#OTalk Transcript
Healthcare social media transcript of the #OTalk hashtag.
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See #OTalk Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | #OTalk @OTalk_ Good evening and welcome to this evening’s #OTalk Research chat. We are delighted to welcome @naomi_gallant who will be leading our chat this evening. It’s @hooper_ek on the @OTalk_ account this evening. Who is joining us / lurking? Do say hi 👋 |
 | Dr Jenny Preston MBE @preston_jenny @OTalk_ @naomi_gallant @hooper_ek Hi everyone, really pleased to be joining in tonight #OTalk |
| #OTalk @OTalk_ Remember the rules of #OTalk ... don’t forget your professional code of conduct, have fun and don’t forget the # (note to self there!!) |
| #OTalk @OTalk_ Our host tonight is @naomi_gallant who is experiencedin conducting research with people who are living with dementia. Would you like to lead off with Q1 Naomi? #OTalk |
 | Katja Michel @kamikatja RT @OTalk_: #OTalk Research 3rd Dec 2019 – Inclusive research for people who lack capacity to consent https://t.co/lRKgLJtgkA |
| #OTalk @OTalk_ Q1 from @naomi_gallant: |
| Dr Jenny Preston MBE @preston_jenny @naomi_gallant People with cognitive impairments due to neurological conditions #OTalk |
| #OTalk @OTalk_ Q1 from @naomi_gallant #OTalk (I forgot to use the # already 🤭) |
 | Jennie Brentnall @OT_Jen People with a lack of "capacity" to communicate in the form of ease to the researcher #OTalk |
| #OTalk @OTalk_ What does the acronym PLMD stand for @SusanGriffiths5 please? #OTalk |
| #OTalk @OTalk_ That is an interesting point @shirleypearceot .... does anyone else have anything to add to that? #OTalk |
| Jennie Brentnall @OT_Jen @naomi_gallant Often for lack of resources, people who have capacity to communicate (receptive and expressive) but not in normative oral and written form will be skipped over in research not specifically directed at them but v important to them due to "capacity" #OTalk |
| #OTalk @OTalk_ Thank you for your broad examples so far. Here is Q2 from @naomi_gallant #OTalk |
| Jennie Brentnall @OT_Jen People whose caregivers, or managers of the physical spaces they are in, act as gatekeepers and never allow them to be asked for consent #OTalk |
| #OTalk @OTalk_ This could be a potential barrier @Laura_Does ... could anyone give examples of ways they have addressed this? #OTalk |
| Jennie Brentnall @OT_Jen @OTalk_ @shirleypearceot Has implications for research design. You can have research that requires active consent and participation by both, and research that allows one or other to contribute what is theirs independently #OTalk |
 | Sherlyn 🤔⭐️(she/her) @sherlynmelody 😱 I’m so late! I’m here 👋🏾 #OTalk |
| Jennie Brentnall @OT_Jen RT @SusanGriffiths5: |
| #OTalk @OTalk_ In my experience (@hooper_ek) this can be a real problem .... people can act as gatekeepers and make assumptions without making the information accessible so that the person can make their own choice #OTalk |
| Dr Jenny Preston MBE @preston_jenny @Carolin64109281 @naomi_gallant There is also a perception of appropriateness, or otherwise, of including people with life limiting conditions although that perception does not necessarily come from people with MND #OTalk |
| #OTalk @OTalk_ Did you find a way to address this or was the project not able to progress beyond ethics? @Carolin64109281 #OTalk |
| Sherlyn 🤔⭐️(she/her) @sherlynmelody @naomi_gallant #otalk people with dementia who may not have the ability to verbalise their opinion, some service users with Parkinson’s who again may not be able to understand. There are lots. I work with older people who I find some of them can not always engage with me. |
 | JasminOT ⓥ @JasminLaffy @Carolin64109281 @naomi_gallant And did you have to change anything to account for the loss of capacity if so? #OTalk |
| Jennie Brentnall @OT_Jen @OTalk_ @naomi_gallant Recognising both consent and assent concepts helps. Barriers include some ethics committees, institutional gatekeepers, and time taken to flexibly schedule participation with fluctuating capacity and will #OTalk |
| Jennie Brentnall @OT_Jen RT @naomi_gallant: |
| #OTalk @OTalk_ Have you found the requirements of the ethics committee to be a barrier or facilitator in this regard? @sue_mesa #OTalk @naomi_gallant |
| Sherlyn 🤔⭐️(she/her) @sherlynmelody @naomi_gallant #otalk I’ve never completed any research. I’m thinking a barrier might be lack of advocacy, people being in advanced stages who may have passed away before research completed or gaining consent to research......?? |
| #OTalk @OTalk_ Q3 from @naomi_gallant How can we overcome these barriers and ensure that people without capacity to consent to research are included? #OTalk |
| Dr Jenny Preston MBE @preston_jenny @Carolin64109281 @naomi_gallant My experience is that people with MND are really keen to be involved in research. Some excellent opportunities coming up soon 🤔 #OTalk |
