#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
Profile | Tweet |
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Lynn Williams @LynnWil07599335 So true... we have to just push past the pain and keep going.. #lupuswarriors #LupusChat #lupus #lupusawreness @LupusOrg https://t.co/1zvm78GnLL | |
#LupusChat @Lupus_Chat Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
Carly by Nature @SynceNerd_Carli #LupusChat Tiiiiiiiiime! Let's goooooooooo!!! https://t.co/zOPso8wLs0 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
Tiffany ⁷ @TiffanyAndLupus Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 ✨ https://t.co/JX2RBEn1j1 | |
#LupusChat @Lupus_Chat Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. https://t.co/QMUpyh8zKL | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 It's tiiiiiime! It's #LupusChat tiiiiiimea https://t.co/0sSHUFgk4t | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
Lynn Williams @LynnWil07599335 Hello #LupusChat for Florida 💜💜 https://t.co/ixTR1qrF2q | |
Tiffany ⁷ @TiffanyAndLupus There will be an influx of tweets from me for the next hour. CO-hosting my community discussion, follow the #LupusChat stream of you’re interested https://t.co/7mGQc7B4XM | |
#LupusChat @Lupus_Chat While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. https://t.co/QMUpyh8zKL | |
Lynn Williams @LynnWil07599335 Hello #LupusChat from Florida 💜💜 https://t.co/ixTR1qrF2q | |
All Things Lupus™ @AllThingsLupus @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli @Lupus_Chat @Xtel007 I’ve found that heat bothers me as well as sun, so I limit my time outdoors to a couple of hours in the heat w/ spf 70 #LupusChat | |
#LupusChat @Lupus_Chat Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. ☀️ https://t.co/d2ZgcOSbAf | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: ⏰Set your alarms! Our 🌞Sun Safety themed #LupusChat starts today at 3pm ET. Join us for an informative discussion centered on the importance of sun protection for people living with Lupus and other Chronic Illnesses. See you there! https://t.co/kkWrVXrtaT | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
Brian Vogel @bvogel9 RT @Lupus_Chat: While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
#LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Brian Vogel @bvogel9 RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
Carly by Nature @SynceNerd_Carli #LupusChat has begun. Followers, be prepared for a bunch of tweets from me for the next hour. Feel free to add your 2 cents. https://t.co/NXwnioNyvm | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
Lynn Williams @LynnWil07599335 So true... SPF sports spray is great #LupusChat 💜💜 https://t.co/8qP3kg56lk | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: #LupusChat has begun. Followers, be prepared for a bunch of tweets from me for the next hour. Feel free to add your 2 cents. https://t.co/NXwnioNyvm | |
#LupusChat @Lupus_Chat If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/NrgQiOW2pR | |
#LupusChat @Lupus_Chat Please include the tag ~> #LupusChat in EACH of your tweets. So we can see and share them with the online #lupus community! https://t.co/tWDXvy314e | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/NrgQiOW2pR | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Please include the tag ~> #LupusChat in EACH of your tweets. So we can see and share them with the online #lupus community! https://t.co/tWDXvy314e | |
Lynn Williams @LynnWil07599335 #LupusChat SPF 50 sports spray is what I meant 😀😀 https://t.co/8qP3kg56lk | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: While most people anticipate summer weather — A sunny day can mean a long day full of distress and overwhelming life adjustments when living with Lupus or chronic illness. #LupusChat https://t.co/WhdRdcUg33 | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
#LupusChat @Lupus_Chat Mientras que la mayoría de la gente espera el clima veraniego, un día soleado puede significar un largo día lleno de angustia y ajustes abrumadores cuando se vive con Lupus o una enfermedad crónica. #LupusChat https://t.co/ZGatxKJSwE | |
#LupusChat @Lupus_Chat Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat https://t.co/3Rhfg2Dlw7 | |
#LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. | |
#LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/BmkAA9JsdI | |
#LupusChat @Lupus_Chat Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #lupus! https://t.co/iId8uSICRb | |
#LupusChat @Lupus_Chat Utilizar Q1 o A1 para responder a cada pregunta. Esto ayuda a conectar sus respuestas a cada pregunta en nuestro post-chat #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/NrgQiOW2pR | |
#LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/hMpcXdGwxi | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please include the tag ~> #LupusChat in EACH of your tweets. So we can see and share them with the online #lupus community! https://t.co/tWDXvy314e | |
#LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Mientras que la mayoría de la gente espera el clima veraniego, un día soleado puede significar un largo día lleno de angustia y ajustes abrumadores cuando se vive con Lupus o una enfermedad crónica. #LupusChat https://t.co/ZGatxKJSwE | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat https://t.co/3Rhfg2Dlw7 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/BmkAA9JsdI | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #lupus! https://t.co/iId8uSICRb | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilizar Q1 o A1 para responder a cada pregunta. Esto ayuda a conectar sus respuestas a cada pregunta en nuestro post-chat #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/hMpcXdGwxi | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. | |
RaquelRoschell @raquelonpurpose Yes its that time again! My feed will be filled with prolific and beautiful tweets from beautiful people for the next hour or so. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: Yes its that time again! My feed will be filled with prolific and beautiful tweets from beautiful people for the next hour or so. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: There will be an influx of tweets from me for the next hour. CO-hosting my community discussion, follow the #LupusChat stream of you’re interested https://t.co/7mGQc7B4XM | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: Yes its that time again! My feed will be filled with prolific and beautiful tweets from beautiful people for the next hour or so. #LupusChat | |
#LupusChat @Lupus_Chat 🎉Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what is your favorite summer memory? 🌤 https://t.co/jNm7yT7E0c | |
Brian Vogel @bvogel9 What’s the best spf to use when trying to prevent a flare from coming on?? I know the higher the number the stronger but like what’s the best one to use for everyday use? Currently i use one for my face and then like a spray for my body. I use all Neutrogena prods. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: Yes its that time again! My feed will be filled with prolific and beautiful tweets from beautiful people for the next hour or so. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: 🎉Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what is your favorite summer memory? 🌤 https://t.co/jNm7yT7E0c | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi everyone, my name is Christele, your #LupusChat co-host from Haiti. I’ve been living with Lupus for 11 years. My favorite summer memories are summers in Aux Cayes as a child . | |
Bèl ti manmie Rosie @Tinarsjn RT @Lupus_Chat: Less than 10 minutes til #LupusChat! Is everyone ready 👀 https://t.co/vklMDCTaiA | |
#LupusChat @Lupus_Chat Comencemos #LupusChat! Comparta su nombre, ubicación, conexión con lupus y su memoria favorita de verano https://t.co/iVk0RoWFuj | |
Tiffany ⁷ @TiffanyAndLupus Hello everyone! I’m Tiffany, your #LupusChat co-host from NYC. 🗽I’ve been a Lupus warrior for over eight years now & my favorite summer memory is are all magical moments in Montreal with my love @Thebeautywolf & my niece <3 https://t.co/WjKhp8gJrX | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/BmkAA9JsdI | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: 🎉Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what is your favorite summer memory? 🌤 https://t.co/jNm7yT7E0c | |
Carly by Nature @SynceNerd_Carli @bvogel9 Hey Brian! Thanks for joining us again. We'll definitely cover this with our questions today. Be sure to follow the #LupusChat stream to follow the chat format and use A1, A2, etc. when responding to questions. 💜 | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Please include the tag ~> #LupusChat in EACH of your tweets. So we can see and share them with the online #lupus community! https://t.co/tWDXvy314e | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. ☀️ https://t.co/d2ZgcOSbAf | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 https://t.co/elRuM10MNT | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: 🎉Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what is your favorite summer memory? 🌤 https://t.co/jNm7yT7E0c | |
#LupusChat @Lupus_Chat @bvogel9 This is one of our questions today Brian! So stay tuned ☺️ #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: Hi everyone, my name is Christele, your #LupusChat co-host from Haiti. I’ve been living with Lupus for 11 years. My favorite summer memories are summers in Aux Cayes as a child . | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hello everyone! I’m Tiffany, your #LupusChat co-host from NYC. 🗽I’ve been a Lupus warrior for over eight years now & my favorite summer memory is are all magical moments in Montreal with my love @Thebeautywolf & my niece <3 https://t.co/WjKhp8gJrX | |
RaquelRoschell @raquelonpurpose Hello All! Raquel from Texas. Recently went thru a twitter name change😊. Currently not letting Lupus & Inflammatory PolyArthritis get the best of me. Our nonprofit's Mom's Summer Camp last yr was epic. #LupusChat https://t.co/Elb8ck4iKD | |
All Things Lupus™ @AllThingsLupus Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: 🎉Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what is your favorite summer memory? 🌤 https://t.co/jNm7yT7E0c | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat https://t.co/3Rhfg2Dlw7 | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: Hello All! Raquel from Texas. Recently went thru a twitter name change😊. Currently not letting Lupus & Inflammatory PolyArthritis get the best of me. Our nonprofit's Mom's Summer Camp last yr was epic. #LupusChat https://t.co/Elb8ck4iKD | |
#LupusChat @Lupus_Chat RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque, DX'D with lupus and lupus nephritis 1995. Favorite summer memory? Going to the beach every day growing up in Los Angeles. Of course. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Please include the tag ~> #LupusChat in EACH of your tweets. So we can see and share them with the online #lupus community! https://t.co/tWDXvy314e | |
Tiffany ⁷ @TiffanyAndLupus RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: Hello All! Raquel from Texas. Recently went thru a twitter name change😊. Currently not letting Lupus & Inflammatory PolyArthritis get the best of me. Our nonprofit's Mom's Summer Camp last yr was epic. #LupusChat https://t.co/Elb8ck4iKD | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: 🎉Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what is your favorite summer memory? 🌤 https://t.co/jNm7yT7E0c | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Comencemos #LupusChat! Comparta su nombre, ubicación, conexión con lupus y su memoria favorita de verano https://t.co/iVk0RoWFuj | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hi everyone, my name is Christele, your #LupusChat co-host from Haiti. I’ve been living with Lupus for 11 years. My favorite summer memories are summers in Aux Cayes as a child . | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque, DX'D with lupus and lupus nephritis 1995. Favorite summer memory? Going to the beach every day growing up in Los Angeles. Of course. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: Hello everyone! I’m Tiffany, your #LupusChat co-host from NYC. 🗽I’ve been a Lupus warrior for over eight years now & my favorite summer memory is are all magical moments in Montreal with my love @Thebeautywolf & my niece <3 https://t.co/WjKhp8gJrX | |
Lynn Williams @LynnWil07599335 #LupusChat hi everyone, my name is Lynn, I live in Florida, I am a Lupus/SLE #lupuswarrior, fav beach memory.. just back from Germany, home at Hampton Beach, NH with my family, nieces/nephews, my Aunts...was a great time to all be together.summer of 1987... https://t.co/2zfSEuPqYQ | |
Dawn M Gibson @DawnMGibson RT @TiffanyAndLupus: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 ✨ https://t.co/JX2RBEn1j1 | |
Carly by Nature @SynceNerd_Carli Hey fam, Carly here in VA. Co-host of #LupusChat, patient advocate, among many other things. Officially battling lupus for 7 years but living with it much longer. My favorite summer memory would have to be putting on “shows” on my Nana’s rooftop patio with my cousins. https://t.co/kwpVzg3624 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque, DX'D with lupus and lupus nephritis 1995. Favorite summer memory? Going to the beach every day growing up in Los Angeles. Of course. #LupusChat | |
#LupusChat @Lupus_Chat Just a lil reminder to add #LupusChat to your tweets so we can all see them! 💜 https://t.co/OTFfIO5BF9 | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: #LupusChat hi everyone, my name is Lynn, I live in Florida, I am a Lupus/SLE #lupuswarrior, fav beach memory.. just back from Germany, home at Hampton Beach, NH with my family, nieces/nephews, my Aunts...was a great time to all be together.summer of 1987... https://t.co/2zfSEuPqYQ | |
#LupusChat @Lupus_Chat Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. ☀️ https://t.co/rgNeecYBRM | |
Carly by Nature @SynceNerd_Carli RT @LynnWil07599335: #LupusChat hi everyone, my name is Lynn, I live in Florida, I am a Lupus/SLE #lupuswarrior, fav beach memory.. just back from Germany, home at Hampton Beach, NH with my family, nieces/nephews, my Aunts...was a great time to all be together.summer of 1987... https://t.co/2zfSEuPqYQ | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Just a lil reminder to add #LupusChat to your tweets so we can all see them! 💜 https://t.co/OTFfIO5BF9 | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: Hey fam, Carly here in VA. Co-host of #LupusChat, patient advocate, among many other things. Officially battling lupus for 7 years but living with it much longer. My favorite summer memory would have to be putting on “shows” on my Nana’s rooftop patio with my cousins. https://t.co/kwpVzg3624 | |
