#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
– ().
See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Carly by Nature @SynceNerd_Carli #LupusChat Tiiiiiiime!!!! Let's Gooooooooooo!!!! https://t.co/VPW7VeLYWc |
 | #LupusChat @Lupus_Chat Bienvenido a #LupusChat! Hoy discutiremos la preparación necesaria para soportar los altibajos de los feriados/vacaciones y cómo descomprimir saludablemente. https://t.co/y2HoWYBlGF |
| #LupusChat @Lupus_Chat Welcome to #LupusChat! Today we’ll discuss the preparation needed to endure the highs and lows of the holidays and how to healthily decompress in the aftermath. https://t.co/YzwgI9LDy8 |
| #LupusChat @Lupus_Chat Ayyyyyy! #LupusChat is back! https://t.co/urX3vNI6Hv |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the preparation needed to endure the highs and lows of the holidays and how to healthily decompress in the aftermath. https://t.co/YzwgI9LDy8 |
 | Tiffany ⁷ @TiffanyAndLupus Ayyyyyyy! #LupusChat is back!!! 🎉 https://t.co/2l6LMwhhRb |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the preparation needed to endure the highs and lows of the holidays and how to healthily decompress in the aftermath. https://t.co/YzwgI9LDy8 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Aye #LupusChat tiiiiiime! https://t.co/Y1dMJDFXTG |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: #LupusChat Tiiiiiiime!!!! Let's Gooooooooooo!!!! https://t.co/VPW7VeLYWc |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Aye #LupusChat tiiiiiime! https://t.co/Y1dMJDFXTG |
| #LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: #LupusChat Tiiiiiiime!!!! Let's Gooooooooooo!!!! https://t.co/VPW7VeLYWc |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: Ayyyyyyy! #LupusChat is back!!! 🎉 https://t.co/2l6LMwhhRb |
| Carly by Nature @SynceNerd_Carli Heads up: It's #LupusChat Sunday! You already know that means for the next hour and change its all #Lupus everything over here. Mute as needed or stick around and learn something. The choice is yours. https://t.co/yQJ0q9oseS |
| #LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/OMDXofZx4j |
| #LupusChat @Lupus_Chat Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/phCieBfuJR |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/phCieBfuJR |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Heads up: Heads up: It's #LupusChat Sunday! You already know that means for the next hour and change its all #Lupus everything over here. Mute as needed or stick around and learn something. The choice is yours. https://t.co/yQJ0q9oseS |
| #LupusChat @Lupus_Chat Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. |
| #LupusChat @Lupus_Chat Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. |
 | Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: #LupusChat Tiiiiiiime!!!! Let's Gooooooooooo!!!! https://t.co/VPW7VeLYWc |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the preparation needed to endure the highs and lows of the holidays and how to healthily decompress in the aftermath. https://t.co/YzwgI9LDy8 |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Ayyyyyyy! #LupusChat is back!!! 🎉 https://t.co/2l6LMwhhRb |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Heads up: Heads up: It's #LupusChat Sunday! You already know that means for the next hour and change its all #Lupus everything over here. Mute as needed or stick around and learn something. The choice is yours. https://t.co/yQJ0q9oseS |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/phCieBfuJR |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/phCieBfuJR |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/OMDXofZx4j |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos la preparación necesaria para soportar los altibajos de los feriados/vacaciones y cómo descomprimir saludablemente. https://t.co/y2HoWYBlGF |
| #LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/OZSKNbG4Ag |
| #LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/WJmwWOOzZZ |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Heads up: Heads up: It's #LupusChat Sunday! You already know that means for the next hour and change its all #Lupus everything over here. Mute as needed or stick around and learn something. The choice is yours. https://t.co/yQJ0q9oseS |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/WJmwWOOzZZ |
| #LupusChat @Lupus_Chat RT @Xtel007: Aye #LupusChat tiiiiiime! https://t.co/Y1dMJDFXTG |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Ayyyyyyy! #LupusChat is back!!! 🎉 https://t.co/2l6LMwhhRb |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: #LupusChat Tiiiiiiime!!!! Let's Gooooooooooo!!!! https://t.co/VPW7VeLYWc |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today we’ll discuss the preparation needed to endure the highs and lows of the holidays and how to healthily decompress in the aftermath. https://t.co/YzwgI9LDy8 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido a #LupusChat! Hoy discutiremos la preparación necesaria para soportar los altibajos de los feriados/vacaciones y cómo descomprimir saludablemente. https://t.co/y2HoWYBlGF |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Ayyyyyyy! #LupusChat is back!!! 🎉 https://t.co/2l6LMwhhRb |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Lol we back! 😅 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Aye #LupusChat tiiiiiime! https://t.co/Y1dMJDFXTG |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| #LupusChat @Lupus_Chat Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es su bebida favorita para la temporada de vacaciones? https://t.co/popz3ASELz |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/OMDXofZx4j |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/phCieBfuJR |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Añadir #LupusChat a cada uno de sus tweets y utilice A1, A2, etc. para responder a cada pregunta. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/WJmwWOOzZZ |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/OZSKNbG4Ag |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es su bebida favorita para la temporada de vacaciones? https://t.co/popz3ASELz |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es su bebida favorita para la temporada de vacaciones? https://t.co/popz3ASELz |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/OZSKNbG4Ag |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/WJmwWOOzZZ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| Tiffany ⁷ @TiffanyAndLupus Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| #LupusChat @Lupus_Chat RT @Xtel007: Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE,lupus nephritis and endometriosis. Favorite holiday beverage is hot chocolate. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE,lupus nephritis and endometriosis. Favorite holiday beverage is hot chocolate. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE,lupus nephritis and endometriosis. Favorite holiday beverage is hot chocolate. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE,lupus nephritis and endometriosis. Favorite holiday beverage is hot chocolate. #LupusChat |
| Carly by Nature @SynceNerd_Carli Welcome everyone and thanks for joining us today! I’m Carly; Patient Advocate, Co-Host of #LupusChat, and our resident Science nerd. My three favorite holiday beverages are Coquito, my cousin’s rum punch, and my special homemade Bourbon eggnog. https://t.co/sbbnam53Oq |
| #LupusChat @Lupus_Chat @kathyariki Thanks for joining us today, Katherine! Please add the tag: #LupusChat to your tweets so we can see them 😊 |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Welcome back to #LupusChat Ivey! Hot chocolate is always a fave. |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Welcome everyone and thanks for joining us today! I’m Carly; Patient Advocate, Co-Host of #LupusChat, and our resident Science nerd. My three favorite holiday beverages are Coquito, my cousin’s rum punch, and my special homemade Bourbon eggnog. https://t.co/sbbnam53Oq |
 | RaquelRoschell @raquelonpurpose Hi! Raquel from Texas. I am an entrepreneur living with chronic illness. I love salted caramel speciality coffee💜. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @SynceNerd_Carli Would that be a trini rum punch? 👀 #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: Hi! Raquel from Texas. I am an entrepreneur living with chronic illness. I love salted caramel speciality coffee💜. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| Caring For Lupus @CaringForLupus Hello.... I'm Elizabeth from NJ I'm a #Lupuschat co-host 🤗. My daughter is a Lupus Warrior. Her favorite holiday beverage is hot chocolate!!!! Yummy https://t.co/TReWNAIobu |
| #LupusChat @Lupus_Chat RT @CaringForLupus: Hello.... I'm Elizabeth from NJ I'm a #Lupuschat co-host 🤗. My daughter is a Lupus Warrior. Her favorite holiday beverage is hot chocolate!!!! Yummy https://t.co/TReWNAIobu |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: Hi! Raquel from Texas. I am an entrepreneur living with chronic illness. I love salted caramel speciality coffee💜. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Welcome everyone and thanks for joining us today! I’m Carly; Patient Advocate, Co-Host of #LupusChat, and our resident Science nerd. My three favorite holiday beverages are Coquito, my cousin’s rum punch, and my special homemade Bourbon eggnog. https://t.co/sbbnam53Oq |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Welcome everyone and thanks for joining us today! I’m Carly; Patient Advocate, Co-Host of #LupusChat, and our resident Science nerd. My three favorite holiday beverages are Coquito, my cousin’s rum punch, and my special homemade Bourbon eggnog. https://t.co/sbbnam53Oq |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE,lupus nephritis and endometriosis. Favorite holiday beverage is hot chocolate. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Hello! I’m Tiffany, your #LupusChat Co-host from New York City. Next year will be my 10th year as a survivor who’s been kicking major SLE & nephritis ass. My favorite holiday drink is Coquito. It’s kinda like a latinx rum spiked eggnog. https://t.co/XqxmnRz2Ba |
| Caring For Lupus @CaringForLupus RT @Xtel007: Hi everyone. I’m Christele, I’ve had Lupus for 12 years and I’m one of your #LupusChat co-hosts. my fave holiday (and sometimes non-holiday) beverage is kremas. Gonna try to make some in the coming weeks. |
| Carly by Nature @SynceNerd_Carli ¡Bienvenidos a todos y gracias por acompañarnos hoy! Yo soy Carly; Defensor del paciente, coanfitrión de #LupusChat, y nuestro nerd científico residente. Mis tres bebidas navideñas favoritas son Coquito, el ponche de ron de mi primo y mi ponche de huevo Bourbon casero especial. https://t.co/IPFLmrXEpl |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: ¡Bienvenidos a todos y gracias por acompañarnos hoy! Yo soy Carly; Defensor del paciente, coanfitrión de #LupusChat, y nuestro nerd científico residente. Mis tres bebidas navideñas favoritas son Coquito, el ponche de ron de mi primo y mi ponche de huevo Bourbon casero especial. https://t.co/IPFLmrXEpl |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: Hello.... I'm Elizabeth from NJ I'm a #Lupuschat co-host 🤗. My daughter is a Lupus Warrior. Her favorite holiday beverage is hot chocolate!!!! Yummy https://t.co/TReWNAIobu |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Hello.... I'm Elizabeth from NJ I'm a #Lupuschat co-host 🤗. My daughter is a Lupus Warrior. Her favorite holiday beverage is hot chocolate!!!! Yummy https://t.co/TReWNAIobu |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: Hi! Raquel from Texas. I am an entrepreneur living with chronic illness. I love salted caramel speciality coffee💜. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Welcome everyone and thanks for joining us today! I’m Carly; Patient Advocate, Co-Host of #LupusChat, and our resident Science nerd. My three favorite holiday beverages are Coquito, my cousin’s rum punch, and my special homemade Bourbon eggnog. https://t.co/sbbnam53Oq |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @raquelonpurpose Ooh I love everything salted caramel. Yum #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: Hello.... I'm Elizabeth from NJ I'm a #Lupuschat co-host 🤗. My daughter is a Lupus Warrior. Her favorite holiday beverage is hot chocolate!!!! Yummy https://t.co/TReWNAIobu |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es su bebida favorita para la temporada de vacaciones? https://t.co/popz3ASELz |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @kathyariki @Lupus_Chat Hey Katherine, great to have you join us today! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hello.... I'm Elizabeth from NJ I'm a #Lupuschat co-host 🤗. My daughter is a Lupus Warrior. Her favorite holiday beverage is hot chocolate!!!! Yummy https://t.co/TReWNAIobu |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat Yes. Especially on cold days like today. #LupusChat |
