#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
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See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Carly by Nature @SynceNerd_Carli #LupusChat tiiiiiiime! Let's gooooooooooooo!!! https://t.co/WwAGp2Jkxv |
 | #LupusChat @Lupus_Chat Welcome to #LupusChat! Today we’ll discuss how to have collaborative discussions & build a partnership w/ members of our healthcare team👩⚕️ https://t.co/SDIOYT5Hfh |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss how to have collaborative discussions & build a partnership w/ members of our healthcare team👩⚕️ https://t.co/SDIOYT5Hfh |
 | Tiffany ⁷ @TiffanyAndLupus Welcome to #LupusChat! Today we’ll discuss how to have collaborative discussions & build a partnership w/members of our healthcare team.👩⚕️ https://t.co/Dd0FMlWm6J |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Just a friendly reminder, you do not have to have lupus to join our #LupusChat discussions💜✨🤗 https://t.co/4ICUKnWIDY |
 | Scherly Leon, MD @SLeonMD RT @Lupus_Chat: Just a friendly reminder, you do not have to have lupus to join our #LupusChat discussions💜✨🤗 https://t.co/4ICUKnWIDY |
| #LupusChat @Lupus_Chat Bienvenidos a #LupusChat, Hoy hablaremos sobre cómo iniciar la colaboración y crear una asociación con miembros de equipo de salud médica https://t.co/gEPYIbQHNb |
| #LupusChat @Lupus_Chat Hola #LupusChat, Hoy hablaremos sobre cómo iniciar la colaboración y crear una asociación con miembros de nuestro equipo de salud médica https://t.co/fGPNiXv4Sw |
| Scherly Leon, MD @SLeonMD RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss how to have collaborative discussions & build a partnership w/ members of our healthcare team👩⚕️ https://t.co/SDIOYT5Hfh |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss how to have collaborative discussions & build a partnership w/ members of our healthcare team👩⚕️ https://t.co/SDIOYT5Hfh |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Hola #LupusChat, Hoy hablaremos sobre cómo iniciar la colaboración y crear una asociación con miembros de nuestro equipo de salud médica https://t.co/fGPNiXv4Sw |
| #LupusChat @Lupus_Chat Finding a doctor who respects & welcomes us as an active partner in our healthcare isn’t always easy so today we’ll discuss how. #LupusChat https://t.co/CnpcsxlfpG |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Aye it's #LupusChat timeeeee! https://t.co/wfqHhNZsbL |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Aye it's #LupusChat timeeeee! https://t.co/wfqHhNZsbL |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Finding a doctor who respects & welcomes us as an active partner in our healthcare isn’t always easy so today we’ll discuss how. #LupusChat https://t.co/CnpcsxlfpG |
 | MizJ 🇨🇦 @MizJfromtheDot #yesplease why don't they listen especially when we have the diagnosis (s) 🤷🏻♀️ #frustrating #ourbodies https://t.co/7xZ1HILNny |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Tiffany ⁷ @TiffanyAndLupus Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| #LupusChat @Lupus_Chat Encontrar un médico que nos acoge como un socio en nuestra sanidad no es siempre fácil, así que hoy vamos a discutir cómo. #LupusChat https://t.co/rCS940VnSB |
| #LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Encontrar un médico que nos acoge como un socio en nuestra sanidad no es siempre fácil, así que hoy vamos a discutir cómo. #LupusChat https://t.co/rCS940VnSB |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenidos a #LupusChat, Hoy hablaremos sobre cómo iniciar la colaboración y crear una asociación con miembros de equipo de salud médica https://t.co/gEPYIbQHNb |
| #LupusChat @Lupus_Chat If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
 | Jennifer L Filipink @sunflouers I wish my Lupus Doctor would talk w/ my pcp. https://t.co/92aC9aXFmx |
| #LupusChat @Lupus_Chat Use the tag ~> #LupusChat in EACH of your tweets to join the conversation. We will share them with the online #lupus community! https://t.co/JU3UX77f8K |
| Tiffany ⁷ @TiffanyAndLupus Use the tag ~> #LupusChat in EACH of your tweets to join the conversation. We will share them with the online #lupus community! https://t.co/aX8vRDqLQ3 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
| #LupusChat @Lupus_Chat Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @TiffanyAndLupus: Use the tag ~> #LupusChat in EACH of your tweets to join the conversation. We will share them with the online #lupus community! https://t.co/aX8vRDqLQ3 |
| #LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/xEePbpr5j7 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Use the tag ~> #LupusChat in EACH of your tweets to join the conversation. We will share them with the online #lupus community! https://t.co/JU3UX77f8K |
| #LupusChat @Lupus_Chat Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #Lupus! https://t.co/aBPHdXOhyA |
| MizJ 🇨🇦 @MizJfromtheDot RT @TiffanyAndLupus: Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat |
| #LupusChat @Lupus_Chat Utilizar Q1 o A1 para responder a cada pregunta. Esto ayuda a conectar sus respuestas a cada pregunta en nuestro post-chat #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/xEePbpr5j7 |
| #LupusChat @Lupus_Chat For each two-part question, make sure to add Q1A or A1B before each of your responses. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus For each two-part question, make sure to add Q1A or A1B before each of your responses. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #Lupus! https://t.co/aBPHdXOhyA |
| #LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. |
| Tiffany ⁷ @TiffanyAndLupus As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps connect your responses to each question in our post-chat. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilizar Q1 o A1 para responder a cada pregunta. Esto ayuda a conectar sus respuestas a cada pregunta en nuestro post-chat #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: For each two-part question, make sure to add Q1A or A1B before each of your responses. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
 | RaquelRoschell @raquelonpurpose Disclaimer: if you are new my feed..its about to be a #LupusChat takeover. @Lupus_Chat |
| #LupusChat @Lupus_Chat Para cada pregunta de dos partes, asegúrese de agregar Q1A o A1B antes de cada una de sus respuestas. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. |
| #LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: Disclaimer: Disclaimer: if you are new my feed..its about to be a #LupusChat takeover. @Lupus_Chat |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
| RaquelRoschell @raquelonpurpose Time for lunch and #LupusChat! Let's gooo! https://t.co/wj1dcr2eOt |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Para cada pregunta de dos partes, asegúrese de agregar Q1A o A1B antes de cada una de sus respuestas. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: If you are new to @Lupus_Chat & would like to know how to participate in the conversation, just click on the tag~> #LupusChat to join us! https://t.co/nK4qOQ7aCk |
 | You cant fight the good fight if you're dead @sickysummie Yeah #LupusChat! Picking out perfect tunes now 🎶🕺🏼 |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: Yeah #LupusChat! Picking out perfect tunes now 🎶🕺🏼 |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: Yeah #LupusChat! Picking out perfect tunes now 🎶🕺🏼 |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: Disclaimer: Disclaimer: if you are new my feed..its about to be a #LupusChat takeover. @Lupus_Chat |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: Time for lunch and #LupusChat! Let's gooo! https://t.co/wj1dcr2eOt |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
| Tiffany ⁷ @TiffanyAndLupus I’m Tiffany, your #LupusChat co-host from NYC. Been kicking lupus *ss since 2010! My must have for a Dr appt is my phone & health journal. https://t.co/awUKC2iOLu |
| MizJ 🇨🇦 @MizJfromtheDot RT @TiffanyAndLupus: I’m Tiffany, your #LupusChat co-host from NYC. Been kicking lupus *ss since 2010! My must have for a Dr appt is my phone & health journal. https://t.co/awUKC2iOLu |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: I’m Tiffany, your #LupusChat co-host from NYC. Been kicking lupus *ss since 2010! My must have for a Dr appt is my phone & health journal. https://t.co/awUKC2iOLu |
| #LupusChat @Lupus_Chat Comencemos la fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y que objeto debe tener usted cada cita médica? https://t.co/BbDIvmfSOX |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: I’m Tiffany, your #LupusChat co-host from NYC. Been kicking lupus *ss since 2010! My must have for a Dr appt is my phone & health journal. https://t.co/awUKC2iOLu |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
 | Caring For Lupus @CaringForLupus RT @Lupus_Chat: Just a friendly reminder, you do not have to have lupus to join our #LupusChat discussions💜✨🤗 https://t.co/4ICUKnWIDY |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Comencemos la fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y que objeto debe tener usted cada cita médica? https://t.co/BbDIvmfSOX |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 What’s up guys? Christele, #LupusChat co-host, I’ve had Lupus since april 2007. I always have snacks and full charge for my doc’s visit. https://t.co/DmACeqJQTF |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: I’m Tiffany, your #LupusChat co-host from NYC. Been kicking lupus *ss since 2010! My must have for a Dr appt is my phone & health journal. https://t.co/awUKC2iOLu |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Share your name, location, connection to lupus/healthcare & your ONE must-have for a doctor’s visit? https://t.co/sHPaUW9BYb |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Comencemos la fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y que objeto debe tener usted cada cita médica? https://t.co/BbDIvmfSOX |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Comencemos la fiesta #LupusChat! Comparta su nombre, ubicación, conexión con lupus y que objeto debe tener usted cada cita médica? https://t.co/BbDIvmfSOX |
| Carly by Nature @SynceNerd_Carli Carly in NYC, Smacking Lupus since ‘11, Co-host of #LupusChat. I take snacks & phone charger to Appts. Visits turn to admits very quickly! |
| #LupusChat @Lupus_Chat RT @Xtel007: What’s up guys? Christele, #LupusChat co-host, I’ve had Lupus since april 2007. I always have snacks and full charge for my doc’s visit. https://t.co/DmACeqJQTF |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I bring a list of questions to every doctor's visit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: What’s up guys? Christele, #LupusChat co-host, I’ve had Lupus since april 2007. I always have snacks and full charge for my doc’s visit. https://t.co/DmACeqJQTF |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Carly in NYC, Smacking Lupus since ‘11, Co-host of #LupusChat. I take snacks & phone charger to Appts. Visits turn to admits very quickly! |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Carly in NYC, Smacking Lupus since ‘11, Co-host of #LupusChat. I take snacks & phone charger to Appts. Visits turn to admits very quickly! |
| MizJ 🇨🇦 @MizJfromtheDot #lupuschat Toronto! Lupus warrior since 2013!! 💪 I always have my notebook that has my questions as well as past appointment notes! 📝 |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I bring a list of questions to every doctor's visit. #LupusChat |
| Caring For Lupus @CaringForLupus I’m Elizabeth from NJ. Co-Host of #LupusChat. My daughter is a Lupus Warrior. My phone is a must have item because I keep a picture journal https://t.co/pMV7LFCQWI |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I bring a list of questions to every doctor's visit. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I bring a list of questions to every doctor's visit. #LupusChat |
| Jennifer L Filipink @sunflouers #LupusChat Q1 Does the Benlysta help you? Q2 Do you have side effects? I'm also on it https://t.co/BEGjcGQtwv |
 | 🇭🇹🇺🇸Raindrops on roses 🇭🇹🇺🇸 @Pippilotta08 👋🏾 I’m Sophia, living in the DMV. SLE dx 2014. Docs Appt always includes more questions. This wolf is ever evolving. #LupusChat |
| #LupusChat @Lupus_Chat RT @MizJfromtheDot: #lupuschat Toronto! Lupus warrior since 2013!! 💪 I always have my notebook that has my questions as well as past appointment notes! 📝 |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: I’m Elizabeth from NJ. Co-Host of #LupusChat. My daughter is a Lupus Warrior. My phone is a must have item because I keep a picture journal https://t.co/pMV7LFCQWI |
| Tiffany ⁷ @TiffanyAndLupus RT @MizJfromtheDot: #lupuschat Toronto! Lupus warrior since 2013!! 💪 I always have my notebook that has my questions as well as past appointment notes! 📝 |
| #LupusChat @Lupus_Chat RT @CaringForLupus: I’m Elizabeth from NJ. Co-Host of #LupusChat. My daughter is a Lupus Warrior. My phone is a must have item because I keep a picture journal https://t.co/pMV7LFCQWI |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat Ivey! Bringing a list of questions is especially important! |
| #LupusChat @Lupus_Chat @CaringForLupus Absolutely love that we have your caregiver perspective shared at #LupusChat each and every week. Thank you Elizabeth! 💜 |
| #LupusChat @Lupus_Chat RT @Pippilotta08: 👋🏾 I’m Sophia, living in the DMV. SLE dx 2014. Docs Appt always includes more questions. This wolf is ever evolving. #LupusChat |
| Caring For Lupus @CaringForLupus Soy Elizabeth. Co-anfitrión de #LupusChat. Mi hija tiene lupus. Mi telefono es un elemento importante porque conservo un diario de imágenes https://t.co/3Z35v95KYO |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat I always do that. Along with medications and any symptoms that get worse between visits. Essential. #LupusChat |
| #LupusChat @Lupus_Chat @sunflouers Hi Jennifer, our #LupusChat has a specific topic today. Can you share your questions after our discussion, please & thank you! ☺️ |
