#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | #LupusChat @Lupus_Chat Here we gooooo! πππ #LupusChat https://t.co/HGKhlc7zsy |
| #LupusChat @Lupus_Chat Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
 | Tiffany β· @TiffanyAndLupus Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/FWcO6G7MDN |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
 | πβ½ππΉβ Xtel Bond @Xtel007 It's #LupusChat time. Y'all got your snacks? https://t.co/BbKA8slij5 |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Here we gooooo! πππ #LupusChat https://t.co/HGKhlc7zsy |
 | Carly by Nature @SynceNerd_Carli πIt's #LupusChat tiiime. Let's gooooo!!!!! π https://t.co/Hh5AsOUdjq |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
| #LupusChat @Lupus_Chat Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
 | Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
 | Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle Ready for #LupusChat! https://t.co/RnfwW8Kdx6 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
| #LupusChat @Lupus_Chat Two-way communication is a necessity to work on improving health care management with each of our physicians effectively. #LupusChat https://t.co/Rfevf9mY1y |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: πIt's #LupusChat tiiime. Let's gooooo!!!!! π https://t.co/Hh5AsOUdjq |
| Tiffany β· @TiffanyAndLupus RT @jengapuzzle: Ready for #LupusChat! https://t.co/RnfwW8Kdx6 |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
| #LupusChat @Lupus_Chat Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Two-way communication is a necessity to work on improving health care management with each of our physicians effectively. #LupusChat https://t.co/Rfevf9mY1y |
 | RarasNoInvisibles @NoInvisibles RT @TiffanyAndLupus: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/FWcO6G7MDN |
| #LupusChat @Lupus_Chat RT @jengapuzzle: Ready for #LupusChat! https://t.co/RnfwW8Kdx6 |
 | Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @jengapuzzle: Ready for #LupusChat! https://t.co/RnfwW8Kdx6 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Two-way communication is a necessity to work on improving health care management with each of our physicians effectively. #LupusChat https://t.co/Rfevf9mY1y |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Two-way communication is a necessity to work on improving health care management with each of our physicians effectively. #LupusChat https://t.co/Rfevf9mY1y |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Two-way communication is a necessity to work on improving health care management with each of our physicians effectively. #LupusChat https://t.co/Rfevf9mY1y |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| #LupusChat @Lupus_Chat Our special guest is Rheumatologist Dr. Lilith Stange (@medreuma) of @ciudaddelmar all the way from Chile. Letβs welcome her! #LupusChat https://t.co/5Wc9uBUz47 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our special guest is Rheumatologist Dr. Lilith Stange (@medreuma) of @ciudaddelmar all the way from Chile. Letβs welcome her! #LupusChat https://t.co/5Wc9uBUz47 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Our special guest is Rheumatologist Dr. Lilith Stange (@medreuma) of @ciudaddelmar all the way from Chile. Letβs welcome her! #LupusChat https://t.co/5Wc9uBUz47 |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Our special guest is Rheumatologist Dr. Lilith Stange (@medreuma) of @ciudaddelmar all the way from Chile. Letβs welcome her! #LupusChat https://t.co/5Wc9uBUz47 |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| Tiffany β· @TiffanyAndLupus Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| πβ½ππΉβ Xtel Bond @Xtel007 Thank you @MedReuma for being our guest. I'm so excited! #LupusChat https://t.co/xBGhbdNvLb |
 | David Lazar, MD MPH @DrDavidLazar Looking forward to a great chat today! Excellent topic! #lupuschat |
 | Dan Walmer @Thrown4aLup @Lupus_Chat @MedReuma @ciudaddelmar Welcome Dr. Stange!!! #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Thank you @MedReuma for being our guest. I'm so excited! #LupusChat https://t.co/xBGhbdNvLb |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Two-way communication is a necessity to work on improving health care management with each of our physicians effectively. #LupusChat https://t.co/Rfevf9mY1y |
| #LupusChat @Lupus_Chat Please include ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/b7VQqisiOF |
| Tiffany β· @TiffanyAndLupus Please include ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/LDL3x2JMT0 |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Please include ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/b7VQqisiOF |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Please include ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/b7VQqisiOF |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: |
| #LupusChat @Lupus_Chat Please use Q1 or A1 to answer each #LupusChat question. This helps us add your thoughts to our post-chat in the right order. |
| Tiffany β· @TiffanyAndLupus Please use Q1 or A1 to answer each #LupusChat question. This helps us add your thoughts to our post-chat in the right order. |
| Carly by Nature @SynceNerd_Carli @DrDavidLazar Thank you for joining us again Dr. Lazar! Always a pleasure having you with us! #LupusChat |
| RaquelRoschell @raquelonpurpose Its about to be a #LupusChat takeoverππ. https://t.co/RtycFhgaQi |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Please include ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/b7VQqisiOF |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Please use Q1 or A1 to answer each #LupusChat question. This helps us add your thoughts to our post-chat in the right order. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please include ~> #LupusChat in ALL your tweets so we are able to see them & share with our online #lupus community! https://t.co/b7VQqisiOF |
| #LupusChat @Lupus_Chat If there is a two-part #LupusChat question, please make sure to add the A1A or A1B to your responses. |
| Tiffany β· @TiffanyAndLupus If there is a two-part #LupusChat question, please make sure to add the A1A or A1B to your responses. |
| Caring For Lupus @CaringForLupus @Lupus_Chat @MedReuma @ciudaddelmar Gracias @MedReuma por acompaΓ±arnos hoy el #Lupuschat https://t.co/z5Mm3WXNRZ |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: If there is a two-part #LupusChat question, please make sure to add the A1A or A1B to your responses. |
| #LupusChat @Lupus_Chat As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Tiffany β· @TiffanyAndLupus As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: @Lupus_Chat @MedReuma @ciudaddelmar Gracias @MedReuma por acompaΓ±arnos hoy el #Lupuschat https://t.co/z5Mm3WXNRZ |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Please use Q1 or A1 to answer each #LupusChat question. This helps us add your thoughts to our post-chat in the right order. |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| πβ½ππΉβ Xtel Bond @Xtel007 Hi Dr Lazar. Thanks for being back with us. I think so too. #LupusChat https://t.co/Thbkpfqt8d |
| Carly by Nature @SynceNerd_Carli Thank you for joining us today @MedReuma! So happy to have you with us!! π #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please use Q1 or A1 to answer each #LupusChat question. This helps us add your thoughts to our post-chat in the right order. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @Lupus_Chat @MedReuma @ciudaddelmar Gracias @MedReuma por acompaΓ±arnos hoy el #Lupuschat https://t.co/z5Mm3WXNRZ |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Please use Q1 or A1 to answer each #LupusChat question. This helps us add your thoughts to our post-chat in the right order. |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: Its about to be a #LupusChat takeoverππ. https://t.co/RtycFhgaQi |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: If there is a two-part #LupusChat question, please make sure to add the A1A or A1B to your responses. |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| #LupusChat @Lupus_Chat Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| #LupusChat @Lupus_Chat Comencemos nuestra fiesta #LupusChat! Por favor, comparte tu nombre, ubicaciΓ³n, conexiΓ³n con Lupus y cΓ³mo te preparas para tu cita con el Dr https://t.co/OHlCf90uOs |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
 | Rachael (rah-shell) Jay β‘ @_RachaelTV #LupusChat Rachael, DX 2009 SLE, get the planner ready - jot down days when symptoms were out of the ordinary and reasons I suspect why |
| Carly by Nature @SynceNerd_Carli Carly in VA. Co-host of #LupusChat. Dxβd in β11.To prep for an appointment, I note my concerns & take items in case of admission. |
| πβ½ππΉβ Xtel Bond @Xtel007 Hi, Christele from NY, Lupus warrior since 07 & co-host of #LupusChat. I prepare for appts by reviewing symptoms/concerns I want to discuss. |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: Looking forward to a great chat today! Excellent topic! #lupuschat |
 | Angel Leiva @reumed123 RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
| Caring For Lupus @CaringForLupus I'm Elizabeth from NJ. Co-host of #LupusChat. My daughter is a Lupus warrior. We prepare by taking our notes, pictures, and test results. https://t.co/wX7p5F1eZv |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: #LupusChat Rachael, DX 2009 SLE, get the planner ready - jot down days when symptoms were out of the ordinary and reasons I suspect why |
| Carly by Nature @SynceNerd_Carli Carly en VA. #LupusChat co-anfitriΓ³n. Diagnosticado en el '11. Para preparar una cita, escribo mis preocupaciones. |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| Carly by Nature @SynceNerd_Carli TambiΓ©n tomo artΓculos ΓΊtiles en caso de que usted sea admitido en el hospital. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Carly in VA. Co-host of #LupusChat. Dxβd in β11.To prep for an appointment, I note my concerns & take items in case of admission. |
| #LupusChat @Lupus_Chat RT @Xtel007: Hi, Christele from NY, Lupus warrior since 07 & co-host of #LupusChat. I prepare for appts by reviewing symptoms/concerns I want to discuss. |
| #LupusChat @Lupus_Chat RT @CaringForLupus: I'm Elizabeth from NJ. Co-host of #LupusChat. My daughter is a Lupus warrior. We prepare by taking our notes, pictures, and test results. https://t.co/wX7p5F1eZv |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Carly en VA. #LupusChat co-anfitriΓ³n. Diagnosticado en el '11. Para preparar una cita, escribo mis preocupaciones. |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: I'm Elizabeth from NJ. Co-host of #LupusChat. My daughter is a Lupus warrior. We prepare by taking our notes, pictures, and test results. https://t.co/wX7p5F1eZv |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi, Christele from NY, Lupus warrior since 07 & co-host of #LupusChat. I prepare for appts by reviewing symptoms/concerns I want to discuss. |
| #LupusChat @Lupus_Chat @Thrown4aLup Dan don't forget to use our hashtag or we can't see your tweets! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @RachaelJPeart: #LupusChat Rachael, DX 2009 SLE, get the planner ready - jot down days when symptoms were out of the ordinary and reasons I suspect why |
| Tiffany β· @TiffanyAndLupus RT @CaringForLupus: I'm Elizabeth from NJ. Co-host of #LupusChat. My daughter is a Lupus warrior. We prepare by taking our notes, pictures, and test results. https://t.co/wX7p5F1eZv |
| πβ½ππΉβ Xtel Bond @Xtel007 This is a great idea. #LupusChat https://t.co/v5U09sxD5Q |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: Carly en VA. #LupusChat co-anfitriΓ³n. Diagnosticado en el '11. Para preparar una cita, escribo mis preocupaciones. |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle Hi I'm Jennifer from LA, had my first flare in 2004. I have a list of questions & things that have happened since my last appt. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Carly in VA. Co-host of #LupusChat. Dxβd in β11.To prep for an appointment, I note my concerns & take items in case of admission. |
| Carly by Nature @SynceNerd_Carli @RachaelJPeart Welcome back to #LupusChat Rachael. So good to have you with us again! |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Comencemos nuestra fiesta #LupusChat! Por favor, comparte tu nombre, ubicaciΓ³n, conexiΓ³n con Lupus y cΓ³mo te preparas para tu cita con el Dr https://t.co/OHlCf90uOs |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque, DX'D with SLE and lupus nephritis 1995. I make sure I have questions ready before Dr's appointments #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Comencemos nuestra fiesta #LupusChat! Por favor, comparte tu nombre, ubicaciΓ³n, conexiΓ³n con Lupus y cΓ³mo te preparas para tu cita con el Dr https://t.co/OHlCf90uOs |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque, DX'D with SLE and lupus nephritis 1995. I make sure I have questions ready before Dr's appointments #LupusChat |
| David Lazar, MD MPH @DrDavidLazar David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @DrDavidLazar: David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| Tiffany β· @TiffanyAndLupus RT @jengapuzzle: Hi I'm Jennifer from LA, had my first flare in 2004. I have a list of questions & things that have happened since my last appt. #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: Hi I'm Jennifer from LA, had my first flare in 2004. I have a list of questions & things that have happened since my last appt. #LupusChat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat Ivey! |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV @SynceNerd_Carli :) i skipped my sunday nap so i wouldn't be late this time haha #oops (i'm going to bed early for work anyway) #LupusChat |
| Dan Walmer @Thrown4aLup @Lupus_Chat I thought I did. π #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| #LupusChat @Lupus_Chat @Thrown4aLup Welcome back to #LupusChat Dan! |
| Tiffany β· @TiffanyAndLupus Hello! Itβs Tiffany your #LupusChat co-host from NYC. Iβm a 7 year lupus survivor & I prepare for my Dr appts by doing labs a week early! π |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| Carly by Nature @SynceNerd_Carli @jengapuzzle Welcome back Jennifer!! Great to see you at #LupusChat again! |
| Carly by Nature @SynceNerd_Carli RT @jengapuzzle: Hi I'm Jennifer from LA, had my first flare in 2004. I have a list of questions & things that have happened since my last appt. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hello! Itβs Tiffany your #LupusChat co-host from NYC. Iβm a 7 year lupus survivor & I prepare for my Dr appts by doing labs a week early! π |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hello! Itβs Tiffany your #LupusChat co-host from NYC. Iβm a 7 year lupus survivor & I prepare for my Dr appts by doing labs a week early! π |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle @SynceNerd_Carli Thank you Carly! Good to be back! :) #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @TiffanyAndLupus: Hello! Itβs Tiffany your #LupusChat co-host from NYC. Iβm a 7 year lupus survivor & I prepare for my Dr appts by doing labs a week early! π |
| David Lazar, MD MPH @DrDavidLazar @TiffanyAndLupus Excellent! I ask patients to have labs done 1 week prior to visits, this way we go over the labs at that appt #lupuschat |