Carly by Nature @SynceNerd_Carli Hola familia,Carly aquí en VA. Co-anfitrión de #LupusChat, defensor del paciente. Luchando contra el lupus por 7 años pero viviendo con eso por más tiempo. Mi recuerdo favorito de verano debería ser poner "shows" en el patio de mi Nana en el techo con mis primos. https://t.co/pzOkoA56tp | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: Hello All! Raquel from Texas. Recently went thru a twitter name change😊. Currently not letting Lupus & Inflammatory PolyArthritis get the best of me. Our nonprofit's Mom's Summer Camp last yr was epic. #LupusChat https://t.co/Elb8ck4iKD | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Hey fam, Carly here in VA. Co-host of #LupusChat, patient advocate, among many other things. Officially battling lupus for 7 years but living with it much longer. My favorite summer memory would have to be putting on “shows” on my Nana’s rooftop patio with my cousins. https://t.co/kwpVzg3624 | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Hey fam, Carly here in VA. Co-host of #LupusChat, patient advocate, among many other things. Officially battling lupus for 7 years but living with it much longer. My favorite summer memory would have to be putting on “shows” on my Nana’s rooftop patio with my cousins. https://t.co/kwpVzg3624 | |
Caring For Lupus @CaringForLupus RT @LynnWil07599335: #LupusChat hi everyone, my name is Lynn, I live in Florida, I am a Lupus/SLE #lupuswarrior, fav beach memory.. just back from Germany, home at Hampton Beach, NH with my family, nieces/nephews, my Aunts...was a great time to all be together.summer of 1987... https://t.co/2zfSEuPqYQ | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Hello everyone! I’m Tiffany, your #LupusChat co-host from NYC. 🗽I’ve been a Lupus warrior for over eight years now & my favorite summer memory is are all magical moments in Montreal with my love @Thebeautywolf & my niece <3 https://t.co/WjKhp8gJrX | |
#LupusChat @Lupus_Chat Everyone ready? Here comes Question 1! #LupusChat https://t.co/LQedU8CDqX | |
Carly by Nature @SynceNerd_Carli @LynnWil07599335 Welcome back to #LupusChat, Lynn. Thanks for joining us today. Summer Fun with the family is the best! | |
CJ Sanchez @CJ_413 RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
#LupusChat @Lupus_Chat Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
Carly by Nature @SynceNerd_Carli RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
#LupusChat @Lupus_Chat #LupusChat https://t.co/FpptzOatvX | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. Photosensitivity is sensitivity to UV rays from sunlight and other light sources. In Lupus, it causes rashes, fatigue, joint pain, etc. #LupusChat | |
Carly by Nature @SynceNerd_Carli @AllThingsLupus Welcome to #LupusChat! Thanks for joining us Helena! | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque, DX'D with lupus and lupus nephritis 1995. Favorite summer memory? Going to the beach every day growing up in Los Angeles. Of course. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I don’t have a lot of photosensitivity. What I have experienced a few times is dizziness under the hot sun. It took me a long time to recognize it as a symptom of Lupus. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Hey fam, Carly here in VA. Co-host of #LupusChat, patient advocate, among many other things. Officially battling lupus for 7 years but living with it much longer. My favorite summer memory would have to be putting on “shows” on my Nana’s rooftop patio with my cousins. https://t.co/kwpVzg3624 | |
Lynn Williams @LynnWil07599335 A1. #LupusChat I have not experienced it... https://t.co/NrxCr1ko3m | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
#LupusChat @Lupus_Chat RT @Xtel007: A1. Photosensitivity is sensitivity to UV rays from sunlight and other light sources. In Lupus, it causes rashes, fatigue, joint pain, etc. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A1. I don’t have a lot of photosensitivity. What I have experienced a few times is dizziness under the hot sun. It took me a long time to recognize it as a symptom of Lupus. #LupusChat | |
Caring For Lupus @CaringForLupus Hi...I'm Elizabeth from NJ. A #LupusChat co-host. My daughter is a Lupus warrior 💪. One of my favorite memories is Carnaval Peruano ... it happens during summer. https://t.co/nnYx4xHXLz | |
#LupusChat @Lupus_Chat Q1: Qué es fotosensibilidad y alguna vez lo has experimentado? #LupusChat https://t.co/adptSRjTCU | |
Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat Ivey! Always a pleasure having you here. Beach days are the best. Coincidentally, if it weren't for a long birthday on the beach, I wouldn't have gotten my diagnosis when I did. | |
Lynn Williams @LynnWil07599335 A1. #LupusChat it looks painful, I have been thankful to have not reacted to the sun this way.. https://t.co/NrxCr1ko3m | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: Hello All! Raquel from Texas. Recently went thru a twitter name change😊. Currently not letting Lupus & Inflammatory PolyArthritis get the best of me. Our nonprofit's Mom's Summer Camp last yr was epic. #LupusChat https://t.co/Elb8ck4iKD | |
All Things Lupus™ @AllThingsLupus A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @AllThingsLupus: A1: A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Just a lil reminder to add #LupusChat to your tweets so we can all see them! 💜 https://t.co/OTFfIO5BF9 | |
RaquelRoschell @raquelonpurpose A1 : I guess in simplest terms - sensitivity to the sun/sunlight. And yes I experience it. #LupusChat https://t.co/tCKO016kYJ | |
Carly by Nature @SynceNerd_Carli @raquelonpurpose Welcome back to #LupusChat, Raquel! Mom's summer camp sounds like a lot of adult summer fun!! | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hello everyone! I’m Tiffany, your #LupusChat co-host from NYC. 🗽I’ve been a Lupus warrior for over eight years now & my favorite summer memory is are all magical moments in Montreal with my love @Thebeautywolf & my niece <3 https://t.co/WjKhp8gJrX | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
Lynn Williams @LynnWil07599335 A1. #LupusChat yes I have also had this symptom but not the rash or blistering.. https://t.co/G62HUkWwDH | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Comencemos #LupusChat! Comparta su nombre, ubicación, conexión con lupus y su memoria favorita de verano https://t.co/iVk0RoWFuj | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Qué es fotosensibilidad y alguna vez lo has experimentado? #LupusChat https://t.co/adptSRjTCU | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi everyone, my name is Christele, your #LupusChat co-host from Haiti. I’ve been living with Lupus for 11 years. My favorite summer memories are summers in Aux Cayes as a child . | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A1. #LupusChat I have not experienced it... https://t.co/NrxCr1ko3m | |
#LupusChat @Lupus_Chat RT @CaringForLupus: Hi...I'm Elizabeth from NJ. A #LupusChat co-host. My daughter is a Lupus warrior 💪. One of my favorite memories is Carnaval Peruano ... it happens during summer. https://t.co/nnYx4xHXLz | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A1. #LupusChat it looks painful, I have been thankful to have not reacted to the sun this way.. https://t.co/NrxCr1ko3m | |
#LupusChat @Lupus_Chat RT @AllThingsLupus: A1: A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
Caring For Lupus @CaringForLupus A1. Our family is familiar with the term💡photosensitivity 🌞 because it is one of Miah's symptoms due to Lupus. #Lupuschat | |
RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: @raquelonpurpose Welcome back to #LupusChat, Raquel! Mom's summer camp sounds like a lot of adult summer fun!! | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: A1 : A1 : I guess in simplest terms - sensitivity to the sun/sunlight. And yes I experience it. #LupusChat https://t.co/tCKO016kYJ | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hi...I'm Elizabeth from NJ. A #LupusChat co-host. My daughter is a Lupus warrior 💪. One of my favorite memories is Carnaval Peruano ... it happens during summer. https://t.co/nnYx4xHXLz | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A1. #LupusChat yes I have also had this symptom but not the rash or blistering.. https://t.co/G62HUkWwDH | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Qué es fotosensibilidad y alguna vez lo has experimentado? #LupusChat https://t.co/adptSRjTCU | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: A1 : A1 : I guess in simplest terms - sensitivity to the sun/sunlight. And yes I experience it. #LupusChat https://t.co/tCKO016kYJ | |
Caring For Lupus @CaringForLupus RT @AllThingsLupus: A1: A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q1: Q1: Qué es fotosensibilidad y alguna vez lo has experimentado? #LupusChat https://t.co/adptSRjTCU | |
Lynn Williams @LynnWil07599335 A1. #LupusChat yes, the eye sensitivity is hard after a while.. https://t.co/MTeEHvgksN | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Just got off work. Going home to LA in 2 weeks to handle family stuff. Will definitely hit the beach in Santa Monica and Long Beach. Lupus and sun do not mix though. Even with SPF 110,I turn red. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A1: Photosensitivity can happen to about 2/3 of those living with lupus. Skin exposure to UV rays is often a common trigger for increased disease activity (flare) of both cutaneous lupus and systemic lupus. #LupusChat | |
Caring For Lupus @CaringForLupus A1. Nuestra familia está familiarizada con el término 💡 "fotosensibilidad" 🌞 porque es uno de los síntomas de Miah debido a Lupus. #Lupuschat https://t.co/0uLk9NGWxq | |
Caring For Lupus @CaringForLupus A1. As per the Lupus Foundation of America, photosensitivity is abnormal light sensitivity, it is very complex and a major symptom of lupus #LupusChat | |
Carly by Nature @SynceNerd_Carli @chronicutie Welcome to #LupusChat Maureen. We appreciate you joining us! Yes! Summer road trips are the best. | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1. Our family is familiar with the term💡photosensitivity 🌞 because it is one of Miah's symptoms due to Lupus. #Lupuschat | |
Caring For Lupus @CaringForLupus A1. Según la Lupus Foundation of America, la fotosensibilidad es una sensibilidad abnormal a la luz, es muy compleja y un síntoma principal del lupus. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: Photosensitivity can happen to about 2/3 of those living with lupus. Skin exposure to UV rays is often a common trigger for increased disease activity (flare) of both cutaneous lupus and systemic lupus. #LupusChat | |
Caring For Lupus @CaringForLupus A1 Two-thirds of people with lupus have increased sensitivity to ultraviolet rays, either from sunlight or from artificial inside light, such as fluorescent light -- or both. #LupusChat https://t.co/uTxAS5qGSV | |
Tiffany ⁷ @TiffanyAndLupus A1: (image trigger warning) Here’s an image from @ACRheum on what photosensitivity can look like when it causes skin rashes. #LupusChat https://t.co/gGsE0vERGx | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: Photosensitivity can happen to about 2/3 of those living with lupus. Skin exposure to UV rays is often a common trigger for increased disease activity (flare) of both cutaneous lupus and systemic lupus. #LupusChat | |
Caring For Lupus @CaringForLupus A1 Dos tercios de las personas con Lupus tienen una mayor sensibilidad a los rayos ultravioleta, ya sea por la luz solar o por la luz interior artificial, como la luz fluorescente, o ambas. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1. Según la Lupus Foundation of America, la fotosensibilidad es una sensibilidad abnormal a la luz, es muy compleja y un síntoma principal del lupus. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1. Our family is familiar with the term💡photosensitivity 🌞 because it is one of Miah's symptoms due to Lupus. #Lupuschat | |
Caring For Lupus @CaringForLupus A1. Beyond skin rashes that can develop, exposure to the sun can cause those living with lupus to experience increased disease activity with symptoms such as joint pains, weakness, fatigue and fever #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: A1 : A1 : I guess in simplest terms - sensitivity to the sun/sunlight. And yes I experience it. #LupusChat https://t.co/tCKO016kYJ | |
Tiffany ⁷ @TiffanyAndLupus RT @LynnWil07599335: A1. #LupusChat yes I have also had this symptom but not the rash or blistering.. https://t.co/G62HUkWwDH | |
Caring For Lupus @CaringForLupus A1. Más allá de las erupciones cutáneas que pueden desarrollarse, la exposición al sol puede causar que las personas que viven con lupus experimenten una mayor actividad de la enfermedad con síntomas como dolores en las articulaciones, debilidad, fatiga y fiebre. #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus RT @AllThingsLupus: A1: A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
Tiffany ⁷ @TiffanyAndLupus RT @LynnWil07599335: A1. #LupusChat it looks painful, I have been thankful to have not reacted to the sun this way.. https://t.co/NrxCr1ko3m | |
Brian Vogel @bvogel9 A1. I experience a lot of photosensitivity especially when going outside from a dark place. I’m usually pretty blind for a few minutes until my eyes adjust. #LupusChat https://t.co/gFQPoWFPLV | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: (image trigger warning) Here’s an image from @ACRheum on what photosensitivity can look like when it causes skin rashes. #LupusChat https://t.co/gGsE0vERGx | |
Lynn Williams @LynnWil07599335 A1. #LupusChat I find that having good sunglasses from the eye doctor and a good hat helps with the eye sensitivity... and great sunscreen.. https://t.co/NrxCr1ko3m | |
RaquelRoschell @raquelonpurpose RT @LynnWil07599335: A1. #LupusChat yes I have also had this symptom but not the rash or blistering.. https://t.co/G62HUkWwDH | |
#LupusChat @Lupus_Chat It seems many of us deal with photosensitivity which brings about many complications. Let’s discuss these more for Question 2. #LupusChat https://t.co/oghn5YFWzW | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: A1 : A1 : I guess in simplest terms - sensitivity to the sun/sunlight. And yes I experience it. #LupusChat https://t.co/tCKO016kYJ | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @bvogel9: A1. I experience a lot of photosensitivity especially when going outside from a dark place. I’m usually pretty blind for a few minutes until my eyes adjust. #LupusChat https://t.co/gFQPoWFPLV | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A1 Two-thirds of people with lupus have increased sensitivity to ultraviolet rays, either from sunlight or from artificial inside light, such as fluorescent light -- or both. #LupusChat https://t.co/uTxAS5qGSV | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: It seems many of us deal with photosensitivity which brings about many complications. Let’s discuss these more for Question 2. #LupusChat https://t.co/oghn5YFWzW | |