| #LupusChat @Lupus_Chat RT @CaringForLupus: Soy Elizabeth. Co-anfitrión de #LupusChat. Mi hija tiene lupus. Mi telefono es un elemento importante porque conservo un diario de imágenes https://t.co/3Z35v95KYO |
| #LupusChat @Lupus_Chat Everyone ready? Here comes Question 1! #LupusChat https://t.co/7gTQ8Qc2Ti |
| #LupusChat @Lupus_Chat @Ksrnv Hi Kathleen, try refreshing your feed. We're tweeting in both English & Spanish today. We look forward to sharing with you. #LupusChat |
| #LupusChat @Lupus_Chat Están todos listos? Aquí viene la pregunta 1! (Q1) #LupusChat https://t.co/NOaR9kFkHT |
| Tiffany ⁷ @TiffanyAndLupus RT @Pippilotta08: 👋🏾 I’m Sophia, living in the DMV. SLE dx 2014. Docs Appt always includes more questions. This wolf is ever evolving. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: @sunflouers Hi Jennifer, our #LupusChat has a specific topic today. Can you share your questions after our discussion, please & thank you! ☺️ |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Everyone ready? Here comes Question 1! #LupusChat https://t.co/7gTQ8Qc2Ti |
| #LupusChat @Lupus_Chat Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/gT9hc8mlGD |
| Tiffany ⁷ @TiffanyAndLupus Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/NwsMmM7VSv |
 | Erin Kotecki Vest @QueenofSpain I'm Erin. Lupus warrior since 2010. I bring a phone plus charger & hand sanitizer and always keep a hospital GO bag ready #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @SynceNerd_Carli @Lupus_Chat I always do that. Along with medications and any symptoms that get worse between visits. Essential. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Soy Elizabeth. Co-anfitrión de #LupusChat. Mi hija tiene lupus. Mi telefono es un elemento importante porque conservo un diario de imágenes https://t.co/3Z35v95KYO |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: @CaringForLupus Absolutely love that we have your caregiver perspective shared at #LupusChat each and every week. Thank you Elizabeth! 💜 |
| Carly by Nature @SynceNerd_Carli RT @Pippilotta08: 👋🏾 I’m Sophia, living in the DMV. SLE dx 2014. Docs Appt always includes more questions. This wolf is ever evolving. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque,DX'd with SLE/lupus nephritis 1995. I bring a list of questions to every doctor's visit. #LupusChat |
| #LupusChat @Lupus_Chat Q1A: ¿Cuáles son sus preocupaciones al agregar un nuevo miembro a su equipo de salud? ¿Qué recursos utilizó para encontrarlos? #LupusChat https://t.co/CnY5QnKhlB |
| #LupusChat @Lupus_Chat RT @QueenofSpain: I'm Erin. Lupus warrior since 2010. I bring a phone plus charger & hand sanitizer and always keep a hospital GO bag ready #LupusChat |
 | Renee C. @MindBodyShift To every dr,'s appt., I bring a list of questions, list of meds, symptom diary & my phone (photos are key w/transient symptoms!) #LupusChat |
| #LupusChat @Lupus_Chat @sunflouers No worries, we look forward to sharing with you today! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @harlem_peach Hey girl! Do you ask your doc what labs he/she wants or asked for the lab script at the prev appt? #LupusChat |
| #LupusChat @Lupus_Chat @QueenofSpain Welcome back Erin! These are important essentials, especially hand sanitizer. Thank you for sharing! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: Soy Elizabeth. Co-anfitrión de #LupusChat. Mi hija tiene lupus. Mi telefono es un elemento importante porque conservo un diario de imágenes https://t.co/3Z35v95KYO |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: For each two-part question, make sure to add Q1A or A1B before each of your responses. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @TiffanyAndLupus A1 - concerns - do/will they understand the combination of diseases I have? Tools- ratemds & look up their credentials #lupuschat |
| Carly by Nature @SynceNerd_Carli @Pippilotta08 Welcome to #LupusChat Sophia! thanks for joining us today! |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1A: Q1A: ¿Cuáles son sus preocupaciones al agregar un nuevo miembro a su equipo de salud? ¿Qué recursos utilizó para encontrarlos? #LupusChat https://t.co/CnY5QnKhlB |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1A: Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/gT9hc8mlGD |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q1A: Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/gT9hc8mlGD |
| #LupusChat @Lupus_Chat RT @MizJfromtheDot: @TiffanyAndLupus A1 - concerns - do/will they understand the combination of diseases I have? Tools- ratemds & look up their credentials #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @MindBodyShift: To every dr,'s appt., I bring a list of questions, list of meds, symptom diary & my phone (photos are key w/transient symptoms!) #LupusChat |
| Jennifer L Filipink @sunflouers Q1 Do you think having your Lupus Doctor communicate with all your other Docs would help? If they would even bother doing it. https://t.co/8uOL9cDNjW |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1A: Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/gT9hc8mlGD |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1A: Q1A: ¿Cuáles son sus preocupaciones al agregar un nuevo miembro a su equipo de salud? ¿Qué recursos utilizó para encontrarlos? #LupusChat https://t.co/CnY5QnKhlB |
| You cant fight the good fight if you're dead @sickysummie I’m Summer in Seattle. I’ve had connective tissue disease since 2006. Dx’d arthritis 2012, lupus 2015 #LupusChat |
| RaquelRoschell @raquelonpurpose My name is Raquel. Currently reside in TX with Lupus & Arthritis. I always take the little card that pays for the doc visit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @MizJfromtheDot: @TiffanyAndLupus A1 - concerns - do/will they understand the combination of diseases I have? Tools- ratemds & look up their credentials #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1A: Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/gT9hc8mlGD |
| Caring For Lupus @CaringForLupus A1a: When we need 2 add new specialist 2 my daughter’s care team I need 2 make sure that the specialist acknowledges the symptoms #LupusChat |
| Carly by Nature @SynceNerd_Carli @SnSWatkins @Lupus_Chat Welcome to #LupusChat Sue! Good to have you with us! |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @MizJfromtheDot: @TiffanyAndLupus A1 - concerns - do/will they understand the combination of diseases I have? Tools- ratemds & look up their credentials #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @MizJfromtheDot: @TiffanyAndLupus A1 - concerns - do/will they understand the combination of diseases I have? Tools- ratemds & look up their credentials #lupuschat |
| #LupusChat @Lupus_Chat RT @sickysummie: I’m Summer in Seattle. I’ve had connective tissue disease since 2006. Dx’d arthritis 2012, lupus 2015 #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: My name is Raquel. Currently reside in TX with Lupus & Arthritis. I always take the little card that pays for the doc visit. #LupusChat |
| Caring For Lupus @CaringForLupus A1a; My daughter’s rheumatologist usually provides a couple of names within the same hospital network #Lupuschat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1a: A1a: When we need 2 add new specialist 2 my daughter’s care team I need 2 make sure that the specialist acknowledges the symptoms #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Carly in NYC, Smacking Lupus since ‘11, Co-host of #LupusChat. I take snacks & phone charger to Appts. Visits turn to admits very quickly! |
| Carly by Nature @SynceNerd_Carli RT @QueenofSpain: I'm Erin. Lupus warrior since 2010. I bring a phone plus charger & hand sanitizer and always keep a hospital GO bag ready #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1a: A1a: When we need 2 add new specialist 2 my daughter’s care team I need 2 make sure that the specialist acknowledges the symptoms #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1A. I worry about whether or not that specialist/HCP will take my overall health and quality of life into consideration. #LupusChat |
| Caring For Lupus @CaringForLupus A1a; El reumatólogo de mi hija generalmente proporciona un par de nombres dentro de la misma red de hospitales #Lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1A. I usually ask my rheumie for recommendations for specialists. Bc I trust her judgement, and communication is easier. #LupusChat |
 | Autoimmune Diseases @autoimmune_re RT @Lupus_Chat: Get your water & snacks ready, #LupusChat starts in less than 1 hour! 👀🍿💻📲🎉 https://t.co/Zfpr0p90h4 |
| Caring For Lupus @CaringForLupus A1a: Because all her specialists are within the same hospital network, they can have access to test results and medications #Lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. I worry about whether or not that specialist/HCP will take my overall health and quality of life into consideration. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: I’m Elizabeth from NJ. Co-Host of #LupusChat. My daughter is a Lupus Warrior. My phone is a must have item because I keep a picture journal https://t.co/pMV7LFCQWI |
| #LupusChat @Lupus_Chat Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| Tiffany ⁷ @TiffanyAndLupus Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/4HBztv5joR |
| Carly by Nature @SynceNerd_Carli @QueenofSpain Welcome to #LupusChat Erin! Hand Sanitizer and a Go bag are essential!! Too many times I've been admitted during a routine visit |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1A: Q1A: What are your concerns when adding a new member to your healthcare team? What on/offline tools do you use to help find one? #LupusChat https://t.co/gT9hc8mlGD |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: I’m Tiffany, your #LupusChat co-host from NYC. Been kicking lupus *ss since 2010! My must have for a Dr appt is my phone & health journal. https://t.co/awUKC2iOLu |
| #LupusChat @Lupus_Chat RT @Xtel007: A1A. I usually ask my rheumie for recommendations for specialists. Bc I trust her judgement, and communication is easier. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1A. I worry about whether or not that specialist/HCP will take my overall health and quality of life into consideration. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1a; My daughter’s rheumatologist usually provides a couple of names within the same hospital network #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1a: A1a: When we need 2 add new specialist 2 my daughter’s care team I need 2 make sure that the specialist acknowledges the symptoms #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: What’s up guys? Christele, #LupusChat co-host, I’ve had Lupus since april 2007. I always have snacks and full charge for my doc’s visit. https://t.co/DmACeqJQTF |
| Carly by Nature @SynceNerd_Carli A1a: When adding a new member to my healthcare team, I usually discuss it with my Rheumatologist first to get their feedback. #LupusChat |
| Erin Kotecki Vest @QueenofSpain I'm forever adding new Drs. I tend to go with my gut & can tell pretty quickly if a Dr is dismissive of my diagnosies. #LupusChat https://t.co/FrrDFScQL2 |
| Caring For Lupus @CaringForLupus A1a: debido a que todos sus especialistas están dentro de la misma red, pueden tener acceso a los resultados y los medicamentos #Lupuschat |
| #LupusChat @Lupus_Chat Just a lil reminder to add: Q1A or A1A to your responses sis we can find your responses later for the post-chat recap. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1A. I worry about whether or not that specialist/HCP will take my overall health and quality of life into consideration. #LupusChat |
 | Amanda G @LAlupusLady #LupusChat today’s topic was just covered by @patientchat great tips from the #patientchat timeline https://t.co/IDZ3rJ66jY |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1A. I usually ask my rheumie for recommendations for specialists. Bc I trust her judgement, and communication is easier. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1a: A1a: Because all her specialists are within the same hospital network, they can have access to test results and medications #Lupuschat |
| Caring For Lupus @CaringForLupus RT @MizJfromtheDot: @TiffanyAndLupus A1 - concerns - do/will they understand the combination of diseases I have? Tools- ratemds & look up their credentials #lupuschat |
| #LupusChat @Lupus_Chat RT @QueenofSpain: I'm forever adding new Drs. I tend to go with my gut & can tell pretty quickly if a Dr is dismissive of my diagnosies. #LupusChat https://t.co/FrrDFScQL2 |
| Carly by Nature @SynceNerd_Carli A1a: If I feel strongly about it, but my doctor doesn’t agree, I will insist and ask for the referral anyway. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1a: A1a: When adding a new member to my healthcare team, I usually discuss it with my Rheumatologist first to get their feedback. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q1B: Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1A. I ask questions to new doctors. Also ask for recommendations beforehand from friends or online. #LupusChat |
| #LupusChat @Lupus_Chat Q1B: ¿Cuáles son algunas de las cualidades que buscas en un médico de atención primaria o un especialista en salud? #LupusChat https://t.co/3OK6uOBEGc |