| #LupusChat @Lupus_Chat Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/BIJvYUj4hc |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle @TiffanyAndLupus Oh yes, that too! :) #LupusChat |
| RaquelRoschell @raquelonpurpose Hi! Raquel from Bryan/College Station, TX! A woman w/ Lupusπ. I mediate before appts - will start making a list of issues. #LupusChat |
 | Tinu Abayomi-Paul @Tinu RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| Rachael (rah-shell) Jay β‘ @_RachaelTV @TiffanyAndLupus labs are always a struggle and i wait till the last minute. I have like one good vein left...and it switches arms lol #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @jengapuzzle: @SynceNerd_Carli Thank you Carly! Good to be back! :) #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/BIJvYUj4hc |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/BIJvYUj4hc |
| #LupusChat @Lupus_Chat Q1A: What was your first visit to the Rheumatologist like? Is there anything you wish could have been done better? #LupusChat https://t.co/FYPfR47TRp |
| Tiffany β· @TiffanyAndLupus Q1A: What was your first visit to the Rheumatologist like? Is there anything you wish could have been done better? #LupusChat https://t.co/BPmgyZwXZj |
| Carly by Nature @SynceNerd_Carli @MedReuma Exactamente! #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Hello! Itβs Tiffany your #LupusChat co-host from NYC. Iβm a 7 year lupus survivor & I prepare for my Dr appts by doing labs a week early! π |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @DrDavidLazar: @TiffanyAndLupus Excellent! I ask patients to have labs done 1 week prior to visits, this way we go over the labs at that appt #lupuschat |
 | Reyesπ @ladydee_0703 RT @Lupus_Chat: Letβs get our #LupusChat party started! Please share your name, location, connection to lupus & how do you prepare for your Dr appointment? https://t.co/2xXqvfdXex |
| πβ½ππΉβ Xtel Bond @Xtel007 π₯ https://t.co/PxqLgngB41 |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Q1A: Q1A: What was your first visit to the Rheumatologist like? Is there anything you wish could have been done better? #LupusChat https://t.co/BPmgyZwXZj |
| Carly by Nature @SynceNerd_Carli @mommade4change Welcome back Raquel! Glad you're joining us for #LupusChat again today! |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: Hi! Raquel from Bryan/College Station, TX! A woman w/ Lupusπ. I mediate before appts - will start making a list of issues. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1A: Q1A: What was your first visit to the Rheumatologist like? Is there anything you wish could have been done better? #LupusChat https://t.co/FYPfR47TRp |
| #LupusChat @Lupus_Chat Q1B: Doctor, How would you suggest someone who is newly diagnosed be told about their new health condition? #LupusChat https://t.co/zMVjLrfRMN |
| Tiffany β· @TiffanyAndLupus Q1B: Doctor, How would you suggest someone who is newly diagnosed be told about their new health condition? #LupusChat https://t.co/q2oxKfZONA |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/BIJvYUj4hc |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: @TiffanyAndLupus Excellent! I ask patients to have labs done 1 week prior to visits, this way we go over the labs at that appt #lupuschat |
| #LupusChat @Lupus_Chat Q1A: CΓ³mo fue su primera visita al ReumatΓ³logo? Hay algo que usted cree que podrΓa haber sido hecho mejor? #LupusChat https://t.co/Gp25q1vz6a |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1B: Q1B: Doctor, How would you suggest someone who is newly diagnosed be told about their new health condition? #LupusChat https://t.co/zMVjLrfRMN |
| πβ½ππΉβ Xtel Bond @Xtel007 A1A. I donβt remember much about my first visit, tbqh. I donβt remember being given much in terms of info/resources on Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli @RachaelJPeart Hate that you missed your nap but glad you're with us! #LupusChat |
| #LupusChat @Lupus_Chat Q1B: Doctor,CΓ³mo le sugerirΓa a alguien que reciΓ©n fue diagnosticado que le informaran sobre la nueva condiciΓ³n de salud? #LupusChat https://t.co/k3ZmXDWAHu |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Woke up from my nap just in time for #LupusChat. |
| πβ½ππΉβ Xtel Bond @Xtel007 A1A. All I remember was scripts for prednisone/plaquenil and being told that Iβd be on Plaquenil pretty much forever. #LupusChat |
| Caring For Lupus @CaringForLupus A1: Our first appointment was overwhelming, we didn't know what to expect. We didn't know anything about Lupus #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy tendremos una charla honesta sobre creado mejores relaciones con nuestros mΓ©dicos con Reumatologa @medreuma https://t.co/zbDkABerJY |
| Dan Walmer @Thrown4aLup @Lupus_Chat #LupusChat My first visit was a relief because it was comfirmation of what I already knew, but he was VERY comforting and assuring. ππΌ |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle 1A My 1st visit was intimidating. Told I had the antibodies, but don't worry about it. I had so many ?s but felt I couldn't ask. #LupusChat |
| Carly by Nature @SynceNerd_Carli @harlem_peach Welcome back!! Always great having you here with us, sis! #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV Q1A I was in pediatrics...and the oldest one in there at 16(awk). I don't remember much but there were multiple appt before rheum #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 A1A. I wish I had asked more info or researched the disease beforehand so I could discuss it with the doc. #LupusChat |
| RaquelRoschell @raquelonpurpose A1A I wasn't sure what to expect but I was prepared to be more candid about what I had been experiencing. #LupusChat |
| @Lupus-anti-me @lupusnicky20yrs #LupusChat Hi I'm Nicky from Cape Town South Africa. My 20th yr. Requested my Rheumies and I have email updates. Short bullet points. Works. | |
| Reyesπ @ladydee_0703 @Lupus_Chat Dianna, St Pete, Fl, I have Lupus (SLE), I always have my list of meds&questions ready #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: @TiffanyAndLupus Excellent! I ask patients to have labs done 1 week prior to visits, this way we go over the labs at that appt #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @jengapuzzle: 1A My 1st visit was intimidating. Told I had the antibodies, but don't worry about it. I had so many ?s but felt I couldn't ask. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1: A1: Our first appointment was overwhelming, we didn't know what to expect. We didn't know anything about Lupus #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. All I remember was scripts for prednisone/plaquenil and being told that Iβd be on Plaquenil pretty much forever. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1A. I wish I had asked more info or researched the disease beforehand so I could discuss it with the doc. #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @NoInvisibles: AquΓ, salvo error de interpretaciΓ³n debemos aΓ±adir 6 horas en la penΓnsula Es decir #LupusChat a la 21 h, 20 en Canarias https://t.co/5K8XAyFYcE |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1B: Q1B: Doctor,CΓ³mo le sugerirΓa a alguien que reciΓ©n fue diagnosticado que le informaran sobre la nueva condiciΓ³n de salud? #LupusChat https://t.co/k3ZmXDWAHu |
| Dan Walmer @Thrown4aLup @Lupus_Chat #LupusChat I'm not sure i could have been more prepared. Didn't know the millions of questions I'd have before my next visit... |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. I donβt remember much about my first visit, tbqh. I donβt remember being given much in terms of info/resources on Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1A: Q1A: CΓ³mo fue su primera visita al ReumatΓ³logo? Hay algo que usted cree que podrΓa haber sido hecho mejor? #LupusChat https://t.co/Gp25q1vz6a |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. I wish I had asked more info or researched the disease beforehand so I could discuss it with the doc. #LupusChat |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: Q1A I was in pediatrics...and the oldest one in there at 16(awk). I don't remember much but there were multiple appt before rheum #lupuschat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1A. All I remember was scripts for prednisone/plaquenil and being told that Iβd be on Plaquenil pretty much forever. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1B: Q1B: Doctor, How would you suggest someone who is newly diagnosed be told about their new health condition? #LupusChat https://t.co/zMVjLrfRMN |
| RaquelRoschell @raquelonpurpose RT @ladydee_0703: @Lupus_Chat Dianna, St Pete, Fl, I have Lupus (SLE), I always have my list of meds&questions ready #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: 1A My 1st visit was intimidating. Told I had the antibodies, but don't worry about it. I had so many ?s but felt I couldn't ask. #LupusChat |
| #LupusChat @Lupus_Chat RT @Thrown4aLup: @Lupus_Chat #LupusChat My first visit was a relief because it was comfirmation of what I already knew, but he was VERY comforting and assuring. ππΌ |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. All I remember was scripts for prednisone/plaquenil and being told that Iβd be on Plaquenil pretty much forever. #LupusChat |
| Caring For Lupus @CaringForLupus A1. The Rheumatologist just told us: Miah has Lupus and gave us some papers. I wished she could have explain what Lupus is. #Lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. I donβt remember much about my first visit, tbqh. I donβt remember being given much in terms of info/resources on Lupus. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @LupusNicky20yrs: #LupusChat Hi I'm Nicky from Cape Town South Africa. My 20th yr. Requested my Rheumies and I have email updates. Short bullet points. Works. |
| Caring For Lupus @CaringForLupus A1. Nuestra primera cita fue abrumadora nerviosa, rara ya que no sabΓamos quΓ© esperar. No sabΓamos nada sobre Lupus #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @MedReuma I write down any questions or concerns the day before a doctor's appointment. Always essential. #LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle 1A If I had to do over, I would ask doctor what could I do to avoid triggering lupus flare, bc now I know there are things. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1. The Rheumatologist just told us: A1. The Rheumatologist just told us: Miah has Lupus and gave us some papers. I wished she could have explain what Lupus is. #Lupuschat |
| Carly by Nature @SynceNerd_Carli A1:I was nervous during my first visit.I didnβt know what to expect.I was just diagnosed. My Dr. was nice & tried to reassure me. #LupusChat |
| Caring For Lupus @CaringForLupus A1. La ReumatΓ³loga solo nos dijo: Miah tiene Lupus. Me hubiera gustado que la doctora nos hubiera explicado que es Lupus. #Lupuschat |
| Carly by Nature @SynceNerd_Carli A1: Estaba nervioso durante mi primera visita. No sabΓa quΓ© esperar. Me diagnosticaron. Mi doctor fue amable y tratΓ³ de calmarme. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/BIJvYUj4hc |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q1A: Q1A: What was your first visit to the Rheumatologist like? Is there anything you wish could have been done better? #LupusChat https://t.co/FYPfR47TRp |
| Reyesπ @ladydee_0703 RT @TiffanyAndLupus: Q1A: Q1A: What was your first visit to the Rheumatologist like? Is there anything you wish could have been done better? #LupusChat https://t.co/BPmgyZwXZj |
| πβ½ππΉβ Xtel Bond @Xtel007 Good point. You didn't know what to expect, and so it's kind of difficult to be prepared for that. #LupusChat https://t.co/hpzucmvX1T |
| Tiffany β· @TiffanyAndLupus A1A: Le sighβ¦.my 1st visit to the rheum doctor was rough. I didnβt know what lupus was until I was diagnosed with it. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: A1. The Rheumatologist just told us: A1. The Rheumatologist just told us: Miah has Lupus and gave us some papers. I wished she could have explain what Lupus is. #Lupuschat |
| David Lazar, MD MPH @DrDavidLazar @Xtel007 yes this is the norm in many situations at there aren't many options for lupus treatment #lupuschat |
| Carly by Nature @SynceNerd_Carli A1: I think there should have been more resources about Lupus for patients. I had to do all the research alone #LupusChat |
| Tiffany β· @TiffanyAndLupus A1A: I could barely walk my 1st Rheum visit. I was given a high dosage steroid shot, scripts, & told to come back in 3 months. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A1A: A1A: Le sighβ¦.my 1st visit to the rheum doctor was rough. I didnβt know what lupus was until I was diagnosed with it. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1A: A1A: I could barely walk my 1st Rheum visit. I was given a high dosage steroid shot, scripts, & told to come back in 3 months. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Good point. You didn't know what to expect, and so it's kind of difficult to be prepared for that. #LupusChat https://t.co/hpzucmvX1T |
| Carly by Nature @SynceNerd_Carli A1: Creo que deberΓa haber habido mΓ‘s recursos sobre Lupus para los pacientes. Tuve que hacer toda la investigaciΓ³n sola #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Estaba nervioso durante mi primera visita. No sabΓa quΓ© esperar. Me diagnosticaron. Mi doctor fue amable y tratΓ³ de calmarme. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1A: A1A: Le sighβ¦.my 1st visit to the rheum doctor was rough. I didnβt know what lupus was until I was diagnosed with it. #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV A1A con't my mom was there with me. maybe dad too...they had to take off work and I had to leave school. Maybe nervous/anxious? #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1A: A1A: I could barely walk my 1st Rheum visit. I was given a high dosage steroid shot, scripts, & told to come back in 3 months. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. I wish I had asked more info or researched the disease beforehand so I could discuss it with the doc. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1A: A1A: Le sighβ¦.my 1st visit to the rheum doctor was rough. I didnβt know what lupus was until I was diagnosed with it. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Thrown4aLup: @Lupus_Chat #LupusChat I'm not sure i could have been more prepared. Didn't know the millions of questions I'd have before my next visit... |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @Xtel007 yes this is the norm in many situations at there aren't many options for lupus treatment #lupuschat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: I think there should have been more resources about Lupus for patients. I had to do all the research alone #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Good point. You didn't know what to expect, and so it's kind of difficult to be prepared for that. #LupusChat https://t.co/hpzucmvX1T |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: A1A con't my mom was there with me. maybe dad too...they had to take off work and I had to leave school. Maybe nervous/anxious? #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A1a. My first visit to the rheumatologist 6 years ago was disappointing. By then,I had already been DX'D for 16 years. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A1A: A1A: I could barely walk my 1st Rheum visit. I was given a high dosage steroid shot, scripts, & told to come back in 3 months. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar A1: During my initial visit with a pt. I go over expectations & goals. I review the referral, previous labs/imaging etc #lupuschat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A1: A1: I think there should have been more resources about Lupus for patients. I had to do all the research alone #LupusChat |