Caring For Lupus @CaringForLupus RT @Xtel007: A1. I don’t have a lot of photosensitivity. What I have experienced a few times is dizziness under the hot sun. It took me a long time to recognize it as a symptom of Lupus. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: What is photosensitivity and have you ever experienced it? #LupusChat https://t.co/OXjCaA8rIb | |
Brian Vogel @bvogel9 RT @CaringForLupus: A1 Two-thirds of people with lupus have increased sensitivity to ultraviolet rays, either from sunlight or from artificial inside light, such as fluorescent light -- or both. #LupusChat https://t.co/uTxAS5qGSV | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Hola familia,Carly aquí en VA. Co-anfitrión de #LupusChat, defensor del paciente. Luchando contra el lupus por 7 años pero viviendo con eso por más tiempo. Mi recuerdo favorito de verano debería ser poner "shows" en el patio de mi Nana en el techo con mis primos. https://t.co/pzOkoA56tp | |
Caring For Lupus @CaringForLupus RT @bvogel9: A1. I experience a lot of photosensitivity especially when going outside from a dark place. I’m usually pretty blind for a few minutes until my eyes adjust. #LupusChat https://t.co/gFQPoWFPLV | |
Brian Vogel @bvogel9 RT @CaringForLupus: A1. Beyond skin rashes that can develop, exposure to the sun can cause those living with lupus to experience increased disease activity with symptoms such as joint pains, weakness, fatigue and fever #Lupuschat | |
#LupusChat @Lupus_Chat Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. Our family is familiar with the term💡photosensitivity 🌞 because it is one of Miah's symptoms due to Lupus. #Lupuschat | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A1. #LupusChat yes, the eye sensitivity is hard after a while.. https://t.co/MTeEHvgksN | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. Más allá de las erupciones cutáneas que pueden desarrollarse, la exposición al sol puede causar que las personas que viven con lupus experimenten una mayor actividad de la enfermedad con síntomas como dolores en las articulaciones, debilidad, fatiga y fiebre. #Lupuschat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: Photosensitivity can happen to about 2/3 of those living with lupus. Skin exposure to UV rays is often a common trigger for increased disease activity (flare) of both cutaneous lupus and systemic lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. Beyond skin rashes that can develop, exposure to the sun can cause those living with lupus to experience increased disease activity with symptoms such as joint pains, weakness, fatigue and fever #Lupuschat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. Nuestra familia está familiarizada con el término 💡 "fotosensibilidad" 🌞 porque es uno de los síntomas de Miah debido a Lupus. #Lupuschat https://t.co/0uLk9NGWxq | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Dos tercios de las personas con Lupus tienen una mayor sensibilidad a los rayos ultravioleta, ya sea por la luz solar o por la luz interior artificial, como la luz fluorescente, o ambas. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. As per the Lupus Foundation of America, photosensitivity is abnormal light sensitivity, it is very complex and a major symptom of lupus #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1 Two-thirds of people with lupus have increased sensitivity to ultraviolet rays, either from sunlight or from artificial inside light, such as fluorescent light -- or both. #LupusChat https://t.co/uTxAS5qGSV | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. Según la Lupus Foundation of America, la fotosensibilidad es una sensibilidad abnormal a la luz, es muy compleja y un síntoma principal del lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: (image trigger warning) Here’s an image from @ACRheum on what photosensitivity can look like when it causes skin rashes. #LupusChat https://t.co/gGsE0vERGx | |
#LupusChat @Lupus_Chat RT @bvogel9: A1. I experience a lot of photosensitivity especially when going outside from a dark place. I’m usually pretty blind for a few minutes until my eyes adjust. #LupusChat https://t.co/gFQPoWFPLV | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A1. #LupusChat I find that having good sunglasses from the eye doctor and a good hat helps with the eye sensitivity... and great sunscreen.. https://t.co/NrxCr1ko3m | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: It seems many of us deal with photosensitivity which brings about many complications. Let’s discuss these more for Question 2. #LupusChat https://t.co/oghn5YFWzW | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q2: Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Hi...I'm Elizabeth from NJ. A #LupusChat co-host. My daughter is a Lupus warrior 💪. One of my favorite memories is Carnaval Peruano ... it happens during summer. https://t.co/nnYx4xHXLz | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: Photosensitivity can happen to about 2/3 of those living with lupus. Skin exposure to UV rays is often a common trigger for increased disease activity (flare) of both cutaneous lupus and systemic lupus. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. UV rays that can still affect us on cloudy days or in the shade. Also, watch out for UV rays that can catch us indoors, via windows or fluorescent lighting. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Two-thirds of people with lupus have increased sensitivity to ultraviolet rays, either from sunlight or from artificial inside light, such as fluorescent light -- or both. #LupusChat https://t.co/uTxAS5qGSV | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. People with Lupus are already prone to Vitamin D deficiency, and on top of that must avoid the sun. Look for other sources of vitamin D (supplements and others) #LupusChat | |
#LupusChat @Lupus_Chat Q2: Qué factores de fotosensibilidad deben tener en cuenta las personas que viven con Lupus y otras enfermedades crónicas? #LupusChat https://t.co/99HQw9UIwM | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Just a lil reminder to add #LupusChat to your tweets so we can all see them! 💜 https://t.co/OTFfIO5BF9 | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It seems many of us deal with photosensitivity which brings about many complications. Let’s discuss these more for Question 2. #LupusChat https://t.co/oghn5YFWzW | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Simply put, photosensitivity is an aversion to the sun. Exposure can cause health concerns for people living with Lupus. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @LynnWil07599335: A1. #LupusChat I find that having good sunglasses from the eye doctor and a good hat helps with the eye sensitivity... and great sunscreen.. https://t.co/NrxCr1ko3m | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli @Xtel007 A1. It's the skin having a negative reaction to sunlight and UV rays. I definitely have problems in sunlight. I rarely go to the beach when I'm home in LA because I turn red when I tan,even with SPF 110 slathered on my body. And I flare afterwards. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @bvogel9: A1. I experience a lot of photosensitivity especially when going outside from a dark place. I’m usually pretty blind for a few minutes until my eyes adjust. #LupusChat https://t.co/gFQPoWFPLV | |
Carly by Nature @SynceNerd_Carli A1: En pocas palabras, la fotosensibilidad es una aversión al sol. La exposición puede causar problemas de salud a las personas que viven con Lupus. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @LynnWil07599335: A1. #LupusChat I find that having good sunglasses from the eye doctor and a good hat helps with the eye sensitivity... and great sunscreen.. https://t.co/NrxCr1ko3m | |
Butterfly warrior @Hopenfaith23 RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: Qué factores de fotosensibilidad deben tener en cuenta las personas que viven con Lupus y otras enfermedades crónicas? #LupusChat https://t.co/99HQw9UIwM | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
Debra Carroll @todebra @Lupus_Chat A1: that sun exposure can trigger other seemingly unrelated #lupus symptoms. #LupusChat | |
Caring For Lupus @CaringForLupus A2. Photosensitivity to the ultraviolet (UV) rays can be from sunlight and other light sources, such as indoor fluorescent light. #LupusChat https://t.co/nFjhytDLNT | |
Caring For Lupus @CaringForLupus A2. La fotosensibilidad a los rayos ultravioleta (UV) puede deberse a la luz solar y a otras fuentes de luz, como la luz fluorescente de interiores. #Lupuschat https://t.co/a2UjBu1hgE | |
TP1274 @mspeete3 RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Caring For Lupus @CaringForLupus A2. Photosensitive people may develop a skin rash, known as a butterfly rash, which appears over the nose and cheeks or a red red, scaly patch rash #Lupuschat | |
Caring For Lupus @CaringForLupus A2 Las personas fotosensibles pueden desarrollar un sarpullido en la piel, conocido como sarpullido mariposa, que aparece en la nariz y las mejillas o un sarpullido rojo enrojecido y escamoso #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus A1: I experience photosensitivity when I do not protect my skin from the sun. I once forgot sunscreen & my umbrella during a lupus walk years ago and developed a horrible itchy red inflamed discoid rash on my face 😭 #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: This means more than skin issues too. Overexposure to sun can also cause joint pain and fatigue for people living with Lupus and Chronic Illnesses. #LupusChat | |
Brian Vogel @bvogel9 A2. Personally i try to where some type of hat when I’m outside whether just going for a walk or doing something physical like a sport. It can cause myself to become extremely fatigued and get a rash on my face or elsewhere on my body. #LupusChat https://t.co/DbZeRhpfzx | |
Butterfly warrior @Hopenfaith23 RT @TiffanyAndLupus: Welcome to #LupusChat! Today we’ll share our concerns and protective tips centered around living comfortably in the sunshine. 🌤 ✨ https://t.co/JX2RBEn1j1 | |
Caring For Lupus @CaringForLupus RT @Xtel007: A2. UV rays that can still affect us on cloudy days or in the shade. Also, watch out for UV rays that can catch us indoors, via windows or fluorescent lighting. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Esto significa más problemas que la piel también. La sobreexposición al sol también puede causar dolor en las articulaciones y fatiga para las personas que viven con Lupus y enfermedades crónicas. #LupusChat | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Just a lil reminder to add #LupusChat to your tweets so we can all see them! 💜 https://t.co/OTFfIO5BF9 | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2. Photosensitivity to the ultraviolet (UV) rays can be from sunlight and other light sources, such as indoor fluorescent light. #LupusChat https://t.co/nFjhytDLNT | |
Tiffany ⁷ @TiffanyAndLupus RT @todebra: @Lupus_Chat A1: @Lupus_Chat A1: that sun exposure can trigger other seemingly unrelated #lupus symptoms. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. People with Lupus are already prone to Vitamin D deficiency, and on top of that must avoid the sun. Look for other sources of vitamin D (supplements and others) #LupusChat | |
RaquelRoschell @raquelonpurpose @TiffanyAndLupus @Lupus_Chat @ACRheum Not exactly what it looks like on me😃😃. Thank you for the information. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Simply put, photosensitivity is an aversion to the sun. Exposure can cause health concerns for people living with Lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli @Xtel007 A1. It's the skin having a negative reaction to sunlight and UV rays. I definitely have problems in sunlight. I rarely go to the beach when I'm home in LA because I turn red when I tan,even with SPF 110 slathered on my body. And I flare afterwards. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @bvogel9: A2. Personally i try to where some type of hat when I’m outside whether just going for a walk or doing something physical like a sport. It can cause myself to become extremely fatigued and get a rash on my face or elsewhere on my body. #LupusChat https://t.co/DbZeRhpfzx | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. UV rays that can still affect us on cloudy days or in the shade. Also, watch out for UV rays that can catch us indoors, via windows or fluorescent lighting. #LupusChat | |
Lynn Williams @LynnWil07599335 A2. #LupusChat I know for me personally, I did not know I had lupus, 10/2008 at Disney 3 days straight in sun, wore myself out...3 days later had mini stroke, diag w/lupus/sle.. the 3 days in sun made it worse... watch for flare ups brought on by sun.. https://t.co/vEMs8tqqxe | |
Butterfly warrior @Hopenfaith23 RT @CaringForLupus: Hi...I'm Elizabeth from NJ. A #LupusChat co-host. My daughter is a Lupus warrior 💪. One of my favorite memories is Carnaval Peruano ... it happens during summer. https://t.co/nnYx4xHXLz | |
#LupusChat @Lupus_Chat RT @todebra: @Lupus_Chat A1: @Lupus_Chat A1: that sun exposure can trigger other seemingly unrelated #lupus symptoms. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. Sunburn. Breakouts. Fatigue. Maybe heatstroke. Even if the sky is cloudy(or in Los Angeles,the #JuneGloom),the UV rays can still penetrate through,and cause problems. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2. Photosensitivity to the ultraviolet (UV) rays can be from sunlight and other light sources, such as indoor fluorescent light. #LupusChat https://t.co/nFjhytDLNT | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2. Photosensitive people may develop a skin rash, known as a butterfly rash, which appears over the nose and cheeks or a red red, scaly patch rash #Lupuschat | |
RaquelRoschell @raquelonpurpose RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I experience photosensitivity when I do not protect my skin from the sun. I once forgot sunscreen & my umbrella during a lupus walk years ago and developed a horrible itchy red inflamed discoid rash on my face 😭 #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A1: A1: Simply put, photosensitivity is an aversion to the sun. Exposure can cause health concerns for people living with Lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: This means more than skin issues too. Overexposure to sun can also cause joint pain and fatigue for people living with Lupus and Chronic Illnesses. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A2. People with Lupus are already prone to Vitamin D deficiency, and on top of that must avoid the sun. Look for other sources of vitamin D (supplements and others) #LupusChat | |
