#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: 👉🗓Our Next #LupusChat is Sunday, July 9th at 3pm ET. We'll be having an open forum so save the date & bring all your unanswered questions! 🎤 https://t.co/ow6JmbBRU1 |
 | #LupusChat @Lupus_Chat Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
 | Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
| #LupusChat @Lupus_Chat Bienvenido al foro de la comunidad #LupusChat ! Hoy tendremos un foro abierto donde podrás compartir cualquier pregunta en tu mente. https://t.co/JXUxlxLozO |
 | Peter Morley @morethanmySLE RT @Lupus_Chat: 🌞Good Afternoon & Happy #LupusChat Sunday family! ⏰Set your alarms for 3pm ET today for our open forum discussion & bring your questions! 🗣🎤 https://t.co/tlgZA3zSMU |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Just ate the most delicious mango, and now it's time for #LupusChat https://t.co/IYofED4xzk |
| Peter Morley @morethanmySLE RT @morethanmySLE: Lupus Isn’t Only a “Women’s Disease”: Lupus Isn’t Only a “Women’s Disease”: Coping Tips for Men with Lupus https://t.co/kXwTXzS378 #Lupus #LupusChat |
| #LupusChat @Lupus_Chat Together, as a community we will each chime in and help provide answers for one another by sharing our experiences. #LupusChat https://t.co/1nYQRLuTYj |
| Peter Morley @morethanmySLE RT @morethanmySLE: 1 of 10 w/#Lupus are men. I am part of that 10%. w/#ACA repeal looming, I wanted to share my experience. THREAD dedicated to: #LupusChat 1/9 https://t.co/JKXSYv24Mf |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Together, as a community we will each chime in and help provide answers for one another by sharing our experiences. #LupusChat https://t.co/1nYQRLuTYj |
| Peter Morley @morethanmySLE RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
| Carly by Nature @SynceNerd_Carli It's #LupusChat tiimmmeeeee! Lets goooooo! https://t.co/Ncl3BqlIAC |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
| #LupusChat @Lupus_Chat No topic is taboo! If you have questions on disability, irregular symptoms,intimacy, or hair loss please don’t hesitate to ask. #LupusChat https://t.co/5fbxAjTryi |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: It's #LupusChat tiimmmeeeee! Lets goooooo! https://t.co/Ncl3BqlIAC |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Together, as a community we will each chime in and help provide answers for one another by sharing our experiences. #LupusChat https://t.co/1nYQRLuTYj |
| MizJ 🇨🇦 @MizJfromtheDot @Lupus_Chat how do you all deal with the weather changes? It causes me major problems!! #tips #lupuschat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: No topic is taboo! If you have questions on disability, irregular symptoms,intimacy, or hair loss please don’t hesitate to ask. #LupusChat https://t.co/5fbxAjTryi |
 | 🌻Tee Votes Blue🇺🇦 @TeeTweetsHere RT @Lupus_Chat: 🌞Good Afternoon & Happy #LupusChat Sunday family! ⏰Set your alarms for 3pm ET today for our open forum discussion & bring your questions! 🗣🎤 https://t.co/tlgZA3zSMU |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: No topic is taboo! If you have questions on disability, irregular symptoms,intimacy, or hair loss please don’t hesitate to ask. #LupusChat https://t.co/5fbxAjTryi |
| RaquelRoschell @raquelonpurpose @Lupus_Chat The hair loss..#LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Together, as a community we will each chime in and help provide answers for one another by sharing our experiences. #LupusChat https://t.co/1nYQRLuTYj |
| #LupusChat @Lupus_Chat Our #LupusChat host, @TiffanyAndLupus isn't feeling well today, so she won't be with us today. We are sending her love, hugs & well wishes! https://t.co/tb1sXeSLAI |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: https://t.co/VA78WA2DEO |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: No topic is taboo! If you have questions on disability, irregular symptoms,intimacy, or hair loss please don’t hesitate to ask. #LupusChat https://t.co/5fbxAjTryi |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Our #LupusChat host, @TiffanyAndLupus isn't feeling well today, so she won't be with us today. We are sending her love, hugs & well wishes! https://t.co/tb1sXeSLAI |
| #LupusChat @Lupus_Chat Please include ~> #LupusChat in EACH of your tweets so we are able to see them & share with the online #lupus community! https://t.co/20ksCFYpO4 |
| #LupusChat @Lupus_Chat Juntos, como comunidad, cada uno de nosotros podemos ayudar a proveer respuestas mutuamente compartiendo nuestras experiencias. #LupusChat https://t.co/0WHIAsIwPK |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: https://t.co/VA78WA2DEO |
| #LupusChat @Lupus_Chat Please use Q1 or A1 to answer each question. This helps us add your thoughts to our post-chat in the proper order. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Our #LupusChat host, @TiffanyAndLupus isn't feeling well today, so she won't be with us today. We are sending her love, hugs & well wishes! https://t.co/tb1sXeSLAI |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Please use Q1 or A1 to answer each question. This helps us add your thoughts to our post-chat in the proper order. #LupusChat |
| #LupusChat @Lupus_Chat Utilice Q1 o A1 para responder a cada pregunta. Esto nos ayuda a añadir sus comentarios a nuestro post-chat en el orden correcto. #LupusChat |
| #LupusChat @Lupus_Chat As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Utilice Q1 o A1 para responder a cada pregunta. Esto nos ayuda a añadir sus comentarios a nuestro post-chat en el orden correcto. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our #LupusChat host, @TiffanyAndLupus isn't feeling well today, so she won't be with us today. We are sending her love, hugs & well wishes! https://t.co/tb1sXeSLAI |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Please include ~> #LupusChat in EACH of your tweets so we are able to see them & share with the online #lupus community! https://t.co/20ksCFYpO4 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: Before we get started let's go over some #LupusChat guidelines that help keep our conversation flowing smoothly: https://t.co/VA78WA2DEO |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please include ~> #LupusChat in EACH of your tweets so we are able to see them & share with the online #lupus community! https://t.co/20ksCFYpO4 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Juntos, como comunidad, cada uno de nosotros podemos ayudar a proveer respuestas mutuamente compartiendo nuestras experiencias. #LupusChat https://t.co/0WHIAsIwPK |