| #LupusChat @Lupus_Chat The first appointment can be very tough with room for improvement. Letβs discuss communication. Question 2 is coming up. #LupusChat https://t.co/UbT2BxXtxo |
| RaquelRoschell @raquelonpurpose RT @DrDavidLazar: @Xtel007 yes this is the norm in many situations at there aren't many options for lupus treatment #lupuschat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1a. My first visit to the rheumatologist 6 years ago was disappointing. By then,I had already been DX'D for 16 years. #LupusChat |
 | Sandra Caballero @SBenavides_C A1. Felt I had to prove all I was feeling, found a new rheumi #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: A1: A1: During my initial visit with a pt. I go over expectations & goals. I review the referral, previous labs/imaging etc #lupuschat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: The first appointment can be very tough with room for improvement. Letβs discuss communication. Question 2 is coming up. #LupusChat https://t.co/UbT2BxXtxo |
| RaquelRoschell @raquelonpurpose RT @SBenavides_C: A1. Felt I had to prove all I was feeling, found a new rheumi #LupusChat |
 | ShimBo84 @ShimBo84 @Lupus_Chat Shimon. NYC. Diagnosed w/ Lupus @ 12 & Lupus Nephritis @ 18. Cellcept didn't work so had Cytoxan. Do bloodwork before each appt. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A1a. The rheumatologist said I didn't have lupus at the first visit in 2011 because my ANA was negative. I was confused. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @SBenavides_C: A1. Felt I had to prove all I was feeling, found a new rheumi #LupusChat |
| Caring For Lupus @CaringForLupus A1. En la primera cita la doctora nos enseno como Miah tenia ulceras en la boca. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: The first appointment can be very tough with room for improvement. Letβs discuss communication. Question 2 is coming up. #LupusChat https://t.co/UbT2BxXtxo |
| Tiffany β· @TiffanyAndLupus A1A: I would have liked to have been told my diagnosis differently, less cold & also to know where I could find support locally. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: A1: A1: During my initial visit with a pt. I go over expectations & goals. I review the referral, previous labs/imaging etc #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 @beckyleescott @Lupus_Chat Is your primary symptom kidney related/nephritis? #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: The first appointment can be very tough with room for improvement. Letβs discuss communication. Question 2 is coming up. #LupusChat https://t.co/UbT2BxXtxo |
| Rachael (rah-shell) Jay β‘ @_RachaelTV RT @TiffanyAndLupus: A1A: A1A: I would have liked to have been told my diagnosis differently, less cold & also to know where I could find support locally. #LupusChat |
| Carly by Nature @SynceNerd_Carli @DrDavidLazar This is good. Going over goals and setting proper expectations is so important. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 Good. It's ok to move on from people who can't help you, including docs. #LupusChat https://t.co/tUy6vQvSpU |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A1A: A1A: I would have liked to have been told my diagnosis differently, less cold & also to know where I could find support locally. #LupusChat |
| #LupusChat @Lupus_Chat Q2A: Are there resources available for you to contact your doctor outside of your appointment times? #LupusChat https://t.co/zEp4OL8tuJ |
| Tiffany β· @TiffanyAndLupus Q2A: Are there resources available for you to contact your doctor outside of your appointment times? #LupusChat https://t.co/huVyut8BU0 |
| Carly by Nature @SynceNerd_Carli @beckyleescott @Lupus_Chat I'm sorry to hear your Rheumatologist isnt supporting you. Have you sought out a new one? #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1B: Q1B: Doctor, How would you suggest someone who is newly diagnosed be told about their new health condition? #LupusChat https://t.co/zMVjLrfRMN |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1A: Q1A: CΓ³mo fue su primera visita al ReumatΓ³logo? Hay algo que usted cree que podrΓa haber sido hecho mejor? #LupusChat https://t.co/Gp25q1vz6a |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1A: A1A: I would have liked to have been told my diagnosis differently, less cold & also to know where I could find support locally. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1B: Q1B: Doctor,CΓ³mo le sugerirΓa a alguien que reciΓ©n fue diagnosticado que le informaran sobre la nueva condiciΓ³n de salud? #LupusChat https://t.co/k3ZmXDWAHu |
| #LupusChat @Lupus_Chat Q2B: In what ways can physicians make themselves available to their patients outside of appointment times? #LupusChat https://t.co/3STZkRhfUU |
| Tiffany β· @TiffanyAndLupus Q2B: In what ways can physicians make themselves available to their patients outside of appointment times? #LupusChat https://t.co/koV33zc12R |
| Sandra Caballero @SBenavides_C @SynceNerd_Carli @DrDavidLazar I can't recall ever being asked my goals/expectations ever. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 Yes. There was no mention of of the emotional toll it would have or how to get support. #LupusChat https://t.co/L3ScmfB6JJ |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Good. It's ok to move on from people who can't help you, including docs. #LupusChat https://t.co/tUy6vQvSpU |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2A: Q2A: Are there resources available for you to contact your doctor outside of your appointment times? #LupusChat https://t.co/zEp4OL8tuJ |
| #LupusChat @Lupus_Chat A1B: (@MedReuma ) rheumatologist is important in the first visit to know the expectations that the patient has that meeting #LupusChat https://t.co/C7HTcaQH7T |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Wow. As we often learn, lab tests alone, does not a diagnosis make. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2B: Q2B: In what ways can physicians make themselves available to their patients outside of appointment times? #LupusChat https://t.co/3STZkRhfUU |
| Carly by Nature @SynceNerd_Carli RT @ShimBo84: @Lupus_Chat Shimon. NYC. Diagnosed w/ Lupus @ 12 & Lupus Nephritis @ 18. Cellcept didn't work so had Cytoxan. Do bloodwork before each appt. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q1B: Q1B: Doctor, How would you suggest someone who is newly diagnosed be told about their new health condition? #LupusChat https://t.co/zMVjLrfRMN |
| David Lazar, MD MPH @DrDavidLazar @harlem_peach bedside manner is #1 on my list. I treat all patients as they are a family member. #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 A2A.My rheumie has made herself pretty accessible to me. I can contact her via the patient portal and I have her email. #LupusChat |
| @Lupus-anti-me @lupusnicky20yrs #LupusChat A1B, Never go alone. Dr to use layman terms. Info pack on the meds, side effects and what to expect time line. GENTLY done. | |
| Carly by Nature @SynceNerd_Carli @ShimBo84 @Lupus_Chat Thanks for joining us for #LupusChat today, Shimon! |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1A: A1A: I would have liked to have been told my diagnosis differently, less cold & also to know where I could find support locally. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @DrDavidLazar: David Lazar, Rheumatologist currently practicing in South Carolina. Doing my best to treating patient with autoimmune disease. #lupuschat |
| Tiffany β· @TiffanyAndLupus @Thrown4aLup hashtag Dan! :) #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1. En la primera cita la doctora nos enseno como Miah tenia ulceras en la boca. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A2A. I also have the ext to a few other people in the office, so I can relay msges to her. She always gets back to me quickly. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A1B: A1B: (@MedReuma ) rheumatologist is important in the first visit to know the expectations that the patient has that meeting #LupusChat https://t.co/C7HTcaQH7T |
| πβ½ππΉβ Xtel Bond @Xtel007 A2A. I donβt think my PCP and other specialists are as accessible. Iβm just glad the doc I need more often is. #Lupuschat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q2A: Q2A: Are there resources available for you to contact your doctor outside of your appointment times? #LupusChat https://t.co/zEp4OL8tuJ |
| Carly by Nature @SynceNerd_Carli RT @LupusNicky20yrs: #LupusChat A1B, Never go alone. Dr to use layman terms. Info pack on the meds, side effects and what to expect time line. GENTLY done. |
| David Lazar, MD MPH @DrDavidLazar @Xtel007 Pt portal is a great tool. All practices should have this option. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2A.My rheumie has made herself pretty accessible to me. I can contact her via the patient portal and I have her email. #LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A2A I can contact my doctor through a patient portal. I appreciate his accessibility! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: @harlem_peach bedside manner is #1 on my list. I treat all patients as they are a family member. #lupuschat |
| #LupusChat @Lupus_Chat A1B (@MedReuma) as rheumatologist suggest to always go w/ family member or friend to the first visit. Two people hear information #Lupuschat https://t.co/dUJ17dZbCR |
| Reyesπ @ladydee_0703 @TiffanyAndLupus A1A my first visit was long bc my dr took his time explaining Lupus to me. Gave me much info. & made me feel at ease #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A1B: A1B: (@MedReuma ) rheumatologist is important in the first visit to know the expectations that the patient has that meeting #LupusChat https://t.co/C7HTcaQH7T |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: A1: A1: During my initial visit with a pt. I go over expectations & goals. I review the referral, previous labs/imaging etc #lupuschat |
| Tiffany β· @TiffanyAndLupus A2A: I have a patient portal. I can email my doctor, ask for referrals & even refill prescriptions. Thereβs even a mobile app! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Yes. There was no mention of of the emotional toll it would have or how to get support. #LupusChat https://t.co/L3ScmfB6JJ |
| Tiffany β· @TiffanyAndLupus A2A: I email my drs often to ask about symptoms I may have. This helps me know if I need to be seen sooner than my appt. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: A1B (@MedReuma) as rheumatologist suggest to always go w/ family member or friend to the first visit. Two people hear information #Lupuschat https://t.co/dUJ17dZbCR |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A2a. Only the office number to leave messages for her or the nurses. And/or make appointments. #LupusChat |
| #LupusChat @Lupus_Chat Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/I2WUuZnWVH |
| #LupusChat @Lupus_Chat Q2B: De quΓ© manera los mΓ©dicos pueden ponerse a disposiciΓ³n de los pacientes fuera de los horarios de citas? #LupusChat https://t.co/xRypkUVOJP |
| #LupusChat @Lupus_Chat Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/GW60wcmmeo |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q2B: Q2B: In what ways can physicians make themselves available to their patients outside of appointment times? #LupusChat https://t.co/3STZkRhfUU |
| Tiffany β· @TiffanyAndLupus RT @ladydee_0703: @TiffanyAndLupus A1A my first visit was long bc my dr took his time explaining Lupus to me. Gave me much info. & made me feel at ease #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @TiffanyAndLupus: A2A: A2A: I have a patient portal. I can email my doctor, ask for referrals & even refill prescriptions. Thereβs even a mobile app! #LupusChat |
| RaquelRoschell @raquelonpurpose A2B My Dr.'s office has a patient portal. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2A: A2A: I email my drs often to ask about symptoms I may have. This helps me know if I need to be seen sooner than my appt. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2a. Only the office number to leave messages for her or the nurses. And/or make appointments. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @TiffanyAndLupus: A1A: A1A: I would have liked to have been told my diagnosis differently, less cold & also to know where I could find support locally. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2A: Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/GW60wcmmeo |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2B: Q2B: De quΓ© manera los mΓ©dicos pueden ponerse a disposiciΓ³n de los pacientes fuera de los horarios de citas? #LupusChat https://t.co/xRypkUVOJP |
| πβ½ππΉβ Xtel Bond @Xtel007 I love it! I have all my vitals/lab results. I can see visit summaries, etc. #LupusChat https://t.co/ImWwtBymbv |
| Rachael (rah-shell) Jay β‘ @_RachaelTV A2A i used to text my ped rheum if i needed new prescriptions. i call during office hours if something is awry... gotta talk now #LupusChat https://t.co/cqzt4AEA3t |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2A: Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/I2WUuZnWVH |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2A: A2A: I have a patient portal. I can email my doctor, ask for referrals & even refill prescriptions. Thereβs even a mobile app! #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @LupusNicky20yrs: #LupusChat A1B, Never go alone. Dr to use layman terms. Info pack on the meds, side effects and what to expect time line. GENTLY done. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2A: Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/GW60wcmmeo |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @harlem_peach bedside manner is #1 on my list. I treat all patients as they are a family member. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2A: A2A: I email my drs often to ask about symptoms I may have. This helps me know if I need to be seen sooner than my appt. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2B: Q2B: De quΓ© manera los mΓ©dicos pueden ponerse a disposiciΓ³n de los pacientes fuera de los horarios de citas? #LupusChat https://t.co/xRypkUVOJP |
| #LupusChat @Lupus_Chat RT @SBenavides_C: @SynceNerd_Carli @DrDavidLazar I can't recall ever being asked my goals/expectations ever. #LupusChat |
| Caring For Lupus @CaringForLupus A2A: Nuestra Reumatologa esta disponible por telefono. Las enfermeras que trabajan con ella brindan mucha ayuda tambien #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A2A I can contact my doctor through a patient portal. I appreciate his accessibility! #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @Xtel007 Pt portal is a great tool. All practices should have this option. #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @RachaelJPeart: A2A i used to text my ped rheum if i needed new prescriptions. i call during office hours if something is awry... gotta talk now #LupusChat https://t.co/cqzt4AEA3t |
| Carly by Nature @SynceNerd_Carli @rhymeswithjoey @LupusNicky20yrs I'd suggest someone who is close to you esp if they will help with your care. #LupusChat |