#LupusChat @Lupus_Chat RT @bvogel9: A2. Personally i try to where some type of hat when I’m outside whether just going for a walk or doing something physical like a sport. It can cause myself to become extremely fatigued and get a rash on my face or elsewhere on my body. #LupusChat https://t.co/DbZeRhpfzx | |
Caring For Lupus @CaringForLupus RT @bvogel9: A2. Personally i try to where some type of hat when I’m outside whether just going for a walk or doing something physical like a sport. It can cause myself to become extremely fatigued and get a rash on my face or elsewhere on my body. #LupusChat https://t.co/DbZeRhpfzx | |
Brian Vogel @bvogel9 RT @SynceNerd_Carli: A1: A1: Simply put, photosensitivity is an aversion to the sun. Exposure can cause health concerns for people living with Lupus. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: I experience photosensitivity when I do not protect my skin from the sun. I once forgot sunscreen & my umbrella during a lupus walk years ago and developed a horrible itchy red inflamed discoid rash on my face 😭 #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: I actually received my diagnosis after spending a birthday at the beach. I returned home with butterfly rash that lasted months and joint pain and fatigue. IT prompted me to look more into it when the rash fade. #LupusChat | |
Brian Vogel @bvogel9 RT @Xtel007: A2. People with Lupus are already prone to Vitamin D deficiency, and on top of that must avoid the sun. Look for other sources of vitamin D (supplements and others) #LupusChat | |
Brian Vogel @bvogel9 RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
Carly by Nature @SynceNerd_Carli A1: Recibí mi diagnóstico después de pasar un cumpleaños en la playa. Regresé a casa con sarpullido de mariposa que duró meses y dolor en las articulaciones y fatiga. IT me impulsó a buscar más cuando el sarpullido se desvaneció. #LupusChat | |
All Things Lupus™ @AllThingsLupus Very true which is why I try to limit time in the sun #LupusChat https://t.co/bB54lc2Vtm | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A2. Photosensitive people may develop a skin rash, known as a butterfly rash, which appears over the nose and cheeks or a red red, scaly patch rash #Lupuschat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: Qué factores de fotosensibilidad deben tener en cuenta las personas que viven con Lupus y otras enfermedades crónicas? #LupusChat https://t.co/99HQw9UIwM | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2. Photosensitivity to the ultraviolet (UV) rays can be from sunlight and other light sources, such as indoor fluorescent light. #LupusChat https://t.co/nFjhytDLNT | |
Carly by Nature @SynceNerd_Carli RT @todebra: @Lupus_Chat A1: @Lupus_Chat A1: that sun exposure can trigger other seemingly unrelated #lupus symptoms. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli @Xtel007 A1. It's the skin having a negative reaction to sunlight and UV rays. I definitely have problems in sunlight. I rarely go to the beach when I'm home in LA because I turn red when I tan,even with SPF 110 slathered on my body. And I flare afterwards. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. People with Lupus are already prone to Vitamin D deficiency, and on top of that must avoid the sun. Look for other sources of vitamin D (supplements and others) #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. UV rays that can still affect us on cloudy days or in the shade. Also, watch out for UV rays that can catch us indoors, via windows or fluorescent lighting. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Recibí mi diagnóstico después de pasar un cumpleaños en la playa. Regresé a casa con sarpullido de mariposa que duró meses y dolor en las articulaciones y fatiga. IT me impulsó a buscar más cuando el sarpullido se desvaneció. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @bvogel9: A2. Personally i try to where some type of hat when I’m outside whether just going for a walk or doing something physical like a sport. It can cause myself to become extremely fatigued and get a rash on my face or elsewhere on my body. #LupusChat https://t.co/DbZeRhpfzx | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A1: A1: This means more than skin issues too. Overexposure to sun can also cause joint pain and fatigue for people living with Lupus and Chronic Illnesses. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: I actually received my diagnosis after spending a birthday at the beach. I returned home with butterfly rash that lasted months and joint pain and fatigue. IT prompted me to look more into it when the rash fade. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus @raquelonpurpose @Lupus_Chat @ACRheum Agreed. There is a major need for diveristy of malar rash, discoid, and symptoms image references in other ethnicities besides Caucasian for lupus. Our malar rashes aren’t “red” because of our deeper melanin! #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: What factors of photosensitivity should people living with Lupus, and other Chronic Illnesses, be aware of? #LupusChat ☀️ https://t.co/8zEx0q0dJc | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. Sunburn. Breakouts. Fatigue. Maybe heatstroke. Even if the sky is cloudy(or in Los Angeles,the #JuneGloom),the UV rays can still penetrate through,and cause problems. #LupusChat | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A2. #LupusChat I know for me personally, I did not know I had lupus, 10/2008 at Disney 3 days straight in sun, wore myself out...3 days later had mini stroke, diag w/lupus/sle.. the 3 days in sun made it worse... watch for flare ups brought on by sun.. https://t.co/vEMs8tqqxe | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: I actually received my diagnosis after spending a birthday at the beach. I returned home with butterfly rash that lasted months and joint pain and fatigue. IT prompted me to look more into it when the rash fade. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: @raquelonpurpose @Lupus_Chat @ACRheum Agreed. There is a major need for diveristy of malar rash, discoid, and symptoms image references in other ethnicities besides Caucasian for lupus. Our malar rashes aren’t “red” because of our deeper melanin! #LupusChat | |
Lynn Williams @LynnWil07599335 A2. #LupusChat I use an umbrella even on my walks during my lunch breaks at work... if not I have a headache and become very tired.. | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2 Las personas fotosensibles pueden desarrollar un sarpullido en la piel, conocido como sarpullido mariposa, que aparece en la nariz y las mejillas o un sarpullido rojo enrojecido y escamoso #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: I actually received my diagnosis after spending a birthday at the beach. I returned home with butterfly rash that lasted months and joint pain and fatigue. IT prompted me to look more into it when the rash fade. #LupusChat | |
RaquelRoschell @raquelonpurpose A2. I get rashes, dizziness..a weird feeling that is hard to describe. Lethargy is another issue. Recently, I have felt like the sun is a thousand spotlights on the top of my head. #LupusChat https://t.co/jTuwCW39VT | |
Tiffany ⁷ @TiffanyAndLupus RT @LynnWil07599335: A2. #LupusChat I know for me personally, I did not know I had lupus, 10/2008 at Disney 3 days straight in sun, wore myself out...3 days later had mini stroke, diag w/lupus/sle.. the 3 days in sun made it worse... watch for flare ups brought on by sun.. https://t.co/vEMs8tqqxe | |
Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A3. Sunburn. Breakouts. Fatigue. Maybe heatstroke. Even if the sky is cloudy(or in Los Angeles,the #JuneGloom),the UV rays can still penetrate through,and cause problems. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: This means more than skin issues too. Overexposure to sun can also cause joint pain and fatigue for people living with Lupus and Chronic Illnesses. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
#LupusChat @Lupus_Chat As Lupus patients, we have to take special consideration with the products we buy. We’ll explore that more, next! #LupusChat https://t.co/SKYUeJ3p97 | |
Carly by Nature @SynceNerd_Carli A2: As I mentioned in Question 1, Overexposure to sun can cause other issues with Lupus. 30 minutes in the sun (even with sunscreen) can often lead to days of pain and fatigue for me. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2. La fotosensibilidad a los rayos ultravioleta (UV) puede deberse a la luz solar y a otras fuentes de luz, como la luz fluorescente de interiores. #Lupuschat https://t.co/a2UjBu1hgE | |
Carly by Nature @SynceNerd_Carli A2: Como mencioné en la Pregunta 1, la sobreexposición al sol puede causar otros problemas con el lupus. 30 minutos al sol (incluso con protector solar) a menudo pueden provocar días de dolor y fatiga para mí. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2: A2: As I mentioned in Question 1, Overexposure to sun can cause other issues with Lupus. 30 minutes in the sun (even with sunscreen) can often lead to days of pain and fatigue for me. #LupusChat | |
#LupusChat @Lupus_Chat Q3: What is the recommended level of sunscreen/sun protection for people living with Lupus? #LupusChat ☀️ https://t.co/59FOQglrAc | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat *A2* #oops #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @AllThingsLupus: A1: A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: What is the recommended level of sunscreen/sun protection for people living with Lupus? #LupusChat ☀️ https://t.co/59FOQglrAc | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A1: A1: I experience photosensitivity when I do not protect my skin from the sun. I once forgot sunscreen & my umbrella during a lupus walk years ago and developed a horrible itchy red inflamed discoid rash on my face 😭 #LupusChat | |
#LupusChat @Lupus_Chat Q3: Cuál es el nivel recomendado de protección solar / protección solar para las personas que viven con Lupus? #LupusChat https://t.co/JJOy6hRFZ9 | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: What is the recommended level of sunscreen/sun protection for people living with Lupus? #LupusChat ☀️ https://t.co/59FOQglrAc | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Cuál es el nivel recomendado de protección solar / protección solar para las personas que viven con Lupus? #LupusChat https://t.co/JJOy6hRFZ9 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. The recommended level of sunscreen for people with Lupus is SPF30 or higher, reapplied every 2hrs or so. #LupusChat | |
Lynn Williams @LynnWil07599335 A2. #LupusChat exactly..that is what I get when I spend too much time in the car here in florida driving, I get the butterfly rash too..even with the dark tinted windows.. https://t.co/W8czibbKLC | |
RaquelRoschell @raquelonpurpose @TiffanyAndLupus @Lupus_Chat @ACRheum Yes! I was just about to tweet : representation matters. How else will we know what could be going on with us. Don't get me started. Topic for another time. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. It’s also important to avoid sun exposure during the hottest parts of the day., and/or wear protective clothing. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @todebra: @Lupus_Chat A1: @Lupus_Chat A1: that sun exposure can trigger other seemingly unrelated #lupus symptoms. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A2: A2: As I mentioned in Question 1, Overexposure to sun can cause other issues with Lupus. 30 minutes in the sun (even with sunscreen) can often lead to days of pain and fatigue for me. #LupusChat | |
Caring For Lupus @CaringForLupus A3. Miah's dermatologist recommended these ones for her. #Lupuschat https://t.co/x5tmtb75DU | |
Carly by Nature @SynceNerd_Carli A2: It is important to understand that photosensitivity is not limited to outdoor sun rays. UV rays can harm us indoors. For those of us who work, it is important to ensure the lighting isn't harmful. Speak with your employer about accomodations #LupusChat | |
Brian Vogel @bvogel9 A2. I think most of my sunscreen is SPF 70 or higher. What is best recommended? #LupusChat https://t.co/1C1tfqjPzf | |
Tiffany ⁷ @TiffanyAndLupus A2: Photosensitivity can manifest in different ways. It can also happen indoors from fluorescent lighting, your computer and phone screens. Wearing sunscreen indoors is also a necessity for those of us with lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: A2. I get rashes, dizziness..a weird feeling that is hard to describe. Lethargy is another issue. Recently, I have felt like the sun is a thousand spotlights on the top of my head. #LupusChat https://t.co/jTuwCW39VT | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A2. #LupusChat I use an umbrella even on my walks during my lunch breaks at work... if not I have a headache and become very tired.. | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: As Lupus patients, we have to take special consideration with the products we buy. We’ll explore that more, next! #LupusChat https://t.co/SKYUeJ3p97 | |
Caring For Lupus @CaringForLupus RT @Xtel007: A3. The recommended level of sunscreen for people with Lupus is SPF30 or higher, reapplied every 2hrs or so. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: What is the recommended level of sunscreen/sun protection for people living with Lupus? #LupusChat ☀️ https://t.co/59FOQglrAc | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: As I mentioned in Question 1, Overexposure to sun can cause other issues with Lupus. 30 minutes in the sun (even with sunscreen) can often lead to days of pain and fatigue for me. #LupusChat | |
Carly by Nature @SynceNerd_Carli A2: es importante entender que la fotosensibilidad no se limita a los rayos del sol al aire libre. Los rayos UV pueden dañarnos en el interior. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: As Lupus patients, we have to take special consideration with the products we buy. We’ll explore that more, next! #LupusChat https://t.co/SKYUeJ3p97 | |
Carly by Nature @SynceNerd_Carli Para aquellos de nosotros que trabajamos, es importante garantizar que la iluminación no sea dañina. Habla con tu empleador sobre los alojamientos #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: What is the recommended level of sunscreen/sun protection for people living with Lupus? #LupusChat ☀️ https://t.co/59FOQglrAc | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: Photosensitivity can manifest in different ways. It can also happen indoors from fluorescent lighting, your computer and phone screens. Wearing sunscreen indoors is also a necessity for those of us with lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A3. Miah's dermatologist recommended these ones for her. #Lupuschat https://t.co/x5tmtb75DU | |