 | Rachael (rah-shell) Jay ⚡ @_RachaelTV RT @SynceNerd_Carli: It's #LupusChat tiimmmeeeee! Lets goooooo! https://t.co/Ncl3BqlIAC |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please use Q1 or A1 to answer each question. This helps us add your thoughts to our post-chat in the proper order. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our #LupusChat host, @TiffanyAndLupus isn't feeling well today, so she won't be with us today. We are sending her love, hugs & well wishes! https://t.co/tb1sXeSLAI |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilice Q1 o A1 para responder a cada pregunta. Esto nos ayuda a añadir sus comentarios a nuestro post-chat en el orden correcto. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @TiffanyAndLupus Feel better (((HUGS))) #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Please use Q1 or A1 to answer each question. This helps us add your thoughts to our post-chat in the proper order. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Please include ~> #LupusChat in EACH of your tweets so we are able to see them & share with the online #lupus community! https://t.co/20ksCFYpO4 |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what you'd like to discuss more with your doctor. https://t.co/bdafKkbPvj |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what you'd like to discuss more with your doctor. https://t.co/bdafKkbPvj |
| #LupusChat @Lupus_Chat Vamos a empezar nuestra fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y lo que le gustaría discutir más con su médico https://t.co/S53rXoXo0R |
| Peter Morley @morethanmySLE @MizJfromtheDot @Lupus_Chat Miz, worst for me too. I was in LA for 5 days & made huge difference b/c of dry heat. Would love a good suggestion living in NYC.#LupusChat |
 | IrishRed @Dway79 @SarahLSmith677 have u seen this? https://t.co/Gf1MKASlNN |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @MizJfromtheDot @Lupus_Chat Miz, worst for me too. I was in LA for 5 days & made huge difference b/c of dry heat. Would love a good suggestion living in NYC.#LupusChat |
| Carly by Nature @SynceNerd_Carli Carly in VA, Dx'd w/ SLE/Nephritis &Raynauds in 2011, co-host of #lupuschat, I actually get a new Dr. soon so, making sure theyre up to date |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what you'd like to discuss more with your doctor. https://t.co/bdafKkbPvj |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Vamos a empezar nuestra fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y lo que le gustaría discutir más con su médico https://t.co/S53rXoXo0R |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what you'd like to discuss more with your doctor. https://t.co/bdafKkbPvj |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what you'd like to discuss more with your doctor. https://t.co/bdafKkbPvj |
| RaquelRoschell @raquelonpurpose Hello! Raquel here in TX..living with Lupus. I want to talk more about what all the meds actually do to my body. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot Jenn! Toronto! lupus among other autoimmune/auto inflammatory diseases ALOT!! Appt on Thursday! ;) https://t.co/lwr9RkalRq |
| Peter Morley @morethanmySLE @Lupus_Chat Peter Morley, NYC, Patient & Advocate(thanks to #LupusChat) and would love to find more answers to combat #Lupus fog, so frustrating! |
| MizJ 🇨🇦 @MizJfromtheDot @morethanmySLE @Lupus_Chat Interesting LA eh!! I've also heard along the equator or Arizona as well! #lupuschat @Lupus_Chat |
 | Caring For Lupus @CaringForLupus RT @Lupus_Chat: Our #LupusChat host, @TiffanyAndLupus isn't feeling well today, so she won't be with us today. We are sending her love, hugs & well wishes! https://t.co/tb1sXeSLAI |
 | Bèl ti manmie Rosie @Tinarsjn Pourquoi #LupusChat se fait en anglais et en espagnol mais pas en français? N'y a t-il pas un "host" qui parle cette langue? |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Please include ~> #LupusChat in EACH of your tweets so we are able to see them & share with the online #lupus community! https://t.co/20ksCFYpO4 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Juntos, como comunidad, cada uno de nosotros podemos ayudar a proveer respuestas mutuamente compartiendo nuestras experiencias. #LupusChat https://t.co/0WHIAsIwPK |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I want to discuss medication,nutrition and exercise with my doctors. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Utilice Q1 o A1 para responder a cada pregunta. Esto nos ayuda a añadir sus comentarios a nuestro post-chat en el orden correcto. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Please use Q1 or A1 to answer each question. This helps us add your thoughts to our post-chat in the proper order. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always remember to be respectful to each other & save all personal questions for after #LupusChat, and respect all our co-hosts/guests. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus & what you'd like to discuss more with your doctor. https://t.co/bdafKkbPvj |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Vamos a empezar nuestra fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y lo que le gustaría discutir más con su médico https://t.co/S53rXoXo0R |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi I'm Christele, #LupusChat co-host in Queens NY. I was diagnosed in 07. I want to discuss how changing weather affects my Lupus #LupusChat |
| #LupusChat @Lupus_Chat Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/yTVxIIhjMY |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I want to discuss medication,nutrition and exercise with my doctors. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/yTVxIIhjMY |
| Peter Morley @morethanmySLE @MizJfromtheDot @Lupus_Chat Miz, I was in heaven in LA, seriously, about 25% better. When I got off plane back in NYC, all symptoms came back. 💔 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Bonsoir! Je parle Français! #LupusChat https://t.co/EWwnmMrpW7 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Here comes our 1st topic question! Everyone ready?! #LupusChat https://t.co/yTVxIIhjMY |
| MizJ 🇨🇦 @MizJfromtheDot 🤔🤔 I wonder about all year round or is it the season?? #lupuschat https://t.co/DjDIiBp94F |
| #LupusChat @Lupus_Chat Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| Peter Morley @morethanmySLE @harlem_peach So frustrating, my memory used to be something that I was KNOWN for. ugh! #LupusChat |
| RaquelRoschell @raquelonpurpose @missnaedotcom @Lupus_Chat @Thrown4aLup @iveyjanette_207 @morethanmySLE @WattyWattUSMC @cardiackenzie @IamCJakes @RenTheArts Just getting home..doing this as we chat😊. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @TheBigBrownGirl @morethanmySLE @Lupus_Chat Worth a go!!! #lupuschat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q1: Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @morethanmySLE: @Lupus_Chat Peter Morley, NYC, Patient & Advocate(thanks to #LupusChat) and would love to find more answers to combat #Lupus fog, so frustrating! |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Q1: Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| Bèl ti manmie Rosie @Tinarsjn Pourquoi donc les questions ne sont pas disponible en français? https://t.co/UvKMdiYHrl |