| Carly by Nature @SynceNerd_Carli A1a: I use @ZocDoc a lot to find specialists. Once I find a doctor in my area, I read reviews before making a final decision. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1a: A1a: If I feel strongly about it, but my doctor doesn’t agree, I will insist and ask for the referral anyway. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie A1: I worry I won’t be taken seriously. My disease is seroneg and I present well 😕 #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1A. I ask questions to new doctors. Also ask for recommendations beforehand from friends or online. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A1A. I ask questions to new doctors. Also ask for recommendations beforehand from friends or online. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1a: A1a: debido a que todos sus especialistas están dentro de la misma red, pueden tener acceso a los resultados y los medicamentos #Lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A1a: A1a: I use @ZocDoc a lot to find specialists. Once I find a doctor in my area, I read reviews before making a final decision. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @QueenofSpain: I'm forever adding new Drs. I tend to go with my gut & can tell pretty quickly if a Dr is dismissive of my diagnosies. #LupusChat https://t.co/FrrDFScQL2 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1B: Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1B: Q1B: ¿Cuáles son algunas de las cualidades que buscas en un médico de atención primaria o un especialista en salud? #LupusChat https://t.co/3OK6uOBEGc |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A1: A1: I worry I won’t be taken seriously. My disease is seroneg and I present well 😕 #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Same. Going with your gut >>>>>> #LupusChat https://t.co/SqKai6G0KL |
| #LupusChat @Lupus_Chat Just a heads up, we may go over our scheduled time today. Our topic is one we find extremely important for us all to discuss. #LupusChat |
| RaquelRoschell @raquelonpurpose A14: I wonder if a new person will genuinely care & listen. Lupus Foundation online is a good tool. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1a: A1a: I use @ZocDoc a lot to find specialists. Once I find a doctor in my area, I read reviews before making a final decision. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1B: Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| #LupusChat @Lupus_Chat RT @sickysummie: A1: A1: I worry I won’t be taken seriously. My disease is seroneg and I present well 😕 #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: Same. Going with your gut >>>>>> #LupusChat https://t.co/SqKai6G0KL |
| Amanda G @LAlupusLady T1A #LupusChat https://t.co/jaOrIljOJT |
| Carly by Nature @SynceNerd_Carli A1b: For PCP I need them to know about the effects of Lupus & also seem like they care about my overall health as much as I do. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A1: A1: I worry I won’t be taken seriously. My disease is seroneg and I present well 😕 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1a: A1a: I use @ZocDoc a lot to find specialists. Once I find a doctor in my area, I read reviews before making a final decision. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A1A. I ask questions to new doctors. Also ask for recommendations beforehand from friends or online. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Just a heads up, we may go over our scheduled time today. Our topic is one we find extremely important for us all to discuss. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1a: A1a: If I feel strongly about it, but my doctor doesn’t agree, I will insist and ask for the referral anyway. #LupusChat |
| Carly by Nature @SynceNerd_Carli A1b: For specialists, I seek the same knowledge of Lupus, but also I like them to have done research in their respective fields. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1B. I need to feel that the specialist/HCP cares about my health overall and not just treating w.e I call on their specialty for #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1a: A1a: debido a que todos sus especialistas están dentro de la misma red, pueden tener acceso a los resultados y los medicamentos #Lupuschat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q1B: Q1B: ¿Cuáles son algunas de las cualidades que buscas en un médico de atención primaria o un especialista en salud? #LupusChat https://t.co/3OK6uOBEGc |
| You cant fight the good fight if you're dead @sickysummie A1a: My awesome Rheumy refers me, she knows the best docs. I stay w/in same echart system too #LupusChat |
| Jennifer L Filipink @sunflouers A1a I have the same problem with new doctors or symptoms they don't understand. My PCP of 20 some years told me to find new doc. i'm to hard https://t.co/v2w7DBWyMj |
| Tiffany ⁷ @TiffanyAndLupus RT @QueenofSpain: I'm forever adding new Drs. I tend to go with my gut & can tell pretty quickly if a Dr is dismissive of my diagnosies. #LupusChat https://t.co/FrrDFScQL2 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1a: A1a: When adding a new member to my healthcare team, I usually discuss it with my Rheumatologist first to get their feedback. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A14: A14: I wonder if a new person will genuinely care & listen. Lupus Foundation online is a good tool. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1a; My daughter’s rheumatologist usually provides a couple of names within the same hospital network #Lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1B. He/she has to be knowledgeable about Lupus and Lupus treatments. I need to be able to trust my doctor. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Just a heads up, we may go over our scheduled time today. Our topic is one we find extremely important for us all to discuss. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1b: A1b: For PCP I need them to know about the effects of Lupus & also seem like they care about my overall health as much as I do. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1B: Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| Renee C. @MindBodyShift A1A: Context for my long & convoluted journey is crucial. I have copies of all lab results, I sticky the highlights #oldschool #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1B: Q1B: ¿Cuáles son algunas de las cualidades que buscas en un médico de atención primaria o un especialista en salud? #LupusChat https://t.co/3OK6uOBEGc |
| #LupusChat @Lupus_Chat Now that we’ve discussed adding new physicians, let’s move onto how we interact with our care team. #LupusChat https://t.co/HfvEegBwYC |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @Ksrnv @Lupus_Chat SUPER SUPER important!! #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A1b: A1b: For PCP I need them to know about the effects of Lupus & also seem like they care about my overall health as much as I do. #LupusChat |
| Caring For Lupus @CaringForLupus A1b: It is important for me to see that they are acknowledging my daughter’s symptoms, that they are taking it seriously #Lupuschat |
| Scherly Leon, MD @SLeonMD RT @Lupus_Chat: Q1B: Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| #LupusChat @Lupus_Chat RT @MindBodyShift: A1A: A1A: Context for my long & convoluted journey is crucial. I have copies of all lab results, I sticky the highlights #oldschool #lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1B. He/she has to be knowledgeable about Lupus and Lupus treatments. I need to be able to trust my doctor. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A1a: A1a: My awesome Rheumy refers me, she knows the best docs. I stay w/in same echart system too #LupusChat |
 | kelly dunshee @kellydunshee11 @Lupus_Chat A1 Its very overwhelming to have to many dr for my care. I have the main dr for fibro then a few others. #lupusChat |
| Caring For Lupus @CaringForLupus A1b: Es importante para mí ver que están reconociendo los síntomas de mi hija, que lo están tomando en serio #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1B. I need to feel that the specialist/HCP cares about my health overall and not just treating w.e I call on their specialty for #LupusChat |
| Renee C. @MindBodyShift A1A: Doctor discernment is such an important skill to have honed on the journey! #LupusChat https://t.co/f8iokzpUO2 |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1b: A1b: For specialists, I seek the same knowledge of Lupus, but also I like them to have done research in their respective fields. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A14: A14: I wonder if a new person will genuinely care & listen. Lupus Foundation online is a good tool. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Just a heads up, we may go over our scheduled time today. Our topic is one we find extremely important for us all to discuss. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Now that we’ve discussed adding new physicians, let’s move onto how we interact with our care team. #LupusChat https://t.co/HfvEegBwYC |
| #LupusChat @Lupus_Chat Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/lKyDOEvh1v |
| Tiffany ⁷ @TiffanyAndLupus Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/ASLkCcx9Xe |
| Scherly Leon, MD @SLeonMD RT @Lupus_Chat: Finding a doctor who respects & welcomes us as an active partner in our healthcare isn’t always easy so today we’ll discuss how. #LupusChat https://t.co/CnpcsxlfpG |
| Caring For Lupus @CaringForLupus A1b: Qualities: A specialist who listens to our concerns and takes the time to explain why something is happening #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @harlem_peach Oh. Very smart. Thanks! #LupusChat |
| #LupusChat @Lupus_Chat RT @kellydunshee11: @Lupus_Chat A1 Its very overwhelming to have to many dr for my care. I have the main dr for fibro then a few others. #lupusChat |
| #LupusChat @Lupus_Chat RT @MindBodyShift: A1A: A1A: Doctor discernment is such an important skill to have honed on the journey! #LupusChat https://t.co/f8iokzpUO2 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2A: Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/lKyDOEvh1v |
| Caring For Lupus @CaringForLupus A1b Cualidades Un especialista que escucha nuestras preocupaciones y se toma el tiempo para explicar por qué algo está sucediendo #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Just a heads up, we may go over our scheduled time today. Our topic is one we find extremely important for us all to discuss. #LupusChat |
| kelly dunshee @kellydunshee11 @Lupus_Chat A1 if i make the switch to Boston care then a bunch of drs will be a team and work with me but I hate the long drive in traffic #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2A: Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/lKyDOEvh1v |
| Caring For Lupus @CaringForLupus A1b: My daughter is tean year old, I need to make sure that the specialists are familiar with children diagnosed with Lupus #LupusChat |
| #LupusChat @Lupus_Chat A1A: via @harlem_peach #LupusChat https://t.co/TfCx5rwN8y |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q2A: Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/lKyDOEvh1v |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1b: Qualities: A1b: Qualities: A specialist who listens to our concerns and takes the time to explain why something is happening #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. My ideal doc appointment involves an actual conversation with my doctor, vs questions and answers. #LupusChat |
| #LupusChat @Lupus_Chat RT @kellydunshee11: @Lupus_Chat A1 if i make the switch to Boston care then a bunch of drs will be a team and work with me but I hate the long drive in traffic #lupuschat |
| #LupusChat @Lupus_Chat Ahora que hemos discutido agregar nuevos médicos, avancemos en cómo interactuamos con nuestro equipo de atención. #LupusChat https://t.co/W9URzCWRMF |
| You cant fight the good fight if you're dead @sickysummie A1b: Smart, up for a challenge, flexible thinking, truly caring. Did I mention smart? #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1b: A1b: My daughter is tean year old, I need to make sure that the specialists are familiar with children diagnosed with Lupus #LupusChat |
| #LupusChat @Lupus_Chat Q2A: ¿Puede describir su cita médica ideal? ¿Qué es lo que define una gran visita médica para usted, cómo sería la atención? #LupusChat https://t.co/GsYNAxCdig |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1b: A1b: My daughter is tean year old, I need to make sure that the specialists are familiar with children diagnosed with Lupus #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @kellydunshee11: @Lupus_Chat A1 if i make the switch to Boston care then a bunch of drs will be a team and work with me but I hate the long drive in traffic #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1b Cualidades Un especialista que escucha nuestras preocupaciones y se toma el tiempo para explicar por qué algo está sucediendo #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. I like when doctors answer my questions with specifics, even if they have to explain words to me. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1b: Qualities: A1b: Qualities: A specialist who listens to our concerns and takes the time to explain why something is happening #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2A: Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/lKyDOEvh1v |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. My ideal doc appointment involves an actual conversation with my doctor, vs questions and answers. #LupusChat |
| #LupusChat @Lupus_Chat RT @sickysummie: A1b: A1b: Smart, up for a challenge, flexible thinking, truly caring. Did I mention smart? #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @MindBodyShift: A1A: A1A: Doctor discernment is such an important skill to have honed on the journey! #LupusChat https://t.co/f8iokzpUO2 |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. I like when doctors answer my questions with specifics, even if they have to explain words to me. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2A. If a doctor is divisive to my concerns or is vague answering my questions, I feel disinterested in continuing with him/her. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @kellydunshee11: @Lupus_Chat A1 Its very overwhelming to have to many dr for my care. I have the main dr for fibro then a few others. #lupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1b: A1b: Es importante para mí ver que están reconociendo los síntomas de mi hija, que lo están tomando en serio #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Now that we’ve discussed adding new physicians, let’s move onto how we interact with our care team. #LupusChat https://t.co/HfvEegBwYC |