#LupusChat @Lupus_Chat RT @Xtel007: A2. It’s also important to avoid sun exposure during the hottest parts of the day., and/or wear protective clothing. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @bvogel9: A2. I think most of my sunscreen is SPF 70 or higher. What is best recommended? #LupusChat https://t.co/1C1tfqjPzf | |
#LupusChat @Lupus_Chat RT @Xtel007: A3. The recommended level of sunscreen for people with Lupus is SPF30 or higher, reapplied every 2hrs or so. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A2. People with photosensitivity can develop redness or rashes after exposure to UV rays, as well as non-visible signs, like fatigue, dizziness, joint pain. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: It is important to understand that photosensitivity is not limited to outdoor sun rays. UV rays can harm us indoors. For those of us who work, it is important to ensure the lighting isn't harmful. Speak with your employer about accomodations #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: Photosensitivity can manifest in different ways. It can also happen indoors from fluorescent lighting, your computer and phone screens. Wearing sunscreen indoors is also a necessity for those of us with lupus. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A2: A2: It is important to understand that photosensitivity is not limited to outdoor sun rays. UV rays can harm us indoors. For those of us who work, it is important to ensure the lighting isn't harmful. Speak with your employer about accomodations #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: What is the recommended level of sunscreen/sun protection for people living with Lupus? #LupusChat ☀️ https://t.co/59FOQglrAc | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: Photosensitivity can manifest in different ways. It can also happen indoors from fluorescent lighting, your computer and phone screens. Wearing sunscreen indoors is also a necessity for those of us with lupus. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: Para aquellos de nosotros que trabajamos, es importante garantizar que la iluminación no sea dañina. Habla con tu empleador sobre los alojamientos #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A2: Exposure to the sun, UV rays, and harmful indoor lighting can cause skin or discoid rashes, induce a lupus flare, increase fatigue, and even cause painful headaches or migraines. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: es importante entender que la fotosensibilidad no se limita a los rayos del sol al aire libre. Los rayos UV pueden dañarnos en el interior. #LupusChat | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A2. #LupusChat exactly..that is what I get when I spend too much time in the car here in florida driving, I get the butterfly rash too..even with the dark tinted windows.. https://t.co/W8czibbKLC | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat @ACRheum Yes! I was just about to tweet : @TiffanyAndLupus @Lupus_Chat @ACRheum Yes! I was just about to tweet : representation matters. How else will we know what could be going on with us. Don't get me started. Topic for another time. #LupusChat | |
#LupusChat @Lupus_Chat RT @bvogel9: A2. I think most of my sunscreen is SPF 70 or higher. What is best recommended? #LupusChat https://t.co/1C1tfqjPzf | |
Lynn Williams @LynnWil07599335 A3. #LupusChat the recommended sunscreen for those living with lupus is SPF 30 or higher. https://t.co/aa49fwJayT | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: Exposure to the sun, UV rays, and harmful indoor lighting can cause skin or discoid rashes, induce a lupus flare, increase fatigue, and even cause painful headaches or migraines. #LupusChat | |
Carly by Nature @SynceNerd_Carli @bvogel9 A3: I typically use 100 SPF but will go as low as 50. Anything lower requires more frequent applications during the day which can be annoying especially if you're going in the water (Beach, pool, or rain), etc. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3. Miah's dermatologist recommended these ones for her. #Lupuschat https://t.co/x5tmtb75DU | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. It’s also important to avoid sun exposure during the hottest parts of the day., and/or wear protective clothing. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. SPF 55 and higher. I use SPF 110,but still turn beet red in the sun. Especially here in Albuquerque at 5000 feet-plus elevation. Or in Santa Fe at 7000 feet. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @TiffanyAndLupus @Lupus_Chat @ACRheum Yes! I was just about to tweet : @TiffanyAndLupus @Lupus_Chat @ACRheum Yes! I was just about to tweet : representation matters. How else will we know what could be going on with us. Don't get me started. Topic for another time. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: @raquelonpurpose @Lupus_Chat @ACRheum Agreed. There is a major need for diveristy of malar rash, discoid, and symptoms image references in other ethnicities besides Caucasian for lupus. Our malar rashes aren’t “red” because of our deeper melanin! #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: @bvogel9 A3: @bvogel9 A3: I typically use 100 SPF but will go as low as 50. Anything lower requires more frequent applications during the day which can be annoying especially if you're going in the water (Beach, pool, or rain), etc. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: (image trigger warning) Here’s an image from @ACRheum on what photosensitivity can look like when it causes skin rashes. #LupusChat https://t.co/gGsE0vERGx | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat A3. SPF 55 and higher. I use SPF 110,but still turn beet red in the sun. Especially here in Albuquerque at 5000 feet-plus elevation. Or in Santa Fe at 7000 feet. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A3 Good question. The highest level? Let me cheat. I will be right back.. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: I tend to use SPF 75 or higher when I can. The lowest I will buy is SPF 50. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: tiendo a usar SPF 75 o más cuando puedo. Lo más bajo que compraré es SPF 50. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 @raquelonpurpose @Lupus_Chat Lol. You good, this ain't no pop quiz lol #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Be sure the sunscreen protects against UV-A and UV-B. #LupusChat | |
SumthinAboutYo💜👑 @mrsharveyclark RT @TiffanyAndLupus: A2: A2: Exposure to the sun, UV rays, and harmful indoor lighting can cause skin or discoid rashes, induce a lupus flare, increase fatigue, and even cause painful headaches or migraines. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Asegúrese de que el filtro solar proteja contra los rayos UV-A y UV-B. #LupusChat | |
Brian Vogel @bvogel9 @SynceNerd_Carli A3. And my dermatologist told me it’s essential to reapply every 2 hours minimum to stay protected. Which i typically forget to do 🤷🏻♂️ #LupusChat | |
Caring For Lupus @CaringForLupus A3. Miah's Dermatologist also mentioned that there was a sunscreen scalp #LupusChat https://t.co/STfsWamqE7 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A3: A3: Be sure the sunscreen protects against UV-A and UV-B. #LupusChat | |
SumthinAboutYo💜👑 @mrsharveyclark RT @SynceNerd_Carli: A1: A1: This means more than skin issues too. Overexposure to sun can also cause joint pain and fatigue for people living with Lupus and Chronic Illnesses. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A3. Miah's Dermatologist also mentioned that there was a sunscreen scalp #LupusChat https://t.co/STfsWamqE7 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A3. Miah's Dermatologist also mentioned that there was a sunscreen scalp #LupusChat https://t.co/STfsWamqE7 | |
Carly by Nature @SynceNerd_Carli A3: My understanding is, broad spectrum sunscreens should include either Helioplex or Mexoryl 5. #LupusChat | |
Brian Vogel @bvogel9 RT @SynceNerd_Carli: @bvogel9 A3: @bvogel9 A3: I typically use 100 SPF but will go as low as 50. Anything lower requires more frequent applications during the day which can be annoying especially if you're going in the water (Beach, pool, or rain), etc. #LupusChat | |
#LupusChat @Lupus_Chat RT @LynnWil07599335: A3. #LupusChat the recommended sunscreen for those living with lupus is SPF 30 or higher. https://t.co/aa49fwJayT | |
Carly by Nature @SynceNerd_Carli A3: Según entiendo, los protectores solares de amplio espectro deberían incluir Helioplex o Mexoryl 5. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: @bvogel9 A3: @bvogel9 A3: I typically use 100 SPF but will go as low as 50. Anything lower requires more frequent applications during the day which can be annoying especially if you're going in the water (Beach, pool, or rain), etc. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A3: A3: I tend to use SPF 75 or higher when I can. The lowest I will buy is SPF 50. #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. SPF 55 and higher. I use SPF 110,but still turn beet red in the sun. Especially here in Albuquerque at 5000 feet-plus elevation. Or in Santa Fe at 7000 feet. #LupusChat | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A3 Good question. The highest level? Let me cheat. I will be right back.. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: I tend to use SPF 75 or higher when I can. The lowest I will buy is SPF 50. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Be sure the sunscreen protects against UV-A and UV-B. #LupusChat | |
#LupusChat @Lupus_Chat RT @bvogel9: @SynceNerd_Carli A3. And my dermatologist told me it’s essential to reapply every 2 hours minimum to stay protected. Which i typically forget to do 🤷🏻♂️ #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Also, if you have Tumid Lupus, like me, you should look for a sunscreen with Titanium Dioxide and Zinc Oxide because of the way they reflect light. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @SynceNerd_Carli: A3: A3: Be sure the sunscreen protects against UV-A and UV-B. #LupusChat | |
Carly by Nature @SynceNerd_Carli A3: Además, si tienes Tumid Lupus, como yo, debes buscar un protector solar con dióxido de titanio y óxido de zinc debido a la forma en que reflejan la luz. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Además, si tienes Tumid Lupus, como yo, debes buscar un protector solar con dióxido de titanio y óxido de zinc debido a la forma en que reflejan la luz. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Also, if you have Tumid Lupus, like me, you should look for a sunscreen with Titanium Dioxide and Zinc Oxide because of the way they reflect light. #LupusChat | |
RaquelRoschell @raquelonpurpose A3 : SPF 30 this says.. Best Sunscreen for Lupus in 2018 https://t.co/j0YOnrKoyN via @SimplySunSafe #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Según entiendo, los protectores solares de amplio espectro deberían incluir Helioplex o Mexoryl 5. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: My understanding is, broad spectrum sunscreens should include either Helioplex or Mexoryl 5. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus Here’s an informative post from @LupusLA on the importance of using sunscreen with UVA and IVB sun day protection. It explains the differences here: https://t.co/mu8R7n3xPa #LupusChat https://t.co/pnRzGDTgM0 | |
Winnie Ong'are(Nyaugagi) @ongare_winnie RT @AllThingsLupus: Hi, I’m Helena. I’ve had lupus for 25 years. My bday is July 11, so my best summer memories are bday parties and bday trips #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Además, si tienes Tumid Lupus, como yo, debes buscar un protector solar con dióxido de titanio y óxido de zinc debido a la forma en que reflejan la luz. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Also, if you have Tumid Lupus, like me, you should look for a sunscreen with Titanium Dioxide and Zinc Oxide because of the way they reflect light. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: Be sure the sunscreen protects against UV-A and UV-B. #LupusChat | |
#LupusChat @Lupus_Chat Sun protection is an everyday necessity for people living with Lupus. Let’s discuss our favorite protective tools for Question 4! #LupusChat https://t.co/XxYqT2O18Y | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: Photosensitivity can manifest in different ways. It can also happen indoors from fluorescent lighting, your computer and phone screens. Wearing sunscreen indoors is also a necessity for those of us with lupus. #LupusChat | |
Lynn Williams @LynnWil07599335 #LupusChat family, I have to go. Have a dinner to attend. Have a great day everyone. 💜💜💜 | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Here’s an informative post from @LupusLA on the importance of using sunscreen with UVA and IVB sun day protection. It explains the differences here: https://t.co/mu8R7n3xPa #LupusChat https://t.co/pnRzGDTgM0 | |
#LupusChat @Lupus_Chat Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: A3 : A3 : SPF 30 this says.. Best Sunscreen for Lupus in 2018 https://t.co/j0YOnrKoyN via @SimplySunSafe #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: Here’s an informative post from @LupusLA on the importance of using sunscreen with UVA and IVB sun day protection. It explains the differences here: https://t.co/mu8R7n3xPa #LupusChat https://t.co/pnRzGDTgM0 | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Sun protection is an everyday necessity for people living with Lupus. Let’s discuss our favorite protective tools for Question 4! #LupusChat https://t.co/XxYqT2O18Y | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
#LupusChat @Lupus_Chat Q4: Cuáles son algunos de los artículos imprescindibles que llevas contigo al aire libre durante un período de tiempo prolongado? #LupusChat https://t.co/ArjVQZup0n | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: Cuáles son algunos de los artículos imprescindibles que llevas contigo al aire libre durante un período de tiempo prolongado? #LupusChat https://t.co/ArjVQZup0n | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q3: Q3: Cuál es el nivel recomendado de protección solar / protección solar para las personas que viven con Lupus? #LupusChat https://t.co/JJOy6hRFZ9 | |
Caring For Lupus @CaringForLupus A4 Miah's must have items are: * UPF Umbrella * SunScreen * UPF Hat 👒 * Sunglasses 👓 * Cooling Towel * Cooling Wipes #Lupuschat https://t.co/DPrHU5Iut5 | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. ☀️ https://t.co/rgNeecYBRM | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A4 Miah's must have items are: * UPF Umbrella * SunScreen * UPF Hat 👒 * Sunglasses 👓 * Cooling Towel * Cooling Wipes #Lupuschat https://t.co/DPrHU5Iut5 | |