| #LupusChat @Lupus_Chat @RachaelJPeart Welcome back to #LupusChat Rachael! Great to have you joining again. Nutrition is an excellent topic to bring up with your doctor! |
| Peter Morley @morethanmySLE @MizJfromtheDot On a beautiful day in NYC like today, it's wonderful. I find the barometric pressure has a lot to do w/it @RobMayeda might know? #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat My name is Elizabeth from NJ A #LupusChat Co-host My daughter is a Lupus Warrior 💪 I would like to learn more about medicines in children |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @MizJfromtheDot On a beautiful day in NYC like today, it's wonderful. I find the barometric pressure has a lot to do w/it @RobMayeda might know? #LupusChat |
| Peter Morley @morethanmySLE @RenTheArts @Lupus_Chat Ren!! ❤️ #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @dancinginmyseat A1. Yes. I have the main lupus symptoms,but most of my test results for ANA and metabolic panel are normal. #LupusChat |
| #LupusChat @Lupus_Chat @morethanmySLE Welcome back to #LupusChat Peter! Always a pleasure to have you with us. Agreed, Lupus fog is very frustrating. Great topic to discuss w/Dr. |
| MizJ 🇨🇦 @MizJfromtheDot @Lupus_Chat @dancinginmyseat Totally!! Lupus loves to hide! #lupuschat A1 |
| Caring For Lupus @CaringForLupus @morethanmySLE @MizJfromtheDot @Lupus_Chat Peter .. did you feel better LA? A friend from CA was visiting NY and mentioned the difference in weather and dry heat 🌤 #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @TheBigBrownGirl @morethanmySLE @Lupus_Chat At least some form of tracking machine! #lupuschat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Carly in VA, Dx'd w/ SLE/Nephritis &Raynauds in 2011, co-host of #lupuschat, I actually get a new Dr. soon so, making sure theyre up to date |
| MizJ 🇨🇦 @MizJfromtheDot RT @CaringForLupus: @morethanmySLE @MizJfromtheDot @Lupus_Chat Peter .. did you feel better LA? A friend from CA was visiting NY and mentioned the difference in weather and dry heat 🌤 #LupusChat |
| Peter Morley @morethanmySLE @Lupus_Chat @dancinginmyseat Q1: YES. These tests are designed to show current activity/inflammation, etc. Sometimes I test ➕ & feel great. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. It is absolutely possible. Tests can "look normal" but the way the patient feels doesn't correlate. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| #LupusChat @Lupus_Chat Thank you for that great question @dancinginmyseat! Our next member suggested question is coming up next. #LupusChat https://t.co/97MemTukA5 |
 | Lesia Williams @LesiaWilliams19 RT @morethanmySLE: @Lupus_Chat @dancinginmyseat Q1: @Lupus_Chat @dancinginmyseat Q1: YES. These tests are designed to show current activity/inflammation, etc. Sometimes I test ➕ & feel great. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @CaringForLupus @morethanmySLE @Lupus_Chat Did they find it better in NYC or LA? #lupuschat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A1. It is absolutely possible. Tests can "look normal" but the way the patient feels doesn't correlate. #LupusChat |
| Peter Morley @morethanmySLE @RenTheArts Make sure you share your info about your movie! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @morethanmySLE: @Lupus_Chat @dancinginmyseat Q1: @Lupus_Chat @dancinginmyseat Q1: YES. These tests are designed to show current activity/inflammation, etc. Sometimes I test ➕ & feel great. #LupusChat |
| RaquelRoschell @raquelonpurpose @Xtel007 Can we put this on tshirt or something?! #LupusChat |
| RaquelRoschell @raquelonpurpose RT @morethanmySLE: @Lupus_Chat @dancinginmyseat Q1: @Lupus_Chat @dancinginmyseat Q1: YES. These tests are designed to show current activity/inflammation, etc. Sometimes I test ➕ & feel great. #LupusChat |
| Peter Morley @morethanmySLE @Lupus_Chat Always great to be here. I am staying as long as I can, it's gorgeous outside & partner just got home. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. It is absolutely possible. Tests can "look normal" but the way the patient feels doesn't correlate. #LupusChat |
| Caring For Lupus @CaringForLupus RT @morethanmySLE: @Lupus_Chat @dancinginmyseat Q1: @Lupus_Chat @dancinginmyseat Q1: YES. These tests are designed to show current activity/inflammation, etc. Sometimes I test ➕ & feel great. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Right?! Lol #LupusChat https://t.co/zYI6xM2IkO |
| Peter Morley @morethanmySLE @CaringForLupus @MizJfromtheDot @Lupus_Chat Yes, at least 25% better. It was like I took some magical medication! #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV RT @Lupus_Chat: Welcome to the #LupusChat Community Forum! Today we will be having an open forum where you can share any question on your mind. https://t.co/w3m0tKP64i |
| #LupusChat @Lupus_Chat Q2: How do changes in the weather affect your Lupus and how do you handle it? (Submitted by @MizJfromtheDot) #LupusChat https://t.co/nZAmUKDHUY |
 | Dwreck Ingram🇭🇹 FKA ZADDY @IAMDWRECK Lupus Isn’t Only a “Women’s Disease”: Coping Tips for Men with #Lupus #LupusChat https://t.co/s9hOmW9Kyo |
 | Humor in Chaos @HumorInChaos @Lupus_Chat @Lupus_Chat #LupusChat Sarah, Los Angeles, SLE ITP APS IBS Fibro - I would like discussions about ongoing pain taken seriously by docs. |
| #LupusChat @Lupus_Chat @iveyjanette_207 Great to have you at #LupusChat again, Ivey! |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: How do changes in the weather affect your Lupus and how do you handle it? (Submitted by @MizJfromtheDot) #LupusChat https://t.co/nZAmUKDHUY |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I want to discuss medication,nutrition and exercise with my doctors. #LupusChat |
| #LupusChat @Lupus_Chat RT @morethanmySLE: @Lupus_Chat Peter Morley, NYC, Patient & Advocate(thanks to #LupusChat) and would love to find more answers to combat #Lupus fog, so frustrating! |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: How do changes in the weather affect your Lupus and how do you handle it? (Submitted by @MizJfromtheDot) #LupusChat https://t.co/nZAmUKDHUY |
| #LupusChat @Lupus_Chat @mommade4change Any specific question about hair loss? #LupusChat |
| Peter Morley @morethanmySLE @mommade4change @Xtel007 I understand this and you understand this, but some people don't and are very frustrated. My💔for them. Hope this awareness helps #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I am currently forcing myself to stay awake for this chat. The heat is making me so drowsy. I can barely keep my eyes open. #LupusChat |