| Jennie Brentnall @OT_Jen @preston_jenny @Carolin64109281 @naomi_gallant Yes, this kind of "protection" happens from multiple sources. Also with people whose actions or opinions may be presented in ways that are imperfect or embarassing (sometimes to the one saying no, rather than the individual). #OTalk |
| #OTalk @OTalk_ Thanks for the signpost @DukeLynsay .... accessing training in involving people who lack capacity is an important step, and marries nicely in with GCP training too @naomi_gallant #OTalk |
| Dr Jenny Preston MBE @preston_jenny @sherlynmelody @naomi_gallant This is a good point but for me capacity to consent and attrition are not one and the same. However methodology and research design are key to considering all of these factors #OTalk |
| Sherlyn 🤔⭐️(she/her) @sherlynmelody @naomi_gallant #otalk I was thinking in their best interest? Speak with family/advocate about advanced decisions?? Would they be interested in using research for e.g. to help others? Had they had any interest in ‘making things better for others’? |
| Dr Jenny Preston MBE @preston_jenny @sue_mesa @naomi_gallant I’m not sure that I would agree, sorry! My qualitative research interviews allow me to get to know my participants just as well, if not even better than my clinical interviews #OTalk |
| #OTalk @OTalk_ There is provision under the mental capacity act to use a personal or nominated consultee in order to facilitate involvement of a person who lacks capacity @shirleypearceot @naomi_gallant #OTalk |
 | Emily Jones @emilyjonesmed #OTalk I think practical tips in terms of increasing possibility of capacity to consent - easy to read information guides, or video clips, communication aids, reduced environmental distraction, giving time to respond, working with families |
| #OTalk @OTalk_ Good point @DukeLynsay #OTalk |
| Emily Jones @emilyjonesmed Having conducted a research study with pwd in acute care, I think the barriers start with ethics committee - we talk about the need to include these groups but the reality is ethics boards are still very against researching people who lack capacity #OTalk |
| Jennie Brentnall @OT_Jen @naomi_gallant Do we need better education and guides for ethics committees (another place of limited clinician involvement)? I've encountered great advocates, ones that had a scary degree of trust in me, and ones that I never did see the ethical issue in their barrier #OTalk |
| Jennie Brentnall @OT_Jen RT @Laura_Does: |
| #OTalk @OTalk_ A great practical suggestion @emilyoliverdem ... what are people’s experiences of using these methods ? #OTalk @naomi_gallant |
| Jennie Brentnall @OT_Jen RT @DukeLynsay: |
| Jennie Brentnall @OT_Jen RT @naomi_gallant: |
| Dr Jenny Preston MBE @preston_jenny @sherlynmelody @naomi_gallant This will definitely be challenged by the ethics committee specifically in relation to the potential benefits or otherwise of research participation. This could be quite hard to argue despite the fact that all research helps others in some way #OTalk |
| #OTalk @OTalk_ We’re flowing nicely into Q4 from @naomi_gallant now ... please share methods and methodologies to enable inclusive research #OTalk |
| Sherlyn 🤔⭐️(she/her) @sherlynmelody @OTalk_ @emilyoliverdem @naomi_gallant #otalk I’ve used an iPad to help a lady understand what I was asking her. She was a bit deaf but could read my questions ‘typed in 72 point font’ this helped with communication and establishing capacity. |
| Jennie Brentnall @OT_Jen RT @Laura_Does: |
| Dr Jenny Preston MBE @preston_jenny @DukeLynsay @naomi_gallant That’s quite common @DukeLynsay #OTalk |
| Dr Jenny Preston MBE @preston_jenny @emilyoliverdem I think it depends on the committee and the proposal #OTalk |
| Jennie Brentnall @OT_Jen @naomi_gallant Start with the simple... Make methods accessible with multi format communication #OTalk |
| Dr Jenny Preston MBE @preston_jenny @Laura_Does @sue_mesa @naomi_gallant That’s it in a nutshell #OTalk |
| #OTalk @OTalk_ Hi @ToukieM don’t forget to add the # to your tweets so we can see them in the chat 👍 #OTalk https://t.co/UBwBe7AnnR |
| Jennie Brentnall @OT_Jen #OTalk Accessible methods for some may include more arts based (communication) |
| Dr Jenny Preston MBE @preston_jenny @OT_Jen @naomi_gallant There are opportunities for us all to get involved with your local ethics committee. I thoroughly recommend it. Joining the ethics committee was one of the best things I did as a novice researcher #OTalk |
| Jennie Brentnall @OT_Jen @sarahjoOT @OTalk_ @naomi_gallant Yes, observational (I have used quite a bit) and ethnographic #OTalk |
| #OTalk @OTalk_ How would a person go about doing this @preston_jenny ? #OTalk @naomi_gallant |
| Jennie Brentnall @OT_Jen #OTalk great chat thanks. Didn't think I'd get this much of a lay in (Aus morning) but the kids have awoken and are mobile so I must move on. I look forward to reading back. |