| Caring For Lupus @CaringForLupus A2A Our doctors have patient portal but only patients over18 have access to it. #LupusChat |
| Caring For Lupus @CaringForLupus A2A Los doctores de ella tienen portal de paciente pero solo pacientes mayores de 18 Β tienen acceso #Lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2A: A2A: I email my drs often to ask about symptoms I may have. This helps me know if I need to be seen sooner than my appt. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: @Xtel007 Pt portal is a great tool. All practices should have this option. #lupuschat |
| Tiffany β· @TiffanyAndLupus RT @jengapuzzle: A2A I can contact my doctor through a patient portal. I appreciate his accessibility! #LupusChat |
| Caring For Lupus @CaringForLupus A2A Our doctors are available phy phone. Their nurses are very helpful too. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @SBenavides_C: @SynceNerd_Carli @DrDavidLazar I can't recall ever being asked my goals/expectations ever. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: @harlem_peach bedside manner is #1 on my list. I treat all patients as they are a family member. #lupuschat |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Q2A: Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/GW60wcmmeo |
| #LupusChat @Lupus_Chat Communication with your doctor is very important. Weβll explore the difficult conversations for Question 3. #LupusChat https://t.co/xZTFHqA7aM |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @LupusNicky20yrs: #LupusChat A1B, Never go alone. Dr to use layman terms. Info pack on the meds, side effects and what to expect time line. GENTLY done. |
| Dan Walmer @Thrown4aLup @Lupus_Chat #LupusChat Q2B. My doctor will always return a call within 24 hrs. Or give the answers to his PA to call back. He's the best! |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle @CaringForLupus I ran into that too - my daughter can't get on the portal. Frustrated that I can't see her labs. Our rheum gave her his email. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: I was able to email/text 1 of my prev. https://t.co/MZgjGsf8fk I can only reach my dr on the patient answering service/fax. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @Xtel007 Pt portal is a great tool. All practices should have this option. #lupuschat |
 | Proud American Woman @pinkgoldmc69 RT @Lupus_Chat: Welcome to #LupusChat! Today weβll have an honest talk about building better relationships with our doctors w/Rheumatologist @medreuma. https://t.co/3yOJ7F6Xbn |
| Carly by Nature @SynceNerd_Carli A2A: Pude enviar un correo electrΓ³nico y un mensaje a mi mΓ©dico anterior. #LupusChat |
| #LupusChat @Lupus_Chat La comunicaciΓ³n con su mΓ©dico es muy importante. Exploraremos las difΓciles conversaciones para la Pregunta 3. #LupusChat https://t.co/dP6rVKfvQu |
| πβ½ππΉβ Xtel Bond @Xtel007 I don't think anyone has ever been with me to my visits. Except when I was in the hospital, I'm always seen alone. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: Ahora puedo contactar a mi mΓ©dico en el contestador automΓ‘tico del paciente o fax. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Communication with your doctor is very important. Weβll explore the difficult conversations for Question 3. #LupusChat https://t.co/xZTFHqA7aM |
| #LupusChat @Lupus_Chat Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/WNjloEkeBK |
| Tiffany β· @TiffanyAndLupus Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/FpaNQ9pORl |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2A: A2A: I was able to email/text 1 of my prev. https://t.co/MZgjGsf8fk I can only reach my dr on the patient answering service/fax. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat True. I had never seen a rheumatologist when I lived in LA. All those years. Just PCP and nephrologist. But I had the symptoms. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: I don't think anyone has ever been with me to my visits. Except when I was in the hospital, I'm always seen alone. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2A: Some of my specialists are at a different hospital and I can use a patient portal. It is extremely helpful. #LupusChat |
| Proud American Woman @pinkgoldmc69 RT @Lupus_Chat: Here we gooooo! πππ #LupusChat https://t.co/HGKhlc7zsy |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q3A: Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/WNjloEkeBK |
| #LupusChat @Lupus_Chat Q3B: How can physicians include their patients as collaborative partners in their own care plan? #LupusChat https://t.co/9TE0UQbkjl |
| Tiffany β· @TiffanyAndLupus Q3B: How can physicians include their patients as collaborative partners in their own care plan? #LupusChat https://t.co/sheRjxT4Q6 |
| Carly by Nature @SynceNerd_Carli A2A: Algunos de mis especialistas estΓ‘n en un hospital diferente y puedo usar un portal de pacientes. Es muy ΓΊtil. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Communication with your doctor is very important. Weβll explore the difficult conversations for Question 3. #LupusChat https://t.co/xZTFHqA7aM |
| #LupusChat @Lupus_Chat RT @Thrown4aLup: @Lupus_Chat #LupusChat Q2B. My doctor will always return a call within 24 hrs. Or give the answers to his PA to call back. He's the best! |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2A Our doctors are available phy phone. Their nurses are very helpful too. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2A Our doctors have patient portal but only patients over18 have access to it. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2A: A2A: Nuestra Reumatologa esta disponible por telefono. Las enfermeras que trabajan con ella brindan mucha ayuda tambien #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3A: Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/WNjloEkeBK |
| πβ½ππΉβ Xtel Bond @Xtel007 @CwiokLoraine It really is. Most of the time I just wait until my appointment. But it's a great feeling to know they're available if we need. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: La comunicaciΓ³n con su mΓ©dico es muy importante. Exploraremos las difΓciles conversaciones para la Pregunta 3. #LupusChat https://t.co/dP6rVKfvQu |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3B: Q3B: How can physicians include their patients as collaborative partners in their own care plan? #LupusChat https://t.co/9TE0UQbkjl |
| #LupusChat @Lupus_Chat A2B (@MedReuma)It is important to have a health support team: nurse, psychologist, Secretariat to support you with your questions #LupusChat https://t.co/5aW5FVwowY |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: A2A: A2A: Some of my specialists are at a different hospital and I can use a patient portal. It is extremely helpful. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 @harlem_peach My dad has been with me, but usually waits in the waiting room. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: A2B (@MedReuma)It is important to have a health support team: A2B (@MedReuma)It is important to have a health support team: nurse, psychologist, Secretariat to support you with your questions #LupusChat https://t.co/5aW5FVwowY |
| Tiffany β· @TiffanyAndLupus A3A: Approaching our doctors can be intimidating. I think a great way is to 1st question their perspective, then explain yours. #LupusChat |
| Tiffany β· @TiffanyAndLupus A3A: Sometimes our doctors arenβt aware that we have specific life goals or needs. We have to be more open & honest with them. #LupusChat |
| #LupusChat @Lupus_Chat Q3A: CΓ³mo podemos hablar a un mΓ©dico que no estΓ‘ siendo receptivo a nuestras necesidades personales de salud y/o metas de vida? #LupusChat https://t.co/dxmKtLPhpx |
| #LupusChat @Lupus_Chat Q3B: CΓ³mo pueden los mΓ©dicos incluir a sus pacientes como colaboradores en su propio plan de atenciΓ³n/salud? #LupusChat https://t.co/RHwyXYxgMQ |
| Tiffany β· @TiffanyAndLupus A3A: Firmly share your health needs/goals. If your doctor isnβt receptive or willing to listen, perhaps itβs time for a new one. #LupusChat |
| Carly by Nature @SynceNerd_Carli @Xtel007 I prefer to go alone to appointments.Then I can focus on the info being discussed.Otherwise I'd be concerned abt worrying others #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @SynceNerd_Carli @Lupus_Chat True. I had never seen a rheumatologist when I lived in LA. All those years. Just PCP and nephrologist. But I had the symptoms. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3A:This is hard.Luckily most of my doctors have encouraged my goals. Iβve learned to discuss my goals early and map out a plan. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2A: A2A: Some of my specialists are at a different hospital and I can use a patient portal. It is extremely helpful. #LupusChat |
| Dan Walmer @Thrown4aLup @Lupus_Chat #LupusChat I'll be honest. Too important to me to have to fight for a connection. I have my hands full fighting lupus. I'll go elsewhere. |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: A2B (@MedReuma)It is important to have a health support team: A2B (@MedReuma)It is important to have a health support team: nurse, psychologist, Secretariat to support you with your questions #LupusChat https://t.co/5aW5FVwowY |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A3A I had a Dr who was very hardline about steroids & told me to take them or he would drop me as a pt. So I left. 1/2 #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3A: A3A: Approaching our doctors can be intimidating. I think a great way is to 1st question their perspective, then explain yours. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3B: Q3B: CΓ³mo pueden los mΓ©dicos incluir a sus pacientes como colaboradores en su propio plan de atenciΓ³n/salud? #LupusChat https://t.co/RHwyXYxgMQ |
| RaquelRoschell @raquelonpurpose A3A We have to be vocal..stand up for ourselves as we follow sound advice. Let them know we want this to be a partnership. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3A: Q3A: CΓ³mo podemos hablar a un mΓ©dico que no estΓ‘ siendo receptivo a nuestras necesidades personales de salud y/o metas de vida? #LupusChat https://t.co/dxmKtLPhpx |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Q3A: Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/FpaNQ9pORl |
| Carly by Nature @SynceNerd_Carli A3A: Esto es difΓcil. La mayorΓa de mis mΓ©dicos me han animado. He aprendido a discutir mis metas temprano y mapear un plan. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3B: Q3B: How can physicians include their patients as collaborative partners in their own care plan? #LupusChat https://t.co/9TE0UQbkjl |
| πβ½ππΉβ Xtel Bond @Xtel007 @SynceNerd_Carli That is true. That's probably why I don't have them go in the room with me. That's an added stress I do not need lol #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A3a. By asking more questions at each visit. Bring articles/pamphlets,etc. Explain symptoms. If not,then move on to a new doctor. #LupusChat |
| #LupusChat @Lupus_Chat @langlotz1 You can just write a tweet using the notation of the question you're answering & include the tag #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3A: Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/WNjloEkeBK |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3A: A3A: Sometimes our doctors arenβt aware that we have specific life goals or needs. We have to be more open & honest with them. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @Xtel007 I prefer to go alone to appointments.Then I can focus on the info being discussed.Otherwise I'd be concerned abt worrying others #LupusChat |
| Carly by Nature @SynceNerd_Carli A3A: I had a doctor who was not interested in helping me improve as a whole person. I fired her. It wonβt work if we canβt agree. #LupusChat |
| Caring For Lupus @CaringForLupus A3A We had a Rheumatologist who wasn't acknowledging her joint pain. We switched doctors #LupusChat |
| Caring For Lupus @CaringForLupus A3A I have learned that we have a voice as a patient and as caregivers. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3A: A3A: Firmly share your health needs/goals. If your doctor isnβt receptive or willing to listen, perhaps itβs time for a new one. #LupusChat |
| Caring For Lupus @CaringForLupus A3A He aprendido que tenemos una voz como paciente y como cuidadores. #LupusChat |
| Caring For Lupus @CaringForLupus A3A Tuvimos un ReumatΓ³logo que no estaba prestando atenciΓ³n al dolor en las articulaciones de Miah. Cambiamos de mΓ©dico #LupusChat, |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3A:This is hard.Luckily most of my doctors have encouraged my goals. Iβve learned to discuss my goals early and map out a plan. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3a. By asking more questions at each visit. Bring articles/pamphlets,etc. Explain symptoms. If not,then move on to a new doctor. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A3a. By asking more questions at each visit. Bring articles/pamphlets,etc. Explain symptoms. If not,then move on to a new doctor. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3A: Yo tenΓa un mΓ©dico que no estaba interesado en ayudarme a mejorar como una persona entera. La despedΓ. #LupusChat |
| #LupusChat @Lupus_Chat RT @Thrown4aLup: @Lupus_Chat #LupusChat I'll be honest. Too important to me to have to fight for a connection. I have my hands full fighting lupus. I'll go elsewhere. |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Thrown4aLup: @Lupus_Chat #LupusChat Q2B. My doctor will always return a call within 24 hrs. Or give the answers to his PA to call back. He's the best! |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: A3A I have learned that we have a voice as a patient and as caregivers. #LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A3A My Dr. now talked me through why steroids and we worked through it as a team, as we do every med decision. We are a TEAM. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A3A: A3A: I had a doctor who was not interested in helping me improve as a whole person. I fired her. It wonβt work if we canβt agree. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: A3A We had a Rheumatologist who wasn't acknowledging her joint pain. We switched doctors #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A3A I had a Dr who was very hardline about steroids & told me to take them or he would drop me as a pt. So I left. 1/2 #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3A: Q3A: How can we approach a doctor who isnβt being receptive to our personal health needs and/or life goals? #LupusChat https://t.co/WNjloEkeBK |
| Carly by Nature @SynceNerd_Carli No funcionarΓ‘ si no podemos estar de acuerdo. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @DrDavidLazar: A3: A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| #LupusChat @Lupus_Chat RT @mommade4change: A3A We have to be vocal..stand up for ourselves as we follow sound advice. Let them know we want this to be a partnership. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3B: Q3B: How can physicians include their patients as collaborative partners in their own care plan? #LupusChat https://t.co/9TE0UQbkjl |