Caring For Lupus @CaringForLupus A4 Las cosas que siempre Miah lleva con ella es: * Paraguas UPF * SunScreen * Sombrero UPF 👒 * Gafas de sol 👓 * Toalla de enfriamiento * Toallitas de enfriamiento #Lupuschat https://t.co/rOTXjRyrIz | |
La Gran Tirana 🦇 @alexachula RT @Lupus_Chat: Sun protection is an everyday necessity for people living with Lupus. Let’s discuss our favorite protective tools for Question 4! #LupusChat https://t.co/XxYqT2O18Y | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
Carly by Nature @SynceNerd_Carli A1: (🚨TRIGGER WARNING🚨) Graphic photos👇🏾 This is what photosensitivity means for me. #LupusChat https://t.co/FJVQkVyUe4 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: Cuáles son algunos de los artículos imprescindibles que llevas contigo al aire libre durante un período de tiempo prolongado? #LupusChat https://t.co/ArjVQZup0n | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Miah's must have items are: * UPF Umbrella * SunScreen * UPF Hat 👒 * Sunglasses 👓 * Cooling Towel * Cooling Wipes #Lupuschat https://t.co/DPrHU5Iut5 | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Las cosas que siempre Miah lleva con ella es: A4 Las cosas que siempre Miah lleva con ella es: * Paraguas UPF * SunScreen * Sombrero UPF 👒 * Gafas de sol 👓 * Toalla de enfriamiento * Toallitas de enfriamiento #Lupuschat https://t.co/rOTXjRyrIz | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Here’s an informative post from @LupusLA on the importance of using sunscreen with UVA and IVB sun day protection. It explains the differences here: https://t.co/mu8R7n3xPa #LupusChat https://t.co/pnRzGDTgM0 | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: A3 : A3 : SPF 30 this says.. Best Sunscreen for Lupus in 2018 https://t.co/j0YOnrKoyN via @SimplySunSafe #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A4 Las cosas que siempre Miah lleva con ella es: A4 Las cosas que siempre Miah lleva con ella es: * Paraguas UPF * SunScreen * Sombrero UPF 👒 * Gafas de sol 👓 * Toalla de enfriamiento * Toallitas de enfriamiento #Lupuschat https://t.co/rOTXjRyrIz | |
Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3. Miah's Dermatologist also mentioned that there was a sunscreen scalp #LupusChat https://t.co/STfsWamqE7 | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q1: Q1: Qué es fotosensibilidad y alguna vez lo has experimentado? #LupusChat https://t.co/adptSRjTCU | |
La Gran Tirana 🦇 @alexachula I only use 70+. #LupusChat https://t.co/2eNt7U0t9t | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2 Las personas fotosensibles pueden desarrollar un sarpullido en la piel, conocido como sarpullido mariposa, que aparece en la nariz y las mejillas o un sarpullido rojo enrojecido y escamoso #Lupuschat | |
Tiffany ⁷ @TiffanyAndLupus A3: For those with Lupus, a sunscreen with an SPF of at least 30 is recommended AND it should also include UVA/UVA broad spectrum protection. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A2. La fotosensibilidad a los rayos ultravioleta (UV) puede deberse a la luz solar y a otras fuentes de luz, como la luz fluorescente de interiores. #Lupuschat https://t.co/a2UjBu1hgE | |
RarasNoInvisibles @NoInvisibles RT @CaringForLupus: A1. Our family is familiar with the term💡photosensitivity 🌞 because it is one of Miah's symptoms due to Lupus. #Lupuschat | |
Carly by Nature @SynceNerd_Carli @bvogel9 Yes! It's so hard to remember to reapply and always pay for that later 😂. Carrying Travel sized sunscreen in a bag helps, but then you have to remember to pack it #LupusChat | |
RarasNoInvisibles @NoInvisibles RT @CaringForLupus: A1. Nuestra familia está familiarizada con el término 💡 "fotosensibilidad" 🌞 porque es uno de los síntomas de Miah debido a Lupus. #Lupuschat https://t.co/0uLk9NGWxq | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: For those with Lupus, a sunscreen with an SPF of at least 30 is recommended AND it should also include UVA/UVA broad spectrum protection. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @alexachula: I only use 70+. #LupusChat https://t.co/2eNt7U0t9t | |
RarasNoInvisibles @NoInvisibles RT @TiffanyAndLupus: A1: A1: (image trigger warning) Here’s an image from @ACRheum on what photosensitivity can look like when it causes skin rashes. #LupusChat https://t.co/gGsE0vERGx | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Además, si tienes Tumid Lupus, como yo, debes buscar un protector solar con dióxido de titanio y óxido de zinc debido a la forma en que reflejan la luz. #LupusChat | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q2: Q2: Qué factores de fotosensibilidad deben tener en cuenta las personas que viven con Lupus y otras enfermedades crónicas? #LupusChat https://t.co/99HQw9UIwM | |
RaquelRoschell @raquelonpurpose RT @CaringForLupus: Hi...I'm Elizabeth from NJ. A #LupusChat co-host. My daughter is a Lupus warrior 💪. One of my favorite memories is Carnaval Peruano ... it happens during summer. https://t.co/nnYx4xHXLz | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Asegúrese de que el filtro solar proteja contra los rayos UV-A y UV-B. #LupusChat | |
La Gran Tirana 🦇 @alexachula RT @AllThingsLupus: A1: A1: It is sensitivity to the sun and lights. Yes, I have it. I become nauseated after being in the sun a while and my eyes burn as well. #LupusChat https://t.co/iYV7VPtjYO | |
Carly by Nature @SynceNerd_Carli RT @bvogel9: @SynceNerd_Carli A3. And my dermatologist told me it’s essential to reapply every 2 hours minimum to stay protected. Which i typically forget to do 🤷🏻♂️ #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: es importante entender que la fotosensibilidad no se limita a los rayos del sol al aire libre. Los rayos UV pueden dañarnos en el interior. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A3: UVA rays can depress the immune system, harm connective tissue and elevates the risk of melanoma. UVB rays are ultraviolet b rays and cause burning. Make sure your sunscreen has protection from BOTH! #LupusChat | |
David Lazar, MD MPH @DrDavidLazar Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat | |
#LupusChat @Lupus_Chat RT @alexachula: I only use 70+. #LupusChat https://t.co/2eNt7U0t9t | |
RarasNoInvisibles @NoInvisibles RT @Xtel007: A2. UV rays that can still affect us on cloudy days or in the shade. Also, watch out for UV rays that can catch us indoors, via windows or fluorescent lighting. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: For those with Lupus, a sunscreen with an SPF of at least 30 is recommended AND it should also include UVA/UVA broad spectrum protection. #LupusChat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: UVA rays can depress the immune system, harm connective tissue and elevates the risk of melanoma. UVB rays are ultraviolet b rays and cause burning. Make sure your sunscreen has protection from BOTH! #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
RarasNoInvisibles @NoInvisibles RT @SynceNerd_Carli: A1: A1: En pocas palabras, la fotosensibilidad es una aversión al sol. La exposición puede causar problemas de salud a las personas que viven con Lupus. #LupusChat | |
Carly by Nature @SynceNerd_Carli @DSquareNH @Lupus_Chat I had the best day outdoors yesterday with family. Definitely had my hat on to help protect from sun though. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A3: A3: UVA rays can depress the immune system, harm connective tissue and elevates the risk of melanoma. UVB rays are ultraviolet b rays and cause burning. Make sure your sunscreen has protection from BOTH! #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Miah's must have items are: * UPF Umbrella * SunScreen * UPF Hat 👒 * Sunglasses 👓 * Cooling Towel * Cooling Wipes #Lupuschat https://t.co/DPrHU5Iut5 | |
Michael Watson @WattyWattUSMC RT @TiffanyAndLupus: A3: A3: For those with Lupus, a sunscreen with an SPF of at least 30 is recommended AND it should also include UVA/UVA broad spectrum protection. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DrDavidLazar: Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat | |
David Lazar, MD MPH @DrDavidLazar Additionally, some states allow for more tint in your car if you suffer from diseases that are harmed by the sun. #lupuschat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q3: Q3: Cuál es el nivel recomendado de protección solar / protección solar para las personas que viven con Lupus? #LupusChat https://t.co/JJOy6hRFZ9 | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A1. Más allá de las erupciones cutáneas que pueden desarrollarse, la exposición al sol puede causar que las personas que viven con lupus experimenten una mayor actividad de la enfermedad con síntomas como dolores en las articulaciones, debilidad, fatiga y fiebre. #Lupuschat | |
#LupusChat @Lupus_Chat RT @DrDavidLazar: Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat | |
La Gran Tirana 🦇 @alexachula RT @Xtel007: A2. It’s also important to avoid sun exposure during the hottest parts of the day., and/or wear protective clothing. #LupusChat | |
RarasNoInvisibles @NoInvisibles RT @CaringForLupus: A3. Miah's dermatologist recommended these ones for her. #Lupuschat https://t.co/x5tmtb75DU | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Sunscreen is a MUST-HAVE. I am finally doing better at wearing sunscreen on my body consistently. So proud of myself. My doc been telling me only for like 11 years lol #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. UVA/UVB sunglasses are also important for outdoor wear, as well as a wide brim hat (I’m still looking for a stylish one to rock). #LupusChat | |
Caring For Lupus @CaringForLupus RT @DrDavidLazar: Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat | |
David Lazar, MD MPH @DrDavidLazar @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
Caring For Lupus @CaringForLupus RT @DrDavidLazar: Additionally, some states allow for more tint in your car if you suffer from diseases that are harmed by the sun. #lupuschat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: UVA rays can depress the immune system, harm connective tissue and elevates the risk of melanoma. UVB rays are ultraviolet b rays and cause burning. Make sure your sunscreen has protection from BOTH! #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: Additionally, some states allow for more tint in your car if you suffer from diseases that are harmed by the sun. #lupuschat | |
RaquelRoschell @raquelonpurpose @DrDavidLazar @Lupus_Chat Thank you for this - I needed it! #LupusChat | |
#LupusChat @Lupus_Chat We must take care to protect ourselves from all kinds of harmful UV exposure. We’ll explore what that entails in Question 5! #LupusChat https://t.co/chHtLWjpCT | |
RarasNoInvisibles @NoInvisibles RT @SynceNerd_Carli: @bvogel9 A3: @bvogel9 A3: I typically use 100 SPF but will go as low as 50. Anything lower requires more frequent applications during the day which can be annoying especially if you're going in the water (Beach, pool, or rain), etc. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: (🚨TRIGGER WARNING🚨) Graphic photos👇🏾 This is what photosensitivity means for me. #LupusChat https://t.co/FJVQkVyUe4 | |
RaquelRoschell @raquelonpurpose @DrDavidLazar @SimplySunSafe Stronger the better? #LupusChat | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q4: Q4: Cuáles son algunos de los artículos imprescindibles que llevas contigo al aire libre durante un período de tiempo prolongado? #LupusChat https://t.co/ArjVQZup0n | |
Carly by Nature @SynceNerd_Carli #LupusChat https://t.co/6TdB8srvQ3 | |
RaquelRoschell @raquelonpurpose RT @DrDavidLazar: @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
#LupusChat @Lupus_Chat Q5: What kind of precautions have you taken to ensure that you are protected against harmful UV exposure, both indoors and out? #LupusChat ☀️ https://t.co/sMD5IhycIA | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: What kind of precautions have you taken to ensure that you are protected against harmful UV exposure, both indoors and out? #LupusChat ☀️ https://t.co/sMD5IhycIA | |
RarasNoInvisibles @NoInvisibles RT @CaringForLupus: A4 Miah's must have items are: * UPF Umbrella * SunScreen * UPF Hat 👒 * Sunglasses 👓 * Cooling Towel * Cooling Wipes #Lupuschat https://t.co/DPrHU5Iut5 | |
#LupusChat @Lupus_Chat RT @DrDavidLazar: Additionally, some states allow for more tint in your car if you suffer from diseases that are harmed by the sun. #lupuschat | |
#LupusChat @Lupus_Chat Q5: Qué tipo de precauciones ha tomado para asegurarse de que está protegido contra la exposición dañina a los rayos UV, tanto en el interior como en el exterior? #LupusChat https://t.co/uru6kTDBH4 | |
#LupusChat @Lupus_Chat RT @Xtel007: A4. Sunscreen is a MUST-HAVE. I am finally doing better at wearing sunscreen on my body consistently. So proud of myself. My doc been telling me only for like 11 years lol #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A4. UVA/UVB sunglasses are also important for outdoor wear, as well as a wide brim hat (I’m still looking for a stylish one to rock). #LupusChat | |
#LupusChat @Lupus_Chat RT @DrDavidLazar: @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: We must take care to protect ourselves from all kinds of harmful UV exposure. We’ll explore what that entails in Question 5! #LupusChat https://t.co/chHtLWjpCT | |
RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q5: Q5: Qué tipo de precauciones ha tomado para asegurarse de que está protegido contra la exposición dañina a los rayos UV, tanto en el interior como en el exterior? #LupusChat https://t.co/uru6kTDBH4 | |
Lupus Puerto Rico 🇵🇷 @LupusPR RT @Lupus_Chat: Q5: Q5: Qué tipo de precauciones ha tomado para asegurarse de que está protegido contra la exposición dañina a los rayos UV, tanto en el interior como en el exterior? #LupusChat https://t.co/uru6kTDBH4 | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: What kind of precautions have you taken to ensure that you are protected against harmful UV exposure, both indoors and out? #LupusChat ☀️ https://t.co/sMD5IhycIA | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Qué tipo de precauciones ha tomado para asegurarse de que está protegido contra la exposición dañina a los rayos UV, tanto en el interior como en el exterior? #LupusChat https://t.co/uru6kTDBH4 | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: What kind of precautions have you taken to ensure that you are protected against harmful UV exposure, both indoors and out? #LupusChat ☀️ https://t.co/sMD5IhycIA | |
Caring For Lupus @CaringForLupus A5. Debido a su fotosensibilidad, la escuela de Miah 📚 agregó un cobertor a la iluminación💡 en su clase. #Lupuschat https://t.co/L4S5qL9UPV | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Qué tipo de precauciones ha tomado para asegurarse de que está protegido contra la exposición dañina a los rayos UV, tanto en el interior como en el exterior? #LupusChat https://t.co/uru6kTDBH4 | |