| #LupusChat @Lupus_Chat Q1: Hay algun feriado/fecha específica que usted espera mas durante el año? #LupusChat https://t.co/w4l9cumQww |
| #LupusChat @Lupus_Chat Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| Carly by Nature @SynceNerd_Carli @TiffanyAndLupus Nope. Jamaican. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: Hi! Raquel from Texas. I am an entrepreneur living with chronic illness. I love salted caramel speciality coffee💜. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. My absolute fave holiday tho is my birthday. It’s usually very personal and I spend it in calm and quietness. I meditate and reflect a lot. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. I love Thanksgiving because of the togetherness and all the delicious food. We rarely have all the traditional dishes, we just have all the dishes that WE love lol. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. I love Thanksgiving because of the togetherness and all the delicious food. We rarely have all the traditional dishes, we just have all the dishes that WE love lol. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Hay algun feriado/fecha específica que usted espera mas durante el año? #LupusChat https://t.co/w4l9cumQww |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: ¡Bienvenidos a todos y gracias por acompañarnos hoy! Yo soy Carly; Defensor del paciente, coanfitrión de #LupusChat, y nuestro nerd científico residente. Mis tres bebidas navideñas favoritas son Coquito, el ponche de ron de mi primo y mi ponche de huevo Bourbon casero especial. https://t.co/IPFLmrXEpl |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| Carly by Nature @SynceNerd_Carli A1: Growing up, my favorite holiday was Thanksgiving. My Nana would have these large gatherings with like 100 people. It was dope. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: Every year I look forward to Thanksgiving the most. There are several cultural dishes that give me that warm fuzzy feeling & enjoying those with loved ones is absolutely the best. #Lupuschat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| Carly by Nature @SynceNerd_Carli @raquelonpurpose Welcome back to #LupusChat Raquel. I'm with you on salted caramel everyyything |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| Carly by Nature @SynceNerd_Carli @kathyariki @Lupus_Chat Welcome back to #LupusChat Katherine! Great to see you. |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. My absolute fave holiday tho is my birthday. It’s usually very personal and I spend it in calm and quietness. I meditate and reflect a lot. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. I love Thanksgiving because of the togetherness and all the delicious food. We rarely have all the traditional dishes, we just have all the dishes that WE love lol. #LupusChat |
| Carly by Nature @SynceNerd_Carli A1: Al crecer, mi fiesta favorita para celebrar fue el Día de Acción de Gracias. Mi Nana tendría una gran cena con unas 100 personas. ¡Fue grandioso! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: I also love celebrating the birthdays of my closest friends and family. My love language is food. So cooking dishes they enjoy the most is something I look forward to. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: Every year I look forward to Thanksgiving the most. There are several cultural dishes that give me that warm fuzzy feeling & enjoying those with loved ones is absolutely the best. #Lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. My absolute fave holiday tho is my birthday. It’s usually very personal and I spend it in calm and quietness. I meditate and reflect a lot. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Growing up, my favorite holiday was Thanksgiving. My Nana would have these large gatherings with like 100 people. It was dope. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: Every year I look forward to Thanksgiving the most. There are several cultural dishes that give me that warm fuzzy feeling & enjoying those with loved ones is absolutely the best. #Lupuschat |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. I love Thanksgiving because of the togetherness and all the delicious food. We rarely have all the traditional dishes, we just have all the dishes that WE love lol. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Al crecer, mi fiesta favorita para celebrar fue el Día de Acción de Gracias. Mi Nana tendría una gran cena con unas 100 personas. ¡Fue grandioso! #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I also love celebrating the birthdays of my closest friends and family. My love language is food. So cooking dishes they enjoy the most is something I look forward to. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1: A1: I also love celebrating the birthdays of my closest friends and family. My love language is food. So cooking dishes they enjoy the most is something I look forward to. #LupusChat |
| Carly by Nature @SynceNerd_Carli @bellaproduces @Lupus_Chat Bellaaaaaa!!! Welcome back to #LupusChat! We've missed you. 💜💜 |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A1 : I turned summer into a whole holiday this year😀. Other than that Christmas has normally always been a favorite. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. I love Thanksgiving because of the togetherness and all the delicious food. We rarely have all the traditional dishes, we just have all the dishes that WE love lol. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Growing up, my favorite holiday was Thanksgiving. My Nana would have these large gatherings with like 100 people. It was dope. #LupusChat |
| Carly by Nature @SynceNerd_Carli A1: Now, I look forward to Christmas Eve the most. My family gets together to plays games, cook, sing karaoke, tell stories, and exchange gifts. It is both the best and most stressful time of my year. Lol #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. My absolute fave holiday tho is my birthday. It’s usually very personal and I spend it in calm and quietness. I meditate and reflect a lot. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Al crecer, mi fiesta favorita para celebrar fue el Día de Acción de Gracias. Mi Nana tendría una gran cena con unas 100 personas. ¡Fue grandioso! #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : I turned summer into a whole holiday this year😀. Other than that Christmas has normally always been a favorite. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : I turned summer into a whole holiday this year😀. Other than that Christmas has normally always been a favorite. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Now, I look forward to Christmas Eve the most. My family gets together to plays games, cook, sing karaoke, tell stories, and exchange gifts. It is both the best and most stressful time of my year. Lol #LupusChat |
| Carly by Nature @SynceNerd_Carli A1: Ahora, espero con ansia la víspera de Navidad. Mi familia se reúne para jugar, cocinar, cantar karaoke, contar historias e intercambiar regalos. Es el mejor momento y el más estresante de mi año. Lol #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @raquelonpurpose @Lupus_Chat I actually love that idea. Summer is so awesome lol, it deserves #LupusChat |
| Caring For Lupus @CaringForLupus A1 Miah says that every year she looks forward to.... Christmas 🎄!! And for the flowing reasons: • Hot chocolate • Family gathering And school vacation!!! 😂 #Lupuschat https://t.co/4k6klYDtki |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Is there a specific holiday you look forward to the most during the year? #LupusChat https://t.co/TcVBzvIm1z |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Ahora, espero con ansia la víspera de Navidad. Mi familia se reúne para jugar, cocinar, cantar karaoke, contar historias e intercambiar regalos. Es el mejor momento y el más estresante de mi año. Lol #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Click on the hashtag ~> #LupusChat to join us if you are new to @Lupus_Chat & would like to participate in our conversation today. https://t.co/phCieBfuJR |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Ahora, espero con ansia la víspera de Navidad. Mi familia se reúne para jugar, cocinar, cantar karaoke, contar historias e intercambiar regalos. Es el mejor momento y el más estresante de mi año. Lol #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Now, I look forward to Christmas Eve the most. My family gets together to plays games, cook, sing karaoke, tell stories, and exchange gifts. It is both the best and most stressful time of my year. Lol #LupusChat |
| Carly by Nature @SynceNerd_Carli @super_von @Lupus_Chat Welcome to #LupusChat Javon! Congrats on your last year. 💜 |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : I turned summer into a whole holiday this year😀. Other than that Christmas has normally always been a favorite. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Miah says that every year she looks forward to.... Christmas 🎄!! And for the flowing reasons: • Hot chocolate • Family gathering And school vacation!!! 😂 #Lupuschat https://t.co/4k6klYDtki |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Miah says that every year she looks forward to.... Christmas 🎄!! And for the flowing reasons: • Hot chocolate • Family gathering And school vacation!!! 😂 #Lupuschat https://t.co/4k6klYDtki |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: I also love celebrating the birthdays of my closest friends and family. My love language is food. So cooking dishes they enjoy the most is something I look forward to. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Al crecer, mi fiesta favorita para celebrar fue el Día de Acción de Gracias. Mi Nana tendría una gran cena con unas 100 personas. ¡Fue grandioso! #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: Every year I look forward to Thanksgiving the most. There are several cultural dishes that give me that warm fuzzy feeling & enjoying those with loved ones is absolutely the best. #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @raquelonpurpose @Lupus_Chat I actually love that idea. Summer is so awesome lol, it deserves #LupusChat |
| #LupusChat @Lupus_Chat La temporada de vacaciones puede ser un momento emocionante para muchos, pero para quienes viven con enfermedades crónicas puede ser abrumadora. Centrémonos más en esto para la pregunta 2. #LupusChat https://t.co/n7vznxaDyC |
| #LupusChat @Lupus_Chat The holidays can be an exciting time for many, but for those living with chronic illness it can be overwhelming. Let’s focus on this more for Question 2. #LupusChat https://t.co/XLSALEoUbr |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Growing up, my favorite holiday was Thanksgiving. My Nana would have these large gatherings with like 100 people. It was dope. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : I turned summer into a whole holiday this year😀. Other than that Christmas has normally always been a favorite. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: The holidays can be an exciting time for many, but for those living with chronic illness it can be overwhelming. Let’s focus on this more for Question 2. #LupusChat https://t.co/XLSALEoUbr |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: The holidays can be an exciting time for many, but for those living with chronic illness it can be overwhelming. Let’s focus on this more for Question 2. #LupusChat https://t.co/XLSALEoUbr |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Miah says that every year she looks forward to.... Christmas 🎄!! And for the flowing reasons: • Hot chocolate • Family gathering And school vacation!!! 😂 #Lupuschat https://t.co/4k6klYDtki |