| Dan Walmer @Thrown4aLup @TiffanyAndLupus @Lupus_Chat #LupusChat I agree. But if it's been a couple visits and I'm not comfy I'll move on. Houston has tons of Dr.s. Hope that doesn't sound mean. |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: A3: A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3A We had a Rheumatologist who wasn't acknowledging her joint pain. We switched doctors #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3A I have learned that we have a voice as a patient and as caregivers. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: A3: A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| Tiffany β· @TiffanyAndLupus RT @CaringForLupus: A3A We had a Rheumatologist who wasn't acknowledging her joint pain. We switched doctors #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: A3A: A3A: I had a doctor who was not interested in helping me improve as a whole person. I fired her. It wonβt work if we canβt agree. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @CaringForLupus: A3A I have learned that we have a voice as a patient and as caregivers. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A3A. Iβm not sure how to answer that other than: Find another doctor. Unfortunately not everyone can do that. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A2b. My rheumatologist is in the same medical group as my PCP,and my PCP will send her information and my questions via email. #LupusChat |
| Caring For Lupus @CaringForLupus RT @jengapuzzle: A3A My Dr. now talked me through why steroids and we worked through it as a team, as we do every med decision. We are a TEAM. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: A3A: A3A: Esto es difΓcil. La mayorΓa de mis mΓ©dicos me han animado. He aprendido a discutir mis metas temprano y mapear un plan. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @mommade4change: A3A We have to be vocal..stand up for ourselves as we follow sound advice. Let them know we want this to be a partnership. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3A: A3A: Yo tenΓa un mΓ©dico que no estaba interesado en ayudarme a mejorar como una persona entera. La despedΓ. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A3A. I think itβs important to be firm about what your goals are. They are not secondary to what your doctor has planned. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: A3: A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| Reyesπ @ladydee_0703 @Lupus_Chat A2A yes, some have answering services that can reach them & others have given me their cell number for emergency #LupusChat |
| #LupusChat @Lupus_Chat RT @Thrown4aLup: @TiffanyAndLupus @Lupus_Chat #LupusChat I agree. But if it's been a couple visits and I'm not comfy I'll move on. Houston has tons of Dr.s. Hope that doesn't sound mean. |
| Carly by Nature @SynceNerd_Carli RT @Thrown4aLup: @TiffanyAndLupus @Lupus_Chat #LupusChat I agree. But if it's been a couple visits and I'm not comfy I'll move on. Houston has tons of Dr.s. Hope that doesn't sound mean. |
| πβ½ππΉβ Xtel Bond @Xtel007 A3A. Iβve been lucky that my doctor likes patients who are engaged, and they always encourage it. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: A3: A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| RaquelRoschell @raquelonpurpose A3A If you doctor is not listening. We need to find one who will. Its imperative. Our lives literally depend on it. #LupusChat |
| #LupusChat @Lupus_Chat Effective communication is key. Letβs focus on improving dialogue with our Doctorβs in Question 4. #LupusChat https://t.co/HkXpAMI6h4 |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A2B (@MedReuma)It is important to have a health support team: A2B (@MedReuma)It is important to have a health support team: nurse, psychologist, Secretariat to support you with your questions #LupusChat https://t.co/5aW5FVwowY |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3A: A3A: Approaching our doctors can be intimidating. I think a great way is to 1st question their perspective, then explain yours. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Thrown4aLup: @TiffanyAndLupus @Lupus_Chat #LupusChat I agree. But if it's been a couple visits and I'm not comfy I'll move on. Houston has tons of Dr.s. Hope that doesn't sound mean. |
| Tiffany β· @TiffanyAndLupus RT @Thrown4aLup: @Lupus_Chat #LupusChat I'll be honest. Too important to me to have to fight for a connection. I have my hands full fighting lupus. I'll go elsewhere. |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3A. Iβve been lucky that my doctor likes patients who are engaged, and they always encourage it. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q3B: Q3B: How can physicians include their patients as collaborative partners in their own care plan? #LupusChat https://t.co/9TE0UQbkjl |
| Carly by Nature @SynceNerd_Carli @DrDavidLazar Yes! Trust is very important. If trust isn't shared, the level of care will suffer #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3A We had a Rheumatologist who wasn't acknowledging her joint pain. We switched doctors #LupusChat |
| #LupusChat @Lupus_Chat La comunicaciΓ³n efectiva es clave. Vamos a centrarnos en mejorar el diΓ‘logo con nuestro mΓ©dico en la pregunta 4. #LupusChat https://t.co/to7cZHNZhv |
| #LupusChat @Lupus_Chat Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| Tiffany β· @TiffanyAndLupus Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/sV8VK52Bnb |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A3a. By asking more questions at each visit. Bring articles/pamphlets,etc. Explain symptoms. If not,then move on to a new doctor. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @DrDavidLazar Yes! Trust is very important. If trust isn't shared, the level of care will suffer #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A3A We have to be vocal..stand up for ourselves as we follow sound advice. Let them know we want this to be a partnership. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 Amen to that! #LupusChat https://t.co/auy0FBdiZG |
| Carly by Nature @SynceNerd_Carli RT @jengapuzzle: A3A I had a Dr who was very hardline about steroids & told me to take them or he would drop me as a pt. So I left. 1/2 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Thrown4aLup: @Lupus_Chat #LupusChat I'll be honest. Too important to me to have to fight for a connection. I have my hands full fighting lupus. I'll go elsewhere. |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3A: A3A: Firmly share your health needs/goals. If your doctor isnβt receptive or willing to listen, perhaps itβs time for a new one. #LupusChat |
| Caring For Lupus @CaringForLupus RT @mommade4change: A3A If you doctor is not listening. We need to find one who will. Its imperative. Our lives literally depend on it. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3B: Q3B: CΓ³mo pueden los mΓ©dicos incluir a sus pacientes como colaboradores en su propio plan de atenciΓ³n/salud? #LupusChat https://t.co/RHwyXYxgMQ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3A: Q3A: CΓ³mo podemos hablar a un mΓ©dico que no estΓ‘ siendo receptivo a nuestras necesidades personales de salud y/o metas de vida? #LupusChat https://t.co/dxmKtLPhpx |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3A: A3A: Sometimes our doctors arenβt aware that we have specific life goals or needs. We have to be more open & honest with them. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3A: A3A: Approaching our doctors can be intimidating. I think a great way is to 1st question their perspective, then explain yours. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @DrDavidLazar: A3: A3: Trust is the first part. Both parties have to trust each other. Lupus is not the same for everyone. Everyday can fluctuate. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A2B (@MedReuma)It is important to have a health support team: A2B (@MedReuma)It is important to have a health support team: nurse, psychologist, Secretariat to support you with your questions #LupusChat https://t.co/5aW5FVwowY |
 | Dr. Lissette Alvarez-Holland,Founder @Yogadocnc RT @DrDavidLazar: A1: A1: During my initial visit with a pt. I go over expectations & goals. I review the referral, previous labs/imaging etc #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| #LupusChat @Lupus_Chat incluya por favor #LupusChat a todos tus tweets o no podemos verlas! https://t.co/WUT2z7KhD9 |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: La comunicaciΓ³n efectiva es clave. Vamos a centrarnos en mejorar el diΓ‘logo con nuestro mΓ©dico en la pregunta 4. #LupusChat https://t.co/to7cZHNZhv |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: incluya por favor #LupusChat a todos tus tweets o no podemos verlas! https://t.co/WUT2z7KhD9 |
| Rachael (rah-shell) Jay β‘ @_RachaelTV A4 journaling! b/t bouts of brain fog, too much happening at work/school and anxiety, it can be easy to forget...jot it down ASAP #LupusChat https://t.co/PPZt06zCmc |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| Tiffany β· @TiffanyAndLupus A4: May not be common, but I usually ask my doctors what I can do in-between visits to help us determine my treatment plan. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A3A If you doctor is not listening. We need to find one who will. Its imperative. Our lives literally depend on it. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Effective communication is key. Letβs focus on improving dialogue with our Doctorβs in Question 4. #LupusChat https://t.co/HkXpAMI6h4 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3A. Iβve been lucky that my doctor likes patients who are engaged, and they always encourage it. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @ladydee_0703: @Lupus_Chat A2A yes, some have answering services that can reach them & others have given me their cell number for emergency #LupusChat |
| #LupusChat @Lupus_Chat Q4: CuΓ‘les son algunas maneras que las personas con Lupus/cuidadores pueden ayudar a mΓ©dicos a realizar un seguimiento de salud? #LupusChat https://t.co/QWH3E5SoKe |
| Tiffany β· @TiffanyAndLupus A4: I set calendar alarms to remind me to take medicine, drink water, do labwork, track symptoms so I can have accurate feedback. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A4. Itβs important to keep track and discus symptoms in the context of their daily life. Any good doctor wants to know. #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A3A My Dr. now talked me through why steroids and we worked through it as a team, as we do every med decision. We are a TEAM. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3A: A3A: Yo tenΓa un mΓ©dico que no estaba interesado en ayudarme a mejorar como una persona entera. La despedΓ. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: I think having our doctors include our goals in their notes so they can refer to them during consults is a good idea. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A3A. Iβm not sure how to answer that other than: A3A. Iβm not sure how to answer that other than: Find another doctor. Unfortunately not everyone can do that. #LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A4 I ask all other Drs to cc my rheum. I tell rheum any other things going on w me during my appt. Anything could throw me off. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A4. And itβs very important to follow up on the symptoms at each visit. βThe fatigue was that much, now itβs /better/worseβ etc #LupusChat |
| Tiffany β· @TiffanyAndLupus A4: Can ask our Drs what symptoms we should be aware of during a flare, or from a new medication so we know what to be mindful of #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: Haga que sus mΓ©dicos incluyan nuestras metas en sus notas para que puedan referirse a ellas durante las citas. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A3b. My doctors are all in the same medical group. I've been able to work with them re: treatment,meds,appointments,tests. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: incluya por favor #LupusChat a todos tus tweets o no podemos verlas! https://t.co/WUT2z7KhD9 |
| RaquelRoschell @raquelonpurpose A4A Transparency on our end. Trusting ourselves when it comes to our health. No second guessing ourselves if that makes sense. #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV A4 also, this past appt, I asked the nurse questions on the pain sheet "what do you mean by...?" first time doing that. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: Can ask our Drs what symptoms we should be aware of during a flare, or from a new medication so we know what to be mindful of #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @mommade4change: A4A Transparency on our end. Trusting ourselves when it comes to our health. No second guessing ourselves if that makes sense. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q4: Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A1B (@MedReuma) as rheumatologist suggest to always go w/ family member or friend to the first visit. Two people hear information #Lupuschat https://t.co/dUJ17dZbCR |
| #LupusChat @Lupus_Chat A3 (@MedReuma) Patients are one member of the team of health, the most important is your health that is at stake #LupusChat https://t.co/6DRDSQWtZu |
 | Zarifa Roberson π§πΈβοΈ πππ© @zarifaroberson RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A4. And itβs very important to follow up on the symptoms at each visit. βThe fatigue was that much, now itβs /better/worseβ etc #LupusChat |
| Zarifa Roberson π§πΈβοΈ πππ© @zarifaroberson RT @jengapuzzle: Ready for #LupusChat! https://t.co/RnfwW8Kdx6 |
| Zarifa Roberson π§πΈβοΈ πππ© @zarifaroberson RT @CaringForLupus: A3A We had a Rheumatologist who wasn't acknowledging her joint pain. We switched doctors #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Thrown4aLup: @TiffanyAndLupus @Lupus_Chat #LupusChat I agree. But if it's been a couple visits and I'm not comfy I'll move on. Houston has tons of Dr.s. Hope that doesn't sound mean. |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat @MedReuma A1b. No family members were able to go with me to doctors appointments. Either here in Albuquerque or in LA prior to 2004. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: A3 (@MedReuma) Patients are one member of the team of health, the most important is your health that is at stake #LupusChat https://t.co/6DRDSQWtZu |
| #LupusChat @Lupus_Chat RT @mommade4change: A3A If you doctor is not listening. We need to find one who will. Its imperative. Our lives literally depend on it. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| Dan Walmer @Thrown4aLup @Lupus_Chat Lo siento! #LupusChat π |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: A4 journaling! b/t bouts of brain fog, too much happening at work/school and anxiety, it can be easy to forget...jot it down ASAP #LupusChat https://t.co/PPZt06zCmc |