| Carly by Nature @SynceNerd_Carli RT @MindBodyShift: A1A: A1A: Context for my long & convoluted journey is crucial. I have copies of all lab results, I sticky the highlights #oldschool #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A1a: A1a: My awesome Rheumy refers me, she knows the best docs. I stay w/in same echart system too #LupusChat |
| Caring For Lupus @CaringForLupus RT @MindBodyShift: A1A: A1A: Context for my long & convoluted journey is crucial. I have copies of all lab results, I sticky the highlights #oldschool #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2A. If a doctor is divisive to my concerns or is vague answering my questions, I feel disinterested in continuing with him/her. #LupusChat |
| #LupusChat @Lupus_Chat Q2B: If you are not satisfied with the flow of an appointment, do you schedule a follow-up with that specialist? Why/Why not? #LupusChat https://t.co/hxqLLcDTm6 |
| Tiffany ⁷ @TiffanyAndLupus Q2B: If you are not satisfied with the flow of an appointment, do you schedule a follow-up with that specialist? Why/Why not? #LupusChat https://t.co/fVTH72TaqY |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2A: Q2A: ¿Puede describir su cita médica ideal? ¿Qué es lo que define una gran visita médica para usted, cómo sería la atención? #LupusChat https://t.co/GsYNAxCdig |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Ahora que hemos discutido agregar nuevos médicos, avancemos en cómo interactuamos con nuestro equipo de atención. #LupusChat https://t.co/W9URzCWRMF |
| #LupusChat @Lupus_Chat Q2B: Si no está satisfecho con la atencion de una cita, ¿programará un seguimiento con ese especialista? ¿Por qué si, por qué no? #LupusChat https://t.co/dEhdssIvHd |
| Tiffany ⁷ @TiffanyAndLupus A2a: A great Dr appointmentisbone where I feel all my question were welcomed, answered & respected. Especially if it’s a new Dr. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2A. If a doctor is divisive to my concerns or is vague answering my questions, I feel disinterested in continuing with him/her. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2A: Q2A: ¿Puede describir su cita médica ideal? ¿Qué es lo que define una gran visita médica para usted, cómo sería la atención? #LupusChat https://t.co/GsYNAxCdig |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2A: Q2A: Can you describe your ideal doctor's appointment? What defines a great doctor visit to you, how would it flow? #LupusChat https://t.co/lKyDOEvh1v |
| Carly by Nature @SynceNerd_Carli A2a: My ideal appt incl discussing my healthcare & life goals w/ the Dr. It’s important to take my whole self into account. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2B: Q2B: Si no está satisfecho con la atencion de una cita, ¿programará un seguimiento con ese especialista? ¿Por qué si, por qué no? #LupusChat https://t.co/dEhdssIvHd |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @sickysummie Flexible thinking is super important. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2B: Q2B: If you are not satisfied with the flow of an appointment, do you schedule a follow-up with that specialist? Why/Why not? #LupusChat https://t.co/hxqLLcDTm6 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2a: A2a: My ideal appt incl discussing my healthcare & life goals w/ the Dr. It’s important to take my whole self into account. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2a: A2a: A great Dr appointmentisbone where I feel all my question were welcomed, answered & respected. Especially if it’s a new Dr. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2a: A2a: A great Dr appointmentisbone where I feel all my question were welcomed, answered & respected. Especially if it’s a new Dr. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2a: Working together to develop a plan of action. Sharing ideas & collaborating on my care is important. Not just taking orders #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1B: Q1B: What are some of the qualities you look for in a primary care physician or healthcare specialist? #LupusChat https://t.co/vxPCKE7OBH |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2a: A2a: My ideal appt incl discussing my healthcare & life goals w/ the Dr. It’s important to take my whole self into account. #LupusChat |
| RaquelRoschell @raquelonpurpose A1B : I want an honorable person..ethical doctor. No dumb jokes but a sense of humor. Direct but caring manner. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2B: Q2B: If you are not satisfied with the flow of an appointment, do you schedule a follow-up with that specialist? Why/Why not? #LupusChat https://t.co/hxqLLcDTm6 |
| Carly by Nature @SynceNerd_Carli A2a: If I don’t feel that the doctor is receptive to my concerns/goals, It just might be time to find a doctor who respects me. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2B. If a doctor isn’t receptive to my concerns or is vague answering my questions, I really won’t care to make a follow up. #LupusChat |
| Scherly Leon, MD @SLeonMD RT @SynceNerd_Carli: A2a: A2a: Working together to develop a plan of action. Sharing ideas & collaborating on my care is important. Not just taking orders #LupusChat |
| kelly dunshee @kellydunshee11 @Lupus_Chat A2 I like that my Dr is kind & takes the time to explain things even tho i forget she helps me understand. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A2a: A2a: My ideal appt incl discussing my healthcare & life goals w/ the Dr. It’s important to take my whole self into account. #LupusChat |
| Scherly Leon, MD @SLeonMD RT @SynceNerd_Carli: A2a: A2a: If I don’t feel that the doctor is receptive to my concerns/goals, It just might be time to find a doctor who respects me. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2B. My chronic disease means I’ll have to see him/her often. This is a long term thing. I want to be comfortable w that person. #LupusChat |
| Scherly Leon, MD @SLeonMD RT @kellydunshee11: @Lupus_Chat A2 I like that my Dr is kind & takes the time to explain things even tho i forget she helps me understand. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A1B : A1B : I want an honorable person..ethical doctor. No dumb jokes but a sense of humor. Direct but caring manner. #LupusChat |
| Scherly Leon, MD @SLeonMD RT @Xtel007: A2B. My chronic disease means I’ll have to see him/her often. This is a long term thing. I want to be comfortable w that person. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2B: Q2B: If you are not satisfied with the flow of an appointment, do you schedule a follow-up with that specialist? Why/Why not? #LupusChat https://t.co/hxqLLcDTm6 |
| Tiffany ⁷ @TiffanyAndLupus A1a: When adding a new member to my healthcare team I look up reviews to see how attentive the doctor was for other patients #LupusChat |
| Scherly Leon, MD @SLeonMD RT @SynceNerd_Carli: A2a: A2a: My ideal appt incl discussing my healthcare & life goals w/ the Dr. It’s important to take my whole self into account. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2B: Q2B: Si no está satisfecho con la atencion de una cita, ¿programará un seguimiento con ese especialista? ¿Por qué si, por qué no? #LupusChat https://t.co/dEhdssIvHd |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2a: A2a: Working together to develop a plan of action. Sharing ideas & collaborating on my care is important. Not just taking orders #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2B. My chronic disease means I’ll have to see him/her often. This is a long term thing. I want to be comfortable w that person. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A1B : A1B : I want an honorable person..ethical doctor. No dumb jokes but a sense of humor. Direct but caring manner. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2B. If a doctor isn’t receptive to my concerns or is vague answering my questions, I really won’t care to make a follow up. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2a: A2a: If I don’t feel that the doctor is receptive to my concerns/goals, It just might be time to find a doctor who respects me. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2B. If a doctor isn’t receptive to my concerns or is vague answering my questions, I really won’t care to make a follow up. #LupusChat |
| #LupusChat @Lupus_Chat RT @kellydunshee11: @Lupus_Chat A2 I like that my Dr is kind & takes the time to explain things even tho i forget she helps me understand. #LupusChat |
| Caring For Lupus @CaringForLupus A2a: A ideal doctor's appointment would be actually spending time with the doctor to discuss medical updates, concerns, etc. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2B. My chronic disease means I’ll have to see him/her often. This is a long term thing. I want to be comfortable w that person. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1B. A doctor who listens,us compassionate,and takes their time. I've been lucky with my current team of doctors. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1a: A1a: When adding a new member to my healthcare team I look up reviews to see how attentive the doctor was for other patients #LupusChat |
| Caring For Lupus @CaringForLupus A2a: Having a conversation is important as many times it takes months for the next appointment #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Now that we’ve discussed adding new physicians, let’s move onto how we interact with our care team. #LupusChat https://t.co/HfvEegBwYC |
| Carly by Nature @SynceNerd_Carli A2b: If I’m not satisfied with the flow of a first appointment, I’ll generally give it one more shot. Everyone has an off day #LupusChat |
| Caring For Lupus @CaringForLupus A2a: Tener una conversación es importante ya que muchas veces lleva meses para la próxima cita #LupusChat |
| You cant fight the good fight if you're dead @sickysummie A2b: Ideal appt? “Take this pill for instant remission.” A workable comprehensive plan is my realistic ideal. #LupusChat |
| kelly dunshee @kellydunshee11 @Ksrnv @Lupus_Chat Yes i see a rheumatologist thats who I started out with b4 my neurologist. I switching neurologist shes not working out for me #LupusChat |
| Carly by Nature @SynceNerd_Carli A2b: After the second appt. If it still doesn’t go well, then I find another Dr. Much less stress that way. #LupusChat |
| Caring For Lupus @CaringForLupus A2b: I would make an appointment with another specialist because I would be extremely concerned that he/she miss something #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1a: I have used @Zocdoc, HealthGrades and google to research a new physician before adding them to my Care team. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A1B. A doctor who listens,us compassionate,and takes their time. I've been lucky with my current team of doctors. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2a: A2a: A ideal doctor's appointment would be actually spending time with the doctor to discuss medical updates, concerns, etc. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1a: A1a: When adding a new member to my healthcare team I look up reviews to see how attentive the doctor was for other patients #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2a: A2a: Having a conversation is important as many times it takes months for the next appointment #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2b: A2b: If I’m not satisfied with the flow of a first appointment, I’ll generally give it one more shot. Everyone has an off day #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2B. My chronic disease means I’ll have to see him/her often. This is a long term thing. I want to be comfortable w that person. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2a: A2a: Tener una conversación es importante ya que muchas veces lleva meses para la próxima cita #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2B. If a doctor isn’t receptive to my concerns or is vague answering my questions, I really won’t care to make a follow up. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2a: A2a: If I don’t feel that the doctor is receptive to my concerns/goals, It just might be time to find a doctor who respects me. #LupusChat |
| #LupusChat @Lupus_Chat RT @kellydunshee11: @Ksrnv @Lupus_Chat Yes i see a rheumatologist thats who I started out with b4 my neurologist. I switching neurologist shes not working out for me #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2a: A2a: Working together to develop a plan of action. Sharing ideas & collaborating on my care is important. Not just taking orders #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1a: A1a: I have used @Zocdoc, HealthGrades and google to research a new physician before adding them to my Care team. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie RT @SynceNerd_Carli: A2b: A2b: If I’m not satisfied with the flow of a first appointment, I’ll generally give it one more shot. Everyone has an off day #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2b: A2b: I would make an appointment with another specialist because I would be extremely concerned that he/she miss something #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2a: A2a: My ideal appt incl discussing my healthcare & life goals w/ the Dr. It’s important to take my whole self into account. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2a: A2a: A great Dr appointmentisbone where I feel all my question were welcomed, answered & respected. Especially if it’s a new Dr. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2b: A2b: I would make an appointment with another specialist because I would be extremely concerned that he/she miss something #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1a: A1a: I have used @Zocdoc, HealthGrades and google to research a new physician before adding them to my Care team. #LupusChat |