Debra Carroll @todebra A4: I found removable sticky sun shades on Amazon for side windows. Very helpful for long drives. #LupusChat #lupus https://t.co/X320ifG1qL | |
Lupus Puerto Rico 🇵🇷 @LupusPR RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy compartiremos nuestras preocupaciones y consejos de protección centrados en cómo vivir cómodamente bajo el sol. ☀️ https://t.co/rgNeecYBRM | |
Caring For Lupus @CaringForLupus A5. Due to her photosensitivity, Miah's school 📚 added a cover to the lighting💡 in her classroom. #Lupuschat https://t.co/pTnpyO6fep | |
RaquelRoschell @raquelonpurpose RT @Xtel007: A4. UVA/UVB sunglasses are also important for outdoor wear, as well as a wide brim hat (I’m still looking for a stylish one to rock). #LupusChat | |
RaquelRoschell @raquelonpurpose RT @DrDavidLazar: Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat | |
Carly by Nature @SynceNerd_Carli A4: Depending on where I am going I'll most likely have on a hat where the brim covers my face a bit. #LupusChat | |
Caring For Lupus @CaringForLupus A5 We have added medical tinted windows to our car 🚗 Car windows & clouds only protect against UVB. UV-blocking films/tinting may be applied to car But it is regulated by each state. U can contact your local Department of Motor Vehicle 4 more information in your state #Lupuschat https://t.co/6ZCmRy2eaf | |
Carly by Nature @SynceNerd_Carli A4: Dependiendo de dónde vaya, lo más probable es que tenga un sombrero donde el ala me cubra un poco la cara. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A4 : I have a straw 'gardening' hat, water, and something with long sleeves. #LupusChat https://t.co/qR2nLusNiB | |
David Lazar, MD MPH @DrDavidLazar https://t.co/fRJGeA13fD #lupuschat | |
Carly by Nature @SynceNerd_Carli A4: I've started carrying an umbrella in my bag. Many think it's for rain but if the sun beams too much, I'll need it for protection. #LupusChat | |
Caring For Lupus @CaringForLupus A5 Hemos agregado ventanas polarizadas médicas a nuestro automóvil 🚗 . Las ventanas y las nubes del automóvil solo protegen contra los rayos UVB. Se pueden aplicar películas / tinturas que bloquean los rayos UV al automóvil Pero está regulado por cada estado. #Lupuschat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Oh wow. I had no idea! Thank you for this #LupusChat https://t.co/Goes3twc4n | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: I've started carrying an umbrella in my bag. Many think it's for rain but if the sun beams too much, I'll need it for protection. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: What kind of precautions have you taken to ensure that you are protected against harmful UV exposure, both indoors and out? #LupusChat ☀️ https://t.co/sMD5IhycIA | |
Carly by Nature @SynceNerd_Carli A4: Empecé a llevar un paraguas en mi bolso. Muchos piensan que es por la lluvia, pero si el sol emite demasiado, lo necesitaré para protección. #LupusChat | |
Caring For Lupus @CaringForLupus RT @DrDavidLazar: https://t.co/fRJGeA13fD #lupuschat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: What are some must-have items you carry with you while outdoors for an extended period of time? #LupusChat https://t.co/Prm0s6zgmM | |
Caring For Lupus @CaringForLupus A5 As per @LupusLA "Indoor Measures can be Important" ⤵ #LupusChat https://t.co/VomL3pgKra | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 @bvogel9 @SynceNerd_Carli We're all new at some point. You'll get there, Brian. #LupusChat | |
Caring For Lupus @CaringForLupus A5 We were told about this product by a Lupus organization. We use this product on the clothes. RIT SunGuard Washes UPF 30 sun 🌞 protection into everyday 👕clothing 👚 #LupusChat https://t.co/N3x3GKAoo1 | |
Tiffany ⁷ @TiffanyAndLupus A5: Besides sunscreen there are many options for sun protection. There is UV protective clothing! @UniqloUSA has affordable and attractive sun protective clothing. & here’s a lovely hat I found on amazon with UPF 50+ #LupusChat https://t.co/gUMXYmZOIy | |
Jessee Lovegood, AMFT @jnlovegood RT @DrDavidLazar: @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
Carly by Nature @SynceNerd_Carli A4: My mom bought me 2 wide brimmed visors to wear at the beach also. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: What kind of precautions have you taken to ensure that you are protected against harmful UV exposure, both indoors and out? #LupusChat ☀️ https://t.co/sMD5IhycIA | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. Sunscreen and protective clothing are the best. Try to schedule our outdoor time for the morning or late afternoons. If possible, change the lightbulbs. #LupusChat | |
#LupusChat @Lupus_Chat Stay tuned, our last question is coming next! #LupusChat https://t.co/XodFtGEfWq | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A5 We were told about this product by a Lupus organization. We use this product on the clothes. RIT SunGuard Washes UPF 30 sun 🌞 protection into everyday 👕clothing 👚 #LupusChat https://t.co/N3x3GKAoo1 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DrDavidLazar: @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A5 As per @LupusLA "Indoor Measures can be Important" ⤵ #LupusChat https://t.co/VomL3pgKra | |
Jessee Lovegood, AMFT @jnlovegood RT @TiffanyAndLupus: A3: A3: UVA rays can depress the immune system, harm connective tissue and elevates the risk of melanoma. UVB rays are ultraviolet b rays and cause burning. Make sure your sunscreen has protection from BOTH! #LupusChat | |
#LupusChat @Lupus_Chat RT @DrDavidLazar: https://t.co/fRJGeA13fD #lupuschat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: I've started carrying an umbrella in my bag. Many think it's for rain but if the sun beams too much, I'll need it for protection. #LupusChat | |
Carly by Nature @SynceNerd_Carli A4: Also, I often wear Aviator sun glasses. The wide frames are very helpful in protecting against malar/ butterfly rash. #LupusChat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A5 Hemos agregado ventanas polarizadas médicas a nuestro automóvil 🚗 . Las ventanas y las nubes del automóvil solo protegen contra los rayos UVB. Se pueden aplicar películas / tinturas que bloquean los rayos UV al automóvil Pero está regulado por cada estado. #Lupuschat | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A5 We have added medical tinted windows to our car 🚗 Car windows & clouds only protect against UVB. UV-blocking films/tinting may be applied to car But it is regulated by each state. U can contact your local Department of Motor Vehicle 4 more information in your state #Lupuschat https://t.co/6ZCmRy2eaf | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A5. Due to her photosensitivity, Miah's school 📚 added a cover to the lighting💡 in her classroom. #Lupuschat https://t.co/pTnpyO6fep | |
#LupusChat @Lupus_Chat RT @CaringForLupus: A5. Debido a su fotosensibilidad, la escuela de Miah 📚 agregó un cobertor a la iluminación💡 en su clase. #Lupuschat https://t.co/L4S5qL9UPV | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: (🚨TRIGGER WARNING🚨) Graphic photos👇🏾 This is what photosensitivity means for me. #LupusChat https://t.co/FJVQkVyUe4 | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A4: A4: I've started carrying an umbrella in my bag. Many think it's for rain but if the sun beams too much, I'll need it for protection. #LupusChat | |
Carly by Nature @SynceNerd_Carli A4: Además, a menudo uso gafas de sol Aviator. Los marcos anchos son muy útiles para proteger contra la erupción de la mariposa. #LupusChat | |
#LupusChat @Lupus_Chat Q6: What UV protective items (clothing, sunscreen, etc.) would you recommend for anyone who is photosensitive? 🌤#LupusChat https://t.co/uzjnCD9Iiv | |
#LupusChat @Lupus_Chat RT @Xtel007: A5. Sunscreen and protective clothing are the best. Try to schedule our outdoor time for the morning or late afternoons. If possible, change the lightbulbs. #LupusChat | |
#LupusChat @Lupus_Chat RT @todebra: A4: A4: I found removable sticky sun shades on Amazon for side windows. Very helpful for long drives. #LupusChat #lupus https://t.co/X320ifG1qL | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. Water and/or Gatorade. A long-sleeve blouse or hoodie. I wear a bandana to protect my hair. SPF 110. Chap Stick or Vaseline for my lips. Fruit. #LupusChat | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I have a straw 'gardening' hat, water, and something with long sleeves. #LupusChat https://t.co/qR2nLusNiB | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: We must take care to protect ourselves from all kinds of harmful UV exposure. We’ll explore what that entails in Question 5! #LupusChat https://t.co/chHtLWjpCT | |
#LupusChat @Lupus_Chat RT @DrDavidLazar: @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: Besides sunscreen there are many options for sun protection. There is UV protective clothing! @UniqloUSA has affordable and attractive sun protective clothing. & here’s a lovely hat I found on amazon with UPF 50+ #LupusChat https://t.co/gUMXYmZOIy | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Stay tuned, our last question is coming next! #LupusChat https://t.co/XodFtGEfWq | |
Carly by Nature @SynceNerd_Carli A5: When outdoors I use sunscreen, wear sun glasse, and hats. I often wear a cooling cloth around d my neck also. #LupusChat | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Además, a menudo uso gafas de sol Aviator. Los marcos anchos son muy útiles para proteger contra la erupción de la mariposa. #LupusChat | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4. Water and/or Gatorade. A long-sleeve blouse or hoodie. I wear a bandana to protect my hair. SPF 110. Chap Stick or Vaseline for my lips. Fruit. #LupusChat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Q6: Q6: What UV protective items (clothing, sunscreen, etc.) would you recommend for anyone who is photosensitive? 🌤#LupusChat https://t.co/uzjnCD9Iiv | |
Kate Sattler | Sweet Freeze @katesattler @Lupus_Chat A5 I put UV protective film on my windows at home #LupusChat | |
Jessee Lovegood, AMFT @jnlovegood RT @CaringForLupus: A4 Miah's must have items are: * UPF Umbrella * SunScreen * UPF Hat 👒 * Sunglasses 👓 * Cooling Towel * Cooling Wipes #Lupuschat https://t.co/DPrHU5Iut5 | |
#LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: My mom bought me 2 wide brimmed visors to wear at the beach also. #LupusChat | |
RaquelRoschell @raquelonpurpose @Lupus_Chat A5 : My mom brought home a tube of sunscreen from a senior expo. This stuff is thick & works. I have not had the rashes that I normally get. For all day events- I limit MY time or volunteer for an inside job. Inside : pull the shades/blinds. #LupusChat | |
Carly by Nature @SynceNerd_Carli A5: cuando estoy al aire libre, uso protector solar, viso glasse y sombreros. A menudo uso un paño frío alrededor de mi cuello también. #LupusChat | |
#LupusChat @Lupus_Chat RT @katesattler: @Lupus_Chat A5 I put UV protective film on my windows at home #LupusChat | |
All Things Lupus™ @AllThingsLupus A5: I’m usually in the dark at home, but I also use CFL bulbs #LupusChat https://t.co/Po3RCaE3EL | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : My mom brought home a tube of sunscreen from a senior expo. This stuff is thick & works. I have not had the rashes that I normally get. For all day events- I limit MY time or volunteer for an inside job. Inside : pull the shades/blinds. #LupusChat | |
Jessee Lovegood, AMFT @jnlovegood RT @iveyjanette_207: @Lupus_Chat A4. Water and/or Gatorade. A long-sleeve blouse or hoodie. I wear a bandana to protect my hair. SPF 110. Chap Stick or Vaseline for my lips. Fruit. #LupusChat | |
A Knee Duh @PPebblesHome RT @TiffanyAndLupus: A5: A5: Besides sunscreen there are many options for sun protection. There is UV protective clothing! @UniqloUSA has affordable and attractive sun protective clothing. & here’s a lovely hat I found on amazon with UPF 50+ #LupusChat https://t.co/gUMXYmZOIy | |
Jessee Lovegood, AMFT @jnlovegood RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I have a straw 'gardening' hat, water, and something with long sleeves. #LupusChat https://t.co/qR2nLusNiB | |
Carly by Nature @SynceNerd_Carli A5: Indoors, I typically stay in low light. When I can't, I ensure the lights aren't harmful as certain LED lights can cause issues. #LupusChat | |
RaquelRoschell @raquelonpurpose A5 : Also, use good bulbs and dim the lights. #LupusChat | |
#LupusChat @Lupus_Chat RT @AllThingsLupus: A5: A5: I’m usually in the dark at home, but I also use CFL bulbs #LupusChat https://t.co/Po3RCaE3EL | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: My mom bought me 2 wide brimmed visors to wear at the beach also. #LupusChat | |
A Knee Duh @PPebblesHome RT @CaringForLupus: A5 We were told about this product by a Lupus organization. We use this product on the clothes. RIT SunGuard Washes UPF 30 sun 🌞 protection into everyday 👕clothing 👚 #LupusChat https://t.co/N3x3GKAoo1 | |
Carly by Nature @SynceNerd_Carli A5: En el interior, normalmente me quedo con poca luz. Cuando no puedo, me aseguro de que las luces no sean dañinas ya que ciertas luces LED pueden causar problemas. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Además, a menudo uso gafas de sol Aviator. Los marcos anchos son muy útiles para proteger contra la erupción de la mariposa. #LupusChat | |
Caring For Lupus @CaringForLupus RT @DrDavidLazar: @raquelonpurpose @SimplySunSafe I typically recommend spf 50 for my lupus patients. #lupuschat | |
Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I have a straw 'gardening' hat, water, and something with long sleeves. #LupusChat https://t.co/qR2nLusNiB | |
José Navia Dongo @navia_dongo RT @CaringForLupus: A4 Las cosas que siempre Miah lleva con ella es: A4 Las cosas que siempre Miah lleva con ella es: * Paraguas UPF * SunScreen * Sombrero UPF 👒 * Gafas de sol 👓 * Toalla de enfriamiento * Toallitas de enfriamiento #Lupuschat https://t.co/rOTXjRyrIz | |
Caring For Lupus @CaringForLupus RT @todebra: A4: A4: I found removable sticky sun shades on Amazon for side windows. Very helpful for long drives. #LupusChat #lupus https://t.co/X320ifG1qL | |
Caring For Lupus @CaringForLupus RT @Xtel007: A5. Sunscreen and protective clothing are the best. Try to schedule our outdoor time for the morning or late afternoons. If possible, change the lightbulbs. #LupusChat | |
Carly by Nature @SynceNerd_Carli A5: My temp job has been very accommodating. They adjusted the lights last week, in my work area to ensure I didn't have problems. #LupusChat | |
#LupusChat @Lupus_Chat Q6: Qué artículos de protección UV (ropa, protector solar, etc.) recomendaría para cualquier persona que sea fotosensible? #LupusChat https://t.co/Nz1QlfufGt | |