| Dr Jenny Preston MBE @preston_jenny @naomi_gallant I think that depends on the research question. I worry about choosing methodologies ahead of the question. Whatever the methodology there needs to be a genuine need for the research and for evidence that all ethical principles are being adhered to #OTalk |
| #OTalk @OTalk_ Have you found accessible ways to include people who lack capacity in quantitative studies such as RCTs? #OTalk @naomi_gallant @OT_Jen @sarahjoOT |
| Dr Jenny Preston MBE @preston_jenny @DukeLynsay @sue_mesa @naomi_gallant Hear hear @DukeLynsay #OTalk |
| #OTalk @OTalk_ @OT_Jen Thanks for joining us from Australia @OT_Jen #OTalk |
| Dr Jenny Preston MBE @preston_jenny @OTalk_ @naomi_gallant Speak to your local R&D Lead or Manager, then apply for vacancies as they occur. You get access to all sorts of training into the bargain #OTalk |
| #OTalk @OTalk_ Final 10 minutes of our chat now #OTalk ... time for one more question from @naomi_gallant? |
| #OTalk @OTalk_ Q5 from @naomi_gallant #OTalk |
| #OTalk @OTalk_ Don’t forget to add the # @sarahjoOT so we can join in with your comments. Thank you 😊 #OTalk |
| Dr Jenny Preston MBE @preston_jenny @naomi_gallant Is it about the research questions and how we make research accessible to wider groups. If someone genuinely doesn’t have capacity to consent then I’m not sure how we get round that #OTalk |
 | RCOT Older People @RCOT_OP RT @OTalk_: Q5 from @naomi_gallant #OTalk |
| RCOT Older People @RCOT_OP RT @naomi_gallant: |
 | Graham Walker @IAPT_Graham @naomi_gallant If research is focussed on assessment or intervention which is likely in their best interest and we work with carers to gain their consent that could work to be more inclusive #OTalk |
| #OTalk @OTalk_ As long as the research needs to involve people who lack capacity the mental capacity act can enable participation by using a nominated consultee .... but .... the researcher MUST attend to the responses of the participant i.e. ensure that assent is present #OTalk |
| Dr Jenny Preston MBE @preston_jenny RT @OTalk_: As long as the research needs to involve people who lack capacity the mental capacity act can enable participation by using a nominated consultee .... but .... the researcher MUST attend to the responses of the participant i.e. ensure that assent is present #OTalk |
| #OTalk @OTalk_ Any final thoughts on tonight’s #OTalk topic? #OTalk @naomi_gallant |
 | Autie - Artificial Autism Intelligence @grhluna24 RT @sue_mesa: |
| Sherlyn 🤔⭐️(she/her) @sherlynmelody @OTalk_ @naomi_gallant #otalk this has been very interesting. Thank you for this chat 👋🏾 |
| Dr Jenny Preston MBE @preston_jenny RT @naomi_gallant: |
| #OTalk @OTalk_ Well, that’s all we’ve got time for tonight #OTalk. Thank you for all of your contributions and to @naomi_gallant for leading this lively chat. Look out for the transcript which will be posted in a few days. |
| Dr Jenny Preston MBE @preston_jenny @DukeLynsay @naomi_gallant Additionally our psychology colleagues can give very helpful guidance and support re capacity to consent both in clinical practice and research #OTalk |
| Dr Jenny Preston MBE @preston_jenny @OTalk_ @naomi_gallant Thanks everyone, that was very stimulating and thought provoking tonight. I look forward to seeing lots of occupational therapists joining ethics committees 🤔 #OTalk. Thanks @hooper_ek and @naomi_gallant great job 👏👏 |
| #OTalk @OTalk_ This was our final #OTalk Research of the year .... thank you to everyone who has contributed during the research chats over the past 12 months. The regular @OTalk team will be back next. Good night all @hooper_ek signing off 👋 |
| Dr Jenny Preston MBE @preston_jenny RT @naomi_gallant: |
 | sarahkbingler @sarahkbingler RT @naomi_gallant: |
 | Dr Mary Birken @MaryBirken Sorry to have missed the last 2019 #OTalkresearch . Looking forward to 2020 #otalkresesearch tweetchats @MOT1ON_Research members are planning to book some more in! |
| #OTalk @OTalk_ #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA |
| JasminOT ⓥ @JasminLaffy RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA |
 | Catherine Gibbins (Evans) @catevans10 RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA |
| #OTalk @OTalk_ #OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by @SusanGriffiths5 https://t.co/QbRXTH27sA |
 | Jamie Cardell @OTJme RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by @SusanGriffiths5 https://t.co/QbRXTH27sA |
 | SCFT Allied Health Professionals @scft_ahp RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA |
 | Cathy Maguire @CathyMaguire17 RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA |
| Cathy Maguire @CathyMaguire17 RT @SusanGriffiths5: |
 | Donna Cook @DonnaCo80206339 RT @naomi_gallant: |
#OTalk content from Twitter.