| RaquelRoschell @raquelonpurpose A2A: Doctor asks me open-ended questions to get info. Gives me doctor speak while hearing my patient talk. We're all at ease. #LupusChat https://t.co/9pNj9vhk9k |
| #LupusChat @Lupus_Chat It can be difficult when we aren’t on the same page as our doctor. Let’s explore this further in Question 3! #LupusChat https://t.co/AVYXGKCq4d |
| Carly by Nature @SynceNerd_Carli RT @kellydunshee11: @Ksrnv @Lupus_Chat Yes i see a rheumatologist thats who I started out with b4 my neurologist. I switching neurologist shes not working out for me #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2A. My doctors always listen to my questions and concerns. And explain the treatment options. Plus it's always a friendly chat. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A2b: A2b: Ideal appt? “Take this pill for instant remission.” A workable comprehensive plan is my realistic ideal. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A1b: A1b: For PCP I need them to know about the effects of Lupus & also seem like they care about my overall health as much as I do. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A2A: A2A: Doctor asks me open-ended questions to get info. Gives me doctor speak while hearing my patient talk. We're all at ease. #LupusChat https://t.co/9pNj9vhk9k |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2a: A2a: Tener una conversación es importante ya que muchas veces lleva meses para la próxima cita #LupusChat |
| Scherly Leon, MD @SLeonMD Great discussion @Lupus_Chat! Patient-Physician relationship is very important, we are a team. #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1b: A1b: Es importante para mí ver que están reconociendo los síntomas de mi hija, que lo están tomando en serio #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2B: Q2B: If you are not satisfied with the flow of an appointment, do you schedule a follow-up with that specialist? Why/Why not? #LupusChat https://t.co/hxqLLcDTm6 |
| Tiffany ⁷ @TiffanyAndLupus RT @MindBodyShift: A1A: A1A: Doctor discernment is such an important skill to have honed on the journey! #LupusChat https://t.co/f8iokzpUO2 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: It can be difficult when we aren’t on the same page as our doctor. Let’s explore this further in Question 3! #LupusChat https://t.co/AVYXGKCq4d |
| Tiffany ⁷ @TiffanyAndLupus RT @mommade4change: A14: A14: I wonder if a new person will genuinely care & listen. Lupus Foundation online is a good tool. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A2A. My doctors always listen to my questions and concerns. And explain the treatment options. Plus it's always a friendly chat. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1b: Qualities: A1b: Qualities: A specialist who listens to our concerns and takes the time to explain why something is happening #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1b: A1b: My daughter is tean year old, I need to make sure that the specialists are familiar with children diagnosed with Lupus #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A1b: A1b: Smart, up for a challenge, flexible thinking, truly caring. Did I mention smart? #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2A. My ideal doc appointment involves an actual conversation with my doctor, vs questions and answers. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: It can be difficult when we aren’t on the same page as our doctor. Let’s explore this further in Question 3! #LupusChat https://t.co/AVYXGKCq4d |
| #LupusChat @Lupus_Chat RT @SLeonMD: Great discussion @Lupus_Chat! Patient-Physician relationship is very important, we are a team. #lupuschat |
| RaquelRoschell @raquelonpurpose RT @Pippilotta08: 👋🏾 I’m Sophia, living in the DMV. SLE dx 2014. Docs Appt always includes more questions. This wolf is ever evolving. #LupusChat |
| Erin Kotecki Vest @QueenofSpain I actually see my PCP and my rheumatologist tomorrow- so this discussion is wonderful #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2B. I keep calling. Occasionally if I don't get results,I start looking for new doctors. Haven't had to do that in years. #LupusChat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat This is so good to hear. its important for Doctors to be receptive to our concerns and have a demeanor that puts us at ease. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @SLeonMD: Great discussion @Lupus_Chat! Patient-Physician relationship is very important, we are a team. #lupuschat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: It can be difficult when we aren’t on the same page as our doctor. Let’s explore this further in Question 3! #LupusChat https://t.co/AVYXGKCq4d |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SLeonMD: Great discussion @Lupus_Chat! Patient-Physician relationship is very important, we are a team. #lupuschat |
| #LupusChat @Lupus_Chat Puede ser difícil cuando no estamos en la misma página que nuestro médico. ¡Exploremos esto más en la pregunta 3! #LupusChat https://t.co/AM3kWsYwXq |
| Bethany @beth_12319 A2B: YES! If I forget something I always come back. You can never be too sure when overlooking something new. KNOW YOUR BODY 💜 https://t.co/WdmWq2HZwX | |
| Scherly Leon, MD @SLeonMD @sickysummie smart yes, but someone interested in always learning is key. Medicine is always changing must stay up to date. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A2B. I keep calling. Occasionally if I don't get results,I start looking for new doctors. Haven't had to do that in years. #LupusChat |
| Bethany @beth_12319 #lupusChat | |
| #LupusChat @Lupus_Chat Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/qR02YtoK7B |
| Tiffany ⁷ @TiffanyAndLupus Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/Yqs7BqxXUb |
| You cant fight the good fight if you're dead @sickysummie @SLeonMD From one lifelong learner to another: yes!!! #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat I've had the same team of doctors for years. They've gotten to know me because of it. #LupusChat |
| Carly by Nature @SynceNerd_Carli @SLeonMD @Lupus_Chat Thank you for joining us today, Dr. Leon! #LupusChat |
| #LupusChat @Lupus_Chat Q3: Si las recomendaciones de su médico no se alinean con sus metas actuales de atención médica, ¿cómo procedería? #LupusChat https://t.co/oiZxHi2k7o |
| #LupusChat @Lupus_Chat @SLeonMD Thank you Dr. Leon! It’s very encouraging for us to see there are Physicians who believe in including their Patients as partners! #LupusChat |
| You cant fight the good fight if you're dead @sickysummie RT @SLeonMD: @sickysummie smart yes, but someone interested in always learning is key. Medicine is always changing must stay up to date. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @SLeonMD: @sickysummie smart yes, but someone interested in always learning is key. Medicine is always changing must stay up to date. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Si las recomendaciones de su médico no se alinean con sus metas actuales de atención médica, ¿cómo procedería? #LupusChat https://t.co/oiZxHi2k7o |
| Tiffany ⁷ @TiffanyAndLupus RT @SLeonMD: Great discussion @Lupus_Chat! Patient-Physician relationship is very important, we are a team. #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/qR02YtoK7B |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It can be difficult when we aren’t on the same page as our doctor. Let’s explore this further in Question 3! #LupusChat https://t.co/AVYXGKCq4d |
| Caring For Lupus @CaringForLupus RT @SLeonMD: Great discussion @Lupus_Chat! Patient-Physician relationship is very important, we are a team. #lupuschat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2A. My doctors always listen to my questions and concerns. And explain the treatment options. Plus it's always a friendly chat. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q3: Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/qR02YtoK7B |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/qR02YtoK7B |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: Si las recomendaciones de su médico no se alinean con sus metas actuales de atención médica, ¿cómo procedería? #LupusChat https://t.co/oiZxHi2k7o |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. Depends on specifics, but this requires a conversations about why these goals are important to me in the context of my life. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SLeonMD: @sickysummie smart yes, but someone interested in always learning is key. Medicine is always changing must stay up to date. #LupusChat |
 | Christina Lizaso @btrfly12 RT @LAlupusLady: #LupusChat today’s topic was just covered by @patientchat great tips from the #patientchat timeline https://t.co/IDZ3rJ66jY |
| MizJ 🇨🇦 @MizJfromtheDot RT @iveyjanette_207: @Lupus_Chat A2A. My doctors always listen to my questions and concerns. And explain the treatment options. Plus it's always a friendly chat. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: In this instance, I discuss my goals with my doctor again. I try to make sure we are all on the same page. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1a: My new rheumatologist was actually recommended to me by by former one! This was really helpful b/c my Drs know my needs #LupusChat |
| Erin Kotecki Vest @QueenofSpain Q3 I have zero issues firing doctors. Zero #LupusChat https://t.co/t3ePPI0XWX |
| #LupusChat @Lupus_Chat RT @QueenofSpain: I actually see my PCP and my rheumatologist tomorrow- so this discussion is wonderful #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: if this doesn’t work, I have no problem seeking a second opinion, or speaking consulting the attending physician. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2B. I keep calling. Occasionally if I don't get results,I start looking for new doctors. Haven't had to do that in years. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @iveyjanette_207 @Lupus_Chat This is so good to hear. its important for Doctors to be receptive to our concerns and have a demeanor that puts us at ease. #LupusChat |
| #LupusChat @Lupus_Chat RT @SLeonMD: @sickysummie smart yes, but someone interested in always learning is key. Medicine is always changing must stay up to date. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/qR02YtoK7B |
 | daphne's daughter @DeniseWhorms @TiffanyAndLupus Q3.happened to me.i switched drs.dr is supposed to be my advocate. #LupusChat |
| RaquelRoschell @raquelonpurpose A2B : I let the nurse know what I would like next time because they ask. I will not go back to a doc who belittles. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @SynceNerd_Carli @Lupus_Chat I've had the same team of doctors for years. They've gotten to know me because of it. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: I will do all I need to, to ensure we are all on the same page and I am getting the best care. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 As you should, girl! #LupusChat https://t.co/4tMBC5UR0P |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. Depends on specifics, but this requires a conversations about why these goals are important to me in the context of my life. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. Depends on specifics, but this requires a conversations about why these goals are important to me in the context of my life. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: In this instance, I discuss my goals with my doctor again. I try to make sure we are all on the same page. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1a: A1a: My new rheumatologist was actually recommended to me by by former one! This was really helpful b/c my Drs know my needs #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A3: A3: I will do all I need to, to ensure we are all on the same page and I am getting the best care. #LupusChat |
| #LupusChat @Lupus_Chat RT @QueenofSpain: Q3 I have zero issues firing doctors. Zero #LupusChat https://t.co/t3ePPI0XWX |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: if this doesn’t work, I have no problem seeking a second opinion, or speaking consulting the attending physician. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A2B : A2B : I let the nurse know what I would like next time because they ask. I will not go back to a doc who belittles. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DeniseWhorms: @TiffanyAndLupus Q3.happened to me.i switched drs.dr is supposed to be my advocate. #LupusChat |
| Amanda G @LAlupusLady Doing what’s best for your Health is key. Dr. Shopping is a fact of #Lupus life. https://t.co/EAmsRQPeMp |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. Depends on specifics, but this requires a conversations about why these goals are important to me in the context of my life. #LupusChat |
| Caring For Lupus @CaringForLupus A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
 | Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A2B. If a doctor isn’t receptive to my concerns or is vague answering my questions, I really won’t care to make a follow up. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A1B. I need to feel that the specialist/HCP cares about my health overall and not just treating w.e I call on their specialty for #LupusChat |
| #LupusChat @Lupus_Chat RT @DeniseWhorms: @TiffanyAndLupus Q3.happened to me.i switched drs.dr is supposed to be my advocate. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A2B : A2B : I let the nurse know what I would like next time because they ask. I will not go back to a doc who belittles. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: Same. Going with your gut >>>>>> #LupusChat https://t.co/SqKai6G0KL |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3: A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
