do it in a non-threatening manner. Try to plan activities and self-care. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A huge THANK YOU to everyone that joined #LupusChat today. We appreciate you sharing with us. Sending love to you all! 💜💜 https://t.co/1INBEjW6vb |
| Carly by Nature @SynceNerd_Carli And to the AMAZING #LupusChat Team, Thank you ladies for all your hard work, love, and support. Love you lots. ❤ ❤The best is yet to come!! https://t.co/tEkLhxMJE1 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our next #LupusChat discussion will take place on May 21st so save the date, we don't want you to miss it! 👀🗓📌 https://t.co/AkJOnYxJzz |
| Tiffany ⁷ @TiffanyAndLupus RT @TiffanyAndLupus: A5: A5: I’ve struggled to maintain relationships while managing my health. Those who truly love you as you are will understand that. #LupusChat |
| Shami H Lefevré-F @LefevreShami RT @Lupus_Chat: For Mother’s Day we’d like to celebrate our caregivers in all their forms whether a caregiver for ourselves or a loved one. #LupusChat https://t.co/84MAKsNOVL |
| Shami H Lefevré-F @LefevreShami RT @Lupus_Chat: Q6: Q6: Cómo podemos trabajar juntos para aumentar la concienciación sobre Lupus y aumentar el apoyo en nuestras comunidades? #LupusChat https://t.co/SSRceb39mm |
| Shami H Lefevré-F @LefevreShami RT @Lupus_Chat: It’s important caregivers understand patient needs, Let’s discuss caregiver needs next. Get ready for question 4! #LupusChat https://t.co/CyPinLoYMg |
| Shami H Lefevré-F @LefevreShami RT @CaringForLupus: A3 Learning is Caring 💜✋💜 #LupusChat https://t.co/oXw3h8N9Ze |
| Tiffany ⁷ @TiffanyAndLupus @missnaedotcom A5: It's definitely not an easy lesson to learn. It still hurts to lose loved ones who can't understand our new health concerns. #LupusChat |
#LupusChat content from Twitter.