| Zarifa Roberson π§πΈβοΈ πππ© @zarifaroberson RT @CaringForLupus: A3A I have learned that we have a voice as a patient and as caregivers. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: May not be common, but I usually ask my doctors what I can do in-between visits to help us determine my treatment plan. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Itβs important to keep track and discus symptoms in the context of their daily life. Any good doctor wants to know. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: I set calendar alarms to remind me to take medicine, drink water, do labwork, track symptoms so I can have accurate feedback. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: I think having our doctors include our goals in their notes so they can refer to them during consults is a good idea. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: CuΓ‘les son algunas maneras que las personas con Lupus/cuidadores pueden ayudar a mΓ©dicos a realizar un seguimiento de salud? #LupusChat https://t.co/QWH3E5SoKe |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A4 I ask all other Drs to cc my rheum. I tell rheum any other things going on w me during my appt. Anything could throw me off. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 @iveyjanette_207 @Lupus_Chat I try to have all mine in the same network as well. That way, the notes on my chart are shared and there's better continuity. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. And itβs very important to follow up on the symptoms at each visit. βThe fatigue was that much, now itβs /better/worseβ etc #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Can ask our Drs what symptoms we should be aware of during a flare, or from a new medication so we know what to be mindful of #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: incluya por favor #LupusChat a todos tus tweets o no podemos verlas! https://t.co/WUT2z7KhD9 |
| #LupusChat @Lupus_Chat RT @mommade4change: A4A Transparency on our end. Trusting ourselves when it comes to our health. No second guessing ourselves if that makes sense. #LupusChat |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: A4 also, this past appt, I asked the nurse questions on the pain sheet "what do you mean by...?" first time doing that. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: @iveyjanette_207 @Lupus_Chat I try to have all mine in the same network as well. That way, the notes on my chart are shared and there's better continuity. #LupusChat |
| #LupusChat @Lupus_Chat Letβs continue discussing resources to improve our care. Question 5 is next! #LupusChat https://t.co/IBB01mUiHf |
 | Julie Zimmerman @jujubug1129 RT @Lupus_Chat: incluya por favor #LupusChat a todos tus tweets o no podemos verlas! https://t.co/WUT2z7KhD9 |
| Caring For Lupus @CaringForLupus A4 Nosotros tomamos fotos, creamos recordatorios en el celular sobre medicina, citas, sangre, terapia fisica. #LupusChat |
| Dan Walmer @Thrown4aLup @TiffanyAndLupus #LupusChat Being prepared at each appt with current med doses, questions, and organized thoughts on moving forward. We need to own our part! |
| Caring For Lupus @CaringForLupus A4 We take pictures, we setup reminders in our phone about medicine, appointments, blood-work, PT #LupusChat |
| RaquelRoschell @raquelonpurpose @harlem_peach Great idea! #LupusChat |
| #LupusChat @Lupus_Chat Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/CN2sBlCvE7 |
| Tiffany β· @TiffanyAndLupus Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/TFsPuh0o1t |
| David Lazar, MD MPH @DrDavidLazar @CaringForLupus Ultrasound is the best tool, when deciding if pain is from inflammatory arthritis (lupus) or osteoarthritis. #lupuschat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A4. I write everything down in a notebook. My doctors send test results via mail and call me asap if there's changes. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 Wow yes! #Lupuschat https://t.co/RBAwuF13kd |
| Carly by Nature @SynceNerd_Carli @harlem_peach My former and current Rheumies do this. There were some in between that werent as interested. Exactly why they're gone . #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Q5: Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/TFsPuh0o1t |
| Dan Walmer @Thrown4aLup @Lupus_Chat #LupusChat Great question... I'll sit back and see what the rheumy'a say... ππΌ |
| #LupusChat @Lupus_Chat A4B (@MedReuma) Be honest. "Doctor, did not take the medicine b/c I was afraid" or "I forgot ..." #LupusChat https://t.co/8xfDYHeDVy |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Wow. Thats a long time without specialized care. Glad you finally got a Rheumy #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Thrown4aLup: @TiffanyAndLupus #LupusChat Being prepared at each appt with current med doses, questions, and organized thoughts on moving forward. We need to own our part! |
 | franz otaiza @reumaven #LupusChat Muchos mΓ©dicos no afrontan dar el diagnΓ³stico de Lupus. Le toca a uno hacerlo y estar muy seguro |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Xtel007 @Lupus_Chat I couldn't find another rheumatologist who took my insurance here in Albuquerque. I would have had to travel to Denver or LA. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: Letβs continue discussing resources to improve our care. Question 5 is next! #LupusChat https://t.co/IBB01mUiHf |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Letβs continue discussing resources to improve our care. Question 5 is next! #LupusChat https://t.co/IBB01mUiHf |
| #LupusChat @Lupus_Chat Q5: Hay alguna herramienta disponible que podemos usar para que los mΓ©dicos entiendan la gravedad de los sΓntomas/vida cotidiana? #LupusChat https://t.co/4nssTtNoob |
| Carly by Nature @SynceNerd_Carli @SBenavides_C @DrDavidLazar I have some doctors who haven't asked. The ones that have are still around. #LupusChat |
| Tiffany β· @TiffanyAndLupus A5: Paper & pen. Write down your rough days & share at your appt. And/or take photos of symptoms that happen in between visits. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/CN2sBlCvE7 |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @CaringForLupus Ultrasound is the best tool, when deciding if pain is from inflammatory arthritis (lupus) or osteoarthritis. #lupuschat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A4B (@MedReuma) Be honest. "Doctor, did not take the medicine b/c I was afraid" or "I forgot ..." #LupusChat https://t.co/8xfDYHeDVy |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4. I write everything down in a notebook. My doctors send test results via mail and call me asap if there's changes. #LupusChat |
| #LupusChat @Lupus_Chat RT @Thrown4aLup: @Lupus_Chat #LupusChat Great question... I'll sit back and see what the rheumy'a say... ππΌ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Hay alguna herramienta disponible que podemos usar para que los mΓ©dicos entiendan la gravedad de los sΓntomas/vida cotidiana? #LupusChat https://t.co/4nssTtNoob |
 | Ransdell Mocca @ransdellmocca RT @Lupus_Chat: Q4: Q4: What are some ways those living with Lupus (& caregivers) can help physicians keep track of their health? #LupusChat https://t.co/nlYGnP6Dp5 |
| Tiffany β· @TiffanyAndLupus A5: You can use mobile apps to help keep track of things like pain, insomnia, & other symptoms. Use it to track frequency. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: Paper & pen. Write down your rough days & share at your appt. And/or take photos of symptoms that happen in between visits. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 @iveyjanette_207 @Lupus_Chat Yea. The ease of access (or lack thereof) is a whole nother problem. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @reumaven: #LupusChat Muchos mΓ©dicos no afrontan dar el diagnΓ³stico de Lupus. Le toca a uno hacerlo y estar muy seguro |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Hay alguna herramienta disponible que podemos usar para que los mΓ©dicos entiendan la gravedad de los sΓntomas/vida cotidiana? #LupusChat https://t.co/4nssTtNoob |
| Tiffany β· @TiffanyAndLupus RT @Thrown4aLup: @Lupus_Chat #LupusChat Great question... I'll sit back and see what the rheumy'a say... ππΌ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A4B (@MedReuma) Be honest. "Doctor, did not take the medicine b/c I was afraid" or "I forgot ..." #LupusChat https://t.co/8xfDYHeDVy |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: @harlem_peach My former and current Rheumies do this. There were some in between that werent as interested. Exactly why they're gone . #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Thrown4aLup: @Lupus_Chat #LupusChat Great question... I'll sit back and see what the rheumy'a say... ππΌ |
| Tiffany β· @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A4. I write everything down in a notebook. My doctors send test results via mail and call me asap if there's changes. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Xtel007: Wow yes! #Lupuschat https://t.co/RBAwuF13kd |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. I write everything down in a notebook. My doctors send test results via mail and call me asap if there's changes. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/CN2sBlCvE7 |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: @CaringForLupus Ultrasound is the best tool, when deciding if pain is from inflammatory arthritis (lupus) or osteoarthritis. #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: A4B (@MedReuma) Be honest. "Doctor, did not take the medicine b/c I was afraid" or "I forgot ..." #LupusChat https://t.co/8xfDYHeDVy |
| Tiffany β· @TiffanyAndLupus RT @CaringForLupus: A4 We take pictures, we setup reminders in our phone about medicine, appointments, blood-work, PT #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @CaringForLupus: A4 Nosotros tomamos fotos, creamos recordatorios en el celular sobre medicina, citas, sangre, terapia fisica. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: @CaringForLupus Ultrasound is the best tool, when deciding if pain is from inflammatory arthritis (lupus) or osteoarthritis. #lupuschat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat @MedReuma A4b. I didn't follow the dietary suggestions. But took the medication as prescribed. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/CN2sBlCvE7 |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: You can use mobile apps to help keep track of things like pain, insomnia, & other symptoms. Use it to track frequency. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/CN2sBlCvE7 |
| πβ½ππΉβ Xtel Bond @Xtel007 A5. The best way is to document the symptoms AS THEY HAPPEN. And again, IN THE CONTEXT OF YOUR DAILY LIFE. #LupusChat |
| Caring For Lupus @CaringForLupus A5 You can use a journal, download different apps and use the one the works best for you.#LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A5 I just take notes, and report on especially bad days or trends during the (usually 3 month) intervals between appointments. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A5. Jot down notes on how youβre feeling, take pics, etc. Depending on the severity, let your doc know immediately if you can. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @CaringForLupus Ultrasound is the best tool, when deciding if pain is from inflammatory arthritis (lupus) or osteoarthritis. #lupuschat |
| #LupusChat @Lupus_Chat Weβre moving on to building stronger relationships. Stay tuned for question 6. #LupusChat https://t.co/OSbxjCVl8x |
| #LupusChat @Lupus_Chat Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/8BstTZjr4x |
| Tiffany β· @TiffanyAndLupus Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/sapejqioiG |
| #LupusChat @Lupus_Chat A4 cont (@MedReuma )... Why doctors need to have accurate information to make treatment decisions #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/8BstTZjr4x |
| Reyesπ @ladydee_0703 @Lupus_Chat A2B best way is thru web portals, which most of them have set up already.All my doctors do! Everything done thru there! #LupusChat |
| Caring For Lupus @CaringForLupus A5 Es importante que tememos notas, esto puede ayudar al doctor a entender si ahy algo en especifico que empeora los sΓntomas #LupusChat |
| RaquelRoschell @raquelonpurpose A5 Journaling.. Every appt I have to fill out forms about them & I use a special pen that uploads the info into office system. #LupusChat |
| #LupusChat @Lupus_Chat A5 (@MedReuma) Doctors often use surveys for quality of life. #LupusChat https://t.co/uXmgA0M08l |
| #LupusChat @Lupus_Chat RT @ladydee_0703: @Lupus_Chat A2B best way is thru web portals, which most of them have set up already.All my doctors do! Everything done thru there! #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A6. Itβs imp for patients take an active role in their care. And for docs to take an interest in their patientsβ life/goals. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A5. I'll show the doctors pictures of my swelling in the legs and face. They often see the leg and my limping. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @MedReuma A4b. I didn't follow the dietary suggestions. But took the medication as prescribed. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 A6. Itβs important for both parties to communicate honestly, and to really listen to each other. #LupusChat |
 | Sas Freeman @sas_freeman RT @Lupus_Chat: Our relationships w/ our doctors should be a partnership. So, letβs share our experiences & learn how to connect with our Drs. #LupusChat https://t.co/E4j9mTfaqz |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. The best way is to document the symptoms AS THEY HAPPEN. And again, IN THE CONTEXT OF YOUR DAILY LIFE. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A5 You can use a journal, download different apps and use the one the works best for you.#LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A5 I just take notes, and report on especially bad days or trends during the (usually 3 month) intervals between appointments. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. Jot down notes on how youβre feeling, take pics, etc. Depending on the severity, let your doc know immediately if you can. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A5 Journaling.. Every appt I have to fill out forms about them & I use a special pen that uploads the info into office system. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q6: Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/8BstTZjr4x |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A5 (@MedReuma) Doctors often use surveys for quality of life. #LupusChat https://t.co/uXmgA0M08l |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. Itβs imp for patients take an active role in their care. And for docs to take an interest in their patientsβ life/goals. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @TiffanyAndLupus: A5: A5: Paper & pen. Write down your rough days & share at your appt. And/or take photos of symptoms that happen in between visits. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: There are applications we can use to help document new symptoms. But the most effective way for me is photos. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/8BstTZjr4x |
| Tiffany β· @TiffanyAndLupus A6: The more questions I asked my doctor, the more they realized I really wanted to be proactive. That shifted our relationship. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. Itβs important for both parties to communicate honestly, and to really listen to each other. #LupusChat |
| RaquelRoschell @raquelonpurpose A5 I don't wish illness on anyone..but it would be interesting to have a doc who had personal experience. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/8BstTZjr4x |
| #LupusChat @Lupus_Chat We've got one last question coming up after this so stay with us if you can! #LupusChat https://t.co/1RglZPjgsF |