| Caring For Lupus @CaringForLupus A3: una conversación sería una necesidad. La comunicación y el diálogo abierto son importantes entre el médico y los pacientes. #LupusChat https://t.co/Ck5095jI0X |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: If your doctor’s recommendations don’t align with your current healthcare goals, how would you proceed? #LupusChat https://t.co/qR02YtoK7B |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @harlem_peach Happened to me too. When there's no trust, you're less likely to be compliant. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: I once had a Rheum Dr who refused to let me be a part of my treatment plan. I finally asked for my health records & moved on #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A3: A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: 2 minutes! https://t.co/kaYVuLUDlI |
| Amanda G @LAlupusLady A3 ask about options, side effects and alternative treatments that are less evasive. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @SynceNerd_Carli: A3: A3: I will do all I need to, to ensure we are all on the same page and I am getting the best care. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @QueenofSpain: I actually see my PCP and my rheumatologist tomorrow- so this discussion is wonderful #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: I will do all I need to, to ensure we are all on the same page and I am getting the best care. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: I once had a Rheum Dr who refused to let me be a part of my treatment plan. I finally asked for my health records & moved on #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 !!!!! https://t.co/mZL3DZFCkq |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @harlem_peach Happened to me too. When there's no trust, you're less likely to be compliant. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A3. Depends on specifics, but this requires a conversations about why these goals are important to me in the context of my life. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3: A3: una conversación sería una necesidad. La comunicación y el diálogo abierto son importantes entre el médico y los pacientes. #LupusChat https://t.co/Ck5095jI0X |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3: A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
| Scherly Leon, MD @SLeonMD @harlem_peach this is very dangerous. You should be able to express concern and have open discussions. ##LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3: A3: una conversación sería una necesidad. La comunicación y el diálogo abierto son importantes entre el médico y los pacientes. #LupusChat https://t.co/Ck5095jI0X |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @CaringForLupus: A3: A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: I once had a Rheum Dr who refused to let me be a part of my treatment plan. I finally asked for my health records & moved on #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @harlem_peach Happened to me too. When there's no trust, you're less likely to be compliant. #LupusChat |
| Caring For Lupus @CaringForLupus A3 We had a similar situation, we had a conversation & nothing changed We switched pediatric Rheumatologist It was for the best #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. I ask questions. And if necessary,seek a second opinion. Or switch doctors altogether. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @QueenofSpain: Q3 I have zero issues firing doctors. Zero #LupusChat https://t.co/t3ePPI0XWX |
| RaquelRoschell @raquelonpurpose A3 : I speak up. He has subsequently modified his recommendations. We have been in tune lately. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A1a: A1a: I have used @Zocdoc, HealthGrades and google to research a new physician before adding them to my Care team. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A3. I ask questions. And if necessary,seek a second opinion. Or switch doctors altogether. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 We had a similar situation, we had a conversation & nothing changed We switched pediatric Rheumatologist It was for the best #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @SLeonMD: @harlem_peach this is very dangerous. You should be able to express concern and have open discussions. ##LupusChat |
| Caring For Lupus @CaringForLupus A3 Tuvimos una situación similar, tuvimos una conversación y nada cambió. Cambiamos a un reumatólogo pediátrico. Fue por el mejor #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: I find it offensive when a physician is un-trusting of my part in my care. Why should I work w/someone who doesn't trust me? #LupusChat |
| #LupusChat @Lupus_Chat RT @SLeonMD: @harlem_peach this is very dangerous. You should be able to express concern and have open discussions. ##LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. I ask questions. And if necessary,seek a second opinion. Or switch doctors altogether. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 We had a similar situation, we had a conversation & nothing changed We switched pediatric Rheumatologist It was for the best #LupusChat |
| Amanda G @LAlupusLady A3 asking about treatment options and alternatives, not simply the standard of care. As we know, each #Lupus pt is unique. #LupusChat |
| #LupusChat @Lupus_Chat RT @mommade4change: A3 : A3 : I speak up. He has subsequently modified his recommendations. We have been in tune lately. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SLeonMD: @harlem_peach this is very dangerous. You should be able to express concern and have open discussions. ##LupusChat |
| Carly by Nature @SynceNerd_Carli RT @mommade4change: A3 : A3 : I speak up. He has subsequently modified his recommendations. We have been in tune lately. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: As you should, girl! #LupusChat https://t.co/4tMBC5UR0P |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: I once had a Rheum Dr who refused to let me be a part of my treatment plan. I finally asked for my health records & moved on #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: I will do all I need to, to ensure we are all on the same page and I am getting the best care. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: if this doesn’t work, I have no problem seeking a second opinion, or speaking consulting the attending physician. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: In this instance, I discuss my goals with my doctor again. I try to make sure we are all on the same page. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @mommade4change That is good to hear. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus It can be difficult to fire or hire a new old doctor due to location & availability but I hope we speak up for our needs more #LupusChat |
| #LupusChat @Lupus_Chat Often, we need more than one doctor to help us manage our care. Let’s discuss adding team members in Question 4. #LupusChat https://t.co/MeA2p8l8IX |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A3 We had a similar situation, we had a conversation & nothing changed We switched pediatric Rheumatologist It was for the best #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Often, we need more than one doctor to help us manage our care. Let’s discuss adding team members in Question 4. #LupusChat https://t.co/MeA2p8l8IX |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Often, we need more than one doctor to help us manage our care. Let’s discuss adding team members in Question 4. #LupusChat https://t.co/MeA2p8l8IX |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Often, we need more than one doctor to help us manage our care. Let’s discuss adding team members in Question 4. #LupusChat https://t.co/MeA2p8l8IX |
| #LupusChat @Lupus_Chat Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| Tiffany ⁷ @TiffanyAndLupus Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/8i0T8HTpJO |
| #LupusChat @Lupus_Chat A menudo, necesitamos más de un médico para administrar nuestra atención. Analicemos cómo agregar doctores en la Pregunta 4. #LupusChat https://t.co/GJGGhzfbx0 |
| You cant fight the good fight if you're dead @sickysummie RT @QueenofSpain: Q3 I have zero issues firing doctors. Zero #LupusChat https://t.co/t3ePPI0XWX |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: A menudo, necesitamos más de un médico para administrar nuestra atención. Analicemos cómo agregar doctores en la Pregunta 4. #LupusChat https://t.co/GJGGhzfbx0 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| #LupusChat @Lupus_Chat Q4A: Cómo y cuándo deberia tener una conversación con su médico acerca de agregar un especialista a su equipo de atención médica? #LupusChat https://t.co/DvrrXolgX5 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4A: Q4A: Cómo y cuándo deberia tener una conversación con su médico acerca de agregar un especialista a su equipo de atención médica? #LupusChat https://t.co/DvrrXolgX5 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: A menudo, necesitamos más de un médico para administrar nuestra atención. Analicemos cómo agregar doctores en la Pregunta 4. #LupusChat https://t.co/GJGGhzfbx0 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4A. In my experience, my doc has always been ok with consulting a specialist. Lupus is so complicated. #LupusChat |
| Scherly Leon, MD @SLeonMD @Ksrnv @Lupus_Chat sorry to hear. ALL the -ism exist. As we navigate the world we learn, grow, and hopefully do better. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4A: Q4A: Cómo y cuándo deberia tener una conversación con su médico acerca de agregar un especialista a su equipo de atención médica? #LupusChat https://t.co/DvrrXolgX5 |
| Amanda G @LAlupusLady RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4A. Most of the time, my rheumie is more interested than I am in seeking a specialist lol. #LupusChat |
| #LupusChat @Lupus_Chat Just a friendly reminder that we may go over our scheduled time today. We have 2 more questions after Q4a. 😊 #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4A. In my experience, my doc has always been ok with consulting a specialist. Lupus is so complicated. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4A. Most of the time, my rheumie is more interested than I am in seeking a specialist lol. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4A. That said, sometimes you have to bring it up. Specialists are needed to determine how much Lupus affects particular organs. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: It can be difficult to fire or hire a new old doctor due to location & availability but I hope we speak up for our needs more #LupusChat |
| Caring For Lupus @CaringForLupus A4a: My daughter’s rheumatologist is the one who suggests seeing other specialists based on her bloodwork results or symptoms #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4A. It’s important tho that as these specialists are experts in their particular fields, they also be knowledgeable about Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4a: Usually if Lupus is affecting specific organ system or part of my body, I will discuss getting a referral to a specialist. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Tuvimos una situación similar, tuvimos una conversación y nada cambió. Cambiamos a un reumatólogo pediátrico. Fue por el mejor #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4A. I ask at every visit to my PCP. Most of the specialists I see are in the same group,so I ask for recommendations. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: I find it offensive when a physician is un-trusting of my part in my care. Why should I work w/someone who doesn't trust me? #LupusChat |
| #LupusChat @Lupus_Chat RT @SLeonMD: @Ksrnv @Lupus_Chat sorry to hear. ALL the -ism exist. As we navigate the world we learn, grow, and hopefully do better. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4A. That said, sometimes you have to bring it up. Specialists are needed to determine how much Lupus affects particular organs. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Often, we need more than one doctor to help us manage our care. Let’s discuss adding team members in Question 4. #LupusChat https://t.co/MeA2p8l8IX |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Just a friendly reminder that we may go over our scheduled time today. We have 2 more questions after Q4a. 😊 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SLeonMD: @Ksrnv @Lupus_Chat sorry to hear. ALL the -ism exist. As we navigate the world we learn, grow, and hopefully do better. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4a: Oftentimes, my Rheumy will bring it up before I do. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @QueenofSpain: Q3 I have zero issues firing doctors. Zero #LupusChat https://t.co/t3ePPI0XWX |
| Amanda G @LAlupusLady A4a at an appointment when you have alerted the office staff that you will need more time for the discussion, communicate. #LupusChat https://t.co/6oLjsU2WuH |
| Scherly Leon, MD @SLeonMD @harlem_peach Listen, it is like dating if connection not there you can't force it. However, hopefully each experience comes with a lesson. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4A. I ask at every visit to my PCP. Most of the specialists I see are in the same group,so I ask for recommendations. #LupusChat |