| #LupusChat @Lupus_Chat Q2: Cómo se prepara usted ante un feriado/fecha importante que requiere extra energía de su parte? #LupusChat https://t.co/whUkkM6TqE |
| #LupusChat @Lupus_Chat Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| Caring For Lupus @CaringForLupus A1 Miah dice que todos los años espera ... Navidad 🎄 !! Y por las razones: • Chocolate caliente • Reunión familiar • Y vacaciones escolares !!! 😂 #Lupuschat https://t.co/kbtDbWjuWm |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Hay algun feriado/fecha específica que usted espera mas durante el año? #LupusChat https://t.co/w4l9cumQww |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I prepare with lot of rest, pre-rest if you will lol. And pre-preparation lol: I make my lists way in advance, and plan getting everything I need and scheduling what I need to get done. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: Cómo se prepara usted ante un feriado/fecha importante que requiere extra energía de su parte? #LupusChat https://t.co/whUkkM6TqE |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Miah dice que todos los años espera ... Navidad 🎄 !! Y por las razones: • Chocolate caliente • Reunión familiar • Y vacaciones escolares !!! 😂 #Lupuschat https://t.co/kbtDbWjuWm |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. I prepare with lot of rest, pre-rest if you will lol. And pre-preparation lol: A2. I prepare with lot of rest, pre-rest if you will lol. And pre-preparation lol: I make my lists way in advance, and plan getting everything I need and scheduling what I need to get done. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. I make sure that my scheduling includes enough time to not rush from one thing to the next, and time for me to sit for a little while too. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: To prepare for major events & holidays I try to be tedious & consistent with taking my medications as prescribed. I also take probiotics to help protect me from potential airborne illnesses. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @ObiterDictum101 @Lupus_Chat As you should. Good on you for making that decision. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A2 : I have been taking the free weekends or days before the event to rest and care for myself. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I have been taking the free weekends or days before the event to rest and care for myself. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I have been taking the free weekends or days before the event to rest and care for myself. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A2. I make sure that my scheduling includes enough time to not rush from one thing to the next, and time for me to sit for a little while too. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: To prepare for major events & holidays I try to be tedious & consistent with taking my medications as prescribed. I also take probiotics to help protect me from potential airborne illnesses. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: To prepare for major events & holidays I try to be tedious & consistent with taking my medications as prescribed. I also take probiotics to help protect me from potential airborne illnesses. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I have been taking the free weekends or days before the event to rest and care for myself. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @TiffanyAndLupus: A2: A2: To prepare for major events & holidays I try to be tedious & consistent with taking my medications as prescribed. I also take probiotics to help protect me from potential airborne illnesses. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. I make sure that my scheduling includes enough time to not rush from one thing to the next, and time for me to sit for a little while too. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: In the past, I didn’t do a good job of this. I used to over work my mind and body. As of late, I’m sure to rest before the festivities begin. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: I also take several vitamin supplements to help with boosting energy. Vitamin b-complex is one I take twice a day when I need to prepare for high energy events. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2: A2: In the past, I didn’t do a good job of this. I used to over work my mind and body. As of late, I’m sure to rest before the festivities begin. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I have been taking the free weekends or days before the event to rest and care for myself. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: A2. I make sure that my scheduling includes enough time to not rush from one thing to the next, and time for me to sit for a little while too. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: To prepare for major events & holidays I try to be tedious & consistent with taking my medications as prescribed. I also take probiotics to help protect me from potential airborne illnesses. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: In the past, I didn’t do a good job of this. I used to over work my mind and body. As of late, I’m sure to rest before the festivities begin. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A2: A2: I also take several vitamin supplements to help with boosting energy. Vitamin b-complex is one I take twice a day when I need to prepare for high energy events. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: In the past, I didn’t do a good job of this. I used to over work my mind and body. As of late, I’m sure to rest before the festivities begin. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: En el pasado, no hice un buen trabajo en esto. Solía trabajar demasiado mi mente y mi cuerpo. Últimamente, estoy seguro de descansar antes de que comiencen las festividades. #LupusChat |
| #LupusChat @Lupus_Chat Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta. https://t.co/5pSdcVyov4 |
| #LupusChat @Lupus_Chat Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/9fO57V9rzT |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/9fO57V9rzT |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @bellaproduces @Lupus_Chat Ooh what do you do on Good Friday? #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: También paso tiempo con mi terapeuta antes de una reunión familiar. Me ayuda a preparar mi mente para no sentirme más ansioso. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: I also spend time with my Therapist before a family gathering. It helps me to prepare my mind so I don’t become more anxious. #LupusChat |
| #LupusChat @Lupus_Chat ¡Gracias familia #LupusChat! Esos son realmente buenos consejos para preservar la energía. Esperamos que todos estén tomando notas. Para la pregunta 3, discutiremos escuchar nuestros cuerpos. ¿Estás listo? https://t.co/qQPLMYMQSz |
| #LupusChat @Lupus_Chat Thank you #LupusChat family! Those are really great tips for preserving energy. We hope everyone is taking notes. For Question 3, we’ll discuss listening to our bodies. You ready? https://t.co/utawb16LPT |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: I also spend time with my Therapist before a family gathering. It helps me to prepare my mind so I don’t become more anxious. #LupusChat |
 | Katherine Rodriguez @kathyariki Q1 favoriteholiday always Thanksgiving I love cooking in kitchen with friends and family #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: También paso tiempo con mi terapeuta antes de una reunión familiar. Me ayuda a preparar mi mente para no sentirme más ansioso. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Thank you #LupusChat family! Those are really great tips for preserving energy. We hope everyone is taking notes. For Question 3, we’ll discuss listening to our bodies. You ready? https://t.co/utawb16LPT |
| Caring For Lupus @CaringForLupus A2 Miah says that because she is only twelve she is still trying to figure it out. Us...as her caregivers, we make sure she eats well that day, has plenty of rest. And 🙏 for the best. #Lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Thank you #LupusChat family! Those are really great tips for preserving energy. We hope everyone is taking notes. For Question 3, we’ll discuss listening to our bodies. You ready? https://t.co/utawb16LPT |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| Tiffany ⁷ @TiffanyAndLupus RT @kathyariki: Q1 favoriteholiday always Thanksgiving I love cooking in kitchen with friends and family #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : I have been taking the free weekends or days before the event to rest and care for myself. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @kathyariki: Q1 favoriteholiday always Thanksgiving I love cooking in kitchen with friends and family #LupusChat |
| #LupusChat @Lupus_Chat RT @kathyariki: Q1 favoriteholiday always Thanksgiving I love cooking in kitchen with friends and family #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Miah says that because she is only twelve she is still trying to figure it out. Us...as her caregivers, we make sure she eats well that day, has plenty of rest. And 🙏 for the best. #Lupuschat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: También paso tiempo con mi terapeuta antes de una reunión familiar. Me ayuda a preparar mi mente para no sentirme más ansioso. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/9fO57V9rzT |
| Carly by Nature @SynceNerd_Carli A2: I’m blessed to have family and friends that will force me to rest, even when I protest. #LupusChat |
| #LupusChat @Lupus_Chat Q3: Cuándo te das cuenta de que tu cuerpo necesita tiempo para descansar y recuperarse? ¿Cuáles son algunos signos reveladores? #LupusChat https://t.co/KC0B5WdNHE |
| #LupusChat @Lupus_Chat Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: En el pasado, no hice un buen trabajo en esto. Solía trabajar demasiado mi mente y mi cuerpo. Últimamente, estoy seguro de descansar antes de que comiencen las festividades. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: I’m blessed to have family and friends that will force me to rest, even when I protest. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
 | RealGirlReview @ARealGirlReview @Lupus_Chat A2: Rest when needed. No guilt. #lupuschat #Lupussucks |
| Tiffany ⁷ @TiffanyAndLupus RT @ARealGirlReview: @Lupus_Chat A2: @Lupus_Chat A2: Rest when needed. No guilt. #lupuschat #Lupussucks |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: I’m blessed to have family and friends that will force me to rest, even when I protest. #LupusChat |
| #LupusChat @Lupus_Chat RT @ARealGirlReview: @Lupus_Chat A2: @Lupus_Chat A2: Rest when needed. No guilt. #lupuschat #Lupussucks |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: En el pasado, no hice un buen trabajo en esto. Solía trabajar demasiado mi mente y mi cuerpo. Últimamente, estoy seguro de descansar antes de que comiencen las festividades. #LupusChat |
| Katherine Rodriguez @kathyariki A2 I havenot learned how to prepare myself for the holidays I suffer for at least 2-3 wks after #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: Tengo la suerte de tener familiares y amigos que me obligarán a descansar, incluso cuando protesto. #LupusChat |
| #LupusChat @Lupus_Chat RT @kathyariki: A2 I havenot learned how to prepare myself for the holidays I suffer for at least 2-3 wks after #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: Tengo la suerte de tener familiares y amigos que me obligarán a descansar, incluso cuando protesto. #LupusChat |