| #LupusChat @Lupus_Chat A2. #LupusChat https://t.co/h5AlaTVphs |
| #LupusChat @Lupus_Chat RT @RenTheArts: |
 | Dr. Drew Huffman @drdrewhuffman RT @Lupus_Chat: A2. #LupusChat https://t.co/h5AlaTVphs |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Stayed awake long enough to be here...worked early this morning(3:30-9). #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @MizJfromtheDot @Lupus_Chat Miz, I was in heaven in LA, seriously, about 25% better. When I got off plane back in NYC, all symptoms came back. 💔 #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Q2: Q2: How do changes in the weather affect your Lupus and how do you handle it? (Submitted by @MizJfromtheDot) #LupusChat https://t.co/nZAmUKDHUY |
| Caring For Lupus @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: Yes, weather plays a big factor with Lupus patients. The humidity affects my daughter. It drains the energy out of her. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @CaringForLupus @MizJfromtheDot @Lupus_Chat Yes, at least 25% better. It was like I took some magical medication! #LupusChat |
 | David Lazar, MD MPH @DrDavidLazar @Xtel007 This is an interesting point, challenging to explain 2 patients. It's likely we don't have all inflammation blood tests available #LupusChat |
| #LupusChat @Lupus_Chat @RenTheArts Welcome back, Ren! Thanks for joining us for #LupusChat. We hope you're able to find a new Rheumatologist soon! |
| RaquelRoschell @raquelonpurpose @Lupus_Chat Why? Why does it happen? Any kind of preventive measures? #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. It's important to stay properly hydrated and stay as cool as possible #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV A2 being in the Midwest last winter was my first real taste of seasonal depression and it was rough to say the least. #lupuschat https://t.co/eUhRyzID9Q |
| Peter Morley @morethanmySLE @Xtel007 Glad you are here. 💜 #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @Xtel007 This is an interesting point, challenging to explain 2 patients. It's likely we don't have all inflammation blood tests available #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: How do changes in the weather affect your Lupus and how do you handle it? (Submitted by @MizJfromtheDot) #LupusChat https://t.co/nZAmUKDHUY |
| Peter Morley @morethanmySLE @iveyjanette_207 @Lupus_Chat Glad you are here, Ivey. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @CaringForLupus @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli Yes!!! #fatigue is terrible #headaches #inflammation #swelling ugh?! #tips and #tricks #lupuschat |
| MizJ 🇨🇦 @MizJfromtheDot RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: Yes, weather plays a big factor with Lupus patients. The humidity affects my daughter. It drains the energy out of her. #LupusChat |
| #LupusChat @Lupus_Chat @SarahNe40856484 Welcome to #LupusChat Sarah! Thanks for joining us. |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: Yes, weather plays a big factor with Lupus patients. The humidity affects my daughter. It drains the energy out of her. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. And then on the flip side, the cold also makes me feel slow and lethargic. Just can't win smh #LupusChat |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2: Yes, weather plays a big factor with Lupus patients. The humidity affects my daughter. It drains the energy out of her. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @SarahNe40856484 @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Ditto!!! It's like heat intolerance within minutes #annoying A2 #lupuschat #tips and #tricks |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV A2 (cont) but on flip side, for my career, it is great to experience + learn in all four seasons...wheres the happy medium place? #lupuschat |
| Peter Morley @morethanmySLE @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli Me too. Feel like my body is beaten-up during humidity. I weigh 140lbs. and humidity makes me feel like I'm carrying 250lbs. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A2. I definitely see an increase in joint pain during cold or inclement weather. And heat-related issues(fatigue,rash,etc). #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @SarahNe40856484 @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Where do you live? #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @DrDavidLazar Do you think we'll ever have all the tests? #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @iveyjanette_207: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A2. I definitely see an increase in joint pain during cold or inclement weather. And heat-related issues(fatigue,rash,etc). #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV A2 (cont) but on flip side, for my career, it is great to experience + learn in all four seasons...my only real issue is winter #lupuschat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli Me too. Feel like my body is beaten-up during humidity. I weigh 140lbs. and humidity makes me feel like I'm carrying 250lbs. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @morethanmySLE Glad you're here as well, Peter. #LupusChat |
| Caring For Lupus @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 Because my daughter is still in school, we made arrangements & her classroom has A/C. She also carries with her cooling wipes #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q2: Q2: How do changes in the weather affect your Lupus and how do you handle it? (Submitted by @MizJfromtheDot) #LupusChat https://t.co/nZAmUKDHUY |
| Peter Morley @morethanmySLE @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A1 I wear socks 24/7 b/c of cold weather or A/C. In summer, only go out before 10am or after 3pm, wear hat & stay in shade. #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV A2 long story short...weather runs my life one way or another hahah #lupuschat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A2. I definitely see an increase in joint pain during cold or inclement weather. And heat-related issues(fatigue,rash,etc). #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @CaringForLupus @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli Cooling wipes!! 🤔 #newidea A2 #lupuschat |
| MizJ 🇨🇦 @MizJfromtheDot RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 Because my daughter is still in school, we made arrangements & her classroom has A/C. She also carries with her cooling wipes #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A1 I wear socks 24/7 b/c of cold weather or A/C. In summer, only go out before 10am or after 3pm, wear hat & stay in shade. #LupusChat |