| Caring For Lupus @CaringForLupus A4a: El Reumatólogo de mi hija es el que sugiere ver a otros especialistas basados en resultados de sangre o síntomas #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4A. It’s important tho that as these specialists are experts in their particular fields, they also be knowledgeable about Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4a: A4a: My daughter’s rheumatologist is the one who suggests seeing other specialists based on her bloodwork results or symptoms #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Just a friendly reminder that we may go over our scheduled time today. We have 2 more questions after Q4a. 😊 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @SLeonMD: @Ksrnv @Lupus_Chat sorry to hear. ALL the -ism exist. As we navigate the world we learn, grow, and hopefully do better. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4A. In my experience, my doc has always been ok with consulting a specialist. Lupus is so complicated. #LupusChat |
| Amanda G @LAlupusLady If #LupusChat planned ahead and cut 10 minutes off of intro time this would not be an issue. https://t.co/1ohSioLZkY |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4a: A4a: El Reumatólogo de mi hija es el que sugiere ver a otros especialistas basados en resultados de sangre o síntomas #LupusChat |
| You cant fight the good fight if you're dead @sickysummie RT @Xtel007: A4A. Most of the time, my rheumie is more interested than I am in seeking a specialist lol. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: I always say, if we would NOT tolerate our significant other treating us with disrespect, why would we allow our Drs too? #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @SLeonMD: @harlem_peach Listen, it is like dating if connection not there you can't force it. However, hopefully each experience comes with a lesson. #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @TiffanyAndLupus: A3: A3: I find it offensive when a physician is un-trusting of my part in my care. Why should I work w/someone who doesn't trust me? #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot RT @TiffanyAndLupus: It can be difficult to fire or hire a new old doctor due to location & availability but I hope we speak up for our needs more #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Just a friendly reminder that we may go over our scheduled time today. We have 2 more questions after Q4a. 😊 #LupusChat |
| MizJ 🇨🇦 @MizJfromtheDot @TiffanyAndLupus @Lupus_Chat Current situation #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: I always say, if we would NOT tolerate our significant other treating us with disrespect, why would we allow our Drs too? #LupusChat |
| Caring For Lupus @CaringForLupus A4a: En la última cita del Reumatólogo, ella recomendó terapia fisica nuevamente para Miah #LupusChat |
| Caring For Lupus @CaringForLupus A4a: On the last Rheumatologist appointment, she recommended PT again for Miah #LupusChat https://t.co/TzqZacONKB |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| #LupusChat @Lupus_Chat RT @Xtel007: A4A. That said, sometimes you have to bring it up. Specialists are needed to determine how much Lupus affects particular organs. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4a: A4a: My daughter’s rheumatologist is the one who suggests seeing other specialists based on her bloodwork results or symptoms #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4a: A4a: Usually if Lupus is affecting specific organ system or part of my body, I will discuss getting a referral to a specialist. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4A. I ask at every visit to my PCP. Most of the specialists I see are in the same group,so I ask for recommendations. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4A. It’s important tho that as these specialists are experts in their particular fields, they also be knowledgeable about Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4a: A4a: On the last Rheumatologist appointment, she recommended PT again for Miah #LupusChat https://t.co/TzqZacONKB |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4a: A4a: En la última cita del Reumatólogo, ella recomendó terapia fisica nuevamente para Miah #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4a: A4a: Oftentimes, my Rheumy will bring it up before I do. #LupusChat |
| Amanda G @LAlupusLady I am no longer a part of the official #LupusChat team but this is everybody’s Sunday plan ahead. |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A4A. In my experience, my doc has always been ok with consulting a specialist. Lupus is so complicated. #LupusChat |
| #LupusChat @Lupus_Chat By the way, our #LupusChat conversation will run a bit past 4 today. We have so much we want to discuss! https://t.co/JdQZkdwrRl |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4a: A4a: On the last Rheumatologist appointment, she recommended PT again for Miah #LupusChat https://t.co/TzqZacONKB |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4a: A4a: En la última cita del Reumatólogo, ella recomendó terapia fisica nuevamente para Miah #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A4A. It’s important tho that as these specialists are experts in their particular fields, they also be knowledgeable about Lupus. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: I always say, if we would NOT tolerate our significant other treating us with disrespect, why would we allow our Drs too? #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @mommade4change: A3 : A3 : I speak up. He has subsequently modified his recommendations. We have been in tune lately. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A4A. That said, sometimes you have to bring it up. Specialists are needed to determine how much Lupus affects particular organs. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: By the way, our #LupusChat conversation will run a bit past 4 today. We have so much we want to discuss! https://t.co/JdQZkdwrRl |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A4A. Most of the time, my rheumie is more interested than I am in seeking a specialist lol. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: By the way, our #LupusChat conversation will run a bit past 4 today. We have so much we want to discuss! https://t.co/JdQZkdwrRl |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Well said, Dr Leon! #LupusChat https://t.co/V8tGVgw3Ji |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @SynceNerd_Carli: A4a: A4a: Usually if Lupus is affecting specific organ system or part of my body, I will discuss getting a referral to a specialist. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SLeonMD: @harlem_peach Listen, it is like dating if connection not there you can't force it. However, hopefully each experience comes with a lesson. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3: A3: I always say, if we would NOT tolerate our significant other treating us with disrespect, why would we allow our Drs too? #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @SynceNerd_Carli: A4a: A4a: Oftentimes, my Rheumy will bring it up before I do. #LupusChat |
| Scherly Leon, MD @SLeonMD @TiffanyAndLupus demand R-E-S-P-E-C-T from everyone and give it also-regardless of title, class, age, sex, etc... #LupusChat |
| #LupusChat @Lupus_Chat Please don’t feel guilty if you cannot stay for our entire #LupusChat discussion today! #selfcare is important, no guilt needed 💜 https://t.co/qYrUoL3m1O |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Just a friendly reminder that we may go over our scheduled time today. We have 2 more questions after Q4a. 😊 #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @CaringForLupus: A3 We had a similar situation, we had a conversation & nothing changed We switched pediatric Rheumatologist It was for the best #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: By the way, our #LupusChat conversation will run a bit past 4 today. We have so much we want to discuss! https://t.co/JdQZkdwrRl |
| Tiffany ⁷ @TiffanyAndLupus Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/u4JoU6Xdjp |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Q4A: Q4A: How & when should you have a conversation with your doctor about adding a specialist to your care team? #LupusChat https://t.co/4enw0Ijp79 |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @CaringForLupus: A4a: A4a: My daughter’s rheumatologist is the one who suggests seeing other specialists based on her bloodwork results or symptoms #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: By the way, our #LupusChat conversation will run a bit past 4 today. We have so much we want to discuss! https://t.co/JdQZkdwrRl |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Please don’t feel guilty if you cannot stay for our entire #LupusChat discussion today! #selfcare is important, no guilt needed 💜 https://t.co/qYrUoL3m1O |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Often, we need more than one doctor to help us manage our care. Let’s discuss adding team members in Question 4. #LupusChat https://t.co/MeA2p8l8IX |
| Tiffany ⁷ @TiffanyAndLupus RT @SLeonMD: @TiffanyAndLupus demand R-E-S-P-E-C-T from everyone and give it also-regardless of title, class, age, sex, etc... #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Please don’t feel guilty if you cannot stay for our entire #LupusChat discussion today! #selfcare is important, no guilt needed 💜 https://t.co/qYrUoL3m1O |
| #LupusChat @Lupus_Chat Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/v8ALBrFekJ |
| #LupusChat @Lupus_Chat RT @SLeonMD: @harlem_peach Listen, it is like dating if connection not there you can't force it. However, hopefully each experience comes with a lesson. #LupusChat |
| #LupusChat @Lupus_Chat RT @SLeonMD: @TiffanyAndLupus demand R-E-S-P-E-C-T from everyone and give it also-regardless of title, class, age, sex, etc... #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4A. Most of the time, my rheumie is more interested than I am in seeking a specialist lol. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4A. In my experience, my doc has always been ok with consulting a specialist. Lupus is so complicated. #LupusChat |
| #LupusChat @Lupus_Chat Q4B: ¿Cómo ha sido tu experiencia al solicitar un referido de parte de su doctor primario profesional de atención médica? #LupusChat https://t.co/qQU3v2QAIB |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please don’t feel guilty if you cannot stay for our entire #LupusChat discussion today! #selfcare is important, no guilt needed 💜 https://t.co/qYrUoL3m1O |
| You cant fight the good fight if you're dead @sickysummie A4: When symptoms or pain interfere w/ daily life we talk referral. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @SLeonMD: @TiffanyAndLupus demand R-E-S-P-E-C-T from everyone and give it also-regardless of title, class, age, sex, etc... #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4B: Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/v8ALBrFekJ |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A4: A4: When symptoms or pain interfere w/ daily life we talk referral. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4B: Q4B: ¿Cómo ha sido tu experiencia al solicitar un referido de parte de su doctor primario profesional de atención médica? #LupusChat https://t.co/qQU3v2QAIB |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4B: Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/v8ALBrFekJ |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4B: Q4B: ¿Cómo ha sido tu experiencia al solicitar un referido de parte de su doctor primario profesional de atención médica? #LupusChat https://t.co/qQU3v2QAIB |
| #LupusChat @Lupus_Chat RT @sickysummie: A4: A4: When symptoms or pain interfere w/ daily life we talk referral. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @sickysummie: A4: A4: When symptoms or pain interfere w/ daily life we talk referral. #lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4B: Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/v8ALBrFekJ |
| Caring For Lupus @CaringForLupus RT @SLeonMD: @TiffanyAndLupus demand R-E-S-P-E-C-T from everyone and give it also-regardless of title, class, age, sex, etc... #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4B. Both from my primary and my rheumie, I’ve never had any issues when I wanted to see a specialist. #LupusChat |
 | Angie @AngiecarterUK The best ever appointment I ever had when I discovered my new #Doctor had lupus. Finally someone understood. I literally sobbed #lupuschat. https://t.co/LLhLTI9AIA |
| Carly by Nature @SynceNerd_Carli A4b: Usually my doctors are happy to give me referrals to other specialists to manage certain aspects of my care. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4B. I am lucky that they are conscious of how complicated Lupus is and that it takes a team. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4b: I have had more than a few doctors scoff when I ask them for referrals & think they should handle all my care alone. NOPE! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4a: When one of my organs is having a severe issue I usually ask my primary care & rheum Drs if I should see a specialist. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A4B. Both from my primary and my rheumie, I’ve never had any issues when I wanted to see a specialist. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4B. Both from my primary and my rheumie, I’ve never had any issues when I wanted to see a specialist. #LupusChat |
| #LupusChat @Lupus_Chat RT @AngiecarterUK: The best ever appointment I ever had when I discovered my new #Doctor had lupus. Finally someone understood. I literally sobbed #lupuschat. https://t.co/LLhLTI9AIA |