| RealGirlReview @ARealGirlReview @Lupus_Chat A3: Lethargy & restless sleep. #lupuschat #lupuswarrior #Lupussucks |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A2: A2: I also spend time with my Therapist before a family gathering. It helps me to prepare my mind so I don’t become more anxious. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| Tiffany ⁷ @TiffanyAndLupus @ARealGirlReview @Lupus_Chat this is sometimes the hardest part for me. I feel guilty for the way my body functions. I have to remind myself it's not my fault. (A2) #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: @ARealGirlReview @Lupus_Chat this is sometimes the hardest part for me. I feel guilty for the way my body functions. I have to remind myself it's not my fault. (A2) #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. When I get irritable or very forgetful is when I know I need to stop. Last Thanksgiving I misplaced my phone 3 times (which never happens) and knew it was my time to tap out lol. My cousin finished the cooking #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: Usually, I’ll feel a bit irritable. Sometimes I get this tingly feeling throughout my body as if my nerves are jumping, indoor lighting often triggers a headache or migraine. These signal a flare or high pain approaching. #LupusChat |
| #LupusChat @Lupus_Chat RT @ARealGirlReview: @Lupus_Chat A3: @Lupus_Chat A3: Lethargy & restless sleep. #lupuschat #lupuswarrior #Lupussucks |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. When I get irritable or very forgetful is when I know I need to stop. Last Thanksgiving I misplaced my phone 3 times (which never happens) and knew it was my time to tap out lol. My cousin finished the cooking #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Usually, I’ll feel a bit irritable. Sometimes I get this tingly feeling throughout my body as if my nerves are jumping, indoor lighting often triggers a headache or migraine. These signal a flare or high pain approaching. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2. I get as much rest as I can. And try to de-stress. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Miah dice que debido a que solo tiene doce años, todavía está tratando de aprender este aspecto. Nosotros ... como sus cuidadores, nos aseguramos de que coma bien ese día, descanse lo suficiente. Y 🙏 para esperar lo mejor ese día. #Lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: Cómo se prepara usted ante un feriado/fecha importante que requiere extra energía de su parte? #LupusChat https://t.co/whUkkM6TqE |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. When my knees hurt, it’s time to sit my butt down somewhere. Knee and back pain are ways my body lets me know I’ve done too much. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: Whenever my shoulders & neck begin to ache and tighten, I know it’s time for me to stop whatever it is I’m doing and focus on comforting my body. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2. I get as much rest as I can. And try to de-stress. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A2. I get as much rest as I can. And try to de-stress. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Miah dice que debido a que solo tiene doce años, todavía está tratando de aprender este aspecto. Nosotros ... como sus cuidadores, nos aseguramos de que coma bien ese día, descanse lo suficiente. Y 🙏 para esperar lo mejor ese día. #Lupuschat |
| RealGirlReview @ARealGirlReview @Lupus_Chat A1: I'm a #fall baby. September through Christmas tends to run me ragged because I love it all. #lupuschat #lupuswarrior #Lupussucks |
| Caring For Lupus @CaringForLupus RT @kathyariki: A2 I havenot learned how to prepare myself for the holidays I suffer for at least 2-3 wks after #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: Whenever my shoulders & neck begin to ache and tighten, I know it’s time for me to stop whatever it is I’m doing and focus on comforting my body. #LupusChat |
 | Topeka Independent Living Resource Center @TopekaILRC RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. When my knees hurt, it’s time to sit my butt down somewhere. Knee and back pain are ways my body lets me know I’ve done too much. #LupusChat |
| Caring For Lupus @CaringForLupus RT @ARealGirlReview: @Lupus_Chat A2: @Lupus_Chat A2: Rest when needed. No guilt. #lupuschat #Lupussucks |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: I also spend time with my Therapist before a family gathering. It helps me to prepare my mind so I don’t become more anxious. #LupusChat |
| Topeka Independent Living Resource Center @TopekaILRC RT @Lupus_Chat: Q2: Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| #LupusChat @Lupus_Chat RT @ARealGirlReview: @Lupus_Chat A1: @Lupus_Chat A1: I'm a #fall baby. September through Christmas tends to run me ragged because I love it all. #lupuschat #lupuswarrior #Lupussucks |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A3 : Lower back pain. I get really stiff and it becomes more difficult to walk. My eyes get red. I feel them becoming red and tired. I become irritable. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: I also take several vitamin supplements to help with boosting energy. Vitamin b-complex is one I take twice a day when I need to prepare for high energy events. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. I make sure that my scheduling includes enough time to not rush from one thing to the next, and time for me to sit for a little while too. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Lower back pain. I get really stiff and it becomes more difficult to walk. My eyes get red. I feel them becoming red and tired. I become irritable. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: To prepare for major events & holidays I try to be tedious & consistent with taking my medications as prescribed. I also take probiotics to help protect me from potential airborne illnesses. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. I prepare with lot of rest, pre-rest if you will lol. And pre-preparation lol: A2. I prepare with lot of rest, pre-rest if you will lol. And pre-preparation lol: I make my lists way in advance, and plan getting everything I need and scheduling what I need to get done. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ARealGirlReview: @Lupus_Chat A1: @Lupus_Chat A1: I'm a #fall baby. September through Christmas tends to run me ragged because I love it all. #lupuschat #lupuswarrior #Lupussucks |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: I also spend time with my Therapist before a family gathering. It helps me to prepare my mind so I don’t become more anxious. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. When my knees hurt, it’s time to sit my butt down somewhere. Knee and back pain are ways my body lets me know I’ve done too much. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Cuándo te das cuenta de que tu cuerpo necesita tiempo para descansar y recuperarse? ¿Cuáles son algunos signos reveladores? #LupusChat https://t.co/KC0B5WdNHE |
| Tiffany ⁷ @TiffanyAndLupus RT @kathyariki: A2 I havenot learned how to prepare myself for the holidays I suffer for at least 2-3 wks after #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3. When I get irritable or very forgetful is when I know I need to stop. Last Thanksgiving I misplaced my phone 3 times (which never happens) and knew it was my time to tap out lol. My cousin finished the cooking #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: Usually, I’ll feel a bit irritable. Sometimes I get this tingly feeling throughout my body as if my nerves are jumping, indoor lighting often triggers a headache or migraine. These signal a flare or high pain approaching. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A3: A3: Usually, I’ll feel a bit irritable. Sometimes I get this tingly feeling throughout my body as if my nerves are jumping, indoor lighting often triggers a headache or migraine. These signal a flare or high pain approaching. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A2. I get as much rest as I can. And try to de-stress. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A3. Fatigue. Brain fog. Mood swings. Pain all over. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Lower back pain. I get really stiff and it becomes more difficult to walk. My eyes get red. I feel them becoming red and tired. I become irritable. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Lower back pain. I get really stiff and it becomes more difficult to walk. My eyes get red. I feel them becoming red and tired. I become irritable. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3. When my knees hurt, it’s time to sit my butt down somewhere. Knee and back pain are ways my body lets me know I’ve done too much. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: Whenever my shoulders & neck begin to ache and tighten, I know it’s time for me to stop whatever it is I’m doing and focus on comforting my body. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: I’m usually aware right away. I begin to feel extremely fatigued. I also start feeling hot from the inside. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: Tengo la suerte de tener familiares y amigos que me obligarán a descansar, incluso cuando protesto. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A3. Fatigue. Brain fog. Mood swings. Pain all over. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: I’m blessed to have family and friends that will force me to rest, even when I protest. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @kathyariki I make lists lol all the time. Of what needs to get done. And assigned your task a specific day. That way you don't feel overwhelmed coz everything has it's own time. Schedule rest times too. It just take a little practice. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: I’m usually aware right away. I begin to feel extremely fatigued. I also start feeling hot from the inside. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A3. Fatigue. Brain fog. Mood swings. Pain all over. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: I’m usually aware right away. I begin to feel extremely fatigued. I also start feeling hot from the inside. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. |
| #LupusChat @Lupus_Chat RT @Xtel007: @kathyariki I make lists lol all the time. Of what needs to get done. And assigned your task a specific day. That way you don't feel overwhelmed coz everything has it's own time. Schedule rest times too. It just take a little practice. #LupusChat |
 | nunya @JuicysMomma RT @Lupus_Chat: Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question. https://t.co/9fO57V9rzT |
| RaquelRoschell @raquelonpurpose RT @iveyjanette_207: @Lupus_Chat A3. Fatigue. Brain fog. Mood swings. Pain all over. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: generalmente soy consciente de inmediato. Empiezo a sentirme extremadamente fatigado. También empiezo a sentir calor desde adentro. #LupusChat |
| Katherine Rodriguez @kathyariki A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
 | 𝐖𝐈𝐒𝐃𝐎𝐌 𝐁𝐄𝐀𝐓𝐒 @WisdomSince70 RT @Lupus_Chat: Let’s get our #LupusChat party started! Please share your name, where you are from, a little bit about yourself, and what is your favorite holiday beverage? https://t.co/z0nKeGPFps |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: generalmente soy consciente de inmediato. Empiezo a sentirme extremadamente fatigado. También empiezo a sentir calor desde adentro. #LupusChat |
| #LupusChat @Lupus_Chat RT @kathyariki: A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @ARealGirlReview @Lupus_Chat Yep. And I didn't realize until recently that my brain fog gets worse when I am fatigued. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @kathyariki: A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: generalmente soy consciente de inmediato. Empiezo a sentirme extremadamente fatigado. También empiezo a sentir calor desde adentro. #LupusChat |
| #LupusChat @Lupus_Chat Escuchar a nuestros cuerpos es importante, pero lo que hacemos con esa información es la clave. En la pregunta 4, exploraremos formas de manejar la sobrecarga sensorial. #LupusChat https://t.co/zZuV2LO0wF |