Tiffany ⁷ @TiffanyAndLupus A6: These are my recommended sun protection items. The Missha & Earths Recipe do not leave a white cast and the Neutrogena is for my body. #LupusChat https://t.co/B5hHQTkJKD | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. I stay indoors as much as possible. I have blackout curtains on my windows to keep out sunlight. I also wear dark clothing when I'm outdoors as a precaution against sunlight,as I burn or turn red very quickly in the sun. SPF 110 is a MUST for outdoors. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @AllThingsLupus: A5: A5: I’m usually in the dark at home, but I also use CFL bulbs #LupusChat https://t.co/Po3RCaE3EL | |
#LupusChat @Lupus_Chat RT @raquelonpurpose: A5 : A5 : Also, use good bulbs and dim the lights. #LupusChat | |
Carly by Nature @SynceNerd_Carli A5: Mi trabajo temporal ha sido muy servicial. Ajustaron las luces la semana pasada, en mi área de trabajo para asegurarse de que no tuviera problemas. #LupusChat | |
Jessee Lovegood, AMFT @jnlovegood RT @TiffanyAndLupus: A6: A6: These are my recommended sun protection items. The Missha & Earths Recipe do not leave a white cast and the Neutrogena is for my body. #LupusChat https://t.co/B5hHQTkJKD | |
Carly by Nature @SynceNerd_Carli RT @katesattler: @Lupus_Chat A5 I put UV protective film on my windows at home #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A5: A5: En el interior, normalmente me quedo con poca luz. Cuando no puedo, me aseguro de que las luces no sean dañinas ya que ciertas luces LED pueden causar problemas. #LupusChat | |
Carly by Nature @SynceNerd_Carli @katesattler @Lupus_Chat This is a good idea! I need to order some. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. Water and/or Gatorade. A long-sleeve blouse or hoodie. I wear a bandana to protect my hair. SPF 110. Chap Stick or Vaseline for my lips. Fruit. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. Sunscreen and protective clothing are the best. Try to schedule our outdoor time for the morning or late afternoons. If possible, change the lightbulbs. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: Besides sunscreen there are many options for sun protection. There is UV protective clothing! @UniqloUSA has affordable and attractive sun protective clothing. & here’s a lovely hat I found on amazon with UPF 50+ #LupusChat https://t.co/gUMXYmZOIy | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: These are my recommended sun protection items. The Missha & Earths Recipe do not leave a white cast and the Neutrogena is for my body. #LupusChat https://t.co/B5hHQTkJKD | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A5. I stay indoors as much as possible. I have blackout curtains on my windows to keep out sunlight. I also wear dark clothing when I'm outdoors as a precaution against sunlight,as I burn or turn red very quickly in the sun. SPF 110 is a MUST for outdoors. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @todebra: A4: A4: I found removable sticky sun shades on Amazon for side windows. Very helpful for long drives. #LupusChat #lupus https://t.co/X320ifG1qL | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: What UV protective items (clothing, sunscreen, etc.) would you recommend for anyone who is photosensitive? 🌤#LupusChat https://t.co/uzjnCD9Iiv | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. I use Biore UV Aqua Rich Watery Essence (SPF 50+) on my face and Neutrogena Ultra Sheer Body Mist sunscreen (SPF 70) on my body. #LupusChat | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: What UV protective items (clothing, sunscreen, etc.) would you recommend for anyone who is photosensitive? 🌤#LupusChat https://t.co/uzjnCD9Iiv | |
Debra Carroll @todebra A6: There are many clothing options online that allow flexibility in a pinch. UV protective sleeves and turtle collar. Wide brim and extended bill caps. #LupusChat https://t.co/PPM8TQfn8Q | |
Caring For Lupus @CaringForLupus RT @Xtel007: A6. I use Biore UV Aqua Rich Watery Essence (SPF 50+) on my face and Neutrogena Ultra Sheer Body Mist sunscreen (SPF 70) on my body. #LupusChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @todebra: A6: A6: There are many clothing options online that allow flexibility in a pinch. UV protective sleeves and turtle collar. Wide brim and extended bill caps. #LupusChat https://t.co/PPM8TQfn8Q | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: Qué artículos de protección UV (ropa, protector solar, etc.) recomendaría para cualquier persona que sea fotosensible? #LupusChat https://t.co/Nz1QlfufGt | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A5: A5: My temp job has been very accommodating. They adjusted the lights last week, in my work area to ensure I didn't have problems. #LupusChat | |
Tiffany ⁷ @TiffanyAndLupus A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: I highly recommend this brand and SPF protection level. Neutrogena Ultimate Sport SPF 100. I use the sport version because I sweat often and it protects me still. #LupusChat https://t.co/JMLwfyoTdg | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: These are my recommended sun protection items. The Missha & Earths Recipe do not leave a white cast and the Neutrogena is for my body. #LupusChat https://t.co/B5hHQTkJKD | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A5. I stay indoors as much as possible. I have blackout curtains on my windows to keep out sunlight. I also wear dark clothing when I'm outdoors as a precaution against sunlight,as I burn or turn red very quickly in the sun. SPF 110 is a MUST for outdoors. #LupusChat | |
#LupusChat @Lupus_Chat RT @Xtel007: A6. I use Biore UV Aqua Rich Watery Essence (SPF 50+) on my face and Neutrogena Ultra Sheer Body Mist sunscreen (SPF 70) on my body. #LupusChat | |
#LupusChat @Lupus_Chat RT @todebra: A6: A6: There are many clothing options online that allow flexibility in a pinch. UV protective sleeves and turtle collar. Wide brim and extended bill caps. #LupusChat https://t.co/PPM8TQfn8Q | |
#LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: Recomiendo esta marca y nivel de protección SPF. Neutrogena Ultimate Sport SPF 100. Utilizo la versión deportiva porque sudo a menudo y todavía me protege. #LupusChat https://t.co/l5DhgiSRVR | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A6. Hats. If you can find clothing that is SPF protective and affordable,get it. I like Neutrogena SPF 110 sunscreen. Sun Bum is great,but it only goes to SPF 50. #LupusChat | |
Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
Brian Vogel @bvogel9 A5. Hats and sunscreens are the two most important. And don’t sunbathe period. Just always be aware of exposure to the sun and take extra precaution. I know it sounds like I’m preaching but I’m honestly the worst at it 😂😂😊 #LupusChat https://t.co/8bHOz04tQf | |
Brian Vogel @bvogel9 RT @DrDavidLazar: Additionally, some states allow for more tint in your car if you suffer from diseases that are harmed by the sun. #lupuschat | |
#LupusChat @Lupus_Chat Thanking each of you for joining our #LupusChat discussion on UV and Sun Protection today. We appreciate you sharing your insights and tips with the community! 🎉☀️👏🏾 https://t.co/8stPUMkhOf | |
Debra Carroll @todebra @Lupus_Chat If anyone finds a great lightweight sun shirt that covers hands and neck, let me know! Most miss the neck! #LupusChat | |
Carly by Nature @SynceNerd_Carli A6: @UniqloUSA also has UV protective clothing. This has been a life saver. Stylish clothing and you can order online or buy in store if they're in your area! #LupusChat https://t.co/Yu44KdANIF | |
Carly by Nature @SynceNerd_Carli A6: @UniqloUSA también tiene ropa de protección UV. Esto ha sido un salvavidas. ¡Ropa elegante y puede ordenar en línea o comprar en la tienda si están en su área! #LupusChat https://t.co/TqA10oAzfu | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
#LupusChat @Lupus_Chat Our next #LupusChat will be Sunday June 24th at 3PM ET. Stay tuned for our upcoming topic announcement! https://t.co/cDEka8Ui1J | |
RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A6: A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
Brian Vogel @bvogel9 A4. Hat and sunscreen are a must. And then uv sunglasses are important too #LupusChat https://t.co/S8ZVVxRyyz | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on UV and Sun Protection today. We appreciate you sharing your insights and tips with the community! 🎉☀️👏🏾 https://t.co/8stPUMkhOf | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 Another great #LupusChat! To everyone who joined us today: https://t.co/yVdaH8csWC | |
Brian Vogel @bvogel9 RT @TiffanyAndLupus: A6: A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
#LupusChat @Lupus_Chat Enjoy the rest of your day & remember to practice a little (or a lot) selfcare today because besides #LupusChat it's also #SelfcareSunday! https://t.co/IcIOI7wXTQ | |
Carly by Nature @SynceNerd_Carli A6: As mentioned, my mom bought me a few wide brimmed visors to help protect against harmful rays. #LupusChat https://t.co/pNH7xehicI | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Our next #LupusChat will be Sunday June 24th at 3PM ET. Stay tuned for our upcoming topic announcement! https://t.co/cDEka8Ui1J | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our next #LupusChat will be Sunday June 24th at 3PM ET. Stay tuned for our upcoming topic announcement! https://t.co/cDEka8Ui1J | |
Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) selfcare today because besides #LupusChat it's also #SelfcareSunday! https://t.co/IcIOI7wXTQ | |
#LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A6. Hats. If you can find clothing that is SPF protective and affordable,get it. I like Neutrogena SPF 110 sunscreen. Sun Bum is great,but it only goes to SPF 50. #LupusChat | |
#LupusChat @Lupus_Chat RT @bvogel9: A5. Hats and sunscreens are the two most important. And don’t sunbathe period. Just always be aware of exposure to the sun and take extra precaution. I know it sounds like I’m preaching but I’m honestly the worst at it 😂😂😊 #LupusChat https://t.co/8bHOz04tQf | |
#LupusChat @Lupus_Chat RT @todebra: @Lupus_Chat If anyone finds a great lightweight sun shirt that covers hands and neck, let me know! Most miss the neck! #LupusChat | |
#LupusChat @Lupus_Chat RT @bvogel9: A4. Hat and sunscreen are a must. And then uv sunglasses are important too #LupusChat https://t.co/S8ZVVxRyyz | |
#LupusChat @Lupus_Chat RT @Xtel007: Another great #LupusChat! To everyone who joined us today: Another great #LupusChat! To everyone who joined us today: https://t.co/yVdaH8csWC | |
Carly by Nature @SynceNerd_Carli A6: Como mencioné, mi madre me compró unas cuantas viseras de ala ancha para ayudar a protegerme contra los rayos dañinos. #LupusChat https://t.co/HSp3AFqRNu | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on UV and Sun Protection today. We appreciate you sharing your insights and tips with the community! 🎉☀️👏🏾 https://t.co/8stPUMkhOf | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) selfcare today because besides #LupusChat it's also #SelfcareSunday! https://t.co/IcIOI7wXTQ | |
Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A6. Hats. If you can find clothing that is SPF protective and affordable,get it. I like Neutrogena SPF 110 sunscreen. Sun Bum is great,but it only goes to SPF 50. #LupusChat | |
RaquelRoschell @raquelonpurpose RT @DrDavidLazar: Additionally, some states allow for more tint in your car if you suffer from diseases that are harmed by the sun. #lupuschat | |
#LupusChat @Lupus_Chat RT @Lupus_Chat: Our next #LupusChat will be Sunday June 24th at 3PM ET. Stay tuned for our upcoming topic announcement! https://t.co/cDEka8Ui1J | |
RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Lupus_Chat A6. Hats. If you can find clothing that is SPF protective and affordable,get it. I like Neutrogena SPF 110 sunscreen. Sun Bum is great,but it only goes to SPF 50. #LupusChat | |
Carly by Nature @SynceNerd_Carli Hey fam, use #LupusChat to share any recommendations with Debra for light weight sun protective clothing. https://t.co/FbjObbPhva | |
Caring For Lupus @CaringForLupus RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) selfcare today because besides #LupusChat it's also #SelfcareSunday! https://t.co/IcIOI7wXTQ | |
Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: For indoor UV ray protection would recommend switching your lightbulbs from fluorescent to LED Light Emitting Diode (LED) lighting or incandescent bulbs. This has helped me decrease photosensitivity induced fatigue and migraines at home. #LupusChat | |
Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: Como mencioné, mi madre me compró unas cuantas viseras de ala ancha para ayudar a protegerme contra los rayos dañinos. #LupusChat https://t.co/HSp3AFqRNu | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: A5 : A5 : Also, use good bulbs and dim the lights. #LupusChat | |
Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : My mom brought home a tube of sunscreen from a senior expo. This stuff is thick & works. I have not had the rashes that I normally get. For all day events- I limit MY time or volunteer for an inside job. Inside : pull the shades/blinds. #LupusChat | |
Caring For Lupus @CaringForLupus RT @bvogel9: A4. Hat and sunscreen are a must. And then uv sunglasses are important too #LupusChat https://t.co/S8ZVVxRyyz | |
RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A6: A6: These are my recommended sun protection items. The Missha & Earths Recipe do not leave a white cast and the Neutrogena is for my body. #LupusChat https://t.co/B5hHQTkJKD | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion on UV and Sun Protection today. We appreciate you sharing your insights and tips with the community! 🎉☀️👏🏾 https://t.co/8stPUMkhOf | |
Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) selfcare today because besides #LupusChat it's also #SelfcareSunday! https://t.co/IcIOI7wXTQ | |
Brian Vogel @bvogel9 RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) selfcare today because besides #LupusChat it's also #SelfcareSunday! https://t.co/IcIOI7wXTQ | |
RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Our next #LupusChat will be Sunday June 24th at 3PM ET. Stay tuned for our upcoming topic announcement! https://t.co/cDEka8Ui1J | |
Brian Vogel @bvogel9 RT @Lupus_Chat: Our next #LupusChat will be Sunday June 24th at 3PM ET. Stay tuned for our upcoming topic announcement! https://t.co/cDEka8Ui1J | |
Carly by Nature @SynceNerd_Carli @JenCarer Same. Summer is more difficult because of Lupus and Winter is difficult for me because of Raynaud's disease. So spring is juuuust right. And I loooove the Fall season. #LupusChat | |
Red Roses⚘🙏🇺🇸🇮🇹 @vastonian RT @DrDavidLazar: Remember that even while driving a car on a sunny day for long periods of time to use sunscreen. #lupuschat |
#LupusChat content from Twitter.