| Carly by Nature @SynceNerd_Carli A4b: When that happens, I INSIST they give me the referral. If they don’t, I will go to my PCP and get the referral if I can. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4b: A4b: Usually my doctors are happy to give me referrals to other specialists to manage certain aspects of my care. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4B. I am lucky that they are conscious of how complicated Lupus is and that it takes a team. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4a: A4a: When one of my organs is having a severe issue I usually ask my primary care & rheum Drs if I should see a specialist. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4b: A4b: I have had more than a few doctors scoff when I ask them for referrals & think they should handle all my care alone. NOPE! #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Lupus_Chat: Q4B: Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/v8ALBrFekJ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A4b: A4b: I have had more than a few doctors scoff when I ask them for referrals & think they should handle all my care alone. NOPE! #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @SynceNerd_Carli: A4b: A4b: I have had more than a few doctors scoff when I ask them for referrals & think they should handle all my care alone. NOPE! #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @SynceNerd_Carli: A4b: A4b: When that happens, I INSIST they give me the referral. If they don’t, I will go to my PCP and get the referral if I can. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4B: Q4B: What has your experience been like when requesting a referral from the leading healthcare professional on your care team? #LupusChat https://t.co/v8ALBrFekJ |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @Xtel007: A4B. I am lucky that they are conscious of how complicated Lupus is and that it takes a team. #LupusChat |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @sickysummie: A4: A4: When symptoms or pain interfere w/ daily life we talk referral. #lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Same here. Extra time of our lil virtual meetups? YES PLEASE. #LupusChat https://t.co/vs2MSRipNm |
| Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @sickysummie: I’m Summer in Seattle. I’ve had connective tissue disease since 2006. Dx’d arthritis 2012, lupus 2015 #LupusChat |
| Caring For Lupus @CaringForLupus A4a I didn't realize how many different specialist are involved in Lupus Care. I'm learning with Miah 💜💜💜 #LupusChat |
| Angie @AngiecarterUK We are our own #CEO when it comes to our health. We know our symptoms & take responsibility for self care #LupusChat #LupusWarriors #lupus |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A3: A3: I once had a Rheum Dr who refused to let me be a part of my treatment plan. I finally asked for my health records & moved on #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4a: I learned recently that there are Pain Management Specialists. This is who I see to help manage acute & chronic pain now. #LupusChat |
| Scherly Leon, MD @SLeonMD RT @AngiecarterUK: We are our own #CEO when it comes to our health. We know our symptoms & take responsibility for self care #LupusChat #LupusWarriors #lupus |
| Tiffany ⁷ @TiffanyAndLupus RT @AngiecarterUK: We are our own #CEO when it comes to our health. We know our symptoms & take responsibility for self care #LupusChat #LupusWarriors #lupus |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4a I didn't realize how many different specialist are involved in Lupus Care. I'm learning with Miah 💜💜💜 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Same here. Extra time of our lil virtual meetups? YES PLEASE. #LupusChat https://t.co/vs2MSRipNm |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4B. I am lucky that they are conscious of how complicated Lupus is and that it takes a team. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @AngiecarterUK: The best ever appointment I ever had when I discovered my new #Doctor had lupus. Finally someone understood. I literally sobbed #lupuschat. https://t.co/LLhLTI9AIA |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4a: A4a: I learned recently that there are Pain Management Specialists. This is who I see to help manage acute & chronic pain now. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Wow I bet. I would've been so emoltional 😪 #LupusChat https://t.co/pd9Y8qXn0y |
| #LupusChat @Lupus_Chat RT @AngiecarterUK: We are our own #CEO when it comes to our health. We know our symptoms & take responsibility for self care #LupusChat #LupusWarriors #lupus |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A4a I didn't realize how many different specialist are involved in Lupus Care. I'm learning with Miah 💜💜💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: Same here. Extra time of our lil virtual meetups? YES PLEASE. #LupusChat https://t.co/vs2MSRipNm |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4a I didn't realize how many different specialist are involved in Lupus Care. I'm learning with Miah 💜💜💜 #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4b: A4b: When that happens, I INSIST they give me the referral. If they don’t, I will go to my PCP and get the referral if I can. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4B. The insurance companies were the main problem. It would take MONTHS to get a referral approved. Now I get it immediately. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @AngiecarterUK: We are our own #CEO when it comes to our health. We know our symptoms & take responsibility for self care #LupusChat #LupusWarriors #lupus |
| #LupusChat @Lupus_Chat Our discussion time is coming to an end today, our last Question is up next! #LupusChat https://t.co/RHoUkokKOs |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A4B. The insurance companies were the main problem. It would take MONTHS to get a referral approved. Now I get it immediately. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4B. The insurance companies were the main problem. It would take MONTHS to get a referral approved. Now I get it immediately. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A4a I didn't realize how many different specialist are involved in Lupus Care. I'm learning with Miah 💜💜💜 #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Our discussion time is coming to an end today, our last Question is up next! #LupusChat https://t.co/RHoUkokKOs |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Please don’t feel guilty if you cannot stay for our entire #LupusChat discussion today! #selfcare is important, no guilt needed 💜 https://t.co/qYrUoL3m1O |
| Carly by Nature @SynceNerd_Carli @cardiackenzie This is so important. I believe very strongly in treatment plans that have the patient as a whole, in mind. not just body parts. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Our discussion time is coming to an end today, our last Question is up next! #LupusChat https://t.co/RHoUkokKOs |
| #LupusChat @Lupus_Chat Q5: How can we help ensure everyone on our healthcare team communicates and is in agreement with one another? #LupusChat https://t.co/kI32f7i2Kz |
| Tiffany ⁷ @TiffanyAndLupus Q5: How can we help ensure everyone on our healthcare team communicates and is in agreement with one another? #LupusChat https://t.co/C8dlZVAEo4 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our discussion time is coming to an end today, our last Question is up next! #LupusChat https://t.co/RHoUkokKOs |
| #LupusChat @Lupus_Chat Nuestra última pregunta es la siguiente! #LupusChat https://t.co/Rxzo4Lfu9E |
| Tiffany ⁷ @TiffanyAndLupus A4b: If my primary care doctor hadn't referred me to a rheumatologist when my labs were irregular I would have been misdiagnosed! #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: @cardiackenzie This is so important. I believe very strongly in treatment plans that have the patient as a whole, in mind. not just body parts. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: How can we help ensure everyone on our healthcare team communicates and is in agreement with one another? #LupusChat https://t.co/kI32f7i2Kz |
| #LupusChat @Lupus_Chat Q5 Cómo podemos ayudar a asegurarnos que todos los miembros de nuestro equipo de salud se comuniquen y estén de acuerdo entre sí? #LupusChat https://t.co/FxMM3pITHy |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Nuestra última pregunta es la siguiente! #LupusChat https://t.co/Rxzo4Lfu9E |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4b: A4b: If my primary care doctor hadn't referred me to a rheumatologist when my labs were irregular I would have been misdiagnosed! #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: How can we help ensure everyone on our healthcare team communicates and is in agreement with one another? #LupusChat https://t.co/kI32f7i2Kz |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4b: A4b: If my primary care doctor hadn't referred me to a rheumatologist when my labs were irregular I would have been misdiagnosed! #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5 Cómo podemos ayudar a asegurarnos que todos los miembros de nuestro equipo de salud se comuniquen y estén de acuerdo entre sí? #LupusChat https://t.co/FxMM3pITHy |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our discussion time is coming to an end today, our last Question is up next! #LupusChat https://t.co/RHoUkokKOs |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: How can we help ensure everyone on our healthcare team communicates and is in agreement with one another? #LupusChat https://t.co/kI32f7i2Kz |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5 Cómo podemos ayudar a asegurarnos que todos los miembros de nuestro equipo de salud se comuniquen y estén de acuerdo entre sí? #LupusChat https://t.co/FxMM3pITHy |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: @cardiackenzie This is so important. I believe very strongly in treatment plans that have the patient as a whole, in mind. not just body parts. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4a: A4a: I learned recently that there are Pain Management Specialists. This is who I see to help manage acute & chronic pain now. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4a: A4a: I learned recently that there are Pain Management Specialists. This is who I see to help manage acute & chronic pain now. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4b: A4b: If my primary care doctor hadn't referred me to a rheumatologist when my labs were irregular I would have been misdiagnosed! #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: I try to ensure my Doctors are in the same hospital system to make it easier for them to communicate with each other. #LupusChat |
| RaquelRoschell @raquelonpurpose A5 : We have to stay on it..stay proactive. Ask if they are communicating. Keep in contact. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4a: Trying to find proper treatment for pain is so complex. For those of us w/chronic issues we can be mislabeled as seekers. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: I try to ensure my Doctors are in the same hospital system to make it easier for them to communicate with each other. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @AngiecarterUK Yes! This is what trust looks like. I fully trust my doctor, and I think that plays a huge part in me keeping with my treatment. #LupusChat |
 | Luna @hijhadelaluna RT @CaringForLupus: A3: A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
| You cant fight the good fight if you're dead @sickysummie A5: Ugh. Often I'm the messenger, if convo can't be charted. Docs talking on phone=impossible! #lupuschat |
| Caring For Lupus @CaringForLupus A5: I learned that having all your doctors within the same hospital network facilitates communication and access to medical files #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: @cardiackenzie This is so important. I believe very strongly in treatment plans that have the patient as a whole, in mind. not just body parts. #LupusChat |
| You cant fight the good fight if you're dead @sickysummie RT @SynceNerd_Carli: A5: A5: I try to ensure my Doctors are in the same hospital system to make it easier for them to communicate with each other. #LupusChat |
| Luna @hijhadelaluna RT @CaringForLupus: A3: A3: una conversación sería una necesidad. La comunicación y el diálogo abierto son importantes entre el médico y los pacientes. #LupusChat https://t.co/Ck5095jI0X |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q5: Q5: How can we help ensure everyone on our healthcare team communicates and is in agreement with one another? #LupusChat https://t.co/kI32f7i2Kz |
| Tiffany ⁷ @TiffanyAndLupus A5: The majority of my physicians are all in the same network. I have ask them to speak w/each other often. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A5: A5: I learned that having all your doctors within the same hospital network facilitates communication and access to medical files #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @sickysummie: A5: A5: Ugh. Often I'm the messenger, if convo can't be charted. Docs talking on phone=impossible! #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3: A3: A conversation would be a must. Communication and open dialog is important between doctor and patients. #LupusChat https://t.co/fR4EokdFAe |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @AngiecarterUK Yes! This is what trust looks like. I fully trust my doctor, and I think that plays a huge part in me keeping with my treatment. #LupusChat |
| Luna @hijhadelaluna RT @TiffanyAndLupus: A3: A3: I once had a Rheum Dr who refused to let me be a part of my treatment plan. I finally asked for my health records & moved on #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. First,I try to have all my docs in the same health system. That way notes are shared, they might know each other. #LupusChat |
| Scherly Leon, MD @SLeonMD @Lupus_Chat I think I missed the last question? Can you tag me? #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: If they don’t work in the same hosp., I will make sure they know who/where my other Drs are so they can consult if need be. #LupusChat |
| Luna @hijhadelaluna RT @Xtel007: @harlem_peach Happened to me too. When there's no trust, you're less likely to be compliant. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: For Drs outside of my care network the responsibility usually falls on me to keep them all in communication. #LupusChat |
#LupusChat content from Twitter.