| #LupusChat @Lupus_Chat Listening to our bodies is important, but what we do with that information is the key. In Question 4, we’ll explore ways to handle experiencing sensory overload. #LupusChat https://t.co/NomviVksTp |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @kathyariki I make lists lol all the time. Of what needs to get done. And assigned your task a specific day. That way you don't feel overwhelmed coz everything has it's own time. Schedule rest times too. It just take a little practice. #LupusChat |
 | Rev. Dr. 4WheelWorkout @4WheelWorkOut A1: My anniversary is my holiday. It almost didn’t happen bc...regulations. So it’s kinda a big deal for me. |
| RaquelRoschell @raquelonpurpose RT @kathyariki: A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @ARealGirlReview @Lupus_Chat Yep. And I didn't realize until recently that my brain fog gets worse when I am fatigued. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: @ARealGirlReview @Lupus_Chat this is sometimes the hardest part for me. I feel guilty for the way my body functions. I have to remind myself it's not my fault. (A2) #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: I also begin forgetting things that I would otherwise remember. Like the names of household items, etc. This means its time to regroup. #LupusChat |
| #LupusChat @Lupus_Chat Q4: Si se siente abrumado durante una reunión de feriados/vacaciones, cómo se descomprime en el momento? #LupusChat https://t.co/IwSrTHFeHQ |
| #LupusChat @Lupus_Chat Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Listening to our bodies is important, but what we do with that information is the key. In Question 4, we’ll explore ways to handle experiencing sensory overload. #LupusChat https://t.co/NomviVksTp |
| Carly by Nature @SynceNerd_Carli RT @ARealGirlReview: @Lupus_Chat A3: @Lupus_Chat A3: Lethargy & restless sleep. #lupuschat #lupuswarrior #Lupussucks |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @kathyariki: A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Listening to our bodies is important, but what we do with that information is the key. In Question 4, we’ll explore ways to handle experiencing sensory overload. #LupusChat https://t.co/NomviVksTp |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A3: A3: I also begin forgetting things that I would otherwise remember. Like the names of household items, etc. This means its time to regroup. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @SynceNerd_Carli Samesies! #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: I also begin forgetting things that I would otherwise remember. Like the names of household items, etc. This means its time to regroup. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Carly by Nature @SynceNerd_Carli A3: También comienzo a olvidar cosas que de otra manera recordaría. Como los nombres de artículos para el hogar, etc. Esto significa que es hora de reagruparse. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Sometimes I just need a minute or 5 to just sit and close my eyes. If I can, I find somewhere I can be alone for a little bit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: I also begin forgetting things that I would otherwise remember. Like the names of household items, etc. This means its time to regroup. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: También comienzo a olvidar cosas que de otra manera recordaría. Como los nombres de artículos para el hogar, etc. Esto significa que es hora de reagruparse. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Sometimes I just need a minute or 5 to just sit and close my eyes. If I can, I find somewhere I can be alone for a little bit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Caring For Lupus @CaringForLupus RT @Xtel007: A4. Sometimes I just need a minute or 5 to just sit and close my eyes. If I can, I find somewhere I can be alone for a little bit. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: También comienzo a olvidar cosas que de otra manera recordaría. Como los nombres de artículos para el hogar, etc. Esto significa que es hora de reagruparse. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: I also begin forgetting things that I would otherwise remember. Like the names of household items, etc. This means its time to regroup. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: Si se siente abrumado durante una reunión de feriados/vacaciones, cómo se descomprime en el momento? #LupusChat https://t.co/IwSrTHFeHQ |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Sometimes I just need a minute or 5 to just sit and close my eyes. If I can, I find somewhere I can be alone for a little bit. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: generalmente soy consciente de inmediato. Empiezo a sentirme extremadamente fatigado. También empiezo a sentir calor desde adentro. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4: When dealing with overwhelm in the moment, I stop what I’m doing and try to assess what my body needs. I tell my loved ones what is bothering me and try to find a quiet dark place to rest. #LupusChat |
| Caring For Lupus @CaringForLupus RT @kathyariki: A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: When dealing with overwhelm in the moment, I stop what I’m doing and try to assess what my body needs. I tell my loved ones what is bothering me and try to find a quiet dark place to rest. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: When dealing with overwhelm in the moment, I stop what I’m doing and try to assess what my body needs. I tell my loved ones what is bothering me and try to find a quiet dark place to rest. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A4: Once I’m in a safe space, I try to focus on my pain areas. Icyhot or lidocaine patches for achey muscles. If necessary, I’ll use my portable TENS unit & take medicine while focusing on rest and recovery. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. When I get irritable or very forgetful is when I know I need to stop. Last Thanksgiving I misplaced my phone 3 times (which never happens) and knew it was my time to tap out lol. My cousin finished the cooking #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: Usually, I’ll feel a bit irritable. Sometimes I get this tingly feeling throughout my body as if my nerves are jumping, indoor lighting often triggers a headache or migraine. These signal a flare or high pain approaching. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A2. I get as much rest as I can. And try to de-stress. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @kathyariki Hope it helps. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: How do you prepare for the extra energy you'll need for a big holiday event? #LupusChat https://t.co/z8AD75qkAn |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: Cómo se prepara usted ante un feriado/fecha importante que requiere extra energía de su parte? #LupusChat https://t.co/whUkkM6TqE |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 Miah dice que debido a que solo tiene doce años, todavía está tratando de aprender este aspecto. Nosotros ... como sus cuidadores, nos aseguramos de que coma bien ese día, descanse lo suficiente. Y 🙏 para esperar lo mejor ese día. #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: Whenever my shoulders & neck begin to ache and tighten, I know it’s time for me to stop whatever it is I’m doing and focus on comforting my body. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A4 : I decided to not allow myself to become mentally stressed during holidays a few yrs ago. I spend my time with my loved ones and I avoid places that may cause social anxiety. If I do become overwhelmed I will separate myself for awhile. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. When my knees hurt, it’s time to sit my butt down somewhere. Knee and back pain are ways my body lets me know I’ve done too much. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @ARealGirlReview: @Lupus_Chat A1: @Lupus_Chat A1: I'm a #fall baby. September through Christmas tends to run me ragged because I love it all. #lupuschat #lupuswarrior #Lupussucks |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Once I’m in a safe space, I try to focus on my pain areas. Icyhot or lidocaine patches for achey muscles. If necessary, I’ll use my portable TENS unit & take medicine while focusing on rest and recovery. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: Once I’m in a safe space, I try to focus on my pain areas. Icyhot or lidocaine patches for achey muscles. If necessary, I’ll use my portable TENS unit & take medicine while focusing on rest and recovery. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I decided to not allow myself to become mentally stressed during holidays a few yrs ago. I spend my time with my loved ones and I avoid places that may cause social anxiety. If I do become overwhelmed I will separate myself for awhile. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I decided to not allow myself to become mentally stressed during holidays a few yrs ago. I spend my time with my loved ones and I avoid places that may cause social anxiety. If I do become overwhelmed I will separate myself for awhile. #LupusChat |
 | 🌙🌻 @_lunakay RT @TiffanyAndLupus: A3: A3: Usually, I’ll feel a bit irritable. Sometimes I get this tingly feeling throughout my body as if my nerves are jumping, indoor lighting often triggers a headache or migraine. These signal a flare or high pain approaching. #LupusChat |
| 🌙🌻 @_lunakay RT @TiffanyAndLupus: A3: A3: Whenever my shoulders & neck begin to ache and tighten, I know it’s time for me to stop whatever it is I’m doing and focus on comforting my body. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Lower back pain. I get really stiff and it becomes more difficult to walk. My eyes get red. I feel them becoming red and tired. I become irritable. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A3. Fatigue. Brain fog. Mood swings. Pain all over. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @kathyariki I make lists lol all the time. Of what needs to get done. And assigned your task a specific day. That way you don't feel overwhelmed coz everything has it's own time. Schedule rest times too. It just take a little practice. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @kathyariki: A3 My body quits at soon as i sit downI fall asleep if I don’t sit my legs will actually buckle then i begin a cycle of 12 to 20 hours of sleep w/o feeling rested #LupusChat |
| 🌙🌻 @_lunakay RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : Lower back pain. I get really stiff and it becomes more difficult to walk. My eyes get red. I feel them becoming red and tired. I become irritable. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @ARealGirlReview @Lupus_Chat Yep. And I didn't realize until recently that my brain fog gets worse when I am fatigued. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Escuchar a nuestros cuerpos es importante, pero lo que hacemos con esa información es la clave. En la pregunta 4, exploraremos formas de manejar la sobrecarga sensorial. #LupusChat https://t.co/zZuV2LO0wF |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Listening to our bodies is important, but what we do with that information is the key. In Question 4, we’ll explore ways to handle experiencing sensory overload. #LupusChat https://t.co/NomviVksTp |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I decided to not allow myself to become mentally stressed during holidays a few yrs ago. I spend my time with my loved ones and I avoid places that may cause social anxiety. If I do become overwhelmed I will separate myself for awhile. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: Once I’m in a safe space, I try to focus on my pain areas. Icyhot or lidocaine patches for achey muscles. If necessary, I’ll use my portable TENS unit & take medicine while focusing on rest and recovery. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I decided to not allow myself to become mentally stressed during holidays a few yrs ago. I spend my time with my loved ones and I avoid places that may cause social anxiety. If I do become overwhelmed I will separate myself for awhile. #LupusChat |