| #LupusChat @Lupus_Chat RT @morethanmySLE: @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli Me too. Feel like my body is beaten-up during humidity. I weigh 140lbs. and humidity makes me feel like I'm carrying 250lbs. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A2. I definitely see an increase in joint pain during cold or inclement weather. And heat-related issues(fatigue,rash,etc). #LupusChat |
| RaquelRoschell @raquelonpurpose Texas Sun = Rashes #LupusChat |
| Caring For Lupus @CaringForLupus RT @morethanmySLE: @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli Me too. Feel like my body is beaten-up during humidity. I weigh 140lbs. and humidity makes me feel like I'm carrying 250lbs. #LupusChat |
 | Rayki @iamrayki @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli For me summer is the worst. The sun is draining and causes more inflammation & pain than I can handle. #LupusChat #A2 |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 Because my daughter is still in school, we made arrangements & her classroom has A/C. She also carries with her cooling wipes #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @morethanmySLE @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Ditto on all of the above!! #lupuschat A2 |
| #LupusChat @Lupus_Chat RT @morethanmySLE: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A1 I wear socks 24/7 b/c of cold weather or A/C. In summer, only go out before 10am or after 3pm, wear hat & stay in shade. #LupusChat |
| #LupusChat @Lupus_Chat RT @iamrayki: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli For me summer is the worst. The sun is draining and causes more inflammation & pain than I can handle. #LupusChat #A2 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @RachaelJPeart I usually do well in the summer. I think the fact that we didn't realty have a spring transition period got my body all confused. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @SarahNe40856484 @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Does it make a difference closer to the ocean 🤔 #lupuschat |
| MizJ 🇨🇦 @MizJfromtheDot RT @iamrayki: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli For me summer is the worst. The sun is draining and causes more inflammation & pain than I can handle. #LupusChat #A2 |
| Peter Morley @morethanmySLE @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A2: There's clothing you can buy with built-in SPF for photosensitivity. In cold, dress in layers so don't feel bogged-down. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Facts facts facts. #LupusChat https://t.co/GAHdkQY9Z8 |
| RaquelRoschell @raquelonpurpose RT @morethanmySLE: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A2: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A2: There's clothing you can buy with built-in SPF for photosensitivity. In cold, dress in layers so don't feel bogged-down. #LupusChat |
| #LupusChat @Lupus_Chat Q3: What causes Lupus hair loss and are there any preventative measures we can take against it? (Submitted by @mommade4change) #LupusChat https://t.co/wbtlGSJtpQ |
| MizJ 🇨🇦 @MizJfromtheDot @morethanmySLE @Lupus_Chat @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Oh I've got hats and wraps and dresses and umbrellas feel like a princess when I'm out 🤣🤣 great for the sun but..... #lupuschat A2 #tips |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q3: Q3: What causes Lupus hair loss and are there any preventative measures we can take against it? (Submitted by @mommade4change) #LupusChat https://t.co/wbtlGSJtpQ |
| #LupusChat @Lupus_Chat RT @morethanmySLE: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A2: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q2:A2: There's clothing you can buy with built-in SPF for photosensitivity. In cold, dress in layers so don't feel bogged-down. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: What causes Lupus hair loss and are there any preventative measures we can take against it? (Submitted by @mommade4change) #LupusChat https://t.co/wbtlGSJtpQ |
 | DaRealSerendipity @SerendipityEm7 RT @iamrayki: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli For me summer is the worst. The sun is draining and causes more inflammation & pain than I can handle. #LupusChat #A2 |
| Caring For Lupus @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 As a mom I plan outdoor activities during summer & I have backup ideas 4 those activities if the weather is 2 warm or 2 humid #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Q3: Q3: What causes Lupus hair loss and are there any preventative measures we can take against it? (Submitted by @mommade4change) #LupusChat https://t.co/wbtlGSJtpQ |
| MizJ 🇨🇦 @MizJfromtheDot RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 As a mom I plan outdoor activities during summer & I have backup ideas 4 those activities if the weather is 2 warm or 2 humid #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 As a mom I plan outdoor activities during summer & I have backup ideas 4 those activities if the weather is 2 warm or 2 humid #LupusChat |
| Peter Morley @morethanmySLE @Xtel007 Thank you, so glad too! 💜 Hope you stabilize a bit soon! #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: What causes Lupus hair loss and are there any preventative measures we can take against it? (Submitted by @mommade4change) #LupusChat https://t.co/wbtlGSJtpQ |
| Peter Morley @morethanmySLE @Lupus_Chat @mommade4change Q3: Methotrexate (#Lupus treatment) can cause hair loss. Only used it for 6 mo., did not experience it (but others have). #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @Lupus_Chat @mommade4change Q3: @Lupus_Chat @mommade4change Q3: Methotrexate (#Lupus treatment) can cause hair loss. Only used it for 6 mo., did not experience it (but others have). #LupusChat |
| Caring For Lupus @CaringForLupus @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli Miah says that it works and she feels a difference. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. Idk what causes the hair loss. And I dont have much experience with this, but I think topical steroids can be prescribed #LupusChat |
| RaquelRoschell @raquelonpurpose RT @morethanmySLE: @Lupus_Chat @mommade4change Q3: @Lupus_Chat @mommade4change Q3: Methotrexate (#Lupus treatment) can cause hair loss. Only used it for 6 mo., did not experience it (but others have). #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @CaringForLupus @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli What are they called? I'm getting some!! #coolingwipes #lupuschat #tips |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @morethanmySLE: @Lupus_Chat @mommade4change Q3: @Lupus_Chat @mommade4change Q3: Methotrexate (#Lupus treatment) can cause hair loss. Only used it for 6 mo., did not experience it (but others have). #LupusChat |