| Tiffany β· @TiffanyAndLupus A6: Sharing feedback & gratitude! Be specific when giving feedback & let them know if and when you appreciate their care. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A6: A6: The more questions I asked my doctor, the more they realized I really wanted to be proactive. That shifted our relationship. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A5. I'll show the doctors pictures of my swelling in the legs and face. They often see the leg and my limping. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. Itβs important for both parties to communicate honestly, and to really listen to each other. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A6. Itβs imp for patients take an active role in their care. And for docs to take an interest in their patientsβ life/goals. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: Sharing feedback & gratitude! Be specific when giving feedback & let them know if and when you appreciate their care. #LupusChat |
| Tiffany β· @TiffanyAndLupus A6: Be honest with your Doctors. If youβre not taking your medicine let them know why. Discuss it & decide next steps together! #LupusChat |
| #LupusChat @Lupus_Chat Q6: CΓ³mo pueden mΓ©dicos y pacientes trabajar juntos para construir una relaciΓ³n sana/confiable que ayude a mejorar comunicaciΓ³n? #LupusChat https://t.co/5ybSdHzutJ |
 | Anthony @Howna RT @DrDavidLazar: @CaringForLupus Ultrasound is the best tool, when deciding if pain is from inflammatory arthritis (lupus) or osteoarthritis. #lupuschat |
| Tiffany β· @TiffanyAndLupus A6: Remember that patients & doctors are both HUMAN. Both have feelings. Kindness and consideration should be mutual. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: Remember that patients & doctors are both HUMAN. Both have feelings. Kindness and consideration should be mutual. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Sharing feedback & gratitude! Be specific when giving feedback & let them know if and when you appreciate their care. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Be honest with your Doctors. If youβre not taking your medicine let them know why. Discuss it & decide next steps together! #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A6. Doctors can be more friendlier and willing to listen to patients at each visit. Breaks the ice. My rheumatologist did that. #LupusChat |
| #LupusChat @Lupus_Chat A4: (@MedReuma ) Never be afraid to ask! Ask until there is no doubt! #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: There are applications we can use to help document new symptoms. But the most effective way for me is photos. #LupusChat |
| Dan Walmer @Thrown4aLup @Xtel007 @Lupus_Chat A6. What she said. π―#LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: The more questions I asked my doctor, the more they realized I really wanted to be proactive. That shifted our relationship. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat A6. Doctors can be more friendlier and willing to listen to patients at each visit. Breaks the ice. My rheumatologist did that. #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: Hay aplicaciones que podemos usar para ayudar a documentar nuevos sΓntomas. Pero la forma mΓ‘s efectiva para mΓ son las fotos. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Remember that patients & doctors are both HUMAN. Both have feelings. Kindness and consideration should be mutual. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: We've got one last question coming up after this so stay with us if you can! #LupusChat https://t.co/1RglZPjgsF |
 | sportslady1 @Sportslady1 @Lupus_Chat Sabrina Lupus 02 kidney nephritis & recently dx Fibro.FrmPhilly live CT Record & research issues 2 have informed questions 4 doc #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 Very very good advice! #LupusChat https://t.co/CWDTeJ0FOy |
| Caring For Lupus @CaringForLupus A6 Communication is vital to built a relationship. Ask questions. Be proactive #LupusChat |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Lupus_Chat A6. Doctors can be more friendlier and willing to listen to patients at each visit. Breaks the ice. My rheumatologist did that. #LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A6 So important to be a team, listen to each other. My Dr does keeps saying, "What else?" until I am really done. Never rushed. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @jengapuzzle: A6 So important to be a team, listen to each other. My Dr does keeps saying, "What else?" until I am really done. Never rushed. #LupusChat |
| Caring For Lupus @CaringForLupus A6 Share how you really feel,what symptoms you had between visit and the severity #LupusChat |
| #LupusChat @Lupus_Chat Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| Tiffany β· @TiffanyAndLupus Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/1BjQc8XNKv |
| sportslady1 @Sportslady1 RT @DrDavidLazar: A1: A1: During my initial visit with a pt. I go over expectations & goals. I review the referral, previous labs/imaging etc #lupuschat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Weβre moving on to building stronger relationships. Stay tuned for question 6. #LupusChat https://t.co/OSbxjCVl8x |
| Caring For Lupus @CaringForLupus A6 La comunicaciΓ³n es vital para construir una relaciΓ³n. Haz preguntas. Se proactivo #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q7A: Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| Caring For Lupus @CaringForLupus A6 Comparta cΓ³mo se siente realmente, quΓ© sΓntomas tuvo entre la visita y la gravedad #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A3 (@MedReuma) Patients are one member of the team of health, the most important is your health that is at stake #LupusChat https://t.co/6DRDSQWtZu |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: A4: A4: (@MedReuma ) Never be afraid to ask! Ask until there is no doubt! #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @TiffanyAndLupus: A6: A6: Remember that patients & doctors are both HUMAN. Both have feelings. Kindness and consideration should be mutual. #LupusChat |
| #LupusChat @Lupus_Chat Q7A: QuΓ© recursos nos gustarΓa que nuestros mΓ©dicos hablaran con nosotros sobre Lupus? #LupusChat https://t.co/TW4aAzQsqL |
| #LupusChat @Lupus_Chat Q7B: As a doctor what resources do you suggest those with lupus to research to better understand & learn about Lupus? #LupusChat https://t.co/AhBEHGYAX8 |
| Tiffany β· @TiffanyAndLupus Q7B: As a doctor what resources do you suggest those with lupus to research to better understand & learn about Lupus? #LupusChat https://t.co/jUHWO2MML6 |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @TiffanyAndLupus: A6: A6: The more questions I asked my doctor, the more they realized I really wanted to be proactive. That shifted our relationship. #LupusChat |
| #LupusChat @Lupus_Chat Q7B: Como mΓ©dico, quΓ© recursos sugiere a los pacientes con Lupus para investigar para comprender mejor y aprender sobre Lupus? #LupusChat https://t.co/3g3GNKs0Vu |
| Carly by Nature @SynceNerd_Carli A5: Documenting my physical symptoms is helpful.When the doctor can SEE the issue, it validates my concerns & improves treatment. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: We've got one last question coming up after this so stay with us if you can! #LupusChat https://t.co/1RglZPjgsF |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: Q7B: Q7B: As a doctor what resources do you suggest those with lupus to research to better understand & learn about Lupus? #LupusChat https://t.co/AhBEHGYAX8 |
| Carly by Nature @SynceNerd_Carli A5: La capacidad de documentar mis sΓntomas fΓsicos es muy ΓΊtil. #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q2A: Q2A: Existen recursos disponibles para que usted pueda comunicarse con su mΓ©dico fuera de las horas de su cita? #LupusChat https://t.co/GW60wcmmeo |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A6. Doctors can be more friendlier and willing to listen to patients at each visit. Breaks the ice. My rheumatologist did that. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Hay aplicaciones que podemos usar para ayudar a documentar nuevos sΓntomas. Pero la forma mΓ‘s efectiva para mΓ son las fotos. #LupusChat |
| Reyesπ @ladydee_0703 RT @Lupus_Chat: Q5: Q5: Are there any tools available that we can use to help our doctors understand the severity of our symptoms & day-to-day life? #LupusChat https://t.co/CN2sBlCvE7 |
| Carly by Nature @SynceNerd_Carli A5: Cuando el mΓ©dico puede ver el problema, validar mis preocupaciones y mejorar el tratamiento. #LupusChat |
| #LupusChat @Lupus_Chat RT @Sportslady1: @Lupus_Chat Sabrina Lupus 02 kidney nephritis & recently dx Fibro.FrmPhilly live CT Record & research issues 2 have informed questions 4 doc #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: Very very good advice! #LupusChat https://t.co/CWDTeJ0FOy |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A6 Communication is vital to built a relationship. Ask questions. Be proactive #LupusChat |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle A7A Would love to know more about support groups for me & caregivers, and drug trials. #LupusChat |
| Caring For Lupus @CaringForLupus A7 Doctor can help us by providing to us different tools like support group information, different therapy, medication. Etc #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A6 So important to be a team, listen to each other. My Dr does keeps saying, "What else?" until I am really done. Never rushed. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A6 Share how you really feel,what symptoms you had between visit and the severity #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @CaringForLupus: A6 Comparta cΓ³mo se siente realmente, quΓ© sΓntomas tuvo entre la visita y la gravedad #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q7A: Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| πβ½ππΉβ Xtel Bond @Xtel007 A7A. Iβd like doctors to discuss resources to help manage work life with Lupus, accommodations we can demand at work, etc. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Honesty is important. If both patients and doctors are realistic and honest, the relationship will be better for it. #LupusChat |
| Dan Walmer @Thrown4aLup @Lupus_Chat Q7A. More discussions on long term treatment issues...on clinical trials and advancements. I always have to lead these talks. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q7A: Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @jengapuzzle: A7A Would love to know more about support groups for me & caregivers, and drug trials. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q7B: Q7B: Como mΓ©dico, quΓ© recursos sugiere a los pacientes con Lupus para investigar para comprender mejor y aprender sobre Lupus? #LupusChat https://t.co/3g3GNKs0Vu |
| Carly by Nature @SynceNerd_Carli A6: La honestidad es importante. Si los pacientes y los mΓ©dicos son realistas y honestos, la relaciΓ³n serΓ‘ mejor. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q7B: Q7B: As a doctor what resources do you suggest those with lupus to research to better understand & learn about Lupus? #LupusChat https://t.co/AhBEHGYAX8 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q7A: Q7A: QuΓ© recursos nos gustarΓa que nuestros mΓ©dicos hablaran con nosotros sobre Lupus? #LupusChat https://t.co/TW4aAzQsqL |
| Tiffany β· @TiffanyAndLupus A7A: I would like fertility to be discussed when taking medications w/side effects that may affect our ability to have children #LupusChat |
| David Lazar, MD MPH @DrDavidLazar @SynceNerd_Carli Our EMR has a feature where I can take a picture save it. This way I can track improvement on future visits. #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: CΓ³mo pueden mΓ©dicos y pacientes trabajar juntos para construir una relaciΓ³n sana/confiable que ayude a mejorar comunicaciΓ³n? #LupusChat https://t.co/5ybSdHzutJ |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Documenting my physical symptoms is helpful.When the doctor can SEE the issue, it validates my concerns & improves treatment. #LupusChat |
| #LupusChat @Lupus_Chat RT @jengapuzzle: A7A Would love to know more about support groups for me & caregivers, and drug trials. #LupusChat |
| RaquelRoschell @raquelonpurpose A6 Really getting to know each other's personalities. Both of us putting my health first & not needing to just be right. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Asking many questions is helpful. It is important that doctors know you are an engaged patient. #LupusChat |
| Tiffany β· @TiffanyAndLupus A7A: I would like more knowledge of both short & long-term side effects of medications to be discussed prior to prescribing. #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV A7A alternative (or maybe complementary) methods? TBH i hate taking some of the meds (side effects), would like a decrease #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 @Fizzstah You can still go back and find the question tweets and answer them. It's all good. #LupusChat |
| Tiffany β· @TiffanyAndLupus A7A: It would help if mental health was a required discussion when anyone is diagnosed w/chronic illness. To help lessen stigma. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar @TiffanyAndLupus This should be discussed prior to any medication! Especially in any patient in child bearing years. #lupuschat |
| Reyesπ @ladydee_0703 RT @Lupus_Chat: Q6: Q6: How can doctors & patients work together on building a healthy & trusting relationship that helps better their communication? #LupusChat https://t.co/8BstTZjr4x |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: La capacidad de documentar mis sΓntomas fΓsicos es muy ΓΊtil. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Asking many questions is helpful. It is important that doctors know you are an engaged patient. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Muchas preguntas son ΓΊtiles. Es importante que los mΓ©dicos sepan que usted es un paciente comprometido. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A7 Doctor can help us by providing to us different tools like support group information, different therapy, medication. Etc #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A5: A5: Documenting my physical symptoms is helpful.When the doctor can SEE the issue, it validates my concerns & improves treatment. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A7A. Iβd like doctors to discuss resources to help manage work life with Lupus, accommodations we can demand at work, etc. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @SynceNerd_Carli Our EMR has a feature where I can take a picture save it. This way I can track improvement on future visits. #lupuschat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Honesty is important. If both patients and doctors are realistic and honest, the relationship will be better for it. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A7A: A7A: I would like fertility to be discussed when taking medications w/side effects that may affect our ability to have children #LupusChat |
| #LupusChat @Lupus_Chat RT @Thrown4aLup: @Lupus_Chat Q7A. More discussions on long term treatment issues...on clinical trials and advancements. I always have to lead these talks. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q7A: Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: La honestidad es importante. Si los pacientes y los mΓ©dicos son realistas y honestos, la relaciΓ³n serΓ‘ mejor. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A7A: A7A: I would like fertility to be discussed when taking medications w/side effects that may affect our ability to have children #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @SynceNerd_Carli Our EMR has a feature where I can take a picture save it. This way I can track improvement on future visits. #lupuschat |