| #LupusChat @Lupus_Chat Para la pregunta 5, queremos reunir recursos como comunidad. Compartamos nuestras experiencias personales, a continuación. #LupusChat https://t.co/BGSCsIMX7P |
| #LupusChat @Lupus_Chat For Question 5, we want to gather resources and ideas as a community. Let’s share our personal experiences, next. #LupusChat https://t.co/622uNtVIQg |
| Katherine Rodriguez @kathyariki A4 I flow with it because I have no idea how else to deal with it thus begets stress begets major flares #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. Sometimes I just need a minute or 5 to just sit and close my eyes. If I can, I find somewhere I can be alone for a little bit. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Tiffany ⁷ @TiffanyAndLupus RT @kathyariki: A4 I flow with it because I have no idea how else to deal with it thus begets stress begets major flares #LupusChat |
| #LupusChat @Lupus_Chat Q5: Cuáles son algunas ayudas útiles que lo guían a través de la recuperación después de un evento importante? #LupusChat https://t.co/W9s4stTQ3p |
| #LupusChat @Lupus_Chat Q5: What are some helpful aids that guide you through recovery after a major event? #LupusChat https://t.co/cWknwJ2vPh |
| Carly by Nature @SynceNerd_Carli RT @kathyariki: A4 I flow with it because I have no idea how else to deal with it thus begets stress begets major flares #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: For Question 5, we want to gather resources and ideas as a community. Let’s share our personal experiences, next. #LupusChat https://t.co/622uNtVIQg |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Para la pregunta 5, queremos reunir recursos como comunidad. Compartamos nuestras experiencias personales, a continuación. #LupusChat https://t.co/BGSCsIMX7P |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: For Question 5, we want to gather resources and ideas as a community. Let’s share our personal experiences, next. #LupusChat https://t.co/622uNtVIQg |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: For Question 5, we want to gather resources and ideas as a community. Let’s share our personal experiences, next. #LupusChat https://t.co/622uNtVIQg |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: What are some helpful aids that guide you through recovery after a major event? #LupusChat https://t.co/cWknwJ2vPh |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Cuáles son algunas ayudas útiles que lo guían a través de la recuperación después de un evento importante? #LupusChat https://t.co/W9s4stTQ3p |
| Friends AgainstLupus @AgainstLupus RT @kathyariki: A4 I flow with it because I have no idea how else to deal with it thus begets stress begets major flares #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: Usually I need to take at least 5 minutes to sit and relax my body and mind. Also doing things that makes me laugh is helpful. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. Honestly, just rest. Laying under my covers and taking it as slow as possible. If possible I put a little break on all my responsibilities and lounge, do some leisurely reading or TV watching. #LupusChat |
| #LupusChat @Lupus_Chat RT @kathyariki: A4 I flow with it because I have no idea how else to deal with it thus begets stress begets major flares #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: What are some helpful aids that guide you through recovery after a major event? #LupusChat https://t.co/cWknwJ2vPh |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. Honestly, just rest. Laying under my covers and taking it as slow as possible. If possible I put a little break on all my responsibilities and lounge, do some leisurely reading or TV watching. #LupusChat |
| Caring For Lupus @CaringForLupus A3 Miah says that when a She starts getting exhausted and fatigue. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: When are you aware that your body needs time to rest and recover? What are some telltale signs? #LupusChat https://t.co/iQVWP84I6V |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Usually I need to take at least 5 minutes to sit and relax my body and mind. Also doing things that makes me laugh is helpful. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. Honestly, just rest. Laying under my covers and taking it as slow as possible. If possible I put a little break on all my responsibilities and lounge, do some leisurely reading or TV watching. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Miah says that when a She starts getting exhausted and fatigue. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. I also always make sure to stretch (especially to relieve my back pain), multiple times if necessary. And I eat food that make me feel good and happy, comfort foods. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: My heating pad comes to my rescue every time I have to recover after a major event. It helps soothe me when my muscles clench up. So does my TENs unit. Salonpas patches, Vicks vapor rub, and magnesium supplements. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: When dealing with overwhelm in the moment, I stop what I’m doing and try to assess what my body needs. I tell my loved ones what is bothering me and try to find a quiet dark place to rest. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Cuáles son algunas ayudas útiles que lo guían a través de la recuperación después de un evento importante? #LupusChat https://t.co/W9s4stTQ3p |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: What are some helpful aids that guide you through recovery after a major event? #LupusChat https://t.co/cWknwJ2vPh |
| Caring For Lupus @CaringForLupus RT @kathyariki: A4 I flow with it because I have no idea how else to deal with it thus begets stress begets major flares #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I decided to not allow myself to become mentally stressed during holidays a few yrs ago. I spend my time with my loved ones and I avoid places that may cause social anxiety. If I do become overwhelmed I will separate myself for awhile. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Once I’m in a safe space, I try to focus on my pain areas. Icyhot or lidocaine patches for achey muscles. If necessary, I’ll use my portable TENS unit & take medicine while focusing on rest and recovery. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. I also always make sure to stretch (especially to relieve my back pain), multiple times if necessary. And I eat food that make me feel good and happy, comfort foods. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: My heating pad comes to my rescue every time I have to recover after a major event. It helps soothe me when my muscles clench up. So does my TENs unit. Salonpas patches, Vicks vapor rub, and magnesium supplements. #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: Por lo general, necesito tomar al menos 5 minutos para sentarme y relajar mi cuerpo y mi mente. También es útil hacer cosas que me hagan reír. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: I don’t always have the financial means to do this often, but when I can I try to soak my whole body in a hot tub at the spa or get a massage to loosen up my tense muscles/pain up a bit. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. I also always make sure to stretch (especially to relieve my back pain), multiple times if necessary. And I eat food that make me feel good and happy, comfort foods. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: My heating pad comes to my rescue every time I have to recover after a major event. It helps soothe me when my muscles clench up. So does my TENs unit. Salonpas patches, Vicks vapor rub, and magnesium supplements. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A5. Honestly, just rest. Laying under my covers and taking it as slow as possible. If possible I put a little break on all my responsibilities and lounge, do some leisurely reading or TV watching. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Usually I need to take at least 5 minutes to sit and relax my body and mind. Also doing things that makes me laugh is helpful. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @bellaproduces @Lupus_Chat I used to be super bothered by the last one especially. Everything I miss out on coz I'm sick or resting. So glad I got passed that lol #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Por lo general, necesito tomar al menos 5 minutos para sentarme y relajar mi cuerpo y mi mente. También es útil hacer cosas que me hagan reír. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A5: A5: I don’t always have the financial means to do this often, but when I can I try to soak my whole body in a hot tub at the spa or get a massage to loosen up my tense muscles/pain up a bit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Por lo general, necesito tomar al menos 5 minutos para sentarme y relajar mi cuerpo y mi mente. También es útil hacer cosas que me hagan reír. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Por lo general, necesito tomar al menos 5 minutos para sentarme y relajar mi cuerpo y mi mente. También es útil hacer cosas que me hagan reír. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @bellaproduces @Lupus_Chat I used to be super bothered by the last one especially. Everything I miss out on coz I'm sick or resting. So glad I got passed that lol #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: I don’t always have the financial means to do this often, but when I can I try to soak my whole body in a hot tub at the spa or get a massage to loosen up my tense muscles/pain up a bit. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Usually I need to take at least 5 minutes to sit and relax my body and mind. Also doing things that makes me laugh is helpful. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. Honestly, just rest. Laying under my covers and taking it as slow as possible. If possible I put a little break on all my responsibilities and lounge, do some leisurely reading or TV watching. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. I also always make sure to stretch (especially to relieve my back pain), multiple times if necessary. And I eat food that make me feel good and happy, comfort foods. #LupusChat |
| RaquelRoschell @raquelonpurpose @kathyariki @Lupus_Chat I go to a room where noone else is or start playing on my phone. I am fully grown and those who know me know when I do that not to push. Those who don't learn. I tell them I need time right now. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @bellaproduces @Lupus_Chat I used to be super bothered by the last one especially. Everything I miss out on coz I'm sick or resting. So glad I got passed that lol #LupusChat |
| Carly by Nature @SynceNerd_Carli A4: A menudo encuentro que comer o beber agua es útil en estos tiempos. Regulando mi respiración. Solo teniendo tiempo para mí. Sin distracciones externas. #LupusChat |
| #LupusChat @Lupus_Chat ¡Estén atentos para nuestra última pregunta #LupusChat, que viene ahora! https://t.co/e7hSZXNIUB |
| #LupusChat @Lupus_Chat Stay tuned, our last #LupusChat question is next! https://t.co/lvhcF0YgJl |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @kathyariki Maybe that's what your body needs. If it takes a week of sleep to get you back to functioning levels, then that's what you have to do. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A5. Honestly, just rest. Laying under my covers and taking it as slow as possible. If possible I put a little break on all my responsibilities and lounge, do some leisurely reading or TV watching. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A5. I also always make sure to stretch (especially to relieve my back pain), multiple times if necessary. And I eat food that make me feel good and happy, comfort foods. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @kathyariki @Lupus_Chat I go to a room where noone else is or start playing on my phone. I am fully grown and those who know me know when I do that not to push. Those who don't learn. I tell them I need time right now. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @kathyariki Maybe that's what your body needs. If it takes a week of sleep to get you back to functioning levels, then that's what you have to do. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: A menudo encuentro que comer o beber agua es útil en estos tiempos. Regulando mi respiración. Solo teniendo tiempo para mí. Sin distracciones externas. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @kathyariki @Lupus_Chat I go to a room where noone else is or start playing on my phone. I am fully grown and those who know me know when I do that not to push. Those who don't learn. I tell them I need time right now. #LupusChat |