| #LupusChat @Lupus_Chat RT @morethanmySLE: @Lupus_Chat @mommade4change Q3: @Lupus_Chat @mommade4change Q3: Methotrexate (#Lupus treatment) can cause hair loss. Only used it for 6 mo., did not experience it (but others have). #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @iveyjanette_207: @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @iveyjanette_207 @Lupus_Chat @mommade4change Which vitamins help with this? #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| #LupusChat @Lupus_Chat Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| RaquelRoschell @raquelonpurpose @iveyjanette_207 @Lupus_Chat Thank you💜. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Q4: Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| Humor in Chaos @HumorInChaos @Lupus_Chat @mommade4change A3: #LupusChat My hair falls out, grows back, cycles. If I keep it short, seems to help. For me, it must be the lupus based on blood work. |
| MizJ 🇨🇦 @MizJfromtheDot @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Personally I can only manage on my "good days" hence why I work from home and work for myself! A4 #lupuschat |
| DaRealSerendipity @SerendipityEm7 RT @iveyjanette_207: @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| Caring For Lupus @CaringForLupus A2 @morethanmySLE A2 I was told by a organization about this product 🌤Sun Guard⤵ It makes your 👚clothes 👕SPF #LupusChat https://t.co/i6EG9pkpnY |
| Peter Morley @morethanmySLE @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli I love how you advocated for your daughter for A/C in 🏫. That is so inspirational. Thank you for sharing that. You made me 🙂.💜💪 #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli I love how you advocated for your daughter for A/C in 🏫. That is so inspirational. Thank you for sharing that. You made me 🙂.💜💪 #LupusChat |
| #LupusChat @Lupus_Chat RT @MizJfromtheDot: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Personally I can only manage on my "good days" hence why I work from home and work for myself! A4 #lupuschat |
| #LupusChat @Lupus_Chat RT @SarahNe40856484: @Lupus_Chat @mommade4change A3: @Lupus_Chat @mommade4change A3: #LupusChat My hair falls out, grows back, cycles. If I keep it short, seems to help. For me, it must be the lupus based on blood work. |
| MizJ 🇨🇦 @MizJfromtheDot @morethanmySLE @CaringForLupus @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli Completely agree!! #amazingmom #lupuschat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Xtel007 @Lupus_Chat @mommade4change I took biotin. And a hair and nails supplement with B vitamins. I also cut out a lot of greasy styling products. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: What causes Lupus hair loss and are there any preventative measures we can take against it? (Submitted by @mommade4change) #LupusChat https://t.co/wbtlGSJtpQ |
| RaquelRoschell @raquelonpurpose RT @SarahNe40856484: @Lupus_Chat @mommade4change A3: @Lupus_Chat @mommade4change A3: #LupusChat My hair falls out, grows back, cycles. If I keep it short, seems to help. For me, it must be the lupus based on blood work. |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Xtel007 @Lupus_Chat @mommade4change I took biotin. And a hair and nails supplement with B vitamins. I also cut out a lot of greasy styling products. #LupusChat |
| Caring For Lupus @CaringForLupus RT @morethanmySLE: @Lupus_Chat @mommade4change Q3: @Lupus_Chat @mommade4change Q3: Methotrexate (#Lupus treatment) can cause hair loss. Only used it for 6 mo., did not experience it (but others have). #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat @mommade4change A3. Lupus flares can cause hair loss. It did for me 15 years ago. I took vitamin supplements and changed hairstyles. Hair grew. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SarahNe40856484: @Lupus_Chat @mommade4change A3: @Lupus_Chat @mommade4change A3: #LupusChat My hair falls out, grows back, cycles. If I keep it short, seems to help. For me, it must be the lupus based on blood work. |
| RaquelRoschell @raquelonpurpose @SarahNe40856484 @Lupus_Chat I experience the same. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Xtel007 @Lupus_Chat @mommade4change I took biotin. And a hair and nails supplement with B vitamins. I also cut out a lot of greasy styling products. #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV A4 thankfully when i'm at work mon-wed, i come in a little later so more rest. weekend shifts mean more snacks to get through #lupuschat https://t.co/kg18Hqx1Ki |
| Peter Morley @morethanmySLE @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: I was disabled by spinal fusion failures & #kidneycancer before #Lupus. I haven't been able to fully work since 2007. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| Peter Morley @morethanmySLE @CaringForLupus Thank you, this is GREAT information, did not know, appreciate it. 💜 #LupusChat |
 | DrDinD🟧🇺🇲🇺🇦 He/Him @DrDinD RT @morethanmySLE: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: I was disabled by spinal fusion failures & #kidneycancer before #Lupus. I haven't been able to fully work since 2007. #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV @CaringForLupus @morethanmySLE well my birthday is coming up so let me ask for this haha #lupuschat |
| #LupusChat @Lupus_Chat RT @morethanmySLE: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: I was disabled by spinal fusion failures & #kidneycancer before #Lupus. I haven't been able to fully work since 2007. #LupusChat |
| #LupusChat @Lupus_Chat RT @RachaelJPeart: A4 thankfully when i'm at work mon-wed, i come in a little later so more rest. weekend shifts mean more snacks to get through #lupuschat https://t.co/kg18Hqx1Ki |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A4. I drink plenty of water or Gatorade. I try to bring a healthy home-cooked meal for lunch. And take breaks when I can. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @TheBigBrownGirl @Xtel007 @Lupus_Chat @mommade4change It worked for me. B complex is always good for your health,regardless of condition. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @morethanmySLE: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: I was disabled by spinal fusion failures & #kidneycancer before #Lupus. I haven't been able to fully work since 2007. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @iveyjanette_207 @TheBigBrownGirl @Lupus_Chat @mommade4change Yes I recently started taking B Complex regularly. I think it helps. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A4. I drink plenty of water or Gatorade. I try to bring a healthy home-cooked meal for lunch. And take breaks when I can. #LupusChat |