| Carly by Nature @SynceNerd_Carli A6: Respect is also important. Each person has to be respectful and considerate of each otherβs time and feelings. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A6 Really getting to know each other's personalities. Both of us putting my health first & not needing to just be right. #LupusChat |
| Caring For Lupus @CaringForLupus RT @jengapuzzle: A7A Would love to know more about support groups for me & caregivers, and drug trials. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Honesty is important. If both patients and doctors are realistic and honest, the relationship will be better for it. #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV this! it's always in the back of my mind...like what else could these medications be doing behind the scenes #LupusChat https://t.co/qiGFXYw5zD |
| Caring For Lupus @CaringForLupus RT @Xtel007: A7A. Iβd like doctors to discuss resources to help manage work life with Lupus, accommodations we can demand at work, etc. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A7A: A7A: It would help if mental health was a required discussion when anyone is diagnosed w/chronic illness. To help lessen stigma. #LupusChat |
| Tiffany β· @TiffanyAndLupus A7A: Lupus is physically debilitating. We need more resources about safe low joint exercises, pain management, & physical therapy #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A7A: A7A: I would like fertility to be discussed when taking medications w/side effects that may affect our ability to have children #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A7A: A7A: I would like more knowledge of both short & long-term side effects of medications to be discussed prior to prescribing. #LupusChat |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: A7A alternative (or maybe complementary) methods? TBH i hate taking some of the meds (side effects), would like a decrease #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A7A: A7A: I would like fertility to be discussed when taking medications w/side effects that may affect our ability to have children #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Asking many questions is helpful. It is important that doctors know you are an engaged patient. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @DrDavidLazar: @TiffanyAndLupus This should be discussed prior to any medication! Especially in any patient in child bearing years. #lupuschat |
| Carly by Nature @SynceNerd_Carli A6: El respeto tambiΓ©n es importante. Cada persona tiene que tener en cuenta el tiempo y los sentimientos de cada uno. #LupusChat |
| Reyesπ @ladydee_0703 RT @Lupus_Chat: Q7A: Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A7A: A7A: It would help if mental health was a required discussion when anyone is diagnosed w/chronic illness. To help lessen stigma. #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @TiffanyAndLupus This should be discussed prior to any medication! Especially in any patient in child bearing years. #lupuschat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q7A: Q7A: What resources would we like our doctors to discuss with us more regarding Lupus? #LupusChat https://t.co/AcXkBjnHCT |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Respect is also important. Each person has to be respectful and considerate of each otherβs time and feelings. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A7A: A7A: Lupus is physically debilitating. We need more resources about safe low joint exercises, pain management, & physical therapy #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @RachaelJPeart: this! it's always in the back of my mind...like what else could these medications be doing behind the scenes #LupusChat https://t.co/qiGFXYw5zD |
| Tiffany β· @TiffanyAndLupus RT @DrDavidLazar: @TiffanyAndLupus This should be discussed prior to any medication! Especially in any patient in child bearing years. #lupuschat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A7A: A7A: It would help if mental health was a required discussion when anyone is diagnosed w/chronic illness. To help lessen stigma. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A7a. More treatment options. Including clinical trials. Support groups as well. Mental health too. And nutritional information. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @mommade4change: A6 Really getting to know each other's personalities. Both of us putting my health first & not needing to just be right. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @jengapuzzle: A7A Would love to know more about support groups for me & caregivers, and drug trials. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @Thrown4aLup: @Lupus_Chat Q7A. More discussions on long term treatment issues...on clinical trials and advancements. I always have to lead these talks. #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Respect is also important. Each person has to be respectful and considerate of each otherβs time and feelings. #LupusChat |
| Carly by Nature @SynceNerd_Carli @DrDavidLazar OMG that is so awesome! I wish that was something all practices had. But I'm sure it will be a while before that happens due to $ #LupusChat |
| Tiffany β· @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Asking many questions is helpful. It is important that doctors know you are an engaged patient. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A7A: A7A: Lupus is physically debilitating. We need more resources about safe low joint exercises, pain management, & physical therapy #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: El respeto tambiΓ©n es importante. Cada persona tiene que tener en cuenta el tiempo y los sentimientos de cada uno. #LupusChat |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: this! it's always in the back of my mind...like what else could these medications be doing behind the scenes #LupusChat https://t.co/qiGFXYw5zD |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: Q7B: Q7B: As a doctor what resources do you suggest those with lupus to research to better understand & learn about Lupus? #LupusChat https://t.co/AhBEHGYAX8 |
| Carly by Nature @SynceNerd_Carli A7: I would like doctors to discuss new treatment options and research surrounding Lupus. #LupusChat |
| Dan Walmer @Thrown4aLup @TiffanyAndLupus @Lupus_Chat That's what I said!!! ππΌπ #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV @harlem_peach hope is always a good thing ! #LupusChat |
| #LupusChat @Lupus_Chat A7. (@MedReuma) Websites such as the @NIH or Lupus Foundation. I always prescribe the local grouping of patients @LupusChile #LupusChat https://t.co/ATZ7Gyrh5e |
| RaquelRoschell @raquelonpurpose A7a Meds prescribed and their interactions with meds that may be prescribed by another doctor. Had that question last week #LupusChat |
| Carly by Nature @SynceNerd_Carli A7: Me gustarΓa que los mΓ©dicos discutieran nuevas opciones de tratamiento y de investigaciΓ³n alrededor del Lupus. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A7a. More treatment options. Including clinical trials. Support groups as well. Mental health too. And nutritional information. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @mommade4change: A7a Meds prescribed and their interactions with meds that may be prescribed by another doctor. Had that question last week #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A7: A7: I would like doctors to discuss new treatment options and research surrounding Lupus. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A7a Meds prescribed and their interactions with meds that may be prescribed by another doctor. Had that question last week #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A7: A7: Me gustarΓa que los mΓ©dicos discutieran nuevas opciones de tratamiento y de investigaciΓ³n alrededor del Lupus. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @Lupus_Chat A7b. Learn EVERYTHING about Lupus!!! Read articles. Talk to other rheumatologists. Get involved with support groups. #LupusChat |
| Carly by Nature @SynceNerd_Carli A7: I also think doctors should keep information about symptoms and local support groupsin their office. #LupusChat |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @CaringForLupus: A6 Communication is vital to built a relationship. Ask questions. Be proactive #LupusChat |
| Angel Leiva @reumed123 #LupusChat mis pacientes con lupus tienen mi telΓ©fono y me informan de cualquier preocupaciΓ³n, ademΓ‘s me envΓan fotografΓas (ejem: ΓΊlceras) |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @jengapuzzle: A7A Would love to know more about support groups for me & caregivers, and drug trials. #LupusChat |
| RaquelRoschell @raquelonpurpose A7a Discuss any long-term affects meds may have on organs & nervous system. #LupusChat |
| #LupusChat @Lupus_Chat That brings our amazing open & honest conversation about building relationships with our Drs with @MedReuma to an end! ππ #LupusChat https://t.co/IDGwHZ1TO5 |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A7A: A7A: It would help if mental health was a required discussion when anyone is diagnosed w/chronic illness. To help lessen stigma. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar @SynceNerd_Carli Research & new treatment options demonstrate a physicians ability to continue learning. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A7. (@MedReuma) Websites such as the @NIH or Lupus Foundation. I always prescribe the local grouping of patients @LupusChile #LupusChat https://t.co/ATZ7Gyrh5e |
| Carly by Nature @SynceNerd_Carli RT @RachaelJPeart: @harlem_peach hope is always a good thing ! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A7a. More treatment options. Including clinical trials. Support groups as well. Mental health too. And nutritional information. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @RachaelJPeart: this! it's always in the back of my mind...like what else could these medications be doing behind the scenes #LupusChat https://t.co/qiGFXYw5zD |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A7A: A7A: Lupus is physically debilitating. We need more resources about safe low joint exercises, pain management, & physical therapy #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: @TiffanyAndLupus This should be discussed prior to any medication! Especially in any patient in child bearing years. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @Fizzstah You can still go back and find the question tweets and answer them. It's all good. #LupusChat |
| Rachael (rah-shell) Jay β‘ @_RachaelTV RT @SynceNerd_Carli: A7: A7: I also think doctors should keep information about symptoms and local support groupsin their office. #LupusChat |
| sportslady1 @Sportslady1 @Lupus_Chat A2B: I trust my Rhemy more than my MANY docs,I treat him as my Primary DR. My Rhemy is really good returning calls straight away #LupusChat |
| Carly by Nature @SynceNerd_Carli A7: TambiΓ©n creo que los mΓ©dicos deben mantener informaciΓ³n sobre los sΓntomas y los grupos locales de apoyo en su oficina. #LupusChat |
| #LupusChat @Lupus_Chat RT @Sportslady1: @Lupus_Chat A2B: @Lupus_Chat A2B: I trust my Rhemy more than my MANY docs,I treat him as my Primary DR. My Rhemy is really good returning calls straight away #LupusChat |
| #LupusChat @Lupus_Chat A huge round of applause to Dr. Lilith Stange @MedReuma for joining us all the way from Chile today, we thank you! πππ #LupusChat https://t.co/3rGEiByc4J |
| Jennifer Wohlenberg π³οΈβπβπ»βΏοΈ π @jengapuzzle Thank you again for a great #LupusChat! |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: A huge round of applause to Dr. Lilith Stange @MedReuma for joining us all the way from Chile today, we thank you! πππ #LupusChat https://t.co/3rGEiByc4J |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: That brings our amazing open & honest conversation about building relationships with our Drs with @MedReuma to an end! ππ #LupusChat https://t.co/IDGwHZ1TO5 |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A7: A7: I would like doctors to discuss new treatment options and research surrounding Lupus. #LupusChat |
| #LupusChat @Lupus_Chat We're super proud of each of you for tuning in today & sharing great advice and ways to strengthen our Dr-Patient relationships. #LupusChat https://t.co/pdCv7HQ0YY |
| Angel Leiva @reumed123 RT @Lupus_Chat: A huge round of applause to Dr. Lilith Stange @MedReuma for joining us all the way from Chile today, we thank you! πππ #LupusChat https://t.co/3rGEiByc4J |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat The first 16 years,I didn't always have insurance. Many times I was lucky to see any doctor,ended up in the ER a few times. #LupusChat |
| πβ½ππΉβ Xtel Bond @Xtel007 RT @Lupus_Chat: We're super proud of each of you for tuning in today & sharing great advice and ways to strengthen our Dr-Patient relationships. #LupusChat https://t.co/pdCv7HQ0YY |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: We're super proud of each of you for tuning in today & sharing great advice and ways to strengthen our Dr-Patient relationships. #LupusChat https://t.co/pdCv7HQ0YY |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: A huge round of applause to Dr. Lilith Stange @MedReuma for joining us all the way from Chile today, we thank you! πππ #LupusChat https://t.co/3rGEiByc4J |
| Tiffany β· @TiffanyAndLupus RT @Lupus_Chat: That brings our amazing open & honest conversation about building relationships with our Drs with @MedReuma to an end! ππ #LupusChat https://t.co/IDGwHZ1TO5 |
| #LupusChat @Lupus_Chat Letβs keep the conversation going. Use the tag: #DearRheum to express how you would like to communicate better w/ your doctors. #LupusChat https://t.co/69D6RGMbx1 |
| Reyesπ @ladydee_0703 RT @Lupus_Chat: Letβs keep the conversation going. Use the tag: Letβs keep the conversation going. Use the tag: #DearRheum to express how you would like to communicate better w/ your doctors. #LupusChat https://t.co/69D6RGMbx1 |
| Ivey McClelland(she/her)β€β€β€β€ @iveyjanette_207 RT @Lupus_Chat: We're super proud of each of you for tuning in today & sharing great advice and ways to strengthen our Dr-Patient relationships. #LupusChat https://t.co/pdCv7HQ0YY |
| Reyesπ @ladydee_0703 RT @Lupus_Chat: We're super proud of each of you for tuning in today & sharing great advice and ways to strengthen our Dr-Patient relationships. #LupusChat https://t.co/pdCv7HQ0YY |
| sportslady1 @Sportslady1 @Lupus_Chat A3a: If doc not being receptive after a few visits I will change docs.There's no point of keeping a Dr that doesn't LISTEN 2 you #lupuschat |
| Dan Walmer @Thrown4aLup @Lupus_Chat @MedReuma All the way from Chee-lay! Thanks! πππ #LupusChat |
| RaquelRoschell @raquelonpurpose Lovely chatβ¨. Great insights and suggestions! Have a wonderful rest of your weekend everyoneπ. #LupusChat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Aww man. I no the feeling of being uninsured. Happened right at expensive chemo time. Smh #LupusChat |
#LupusChat content from Twitter.