| #LupusChat @Lupus_Chat Q6: Qué consejo le daría a alguien que busca establecer límites o explicar sus límites a sus seres queridos durante la temporada navideña? #LupusChat https://t.co/5xpj76G8Zb |
| #LupusChat @Lupus_Chat Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Stay tuned, our last #LupusChat question is next! https://t.co/lvhcF0YgJl |
| Tiffany ⁷ @TiffanyAndLupus A6: When I try to set boundaries, I sometimes feel apologetic for how my body is behaving. Gently reminding ourselves that our body function is NOT our fault is important. Be kind to yourself in those moments #Lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @kathyariki @Lupus_Chat I go to a room where noone else is or start playing on my phone. I am fully grown and those who know me know when I do that not to push. Those who don't learn. I tell them I need time right now. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @bellaproduces @Lupus_Chat I used to be super bothered by the last one especially. Everything I miss out on coz I'm sick or resting. So glad I got passed that lol #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: I don’t always have the financial means to do this often, but when I can I try to soak my whole body in a hot tub at the spa or get a massage to loosen up my tense muscles/pain up a bit. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. I also always make sure to stretch (especially to relieve my back pain), multiple times if necessary. And I eat food that make me feel good and happy, comfort foods. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: My heating pad comes to my rescue every time I have to recover after a major event. It helps soothe me when my muscles clench up. So does my TENs unit. Salonpas patches, Vicks vapor rub, and magnesium supplements. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Miah says that when a She starts getting exhausted and fatigue. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: When I try to set boundaries, I sometimes feel apologetic for how my body is behaving. Gently reminding ourselves that our body function is NOT our fault is important. Be kind to yourself in those moments #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: ¡Estén atentos para nuestra última pregunta #LupusChat, que viene ahora! https://t.co/e7hSZXNIUB |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Stay tuned, our last #LupusChat question is next! https://t.co/lvhcF0YgJl |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @kathyariki Maybe that's what your body needs. If it takes a week of sleep to get you back to functioning levels, then that's what you have to do. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. I think it makes it easier if people know beforehand what your needs are, as far as protecting our energy to protect your health, etc. Of course that convo is not so easy to have. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A6: Sometimes the hardest part about setting boundaries is asking for help when needed. Find someone you trust, who respects your needs and let them know what you need in that moment. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q6: Q6: Qué consejo le daría a alguien que busca establecer límites o explicar sus límites a sus seres queridos durante la temporada navideña? #LupusChat https://t.co/5xpj76G8Zb |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: When I try to set boundaries, I sometimes feel apologetic for how my body is behaving. Gently reminding ourselves that our body function is NOT our fault is important. Be kind to yourself in those moments #Lupuschat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: Sometimes the hardest part about setting boundaries is asking for help when needed. Find someone you trust, who respects your needs and let them know what you need in that moment. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. I think it makes it easier if people know beforehand what your needs are, as far as protecting our energy to protect your health, etc. Of course that convo is not so easy to have. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Sometimes the hardest part about setting boundaries is asking for help when needed. Find someone you trust, who respects your needs and let them know what you need in that moment. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. I think it makes it easier if people know beforehand what your needs are, as far as protecting our energy to protect your health, etc. Of course that convo is not so easy to have. #LupusChat |
 | Yori @AnAmazingFeat A2: I store up at least 7 days prior and limit my socializing in that time, especially if I know I'm going to be expected to "small talk". #lupuschat |
| #LupusChat @Lupus_Chat RT @AnAmazingFeat: A2: A2: I store up at least 7 days prior and limit my socializing in that time, especially if I know I'm going to be expected to "small talk". #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @AnAmazingFeat: A2: A2: I store up at least 7 days prior and limit my socializing in that time, especially if I know I'm going to be expected to "small talk". #lupuschat |
 | Bougie Black Girl @BougieBlackGurl Brain fog, exhausted, legs, hands and feet on swoll and a mean bout of dizziness. |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. But if I did get push back, guess what? I’m going to rest. You have to do what you have to do for you. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. Because my fam already know about my limited energy, I did not get much push back when I needed someone else to take over so I could rest. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A6: Perhaps saying, “ [name] I’m having a hard time right now/I’m having a lot of pain, so I’m going to lie down for a bit. Is there a quiet space I can rest?” #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A5 : I say no to invites, trainings or conferences. I give myself grace. I stay in my pjs, read or watch tv. I will also go to a matinee..alone. Go to bed before I get exhausted. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: Perhaps saying, “ [name] I’m having a hard time right now/I’m having a lot of pain, so I’m going to lie down for a bit. Is there a quiet space I can rest?” #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. Because my fam already know about my limited energy, I did not get much push back when I needed someone else to take over so I could rest. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : I say no to invites, trainings or conferences. I give myself grace. I stay in my pjs, read or watch tv. I will also go to a matinee..alone. Go to bed before I get exhausted. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : I say no to invites, trainings or conferences. I give myself grace. I stay in my pjs, read or watch tv. I will also go to a matinee..alone. Go to bed before I get exhausted. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. Because my fam already know about my limited energy, I did not get much push back when I needed someone else to take over so I could rest. #LupusChat |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut A2: i spend the entire day before doing nothing or as little as possible. |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Perhaps saying, “ [name] I’m having a hard time right now/I’m having a lot of pain, so I’m going to lie down for a bit. Is there a quiet space I can rest?” #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. Because my fam already know about my limited energy, I did not get much push back when I needed someone else to take over so I could rest. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : I say no to invites, trainings or conferences. I give myself grace. I stay in my pjs, read or watch tv. I will also go to a matinee..alone. Go to bed before I get exhausted. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. But if I did get push back, guess what? I’m going to rest. You have to do what you have to do for you. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @AnAmazingFeat: A2: A2: I store up at least 7 days prior and limit my socializing in that time, especially if I know I'm going to be expected to "small talk". #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. I think it makes it easier if people know beforehand what your needs are, as far as protecting our energy to protect your health, etc. Of course that convo is not so easy to have. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @AnAmazingFeat @Lupus_Chat Very smart #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: Perhaps saying, “ [name] I’m having a hard time right now/I’m having a lot of pain, so I’m going to lie down for a bit. Is there a quiet space I can rest?” #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A6. But if I did get push back, guess what? I’m going to rest. You have to do what you have to do for you. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : I say no to invites, trainings or conferences. I give myself grace. I stay in my pjs, read or watch tv. I will also go to a matinee..alone. Go to bed before I get exhausted. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A6. Because my fam already know about my limited energy, I did not get much push back when I needed someone else to take over so I could rest. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: Perhaps saying, “ [name] I’m having a hard time right now/I’m having a lot of pain, so I’m going to lie down for a bit. Is there a quiet space I can rest?” #LupusChat |
| Caring For Lupus @CaringForLupus RT @AnAmazingFeat: A2: A2: I store up at least 7 days prior and limit my socializing in that time, especially if I know I'm going to be expected to "small talk". #lupuschat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A6. I think it makes it easier if people know beforehand what your needs are, as far as protecting our energy to protect your health, etc. Of course that convo is not so easy to have. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: Sometimes the hardest part about setting boundaries is asking for help when needed. Find someone you trust, who respects your needs and let them know what you need in that moment. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: When I try to set boundaries, I sometimes feel apologetic for how my body is behaving. Gently reminding ourselves that our body function is NOT our fault is important. Be kind to yourself in those moments #Lupuschat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: Qué consejo le daría a alguien que busca establecer límites o explicar sus límites a sus seres queridos durante la temporada navideña? #LupusChat https://t.co/5xpj76G8Zb |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: A menudo encuentro que comer o beber agua es útil en estos tiempos. Regulando mi respiración. Solo teniendo tiempo para mí. Sin distracciones externas. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. But if I did get push back, guess what? I’m going to rest. You have to do what you have to do for you. #LupusChat |