| RaquelRoschell @raquelonpurpose @morethanmySLE @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Wow. So glad you're with us! #LupusChat |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @TheBigBrownGirl @Xtel007 @Lupus_Chat @mommade4change It worked for me. B complex is always good for your health,regardless of condition. #LupusChat |
| #LupusChat @Lupus_Chat Q5: What topics would you like us to feature in the future? #LupusChat https://t.co/JW0swFkPY8 |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Q5: Q5: What topics would you like us to feature in the future? #LupusChat https://t.co/JW0swFkPY8 |
 | Jen G @amzingrl RT @Lupus_Chat: Q4: Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: What topics would you like us to feature in the future? #LupusChat https://t.co/JW0swFkPY8 |
| Jen G @amzingrl RT @CaringForLupus: A2 @morethanmySLE A2 I was told by a organization about this product 🌤Sun Guard⤵ It makes your 👚clothes 👕SPF #LupusChat https://t.co/i6EG9pkpnY |
| RaquelRoschell @raquelonpurpose A4 Some days I wonder how I'm walking upright. Other days - I make time to breathe, meditate in my office & take a FULL break. #LupusChat https://t.co/CCDUL6kM0F |
| #LupusChat @Lupus_Chat @heykaristeele Hi Kari, welcome to #LupusChat and thanks for joining us. We will be sure to pose your question to the community. 💜 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: What topics would you like us to feature in the future? #LupusChat https://t.co/JW0swFkPY8 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @mommade4change: A4 Some days I wonder how I'm walking upright. Other days - I make time to breathe, meditate in my office & take a FULL break. #LupusChat https://t.co/CCDUL6kM0F |
| Caring For Lupus @CaringForLupus @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli This a picture 📷 #LupusChat https://t.co/UTDwFf2sER |
| MizJ 🇨🇦 @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus What do you do when you can't take nsaids ?? #lupuschat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q4: Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| MizJ 🇨🇦 @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus What treatments are working for everyone? #alternative #lupuschat |
| #LupusChat @Lupus_Chat RT @mommade4change: A4 Some days I wonder how I'm walking upright. Other days - I make time to breathe, meditate in my office & take a FULL break. #LupusChat https://t.co/CCDUL6kM0F |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. I'd like more convos on clinical research that's being done. More discussions on dealing with Lupus fog. #LupusChat |
| Caring For Lupus @CaringForLupus @morethanmySLE @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli Thank you for your kind words 💜🤚💜 #LupusChat |
 | RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Utilice Q1 o A1 para responder a cada pregunta. Esto nos ayuda a añadir sus comentarios a nuestro post-chat en el orden correcto. #LupusChat |
| Caring For Lupus @CaringForLupus RT @morethanmySLE: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli Q4: I was disabled by spinal fusion failures & #kidneycancer before #Lupus. I haven't been able to fully work since 2007. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q5: Q5: What topics would you like us to feature in the future? #LupusChat https://t.co/JW0swFkPY8 |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Juntos, como comunidad, cada uno de nosotros podemos ayudar a proveer respuestas mutuamente compartiendo nuestras experiencias. #LupusChat https://t.co/0WHIAsIwPK |
| Rayki @iamrayki @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus Good one. I would love an answer to that as well. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5. Nutrition. Exercise. Especially relating to lupus/fibromyalgia and/or lupus nephritis. #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q1: Q1: Is it possible to have Lupus but test normal on ESR, Metabolic panel, etc.? (Submitted by @dancinginmyseat) #LupusChat https://t.co/nlowhhyfxz |
| Peter Morley @morethanmySLE @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus Q5: #LupusFog, New Medications/treatments/homeopathic treatments, isolation b/c illness, advocating for #Lupus, caregivers & help.#LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @iamrayki: @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus Good one. I would love an answer to that as well. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 That is a very good one. #LupusChat https://t.co/ectFrIB7CW |
| MizJ 🇨🇦 @MizJfromtheDot RT @CaringForLupus: @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli This a picture 📷 #LupusChat https://t.co/UTDwFf2sER |
| Humor in Chaos @HumorInChaos @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5: #LupusChat How to manage all of your individual specialists? Finding a doctor to help you manage yourself as a whole? Problem for me. |
| RarasNoInvisibles @NoInvisibles RT @morethanmySLE: @harlem_peach So frustrating, my memory used to be something that I was KNOWN for. ugh! #LupusChat |
| Caring For Lupus @CaringForLupus @RachaelJPeart @morethanmySLE My daughter has #Photosensitivity 🌤 I'm so happy that there is a product like that. It gives you options. #Lupuschat |
| MizJ 🇨🇦 @MizJfromtheDot @CaringForLupus @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli Amazing you're the best! Thank you! #lupuschat |
| RarasNoInvisibles @NoInvisibles RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 As a mom I plan outdoor activities during summer & I have backup ideas 4 those activities if the weather is 2 warm or 2 humid #LupusChat |
 | Martita Solis @martitasolis732 RT @CaringForLupus: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli A2 As a mom I plan outdoor activities during summer & I have backup ideas 4 those activities if the weather is 2 warm or 2 humid #LupusChat |
| #LupusChat @Lupus_Chat Hey #LupusChat family, keep the questions & topics coming. Anything not covered during today's chat will be discussed in the future. https://t.co/lKbljZeFHV |
| RarasNoInvisibles @NoInvisibles RT @MizJfromtheDot: @TheBigBrownGirl @morethanmySLE @Lupus_Chat Worth a go!!! #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: What topics would you like us to feature in the future? #LupusChat https://t.co/JW0swFkPY8 |
| Caring For Lupus @CaringForLupus RT @mommade4change: A4 Some days I wonder how I'm walking upright. Other days - I make time to breathe, meditate in my office & take a FULL break. #LupusChat https://t.co/CCDUL6kM0F |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5. Nutrition. Exercise. Especially relating to lupus/fibromyalgia and/or lupus nephritis. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. I'd like more convos on clinical research that's being done. More discussions on dealing with Lupus fog. #LupusChat |