| Katherine Rodriguez @kathyariki A6 i have a well intentioned spouse that believes the answer to all my problems is exercise that said I have bought good earplugs and rest and ignore him #30yrs2gether #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A6 : The older I get the more I move with you really don't have to approve attitude😀. Those who know my illness ask me if I need a break. Tell me to take it easy. I am just upfront. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat A5 : @Lupus_Chat A5 : I say no to invites, trainings or conferences. I give myself grace. I stay in my pjs, read or watch tv. I will also go to a matinee..alone. Go to bed before I get exhausted. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: I’ve found this to be the hardest part. I still struggle with setting clear boundaries and letting folx know when I’m overwhelmed. #LupusChat |
| #LupusChat @Lupus_Chat ¡Agradeciendo a cada uno de ustedes por unirse a nuestra discusión #LupusChat sobre la preparación y la descompresión después de la temporada navideña! Realmente apreciamos todas las experiencias y consejos que ha compartido. https://t.co/9VwswQXKf4 |
| #LupusChat @Lupus_Chat Thanking each of you for joining our #LupusChat discussion about preparing for and decompressing after the holiday season! We truly appreciate all the experiences and tips you’ve shared. https://t.co/pMgRCEdenT |
| Tiffany ⁷ @TiffanyAndLupus RT @kathyariki: A6 i have a well intentioned spouse that believes the answer to all my problems is exercise that said I have bought good earplugs and rest and ignore him #30yrs2gether #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : The older I get the more I move with you really don't have to approve attitude😀. Those who know my illness ask me if I need a break. Tell me to take it easy. I am just upfront. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion about preparing for and decompressing after the holiday season! We truly appreciate all the experiences and tips you’ve shared. https://t.co/pMgRCEdenT |
| #LupusChat @Lupus_Chat RT @kathyariki: A6 i have a well intentioned spouse that believes the answer to all my problems is exercise that said I have bought good earplugs and rest and ignore him #30yrs2gether #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : The older I get the more I move with you really don't have to approve attitude😀. Those who know my illness ask me if I need a break. Tell me to take it easy. I am just upfront. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: I’ve found this to be the hardest part. I still struggle with setting clear boundaries and letting folx know when I’m overwhelmed. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Carly by Nature @SynceNerd_Carli A6: He encontrado que esta es la parte más difícil. Todavía me cuesta establecer límites claros y avisar a la gente cuando estoy abrumado. #LupusChat |
| #LupusChat @Lupus_Chat Nuestro próximo #LupusChat será el domingo 22 de diciembre a las 3 p.m., hora del este. ¡Estén atentos para nuestro próximo anuncio de tema y recuerden marcar sus calendarios para guardar la fecha! https://t.co/2lQDJCnKVO |
| #LupusChat @Lupus_Chat Our next #LupusChat will be Sunday, December 22nd at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/Z1DGN7SwLg |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 What a great #LupusChat this was. I'm going to do just like I suggested to everyone else and go lie down and rest. I am EXHAUSTED and everything hurts. Thank you for joining, everyone 💜 https://t.co/GqyhazOjeC |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Our next #LupusChat will be Sunday, December 22nd at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/Z1DGN7SwLg |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: What are some helpful aids that guide you through recovery after a major event? #LupusChat https://t.co/cWknwJ2vPh |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: If you become overwhelmed during a holiday gathering, how do you decompress in that moment? #LupusChat https://t.co/vVBAQS1gMJ |
| Carly by Nature @SynceNerd_Carli A6: Having these conversations before events is helpful. Let people know when you’re at mental and physical capacity. When you have no more to give. Easier said than done. #LupusChat |
| #LupusChat @Lupus_Chat Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday! https://t.co/6cUumZ7Qg8 |
| #LupusChat @Lupus_Chat Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/Trcyy1qPoG |
 | Little Miss Rogers @BbygrlRogers #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion about preparing for and decompressing after the holiday season! We truly appreciate all the experiences and tips you’ve shared. https://t.co/pMgRCEdenT |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion about preparing for and decompressing after the holiday season! We truly appreciate all the experiences and tips you’ve shared. https://t.co/pMgRCEdenT |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: What a great #LupusChat this was. I'm going to do just like I suggested to everyone else and go lie down and rest. I am EXHAUSTED and everything hurts. Thank you for joining, everyone 💜 https://t.co/GqyhazOjeC |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: What a great #LupusChat this was. I'm going to do just like I suggested to everyone else and go lie down and rest. I am EXHAUSTED and everything hurts. Thank you for joining, everyone 💜 https://t.co/GqyhazOjeC |
| Carly by Nature @SynceNerd_Carli A6: Tener estas conversaciones antes de los eventos es útil. Avísele a la gente cuando tenga capacidad mental y física. Cuando no tienes más para dar. Es más fácil decirlo que hacerlo. #LupusChat |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Having these conversations before events is helpful. Let people know when you’re at mental and physical capacity. When you have no more to give. Easier said than done. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. I try to sit down as much as possible. Excuse myself and head for a quiet spot if one is available. #LupusChat |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A4. I try to sit down as much as possible. Excuse myself and head for a quiet spot if one is available. #LupusChat |
| #LupusChat @Lupus_Chat RT @4WheelWorkOut: #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A6: A6: Tener estas conversaciones antes de los eventos es útil. Avísele a la gente cuando tenga capacidad mental y física. Cuando no tienes más para dar. Es más fácil decirlo que hacerlo. #LupusChat |
| #LupusChat @Lupus_Chat RT @BbygrlRogers: #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. I try to sit down as much as possible. Excuse myself and head for a quiet spot if one is available. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @4WheelWorkOut: #LupusChat |
| #LupusChat @Lupus_Chat RT @4WheelWorkOut: #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/Trcyy1qPoG |
| Carly by Nature @SynceNerd_Carli RT @4WheelWorkOut: #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BbygrlRogers: #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: I’ve found this to be the hardest part. I still struggle with setting clear boundaries and letting folx know when I’m overwhelmed. #LupusChat |
| Carly by Nature @SynceNerd_Carli @BbygrlRogers Welcome Lydia! Thanks for joining #LupusChat today |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A4. I try to sit down as much as possible. Excuse myself and head for a quiet spot if one is available. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @4WheelWorkOut: #LupusChat |
| Carly by Nature @SynceNerd_Carli @4WheelWorkOut Thanks for joining us T! 💜 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BbygrlRogers: #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Having these conversations before events is helpful. Let people know when you’re at mental and physical capacity. When you have no more to give. Easier said than done. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/Trcyy1qPoG |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut Tiara from Cali. Still acclimating to parenting while disabled, esp being a CPP. My fave holiday beverage is Coquito. I look forward to it every year. I love morir soñando even tho it’s not a holiday drink, I only make it during the season #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. Sleep. I watch my diet. I'll take Tylenol for pain. And my vitamins. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A6 : Reassure people before you get overwhelmed if you take a break it is not because you don't love them. It is for your health. You're better when you are rested. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A6 : If it is harder for you to speak up for whatever reason...people can have aggressive..noncompassionate energy. Give yourself the grace you give others. Write a note if you have to. Plan ahead. Advocate for you. #LupusChat |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: Nuestro próximo #LupusChat será el domingo 22 de diciembre a las 3 p.m., hora del este. ¡Estén atentos para nuestro próximo anuncio de tema y recuerden marcar sus calendarios para guardar la fecha! https://t.co/2lQDJCnKVO |
| Carly by Nature @SynceNerd_Carli Thank you to everyone who joined us today for #LupusChat. Thank you so much for sharing with us. We are grateful to have you in our community! https://t.co/WUZ0BAHAZs |
| Katherine Rodriguez @kathyariki RT @Lupus_Chat: Thanking each of you for joining our #LupusChat discussion about preparing for and decompressing after the holiday season! We truly appreciate all the experiences and tips you’ve shared. https://t.co/pMgRCEdenT |
| Tiffany ⁷ @TiffanyAndLupus I’m going to lay down bc my tummy hurts. Thank you for sharing your truths out loud with us at #LupusChat. It’s helpful to know that im not facing life with lupus alone. Y’all are the best ✨💓 https://t.co/NYUTSbVzd0 |
| Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: Q6: Q6: What advice would you offer someone looking to set boundaries with or explain their limits to loved ones during the holiday season? #LupusChat https://t.co/zhj4hLMrO3 |
| Carly by Nature @SynceNerd_Carli Gracias a todos los que nos acompañaron hoy por #LupusChat. Muchas gracias por compartir con nosotros. ¡Estamos agradecidos de tenerte en nuestra comunidad! https://t.co/zcmrGaQXdF |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A6. Explain in advance in a calm yet respectful manner that you may not be able to do as much or celebrate due to not feeling well. Your health and YOU take priority. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Xtel007: A6. Because my fam already know about my limited energy, I did not get much push back when I needed someone else to take over so I could rest. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: I’m going to lay down bc my tummy hurts. Thank you for sharing your truths out loud with us at #LupusChat. It’s helpful to know that im not facing life with lupus alone. Y’all are the best ✨💓 https://t.co/NYUTSbVzd0 |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : If it is harder for you to speak up for whatever reason...people can have aggressive..noncompassionate energy. Give yourself the grace you give others. Write a note if you have to. Plan ahead. Advocate for you. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : Reassure people before you get overwhelmed if you take a break it is not because you don't love them. It is for your health. You're better when you are rested. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A5. Sleep. I watch my diet. I'll take Tylenol for pain. And my vitamins. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our next #LupusChat will be Sunday, December 22nd at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/Z1DGN7SwLg |
| Carly by Nature @SynceNerd_Carli RT @4WheelWorkOut: Tiara from Cali. Still acclimating to parenting while disabled, esp being a CPP. My fave holiday beverage is Coquito. I look forward to it every year. I love morir soñando even tho it’s not a holiday drink, I only make it during the season #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Our next #LupusChat will be Sunday, December 22nd at 3PM Eastern Time. Stay tuned for our upcoming topic announcement and remember to mark your calendars to save the date! https://t.co/Z1DGN7SwLg |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/Trcyy1qPoG |
 | Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/Trcyy1qPoG |
#LupusChat content from Twitter.