| Peter Morley @morethanmySLE @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli I am constantly amazed by your advocacy as a #caregiver & as a parent of child w/#Lupus. You are inspiring! So glad you're here. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5. Nutrition. Exercise. Especially relating to lupus/fibromyalgia and/or lupus nephritis. #LupusChat |
| Rachael (rah-shell) Jay ⚡ @_RachaelTV @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5 the roles of different doctors in lupus treatment (rheum, dietician, etc), nutrition, managing @ work, living a full life #lupuschat |
| Caring For Lupus @CaringForLupus RT @SarahNe40856484: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5: #LupusChat How to manage all of your individual specialists? Finding a doctor to help you manage yourself as a whole? Problem for me. |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @CaringForLupus @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @SynceNerd_Carli I am constantly amazed by your advocacy as a #caregiver & as a parent of child w/#Lupus. You are inspiring! So glad you're here. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot Me too!!!! #fun #please #lupuschat https://t.co/fgjfyGS1fK |
| RarasNoInvisibles @NoInvisibles RT @RenTheArts: |
| #LupusChat @Lupus_Chat Thank you for joining #LupusChat today & sharing all of your questions. It’s important to us that everyone has a chance to share their voice https://t.co/amr7CtuzUP |
| RarasNoInvisibles @NoInvisibles RT @iveyjanette_207: @Lupus_Chat @dancinginmyseat A1. Yes. I have the main lupus symptoms,but most of my test results for ANA and metabolic panel are normal. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @morethanmySLE: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus Q5: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus Q5: #LupusFog, New Medications/treatments/homeopathic treatments, isolation b/c illness, advocating for #Lupus, caregivers & help.#LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @SarahNe40856484: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5: #LupusChat How to manage all of your individual specialists? Finding a doctor to help you manage yourself as a whole? Problem for me. |
| MizJ 🇨🇦 @MizJfromtheDot RT @iveyjanette_207: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5. Nutrition. Exercise. Especially relating to lupus/fibromyalgia and/or lupus nephritis. #LupusChat |
| Peter Morley @morethanmySLE @iamrayki Only have heard good things. Everyone I know using it for #Lupus has had wonderful results. Needs more distribution & ⬇️ costs. #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @iveyjanette_207: @Lupus_Chat @Xtel007 @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli A4. I drink plenty of water or Gatorade. I try to bring a healthy home-cooked meal for lunch. And take breaks when I can. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Thank you for joining #LupusChat today & sharing all of your questions. It’s important to us that everyone has a chance to share their voice https://t.co/amr7CtuzUP |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q4: Q4: How do you manage energy levels and fatigue in the workplace? (Submitted by @Xtel007) #LupusChat https://t.co/WHXh0hk2Yd |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Hey #LupusChat family, keep the questions & topics coming. Anything not covered during today's chat will be discussed in the future. https://t.co/lKbljZeFHV |
| RarasNoInvisibles @NoInvisibles RT @mommade4change: A4 Some days I wonder how I'm walking upright. Other days - I make time to breathe, meditate in my office & take a FULL break. #LupusChat https://t.co/CCDUL6kM0F |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Thank you for joining #LupusChat today & sharing all of your questions. It’s important to us that everyone has a chance to share their voice https://t.co/amr7CtuzUP |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Thank you for joining #LupusChat today & sharing all of your questions. It’s important to us that everyone has a chance to share their voice https://t.co/amr7CtuzUP |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Hey #LupusChat family, keep the questions & topics coming. Anything not covered during today's chat will be discussed in the future. https://t.co/lKbljZeFHV |
| RaquelRoschell @raquelonpurpose @Lupus_Chat Another Awesome Chat💜💜. Will miss it while on break looking forward to the new season😍. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Thank you for joining #LupusChat today & sharing all of your questions. It’s important to us that everyone has a chance to share their voice https://t.co/amr7CtuzUP |
| Caring For Lupus @CaringForLupus RT @morethanmySLE: @iamrayki Only have heard good things. Everyone I know using it for #Lupus has had wonderful results. Needs more distribution & ⬇️ costs. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot Great #lupuschat today 👍👏😀 https://t.co/jHEUo0LeIX |
| Caring For Lupus @CaringForLupus RT @RachaelJPeart: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5 the roles of different doctors in lupus treatment (rheum, dietician, etc), nutrition, managing @ work, living a full life #lupuschat |
| Peter Morley @morethanmySLE @Lupus_Chat Thank you everyone & @TiffanyAndLupus @SynceNerd_Carli @Xtel007 @CaringForLupus without you there would be no #LupusChat So THANK YOU! 💜💜💜💜💜 https://t.co/UjYWgJGe6a |
 | Michelle C Bush @michelleCbush @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5 - advice on when it's good to "push through the pain" to be more active VS overdoing it & causing more harm / causing flares. #lupuschat |
| RarasNoInvisibles @NoInvisibles RT @iamrayki: @Lupus_Chat @MizJfromtheDot @TiffanyAndLupus @CaringForLupus @SynceNerd_Carli For me summer is the worst. The sun is draining and causes more inflammation & pain than I can handle. #LupusChat #A2 |
| MizJ 🇨🇦 @MizJfromtheDot @michelleCbush @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus Fantastic question!!! I never know!!! #lupuschat |
| MizJ 🇨🇦 @MizJfromtheDot RT @michelleCbush: @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli @CaringForLupus A5 - advice on when it's good to "push through the pain" to be more active VS overdoing it & causing more harm / causing flares. #lupuschat |
| RarasNoInvisibles @NoInvisibles RT @CaringForLupus: @MizJfromtheDot @Lupus_Chat @TiffanyAndLupus @SynceNerd_Carli This a picture 📷 #LupusChat https://t.co/UTDwFf2sER |
| #LupusChat @Lupus_Chat Today was our last #LupusChat for July. https://t.co/AyskjJVeiE |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Today was our last #LupusChat for July. https://t.co/AyskjJVeiE |
| MizJ 🇨🇦 @MizJfromtheDot RT @Lupus_Chat: Thank you for joining #LupusChat today & sharing all of your questions. It’s important to us that everyone has a chance to share their voice https://t.co/amr7CtuzUP |
#LupusChat content from Twitter.